Computational PLatform for Assessment of Cognition In Dementia (C-PLACID)

Lead Research Organisation: University College London
Department Name: Institute of Neurology

Abstract

Cognitive impairment is the hallmark of dementia. Cognitive problems, such as difficulties with memory, language and reasoning, are the most obvious, frustrating and debilitating aspects of most neurodegenerative diseases. As a result, assessment of a person's cognition is a vital component of both diagnostic services and research investigations, and is the most common outcome measure by which the effectiveness of potential pharmaceutical and non-pharmaceutical therapies is judged. However, many traditional paper-and-pencil cognitive assessments have a number of limitations, including the lack of independence across tests, the qualitative nature of cognitive profiling, the influence of practice effects, a failure to capture some critical aspects of performance, a limited dynamic range, the complexity of some test instructions, and their inability to adequately assess some domains of cognition. Whilst sophisticated computational techniques are now used routinely to analyze neuroimaging data about changes in the shape of the brain, there have been few attempts to use comparable techniques to understand complex cognitive datasets. Here we attempt to redress that imbalance by harnessing engineering, computational statistics and mathematics to improve the cognitive assessment of people with or at risk from dementia.

The current project aims to develop a computational platform to support substantial improvements in the analysis and visualisation of complex cognitive datasets, and the automatization, optimization and innovation of techniques and devices used to acquire cognitive data. The specific aims of the study represent an interlinked series of engineering solutions to the longstanding cognitive assessment problems highlighted by clinicians. The first set of computational goals are to generate multidimensional cognitive profiles for different dementias by using multivariate machine learning algorithms, and to predict the evolution of cognitive deficits through the implementation of event-based models. The second set of goals relate to attempts to improve existing cognitive tests either by devising ways to measure voice reaction times automatically, implementing psychophysical principles, and utilizing eyetracking to capture additional sensitive metrics of task performance. The third set of goals involve the development of novel testing paradigms including 'instruction-less' tests of cognition suitable for patients with different types and severities of dementia, and the construction of sensors and virtual reality scenarios to measure social cognition.

A critical aspect of the project is the availability of four exceptionally well-characterized, longitudinally studied cohorts of individuals with or at risk of dementia in whom to develop and evaluate the new models and algorithms and pilot the improved and novel testing paradigms. The clinical cohorts include individuals with a Familial Alzheimer's disease gene mutation and their non-carrier siblings, people with typical and atypical variants of Alzheimer's disease including the progressive visual syndrome Posterior Cortical Atrophy, and patients with behavioural or linguistic phenotypes of Frontotemporal Dementia. In addition, data from 500 members of the MRC 1946 Birth Cohort whose cognition has been tracked through life and who are now of an age whereby a proportion will be in the early stages of neurodegeneration will also be evaluated.

The project involves a richly interdisciplinary team with an exciting blend of established collaborations and new partnerships. The work brings together one of the world's leading dementia units (Dementia Research Centre) with three other high profile UCL departments, namely UCL Computer Science, the Centre for Medical Image Analysis, and the UCL Interaction Centre. The experts from these centres will work together with collaborators and patient and carer support groups to improve the study and implement its findings.

Planned Impact

The Computational PLatform for Assessment of Cognition in Dementia (C-PLACID) project is intended to stimulate a paradigm-shift in attitudes toward the neuropsychology of dementia. True impact in terms of this study would constitute a change in approach toward cognitive assessment in both clinical and research settings. Cognitive assessment would no longer be regarded as the poor, low-tech cousin to glitzier, more sophisticated structural and molecular neuroimaging technologies. Instead improving our ability to measure cognitive function would be seen as a technological challenge and research goal just as appealing and just as deserving of cutting-edge technological innovation as any of its physiological or anatomical counterparts. Significant impact upon the patients, carers, clinicians and researchers might be observable in a number of ways:
(i) Availability of a family of multivariate and event-based models and algorithms for describing, categorizing and measuring change in large sets of cognitive functions.
(ii) Shorter, more personalized testing sessions for patients.
(iii) Provision of better, more informative interpretation and description of neuropsychological test results to patients/carer post-assessment.
(iv) Provision to patients and caregivers of a quantitated estimate (and range) of time to next significant cognitive loss, to assist them in care planning and maintaining quality of life.
(v) Discontinuation of use of blunt assessment tools in clinical trials.
(vi) Adoption of improved and novel cognitive tests into international trials and studies.
(vii) Use of C-PLACID to develop improved cognitive assessments tailored to specific cognitive domains, clinical populations or fields of investigation (initially in but not limited to dementia).
(viii) Growth in use of vocal reaction time measures, eyetracking and virtual reality to assess a broader range of response modalities and cognitive domains.
(ix) Increase in registration for multidisciplinary psychology-engineering MSc and PhD projects.
(x) Improving awareness of the global nature of cognitive decline in Alzheimer's disease and other causes of dementia amongst the general public.

Publications

10 25 50
 
Title Animation Developed Film: Do I See What You See? 
Description Visual artist Simon Ball has developed his initial animation with people living with PCA and their families describing how it feels to live with the condition 
Type Of Art Film/Video/Animation 
Year Produced 2018 
Impact Yet launch, this will feature across a number of websites, and will be submitted to short film festivals. 
 
