FOOD ALLERGY AWARENESS CHAMPIONS: TOWARDS IMPROVING FOOD SAFETY STANDARDS IN ONLINE FOOD PROCUREMENT FOR PEOPLE WITH FOOD HYPERSENSITIVITY

Lead Research Organisation: Queen's University Belfast
Department Name: Sch of Biological Sciences

Abstract

Food hypersensitivity includes allergies, intolerances and coeliac disease. The numbers affected in the UK are not known for sure, but about 1-2% of adults and 5-8% of children have food allergy, which can lead to life-threatening symptoms. At least one person in 100 has coeliac disease requiring them to avoid cereals containing gluten. Many more report different intolerances to a range of foods with different symptoms. These all require rigorous food avoidance - of ingredients deliberately added to foods, and additional controls to prevent cross contamination of a non-ingredient allergen in the supply chain, preparation or service / sales environment.
These individuals and those making food choices on their behalf rely on correct information being provided by all food businesses - via labelling on the packaging, online information, printed menus and folders, or by asking staff. Food businesses also need to assess the risk and put controls in place to reduce allergen contamination and encourage informed dialogue with consumers.
In response to high-profile fatalities in the recent years, and after consultation, legislation is changing in October 2021 to require products prepacked for direct sale (made and packed on site for later sale) to carry the name of the food, and the full ingredients list highlighting any of the 14 regulated allergens present. Allergen information for dishes or products made to order must be supplied to customers on request - in writing, or by asking staff, and customers should be made aware that this is possible - on menus and signs on the premises and online.

Significant societal changes in the last decade hastened by the global pandemic has led to soaring demand for online food delivery including ready to consume meals, drinks, and snacks; one in four consumers now considers using such services on a regular basis. Food businesses have chosen, or been forced, to adapt accordingly whilst still meeting regulatory requirements to provide information at the point of selection and when the food is collected or delivered. They also need to ensure that their practices and procedures enable consumer requests for allergen avoidance to be recorded and managed, cross contamination controlled, and food prepared specially for such requests to be clearly identified when delivered. Consumers at risk may encounter barriers discussing their particular needs with staff when making such purchases.
With the involvement of citizen scientists recruited from the UK public, this project aims to understand the safety, efficiency, practices, and behaviours involved in procuring food online from the perspective of people with food hypersensitivities. Citizen scientists will crowdsource their contributions towards the end goal, working in collaboration with professional scientists, openly discussing and developing their methods.

The project duration is 8 months with the work divided into four objectives:

1) recruiting a cohort of motivated citizen scientists following an avoidance diet and recording their perceptions, behaviours and practices
2) mapping procedures and practices of individual food businesses engaged in online food delivery
3) determination by analysis the presence of certain allergens in selected samples procured by participants, using accredited methods
4) effective dissemination of the results in innovative and impactful ways. More specifically, the recruited citizen scientists will not only actively engage in the data collection of the food ordered at their household using their smartphones and computers but also participate in shaping the experimental design and in further stages of the scientific process including the data analysis and result dissemination (co-designed citizen science project). The project's outcomes have the potential to shape future polices in food safety, and its novel methodology will have wider applications for future studies with benefits for all involved.

Technical Summary

In this developing online economy, there is uncertainty about how businesses operate and meet the needs of people with food hypersensitivity. As procedures and practices of both consumers and businesses are mostly unmapped and with a lack of literature evidence, a study is needed to answer emerging questions regarding food standards and allergen controls. Citizen science methodology is an appropriate way to deliver the large-scale data collection required. The FSA has identified food hypersensitivity as a research priority (priority 1). No direct FSA studies have been commissioned using citizen science methods.
This project seeks to improve understanding of the safety, efficiency, practices, and behaviours of procuring ready to eat (takeaway and delivered) food online from the perspective of people with food hypersensitivities. Participants following a food avoidance diet will be recruited using social media, healthcare professionals and contacts in NGOs using an inclusive and diverse approach. The project will link with crowdsourcing initiatives led by UK NGOs and charities to promote recruitment. A Citizen Science portal will be used as a hub for communication, data collection and training.
The data collection methods will be co-designed by the citizen scientists through an online pilot workshop. The core data collection will involve documenting procedures and practices of individual food businesses offering online food delivery to collate evidence throughout the UK. This can be achieved using screenshot captures from the participants' mobile phones. Data will be both large-scale and highly localised as different services are available to different areas of the country. This will give the research team a valuable snapshot of business procedures and understanding of perception and practices of hypersensitive consumers. It will also allow for UK wide reliable data collection with robust statistical significance otherwise very difficult to access.
 
