Using collaborative visual research methods to understand experiences of mental illness, coercion and restraint in Ghana and Indonesia
Lead Research Organisation:
Middlesex University
Department Name: Faculty of Science & Technology
Abstract
There have been many concerns over the human rights of people with mental illness in developing countries, particularly the use of chains, beating, confinement in cages, and other harmful practices by traditional and faith healers. The use of restraints, confinement and other mistreatment is harmful to physical and mental health, can increase stigma and make it difficult for people with mental illness to recover and be included as productive members of society. It has been suggested that partnerships between traditional and faith healers and health workers could help to prevent human rights abuses and enable people with mental illness to get treatment and care. However, it can be challenging to establish such partnerships and bring about change. Healers and health workers use different approaches to mental illness which can conflict, and healers can feel as if their knowledge and experience is not recognised. There can be complex reasons for using chains and other restraints, which are often not well understood. There are also many different types of healers in developing countries who carry out different practices. Health systems also differ between countries and mental health workers operate with very few resources. Therefore, the best ways in which to improve the treatment of people with mental illness and create partnerships between health workers and healers is likely to vary.
This project will explore the experiences of people with mental illness and their families in Indonesia and Ghana, the reasons why people with mental illness are restrained and attempts by health workers to create partnerships with healers and stop human rights abuses.
We have chosen these countries because there have been similar reports on the mistreatment of people with mental illness by healers and there are attempts by governments, charities and others to prevent human rights abuses and improve treatment. These include changes in the law and training of new mental health workers. In this study we will use documentary film as our research method. This is because film is easily accessible in different languages, and can use images as well as words to gain a deep insight into people's experiences from their own perspective. Film is also more accessible to people who do not have much education and cross-culturally. With the consent of the people involved, we will film the experiences of people with mental illness in Ghana and in Indonesia who have experienced restraint, their families, healers and health workers. We will also document attempts to create partnerships between healers and mental health workers in the two countries. We will conduct interviews with the participants, which will also be filmed if they agree. We will use the footage to create documentary films that will be used to learn more about the social and cultural context that might lead to the use of restraint such as understandings of mental illness, family relationships, distance from mental health services, and the cost of getting treatment. We will also learn more about the best ways to create partnerships between healers and mental health workers to prevent human rights abuses and support people with mental illness to recover and take part in their communities, as well as the challenges they face. We will share the findings of the research between the two countries so that they can learn from each other. We will also show the film to people such as mental health workers, politicians and families so that they can understand more about the experiences of people with mental illness who have been mistreated, the circumstances around the use of chains and other forms of restraint, and the best ways to prevent human rights abuses. We hope that this will lead to improved treatment and protection of people with mental illness in the two countries, and similar developing world settings, and enable them to participate as respected and valued members of their communities.
This project will explore the experiences of people with mental illness and their families in Indonesia and Ghana, the reasons why people with mental illness are restrained and attempts by health workers to create partnerships with healers and stop human rights abuses.
We have chosen these countries because there have been similar reports on the mistreatment of people with mental illness by healers and there are attempts by governments, charities and others to prevent human rights abuses and improve treatment. These include changes in the law and training of new mental health workers. In this study we will use documentary film as our research method. This is because film is easily accessible in different languages, and can use images as well as words to gain a deep insight into people's experiences from their own perspective. Film is also more accessible to people who do not have much education and cross-culturally. With the consent of the people involved, we will film the experiences of people with mental illness in Ghana and in Indonesia who have experienced restraint, their families, healers and health workers. We will also document attempts to create partnerships between healers and mental health workers in the two countries. We will conduct interviews with the participants, which will also be filmed if they agree. We will use the footage to create documentary films that will be used to learn more about the social and cultural context that might lead to the use of restraint such as understandings of mental illness, family relationships, distance from mental health services, and the cost of getting treatment. We will also learn more about the best ways to create partnerships between healers and mental health workers to prevent human rights abuses and support people with mental illness to recover and take part in their communities, as well as the challenges they face. We will share the findings of the research between the two countries so that they can learn from each other. We will also show the film to people such as mental health workers, politicians and families so that they can understand more about the experiences of people with mental illness who have been mistreated, the circumstances around the use of chains and other forms of restraint, and the best ways to prevent human rights abuses. We hope that this will lead to improved treatment and protection of people with mental illness in the two countries, and similar developing world settings, and enable them to participate as respected and valued members of their communities.
Planned Impact
Who will benefit from this research?
This research will be of benefit to persons with experience of mental illness, their families, mental health workers, traditional and faith healers, policy makers, NGOs, civil society and human rights organisations, lawyers and members of the general public. The research findings will be relevant for people living and working in Ghana and Indonesia, as well as those in other low- and middle-income countries where there are similar concerns around human rights abuses of persons with mental illness, and use of traditional and faith healers.
How will they benefit from the research?
Mental illness can increase household poverty through costs for care and loss of earnings and is more common among the poorest in society. Improving the care and treatment of persons with mental illness can help them to contribute to their families and communities and reduce inequalities. The films and case studies produced through this research will provide insight into the experiences of people with mental illness who have been restrained or subjected to other forms of maltreatment, and into the challenges and opportunities for mental health workers and healers to work together to prevent these practices and improve treatment and care. The films will provide evidence of best practice that can be used by mental health workers, healers and others working with people with mental illness to develop new approaches to developing collaborations and promoting social inclusion. This will in turn help to support the recovery of persons with mental illness, and their economical and social participation in their communities. The research will provide information and tools for the application of participatory and visual methods to mental health research and advocacy, which will be of use to NGOs, advocacy groups, mental health researchers and others in working to promote the human rights and social inclusion of persons with mental illness. The research findings will also be useful to policy makers, lawyers, police and advocates to inform the implementation of mental health policies and practice which aim to prevent human rights abuses in Ghana and Indonesia and similar settings.
What will be done to ensure that they have the opportunity to benefit from this activity?
We will work closely with stakeholders throughout the research process to make the findings relevant and useful for local audiences. We will hold two workshops in each country at the beginning and close of the research, which we will facilitate with local partners from NGOs and arts organisations. We will invite persons with experience of mental illness, family members, health workers, and healers to participate in the workshops to understand their views and experiences and develop the research questions and methods. In the second workshop we will show rough cuts of the films produced and discuss the best ways to make the films accessible to local audiences. We will also facilitate a workshop on the use of participatory and visual research methods in each country for interested researchers, NGO workers, civil society/arts organisations, and film-makers to build capacity on the use of applied arts-based/visual methodologies. The workshop will be based on the PI's previous experience in visual methodologies short courses in various countries (e.g. UK, Philippines, Taiwan, Canada, Australia). By the end of it, each participants will have developed a short proposal for a visual research in their topics of interest.
The films will use local languages as well as subtitles so that they can be understood by different audiences, and will be made freely available on line. Short clips of the film will also be distributed through social media. Training materials on the methods, anonymised findings and case studies will also be made available for use by advocacy organisations, researchers and health educators.
This research will be of benefit to persons with experience of mental illness, their families, mental health workers, traditional and faith healers, policy makers, NGOs, civil society and human rights organisations, lawyers and members of the general public. The research findings will be relevant for people living and working in Ghana and Indonesia, as well as those in other low- and middle-income countries where there are similar concerns around human rights abuses of persons with mental illness, and use of traditional and faith healers.
How will they benefit from the research?
Mental illness can increase household poverty through costs for care and loss of earnings and is more common among the poorest in society. Improving the care and treatment of persons with mental illness can help them to contribute to their families and communities and reduce inequalities. The films and case studies produced through this research will provide insight into the experiences of people with mental illness who have been restrained or subjected to other forms of maltreatment, and into the challenges and opportunities for mental health workers and healers to work together to prevent these practices and improve treatment and care. The films will provide evidence of best practice that can be used by mental health workers, healers and others working with people with mental illness to develop new approaches to developing collaborations and promoting social inclusion. This will in turn help to support the recovery of persons with mental illness, and their economical and social participation in their communities. The research will provide information and tools for the application of participatory and visual methods to mental health research and advocacy, which will be of use to NGOs, advocacy groups, mental health researchers and others in working to promote the human rights and social inclusion of persons with mental illness. The research findings will also be useful to policy makers, lawyers, police and advocates to inform the implementation of mental health policies and practice which aim to prevent human rights abuses in Ghana and Indonesia and similar settings.
What will be done to ensure that they have the opportunity to benefit from this activity?
We will work closely with stakeholders throughout the research process to make the findings relevant and useful for local audiences. We will hold two workshops in each country at the beginning and close of the research, which we will facilitate with local partners from NGOs and arts organisations. We will invite persons with experience of mental illness, family members, health workers, and healers to participate in the workshops to understand their views and experiences and develop the research questions and methods. In the second workshop we will show rough cuts of the films produced and discuss the best ways to make the films accessible to local audiences. We will also facilitate a workshop on the use of participatory and visual research methods in each country for interested researchers, NGO workers, civil society/arts organisations, and film-makers to build capacity on the use of applied arts-based/visual methodologies. The workshop will be based on the PI's previous experience in visual methodologies short courses in various countries (e.g. UK, Philippines, Taiwan, Canada, Australia). By the end of it, each participants will have developed a short proposal for a visual research in their topics of interest.
