NHS Voices of Covid-19: Creating a national collection to document and understand the impact and legacy of a pandemic through personal testimonies

Lead Research Organisation: University of Manchester
Department Name: School of Medical Sciences

Abstract

We will develop a national collection of personal testimonies and in-depth reflections around Covid-19 that will be preserved at the British Library as a permanent public resource for informing policy and practice. This builds on the infrastructure of the NHS@70 project which has been working across the four nations of the UK, gathering testimony from patients, staff, policymakers and the public since 2017 about experiences of health and the place of the NHS in everyday life and work - nhs70.org.uk. NHS@70 has trained over 150 volunteer interviewers in oral history methodologies and collected upwards of 1000 recordings. The Covid-19 work will deliver an additional 900 oral history interview sessions capturing experiences and reflections across region, age, race, gender and class. This will create an evidence-base that produces understandings of the social significance of Covid-19. Working with stakeholders across health and the voluntary sector and using co-production methods, we will identify priority themes for rapid data analysis and develop resources to feed learning into policy and practice. Developing the collection through NHS@70 will add unique value by enabling shifts in experiences, practices and policies around health and the NHS to be interrogated through defined time periods of before, during and after Covid-19. Embedding Covid-19 in the longer history of UK health will produce richer understandings of its impacts and legacy. This distinguishes this project from others that seek to create understandings from personal testimony. Importantly, building this new study out of the NHS@70 project means that if successful, we will start work immediately.
 
Description The project has collected over 1400 interviews from people across the UK capturing their experiences and reflections on Covid-19 and its impact on their lives and communities. Interviewees include patients, NHS staff, communities of interest, policymakers, scientists. These testimonies have been catalogued and archived at the British Library where they will form a permanent public resource under the collection name: Voices of Our National Health Service. http://cadensa.bl.uk/uhtbin/cgisirsi/x/0/0/5?searchdata1=CKEY8746183&library=ALL
Together with around 800 interviews collected before March 2020 these form a unique and globally significant archive of the history of the UK's National Health Service and its place in everyday life and health over 70 plus years. To the best of our knowledge it is the only oral history collection that takes a national perspective in the world.

The work enabled methodological innovation in the field of oral history by pioneering ongoing series interviews with a cohort of interviewees through 2020-2022. These will be of enormous value in developing understandings around narrative and memory and the relationship between private and public memory.

Material from the testimonies has also been submitted to various national enquiries putting people's voices at the heart of responses to the pandemic.
Exploitation Route The personal testimonies form a national collection that is now deposited at the British Library as a permanent public resource for current and future generations. The depth and breadth of the collection is such that it will be of value to many different audiences from academic to public to individual. From summer 2023 the collection will be available online and will therefore be accessible to audiences across the world. It is already being used by researchers, as material for creative responses to the pandemic, and for use in exhibitions.
Sectors Communities and Social Services/Policy

Healthcare

Leisure Activities

including Sports

Recreation and Tourism

Government

Democracy and Justice

Culture

Heritage

Museums and Collections

Pharmaceuticals and Medical Biotechnology

URL http://nhs70.org.uk
 
Description The findings have been used to submit evidence to various public enquiries on the pandemic. Details are given in the policy section.
First Year Of Impact 2021
Sector Communities and Social Services/Policy,Healthcare,Government, Democracy and Justice
Impact Types Societal

Policy & public services

 
Description Evidence submitted to the British Academy Inquiry into Covid-19
Geographic Reach National 
Policy Influence Type Contribution to a national consultation/review
 
Description Evidence submitted to the Health Foundation's Inquiry into Covid-19
Geographic Reach National 
Policy Influence Type Contribution to a national consultation/review
 
Description Public Accounts Committee review of NHS backlogs and waiting lists
Geographic Reach National 
Policy Influence Type Contribution to a national consultation/review
URL https://committees.parliament.uk/publications/9266/documents/160332/default/
 
Description Stephanie Snow gave evidence to the APPG on coronavirus
Geographic Reach National 
Policy Influence Type Contribution to a national consultation/review
URL https://www.appgcoronavirus.uk/meetings/e7l5azkradfx4br
 
Title Voices of Our National Health Service 
Description An oral history collection of over 2,200 interviews catalogued and deposited at the British Library. http://cadensa.bl.uk/uhtbin/cgisirsi/x/0/0/5?searchdata1=CKEY8746183&library=ALL 
Type Of Material Database/Collection of data 
Year Produced 2022 
Provided To Others? Yes  
Impact Too early to say. 
URL http://cadensa.bl.uk/uhtbin/cgisirsi/x/0/0/5?searchdata1=CKEY8746183&library=ALL
 
Description Covid-19 Conversations 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Supporters
Results and Impact An ongoing series of online Covid-19 Conversations organised around key themes eg: Historians, Archives and Museums; Charities and the Voluntary Sector; Arts and Culture. Each Conversation has 3 invited speakers and the focus of the discussions is around building a national collection of Covid-19 and which voices should be included. Each event has been attended by over 100 people and some of the attendees are international. There is a broad cross-section of attendees across health, heritage and the wider public.
Year(s) Of Engagement Activity 2020
URL https://www.nhs70.org.uk/story/covid-conversations
 
Description Covid-19 and Art 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Patients, carers and/or patient groups
Results and Impact Two workshops, each attracting around 20-25 people from the Jewish community, attended an art workshop focused on their experiences of Covid-19. One of the workshops was specifically linked to the Jewish Mental Health Support Group. The workshops opened up discussions and as a consequence, many attendees agreed to be interviewed for the NHS Voices of Covid-19 project.
Year(s) Of Engagement Activity 2020
URL https://www.nhs70.org.uk/story/exploring-covid-19-through-art-jewish-community-manchester