Social Protection and Disability: Policy Lessons from Vietnam

Lead Research Organisation: University College London
Department Name: Epidemiology and Public Health

Abstract

People with disabilities (PWDs) represent a disproportionately high proportion of the world's poor. Recognising the reciprocal relationship between disability and poverty, leading to increased vulnerability and social exclusion, disability has been flagged as a key development issue in meeting the United Nations Millennium Development Goals and in eradicating world poverty. As a consequence, PWDs are increasingly being mainstreamed into government social protection programmes in low- and middle-income countries. However, there has been little evaluation of the effectiveness of these programmes with respect to PWDs. This represents a considerable gap in knowledge with which to inform policy makers, and maximise programme impacts to improve the lives of PWDs. This research evaluates the effectiveness of two government social protection programmes for PWDs in Vietnam, including a cash transfer programme and a free health insurance programme. Vietnam provides an excellent case study due to the combination of high quality living standards data, that includes the latest international classification of disability, and a relatively advanced legal and administrative framework for the social protection of PWDs. Rigorous quantitative analysis of national household survey data will be combined with qualitative interviews and focus group discussions with key stakeholders from Government, Disabled People's Organizations (DPOs), and PWDs and their families, to evaluate the effectiveness of programmes in targeting PWDs and in providing financial protection against poverty. The findings from the research will be discussed and disseminated through a series of workshops involving key stakeholders in Vietnam. This extensive user engagement strategy is aimed at making the research disability-inclusive and coordinating discussion on how to best target disability within government social protection programmes. This research will draw important policy lessons and recommendations for other LMCs that are attempting to make social protection programmes inclusive of disability.

Planned Impact

One primary beneficiary of this proposed research will be policy makers involved with the design of social protection programmes for persons with disabilities (PWDs) in developing countries. By using a case study of Vietnam, the proposed research will provide useful policy lessons and recommendations for the targeting of disability in social protection programmes in developing countries. The various outputs of the research will be disseminated through the participating organisations's global network of partners, including partners DFID and AusAID that are well positioned to promote the work to policy makers in partner country governments.

Most importantly, PWDs and their families will benefit from the intended outcomes of this research: accurate targeting and design of social protection programmes that are sensitive to their specific needs. Aside from being the direct beneficiaries of the work, PWDs and their representative organizations, Disabled Peoples Organizations (DPOs), will benefit from the disability-inclusive approach adopted in this research. By actively engaging the voice of PWDs and DPOs in Vietnam, the research will build capacity within the disability community for the creation and consumption of research. The research approach will build a model of best practice that can be used to the benefit of PWDs and DPOs in other countries.

Another important beneficiary of this research is bi-lateral donor organizations, such as DFID, AusAID, and GIZ, that are committed to disability-inclusive development and to meeting the Millennium Development Goals (MDGs). Through its various research outputs, this research will provide guidance to donors on how to advise partner governments in adopting a disability-inclusive approach to the development of social protection policy and programmes for PWDs. This will be an important addition to their existing efforts in disability-inclusive development.

Many of the lessons from this research on how to accurately target PWDs and design programmes sensitive to the needs of PWDs will be transferrable to non-government programmes on poverty alleviation, such as cash transfer and micro-finance programmes. The work will therefore be of great interest to the large civil society sector working in the field of disability-inclusive development. Two significant non-government organizations (NGOs) working in the field of poverty alleviation for PWDs, Leonard Cheshire Disability (UK) and Christian Blind Mission (Australia), are closely tied to the partner organizations of this research in the University College London and Nossal Institute for Global Health, respectively. These organizations, in turn, have close relations with, and will help disseminate the findings of this research to, other significant NGOs working in the sector, such as Handicap International and Disabled People's International.

As a subpopulation that is prone to chronic poverty and social exclusion, the successful inclusion of PWDs in social protection programmes is perceived as of paramount importance in achieving the MDGs targets. This work will therefore also be of great interest to international policy makers and organizations in the field of social protection. Most notably, these include the United Nations Economic and Social Commission for Asia and the Pacific (UNESCAP) who has recently launched a major report on social protection in Asia and the Pacific, and the International Labour Organisation which is a long term advocate of social protection.

Bringing together three of the leading researchers on social protection and disability in developing countries, this project will provide an important reference for future researchers. Refer to the Academic Beneficiaries section for further discussion.
 