The films will use local languages as well as subtitles so that they can be understood by different audiences, and will be made freely available on line. Short clips of the film will also be distributed through social media. Training materials on the methods, anonymised findings and case studies will also be made available for use by advocacy organisations, researchers and health educators.
Organisations
- Middlesex University (Lead Research Organisation)
- Arts and Humanities Research Council (Co-funder)
- Ministry of Health (Collaboration)
- Wellcome Trust (Collaboration)
- Sapienza University of Rome (Collaboration)
- Nubuke Foundation (Collaboration, Project Partner)
- Birkbeck, University of London (Collaboration)
- Bethlem Gallery (Collaboration)
- QUEEN MARY UNIVERSITY OF LONDON (Collaboration)
- Visual Exchange (Collaboration)
- Komunitas Peduli Skizofrenia Indonesia (Collaboration)
- UNIVERSITY OF GHANA (Collaboration)
- Gadjah Mada University (Collaboration)
- Atma Jaya Catholic University of Indonesia (Collaboration)
- MindFreedom (Collaboration)
- University of Theatre and Film Arts (Collaboration)
- KPSI (Community Care Schizophrenia Ind) (Project Partner)
- Mindfreedom Ghana (Project Partner)
- Ben Pinter Tenan (Project Partner)
Publications
Brooks H
(2019)
Evaluating the acceptability of a co-produced and co-delivered mental health public engagement festival: Mental Health Matters, Jakarta, Indonesia.
in Research involvement and engagement
Green B
(2020)
Traditional healers' and biomedical practitioners' perceptions of collaborative mental healthcare in low- and middle-income countries: A systematic review.
in Transcultural psychiatry
Hansen, S.
(2020)
Towards the development of ethics guidelines for visual psychology: a review of relevant visual research ethics guidelines
in Qualitative Methods in Psychology Bulletin
Madill A
(2022)
How can we mainstream mental health in research engaging the range of Sustainable Development Goals? A theory of change
in PLOS Global Public Health
Prastyani, A.
(2020)
Priests, a grandmother and schizophrenia
in Inside Indonesia
Prastyani, A.
(2021)
Screening guide 'Nkabom: A little medicine, A little prayer'
Prastyani, A.
(2021)
Screening guide 'Harmoni: Healing together'
Read UM
(2020)
Review of An Impossible Inheritance: Postcolonial Psychiatry and the Work of Memory in a West African Clinic, Katie Kilroy-Marac, Berkeley: University of California Press, 2019, 269 pp.
in Medical Anthropology Quarterly
Read UM
(2021)
Breaking the Shackles
| Title | "Film Dokumenter Skizofrenia" |
| Description | By way of animated illustrations and narration, this short film takes us along Andri's journey in treatment in various facilities, eventually getting a diagnosis, and finding the Indonesian Community Care for Schizophrenia, from whom he learns more about his condition. The film is produced out of the collaboration between Ignatius Andri S.K., a member of the Jakarta chapter of the Indonesian Community Care for Schizophrenia (Komunitas Peduli Skizofrenia Indonesia or KPSI), and Putri Hatmanti, an undergraduate student of the Faculty of Psychology, in the Catholic University of Atma Jaya Jakarta. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2020 |
| Impact | This participatory film is created by participants of the Participatory Video Workshop held on 25-26 October 2019 held by the Faculty of Psychology, Catholic University of Atma Jaya Jakarta, in collaboration with Together for Mental Health Indonesia. Dr. Erminia Colucci ran the workshop, co-facilitated by dr. Ade Prastyani and Mrs. Ninik Supartini (Elemental Productions). This PV has been screened in a virtual event on 26 February 2021, where dr. Mahar Agusno, SpKJ (psychiatrist and transcultural psychiatry scholar) and Dr. Tito Imanda, PhD (media scholar and participatory filmmaker) were discussants in the event (https://www.youtube.com/watch?v=jlsZekw7BJA). |
| URL | https://www.youtube.com/watch?v=iUEbtw2hr4c&feature=youtu.be |
| Title | 'Breaking the chains; Anto's story' |
| Description | "Breaking the chains: Anto's story" is a testimony-style participatory short-documentary (30 min) that depicts the subjective lived experience of Anto, an Indonesian young man who was restrained but was then released and reintegrated in the community as a self- taught artist and English student. This film follows Anto's journey for 6 years based on his drawings, paintings and narrative, and was co-directed and co-edited with Anto himself. As part of this ESRC, the PI dr Colucci and Anto edited together the material collected and released a 30 min participatory video together with the Indonesia lead (Co-I) Dr Diana Setiyawati during her ESRC funded visit to London on her way to the networking activities in Ghana |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2020 |
| Impact | The film has just been released but preview screenings showed shift in audience's understanding of human rights abuses in mental health as well as challenge of what constitute a research methodology, which in this case was participatory video |
| URL | https://movie-ment.org/breakingthechains/ |
| Title | A Story About Schizophrenia |
| Description | hrough a Q&A style performance, 'A Story About Schizophrenia' gave an insight to Agung's road to recovery in his illness journey. The film is produced out of the collaboration between Agung Novel, a member of the Jakarta chapter of the Indonesian Community Care for Schizophrenia (Komunitas Peduli Skizofrenia Indonesia or KPSI), and Kirana Wardojo, an undergraduate student of the Faculty of Psychology, in the Catholic University of Atma Jaya Jakarta. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2021 |
| Impact | This short-film was screened in a festival in Jakarta when it was released (attended by over 100 people) and has been watched over 700 items in one year. This participatory video has being used for mental health advocacy activities in Indonesia. |
| URL | https://www.youtube.com/watch?v=p9Mu-mci4-4 |
| Title | Alhassan's story |
| Description | This short-film is the outcome of the intensive participatory video workshop facilitated by the Co-I Erminia Colucci and her Erasmus mentee Sara Haragonics held in Ghana to disseminate the preliminary research findings and collect further data. This participatory video was created and filmed by the study participants and peer-researchers. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2022 |
| Impact | The film has just been completed but was already watched by over 80 participants at the conference 'Disability and Covid-19: International conference on disability and Development, Mar 2022, LSHTM London |
| URL | https://movie-ment.org/ |
| Title | Beyond the Mandate |
| Description | This short clip shows ways in which the mental health workers extend care work to include advocacy, financial support and family interventions |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2021 |
| Impact | This clip has been used in teaching, webinars and forum discussions at University of Ghana and Michigan State University African Studies Centre |
| URL | https://www.youtube.com/watch?v=evo0fDs90OA&feature=youtu.be |
| Title | Excerpt from Indonesia - Together for Mental Health |
| Description | This 12 minutes 15 seconds film excerpt is part of the rough cut of Together for Mental Health Indonesia's ethnographic research film, showing the stories of collaboration between mental health professionals and faith-based healing practitioners in 3 islands of Indonesia, namely Java, Bali, and Flores. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2020 |
| Impact | This film excerpt has been shown, together with the film excerpt from Together for Mental Health Ghana, at the virtual Together for Mental Health Online Preview event (held on December 1st, 2020, https://www.youtube.com/watch?v=Bv4tHnzNxvw&t=59s). The excerpts have enabled lively discussions during the event about the nature of collaborative practices in mental health care. The virtual Online Preview event was attended (over Zoom and YouTube live stream platforms) by over 300 participants from around the globe, consisting of scholars and professional practitioners of various disciplines, as well as patient groups and general audience. |
| URL | https://www.youtube.com/watch?v=VxbayyyOPB8 |
| Title | Hady's Schizophrenia Story |
| Description | 'Hady's Schizophrenia Story' smoothly accounts Hady's experience of various treatments for his mental illness. The short film is able to convey the reality of recurrences in Hady's illness while not thwarting the optimism that Hady projects. The short film is produced out of the collaboration between Hady S., a member of the Jakarta chapter of the Indonesian Community Care for Schizophrenia (Komunitas Peduli Skizofrenia Indonesia or KPSI), and Yossy Meilisa, an undergraduate student of the Faculty of Psychology, in the Catholic University of Atma Jaya Jakarta. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2020 |
| Impact | In addition to receiving positive feedback from the audience of the festival and was awarded first place in the Projiwa Film Festival, 'Hady's Schizophrenia Story' was also submitted as an entry to the "Health for All Film Festival" held by the World Health Organization. Furthermore, from this event, Yossy and Hady were also invited as guests to the Indonesian radio broadcast 'RPKFM 96.30' (https://www.youtube.com/watch?v=PWQurCXMYKY). |
| URL | https://www.youtube.com/watch?v=_ne7wSfaEXU |
| Title | Harmoni: Healing together |
| Description | As a nation of 270 million, Indonesia is facing the grave task of caring for millions of people living with mental illness. Many have experienced human rights abuses in their lifetime. In communities rich in their traditional and religious values, Indonesian faith-based or traditional healers and mental health professionals work tirelessly to improve mental health care and prevent human rights abuses. In the face of scepticism, can they negotiate their way to achieve successful collaboration instead of being antagonists? 'Harmoni: Healing together' is a 98-min long ethnographic documentary that explores these collaborative practices in three islands - Java, where the communities are predominantly Islamic, Hindu communities in Bali, and Catholic communities in Flores. The dream of a family home, making sense of illness and spirits through rituals, dilemmas over medicine use, and the embrace of co-existing spiritual and medical perspectives are some of the main themes presented in this innovative film. Part of "Together for Mental Health", an interdisciplinary, international collaboration between Indonesia, Ghana and the UK. Using visual methods, this film show cases examples of collaboration between mental health workers and pluralistic healing approaches and their impact on preventing human rights abuse and improving care for people living with mental illness experience. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2021 |
| Impact | The films has already been screened in several film festivals, conferences, seminars, webinars and for teaching purposes in under and postgraduate programmes. It has also received awards (see awards) |
| URL | https://movie-ment.org/together4mh/ |
