Born talking: using birth cohort data on speech, language and communication to inform policy and practice

Lead Research Organisation: University of East Anglia
Department Name: Health Sciences

Abstract

An individual's speech, language and communication (SLC) abilities affect almost every aspect of their life - for example, their access to information, their participation in activities that involve engagement with others, such as education, work, cultural activity, personal relationships and social interaction, and the impact that all of the foregoing have on their emotional well-being, quality of life and sense of identity. The 2008 Bercow review of services for children and young people with SLC needs found that policy makers and commissioners of services are often unaware of the crucial role of SLC developmentally, and of the importance of early identification and intervention, and so fail to prioritise services addressing these needs. Part of the reason for this may be the tendency for SLC research studies to employ relatively small samples of individuals attending clinic, which may not be representative of the larger population; for example, only about a third of children with SLC needs are seen in clinic, and attendance is influenced by socio-demographic factors. Such studies also tend to focus on a narrow range of variables, whereas we know that SLC development is affected by very many factors.

By contrast, birth cohort studies, which follow the development of a group of individuals throughout the lifespan, typically sample thousands of people and collect data on a diverse range of factors, such as social and economic status, education, and physical and mental health, not just from participants but also from their family, doctors and teachers. Britain has a particularly strong tradition of birth cohort studies, with major studies being initiated in the 1940s, 1950s, 1970s, 1990s and 2000s, and a new study of 1000,000 babies about to commence. Birth cohort studies have been carried out in many other countries as well, including Australia, New Zealand, Scandinavia and the United States. Many of the datasets are freely available to the research community. Because of their large size and generalizability, birth cohort datasets have been widely used in many fields including economics, education, psychology, sociology and health, where the research findings have had important implications for policy and practice. However, compared with these other disciplines, SLC researchers have made relatively little use of birth cohort data, and many professionals, policy makers and other SLC stakeholders are unaware of their existence and potential.

The goal of this seminar series is to bring together stakeholders with an interest in SLC - researchers, professionals, policy makers and user organisations - with a view to developing fruitful collaborations around the birth cohort datasets in the field of SLC. In addition to researchers, practitioners, user organisations and policy-makers based in the UK, the series will involve participants from Australia, the USA and other European countries. By presenting past and ongoing research using the international birth cohort datasets, we will familiarise stakeholders with their existence and their potential for SLC-related research, and challenge orthodox opinions about SLC that have arisen as a result of using non-representative data. We aim to increase the useage of the datasets, not just for research and but also for teaching in SLC by demonstrating practical skills such as access to and analysis of the data. The series will increase research capacity in this area as it will be publicised among PhD students, early career researchers and practitioners, and will be available online. As a result of the series, we will generate research questions that are relevant to users, practitioners and policy makers. We will also develop strategies for influencing teams collecting future birth cohorts so that SLC data are collected and measures are designed in an appropriate way. Finally, we will promote publication using the birth cohort data, including a special issue of a journal.

Planned Impact

This research seminar series, which focuses on the use of birth cohort data about speech, language and communication (SLC) to inform policy and practice, will have an impact both within and beyond academia. A person's SLC abilities affect nearly every aspect of their life, and nowadays communication is a highly prized skill in education, employment and other arenas. The ultimate impact of the series will be potential improvements in SLC outcomes for individuals and whole populations. This outcome will be achieved by raising the profile, among user organisations, practitioners and policy-makers in the SLC field, of the high-quality evidence base that the birth cohorts can provide. Participant will include not just researchers, but also representatives of user organisations (including The Communication Trust, a coalition of 40 UK charities with an interest in children's communication), practitioners such as educators, speech and language therapists and social workers, professional bodies such as the Royal College of Speech and Language Therapists, and those involved in commissioning SLC-related services in health and education. By drawing together these various stakeholders, the series will generate new and societally relevant research questions that can be answered using the birth cohort data, while at the same time challenging orthodox views about SLC that have arisen because of the use of small and biased samples.

