The Northern Ireland Cohort for the Longitudinal Study of Ageing (NICOLA) - CAPI

Lead Research Organisation: Queen's University of Belfast
Department Name: Centre for Public Health

Abstract

The NICOLA study will be the most detailed study on ageing ever undertaken in Northern Ireland.
NICOLA has been set up by a group of researchers in the Centre for Public Health in Queen's University Belfast.
The purpose of NICOLA is to understand the health, lifestyles and financial situation of 8,500 people as they grow older in Northern Ireland, and to see how their circumstances change over a 10-15 year period as they move into and progress beyond retirement.
The study will cover a broad set of topics relevant to a full understanding of the ageing process.
The results will then be compared to those from similar studies in the United Kingdom and the Republic of Ireland.

The study is important as the population aged over 50 is the most rapidly growing group in Northern Ireland.

Not enough is known about the implications of population ageing. Until now there has not been good enough data to study the issues and therefore inform government policy on health, pensions or retirement, for example.

Key questions that this study will be designed to answer are:

What is the relationship between health and wealth?
What determines the nature and timing of retirement?
How important are household and family structures to health, wealth and quality of life?
How adequate are financial provisions for retirement, and how can policy help?
How should the government optimise the use and quality of health and social care services?
What is the nature and structure of social networks, support and participation for older people?

8500 people throughout Northern Ireland have been randomly selected to become members of this study. Study members and their partners will be interviewed in a Computer Assisted Personal Interview (CAPI) every two years in order to build up a detailed picture of how circumstances change in later life.

The NICOLA study consists of the following 3 stages: an interview, a questionnaire and a health assessment.
In this first stage, a 90 minute Computer Assisted Personal Interview (CAPI) is conducted in the participants own home at a time that suits them.
IPSOS Mori, a leading research company, have been commissioned to carry out these home interviews.
The interviewers collect information on living arrangements, children, education, income and assets, physical and mental health, employment, lifelong learning, planning for retirement, care and social support. They record this information using a computer.
Questions will be asked about health, diet, work, family and social networks, income and benefit receipts, quality of life, cognitive functioning, daily activities, housing, retirement and pensions. The affect of 'the troubles' on the lives of people will also be explored.

NICOLA study members further invited to take part in a home interview every two years and a health assessment every four years.
All participants will be provided with detailed information sheets prior to the home interview and health assessment and will have the opportunity to contact the study team directly to ask any questions they may have.

Information gathered during this study will be used to inform and plan Northern Ireland Health and Social Care provision in the future, and to design other policies targeted towards older people.
Academic researchers will also use the data to help understand important questions in health, economics and ageing. Their results will then be used to advise policy makers on how best to design policies for health and pensions and to compare the Northern Ireland population to similar populations in other countries

Everything captured in the interview is treated in strict confidence. The results will not be used in any way in which they can be associated with participants or their addresses.
All information you give will be treated in the strictest confidence and used for research purposes only.

Planned Impact

This project supports the Northern Ireland 'Ageing in an Inclusive Society Strategy' and the European Plan for Promotion of Active Ageing 2011.
WHO WILL BENEFIT: Older citizens of GB and Ireland; carers and commissioners; Policy makers across GB, Ireland and at EU Level; Third Sector advocates for older people; Health & Social Care practitioners; Junior researchers; the international academic community; participants of the study and their families.
HOW WILL THEY BENEFIT: The types of impact anticipated include advancing knowledge, building capacity, informing decision making, improved health and social welfare and increasing public engagement with research. Older citizens will benefit from information on best ways to: stay active, maintain physical and mental wellbeing and remain productive for longer. Policy makers need high quality information from a well characterised cohort to inform policies and incentives for example on saving, active living, economic productivity, welfare and pension planning. Practitioners and advocates need comparable information with which to better inform their lobbying activities, for example on targeting services for vulnerable older people. Information on physical and cognitive functioning and the determinants of retirement behaviour will be of benefit to the Welfare Reform Expert Advisory Group, in light of the removal of the Default Retirement Age and the associated need for updating or re-skilling of an older workforce. Junior researchers can use a long term cohort study to build up a credible body of work, for academic career progression, either to a nationally competitive Senior Research Fellowship or a tenured lectureship. Collaboration and knowledge co-production are part of the modus operandi of the UKCRC Centre of Excellence for Public Health, (itself an embedded partnership with policy makers, practitioners, the Third Sector and the public), and are essential to maximize the impact of the work. The representation of all key stakeholders within the management and governance structure of the study will ensure that user engagement, from the outset, guides the development and impact of the work and ensure that the voice of older people is heard and that the research questions and methods are relevant to older citizens and their families. Dissemination and Outreach activities will commence even before wave 1 recruitment and analysis is complete. This will be guided by a written strategy and plan that also addresses the needs of hard- to-reach groups, but will involve a broad range of media and methods of engagement including: the development of a study website, featuring news and study relatedevent updates and linked to social networking outlets.
Printed media will be of various types including: plain English lay summaries of the research in E-zines and Newssheets
(including large print versions) which all participants and Third Sector partners will automatically receive; Briefing papers written specifically for policy makers and practitioners; "highlight" pieces for the Press; academic papers for open access and high impact peer reviewed journals.
Outreach activities will include workshops to report progress and obtain feedback from different audiences including the Third Sector and older people as part of a regular Community Stakeholder Forum, policy makers and practitioners. Results will be presented at national and international conferences. Our Centre has a track record of delivering these activities and of working with the Science Shop, the External Affairs Office and the Knowledge Exploitation Unit of the University, and the Policy Innovation Unit of the Office of the First Minister and deputy First Minister to identify opportunities to reach out to the wider community and business sectors.

