Reproductive Borders and Bordering Reproduction: Access to Care for Women from Ethnic Minority and Migrant Groups
Lead Research Organisation:
Queen Mary University of London
Department Name: Sch of Law
Abstract
Recent research has reported a startling five-fold difference in maternal mortality rates among women from Black African/Caribbean ethnic backgrounds and almost two-fold difference among women from South Asian (particularly Pakistanis and Bangladeshis) ethnic backgrounds compared to White women. The COVID-19 pandemic has exacerbated these pre-existing inequalities with studies finding that over half of pregnant women with COVID-19 were hospitalised and seven of the eight pregnant women who died were from ethnic minority groups. These figures demonstrate that the current levels of reproductive and maternal health care inequalities constitute a serious public health crisis which requires a radical rethink of research and policy.
Structural frameworks around migration status further impact the accessibility and eligibility of free NHS care, intensifying the barriers to equitable healthcare for ethnic minority women. Those with ambiguous, uncertain, or insecure legal status are subject to immigration controls and are only able to access NHS services through health charging arrangements; accessing care with precarious status can even lead to detention and/or deportation. Not only does uncertainty about legal status deter migrant women from accessing care to which they are entitled, but ambiguous legal migration is often racialised, such that those from an ethnic minority background may be presumed to be ineligible for care without verification.
Evidence of these serious inequalities has already spurred on controversial policy initiatives pre-dating COVID-19, and issues related to such health disparities are increasingly at the forefront in policy agendas (e.g. the Royal College of Obstetricians and Gynaecologists - who is a key collaborator of this research proposal). Whilst policy attention is welcome, there has been an absence of sufficiently rich approaches that centralise women's experiences whilst contextualising these within the barriers associated with migration status. There is also lack of evidence on the role of health care professionals in engaging with legal and ethical implications of migration status dependent care.
The project will help fill in these notable gaps, with an overarching aim of utilising research into the reproductive, antenatal, and postnatal care provided to ethnic minority and migrant women to help overcome barriers to equitable reproductive and maternal healthcare. Our research will interrogate the complex intersections between legal and racial prejudice, which are documented to produce barriers to healthcare across the whole of a reproductive life course. Drawing on the expertise of an interdisciplinary team of philosophy, bioethics, law, and sociology scholars and practitioners, with international and comparative experience, we will interrogate the theoretical and legal frameworks that contextualise women's experiences, by bringing them into dialogue with ethnographic case studies that will be produced with the active participation of women. This multifaceted approach will give insights and understanding of different reproductive stages, sites of lived experience and action. We will advance a methodologically innovative framework, developing the 'Call and Response' method, co-producing a sensory archive, engaging in arts-based participatory workshops, to encourage dialogue across different actors (minority and migrant women, NHS professionals, policy and advocacy stakeholders, interested publics), to heighten awareness, deepen understanding, and ground future policy strategies. The project will also provide methodological training to early career and postgraduate researchers working on interdisciplinary, qualitative projects, thereby furthering both AHRC research and research training objectives.
Structural frameworks around migration status further impact the accessibility and eligibility of free NHS care, intensifying the barriers to equitable healthcare for ethnic minority women. Those with ambiguous, uncertain, or insecure legal status are subject to immigration controls and are only able to access NHS services through health charging arrangements; accessing care with precarious status can even lead to detention and/or deportation. Not only does uncertainty about legal status deter migrant women from accessing care to which they are entitled, but ambiguous legal migration is often racialised, such that those from an ethnic minority background may be presumed to be ineligible for care without verification.
Evidence of these serious inequalities has already spurred on controversial policy initiatives pre-dating COVID-19, and issues related to such health disparities are increasingly at the forefront in policy agendas (e.g. the Royal College of Obstetricians and Gynaecologists - who is a key collaborator of this research proposal). Whilst policy attention is welcome, there has been an absence of sufficiently rich approaches that centralise women's experiences whilst contextualising these within the barriers associated with migration status. There is also lack of evidence on the role of health care professionals in engaging with legal and ethical implications of migration status dependent care.
