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Fighting 4 Rights: Young People's International Evidence Network for Disability & Solidarity

Lead Research Organisation: University of Lancashire
Department Name: Sch of Social Work, Care and Community

Abstract

The Global Network for Young Researchers Co-creating Change (GNYRCC) will enable collaboration between young disabled people aged 12-30 and their academic allies, across borders and across disciplines, to reflect on experiences of marginalisation and to set further agendas for research. They will share personal and research narratives and advice on how they learn together about research, co-creating evidence accessible learning resources to inform further inclusive research to support ongoing activism. The proposed network is being initiated by UCan, a group of experience young disabled co-researcher. It aims, through developing creative participatory methods to strengthen young disabled people's opportunities for influence, to surface narratives and intersecting issues in contexts identified by young disabled people. The network will address inequalities in power in research by enabling young disabled people to co-direct internal funds for co-creating accessible learning resources and through four project grants used to develop their research locally and cross-nationally to amplify the perspectives of other disabled children and young people. The network will also provide insights into strategies for inclusive collaboration and impact that can be sustained beyond the funding period. GNYRCC will link young disabled researchers who are already instigating and carrying out impressive research with support from leading academics including CO-Is Brady, Franklin and Robinson, and practitioners globally, who are supportive of a social model of disability and actively involved in the advancement of young disabled people's rights. For example UCan trained young disabled people in Japan to carry out research exploring experiences of rights and this informed an alternative report to the UN about rights in Japan. Research by RIP:STARS has informed policy in the UK and is currently conducting a study in the Philippines. The Centre links academics and practitioners across the world, and these allies will be instrumental in bringing young disabled people together, especially from those majority nations where most of the populations live but are least advantaged. A long-term approach is required to establish and coordinate and sustain GNYRCC beyond the funding period, so GNYRCC will be managed by a core academic team at The Centre for Children and Young People's Participation at UCLan. GNYRCC is of huge importance in addressing the minimal consideration in public decisions and absence from policy making processes of young disabled people. Through working together, amplifying their voices and impact strategies through the co-creation of learning resources and guidance on international networking, research and reflection, GNYRCC will build capacity to enable young disabled people to inform future scrutiny of each country by the UN Committee on the Rights of the Child and to respond to national calls to strengthen young disabled people's participation in policymaking. For example, in the UK, this will build studies which provided evidence to the Speaker of the Commons and to a Select Committee. GNYRCC will achieve its aims through innovative creative multi-modal and multi-lingual participatory approaches using media such as film, podcasts, photography to collate narratives and learning about effective research and impact practice in ways that are accessible for a wide audience. Young researchers will and work with media specialists to create a film of the evolving network, challenges and enablers to research for change in young disabled people's lives. They will develop a Disability Discrimination Digibank. The cocreated learning resources and Digibank examples, with young people's agreement will be located in the UCanMakeChange2.org Advice and Evidence banks. This website, developed by UCan provides a platform to open debate and share learning from across the network and will be sustained for at least 5 years beyond the grant period.

Publications

10 25 50
 
Title COMMUNITY 
Description A short film about what it means to form a community through collaborative research. FriendsF4R Film II. 
Type Of Art Film/Video/Animation 
Year Produced 2024 
Impact Personal impact for the undergraduate student who will use this as part of her portfolio too. 
 
Title CONNECTING 
Description A short film about what it means to connect through an international network. FriendsF4R Film I. 
Type Of Art Film/Video/Animation 
Year Produced 2024 
Impact Impact on two undergraduate students and one international student from Japan who were involved in making teh film. 
 
Title Don't Judge a Book by Its Cover 
Description Young disabled researchers who are part of UCan (YOUCan) conducted one of the microprojects funded through the FriendsF4R network project. They asked disabled children and young people to create avatars and tell them about what they are proud of and fears they have overcome. These challenge assumptions about disability. They also asked disabled children and young people to create artwork to convey challenges in their everyday lives. The drawings, painting, short films and poetry will feature in an exhibition later this Spring. 
Type Of Art Artwork 
Year Produced 2024 
Impact Disabled children and young people empowered through being able to express their views and experiences and connect with a project involving other disabled children and young people. 
 
