Cultures of participation for equitable development in Cuba and the UK.
Lead Research Organisation:
De Montfort University
Department Name: School of Applied Social Sciences
Abstract
This project seeks to enable socially and epistemologically just collaboration between disabled people, academics and cultural practitioners in Cuba and the UK. We will explore how Cuba's grassroots, intersectoral cultures of participation can inform and enhance disability theory and practice internationally. Likewise, actors in Cuba want to learn from UK experiences of disabled people's self-advocacy and co-production, especially within learning disability and neurodiversity, and of ways of working online to facilitate disabled people's full sociocultural participation. Recognising intersections of ableism and colonialism, the steering group is majority Cuban and majority disabled.
We will build and expand the network in four phases. Phase 1 begins at the most local level (three municipalities in mountainous Granma Province) because that is where Cuba's practice is most exceptional. Every Cuban municipality has a cultural 'module' (cultural centres, library, theatre, etc.), which means that accessing, promoting and practising culture and the arts happens through local networks rather than only in cities. This cultural participation is woven into wider cultures of participation as both a citizenship right and a citizenship duty, where development is created by and with communities and seen always as at once economic, social and cultural. This holistic approach leads to intersectoral working - the key Cuban partner for this project, the Commission for Pursuing and Monitoring the Application of the Convention on the Rights of People with Disabilities - coordinates 22 bodies working to enhance disabled people's inclusion, including disabled-led organisations advocating for blind and D/deaf Cubans and those with physical or motor disabilities, as well as the ministries of Labour, Education and Health. In this phase, relationship-building and intercultural translation of ideas and practices around disability is key. It will include a visit to Granma to see projects, meet actors and take part in a cultural-academic event that includes methodological workshops on participatory theory and practice.
Phase 2 brings the Cuban team to the UK to network with universities, disabled-led organisations and disability arts organisations, facilitated by existing connections of UK investigators from the Centre for Research in Criminology, Community, Education and Social Justice (De Montfort University), the Centre for Research on Cuba and the School of Medicine (University of Nottingham) and the Autism Centre (Sheffield Hallam University). This stage is vital to making links between international academic-cultural discourse and the situated action research regularly undertaken by academics and disabled-led organisations through the University of Granma's 11 local university centres and its Centre for Local Development. Limited opportunities for international engagement tend to go to Havana-based intellectuals and creative practitioners, creating barriers for provincial actors seeking to access international expertise and share their work.
Phase 3 focusses on creating concrete outputs, lasting collaborations and structures to ensure the network's longevity. Key foci are: 1) systematic support, including translation/interpretation, for at least three UK-Granma cultural/academic collaborations; 2) roll-out of a co-created online forum tailored to disabled Cubans in the context of limited technology and connectivity; 3) documenting practice and network activities in co-created, accessible materials.
Phase 4 expands the network to include disabled people, practitioners and academics across Cuba and internationally through opening up the online forum, a final event in Granma that includes invited delegates from other provinces and hybrid participation from international delegates, academic sharing in journals and an edited book, and sharing accessible materials and cultural/artistic outputs developed in Phase 3.
We will build and expand the network in four phases. Phase 1 begins at the most local level (three municipalities in mountainous Granma Province) because that is where Cuba's practice is most exceptional. Every Cuban municipality has a cultural 'module' (cultural centres, library, theatre, etc.), which means that accessing, promoting and practising culture and the arts happens through local networks rather than only in cities. This cultural participation is woven into wider cultures of participation as both a citizenship right and a citizenship duty, where development is created by and with communities and seen always as at once economic, social and cultural. This holistic approach leads to intersectoral working - the key Cuban partner for this project, the Commission for Pursuing and Monitoring the Application of the Convention on the Rights of People with Disabilities - coordinates 22 bodies working to enhance disabled people's inclusion, including disabled-led organisations advocating for blind and D/deaf Cubans and those with physical or motor disabilities, as well as the ministries of Labour, Education and Health. In this phase, relationship-building and intercultural translation of ideas and practices around disability is key. It will include a visit to Granma to see projects, meet actors and take part in a cultural-academic event that includes methodological workshops on participatory theory and practice.
