The MARQUE project: Managing Agitation and Raising QUality of Life. A project to improve quality of life in people with moderate or severe dementia

Lead Research Organisation: University College London
Department Name: Division of Psychiatry

Abstract

In the UK about 820,000 people live with dementia with numbers increasing rapidly as the population ages. The Government's "Challenge on Dementia" aims to drive improvements in health and care, create dementia friendly communities and improve research.
Responding to this challenge, our MARQUE programme "Managing Agitation and Raising Quality of Life", aims to increase knowledge about dementia, agitation and personhood. We will use the programme to:
-develop our theoretical knowledge of dementia, agitation, how people with dementia and their carers experience these and their relationship to citizenship and personhood.
-reduce agitation in people with moderate and severe dementia and thus increase quality of life, through the known link between agitation and quality of life.
-mentor existing and train new researchers, to build a legacy of trained dementia researchers.
Agitation is common, occurring in about 50% of people with moderate or severe dementia every month, is distressing for them and for those around them. The symptoms include restlessness, pacing, shouting or even verbal or physical aggression and signify unmet need. The person with dementia may be in pain, hungry, thirsty, needing comfort or bored but unable to know or explain this. Our group (including Shirley Nurock, an Alzheimer's Society carer) has completed a funded literature review on interventions to reduce agitation. Our vision is to build on this evidence, advancing knowledge, including how to effectively implement findings to improve quality of life for those with dementia.
It is a bold and ambitious proposal by a multi-professional team, our family carer partners and participating national and international groups. The team, who have previously worked together successfully, comprise social sciences, medicine, nursing and psychology. A DeNDRoN PPI focus group advised on and approved our proposal. We are partnered by Alzheimer's Society who are leading PPI, care home groups and voluntary and parliamentary groups.
The research will involve observing and interviewing a wide range of people with dementia and those who care for them at home, in care homes and in hospitals (including end of life) in order to better understand how agitation is currently managed, barriers to good practice and how care could be improved.
We will use this information (with our literature review findings) to develop, test and implement a manual to train staff about how best to reduce agitation and improve quality of life in care homes. It will be tested in a randomised controlled trial in 14 care homes. Our vision is to make this as central to care as good eating and hygiene.
Our programme at home will lead to a pilot home intervention, including massage, found to be effective in our review.
In addition, we will further develop another manual, to improve people with dementia's end of life for, including "terminal agitation" (comprising restlessness, anxiety, sleeplessness and shortness of breath around the time of dying). This manual will be piloted in four nursing homes (and a control home) and staff, family and residents asked whether it is helpful, practical and feasible.
Our programme lasts 5 years but we expect carers and people with dementia to start to benefit from 2 years as we begin testing. It will improve our understanding of current practice and the challenges for family and paid carers. We will have programmes to put into practice across the UK to help manage agitation, including at home, in care homes and at the end of life. We will know what works, is cost effective and how to implement.
This will improve quality of life for people with dementia and their carers wherever they live and will help guide research and practice. Our partners will then work with us to ensure national publicity and implementation. This will include incorporation into care home and hospital inductions and feedback to Care Quality Commission as a potential new care standard.

Planned Impact

The MARQUE project will impact on: i) people with dementia and their family carers through better, more cost-effective services to enhance wellbeing. Caring for people with dementia costs £16 billion/year; expected to triple over 20 years ii) those implementing health policy and care, and iii) academic capacity, increasing dementia academics capacity.
1. Patient impact
People with dementia and their family carers are the primary intended beneficiaries, so we will develop relevant outputs (knowledge, interventions, implementation plans) which have their support. Our PPI input was integral to the project's development, and will continue throughout.
The project will have short-term impact, as participants in research tend to benefit whether in the intervention group or not. If the interventions succeed, those receiving them will benefit. Additionally, we will achieve medium and long term benefits, as we expect our results to improve agitation and quality of life of people with dementia. Agitation is one of the commonest neuropsychiatric symptoms of dementia and is very distressing for the person with agitation, and interferes with their functioning and relationships. Our submitted systematic and health economic review shows that people with dementia and significant agitation cost more than double in care costs than those with dementia without agitation. That is a mean of £30 000 more per year each (£60 000 versus £28000). The scale of possible economic impact is therefore measured in £billions, as the cost of dementia is projected to reach around £70 billion in the near future. It should help to reduce premature admission to care homes, more specialist placements, inappropriate admissions to NHS hospitals and hospital stay length.
2. Public health and policy impact
The project's outputs include new approaches to personhood in dementia, how to involve family carers in collecting data on people with dementia living at home, "quality of death", and influences on aon and quality of life in care homes. We will engage voluntary, private, public and political stakeholders to increase and influence evidence based public policy making. The International Longevity Centre, an independent charitable think-tank, specialising in how society needs to respond to ageing, will lead on disseminating results to politicians, policy-makers, voluntary sector and industry. Existing relationships with key stakeholders (NHS, Admiral Nurses, Marie Curie and the AS) will be used to communicate findings and help deliver changes. Impact will also be achieved through publications, conference presentations and informing the Care Quality Commission of the results and their potential for appraising homes. We have talked to Professor Burns, dementia tsar, about the project and our manuals will be hosted on the DH website. The findings will also be useful in primary care- GL has worked with DH and AS to write primary care algorithms on managing agitation in dementia.
3) Academic capacity
We will build dementia research capacity by supervising PhDs in the programme and mentoring early and mid-career dementia researchers. Other benefits are: knowledge transfer about concepts of personhood in dementia, how to involve family carers in collecting data, "quality of death", and what influences agitation and quality of life in care homes. The research team brings together academics across disciplines, including social sciences (sociology, statistics, health economics, health care evaluation, social and health policy) mental health, older people's medicine, psychology, implementation science and palliative care to cascade findings. Findings will be applicable to academics in these fields and government bodies, charities national policy units, universities and other research centres. Our international partners from USA and Australia will shape and be conduits for international implementation. Their involvement will ensure worldwide academic advancement.

