Building Inclusive Recovery through Theatre (BIRTh): people with autism going beyond the COVID-19 pandemic in Peru
Lead Research Organisation:
Queen Mary University of London
Department Name: Drama
Abstract
To address the increased social isolation and consequent mental distress of neurodiverse young people during the COVID-19 pandemic, who were already experiencing severe marginalisation in Peru, People's Palace Projects/PPP in the Queen Mary University of London Drama Department (UK), Flute Theatre (UK), Teatro La Plaza (Peru) and the Centre of Excellence in Chronic Diseases/CRONICAS (Peru) created Heartbeat; Creating Recovery (AH/V013688/1): a research project that designed, implemented and tested an inclusive, participatory and interactive Spanish language online production of The Tempest (La Tempestad). The production was developed using the Hunter Heartbeat Methodology of drama games, which offer autistic people an opportunity to express themselves in a creative space dedicated to their needs and abilities.
Evaluation of the project was overwhelmingly positive;
*Participants enjoyed themselves while learning skills and building their personal and social capacities.
*Families found an inclusive environment built on trust and noticed reduced levels of mental distress in their children.
*Representatives from arts, health, education and culture called for the project to be incorporated into government and non-governmental services.
*The digital environment provided stable social connections during a period of extreme uncertainty.
However, recent research by Peru's National Council for the Integration of Persons with Disability (CONADIS) emphasises that the long-term discrimination, neglect and marginalisation affecting the neurodiverse community predates the COVID-19 pandemic (CONADIS, 2021). Moreover, the UN Economic Commission for Latin America (CEPAL) are projecting a pessimistic outlook for the future without an urgent overhaul of Disability and neurodiversity policymaking in Latin America (Meresman & Ullmann, 2020). The benefits of engagement with artistic and/or creative activities for neurodiverse people are widely evidenced in government reports, arts and culture surveys and academic literature. But the unparalleled levels of exclusion from culture experienced by autistic people in Latin America is perpetuated by the same Peruvian national policies designed to address structural discrimination. The limited resources and specialist services that are available tend to be concentrated in larger cities, making rural populations, women and Indigenous people the most vulnerable to the correlation between Disability, poverty and social exclusion (CONADIS, 2021). Making resources available beyond geographical barriers and deliverable in community settings is clearly essential to addressing access to services and reaching communities threatened by intersecting vulnerabilities.
The Follow-On project will focus on touring a live and online production of The Tempest (La Tempestad) in Peru, which has been determined as the most effective way to enhance the value and extract the maximum benefit from the original research project. By developing a toolkit of activities to accompany the production, the Follow-On project will achieve significant social and cultural impact as well as provide a transferable and low-cost model that can be scaled up by stakeholders and policymakers. This Follow-On will demonstrate that Heartbeat is a programme that can be flexibly delivered in a variety of settings, including in rural and hard-to-reach communities that urgently need support services. Sharing accessible resources with larger audiences through high-profile performance events, stakeholder roundtables and an impactful communications campaign that raise awareness of autism, this Follow-On applies the methods identified by members of the Disabled and neurodiverse community in Peru for improving their quality of life (CONADIS, 2021).
Evaluation of the project was overwhelmingly positive;
*Participants enjoyed themselves while learning skills and building their personal and social capacities.
*Families found an inclusive environment built on trust and noticed reduced levels of mental distress in their children.
*Representatives from arts, health, education and culture called for the project to be incorporated into government and non-governmental services.
*The digital environment provided stable social connections during a period of extreme uncertainty.
However, recent research by Peru's National Council for the Integration of Persons with Disability (CONADIS) emphasises that the long-term discrimination, neglect and marginalisation affecting the neurodiverse community predates the COVID-19 pandemic (CONADIS, 2021). Moreover, the UN Economic Commission for Latin America (CEPAL) are projecting a pessimistic outlook for the future without an urgent overhaul of Disability and neurodiversity policymaking in Latin America (Meresman & Ullmann, 2020). The benefits of engagement with artistic and/or creative activities for neurodiverse people are widely evidenced in government reports, arts and culture surveys and academic literature. But the unparalleled levels of exclusion from culture experienced by autistic people in Latin America is perpetuated by the same Peruvian national policies designed to address structural discrimination. The limited resources and specialist services that are available tend to be concentrated in larger cities, making rural populations, women and Indigenous people the most vulnerable to the correlation between Disability, poverty and social exclusion (CONADIS, 2021). Making resources available beyond geographical barriers and deliverable in community settings is clearly essential to addressing access to services and reaching communities threatened by intersecting vulnerabilities.