Title Consultant on Plaques and Tangles, Royal Court Theatre 
Description Plaques and Tangles is a play shown at the Royal Court Theatre between October - November 2015 by Nicola Wilson. It explored one women's life with early onset familial Alzheimer's disease. Professor Sebastian Crutch acted as a consultant for this project. 
Type Of Art Performance (Music, Dance, Drama, etc) 
Year Produced 2015 
Impact The play provided an opportunity for members of the public to glimpse what it might be like to experience life affected by familial Alzheimer's disease, we hope it prompted a dialogue of this rare condition and of dementia in general. 
URL http://www.telegraph.co.uk/theatre/what-to-see/plaques-and-tangles-royal-court-review/
 
Title Profiles in Paint - Visualizing cognition in dementia 
Description This was a collaboration with Charles Harrison, a visual artist, in which four individuals with different forms of dementia (PCA, behavioural variant FTD, semantic dementia, typical Alzheimer's disease) and healthy control artists (x4) created still life paintings of the same set of objects to illustrate the impact of different dementias upon different cognitive processes (e.g. perception, emotion, verbal knowledge). Continued collaboration with visual artist Charles Harrison, funded by a £5000 UCL Public Engagament pathways grant. January to July 2015. 
Type Of Art Artwork 
Year Produced 2015 
Impact Artwork to form part of physical and online exhibits. We have presented the paintings and findings from the project at a PCA support group meeting (Feb 2016, see URL) and the paintings will also be displayed on a website by architects Niall McLoughlin and Yeoryia Manolopoulou, who will be representing Ireland for the Venice Biennale, for which they have created a website designed to be accessible for people with a diagnosis of dementia. We will also be presenting this project at the Science Museum Lates (April 2016), a large scale one-off event at the Science Museum, London (http://www.sciencemuseum.org.uk/visitmuseum/plan_your_visit/lates). We will be submitting the paintings as part of an article to The Art of Medicine section of The Lancet, along with neuropsychological profiles and MRI scans of the 4 artists with dementia. 
URL http://www.charlesrobertharrison.com/#!painting/cgrq
 
Description C-PLACID aims to benefit patients, carers, researchers and clinicians through the development of shorter and more personalised assessments that will yield more information than ever before about an individual's cognition.

The adapted and novel tests will be developed to act as a powerful tool for clinicians, with the aim to not only provide a more accurate and sensitive diagnosis of dementia, but to estimate future cognitive capacity at a particular stage of disease progression based on the their own previous data.

This capacity of the adapted and novel tests will also be of particular benefit to patients' families, in preparing emotionally, practically and financially for the effects of such a trajectory.

In terms of impact on research, the outcome of C-PLACID's collaboration between the Dementia Research Centre and the UCL Department of Computer Science will promote novel interdisciplinary collaborations, with the aim to harness engineering and computational skills and technology not previously applied to clinical evaluations of cognition.

Update (March 2016): Highlights this year include:
- developed this first version of the instructionless test of cognition
- acquiring data on the instructionless test of cognition in >800 members of the public at the Science Museum
- acquired validation data on the test from >40 people living with young onset and atypical dementias
- developed the first event-based model (EBM) of cognition (manuscript in preparation)
- completed EBM and different equation modelling (DEM) of comparable cognitive and neuroimaging dataset from people living with posterior cortical atrophy (manuscript in preparation)
- complete data acquisition on our first VR social scenario with people living with frontotemporal dementia, Alzheimer's disease and healthy controls (manuscript in preparation)
- completed analysis of a spatial anticipation test comparting traditional frequentist and machine-learning approaches (manuscript under review with Neuropsychologia)
Exploitation Route - development of cheap, portable, instruction-less tests of cognitive function suitable for evaluation of individuals with or at risk of dementia in multiple healthcare and social settings.
- application of virtual reality testing in individuals with dementia to explore cognitive processes outside the realm of social cognition.
- application of event-based models and computational statistical approaches to analyzing complex cognitive datasets.
Sectors Digital/Communication/Information Technologies (including Software),Healthcare

URL https://www.ucl.ac.uk/drc/c-placid-study
 
Description - Novel computational models of longitudinal change in cognitive biomarkers (applications in dementia and Down's syndrome, published; Alzheimer's disease, in revision) - VR simulation of dementia experience. - Artworks capturing the different cognitive profiles associated with different forms of dementia. - Work has contributed to successful application for the Wellcome Hub award, including an range of dementia and arts research studies where computational approaches from C-PLACID have been used to marry together qualitative (e.g. subjective ratings) and quantitative (e.g. physiological) response to arts and arts participation.. - The event-based modelling of cognition approach will now be extended to dementia care events through a funded PhD, to be co-supervised by Profs Alexander and Crutch) as part of our new ESRC-NIHR study of the impact of support groups for people with rarer dementias (2019-2023).
First Year Of Impact 2016
Sector Creative Economy,Digital/Communication/Information Technologies (including Software),Education,Healthcare,Culture, Heritage, Museums and Collections
Impact Types Cultural,Societal

 
Description JPND committee on cognitive assessments
Geographic Reach Asia 
Policy Influence Type Membership of a guideline committee
 
Description Membership of British Psychological Society Dementia Advisory Group
Geographic Reach National 
Policy Influence Type Influenced training of practitioners or researchers
 
Description Alzheimer's Research UK Equipment Grant
Amount £5,000 (GBP)
Organisation Alzheimer's Research UK 
Sector Charity/Non Profit
Country United Kingdom
Start 06/2016 
End 08/2017
 
