Life Study: pilot phase
Lead Research Organisation:
University College London
Department Name: Institute of Child Health
Abstract
A birth cohort study follows the same babies throughout their lives to understand more about how a child's very early social, emotional and physical development and their family and wider environment influences their future development, health and wellbeing as well as their risk of future ill health. These special types of studies give insights into what is called the life course starting in early life - they are a unique and special way to find out how early life experiences matter for later childhood and adult life.
Our study will help identify what aspects of the environment in its broadest sense protect children and maximise their life chances and the ways in which that protection operates. It will also help us understand what aspects may increase vulnerability. We wish to understand the interplay between environmental and biological influences in early life recognising that this needs understanding of parents' lives and the wider family and society too.
We will invite more than 100,000 pregnant women and their partners from across the UK to join our study. We want to include women and their partners from all walks of life. We will work to maximise recruitment of people from different ethnic groups. In pregnancy both parents will be interviewed, weighed and measured and asked to take part in some simple computer based tests. Parents will be asked to bring their baby to be seen at 6 and 12 months of age for some body size measurements and eye and child development tests. There will be no blood tests for the baby.
We hope to follow all the children and their families throughout childhood and adult life so that we can see how they grow and develop and how their family circumstances change. We will do that in a number of ways including by getting consent at the beginning of the study to link to future routine health and other records of the baby and the parent.
Scientists and others learn a lot from these large studies about how we can help children get a good start in life and improve their life chances and future well being and happiness. The information collected will be anonymised and made available to researchers to analyse to make sure we get the most benefit from it. We will be able to compare the Life Study generation with information collected from earlier generations in similar special British cohort studies.
We will make sure that families taking part are informed about the progress of the study and any early findings and will ensure that other scientists, in the UK and abroad, policymakers and all members of the public also get to hear about Life Study findings.
Our study will help identify what aspects of the environment in its broadest sense protect children and maximise their life chances and the ways in which that protection operates. It will also help us understand what aspects may increase vulnerability. We wish to understand the interplay between environmental and biological influences in early life recognising that this needs understanding of parents' lives and the wider family and society too.
We will invite more than 100,000 pregnant women and their partners from across the UK to join our study. We want to include women and their partners from all walks of life. We will work to maximise recruitment of people from different ethnic groups. In pregnancy both parents will be interviewed, weighed and measured and asked to take part in some simple computer based tests. Parents will be asked to bring their baby to be seen at 6 and 12 months of age for some body size measurements and eye and child development tests. There will be no blood tests for the baby.
We hope to follow all the children and their families throughout childhood and adult life so that we can see how they grow and develop and how their family circumstances change. We will do that in a number of ways including by getting consent at the beginning of the study to link to future routine health and other records of the baby and the parent.
Scientists and others learn a lot from these large studies about how we can help children get a good start in life and improve their life chances and future well being and happiness. The information collected will be anonymised and made available to researchers to analyse to make sure we get the most benefit from it. We will be able to compare the Life Study generation with information collected from earlier generations in similar special British cohort studies.
We will make sure that families taking part are informed about the progress of the study and any early findings and will ensure that other scientists, in the UK and abroad, policymakers and all members of the public also get to hear about Life Study findings.
Planned Impact
The public, policymakers, the health and other public services and the academic and research community will benefit from this research
For example, the public will benefit from this research as it will lead to better understanding abut early life influences on children's health, policy makers will benefit through contemporary insights into children and family lives and through research evaluating current or future policies. Novel measures of biomarkers at this age may lead to benefits for diagnostic tests and discovery science
By focusing on children from minority ethnic groups we will obtain insights into their lives and health and early growth and development. This is important as, for example, the current obesity epidemic operates differently by ethnic groups and an optimum growth pattern may not be generalisable across all ethnic groups. Benefit will arise from the novel methodological advances for academics and through the research resource developed
We will ensure that they have the opportunity to benefit from this research by stakeholder engagement from the beginning, by dissemination of findings through multiple public and scientific media including public engagement activities to promote the importance of the knowledge gained from Life Study, by working with CLOSER and generally ensuring the maximum translation of knowledge into public benefit through policy development. Benefits will also accrue through training opportunities and the interdisciplinary and international collaborations fostered.
For example, the public will benefit from this research as it will lead to better understanding abut early life influences on children's health, policy makers will benefit through contemporary insights into children and family lives and through research evaluating current or future policies. Novel measures of biomarkers at this age may lead to benefits for diagnostic tests and discovery science
By focusing on children from minority ethnic groups we will obtain insights into their lives and health and early growth and development. This is important as, for example, the current obesity epidemic operates differently by ethnic groups and an optimum growth pattern may not be generalisable across all ethnic groups. Benefit will arise from the novel methodological advances for academics and through the research resource developed
We will ensure that they have the opportunity to benefit from this research by stakeholder engagement from the beginning, by dissemination of findings through multiple public and scientific media including public engagement activities to promote the importance of the knowledge gained from Life Study, by working with CLOSER and generally ensuring the maximum translation of knowledge into public benefit through policy development. Benefits will also accrue through training opportunities and the interdisciplinary and international collaborations fostered.