Publications

10 25 50

publication icon
McCarter RV (2018) Evaluation of coronary artery disease as a risk factor for reticular pseudodrusen. in The British journal of ophthalmology

 
Description WAVE 1 REPORT LAUNCH
The study gathered momentum in 2017 in many ways but the launch of the Key Findings Report from Wave 1 was the highlight(http://www.qub.ac.uk/sites/NICOLA/FileStore/Filetoupload,783215,en.pdf). Key speakers included Eddie Lynch (Older Persons Commissioner) and Ms Bernie Rooney, (Director of Social Inclusion, Department of Communities) who championed the findings and offered the NICOLA team a future meeting with the Head of the Civil Service NI to identify shared opportunities to leverage impact from the study. In addition attendance by study participants ensured visible and meaningful user engagement, the 'heard voice of the older people'. A participant panel already endorsed future plans for Data Linkage.
CAPACITY BUILDING
A bid has been submitted to the Health and Social Care Research and Development Office and the University for joint funding of core infrastructure (2xClerical Officers, 1xData Manager, 2xScientific Officers, 1xProject Manager and 1xDatabase Manager). Written endorsement is awaited but verbal commitments already given. So far, funding has been attracted to support multiple researchers using the NICOLA cohort data including 12 PhD Students and 6 post-doctoral fellows (~ £1.3M).
ACADEMIC OUTPUTS
Throughout the ESRC funding period a number of academic outputs have begun to extend the reach and visibility of NICOLA (see below). This is indicative of growing momentum and interest as future waves become available. Additional details of each output can be found in the attached link (http://www.qub.ac.uk/sites/NICOLA/Informationforresearchers/).
The NICOLA Cohort Paper (currently in draft) will be submitted imminently for peer review by the International Journal of Epidemiology.
NATIONAL AND INTERNATIONAL REACH
In late 2017 Queen University signed a contract with the Dementia Platform UK which will significantly increase the reach of the resource. The NICOLA team will work with DPUK throughout 2018 and take the initial steps to ensure the archiving of the resource on this platform.
In addition NICOLA has joined a number of existing international consortia focussed on ageing research that will extend the academic opportunities arising from such partnerships, including:
• the NIA funded Harmonization of Health and Retirement Studies project, ensuring our membership of the Gateway to Global Aging Data consortium (www.g2aging.org) the aim of which is to facilitate longitudinal cross-national comparative studies on aging;
• the NIA funded International Biomarker Harmonization Project, allowing for more direct cross-calibration of biomarker results from different studies;
• the International Age-related Macular Degeneration Consortium (http://amdgenetics.org ), the EU funded EYERISK Network (http://www.eyerisk.eu ) and the European Eye Epidemiology Ophthalmology consortium (https://www.ncbi.nlm.nih.gov/pubmed/26686680);
• the Haplotype Reference Consortium for European-ancestry samples with a focus on anthropometric phenotypes (GIANT; http://portals.broadinstitute.org/collaboration/giant/index.php/GIANT_consortium) and lipid phenotypes (GLGC; http://lipidgenetics.org/).
• the LifePath project (https://www.lifepathproject.eu/), currently preparing data to contribute to their meta-analysis of epigenome-wide association data for SES (using education as a proxy).
• the UKIRTC (www.ukirtc.org/site/) and iGeneTRAiN (igenetrain.org/) consortia, acting as a general population control sample
Exploitation Route The findings in the 1st wave report are being used by our stakeholders who have contributed to the content and design of Wave 2. Various government departments and 3rd sector bodies have requested follow-up analyses, which will be a priority for 2018, and which should increase the cohort's visibility with government and should help us secure some future funding locally.
Sectors Agriculture, Food and Drink,Communities and Social Services/Policy,Environment,Healthcare,Leisure Activities, including Sports, Recreation and Tourism,Government, Democracy and Justice,Culture, Heritage, Museums and Collections,Transport