| Title | Harmoni: Healing together (Italian version) |
| Description | The italian version of this project output "Harmoni: Healing together" was produced with funding from the NGO Eikon (Rome, Italy) |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2022 |
| Impact | The film was made available to italian scholars and mental health professionals who engaged in a fruitful discussion about the topic. |
| Title | Movie Screening guide |
| Description | A movie screening guide as a guideline for discussion during movie screening |
| Type Of Art | Creative Writing |
| Year Produced | 2022 |
| Impact | This product is printed in a A5 binder notes |
| Title | My Pain, Schizophrenia |
| Description | 'My Pain, Schizophrenia' tells the illness and recovery journey of Siti Anisah with her pain, schizophrenia. Her personal accounts of emotional and physical experience as well as the importance of familial support is a potent story of persistence and resilience. The short film is produced out of the collaboration between Siti Anisah, a member of the Jakarta chapter of the Indonesian Community Care for Schizophrenia (Komunitas Peduli Skizofrenia Indonesia or KPSI), and Stevani, an undergraduate student of the Faculty of Psychology, in the Catholic University of Atma Jaya Jakarta. This production followed a two-day Participatory Video workshop in late October 2019 held by the Faculty of Psychology, Catholic University of Atma Jaya Jakarta and Erminia Colucci of the Faculty of Psychology, Middlesex University London, whose presence was made possible with the support of 'Together for Mental Health' project, as well as Studio Teknologi Pendidikan. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2020 |
| Impact | The short film 'Nuraga' was first screened in the Projiwa (Pekan Proyeksi Jiwa) Mental Health Film Festival on 17 January 2020, held in the Catholic University of Atma Jaya Jakarta. In addition to receiving positive feedback from the audience of the festival and winning as the second runner up in the Projiwa Film Festival, 'My Pain, Schizophrenia' was also submitted as an entry to the "Health for All Film Festival" held by the World Health Organization. |
| URL | https://www.youtube.com/watch?v=7ChEfHxx8Z8 |
| Title | Nbakom: A little medicine, a little prayer |
| Description | Ghana has long been the focus of international concerns regarding the human rights of people with mental illness who are commonly chained by traditional and faith-based healers. 'Nkabom: A little medicine, a little prayer' is a 78 minute long ethnographic documentary filmed in 2019 in rural villages and market towns in the central belt of Ghana. Nkabom in the Akan Twi language can be translated as 'unity' or 'togetherness'. The film starts with the story of Malik, a young man who has experienced a sad and shocking mental health crisis. We meet his father who has taken him to see many different healers, as well as to one of the country's three psychiatric hospitals. From there we learn more about the practices of traditional and Christian healers in this region of Ghana and meet the mental health nurses who are creating partnerships with healers in the communities where they work. The film shows how these partnerships develop, what makes them successful, and the challenges faced by nurses in negotiating the removal of restraints as well as accessing the resources they need to do their work. The nurses and healers describe how they ka bom, join together, to reach the same goal of helping their patients to get well. The film ends by following a young woman, Serwaa, and her mother as they prepare to return home to their village from the prayer camp where they have been staying. On her journey Serwaa is accompanied by the healing prayers of the Prophet as well as carrying medication from the nurses at the clinic. As the saying goes in Ghana: "aduro kakra, mpaebo kakra" - "a little medicine, a little prayer". |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2021 |
| Impact | The film is being screened in various festivals, events, conferences, seminars, webinars and used for teaching in undergraduate, postgraduate and CPD programmes |
| URL | https://movie-ment.org/together4mh/ |
| Title | Nuraga |
| Description | 'Nuraga' is a short film telling the story of Ayna, a young tenacious woman living with schizophrenia in Jakarta. The film contains the message of call for empathy from the wider public about the everyday struggle of people living with this mental illness. The film is produced out of the collaboration between Ayna Alifia, a member of the Jakarta chapter of the Indonesian Community Care for Schizophrenia (Komunitas Peduli Skizofrenia Indonesia or KPSI), and Annisa Gifi, an undergraduate student of the Faculty of Psychology, in the Catholic University of Atma Jaya Jakarta. This production followed a two-day Participatory Video workshop in late October 2019 held by the Faculty of Psychology, Catholic University of Atma Jaya Jakarta and Erminia Colucci of the Faculty of Psychology, Middlesex University London, whose presence was made possible with the support of 'Together for Mental Health' project, as well as Studio Teknologi Pendidikan. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2020 |
| Impact | The short film 'Nuraga' was first screened in the Projiwa (Pekan Proyeksi Jiwa) Mental Health Film Festival on 17 January 2020, held in the Catholic University of Atma Jaya Jakarta. In addition to receiving positive feedback from the audience of the festival and winning as the first runner up in the Projiwa Film Festival, 'Nuraga' was also submitted as an entry to the "Health for All Film Festival" held by the World Health Organization. |
| URL | https://www.youtube.com/watch?v=CogyXhtpjAU |
| Title | Percaya Kekuatan Jiwa |
| Description | Dendy tells his story of finding himself in the ups and downs of his illness journey. Emphasizing on the empowerment he felt from work and family support, he calls for end of discrimination in employment for people living with disability. The film is produced out of the collaboration between Dendy Syafruddin, a member of the Jakarta chapter of the Indonesian Community Care for Schizophrenia (Komunitas Peduli Skizofrenia Indonesia or KPSI), and Bryan Marco, an undergraduate student of the Faculty of Psychology, in the Catholic University of Atma Jaya Jakarta. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2021 |
| Impact | This short-film has been watched over 300 items in one year and it is being used for mental health advocacy activities in Indonesia |
| URL | https://www.youtube.com/watch?v=sZjfRxGmVao |
| Title | Student drama: "For the good of the patient" |
| Description | A short drama produced by students of the Pantang Nurses' Training College about pluralistic mental health care in Ghana. The play included the use of coercion, restraint, and the use of multiple health systems. |
| Type Of Art | Performance (Music, Dance, Drama, etc) |
| Year Produced | 2019 |
| Impact | The drama was useful in driving deliberations at the maiden Advisory Group workshop, particularly given the diverse backgrounds of the group which included stakeholders with varying educational, social and cultural backgrounds. |
| Title | The Confession of A Schizophrenia and Ruqyah Survivor |
| Description | The short film focuses on Umar's telling his story about overcoming not only his mental illness but also the abuse he experienced. The film is produced out of the collaboration between Muhammad Umar Chatab N., a member of the Jakarta chapter of the Indonesian Community Care for Schizophrenia (Komunitas Peduli Skizofrenia Indonesia or KPSI), and Juan Laurentius, an undergraduate student of the Faculty of Psychology, in the Catholic University of Atma Jaya Jakarta. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2021 |
| Impact | This short-film was screened in a festival in Jakarta when it was released (attended by over 100 people) and has been watched over 700 items in one year. This participatory video has being used for mental health advocacy activities in Indonesia. |
| URL | https://www.youtube.com/watch?v=d4NQyxjDacM&t=2s |
| Title | Together for Mental Health - Excerpt from Ghana |
| Description | A short excerpt of the T4MH film from Ghana, highlighting collaboration between community mental health workers and traditional healers, as well as families |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2020 |
| Impact | The online preview of this excerpt was attended by over 300 participants. It has subsequently been used in teaching, webinars and forum discussions at King's College London, University of Ghana and Michigan State University African Studies Centre |
| URL | https://www.youtube.com/watch?v=nMNtZEqUxxA |
| Title | Warak Keruron: Healing the Mothers of Lost Souls (Indonesia, 27 min) |
| Description | Short film based on the film/field-work for this project that represents a particular ritual taking place in Bali as an exemplification of pluralistic care and the importance of traditional and faith-based healing |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2023 |
| Impact | used for educational purposes within and outside of academia |
| URL | https://movie-ment.org/together4mh/ |
| Title | We are family (Indonesia, 13min) |
| Description | Short-film about receiving care for severe mental health issues in Indonesia from the perspective of a person with lived experience and her main carer |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2023 |
| Impact | The short-film has been used for education/awareness programmes |
| URL | https://movie-ment.org/together4mh/ |
| Title | Weaving Hope |
| Description | Narrated by Addeliya's mother, the short film 'Weaving Hope' shines as the evidence of a mother's unconditional love and belief in her child, casting light on the darkest days of Addeliya's journey with mental illness. The film is produced out of the collaboration between Addeliya, a member of the Jakarta chapter of the Indonesian Community Care for Schizophrenia (Komunitas Peduli Skizofrenia Indonesia or KPSI), her mother, Mrs. Suyatni, who is Addeliya's main caregiver, and Kotot Priyadi, from Studio Teknologi Pendidikan, Catholic University of Atma Jaya Jakarta. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2021 |
| Impact | This short-film was screened in a festival in Jakarta when it was released (attended by over 100 people). This participatory video has being used for mental health advocacy activities in Indonesia. |
| URL | https://www.youtube.com/watch?v=vOTOuhlnK2c |
| Title | What I Appreciate: Me, Myself, My Best Friend |
| Description | The short film is produced out of the collaboration between Jaka Julianis, a member of the Jakarta chapter of the Indonesian Community Care for Schizophrenia (Komunitas Peduli Skizofrenia Indonesia or KPSI), and Kotot Priyadi, of the Studio Teknologi Pendidikan Catholic University of Atma Jaya Jakarta. This production followed a two-day Participatory Video workshop in late October 2019 held by the Faculty of Psychology, Catholic University of Atma Jaya Jakarta and Erminia Colucci of the Faculty of Psychology, Middlesex University London, whose presence was made possible with the support of 'Together for Mental Health' project, as well as Studio Teknologi Pendidikan Perpustakaan of the Catholic University of Atma Jaya Jakarta. The short film 'What I Appreciate: Me, Myself, My Best Friend' showcased Jaka's appreciation of how joyful activities in a supportive community can be therapeutic for him. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2020 |
