Improving knowledge transfer of psychosocial issues to young people with coeliac disease via a new multi-media DVD resource
Lead Research Organisation:
University of Birmingham
Department Name: School of Psychology
Abstract
Abstracts are not currently available in GtR for all funded research. This is normally because the abstract was not required at the time of proposal submission, but may be because it included sensitive information such as personal details.
Organisations
People |
ORCID iD |
| Ruth Howard (Principal Investigator) | |
| Gary Law (Co-Investigator) |
Publications
| Title | Gut feelings : young people and their experience of coeliac disease : verion 2 |
| Description | Following the evaluation of the original DVD resource "Gut Feelings: young people and their experience of coeliac disease", qualitative feedback was incorporated into the development of a second version of the resource. This included the recruitment and filming of 4 young men with Coeliac Disease and the inclusion of scenarios and discussions covering additional issues such home cooking and cross-contamination. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2013 |
| Description | Since the last submission the educational DVD developed from the grant has been for sale on Amazon. A very small revenue has been received as a result of this venture. However, a decision has been made to distribute the DVD to young people via events such as Gluten Free Food Fairs and the Allergy Show, and some positive feedback has been received. This dissemination of the material is an ongoing venture. Since the last submission, the DVDs continued to be sold on Amazon, but yielded very little revenue or interest. Therefore they have now been removed from sale. 50 of each DVD were distributed by the charity Coeliac UK at the Allergy Show in Glasgow in March 2016, free of charge, to parents and young people. The response was positive. This will be an on-going venture, with a further distribution of DVDs at the Birmingham Coeliac Food Fair in June 2017. |
| First Year Of Impact | 2009 |
| Sector | Education,Healthcare |
| Impact Types | Societal |
| Description | Funding from Coeliac UK local groups based in Swindon & Birmingham |
| Amount | £150 (GBP) |
| Organisation | Coeliac UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 12/2012 |
| End | 12/2012 |
| Description | Training event : psychosocial issues for young people with coeliac disease |
| Amount | £1,650 (GBP) |
| Organisation | University of Birmingham |
| Department | College of Life and Environmental Sciences |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 12/2011 |
| End | 06/2012 |
| Description | UnLtd See It Do It Award |
| Amount | |
| Organisation | UnLtd |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | |
| Description | Allergy Show presentation |
| Form Of Engagement Activity | |
| Part Of Official Scheme? | No |
| Primary Audience | |
| Year(s) Of Engagement Activity | |
| Description | DVD produced for young people with Coeliac disease |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The development of the DVD was included as a news item on the University of Birmingham, School of Psychology webpages in December 2012. A report was compiled and uploaded onto the School of Psychology web-based news pages in December outlining the development and evaluation of the DVD. This can be accessed by all members of the University of Birmingham and members of the public who wish to access the website. A report was compiled and uploaded onto the School of Psychology web-based news pages in December outlining the development and evaluation of the DVD. This can be accessed by all members of the University of Birmingham and members of the public who wish t |
| Year(s) Of Engagement Activity | 2012 |
| URL | http://www.birmingham.ac.uk/schools/psychology/news-events/2012/06Dec12-dvd-coeliac-disease.aspx |
| Description | DVD shown in PHSE lessons in primary & secondary schools in West Midlands |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | Yes |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | At least three PHSE lessons in Primary & Secondary Schools within the West Midlands have used the DVD to highlight the issues faced by young people living with Coeliac Disease. The DVD has been shown in PSHE lessons in schools within the West Midlands. One was shown to a Year 6 class at Priory School in Edgbaston, and two more to Secondary School pupils. These events were the result of dissemination activities including a presentation at a local volunteers group in Birmingham. Anecdotal evidence suggests that the DVD was highly informative about the condition, symptoms asociated with Coeliac Disease, diagnostic procedures and treatment through the gluten-free diet. The DVD has been shown in PSHE lessons in schools within the West Midlands. One was shown to a Year 6 class at Priory School in Edgbaston, and two more to Secondary School pupils. These events were the result of dissemination activities including a presen |
| Year(s) Of Engagement Activity | 2011 |
| Description | Gut feelings : young people and their experience of coeliac disease : a DVD resource |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Approximately 60 copies of the DVD resource entitled "Gut Feelings: young people and their experience of coeliac disease" were distributed to Coeliac UK Volunteers at the Coeliac UK Volunteers Conference in Birmingham on 20th October. Further copies were distributed, via Coeliac UK headquarters, to local groups not in attandance at the conference. Each local group in attendance at the conference received a copy of the DVD as a resource for that group. Additional copies were distributed during the conference breaks and via Coeliac UK after the conference for those groups who were not in attendance. Each local group in attendance at the conference received a copy of the DVD as a resource for that group. Additional copies were distributed during the conference breaks and via Coeliac UK after the conference for those groups who were not in attendance. |
