Administrative Data Research Centre - Scotland

Lead Research Organisation: University of Edinburgh
Department Name: Sch of Geosciences

Abstract

Administrative data (that is, information collected primarily for administrative purposes) has long contributed to central government and other statistics. However in the last 15-20 years, technological advancement has seen something of a revolution with the formation of very large administrative databases held by central and local government, and by specialist agencies across the UK. The existence of such databases raises the possibility that administrative data could become, in an annoymised form, a core resource for social science academic research. Many northern European countries (notably Denmark, Finland, Norway and Sweden) are further ahead in this regard, as they have placed much greater emphasis on developing national 'register data' from the 1980s onwards, to replace national censuses and major surveys. For example, Statistics Denmark now bases most of its national statistics on 'register data' which can be linked both longitudinally and between registers of different types (e.g. health, education, income). Datasets with very similar potential now exist in the UK. They represent a rich potential research resource for the UK social science research community. However, on the whole, the academic social science community in the UK has had difficulty gaining access to these potential powerful datasets for a variety of reasons. In 2011 the Administrative Data Taskforce was formed with the 'aim of improving access to and linkage between government administrative data for research and policy purposes'. One of its recommendations was the formation of Administrative Data Research Centres (ADRC) in each of the countries of the UK.

A Scottish ADRC will aim to make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of policy. It will particularly focus on building trust between data providers, researchers and the public and will adopt the highest international standards of governance, professional practise and public engagement.

The ADRC will have a core service that will:
- provide state-of-the-art facilities for research access to de-identified administrative data by
accredited researchers
- provide data management and statistical analysis support functions for external researchers
accessing the data
- engage in training, capacity building, and public engagement

and a set of developmental work packages that will:
- conduct original research using linked administrative data and important analytical and methodological
approaches that support the creation of research useful datasets
- Explore important aspects of the legal environment and public acceptability of the new linkages that
the ADRC's will naturally be engaged with

it will do this through
- A support unit providing researchers with a single, initial point of contact for the Scottish ADRC
- A central team of data scientists - researching administrative datasets and supporting researchers
through the support unit
- A wide circle of collaborating academics - covering the spectrum of administrative data holding sectors
driving forward the data scientists (central team) and bespoke research projects
- A wider circle of academics/ researchers supported, trained and engaged by the ADRC

Planned Impact

Who will benefit from the work of the centre?
The work and research carried out and facilitated by the centre will have an impact on charities, universities, government departments and independent public bodies. The aim will be to facilitate research that increases the effectiveness of public services and policy; ultimately enhancing quality of life, health and creative output.

How will they benefit from the work of the centre?

(1) Departments supplying administrative data to the centre
First, the Centre will help to ease the resource burden on the data/statistics teams within the specified departments by filtering out inappropriate or incomplete requests for data from the academic community using specifications developed in conjunction with the government data/statistics teams.

Second, the Centre will allow commissioners of research within the departments to commission work from the academic community using new and innovative administrative datasets to answer key policy questions. Evaluations of government programmes by academic institutions will therefore be strengthened by increases in awareness of and availability of existing and new administrative datasets leading to a more robust evidence base for the government departments.

Third, a more robust evidence base build upon better and more innovative research will be to the benefit of policy makers who are tasked with developing and refining programmes and interventions to maximise gains within budgetary constraints.

(2) Policy makers in Scottish Government
In addition to the government departments identified as data custodians, directorates that do not hold data will benefit from the evidence base that will be available through the work of the centre. For instance the Directorate for Local Government and Communities has a range of responsibilities with objectives that overlap with those of UK departments such as the DWP and the Scottish directorate for Employability, Skills & Lifelong Learning and thus require evaluating using indicators sourced from UK and Scottish level administrative data. The Centre will enable academic researchers undertaking these and other similar evaluations to request data form other government departments more easily and more quickly and thus facilitate more timely evaluation.

Particular directorates will benefit directly from the research of the centre for example information made possible by analysis of robust linked administrative data will provide a means by which local authorities and health care providers can better evaluate policies. The work of the informal care WP, for example, will provide insights that highlight if there are groups or geographical areas where informal carers have unmet needs. The work of the informal care package will also highlight the degree to which routinely collected data can provide a means of monitoring trends in informal care provision and inform policy developments at national and local levels.

(3) Policy makers and third sector organisations
The Centre will similarly benefit local authorities and third sectors organisations who may wish to commission academic institutions to undertake more innovative research using administrative data with the resultant information being used to develop and refine programmes of intervention.

(4) The Public
We intend within our public engagement programme to work with the public to jointly derive statistics, which though generated through standard objective research methods, are driven by the particular questions important to a community. The aim will be to allow communities to come to understand important aspects of society as it effects their lives but also importantly to empower them, through the provision of an 'evidence base', to impact the policy making process.

Publications

10 25 50
 
Description The grant is still operational with a key, primary objective - to deliver and facilitate administrative data research - underway. Nevertheless significant findings are emerging. The discovery and developments emanating from the centre illustrate the diversity of research needs that emerge from the reuse of administrative data for research purposes.

In 2017 we highlighted four examples of the research findings that are emerging from the centre:
From the legal workpackage, a 2016 article in the Journal of Law and Society offers a novel means for data custodians to identify key considerations by introducing a decision-making template that supports public authorities' assessment of preparedness for data reuse through identification of challenges faced, related to sector-specific practices. This work has led the team being called upon by Scottish Government to help decision makers work within a complex environment of increasing pressure to make government data more open and accessible whilst also protecting citizens privacy.
The Public Engagement workpackage is uncovering the complexity of the public(s) attitude to the reuse of data for research purposes. For example, arguing that it is necessary to move beyond simple descriptions of whether publics trust researchers, or in whom members of the public place their trust, and to explore more fully the bases of public trust/mistrust in science, what trust implies and equally what it means for research and/or researchers to be trustworthy. Work is also revealing that some of the received wisdom held by expert bodies, that the public is likely to always be resistant to certain types of particular reuse of data, may in fact be incorrect. If a system of good governance is in place and the reuse of data is associated with particular public benefit objectives, then topics that can seem controversial may actually be supported.
From the workpackage developing methods for producing synthetic data, there have been a set of published papers are demonstrating the possibility and utility of producing synthetic research for research. Importantly the workpackage has also developed a software package within the R statistical programming environment https://cran.r-project.org/web/packages/synthpop/index.html. This work has now been taken up by various government agencies and the NHS needing to release data for a number of different purposes for example for training or to enable software development.
From the workpackage developing new forms of historical linked administrative data, work on a new 1936 birth cohort has revealed that geographical movement and in particular movement to a major city or 'escalator region' has a positive effect on socio-economic position in adulthood. This is partially explained by a greater likelihood to move amongst those who were born into advantaged socio-economic position and those who achieve higher levels of qualifications but there still appears to be significant independent effect of movement. This leads to an interesting question about whether encouraging young people to consider the possibility of moving, might encourage greater social mobility. This work is starting to illustrate the great benefit that can emerge from the reuse of historical administrative data linked over a person's lifecourse.

In 2017/18 there have been new discoveries and developments and we highlight some below:

• If administrative data cannot be used outside the National safe haven, this severely restricts its use especially for teaching or training. We have continued to explore the creation of synthetic data and how such datasets can be used in teaching and training using the synthpop software package (developed by the ADRC-S). In a breakthrough in 2017 we have gained permission, based on this research, to provide synthetic education and census data for training outside the Scottish safe haven. We used it for the first time in an ADRC-S training course - introducing a new generation to the power of administrative based research.

• A major problem for the ADRC-S has been the geographically limited points of access to data. In 2017 we have developed and opened ADRC-S Regional Safe Settings across Scotland. This provides researchers with the flexibility and opportunity to remotely access their ADRC-S project data through the National Safe Haven from different universities across Scotland. Most researchers in Scotland should now be no more than a short trip from a data access points.

• The ADRC-S public panel has been invited to comment on a number of important developments in the Scottish data. For example they were invited to comment on the census 2021 census development and the administrative data census being carried out by National Records for Scotland. Work was undertaken to explore the public's view of commercial access to data through the ADRN - suggesting surprisingly high support.

• Through public engagement events and speaking to the public panel, the best means of communicating complex data and linkage processes to patients has been developed. For example the public panel was asked for input on the 'Blue Lights' project (which involves, Police, Fire and Ambulance services) and the panel were supportive of the project, even though the data would be detailed and might seem invasive.

• Another exciting project being led by the ADRC-S is the linkage of millions of civil registration datasets to create large scale longitudinal and family studies. This involves probabilistically matching data fields (e.g. is this name the same as this one, so is this the same person or not). This process very quickly runs into a computing problems, despite modern computing capacities. Metric space indexing is a novel efficient way of doing record linkage without the need for extensive parameter tuning and is being developed by the team. This method suddenly opens up massive possibilities for very large comparison datasets.

• The same work package has also identified that 'Sibling group linkage' as practised by genealogists is a promising approach to automated population reconstruction. This was an interesting finding coming out of a series of meetings between 'traditional' genealogists and computer scientists. Approaches that have been more influenced by innovative computer science were, interestingly, not actually working very effectively, while algorithms based on this existing method seem highly effective.

• In order to understand whether the two techniques discussed above are scalable (i.e. can be used over the many millions of cases in the Digitising Scotland project), realistic and massive test data is necessary. We have established that it is feasible to produce statistically valid synthetic individual-level populations at country-scale. This shows potential for use in rigorous evaluation of population linkage techniques.

• The Aberdeen Children of the 1950s is a study of more than 12,000 people that has been running for over 50 years. The study includes data on the participants' birth, families, neighbourhoods, education, and health. We held a wide variety of outreach events, including a reunion, a new online social space, focus groups, interviews, and surveys. After a year of engagement, we have (a) presented the study's history and results; (b) gathered participants' views on data linkage and governance; and (c) used their stories of the important influences on health and wellbeing across their lives to shape future research.

• One of the major problems for the UK administrative data access system has been the need to seek new data sharing agreements for every new research project. This leads to long delays in data delivery. Work by the ADRC-S has established in fact that there are not fundamental legal barriers to the holding and 're-use' of administrative research datasets and indeed the public may see the 'use once and then destroy' approach as inherently wasteful, and not actually confidence-building as is often argued.

• From work on the ADRC-S 'data ownership project' it has been found that there is a limited legal sense of ownership affecting behaviour among data sharing stakeholders. There is some intellectual property relating to datasets, but this is not used in the general dialogue about data. Likewise, there is very little use of 'ownership' in the sense of a financial commodity. In contrast, there is informal use of 'ownership' in terms of control in data sharing in three respects: participant protection; researcher recognition/reward; data quality. The perception of these three layers of control differs across different types of stakeholder (seen across the data-sharing communities studied). The report distinguishes between: the 'net producer of data for research', the 'net user of data for research' of data, the 'net funders of research', and the 'net stewards of research and research data'. These reflect the different relationships held between individuals (and institutions) about data.

• We have completed a prototype text mining component for analysing historical newspapers and tested it on sample data from newspapers from Aberdeen, Dundee and Edinburgh. We have demonstrated that you can characterise areas based only on words used in articles about these places in a fully automatic process.

• We have developed image processing workflows to extract buildings from the OS 1:25,000 1937-61 map series of maps held in scanned form by the National Library of Scotland. The workflow has been applied to maps across Scotland giving a mid C20th Scottish buildings layer. This means we can now automatically calculate small area estimates of measures as building density for most of Scotland and then other measures of environment insults such as air pollution for the 1930s.

• Analysis of National Crime Agency (NCA) data on drug consignment identified in the postal system, linked to Scottish Index of Multiple Deprivation (SIMD), showed that places to which drugs consignments bought on the 'dark web' had been addressed were on average more deprived urban areas.

• We have analysed trends in placement stability for looked-after children. Results show distinct patterns of placements for children of different ages, and we have constructed a typology of placement types based on sequences identified.

• Work on a newly created 1936 birth cohort study has shown that childhood advantage, in terms of cognitive ability, predicts greater odds of being economically active at age 55 in both men and women. The contributions of early-life socioeconomic status and education differed between males and females. Early-life circumstances did not predict subsequent change in the odds of being economically active over the subsequent 20 years of life.

• Using the 1936 birth cohort, we found that at age 55, childhood advantage - including higher cognitive ability - directly predicted lower functional limitation odds. At age 65, adult socioeconomic circumstances partially mediated the associations between childhood advantage and functional limitation odds. At age 75, only socioeconomic circumstances - both from childhood and from adulthood - predicted functional limitation odds. These results demonstrate that early-life and adult circumstances are associated with functional ability in later life, and that these associations partly result from complex mediation.

• Using the 1936 birth cohort we found that the spatially-mobile had higher social class in adulthood than non-movers, although this was dependent on the destination of the move. Movers to Edinburgh were more likely to be in a high adult social class even when adjusted for individual characteristics. Social class outcomes of movers to Glasgow were associated with individual characteristics rather than place.

• We used administrative data on benefits and annual earnings from employment over a five-year period, from DWP's National Benefits Database and HMRC's P14/P60 data, which were linked to poverty survey data from Family Resources Survey 2010/2011 and its follow-up Poverty and Social Exclusion UK (PSE-UK) 2012. We have shown that longitudinal measures capturing benefit and earning histories have a close fit with recall questions on labour market histories. Furthermore, they are stronger predictors of poverty risks than measures based on current benefits or earnings. The findings suggest that longitudinal administrative measures would have potentially wide-ranging applications in policy as well as poverty research.
Exploitation Route The primary focus of our research award is enabling research whose findings will be of use by policy makers in government, agencies, and in the civic, voluntary and charity sectors. The ADRC-S is heavily engaged with all these sectors to increase awareness and understanding of the potential of research using administrative data.

The ADRC-S has already expanded the in-Scotland cohort of trained and expert researchers in this field, through direct funding from the award and via support activities. This cohort is the basis of an ever-widening foundation to continue developing innovative methodologies and apply them in new research.

Papers presented at the ADRN's first open Annual Research Conference, organised by ADRC-Scotland for June 2017, demonstrated the wide interest from individuals from outside the ADRN, both outside Scotland and outside the UK, to understand the research emerging from the ADRC-S. Practitioners in these sectors are increasingly aware of the developing innovative methodologies and newly available datasets emerging via the ADRN and are wanting to apply them in new research; individuals and organisations have been keen to inform us of the topics to which they would like this enhanced capability to be addressed; and publications, engagement events and initiation of our planned follow-through funded developments will assure dissemination of research project results.

The ADRC-S is also actively organising high level policy engagement events or 'frontier meetings', bringing together researchers with those working on policy in the government and third sector organisations. These meetings have fed into cross UK collaboration and, in particular, progress in Scottish access to Whitehall data. We now have major initiatives with Scottish Government exploring issues of poverty and employability and the emergency services.

It is still quite early days for much of the research supported by the ADRC-S, nevertheless here are some key findings and how they might be taken forward or put to use by others that are emerging from research in 2017/18:

• The distant 'unequal gaze' of a data centre can produce the necessary security for the remote use of sensitive data. Regional safe setting and 'safepods' can therefore be used to produce functional anonymity in data and therefore access to personal and sensitive data. This dramatically increase access to administrative data in a safe and private manner.

• A public panel can usefully the inform decision making process on data sharing. Decision making panels are often uncertain about whether they are reflecting a 'public licence' to share data, even if there is a clear legal gateway. Public panels can help clarify this situation and therefore help with decision making that reflects public attitudes.

• Synthetic data can be used successfully within training programmes held away from the 'data centre'. Our work has shown that it is both possible to gain data releases and successfully use synthetic data for teaching and training. This means that data that previously was restricted in access to very small groups can be far more widely used. We now supply an easy-to-use software package to enable this, that is free for all to use.

• Funders can lead in generating data hubs - facilities and software innovation - to facilitate data sharing and open access, while recognising the different producer-user and funder-steward perspectives. Thus, data generators and data holders 'own' the data on the basis that the creation of the data set, and particularly the ordering of its metadata, is highly resource intensive, and must be recognised. The effort of data creation and data analysis merits recognition for those who expend the effort. Avenues for recognition of data creation are emerging (e.g. in journals, research audits and CV) but these are also inconsistent. Funders can push for such effective recognition.