Publications

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Higgs P (2016) Interrogating personhood and dementia. in Aging & mental health

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Hoe J (2017) BJ Psych Open in How family carers care well for relatives with agitation at home: a qualitative study

 
Description Agitation closely related to quality of life for people in care homes but not to staffing level or environment. Neglect is common but physical abuse is rare.

Quality of life is rated systematically differently by family and paid carers. Staff and family ratings of quality of life are only weakly correlated. Median staff scores are higher than family's Qualitative results suggest differences arise because staff felt good care provided high QOL but families compared the present to the past. Family judgements centre on loss and are complicated by decisions about care home placement and their understandings of dementia.

Paid carer dysfunctional coping did not predict resident quality of life. Levels of resident agitation were consistently high and related to lower quality of life, over 16 months.

Most care staff for long-term care residents with dementia experience low or moderate burnout levels

We found that many care staff are not identified as persons in their own right by their employing institutions, and that there is a general lack of acknowledgment of the moral work
of caring that occurs within formal care work. This oversight can reduce the complex relationships of care work to a series of care tasks, challenges care workers' self-worth and self-efficacy, and impede their efforts to deliver person-centred care.

Staff struggled with the paradox of trying to connect with the personhood of residents while seeing the person as separate to and, therefore, not responsible for their
behaviours. Staff often felt powerless, frightened and overwhelmed, and their responses were constrained by care home structures, processes and a culture of fear and
scrutiny
Exploitation Route We are continuing the research -more results to come. One student is doing a further PhD based on our data. We have further grants to work on longer term RCT results.
Sectors Communities and Social Services/Policy,Healthcare

URL https://www.dementiaresearcher.nihr.ac.uk/discussing-the-marque-study/
 
Description • One research assistant (RA) started DClinPsych in University of Liverpool after completing a PhD in the programme and aims to be an academic clinical psychologist specialising in dementia. She won a research poster competition in UCL brain science 2016 and an International Psychogeriatric Junior Research Award 2016 • One RA has moved to DclinPsych in University of East Anglia, another to University of Surrey and a third to Nottingham and intend to continue work in dementia • One RA has submitted a PhD within MARQUE and has a civil service job in policy and dissemination. • One RA started medical school in Nottingham in 2017 and one started medical school in Warwick in 2018. Their aims are to train as psychiatrists and probably specialise in dementia Impact and linked work We have a website and a twitter account and have disseminated our work through blogs (including ESRC) and podcasts as well as papers. Our paper on abuse in care homes was widely reported eg Telegraph and Independent.
First Year Of Impact 2017
Sector Education
Impact Types Societal

 
Description 'Added value'
Amount £55,000 (GBP)
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 07/2018 
End 09/2018
 
Description Collaborations in Leadership in Applied Health Research Care
Amount £1 (GBP)
Organisation National Institute for Health Research 
Sector Public
Country United Kingdom
Start 10/2015 
End 06/2018
 
Description International Networking
Amount £11,211 (GBP)
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 09/2018 
End 03/2019
 
Description Prime Ministers Challenge
Amount £3,200,000 (GBP)
Funding ID ES/L001780/1 
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 03/2014 
End 02/2019
 
Description The Economic case for dementia prevention
Amount £63,780 (GBP)
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 02/2018 
End 04/2018
 
