Computational PLatform for Assessment of Cognition In Dementia (C-PLACID)
Lead Research Organisation:
University College London
Department Name: Institute of Neurology
Abstract
Cognitive impairment is the hallmark of dementia. Cognitive problems, such as difficulties with memory, language and reasoning, are the most obvious, frustrating and debilitating aspects of most neurodegenerative diseases. As a result, assessment of a person's cognition is a vital component of both diagnostic services and research investigations, and is the most common outcome measure by which the effectiveness of potential pharmaceutical and non-pharmaceutical therapies is judged. However, many traditional paper-and-pencil cognitive assessments have a number of limitations, including the lack of independence across tests, the qualitative nature of cognitive profiling, the influence of practice effects, a failure to capture some critical aspects of performance, a limited dynamic range, the complexity of some test instructions, and their inability to adequately assess some domains of cognition. Whilst sophisticated computational techniques are now used routinely to analyze neuroimaging data about changes in the shape of the brain, there have been few attempts to use comparable techniques to understand complex cognitive datasets. Here we attempt to redress that imbalance by harnessing engineering, computational statistics and mathematics to improve the cognitive assessment of people with or at risk from dementia.
The current project aims to develop a computational platform to support substantial improvements in the analysis and visualisation of complex cognitive datasets, and the automatization, optimization and innovation of techniques and devices used to acquire cognitive data. The specific aims of the study represent an interlinked series of engineering solutions to the longstanding cognitive assessment problems highlighted by clinicians. The first set of computational goals are to generate multidimensional cognitive profiles for different dementias by using multivariate machine learning algorithms, and to predict the evolution of cognitive deficits through the implementation of event-based models. The second set of goals relate to attempts to improve existing cognitive tests either by devising ways to measure voice reaction times automatically, implementing psychophysical principles, and utilizing eyetracking to capture additional sensitive metrics of task performance. The third set of goals involve the development of novel testing paradigms including 'instruction-less' tests of cognition suitable for patients with different types and severities of dementia, and the construction of sensors and virtual reality scenarios to measure social cognition.
A critical aspect of the project is the availability of four exceptionally well-characterized, longitudinally studied cohorts of individuals with or at risk of dementia in whom to develop and evaluate the new models and algorithms and pilot the improved and novel testing paradigms. The clinical cohorts include individuals with a Familial Alzheimer's disease gene mutation and their non-carrier siblings, people with typical and atypical variants of Alzheimer's disease including the progressive visual syndrome Posterior Cortical Atrophy, and patients with behavioural or linguistic phenotypes of Frontotemporal Dementia. In addition, data from 500 members of the MRC 1946 Birth Cohort whose cognition has been tracked through life and who are now of an age whereby a proportion will be in the early stages of neurodegeneration will also be evaluated.
The project involves a richly interdisciplinary team with an exciting blend of established collaborations and new partnerships. The work brings together one of the world's leading dementia units (Dementia Research Centre) with three other high profile UCL departments, namely UCL Computer Science, the Centre for Medical Image Analysis, and the UCL Interaction Centre. The experts from these centres will work together with collaborators and patient and carer support groups to improve the study and implement its findings.
The current project aims to develop a computational platform to support substantial improvements in the analysis and visualisation of complex cognitive datasets, and the automatization, optimization and innovation of techniques and devices used to acquire cognitive data. The specific aims of the study represent an interlinked series of engineering solutions to the longstanding cognitive assessment problems highlighted by clinicians. The first set of computational goals are to generate multidimensional cognitive profiles for different dementias by using multivariate machine learning algorithms, and to predict the evolution of cognitive deficits through the implementation of event-based models. The second set of goals relate to attempts to improve existing cognitive tests either by devising ways to measure voice reaction times automatically, implementing psychophysical principles, and utilizing eyetracking to capture additional sensitive metrics of task performance. The third set of goals involve the development of novel testing paradigms including 'instruction-less' tests of cognition suitable for patients with different types and severities of dementia, and the construction of sensors and virtual reality scenarios to measure social cognition.
A critical aspect of the project is the availability of four exceptionally well-characterized, longitudinally studied cohorts of individuals with or at risk of dementia in whom to develop and evaluate the new models and algorithms and pilot the improved and novel testing paradigms. The clinical cohorts include individuals with a Familial Alzheimer's disease gene mutation and their non-carrier siblings, people with typical and atypical variants of Alzheimer's disease including the progressive visual syndrome Posterior Cortical Atrophy, and patients with behavioural or linguistic phenotypes of Frontotemporal Dementia. In addition, data from 500 members of the MRC 1946 Birth Cohort whose cognition has been tracked through life and who are now of an age whereby a proportion will be in the early stages of neurodegeneration will also be evaluated.
The project involves a richly interdisciplinary team with an exciting blend of established collaborations and new partnerships. The work brings together one of the world's leading dementia units (Dementia Research Centre) with three other high profile UCL departments, namely UCL Computer Science, the Centre for Medical Image Analysis, and the UCL Interaction Centre. The experts from these centres will work together with collaborators and patient and carer support groups to improve the study and implement its findings.
Planned Impact
The Computational PLatform for Assessment of Cognition in Dementia (C-PLACID) project is intended to stimulate a paradigm-shift in attitudes toward the neuropsychology of dementia. True impact in terms of this study would constitute a change in approach toward cognitive assessment in both clinical and research settings. Cognitive assessment would no longer be regarded as the poor, low-tech cousin to glitzier, more sophisticated structural and molecular neuroimaging technologies. Instead improving our ability to measure cognitive function would be seen as a technological challenge and research goal just as appealing and just as deserving of cutting-edge technological innovation as any of its physiological or anatomical counterparts. Significant impact upon the patients, carers, clinicians and researchers might be observable in a number of ways:
(i) Availability of a family of multivariate and event-based models and algorithms for describing, categorizing and measuring change in large sets of cognitive functions.
(ii) Shorter, more personalized testing sessions for patients.
(iii) Provision of better, more informative interpretation and description of neuropsychological test results to patients/carer post-assessment.
(iv) Provision to patients and caregivers of a quantitated estimate (and range) of time to next significant cognitive loss, to assist them in care planning and maintaining quality of life.
(v) Discontinuation of use of blunt assessment tools in clinical trials.
(vi) Adoption of improved and novel cognitive tests into international trials and studies.
(vii) Use of C-PLACID to develop improved cognitive assessments tailored to specific cognitive domains, clinical populations or fields of investigation (initially in but not limited to dementia).
(viii) Growth in use of vocal reaction time measures, eyetracking and virtual reality to assess a broader range of response modalities and cognitive domains.