Description This study found that the Social Protection scheme for children and adults with disabilities in Vietnam is linked with an increase in the amount of health care received by participants. However the issue of available Social Protection schemes are more complicated than simply presence/absense of such schemes. The qualitative component of our study shows that the amount of assistance available to families with disabled members did not adqueately meet the economic stresses of living with a disability. Thus a key take away message is that we need to ask not just about the availabilty of social protection schemes in low and middle-income countries, but the nature of such schemes. Furthermore, we found that where families did not have enough money to meet health and other related expenses, the coping mechanisms identified - drawing upon savings, borrowing money, foregoing expenditures and substituting labour - while helping to maintain living standards in the short-run, threaten long-term economic welfare of both the individual and their household, with implications for intergenerational poverty (selling assets, taking children out of school). In summary, our informants reported that current social protection programs are not accessible to all and address some immediate economic costs of disability but do not successfully meet current needs nor take into consideration long-term economic challenges.
Exploitation Route I am pleased to report that in the time since the end of the award, the Government of Vietnam has used our data to help them shape plans and training for staff on individuals with disabilities. The research team assembled through this award - both scholars from the UK, US and Australia and our colleagues at the Ministry of Labour, Invalids and Social Affairs, Government of Vietnam, have been awarded a follow up grant from DFAT to pursue research on the new Vietnamese Disability Determination system - based at the Commune level.

A key point, identified in the narrative section - is that the publications in academic press, presentations at forums that range from UN agencies to research conferences - have helped contribute to the discussion about social protection now underway in many emerging economies, particularly in the transition from low to middle-income country status, Social Protection schemes are now considered an important mechanism to ensure that those at the very bottom of the economic ladder - (people with disabilities, women, the elderly) - are protected against extreme poverty. However, as we have noted in the publications and presentations that have come out of this research findings for this project, it is vital - - to go beyond the question of the presence/absence of such Social Protection schemes to ask critical questions regarding the nature, extent and accessibility of such schemes if vulnerable individuals and groups are going to be truly protected against extreme poverty. We are pleased that the results of this project seem to be contributing to this global discussion.
Sectors Communities and Social Services/Policy,Healthcare,Government, Democracy and Justice

URL http://www.ucl.ac.uk/iehc/research/epidemiology-public-health/research/leonard-cheshire-research
 
Description Year 1-2: We have already been asked by our colleagues in the Government of Vietnam to provide advice and consultation regarding improment in elibility criteria for vulernable individuals in their Social Proteciton Scheme. Our initial set of publications, such as the recent paper on Child Health Insurance in Vietnam published in Social Science in Medicine made the Social Science Research Network's Top Ten list the week it was published (Nov 13th) - and apparently is being widely downloaded, our initial set of publications and presentations are already being cited in the literature in public health, health economics, development and disability. Finally, I amd my colleagues (Mont, Mitra, Palmer) routinely advise for UNICEF, UN Department of Social and Economic Affairs, the WHO and UN Statistics - we have been discussing and prsenting our series of papers and forthcoming papers within these networks, as well as at academic conferences and seminars over the past year and had a sigificant outpouring of interest. A series of papers developed from this study - which we anticipate will be about 6 papers in the peer reviewed literature in total - has already begun to find their way into the academic literature (Social Science and Medicine; Health Economics) - and we anticipate that once publication is completed, this body of work will also be used by scholars and policy makers in both developed and developoing countries. YEAR -1-2 Following End of Award Period Based on the findings from this study, we continue to work with our colleagues in the Government of Vietnam Ministry of Labour, Invalids and Social Affairs (MOLISA) to provide advice and consultation regarding improvement in eligibility criteria for vulnerable individuals in their Social Protection Scheme. Our initial set of publications, such as the paper on Child Health Insurance in Vietnam published in Social Science in Medicine made the Social Science Research Network's Top Ten list the week it was published (Nov 13, 2014) - and is regularly being downloaded and cited. We continue to finalise and submit papers related to this field study, the most recent one - Extra Costs of Living with Disability: A systematized review and agenda for research - having been accepted in February 2017 by The Economic Record - will published shortly. Publications and presentations related to this project have been regularly presented at academic conferences and are being cited in the international literature in public health, health economics, development and disability. We are particularly pleased that much of this work is being cited and used within Vietnam itself. Finally, I and my colleagues (Mont, Mitra, Palmer) routinely advise for UN agencies (UNICEF, UN Department of Social and Economic Affairs, the World Health Organisation and UN Statistics) - and we regularly cite and include this work from Vietnam within these networks to influence and advise top officials and their staffs regarding policy and programming to improve the lives of persons with disabilities. As noted elsewhere in this Researchfish report, a follow up grant from Australia's DFAT (2015-2017) has allowed us to continue to build on our findings from this project and working in close collaboration with Vietnam's Ministry of Labor, Invalids and Social Affairs, we have worked with the Government and local disabled peoples organisations to improve identification and selection processes for people with disabilities and their eligibility to receive social protection. This includes a series of training sessions and workshops and a book length Manual, just distributed (December 2017) to Government offices throughout Vietnam. Over the past year, we have continued to work on materials and collaborations initiated through this grant. The Manual drafted in 2017 has been used as the basis for a revised manual now used by the Government of Vietnam. Members of our team - (Groce, Mont, Palmer) - continue to provide advise and guidance to Government of Vietnam Ministry of Labor, Invalids and Social Affairs, on matters related to identification and granting of disability support, as well as provide input to international/global discussions around this subject for UN agencies, including UNICEF, DESA and UN ESRC. Research data from this project has also be used as the basis for a new paper, just accepted for publication by the Journal of Peace Studies linking the distribution of people with disability in Vietnam and bombing patterns during the Vietnam war. Dr Michael Palmer, now at the U of Western Australia has just received a small grant - (AUS $ 10,000) to pursue further research on disability in Vietnam, broadening the perspective to include Laos and Cambodia, with the research team assembled here - (Groce, Mont, Mitra) serving as advisors for this new study.
First Year Of Impact 2018
Sector Communities and Social Services/Policy,Healthcare,Government, Democracy and Justice
Impact Types Societal,Economic,Policy & public services