Description The FriendsF4R project (short name) has enabled the successful creation of an innovative new international network for young disabled people aged 12-29 to instigate and carry out research about matters that affect them and for knowledge exchange, supported by academic allies in five countries. Four youth led micro-projects and youth led engagement events in Zimbabwe and Uganda were funded and developed to varying stages by the young people with support from their academic allies. This included: literatures review and research design; a survey with analysis of results; creative approaches and exhibition of outcomes; pilot participatory study; awareness raising and public engagement. They shared proposals, reflections and presentations on the enablers and barriers to collaborative research, narratives of discrimination and also what works from their own experiences and where they hope the work will have impact. Our models for collaborative practice have been tried out and improved through the project. Notable is how these respond to young people's individual needs, cultural and economic differences and enable young disabled people to make connections between their experiences across borders. This has produced groundbreaking insights into the possibilities of collaborative research in diverse contexts. Follow on projects with existing and new collaborators, will draw on these models.

Critical reflection by the young people with academics during all the engagement activities has enabled the project to create new knowledge about inclusive research environments and networks involving young disabled people that will be shared in forthcoming papers with international relevance. Along with the creative outcomes, these will share evidence about important social considerations in developing inclusive research environments with young disabled people. The research also demonstrates how young people's influence on what is researched and on the processes adopted can result in rich data. The series of engagement activities and Conferences have opened up important new research questions and possibilities from the connections that young disabled people have made between their micro-projects and activities.

There is also insight into what works or presents a challenge for young people with a very broad range of disability or impairments when using different platforms to communicate and critically reflect. Access to a range of applications and interpretation, tailored to the particular activity and people involved is resource intensive and requires skilled facilitators to work well but is possible at an international level. Physical meeting is important to grow a sense of belonging and to understand team members capabilities and contributions. The outputs co-written with young people will discuss how increased capability can be generated from networks. To ensure longevity of the project, and to increase impact, the young disabled researchers who instigated the network, have also commissioned a new website where the DigiBank of creative outputs from the project and details of the young people's micro-projects can be accessed.
Exploitation Route The outcomes about creating international networks and meaningful inclusion of young disabled people are useful for policy and decision makers who should be enabling all children and young people to participate in decisions that affect them as per Article 12 of the UNCRC. The findings challenge perceptions about the capabilities of young disabled people and provide information about the resourcing and facilitation of engagement and research activities that will be useful for public and third sector organisations in respecting the United Nations Convention on the Rights of Disabled Persons and national and local policy. The website as a place for sharing advice and creative outputs and the network itself will be applicable to young disabled people and researchers to build collaboration and future projects. The papers will provide insight for academics and policy makers into the common experiences that have connected young disabled people from across the globe and how learning from diverse settings can impact others when time and resources are made available for young people to work with their allies for change.
Sectors Communities and Social Services/Policy

