Social and Psychological factors Affecting primary Care planning Effectiveness for people with dementia and other long term conditions

Lead Research Organisation: University College London
Department Name: Division of Psychiatry

Abstract

In the Alzheimer's Society Centre of Excellence for independence at home programme grant (New Interventions in Dementia Study (NIDUS): AS- PR2-16-002; commencing 1/3/18; CC=PI, KW Co-I), we plan to learn from the ESRC/NIHR-funded MARQUE care home study (ES/L001780/1) to understand how people with dementia can be supported to live independently in their own homes.
The proposed studentship, which the NIHR CLAHRC North Thames has agreed to co-fund, would be part-nested within the NIDUS study. The student would therefore have access to the expertise of a large, multidisciplinary team (including social gerontology, psychology, psychiatry, health economics, statistics, social work, primary care, implementation science). The proposed studentship is a discrete study exploring how people with dementia and long term conditions and their family carers can be supported by primary care and their wider social and care networks to manage their physical health. The student would develop an evidence base using social science methodologies, then use it to inform co-production of a resource to assist primary care staff to support people living with dementia and long term conditions to improve the care they receive. The student will then evaluate the new resource in a randomised, feasibility trial.

Publications

10 25 50
 
Description The results highlight the importance of collaboration between stakeholders (person with dementia, family carers, healthcare professionals, homecare workers) in the management of long-term conditions in dementia. It is important to consider the impact of cognition on self-management and adherence in effective care planning. The management of long-term conditions in dementia is much broader than medication management alone (for example, diet, physical activity, sleep) and involves a range of services from primary (for example, opticians, podiatrists, social workers) and secondary care (for example, neurologists, oncologist). The support for the management of long-term conditions in dementia exists on a continuum of stage of dementia and severity of long-term conditions.
Exploitation Route To be specified following award completion.
Sectors Healthcare

 
Description The Brilliant Club Scholar Programme 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Schools
Results and Impact For the Scholar Programme, I designed a course book featuring seven tutorials and an essay-based assignment based on my PhD research. Two groups of six pupils attended the tutorials. The aim of the Brilliant Club is to engage high achieving pupils in low participating schools with academia.
Year(s) Of Engagement Activity 2020