Organisations
- University College London (Lead Research Organisation)
- University College London (Collaboration)
- UNIVERSITY OF LEICESTER (Collaboration)
- PUBLIC HEALTH ENGLAND (Collaboration)
- University of St Andrews (Collaboration)
- University of York (Collaboration)
- University of Warwick (Collaboration)
- UNIVERSITY HOSPITALS OF LEICESTER NHS TRUST (Collaboration)
- The Wellcome Trust Sanger Institute (Collaboration)
- IMPERIAL COLLEGE LONDON (Collaboration)
- UNIVERSITY OF OXFORD (Collaboration)
- Barking, Havering and Redbridge University Hospitals NHS Trust (Collaboration)
- Cardiff University (Collaboration)
- Great Ormond Street Hospital (GOSH) (Collaboration)
- London School of Hygiene and Tropical Medicine (LSHTM) (Collaboration)
- SWANSEA UNIVERSITY (Collaboration)
- UNIVERSITY OF SOUTHAMPTON (Collaboration)
- University of Bristol (Collaboration)
- KING'S COLLEGE LONDON (Collaboration)
People |
ORCID iD |
| Carol Dezateux (Principal Investigator) | |
| Dale Hay (Co-Investigator) |
Publications
Clemens S;
(2016)
Birth Component Pilot: Opt-in fieldwork
Dezateux C
(2015)
Life Study: design and vision
| Description | Achievements The following conclusions were reached at a meeting of collaborators [http://bit.ly/2TjmOzr] • Life Study catalysed inter-disciplinary approaches to the life course and achieved significant scientific momentum and direction. • It created a strong interdisciplinary community of scientists from across medical, social and physical sciences as an important legacy for future birth cohort studies. • The impressive outputs of Life Study's innovative methodological developments and pilot studies were widely disseminated. • Life Study protocols, standard operating procedures and questionnaires represent an asset for future birth cohort studies and are available on, and continue to be downloaded from, UCL Discovery [http://bit.ly/2UqB6e8] |
| Exploitation Route | The following conclusions were reached at a meeting of collaborators in relation to strategic considerations and implications for design of and need for future birth cohort studies [http://bit.ly/2TjmOzr]. These conclusions and other related evidence were considered by an independent Longitudinal Studies Strategic Review commissioned by ESRC [http://bit.ly/2SJELlp] Design of future birth cohort studies • Clarity about the purpose of future birth cohort studies is essential, notably whether their development should be driven by interdisciplinary scientific and policy questions, or the desire to create a multipurpose data resource. • It will be important to identify where future birth cohort studies can add most value and how they can best exploit the exciting potential for understanding heterogeneity in early life using innovative exposome and phenotypic data capture alongside rapidly developing 'omics technologies. • The design of future birth cohort studies needs to take into account representativeness, available sampling frames, scale required, and feasibility of innovative measures in diverse settings and populations. • The involvement of parents and families in the design and conduct of future birth cohort studies is critical. • Greater understanding of barriers to participation in birth cohort studies, and of the contribution that social networking, communication technologies and public partnerships can make to this, is required. Clarity on ethical aspects of incentives to encourage participation is needed, especially in a NHS setting. • Participant burden may be increased by the aspirations inherent in interdisciplinary innovative birth cohort studies, requiring careful prioritisation of the breadth, depth and timing of information to be collected. • The UK still needs a new birth cohort study capable of bringing world leading science to populations and populations to science from a life course perspective. • A new birth cohort study is essential if we are to understand and address some of the most pressing social, economic and public health issues confronting the lives and life chances of current and future generations of children and their families, and ensure that science is funded and used for their benefit. • A prospective focus on pregnancy and the first year of life remains a key priority for such a birth cohort study, reflecting the continued relevance of this ambition for interdisciplinary science developed within Life Study. Strategic considerations • Consistent and sustained commitment by funders to birth cohort studies and life course research is crucial. • Enabling science to innovate at a population level through birth cohort studies is a strategic priority: current funding and governance infrastructures need to change. • The time needed to realise impacts of a new UK birth cohort study will vary according to the nature of those impacts and this requires recognition as part of a long term sustainable funding strategy. • Funders should consult and work with the scientific community in order to understand fully the scientific options and impacts before reaching a decision to stop the funding of birth cohort studies that are in progress, and to avoid loss of hard-won funds. • The scientific community needs to communicate clearly and widely about the critical importance of innovative birth cohort studies and life course research to the public, policy makers and funders. • A review of access to sampling frames derived from birth registration records for research is urgently required. At present, NHS registration records appear to provide the only feasible approach for a national probability birth cohort, given the selective eligibility and timing of registration for child benefit payments. |
| Sectors | Communities and Social Services/Policy Education Environment Healthcare |
| URL | http://discovery.ucl.ac.uk/1485681/ |
| Description | "Delivering the birth component of Life Study: a longitudinal pilot for the national probability sample" |
| Amount | £698,000 (GBP) |
| Funding ID | ES/N007549/1 |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2014 |
| End | 09/2016 |
| Description | ESRC DTA |
| Amount | £279,588 (GBP) |
| Funding ID | ES/J500185/1 |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2015 |
| End | 09/2019 |
| Description | Life Study-Augmenting Recruitment and Retention of Resident and Non-resident Fathers and Partners |
| Amount | £1,370,000 (GBP) |
| Funding ID | KID42046 |
| Organisation | Nuffield Foundation |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2015 |
| End | 11/2019 |
| Description | Nuffield Foundation Grant |
| Amount | £31,000 (GBP) |
| Funding ID | CPF/41196/.01 |
| Organisation | Nuffield Foundation |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 05/2013 |
| End | 12/2014 |
| Description | Wellcome Trust Strategic Award |
| Amount | £1,287,519 (GBP) |
| Organisation | Wellcome Trust |
| Department | Wellcome Trust Strategic Award |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2013 |
| End | 10/2016 |
| Description | Barking Havering and Redbridge University Hospitals NHS Trust |
| Organisation | Barking, Havering and Redbridge University Hospitals NHS Trust |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Established to deliver the first Life Study Centre |
| Collaborator Contribution | Enabling the first Life Study Centre |
| Impact | Multidisciplinary including obstetrics, midwifery, paediatrics and pathology. Life Study Centre 1 established. |
| Start Year | 2013 |
| Description | Great Ormond Street NIHR BRC |
| Organisation | Great Ormond Street Hospital (GOSH) |
| Department | NIHR Great Ormond Street Biomedical Research Centre |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Provision of placentas for processing and analysis. |
| Collaborator Contribution | Processing and analysis of placentas. |
| Impact | Multidisciplinary - pathology, epidemiology, proteomics, obstetrics, midwifery |
| Start Year | 2014 |