Description Alzheimer's Research UK UCL Network Equipment Grant
Amount £1,800 (GBP)
Organisation Alzheimer's Research UK 
Sector Charity/Non Profit
Country United Kingdom
Start 04/2018 
End 04/2019
 
Description Alzheimer's Society Implementation grant 2017-2018 (submitted)
Amount £399,725 (GBP)
Organisation Alzheimer’s Society 
Sector Charity/Non Profit
Country United Kingdom
Start 10/2018 
End 10/2021
 
Description National Brain Appeal award for a portable Eyelink 1000 desk-mounted eyetracker to support home-based patient eyetracking assessments
Amount £27,000 (GBP)
Organisation National Brain Appeal 
Sector Charity/Non Profit
Country United Kingdom
Start 03/2016 
End 05/2016
 
Description Social Science Plus grant
Amount £10,000 (GBP)
Organisation University College London 
Sector Academic/University
Country United Kingdom
Start 11/2016 
End 11/2019
 
Description The impact of multicomponent support groups for those living with rare dementias
Amount £3,553,977 (GBP)
Funding ID ES/S010467/1 
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 01/2019 
End 12/2023
 
Description UCL Public Engagement Pathways: 'Profiles in Paint'
Amount £5,000 (GBP)
Organisation Engineering and Physical Sciences Research Council (EPSRC) 
Sector Academic/University
Country United Kingdom
Start 01/2015 
End 09/2015
 
Description UCL's Collaborative Social Science Domain and Social Science Plus+
Amount £4,000 (GBP)
Organisation University College London 
Sector Academic/University
Country United Kingdom
Start 12/2016 
End 07/2017
 
Description Wellcome Trust Hub award
Amount £1,087,059 (GBP)
Funding ID 200783/Z/16/Z 
Organisation Wellcome Trust 
Sector Charity/Non Profit
Country United Kingdom
Start 10/2016 
End 07/2018
 
Title PCA Disease Progression - Analysis from cognitive datasets 
Description UCL Department of Computer Science have analysed existing cognitive datasets, with a view to develop event-based models that will 'map out' the progression of the disease (e.g. areas of cognitive testing whereby performance declines in the first instance). This data has been compared with a disease control group cognitive dataset (comprised of individuals with typical Alzheimer's disease). An abstract outlining the finding of the event-based modelling has been submitted to the Alzheimer's Association International Conference in 2016: Firth, N.C., Brotherhood, E.V., Primativo, S., Crutch, S., & Alexander, D. (2016). Data-driven disease progression modelling using cognitive tests: Posterior Cortical Atrophy vs. Alzheimer's Disease. 
Type Of Material Computer model/algorithm 
Provided To Others? No  
Impact Development of event-based models that can accurately model disease progression in different dementias may by used as a guidance tool for clinicians regarding one individual's likely disease trajectory and likely timeframes based on their cognitive scores at the time of diagnosis. 
URL https://www.ucl.ac.uk/drc/c-placid-study/cognitive-profiles
 
Description Created Out of Mind 
Organisation Alzheimer's Research UK
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Collaborator Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Impact Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops
Start Year 2016
 
Description Created Out of Mind 
Organisation Alzheimer’s Society
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Collaborator Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Impact Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops
Start Year 2016
 
Description Created Out of Mind 
Organisation Bangor University
Country United Kingdom 
Sector Academic/University 
PI Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Collaborator Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Impact Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops
Start Year 2016
 
Description Created Out of Mind 
Organisation British Broadcasting Corporation (BBC)
Country United Kingdom 
Sector Public 
PI Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Collaborator Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Impact Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops
Start Year 2016
 
Description Created Out of Mind 
Organisation Canterbury Christ Church University
Country United Kingdom 
Sector Academic/University 
PI Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Collaborator Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Impact Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops
Start Year 2016
 
Description Created Out of Mind 
Organisation City of London Sinfonia
PI Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Collaborator Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Impact Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops
Start Year 2016
 
Description Created Out of Mind 
Organisation Creative Dementia Arts Network
PI Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Collaborator Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Impact Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops
Start Year 2016
 
Description Created Out of Mind 
Organisation Dementia Pathfinders
PI Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Collaborator Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Impact Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops
Start Year 2016
 
Description Created Out of Mind 
Organisation Dementia UK
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Collaborator Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Impact Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops
Start Year 2016
 
Description Created Out of Mind 
Organisation Jewish Care
PI Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Collaborator Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Impact Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops
Start Year 2016
 
Description Created Out of Mind 
Organisation Living Words
PI Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Collaborator Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Impact Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops
Start Year 2016
 
Description Created Out of Mind 
Organisation National Youth Choir of Great Britain
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Collaborator Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Impact Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops
Start Year 2016
 
Description Created Out of Mind 
Organisation Rare Dementia Support
PI Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Collaborator Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Impact Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops
Start Year 2016
 
Description Created Out of Mind 
Organisation Royal Academy of Music
Country United Kingdom 
Sector Academic/University 
PI Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Collaborator Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Impact Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops
Start Year 2016
 
Description Created Out of Mind 
Organisation Striker Productions Ltd
PI Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Collaborator Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Impact Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops
Start Year 2016
 
Description Created Out of Mind 
Organisation University College London Hospitals NHS Foundation Trust
Country United Kingdom 
Sector Public 
PI Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Collaborator Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Impact Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops
Start Year 2016
 