(ix) Increase in registration for multidisciplinary psychology-engineering MSc and PhD projects.
(x) Improving awareness of the global nature of cognitive decline in Alzheimer's disease and other causes of dementia amongst the general public.
(i) Availability of a family of multivariate and event-based models and algorithms for describing, categorizing and measuring change in large sets of cognitive functions.
(ii) Shorter, more personalized testing sessions for patients.
(iii) Provision of better, more informative interpretation and description of neuropsychological test results to patients/carer post-assessment.
(iv) Provision to patients and caregivers of a quantitated estimate (and range) of time to next significant cognitive loss, to assist them in care planning and maintaining quality of life.
(v) Discontinuation of use of blunt assessment tools in clinical trials.
(vi) Adoption of improved and novel cognitive tests into international trials and studies.
(vii) Use of C-PLACID to develop improved cognitive assessments tailored to specific cognitive domains, clinical populations or fields of investigation (initially in but not limited to dementia).
(viii) Growth in use of vocal reaction time measures, eyetracking and virtual reality to assess a broader range of response modalities and cognitive domains.
(ix) Increase in registration for multidisciplinary psychology-engineering MSc and PhD projects.
(x) Improving awareness of the global nature of cognitive decline in Alzheimer's disease and other causes of dementia amongst the general public.
Organisations
- University College London (Lead Research Organisation)
- Canterbury Christ Church University (Collaboration)
- Rare Dementia Support (Collaboration)
- Global Disability Innovation Hub (Collaboration)
- University College London Hospitals NHS Foundation Trust (Collaboration)
- Wigmore Hall (Collaboration)
- ALZHEIMER'S SOCIETY (Collaboration)
- Striker Productions Ltd (Collaboration)
- Medical Research Council (MRC) (Collaboration)
- Resonate Arts (Collaboration)
- Dementia Pathfinders (Collaboration)
- University College London (Collaboration)
- West Yorkshire Playhouse (Collaboration)
- UNIVERSITY OF NOTTINGHAM (Collaboration)
- Nipissing University (Collaboration)
- Alzheimer's Research UK (Collaboration)
- Creative Dementia Arts Network (Collaboration)
- Wellcome Collection (Collaboration)
- National Institute for Health Research (Collaboration)
- Jewish Care (Collaboration)
- National Youth Choir of Great Britain (Collaboration)
- Dementia UK (Collaboration)
- Living Words (Collaboration)
- University of the Arts London (Collaboration)
- British Broadcasting Corporation (BBC) (Collaboration)
- BANGOR UNIVERSITY (Collaboration)
- City of London Sinfonia (Collaboration)
- Royal Academy of Music (Collaboration)
- CTRL GROUP LTD (Collaboration)
Publications
Baldassarre L
(2017)
Sparsity Is Better with Stability: Combining Accuracy and Stability for Model Selection in Brain Decoding.
in Frontiers in neuroscience
Cortés-Ciriano I
(2018)
Discovering Highly Potent Molecules from an Initial Set of Inactives Using Iterative Screening.
in Journal of chemical information and modeling
Crutch S
(2016)
Looking but Not Seeing Recent Perspectives on Posterior Cortical Atrophy
in Current Directions in Psychological Science
Crutch SJ
(2017)
Consensus classification of posterior cortical atrophy.
in Alzheimer's & dementia : the journal of the Alzheimer's Association
Crutch, S. J.
(2018)
Innovative tools for dementia diagnosis
Daniel Lai L
(2021)
Development of the Video Analysis Scale of Engagement (VASE) for people with advanced dementia
in Wellcome Open Research
Daniel Lai LL
(2020)
Development of the Video Analysis Scale of Engagement (VASE) for people with advanced dementia.
in Wellcome open research
Eshaghi A
(2016)
Gray matter MRI differentiates neuromyelitis optica from multiple sclerosis using random forest.
in Neurology
Eshaghi A
(2018)
Deep gray matter volume loss drives disability worsening in multiple sclerosis.
in Annals of neurology
| Title | Animation Developed Film: Do I See What You See? |
| Description | Visual artist Simon Ball has developed his initial animation with people living with PCA and their families describing how it feels to live with the condition |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2018 |
| Impact | Yet launch, this will feature across a number of websites, and will be submitted to short film festivals. |
| Title | Consultant on Plaques and Tangles, Royal Court Theatre |
| Description | Plaques and Tangles is a play shown at the Royal Court Theatre between October - November 2015 by Nicola Wilson. It explored one women's life with early onset familial Alzheimer's disease. Professor Sebastian Crutch acted as a consultant for this project. |
| Type Of Art | Performance (Music, Dance, Drama, etc) |
| Year Produced | 2015 |
| Impact | The play provided an opportunity for members of the public to glimpse what it might be like to experience life affected by familial Alzheimer's disease, we hope it prompted a dialogue of this rare condition and of dementia in general. |
| URL | http://www.telegraph.co.uk/theatre/what-to-see/plaques-and-tangles-royal-court-review/ |
| Title | Profiles in Paint - Visualizing cognition in dementia |
| Description | This was a collaboration with Charles Harrison, a visual artist, in which four individuals with different forms of dementia (PCA, behavioural variant FTD, semantic dementia, typical Alzheimer's disease) and healthy control artists (x4) created still life paintings of the same set of objects to illustrate the impact of different dementias upon different cognitive processes (e.g. perception, emotion, verbal knowledge). Continued collaboration with visual artist Charles Harrison, funded by a £5000 UCL Public Engagament pathways grant. January to July 2015. |
| Type Of Art | Artwork |
| Year Produced | 2015 |
| Impact | Artwork to form part of physical and online exhibits. We have presented the paintings and findings from the project at a PCA support group meeting (Feb 2016, see URL) and the paintings will also be displayed on a website by architects Niall McLoughlin and Yeoryia Manolopoulou, who will be representing Ireland for the Venice Biennale, for which they have created a website designed to be accessible for people with a diagnosis of dementia. We will also be presenting this project at the Science Museum Lates (April 2016), a large scale one-off event at the Science Museum, London (http://www.sciencemuseum.org.uk/visitmuseum/plan_your_visit/lates). We will be submitting the paintings as part of an article to The Art of Medicine section of The Lancet, along with neuropsychological profiles and MRI scans of the 4 artists with dementia. |
| URL | http://www.charlesrobertharrison.com/#!painting/cgrq |
| Description | C-PLACID aims to benefit patients, carers, researchers and clinicians through the development of shorter and more personalised assessments that will yield more information than ever before about an individual's cognition. The adapted and novel tests will be developed to act as a powerful tool for clinicians, with the aim to not only provide a more accurate and sensitive diagnosis of dementia, but to estimate future cognitive capacity at a particular stage of disease progression based on the their own previous data. This capacity of the adapted and novel tests will also be of particular benefit to patients' families, in preparing emotionally, practically and financially for the effects of such a trajectory. In terms of impact on research, the outcome of C-PLACID's collaboration between the Dementia Research Centre and the UCL Department of Computer Science will promote novel interdisciplinary collaborations, with the aim to harness engineering and computational skills and technology not previously applied to clinical evaluations of cognition. Update (March 2016): Highlights this year include: - developed this first version of the instructionless test of cognition - acquiring data on the instructionless test of cognition in >800 members of the public at the Science Museum - acquired validation data on the test from >40 people living with young onset and atypical dementias - developed the first event-based model (EBM) of cognition (manuscript in preparation) - completed EBM and different equation modelling (DEM) of comparable cognitive and neuroimaging dataset from people living with posterior cortical atrophy (manuscript in preparation) - complete data acquisition on our first VR social scenario with people living with frontotemporal dementia, Alzheimer's disease and healthy controls (manuscript in preparation) - completed analysis of a spatial anticipation test comparting traditional frequentist and machine-learning approaches (manuscript under review with Neuropsychologia) |