| Impact | The short film, along with 10 other short films born out of the same workshop, were screened for the first time in the Projiwa (Pekan Proyeksi Jiwa) Mental Health Film Festival on 17 January 2020, held by the Faculty of Psychology of Atma Jaya Catholic University in Jakarta. |
| URL | https://qswownews.com/understand-schizophrenia-disorders-through-film-festivals/ |
| Description | GHANA 1.Data collection Fieldwork and filming took place between 14/04/19 - 07/05/19 & 15/05/19-03/06/19. The research team followed community-based mental health workers in Nkoranza South and Techiman North districts and Techiman municipality as they engaged with healers in their locality. Observation and filming took place in the following locations: Clinics 4 Shrines 2 Churches 9 - 3 orthodox churches, 6 healing churches - 3 spiritual churches (sunsum sore), 1 Church of Pentecost, 2 neo-Pentecostal Family homes 4 - 1 former vagrant (street homeless), 2 persons who had been chained at home, 1 former patient at shrine The team conducted observation and filming of mental health workers (clinical appointments, outreach to churches/shrines, home visits, training/mentoring), use of register of mental health cases for healers, church services, healing services, shrine rituals. In total 48 participants consented. Filming and interviews were conducted with the following: Mental health nurses 10 Pastors 5 Traditional medicine men (akomfoo) 3 People with experience of mental health issues 12 Caregivers 15 Social worker 1 Radio presenter 1 Philanthropist 1 Head of community mental health 1 Total = N 48 2. Ethics and consent All participants were provided with information on the study, either written or verbal, and completed a consent form. Participants were given options on anonymity as outlined in the consent form. Of the 48 participants 34 chose to be fully identified, 14 chose not to reveal their identity. Those who chose to be anonymous were given options regarding concealing the face and voice. The participants who wished not to reveal their identity chose to be filmed with their backs to the camera, concealing their face. Three people with experience of mental illness declined to participate. Many of those we met at prayer camps/shrines were too unwell to give informed consent and so were not recruited to the study. One pastor refused further visits after the initial interview. The team encountered several persons chained at prayer camps and shrines. All such incidences were reported to health workers in the district. Healers are being visited by mental health workers who have been able to commence treatment for some of those restrained. 3. Data storage All data, copies of the film footage, fieldnotes, transcripts and the participant database is stored on encrypted drives at the University of Ghana, Middlesex University and King's College London. Codes have been assigned to all participants for use in the transcripts where the person has chosen to be anonymous. 4. Editing Film footage has been transcribed and translated and then edited by professional editors in consultation with researchers Dr Lily Kpobi and Roberta Selormey, University of Ghana and the UK team (Dr Erminia Colucci and Dr Ursula Read) 5. Findings Findings are currently been submitted for publication. We have identified the following themes which also guided the film editing: -Successes and challenges for mental health workers in establishing relationships with different healers and negotiating power dynamics. -Diversity of methods employed for engaging with healers and reducing use of restraints. Successful examples included holding clinic in a prayer camp, regular visits, referrals from healers, church talks on mental illness, mentoring new nurses on methods -Use of documentation by healers and mental health workers, including case registers -Role of prayer camps and shrines as places of refuge and mutual support for caregivers -Role of mental health workers in providing social support for patients and families, mobilizing community support and mediating family conflict -Resource challenges for community mental health workers affecting engagement with healers e.g. transport, medication supplies -Community outreach activities of mental health workers - education, radio broadcasts, fundraising 6. Engagement and dissemination Twitter, Instagram and Facebook accounts have been set up and regular updates are posted. The main ethnographic film based on the data has been finalized and officially launched. It is also going to film festivals and used for teaching at under and postgraduate levels. Findings have also been presented at webinars, seminars and conferences (including as invited speakers). We have produced a freely-available screening guide to accompany the films. Research footage is being edited for additional short-films. INDONESIA 1.Data Collection The study was conducted between 27 October 2019 and 16 January 2020. This study has anticipated to capture the cultural and religious diversity by opting for three islands as study locations, which are Java, Bali, and Flores. Case studies were pre-identified in these locations, mostly from consultation with advisory committee members in two meetings held in Jakarta and Yogyakarta, with all committee members (16 people of various professional backgrounds and involvement in mental health advocacy) provided their consent for the study to be identified. In each case study, the researchers explored the perspectives of traditional and faith-based healers, health care providers, people with lived experience of mental illness, and their family members and/or caregivers. The research team observed 8 case studies in the three islands. • Case Study 1 follows a foundation dedicated to the care of people with severe mental illnesses which provided residential care as well as outreach visits in Cianjur, West Java, Java island. • Case Study 2 follows a Ruqyah clinic which founder and Islamic-based healer networked with a number of mental healthcare professionals, located in Bantul, Yogyakarta, Java island. • Case Study 3 follows an Islamic residential care which has undergone transition from having a fully faith-based healing approach to an integrated facility with biomedical practitioner, in Kulon Progo, Yogyakarta, Java island. • Case Study 4 follows an Islamic school which developed another function as residential healing facility with a collaboration with a mental hospital, also located in Kulon Progo, Yogyakarta, Java island. • Case Study 5 follows a network of medical, psychological, and faith-based healers, involved in various degrees of collaboration for mental health issues, in Denpasar, Bali. • Case Study 6 follows the experience of a psychiatrist who integrates biomedical and spiritual approach in Denpasar, Bali. • Case Study 7 follows a Catholic residential rehabilitation centre led and staffed by a physician and two Catholic brothers cum psychiatric nurses, with a relationship with local traditional and faith-based healers, in Manggarai, NTT, Flores island. • Case Study 8 follows a Catholic Order's mission which focuses on mental healthcare in collaboration with local health professionals in Sikka, NTT, Flores island. 2.Ethics and Consent In total, 81 consenting informants were interviewed and/or observed in the field, with full explanation of the options for identity disclosure or different degrees of anonymity. Out of the recorded consent to date, only 4 provided restrictions to their identity disclosure of various types, while the rest provided their consent to be fully identified. Out of the 4 informants with identity disclosure restrictions, one only allowed audio recording of the interview, two restricted recording of their facial features as well as disclosure of their names, and one restricted the disclosure of their name. Most encounters in the field with persons experiencing prolonged restrain or confinement were either disclosed to local health professionals or were witnessed together with local health professionals. Data Storage All data, copies of film footages, fieldnotes, transcripts, as well as participants database are stored in encrypted drives, and access to which is only provided to research team members in Middlesex University London and Universitas Gadjah Mada. All restrictions of identity disclosure as noted in the consent forms were followed in the transcription process. 3.Editing Film footages transcription and translation process was completed and edited by a professional editor in close consultation with Dr. Erminia Colucci of Middlesex University London, and Dr. Diana Setiyawati and dr. Ade Prastyani of University of Gadjah Mada, Yogyakarta, Indonesia. 4.Findings Analysis of findings is still underway and will utilize the assistance of qualitative data analysis software (NVivo). Nevertheless, research team members have identified several major themes arising from the field, which provide as an initial guidance for the film editing process. They are, namely: 1. Forms of collaboration and/or integration of pluralistic healing approach The study found that there are three forms whereby pluralistic healing approaches are integrated by these 8 clusters of healer/network of healers. Firstly, is non-collaborative embodiment of pluralistic healing approach. In this form, a single person embodies both the medical and non-medical healing approach. However, the integration of approach is not followed by the establishment of collaborative practice between the embodying practitioner with other practitioners. Secondly, is the space-sharing integrated collaboration. In this form, practitioners utilizing different approaches share working space in the same facility. In these instances, there is evidence of negotiation and compromises made by the different actors involved. Thirdly, is the network collaboration. In this form, practitioners were able to create collegial relations without merging their practices. Arguably, the practitioners were more able to fully practice the interventions they see fit according to their ontological understanding. 2. Factors contributing to collaborative relationships Several factors found to have contributed to successful collaborative relationships between health care professionals and traditional healing practitioners are, namely: ? Personal bond between health care professionals and traditional healing practitioners (utilizing clientelistic/patronage ties) ? Opportunity for networking and emergence of leadership roles ? Mutual recognition of roles in client/patient care ? Negotiation processes and compromises (dynamic and of varying extent) ? Cognitive resonance (as opposed to cognitive dissonance) about the synergy between biomedical understanding of mental health and traditional healing practices. ? Recognition of spirituality in health care professionals 5.Engagement and Dissemination Through the established Twitter, Facebook, and Instagram accounts, regular updates were posted with regards to the project. We also posted updates and film excerpts in the Together for Mental Health webpage. The three winning Participatory videos from Indonesia and the other six were premiered with the participation of the storytellers (i.e. people with lived experience of mental illness and coercion), the students who supported them to create the stories, and other Indonesian stakeholders in two online events. On the 1st Dec 2020 we organized a Ghana and Indonesia teams joined T4MH Online Preview Event chaired by Dr Roberto Mezzina (Italy), member of our steering committee followed by other online screenings. We have produced a freely-available screening guide to accompany the films. Research footage is being edited for additional short-films. Key research findings and methodological reflections were also shared at a number of events listed under Engagement. The films from both projects are also being used for teaching and capacity building purposes within and outside academia and for advocacy/activism in both countries and internationally. |