• Open access, whilst an appropriate requirement for stewardship in public spending, can be at odds with the researcher's need for time to analyse and publish data. Some funders and data sharing agreements allow for a period whereby researchers have an exclusive right of "first publication" from their research. Such a practice is supported by this research, in that many researchers identify themselves as 'owning' the data, in that they have an expectation of a right to first publication of results that flow from their analysis and to work on the data. Accordingly, this should become standard practice in funding agreements and to encourage longer-term data sharing. The "open access" agenda requires careful rethinking to accommodate the range of stakeholder expectations and attitudes; alternative versions of data sharing may well be as legitimate as the current blanket OA agenda.

• We have recently signed an agreement with Findmypast to gain access to Aberdeen newspapers from the last century. This has enabled us to text mine information relevant to the 'Aberdeen Children of the 1950s' study. Our findings demonstrate that we can now characterise areas from newspapers alone. We show that, for areas that have no traditional sources of quantitative measurement data, we can now create rich information. This has significant implications for other historic studies worldwide.

• The development of image processing workflows to extract building information from the OS 1:25,000 1937-61 series of maps held in scanned form by the National Library of Scotland demonstrates the possibly of automatically generating very large scale GIS datasets that then can be used for lifecourse studies. This technique could be applied to any historic digitised map series globally.

• Our work producing detail sequences of placement types for looked-after children has demonstrated how this flexible analytical tool can used to produce deeper insights into complex temporal patterns. The findings from this study will be used by the Scottish Government to understand how they might plan services for children for whom the state becomes responsible for looking after, in order that the children's best interests are served.
Sectors Communities and Social Services/Policy,Digital/Communication/Information Technologies (including Software),Education,Environment,Healthcare,Government, Democracy and Justice

URL https://adrn.ac.uk/about/network/scotland/
 
Description The ADRC-S has just entered its fifth year. Goals set in the award to complete a new secure and safe infrastructure in Scotland based at the Edinburgh Bioquarter for linked data research have been completed, with enhancements to widen the service's accessibility beyond Edinburgh to regional safe settings now open also at St Andrews, Dundee, Aberdeen and Glasgow. This will reduce the burden on researcher time and costs, and incentivise the development of new projects having increased flexibility of access to project data. ADRC-S also leads the project developing the UK-wide Micro Safe Settings Network and this will allow the widening access goals of the centre to be extended into the UK. This network approach has a foundation in ADRC-S legal research that has now become embedded in ICO guidance on good practise on data use, as well as in academic publication. The impact and interest in the ADRC-S findings is evidence of the success of its 2017 research conference. The conference's impact was broad with, for example, the European Commission's participation with the EC's Joint Research Centre's 'Competence Centre on Micro Evaluation'. This should further stimulate Scottish-government focused effort in developing regional capability in using predictive analytics tools to improve policy outcomes in Scotland with research contributions from ADRC-S - this is an effort which has been building since ADRC-S jointly with UBDC began work with Scottish and New Zealand Government input in November 2015. The ADRC-S's dedicated and shared space funded at 9 Edinburgh Bioquarter is used in intense collaboration with the FARR@Scotland, with the NHS National Service Scotland's research coordination team, and with the University's Usher Institute. The shared space has evolved into a fruitful venue of choice for 'pathfinder' and 'frontier' workshops. These have organised e.g. with other RCUK Councils for cross-disciplinary events with ADRC-S contributions - for example, with NERC on its call for 'Improving Health with Environment Data' and others (the "Innovative Healthcare Delivery Programme's Information Governance Summit" held at 9 Edinburgh Bioquarter). The former led to three projects in Scotland being supported, all of them interacting with and being supported by parts of the ADRC-S. The legal work package team's public contributions include the exploration of issues in the governance and use of administrative data in the UK, with publication e.g. in the Journal of Law and Society. Solutions developed to help overcome the legal, ethical and practical barriers to accessing administrative data for research purposes have included development of a decision-making tool to assist data controllers while considering whether / on what basis to share administrative data; and a means to help them develop a public interest mandate for culture change within their institution as part of the wider UK public sector. For example, a workshop on this topic was held 26.4.2016 at 9 Edinburgh Bioquarter for Scottish public authorities tasked with implementing Public Records legislation. The 2017 annual report from the Keeper of the Records of Scotland references the our workshop, with substantial recognition of the ways in which the contributions arising from our research helped the local authorities communities understand cultures of caution and confidence around data access and sharing. The Scottish Government has used the team's outputs to engage with public authorities over data sharing initiatives. The team is leading the ADRN's development of a principles-based assessment tool to help ADRN stakeholders potentially to build a defensible case for a data retention policy, working with the ADRC-S public engagement (PE) team - and this is being used by public authorities across the UK. The ADRC-S PE team has established and supports a very active ADRC-Scotland Public Panel; through which ADRC-S's transparent research practices and dialogue with publics are now spreading, helping rigorously to underpin ADRC-S research through training workshops and 1:1 advice and support to assist researchers in their public engagement activities and dialogues with non-specialist audiences. Linkage with health datasets is a significant component of administrative data research, and the PE team has supported Scotland's Public Benefit & Privacy Panel process via a Working Group that developed guidance to all health data stakeholders (controllers, processors and users) for them to better understand public engagement implications; new guidance, to be issued shortly, will help accelerate access to Scottish health data. The PE team joined with Aberdeen researchers to mount a historic re-engagement event 20.2.2016 with the Aberdeen Birth Cohort of the 1950s that has re-ignited awareness and interest in the potential of administrative data research, not only inside the cohort. The information generated by this research endeavour has been widely to inform work on further work on the development of large scale, non-consented, historical cohort studies for medical research. Our findings help our researchers to present to public audiences" we have been asked to input to the "Understanding Patient Data" initiative run by Wellcome Trust; and we were consulted on a recent Health Care Alliance Scottish Government video about the use of health data in research and care. This work is being used as an exemplar for engagement with members of historical studies by the Public Benefit and Privacy Panel for Health and Social Care (part of Information Services Division of NHS Scotland), and by the Farr Institute of Health Informatics. The Medical Director for NHS Grampian has since involved study participants in shaping the new Clinical Strategy for NHS Grampian. Furthermore, the Dementias Platform UK project is now collecting further participant views on data governance and study participation. This has excellent potential for policy impact by creating guidance for data custodians on expectations about data sharing and governance. ADRC-S has worked with the ESRC's Phase III Big Data Investment 'Think.Data' to support development of the 'third sector' e.g. with the Scottish Civil Society Data Partnership, illustrated by our hosting a workshop on using own databases as research resources, and by our joining with the Scottish Council for Voluntary Organisations to host the "Cross-sector Roundtable on Health: how can data help the third sector plan and deliver the right services, and demonstrate impact". This work has led to further use of third sector data for research. For example, Citizens Advice Scotland is now allowing research access to its data in order to enable a better understanding of its clients. ADRC-S has made use of its access to the significant Scottish historical datasets - the Scottish Mental Survey 1947 and the Aberdeen Birth Cohort of the 1950s - in order to investigate social mobility, health, and wellbeing across the life course. As an initial step, this project linked administrative records from the Scottish Mental Survey 1947 to records from the Scottish Longitudinal Study, which includes census and healthcare data, a linkage that helped create a data resource for further research. This research is producing important findings on the impact of early life conditions on later life outcomes and therefore current polices impacting children and young people. Other ADRC-S work packages have been developing innovative methodologies - this work has led to new and innovative data products to emerge: (1) Successive publications around the development of software to create synthetic datasets has aroused interest in Scottish government and health dataset controllers for its potential application in numerous settings. Despite this software package just having been released, it is being used quite widely by academics, the public sector and private companies in the UK and across Europe. The 'synthpop' package, freely available in R to produce synthetic data, is being used by the Northern Ireland Statistical and Research Agency, the NHS in Scotland and Cambridge Environmental Research Consultants, to produce non-disclosive research data. It is also the software package of choice in a number of the training programmes provided by academics (external to the ADRC-S) Across Europe. (2) The ADRC-S project deriving information automatically from digitised historical maps is working closely with National Library of Scotland to produce informative data from their crowd-sourced georeferenced maps series. This work has led to a NERC-MRC funded project looking at the long-term impact of air pollution on dementia risk, collaborating with the NERC Centre for Environment and Hydrology in extending their historical climate modelling approaches. (3) ADRC-S research into how to link millions of civil registration datasets to create large scale longitudinal and family studies is starting to make an impact with preliminary results have been reported in the paper "Using Metric Space Indexing for Complete and Efficient Record Linkage" (Akgun et al.) accepted for the high-profile conference Pacific-Asia Conference on Knowledge Discovery and Data Mining (PAKDD), Melbourne, June 2018 and other work reported in a paper "Linking Scottish Vital Event Records Using Family Groups" (Akgun et al.) under review (second revision) for Journal of Historical Methods. Discussions are ongoing with the University of Umea (holders of one of the most significant historical longitudinal study in the world) around their use of our techniques and our use of their data to test whether our methods could be used in Sweden. ADRC-S has secured access to new data from partners in the crime and justice sector (including Police Scotland and the National Crime Agency). This opens up new channels of research that were previously not possible. Collaborations with the government agencies such as ScotXed in the education sector, and with National Records Scotland on developing linkages that can access Scottish census data, are bearing fruit. ADRC-S contributed to the consultation on the Looked-After Children data management strategy and the data strand in the Child Protection Improvement Programme, as well as in the current development of new linkage between child protection data and the data held by the Scottish Children's Reporters Administration to advance understanding of what promotes secure placements for children who are looked-after away from home. New research partnerships have been developed e.g. with the Cash for Kids charity, with Education Scotland, and with What Works Scotland. ADRC-S has brokered 3-way discussions at the Bioquarter between the Scottish Government, The Department for Work and Pensions (DWP), and ADRC-S researchers (both at senior investigator and at newly-appointed research fellow level) to help understand how datasets held by DWP might be researched to assist Scottish Government policy development, and how Scottish jurisdictional research might be an exemplar for wider UK application by DWP - these are impact processes of long gestation. Inevitably publications and research findings from the research projects accessing these new datasets and emergent from these new partnerships are still unavailable, the activity of engagement with all these stakeholders has greatly increased their awareness of and built confidence in the capability and expertise of the growing cohort of researchers active in and with the ADRC-S internally and externally.
First Year Of Impact 2014
Sector Communities and Social Services/Policy,Digital/Communication/Information Technologies (including Software),Environment,Healthcare,Government, Democracy and Justice,Culture, Heritage, Museums and Collections
Impact Types Societal,Policy & public services

 
Description Advisory group for Scottish Civil Society Data Partnership
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Participation in a advisory committee
 
Description Alan Turing Institute. Ethics for Data Science Workshop
Geographic Reach National 
Policy Influence Type Participation in a advisory committee
 
Description Child Poverty Bill
Geographic Reach National 
Policy Influence Type Participation in a national consultation
Impact Submitted a response to the consultation on the proposed Child Poverty Bill with recommendations about data fields required from children's services to improve quality and utility of national returns.
 
Description Children Data Strategy
Geographic Reach National 
Policy Influence Type Participation in a advisory committee
Impact Meeting with SG policy staff in the Looked after Children team, Child Protection team and Statistics team to advise on the Looked after Children Data Strategy.
 
Description Ethics and Opportunities of Big Data (Royal Statistical Society/St George's House)
Geographic Reach National 
Policy Influence Type Citation in other policy documents
URL http://www.rss.org.uk/Images/PDF/influencing-change/2016/rss-report-opps-and-ethics-of-big-data-feb-...
 
Description Exploring the Social Contract for Medical Innovation
Geographic Reach National 
Policy Influence Type Participation in a advisory committee
 
Description Ipsos Mori Data Dialogues (non-participant)
Geographic Reach National 
Policy Influence Type Citation in other policy documents
Impact The methods and focus of these influential studies was directly influenced by prior work Pagliari & Cunnningham-Burley undertook with Ipsos Mori on public attitudes to administrative data sharing in Scotland.
 
Description Multiple Deprivation Advisory Group
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Participation in a advisory committee
 
Description National Data Guardian Review on Data Security and consent. (Nuffield Council for Bioethics)
Geographic Reach National 
Policy Influence Type Participation in a advisory committee
 
Description Predictive analytics for government
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Influenced training of practitioners or researchers
 
Description Public Benefit and Privacy Panel
Geographic Reach National 
Policy Influence Type Participation in a advisory committee
Impact From 1st May2015, arrangements for scrutiny of applications to use NHSScotland originated data have changed. Community Health Index Advisory Group (CHIAG), NHS National Services Scotland Privacy Advisory Committee (PAC), and National Caldicott Guardians application processes have been merged. A single application and scrutiny process is now operated across Scotland by the newly formed Public Benefit and Privacy Panel for Health and Social Care.
URL http://www.informationgovernance.scot.nhs.uk/blog/tag/pbpp/
 
Description Public engagement. Aberdeen Children of the 1950s cohort study
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Influenced training of practitioners or researchers
 
Description UK Cabinet Office consultations on the sharing of public sector data for research, policy and fraud prevention
Geographic Reach National 
Policy Influence Type Participation in a advisory committee
Impact Participation in this series of deliberative consultations with Involve of the cabinet office, which helped to shape the UK Government's (England) strategy for data reuse.
 
Description UK Parliament. Science and Technology Select Committee. Report on the Big Data Dilemma
Geographic Reach National 
Policy Influence Type Citation in other policy documents
URL http://www.publications.parliament.uk/pa/cm201516/cmselect/cmsctech/468/468.pdf
 
Description A Network for Studying Psychological Resilience in Low and Middle-Income Countries (NESP)
Amount £600,000 (GBP)
Organisation Medical Research Council of South Africa (MRC) 
Sector Public
Country South Africa
Start 01/2018 
End 12/2018
 
Description A new integrated decision-making tool for urban health and policy evaluation: 'QCumber-envHealth'
Amount £224,000 (GBP)
Funding ID NE/N007352/1 
Organisation Natural Environment Research Council 
Sector Public
Country United Kingdom
Start 11/2015 
End 10/2017
 
Description ESRC Large Grants Competition
Amount £2,500,000 (GBP)
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 10/2017 
End 09/2020
 
Description ESRC PhD studentship linking and modelling housing, poverty and the labour market
Amount £70,000 (GBP)
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 10/2014 
End 10/2018
 
Description ESRC PhD studentship modelling survey - Non-response using linked administrative data in HAGIS and the UKHLS
Amount £70,000 (GBP)
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 10/2016 
End 09/2019
 
Description ESRC PhD studentship relationship between diagnoses and social care provision in a national cohort: implications for social and health care integration
Amount £70,000 (GBP)
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 10/2016 
End 09/2019
 
Description Enabling Research Data: Aberdeen Birth Cohorts
Amount £35,000 (GBP)
Organisation Farr Institute of Health Informatics Research 
Department Farr Institute Scotland
Sector Learned Society
Country United Kingdom
Start 11/2016 
End 10/2017
 
Description Flexi-shuttle: demand responsive transport optimisation
Amount £50,000 (GBP)
Organisation Innovate UK 
Sector Public
Country United Kingdom
Start 11/2016 
End 01/2017
 
Description Gordon and Ena Baxter Foundation grant
Amount £5,000 (GBP)
Organisation Gordon & Ena Baxter Foundation 
Sector Charity/Non Profit
Country Unknown
Start 02/2016 
End 01/2018
 
Description Identifying and Understanding Inequalities in Child Welfare Intervention Rates: comparative studies in four UK countries
Amount £557,705 (GBP)
Organisation Nuffield Foundation 
Sector Charity/Non Profit
Country United Kingdom
Start 04/2014 
End 03/2017
 
Description Influence of ownership on data sharing practices
Amount £60,000 (GBP)
Organisation Wellcome Trust 
Sector Charity/Non Profit
Country United Kingdom
Start 09/2016 
End 04/2017
 
Description Modelling historical air pollution and dementia/cognitive decline: towards a life course approach
Amount £60,000 (GBP)
Organisation Natural Environment Research Council 
Sector Public
Country United Kingdom
Start 03/2017 
End 03/2018
 
Description NHS R&D Pump Priming
Amount £30,000 (GBP)
Organisation National Health Service 
Start 05/2018 
End 05/2019
 
Description NHS-Digital Academy - Building skills for the NHS CIOs and CCIO profession
Amount £6,000,000 (GBP)
Organisation NHS England 
Sector Public
Country United Kingdom
Start 08/2017 
End 04/2021
 
Description Obesity strategic network: whole systems approach
Amount £93,000 (GBP)
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 11/2015 
End 11/2016
 
Description Roland Sutton Post Doctoral Fellowship
Amount £35,000 (GBP)
Organisation Roland Sutton Academic Trust 
Sector Charity/Non Profit
Country United Kingdom
Start 12/2016 
End 11/2017
 
Description Scottish Government/ESRC PhD studentship [Henderson: health and social care]
Amount £7,000 (GBP)
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 09/2015 
End 08/2018
 
Description Storing and using the Guthrie Card collection for research purposes: a role for citizens in shaping policy
Amount £40,000 (GBP)
Funding ID 40000 
Organisation Wellcome Trust 
Sector Charity/Non Profit
Country United Kingdom
Start 01/2017 
End 12/2017
 
Description Storing and using the Guthrie Card collection for research purposes: a role for citizens in shaping policy
Amount £40,000 (GBP)
Organisation Wellcome Trust 
Sector Charity/Non Profit
Country United Kingdom
Start 01/2017 
End 12/2017
 
Description Telling tales of engagement
Amount £10,000 (GBP)
Organisation Engineering and Physical Sciences Research Council (EPSRC) 
Sector Academic/University
Country United Kingdom
Start 04/2018 
End 10/2019
 
Description Ultra-low emission taxis feasibility study
Amount £45,000 (GBP)
Organisation The Data Lab - Innovation Centre 
Sector Private
Country Unknown
Start 01/2016 
End 06/2016
 
Description University of Edinburgh's College of Humanities and Social Sciences for a 'Knowledge Exchange and Impact Grant'
Amount £2,450 (GBP)
Organisation University of Edinburgh 
Sector Academic/University
Country United Kingdom
Start 06/2015 
End 06/2016
 
Description Wellcome Trust - Developing a Centre for Biomedicine, Self and Society
Amount £1,190,489 (GBP)
Funding ID 209519/Z/17/Z 
Organisation Wellcome Trust 
Sector Charity/Non Profit
Country United Kingdom
Start 10/2017 
End 09/2022
 
Title Image Processing 
Description Pipeline scripts for OpenCV for use in image processing of historic maps 
Type Of Material Improvements to research infrastructure 
Provided To Others? No  
Impact None. 
 