 
Description Influence on Government practice, NGO and Disabled Peoples' Organisations Expectations for Future Services
Geographic Reach National 
Policy Influence Type Contribution to a national consultation/review
Impact Bringing together Government, NGOs, academia and civil society with disability advocates has provided a previously non-existent forum for discussion and debate. As an advocate stated in our Final Workshop in Hanoi 'this is the first time that we have been able to voice our feeling about government social protection programs and our needs.' We anticipate, based on on-going contacts within the country with policy, research and advocates colleagues that this will set a new tone for an on-going dialogue.
 
Description QUY TRÌNH XÁC Ð?NH KHUY?T T?T TRONG KHUÔN KH? CHUONG TRÌNH B?O TR? XÃ H?I ? CÁC QU?C GIA THU NH?P TH?P VÀ THU NH?P TRUNG BÌNH: TRU?NG H?P C?A VI?T NAM - (Improving Social Protection Services for People with Disabilities in Vietnam. Co-Published with MOLISA - Ministry of Labor, Invalids and Social Assistance, Government of Vietnam.
Geographic Reach Asia 
Policy Influence Type Influenced training of practitioners or researchers
Impact In a follow up project funded by Australia's DFAT, we worked in collaboration with the Government of Vietnam's Ministry of Labor, Invalids and Social Affairs, to improve information/ generate greater insights into current practices regarding the assessment qualification system for people with disabilities to national social protection systems. This publication was done in collaboration with the Ministry and has been distributed to over 1000 government offices to help improve service/social protection deliver and increase the voice of people with disabilities themselves in the process. An English version will go up on line within the next month - the Vietnamese version was distributed in Feb 2018. Accompanied by a series of in-country workshops for Government officials and Vietnamese disability rights advocates, undertaken by the original research team - (Groce/Mont/Palmer/Mistra) assembled through this ESRC grant. We continue to work together - 2 academic articles currently in process based on follow up research in-country initially begun under the ESRC project. (Again, thanks for your support!)
 
Description Department of Foreign Affairs and Trade, Australia - Disability Research Funding Scheme
Amount $322,901 (AUD)
Organisation Department of Foreign Affairs and Trade, Australia 
Sector Public
Country Australia
Start 06/2016 
End 12/2017
 
Description Inclusive Development Action (IDEA) - national Disabled Peoples Organisation 
Organisation Inclusive Development Action (IDEA)
Country Viet Nam 
Sector Charity/Non Profit 
PI Contribution We worked in close consultation with IDEA who helped guide the fieldwork, assisted in locating subjects for interviews and focus groups, and conducted the interviews in conjunction with oversight from PIs. We provided three days of in-depth training on research methodologies that will be helpful to their on-going work as well as making a significant contribution to this project.
Collaborator Contribution Helped in fieldwork coordination, assisted in locating subjects for interviews and focus groups, and conducted the interviews in conjunction with oversight from PIs.
Impact As noted above, DPO leadership and members have received training in research methodologies; Director of IDEA (Oanh Nguyen) is co-author on qualitative paper now in submission to a peer reviewed journal. Also attended Workshops and received on-going training and input from PIs during the course of this study.
Start Year 2012
 