| Description | Leicester University Hospitals Trust |
| Organisation | University Hospitals of Leicester NHS Trust |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Establishing the second Life Study Centre |
| Collaborator Contribution | Enabling the second Life Study Centre |
| Impact | Multidisciplinary - obstetrics, midwifery, paediatrics and pathology. Centre due to open in 2015. |
| Start Year | 2014 |
| Description | Life Study Infection and Immunity Enhancement |
| Organisation | Imperial College London |
| Department | Department of Surgery and Cancer |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Scientific leadership, development of hypotheses, application for funding |
| Collaborator Contribution | Scientific leadership and expertise in infections, immunology, perinatal epidemiology, pathogen genetics, metabolomics. |
| Impact | Outcome: Wellcome Trust Strategic Award, £1,137,689. Multidisciplinary:epidemiology, public health, bioinformatics, host and pathogen genetics, epigenetics, immunology |
| Start Year | 2012 |
| Description | Life Study Infection and Immunity Enhancement |
| Organisation | London School of Hygiene and Tropical Medicine (LSHTM) |
| Department | Department of Immunology and Infection |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Scientific leadership, development of hypotheses, application for funding |
| Collaborator Contribution | Scientific leadership and expertise in infections, immunology, perinatal epidemiology, pathogen genetics, metabolomics. |
| Impact | Outcome: Wellcome Trust Strategic Award, £1,137,689. Multidisciplinary:epidemiology, public health, bioinformatics, host and pathogen genetics, epigenetics, immunology |
| Start Year | 2012 |
| Description | Life Study Infection and Immunity Enhancement |
| Organisation | Public Health England |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Scientific leadership, development of hypotheses, application for funding |
| Collaborator Contribution | Scientific leadership and expertise in infections, immunology, perinatal epidemiology, pathogen genetics, metabolomics. |
| Impact | Outcome: Wellcome Trust Strategic Award, £1,137,689. Multidisciplinary:epidemiology, public health, bioinformatics, host and pathogen genetics, epigenetics, immunology |
| Start Year | 2012 |
| Description | Life Study Infection and Immunity Enhancement |
| Organisation | The Wellcome Trust Sanger Institute |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Scientific leadership, development of hypotheses, application for funding |
| Collaborator Contribution | Scientific leadership and expertise in infections, immunology, perinatal epidemiology, pathogen genetics, metabolomics. |
| Impact | Outcome: Wellcome Trust Strategic Award, £1,137,689. Multidisciplinary:epidemiology, public health, bioinformatics, host and pathogen genetics, epigenetics, immunology |
| Start Year | 2012 |
| Description | Life Study Infection and Immunity Enhancement |
| Organisation | University College London |
| Department | Department of Infection and Population Health |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Scientific leadership, development of hypotheses, application for funding |
| Collaborator Contribution | Scientific leadership and expertise in infections, immunology, perinatal epidemiology, pathogen genetics, metabolomics. |
| Impact | Outcome: Wellcome Trust Strategic Award, £1,137,689. Multidisciplinary:epidemiology, public health, bioinformatics, host and pathogen genetics, epigenetics, immunology |
| Start Year | 2012 |
| Description | Life Study Infection and Immunity Enhancement |
| Organisation | University College London |
| Department | Institute for Women's Health |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Scientific leadership, development of hypotheses, application for funding |
| Collaborator Contribution | Scientific leadership and expertise in infections, immunology, perinatal epidemiology, pathogen genetics, metabolomics. |
| Impact | Outcome: Wellcome Trust Strategic Award, £1,137,689. Multidisciplinary:epidemiology, public health, bioinformatics, host and pathogen genetics, epigenetics, immunology |
| Start Year | 2012 |
| Description | Life Study Infection and Immunity Enhancement |
| Organisation | University College London |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Scientific leadership, development of hypotheses, application for funding |
| Collaborator Contribution | Scientific leadership and expertise in infections, immunology, perinatal epidemiology, pathogen genetics, metabolomics. |
| Impact | Outcome: Wellcome Trust Strategic Award, £1,137,689. Multidisciplinary:epidemiology, public health, bioinformatics, host and pathogen genetics, epigenetics, immunology |
| Start Year | 2012 |
| Description | Life Study Infection and Immunity Enhancement |
| Organisation | University of Oxford |
| Department | Nuffield Department of Medicine |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Scientific leadership, development of hypotheses, application for funding |
| Collaborator Contribution | Scientific leadership and expertise in infections, immunology, perinatal epidemiology, pathogen genetics, metabolomics. |
| Impact | Outcome: Wellcome Trust Strategic Award, £1,137,689. Multidisciplinary:epidemiology, public health, bioinformatics, host and pathogen genetics, epigenetics, immunology |
| Start Year | 2012 |
| Description | Life Study Infection and Immunity Enhancement |
| Organisation | University of Warwick |
| Department | Warwick Medical School |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Scientific leadership, development of hypotheses, application for funding |
| Collaborator Contribution | Scientific leadership and expertise in infections, immunology, perinatal epidemiology, pathogen genetics, metabolomics. |
| Impact | Outcome: Wellcome Trust Strategic Award, £1,137,689. Multidisciplinary:epidemiology, public health, bioinformatics, host and pathogen genetics, epigenetics, immunology |
| Start Year | 2012 |
| Description | The Life Study (CD) |
| Organisation | Cardiff University |
| Department | School of Psychology |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Scientific leadership, development of hypotheses, innovative methodology |
| Collaborator Contribution | Scientific leadership and expertise in social science, genetic epidemiology, lifecourse epidemiology, ehealth, environmental epidemiology, environmental sciences, psychology, developmental psychology, anthropology, immunity, clinical peadatrics and obstetrics, informatics, biostatistics |
| Impact | Multidisciplinary: economics, sociology, developmental psychology, environmental sciences, education, epidemiology, biostatistics, public health, clinical paediatrics, clinical obstetrics, informatics, bioinformatics, genetics and epigenetics, biochemistry; |
| Start Year | 2009 |
| Description | The Life Study (CD) |
| Organisation | Imperial College London |
| Department | School of Public Health |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Scientific leadership, development of hypotheses, innovative methodology |
| Collaborator Contribution | Scientific leadership and expertise in social science, genetic epidemiology, lifecourse epidemiology, ehealth, environmental epidemiology, environmental sciences, psychology, developmental psychology, anthropology, immunity, clinical peadatrics and obstetrics, informatics, biostatistics |
| Impact | Multidisciplinary: economics, sociology, developmental psychology, environmental sciences, education, epidemiology, biostatistics, public health, clinical paediatrics, clinical obstetrics, informatics, bioinformatics, genetics and epigenetics, biochemistry; |
| Start Year | 2009 |
| Description | The Life Study (CD) |
| Organisation | King's College London |