URL http://www.qub.ac.uk/sites/NICOLA/FileStore/Filetoupload,783215,en.pdf
 
Description Active participation with Public Health Agency Health Professionals to develop NI Frailty Network
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Participation in a advisory committee
 
Description American Federation of Aging Research (Beeson-CARDI) Research Innovation Award
Amount $51,405 (USD)
Organisation American Federation for Aging Research 
Sector Charity/Non Profit
Country Unknown
Start 01/2018 
End 01/2019
 
Description Beeson Fellows - CARDI Scholars Innovation Fund (Alcohol Consumption and brain health in older adults across the island of Ireland)
Amount $51,405 (USD)
Organisation American Federation for Aging Research 
Sector Charity/Non Profit
Country Unknown
Start 01/2018 
End 12/2018
 
Description CARDI leadership programme (Dr Joanne Feeney) - {IY}
Amount £173,942 (GBP)
Organisation Academia Sinica 
Department Institute of Astronomy and Astrophysics
Sector Academic/University
Country Taiwan, Province of China
Start 10/2014 
End 09/2017
 
Description Centre for Ageing Research and Development in Ireland Fellowship Scheme (Dr Charlotte Neville) - {JW)
Amount £180,000 (GBP)
Organisation Centre for Ageing Research and Development in Ireland (CARDI) 
Sector Charity/Non Profit
Country Ireland
Start 10/2014 
End 09/2017
 
Description Centre for Ageing Research and Development in Ireland Research Leadership Program (Dr Charlotte Neville) - {CN}
Amount £280,000 (GBP)
Organisation Centre for Ageing Research and Development in Ireland (CARDI) 
Sector Charity/Non Profit
Country Ireland
Start 10/2014 
End 10/2017
 
Description Leadership Programme in Ageing Research Fellowship (Dr Joanna McHugh) - {FK}
Amount € 225,000 (EUR)
Organisation Centre for Ageing Research and Development in Ireland (CARDI) 
Sector Charity/Non Profit
Country Ireland
Start 10/2014 
End 09/2017
 
Description Leadership Programme in Ageing Research Fellowship (Dr Mark ODoherty) - {MOD}
Amount € 150,000 (EUR)
Organisation Centre for Ageing Research and Development in Ireland (CARDI) 
Sector Charity/Non Profit
Country Ireland
Start 04/2014 
End 03/2017
 
Description Northern Ireland Research and Development Division of the Pubic Health Agency
Amount £300,000 (GBP)
Funding ID STL/4009/08 
Organisation Northern Ireland HSC R&D 
Sector Public
Country United Kingdom
Start 02/2017 
End 02/2018
 
Title NICOLA 
Description Cohort of Computer Assisted Personal Interview data on 8500 community dwelling older people (> 50 years) in Northern Ireland 
Type Of Material Database/Collection of data 
Provided To Others? No  
Impact None yet. The data base will be provided to other researchers in due course. 
URL https://www.qub.ac.uk/research-centres/CentreofExcellenceforPublicHealthNorthernIreland/Research/NIC...
 
Description Collaboration between ELSA and TILDA study investigators with the NICOLA study team 
Organisation Trinity College Dublin
Department The Irish Longitudinal Study on Ageing
Country Ireland 
Sector Academic/University 
PI Contribution Professor Kee, with colleagues in the UKCRC Centre of Excellence for Public Health and others associated with the NICOLA study, are taking the lead in making a new grant application to the Welcome Trust to support a programme of future joint work related to well-being and disability in older people in the three jurisdictions.
Collaborator Contribution Investigators in the Centre of Excellence and associated with the NICOLA study are leading the preparation of the grant (a revision of an unsuccessful collaborative grant submission in 2015/16), with a view to submission in late 2017
Impact NICOLA researchers have led an analysis of NICOLA data on measurement imprecision in Self Reported health in the ELSA study,which has been accepted for publication in Social Science and Medicine (2017).
Start Year 2016
 
Description Collaboration between ELSA and TILDA study investigators with the NICOLA study team 
Organisation University College London
Department Department of Electronic and Electrical Engineering
Country United Kingdom 
Sector Academic/University 
PI Contribution Professor Kee, with colleagues in the UKCRC Centre of Excellence for Public Health and others associated with the NICOLA study, are taking the lead in making a new grant application to the Welcome Trust to support a programme of future joint work related to well-being and disability in older people in the three jurisdictions.
Collaborator Contribution Investigators in the Centre of Excellence and associated with the NICOLA study are leading the preparation of the grant (a revision of an unsuccessful collaborative grant submission in 2015/16), with a view to submission in late 2017
Impact NICOLA researchers have led an analysis of NICOLA data on measurement imprecision in Self Reported health in the ELSA study,which has been accepted for publication in Social Science and Medicine (2017).
Start Year 2016
 