Title "Derived % change in built up between 1937- 61 and modern day dataset" 
Description (Raster GRID) 
Type Of Material Database/Collection of data 
Year Produced 2017 
Provided To Others? No  
Impact none 
 
Title 1936 birth cohort linked to Scottish Longitudinal Study 
Description 1936 birth cohort linked to Scottish Longitudinal Study 
Type Of Material Database/Collection of data 
Provided To Others? No  
Impact Huang, Z., Dibben, C., Kirby, G., Deary, I., Popham, F. & Connelly, F. (2015) The creation of an administrative data based 1936 Birth Cohort Study The Farr Institute International Conference 2015, University of St Andrews, UK, 26 - 28 August 2015 
URL http://calls.ac.uk/output-entry/the-creation-of-an-administrative-data-based-1936-birth-cohort-study...
 
Title 1937-61 Scotland-wide building footprints 
Description (Polygon Shapefile) 
Type Of Material Data analysis technique 
Year Produced 2017 
Provided To Others? No  
Impact None 
 
Title ACONF - Map of Aberdeen data linkage possibilities with Special Collections 
Description Database of special collections at Aberdeen library 
Type Of Material Database/Collection of data 
Provided To Others? No  
Impact In collaboration with the head of special collections at Aberdeen University library we have mapped available resources to be linked to the Aberdeen Children of the 50s database. 
 
Title Aberdeen Birth Cohorts 
Description The University of Aberdeen has followed all of the children born in Aberdeen in 1921, 1936, and 1950-1956 as they grow and age. Collectively these groups are known as the ABERDEEN BIRTH COHORTS, and are a jewel in the crown of Scottish health research and have helped to advance the understanding of aging well. 
Type Of Material Database/Collection of data 
Year Produced 2014 
Provided To Others? Yes  
Impact New study website created and 5 new studies supported to use data. 
URL https://www.abdn.ac.uk/birth-cohorts/
 
Title Attribute to distinguish between public and non-public buildings on R13 dataset 
Description Dataset flag 
Type Of Material Database/Collection of data 
Year Produced 2017 
Provided To Others? No  
Impact None 
 
Title Bike Counter Dataset 
Description SQLite database plus CSV tables published under open licence 
Type Of Material Database/Collection of data 
Provided To Others? No  
Impact None. 
URL http://data.edinburghopendata.info/dataset/bike-counter-data-set-cluster
 
Title Database of UK universities Research Office Contacts 
Description Contact information for UK universities Research Offices 
Type Of Material Database/Collection of data 
Year Produced 2017 
Provided To Others? No  
Impact none 
 
Title Derived % built up in 1937-61 dataset 
Description (Raster GRID) 
Type Of Material Database/Collection of data 
Year Produced 2017 
Provided To Others? No  
Impact none 
 
Title General Household training dataset 
Description General Household training dataset for researchers to use 
Type Of Material Database/Collection of data 
Year Produced 2015 
Provided To Others? Yes  
Impact Necessary for training exercises for workshops 
 
Title Innovate UK 
Description Innovate UK is a new integrated decision-making tool for urban health and policy evaluation. 
Type Of Material Data analysis technique 
Provided To Others? No  
Impact None as yet. The SME CERC leading the proposal will benefit directly through development of a market lead in a sophisticated spatiotemporal mapping and modelling platform to assess environmental exposure and health-risks, and the associated commercial income stream. 
URL http://gtr.rcuk.ac.uk/projects?ref=NE%2FN007352%2F1
 
Title Longitudinal training dataset 
Description Longitudinal training dataset for researchers to use and train with. 
Type Of Material Database/Collection of data 
Year Produced 2015 
Provided To Others? Yes  
Impact Necessary for training exercises for workshops 
 
Title New derived databases of features 
Description Database of extracted geographical features extracted from historic maps 
Type Of Material Database/Collection of data 
Provided To Others? No  
Impact None 
 
Title Prototype urbaness spatial dataset 
Description prototype 'urbaness' spatial dataset 
Type Of Material Database/Collection of data 
Provided To Others? No  
Impact None 
 
Title Teaching synthetic data set for the ADRC-S course 'An introduction to using linked administrative data for social and health research' 
Description An extract from the SLS has been synthesised. The data are from population and school censuses and can be used to analyse risk factors of young people not in education or training (NEETS). 
Type Of Material Database/Collection of data 
Year Produced 2017 
Provided To Others? Yes  
Impact Exposure of course participants to real data problems 
 
Title Updates to machine learning dataset 
Description Machine learning dataset 
Type Of Material Computer model/algorithm 
Provided To Others? No  
Impact None 
 
Title linkage of cash for kids grant making individual level data to administrative data sets 
Description linkage of cash for kids grant making individual level data to administrative data sets 
Type Of Material Database/Collection of data 
Provided To Others? No  
Impact None as yet 
 
Title machine learning training dataset (maps) 
Description machine learning training dataset (maps) 
Type Of Material Database/Collection of data 
Provided To Others? No  
Impact None 
URL https://gitlab.edina.ac.uk
 
Description ADRC Scotland - Dibben 
Organisation Australian National University (ANU)
Country Australia 
Sector Academic/University 
PI Contribution Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S). The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement. ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets.
Collaborator Contribution A wide variety of contributions will be made by individual collaborators. These include: eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues. National Records of Scotland - Are the third party for the linkage of administrative datasets. Australian National University - Will provide expert advice for the linkage of administrative datasets. Broadly, UK universities will deliver specific research aims as follows: University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers. University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study. University of St Andrews - Dealing with uncertainty in automated linkage. University of Glasgow - Research into incomes, benefits and the labour market. University of Stirling - Research into the implications of caring for health and wellbeing.
Impact The ADRC project will run from 2013 until 2018. The ADRC has currently: i. Produced 7 publications. ii. Created 1 software package. iii. Been Involved in 8 engagement activities.
Start Year 2013
 
Description ADRC Scotland - Dibben 
Organisation Heriot-Watt University
Country United Kingdom 
Sector Academic/University 
PI Contribution Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S). The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement. ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets.
Collaborator Contribution A wide variety of contributions will be made by individual collaborators. These include: eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues. National Records of Scotland - Are the third party for the linkage of administrative datasets. Australian National University - Will provide expert advice for the linkage of administrative datasets. Broadly, UK universities will deliver specific research aims as follows: University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers. University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study. University of St Andrews - Dealing with uncertainty in automated linkage. University of Glasgow - Research into incomes, benefits and the labour market. University of Stirling - Research into the implications of caring for health and wellbeing.
Impact The ADRC project will run from 2013 until 2018. The ADRC has currently: i. Produced 7 publications. ii. Created 1 software package. iii. Been Involved in 8 engagement activities.
Start Year 2013
 
Description ADRC Scotland - Dibben 
Organisation Information Services Division (ISD)
Department Electronic Data Research and Innovation Service (eDRIS)
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S). The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement. ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets.
Collaborator Contribution A wide variety of contributions will be made by individual collaborators. These include: eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues. National Records of Scotland - Are the third party for the linkage of administrative datasets. Australian National University - Will provide expert advice for the linkage of administrative datasets. Broadly, UK universities will deliver specific research aims as follows: University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers. University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study. University of St Andrews - Dealing with uncertainty in automated linkage. University of Glasgow - Research into incomes, benefits and the labour market. University of Stirling - Research into the implications of caring for health and wellbeing.
Impact The ADRC project will run from 2013 until 2018. The ADRC has currently: i. Produced 7 publications. ii. Created 1 software package. iii. Been Involved in 8 engagement activities.
Start Year 2013
 
Description ADRC Scotland - Dibben 
Organisation National Records of Scotland
Country United Kingdom 
Sector Public 
PI Contribution Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S). The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement. ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets.
Collaborator Contribution A wide variety of contributions will be made by individual collaborators. These include: eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues. National Records of Scotland - Are the third party for the linkage of administrative datasets. Australian National University - Will provide expert advice for the linkage of administrative datasets. Broadly, UK universities will deliver specific research aims as follows: University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers. University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study. University of St Andrews - Dealing with uncertainty in automated linkage. University of Glasgow - Research into incomes, benefits and the labour market. University of Stirling - Research into the implications of caring for health and wellbeing.
Impact The ADRC project will run from 2013 until 2018. The ADRC has currently: i. Produced 7 publications. ii. Created 1 software package. iii. Been Involved in 8 engagement activities.
Start Year 2013
 
Description ADRC Scotland - Dibben 
Organisation University of Aberdeen
Country United Kingdom 
Sector Academic/University 
PI Contribution Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S). The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement. ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets.
Collaborator Contribution A wide variety of contributions will be made by individual collaborators. These include: eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues. National Records of Scotland - Are the third party for the linkage of administrative datasets. Australian National University - Will provide expert advice for the linkage of administrative datasets. Broadly, UK universities will deliver specific research aims as follows: University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers. University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study. University of St Andrews - Dealing with uncertainty in automated linkage. University of Glasgow - Research into incomes, benefits and the labour market. University of Stirling - Research into the implications of caring for health and wellbeing.
Impact The ADRC project will run from 2013 until 2018. The ADRC has currently: i. Produced 7 publications. ii. Created 1 software package. iii. Been Involved in 8 engagement activities.
Start Year 2013
 
Description ADRC Scotland - Dibben 
Organisation University of Aberdeen
Country United Kingdom 
Sector Academic/University 
PI Contribution Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S). The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement. ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets.
Collaborator Contribution A wide variety of contributions will be made by individual collaborators. These include: eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues. National Records of Scotland - Are the third party for the linkage of administrative datasets. Australian National University - Will provide expert advice for the linkage of administrative datasets. Broadly, UK universities will deliver specific research aims as follows: University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers. University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study. University of St Andrews - Dealing with uncertainty in automated linkage. University of Glasgow - Research into incomes, benefits and the labour market. University of Stirling - Research into the implications of caring for health and wellbeing.
Impact The ADRC project will run from 2013 until 2018. The ADRC has currently: i. Produced 7 publications. ii. Created 1 software package. iii. Been Involved in 8 engagement activities.
Start Year 2013
 
Description ADRC Scotland - Dibben 
Organisation University of Dundee
Country United Kingdom 
Sector Academic/University 
PI Contribution Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S). The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement. ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets.
Collaborator Contribution A wide variety of contributions will be made by individual collaborators. These include: eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues. National Records of Scotland - Are the third party for the linkage of administrative datasets. Australian National University - Will provide expert advice for the linkage of administrative datasets. Broadly, UK universities will deliver specific research aims as follows: University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers. University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study. University of St Andrews - Dealing with uncertainty in automated linkage. University of Glasgow - Research into incomes, benefits and the labour market. University of Stirling - Research into the implications of caring for health and wellbeing.
Impact The ADRC project will run from 2013 until 2018. The ADRC has currently: i. Produced 7 publications. ii. Created 1 software package. iii. Been Involved in 8 engagement activities.
Start Year 2013
 
Description ADRC Scotland - Dibben 
Organisation University of Edinburgh
Country United Kingdom 
Sector Academic/University 
PI Contribution Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S). The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement. ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets.
Collaborator Contribution A wide variety of contributions will be made by individual collaborators. These include: eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues. National Records of Scotland - Are the third party for the linkage of administrative datasets. Australian National University - Will provide expert advice for the linkage of administrative datasets. Broadly, UK universities will deliver specific research aims as follows: University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers. University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study. University of St Andrews - Dealing with uncertainty in automated linkage. University of Glasgow - Research into incomes, benefits and the labour market. University of Stirling - Research into the implications of caring for health and wellbeing.
Impact The ADRC project will run from 2013 until 2018. The ADRC has currently: i. Produced 7 publications. ii. Created 1 software package. iii. Been Involved in 8 engagement activities.
Start Year 2013
 
Description ADRC Scotland - Dibben 
Organisation University of Glasgow
Country United Kingdom 
Sector Academic/University 
PI Contribution Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S). The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement. ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets.
Collaborator Contribution A wide variety of contributions will be made by individual collaborators. These include: eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues. National Records of Scotland - Are the third party for the linkage of administrative datasets. Australian National University - Will provide expert advice for the linkage of administrative datasets. Broadly, UK universities will deliver specific research aims as follows: University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers. University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study. University of St Andrews - Dealing with uncertainty in automated linkage. University of Glasgow - Research into incomes, benefits and the labour market. University of Stirling - Research into the implications of caring for health and wellbeing.
Impact The ADRC project will run from 2013 until 2018. The ADRC has currently: i. Produced 7 publications. ii. Created 1 software package. iii. Been Involved in 8 engagement activities.
Start Year 2013
 
Description ADRC Scotland - Dibben 
Organisation University of St Andrews
Country United Kingdom 
Sector Academic/University 
PI Contribution Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S). The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement. ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets.
Collaborator Contribution A wide variety of contributions will be made by individual collaborators. These include: eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues. National Records of Scotland - Are the third party for the linkage of administrative datasets. Australian National University - Will provide expert advice for the linkage of administrative datasets. Broadly, UK universities will deliver specific research aims as follows: University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers. University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study. University of St Andrews - Dealing with uncertainty in automated linkage. University of Glasgow - Research into incomes, benefits and the labour market. University of Stirling - Research into the implications of caring for health and wellbeing.
Impact The ADRC project will run from 2013 until 2018. The ADRC has currently: i. Produced 7 publications. ii. Created 1 software package. iii. Been Involved in 8 engagement activities.
Start Year 2013
 
Description ADRC Scotland - Dibben 
Organisation University of Stirling
Country United Kingdom 
Sector Academic/University 
PI Contribution Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S). The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement. ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets.
Collaborator Contribution A wide variety of contributions will be made by individual collaborators. These include: eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues. National Records of Scotland - Are the third party for the linkage of administrative datasets. Australian National University - Will provide expert advice for the linkage of administrative datasets. Broadly, UK universities will deliver specific research aims as follows: University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers. University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study. University of St Andrews - Dealing with uncertainty in automated linkage. University of Glasgow - Research into incomes, benefits and the labour market. University of Stirling - Research into the implications of caring for health and wellbeing.
Impact The ADRC project will run from 2013 until 2018. The ADRC has currently: i. Produced 7 publications. ii. Created 1 software package. iii. Been Involved in 8 engagement activities.
Start Year 2013
 