| Department | Institute of Pharmaceutical Science |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Scientific leadership, development of hypotheses, innovative methodology |
| Collaborator Contribution | Scientific leadership and expertise in social science, genetic epidemiology, lifecourse epidemiology, ehealth, environmental epidemiology, environmental sciences, psychology, developmental psychology, anthropology, immunity, clinical peadatrics and obstetrics, informatics, biostatistics |
| Impact | Multidisciplinary: economics, sociology, developmental psychology, environmental sciences, education, epidemiology, biostatistics, public health, clinical paediatrics, clinical obstetrics, informatics, bioinformatics, genetics and epigenetics, biochemistry; |
| Start Year | 2009 |
| Description | The Life Study (CD) |
| Organisation | London School of Hygiene and Tropical Medicine (LSHTM) |
| Department | Faculty of Epidemiology and Population Health |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Scientific leadership, development of hypotheses, innovative methodology |
| Collaborator Contribution | Scientific leadership and expertise in social science, genetic epidemiology, lifecourse epidemiology, ehealth, environmental epidemiology, environmental sciences, psychology, developmental psychology, anthropology, immunity, clinical peadatrics and obstetrics, informatics, biostatistics |
| Impact | Multidisciplinary: economics, sociology, developmental psychology, environmental sciences, education, epidemiology, biostatistics, public health, clinical paediatrics, clinical obstetrics, informatics, bioinformatics, genetics and epigenetics, biochemistry; |
| Start Year | 2009 |
| Description | The Life Study (CD) |
| Organisation | Swansea University |
| Department | Institute of Life Science |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Scientific leadership, development of hypotheses, innovative methodology |
| Collaborator Contribution | Scientific leadership and expertise in social science, genetic epidemiology, lifecourse epidemiology, ehealth, environmental epidemiology, environmental sciences, psychology, developmental psychology, anthropology, immunity, clinical peadatrics and obstetrics, informatics, biostatistics |
| Impact | Multidisciplinary: economics, sociology, developmental psychology, environmental sciences, education, epidemiology, biostatistics, public health, clinical paediatrics, clinical obstetrics, informatics, bioinformatics, genetics and epigenetics, biochemistry; |
| Start Year | 2009 |
| Description | The Life Study (CD) |
| Organisation | University College London |
| Department | Department of Psychology and Human Development |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Scientific leadership, development of hypotheses, innovative methodology |
| Collaborator Contribution | Scientific leadership and expertise in social science, genetic epidemiology, lifecourse epidemiology, ehealth, environmental epidemiology, environmental sciences, psychology, developmental psychology, anthropology, immunity, clinical peadatrics and obstetrics, informatics, biostatistics |
| Impact | Multidisciplinary: economics, sociology, developmental psychology, environmental sciences, education, epidemiology, biostatistics, public health, clinical paediatrics, clinical obstetrics, informatics, bioinformatics, genetics and epigenetics, biochemistry; |
| Start Year | 2009 |
| Description | The Life Study (CD) |
| Organisation | University College London |
| Department | Institute of Child Health |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Scientific leadership, development of hypotheses, innovative methodology |
| Collaborator Contribution | Scientific leadership and expertise in social science, genetic epidemiology, lifecourse epidemiology, ehealth, environmental epidemiology, environmental sciences, psychology, developmental psychology, anthropology, immunity, clinical peadatrics and obstetrics, informatics, biostatistics |
| Impact | Multidisciplinary: economics, sociology, developmental psychology, environmental sciences, education, epidemiology, biostatistics, public health, clinical paediatrics, clinical obstetrics, informatics, bioinformatics, genetics and epigenetics, biochemistry; |
| Start Year | 2009 |
| Description | The Life Study (CD) |
| Organisation | University of Bristol |
| Department | School of Social and Community Medicine |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Scientific leadership, development of hypotheses, innovative methodology |
| Collaborator Contribution | Scientific leadership and expertise in social science, genetic epidemiology, lifecourse epidemiology, ehealth, environmental epidemiology, environmental sciences, psychology, developmental psychology, anthropology, immunity, clinical peadatrics and obstetrics, informatics, biostatistics |
| Impact | Multidisciplinary: economics, sociology, developmental psychology, environmental sciences, education, epidemiology, biostatistics, public health, clinical paediatrics, clinical obstetrics, informatics, bioinformatics, genetics and epigenetics, biochemistry; |
| Start Year | 2009 |
| Description | The Life Study (CD) |
| Organisation | University of Leicester |
| Department | Department of Epidemiology and Public Health |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Scientific leadership, development of hypotheses, innovative methodology |
| Collaborator Contribution | Scientific leadership and expertise in social science, genetic epidemiology, lifecourse epidemiology, ehealth, environmental epidemiology, environmental sciences, psychology, developmental psychology, anthropology, immunity, clinical peadatrics and obstetrics, informatics, biostatistics |
| Impact | Multidisciplinary: economics, sociology, developmental psychology, environmental sciences, education, epidemiology, biostatistics, public health, clinical paediatrics, clinical obstetrics, informatics, bioinformatics, genetics and epigenetics, biochemistry; |
| Start Year | 2009 |
| Description | The Life Study (CD) |
| Organisation | University of Southampton |
| Department | MRC Lifecourse Epidemiology Unit |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Scientific leadership, development of hypotheses, innovative methodology |
| Collaborator Contribution | Scientific leadership and expertise in social science, genetic epidemiology, lifecourse epidemiology, ehealth, environmental epidemiology, environmental sciences, psychology, developmental psychology, anthropology, immunity, clinical peadatrics and obstetrics, informatics, biostatistics |
| Impact | Multidisciplinary: economics, sociology, developmental psychology, environmental sciences, education, epidemiology, biostatistics, public health, clinical paediatrics, clinical obstetrics, informatics, bioinformatics, genetics and epigenetics, biochemistry; |
| Start Year | 2009 |
| Description | The Life Study (CD) |
| Organisation | University of St Andrews |
| Department | School of Geography & Geosciences |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Scientific leadership, development of hypotheses, innovative methodology |
| Collaborator Contribution | Scientific leadership and expertise in social science, genetic epidemiology, lifecourse epidemiology, ehealth, environmental epidemiology, environmental sciences, psychology, developmental psychology, anthropology, immunity, clinical peadatrics and obstetrics, informatics, biostatistics |
| Impact | Multidisciplinary: economics, sociology, developmental psychology, environmental sciences, education, epidemiology, biostatistics, public health, clinical paediatrics, clinical obstetrics, informatics, bioinformatics, genetics and epigenetics, biochemistry; |
| Start Year | 2009 |
| Description | The Life Study scientific advisory committees |
| Organisation | Cardiff University |