Description UCL, Bloomsbury and East London Doctoral Training Partnership
Amount £68,904 (GBP)
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 10/2017 
End 09/2020
 
Title Agitation in people living with dementia in care homes: MARQUE intervention single-blind cluster RCT 
Description Quantitative database of baseline and 6-month follow up data from people living with dementia in 20 care homes. Also includes family carers and care staff. Primary outcomes agitation (CMAI) and quality of life (DEMQOL). Contains health economic data also. 
Type Of Material Database/Collection of data 
Year Produced 2019 
Provided To Others? Yes  
Impact This database is one of the largest on agitation and dementia in the UK. Through the use of proxy assent procedures, data were collected concerning people lacking the capacity to consent to research, making this a representative database. 
URL https://data.mendeley.com/datasets/dfgb64759j/1
 
Title Data from care workers, the unacknowledged persons in person-centred care: A secondary qualitative analysis of UK care home staff interviews 
Description Qualitative data linked to a paper 
Type Of Material Database/Collection of data 
Year Produced 2018 
Provided To Others? Yes  
Impact Paper accessed 1062 times to date 
URL http://discovery.ucl.ac.uk/10050933/.
 
Description 16th Annual Meeting of the International College of Geriatric Psychoneuropharmacology & 5th International Congress on Psychiatry and the Neurosciences held in Athens, Greece 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Louise Marston attended this conference to talk about the MARQUE stream 2 findings. There were questions and interest in the stream 3 randomised controlled trial.
Year(s) Of Engagement Activity 2016
 
Description AAIC conference London (Francesca La Frenais) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Oral presentation about antipsychotic prescribing in MARQUE baseline cohort
Year(s) Of Engagement Activity 2017
 
Description AAIC conference in London (Penny Rapaport) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Poster: How do care home staff experience, understand and manage agitation in residents with dementia? A qualitative study
Year(s) Of Engagement Activity 2017
 
Description AAIC stellite meeting (Gill Livingston) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Gill Livingston spoke about findings about family carers for agitation at home
Year(s) Of Engagement Activity 2017
 
Description Alzheimer's Association International Conference 2016 in Toronto 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presented a poster to patients, carers, policy makers, funders, professionals about my PhD review at the worlds largest dementia conference. Sparked lots of interest in thesis work post review.
Year(s) Of Engagement Activity 2016
 
Description Alzheimers Soceity National Research Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Presented a poster to patients, carers, policy makers, funders, professionals about MARQUE. Sparked lots of interest in MARQUE and got feedback on direction of PhD.
Year(s) Of Engagement Activity 2015
 
Description Claudia Cooper spoke at the AAIC conference in London 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Claudia Cooper spoke about abuse in a symposium
Year(s) Of Engagement Activity 2017
 
Description Community of interest group for MARQUE 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact Presentation of MARQUE results and discussion of their meaning
Year(s) Of Engagement Activity 2018
 
Description Copenhagen consenus 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact We have starteds working towards international implementaion of our ideas regarding agitation in dementia

We have written preliminary consenus documents to consider testing and using iin UK/Australia/USA/Sweden
Year(s) Of Engagement Activity
 
Description Dementia Research- Past and Present 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Presented a poster at a conference
Year(s) Of Engagement Activity 2016
 
Description Division of Psychiatry Research Seminar MARQUE Presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Postgraduate students
Results and Impact Gill Livingston presented about MARQUE and the preliminary results from the baseline data in order to raise awareness of the study within the department and to receive feedback about the results. The presentation led to questions and an interesting discussion afterwards.
Year(s) Of Engagement Activity 2016
 
Description ENRICH Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Gave a talk to the enrich network presenting study outline and recruitment progress to date
Year(s) Of Engagement Activity 2015
 
Description Establishing new links in Rhode Island at Brown University 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Had a meeting with a Professor of Health Services, Policy and Practice at Brown University School of Public Health. Also met the Associate Director of the Centre of Long term Quality and Innovation. Presented a departmental talk on MARQUE stream 2 and 3 with associated PhDs. Exchanged details with multiple professors in the department who were interested in multi collaboration. Relations have been made.
Year(s) Of Engagement Activity 2018
 
Description European Association for Palliative Care 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Presented a poster with my PhD baseline results re analgesic and psychotropic medication - primarily clinicians who were interested in future publications from MARQUE
Year(s) Of Engagement Activity 2017
 
Description Film for ENRICH about care homes 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? Yes
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact I think it has been part of teh activity leading to care home recruitment for this project

Unclear
Year(s) Of Engagement Activity 2013
URL http://enrichv2.c5990815.myzen.co.uk/research-community/understanding-care-homes.html
 