Description ADRC Scotland - Dibben 
Organisation University of Stirling
Country United Kingdom 
Sector Academic/University 
PI Contribution Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S). The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement. ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets.
Collaborator Contribution A wide variety of contributions will be made by individual collaborators. These include: eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues. National Records of Scotland - Are the third party for the linkage of administrative datasets. Australian National University - Will provide expert advice for the linkage of administrative datasets. Broadly, UK universities will deliver specific research aims as follows: University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers. University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study. University of St Andrews - Dealing with uncertainty in automated linkage. University of Glasgow - Research into incomes, benefits and the labour market. University of Stirling - Research into the implications of caring for health and wellbeing.
Impact The ADRC project will run from 2013 until 2018. The ADRC has currently: i. Produced 7 publications. ii. Created 1 software package. iii. Been Involved in 8 engagement activities.
Start Year 2013
 
Description ADRC Scotland - Gibb (Cash for Kids) 
Organisation Cash for Kids
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution a proposed feasibility study to investigate the impact of cash grants or income supplements in terms of their effects on recipient households - do frailty oriented subsidies affect educational outcomes for their children?
Collaborator Contribution a proposed feasibility study to investigate the impact of cash grants or income supplements in terms of their effects on recipient households - do frailty oriented subsidies affect educational outcomes for their children?
Impact None
Start Year 2015
 
Description ADRC Scotland - Gibb (What Works Scotland) 
Organisation What Works Scotland
Country United Kingdom 
Sector Public 
PI Contribution on going interest by community planning partnerships already working with WWS to disucss scope for data linkage possibilities for their corss-sectoroal profiling and planning work.
Collaborator Contribution on going interest by community planning partnerships already working with WWS to disucss scope for data linkage possibilities for their corss-sectoroal profiling and planning work.
Impact None
Start Year 2015
 
Description ADRC Scotland - McVie 
Organisation National Crime Agency
Country United Kingdom 
Sector Public 
PI Contribution A proposal for research is currently in development. This will involve in-kind contributions of data from the NCA and involvement of their staff in terms of research input and writing.
Collaborator Contribution A proposal for research is currently in development. This will involve in-kind contributions of data from the NCA and involvement of their staff in terms of research input and writing.
Impact None.
Start Year 2015
 
Description ADRC-S Regional Safe Settings (University of Aberdeen) 
Organisation University of Dundee
Country United Kingdom 
Sector Academic/University 
PI Contribution Costs for SafeDesk
Collaborator Contribution Room and staffing
Impact n/a
Start Year 2017
 
Description ADRC-S Regional Safe Settings (University of Dundee) 
Organisation University of Aberdeen
Country United Kingdom 
Sector Academic/University 
PI Contribution Costs for SafeDesk
Collaborator Contribution Room and staffing
Impact n/a
Start Year 2017
 
Description ADRC-S Regional Safe Settings (University of Glasgow) 
Organisation University of Glasgow
Department Robertson Centre for Biostatistics Glasgow
Country United Kingdom 
Sector Academic/University 
PI Contribution Costs for SafeDesk
Collaborator Contribution Room and staffing
Impact n/a
Start Year 2017
 
Description ADRC-S Regional Safe Settings (University of St Andrews) 
Organisation St. Andrews University
PI Contribution n/a
Collaborator Contribution Staffing
Impact n/a
Start Year 2017
 
Description AMS Oversight Group 
Organisation Amazon.com
Country United States 
Sector Private 
PI Contribution Part of new workstream: How does society use evidence to judge the risks and benefits of medicines
Collaborator Contribution Part of new workstream: How does society use evidence to judge the risks and benefits of medicines
Impact Producing a technical report
Start Year 2015
 
Description Blue Lights Project 
Organisation NHS Health Scotland
Department Scottish Ambulance Service
Country United Kingdom 
Sector Public 
PI Contribution Access support and access to data
Collaborator Contribution Access support and access to data
Impact Access support and access to data
Start Year 2017
 
Description Blue Lights Project 
Organisation Police Scotland
Country Unknown 
Sector Public 
PI Contribution Access support and access to data
Collaborator Contribution Access support and access to data
Impact Access support and access to data
Start Year 2017
 
Description Blue Lights Project 
Organisation Scottish Fire and Rescue Service
Country United Kingdom 
Sector Public 
PI Contribution Access support and access to data
Collaborator Contribution Access support and access to data
Impact Access support and access to data
Start Year 2017
 
Description Collaborative MSc project on curating, cleaning, analysing and visualising off-road bike counter data from City of Edinburgh Council\ 
Organisation City of Edinburgh Council
Country United Kingdom 
Sector Public 
PI Contribution Student supervision, relationship management, project management
Collaborator Contribution Transfer of 9 years of sensor data; Contextual information about data, feedback on project.
Impact See website for more information.
Start Year 2016
 
Description Collaborative MSc project on parsing Scottish Post Office Directories 
Organisation National Library of Scotland
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Student supervision
Collaborator Contribution Student supervision, project management
Impact Unpublished MSc dissertation
Start Year 2016
 
Description Commissioned work for Swansea 
Organisation Swansea University
Country United Kingdom 
Sector Academic/University 
PI Contribution Oversight and admin
Collaborator Contribution Problem space
Impact Example data sets for defined geographic area in Wales
Start Year 2017
 
Description Early collaboration with Swansea (Alex Langlands) 
Organisation Swansea University
Country United Kingdom 
Sector Academic/University 
PI Contribution Exchange of methodologies and agreement to allow access to our codebase
Collaborator Contribution Exchange of methodologies and agreement to allow access to our codebase
Impact None reported.
Start Year 2016
 
Description Generation Scotland - cohort partnership 
Organisation Generation Scotland
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Led recruitment from ACONF and supprted brain imaging
Collaborator Contribution Project PI and biological data storage
Impact Not reported.
Start Year 2016
 
Description Meeting between UBDC and Registers of Scotland 
Organisation Registers of Scotland
Country United Kingdom 
Sector Public 
PI Contribution Professional input into meeting
Collaborator Contribution Professional input into meeting
Impact None as yet
Start Year 2016
 
Description MoU with National Library 
Organisation National Library of Scotland
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Ongoing engagement was considered as part of draft MoU text
Collaborator Contribution Not reported.
Impact Full access to large collection of historic data
Start Year 2016
 
Description NCA Project 
Organisation Police Scotland
Country Unknown 
Sector Public 
PI Contribution Access support and access to data
Collaborator Contribution Access support and access to data
Impact Access support and access to data
Start Year 2016
 
Description PBPP - Public Engagement Guideline Development Group 
Organisation Farr Institute of Health Informatics Research
Country United Kingdom 
Sector Academic/University 
PI Contribution Input to the development of new guidelines for the Public Benefit and Privacy Panel in Scotland
Collaborator Contribution Input to the development of new guidelines for the Public Benefit and Privacy Panel in Scotland
Impact Report and recommendations submitted to commissioning group (Farr Scotland Director and PBPP Chair) in Jan 2017. Draft report has driven change in procedures at PBPP
Start Year 2016
 
Title SafeDesk 
Description SafeDesk 
IP Reference  
Protection Trade Mark
Year Protection Granted 2017
Licensed No
Impact SafeDesk and policies developed to enable researchers to remotely access the National Safe Haven. SafeDesk placed into the universities of Dundee, Glasgow and Aberdeen.
 
Title SafePod remote safe setting 
Description SafePods are micro safe rooms that provide remote access to data. 
IP Reference  
Protection Trade Mark
Year Protection Granted 2015
Licensed No
Impact Potential to develop the UKs first remote safe settings programme for researchers to use local institution to access sensitive data.
 
Title Aberdeen Birth Cohorts - convert metadata db to new DaDaBIK 
Description onvert metadata db to new DaDaBIK 
Type Of Technology Software 
Year Produced 2015 
Impact None 
 
Title Aberdeen Birth Cohorts website 
Description Website to engage study participants from Aberdeen child of the 1950s project. 
Type Of Technology Webtool/Application 
Year Produced 2015 
Impact None 
URL http://www.abdn.ac.uk/birth-cohorts/1950s/
 
Title Automatic Record Classification Software 
Description A tool for automatic classification of text strings such as occupations and causes of death, using machine learning and other algorithms. 
Type Of Technology Software 
Year Produced 2015 
Impact Not yet known. 
URL http://digitisingscotland.cs.st-andrews.ac.uk/record_classification/
 
Title Establishment of SILC shared services; accommodation, TTP Indexing, eDRIS and new Safe Haven computing 
Description Establishment of SILC shared services; accommodation, TTP Indexing, eDRIS and new Safe Haven computing 
Type Of Technology New/Improved Technique/Technology 
Year Produced 2015 
Impact Will lead to improvement of access and sharing of admin data for research 
 
Title Historic-Map-Processing software 
Description Historic-Map-Processing software 
Type Of Technology New/Improved Technique/Technology 
Year Produced 2016 
Impact will allow others to extract features from historic map corpi 
URL http://gitlab.edina.ac.uk
 
Title Historical map feature extraction suite 
Description To extract features from historical maps in order to generate new spatial datasets of thematic interest for contextual environmental exposure proxies 
Type Of Technology Software 
Year Produced 2015 
Impact A suite of python scripts for image processing, image classification, machine learning and computer vision techniques for historic map corpus 
URL https://gitlab.edina.ac.uk
 
Title SafeDesk 
Description Concept to allow a room to be converted to a safe setting using a SafeDesk. Currently in place at the universities of Dundee, Glasgow and Aberdeen 
Type Of Technology Physical Model/Kit 
Year Produced 2017 
Impact Provides researchers with the opportunity to access their ADRC-S data through the National Safe Haven without the need to travel long distances. 
URL https://www.adrn.ac.uk/about/network/scotland/safe-settings/
 
Title SafePod 
Description Production of a prototype safe room for remote access to sensitive data. Features fingerprint reader, Smart Glass, height adjustable desk and CCTV. Prototype is based at the University of St Andrews. 
Type Of Technology Physical Model/Kit 
Year Produced 2015 
Impact To assess feasibility to provide more suitable and flexible safe rooms for the academic research community to access sensitive data. Video on request from darren.lightfoot@st-andrews.ac.uk. 
 
Title Synthpop: Generating synthetic versions of sensitive microdata for statistical disclosure control 
Description --- A tool for producing synthetic versions of microdata containing confidential information so that they are safe to be released to users for exploratory analysis. The key objective of generating synthetic data is to replace sensitive original values with synthetic ones causing minimal distortion of the statistical information contained in the data set. Variables, which can be categorical or continuous, are synthesised one-by-one using sequential modelling. Replacements are generated by drawing from conditional distributions fitted to the original data using parametric or classification and regression trees models. Data are synthesised via the function syn() which can be largely automated, if default settings are used, or with methods defined by the user. Optional parameters can be used to influence the disclosure risk and the analytical quality of the synthesised data. 
Type Of Technology Software 
Year Produced 2014 
Open Source License? Yes  
Impact The synthpop package for R facilitates greatly generating non-disclosive entirely synthetic versions of sensitive restricted access microdata (e.g. the UK Longitudinal Studies) that can then be made more freely available for explanatory research and training. This can increase usage and impact of the unique and valuable resources. 
URL http://cran.r-project.org/package=synthpop
 
Description "'Documenting the workflow when analysing administrative data: Possible approaches to sharing data analysis programmes with insights from computer science' ESRC Administrative Data Research Network Research Conference QUB, Belfast." 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Audience given new insight into methods used for computer science
Year(s) Of Engagement Activity 2015
 
Description "'Encouraging Users to Adopt Good Practices in Administrative Data Analysis: The Workflow and Metadata' ESRC Administrative Data Research Network Research Conference QUB, Belfast" 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Audience appreciated importance of adopting good practice when using administrative data
Year(s) Of Engagement Activity 2015
 
Description "'Working with Occupation Based Socio-economic Measures in Administrative Data' ESRC Administrative Data Research Network Research Conference QUB, Belfast." 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Audience educated in different occupational measures
Year(s) Of Engagement Activity 2015
 
Description "Administrative Social Science Data: L'autre obsession' Social Surveys and Social Statistics Research Group All-hands meeting University of Stirling" 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Audience introduced to context of administrative data
Year(s) Of Engagement Activity 2015
 
Description "Challenging Child Protection: New Directions in Safeguarding Children Connecting Research" 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Talk on the above topic. Slides and podcast available from link below.
Year(s) Of Engagement Activity 2016
URL http://www.socialwork.ed.ac.uk/research/grants_and_projects/current_projects/revisiting_child_protec...
 
Description "Delivering Proportionate Governance in a Culture of Caution: Lessons learned and next steps" at 2015 Data Safety in Scottish Health and Social Care Partnerships Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Raised awareness of the research undertaken within the legal work package to ADRC-S and more generally about the work of ADRC-S within the administrative data landscape.
Year(s) Of Engagement Activity 2015
URL http://www.mackayhannah.com/conferences/speakers/health-and-social-care
 
Description "From a Culture of Caution to a Culture of Confidence" at Changing a Record Landscape: Public Records Scotland Act 2011 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Invited speaker to conference of information governance and records management professionals. Made further contacts within this community which led to our workshop with National Records Scotland.
Year(s) Of Engagement Activity 2016
URL http://www.scottisharchives.org.uk/prsaconference2016
 
Description "Inequalities in Ageing: An Example of the Social to Biological Transition? Taking a Life Course Approach Using Social and Biological Data" 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Post-SSLS conference workshop, discussing the use of life course approaches (such as SMS1947 cohort)
Year(s) Of Engagement Activity 2017
 
Description "Myths and Realities of Public Sector Information Governance - Moving Beyond a Culture of Caution to a Culture of Confidence" at Capita's Public Sector Records and Information Management Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Invited speaker to conference of information governance and records management professionals. Further opportunity to pilot our decision making matrix and develop future opportunities for engagement with Scottish public authorities.
Year(s) Of Engagement Activity 2016
URL http://www.capitaconferences.co.uk/pdfgen.html?filename=PublicRecordsManagementScotland.pdf&code=SMM...
 
Description "Reducing Risk and Minimising Harm to Individuals in Cross-Border Care: The Crucial Role of Good Governance in Preventing the Misuse of Patient Data" at the European Association of Health Law 2015 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Raised awareness of the research undertaken by the legal work package to ADRC-S and specifically about the research undertaken on the notion of harms arising out of the use of administrative data (in particular the use of health administrative data).
Year(s) Of Engagement Activity 2015
URL http://www.eahl2015prague.eu/detailed-programme.htm
 
Description "Reducing risk and minimising harm: the crucial role of good governance in preventing the abuse of health and biomedical data" at CPDP 2016 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Accepted paper to international data protection conference; international exposure to ADRN/ADRC-S and requests for further information on our work on harm.
Year(s) Of Engagement Activity 2016
URL http://www.cpdpconferences.org
 
Description "What is Public Benefit" events across Scotland June 2017 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Workshops held across 3 areas of Scotland (Perth, Glasgow and Aberdeen) to explore what the public think about public benefit and the use of data for public benefit
Year(s) Of Engagement Activity 2017
 
Description 'Administrative data is a bit like Tinder: Other people seem to be using it, are you missing out?' 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Increased awareness of administrative data research possibilities
Year(s) Of Engagement Activity 2015
 
Description 'Exploring Ear'oles Education 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact 'Exploring Ear'oles Education: An investigation of the school-level educational outcomes of 'working class' pupils in contemporary Scotland.', Social Stratification Research Conference, Cambridge.

Audience developed knowledge of techniques to be used when analysing administrative data
Year(s) Of Engagement Activity 2016
 
Description A Public Interest Mandate to Support the Use, Sharing and Linkage of Administrative Data 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Paper accepted as part of a Wellcome Trust/Liminal Spaces Symposium at the International Association of Bioethics Conference. As a result all speakers will coauthor a paper. As a result of this talk Ms Sharon Burton, Head of Policy for Standards and Ethics at the GMC has asked to work with us on deploying our decision-making tool for data custodians to help resolve issues in organisations working with the HSCIC.
Year(s) Of Engagement Activity 2016
URL http://iab2016.com/conference-programme/
 
Description A note on using the F-measure for record linkage and classification algorithms 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Seminar in the School of Computing, The University of St Andrews
Year(s) Of Engagement Activity 2017
 
Description ADRC Scotland Retreat 2015 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Opportunities for collaboration between ADRC and CSDP projects and networking of ADRC-S staff.
Year(s) Of Engagement Activity 2015
 
Description ADRC conference retreat 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact The conference retreat helped members of the ADRC and collaborators to understand the areas of work ADRC Scotland are undertaking, to plan goals for the life of the project and to network.