| Department | School of Psychology |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | scientific leadership, development of hypotheses, innovative methodology |
| Collaborator Contribution | scientific leadership and expertise in social science, genetic epidemiology, lifecourse epidemiology, ehealth, environmental epidemiology, environmental sciences, psychology, developmental psychology, anthropology, immunity, clinical peadatrics and obstetrics, biostats. There are a large number of additional contributions made by academics and other experts from around the UK and internationally who do not receive any funding from the grants, and are therefore not listed here. |
| Impact | Multidisciplinary: economics, sociology, developmental psychology, environmental sciences, education, epidemiology, biostatistics, public health, clinical paediatrics, clinical obstetrics, informatics, bioinformatics, genetics and epigenetics, biochemistry; |
| Start Year | 2009 |
| Description | The Life Study scientific advisory committees |
| Organisation | Imperial College London |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | scientific leadership, development of hypotheses, innovative methodology |
| Collaborator Contribution | scientific leadership and expertise in social science, genetic epidemiology, lifecourse epidemiology, ehealth, environmental epidemiology, environmental sciences, psychology, developmental psychology, anthropology, immunity, clinical peadatrics and obstetrics, biostats. There are a large number of additional contributions made by academics and other experts from around the UK and internationally who do not receive any funding from the grants, and are therefore not listed here. |
| Impact | Multidisciplinary: economics, sociology, developmental psychology, environmental sciences, education, epidemiology, biostatistics, public health, clinical paediatrics, clinical obstetrics, informatics, bioinformatics, genetics and epigenetics, biochemistry; |
| Start Year | 2009 |
| Description | The Life Study scientific advisory committees |
| Organisation | King's College London |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | scientific leadership, development of hypotheses, innovative methodology |
| Collaborator Contribution | scientific leadership and expertise in social science, genetic epidemiology, lifecourse epidemiology, ehealth, environmental epidemiology, environmental sciences, psychology, developmental psychology, anthropology, immunity, clinical peadatrics and obstetrics, biostats. There are a large number of additional contributions made by academics and other experts from around the UK and internationally who do not receive any funding from the grants, and are therefore not listed here. |
| Impact | Multidisciplinary: economics, sociology, developmental psychology, environmental sciences, education, epidemiology, biostatistics, public health, clinical paediatrics, clinical obstetrics, informatics, bioinformatics, genetics and epigenetics, biochemistry; |
| Start Year | 2009 |
| Description | The Life Study scientific advisory committees |
| Organisation | London School of Hygiene and Tropical Medicine (LSHTM) |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | scientific leadership, development of hypotheses, innovative methodology |
| Collaborator Contribution | scientific leadership and expertise in social science, genetic epidemiology, lifecourse epidemiology, ehealth, environmental epidemiology, environmental sciences, psychology, developmental psychology, anthropology, immunity, clinical peadatrics and obstetrics, biostats. There are a large number of additional contributions made by academics and other experts from around the UK and internationally who do not receive any funding from the grants, and are therefore not listed here. |
| Impact | Multidisciplinary: economics, sociology, developmental psychology, environmental sciences, education, epidemiology, biostatistics, public health, clinical paediatrics, clinical obstetrics, informatics, bioinformatics, genetics and epigenetics, biochemistry; |
| Start Year | 2009 |
| Description | The Life Study scientific advisory committees |
| Organisation | Swansea University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | scientific leadership, development of hypotheses, innovative methodology |
| Collaborator Contribution | scientific leadership and expertise in social science, genetic epidemiology, lifecourse epidemiology, ehealth, environmental epidemiology, environmental sciences, psychology, developmental psychology, anthropology, immunity, clinical peadatrics and obstetrics, biostats. There are a large number of additional contributions made by academics and other experts from around the UK and internationally who do not receive any funding from the grants, and are therefore not listed here. |
| Impact | Multidisciplinary: economics, sociology, developmental psychology, environmental sciences, education, epidemiology, biostatistics, public health, clinical paediatrics, clinical obstetrics, informatics, bioinformatics, genetics and epigenetics, biochemistry; |
| Start Year | 2009 |
| Description | The Life Study scientific advisory committees |
| Organisation | University College London |
| Department | Institute of Education (IOE) |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | scientific leadership, development of hypotheses, innovative methodology |
| Collaborator Contribution | scientific leadership and expertise in social science, genetic epidemiology, lifecourse epidemiology, ehealth, environmental epidemiology, environmental sciences, psychology, developmental psychology, anthropology, immunity, clinical peadatrics and obstetrics, biostats. There are a large number of additional contributions made by academics and other experts from around the UK and internationally who do not receive any funding from the grants, and are therefore not listed here. |
| Impact | Multidisciplinary: economics, sociology, developmental psychology, environmental sciences, education, epidemiology, biostatistics, public health, clinical paediatrics, clinical obstetrics, informatics, bioinformatics, genetics and epigenetics, biochemistry; |
| Start Year | 2009 |
| Description | The Life Study scientific advisory committees |
| Organisation | University of Bristol |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | scientific leadership, development of hypotheses, innovative methodology |
| Collaborator Contribution | scientific leadership and expertise in social science, genetic epidemiology, lifecourse epidemiology, ehealth, environmental epidemiology, environmental sciences, psychology, developmental psychology, anthropology, immunity, clinical peadatrics and obstetrics, biostats. There are a large number of additional contributions made by academics and other experts from around the UK and internationally who do not receive any funding from the grants, and are therefore not listed here. |
| Impact | Multidisciplinary: economics, sociology, developmental psychology, environmental sciences, education, epidemiology, biostatistics, public health, clinical paediatrics, clinical obstetrics, informatics, bioinformatics, genetics and epigenetics, biochemistry; |
| Start Year | 2009 |
| Description | The Life Study scientific advisory committees |
| Organisation | University of Bristol |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | scientific leadership, development of hypotheses, innovative methodology |
| Collaborator Contribution | scientific leadership and expertise in social science, genetic epidemiology, lifecourse epidemiology, ehealth, environmental epidemiology, environmental sciences, psychology, developmental psychology, anthropology, immunity, clinical peadatrics and obstetrics, biostats. There are a large number of additional contributions made by academics and other experts from around the UK and internationally who do not receive any funding from the grants, and are therefore not listed here. |