Description International Psychogeriatrics Association Congress 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Gave a talk about systematic review in the awards session and discussed thesis outline and context of MARQUE project. Generated interest and feedback
Year(s) Of Engagement Activity 2016
 
Description MARQUE International Conference 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact 54 people attended UCL for a 2 day MARQUE conference where members of the MARQUE team, collaborators and partner organisations presented on MARQUE progress and related topics. This sparked questions and discussions in the panel and during breaks and attendees reported increased interest in the subject areas. Plans were made to increase and improve relationships with partner organisations and decisions were made regarding how to proceed with MARQUE.
Year(s) Of Engagement Activity 2016
 
Description MARQUE Poster Presentation at the Noclor Mental Health and Dementia Showcase: Analgesic and Psychotropic Medication in UK Care Homes 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact A poster presentation on Analgesic and Psychotropic Medication in UK Care Homes. The audience was primarily academic and they asked questions about the research objectives and current evidence base. People reported that they found the presentation informative and interesting.
Year(s) Of Engagement Activity 2016
 
Description MARQUE Presentation in Belgium to Postgraduate Students 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Postgraduate students
Results and Impact MARQUE presentation by Francesca Le Frenais in Belgium to Postgraduate Students and Professional Practitioners at the COST Spring School about pain assessment in dementia. The purpose was to discuss current research and explore and encourage opportunities for collaboration. Francesca developed and maintained links with COST which has resulted in research collaboration opportunities being identified with a colleague in Prague.
Year(s) Of Engagement Activity 2015
 
Description MARQUE discussed at family carer support group: Tom's Club in Harringey 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Patients, carers and/or patient groups
Results and Impact A MARQUE researcher discussed the project at a family carer support group: Tom's Club in Harringey.
10 family carers and admiral nurses were there. Interest in the project was generated.
Year(s) Of Engagement Activity 2015
 
Description MARQUE featured in Insight (NIHR) magazine (ENRICH article) 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? Yes
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Magazine article promted wide ranging interest and education.

To be confirmed
Year(s) Of Engagement Activity 2015
URL http://viewer.zmags.com/publication/1a10a1ed#/1a10a1ed/1
 
Description MARQUE investigator presented at the British Society of Gerontology conference, Newcastle 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact MARQUE investigator presented at the British Society of Gerontology conference, Newcastle to generate awareness and interest.
Approx 60 people (Researchers, Practitioners, Voluntary Sector) attended. much interest was generated.
Year(s) Of Engagement Activity 2015
 
Description MARQUE investigator presenting at the Personhood, Agency and the Forth Age Symosium at IAGG-ER congress, Dublin Ireland 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact A MARQUE investigator presenting at the Personhood, Agency and the Forth Age Symosium at IAGG-ER congress, Dublin Ireland
Approx 60 people attended (Researchers, Practitioners, Voluntary Sector). The talk generated much interest and discussion.
Year(s) Of Engagement Activity 2015
 
Description MARQUE poster at UCL Brain Science symposium 2015 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Postgraduate students
Results and Impact Presented a poster internally at UCL and won award. Sparked interest in MARQUE project and shared recruitment progress to date which people were very impressed with.
Year(s) Of Engagement Activity 2015
 
Description MARQUE talked about at Inside Government event 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Spoke at an 'Inside Government' event to approx. 150 members of various business executives, researchers, health care professionals and organisations. The talk generated much interest and further questions.
Year(s) Of Engagement Activity 2015
 
Description Meeting in Boston at Harvard University 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Met with a Professor of Medicine at Harvard Medial School and Senior Scientist at Hebrew Senior Life. Discussed international collaboration.part of the international collaboration grant
Year(s) Of Engagement Activity 2018
 
Description Met with team in karolinska Institute 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact met with Karolinska institute and presented Marque and Lancet commission and discussed future collaboration. We intend to work together in future
Year(s) Of Engagement Activity 2018
 
Description NIHR Trainee conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Presented a poster for NIHR conference on MARQUE project and PhD plans. Generated feedback and interest which helped me think about the potential clinical impact of my phd results.
Year(s) Of Engagement Activity 2015
 
Description NIHR Trainee conference 2016 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Presented a poster internally at UCL and won award. Sparked interest in MARQUE project and shared recruitment progress to date which people were very impressed with.
Year(s) Of Engagement Activity 2016
 
Description Presentation about MARQUE at the CRN/Noclor Mental Health and Dementia Research Showcase 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Professor Gill Livingston presented on the background and progress of the MARQUE study and agitation in dementia. This provoked questions from the audiance about the efficacy of music therapy in managing agitation, and the role of medication.
Year(s) Of Engagement Activity 2016
URL https://www.elft.nhs.uk/Events/Mental-Health-and-Dementia-Research-Showcase
 