Title FSA hypersensitivity - Instructions for sampling a food meal for allergy testing 
Description In this video the QUB research team produced a comprehensive step by step guide to train citizen scientists sample a food meal for allergy testing at home while avoiding cross contamination https://www.youtube.com/watch?v=hR1Z62QXyIs 
Type Of Art Film/Video/Animation 
Year Produced 2022 
Impact 25 trained citizen scientists that helped procure 11 food meals that were tested for allergy presence across the UK within the FSA CS project 
URL https://sites.google.com/view/foodsensitivecitizenscientists/home
 
Description In this pilot project we were able to demonstrate the effective application of citizen science methodology. can be effectively applied. Engagement with food hypersensitive citizens or and otherthose responsible for food provisioning for FHS individuals was demonstrated by the successful recruitment and the participation in the 3 work items. Some interesting findings from the data are
a) Younger audiences with a food hypersensitivity have more positive views about this new way of meal procurement and are more tolerant forrelaxed about the adequacy of food information provided in online meal ordering.
b) Experiences of using online meal ordering platforms especially around communication and labelling can vary. It was found that there is room for improvement on the design of the interface and access to labelling information
c) Laboratory analysis for the presence of milk, peanut or gluten found that 1 out of 11 meals that were procured from citizen scientists across the UK was tested positive. The meal in question was sold as a gluten-free meal. Results were communicated to the citizen scientists and will also be available in an open access database within an imminent publication.
Exploitation Route Use the methodology we developed in this pilot for similar projects in the area of citizen science and food hypersensitivity.
generated new knowledge that can be confirmed and extended with large populations.
Awareness of the benefits of CS methodology increased within professional science networks.
Sectors Agriculture, Food and Drink,Communities and Social Services/Policy,Digital/Communication/Information Technologies (including Software),Education

 
Description This was a citizen science project that engaged at least 250 member of the public for over 6 months. Therefore, it had an impact to these people as demonstrated in the the quotes below, taken directly from a project evaluation form. "Someone taking the consequences of food cross-contamination on Coeliacs seriously"; "Promise of results in an important issue"; "That someone is doing research into food sensitivity". "working with other CS to see what matters to them and shaping the next stages", "Great to see research being done in this area and supporting it", "Excitement to be able to change the narrative/raise awareness/influence and to see the final results", "The survey was a good experience because it gave me the opportunity to contribute to a study with meaning".
Sector Agriculture, Food and Drink,Communities and Social Services/Policy
Impact Types Societal

 
Description Coeliac UK partnership 
Organisation Coeliac UK
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution collaboration as part of the FSA project. Project briefing, consultations
Collaborator Contribution collaboration as part of the FSA project. consultations, campaign design
Impact FSA final project report to be published Spring 2023
Start Year 2021
 
Description IFST collaboration 
Organisation Institute of Food Science & Technology
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Project idea and general framework , access to some limited research data,
Collaborator Contribution promotion of the recruitment of citizen scientists in the FSA project
Impact FSA final report due to be published in Spring 2023
Start Year 2021
 
Description Citizen scientists contributing to the FSA allergies and intolerances project 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact This was a citizen science pilot project that engaged at least 250 member of the public. they took part in the co-design meeting (1 day) but also worked on 1-3 work items built into the project. This involved procuring samples for analysis, collecting data on the platform used to order food online and answering to survey recording perception and behaviour. T|his was over the course of 6 months.
Year(s) Of Engagement Activity 2022
URL https://sites.google.com/view/foodsensitivecitizenscientists/home