| Exploitation Route | The visual research process and resources we have developed will be useful to others intending to use similar methodologies as currently there is very limited methodological literature on this. We have also prepared a manuscript on ethical aspects and guidance for visual research in mental health, which will be useful to researchers as well as ethics committees and other governance bodies. Research findings are also being presented in conferences, webinars, lectures and academic and non-academic publications, emphasizing key learnings about what facilitates successful collaborations between faith-based/traditional healers and mental health workers which would be useful not only in Ghana and Indonesia but also other LMICs facing similar issues related to (lack of) collaboration and use of constraints and coercions against people experiencing mental health issues. |
| Sectors | Communities and Social Services/Policy,Education,Healthcare,Culture, Heritage, Museums and Collections,Other |
| URL | https://movie-ment.org/together4mh/ |
| Description | Although we are still releasing further short-films produced through the film/fieldwork and some papers are still under publications, a number of impacts have already emerged which have been listed in each category of this application. For instance, policy makers, key stakeholders, NGOs local and international arts, lived experience and/or mental health service organizations have actively participated in the local advisory groups and international Steering committee meetings to advise on how the findings may be used and have started using the findings and the visual outputs in their sectors. In Ghana the film is supporting the Mental Health Authority policy and legislation on collaboration with traditional and faith healers. In Indonesia the outcomes of this research have been used to influence Ministry of Health to involve spiritual healers in the mental health system and to acknowledge their roles in closing the care gap for people with mental illness in the National Mental Health Plan 2024-2029. A network of academic and non-academic experts in the Global North and Global South has been formed through the Steering committee as well as direct collaboration between the Ghana, UK and Indonesia teams. This has led, for instance, to four other successful fundings (two AHRC for a connected research project and network and a ESRC accelerator grants for dissemination/engagement) and co-development of several dissemination and engagement activities listed in the submission. The two feature-lenght ethnographic films produced through data analysis of the audio-visual material collected (Harmoni: Healing together, Indonesia & Nkabom: A little prayer, a little medicine) have been screened in several national and international festivals where they have won awards and are already been used (together with the accompanying d screening guides) for training mental health practitioners in best practice in both countries. These films, as well as the shorter films and the participatory video produced in this project) are being used for public engagement in mental health and human rights as demonstrated in our several community screenings and discussions in UK, Ghana and Indonesia as well as other countries. The films have also been used to support WHO QualityRights training in Ghana. In the UK, Ghana and Indonesia the films are also been used to train UG/PG students in global health/global mental health as well as in training mental health practitioners (including those working in inter-cultural/inter-faith contexts). Furthermore, extracts from the data collected and key learnings are being shared through our Together for Mental Health social media accounts (Twitter, blog, Instagram and Facebook) and disseminated through our followers as well as at numerous lectures, conferences (also as invited speakers) and non-academic events. The methodological innovation of this project, in addition to the research written and visual outputs, are also being used in under- and postgraduate teachings in various disciplines (social sciences, humanities and psychiatry) and for capacity building activities across sectors. For instance, workshops on the use of visual methods in mental health research have been held in several countries (eg Italy, Indonesia, Ghana and UK) including training peer-researchers and people with lived experience of mental illness in the development and production of participatory videos to be used as research data and outputs. These activities have allowed us to meet several of the SDGs including: SDG 3 (i.e. understanding healer-health worker collaboration can inform policy decisions); SDG 5 (i.e. research team is largely female, encouraging gender equality); SDG 9 (i.e. capacity building can help build innovation, industry and infrastructure. Training of filmmakers and local researchers are key outcomes for this goal); SDG 17 (i.e. multi-country partnerships to build capacity, encourage networking, bilateral exchange of knowledge and expertise). |
| First Year Of Impact | 2019 |
| Sector | Communities and Social Services/Policy,Education,Healthcare,Culture, Heritage, Museums and Collections,Other |
| Impact Types | Cultural,Societal,Policy & public services |
| Description | Engaging peer-researchers in co-facilitation of participatory video workshop |
| Geographic Reach | Multiple continents/international |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Impact | The peer-researcher learnt new skills and those involved in the project as storytellers or audience improved knowledge and attitudes towards mental health issues and ability for people with lived experience of severe mental illness to develop and produce a short film. |
| Description | Influence a curriculum of undergraduate in psychology : Faculty of Psychology Universitas Gadjah Mada |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Description | Influenced the five years National Mental Health Plan (2022-2023) |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| URL | https://jdih.bappenas.go.id/peraturan/detailperaturan/1037 |
| Description | Training for research teams for NIHR HOPE project in Ethiopia, Kenya and Ghana |
| Geographic Reach | Africa |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Impact | Increased awareness of how mental health workers and healers can collaborate, improved knowledge of participatory research methods and peer research Training delivered to about 20 participants from Ghana, Ethiopia and Kenya including members of service user groups with lived experience, PhD students and early career researchers, NGO employees working in mental health |
| Description | Training for research teams in Nigeria and Bangladesh |
| Geographic Reach | Multiple continents/international |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Impact | Increased awareness of research teams of issues to consider when conducting research with traditional and faith-based healers, best approaches to building partnerships, potential challenges and how to address these |
| Description | Training on Arts-based and visual methods in Psychology/Mental Health |
| Geographic Reach | National |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Impact | Dr Erminia Colucci developed and run a one day online training for The Institute for Arts in Therapy and Education (IATE) based in London. as part of the training, the 28 participants had to develop and present an arts-based social justice project. The training outcome showed improved knoweledge and skils on the training topic |
| Description | workshops on arts-based and visual methods |
| Geographic Reach | Multiple continents/international |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Impact | All participants in the workshop were successful in developing and/or producing a visual project, including participatory-based. |
| Description | workshops on arts-based and visual methods in Psychology |
| Geographic Reach | Europe |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Impact | by the end of the workshop, all participants were able to make a plan about how to integrate visual methods in an existing project they were responsible for. |
| Description | Arts and Humanities Impact Fund |
| Amount | £2,394 (GBP) |
| Funding ID | G.MRHF.0005 |
| Organisation | University of Warwick |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 07/2022 |
| End | 07/2023 |
| Description | CSEAS (Centre for South-East Asian Studies) fellowship |
| Amount | ï¿¥2,000,000 (JPY) |
| Organisation | University of Kyoto |
| Sector | Academic/University |
| Country | Japan |
| Start | 01/2024 |
| End | 03/2024 |
| Description | Developing a network for mutual learning on the potential of creative arts for mental health advocacy and activism in Ghana and Indonesia |
| Amount | £87,186 (GBP) |
| Funding ID | AH/X009637/1 |
| Organisation | Arts & Humanities Research Council (AHRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2023 |
| End | 07/2024 |
| Description | ESRC Impact Acceleration Account |
| Amount | £5,812 (GBP) |
| Funding ID | G.MRHW.0701 |
| Organisation | University of Warwick |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 07/2022 |
| End | 03/2023 |
| Description | ESRC Impact Acceleration Account Industrial and International Impact Fund |
| Amount | £12,405 (GBP) |
| Organisation | King's College London |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 04/2020 |
| End | 03/2021 |
| Description | Erasmus+ Mobility grant- EU (Naples, Italy) |
| Amount | € 2,000 (EUR) |
| Organisation | Erasmus + |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2019 |
| End | 03/2019 |
| Description | Erasmus+ Mobility grant- International (Mauritius) |
| Amount | £4,000 (GBP) |
| Organisation | Erasmus + |
| Sector | Public |
| Country | United Kingdom |
| Start | 07/2019 |
| End | 07/2019 |
| Description | Erasmus+ Mobility grant- international (Copenaghen, Denmark) |
| Amount | € 2,000 (EUR) |
| Organisation | Erasmus + |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2022 |
| End | 09/2022 |