Potential academic beneficiaries of the series include not just researchers but also undergraduate and pre-registration students and their teachers. The birth cohort datasets offer rich opportunities for high-quality research into SLC, yet many researchers in the field have not even heard of them, or do not realise that several are freely accessible to the research community. It is particularly important to introduce the birth cohorts and related methodologies to PhD students, early career researchers and practitioners, and this will be achieved by offering travel bursaries, by making the seminars accessible via the internet, and by publicising them via various routes including YouTube and social media such as Twittter and Facebook. The academic disciplines that are relevant to this application include education, psychology, sociology, and speech and language therapy, and could extend to disciplines not traditionally related to SLC, such as international development and psycholinguistics. As a result of dissemination to this wide audience, the series could be an important contributor to increasing research capacity around the birth cohorts. The fact that ESRC recently ran two Secondary Data Analysis Initiative calls indicates that the funder considers this to be an important priority. The series will encourage publication using the birth cohort datasets in the area of SLC, and a special issue on the topic is being considered by the International Journal of Language and Communication Disorders.

Some of the resources, for example those which are collected by the Centre for Longitudinal Studies, have associated teaching datasets and other materials which could benefit students at various stages in their education, as well as their teachers. For example, there is excellent scope for using the data for research methods teaching and for dissertations. Again, the series would be widely publicised and would draw the resources to the attention of potential users in the SLC field who are unaware of their existence.

Publications

10 25 50
 
Description The purpose of this seminar series was not directly to generate new knowledge but to promote the use of large-scale international birth cohort datasets to address research questions about speech, language and communication, by raising the profile of the datasets among researchers, policy makers and practitioners. The following achievements are among various pieces of evidence that indicate the success of the series.
• Wide-reaching dissemination activities: The series has consisted of six face-to-face events plus a webinar (see https://www.youtube.com/watch?v=mZUvcdFAOl4 ). Details of all of these are available on the series website http://borntalking.org/ . The face-to-face events took place in London, Norwich, Newcastle and Bristol. They were attended by academics, students, clinicians and other practitioners, representatives of third sector organizations, and policymakers. As well as a number of academic institutions both in the UK, Germany and Australia), the organizations that were represented included the Royal College of Speech and Language Therapists, The Communication Trust, the Department for Education, the NHS, the Education Endowment Foundation, Save the Children, the National Society for the Prevention of Cruelty to Children, Better Communication CIC, I CAN, Afasic, the British Stammering Association, the National Children's Bureau, and Clarity - Communication for Education
• Increasing research capability via training: At three of the events (in Norwich, Newcastle and Bristol) we offered delegates the opportunity for hands-on training with some of the datasets (BCS70, Growing Up in Scotland and ALSPAC, respectively).
• Outputs and further research: grant holders Law, Wren and McAllister will present a workshop at the upcoming conference of the Royal College of Speech and Language Therapists (Glasgow, September 2015) arising from the seminar series. A book proposal about the topics addressed in the series will shortly be submitted. Contacts initiated and developed during the series resulted in the award of a small grant from the National Society for the Prevention of Cruelty to Children to explore the impact of childhood abuse and neglect using data from the National Child Development Study and a book chapter relating to this work . Also as a result of connections made during the series we plan to do further work on the Newcastle Thousand Families cohort and team involvement has led to speech and language investigations being included in the Born in Bradford cohort for the first time. Involvement in the series has strengthened existing collaborations within the team resulting in further funding applications to NORFACE and ESRC. In January 2019, as a result of a new collaboration formed during the project, a funding application titled "Speech Impairment and Mental Health" was submitted to MRC. Also as a result of collaborations developed during the project, funding of £10,000 was acquired by the PI from CLAHRC East of England to allow purchase of relevant ALSPAC data.
Exploitation Route In our original application we mentioned various impact mechanisms, which we have utilised during the series and will continue to do so:
• Dissemination via key organisations such as the Royal College of Speech and Language Therapists and The Communication Trust: both organizations were represented in the series, which was attended by several RCSLT Research Champios
• Making information available online and via social media: we have mentioned already the website www.borntalking.org and our webinar, now posted on YouTube at https://www.youtube.com/watch?v=mZUvcdFAOl4 . We also used Twitter.
• Publishing peer reviewed papers arising out of collaborations generated by the series: see above for a publication that has already arisen and a book proposal being submitted.
Sectors Communities and Social Services/Policy,Education,Healthcare

