Understanding the social cognitive profiles of autistic bilinguals

Lead Research Organisation: University of Edinburgh
Department Name: Sch of Philosophy Psychology & Language

Abstract

Autistic people experience difficulties navigating the social world - especially when interacting with non- autistic people - which impact their quality of life (Kim & Bottema-Beutel, 2019; Mason et al., 2018). These difficulties are linked with differences in social cognition, the processes used to perceive, understand, and respond to social information (Happé et al., 2017). Social cognition is used for social interactions by everybody, every day. Its development relies on social experiences and language input (Garfield et al., 2001), and recent findings suggest it is stimulated by bilingualism (Schroeder, 2018).

Still, the relationship between bilingualism and social cognition is unclear, as neither bilingualism nor social cognition is homogenous. Bilingualism is a skill shared by half the world's population (Grosjean, 2010), and refers to a wide range of profiles. Do all forms of bilingualism shape social cognition the same way? Moreover, social cognition includes several mental mechanisms (Happé et al., 2017). Are all these processes sensitive to the effect of bilingualism? More importantly, does this relationship between bilingualism and social cognition exist in autism?

We know bilingualism is beneficial for non-autistic people, but before my PhD, little research had measured its effect in autism. Added to unfounded concerns about bilingualism in autism, this leads to autistic people being routinely excluded from additional language learning (Hampton et al., 2017). For example, bilingual parents of autistic children are often advised to raise their child monolingually, even if this can increase the child's feelings of isolation (Park, 2014). However, the few findings available show that bilingualism has no detrimental effect on the development of autistic children, and could even help with some specific skills (Wang et al., 2018). Is social cognition one of them?

I explored this question at three levels: life, mind, and brain. After describing the diversity of bilingual experiences in autism, I found that bilingualism is linked with higher self-rated social life quality for autistic adults (Digard et al., 2020). I also found that bilingual autistic adults themselves considered that being bilingual had brought them more opportunities, had helped them with their social communication skills, and had increased their self-confidence (Nolte et al., in press). I then showed how bilingualism shapes perspective-taking, a social cognitive process used to represent in our mind what other people think. I found that the positive effect of bilingualism occurs in childhood and is still visible in adulthood, in autism and typical development alike. Lastly, I found that in autism and typical development, early bilingualism also shapes the brain activity supporting perspective-taking.

My thesis is the first to show how early bilingualism shapes social cognition in autism. It was examined by Professor Francesca Happé, a world expert on social cognition in autism. I completed this thesis with no corrections.

The Fellowship will consolidate my research by allowing me to conduct an ambitious, yet achievable, range of activities that will prepare me for the next phase of my academic career. I aim to publish three articles based on my thesis and PhD data, and I will disseminate my findings within and outwith academia at conferences and via outreach activities with stakeholders (such as educators and policymakers) to ensure the real-world impact of my research. I will acquire specific skills with experts during training visits to KCL and UCL, to be able to rigorously address my research goals. Together, these goals will allow me to become more competitive to secure further funding, and I will develop three grant proposals to pursue my research on the relationship between bilingualism and complex social cognitive processes influencing the social abilities of autistic people.
 
Description This fellowship did not aim to conduct any new research or produce new research findings. Instead, it aimed to leverage my PhD research on bilingualism in autism by 1) communicating my findings within academia by submitting manuscripts and attending conferences; 2) communicating my findings outwith academia by conducting a programme of impact-related activities; 3) developing my skillset and network by visiting research teams and attending training; and 4) developing funding applications to pursue my research.
Aim 1: I was invited to contribute a commentary on a keynote article, I published one article in the special issue of Autism in Adulthood on intersectionality, and I was invited to contribute a chapter (currently under revision) on autism in a book about practices in the TESOL classroom.
Aim 2: I organised a free bespoke webinar on autism and bilingualism for educators, during which I also gave a talk, which was attended by 219 professionals while the recording was viewed 145 times. I invited 5 of these attendees, all from different teaching environments, to form a working group to co-produce a bespoke open-access information resource for teachers, which has so far been viewed over 300 times. I expanded my library of open-access resources for parents to translate it into a further 6 languages, now making it available in 16 languages. Additionally, I secured a £4,350 Knowledge Exchange & Impact Grant from the University of Edinburgh to convert this text-based family resource into an animated video, which will be released by June 2023. Finally, I gave a talk to the Pint of Science Festival to reach out to the wider public. As a recognition of my outreach work, I have recently received an Award Lectureship from the British Science Association (upcoming announcement).
Aim 3: I have established links with the research teams of Dr Crane, Professor Happé, and Professor Astle, through visits and meetings with them and their team to learn about their research methods. Regarding training, I was selected to join the ESRC ECR Professional Development Programme, which allowed me to gain valuable training on funding, parliamentary engagement, and career development. I also attended a science filmmaking course to gain communication skills.
Aim 4: I developed two main ideas for future research, unsuccessfully submitted to 4 funding schemes. The proposals are currently being edited for submission to two additional funding schemes.
In addition, I developed my teaching skills by joining the University of Glasgow and Queen Margaret University as visiting lecturer for a few weeks, and by supervising 2 medical students' research projects at the University of Edinburgh. I also co-developed a small-scale research project, an online survey for bilingual parents of neurodivergent children, building upon my PhD research. The data collection is still ongoing, and will end in July 2023.
Building upon these achievements, I secured a position as Senior Teaching Coordinator at the University of Edinburgh, and I was selected to join the Autistic Early-Career Researchers Training Programme, and the Scottish Autism Research Group committee.
Exploitation Route The academic outputs (articles, book chapter, conference presentations) and the small-scale research project currently being finalised add to the very limited but growing academic field of bilingualism in autism. They will allow fellow researchers to develop research proposals and research applications inclusive of autistic bilinguals and their experiences. They will also provide valuable evidence for the development of training materials and inclusive policies for all professionals (education, clinical support).
The impact-related outputs (information resources for professionals and families) are already being used around the UK by professionals and families, as well as by several organisations supporting cultural minorities and refugees. These resources are currently being advertised through social media and through professional bodies, and will soon be circulated more widely through an international communication campaign supported by Autism Europe. I am also planning a press and media communication campaign for these resources in synchrony with the publication of my next research paper based on my PhD thesis.