| Impact | Multidisciplinary: economics, sociology, developmental psychology, environmental sciences, education, epidemiology, biostatistics, public health, clinical paediatrics, clinical obstetrics, informatics, bioinformatics, genetics and epigenetics, biochemistry; |
| Start Year | 2009 |
| Description | The Life Study scientific advisory committees |
| Organisation | University of Leicester |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | scientific leadership, development of hypotheses, innovative methodology |
| Collaborator Contribution | scientific leadership and expertise in social science, genetic epidemiology, lifecourse epidemiology, ehealth, environmental epidemiology, environmental sciences, psychology, developmental psychology, anthropology, immunity, clinical peadatrics and obstetrics, biostats. There are a large number of additional contributions made by academics and other experts from around the UK and internationally who do not receive any funding from the grants, and are therefore not listed here. |
| Impact | Multidisciplinary: economics, sociology, developmental psychology, environmental sciences, education, epidemiology, biostatistics, public health, clinical paediatrics, clinical obstetrics, informatics, bioinformatics, genetics and epigenetics, biochemistry; |
| Start Year | 2009 |
| Description | The Life Study scientific advisory committees |
| Organisation | University of Southampton |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | scientific leadership, development of hypotheses, innovative methodology |
| Collaborator Contribution | scientific leadership and expertise in social science, genetic epidemiology, lifecourse epidemiology, ehealth, environmental epidemiology, environmental sciences, psychology, developmental psychology, anthropology, immunity, clinical peadatrics and obstetrics, biostats. There are a large number of additional contributions made by academics and other experts from around the UK and internationally who do not receive any funding from the grants, and are therefore not listed here. |
| Impact | Multidisciplinary: economics, sociology, developmental psychology, environmental sciences, education, epidemiology, biostatistics, public health, clinical paediatrics, clinical obstetrics, informatics, bioinformatics, genetics and epigenetics, biochemistry; |
| Start Year | 2009 |
| Description | The Life Study scientific advisory committees |
| Organisation | University of St Andrews |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | scientific leadership, development of hypotheses, innovative methodology |
| Collaborator Contribution | scientific leadership and expertise in social science, genetic epidemiology, lifecourse epidemiology, ehealth, environmental epidemiology, environmental sciences, psychology, developmental psychology, anthropology, immunity, clinical peadatrics and obstetrics, biostats. There are a large number of additional contributions made by academics and other experts from around the UK and internationally who do not receive any funding from the grants, and are therefore not listed here. |
| Impact | Multidisciplinary: economics, sociology, developmental psychology, environmental sciences, education, epidemiology, biostatistics, public health, clinical paediatrics, clinical obstetrics, informatics, bioinformatics, genetics and epigenetics, biochemistry; |
| Start Year | 2009 |
| Description | The Life Study scientific advisory committees |
| Organisation | University of York |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | scientific leadership, development of hypotheses, innovative methodology |
| Collaborator Contribution | scientific leadership and expertise in social science, genetic epidemiology, lifecourse epidemiology, ehealth, environmental epidemiology, environmental sciences, psychology, developmental psychology, anthropology, immunity, clinical peadatrics and obstetrics, biostats. There are a large number of additional contributions made by academics and other experts from around the UK and internationally who do not receive any funding from the grants, and are therefore not listed here. |
| Impact | Multidisciplinary: economics, sociology, developmental psychology, environmental sciences, education, epidemiology, biostatistics, public health, clinical paediatrics, clinical obstetrics, informatics, bioinformatics, genetics and epigenetics, biochemistry; |
| Start Year | 2009 |
| Description | The Life Study scientific advisory committees |
| Organisation | University of York |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | scientific leadership, development of hypotheses, innovative methodology |
| Collaborator Contribution | scientific leadership and expertise in social science, genetic epidemiology, lifecourse epidemiology, ehealth, environmental epidemiology, environmental sciences, psychology, developmental psychology, anthropology, immunity, clinical peadatrics and obstetrics, biostats. There are a large number of additional contributions made by academics and other experts from around the UK and internationally who do not receive any funding from the grants, and are therefore not listed here. |
| Impact | Multidisciplinary: economics, sociology, developmental psychology, environmental sciences, education, epidemiology, biostatistics, public health, clinical paediatrics, clinical obstetrics, informatics, bioinformatics, genetics and epigenetics, biochemistry; |
| Start Year | 2009 |
| Description | 6th European Survey Research Association Conference (Reykjavik, Iceland) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | Presentation was attended by around 20 international researchers Researchers engaged in Q&A session after the talk |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.europeansurveyresearch.org/conference |
| Description | 6th International Childhood Cancer Consortium (I4C) workshop, Lyon, October 2013 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | Oral presentation on UK Life Study after my talk there was interest in international collaboration with Life Study |
| Year(s) Of Engagement Activity | 2013 |
| URL | https://communities.nci.nih.gov/i4c/Conference%20Reports/Forms/AllItems.aspx?RootFolder=%2Fi4c%2FCon... |
| Description | ALSPAC 21st Anniversary Science Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | Outlined proposals for Life Study including timescales and opportunities to take part in consultations on the scientific protocol; large public audience at this event contacts for further information from interested scientists |
| Year(s) Of Engagement Activity | 2012 |
| URL | http://www.bristol.ac.uk/alspac/events/21st-conf/abstracts/ |
| Description | Asian Womens Event |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | 14 Asian women attended a Saturday event, asked questions related more to do with the NHS in general and women's health we were asked to send leaflets and posters to be put in the local Gudwara |
| Year(s) Of Engagement Activity | 2014 |
| Description | BHRUT AGM |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Health professionals |
| Results and Impact | 140 people present - mixture of patients/active members of the public/staff/stakeholders. Few questions about the study in particular about the centre and where it will be built. Overall very positively received Greater awareness among stakeholders and staff at BHRUT. |
| Year(s) Of Engagement Activity | 2014 |
| Description | BHRUT Consultants meeting June 2015 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Health professionals |
| Results and Impact | talk/presentation Better awareness of scientific protocol for recruitment of mothers and collection of biosamples in labour |
| Year(s) Of Engagement Activity | 2015 |
| Description | BHRUT Grand Round Oct 2014 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Health professionals |