Education

Healthcare

Government

Democracy and Justice

URL http://www.friendsf4r.org
 
Description The FriendsF4R project (short name) has enabled the successful creation of an innovative new international network for young disabled people to instigate and carry out research about matters that affect them and for knowledge exchange, committed to increasing opportunities for young disabled people to contribute to research. Young people who are members of new and established young disabled people groups have met through a series of online workshops, three hybrid workshops, a FriendsF4R International Conference in the UK April 2024, and a small FriendsF4R International Conference in Rwanda in November 2024. The young community researchers are supported by academic allies - professors, researchers and creative practitioners committed to young people's participation and exploring inclusive ways to collaborate with disabled children and young people. The institutional partnerships have enabled research resources and funding to be put in the hands of young disabled people who want to carry out their own research. Through their research projects and engagement activities, they have reached out to young disabled people in community groups, parent groups, education and health and social care services, enabling more young people to have a say in matters that affect them. Two youth led research microprojects in the United Kingdom and an initial design workshop with the young people from each, enabled the network academics to reach out to young disabled people in Australia and Japan, and then to Zimbabwe and Uganda. The micro-projects were initiated and conducted by the young disabled groups in their own communities. They shared their approaches, successes and challenges to collaborative research with the network members which enabled critical reflection. Issues that the micro-projects address are: stereotypes and attitudes towards disability; young people unable to attend school; suitability of adjustments for neurodiverse students; and perspectives on school inclusion. These projects have enabled the network to begin to model their creative and varied approaches to collaborative research that focus on inclusion and young disabled people's influence, which will be used to support groups of young disabled people new to research in future projects. The DYANZ group of disabled young people from Zimbabwe organised a seminar and members have joined all the online meetings and workshops. Their academic ally joined the FriendsF4R UK Conference; the young disabled people from Zimbabwe being denied UK visas. Two young people were able to join the Rwanda Conference. Young people from another of the AHRC disability grants networking scheme, Disability Youth Investigates (DYI), also joined the Friends4R network meetings, and both conferences. These young researchers have given presentations and organised a panel discussion composed by members from OPDs, local leadership, DIY participant and youth researchers as a result of funding from the FriendsF4R project. Through meeting together at the small conference in Rwanda, we were able to connect with two more disability organisations and make plans for future work that builds on our network and research models and findings. Further impact achieved by the network activities at this early stage is the connection and community built between the young disabled people and between them and their academic allies. The 'Connecting' and 'Community' films capture how these have been achieved by the FriendsF4R network and the importance to the young people of opportunities to meet in person and the richness added to the research by building understanding through knowledge exchange that enabled them to consider different cultural and economic contexts. Forging a meaningful global network has been challenging, because it takes time to establish relationships across borders using online technologies, especially when there are language and access barriers. The residential opportunities to meet and participate in participatory knowledge exchange about collaborative research were life enhancing experiences for the young disabled people who took part, whether travelling from across the world or within the UK. Many challenges had to be overcome, including the visa issues, safeguarding, lack of awareness about meaningful adjustments, accessibility issues during travel, and when we were trying to find suitable conference facilities. Helpful in addressing these was an academic and student team with high representation of disabled adults, and time in meetings and workshops to plan the conferences together, enabling ownership across the group. Students and early career researchers also experienced life enhancing opportunities through experiencing creative research approaches, and by making outputs such as the films. These personal and cultural impacts add strength to the network providing the foundations for further research instigated by young disabled people about matters that affect them that are not always apparent through gaps in the academic literature. Young disabled people in the group have reported how their confidence to get involved in research has grown. Two have gone on to apply for employment in research or advocacy roles. Through their research, young disabled people are connecting with other groups interested in evidencing similar issues leading to new collaborations. The website is an outcome that we will use to anchor the network and begin to publicise the research that is taking place and showcase digital outputs. Conducting the critical reflection throughout the process has produced groundbreaking insight into the possibilities of collaborative research in diverse contexts opening up opportunities for new projects, and will be shared in the academic papers that we are currently writing together.
First Year Of Impact 2024
Sector Communities and Social Services/Policy
Impact Types Cultural

 
Description MA PPCYP SW4822
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Contribution to new or improved professional practice
 
Description Disabled Youth Investigates, Uganda 
Organisation Medical Research Council (MRC)
Department MRC/UVRI and LSHTM Research Unit Uganda
Country Uganda 
Sector Academic/University 
PI Contribution Expertise in collaborative research with young people. Resources to conduct collaborative research dissemination online and in Uganda. Knowledge Exchange about collaborative research with disabled children and young people. Knowledge about creative research approaches with disabled children and young people. Leadership of planning and facilitation of FriendsF4R network events. Opportunities to meet: regularly online and through network events. Resources to attend the FriendsF4R Conference April 2024. Resources to attend the FriendsF4R Rwanda Conference November 2024. Networking opportunities for future research projects.
Collaborator Contribution Knowledge Exchange about collaborative research with disabled children and young people. Knowledge exchange about narratives of disability in different areas of the world. Knowledge exchange about peer led research with disabled children and young people. Experience of disabled youth activism and how to impact policy. Participation in exploring narratives of marginalisation and disability.
Impact Online FriendsF4R Network event January 2024. FriendsF4R conference April 2024 Rwanda Conference November 2024
Start Year 2023
 