Staff had a better understanding of the work of the project and an opportunity to network amongst one another.
Year(s) Of Engagement Activity 2014
 
Description ADRC conference retreat 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other audiences
Results and Impact The conference retreat helped members of the ADRC and collaborators to understand the areas of work ADRC Scotland are undertaking, to plan goals for the life of the project and to network. Staff had a better understanding of the work of the project and an opportunity to network amongst one another.
Year(s) Of Engagement Activity 2014
 
Description ADRC-S Public Panel meeting on Criminal Convictions data 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Talking with public panel members about the potential for using criminal convictions research for public benefit allowed ADRC-S to take the panel's view back to government to help with negotiating access to this data
Year(s) Of Engagement Activity 2016
 
Description ADRC-S Public Panel meeting on data retention 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Talking with public panel members about the different data models that could be adopted allowed ADRC-S to take the panel's view back to help the task team discussion on this issue
Year(s) Of Engagement Activity 2016
 
Description ADRC-S Public Panel on synthetic data 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Talking with public panel about the use of synthetics data and the benefits, this has been used to feed into other work on synthetic data
Year(s) Of Engagement Activity 2016
 
Description ADRC-S Public Panel to discuss crime and justice data linkage. 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact Public panel agreed that crime and justice data should be used for linkage projects that would be of significant public benefit. This helped in our endeavours to get access to crime and justice related data.
Year(s) Of Engagement Activity 2016
 
Description ADRC-S blog on 'Its a criminal waste: how using administrative data about crime could better inform public policy' 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact ADRC-S blog on 'Its a criminal waste: how using administrative data about crime could better inform public policy
Year(s) Of Engagement Activity 2016
URL https://adrn.ac.uk/news-training/blog-adrn/it-s-a-criminal-waste/
 
Description ADRN Public Panel Development 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Anne McKenzie via ADRC-Scotland is now an International Advisor to the ADRNs Public Engagement activities
Year(s) Of Engagement Activity 2015
 
Description ADS researcher training 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other audiences
Results and Impact The Administrative Data Service (ADS) provided researcher training to ADRC staff. Completion of the training is a requirement for access to ADRN data. ADRC staff had a better understanding of the responsibilities for handling sensitive data. Delegates are authorised to access and use ADRN data.
Year(s) Of Engagement Activity 2014
 
Description ADS researcher training 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact The Administrative Data Service (ADS) provided researcher training to ADRC staff. Completion of the training is a requirement for access to ADRN data.

ADRC staff had a better understanding of the responsibilities for handling sensitive data. Delegates are authorised to access and use ADRN data.
Year(s) Of Engagement Activity 2014
 
Description ADSW Adoption and Fostering Sub-Group 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADSW Adoption and Fostering Sub-Group
Year(s) Of Engagement Activity 2018
 
Description AFA Legal Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact AFA Legal Conference
Year(s) Of Engagement Activity 2018
 
Description AQMeN hosted an event on data linkage using education data. 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact The workshop resulted in significant interest in developing further projects in the area of education and how it is linked with a variety of other topics, such as crime.
Year(s) Of Engagement Activity 2016
URL http://www.aqmen.ac.uk/EducationData
 
Description Aberdeen Children of the 1950s 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact high level overview of data linkage and research
Year(s) Of Engagement Activity 2016
 
Description Aberdeen Children of the 1950s 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact talk at Cults 50+ group high level overview of data linkage and research
Year(s) Of Engagement Activity 2016
 
Description Aberdeen Children of the 1950s 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact stall at Mayfest at the University of Aberdeen outreach to general public
Year(s) Of Engagement Activity 2016
 
Description Aberdeen Children of the 1950s 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact high level overview of data linkage and research
Year(s) Of Engagement Activity 2016
 
Description Aberdeen Children of the 1950s 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact talk at UCAN Cancer charity high level overview of data linkage and research
Year(s) Of Engagement Activity 2016
 
Description Aberdeen Cohort of the 1950s Alumni newsletter 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Outreach to participants in the study, capturing participant emails
Year(s) Of Engagement Activity 2015
 
Description Aberdeen Cohort of the 1950s Participant Reunion 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact outreach to participants in the study, opportunity for participants to provide feedback on the study
Year(s) Of Engagement Activity 2016
 
Description Aberdeen Cohort of the 1950s Study movie 
Form Of Engagement Activity A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact publicized the Aberdeen birth cohorts
Year(s) Of Engagement Activity 2015
 
Description Aberdeen Cohort of the 1950s Study website 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact publicized the Aberdeen birth cohorts
Year(s) Of Engagement Activity 2015
URL http://www.abdn.ac.uk/birth-cohorts/
 
Description Aberdeen Cohort online participant survey 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact opportunity for participants to provide feedback on the study
Year(s) Of Engagement Activity 2016
URL http://www.abdn.ac.uk/birth-cohorts/feedback/
 
Description Aberden Cohort of the 1950s Facebook community 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact outreach to participants in the study, capturing participant emails
Year(s) Of Engagement Activity 2015
URL https://www.facebook.com/aberdeenbirthcohorts
 
Description Administrative Data Quality and Measurement: A case study cross-validating UK Birth Records, International Sociology Association Research Committee 33 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Audience developed knowledge of techniques to be used when analysing administrative data
Year(s) Of Engagement Activity 2016
 
Description Advanced Record LInkage Methods: Scalability, classification and privacy 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact HIghlighted topic of record linkage and its challenges
Year(s) Of Engagement Activity 2015
URL http://www.idir.st-andrews.ac.uk/blog/2015/07/13/peter/
 
Description Ageing research network and Lothian Applied Ageing Research Network 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact A meeting with invited attendees from Scottish government and third sector to provide information on the 'Care in the last days of life' work.
Year(s) Of Engagement Activity 2017
 
Description Alumni newsletter 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Piece in University of Aberdeen alumni newsletter about the Aberdeen Children of the 1950s study; outreach to participants in the study, capturing participant emails
Year(s) Of Engagement Activity 2015
 
Description An exploratory study into how the clinical condition of diabetes is discussed on Twitter 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Led to further work examining social media data for clinical and social research
Year(s) Of Engagement Activity 2014
 
Description Analysis methods and utility measures (Synthetic data workshop, Cambridge) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Discussion on the state of the art of synthetic data and challenges faced.
Year(s) Of Engagement Activity 2016
URL http://www.newton.ac.uk/seminar/20161031140014202
 
Description Apples and Oranges? Searching for (In)consistencies of the Public Interest across Data Protection, Freedom of Information, Copyright and Whistleblowing Law 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Provided novel insight on the deployment of the public interest concept across several legal domains and related this to the use and importance of the concept in data protection.
Year(s) Of Engagement Activity 2016
 
Description Applying Systematic Review Methodologies to the Analysis of Data Available on Social Media Sites: An Exploratory Study into How the Topic of Gestational Diabetes Is Discussed on Twitter 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Methodological contribution of reuse of online social data
Year(s) Of Engagement Activity 2014
 
Description Audience developed knowledge of techniques to be used when analysing administrative data 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact An international audience was exposed to the work being done on the governance work package of ADRC Scotland, and revealed common themes/experiences in administrative data linkage.

Key contacts were made with international data linkage centres, including in particular Statistics New Zealand and the US Census Bureau.
Year(s) Of Engagement Activity 2016
 
Description Balancing societal benefits and risks in the Big Data ecosystem 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Prompting policymakers, medics and healthcare professionals to think about the importance of developing an evidence base to partner with the innovations agenda.
Year(s) Of Engagement Activity 2014
 
Description Beltane Breakfast - Policy Making Event 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact We participated in an open policy making event with policy makers at the Beltane Public Engagement Event
Year(s) Of Engagement Activity 2015
 
Description Big Data Integration: Challenges and opportunities 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Informed wider group about challenges and opportunities for big data integration
Year(s) Of Engagement Activity 2015
URL http://www.trustedautonomy.net/index.php/data-decision-analytics-2015-workshop
 
Description Big Data workshop 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Big Data workshop
Year(s) Of Engagement Activity 2017
 
Description Big questions / big ideas conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact An international consortium to hold data and to collaborate on methodology was formed. Future work on coding occupations and a sister project in the Netherlands.
Year(s) Of Engagement Activity 2015
 
Description Birth Cohorts 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Postgraduate students
Results and Impact course describing data linkage and research to medical students
Year(s) Of Engagement Activity 2016
 
Description Blockchain for Clinical Trials - What are the Ethical Issues? 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Symposium on Blockchain for Science. Imperial College London
Year(s) Of Engagement Activity 2017
 
Description Bringing patients and their records together: rights, benefits and the digital society 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Key note speech at the Holyrood e-health conference. Contributing to the policy dialogue and clinical debate around the sociatel benefits of sharing electronic records with patients and citizens.
Year(s) Of Engagement Activity 2015
URL http://ehealth.holyrood.com/agend
 
Description CCACE 8th Annual Research Day 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Knowledge dissemination ADRC-S exposure
Year(s) Of Engagement Activity 2015
URL http://www.ppls.ed.ac.uk/psychology/events/view/ccace-8th-annual-research-day
 
Description CLOSER conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact publicized the Aberdeen birth cohorts, planning collaborations with other birth cohort studies, planning to get the Aberdeen Children of the 1950s cohort linked to CLOSER
Year(s) Of Engagement Activity 2015
URL http://www.closer.ac.uk/event/conference2015/
 
Description CLOSER conference 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Presented poster on Aberdeen birth cohorts at Cohort & Longitudinal Studies Enhancement Resources (CLOSER) conference on the
The importance of early years, childhood and adolescence: Evidence from longitudinal studies

Publicized the Aberdeen birth cohorts, planning collaborations with other birth cohort studies, planning to get the Aberdeen Children of the 1950s cohort linked to CLOSER.
Year(s) Of Engagement Activity 2015
 
Description Care Inspectorate Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Explore opportunities to link social care workforce data. Agreement to explore collaboration to access and analyse the workforce data to support the work of the regulator.
Year(s) Of Engagement Activity 2015
 
Description Chair of ADRN information governance group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Agreeing security standards across ADRN network.
Year(s) Of Engagement Activity 2016
 
Description Challenges in generating and communicating synthetic data (Synthetic data workshop, Cambridge) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Discussion on the state of the art of synthetic data and challenges faced.
Year(s) Of Engagement Activity 2016
 
Description Challenging Inequities in Palliative Care 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact An event that identified key areas of inequality in end of life care in Scotland. Shared details of the end of life care research project with other attendees.

Learned more about the perspective of practitioners and policy makers on palliative care and a number of contacts.
Year(s) Of Engagement Activity 2016
 
Description Childhood cognitive ability and later-life wellbeing: Linkage with the Scottish Mental Survey 1947 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Poster presentation of potential projects under Work Package 9 for ADRC Scotland. Audience was given information about a novel cohort, and about how data linkage can benefit ageing research.
Year(s) Of Engagement Activity 2016
 
Description Childhood cognitive function and later-life economic activity 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Presentation at ADRN 2017, demonstrating initial results from SMS1947-SLS project (WP 9)
Year(s) Of Engagement Activity 2017
 
Description Citizens Jury on the use of Guthrie Cards in Research 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Citizens jury held about the potential to use newborn blood spots in research (and the potential to link this to administrative data)
Year(s) Of Engagement Activity 2017
 
Description Codefest: Introduction to Version Control 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Change in attitudes to version control and software management
Year(s) Of Engagement Activity 2015
 
Description Cognitive Epidemiology: Using Administrative Data 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other audiences
Results and Impact Poster presentation of potential projects under Work Package 9. The poster also aimed to raise awareness of data linkage process and ethics.
Year(s) Of Engagement Activity 2016
 
Description Collaboration with Urban Big Data Centre (1) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Identified areas in which the sister ESRC funded data centres would work together and initiate the planning for the UBDC to use ADRC facilities for their research using data linkage.

UBDC and ADRC-S staff were formally introduced and gained a clear understanding of their respective responsibilities and areas of activity.
Year(s) Of Engagement Activity 2014
 
Description Collaboration with Urban Big Data Centre (2) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact The meeting resulted in the parameters for future contract of service between UBDC and ADRC-S.

None.
Year(s) Of Engagement Activity 2014
 
Description Collaboration with Urban Big Data Centre (2) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact The meeting resulted in the parameters for future contract of service between UBDC and ADRC-S.
Year(s) Of Engagement Activity 2014
 
Description Connelly, R., Gayle, V. and Dibben, C. (accepted) Scottish Linked-Administrative Data: New Opportunities for Longitudinal Research, Society for Research in Lifecourse and Longitudinal Studies Life Courses in Cross-National Comparison: Similarities and Differences Dublin Castle, Dublin, Ireland, 18 - 21 October 2015 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Audience had awareness of new opportunities for longitudinal research
Year(s) Of Engagement Activity 2015
 
Description Consent and the GDPR: What does it mean? 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Health Informatics Society of Ireland
Year(s) Of Engagement Activity 2017
 
Description Could Bitcoin Help Science? 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Media (as a channel to the public)
Results and Impact One of several interviewees quoted in a Nature article on the potential of Blockchain for science. Pagliari was interviewed following a talk at the Imperial Blockchain for Science symposium, in which she analysed the ethical and governance implications of these innovations.
Year(s) Of Engagement Activity 2017
URL https://www.nature.com/articles/d41586-017-08589-4
 
Description Course: Statistical Modelling for Administrative & Social Survey Data @ 9 Edinburgh Bioquarter 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Audience developed knowledge of techniques to be used when analysing administrative data
Year(s) Of Engagement Activity 2015
 
Description Creation of a Public Engagement community of practice within Usher Institute 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact A new community of practice within the Usher Institute is being established and ADRC-S PE WP team are part of this core group developing and leading this work
Year(s) Of Engagement Activity 2017
 
Description Cross national research data: access, legality, ethics and opportunities 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Discussion about the difficulties of informed consent in the use of big data and pointed to alternative practices of a focus on public benefit assessment and engagement of discussion panels formed by members of the public to ensure ethical use of data.

Also provided an information exchange about the resource networks and practices around big data in UK and Germany and an extension of the professional network of ADRC-S.
Year(s) Of Engagement Activity 2016
 
Description Data Ethics and Health 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Postgraduate students
Results and Impact Lecture given to Business and Medical Students. Imperial College,
Year(s) Of Engagement Activity 2017
 
Description Data Linkage Scotland Showcase 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact The first joint 3-partner event by all the main organisations offering research and data linkage services to the academic, policy and wider communities in Scotland.
Year(s) Of Engagement Activity 2016
URL https://www.eventbrite.co.uk/e/data-linkage-scotland-showcase-2016-tickets-25993153221
 
Description Data Linkage Scotland Showcase 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact The first joint 3-partner event by all the main organisations offering research and data linkage services to the academic, policy and wider communities in Scotland.
Year(s) Of Engagement Activity 2016
URL https://www.eventbrite.co.uk/e/data-linkage-scotland-showcase-2016-tickets-25993153221
 
Description Data Linkage Scotland Showcase 2016 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Audience introduced to context of administrative data
Year(s) Of Engagement Activity 2016
 
Description Data Linkage and Anonymisation: Synthetic data workshop, the Isaac Newton Institute for Mathematical Sciences (Cambridge, 31/10-4/11/2016) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact An overview of the state of the art and future directions for synthetic data - work on a position paper.
Year(s) Of Engagement Activity 2016
URL http://www.newton.ac.uk/seminar/20161031142014402
 
Description Data release from NLS 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Third sector organisations
Results and Impact Agreement to access 7TB of large-scale historic mapping data for analytical work under WP5 of ADRC-S. Agreement in principle of a quid pro quo basis to access full corpus of NLS maps.
Year(s) Of Engagement Activity 2016
 
Description Dataset description meeting with schema.org 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Industry/Business
Results and Impact Use case requirements fed into schema.org data description vocabulary being used by major search engines (Google, Bing, Yahoo!, Yandex, etc)
Year(s) Of Engagement Activity 2016
 
Description David Henry visit 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other audiences
Results and Impact This visit led to various future collaborations between Canada and Scotland and a workshop a the Farr/ ADRC international conference in St Andrews in the summer of 2015
Year(s) Of Engagement Activity 2014
 
Description Developing a Trusted Research Environment for London: Frontiers meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Advice to London universities and the NHS on how to create a data safe haven
Year(s) Of Engagement Activity 2016
 
Description Developing collaboration with Cash for Kids 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Developing feasibility study using cash for kids data with educatonal outcomes to test intervention effects - ongoing
Year(s) Of Engagement Activity 2015
 
Description Developing the use of administrative data on Scotland's civil society 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Engagement with third sector and ESRC civil society data centre. Stimulating interdisciplinary dialogue and engagement with third sector.
Year(s) Of Engagement Activity 2016
 
Description Development of ADRC Scotland Public Engagement Panel 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Awareness among the general public of the operations and aims of ADRC-S. Creation of structure for feedback into ADRC-s public opinion.
Year(s) Of Engagement Activity 2015
 
Description Discussions with Centre for Inflammation Research regarding information for cancer research 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Better diagnostic techniques for lung cancer
Year(s) Of Engagement Activity 2015
 
Description Discussions with Open Historical Street Map project 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Study participants or study members
Results and Impact lead to better mutual understanding of each others objectives and potential synergies - OHSM keen on reuse of software being developed and application to their aspirations
Year(s) Of Engagement Activity 2015
 
Description ESRC Festival of Social Science Event 'Scientists Have Your Data!' 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact Discussion and quiz about public benefit and use of data, with interaction with the audience and questions about data and the benefits of administrative data use in research
Year(s) Of Engagement Activity 2017
URL https://www.ed.ac.uk/arts-humanities-soc-sci/research-ke/our-research/esrc-festival-of-social-scienc...
 