| Description | King's Together: Multi & Interdisciplinary Research Scheme: Together to transform: a mutual learning platform to develop a social paradigm for global mental health |
| Amount | £1,970,250 (GBP) |
| Organisation | King's College London |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 12/2021 |
| End | 07/2022 |
| Description | Psychology Research team conference and CPD funding |
| Amount | £496 (GBP) |
| Organisation | Middlesex University |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 02/2022 |
| End | 04/2022 |
| Description | UKRI/AHRC GCRF Urgency Grants Scheme Highlight Notice for Innovation Awards / Case Studies on the Impacts of COVID-19 on Persons with Disabilities |
| Amount | £95,423 (GBP) |
| Funding ID | AH/V013548/1 |
| Organisation | Arts & Humanities Research Council (AHRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 02/2021 |
| End | 07/2021 |
| Title | Adapted ethnographic documentary and participatory video methodologies |
| Description | As the visual methodologies used in this project are an innovative research method within mental health disciplines, we had to adapt the existing methodological and ethical knowledge to be relevant and adequate for the Ghana and Indonesia mental health context. We will write an article or book chapter and submit a conference paper to make these tools available to others. |
| Type Of Material | Improvements to research infrastructure |
| Year Produced | 2020 |
| Provided To Others? | No |
| Impact | The UK, Ghana and Indonesia teams have learnt about this innovative methods as well as various audiences exposed to it such as the advisory groups, steering committee and partners as well as lectures, seminars and film screenings audiences. |
| Title | Adapting participatory video methodology as research data collection and dissemination tool |
| Description | To the best of our knowledge, participatory video for mental health research had not been used in Ghana before. We developed an innovative methodological approach to work with peer-researchers to develop a qualitative analysis thematic mapping that formed the basis for developing participatory videos with the participants during a three days intensive workshop aimed to both create case studies for finding dissemination while also eliciting and collecting additional data. In Indonesia, this workshop took place in an hybrid way which was also an innovation and required further adaptations of the tool. In addition to releasing the videos at conferences and similar events and on our social media and website channels, we will write an article or book chapter to make these tools available to others. |
| Type Of Material | Improvements to research infrastructure |
| Year Produced | 2021 |
| Provided To Others? | No |
| Impact | The three research teams (UK, Ghana and Indonesia) -comprising also (gender equal) peer-researchers with experience of mental health issues- acquired new skills including co-facilitation of participatory videos, developing a story-board and use of audio-visual equipment. |
| Title | Development of an ad hoc PIS and Consent/release form for a staged multi-layered consent to participate to visual research with visual and written outputs |
| Description | As this is an innovative methodology in mental health research, it was necessary to develop a consent process and documentation that reflects the kind of data collected (audio-visuals) and outputs (academic publication and presentations as well as artistic/creative/visual materials). |
| Type Of Material | Improvements to research infrastructure |
| Year Produced | 2018 |
| Provided To Others? | No |
| Impact | These forms and process were adapted to be used for another GCRF innovative project using an arts-based method. We plan to include this tool and/or its description in upcoming methodological publications/presentations |
| Title | Interview topic guides |
| Description | Developed interview topic guides for use with traditional/faith healers, family, persons with experience of mental illness and mental health workers |
| Type Of Material | Improvements to research infrastructure |
| Year Produced | 2018 |
| Provided To Others? | No |
| Impact | Topic guides approved by ethics committee. Used to conduct inerveiws with healers, caregivers and people with lived experience of mental illness. Excerpts from interviews used a part of final films. |
| Title | editing as data analysis |
| Description | We have developed an approach to editing ethnographic film footage as a process of data analysis, which has guided the production of the Together for Mental Health films and is used for teaching visual research methods. |
| Type Of Material | Improvements to research infrastructure |
| Year Produced | 2021 |
| Provided To Others? | Yes |
| Impact | Developed the research team's and editors skills in the subject Request for more information about the process by various audiences, within and outside the film-making industry |
| Title | Participant database, interview transcripts, fieldnotes |
| Description | Anonymised database of interview participants in Ghana and Indonesia - people with lived experience of mental health conditions, traditional and faith healers, mental health nurses, caregivers, stakeholders Filmed interviews and observations Anonymised fieldnotes recording observations of healers, caregivers, people with mental health conditions, mental health nurses in Ghana and Indonesia Anonymised interview transcripts of filmed interviews with people with lived experience of mental health conditions, traditional and faith healers, mental health nurses, caregivers, stakeholders |
| Type Of Material | Database/Collection of data |
| Year Produced | 2019 |
| Provided To Others? | No |
| Impact | Thematic analysis of interviews and fieldnotes used to develop ethnographic documentary films Footage of filmed interviews included in the films |
| Description | Academic collaboration University of Ghana |
| Organisation | University of Ghana |
| Department | Department of Psychology |
| Country | Ghana |
| Sector | Academic/University |
| PI Contribution | Recruited co-investigator and established academic collaboration with department of psychology, University of Ghana. Developed research proposal drawing on research experience in Ghana and knowledge of national and international policy relating to rights and mental health. Recruited junior researchers to work as research assistants on the project and commenced induction and training. |
| Collaborator Contribution | Professor Joseph Osafo and Dr Lily Kpobi contributed expertise gained through research with traditional and faith healers in Ghana Provided office space and access to research support at University of Ghana. |
| Impact | Development of research grant proposal, ethics approval from Ghana Health Service, engagement with local stakeholders to form advisory group. Two further successful research grant proposals submitted with Dr Lily Kpobi and Dr Sarah Dorgbazi, School of Performing Arts who co-facilitated our advisory group - please see further funding. Other collaborations with scholars at Birkbeck University |
| Start Year | 2018 |
| Description | Academic collaboration with UGM Indonesia |
| Organisation | Gadjah Mada University |
| Country | Indonesia |
| Sector | Academic/University |
| PI Contribution | Recruited co-investigator and established academic collaboration with the Faculty of Psychology at Universitas Gadjah Mada (UGM), Indonesia. Developed an MoU between Middlesex University and UGM , which has been signed and the reciprocal Deans and other members of these institutions will personally meet in London in April 2019 to celebrate the MoU and plan for future exchanges and collaborations. I have also facilitated a meeting with KCL Dean of International with the same objective. Secured UGM ethics clearance. Recruited early career researchers to work as research fellow and research assistant on the project starting from July 2019 as we are still in the process of obtaining the Indonesia research permit. |
| Collaborator Contribution | Diana Setiyawati from UGM was the main local contributor to these activities. |
| Impact | Formally establishing a collaboration for this project and future exchanges (including an Erasmus+ application) and collaborations |
| Start Year | 2018 |
| Description | Bethlem Gallery |
| Organisation | Bethlem Gallery |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Facilitating visit to Ghana of artists from Bethlem gallery UK in May 2019 Introductions of artists to persons with lived experience of mental illness, family members, advocacy groups, arts organisations/artists, healers, mental health workers and academics/researchers in Ghana |
| Collaborator Contribution | Artists funded by the Wellcome Trust to visit Ghana and develop artwork related to research for Mental Health and Justice Project The artists will engage with people with lived experience of mental illness and family members participating in this research to develop participatory art work/performance about their experience of mental illness and mental health services and traditional/faith healing |
| Impact | Visit of artists to take place in May 2019. Artists will visit fieldsite during filming Artists in contact with arts organisations and mental health advocacy/service user groups in Ghana |
| Start Year | 2018 |
| Description | Collaboration on sensitive research with Louise Hide, Birkbeck University |
| Organisation | Birkbeck, University of London |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Dr Ursula Read is working with Dr Louise Hide, historian, Birkbeck University to develop a network for support of researchers conducting research on sensitive topics, such as severe mental illness and human rights. This will draw on experiences from this project and others to identify support needs for researchers and research assistants, particularly when working internationally and to consider the ethical issues arising. This draws on experiences of sexual harassment experienced by the research team on this project who are all female, as well as the emotional impact of working with people who are subjected to restraints and other human rights abuses, and safeguarding junior research assistants who may be confronting distressing situations for the first time with limited institutional support. Dr Read is helping to facilitate online workshops for researchers and with Louise Hide is applying for funding to the Wellcome Trust. |
| Collaborator Contribution | Dr Louise Hide develop the research group on sensitive research and held an inaugural workshop last year where she identified significant demand for support and safe spaces to discuss concerns. She initiated the proposal and invited Dr Read to be a collaborator on the project. Ursula Read will bring social science perspectives to add to the humanities orientation to date, and also expand to an international focus. |
| Impact | This collaboration is multi-disciplinary across humanities, particularly history and philosophy, and social scientists (anthropology, sociology, geography) A workshop was held 07/01/21 where Ursula Read (anthropologist) and Sarah Marks (historian) discussed the sensitive issues and ethical dilemmas which arise in their research and how these are influenced by the differing methodological approaches. This was followed by small group discussion on the topic. |