Description Sakura Blooms 
Organisation J. F. Oberlin University
Country Japan 
Sector Academic/University 
PI Contribution Expertise in collaborative research with young people. Resources to conduct a youth led micro-project 'Do disability accommodations at university help?' Knowledge Exchange about collaborative research with disabled children and young people. Knowledge about creative research approaches with disabled children and young people. Leadership of planning and facilitation of FriendsF4R network events. Opportunities to meet: regularly online and through network events. Resources to attend the FriendsF4R Conference April 2024. Networking opportunities for future research projects.
Collaborator Contribution Knowledge Exchange about collaborative research with disabled children and young people. Knowledge exchange about narratives of disability in different areas of the world. Knowledge exchange about peer led research with disabled children and young people. Experience of disabled youth activism and how to impact policy. Participation in exploring narratives of marginalisation and disability.
Impact Online FriendsF4R Network event January 2024. FriendsF4R conference April 2024
Start Year 2023
 
Description FriendsF4R Conference April 2024: 'Challenging outdated ideologies around disability and special educational needs' 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Study participants or study members
Results and Impact The research team organised 'Challenging outdated ideologies around disability and special educational needs,' a 3 day residential international conference at Tower Wood, Windermere, Cumbria, UK, Friday 12th April - Sunday 14th April 2024 attended by 38 people. This included 20 disabled young people aged 15-28 from the UK, Japan, Uganda, and Australia, 8 academics (UK, Japan, Uganda, and Australia and Zimbabwe), 2 ECRs, a Senior Lecturer in Film and 3 undergraduate film students (UK and Japan), a youth worker, and 4 carers. Participants and staff have a range of disabilities including cerebral palsy, gearing impairment, visual impairments and autism. During the event we also held an online seminar attended by a further 12 young people, an academic and interpreter from Japan. An orientation seminar was held at Manchester Metropolitan University for the international participants on Thursday 11th April before traveling to the conference by coach. Participants shared progress on their micro-projects.

The aims of the 3 days of workshops at Tower Wood were to:
• cocreate evidence (what matters to disabled young people and what can academics do to support collaborative research)
• developing collaborative research advice
• share experience of young people led projects and providing resources for young people's microprojects
• make films about the growing network and collaborative research
• develop the foundations for a digibank of electronic resources for collaborative research
• write together
• identify what we can do next

Participatory activities organised by the research team were built around three themes that had been identified together through the previous online engagement meetings:

Day 1 Connection
• Sharing information about who we are, our countries and our research projects
• Identifying what experiences and concerns are similar in each country? What is different?
• Identifying together what makes good inclusion or feeling that we belong.
Day 2 Reflection
• Sharing the challenges that affect us and how we address these.
• Imagining what a world free of disability discrimination and marginalisation would look like
• Developing understanding of what makes a good collaborative research project involving young disabled people and academics
Day 3 Action
• Learning how the network might help people to do more young people led research with impact

The researchers collected data from all of the activities including photographs of paper-based notes and drawings, artwork, audio recordings and video recordings.
Year(s) Of Engagement Activity 2024
 
Description FriendsF4R Rwanda Conference November 2024 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Study participants or study members
Results and Impact Some members of the group were unable to secure UK visas for the FriendsF4R Conference in April. This smaller Conference in Kigali, Rwanda 28th- 29th November 2024 enabled four young disabled people from Uganda and Zimbabwe and academic to meet with the PI and Film maker in Kigali, Rwanda. this included a wheelchair user, two visually impaired people and an autistic person. The aim was to consider the feasibility of future events for disabled young researchers, on the African continent, for knowledge exchange. The participants also contributed to bid-writing and academic writing.
Year(s) Of Engagement Activity 2024
 
Description FriendsF4R website 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Members of the new FriendsF4R network have been involved in creating ideas for a new website to maintain and build the group's profile and begin to reach out to other potential young disabled researchers and their academic allies. As the website and project grows, this will become an increasingly effective space through which to share knowledge and experience of collaborative research. The first edition of the website (due March 2025) includes details of the microprojects supported by the projects and the young disabled research groups, conference proceedings and the first two films (CONNECTING and COMMUNITY). A co-created poster with collaborative research advice will also be added this year, along with images of the Artwork from the 'Don't judge a Book by Its Cover' exhibition and links to academic outputs once published.
Year(s) Of Engagement Activity 2025
 