Description Edinburgh International Festival - BBC Science Stand 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Cunningham-Burley took part in a stall at the Edinburgh International Festival ran by BBC Scotland about research
Year(s) Of Engagement Activity 2017
 
Description Edinburgh International Science Festival Event 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Science Festival dialogic interactive event
Year(s) Of Engagement Activity 2017
 
Description Edinburgh Science Festival Event 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact publicised the ADRC-S, interacted with a broad cross section of the public
Year(s) Of Engagement Activity 2015
 
Description Education and the life course: exploring patterns of subject specific performance in school attainment in Scotland 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presentation at International Conference.
Year(s) Of Engagement Activity 2015
 
Description Email exchanges with ONS Chief Data Scientist 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact awareness raising of ADRC-S with ONS data science
Year(s) Of Engagement Activity 2015
 
Description Empathy-based system design for improved patient outcomes in digital integrated care 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Building a European Network for information-driven Health and Social Care
Year(s) Of Engagement Activity 2015
 
Description Engagement with Justice Analytical Services 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Meeting with Phillipa Haxton (Scottish Government) to discuss progress of linkage between Scottish Offenders Index and Scottish Longitudinal Study application to Police Scotland
Year(s) Of Engagement Activity 2017
 
Description Engagement with National Crime Agency and Police Scotland 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Meeting with Stuart Weatherley (National Crime Agency) and Ian Spence (Police Scotland) to discuss linkage between NCA and PS data
Year(s) Of Engagement Activity 2017
 
Description Engagement with Police Scotland and Scottish Fire and Rescue Service 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact This is ongoing activity which is working towards encouraging Police Scotland and SFRS to share their data with ADRC-Scotland for a range of projects to be developed (particularly one on demand amongst blue light services).
Year(s) Of Engagement Activity 2016
 
Description Engagement with Swansea University, Archaeology 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Potential reuse of our geocoding outputs
Year(s) Of Engagement Activity 2016
 
Description Engagement with the Scottish Government's Building Safer Communities Programme Board 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact This is an ongoing activity that has involved multiple meetings, rather than one activity. Involvement in overseeing and providing strategic input to the development of safer communities planning in Scotland, including promoting opportunities to use linked data to build an evidence base. Work is progressing and it is expected to be developing some projects in this area in 2017.
Year(s) Of Engagement Activity 2016
 
Description Engaging People for Innovation and Impact 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Empowering Innovation Conference. Involving patients in design of new digital technologies. Building european networks and impacting on developers in industry.
Year(s) Of Engagement Activity 2014
URL http://sundhedsinnovationsjaelland.dk/content/conference-empowering-innovation
 
Description Ethical Analytics: Opportunity or Oxymoron? 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact High Performance Computing & Big Data 2018
Year(s) Of Engagement Activity 2018
 
Description Ethics and Opportunities of Big Data 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Two day workshop with senior researchers focusing on central and local government data. Examining the opportunities, risk and ethics of government data. Opportunities and Ethics of Big Data report produced by RSS. Proposals taken forward by the Science and Technology Select Committee.
Year(s) Of Engagement Activity 2015
 
Description Evaluating Data Linkage: Creating longitudinal synthetic data to provide a gold-standard linked dataset (Isaac Newton Institute, Cambridge) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact Communicating the concepts and challenges in generating realistic synthetic population-level data.
Year(s) Of Engagement Activity 2016
URL https://digitisingscotland.cs.st-andrews.ac.uk/presentations.html
 
Description Explorathon 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact publicized the Aberdeen birth cohorts, interacted with a broad cross section of the public
Year(s) Of Engagement Activity 2015
URL http://www.explorathon.co.uk/
 
Description Explorathon 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Publicized the Aberdeen birth cohorts, interacted with a broad cross section of the public.
Year(s) Of Engagement Activity 2015
 
Description Explorathon 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact publicised the ADRC-S, interacted with a broad cross section of the public
Year(s) Of Engagement Activity 2015
 
Description Explorathon at the National Museum of Scotland 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other audiences
Results and Impact Links with public engagement practitioners and some public members with an interest in ADRC-S research
Year(s) Of Engagement Activity 2015
 
Description Exploring Ear'oles Education: An investigation of the school-level educational outcomes of 'working class' pupils in contemporary Scotland 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Audience developed knowledge of techniques to be used when analysing administrative data
Year(s) Of Engagement Activity 2016
 
Description Exploring application of predictive analytics to improve policy outcomes in Scotland workshop 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Knowledge dissemination ADRC-S exposure. Further government projects coming to the ADRC-S.
Year(s) Of Engagement Activity 2015
 
Description Exploring patterns of subject specific performance in school attainment in Scotland 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Presentation at seminar at Edinburgh Napier University.
Year(s) Of Engagement Activity 2015
 
Description FARR presentation at NHS-HE forum 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Better partnership working with NHS and academia
Year(s) Of Engagement Activity 2015
 
Description Facebook community 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact created Facebook community for Aberdeen birth cohorts study group
Year(s) Of Engagement Activity 2015
 
Description Facilitating access to administrative records with synthetic data (Dealing with Data 2017 Conference, University of Edinburgh) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Communicating the concept and advantages of synthetic data as a disclosure control method facilitating access to sensitive data.
Year(s) Of Engagement Activity 2017
URL https://www.ed.ac.uk/information-services/research-support/research-data-service/dealing-with-data-2...
 
Description Fake Drugs, Data Grabs & Bot Sharks: Innovation, Ethics & Global Health Governance 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Media (as a channel to the public)
Results and Impact Interview with Frank Pasquale & Nic Terry for The Week in Health Law (Harvard). This popular podcast series is broadcast internationally and focuses on emerging issues at the intersection between health, technology and the law. The interview covered several eHealth and health data science in which ethical issues are raised, both in terms of privacy risks and positive opportunities for transparency and accountability.
Year(s) Of Engagement Activity 2017
URL http://blogs.harvard.edu/billofhealth/.../claudia-pagliari-on-the-week-in-health-law-podcast/
 
Description Festival of Social Science event on learning to use crime and justice data using R 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Schools
Results and Impact Impact was an increased awareness by and use of administrative and survey data on crime and justice by school children doing Advanced higher Modern Studies. Follow up events will be happening in 2017.
Year(s) Of Engagement Activity 2016
 
Description Findr: Data Fair and Collaborator Speed-Dating Event 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Presentation on WP5 work in extracting intelligence from historic maps
Year(s) Of Engagement Activity 2017
 
Description First meeting of the Aberdeen Children of the 1950s participants panel 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Study participants or study members
Results and Impact outreach to participants in the study, opportunity for participants to provide feedback on the study, revised large public engagement event per participants' suggestions.
Year(s) Of Engagement Activity 2006,2015
 
Description Fortnightly Public Engagement Drop In Sessions 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Upskilling of researchers from FARR and ADRC-S in expertise involved in research applications.
Year(s) Of Engagement Activity 2015
 
Description Frontier Event on Poverty (with focus on child poverty) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact A seminar that brought together different stakeholders whom would be involved in the development of a dataset that would enable policy relevant data to be linked and analysed to enable informed government decision making.
Year(s) Of Engagement Activity 2017
 
Description Frontier event on employablity 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact A seminar that brought together different stakeholders whom would be involved in the development of a dataset that would enable policy relevant data to be linked and analysed to enable informed government decision making.
Year(s) Of Engagement Activity 2017
 
Description Frontiers of Research on Urban Informatics 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Demonstrated the breadth of Big Data and the importance of linked administrative data
Year(s) Of Engagement Activity 2015
 
Description Generating synthetic data in R 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Introduction to practical issues of generating and analysing synthetic data using freely available synthpop package for R.

Use of the synthpop software for producing synthetic data by the workshop participants; request for further workshops
Year(s) Of Engagement Activity 2016
URL https://www.eventbrite.com/e/generating-synthetic-data-in-r-one-day-workshop-registration-2216905825...
 
Description Generating synthetic microdata to widen access to sensitive data sets (Nowok, B, Raab, G & Dibben, C; Scottish Government Assistant Statisticians Meeting) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact To showcase the methodology "Generating synthetic microdata to widen access to sensitive data sets". Presentation at the Scottish Government Assistant Statisticians Meeting - Quantitative methods; Edinburgh, Victoria Quay, 26 June 2014.

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Year(s) Of Engagement Activity 2014
URL http://calls.ac.uk/output-entry/generating-synthetic-microdata-to-widen-access-to-sensitive-data-set...
 
Description Generating synthetic microdata to widen access to sensitive data sets (Product Forge Synthetic Health Data Workshop) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Exchange of knowledge and experience with dealing with synthetic data.
Year(s) Of Engagement Activity 2017
URL https://ti.to/productforge/synthetic-health-data-workshop/en
 
Description Generating synthetic microdata to widen access to sensitive data sets (School of Economics, University of Edinburgh) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other audiences
Results and Impact Raised awareness and interest in methods and software (R package synthpop) for producing synthetic data, which are developed in the ADRC-S.
Year(s) Of Engagement Activity 2016
 
Description Gentle re-introduction to Statistical Concepts & Tests for Administrative Data Research 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Audience developed knowledge of techniques to be used when analysing administrative data
Year(s) Of Engagement Activity 2015
 
Description Gentle re-introduction to Statistical Concepts & Tests for Administrative Data Research 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Audience developed knowledge of techniques to be used when analysing administrative data
Year(s) Of Engagement Activity 2016
 
Description Global Health in the Digital Age - the power of data and communications for managing infectious, communicable and complex diseases 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Understanding how ICT can help patients in low income countries. Awareness raising in infectious disease community.
Year(s) Of Engagement Activity 2014
 
Description Global Health in the Digital Age - the power of data and communications for managing infectious, communicable and complex diseases (video) 
Form Of Engagement Activity A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Understanding how ICT can help patients in low income countries. Awareness raising in infectious disease community.
Year(s) Of Engagement Activity 2014
URL https://www.youtube.com/watch?v=Aw7zGKMaLkg
 
Description Health and Behaviours meeting 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Knowledge dissemination ADRC-S exposure
Year(s) Of Engagement Activity 2015
URL https://www.york.ac.uk/media/healthsciences/documents/research/public-health/env&healthbehaviours4No...
 
Description Health, Medicine and the Crowd: A Helicopter View 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Presentation and seminar with crowd sourcing and citizen science network. Strengthening interdisciplinary dialogue, collaboration and theory.
Year(s) Of Engagement Activity 2015
 
Description Healthcare corruption taken to task by technology 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Media (as a channel to the public)
Results and Impact One of several press articles drawing attention to a study by Pagliari and colleagues for USAID, analysing the uses of digital technologies and data for 'good governance' in developing country health systems. The research article was published in the Journal of Global Health.
Year(s) Of Engagement Activity 2016
URL http://news.utradeph.com/719/642622/Healthcare-corruption-taken-to-task-by-technology
 
Description Heriot-Watt Computer Science 50th Anniversary Celebrations Open Day 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Increased awareness of ADRN and ADRC-Scotland
Year(s) Of Engagement Activity 2016
 
Description Housing Data Linkage Meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Explore opportunities to link health and housing data, leading to future projects. Agreement to organise a workshop later in the year to take forward collaboration, with the support of the SFHA.
Year(s) Of Engagement Activity 2016
 
Description Housing work stream 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact scoping the possibilities for houisng data linkage
Year(s) Of Engagement Activity 2015
 
Description Housing work stream meta data disucssions 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact identifying data sources that can be linked and those that are dififcult t o access
Year(s) Of Engagement Activity 2015
 
Description ISPCAN Conference (The Hague) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact ISPCAN Conference (The Hague)
Year(s) Of Engagement Activity 2018
 
Description Impacts of Patient Access to Health Records 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact European industry and policy engagement around benefits of granting access to their records. Dissemination of our research and informing european industry
Year(s) Of Engagement Activity 2015
 
Description Incomes - Meeting with DWP on benefits data 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Furthered discussions for access to DWP data for ADRN project
Year(s) Of Engagement Activity 2012,2015
 
Description Informal Care - Meeting with Care Inspectorate 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Information ascertained as to data collected by Care Inspectorate and potential to utilise that information
Year(s) Of Engagement Activity 2014
 
Description Informal Care - Meeting with Marie Curie nurse 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Information was ascertained on anticipatory drugs used in end of life care, potentially useful in the care in the last days of life study.
Year(s) Of Engagement Activity 2015
 
Description Informal Care - Meeting with Scottish Government health and social care integration team 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Information ascertained as to plans for a single health and social care dataset being developed on behalf of the Scottish Government's integration team. Future collaboration set in motion that will involved ADRC-S drawing on data, and raising its profile to researchers.
Year(s) Of Engagement Activity 2015
 
Description Informal Care - Meetings held with Scottish Government analysts 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Policymakers/politicians
Results and Impact The end result was a proposal to use census and other linked data to understand household structure and place of death
Year(s) Of Engagement Activity 2014
 
Description Informal Care - Meetings with Lothian health and social care data team 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Awareness raised as to data collected by local authority on their social care provision. We ascertained the willingness of the data holders to share data if possible, and a plan developed to enable access.
Year(s) Of Engagement Activity 2015
 
Description Informal care - Meeting with data users and data providers 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Information ascertained as to the barriers facing those who collect data and those who use, or wish to use, that data in research. A paper providing an overview of the day was published (see outputs section)
Year(s) Of Engagement Activity 2014
URL http://bjsw.oxfordjournals.org/content/early/2015/06/01/bjsw.bcv047.full.pdf+html
 
Description Informal meetings with SG statistics team about possible linkiing of CLAS/SCRA data. 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Informal meetings with SG statistics team about possible linkiing of CLAS/SCRA data.
Year(s) Of Engagement Activity 2018
 
Description Initial results from clustering (bundling) birth records 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Digitising Scotland workshop
Year(s) Of Engagement Activity 2017
 
Description Innovating eHealth: Issues for Globalisation and Culture 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Examining the use and potential of ehealth for low income countries. Interdisciplinary audience to inform other research and policy dialogues. European networking.
Year(s) Of Engagement Activity 2014
 
Description Input to new Scottish video on data use in health and research 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Input expertise on how to communicate data use in research to general public into new Scottish video on the use of health data and research
Year(s) Of Engagement Activity 2017
URL https://www.alliance-scotland.org.uk/blog/news/watch-and-share-our-new-explainer-film-on-healthcare-...
 
Description Integrating Health and Social Care: Ethical and Societal Challenges 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Examining risks and outcomes of multiple data environments and data convergance
Year(s) Of Engagement Activity 2015
 
Description International Consensus statement workshop on the use of Health Data 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact International consensus statement held with international experts to create a consensus statement on public engagement in data linkage in health research
Year(s) Of Engagement Activity 2017
 
Description Investigating educational and developmental outcomes using linked administrative data.' Official Opening of Farr Institute Scotland and ADRC-S 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Audience introduced to context of administrative data
Year(s) Of Engagement Activity 2016
 
Description Investigating parental socioeconomic position, in utero growth and risk of child development disorders using linked administrative data 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Investigating parental socioeconomic position, in utero growth and risk of child development disorders using linked administrative data.' Administrative Data Research Network Annual Conference, London.

Audience developed knowledge of techniques to be used when analysing administrative data
Year(s) Of Engagement Activity 2016
 
Description Is the Paper Just a Palimpsest? An appeal for reproducible social stratification research 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Is the Paper Just a Palimpsest? An appeal for reproducible social stratification research, Social Stratification Research Seminar, Cambridge.