Description Collaboration with CKDGen consortia 
Organisation CKDGen Consortium
Country Global 
Sector Academic/University 
PI Contribution NICOLA is one of several cohorts where Belfast is coordinating EWAS for kidney disease. CKDGen leaders approached us following oral presentations at ASN 2018 and asked if we would join their consortium for several phenotypes. We have conducted association analyses as per CKDGen protocols and submitted data for meta-analysis, which is ongoing.
Collaborator Contribution Partners are coordinating EWAS studies for multiple phenotypes; Belfast is one of several primary analysis sites.
Impact Our first abstract from this multidisciplinary research is planned for the CHARGE meeting in June 2019 with a manuscript to follow shortly after.
Start Year 2018
 
Description Collaboration with GIANT consortia 
Organisation Broad Institute
Department The Genetic Investigation of ANthropometric Traits (GIANT)
Country United States 
Sector Academic/University 
PI Contribution From the first substantial batch of NICOLA GWAS data (n=2,800 individuals) we contributed to a large-scale mega-GWAS studies with an anticipated sample size totalling 1-2 million. This project explores multiple ancestries, employ imputation to deep reference panels (1000Genomes Phase 3 for all samples and the Haplotype Reference Consortium for European-ancestry samples), and focuses on anthropometric phenotypes (GIANT; http://portals.broadinstitute.org/collaboration/giant/index.php/GIANT_consortium). Data was harmonised to the GIANT (Imputed SNPs, Age; BMI; Weight; Height; WC; Hip; WHR) consortia guidelines and submitted May 2017.
Collaborator Contribution The GIANT consortia have established the analysis protocol and brought together international researchers in the largest study performed to date.
Impact .
Start Year 2017
 
Description Collaboration with GLGC consortia 
Organisation Global Lipids Genetic Consortium (GLGC)
Country United States 
Sector Charity/Non Profit 
PI Contribution From the first substantial batch of NICOLA GWAS data (n=2,800 individuals) we contributed to alarge-scale mega-GWAS studies with an anticipated sample size totalling 1-2 million. This project explores multiple ancestries, imputation to deep reference panels (1000Genomes Phase 3 for all samples and the Haplotype Reference Consortium for European-ancestry samples), and focuses on lipid phenotypes (GLGC; http://lipidgenetics.org/). Data was harmonised to the GLGC (Imputed SNPs, Age; TC; LDL-C; HDL-C; TG) consortia guidelines and submitted May 2017.
Collaborator Contribution The GLGC consortia have brought together international researchers worldwide to established this resource with harmonised analysis protocols and quality control.
Impact .
Start Year 2017
 
Description Collaboration with HRS 
Organisation Health and Retirement Study
PI Contribution NIH RO1 grant submitted October 2017 along with HRS and TILDA researchers, ultimately unsuccessful
Collaborator Contribution Joint grant writing effort
Impact Unsuccessful RO1 application to NIH, we aim to resubmit in July 2018.
Start Year 2016
 
Description Collaboration with HRS Harmonization projects 
Organisation Health and Retirement Study
PI Contribution Collaboration with longitudinal studies of Ageing throughout the world
Collaborator Contribution Yearly meetings and dissemination of research outputs
Impact Yearly reports
Start Year 2016
 
Description Collaboration with LIFEPATH 
Organisation Life Path Trust
PI Contribution We have agreed to submit our methylation data for ongoing analysis within the LifePath project (https://www.lifepathproject.eu/) for meta-analysis of epigenome-wide association data for SES (using education as a proxy).
Collaborator Contribution The aim of the LIFEPATH project is to investigate the biological pathways underlying social differences in healthy ageing. To fulfil such a purpose, LIFEPATH members will address four specific objectives: to show that healthy ageing is an achievable goal for society, as it is already experienced by individuals of high socio-economic status (SES); to improve the understanding of the mechanisms through which healthy ageing pathways diverge by SES, by investigating life-course biological pathways using omic technologies; to examine the consequences of the current economic recession on health and the biology of ageing (and the consequent increase in social inequalities); to provide updated, relevant and innovative evidence for healthy ageing policies.
Impact .
Start Year 2018
 