| Results and Impact | talk to an audience of 50-100 followed by Q&A Better awareness of scientific objectives and design of Life Study among collaborators |
| Year(s) Of Engagement Activity | 2014 |
| Description | BHRUT Integrated Care Coalition |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Health professionals |
| Results and Impact | Wider awareness of Life Study in BHR Further invitations to attend other events and relevant meetings in the locality |
| Year(s) Of Engagement Activity | 2013 |
| URL | http://moderngov.barking-dagenham.gov.uk/documents/s74179/Appendix%201%20-%20Newsletter.pdf |
| Description | Barking and Dagenham Health and Wellbeing Board |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | Yes |
| Geographic Reach | Local |
| Primary Audience | Health professionals |
| Results and Impact | Further invitations to speak to GPs, social care and to engage with local religious and community groups. Invitation to GP Protected Time Initiative followed (to be arranged). Presentation followed by discussion and plans for further follow up engagement activities within health and social care sector especially |
| Year(s) Of Engagement Activity | 2014 |
| URL | http://moderngov.barking-dagenham.gov.uk/mgIssueHistoryHome.aspx?IId=49617 |
| Description | Born in Bradford Science Festival 7/9/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | talk/presentation Better awareness of scientific objectives and design of Life Study among potential users of the research data |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.bradford.ac.uk/mediacentre/news-releases/british-science-festival-programme.php |
| Description | Community Midwife Event |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Health professionals |
| Results and Impact | CM were given information leaflets about LS. Greater awareness among BHRUT CM - building trust. Understanding their role to play |
| Year(s) Of Engagement Activity | 2014 |
| Description | Community Midwife event - BHRUT |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Health professionals |
| Results and Impact | 85 Community Midwives present, of varying levels of seniority. Lots of questions about why we are doing the study? Why BHRUT? How they will have to help? Increased awareness amongst LS CM, better understanding to talk to pregnant women about LS |
| Year(s) Of Engagement Activity | 2014 |
| Description | Crick Seminar: The Population Laboratory, London, Sept 2012 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | awareness of potential for interdisciplinary research after my talk there was interest from basic scientists in epidemiological studies with biobanks |
| Year(s) Of Engagement Activity | 2012 |
| URL | http://www.crick.ac.uk/news/news-archive/2012/09/14/%E2%80%9Cthe-population-laboratory%E2%80%9D-cric... |
| Description | Data in Safe Havens workshop |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | Academy of Medical Sciences meeting - discussion of different attributes for creating research environment for record linkage and use of Big Data: a published report ensued Publication by Academy of Medical Sciences to inform policy development in this area |
| Year(s) Of Engagement Activity | 2014 |
| URL | http://www.acmedsci.ac.uk/policy/policy-projects/data-in-safe-havens/ |
| Description | ESRC Research Committee |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | Engaged social science research leaders and raised awareness of Life Study Requests for further information |
| Year(s) Of Engagement Activity | 2012 |
| Description | ESRC staff seminar April 2015 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | Talk/presentation Better awareness among funders of scientific objectives of Life Study |
| Year(s) Of Engagement Activity | 2015 |
| Description | HSCIC 31st January 2014 |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Record linkage for cohorts and longitudinal studies, making aware of requirements and research needs informed HSCIC strategy for research access to data |
| Year(s) Of Engagement Activity | 2014 |
| Description | Havering Health and Wellbeing Board |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | Yes |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | Presentation followed by discussion and plans for further follow up engagement activities within health and social care sector especially Further invitations to speak to GPs, social care and to engage with local religious and community groups |
| Year(s) Of Engagement Activity | 2014 |
| URL | http://democracy.havering.gov.uk/documents/g2832/Printed%20minutes%2015th-Oct-2014%2013.30%20Health%... |
| Description | Havering association of voluntary and community organisation (HAVCO) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | 60 people attended and lots of questions were asked about the study in particular people were very interested in the methodology of the research and also where we were going to recruiting participants from lots of valuable contacts were made - good networking opportunity |
| Year(s) Of Engagement Activity | 2014 |
| Description | Healthwatch Rutland |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | 10 parents attended and asked various questions about the research methodology Greater awareness for parents in Rutland - good networking opportunity |
| Year(s) Of Engagement Activity | 2014 |
| Description | LSC1 Interior Design |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | Asking people to choose from 3 colour options (architect mock ups of CASI AREA) - we got 20 responses to the colour pallet's from members of the public We went with the colour option that was the majority for the centre, increasing public involvement in LS |
| Year(s) Of Engagement Activity | 2014 |
| Description | Labour Ward Forum BHRUT July 2015 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | Talk/presentation Better awareness of scientific protocol for recruitment of mothers and collection of biosamples in labour |
| Year(s) Of Engagement Activity | 2015 |
| Description | Leicester Clinical Commissioning Group Feb 15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | Yes |
| Geographic Reach | Local |
| Primary Audience | Health professionals |
| Results and Impact | Talk/Presentation Better awareness by local commissioners of study and how to support it |
| Year(s) Of Engagement Activity | 2015 |
| Description | Life Study Baby Fair |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | 50 parents attended, including some Life Study mums and babies Wider local publicity and support for study |
| Year(s) Of Engagement Activity | 2015 |
| Description | Life Study Centre BHRUT opening event March 2015 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Opening of Life Study Centre with staff, public, local councillors/politicians, Meera Syal Centre opened for participants to attend for research purposes |
| Year(s) Of Engagement Activity | 2015 |
| Description | Life Study Launch Event Feb 2015 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | 150 people attended a House of Lords launch event for Life Study which comprised brief presentations from the chair of the APPG on medical research who hosted the event, senior members of the funders and study team. The event sparked questions and discussion and raised the profile of Life Study among politicians. tbc |
| Year(s) Of Engagement Activity | 2015 |
| Description | Life Study Stand in atrium of BHRUT |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | Varies - on average we speak to 70 + members of the public over a day. Interesting questions and good use of collateral Greater awareness among BHRUT of LS - building trust |
| Year(s) Of Engagement Activity | 2014 |
| Description | Life Study at Leicester Medical School (super seminar) 10/9/15 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | talk/presentation Better awareness of scientific objectives and design of Life Study among potential users of the research data |