Phase 2 brings the Cuban team to the UK to network with universities, disabled-led organisations and disability arts organisations, facilitated by existing connections of UK investigators from the Centre for Research in Criminology, Community, Education and Social Justice (De Montfort University), the Centre for Research on Cuba and the School of Medicine (University of Nottingham) and the Autism Centre (Sheffield Hallam University). This stage is vital to making links between international academic-cultural discourse and the situated action research regularly undertaken by academics and disabled-led organisations through the University of Granma's 11 local university centres and its Centre for Local Development. Limited opportunities for international engagement tend to go to Havana-based intellectuals and creative practitioners, creating barriers for provincial actors seeking to access international expertise and share their work.
Phase 3 focusses on creating concrete outputs, lasting collaborations and structures to ensure the network's longevity. Key foci are: 1) systematic support, including translation/interpretation, for at least three UK-Granma cultural/academic collaborations; 2) roll-out of a co-created online forum tailored to disabled Cubans in the context of limited technology and connectivity; 3) documenting practice and network activities in co-created, accessible materials.
Phase 4 expands the network to include disabled people, practitioners and academics across Cuba and internationally through opening up the online forum, a final event in Granma that includes invited delegates from other provinces and hybrid participation from international delegates, academic sharing in journals and an edited book, and sharing accessible materials and cultural/artistic outputs developed in Phase 3.
Organisations
Description | Full findings are not yet available - award is still active and participatory evaluation is not yet complete. Some initial indications are that the most important findings will relate to addressing weaknesses in participatory practices in the two countries - fragmented participation in the UK learning from unified and structured participation in Cuba; limited campaigning power and flexible solutions to mobility in Cuba learning from sustained and effective campaigns in the UK. Development of a shared, decolonial definition and nascent practice in co-production. |
Exploitation Route | Full findings are not yet available - award is still active and participatory evaluation is not yet complete. |
Sectors | Communities and Social Services/Policy Creative Economy Education Leisure Activities including Sports Recreation and Tourism Government Democracy and Justice Culture Heritage Museums and Collections Transport |
Description | Full impact is not yet clear - award is still active, participatory evaluation is not yet complete and practical collaboration activities in mobility and artistic spheres are still ongoing. Thus far, concrete impacts can be seen in terms of: - Shifts in mentality among academic and non-academic actors in both countries. - New relationships between disability organisations and academics in Granma. - Co-production methodologies being used in training and capacity-building in Bartolomé Masó. - Links established between disabled people's organisations in the UK and Cuba. Impact is developing in terms of cultural exchange and outputs for public sharing, changed approaches to design and mobility, growing independence/autonomy through repair workshops. |
First Year Of Impact | 2023 |
Impact Types | Cultural Societal Policy & public services |
Description | QR Policy Funding (UKRI) De Montfort University - travel to develop partnership with ACPDI. |
Amount | £4,930 (GBP) |
Organisation | United Kingdom Research and Innovation |
Sector | Public |
Country | United Kingdom |
Start | 09/2023 |
End | 07/2024 |
Description | "Cultures of Participation" workshop, Bayamo. |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Third sector organisations |
Results and Impact | One day workshop at El Manegua restaurant with attendees from. UK universities - Nottingham, Sheffield Hallam, De Montfort. Cuban universities - Granma and Holguin, including undergraduate and postgraduate students. Disability organisations - ACPDI, ACLIFIM, ANSOC, ANCI - leaders and members from Bayamo, Manzanillo and Bartolomé Masó, Disabled entrepreneurs and artists from the three municipalities. Inclusive employers and their staff. Representatives of the ministries of Education and Work and Social Security. The day consisted of - a debate in groups about the meaning and practice of "cultures of participation"; lay presentations of academic work by UK and Cuban teams; cultural performances; discussion of future research directions. |
Year(s) Of Engagement Activity | 2023 |
Description | Capacity building workshops, Bartolome Masó. |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | Two workshop events - one specifically for relevant actors (approx. 25), the other public-facing (approx. 85) - to build knowledge and understanding of inclusive disability practice in the municipality. Participants drew on virtual presentation from the UK team about co-production to develop a context appropriate co-production approach developed with disabled-led disability organisations, academics from the local university and professionals/employers. |
Year(s) Of Engagement Activity | 2023,2024 |
Description | Community movement event - IMPACD Nottingham. |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Third sector organisations |