Description Created Out of Mind 
Organisation University of Nottingham
Country United Kingdom 
Sector Academic/University 
PI Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Collaborator Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Impact Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops
Start Year 2016
 
Description Created Out of Mind 
Organisation University of the Arts London
Country United Kingdom 
Sector Academic/University 
PI Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Collaborator Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Impact Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops
Start Year 2016
 
Description Created Out of Mind 
Organisation Wellcome Collection
Country United Kingdom 
Sector Private 
PI Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Collaborator Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Impact Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops
Start Year 2016
 
Description Created Out of Mind 
Organisation West Yorkshire Playhouse
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Collaborator Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Impact Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops
Start Year 2016
 
Description Created Out of Mind 
Organisation Wigmore Hall
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Collaborator Contribution Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications.
Impact Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops
Start Year 2016
 
Description Longitudinal Investigation of FTD and associated disorders (LIFTD) 
Organisation University College London
Country United Kingdom 
Sector Academic/University 
PI Contribution - Eye-tracking incorporated into their test battery following Research Assistant contribution to Science Museum Residency (April 2016); social cognition tests incorporated into LIFTD core neuropsychological tests as baseline for FTD participants in C-PLACID WP3 (Virtual Reality)
Collaborator Contribution Expertise in eye-tracking analysis, assisting Research Assistant with initial eye-tracking paradigms
Impact Ongoing research in FTD using eye-tracking
Start Year 2016
 
Description MRC 1946 Birth Cohort 
Organisation Medical Research Council (MRC)
Country United Kingdom 
Sector Academic/University 
PI Contribution Adding expertise (e.g. value of response to naming tests to be incorporated into cognitive test battery); software development and support; eye-tracking included in test battery
Collaborator Contribution Addition of cognitive test of naming being included into battery
Impact Data collection using naming test currently ongoing
Start Year 2018
 
Description RDS Impact Project 
Organisation Bangor University
Country United Kingdom 
Sector Academic/University 
PI Contribution C-PLACID research team members have received £3.65m from ESRC-NIHR - contributing expertise from computational neuroscience to evaluate the logic model of support group functions (cross-modal; e.g. face-to-face, virtual or online support); psychologists and social scientists including individuals from the C-PLACID research team to evaluate measures of impact of being a member of a support group dedicated to rare dementias.
Collaborator Contribution Bangor University will be undertaking economic modelling of established support group practices and novel approaches to support; social scientists are also providing expertise in alternative analysis of the data collected (e.g. applying theoretical frameworks to support group functions and measuring impact).
Impact Predicted outcomes include scientific journal articles, public engagement opportunities, practical applications to the Rare Dementia Support Groups
Start Year 2018
 
Description RDS Impact Project 
Organisation Nipissing University
PI Contribution C-PLACID research team members have received £3.65m from ESRC-NIHR - contributing expertise from computational neuroscience to evaluate the logic model of support group functions (cross-modal; e.g. face-to-face, virtual or online support); psychologists and social scientists including individuals from the C-PLACID research team to evaluate measures of impact of being a member of a support group dedicated to rare dementias.
Collaborator Contribution Bangor University will be undertaking economic modelling of established support group practices and novel approaches to support; social scientists are also providing expertise in alternative analysis of the data collected (e.g. applying theoretical frameworks to support group functions and measuring impact).
Impact Predicted outcomes include scientific journal articles, public engagement opportunities, practical applications to the Rare Dementia Support Groups
Start Year 2018
 
Description RDS Impact Project 
Organisation Rare Dementia Support
PI Contribution C-PLACID research team members have received £3.65m from ESRC-NIHR - contributing expertise from computational neuroscience to evaluate the logic model of support group functions (cross-modal; e.g. face-to-face, virtual or online support); psychologists and social scientists including individuals from the C-PLACID research team to evaluate measures of impact of being a member of a support group dedicated to rare dementias.
Collaborator Contribution Bangor University will be undertaking economic modelling of established support group practices and novel approaches to support; social scientists are also providing expertise in alternative analysis of the data collected (e.g. applying theoretical frameworks to support group functions and measuring impact).
Impact Predicted outcomes include scientific journal articles, public engagement opportunities, practical applications to the Rare Dementia Support Groups
Start Year 2018
 
Description Wellcome Innovation Grant Application 
Organisation Ctrl Group Ltd
PI Contribution Expertise on automated cognitive testing; in partnership with Ctrl Group, who approached the C-PLACID Research Team based on our remit for investigating tech in dementia research. The research team put Ctrl Group in touch with Join Dementia Research, who also became interested in the notion of implementing a short automated cognitive test as a pre-screen for potential participants on clinical trials.
Collaborator Contribution Ctrl Group have provided expertise based on their previous iterations of automating cognitive tests; Join Dementia Research has provided expertise on the specific needs and requirements for a test that would best support their vision using the Join Dementia Research platform
Impact Wellcome Innovation Grant application is currently in progress with members of the C-PLACID research team, Join Dementia Research and Ctrl Group
Start Year 2017
 