| Start Year | 2020 |
| Description | Collaboration with Queen Mary University of London |
| Organisation | Queen Mary University of London |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Contribution to research and debate on spirituality and mental health and understandings of mental illness and intellectual disability in Ghana, in particularly providing insights from research in Ghana and anthropological theory. Analysis and writing up of research findings Developing roundtable event on spirituality and mental health, inviting speakers from research networks Participating as speaker in roundtable event. |
| Collaborator Contribution | Funding flights and accomodation for international speakers to roundtable event in London and for analysis and writing with partners in Ghana. Leading research and debate on spirituality and mental health and understandings of mental illness and intellectual disability in Ghana, particularly based on philosophical perspectives Organisation and funding for roundtable event on spirituality and mental health Participating as speaker in roundtable event. |
| Impact | Roundtable event with international speakers to take place on 30th March 2023 - Enchanted Worlds and Human Meaning: Interdisciplinary and intercultural dialogue on spirituality and mental health Multi-disciplinary collaboration across philosophy, anthropology, psychology, religious and cultural studies |
| Start Year | 2022 |
| Description | Collaboration with University of Birkbeck and University of Ghana |
| Organisation | Birkbeck, University of London |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Invited to join team working on Wellcome Trust small grant exploring perspectives on rights and capacity in mental health in Ghana. Will provide social science perspective on human rights and expertise on mental health in Ghana Advisory group for this research project will be invited to participate in debates and events in Ghana funded by the Wellcome Trust |
| Collaborator Contribution | Funding to attend workshop in South Africa to develop project. Funding to hold participatory events in Ghana to debate concepts of rights in mental health Organisation of participatory events/drop-ins |
| Impact | Participation in planning workshop in South Africa in October 2019 |
| Start Year | 2019 |
| Description | Collaboration with University of Birkbeck and University of Ghana |
| Organisation | University of Ghana |
| Country | Ghana |
| Sector | Academic/University |
| PI Contribution | Invited to join team working on Wellcome Trust small grant exploring perspectives on rights and capacity in mental health in Ghana. Will provide social science perspective on human rights and expertise on mental health in Ghana Advisory group for this research project will be invited to participate in debates and events in Ghana funded by the Wellcome Trust |
| Collaborator Contribution | Funding to attend workshop in South Africa to develop project. Funding to hold participatory events in Ghana to debate concepts of rights in mental health Organisation of participatory events/drop-ins |
| Impact | Participation in planning workshop in South Africa in October 2019 |
| Start Year | 2019 |
| Description | Collaboration with Wellcome Trust |
| Organisation | Wellcome Trust |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | A collaboration with the Wellcome funded and based LSE hub has resulted in co-organizing an event around the use of arts and film for research, with invited speakers including other members of the research team, followed by screening of Nkabom at Wellcome Collection |
| Collaborator Contribution | They paid an honorarium to the speakers, organized the space and audio-visual recording, and provided the online platform for the event and refreshments |
| Impact | the most meaningful impact is that this multidisciplinary collaboration has brought understandings around the topic and methodology at the Wellcome hub members, in addition to change of views and understanding shared by audience members |
| Start Year | 2021 |
| Description | Collaboration with mental health advocacy organization KPSI Indonesia |
| Organisation | Komunitas Peduli Skizofrenia Indonesia |
| Country | Indonesia |
| Sector | Charity/Non Profit |
| PI Contribution | I met with KPSI head and several members in Jakarta in November and we have planned an activity and meeting, together with a local university, in March (18-27th) in Jakarta and Bogor, to develop participatory videos and other awards related activities. |
| Collaborator Contribution | The head of the organization, Bagus Utomo, and one of his member, Agus, have helped developing the planning. |
| Impact | Planning of participatory videos as well as meeting with an Indonesian journalist who agreed to cover the activities from this award. I am also working with the lived experience advocate to post-produce and disseminate a short participatory film on his story. we will do a preview screening together in March and use it as a platform to recruit future lived experience participants and people to support the making of the videos. |
| Start Year | 2018 |
| Description | NGO and arts organisation partnership |
| Organisation | MindFreedom |
| Country | United States |
| Sector | Charity/Non Profit |
| PI Contribution | Established partnership with NGO Mindfreedom Ghana and arts organisation Nubuke Foundation Ghana during grant development process. Co-developing ideas for participatory workshop with stakeholders in Ghana on 12th April 2019 Developed research proposal to investigate partnerships between traditional/faith healers, mental health workers and families drawing on research experience in Ghana and knowledge of current policy, developed idea for workshop and advisory group to guide research process and advise on public engagement and impact |
| Collaborator Contribution | Nubuke Foundationbring expertise in using the arts for community engagement in Ghana. Bianca Manu led the local research team in developing the content for the first advisory group workshop in April 2019. Film screenings and Q&A will be held in the Nubuke Foundation premises. Dan Taylor, Mindfreedom Ghana has experience in mental health advocacy and working with local communities to promote the rights of persons with mental health problems. Mindfreedom Ghana contribute this expertise to developing the advisory group workshops and engaging stakeholders. |
| Impact | Advisory group workshop took place 12th April 2019. Advisory group inaugurated at the workshop. Multidisciplinary collaboration between arts practitioners, NGO/voluntary sector and academics. Co-hosting online film-screening of documentary film Nkabom: A little medicine, a little prayer 24th March 2022 |
| Start Year | 2018 |
| Description | NGO and arts organisation partnership |
| Organisation | Nubuke Foundation |
| Country | Ghana |
| Sector | Charity/Non Profit |
| PI Contribution | Established partnership with NGO Mindfreedom Ghana and arts organisation Nubuke Foundation Ghana during grant development process. Co-developing ideas for participatory workshop with stakeholders in Ghana on 12th April 2019 Developed research proposal to investigate partnerships between traditional/faith healers, mental health workers and families drawing on research experience in Ghana and knowledge of current policy, developed idea for workshop and advisory group to guide research process and advise on public engagement and impact |
| Collaborator Contribution | Nubuke Foundationbring expertise in using the arts for community engagement in Ghana. Bianca Manu led the local research team in developing the content for the first advisory group workshop in April 2019. Film screenings and Q&A will be held in the Nubuke Foundation premises. Dan Taylor, Mindfreedom Ghana has experience in mental health advocacy and working with local communities to promote the rights of persons with mental health problems. Mindfreedom Ghana contribute this expertise to developing the advisory group workshops and engaging stakeholders. |
| Impact | Advisory group workshop took place 12th April 2019. Advisory group inaugurated at the workshop. Multidisciplinary collaboration between arts practitioners, NGO/voluntary sector and academics. Co-hosting online film-screening of documentary film Nkabom: A little medicine, a little prayer 24th March 2022 |
| Start Year | 2018 |
| Description | Panel for Ghana Studies Association |
| Organisation | Birkbeck, University of London |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Developed a successful panel proposal on Mental Health in Ghana at a Crossroads which will be part of the Ghana Studies Association conference. Brought together researchers from my network to develop the proposal. |
| Collaborator Contribution | Each partner contributed towards the development of the panel abstract and towards abstracts based on our various research collaborations |
| Impact | Panel proposal accepted for the Ghana Studies Association conference in July 2022 Multi-disciplinary - history, psychology, anthropology |
| Start Year | 2021 |
| Description | Panel for Ghana Studies Association |
| Organisation | Sapienza University of Rome |
| Country | Italy |
| Sector | Academic/University |
| PI Contribution | Developed a successful panel proposal on Mental Health in Ghana at a Crossroads which will be part of the Ghana Studies Association conference. Brought together researchers from my network to develop the proposal. |
| Collaborator Contribution | Each partner contributed towards the development of the panel abstract and towards abstracts based on our various research collaborations |
| Impact | Panel proposal accepted for the Ghana Studies Association conference in July 2022 Multi-disciplinary - history, psychology, anthropology |
| Start Year | 2021 |
| Description | Panel for Ghana Studies Association |
| Organisation | University of Ghana |
| Country | Ghana |
| Sector | Academic/University |
| PI Contribution | Developed a successful panel proposal on Mental Health in Ghana at a Crossroads which will be part of the Ghana Studies Association conference. Brought together researchers from my network to develop the proposal. |
| Collaborator Contribution | Each partner contributed towards the development of the panel abstract and towards abstracts based on our various research collaborations |
| Impact | Panel proposal accepted for the Ghana Studies Association conference in July 2022 Multi-disciplinary - history, psychology, anthropology |
| Start Year | 2021 |
| Description | Parternship with Atma Jaya University (Jakarta, Indonesia) |
| Organisation | Atma Jaya Catholic University of Indonesia |
| Country | Indonesia |
| Sector | Academic/University |