Description MOLISA - Ministry of Labour, Invalids and Social Affairs, Government of Vietnam 
Organisation MOLISA, Hanoi
Country Viet Nam 
Sector Private 
PI Contribution We funded time for staff as well as paid for Workshop and collection of field data that has been of use to our in-country partners
Collaborator Contribution Sharing of time, expertise and resources as well as access to Government data and reports
Impact Publications, consultation, workshops and impact on on-going policy and programming in Vietnam
Start Year 2012
 
Description University of Labor and Social Affairs - Department of International Cooperation, Hanoi, Vietnam 
Organisation University of Labor and Social Affairs
Department Department of International Cooperation
Country Viet Nam 
Sector Academic/University 
PI Contribution Training in qualitative research methods and in disability studies, particularly focus group methodologies. Head of Department, faculty and post-graduate students all received training and were in on-going contact with PI and Co-PIs
Collaborator Contribution Brought to the project in-country knowledge, worked with Co-PIs on qualitative data collection, also worked on analysis of qualitative data. Linked this project with MOLISA (see previous entry) - because they are the University arm of this government Ministry. Head of Department is co-author on several papers to appear related to this project.
Impact A series research publications will come out of collaboration, there are on-going skill sets that add to the local University partner and importantly, this project helped to establish a link between this local University and the local Disabled Peoples Organisation which previously had not existed. This link appears to be on-going and may result in a number of future projects -
Start Year 2012
 
Description News Article entitled: Dealing with Disability in Developing Countries 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? Yes
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Featured article in ESRC publication - intended to reach ESRC staff and fellow researchers, to inform them of our activities and to spark interest/ potential future collaborations with others working on better understanding issues of poverty and social protection for persons with disabilities and other vulnerable groups

We have been contacted by other ESRC funded researchers concerning this work, and had several substantial discussions about future collaborations at the ESRC meeting of researchers held in London on September 9, 2014
Year(s) Of Engagement Activity 2013
 
Description Presentation of Findings from ESRC Project for Social Protection and Disability 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact One of the final components of this project was our organisation of a formal Workshop to present our findings to policymakers and practitioners responsible for national disability policy and social protection services in Vietnam. The Workshop, held in Hanoi on April 23, 2014, included representative from the Vietnam Ministry of Health, Donor Groups, the Ministry of Labour and Social Affairs, the Hanoi School of Public Health and the National Economics University of Vietnam. Dr Daniel Mont and Dr Michael Palmer presented the findings of this project in a full day workshop through both presentation and discussion groups. The assembled group then discussed implications of the findings for current and future policy and programs relating to persons with disabilities and other vulnerable groups in country as these related to Social Protection issue

Several groups have approached us to continue work with them in various domains related to social protection and people with disabilities - including the Vietnamese Government Office of Statistics, in-country academic colleagues and NGOs like the Vietnam Veterans of America. The World Bank in Vietnam has requested copies of our Working Papers and UNICEF Headquarters, New York has also asked us to present at an upcoming in-house workshop.
Year(s) Of Engagement Activity 2014
 
Description Series of Engagement Missions to Vietnam (3 over course of 2 years) - to meet with a wide array of stakeholders 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Three trips were made to Vietnam over this course of this project specifically to engage with a wide range of stakeholders - government officials, representatives of disabled peoples organizations, academics and researchers, donors (World Bank, DFID & etc). Visits were made to rehabilitation hospitals and what are called 'social protection centers' (places that house people with disabilities) & etc. Our intention was to understand and get input and feedback from people with disabilities and organizations that are charged with delivery of services to people with disabilities from a wide range of groups

This extensive series of meetings lead to many requests for additional input, information and consultation. It was fundament in helping to give depth and greater insight into our current study and the publications we are currently writing up to summarize our findings and has been the impetus for the ensuring 'Concept Note' on Disability Determination in Vietnam that we will be submitting as the next component of our future research plans. (Please note, our study just ended in October, so this Note is just now in development).
Year(s) Of Engagement Activity 2012,2013,2014