Description Wellcome Innovation Grant Application 
Organisation National Institute for Health Research
Department NIHR Join Dementia Research
Country United Kingdom 
Sector Public 
PI Contribution Expertise on automated cognitive testing; in partnership with Ctrl Group, who approached the C-PLACID Research Team based on our remit for investigating tech in dementia research. The research team put Ctrl Group in touch with Join Dementia Research, who also became interested in the notion of implementing a short automated cognitive test as a pre-screen for potential participants on clinical trials.
Collaborator Contribution Ctrl Group have provided expertise based on their previous iterations of automating cognitive tests; Join Dementia Research has provided expertise on the specific needs and requirements for a test that would best support their vision using the Join Dementia Research platform
Impact Wellcome Innovation Grant application is currently in progress with members of the C-PLACID research team, Join Dementia Research and Ctrl Group
Start Year 2017
 
Description 2017 Dementia MRI conference, Cardiff, Wales - invited lecture 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Invited lecture on 'Seeing what they see: neuropsychological and neuroimaging investigations of posterior cortical atrophy (PCA)'
Year(s) Of Engagement Activity 2017
URL https://www.cardiff.ac.uk/conferences/2017-dementia-mri-conference/programme
 
Description 2017 International Conference On Mobile Brain-Body Imaging And The Neuroscience Of Art, Innovation And Creativity, Valencia, Spain - invited lecture 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Lecture on 'Created Out of Mind: Shaping perceptions of dementia through art and science'
Year(s) Of Engagement Activity 2017
URL http://yourbrainonart2017.egr.uh.edu/schedule
 
Description 2018 International Congress on Space and Dementia, Taiwan - invited participant and speaker 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Two invited lectures and case discussions in Taipei and Tainan on 'Seeing what they see: cognitive, neuroimaging, genetic and engineering perspectives on posterior cortical atrophy (PCA)'
Year(s) Of Engagement Activity 2017
URL http://www.tds.org.tw/files/common_unit/dcea051a-867b-4793-a0df-904da30b3e88/doc/2018%20Internationa...
 
Description A talk or presentation - Poster presentation: Can eye-tracking metrics provide insight into differential diagnosis of dementias? A spatial anticipation task 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact This is an abstract submission for AAIC Chicago 2018 on eye-tracking and differential diagnosis in dementia. The abstract has not been accepted yet but the submission has been made.
Year(s) Of Engagement Activity 2018
 
Description A walk through dementia Virtual Reality (VR) experience 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Scientific advisor to Alzheimer's Research UK's 'A walk through dementia' virtual reality experience, a unique Android-exclusive Google Cardboard app designed to put you in the shoes of someone living with dementia.
Year(s) Of Engagement Activity 2016
URL http://awalkthroughdementia.org/
 
Description AAIC (Toronto, 2016): Data-driven disease progression modelling using cognitive tests: Posterior Cortical Atrophy vs. Alzheimer's Disease. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Data-driven disease progression modelling using cognitive tests: Posterior Cortical Atrophy vs. Alzheimer's Disease: poster presentation
Year(s) Of Engagement Activity 2016
 
Description AAIC (Toronto, 2016): Virtual reality as an assessment of social cognition in behavioural variant Frontotemporal Dementia: A Pilot Study 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Virtual reality as an assessment of social cognition in behavioural variant Frontotemporal Dementia: A Pilot Study: poster presentation
Year(s) Of Engagement Activity 2016
 
Description ANALYSIS OF THE HETEROGENEITY OF POSTERIOR CORTICAL ATROPHY: DATA-DRIVEN MODEL PREDICTS DISTINCT ATROPHY PATTERNS FOR THREE DIFFERENT COGNITIVE SUBGROUPS 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Conference presentation at the Alzheimer's Association International Conference, London 2017
Year(s) Of Engagement Activity 2017
 
Description Asian Societies Against Dementia (ASAD) conference, Bangkok, Thailand - invited plenary lecture 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Asian Societies Against Dementia (ASAD) conference invited plenary lecture on 'New horizons in
posterior cortical atrophy (PCA)' and second lecture on 'Visual processing and object recognition'
Year(s) Of Engagement Activity 2017
URL https://www.ipa-online.org/news-and-issues/asad-meeting-review
 
Description British Council organised keynote and workshop on Creative Ageing - Museum Engagement & Learning, Taichung, Taiwan, November 2018 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact - keynote presentation and a workshop at National Museum of Natural History in Taichung City, Taiwan.
- pre-program visit to museum exhibition for an understanding of local context
- Conference (keynote & panel discussion)
- Workshop
Year(s) Of Engagement Activity 2018
URL https://www.britishcouncil.org.tw/en/event/2018CreativeAgeing
 
Description C-PLACID Presentation at Frontotemporal Dementia Support Group Meeting 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Patients, carers and/or patient groups
Results and Impact We presented the rationale of the C-PLACID Virtual Reality study to carers (including spouses and family members/friends) of people with frontotemporal dementia (FTD). We asked for their help in sharing stories that we could group together in themes, and use to model the virtual reality scenarios we constructed for pilot testing.
Year(s) Of Engagement Activity 2015
URL https://www.ucl.ac.uk/drc/ftdsupport/upcoming-meetings/meeting-recordings/#July2015
 
Description C-PLACID Website 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact The C-PLACID website has been created in order to sign-post potential participants, and the general public, through the project and its various tenets.
Year(s) Of Engagement Activity 2016
URL https://www.ucl.ac.uk/drc/c-placid-study
 
Description CAN EYETRACKING METRICS RELATE TO PERFORMANCE ON VISUAL COGNITIVE TESTS OF INDIVIDUALS WITH YOUNG-ONSET ALZHEIMER'S DISEASE? 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact I presented a poster presentation at AAIC London 2017. I talked about the relationship between eye-tracking and other neuropsychological scores in young onset dementias likes Alzheimer's disease and syndromes like posterior cortical atrophy.
Year(s) Of Engagement Activity 2017
URL http://www.alzheimersanddementia.com/article/S1552-5260(17)32393-2/abstract
 