Description Network Hybrid Event 20th January 2024 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Study participants or study members
Results and Impact This Network Hybrid Event on Saturday January 20th 2024 brought together young disabled people who are interested in or undertaking collaborative research.
Young disabled people aged 15-29 and/or an academic representative working with each group participated from England (Preston and Coventry), Northern Ireland, Zimbabwe, Uganda, Japan and Australia.
At this event, we met new members from our collaborations with Oberlin University, Japan and Flinders, Australia.
Young people from Uganda and Japan gave presentations about their peer led micro-projects, which are being funded by this project.
The young people were engaged in sharing perspectives about disability issues and collaborative research which will be used to inform the conference in April 2024 and to co-create resources.
Young people unable to join the online activity took part in participatory activities planned using learning from the previous events and shared these using Discord.
Student film-makers who have engaged with the project also took part and added footage for a film that will introduce and draw together learning from the network later in the project.
Year(s) Of Engagement Activity 2023
 
Description Network Online Event 11th December 2023 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Study participants or study members
Results and Impact This Network Online Event on December 11th 2023 brought together young disabled people who are interested in or undertaking collaborative research.
Young disabled people aged 15-29 and/or an academic representative working with each group participated from England (Preston and Coventry), Zimbabwe and Uganda.
At this event, we met young disabled people training to do community research from a new collaboration with the Disabled Youth Investigates (DYI) group, MRC, Uganda.
The young people were engaged in sharing perspectives about disability issues and collaborative research which will be used to inform the conference in April 2024 and to co-create resources.
Year(s) Of Engagement Activity 2023
 
Description Network Online Event 20th November 2023 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Study participants or study members
Results and Impact This Network Online Event on November 20th 2023 brought together young disabled people who are interested in or undertaking collaborative research.
Young disabled people aged 15-29 and/or an academic representative working with each group participated from England (Preston and Coventry), Belfast, and Zimbabwe.
At this event, we met new members from a new collaboration with DYANZ, Zimbabwe.
The event was also attended by academics (Berni Kelly) from Queens University, Belfast, who were interested in inviting a young disabled group they are working with, to join the project, which they did after the meeting.
The young people were engaged in sharing perspectives about disability issues and collaborative research which will be used to inform the conference in April 2024 and to co-create resources.
Year(s) Of Engagement Activity 2023
 
Description Network Online Event 26th October 2023 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Study participants or study members
Results and Impact This Network Online Event on Thursday morning October 26th 2023 brought together young disabled people who are interested in or undertaking collaborative research.
Young disabled people aged 15-29 and/or an academic representative working with each group participated from England (Preston and Coventry) and Japan.
At this event, we met new members from our collaborations with Oberlin University, Japan.
The young people were engaged in sharing perspectives about how to build the network, how we can overcome language and communication barriers online, and how their micro-project proposals were developing.
This was used to inform planning for the next events.
Year(s) Of Engagement Activity 2023
 
Description RIP:Stars visit to UCLan 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact The workshop at UCLan on 22nd April 2023, brought new partners (RIP:Stars) together with our own team of young people (UCan) to explore collaborative research with young disabled people. The main outcomes were: a name and aims for the new FreindsF4R network; a co-created guide to what makes a good collaborative research project for young disabled people, which is being made into an animated info-graphic.
Year(s) Of Engagement Activity 2023
 
Description Series of open monthly network meetings for young researchers and their academic allies from February 2024-December 2024 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Study participants or study members
Results and Impact Young disabled people groups interested in collaborative research who had applied for resources to conduct youth led micro-projects sent representatives to monthly FriendsF4R network meetings.
These enabled disabled young people, supported by their academic allies, to learn about collaborative research, sharing ideas and experiences and narratives.
Together, through critical reflection, they were able to identify criteria for positive collaborative research with young disabled people as well as contributing to planning the conferences.
Year(s) Of Engagement Activity 2024