Description Collaboration with University Heart Center Hamburg Clinic for General and Interventional Cardiology, University of Hamburg 
Organisation University Heart Centre Hamburg
Country Germany 
Sector Hospitals 
PI Contribution The NICOLA team have sent samples of plasma fm NICOLA participants to the laboratory of Professor Zeller in Hamburg to ensure the measurement of a range of biomarkers.
Collaborator Contribution Professor Zeller is providing her laboratories and her own expertise to the assay of our NICOLA participants' plasma samples
Impact None yet
Start Year 2016
 
Description Collaboration with the Department for Communities (Ni Ireland Government) 
Organisation Government of Northern Ireland
Department Department for Communities
Country United Kingdom 
Sector Public 
PI Contribution Members of the NICOLA team, along with other academics in Queens University, have collaborated the Department for Communities to review literature on the best measures of well-being and life satisfaction suitable for use with people who have disabilities. Life satisfaction if a key outcome measure for the Northern Ireland "Programme for Government". It has been agreed that the chosen outcome measure will be piloted within the second wave of he NICOLA study.
Collaborator Contribution Kee contributed academically to the inter-sectoral Steering Group that has assess the suitability of different quality of life and well-being scales that could be used with people who have a disability
Impact The chosen scale will be piloted in the second wave of NICOLA and used subsequently to monitor progress against a key government target.
Start Year 2017
 
Description Collaboration with the Irish Longitudinal Study of Aging 
Organisation Trinity College Dublin
Department Mercers Institute for Successful Ageing
Country Ireland 
Sector Academic/University 
PI Contribution We are leading a new grant application for a Collaborative Science Award to the Wellcome Trust in association with the TILDA study led by TCD
Collaborator Contribution TCD are equal partners in the new Program Grant application to the Wellcome Trust
Impact Multidisiciplinary: Social Sciences, gerontology, epidemiology, mixed methods, nutrition.
Start Year 2015
 
Description Collaboration with the NIA Biomarker Network 
Organisation National Institute on Aging
Country United States 
Sector Public 
PI Contribution The Biomarker Network is a National Institute of Aging sponsored project to develop an interdisciplinary group of scientists dedicated to improved measurement of biological risk for late life health outcomes in large representative samples of populations. We are participating in several studies to determine the best approach to measure and harmonise biomarker data in longitudinal / large population cohorts.
Collaborator Contribution Partners bring combined expertise in biomarker measurement, analysis, harmonisation and longitudinal cohorts.
Impact .
Start Year 2015
 
Description Antim will be greyer than NI average by 2037 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact This article appeared in numerous local newspapers across the province, including the Belfast Telegraph - under various headings
Year(s) Of Engagement Activity 2015
 
Description Beeson and Centre for Ageing Research in Ireland Fellows International Scientific Meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Supporters
Results and Impact In an event (28th Nov 2017) co-sponsored by our partners in the Institute of Public Health in Ireland, Professor Young, previously the NICOLA study PI and now Chief Scientific Advisor to the Department of Health, gave an overview of the study progress to an audience of international scientific leaders in ageing research from the US and to the CARDI-Beeson Fellows and others. There was stimulating exchange of ideas for future avenues of research.
Year(s) Of Engagement Activity 2017
URL https://www.publichealth.ie/news/other-news/sharing-ageing-research-beeson-and-cardi-fellows-interna...
 
Description Biennial British and Irish Longitudinal Studies of Aging conference, Belfast. 8th November 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Professor Kee, as Scientific Director of the NICOLA Study, welcomed the Minister for the Department of Communities from the Stormont Devolved Administration to open the 3rd biennial conference of the British and Irish Longitudinal Studies Group at Riddell Hall in Queens University Belfast. it provided an opportunity to meet with scientists from the TILDA, ELSA and HAGIS studies, to share findings and to have a dialogue with practitioners and policy makers about the aging research agenda. The Minster , and subsequently the Commissioner for Older People (NI) commended the NICOLA study as a vital piece of research infrastructure to support future policy in Northern Ireland to improve the wellbeing of our older citizens.
Year(s) Of Engagement Activity 2016
URL http://www.research.hscni.net/event/8-9-nov-2016-british-and-irish-longitudinal-studies-conference
 
Description Blog contribution on Ageing Issues (British Society of Gerontology) 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Media (as a channel to the public)
Results and Impact Blog by Dr Paula Devine on 'Very pleased to meet you, NICOLA: understanding ageing in Northern Ireland, Ageing Issues (British Society of Gerontology), on 1 Dec 2017
https://ageingissues.wordpress.com/2017/12/01/very-pleased-to-meet-you-nicola-understanding-ageing-in-northern-ireland/
Year(s) Of Engagement Activity 2017
 