Results and Impact | Cuban academics and disability organisation leaders visited the IMPACD Nottingham community project to meet participants and organisers and to participate in a movement workshop. |
Year(s) Of Engagement Activity | 2023 |
Description | Community visit, Las Mercedes, Bartolomé Masó, |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | UK researchers visited the community of Las Mercedes in Bartolomé Masó, Granma, Cuba to exchange ideas and practice on community work and disability. The event was attended by local government officials, academics from the local university, community workers, representatives of the disability organisations, disabled children and adults, educators and the general public. As well as speeches and cultural performances, we discussed community working practices and structures, shared barriers and had the chance to see artisanal work created by disabled entrepreneurs. |
Year(s) Of Engagement Activity | 2023 |
Description | Cultural exchange - "learning to grow", Bartolomé Masó. |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Patients, carers and/or patient groups |
Results and Impact | UK researchers exchanged practice and participated in activities with the Down Syndrome programme "Aprendiendo a Crecer" in Bartolome Masó, Cuba, sharing experiences with children and young people with Down Syndrome, their parents and practitioners running the social and cultural programme. |
Year(s) Of Engagement Activity | 2023 |
Description | Inclusive tourism with Access the Dales. |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Third sector organisations |
Results and Impact | Cuban academic and disability organisation leaders engaged in two days of inclusive tourism activities with Access the Dales - exchanges with owners of accessible accommodation, organisers of all-terrain wheelchair hubs, museums with Changing Places facilities. Discussion of ideas for accessible tourist options feasible in Cuba. |
Year(s) Of Engagement Activity | 2023 |
Description | Meeting with British Deaf Association. |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Third sector organisations |
Results and Impact | Cuban academics and disability organisation leaders met with organisers and leaders at the British Deaf Association for a dialogue around influencing policy and the campaigns in the two countries to give legal status to British Sign Language and Cuban Sign Language. |
Year(s) Of Engagement Activity | 2023 |
Description | Meeting with Centre for Disability Studies, University of Leeds. |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | Cuban academic and disability organisation leaders visited the Centre for Disability Studies at the University of Leeds for a dialogue on co-production in academic work on disability and the barriers experienced by disabled academics. The link has been maintained with the network contributing a small resource to the MsC on disability at Leeds and ongoing discussions about co-authored publications. |
Year(s) Of Engagement Activity | 2023 |
Description | Meeting with MENCAP. |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Third sector organisations |
Results and Impact | Cuban academics and disability organisation leaders met with leaders and lived experience representatives for a dialogue around influencing policy, co-produced leadership and inclusive employment. Cuban organisations are now developing lay and Easy read employment materials for learning disability using MENCAP resources as models. |
Year(s) Of Engagement Activity | 2023 |
Description | Meeting with RNID. |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Third sector organisations |
Results and Impact | Cuban academic and disability organisation leaders visited the RNID to meet leaders and representatives of a dialogue on best practice and forms of participation. |
Year(s) Of Engagement Activity | 2023 |
Description | Meeting with Shadow Disabilities Minister. |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Policymakers/politicians |
Results and Impact | Cuban academics and disability organisation leaders met with Shadow Disabilities Minister, Vicky Foxcroft, to discuss strategies for disability organisations to influence policy in the two countries. |
Year(s) Of Engagement Activity | 2023 |
Description | Meeting with Sparkle Sheffield. |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Third sector organisations |
Results and Impact | Cuban academic and disability organisation leaders met with family autism organisation Sparkle Sheffield to share experiences, barriers and best practice. The link has been maintained and Sparkle Sheffield are now partners on an ESRC bid being developed with the ACPDI and network members. |
Year(s) Of Engagement Activity | 2023 |
Description | Meeting with Unlimited. |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Third sector organisations |
Results and Impact | Cuban academics and disability organisation leaders met with the director of Unlimited (disability arts commissioner) to discuss their work and opportunities for future collaboration/applications. Cuban participants are reflecting on Unlimited's advice to create the conditions for bidding for future opportunities. |
Year(s) Of Engagement Activity | 2023 |
Description | Meeting with disability organisations, Manzanillo. |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Third sector organisations |
Results and Impact | UK researchers met with representatives of the Cuban disability organisations (ACPDI, ACLIFIM, ANSOC and ACNI), along with representatives of the University of Granma and the Ministry of Work and Social Security. We discussed key barriers experienced by disabled people in the region and the representatives of the organisations proposed mini-projects and research focuses for the network. |