URL http://borntalking.org/
 
Description An important aim of the seminar series was to raise awareness of the birth cohort datasets among non-academic audiences. After the project ended, members of the project team (McAllister, Wren & Law) I led a workshop at the Royal College of Speech and Language Therapists conference in Glasgow in September 2017, attended by about 20 speech and language therapists, about the use of birth cohort data in speech and language research. The attendees were practitioners rather than academics.
First Year Of Impact 2017
Sector Healthcare
Impact Types Policy & public services

 
Description ALSPAC Cohort Data
Amount £10,000 (GBP)
Organisation National Institute for Health Research 
Department NIHR CLAHRC East of England
Sector Public
Country United Kingdom
Start 07/2018 
End 03/2019
 
Description Born Talking Event 4, London, Monday 23rd May, 1:30-­4:30pm 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Presentations by Theresa Redmond, Professional Advisor, The Communication Trust http://www.thecommunicationtrust.org.uk/ and Professor Alison Park, Director, CLOSER
http://www.closer.ac.uk/, followed by discussion around the following issues:
• What are currently the most important questions about speech, language and communication? We are interested in the views of all stakeholders, including service user groups, practitioners and policymakers as well as researchers.
• How can current birth cohort data help us to address these questions?
• Can we influence data collection in birth cohort studies, to help us to address such questions in the future?
Year(s) Of Engagement Activity 2016
URL http://www.borntalking.org
 
Description Born Talking Event 5, Bristol, Monday 11th July 2016 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Overview of ALSPAC and COCO90s, speech and language data in ALSPAC, and data discovery session.
Presentations by Lynn Molloy, Chief Executive of ALSPAC, Dr Yvonne Wren, Professor Sue Roulstone, Dr Rosemarie Hayhow, Mel Lewcock
Year(s) Of Engagement Activity 2016
URL http://www.borntalking.org
 
Description Born Talking Event 6, 28th March 2017, London 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact The aim of the event was to promote the use of birth cohort data to investigate research questions in the field of speech, language and communication, by developing collaborations and by introducing them to new potential users. The event was attended by a mixture of academics, practitioners and students, and consisted of three presentations about birth cohorts from Britain, Germany and Australia, followed by discussion about the future directions that the research might take. Two research proposals involving participants and a book proposal are in preparation.
Year(s) Of Engagement Activity 2017
URL http://borntalking.org/2017/01/10/seminar-6/
 
Description Born Talking event 1, 15.1.15, London 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact A variety of stakeholders with interests in speech, language and communication attended the first event in the Born Talking seminar series, in which the presentations covered the background to the series, the perspective of funders of birth cohorts, the professional context of the initiative and the means of accessing data.
Year(s) Of Engagement Activity 2015
URL http://borntalking.org/
 
Description Born Talking event 2, 11.5.15, Norwich 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact The event comprised two elements, a hands-on workshop introducing participants to the identification and analysis of birth cohort data, and a public presentation by an international expert in the use of birth cohort data for exploring speech, language and communication.
Year(s) Of Engagement Activity 2015
URL http://borntalking.org/
 
Description Born Talking event 3, 9.10.15, Newcastle 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact The third Born Talking event involved a series of presentations about the use of birth cohort data to research speech, language and communication followed by a hands-on workshop in which participants were able to practise identifying and analysing data.
Year(s) Of Engagement Activity 2015
URL http://borntalking.org/
 
Description Webinar promoting the Born Talking seminar series, 12.12.14 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact The purpose of this webinar was to provide background for the upcoming Born Talking seminar series and to engage the stakeholders in its development. The webinar was subsequently posted on Youtube.
Year(s) Of Engagement Activity 2014
URL https://www.youtube.com/watch?v=mZUvcdFAOl4