Co-developing a social exergaming platform to help older adults with mild memory problems maintain functional independence
Lead Research Organisation:
University of Sussex
Department Name: Brighton and Sussex Medical School
Abstract
For people living with dementia (PWD) the eventual loss of independence is a certainty. The question is not if, but when PWD will lose independence and need assistance to accomplish even simple tasks. Losing independence causes severe emotional distress to PWD, their families, and friends. It is taxing to the physical and mental health of loved ones who provide unpaid care, and costs the UK economy over £29 billion per year. Our goal is to help people with mild dementia remain independent for as long as possible as we believe it is still possible to live well, and age well, throughout the dementia journey.
We know that staying physically active, cognitively stimulated, and socially engaged can keep people with mild dementia independent for longer. With PWD as co-creators, we will take a holistic approach and design video games that promote a balanced lifestyle. Using motion capture technology, the games would promote physical activity, be cognitively stimulating, and can be played socially with others. In the short term, this should delay the point at which PWD lose independence, delay their move into assisted living, and promote general wellbeing.
In the long-term, these games could delay or prevent many age-associated clinical disorders, aid clinical professionals in diagnosing and managing diverse conditions, and promote independence and wellbeing in older adults diagnosed with varied clinical conditions. Through the promotion of a healthy lifestyle, these games should reduce all-cause mortality. Together, these outputs will reduce the individual and societal costs associated with loss of independence.
We know that staying physically active, cognitively stimulated, and socially engaged can keep people with mild dementia independent for longer. With PWD as co-creators, we will take a holistic approach and design video games that promote a balanced lifestyle. Using motion capture technology, the games would promote physical activity, be cognitively stimulating, and can be played socially with others. In the short term, this should delay the point at which PWD lose independence, delay their move into assisted living, and promote general wellbeing.
In the long-term, these games could delay or prevent many age-associated clinical disorders, aid clinical professionals in diagnosing and managing diverse conditions, and promote independence and wellbeing in older adults diagnosed with varied clinical conditions. Through the promotion of a healthy lifestyle, these games should reduce all-cause mortality. Together, these outputs will reduce the individual and societal costs associated with loss of independence.
Organisations
| Description | ARC KSS dementia research priorities workshop |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Workshop and conference on the ongoing research in the NIHR ARC (Applied research collaboration) KSS (Kent, Surrey, Sussex) and to develop, with key stakeholders, the future research direction in the KSS area. Professional practitioners and commissioners were very interested in the proposed digital solution and offered to input on the design and facilitate testing of the digital solution with suitable patient populations. |
| Year(s) Of Engagement Activity | 2023 |
| Description | Building Partnerships for Impactful Research event |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Workshop of around 20 community researchers, academics, 3rd sector workers, and professional practitioners. The workshop brought together these diverse research-interested parties to connect, and inform community research projects in mental health (including dementia). Valuable connections were made with community researchers and 3rd sector workers interested in being part of the codesign team for this project. |
| Year(s) Of Engagement Activity | 2025 |
| URL | https://www.bsms.ac.uk/research/support-and-governance/shcrp/ren.aspx |
| Description | Patient group interviews and focus groups |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | A series of focus groups and dyadic interviews with 12 people living with dementia or mild cognitive impairment and their care partners, as well as three dementia support workforce members from 3rd sector organisations. Discussions in the groups/interviews were focused on the suitability of our proposed digital solution for helping people living with mild memory problems to maintain their independence. The focus groups/interviews informed the technical brief for the proposed digital solution. Many attendees expressed an interest in being part of the team working to design the digital solution and develop it to the prototype stage, working with researchers and technology partners under a co-design framework. |
| Year(s) Of Engagement Activity | 2023,2025 |