The project will help fill in these notable gaps, with an overarching aim of utilising research into the reproductive, antenatal, and postnatal care provided to ethnic minority and migrant women to help overcome barriers to equitable reproductive and maternal healthcare. Our research will interrogate the complex intersections between legal and racial prejudice, which are documented to produce barriers to healthcare across the whole of a reproductive life course. Drawing on the expertise of an interdisciplinary team of philosophy, bioethics, law, and sociology scholars and practitioners, with international and comparative experience, we will interrogate the theoretical and legal frameworks that contextualise women's experiences, by bringing them into dialogue with ethnographic case studies that will be produced with the active participation of women. This multifaceted approach will give insights and understanding of different reproductive stages, sites of lived experience and action. We will advance a methodologically innovative framework, developing the 'Call and Response' method, co-producing a sensory archive, engaging in arts-based participatory workshops, to encourage dialogue across different actors (minority and migrant women, NHS professionals, policy and advocacy stakeholders, interested publics), to heighten awareness, deepen understanding, and ground future policy strategies. The project will also provide methodological training to early career and postgraduate researchers working on interdisciplinary, qualitative projects, thereby furthering both AHRC research and research training objectives.
Publications
Milton S
(2025)
Crafting the unsayable: Making meaning out of racialised maternal health-care encounters.
in Sociology of health & illness
Related Projects
| Project Reference | Relationship | Related To | Start | End | Award Value |
|---|---|---|---|---|---|
| AH/X010643/1 | 01/02/2024 | 16/07/2025 | £834,411 | ||
| AH/X010643/2 | Transfer | AH/X010643/1 | 16/07/2025 | 15/07/2028 | £0 |
| Title | Call and repsonse - singing unspeakable trauma |
| Description | Dr McKnight worked closely with a Cuban British singer-songwriter, Adriana Lord, who wrote (lyrics and music) for approximately 60 minutes worth of songs that are based on the anonymised transcripts from an embroidery workshop exploring unspeakable trauma related to reproductive care. |
| Type Of Art | Composition/Score |
| Year Produced | 2024 |
| Impact | The songs form a key part of the call-and-response research methodology developed for this AHRC project. They have been utilised in previous dissemination events connected to this grant and will continue to be used in future engagements, including publications and other dissemination activities related to this grant. |
| Title | Materialising Affective Beacons: Singing trauma and calling race |
| Description | This collaborative performance piece was developed by Dr McKnight and Dr Milton, incorporating songs written by Adriana Lord based on anonymised workshop transcripts. These songs were commissioned to translate participants' narratives into a deeply immersive and embodied artistic form. To enhance audience engagement, Dr McKnight designed a multi-sensory performance, integrating projected images from Adriana Lord's original performance, additional visual materials, and sensory elements. This approach transformed the performance into a fully immersive dissemination and engagement activity, fostering deeper connections between audience members and the research themes. From the abstract: This performance will draw on a project exploring racialised inequalities in maternal reproductive health via a "slow-stitch" workshop for racialised women with reproductive trauma. The project explored ways in which arts-based participatory methods can foster intimacy and enable the articulation of "unspeakable" experiences. Using and extending a call-and-response methodology, the stories that were told formed a "call" that shone a beacon on unarticulated experiences, materialising them in different forms and spaces as a form of connection and solidarity. Bringing together a group of women and researchers racialised in different ways meant that the performative and intimate sides of race could be examined, as well as the relations formed around racialised bodies that foreclosed care in health spaces. Subsequently, the researchers commissioned songwriter Adriana Lord to create songs drawing on the narratives of the workshop. In this performance piece, her recorded songs will be played, interwoven with sensory content, spoken fragments from the transcripts, and autoethnographic accounts around race, intimacy and trauma. Audience members will be encouraged to participate in a call-and response with the aim of fostering solidarity and intimacy while inciting change. |
| Type Of Art | Performance (Music, Dance, Drama, etc) |
| Year Produced | 2024 |
| Impact | According to feedback from Danielle Galway, the events and projects officer for the Sociological Review, the performance was "one of the outstanding aspects of the conference " mentioned many times in the feedback forms. Dr McKnight and Dr Milton were asked to submit an article based on the performance to the Sociological Review. The article is currently being drafted. |