Links:
Commentary article: Digard, B.G., & Sorace, A. (2022). Commentary- Bringing together autism and bilingualism research: Language matters. Linguistic Approaches to Bilingualism, 12(1), 72-75. DOI: 10.1075/lab.21071.dig: https://www.research.ed.ac.uk/en/publications/bringing-together-autism-and-bilingualism-research-language-matte
Research article: Digard, B.G., Davis, R., Stanfield, A., Sorace, A., & Fletcher-Watson, S. (2022). "The languages that you know draw the boundary of your world": A thematic analysis of the experiences of autistic bilingual adults living in the UK. Autism in adulthood. DOI: 10.1089/aut.2021.0077: https://www.research.ed.ac.uk/en/publications/the-languages-that-you-know-draw-the-boundary-of-your-world-a-the
Webinar: Digard, B. G. (2021, Nov). Organiser and speaker, Autism & Bilingualism: Educator Webinar, University of Edinburgh, UK: https://media.ed.ac.uk/media/Autism %26 Bilingualism%3A Educator Webinar/1_4cp0h4cq
Information resource for educators: Digard, B.G. & Davis, R. (2022). Bilingualism in autism: Evidence and recommendations for education practice. DOI: 10.31219/osf.io/kz3c2: https://osf.io/kz3c2/
Sectors Communities and Social Services/Policy

Education

Healthcare

Culture

Heritage

Museums and Collections

 
Description As anticipated, it is still too early to truly grasp the wider impact of this Fellowship's outputs, not only because they fit within an extremely recent research field, but also because they fit within a larger impact-related programme that is still a few months away from completion. Still, during and since the end of this fellowship I have witnessed outstanding growth in the academic, practice-related, and public interest around the topic of bilingualism and cultural diversity within the context of autism. Within academia, this is exemplified by the surge of interest from national and international conferences to include content on the topic. Indeed, within the time of the Fellowship, I presented my findings at 3 conferences and 1 seminar for a total of 2 oral presentations and 7 posters. This level of inclusion and recognition has been on a steady increase since the beginning of my PhD, and suggests that academia as a whole is moving towards embracing the range of intersectional identities experienced by autistic people. In addition, universities themselves are showing growing support for this field, and are starting to trust its need and importance. For example, during my Fellowship I applied for and secured additional funding from the University of Edinburgh to expand my outreach programme, thus demonstrating that the University of Edinburgh supports and endorses this growing academic field. However, the most relevant impact lies outwith academia. Indeed, my findings hold the most relevance for bilingual families of autistic people, and for the educators, clinicians, and policy-makers who support them. Thanks to my work during my PhD and the Fellowship, I have been invited to contribute a book chapter focused on autism within a book about educational practices when teaching English as a second language, which demonstrates the interest of educators in the active inclusion of autistic learners in additional language learning. Similarly, the webinar for educators organised during the Fellowship prove to be extremely popular, gathering more than 200 viewers on the day and 145 since the release of the recording. Following this webinar, I received keen interest from educators to join the stakeholder working group I created to develop a bespoke information resource, with 12 professionals expressing their interest within a few hours, for only 4 positions available. The bespoke and open-access resource co-produced with this working group has already been downloaded over 100 times and viewed 300 times, demonstrating the importance of the topic for educators. This level of engagement mirrors the one demonstrated by clinical practitioners, as the webinar for clinicians I organised prior to the Fellowship sold out its 100 tickets within 48 hours, leading me to increase capacity to reach over 200 registrations, and the recording has been viewed over 170 times so far. The open-access bespoke resource I co-produced with a group of clinicians has been endorsed by the Royal College of Speech and Language Therapists, has been downloaded over 100 times, and viewed over 300 times so far. This clearly demonstrates a growing interest from clinicians and healthcare organisations to support autistic people, regardless of their language and cultural background. At the core of this impact programme expanded during my Fellowship is the resource for families, which is an open-access co-produced text-based easy-read information resource addressing parents' most pressing concerns regarding raising an autistic child with more than one language. This resource was designed to be accessible both online and as a printable trifold that practices can direct parents to or hand out. Crucially, this resource is now available in 16 languages (which were selected from the national languages of the UK, i.e. English, Gaelic and Welsh, as well as the most spoken non-English languages in the UK) so that parents can access the information they need in a language they are confident in reading. In response to the tragic war in Ukraine that started during the Fellowship and that forced many Ukrainians to find refuge in other countries, including the UK, this resource was also quickly translated into Ukrainian. During the Fellowship, I also secured additional funding from the University of Edinburgh to convert this text-based resource for families into an animated video, thus increasing its accessibility for people less confident in their reading skills. Importantly, this format will also increase the shareability of the resource online. This video is now in its latest stages of production and will be released in the coming months. Finally, we witness a growth in interest from the general public as well, as seen in my recent selection for an award from the British Science Association for my outreach work. This recognition acknowledges the importance of not only these research outputs, but also of this topic as a whole, and of autistic bilinguals themselves as valuable members of our society. Together, these early signs of societal changes are encouraging for the future of autistic bilinguals around the UK, and around the world.
First Year Of Impact 2021
Sector Communities and Social Services/Policy,Education,Healthcare,Culture, Heritage, Museums and Collections
Impact Types Cultural