The Follow-On project will focus on touring a live and online production of The Tempest (La Tempestad) in Peru, which has been determined as the most effective way to enhance the value and extract the maximum benefit from the original research project. By developing a toolkit of activities to accompany the production, the Follow-On project will achieve significant social and cultural impact as well as provide a transferable and low-cost model that can be scaled up by stakeholders and policymakers. This Follow-On will demonstrate that Heartbeat is a programme that can be flexibly delivered in a variety of settings, including in rural and hard-to-reach communities that urgently need support services. Sharing accessible resources with larger audiences through high-profile performance events, stakeholder roundtables and an impactful communications campaign that raise awareness of autism, this Follow-On applies the methods identified by members of the Disabled and neurodiverse community in Peru for improving their quality of life (CONADIS, 2021).
Title | La Tempestad |
Description | Online and in-person participatory scenic experience contextualised in the universe and characters of William Shakespeare's play 'The Tempest.' It consists of a series of theatrical games with accessibility tools for neurodivergent children and youth. The games in the play were designed based on the Hunter Heartbeat method |
Type Of Art | Performance (Music, Dance, Drama, etc) |
Year Produced | 2023 |
Impact | This play was the first participatory theatre production focused on the autistic community and their families, reaching over 295 neurodivergent participants. The play was also the first introduction to theatre in the Majes district, where attendees mentioned they had not seen a play before. In addition to generating a positive impact among neurodivergent participants and their families, who reported a change in attitude within families and the participants themselves. |
URL | https://www.instagram.com/p/Cze-a1PMW7M/ |
Description | The development of this project has demonstrated to us that the transfer of a method created to promote accessible theatre for neurodivergent individuals is feasible. Additionally, it has shown us that the neurodivergent community in this case of Peru has not had similar experiences before. Furthermore, the evaluation conducted confirms that the project has received significant demand and acceptance from this community and their families. Moreover, the project has also demonstrated that the application and dissemination of theatrical games using the Hunter Heartbeat method not only entertains and brings together neurodivergent participants but also their families, creating a moment of joy and a horizontal relationship among them. Another fundamental discovery has been actively involving two autistic individuals in the decision-making, development, communication, and design of the project, who have been part of the theatre team in Peru. |
Exploitation Route | Teatro La Plaza seeks to apply for additional funding to facilitate the expansion of the play's reach to all regions of Peru and to conduct workshops for sharing theatrical games based on the method. This will enable others to apply these techniques within the neurodivergent community in their respective areas. The development of a toolkit, featuring instructional videos on theatrical games based in the Hunter Heartbeat Method, will allow artistic/cultural/educational organisations worldwide to integrate these activities into their communities. The significant impact of the method transfer and project findings in Peru suggests potential applicability in other countries seeking to replicate the experience. This project creates an opportunity to initiate further research aimed at deepening our understanding of the development of artistic activities and their benefits within the neurodivergent community. |
Sectors | Communities and Social Services/Policy Education Healthcare Leisure Activities including Sports Recreation and Tourism Culture Heritage Museums and Collections |
URL | https://laplaza.com.pe/proyectos-de-investigacion/ |
Description | This project is a first step to expand the theatrical experience to the neurodivergent audience in Peru. The creation of the website will allow the project to continue expanding, reaching and engaging more participants in Peru and other parts of Latin America. It has also led to the reassessment of theatrical production policies at Teatro La Plaza, making their theatrical works more accessible. Furthermore, through the website and workshops, it is expected that the theatrical games become tools for communication and learning among educators, artists, families, and the neurodivergent community. This includes involving neurodivergent artists and advisors as key contributors to the design of accessible projects. |
First Year Of Impact | 2023 |
Sector | Communities and Social Services/Policy,Education,Healthcare,Leisure Activities, including Sports, Recreation and Tourism |