| Exploitation Route | - development of cheap, portable, instruction-less tests of cognitive function suitable for evaluation of individuals with or at risk of dementia in multiple healthcare and social settings. - application of virtual reality testing in individuals with dementia to explore cognitive processes outside the realm of social cognition. - application of event-based models and computational statistical approaches to analyzing complex cognitive datasets. |
| Sectors | Digital/Communication/Information Technologies (including Software),Healthcare |
| URL | https://www.ucl.ac.uk/drc/c-placid-study |
| Description | JPND committee on cognitive assessments |
| Geographic Reach | Asia |
| Policy Influence Type | Membership of a guideline committee |
| Description | Membership of British Psychological Society Dementia Advisory Group |
| Geographic Reach | National |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Description | Accelerated Magnetic Resonance Imaging for Alzheimer's Disease (ADMIRA) |
| Amount | £390,000 (GBP) |
| Organisation | Alzheimer's Society |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 01/2023 |
| End | 12/2025 |
| Description | Alzheimer's Research UK Equipment Grant |
| Amount | £5,000 (GBP) |
| Organisation | Alzheimer's Research UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 06/2016 |
| End | 08/2017 |
| Description | Alzheimer's Research UK UCL Network Equipment Grant |
| Amount | £1,800 (GBP) |
| Organisation | Alzheimer's Research UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 04/2018 |
| End | 04/2019 |
| Description | Alzheimer's Society Implementation grant 2017-2018 (submitted) |
| Amount | £399,725 (GBP) |
| Organisation | Alzheimer's Society |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 10/2018 |
| End | 10/2021 |
| Description | Computational Modelling and Inference of Neurodegenerative Disease Propagation |
| Amount | £1,465,345 (GBP) |
| Funding ID | 221915 |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 11/2021 |
| End | 10/2026 |
| Description | EPSRC Centre for Doctoral Training in Intelligent, Integrated Imaging In Healthcare (i4health) |
| Amount | £6,034,274 (GBP) |
| Funding ID | EP/S021930/1 |
| Organisation | Engineering and Physical Sciences Research Council (EPSRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2019 |
| End | 03/2028 |
| Description | Etherington Posterior Cortical Atrophy Research Programme |
| Amount | £230,000 (GBP) |
| Organisation | National Brain Appeal |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2021 |
| End | 08/2025 |
| Description | National Brain Appeal award for a portable Eyelink 1000 desk-mounted eyetracker to support home-based patient eyetracking assessments |
| Amount | £27,000 (GBP) |
| Organisation | National Brain Appeal |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2016 |
| End | 05/2016 |
| Description | Social Science Plus grant |
| Amount | £10,000 (GBP) |
| Organisation | University College London |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 11/2016 |
| End | 11/2019 |
| Description | The impact of multicomponent support groups for those living with rare dementias |
| Amount | £3,553,977 (GBP) |
| Funding ID | ES/S010467/1 |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2019 |
| End | 12/2023 |
| Description | UCL Public Engagement Pathways: 'Profiles in Paint' |
| Amount | £5,000 (GBP) |
| Organisation | Engineering and Physical Sciences Research Council (EPSRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2015 |
| End | 09/2015 |
| Description | UCL's Collaborative Social Science Domain and Social Science Plus+ |
| Amount | £4,000 (GBP) |
| Organisation | University College London |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 12/2016 |
| End | 07/2017 |
| Description | Wellcome Trust Hub award |
| Amount | £1,087,059 (GBP) |
| Funding ID | 200783/Z/16/Z |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 10/2016 |
| End | 07/2018 |
| Title | DIVE: A spatiotemporal progression model of brain pathology in neurodegenerative disorders |
| Description | Here we present DIVE: Data-driven Inference of Vertexwise Evolution. DIVE is an image-based disease progression model with single-vertex resolution, designed to reconstruct long-term patterns of brain pathology from short-term longitudinal data sets. DIVE clusters vertex-wise biomarker measurements on the cortical surface that have similar temporal dynamics across a patient population, and concurrently estimates an average trajectory of vertex measurements in each cluster. DIVE uniquely outputs a parcellation of the cortex into areas with common progression patterns, leading to a new signature for individual diseases. DIVE further estimates the disease stage and progression speed for every visit of every subject, potentially enhancing stratification for clinical trials or management. On simulated data, DIVE can recover ground truth clusters and their underlying trajectory, provided the average trajectories are sufficiently different between clusters. We demonstrate DIVE on data from two cohorts: the Alzheimer's Disease Neuroimaging Initiative (ADNI) and the Dementia Research Centre (DRC), UK, containing patients with Posterior Cortical Atrophy (PCA) as well as typical Alzheimer's disease (tAD). DIVE finds similar spatial patterns of atrophy for tAD subjects in the two independent datasets (ADNI and DRC), and further reveals distinct patterns of pathology in different diseases (tAD vs PCA) and for distinct types of biomarker data: cortical thickness from Magnetic Resonance Imaging (MRI) vs amyloid load from Positron Emission Tomography (PET). Finally, DIVE can be used to estimate a fine-grained spatial distribution of pathology in the brain using any kind of voxelwise or vertexwise measures including Jacobian compression maps, fractional anisotropy (FA) maps from diffusion imaging or other PET measures. DIVE source code is available online: https://github.com/mrazvan22/dive |
| Type Of Material | Database/Collection of data |
| Year Produced | 2019 |
| Provided To Others? | Yes |
| Impact | DIVE is an image-based disease progression model with single-vertex resolution, designed to reconstruct long-term patterns of brain pathology from short-term longitudinal data sets. DIVE clusters vertex-wise (i.e. point-wise) biomarker measurements on the cortical surface that have similar temporal dynamics across a patient population, and concurrently estimates an average trajectory of vertex measurements in each cluster. DIVE uniquely outputs a parcellation of the cortex into areas with common progression patterns, leading to a new signature for individual diseases. DIVE further estimates the disease stage and progression speed for every visit of every subject, potentially enhancing stratification for clinical trials or management. On simulated data, DIVE can recover ground truth clusters and their underlying trajectory, provided the average trajectories are sufficiently different between clusters. |
| URL | https://arxiv.org/abs/1901.03553 |
| Title | PCA Disease Progression - Analysis from cognitive datasets |
| Description | UCL Department of Computer Science have analysed existing cognitive datasets, with a view to develop event-based models that will 'map out' the progression of the disease (e.g. areas of cognitive testing whereby performance declines in the first instance). This data has been compared with a disease control group cognitive dataset (comprised of individuals with typical Alzheimer's disease). An abstract outlining the finding of the event-based modelling has been submitted to the Alzheimer's Association International Conference in 2016: Firth, N.C., Brotherhood, E.V., Primativo, S., Crutch, S., & Alexander, D. (2016). Data-driven disease progression modelling using cognitive tests: Posterior Cortical Atrophy vs. Alzheimer's Disease. |
| Type Of Material | Computer model/algorithm |
| Provided To Others? | No |
| Impact | Development of event-based models that can accurately model disease progression in different dementias may by used as a guidance tool for clinicians regarding one individual's likely disease trajectory and likely timeframes based on their cognitive scores at the time of diagnosis. |