Description Blog entitled 'Very pleased to meet you, NICOLA: understanding ageing in Northern Ireland', QPol 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Blog given by Dr Paula Devine 'Very pleased to meet you, NICOLA: understanding ageing in Northern Ireland, QPol, 4 Dec 2017
http://qpol.qub.ac.uk/nicola-understanding-ageing-northern-ireland/
Year(s) Of Engagement Activity 2017
 
Description CLOSER - UKRI Infrastructure Roadmap Workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact This meeting was intended to update the community on the activities of UKRI, and their place in it, and to discuss the current opportunity for the community to put forward their views and to shape the UK research strategy. The aim was to develop a long-term research and innovation infrastructure roadmap that will showcase the existing capability within the UK and highlight the long-term strategic opportunities for research and innovation infrastructure.
Year(s) Of Engagement Activity 2018
 
Description Healio Optometry News covered an abstract I presented at ARVO 2017 in Baltimore 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Healio Optometry News covered an abstract showing that some retinal lesions show distinct spatial patterns in healthy eyes
Year(s) Of Engagement Activity 2017
URL https://www.healio.com/optometry/retina-vitreous/news/online/%7B890103e8-9bd7-4ceb-a32b-af9132a10f7a...
 
Description Launch of a commissioned report from the UKCRC Centre of Excellence on disability from cardiovascular diseases in Ireland, for the Centre for Ageing Research and Development in Ireland 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Professor Kee and his post doctoral Fellow Dr Sharon Cruise jointly authored and presented a special report on disability related to cardiovascular diseases in Ireland, sponsored by CARDI (http://www.cardi.ie/)
It attracted interest and dialogue from practitioners and from advocacy champions such as the Institute of Public Health in Ireland

After my presentation, CARDI welcomed the findings and urged further research on this topic within the NICOLA Study.

CARDI aranged a national press release to raise the profile of the findings and Kee gave some interviews with local broadcasters.
Year(s) Of Engagement Activity 2015
URL http://www.cardi.ie/sites/default/files/FINAL%20Disability%20heart%20brief%20low%20res%20%281%29.pdf
 
Description Newspaper Interview - NICOLA - {MOD} 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact Interview highlighting Dr O'Doherty's research in the context of the wider NICOLA project encouraging uptake of participants from the North West/Derry area

Potentially increased acceptance of participation in study if randomly selected
Year(s) Of Engagement Activity 2014
URL http://www.derryjournal.com/news/derry-academic-leads-study-into-ageing-in-north-1-6367446
 
Description Oral presentation given at the 66th IGS Annual Scientific Meeting, Cavan, Ireland 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Invited to give an oral presentation on 'Frailty and Disability in Ireland North and South: Preliminary Evidence from TILDA and NICOLA' on 29th Sept 2018. The talk generated discussion and ideas for future research.
Year(s) Of Engagement Activity 2018
 
Description Oral presentation given at the Annual Conference of the Public Health Agency N.Ireland 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Invited to give an oral presentation on 'Frailty and Disability in Ireland North and South: Preliminary Evidence from TILDA and NICOLA'. The talk generated discussion and ideas for future related work.
Year(s) Of Engagement Activity 2018
 
Description Over-50s hold key to future health of the north 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact article appered in one of Belfast's leading readership papers - the Irish News
Year(s) Of Engagement Activity 2015
 
Description Policy Forum for Northern Ireland: Improving Care for Older People 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact A member of the NICOLA study Stakeholder Forum, Dr Roger O'Sullivan (Institute of Public Health in Ireland), was the first platform speaker at this Northern Ireland Policy Forum conference (01/03/16). In his opening remarks he choose to highlight the importance of population based research and specifically the value of the NICOLA study, for policy makers to better understand and prioritize and plan for older persons needs in the future.
Year(s) Of Engagement Activity 2015,2016
URL http://www.policyforumforni.co.uk/forums/index.php?fid=policy_forum_for_northern_ireland
 
Description Poster presentation at Irish Gerontological Society conference, Cavan, Ireland 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Moderated poster presentation at the Irish Geronotological Society conference, Cavan, 28 Sept 2018. Poster entitled 'Older men and their social connections: first findings from the Northern Ireland Cohort for the Longitudinal Study of Ageing (NICOLA). Poster presentation generated discussion and ideas for future work. Poster abstract has since been published in Age and Ageing.
Year(s) Of Engagement Activity 2018
 
Description Poster presentation at Nutrition Society Annual Meeting (Irish Section), Queen's University Belfast 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Presented a poster entitled "Validation of a food frequency questionnaire for assessing fruit and vegetable intake in older adults" at the Nutrition Society Annual Irish Section Meeting held at QUB, June 2017. The presentation generated questions and discussion afterwards.
Year(s) Of Engagement Activity 2017
 