| Year(s) Of Engagement Activity | 2015 |
| Description | MRC workshop on the scientific and translational opportunities from population cohorts |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | Discussant at workshop and contributed to review report as part of discussion. 'Maximising the value of UK population cohorts' - the MRC strategic review of the largest UK population cohorts. |
| Year(s) Of Engagement Activity | 2013 |
| URL | http://www.mrc.ac.uk/news-events/publications/maximising-the-value-of-uk-population-cohorts/ |
| Description | Maternity services liaison committee - engagement of participant materials |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Consultation on participant materials. 13 members of the public attended (mums/expectant mums) 6 members of NHS staff. We received feedback about the use of imagery, text and also the title for the research study. We asked for local knowledge about where best to engage with mums for recruitment. We used the feedback to inform the final design of the participant materials. We were able to use the local knowledge given to improve our strategy for community engagement |
| Year(s) Of Engagement Activity | 2014 |
| Description | Meeting with Chaplain at BHRUT |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Informal discussion about LS - Chaplain gave us lots of information about who to contact for various faiths NA |
| Year(s) Of Engagement Activity | 2014 |
| Description | Meeting with Health Visitors - NELFT |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Health professionals |
| Results and Impact | Verbal presentation about Life Study - without PowerPoint (by COO, however Engagement manager and RM present) We established good contacts with H.V and also how we would raise the profile of Life Study amongst HV in the area |
| Year(s) Of Engagement Activity | 2014 |
| Description | Meeting with Imam at BHRUT |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Informal discussion about LS - Imam said we need to speak to the local mosques to publicise about LS, and put our posters up NA |
| Year(s) Of Engagement Activity | 2014 |
| Description | Meeting with UK Government Deputy Directors of Analysis and Innovation (DDANs), Oct 2012 |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | The discussion sparked further enquiries from a DDAN and a subsequent meeting with other DH officials to discuss aspects of Life Study in relation to health policy in more depth Ongoing engagement with DDANs |
| Year(s) Of Engagement Activity | 2012 |
| Description | NELFT AGM |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Health professionals |
| Results and Impact | 130 people present at the event. Spoke to many NELFT staff (HV and nursing) - lots of networking opportunities Greater awareness among stakeholders and staff at BHRUT |
| Year(s) Of Engagement Activity | 2014 |
| Description | NICHD Jan 2015 (PE) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | Talk to an audience of approx 40 followed by Q&A Enquired about the possibility of the Life Study Director doing a follow up presentation at NICHD to address some of the more MRC/medical type questions |
| Year(s) Of Engagement Activity | 2015 |
| Description | NIHR GOSH open day Nov 2014 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Over 200 members of the public attended with various science related activities running. LS had a stand more for information giving purposes. Engagement team present and project office team members. NIHR staff also present Good opportunity to showcase LS to wider science community. Good opportunity to raise the profile of LS to the wider general public |
| Year(s) Of Engagement Activity | 2014 |
| Description | Normal Labour & Birth: 10th Research Conference Programme June 2015 (PB) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | The talk did spark lots of discussion and interest amongst the audience. In addition I was approached by several groups, most notably from China and Australia about working closely with similar birth cohorts being assembled, or planned, to share information about the measures that we chose, about the potential for future collaboration to compare across different cohorts, or to augment numbers to answer questions for rarer conditions or exposures, and to assist in extending their cohorts to collect the microbiome samples, and to share SOPs for these sample collections. The most important activity was to make contact with different but similar birth cohorts elsewhere in the world. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Nursery arts project |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Schools |
| Results and Impact | Produced hand prints from children that have been made in to LIFE STUDY and put on wall in Life Study Centre 1 N/A |
| Year(s) Of Engagement Activity | 2014 |
| Description | Otto Wolff Lecture at UCL Institute of Child Health |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | talk to an audience of 50-100 followed by Q&A Better awareness of scientific objectives and design of Life Study among potential users of the research data |
| Year(s) Of Engagement Activity | 2014 |
| Description | POST seminar on Big Data and Governance, November 2014 |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | Yes |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Discussion with academics and policy makers about Big Data Raised parliamentary awareness of the importance of record linkage for longitudinal research |
| Year(s) Of Engagement Activity | 2014 |
| URL | http://www.parliament.uk/mps-lords-and-offices/offices/bicameral/post/post-events/big_data_and_gover... |
| Description | Primary School Arts Project |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Schools |
| Results and Impact | produced 5 large pieces of artwork which have been put up in Life Study Centre 1. Children from class visited the centre to view their artwork N/A |
| Year(s) Of Engagement Activity | 2014 |
| Description | Redbridge Children and Young Peoples's Network meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | 30 people attended and lots of questions were asked about the study in particular people were very interested in the methodology of the research and how were are going to take the samples etc. lots of valuable contacts were made and we were asked to do a follow up meeting - increasing our visibility in the community |
| Year(s) Of Engagement Activity | 2014 |
| Description | Redbridge Childrens Services Planning Workshop 27th February 2014 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Health professionals |
| Results and Impact | contributed to planning of children's services in Life Study Centre 1 locality |
| Year(s) Of Engagement Activity | 2014 |
| URL | http://democracy.havering.gov.uk/documents/s11617/Appendix%201%20-%20Strategy%20Template_Master_fina... |
| Description | Redbridge Health and Wellbeing Board |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | Yes |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | Presentation followed by discussion and plans for further follow up engagement activities within health and social care sector especially Further invitations to speak to GPs, social care and to engage with local religious and community groups |
| Year(s) Of Engagement Activity | 2014 |
| URL | http://moderngov.redbridge.gov.uk/documents/g6624/Printed%20minutes%2027th-Oct-2014%2014.15%20Health... |
| Description | Senior Managers Briefing BHRUT |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | 100 senior managers present - lots of Q&A - especially about how the trust fits in with the research More buy-in from senior management team at the trust - increased awareness of Life Study overall |
| Year(s) Of Engagement Activity | 2014 |