Audience developed knowledge of techniques to be used when analysing administrative data
Year(s) Of Engagement Activity 2016
 
Description Joint ADRC-S / SCCJR Engagement Event 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact A proposal is being developed for a joint research project between ADRC-S and the National Crime Agency.
Year(s) Of Engagement Activity 2015
 
Description Knowledge Exchange meeting, University of Edinburgh 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Better partnership working with NHS and academia
Year(s) Of Engagement Activity 2015
 
Description Liason with European Pleadies project 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact lead to exchange of software and advice on technical aspects of the work
Year(s) Of Engagement Activity 2014,2015
 
Description Linking and using health and social care data in Scotland: charting a way forward 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact A group of academics, policy makers and data custodians came together to discuss their work and the challenges that they are experiencing with regards to moving forward the use of administrative data in health / social care research.

A raised awareness of the challenges of utilising health / social care data for research. Networks developed for future meetings on the subject.
Year(s) Of Engagement Activity 2014
URL http://adrn.ac.uk/media/119073/HSC-meeting-report-final-280714.pdf
 
Description Linking and using health and social care data in Scotland: charting a way forward 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact A group of academics, policy makers and data custodians came together to discuss their work and the challenges that they are experiencing with regards to moving forward the use of administrative data in health / social care research. A raised awareness of the challenges of utilising health / social care data for research. Networks developed for future meetings on the subject.
Year(s) Of Engagement Activity 2014
 
Description MRC-HSCIC joint technical meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Shaping HSCIC ways of holding and provisioning data to researchers
Year(s) Of Engagement Activity 2015
 
Description Masterclass: Methods to Identify Causal Effects - Sascha Becker 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Audience developed knowledge of techniques to be used when analysing administrative data
Year(s) Of Engagement Activity 2015
 
Description Measures of utility for synthetic data (Data linkage and anonymisation seminar, Cambridge) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Discussion on the state of the art of measuring synthetic data utility.
Year(s) Of Engagement Activity 2016
URL http://www.newton.ac.uk/seminar/20161103153016302
 
Description Meeting and followup discussions with Landmark Information Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Access to evaluation data and potential discounted access for academic researchers nationally. Subsequent approach to Jisc Collections by LIG and to ESRC. opportunity to license data for all UK HFE sector at discounted rate.
Year(s) Of Engagement Activity 2015
 
Description Meeting with Andy Williams at HSCIC 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Shaping HSCIC ways of holding and provisioning data to researchers
Year(s) Of Engagement Activity 2016
 
Description Meeting with Cardiff Historic map interest group 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact presentation outline of deriving data from historic map resources
Year(s) Of Engagement Activity 2017
 
Description Meeting with Cash for Kids 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Third sector organisations
Results and Impact Meeting with Debbie Fraser and Nicola Norrie (CfK) to discuss linkage of CfK data
Year(s) Of Engagement Activity 2017
 
Description Meeting with DWP regarding research on sanctions (26/5) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Meeting with analytical staff to discuss mutual interests in research on the impacts of sanctions, and explore possible collaboration
Year(s) Of Engagement Activity 2017
 
Description Meeting with Informatics machine learning student 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Postgraduate students
Results and Impact Meeting with Informatics machine learning student
Year(s) Of Engagement Activity 2016
 
Description Meeting with Methods Analytics to discuss NHS data access 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Stronger relationships with industry
Year(s) Of Engagement Activity 2015
 
Description Meeting with National Audit Office about benefit sanctions work 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Discussions about data quality from their experience working on DWP data. Better understanding for research team of possibilities
Year(s) Of Engagement Activity 2016
 
Description Meeting with National Library of Scotland Head of Map Curation 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact mediated access to full large scale NLS map corpus as primary research data for the technical work being undertaken
Year(s) Of Engagement Activity 2015
 
Description Meeting with Prof Van Delden Medical Ethics professor looking to develop Public Engagement in the Netherlands 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Prof. Van Delden was looking for expertise and advice on how to progress public engagement in research in the Netherlands and sought our expertise in the area of public engagement in data linkagev
Year(s) Of Engagement Activity 2017
 
Description Meeting with Scot Govt about Social Care Survey data and possibilities for linkage to health and other data 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Discussions about details of linkage established by Scottish Government.
Year(s) Of Engagement Activity 2016
 
Description Meeting with Scot Govt employment and health team on evaluation of single gatefway 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Meeting at invitation of SG to provide expert advice on evaluation of health intervention to support employment retention.
Year(s) Of Engagement Activity 2017
 
Description Meeting with ScotXed (Scottish Government) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Meeting with Albert King and Celia MacInyre to discuss progress of Looked After Children analysis and negotiate extract of linked data for second part of of project.
Year(s) Of Engagement Activity 2017
 
Description Meeting with Scottish Children's Reporter Administration 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Meeting with Donald Lamb and Gillian Henderson (SCRA) to discuss linkage of SCRA data
Year(s) Of Engagement Activity 2017
 
Description Meeting with Scottish Government and others working in palliative care 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact A seminar that brought together people who have input into palliative care. Initial findings from the 'Care in the last days of life' study were presented and discussion generated as to future directions.
Year(s) Of Engagement Activity 2017
 
Description Meeting with Scottish Government data analysts (1) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Clearer understanding of ongoing work in informal care using administrative data. Links made between Scottish Government analysts and ADRC members.
Year(s) Of Engagement Activity 2014
 
Description Meeting with Scottish Government data analysts (1) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Clearer understanding of ongoing work in informal care using administrative data.

Links made between Scottish Government analysts and ADRC members.
Year(s) Of Engagement Activity 2014
 
Description Meeting with Scottish Government data analysts (2) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact This was the second working group meeting on using administrative data for informal care research. The meeting gave greater policy focus to the exemplar study. Development of greater networks and relevance to national policy.
Year(s) Of Engagement Activity 2014
 
Description Meeting with Scottish Government data analysts (2) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact This was the second working group meeting on using administrative data for informal care research. The meeting gave greater policy focus to the exemplar study.

Development of greater networks and relevance to national policy.
Year(s) Of Engagement Activity 2014
 
Description Meeting with Scottish Government officials, University of Glasgow, 25.05.2017 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact The meeting was organised to discuss analytical needs and possible synergies with Scottish Government in relation to forthcoming schemes of 'Single Health and Work Gateway' and 'Fair Start Scotland'
Year(s) Of Engagement Activity 2017
 
Description Meeting with Scottish Government to discuss potential new data linkage opportunities 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Proposals for data linkage involving the SCJS are now being considered by Scottish Government. further meetings are to take place.
Year(s) Of Engagement Activity 2015
 
Description Meeting with Scottish Sensory Centre to discuss data linkage 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Meeting with Scottish Sensory Centre to discuss data linkage
Year(s) Of Engagement Activity 2015
 
Description Meeting with Wellcome Trust understanding patient data to offer expertise and guidance on explaining data linkage and TTP to public audiences 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact The Understanding patient data (UPD) team at the Wellcome Trust are developing videos for the public and wanted to know how we explain data linkage and TTP to public panels and audiences
Year(s) Of Engagement Activity 2017
 
Description Meeting with West Lothian Council about data sharing 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact Awareness of ADRC-S and in principle agreement to work with us
Year(s) Of Engagement Activity 2015
 
Description Meeting with all LA Data Providers ( LASW meeting) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Meeting with all LA Data Providers ( LASW meeting)
Year(s) Of Engagement Activity 2018
 
Description Meeting with digital services manager at City of Edinburgh Council to explore and manage collaborative projects - weekly 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Policymakers/politicians
Results and Impact Ongoing activity to identify opportunities for releasing and analysing Council data, especially as open data, and for collecting new quantitative and qualitative data that contributes to Council policy objectives. Has led to new datasets being published on Council open data portal and to further engagements with different Council departments.
Year(s) Of Engagement Activity 2016
 
Description Meeting with the Bean Review team 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Potentially impacting on review of national statistical system
Year(s) Of Engagement Activity 2016
URL https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/481452/Bean_review__Interi...
 
Description Meeting with the National Crime Agency to develop research proposal. 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact A proposal has been drafted and is due to be discussed with NCA before submission to the PBPP.
Year(s) Of Engagement Activity 2015
 
Description Meeting with the Office of the Scottish Charity Regulator (OSCR) (10.8.2017) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Discussion with the regulator about making more use of their administrative data, and data sharing.
Year(s) Of Engagement Activity 2017
 
Description Meetings to discuss CLAS assessment for FARR and ADRC Scotland 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Ensuring Scottish National Safe Haven can hold official sensitive data
Year(s) Of Engagement Activity 2015
 
Description Mental Health Data Science group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Future grant applications
Year(s) Of Engagement Activity 2015
 
Description Ministerial Pharma Forum 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Bettter partnership working between industry, NHS and academia and achieving better safety in medicines
Year(s) Of Engagement Activity 2016
 
Description Myths and Realities of Public Sector Information Governance - Moving Beyond a Culture of Caution to a Culture of Confidence 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Provided a 'legal myth-busting' talk and unpicked some common misconceptions around data protection law within the research setting.
Year(s) Of Engagement Activity 2016
 
Description NHS Benefits Realisation Taskforce meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Leading to changes in NHS practice
Year(s) Of Engagement Activity 2015
 
Description NHS Digital Academy; Realising the Vision 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Health Informatics Society of Ireland
Year(s) Of Engagement Activity 2017
 
Description NHS Research Scotland Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Wider awareness in NHS of use of routine data for research purposes
Year(s) Of Engagement Activity 2015
 
Description National Clinical Imaging dataset meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Development of a new research resource covering Scottish Population to 2010
Year(s) Of Engagement Activity 2015
 
Description National Research Council of Spain and Statistical Institute of Andalusia visit / presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact This has led to further collaboration between the Institute and the ADRC. There are ongoing discussions about sharing technologies, in particular synthpop and eDATAshield with the institute. And helped with the Institute being a partner on a recently awarded horizon 2020 ITN award. Supported collaboration on the recent horizon 2020 ITN award.
Year(s) Of Engagement Activity 2015
 
Description Online participant survey 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Outreach to participants in the study, opportunity for participants to provide feedback on the study
Year(s) Of Engagement Activity 2015
 
Description Open Knowledge Edinburgh Meet-up (3) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Ongoing activity to build a cross-sector community around the use of open data and open knowledge approaches. Events are hosted by partners: National Library of Scotland, Codebase, City of Edinburgh Central Library
Year(s) Of Engagement Activity 2016
 
Description Over the counter genetic tests raise human rights concerns 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Media (as a channel to the public)
Results and Impact Article in The Ferret magazine based on an analysis by Pagliari & Hall on misleading advertising and lack of transparency in direct to consumer genetic tests. The research was presented at the European Human Genetics Association conference in 2016 (marketing paper) and in the European Journal of Human Genetics in 2017 (analysis of compliance with the Human Genetics Commission's ethical guidelines). Dr Pagliari was interviewed for the report.
Year(s) Of Engagement Activity 2016
 
Description Paper presented to ADRN Conference, Belfast 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Patients, carers and/or patient groups
Results and Impact Ideas regarding analysis of dataset being developed for "Care in the last days of life" study developed.
Year(s) Of Engagement Activity 2015
 
Description Parental socioeconomic influences on filial educational attainment - An investigation of Scottish young people and patterns of school level educational performance 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presentation at International Conference.
Year(s) Of Engagement Activity 2015
 
Description Participant Newsletter 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact outreach to participants in the study, opportunity for participants to provide feedback on the study
Year(s) Of Engagement Activity 2015
 
Description Participant Reunion 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Outreach to participants in the study, opportunity for participants to provide feedback on the study
Year(s) Of Engagement Activity 2016
 
Description Participant newsletter 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Outreach to participants in the study, opportunity for participants to provide feedback on the study
Year(s) Of Engagement Activity 2015
 
Description Participant panel 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Study participants or study members
Results and Impact outreach to participants in the study, opportunity for participants to provide feedback on the study, revised large public engagement event per participants' suggestions
Year(s) Of Engagement Activity 2015
 
Description Participated in Third Sector Research Forum meeting (5.10.2017) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Third sector organisations
Results and Impact Participation in the Scottish Third Sector Research Forum meeting talking about using administrative data and collaborating with academics
Year(s) Of Engagement Activity 2017
 
Description Participation in Life in Data KE1.5: Mapping Data Literacy WOrkshop (27.4.2017) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Discussion about definitions and measurements of data literacy for practitioners working with data as part of the RSE Life in Data Research Network
Year(s) Of Engagement Activity 2017
 
Description Patient Level Costing Data Meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Develop understanding of PLICS methodology, and how the data might be incorporated into existing projects. Agreement to support an application to access PLICs data, and to feedback into its further development
Year(s) Of Engagement Activity 2015
 
Description Patients, Prescribing and Personalised Pharmacy: Innovations and Opportunities 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Presentation focused on understanding latest mobile innovations in engaging patients and citizens in research.
Year(s) Of Engagement Activity 2015
 
Description Peter Christen (Australian National University): Recent Advances in Record Linkage 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Audience developed knowledge of techniques to be used when analysing administrative data
Year(s) Of Engagement Activity 2015
 
Description Place of Death in Scotland - Trends and factors: A Census-based data linkage study 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Poster outlining key aspects addressed by research project, which was supplemented by most recent statistics that came out only a week prior.

Audience members from palliative care sector confirmed the need for more research on the questions addressed by research project.
Year(s) Of Engagement Activity 2016
 
Description Podcast on genalogical linkage 
Form Of Engagement Activity A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Communicating the concepts and challenges in linking genealogical data.
Year(s) Of Engagement Activity 2016
URL http://compucast.io/?podcast=all-in-the-family
 
Description Population and Migration Statistics 2015 conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Knowledge dissemination ADRC-S exposure
Year(s) Of Engagement Activity 2015
URL https://www.eventbrite.co.uk/e/pams-2015-conference-tickets-18882734768
 
Description Practical experience of making synthetic data sets from administrative data (ADRN Research Conference) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Raised awareness and interest in methods and software (R package synthpop) for producing synthetic data, which are developed in the ADRC-S.
Year(s) Of Engagement Activity 2016
URL https://adrn.ac.uk/news-training/news-events/newsitem/?newsid=4466
 
Description Practical experience of providing useful bespoke synthetic data (Privacy in Statistical Databases Conference 2016) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Raised awareness and interest in methods and software (R package synthpop) for producing synthetic data, which are developed in the ADRC-S.
Year(s) Of Engagement Activity 2016
URL http://unescoprivacychair.urv.cat/psd2016/index.php?m=program
 
Description Predictive Analytics - Meeting organised by Scottish Government, The Data Lab, Edinburgh, 29.06.2016 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact The expert meeting was organised by Scottish Government in order to explore the potential for innovative use of data to support people at risk of falling into long-term unemployment due to ill health or disability
Year(s) Of Engagement Activity 2016
 
Description Predictive Analytics Event 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Led to broad consideration of the use of administrative data to support lifetime costing and predictive analysis. A project is now looking at using the ADRC-S for a longitudinal analysis of supporting who are sick re-engage with the labour market.
Year(s) Of Engagement Activity 2015
 
Description Predictive analytics for Government 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Raising awareness among government staff for predictive analytics for administrative data and ethical issues associated with this.
Year(s) Of Engagement Activity 2015
 
Description Presentation 'A description of the population in need of palliative care' at Holyrood Policy conference 07.02.2018 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Presented some findings from our research project and joined in wider discussion.
Year(s) Of Engagement Activity 2018
 
Description Presentation about ADRC and Synthetic Data to Data Science Students from Edinburgh Napier University (22.11.2017) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Postgraduate students
Results and Impact Presentation about working with administrative data an synthetic data to ca. 20 data science students.
Year(s) Of Engagement Activity 2017
 
Description Presentation about visualising administrative data for charities (17.10.2017) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Postgraduate students
Results and Impact Presentation about data visualisation for charities working with administrative data
Year(s) Of Engagement Activity 2017
 
Description Presentation about working with Census data (1.12.2017) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Postgraduate students
Results and Impact Presentation about working with administrative data an synthetic data to ca. 20 academics.
Year(s) Of Engagement Activity 2017
 
Description Presentation at ADRC-S retreat 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Demonstrating the use of administrative dataset linkage to create new cohorts and the new research that can arise from this
Year(s) Of Engagement Activity 2016
 
Description Presentation at CLOSER workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact CLOSER regularly runs events and training workshops for a wide range of audiences, including new and experienced data users, policymakers and the third sector.
Year(s) Of Engagement Activity 2017
 
Description Presentation at Data Linkage Scotland Showcase 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Demonstrating the use of administrative dataset linkage to create new cohorts and the new research that can arise from this
Year(s) Of Engagement Activity 2016
 
Description Presentation at Data Linkage Scotland Showcase, Glasgow 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Communicating the concepts and challenges in linking publicly available data.
Year(s) Of Engagement Activity 2016
 
Description Presentation at European Sociological Association in Athens September 2017 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Presentation at European Sociological Association in Athens September 2017
Year(s) Of Engagement Activity 2017
 
Description Presentation at Explorathon (European Researchers' Night), St Andrews 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact Communicating the concepts and challenges in linking publicly available data.
Year(s) Of Engagement Activity 2016
URL http://www.explorathon.co.uk/standrews
 
Description Presentation at Farr Institute Conference - April 2017 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Presentation at Farr Institute Conference - April 2017
Year(s) Of Engagement Activity 2017
 
Description Presentation at Qualitative Research Conference in Quebec - October 2017 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Presented how we undertake qualitative work with publics which influences the broad data research we undertake - much interest from Canadian and Australian colleagues
Year(s) Of Engagement Activity 2017
 
Description Presentation at SICSA Data Science theme launch event 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Raised awareness of the ADRC-S and the challenges in linking data
Year(s) Of Engagement Activity 2014
URL http://workshops.inf.ed.ac.uk/datascience/launch/
 
Description Presentation at Scottish Government for Revisiting Child Protection Knowledge Exchange project 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Publicised potential of Administrative Data and the SDRC-Scotland in relation to child protection
Year(s) Of Engagement Activity 2016
URL http://www.socialwork.ed.ac.uk/research/grants_and_projects/current_projects/revisiting_child_protec...
 