Description Poster presentation at the International Congress for Aging, Gerontology and Geriatrics, San Francisco, July 2017 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Poster presented on NICOLA dietary validation study entitled "Validity of fruit and vegetable intake assessed by a food frequency questionnaire in older adults". Poster generated interest and questions from the delegates and generated discussion.
Year(s) Of Engagement Activity 2017
 
Description Presentation (CARDI International Training Program on Dementia) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact Talk sparked questions and discussion afterwards

Generated further contact from other researchers in the field of ageing
Year(s) Of Engagement Activity 2015
 
Description Presentation at 22nd European Society for Patient Adherence, Compliance and Persistence (ESPACOMP) conference, Dublin 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Presentation given on 'Evaluation of adherence to antihypertension medications using dried blood spot approach. Audience primarily health professionals, medical academia and researchers. Talk generated discussion and interest.
Year(s) Of Engagement Activity 2018
 
Description Presentation at 47th European Symposium on Clinical Pharmacy, European Society of Clinical Pharmacy, Belfast 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Presentation given on 'Assessment of patient adherence to long term medications within a large pharmacoepidemiological study using the dried blood spot technique'. Presentation generated questions and ideas for future work.
Year(s) Of Engagement Activity 2018
 
Description Presentation at American Society of Nephrology 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Presentation given on "Genetic and epigenetic analysis in genes affecting mitochondrial function are associated with chronic kidney disease in an older population".
Audience of health professionals, academics and researchers
Year(s) Of Engagement Activity 2018
 
Description Presentation at American Society of Nephrology, San Diego, California 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Presentation given on "An investigation into the DNA methylation patterns of chronic kidney disease in older individuals." Audience was primarily public health practitioners and scientific bodies.
Year(s) Of Engagement Activity 2018
 
Description Presentation at Care Home Event hosted by School of Nursing and Midwifery, QUB, "Enhancing safety, quality and experience of residents in care homes". 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Invited as a speaker to present on "Ageing in N.Ireland - the NICOLA study" to care home staff from across N.Ireland.
Year(s) Of Engagement Activity 2018
 
Description Presentation at Centre for Health Research at the Management School Annual workshop 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact I presented my research at the inaugural Centre for Health Research at the Management School (QUB) workshop to a varied audience made up of policymakers, politicians, other academic staff (from UK and Ireland), staff from other health agencies (e.g. PHA) and members of the public. My presentation sparked interest from quite a few of those in attendance and queries from a political party health policy team.
Year(s) Of Engagement Activity 2017
URL http://www.qucharms.co.uk/annual-workshop.html
 
Description Presentation at Faculty of Public Health summer meeting (meeting of the Royal College of Physicians Ireland) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Presentation given on 'Harmful and hazardous drinking amongst older people: risk and protective factors'. Audience of public health professionals and practitioners.
Year(s) Of Engagement Activity 2018
 
Description Presentation at Integrating Genomics and the Social Sciences, Boulder, Colorado 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Presentation given on 'An investigation into the DNA methylation patterns of risk and time preference in older individuals'. Presentation generated discussion and ideas for further research.
Year(s) Of Engagement Activity 2018
 
Description Presentation at Irish Postgraduate and Early Career Economics Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Postgraduate students
Results and Impact Oral presentation of research at the Irish Postgraduate and Early Career Economics Conference. The audience was made up of PhD students and academics form universities across Ireland.
Year(s) Of Engagement Activity 2018
URL http://www.irisheconomy.ie/index.php/2018/04/26/irish-postgraduate-and-early-career-economics-worksh...
 
Description Presentation at Joint Public Health Annual Conference, Belfast 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Oral presentation entitled "Frailty and Falls in Ireland North and South: Preliminary evidence from TILDA and NICOLA. Generated discussion and interest in the NICOLA study
Year(s) Of Engagement Activity 2018
 
Description Presentation at NERI Labour Market Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Presentation at the 6th Annual NERI Labour Conference at NUI Galway. The NERI Labour Market conference brings together academics, policymakers and others to discuss the labour market issues facing Ireland, North and South.
Year(s) Of Engagement Activity 2018
URL https://www.nerinstitute.net/blog/2018/05/25/presentations-from-the-6th-annual-neri-labour-mark/
 
Description Presentation at Queens University Economics Seminar 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Postgraduate students
Results and Impact Presentation of my research at the weekly Economics seminar in Queens University Belfast. The audience was made up of academics from the Economics department and PhD students from within Queens Management School.
Year(s) Of Engagement Activity 2018
 