Description Club de Neuro-Ophtalmologie Francophone (CNOF) conference, Lyon, France - invited plenary lecture 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Invited plenary lecture on 'Atrophie Corticale Postérieure'
Year(s) Of Engagement Activity 2018
URL http://www.neuro-ophtalmologie-club.org/wp-content/uploads/2018/01/PROGRAMME_FINAL_CNOF_1701.pdf
 
Description Collaborative Social Science Domain, Social Science Plus launch event - Can the Amazon Echo increase independence in dementia? 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Postgraduate students
Results and Impact Approx 60 people attended for a talk from C-PLACID team member Nick Firth about how Amazon echoes and other technologies could increase independence in people living with a dementia and their family members/carers, sparking subsequent discussion between Nick and the audience members.
Year(s) Of Engagement Activity 2017
 
Description Creative Adventures in Dementia: A Life More Ordinary festival, Dukes Theatre, Lancaster, May 2018 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Patients, carers and/or patient groups
Results and Impact Presented a talk on different dementias, and was part of a panel discussion with journalist Nicci Gerrard, writer Wendy Mitchell and actor John Middleton.

A unique 2 day exploration of how the arts are touching the lives of people living with dementia in wonderful and remarkable ways.

'A Life More Ordinary' invites people living with dementia, family friends, health and care professionals, artists, researchers and, clinical commissioning teams, to share and discover some of the ground-breaking ways that the arts help us understand dementia better and play an invaluable part in how we journey through life together.

This event will include keynote speakers, performances and workshops by some of the most pioneering artists, practitioners, researchers and extraordinary people, working with people with dementia, in a variety of settings and in unique ways.

Please join us to explore, share and discover how the arts are revealing new ways of entering the world of people living with dementia and helping them to continue enjoying, richer fuller lives.

A Life More Ordinary is a 3 year project led by The Dukes, which aims to improve the lives of people with dementia and memory loss and their friends and families, by providing fun creative activities and film screenings in an adapted environment.
Year(s) Of Engagement Activity 2018
URL https://dukes-lancaster.org/?event=creative-adventures-dementia-life-ordinary-festival
 
Description Dementia Research Centre Newsletter 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact The Seeing What They See study was featured in the Dementia Research Centre newsletter.
Year(s) Of Engagement Activity 2016
 
Description Emilie Brotherhood PhD Flash Presentation 
Form Of Engagement Activity A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Postgraduate students
Results and Impact A flash presentaton (90 second display video outlining the C-PLACID Virtual Reality video) will be played to the attendees of the Alzheimer's Research UK Conference 2016. We hope that being introduced to the Virtual Reality part of C-PLACID will spark questions and discussions by others investigating social cognition in Frontotemporal Dementia (FTD) or those using virtual reality to test other kinds of dementia.
Year(s) Of Engagement Activity 2016
URL https://www.ucl.ac.uk/drc/c-placid-study/virtual-reality/news
 
Description Eyes to the stars feet on the ground: Career development in visual Neurosciences conference, Jerusalem, Israel - invited lecture 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Postgraduate students
Results and Impact Invited lecture on 'Seeing what they see: cognitive, neuroimaging, genetic and engineering perspectives on posterior cortical atrophy (PCA)'
Year(s) Of Engagement Activity 2018
 
Description Headspace creative ageing international conference, Dublin, April 2018 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact From conference programme:

HeadSpace2018 was a two-day celebration of scientific and creative investigation into brain health and dementia.

Held in Trinity College Dublin on April 27th & 28th 2018, we invited people to join us in conversations about caring communities, research and cultural solutions, that informed, engaged, entertained and inspired.

The brain is especially sensitive to external influence and aging. Poverty, housing and education have huge effects on health. As does access to healthcare, isolation, social connectedness and personal security. Its estimated these social determinants account for 50% of disease and mortality. We grow old in different ways. By 2041, 22% of the population with be 65 or older. Addressing this change is key to improving health but healthcare alone can't solve the issues. It needs creative thinking and collaborative effort. Champions across society and government. Many voices and communities contributing to new scientific discoveries, innovations and cultural change in this area is important. People joined us and to bring their lived and learnt experience to the forum.

Can we live longer, better? How do we change? What can we do, today? Where is innovation creating tomorrow's solutions?
Year(s) Of Engagement Activity 2018
URL http://www.creativeageinginternational.com/2018/04/24/headspace-2018-schedule/
 
Description Impact article - section dedicated to C-PLACID 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact To be published in 2018: One page interview with Seb, conducted via email between Dec 2017 and February 2018. This information will be collated with the project summary, grant proposals, web links, and any additional material or images about C-PLACID in the public domain. This will contribute to a two page article fully written and designed by Science Impact. The article will highlight certain objectives and planned outputs and the potential impact and relevance of the research to the different stakeholders receiving the publication.
Year(s) Of Engagement Activity 2018
URL http://impactmagazine.ca/topics/science/
 