Societal

Policy & public services

 
Description Autism and Bilingualism - for Families
Geographic Reach Multiple continents/international 
Policy Influence Type Contribution to new or improved professional practice
Impact This resource is now available in 16 languages (which were selected from the national languages of the UK, i.e. English, Gaelic and Welsh, as well as the most spoken non-English languages in the UK as per the Office of National Statistics) so that parents can access the information they need in a language they are confident in reading. In response to the tragic war in Ukraine that started during the Fellowship and that forced many Ukrainians to find refuge in other countries, including the UK, this resource was also quickly translated into Ukrainian. It received over 1,500 unique visits within the first week of its release, and records a total of 7,000 unique visits so far.
URL https://autism-bilingualism.github.io/resources/
 
Description Bilingualism in autism: Evidence and recommendations for education practice
Geographic Reach Multiple continents/international 
Policy Influence Type Contribution to new or improved professional practice
 
Description College of Arts, Humanities and Social Sciences - Knowledge Exchange & Impact Grant
Amount £4,350 (GBP)
Organisation University of Edinburgh 
Sector Academic/University
Country United Kingdom
Start 04/2022 
End 05/2023
 
Description R S MacDonald Seedcorn Fund
Amount £9,930 (GBP)
Organisation RS Macdonald Charitable Trust 
Sector Charity/Non Profit
Country United Kingdom
Start 04/2024 
End 11/2024
 
Description Travel Award
Amount £500 (GBP)
Organisation Guarantors of Brain 
Sector Charity/Non Profit
Country United Kingdom
Start 08/2022 
End 10/2022
 
Description Animated video on autism and bilingualism 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Patients, carers and/or patient groups
Results and Impact Thanks to the University of Edinburgh CAHSS (College of Art, Humanities and Social Sciences) Knowledge Exchange & Impact grant secured during the fellowship, I developed a bespoke and open-access animated video for parents of autistic children. The English version of the video is narrated by a Scottish autistic advocate, and I have already recorded a Polish and an Arabic version of the text (voiceover provided by members of the autism community) which will be released in 2024. The organisation Autism Europe has endorsed the video and will conduct a promotion campaign in the spring of 2024.
Year(s) Of Engagement Activity 2023
URL https://www.youtube.com/watch?v=oPctNHggQJI&t=8s
 
Description Autism & Bilingualism: Educator Webinar 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact I organised a free 90-min-long information webinar for education practitioners around the topic of bilingualism in autism. It gathered 4 early career researchers in the field who each gave a 10min presentation about their research in line with the priorities of educators, as well as an autistic bilingual advocate who joined the panel discussion. The recording is available at: https://media.ed.ac.uk/media/Autism %26 Bilingualism%3A Educator Webinar/1_4cp0h4cq
Year(s) Of Engagement Activity 2021
 
Description British Science Association Lectureship Award 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact I received the Social Science Lectureship Award of the British Science Association, which involved delivering a public lecture at the British Science Festival 2023 (in Exeter). My lecture was sold out and attended by about 40 people.
Year(s) Of Engagement Activity 2023
URL https://www.britishscienceassociation.org/news/award-lectures-british-science-festival-2023
 
Description Interview for the PPLS Perspectives Podcast (University of Edinburgh) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Undergraduate students
Results and Impact I was interviewed by Edinburgh University PhD student Aya Awwad for the Edinburgh University podcast PPLS Perspectives. The episode has been viewed 70 times since it's released on the 13th February 2024.
Year(s) Of Engagement Activity 2024
URL https://www.youtube.com/watch?v=c8iTiMcrFAk