Impact Types | Cultural Societal |
Description | Científica del Sur University Collaboration partnership |
Organisation | Scientific University of the South |
Country | Peru |
Sector | Academic/University |
PI Contribution | We have been responsible for coordinating and providing information to the researchers for study purposes, as well as disseminating the results. |
Collaborator Contribution | The Scientific University of the South has been tasked with the evaluation of the project to assess the reach and impacts of the online and in-person theatrical production, workshops, and the use of the toolkit. |
Impact | Assessment of the scope and impact of the project. |
Start Year | 2023 |
Description | Flute Theatre collaboration partnership |
Organisation | Flute Theatre |
Country | United Kingdom |
Sector | Public |
PI Contribution | People's Palace Projects led the application process and the grant management, as well as coordinating and liaising with all the local partners in Peru and the UK. |
Collaborator Contribution | The Flute Theatre's artistic director Kelly Hunter MBE has led the artistic activities in the project, organising the rehearsals, training and co-creation workshops with Teatro La Plaza (La Plaza Theater) in order to transfer the Hunter Heartbeat methodology. Together they also devised an interactive online performance of the Tempest/La Tempestad created for an with autistic people. |
Impact | - Co-creation of an online interactive show for autistic people based on The Tempest (William Shakespeare). - Transfer of the Hunter Heartbeat methodology from one theatre company to the other in the context of a one-month Digital Theatre Laboratory on the platform Zoom. |
Start Year | 2021 |
Description | Teatro La Plaza collaboration partnership |
Organisation | La Plaza Theater |
Country | Peru |
Sector | Private |
PI Contribution | We have been responsible for facilitating the connection between Teatro La Plaza and the British company Flute Theatre, as well as all logistical and coordination activities related to the development of the project during the pre-production, elaboration, and evaluation stages. Additionally, we have shared the findings, learnings, and reflections of the Peruvian company during the project's development with the Latin American community through a webinar. Furthermore, we have coordinated the project evaluation stage in collaboration with the researchers of Científica del Sur University in Peru. |
Collaborator Contribution | Teatro La Plaza has been responsible for appointing the artistic and production team for the creation of the theatrical piece through the exchange of the Hunter Heartbeat method. They have also taken charge of the design, elaboration, and production of the theatrical work, workshops, toolkit, and communication materials. Additionally, they have been responsible for contacting and inviting the autistic and neurodivergent community in Lima, Arequipa, the Majes district, and Chincha, where the project has been developed. |
Impact | - Co-creation of an online and in-person show for neurodivergent children and youth based on The Tempest (William Shakespeare) in urban and rural areas of Peru. - Design and elaboration of artistic workshops. - Dissemination of the project to neurodivergent communities in Peru. - Design and elaboration of the toolkit. |
Start Year | 2023 |
Description | Heartbeat toolkit |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Study participants or study members |
Results and Impact | Website created to share information about the project and explanatory videos of the 12 theatrical games based on the Hunter Heartbeat method with accessibility tools for neurodivergent individuals. It is intended to be used by educators, families, artists, and the neurodivergent community. |
Year(s) Of Engagement Activity | 2023 |
URL | https://latecorazon.pe |
Description | Roundtables |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Study participants or study members |
Results and Impact | Conversations held between the members of the cast of the play 'The Tempest' and the audiences to share reflections and questions about the Heartbeat method. |
Year(s) Of Engagement Activity | 2023 |
Description | Webinar on how to create accesible theatre |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | Discussion with the members of the Teatro La Plaza cast, the Peruvian cast, and the director of Flute Theatre company, creator of the Hunter Heartbeat method, to share their reflections on the method transfer process and their learnings and challenges in the project development process |
Year(s) Of Engagement Activity | 2023 |
URL | https://www.youtube.com/watch?v=WMJ9BWjLPrA&t=1889s |
Description | Workshop for educators, artists, and families |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | Workshops based on theatrical games from the Heartbeat method for educators/artists and caregivers of neurodivergent individuals. |
Year(s) Of Engagement Activity | 2023 |