| URL | https://thesociologicalreview.org/projects/documents/48/Undisciplining_II_conference_programme_PDF_V... |
| Description | Participation in a guidance/advisory committee - Maternity Action Policy on Charging and Procedural Fairness (2024) |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | Research training for a clinically active speciliast midwife. |
| Organisation | University Hospitals Sussex NHS Foundation Trust |
| Country | United Kingdom |
| Sector | Hospitals |
| PI Contribution | Following her training session at Worthing Hospital, Dr McKnight was contacted by a specialist midwife, who has since become a key collaborator in a specialist NHS clinic for patients with maternal hypertensive disorders. This collaboration has extended into a research training partnership, with the midwife receiving twice-monthly research training from Dr McKnight to further develop her academic engagement and become research active. As part of this collaboration, the midwife will co-author an article for The Sociological Review alongside Dr McKnight and Dr Milton. This article will respond to the published SHI article and Adriana Lord's art performance, integrating insights from clinical practice, research, and artistic engagement to expand discussions on maternal health inequalities. |
| Collaborator Contribution | Please see above. |
| Impact | Thus far, outcomes have included research training sessions for the specialist Midwife. |
| Start Year | 2025 |
| Description | (B)Orders roundtable - Images of Migration The Ethics of (Visual) Research on Migration and Social Exclusion |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | This roundtable event explored the complex choices to be made when researching migration and social exclusion, particularly in relation to the ethical issues surrounding the photographic and written records when involving vulnerable individuals. The purpose of the roundtable was to reflect on the ethical issues of how to balance providing compelling research and stories with the protection of participants, such as irregular migrants. Dr Kong presented provided a presentation titled, 'The Ethical Phenomenology of Exploring the Reproductive Borderlands' based on the project. |
| Year(s) Of Engagement Activity | 2025 |
| Description | Dr McKnight was personally inivted to the University Hospitals Sussex Intern Fellows Day on Equality, Diversity & Inclusion (EDI) and Public Community Involvement & Engagement (PCIE) to provide a training session on race/ethnicity related health inequalities. |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Dr McKnight was invited to facilitate a training session on the provision of maternity care to ethnic minorities/migrants and health inequalities within maternity care in England. Participants where NHS practitioners that had been awarded research fellowships from the National Institute of Health. The participants came from various NHS Trust in Sussex and included cancer pharmacists, midwives, a specialist dietician, a senior paediatric physiotherapist, a senior orthopaedic physiotherapist,a neurological physiotherapist, Cardiology and sexual health nurses from NHS trusts in Sussex. |
| Year(s) Of Engagement Activity | 2024 |
| Description | Dr McKnight was personally invited as a Key Note speaker at the Royal Sussex County Hospital Black History Month Conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Over 100 people attended most of whom were employed by the NHS in trusts in Kent, Surrey and Sussex. However, there were also representatives from national patient representative organisations and groups in attendance. Dr McKnight was invited to give a keynote talk on race and racism within healthcare. In her keynote, she included, part of the recorded performance previously disseminated that included songs written by Adriana Lord. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://www.uhsussex.nhs.uk/news/celebrating-black-history-month-2024/ |
| Description | Equity and antiracism: A panel on bridging theory to practice across academia and healthcare, a panel to be moderated by Yvette Szabo, PhD on behalf of the Antiracism Task Force, at the annual meeting of the American Psychosomatic Society, Brighton, UK |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Dr McKnight was invited to be part of a panel of US based healthcare providers and academics considering ways in which theoretically informed research could usefully inform practice in relation to equity and anti-racism. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://psychosomatic.org/2024-annual-meeting/ |
| Description | Invited talk as part of International Women's Day / Women's History Month |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | Dr Kong provided a presentation based the project plans and methodologies of the Reproductive Borders project, as part of the International Women's Day / Women's History month events at Queen Mary University of London. This sparked questions and discussions afterwards amongst participants, leading eventually to an invitation to be part of another NIHR grant proposal around maternal health inequalities. |
| Year(s) Of Engagement Activity | 2024 |