Year(s) Of Engagement Activity | 2023 |
Description | Meeting with staff Disability and Wellbeing Network, De Montfort University. |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | Cuban academics and disability organisation leaders met with representatives of the De Montfort University staff Disability and Wellbeing Network for a dialogue around inclusive employment and barriers to employment in the two countries. As well as sharing experiences, the group undertook research together using Unlimited's Cards for Inclusion to facilitate discussions around barriers using the social model. Members of DAWN are now working on papers as co-authors on work created by the Cuban team. |
Year(s) Of Engagement Activity | 2023 |
Description | Research talk - Cuba Research Forum. |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Undergraduate students |
Results and Impact | Hybrid (in person and online) talk by Cuban researchers and disability leaders to the Cuba Research Forum (academics from the UK, Europe and North America) and undergraduate and postgraduates students within the Centre for Research on Cuba at the University of Nottingham. |
Year(s) Of Engagement Activity | 2023 |
Description | Sports and disability debate - Bartolome Masó. |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Third sector organisations |
Results and Impact | UK researchers debated their shared experiences of success and barriers within community and elite sports with disabled sportspeople, representatives of disability organisations and INDER (the sports and recreation ministry). |
Year(s) Of Engagement Activity | 2023 |
Description | Student meeting and tour De Montfort University. |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Undergraduate students |
Results and Impact | Tour of De Montfort University and discussion with Disabled Student's Liberation officer and other SU representatives. |
Year(s) Of Engagement Activity | 2023 |
Description | Visit to Autism Centre, Sheffield Hallam University. |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Postgraduate students |
Results and Impact | Cuban academic and disability organisation leaders visited the Autism Centre at Sheffield Hallam University, meeting disabled academics, along with postgraduate students, hearing about their research projects and presenting to a class of Autism MA students. |
Year(s) Of Engagement Activity | 2023 |
Description | Visit to MySight Nottingham |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Third sector organisations |
Results and Impact | Cuban academic and disability organisation leaders visited MySight Nottingham (sight loss charity) to exchange practice and to meet and see a performance by the MySight choir. The link has been maintained and there are plans for joint virtual performances with blind/visually impaired musicians in Cuba. |
Year(s) Of Engagement Activity | 2023 |
Description | Visit to Nottinghamshire Powerchair Football Club. |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Third sector organisations |
Results and Impact | Cuban academic and disability organisation leaders visited the Nottinghamshire Powerchair Football Club for a dialogue on elite disability sport with sportspeople, organisers and parents/carers, plus seeing a practice of the powerchair team. |
Year(s) Of Engagement Activity | 2023 |
Description | Visit to RNIB. |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Third sector organisations |
Results and Impact | Cuban academic and disability organisation leaders visited the RNIB national offices to see an example of inclusive architecture and design and to engage in a dialogue with specialists in different aspects of the RNIB's work, including policy, education, library services, technical provision and music services. The link has been maintained with discussions ongoing about members of the RNIB music network participating in artistic exchanges. |
Year(s) Of Engagement Activity | 2023 |
Description | Visit to Scope. |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Third sector organisations |
Results and Impact | Cuban academics and disability organisation leaders visited the Scope headquarters for a dialogue on barriers, campaigning, employment support and inclusive parks. Network members have gone on to develop inclusive parks strategies, which have been shared at conferences and through the AHRC network's early career researcher group. |
Year(s) Of Engagement Activity | 2023 |
Description | Visit to Yorkshire Sculpture Park. |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Third sector organisations |
Results and Impact | Cuban academic and disability organisation leaders visited Yorkshire Sculpture Park to share best practice in accessible culture with the YSP learning and engagement team. |
Year(s) Of Engagement Activity | 2023 |
Description | Visit to special school, Bartolomé Masó. |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Schools |
Results and Impact | UK researchers visited visited a special school, specialising in learning disability, in Bartolomé Masó, Granma. Teachers, parents and students shared practice and exchanged ideas with the visitors. |
Year(s) Of Engagement Activity | 2023 |
Description | Visit to the Art House, Wakefield. |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Third sector organisations |
Results and Impact | Cuban academics and disability organisation leaders visited the Art House - a gallery and studio space designed with disability inclusion as a priority to discuss their ways of working and removing barriers. |
Year(s) Of Engagement Activity | 2023 |