| URL | https://www.ucl.ac.uk/drc/c-placid-study/cognitive-profiles |
| Description | Created Out of Mind |
| Organisation | Alzheimer's Research UK |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Collaborator Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Impact | Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops |
| Start Year | 2016 |
| Description | Created Out of Mind |
| Organisation | Alzheimer's Society |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Collaborator Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Impact | Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops |
| Start Year | 2016 |
| Description | Created Out of Mind |
| Organisation | Bangor University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Collaborator Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Impact | Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops |
| Start Year | 2016 |
| Description | Created Out of Mind |
| Organisation | British Broadcasting Corporation (BBC) |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Collaborator Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Impact | Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops |
| Start Year | 2016 |
| Description | Created Out of Mind |
| Organisation | Canterbury Christ Church University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Collaborator Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Impact | Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops |
| Start Year | 2016 |
| Description | Created Out of Mind |
| Organisation | City of London Sinfonia |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Collaborator Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Impact | Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops |
| Start Year | 2016 |
| Description | Created Out of Mind |
| Organisation | Creative Dementia Arts Network |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Collaborator Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Impact | Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops |
| Start Year | 2016 |
| Description | Created Out of Mind |
| Organisation | Dementia Pathfinders |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Collaborator Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Impact | Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops |
| Start Year | 2016 |
| Description | Created Out of Mind |
| Organisation | Dementia UK |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Collaborator Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Impact | Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops |
| Start Year | 2016 |
| Description | Created Out of Mind |
| Organisation | Jewish Care |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Collaborator Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Impact | Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops |
| Start Year | 2016 |
| Description | Created Out of Mind |
| Organisation | Living Words |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Collaborator Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Impact | Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops |
| Start Year | 2016 |
| Description | Created Out of Mind |
| Organisation | National Youth Choir of Great Britain |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Collaborator Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Impact | Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops |
| Start Year | 2016 |
| Description | Created Out of Mind |
| Organisation | Rare Dementia Support |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Collaborator Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Impact | Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops |
| Start Year | 2016 |
| Description | Created Out of Mind |
| Organisation | Resonate Arts |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Collaborator Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Impact | Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops |
| Start Year | 2016 |
| Description | Created Out of Mind |
| Organisation | Royal Academy of Music |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Collaborator Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Impact | Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops |
| Start Year | 2016 |
| Description | Created Out of Mind |
| Organisation | Striker Productions Ltd |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Collaborator Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Impact | Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops |
| Start Year | 2016 |
| Description | Created Out of Mind |
| Organisation | University College London Hospitals NHS Foundation Trust |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Collaborator Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Impact | Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops |
| Start Year | 2016 |
| Description | Created Out of Mind |
| Organisation | University of Nottingham |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Collaborator Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Impact | Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops |
| Start Year | 2016 |
| Description | Created Out of Mind |
| Organisation | University of the Arts London |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Collaborator Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Impact | Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops |
| Start Year | 2016 |
| Description | Created Out of Mind |
| Organisation | Wellcome Collection |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Collaborator Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Impact | Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops |
| Start Year | 2016 |
| Description | Created Out of Mind |
| Organisation | West Yorkshire Playhouse |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Collaborator Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Impact | Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops |
| Start Year | 2016 |
| Description | Created Out of Mind |
| Organisation | Wigmore Hall |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Collaborator Contribution | Expertise, research design, contribution to governance and ethics applications, data collection, data analysis, contribution to both public engagement events and academic publications. |
| Impact | Multi-discipline: social science, visual arts, music, dance, arts practitioners, psychologists, computer scientists, engineers; Three publications to date in academic journals; 17 public engagement events; 9 media and broadcast pieces; 28 talks and workshops |
| Start Year | 2016 |
| Description | Global Disability Innovation Hub |
| Organisation | Global Disability Innovation Hub |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Members of the C-PLACID research have liaised with and provided expertise to the Global Disability Innovation Hub regarding aspects of accessibility that might be particularly pertinent to people living with rare forms of dementia (e.g. Posterior Cortical Atrophy) and the ways in which technology can both elucidate and potentially alleviate these difficulties. |
| Collaborator Contribution | Global Disability Innovation Hub have provided expertise about wider disability issues and a new platform for C-PLACID research members to receive feedback on ideas that can be applied to cognitive disabilities aside from dementia, and technological methodologies which could be applied to novel communities within the Hub. |
| Impact | C-PLACID PI Seb Crutch presenting the keynote speech at Global Disability Innovation Hub Summit |
| Start Year | 2016 |
| Description | Longitudinal Investigation of FTD and associated disorders (LIFTD) |
| Organisation | University College London |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | - Eye-tracking incorporated into their test battery following Research Assistant contribution to Science Museum Residency (April 2016); social cognition tests incorporated into LIFTD core neuropsychological tests as baseline for FTD participants in C-PLACID WP3 (Virtual Reality) |
| Collaborator Contribution | Expertise in eye-tracking analysis, assisting Research Assistant with initial eye-tracking paradigms |
| Impact | Ongoing research in FTD using eye-tracking |
| Start Year | 2016 |
| Description | MRC 1946 Birth Cohort |
