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Developing technical capability and capacity for UK Secure Data Environments

Lead Research Organisation: University of Manchester
Department Name: School of Health Sciences

Abstract

Secure Data Environments are critical cloud-hosted platforms that are designed to enable research and protect patient data. They support doctors and healthcare professionals to make informed and better decisions about the care we receive and allow researchers to discover new ways to treat people. For these Secure Data Environments to be set up and maintained, we need a workforce that can understand the technical aspects of these digital environments, the regulations that ensure health data is managed in a safe and secure manner, and how research is conducted and prioritised.

Currently this workforce is limited, it is difficult to recruit, and it is increasingly difficult to retain people who possess this unique blend of skills. This is partially due to a lack of availability of a comprehensive training, a community-building programme, and a formalised career/skills pathway that enable these hybrid roles to progress within an academic research environment. Our proposal seeks to address these issues.

We aim to attract individuals who want to apply technical skills to a societal cause at different career stages. We will build a community and develop a new cadre of Research Technical Professionals across the Northwest of England (e.g., Manchester, Liverpool and Lancaster). We will provide at least six short-term student placements for those studying on undergraduate/masters programmes in relevant subjects across the host institutions, allowing us to raise awareness of the role, and bringing young talent into the field. We will create and recruit three new full-time trainees, one based at each site, who will complete two six-month placements working on key aspects of Secure Data Environment development and be mentored by technical experts. They will also complete, (alongside three current RTPs) industry certified training in relevant technologies and standards. In addition, all will be able to receive training provided by academic programmes, which underpin NHS professional development, in working with health data to fully understand the complexities and priorities around it. We will engage with the wider community by hosting events and providing access to masterclasses and further training developed by the hub.

Our multi-disciplinary team brings together experts with technical, research and capacity building expertise from universities and the NHS, who are all actively involved with Secure Data Environments in the Northwest of England. They have first-hand experience of the challenges that are involved in the development of Secure Data Environments, and the skills required to address them. They have pioneered the technical role within academia, and the development of innovative training solutions. We will use this unique opportunity to develop the wider SDE community, while co-developing a skills framework (mapped to an industry standard) that we will use in conjunction with career pathways to provide a longer lasting sustainable workforce.

Publications

10 25 50
 
Description Collaboration with NHS SDE in Cheshire and Merseyside to create report on use of NHS data for research
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Participation in a guidance/advisory committee
URL https://dataintoaction.cheshireandmerseyside.nhs.uk/get-involved/
 
Description Existing Technical Training Framework (SFIA) Assessment
Geographic Reach National 
Policy Influence Type Influenced training of practitioners or researchers
URL https://sdertp.org/
 
Description Primary Version of Competency Framework Inputs
Geographic Reach National 
Policy Influence Type Influenced training of practitioners or researchers
URL https://sdertp.org/
 
Description Research Technical Professionals (SDEs) Cohort Development
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Influenced training of practitioners or researchers
URL https://sdertp.org/
 
Description Training Tools Piloted
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Influenced training of practitioners or researchers
URL https://sdertp.org/
 
Description FOCUS-5
Amount £500,000 (GBP)
Organisation Health Data Research UK 
Sector Charity/Non Profit
Country United Kingdom
Start 03/2025 
End 03/2027
 
Description TREvolution
Amount £7,000,000 (GBP)
Organisation Health Data Research UK 
Sector Charity/Non Profit
Country United Kingdom
Start 03/2025 
End 03/2027
 
Description Improving LSC's KRAP Infrastructure Developer Experience Workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Infrastructure development team along with industry partners (TelefonicaTech) met over two days to discuss and explore how to streamline the LSC KRAP infrastructure and associated developer experience.
Year(s) Of Engagement Activity 2025
 
Description SDECON 2024 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact A range of technical, clinical and general public including a broad range of stakeholders across the NHS attended a two day event to learn and discuss on-going work contributing to the develop, deployment and adoption of LSC's Secure Data Environment (SDE). This conference also included a presentation and discussion about this project's aims and objectives, and provided an opportunity for us to inform the UK SDE/TRE community about upcoming workshops and engagement activities.
Year(s) Of Engagement Activity 2024
 
Description Two Phase I Competency Framework workshops 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact We hosted two online workshops in December 2024 to gather input from technical professionals who work on secure data environments. Invitations were extended to capture a broad representative group across academic and related organisations, programmes and institutes to co-design a competency framework and curriculum with the community in two phases.

Phase 1 - During these phase 1 workshops we worked with participants to define the key tasks, skills, technologies and standards that are important for individuals involved in the design and creation of the technical IT infrastructure for SDEs including Platform Engineers, DevOps Engineers, System Administrators and Cloud Solution Architects.
This provided us with information from practitioners with experience, knowledge and diverse perspectives to inform our work to ensure we can be effective in supporting the UK's current and future SDE RTPs. This activity is being followed up with a Phase II workshop in April 2025.
Year(s) Of Engagement Activity 2024
URL https://sdertp.org/workshops