Description Institute of Healthcare Engineering launch: Living well with Dementia 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact This event intended to formalise collaborative work between UCL's Institute of Biomedical Engineering (IBME) and UCL-affiliated hospitals. Professor Nick Tyler, Dr Catherine Holloway and Dr Keir Yong presented the "Seeing what they see" study from a booth to an audience formed of clinicians, academics, industry and third sector representatives.
Year(s) Of Engagement Activity 2016
 
Description International Conference on Frontotemporal Dementias, Munich, Germany (September, 2016) - Poster Presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Virtual reality as an assessment of cognition in behavioural variant Frontotemporal Dementia: A Feasibility Study.
Year(s) Of Engagement Activity 2016
 
Description Italian Association of Experimental Psychology - oral presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Oral presentation of an eyetracking study conducted on patients
Year(s) Of Engagement Activity 2016
 
Description Live Science residency at the Science Museum 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact This project focuses on the standardisation of the short and instruction-less eye-tracking test we have developed. We plan to use this exciting one-off opportunity to engage with the public at the Science Museum, during a 6-week residency in April-May 2016. SR research have agreed to loan an Eyelink 1000 desk-mounted eye-tracker worth £27,000 for testing purposes during the residency. we will use this residency to gather normative data and demonstrate the utility of eyetracking for assessing cognitive impairment in dementia.

Update: We acquired normative data from over 850+ members of the public for a number of instruction-less eye-tracking paradigms, providing a number of opportunities for analysis and development by post-doctoral and current and prospective PhD students.
Year(s) Of Engagement Activity 2016
URL https://www.ucl.ac.uk/drc/c-placid-study/eye-tracking/news
 
Description Lund University, Sweden, invited seminar on abstract words 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Type Of Presentation keynote/invited speaker
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact New debate and revision of ongoing and planned experiments.

Further citations of current and previous work.
Year(s) Of Engagement Activity 2015
 
Description MODELLING EYE-TRACKING DATA TO DISCRIMINATE BETWEEN ALZHEIMER'S PATIENTS AND HEALTHY CONTROLS 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Presented at the Alzheimer's Association International Conference, London 2017
Year(s) Of Engagement Activity 2017
 
Description Meet the Researchers undergraduate video interview project 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact Interview elicited questions about dementia diagnosis, causes and future research

Interview sparked interest in dementia research projects and placements by undergraduate students
Year(s) Of Engagement Activity 2014
URL https://www.youtube.com/watch?v=Z2Xv5WqhBaM&feature=youtu.be
 
Description National PCA support group meeting 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Patients, carers and/or patient groups
Results and Impact C-PLACID research team member Nick Firth delivered a talk on the 'Echoes Around The Home' project, a branch of research investigating the impact of Amazon Dot on improving the lives of people living with PCA and harnessing computational methods to analyse the language used in everyday conversations both interacting with the technology and between groups. The audience present at the talk was estimated at approx. 80 people, however these sessions are videoed and due to be uploaded on the Rare Dementia Support website, which is accessible to any member of the public, worldwide.
Year(s) Of Engagement Activity 2017
 
Description Oxfordshire regional PCA support group meeting 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Patients, carers and/or patient groups
Results and Impact Speaking about the 'Echoes Around The Home' project, C-PLACID research team member Nick Firth delivered a talk to the PCA Support Group.
Year(s) Of Engagement Activity 2017
 
Description Patient and carer support group 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Patients, carers and/or patient groups
Results and Impact Establishment of a national and international PCA community of patients, carers and healthcare professionals sharing information, improving practice and generating ideas for future research

- Establishment of worldwide PCA Facebook group
- Highlighted the frequency of balance problems in PCA, which are now the subject of a new research project and collaboration entitled "Am I the right way up?" Investigating balance problems in posterior cortical atrophy, funded by the Alzheimer's Society.
Year(s) Of Engagement Activity 2007,2008,2009,2010,2011
URL http://www.ucl.ac.uk/drc/pcasupport
 
Description Pint of Science - VR Experience 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Pint of Science event in which a VR installation was set up to convey a test of colour preferences within a space; public engagement branch of research being undertaken
Year(s) Of Engagement Activity 2017
 
Description Poster presentation "A spatial anticipation deficit is revealed by eyetracking metrics in behavioural variant frontotemporal dementia" 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Poster presentation of the work entitled "A spatial anticipation deficit is revealed by eyetracking metrics in behavioural variant frontotemporal dementia"
Year(s) Of Engagement Activity 2016
 
Description Programme chair for Alzheimer's Research Conference 2015 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? Yes
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Programme chair and local organiser. Highly enjoyable conference with lots of participants commenting on the quality of the scientific research presented and discussed.

Extensive knowledge exchange, interdisciplinary conversations and new collaborations. ARUK staff to report conference summary in Alzheimer's and Dementia.
Year(s) Of Engagement Activity 2015
URL http://www.arukconf.org/
 
Description Radio 3 Residency - 'Why Music?' 
Form Of Engagement Activity A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact C-PLACID research team members Sebastian Crutch and work from Nick Firth (re: eye-tracking/empatica readings analysed while participants listened to familiar vs. unfamiliar music) was reported within the Radio 3 Residency collaboration between Wellcome and BBC 'Why Music?'. Methodologies were explained to the public, and the importance of technological advances in assisting and enriching our understanding of cognition in dementia was emphasised.
Year(s) Of Engagement Activity 2017
 