Description Presentation at NIHR/ESRC Yearly Meeting 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Gill Livingston presented the preliminary results for MARQUE Stream 2. After the presentation it was suggested Gill make contact with another study looking at quality of life measures in dementia (PROMs).
Year(s) Of Engagement Activity 2016
 
Description Presentation at UCL Conference - Clinical Psychology and Dementia 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact A MARQUE investigator presented the project's RCT intervention at the UCL Conference - Clinical Psychology and Dementia.
Approx 180 Clinical Psychology trainees, associated faculty, practitioners and researchers were present - there was much debate and interest surrounding the trial and project.
Year(s) Of Engagement Activity 2015
 
Description Presentation at UCL: School of Pharmacy wellbeing open day 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact A MARQUE investigator spoke at the Presentation at UCL: School of Pharmacy wellbeing open day.
Approx 20 people attended (pharmacists, lay people, scientists).
Talk genereated interest and further questions.
Year(s) Of Engagement Activity 2015
 
Description Presentation at the AAIC conference in London 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Gill Livingston spoke about the MARQUE Project and the epidemiological findings in the care homes.
Year(s) Of Engagement Activity 2017
 
Description Presentation by Amanda Leggett (international) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Study participants or study members
Results and Impact 26 people attended the presentation from across different UCL departments and also other institutions. There were questions asked following Amanda's talk.
Year(s) Of Engagement Activity 2018
 
Description Research Meets Practice 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact • bring together those the professionally care for people with dementia and researchers in dementia care. The meeting will focus on care home settings.
• disseminate information about the current direction of dementia research.
• to discuss current challenges and opportunities for research in care home settings to work towards a joint and applied research agenda going forward.


• Identified opportunities for application of research in care homes
• Development of new partnerships between researchers and practitioners
Year(s) Of Engagement Activity 2014
 
Description Royal College of Psychiatrists Faculty of Old Age Psychiatry Conference Presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Professor Gill Livingston presented at the Royal College of Psychiatrists Faculty of Old Age Psychiatry Annual Conference about MARQUE and managing agitation and raising quality of life in dementia. This prompted questions from the audience and resulted in increased awareness and interest in agitation in dementia.
Year(s) Of Engagement Activity 2016
URL http://www.rcpsych.ac.uk/traininpsychiatry/conferencestraining/conferences/oldagefaculty2016.aspx
 
Description SXWRU Home Care Research Forum 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Presentation for the Home Care Research Forum, gave overview of MARQUW
Year(s) Of Engagement Activity 2017
 
Description Speak to carers at the Alzheimer's society 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? Yes
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact talks sparked questions and discussion

People asked to be more involved in the future and said they may be able to recruit care homes. Some said they felt much more optimistic.
Year(s) Of Engagement Activity 2014
 
Description Spoke to Australian Associaton of gerontology, Alice Springs 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? Yes
Type Of Presentation keynote/invited speaker
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Talk sparked questions and discussions and several delegates approached me later and asked about implementing START locally in Australia

Several delegates approached me later and asked abouyt implementing START locally in Australia
Year(s) Of Engagement Activity 2015
URL http://www.aag.asn.au/national-conference
 
Description Systematic review of management of agitation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? Yes
Type Of Presentation Poster Presentation
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Many thousands of people attended the conference. Many wanted our results. Unfortunately we did not have them at that point
ADL 2012 March

Discussion of potential results informed our thinking
Year(s) Of Engagement Activity 2012
URL http://www.adi2012.org/
 
Description Tealk at royal college of psychiatrists annual conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Masterclass in neuropsychiatric symptoms. I presented on agitation
Year(s) Of Engagement Activity 2018
URL https://www.rcpsych.ac.uk/traininpsychiatry/conferencestraining/internationalcongress2018.aspx
 
Description The annual Marie Curie Palliative Care Research Conference by Aisling Stringer 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Stream 5 poster, A qualitative study of family carer's attitudes towards agitation in people with moderate / severe dementia
Year(s) Of Engagement Activity 2017
 
Description University of Michigan meeting to collaborate with a presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Met with the faculty at the University of Michigan at the Programme for Positive Ageing. Gave a talk on MARQUE stream 2 and 3 with associated PhDs.
Year(s) Of Engagement Activity 2018
 
Description Welcome Hub 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Patients, carers and/or patient groups
Results and Impact Gill Livingston presented MARQUE data
Year(s) Of Engagement Activity 2017