Description Presentation at University Eichstatt, Germany 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Undergraduate students
Results and Impact Discussion of the value and potential of using linked data in social science reseearch
Year(s) Of Engagement Activity 2016
 
Description Presentation of Research Project 'Care at the end of life' at ESRC Social Science Festival (9.11.2017) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact This was an evening event with ca. 25 attendees from the general public and academia during which four research projects were presented and the audience engaged in a lively discussion of the public benefit of our research.
Year(s) Of Engagement Activity 2017
 
Description Presentation on 'Youth Transitions and desistance from crime' to Chilean policymakers and Ministers 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Potential for development of a Global Challenges Research Fund application looking at youth justice transitions using administrative data from multiple latin American countries.
Year(s) Of Engagement Activity 2016
URL http://justiciaadolescente.unicef.cl/programa/programa-seminario-eng.pdf
 
Description Presentation on Databases for the SICSA environmental and social sciences theme 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Raised awareness of the ADRC-S and data linkage
Year(s) Of Engagement Activity 2015
URL http://www.sicsa.ac.uk/events/sicsa-ma-databases-environmental-social-sciences/
 
Description Presentation on the influence of recent employment history on poverty risks, Social Policy Association Conference, Durham, 10-12 July 2017 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Raised awareness and interest through a presentation demonstrating how linked administrative and survey data can be used to investigate the influence of recent employment history on poverty risks.
Year(s) Of Engagement Activity 2017
URL https://www.dur.ac.uk/sociology/2017-spa-conference/
 
Description Presentation on using linked survey and administrative data, ADRC-S/SLS training course, Edinburgh, 01.12.2017 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Postgraduate students
Results and Impact Presentation on using linked survey and administrative data to approximately 20 academics
Year(s) Of Engagement Activity 2017
 
Description Presentation on using longitudinal linked administrative data to identify poverty risks and social need, SLLS Conference, Stirling, 11-13 Oct 2017 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Raised awareness and interest through a presentation demonstrating how linked administrative and survey data can be used to investigate the influence of recent employment history on poverty risks.
Year(s) Of Engagement Activity 2017
URL https://www.slls.org.uk/conf
 
Description Presentation on using longitudinal linked administrative data to identify social need, ADRN Conference, Edinburgh, 1-2 June 2017 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Raised awareness and interest through a presentation demonstrating the research potential of linked administrative and survey data to study poverty risks
Year(s) Of Engagement Activity 2017
URL https://www.youtube.com/watch?v=fRbo33SHBZw
 
Description Presentation titled 'Examining the causal relationship between educational experience and criminal conviction using linked data' 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact This talk was the basis of work that we are planning to conduct using SOI data. There have been some delays in accessing these data, but several projects are now being developed.
Year(s) Of Engagement Activity 2016
 
Description Presentation to ADRC Wales: alcohol and population health workshop 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Presenting results of linked maternity and health records: alcohol
Year(s) Of Engagement Activity 2017
 
Description Presentation to Australian Institute of Health and Welfare, Canberra 13/6 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Presentation on work of ADRN and UBDC to staff at AIHW. Meeting with various teams working with admin dataset.
Year(s) Of Engagement Activity 2017
 
Description Presentation to CCACE Cognitive Ageing Journal Club 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Presenting proposed data linkage projects using the SMS1947, and demonstrating the use of administrative dataset linkage to historical cohorts
Year(s) Of Engagement Activity 2016
 
Description Presentation to CCACE Cognitive Ageing Journal Club 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other audiences
Results and Impact Presenting results from SMS-SLS data linkage project and demonstrating the use of administrative dataset linkage to historical cohorts
Year(s) Of Engagement Activity 2016
 
Description Presentation to CLOSER group in London 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Presenting results of cohort enhancement (environmental data) using historical maps
Year(s) Of Engagement Activity 2016
 
Description Presentation to Group Research Inequalities & Tobacco 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Presenting results of linked maternity and health records
Year(s) Of Engagement Activity 2017
 
Description Presentation to SLS Research Group Meeting 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Presenting results from SMS-SLS data linkage project and demonstrating the use of administrative dataset linkage to historical cohorts
Year(s) Of Engagement Activity 2016
 
Description Presentation to SLS Research Group Meeting 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Presenting proposed data linkage projects using the SMS1947, and demonstrating the use of administrative dataset linkage to historical cohorts
Year(s) Of Engagement Activity 2017
 
Description Presentation to Scottish Government employees and subsequent discussion (21.09.2017) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Policymakers/politicians
Results and Impact A meeting with ca. 10 Scottish government employees whose departments may have interest in our work, at St. Andrews House, Edinburgh.
Year(s) Of Engagement Activity 2017
 
Description Presentation to the BIOSS Annual Conference on 'Data linkage using crime data' 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Potential interest in projects arising from BIOSS related work.
Year(s) Of Engagement Activity 2016
 
Description Presentation to the Carstairs State Hospital Journal Club 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact No direct impacts, although significant interest in the use of administrative datasets and how these could be linked to study mentally disordered offenders. Possibility of further research projects.
Year(s) Of Engagement Activity 2016
 
Description Presentation to the Data Resources and Training Network 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact The primary purpose of the event was to encourage relatively new PhD supervisors to consider different ways of encouraging students to use quantitative data.
Year(s) Of Engagement Activity 2016
 
Description Presentation to the Scottish Association for the Study of Offending 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Raised considerable interest in the availability and possibilities of data linkage using crime and justice datasets. Changed attitudes towards the usage of administrative data for research purposes.
Year(s) Of Engagement Activity 2015
 
Description Presenting results from SMS-SLS data linkage project and demonstrating the use of administrative dataset linkage to historical cohorts 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Presenting results of cohort enhancement (environmental data) using historical maps
Year(s) Of Engagement Activity 2016
 
Description Presention at SICSA DEMOfest, Glasgow 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Communicating the concepts and challenges in linking publicly available data.
Year(s) Of Engagement Activity 2016
URL http://www.sicsa.ac.uk/knowledge-exchange/industry-collaboration/demofest/
 
Description Probability and Statistics Day at UMBC (The University of Maryland, Baltimore County), MD, USA 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Invited speaker presenting our new statistical approach for synthetic data
Year(s) Of Engagement Activity 2017
URL http://www.umbc.edu/circ/hosting/ProbStatDay2017/
 
Description Public Benefit and Impact workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Raising the issue of public benefit and how it can be articulated in approvals panel applications
Year(s) Of Engagement Activity 2015
 
Description Public Engagement Training Workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Have a greater understanding of how to include public engagement in their roles
Year(s) Of Engagement Activity 2016
 
Description Public Engagement in the Health Informatics era 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Writing guidance for researchers completing public engagement; planning FARR/ADRN public engagement
Year(s) Of Engagement Activity 2016
 
Description Public Engagement in the Health Informatics era 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact writing guidance for researchers completing public engagement; planning FARR/ADRN public engagement
Year(s) Of Engagement Activity 2015
 
Description Public Engagement with the Aberdeen Children of the 1950s cohort 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Part of expert panel to discuss attitudes towards data sharing and knowledge and understanding of use of their data. Raised awareness and interest in research of their data.
Year(s) Of Engagement Activity 2016
 
Description Public Health and Social Machines 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Raising awareness amongst computer scientists of the data landscape around patient records and the use of innovative mobile tools to inform research on social machines
Year(s) Of Engagement Activity 2015
 
Description Public Panel meeting on census 2021 with National Records Scotland 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Public panel meeting with National Records of Scotland about planning for census 2021 and the development of an administrative census in Scotland to project demographics
Year(s) Of Engagement Activity 2017
 
Description Public Panel meeting on sample of census and 'blue lights' project planning 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact Public panel meeting on 2 key topics - 'blue lights' planning and census sampling which has made key recommendations about how these two projects are taken forward
Year(s) Of Engagement Activity 2017
 
Description Public engagement Meeting with clinical trials research team from NSS 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Meeting to advise NSS clinical trials team looking at incorporating data from records and clinical trials data together, wanted advice on best ways of approaching public engagement
Year(s) Of Engagement Activity 2016
 
Description Published interview on YouTube on legal research 
Form Of Engagement Activity A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Members of the public have a better understanding of the legal issues around sharing administrative data for research
Year(s) Of Engagement Activity 2015
URL https://www.youtube.com/watch?v=9H1wpoAwmZc&feature=youtu.be
 
Description Quantitative research for social work' Seminar Keynote "Using administrative data" 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Researchers in social work both quantitative and qualitative have a better understanding of the uses of administrative data. It is hoped this will lead to greater use of administrative data for social world research.
Year(s) Of Engagement Activity 2015
URL https://www.eventbrite.co.uk/e/quantitative-research-for-social-work-tickets-19167519567
 
Description Recognising real people in synthetic microdata: risk mitigation and impact on utility (Joint UNECE/Eurostat Work Session on Statistical Data Confidentiality 2017) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Exchange of experience and research findings in order to find the best practices in dealing with the technical issues related to statistical data confidentiality.
Year(s) Of Engagement Activity 2017
URL https://statswiki.unece.org/display/SDC2017
 
Description Record Linkage - Introduction, Recent Advances and Privacy Issues 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Dissemination of recent academic developments in the area, raising awareness of key issues in storing, handling and processing sensitive data.
Year(s) Of Engagement Activity 2015
URL http://www.adrn.ac.uk/news-events/upcoming-courses/record-linkage-workshop
 
Description Rediscovering inequalities in school-level educational outcomes: An in-depth investigation of 'working class' pupils in contemporary Scotland. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Audience developed knowledge of techniques to be used when analysing administrative data.
Year(s) Of Engagement Activity 2016
 
Description Roundtable on the National Data Guardian Review on data security and consent 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Strengthening policy recommendations.
Year(s) Of Engagement Activity 2015
 
Description SILC Comms Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Offering expertise and guidance to SILC communications and engagement group, influencing Scottish policy makers
Year(s) Of Engagement Activity 2017
 
Description SILC communications and engagement group (1) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/parliamentarians
Results and Impact The working group discussed development of the Scottish Informatics Linkage Collaboration (SILC) communications and engagement action plan. The plan integrates communications and engagement by all the main public and government organisations involved in data linkage.

A draft website was commissioned and developed. A stakeholder map was produced.
Year(s) Of Engagement Activity 2014
URL http://stasilc.mtcserver12.com/
 
Description SILC communications and engagement group (1) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact The working group discussed development of the Scottish Informatics Linkage Collaboration (SILC) communications and engagement action plan. The plan integrates communications and engagement by all the main public and government organisations involved in data linkage. A draft website was commissioned and developed. A stakeholder map was produced.
Year(s) Of Engagement Activity 2014
URL http://stasilc.mtcserver12.com/
 
Description SILC communications and engagement group (2) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/parliamentarians
Results and Impact A plan was developed for the SILC leadership team to disseminate to member organisations their intent for forward activity.

A clear understanding of the pathway the collaborative might take as it initiates its activities.
Year(s) Of Engagement Activity 2014
 
Description SILC communications and engagement group (2) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact A plan was developed for the SILC leadership team to disseminate to member organisations their intent for forward activity. A clear understanding of the pathway the collaborative might take as it initiates its activities.
Year(s) Of Engagement Activity 2014
 
Description SMS1947 Research Meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Meeting of researchers using SMS1947 data set for linkage studies. All members made short presentations, discussed the challenges of using historical data, and gave advice about the ethics/PBPP application procedure.
Year(s) Of Engagement Activity 2016
 
Description SURE training 13.05.2016 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact SURE training 13.05.2016
Year(s) Of Engagement Activity 2016
 
Description SURE training 13.06.2017 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact SURE training 13.06.2017
Year(s) Of Engagement Activity 2017
URL http://adrc-scotland-sure-training.weebly.com/
 
Description SURE training 13.08.2014 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact SURE training 13.08.2014
Year(s) Of Engagement Activity 2015
 
Description SURE training 13.12.2016 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact SURE training 13.12.2016
Year(s) Of Engagement Activity 2016
URL http://adrc-scotland-sure-training.weebly.com/
 
Description SURE training 18.01.2017 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact SURE training 18.01.2017
Year(s) Of Engagement Activity 2017
URL http://adrc-scotland-sure-training.weebly.com/
 
Description SURE training 23.11.2017 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact SURE training 23.11.2017
Year(s) Of Engagement Activity 2017
URL http://adrc-scotland-sure-training.weebly.com/
 
Description SURE training 25.09.2017 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact SURE training 25.09.2017
Year(s) Of Engagement Activity 2017
URL http://adrc-scotland-sure-training.weebly.com/
 
Description SURE training 28.07.2017 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact SURE training 28.07.2017
Year(s) Of Engagement Activity 2017
URL http://adrc-scotland-sure-training.weebly.com/
 
Description SURE training 28.11.2016 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact SURE training 28.11.2016
Year(s) Of Engagement Activity 2016
 
Description SURE training 30.08.2016 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact SURE training 30.08.2016
Year(s) Of Engagement Activity 2016
 
Description SURE training 6.04.2017 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact SURE training 6.04.2017
Year(s) Of Engagement Activity 2017
URL http://adrc-scotland-sure-training.weebly.com/
 
Description SURE training 8.08.2015 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact SURE training 8.08.2015
Year(s) Of Engagement Activity 2015
 
Description SURE training 9.02.2017 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact SURE training 9.02.2017
Year(s) Of Engagement Activity 2017
URL http://adrc-scotland-sure-training.weebly.com/
 
Description Safe Haven accreditation meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Ensuring security standards are consistent across 4 regional and one national safe haven
Year(s) Of Engagement Activity 2015
 
Description Safe Haven and FARR Institute discussion 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Ensuring safe havens are developed to meet researchers needs.
Year(s) Of Engagement Activity 2015
 
Description SafePod Technical Working Group meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Work and decisions towards creating a network of remote safe settings in the UK.
Year(s) Of Engagement Activity 2015
 
Description SafePod demonstration at the International Health Conference, St Andrews. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Health and other researchers had a better understanding of the SafePod concept for remote access to sensitive data.
Year(s) Of Engagement Activity 2015
 
Description Sarah Morton ADRC-S Impact Event 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Through Cunningham-Burley's links with Sarah Morton, Sarah is doing a workshop on impact and knowledge exchange
Year(s) Of Engagement Activity 2016
 
Description Scotland Data Sharing Open Policy Making Event 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Dissemination of importance of ethics in data sharing with government and policy staff.
Year(s) Of Engagement Activity 2015
 
Description Scottish Cancer Intelligence Framework and IHDP Information Governance Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Creating connections across cancer datasets to support clinicians
Year(s) Of Engagement Activity 2016
 
Description Scottish DTC workshop: Using administrative data to understand patterns of children's services 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No