Description Salzburg Global Seminar on Dementia Friendly Communities - invited participant and speaker 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Gave talk and led discussion themed around 'The Role of Arts in Mitigating the Impact of Dementia' with particular reference to dementia-related visual dysfunction
Year(s) Of Engagement Activity 2017
URL http://www.salzburgglobal.org/calendar/2010-2019/2017/session-587.html
 
Description School Visit (St. Thomas's, Clapham) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Schools
Results and Impact 46 pupils aged between 10 and 11 attended their after-school club, where Miss. Emilie Brotherhood presented to them the concept of using technology to help us better understand dementia. This sparked discussion and questions from the pupils (e.g. 'do people with dementia know that they are having their eyes measured?' which sparked a conversation about ethics and capacity to consent, particularly with reference to using technology to measure physiological responses). The school has since invited Miss. Emilie Brotherhood to continue to speak at the school to update about project progress.
Year(s) Of Engagement Activity 2017
 
Description Science Museum Dementia 'Late' 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact This will be a one-off event as part of the monthly 'Science Museum Lates' which will feature talks, demonstrations and exhibits by members of the Seeing what they see team.
Year(s) Of Engagement Activity 2016
URL http://www.sciencemuseum.org.uk/visitmuseum/plan_your_visit/lates
 
Description Science Museum Late 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact C-PLACID researchers contributed to a programme across the Science Museum, London, which was a Late event dedicated to the topic of dementia. C-PLACID research members ran an 'eye-tracking station' whereby we demonstrated two eye-tracking paradigms for members of the public to see, taking part in a 'dummy' experiment so the general public could see what eye-tracking research involves, with the opportunity to ask questions about how eye-tracking can help us better understand dementia.
Year(s) Of Engagement Activity 2016
URL https://www.ucl.ac.uk/pals/research/experimental-psychology/event/lost-in-thought-science-museum-lat...
 
Description TANDEM The Arts and Dementia conference, Nottingham, November 2018 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Talk on posterior cortical atrophy, and the role of people living with dementia and their carers in inspiting, shaping and improving research.
Year(s) Of Engagement Activity 2018
URL https://www.alzheimers.org.uk/Care-and-cure-magazine/winter-18/tandem-arts-and-dementia
 
Description The Many Faces of Dementia free Mass Open Online Course 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact More than 8,000 people have already signed up for this free online course which reveals some of the key issues in dementia care and research by exploring four less common forms of dementia through the eyes of people affected by the condition, and world-leading experts at UCL. Week 4 (What if dementia affects your vision, not your memory?) is led by the Seeing what they see team.
Year(s) Of Engagement Activity 2015
URL https://www.futurelearn.com/courses/faces-of-dementia
 
Description The XIth PRACTICAL COGNITION COURSE Newcastle upon Tyne 4-5 October 2018 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact From programme:

The highly successful Practical Cognition Course will take place for the eleventh year running on Thursday 4th to Friday 5th October 2018 at the Institute of Neuroscience, Newcastle upon Tyne. This course is for consultants and trainees in neurology, psychiatry, neuropsychology and rehabilitation medicine who want to develop their practical expertise in cognitive assessment and relate this to clinically relevant neuroscience.
There will be a practical introductory session to cognitive assessment followed by four sessions of case presentations discussing the assessment, diagnosis and management of common cognitive syndromes. The course begins and ends with the patient. Case presentations will feature video material illustrating disorders that clinicians may encounter in daily practice. Each session will also include a talk from an invited expert, who will provide a framework for understanding the clinically relevant neuroscience.
This year's course will cover: MEMORY DISORDERS, DISORDERS OF MOTOR FUNCTION & COGNITION, VASCULAR DISEASE & COGNITION, and VISUOSPATIAL DISORDERS. Guest speakers include Sinead Mullally (Newcastle), Liz Coulthard (Bristol), Hugh Markus (Cambridge) and Sebastian Crutch (UCL). The course is organized by neurologists Tim Griffiths (Newcastle) and Chris Butler (Oxford), sponsored by the Guarantors of Brain, and accredited for CME points with the Royal College of Physicians.
Year(s) Of Engagement Activity 2018
 
Description UK-Korea Creative Aging festival - British Council trip to South Korea and invited talks 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Week long visit to South Korea. Invited by British Council. Gave three talks in Seoul and Busan about dementia, vision and the arts.
Year(s) Of Engagement Activity 2017
URL https://www.britishcouncil.kr/en/uk-korea-2017-18/events/creative-ageing-conference
 
Description Vicky McClure: My Dementia Choir 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Patients, carers and/or patient groups
Results and Impact 12 week choral programme for people living with a dementia - research took place alongside filming for a British Broadcasting Corporation documentary about a choir of people living with a diagnosis of a dementia ('Vicky McClure: My Dementia Choir'), providing a complementary scientific perspective to the narrative of how people living with a dementia respond to music activities. Using wearable technology to elucidate the physiological responses to taking part in the choral programme and measuring against wellbeing scale scores of engagement, interest, happiness etc. and a stress scale.
Year(s) Of Engagement Activity 2018
URL https://www.bbc.co.uk/mediacentre/latestnews/2017/factual-autumn-commissions
 
Description Wellcome Graphic Design Workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact C-PLACID research member Nick Firth contributed expertise to a workshop focusing on the language used in dementia campaigns by major dementia charities within the UK - spoke about work analysing language used to describe dementia in broadcast media using a computational technique (e.g. Natural Language Processing)
Year(s) Of Engagement Activity 2017