Description Presentation at the British Society of Gerontology 47th Annual Conference, Manchester 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Presentation on 'Older men and social connectedness in Northern Ireland: first findings from NICOLA, British Society of Gerontology 47th Annual Conference, Manchester, 4-6 July 2018. Presentation generated questions and discussion.
Year(s) Of Engagement Activity 2018
 
Description Presentation made by Kee at a Northern Ireland Policy Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact The Permanent Secretary of the Department for Infrastructure (NI) is the senior civil servant responsible for leading on policy development across all Stormont government departments, and Kee was invited by him to present an overview of the value of the NICOLA study to policy making in NI at the Policy Champions Network event on 26th October 2017.
Year(s) Of Engagement Activity 2017
 
Description Presentation to the Delivering Social Change Board and Junior Government Minister about the NICOLA study progress and potential 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Professor Kee gave a presentation to the Delivering Social Change Program Board to raise the profile and potential of the NICOLA study to influence policy
Year(s) Of Engagement Activity 2015
 
Description Presentations made by members of the NICOLA scientific team at the launch of the report of the initial findings of the 1st Wave of the NICOLA CAPI survey. 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact The NICOLA Scientific team presented the initial findings of the 1st wave of the CAPI survey. The Commissioner for Older people also joined with the NICOLA scientific team in highlighting the importance of the findings and a senior civil servant (Ms Bernie Rooney, Head of the Social Inclusion Unit at the Department for Communities) and the Chief Scientific Advisor to the Department of Health (Professor Young) made responses to the findings and highlighted the importance of the study to policy making.Professor Kee on behalf of the NICOLA team gave two broadcast interviews ((BBC Northern Ireland and Radio Foyle) higlighting some of the findings.
Year(s) Of Engagement Activity 2017
 
Description STEMNET Ambassador - {MOD} 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? Yes
Geographic Reach Regional
Primary Audience Schools
Results and Impact Various voluntary activities with schools throughout Northern Ireland promoting STEM subjects and careers

schools request STEM ambassadors for various events
Year(s) Of Engagement Activity 2011,2012,2013,2014,2015
URL http://www.stemnet.org.uk/
 
Description The Association for Research in Vision and Ophthalmology (ARVO) in Baltimore, USA 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Presentation of a poster reporting on the prevalence and characteristics of peripheral retinal lesions in an ageing population
Year(s) Of Engagement Activity 2017
 
Description The Association for Research in Vision and Ophthalmology (ARVO) in Hawaii, USA 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Presentation of a poster reporting on the clinical characteristics of the peripheral retina in Age-related Macular Degeneration in an ageing population
Year(s) Of Engagement Activity 2018
 
Description The Association for Research in Vision and Ophthalmology (ARVO) in Orlando, Florida 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Presentation of a poster refining ultra-wide color fundus grading schemes for use within an epidemiological study
Year(s) Of Engagement Activity 2014
 
Description The Association for Research in Vision and Ophthalmology (ARVO) in Seattle, USA 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Presentation of a poster examining whether peripheral retinal lesions impacted the vitreo-interface at the macula
Year(s) Of Engagement Activity 2016
 
Description The Beeson Annual Meeting - San Diego, California, USA - {MOD} 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact The Beeson Annual Meeting is held for Beeson Scholars, mentors and other leaders in academic medicine and aging research to review research progress of Scholars, encourage dissemination of their findings, and enhance development of scholarship and leadership.

N/A
Year(s) Of Engagement Activity 2014
URL http://www.afar.org/events/view/beeson-annual-meeting/
 
Description The Long Gallery Science Showcase (the NICOLA Study) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact We presented the design of the NICOLA study to MLAs at Stormont to generate interest among policy makers and to commence a broader promotional campaign around the study

Covered in national broadcast and news media, and stimulated the interests of the Office of the First Minister in the NICOLA Study
Year(s) Of Engagement Activity 2013
URL http://nicola.qub.ac.uk/news/
 
Description The NICOLA Study Ministerial Launch 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Media (as a channel to the public)
Results and Impact The Junior Ministers from OFMDFM helped us launch the study to the general public and this provided a fillip to recruitment and re-stimulated interest in the study among policy makers and the Third Sector

Enhanced recruitment and interest for the study.
Year(s) Of Engagement Activity 2014
URL http://nicola.qub.ac.uk/news/
 
Description UK CHina Social Science BIG Data Networking Event. 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Kee made a presentation to a delegation of Chinese academics working in the BIG Data and social sciences field (representing the National Natural Sciences Foundation of China), expounding upon the nature of and opportunities provided by the ESRC funded NICOLA cohort study and the research collaborations already existing between Queens University academics and China based researchers.
Year(s) Of Engagement Activity 2017