| Year(s) Of Engagement Activity | 2012 |
| Description | Gut feelings : young people and their experience of coeliac disease : a DVD resource |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Edited bite-sized clips from the DVD are to be used by Coeliac UK to provide information and support to young people with Coeliac Disease. Agreement has been reached between the grant holder and the charity Coeliac UK to edit material from the DVD (version 2) which will be uploaded onto the Coeliac UK website in small, bite-sized clips. These clips will be accessed by anyone seeking information on the psychosocial impact of Coeliac Disease on young people. The clips will inform young people, their families and friends, as well as being available to all members of the charity and members of the public who wish to access the website. Agreement has been reached between the grant holder and the charity Coeliac UK to edit material from the DVD (version 2) which will be uploaded onto the Coeliac UK website in small, bite-sized clips. These clips will be accessed by anyone seeking informat |
| Year(s) Of Engagement Activity | 2013 |
| Description | Living with a long-term condition : young peopl with coeliac disease |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Primary Audience | |
| Results and Impact | The DVD has been used within the MRes/MSci seminar module during a 90 minute presentation to undergraduate and postgraduate students and members of staff from School of Psychology in February 2012. |
| Year(s) Of Engagement Activity | |
| Description | Parenting Gut Feelings film |
| Form Of Engagement Activity | |
| Part Of Official Scheme? | No |
| Primary Audience | |
| Year(s) Of Engagement Activity | |
| Description | Psychosocial aspects of coeliac disease |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Primary Audience | |
| Results and Impact | The DVD has been used within the taught curriculum for Year 2 ClinPsyD trainees at the University of Birmingham through a half day workshop for 25 trainees on psychosocial aspects of coeliac disease delivered in February 2012 as part of the Health Psychology Module. |
| Year(s) Of Engagement Activity | |
| Description | The development and evaluation of a DVD resource for young people with coeliac disease |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | I have been invited to speak at an event for young people with Coeliac Disease and their families in Wolverhampton. I shall give a presentation on how the DVD resource was developed and evaluated through the ESRC grant, and then Version 2 of the DVD will be shown in full. I was approached by the organiser of the Young Wolverhampton Group at the Coeliac UK Volunteer's Conference in October 2012. Following further discussions regarding the DVD resource, I have been invited to speak at the group meeting in April where the organiser expects over 70 people to attend. I was approached by the organiser of the Young Wolverhampton Group at the Coeliac UK Volunteer's Conference in October 2012. Following further discussions regarding the DVD resource, I have been invited to speak at the group meeting in April where the org |
| Year(s) Of Engagement Activity | 2013 |
| Description | The development and evaluation of a DVD resource for young people with coeliac disease |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | I have been invited to speak at an event for service users in Hereford in May 2013. The focus will be on the development and evlauation of the DVD resource entitled "Gut Feelings: Young people and their experience of coeliac disease." The DVD will be shown in full during this event. I have been asked to speak at a local meeting for young people with Coeliac Disease and their families in Hereford. I will cover the development and evaluation of the DVD resource "Gut Feelings: Young people and their experience of coeliac disease." The DVD (version 2) will be shown in full during the event. I have been asked to speak at a local meeting for young people with Coeliac Disease and their families in Hereford. I will cover the development and evaluation of the DVD resource "Gut Feelings: Young people and their experience of coeliac disease." The D |
| Year(s) Of Engagement Activity | 2013 |
| Description | The development of a DVD : gut feelings : young people and their experience of coeliac disease |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | A presentation was given covering the development and evaluation of a DVD resource for young people with coeliac disease to an audience of service users and carers. One chapter of the second version of the DVD was shown. Presentation given to around 60 service users and carers and the regular Coeliac UK volunteers local group meeting. Showed Chapter 3 of the DVD and discussed the development and evaluation of the DVD. 15 copies of the DVD were distributed during the meeting. Presentation given to around 60 service users and carers and the regular Coeliac UK volunteers local group meeting. Showed Chapter 3 of the DVD and discussed the development and evaluation of the DVD. 15 copies of the DVD were distributed during the meeti |
| Year(s) Of Engagement Activity | 2012 |