| Organisation | Medical Research Council (MRC) |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Adding expertise (e.g. value of response to naming tests to be incorporated into cognitive test battery); software development and support; eye-tracking included in test battery |
| Collaborator Contribution | Addition of cognitive test of naming being included into battery |
| Impact | Data collection using naming test currently ongoing |
| Start Year | 2018 |
| Description | RDS Impact Project |
| Organisation | Bangor University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | C-PLACID research team members have received £3.65m from ESRC-NIHR - contributing expertise from computational neuroscience to evaluate the logic model of support group functions (cross-modal; e.g. face-to-face, virtual or online support); psychologists and social scientists including individuals from the C-PLACID research team to evaluate measures of impact of being a member of a support group dedicated to rare dementias. |
| Collaborator Contribution | Bangor University will be undertaking economic modelling of established support group practices and novel approaches to support; social scientists are also providing expertise in alternative analysis of the data collected (e.g. applying theoretical frameworks to support group functions and measuring impact). |
| Impact | Predicted outcomes include scientific journal articles, public engagement opportunities, practical applications to the Rare Dementia Support Groups |
| Start Year | 2018 |
| Description | RDS Impact Project |
| Organisation | Nipissing University |
| Country | Canada |
| Sector | Academic/University |
| PI Contribution | C-PLACID research team members have received £3.65m from ESRC-NIHR - contributing expertise from computational neuroscience to evaluate the logic model of support group functions (cross-modal; e.g. face-to-face, virtual or online support); psychologists and social scientists including individuals from the C-PLACID research team to evaluate measures of impact of being a member of a support group dedicated to rare dementias. |
| Collaborator Contribution | Bangor University will be undertaking economic modelling of established support group practices and novel approaches to support; social scientists are also providing expertise in alternative analysis of the data collected (e.g. applying theoretical frameworks to support group functions and measuring impact). |
| Impact | Predicted outcomes include scientific journal articles, public engagement opportunities, practical applications to the Rare Dementia Support Groups |
| Start Year | 2018 |
| Description | RDS Impact Project |
| Organisation | Rare Dementia Support |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | C-PLACID research team members have received £3.65m from ESRC-NIHR - contributing expertise from computational neuroscience to evaluate the logic model of support group functions (cross-modal; e.g. face-to-face, virtual or online support); psychologists and social scientists including individuals from the C-PLACID research team to evaluate measures of impact of being a member of a support group dedicated to rare dementias. |
| Collaborator Contribution | Bangor University will be undertaking economic modelling of established support group practices and novel approaches to support; social scientists are also providing expertise in alternative analysis of the data collected (e.g. applying theoretical frameworks to support group functions and measuring impact). |
| Impact | Predicted outcomes include scientific journal articles, public engagement opportunities, practical applications to the Rare Dementia Support Groups |
| Start Year | 2018 |
| Description | Wellcome Innovation Grant Application |
| Organisation | Ctrl Group Ltd |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | Expertise on automated cognitive testing; in partnership with Ctrl Group, who approached the C-PLACID Research Team based on our remit for investigating tech in dementia research. The research team put Ctrl Group in touch with Join Dementia Research, who also became interested in the notion of implementing a short automated cognitive test as a pre-screen for potential participants on clinical trials. |
| Collaborator Contribution | Ctrl Group have provided expertise based on their previous iterations of automating cognitive tests; Join Dementia Research has provided expertise on the specific needs and requirements for a test that would best support their vision using the Join Dementia Research platform |
| Impact | Wellcome Innovation Grant application is currently in progress with members of the C-PLACID research team, Join Dementia Research and Ctrl Group |
| Start Year | 2017 |
| Description | Wellcome Innovation Grant Application |
| Organisation | National Institute for Health Research |
| Department | NIHR Join Dementia Research |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Expertise on automated cognitive testing; in partnership with Ctrl Group, who approached the C-PLACID Research Team based on our remit for investigating tech in dementia research. The research team put Ctrl Group in touch with Join Dementia Research, who also became interested in the notion of implementing a short automated cognitive test as a pre-screen for potential participants on clinical trials. |
| Collaborator Contribution | Ctrl Group have provided expertise based on their previous iterations of automating cognitive tests; Join Dementia Research has provided expertise on the specific needs and requirements for a test that would best support their vision using the Join Dementia Research platform |
| Impact | Wellcome Innovation Grant application is currently in progress with members of the C-PLACID research team, Join Dementia Research and Ctrl Group |
| Start Year | 2017 |
| Description | 2017 Dementia MRI conference, Cardiff, Wales - invited lecture |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Invited lecture on 'Seeing what they see: neuropsychological and neuroimaging investigations of posterior cortical atrophy (PCA)' |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.cardiff.ac.uk/conferences/2017-dementia-mri-conference/programme |
| Description | 2017 International Conference On Mobile Brain-Body Imaging And The Neuroscience Of Art, Innovation And Creativity, Valencia, Spain - invited lecture |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Lecture on 'Created Out of Mind: Shaping perceptions of dementia through art and science' |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://yourbrainonart2017.egr.uh.edu/schedule |
| Description | 2018 International Congress on Space and Dementia, Taiwan - invited participant and speaker |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Two invited lectures and case discussions in Taipei and Tainan on 'Seeing what they see: cognitive, neuroimaging, genetic and engineering perspectives on posterior cortical atrophy (PCA)' |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://www.tds.org.tw/files/common_unit/dcea051a-867b-4793-a0df-904da30b3e88/doc/2018%20Internationa... |
| Description | A talk or presentation - Poster presentation: Can eye-tracking metrics provide insight into differential diagnosis of dementias? A spatial anticipation task |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | This is an abstract submission for AAIC Chicago 2018 on eye-tracking and differential diagnosis in dementia. The abstract has not been accepted yet but the submission has been made. |
| Year(s) Of Engagement Activity | 2018 |
| Description | A walk through dementia Virtual Reality (VR) experience |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Scientific advisor to Alzheimer's Research UK's 'A walk through dementia' virtual reality experience, a unique Android-exclusive Google Cardboard app designed to put you in the shoes of someone living with dementia. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://awalkthroughdementia.org/ |
| Description | AAIC (Toronto, 2016): Data-driven disease progression modelling using cognitive tests: Posterior Cortical Atrophy vs. Alzheimer's Disease. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Data-driven disease progression modelling using cognitive tests: Posterior Cortical Atrophy vs. Alzheimer's Disease: poster presentation |
| Year(s) Of Engagement Activity | 2016 |
| Description | AAIC (Toronto, 2016): Virtual reality as an assessment of social cognition in behavioural variant Frontotemporal Dementia: A Pilot Study |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Virtual reality as an assessment of social cognition in behavioural variant Frontotemporal Dementia: A Pilot Study: poster presentation |
| Year(s) Of Engagement Activity | 2016 |
| Description | ANALYSIS OF THE HETEROGENEITY OF POSTERIOR CORTICAL ATROPHY: DATA-DRIVEN MODEL PREDICTS DISTINCT ATROPHY PATTERNS FOR THREE DIFFERENT COGNITIVE SUBGROUPS |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Conference presentation at the Alzheimer's Association International Conference, London 2017 |
| Year(s) Of Engagement Activity | 2017 |
| Description | Asian Societies Against Dementia (ASAD) conference, Bangkok, Thailand - invited plenary lecture |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Asian Societies Against Dementia (ASAD) conference invited plenary lecture on 'New horizons in posterior cortical atrophy (PCA)' and second lecture on 'Visual processing and object recognition' |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.ipa-online.org/news-and-issues/asad-meeting-review |
| Description | British Council organised keynote and workshop on Creative Ageing - Museum Engagement & Learning, Taichung, Taiwan, November 2018 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | - keynote presentation and a workshop at National Museum of Natural History in Taichung City, Taiwan. - pre-program visit to museum exhibition for an understanding of local context - Conference (keynote & panel discussion) - Workshop |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://www.britishcouncil.org.tw/en/event/2018CreativeAgeing |
| Description | C-PLACID Presentation at Frontotemporal Dementia Support Group Meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | We presented the rationale of the C-PLACID Virtual Reality study to carers (including spouses and family members/friends) of people with frontotemporal dementia (FTD). We asked for their help in sharing stories that we could group together in themes, and use to model the virtual reality scenarios we constructed for pilot testing. |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://www.ucl.ac.uk/drc/ftdsupport/upcoming-meetings/meeting-recordings/#July2015 |
| Description | C-PLACID Website |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | The C-PLACID website has been created in order to sign-post potential participants, and the general public, through the project and its various tenets. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.ucl.ac.uk/drc/c-placid-study |
| Description | CAN EYETRACKING METRICS RELATE TO PERFORMANCE ON VISUAL COGNITIVE TESTS OF INDIVIDUALS WITH YOUNG-ONSET ALZHEIMER'S DISEASE? |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | I presented a poster presentation at AAIC London 2017. I talked about the relationship between eye-tracking and other neuropsychological scores in young onset dementias likes Alzheimer's disease and syndromes like posterior cortical atrophy. |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://www.alzheimersanddementia.com/article/S1552-5260(17)32393-2/abstract |
| Description | Club de Neuro-Ophtalmologie Francophone (CNOF) conference, Lyon, France - invited plenary lecture |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited plenary lecture on 'Atrophie Corticale Postérieure' |
| Year(s) Of Engagement Activity | 2018 |
| URL | http://www.neuro-ophtalmologie-club.org/wp-content/uploads/2018/01/PROGRAMME_FINAL_CNOF_1701.pdf |
| Description | Collaborative Social Science Domain, Social Science Plus launch event - Can the Amazon Echo increase independence in dementia? |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Postgraduate students |
| Results and Impact | Approx 60 people attended for a talk from C-PLACID team member Nick Firth about how Amazon echoes and other technologies could increase independence in people living with a dementia and their family members/carers, sparking subsequent discussion between Nick and the audience members. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Creative Adventures in Dementia: A Life More Ordinary festival, Dukes Theatre, Lancaster, May 2018 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Presented a talk on different dementias, and was part of a panel discussion with journalist Nicci Gerrard, writer Wendy Mitchell and actor John Middleton. A unique 2 day exploration of how the arts are touching the lives of people living with dementia in wonderful and remarkable ways. 'A Life More Ordinary' invites people living with dementia, family friends, health and care professionals, artists, researchers and, clinical commissioning teams, to share and discover some of the ground-breaking ways that the arts help us understand dementia better and play an invaluable part in how we journey through life together. This event will include keynote speakers, performances and workshops by some of the most pioneering artists, practitioners, researchers and extraordinary people, working with people with dementia, in a variety of settings and in unique ways. Please join us to explore, share and discover how the arts are revealing new ways of entering the world of people living with dementia and helping them to continue enjoying, richer fuller lives. A Life More Ordinary is a 3 year project led by The Dukes, which aims to improve the lives of people with dementia and memory loss and their friends and families, by providing fun creative activities and film screenings in an adapted environment. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://dukes-lancaster.org/?event=creative-adventures-dementia-life-ordinary-festival |
| Description | Danish Neuropsychological Society (Copenhagen) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | 2 lectures on PCA and visual hallucinations to the Danish Neuropsychological Society |
| Year(s) Of Engagement Activity | 2022 |
| Description | Dementia Research Centre (Copenhagen) talk |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Lectures on both the Rare Dementia Support Impact study and on PCA and dementia-related visual impairment |
| Year(s) Of Engagement Activity | 2022 |
| Description | Dementia Research Centre Newsletter |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | The Seeing What They See study was featured in the Dementia Research Centre newsletter. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Emilie Brotherhood PhD Flash Presentation |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | A flash presentaton (90 second display video outlining the C-PLACID Virtual Reality video) will be played to the attendees of the Alzheimer's Research UK Conference 2016. We hope that being introduced to the Virtual Reality part of C-PLACID will spark questions and discussions by others investigating social cognition in Frontotemporal Dementia (FTD) or those using virtual reality to test other kinds of dementia. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.ucl.ac.uk/drc/c-placid-study/virtual-reality/news |
| Description | Eyes to the stars feet on the ground: Career development in visual Neurosciences conference, Jerusalem, Israel - invited lecture |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | Invited lecture on 'Seeing what they see: cognitive, neuroimaging, genetic and engineering perspectives on posterior cortical atrophy (PCA)' |
| Year(s) Of Engagement Activity | 2018 |
| Description | Headspace creative ageing international conference, Dublin, April 2018 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | From conference programme: HeadSpace2018 was a two-day celebration of scientific and creative investigation into brain health and dementia. Held in Trinity College Dublin on April 27th & 28th 2018, we invited people to join us in conversations about caring communities, research and cultural solutions, that informed, engaged, entertained and inspired. The brain is especially sensitive to external influence and aging. Poverty, housing and education have huge effects on health. As does access to healthcare, isolation, social connectedness and personal security. Its estimated these social determinants account for 50% of disease and mortality. We grow old in different ways. By 2041, 22% of the population with be 65 or older. Addressing this change is key to improving health but healthcare alone can't solve the issues. It needs creative thinking and collaborative effort. Champions across society and government. Many voices and communities contributing to new scientific discoveries, innovations and cultural change in this area is important. People joined us and to bring their lived and learnt experience to the forum. Can we live longer, better? How do we change? What can we do, today? Where is innovation creating tomorrow's solutions? |
| Year(s) Of Engagement Activity | 2018 |
| URL | http://www.creativeageinginternational.com/2018/04/24/headspace-2018-schedule/ |
| Description | Impact article - section dedicated to C-PLACID |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | To be published in 2018: One page interview with Seb, conducted via email between Dec 2017 and February 2018. This information will be collated with the project summary, grant proposals, web links, and any additional material or images about C-PLACID in the public domain. This will contribute to a two page article fully written and designed by Science Impact. The article will highlight certain objectives and planned outputs and the potential impact and relevance of the research to the different stakeholders receiving the publication. |
| Year(s) Of Engagement Activity | 2018 |
| URL | http://impactmagazine.ca/topics/science/ |
| Description | Inaugural Ancoli-Israel lecture (University of San Diego online, May 2022) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited to give the inaugural Ancoli-Israel lecture (University of San Diego online, May 2022) about posterior cortical atrophy (PCA) |
| Year(s) Of Engagement Activity | 2022 |
| Description | Institute of Cognitive Neuroscience seminar- Mechanisms of visual and multisensory disturbances in posterior cortical atrophy |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | Institute of Cognitive Neuroscience seminar- Mechanisms of visual and multisensory disturbances in posterior cortical atrophy, ~30 attendees, regional attendence, 20/02/23 |
| Year(s) Of Engagement Activity | 2023 |
| Description | Institute of Healthcare Engineering launch: Living well with Dementia |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | This event intended to formalise collaborative work between UCL's Institute of Biomedical Engineering (IBME) and UCL-affiliated hospitals. Professor Nick Tyler, Dr Catherine Holloway and Dr Keir Yong presented the "Seeing what they see" study from a booth to an audience formed of clinicians, academics, industry and third sector representatives. |
| Year(s) Of Engagement Activity | 2016 |
| Description | International Conference on Frontotemporal Dementias, Munich, Germany (September, 2016) - Poster Presentation |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Virtual reality as an assessment of cognition in behavioural variant Frontotemporal Dementia: A Feasibility Study. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Invited lecture to Nordic Neuropsychology Society (online) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited lecture to the main Nordic organsiation for clinical neuropsychologists and allied healthcare professionals |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://nordicmeeting2021.com/speakers.html |
| Description | Italian Association of Experimental Psychology - oral presentation |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Oral presentation of an eyetracking study conducted on patients |
| Year(s) Of Engagement Activity | 2016 |
| Description | Lille lecture to French national memory service (Yong) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | MA2, Lille - Posterior cortical atrophy: Visual (and non-visual) disturbances, origins and clinical implications - Trouble neurocognitif mineur et syndromes focaux, "focal syndromes" session, ~100 attendees, french national memory service, 12/01/23 |
| Year(s) Of Engagement Activity | 2023 |
| Description | Live Science residency at the Science Museum |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | This project focuses on the standardisation of the short and instruction-less eye-tracking test we have developed. We plan to use this exciting one-off opportunity to engage with the public at the Science Museum, during a 6-week residency in April-May 2016. SR research have agreed to loan an Eyelink 1000 desk-mounted eye-tracker worth £27,000 for testing purposes during the residency. we will use this residency to gather normative data and demonstrate the utility of eyetracking for assessing cognitive impairment in dementia. Update: We acquired normative data from over 850+ members of the public for a number of instruction-less eye-tracking paradigms, providing a number of opportunities for analysis and development by post-doctoral and current and prospective PhD students. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.ucl.ac.uk/drc/c-placid-study/eye-tracking/news |
| Description | Lund University, Sweden, invited seminar on abstract words |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Type Of Presentation | keynote/invited speaker |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | New debate and revision of ongoing and planned experiments. Further citations of current and previous work. |
| Year(s) Of Engagement Activity | 2015 |
| Description | MODELLING EYE-TRACKING DATA TO DISCRIMINATE BETWEEN ALZHEIMER'S PATIENTS AND HEALTHY CONTROLS |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presented at the Alzheimer's Association International Conference, London 2017 |
| Year(s) Of Engagement Activity | 2017 |
| Description | Meet the Researchers undergraduate video interview project |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | Interview elicited questions about dementia diagnosis, causes and future research Interview sparked interest in dementia research projects and placements by undergraduate students |
| Year(s) Of Engagement Activity | 2014 |
| URL | https://www.youtube.com/watch?v=Z2Xv5WqhBaM&feature=youtu.be |
| Description | National PCA support group meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | C-PLACID research team member Nick Firth delivered a talk on the 'Echoes Around The Home' project, a branch of research investigating the impact of Amazon Dot on improving the lives of people living with PCA and harnessing computational methods to analyse the language used in everyday conversations both interacting with the technology and between groups. The audience present at the talk was estimated at approx. 80 people, however these sessions are videoed and due to be uploaded on the Rare Dementia Support website, which is accessible to any member of the public, worldwide. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Oxfordshire regional PCA support group meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Speaking about the 'Echoes Around The Home' project, C-PLACID research team member Nick Firth delivered a talk to the PCA Support Group. |
| Year(s) Of Engagement Activity | 2017 |
| Description | PCA presentation to ophthalmologists at Scottish Ophthalmology Club conference (Stirling, September 2019) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation about Posterior Cortical Atrophy (PCA) and the management and support needs of these patients to more than 100 ophthalmologists and related eye health care professionals and businesses attending the Scottish Ophthalmological Club conference (Stirling University, 19-20 Sept 2019) |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://www.s-o-c.org.uk/pictures/SOC%20Programme%20Sep%202019.doc |
| Description | PCA training for Oxfordshire clincial psychologists (Aylesbury, March 2020) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | PCA training for a group of 25 Oxfordshire, Herfordshire and Buckinghamshire-based clincial psychologists |
| Year(s) Of Engagement Activity | 2020 |
| Description | Patient and carer support group |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Establishment of a national and international PCA community of patients, carers and healthcare professionals sharing information, improving practice and generating ideas for future research - Establishment of worldwide PCA Facebook group - Highlighted the frequency of balance problems in PCA, which are now the subject of a new research project and collaboration entitled "Am I the right way up?" Investigating balance problems in posterior cortical atrophy, funded by the Alzheimer's Society. |
| Year(s) Of Engagement Activity | 2007,2008,2009,2010,2011,2012,2013,2014,2015,2016 |
| URL | http://www.ucl.ac.uk/drc/pcasupport |
| Description | Pint of Science - VR Experience |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Pint of Science event in which a VR installation was set up to convey a test of colour preferences within a space; public engagement branch of research being undertaken |
| Year(s) Of Engagement Activity | 2017 |
| Description | Poster presentation "A spatial anticipation deficit is revealed by eyetracking metrics in behavioural variant frontotemporal dementia" |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Poster presentation of the work entitled "A spatial anticipation deficit is revealed by eyetracking metrics in behavioural variant frontotemporal dementia" |
| Year(s) Of Engagement Activity | 2016 |
| Description | Programme chair for Alzheimer's Research Conference 2015 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | Yes |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Programme chair and local organiser. Highly enjoyable conference with lots of participants commenting on the quality of the scientific research presented and discussed. Extensive knowledge exchange, interdisciplinary conversations and new collaborations. ARUK staff to report conference summary in Alzheimer's and Dementia. |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.arukconf.org/ |
| Description | Radio 3 Residency - 'Why Music?' |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | C-PLACID research team members Sebastian Crutch and work from Nick Firth (re: eye-tracking/empatica readings analysed while participants listened to familiar vs. unfamiliar music) was reported within the Radio 3 Residency collaboration between Wellcome and BBC 'Why Music?'. Methodologies were explained to the public, and the importance of technological advances in assisting and enriching our understanding of cognition in dementia was emphasised. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Salzburg Global Seminar on Dementia Friendly Communities - invited participant and speaker |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Gave talk and led discussion themed around 'The Role of Arts in Mitigating the Impact of Dementia' with particular reference to dementia-related visual dysfunction |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://www.salzburgglobal.org/calendar/2010-2019/2017/session-587.html |
| Description | School Visit (St. Thomas's, Clapham) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Schools |
| Results and Impact | 46 pupils aged between 10 and 11 attended their after-school club, where Miss. Emilie Brotherhood presented to them the concept of using technology to help us better understand dementia. This sparked discussion and questions from the pupils (e.g. 'do people with dementia know that they are having their eyes measured?' which sparked a conversation about ethics and capacity to consent, particularly with reference to using technology to measure physiological responses). The school has since invited Miss. Emilie Brotherhood to continue to speak at the school to update about project progress. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Science Museum Dementia 'Late' |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | This will be a one-off event as part of the monthly 'Science Museum Lates' which will feature talks, demonstrations and exhibits by members of the Seeing what they see team. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.sciencemuseum.org.uk/visitmuseum/plan_your_visit/lates |
| Description | Science Museum Late |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | C-PLACID researchers contributed to a programme across the Science Museum, London, which was a Late event dedicated to the topic of dementia. C-PLACID research members ran an 'eye-tracking station' whereby we demonstrated two eye-tracking paradigms for members of the public to see, taking part in a 'dummy' experiment so the general public could see what eye-tracking research involves, with the opportunity to ask questions about how eye-tracking can help us better understand dementia. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.ucl.ac.uk/pals/research/experimental-psychology/event/lost-in-thought-science-museum-lat... |
| Description | TANDEM The Arts and Dementia conference, Nottingham, November 2018 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk on posterior cortical atrophy, and the role of people living with dementia and their carers in inspiting, shaping and improving research. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://www.alzheimers.org.uk/Care-and-cure-magazine/winter-18/tandem-arts-and-dementia |
| Description | The Many Faces of Dementia free Mass Open Online Course |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | More than 8,000 people have already signed up for this free online course which reveals some of the key issues in dementia care and research by exploring four less common forms of dementia through the eyes of people affected by the condition, and world-leading experts at UCL. Week 4 (What if dementia affects your vision, not your memory?) is led by the Seeing what they see team. |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://www.futurelearn.com/courses/faces-of-dementia |
| Description | The XIth PRACTICAL COGNITION COURSE Newcastle upon Tyne 4-5 October 2018 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | From programme: The highly successful Practical Cognition Course will take place for the eleventh year running on Thursday 4th to Friday 5th October 2018 at the Institute of Neuroscience, Newcastle upon Tyne. This course is for consultants and trainees in neurology, psychiatry, neuropsychology and rehabilitation medicine who want to develop their practical expertise in cognitive assessment and relate this to clinically relevant neuroscience. There will be a practical introductory session to cognitive assessment followed by four sessions of case presentations discussing the assessment, diagnosis and management of common cognitive syndromes. The course begins and ends with the patient. Case presentations will feature video material illustrating disorders that clinicians may encounter in daily practice. Each session will also include a talk from an invited expert, who will provide a framework for understanding the clinically relevant neuroscience. This year's course will cover: MEMORY DISORDERS, DISORDERS OF MOTOR FUNCTION & COGNITION, VASCULAR DISEASE & COGNITION, and VISUOSPATIAL DISORDERS. Guest speakers include Sinead Mullally (Newcastle), Liz Coulthard (Bristol), Hugh Markus (Cambridge) and Sebastian Crutch (UCL). The course is organized by neurologists Tim Griffiths (Newcastle) and Chris Butler (Oxford), sponsored by the Guarantors of Brain, and accredited for CME points with the Royal College of Physicians. |
| Year(s) Of Engagement Activity | 2018 |
| Description | UK-Korea Creative Aging festival - British Council trip to South Korea and invited talks |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Week long visit to South Korea. Invited by British Council. Gave three talks in Seoul and Busan about dementia, vision and the arts. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.britishcouncil.kr/en/uk-korea-2017-18/events/creative-ageing-conference |
| Description | Vicky McClure: My Dementia Choir |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | 12 week choral programme for people living with a dementia - research took place alongside filming for a British Broadcasting Corporation documentary about a choir of people living with a diagnosis of a dementia ('Vicky McClure: My Dementia Choir'), providing a complementary scientific perspective to the narrative of how people living with a dementia respond to music activities. Using wearable technology to elucidate the physiological responses to taking part in the choral programme and measuring against wellbeing scale scores of engagement, interest, happiness etc. and a stress scale. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://www.bbc.co.uk/mediacentre/latestnews/2017/factual-autumn-commissions |
| Description | Wellcome Graphic Design Workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | C-PLACID research member Nick Firth contributed expertise to a workshop focusing on the language used in dementia campaigns by major dementia charities within the UK - spoke about work analysing language used to describe dementia in broadcast media using a computational technique (e.g. Natural Language Processing) |
| Year(s) Of Engagement Activity | 2017 |