| PI Contribution | Dr Erminia Colucci (PI) and Dr Ade Prastyani (Research fellow, University of Gadjah Mada, Indonesia) established a partnership with the Department of Psychology at Atma Jaya University to develop and carry out a 2 days Participatory video workshop with people with experience of severe mental illness from the project's partner organization KPSI, students and media centre at the University. The workshop culminated in a mental health short film festival in Jakarta, open to the public, where the 10 short films were screened and the winners announced. Dr Colucci lead the development and facilitation of the workshop and was a judge at the festival. Dr Prastyani supported the development and facilitation of the workshop and maintained contact with the partner institution and participants to produce revised/final versions of the short films for web release/world premieres. |
| Collaborator Contribution | Atma Jaya paid some of living and travelling expenses for the workshop and festival, covered the catering costs for all participants and provided an honorarium to the participants to cover for their travelling and time costs, provided the facilities and media and promotion resources and assigned media staff to provide technical support for the making of the films. |
| Impact | -2 days Participatory video workshop - Short film festival -10 short films -2 world premieres online events Psychology Anthropology Public Health Psychiatry |
| Start Year | 2019 |
| Description | Partnership with Indonesian Ministry of Health |
| Organisation | Ministry of Health |
| Country | Indonesia |
| Sector | Public |
| PI Contribution | Through the research, we provided a real example from the field on how Traditional/Faith Based Healer collaborate with mental health professionals in the field. The result of the research contributed to the development plan for the mental health system for the next 5 years. |
| Collaborator Contribution | They endorsed our UKRI research, and provide experts for the Steering Committee. Then they also gave a room and food for the first National Steering Committee meeting as well as the report meeting. |
| Impact | Movie screening guide input for the RPJMN (5 years National mental health plan) |
| Start Year | 2019 |
| Description | Partnership with Visual Exchanges (Brussels) |
| Organisation | Visual Exchange |
| Country | Belgium |
| Sector | Public |
| PI Contribution | As no trained participatory video-maker seemed existing in Ghana, we established a partnership with Dr Federico Varrasso who leads Visual Exchange based in Belgium to train local filmmakers in the use of Participatory Video methods as well as co-facilitate participatory video production with local participants, together with the PI Dr Erminia Colucci. |
| Collaborator Contribution | Visual Exchange provided a largely discounted price for this service in exchange of co-learning in the facilitation of participatory video on mental illness and healing. |
| Impact | Participatory video training has been organized together with the research team and, if entry in the country is allowed with the current coronavirus restrictions, the workshops will take place in march/April 2020 in various locations in Ghana. |
| Start Year | 2019 |
| Description | Partnership with the University of Theatre and Film Arts Budapest |
| Organisation | University of Theatre and Film Arts |
| Country | Hungary |
| Sector | Academic/University |
| PI Contribution | The project PI has established a partnership between Middlesex University and this Institution and formally take on a mentorship role for this Erasmus+ internship providing several opportunities to learn about using participatory video and other visual research approaches in mental health and human rights work |
| Collaborator Contribution | they have provided financial support for the PhD student/intern for one year. The student has worked closely with the team, under the mentor's supervision, to contribute to several visual outputs |
| Impact | Interdisciplinary (film studies, cultural psychology, medical anthropology, cultural psychiatry) - adapt participatory visual methodologies -editing ethnographic documentary footage for short-films - co-authored methodological paper drafts for publication |
| Start Year | 2021 |
| Description | "Listen To My Story" - Using participatory visual method to share lived experience in the mental health field (Part 1) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | The event was a screening and discussion session of 3 participatory videos (PVs) along with their filmmakers, who include people with lived experience of mental illness. The filmmakers were participants of the PV Workshop run by Erminia Colucci and co-facilitated by Ade Prastyani, in collaboration with Komunitas Peduli Skizofrenia Indonesia (KPSI, or the Indonesian Community Care for Schizophrenia) Jakarta chapter, and the Faculty of Psychology, Catholic University of Atma Jaya Jakarta, in 2019. The event was held on the 5th of August, 2020, on a virtual platform. It gathered more than 150 audiences who joined the session and engaged in the discussion with the filmmakers. Also present were Dr. Angela Suryani (then Dean of Faculty of Psychology Atmajaya University Jakarta), Ninik Supartini, M.Si. from Elemental Productions who also co-facilitated the workshop, and Bagus Utomo (Head of KPSI) as collaborators. The 3 films screened were the creation of Stevani and Siti Anisah (title: My Pain, Schizophrenia), Annisa Gifi and Ayna Alifia (Nuraga: Ayna's Story), and Hadi Sucarsa and Yossi Meilisa (Hadi's Schizophrenia Story). They were the second runner up, runner up, and winner of the Projiwa Film Festival held in January 2020 at the Catholic University of Atma Jaya Jakarta. The discussion session with the filmmakers, which raised among the audience the significance of empathy-building through story-telling, sparked high level interest. |
| Year(s) Of Engagement Activity | 2020 |
| Description | "Listen To My Story" - Using participatory visual method to share lived experience in the mental health field (Part 2) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | 'Listen to My Story: part 2' has screened 6 remaining PVs from the Together for Mental Health Indonesia and Catholic University of Atma Jaya Jakarta's workshop for participatory video-making. The workshop was run by Erminia Colucci and co-facilitated by Ade Prastyani, in collaboration with Komunitas Peduli Skizofrenia Indonesia (KPSI, or the Indonesian Community Care for Schizophrenia) Jakarta chapter, and the Faculty of Psychology, Catholic University of Atma Jaya Jakarta, in 2019. The PVs launching on the 26th of February was attended by 246 Indonesian and international participants who registered through our Eventbrite platform https://bit.ly/26022021. Dr. Erminia Colucci and Dr. Diana Setiyawati presented their remarks to open the event, followed by Dr. Ade Prastyani explaining concisely about Together for Mental Health project and the PV workshop which took place in 2019 as part of the project. The six PVs were presented by the filmmakers and discussed with an expert on mental health care (dr. Mahar Agusno, SpKJ, psychiatrist and transcultural psychiatry scholar) and an expert on visual methods (Dr. Tito Imanda, PhD, media scholar and participatory filmmaker) who discussed the PVs from their respective professional points of view. In the Q&A session, participants raised their questions and also appreciations for the filmmakers for their courage to share their mental health experiences with the public. The event was concluded with a closing remark from Dr. Erminia Colucci. The 6 PV filmmakers were: 1) Putri Hatmanti and Ignatius Andri S.K., 2) Kirana Wardojo and Agung Novel, 3) Bryan Marco and Dendi Syafruddin, 4) Juan Laurentius and Muhammad Umar Chatab N., 5) Kotot Priyadi and Jaka Julianis, and 6) Kotot Priyadi and Addeliya. |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://www.youtube.com/watch?v=jlsZekw7BJA |
| Description | "Listen To My Story" - Using participatory visual method to share lived experience in the mental health field (Part 2)) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | The event was a screening and discussion session of 6 participatory videos (PVs) along with their filmmakers, who include people with lived experience of mental illness. The filmmakers were participants of the PV Workshop run by Erminia Colucci and co-facilitated by Ade Prastyani, in collaboration with Komunitas Peduli Skizofrenia Indonesia (KPSI, or the Indonesian Community Care for Schizophrenia) Jakarta chapter, and the Faculty of Psychology, Catholic University of Atma Jaya Jakarta, in 2019. The event was held on the 26th Feb 2021, on a virtual platform. It gathered more than 200 audience members who joined the session and engaged in the discussion with the filmmakers. |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://www.youtube.com/watch?v=jlsZekw7BJA |
| Description | 'Successful international grants application: sharing lessons with the experts' workshop at Universitas Gadjah Mada (Yogyakarta, Indonesia) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Learnings about applying and carrying out the Together for Mental Health and Covid-19 projects were shared with a broad range of audiences from across Indonesia, who had to apply the learnings by presenting a short grant proposal on a provided template. |
| Year(s) Of Engagement Activity | 2023 |
| Description | A Presentation in Istanbul-Turkey |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Undergraduate students |
| Results and Impact | The movie was presented as part of example of research advocacy on mental health |
| Year(s) Of Engagement Activity | 2022 |
| Description | Advisory Committee Meetings in Indonesia |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | The Together for Mental Health research team in Indonesia conducted two Advisory Committee Meetings in two cities, namely at the Ministry of Health's office in Jakarta on the 6th of November 2019 and at the University of Gadjah Mada in Sleman, Yogyakarta on the 8th of November 2019. The following are the attendees of the invited advisory committees: Jakarta meeting 1. dr. Fidiansjah, SpKJ, psychiatrist, Director General for Mental Health, Ministry of Health 2. Angela Oktavia Suryani, PhD, psychologist, Dean of Faculty of Psychology, Catholic University of Atma Jaya Jakarta, and member of Indonesian Psychocultural Consortium 3. Rahbudi, staff of the Mental Health Directorate, Ministry of Health, educational background in pharmacy 4. dr. Diah Setia Utami, SpKJ, Head of the Indonesian College of Psychiatrists (Perhimpunan Dokter Spesialis Kesehatan Jiwa Indonesia or PDSKJI) 5. Bagus Utomo, founder of Indonesian Community Care for Schizophrenia (Komunitas Peduli Skizofrenia Indonesia, or KPSI) 6. dr. Prijanto Djatmiko, SpKJ, psychiatrist, staff of the Mental Health Directorate, Ministry of Health 7. dr. Gina Anindyajati, SpKJ, psychiatrist, staff of the Community Psychiatry Division, Faculty of Medicine, Universitas Indonesia Yogyakarta meeting 1. Haryanto (Sentot), psychologist and lecturer in Faculty of Psychology, University of Gadjah Mada 2. Prahesworo Ananta Hadinoto (Jerry), member of KPSI, Yogyakarta chapter 3. Fermi Nurhidayat, member of KPSI, Yogyakarta chapter 4. dr. Gunawan Setiadi, general practitioner, founder of Tirto Jiwo rehabilitation facility 5. Ns. Shanti Wardaningsih, psychiatric nurse and lecturer in Nursing, Muhammadiyah Yogyakarta University 6. Fatihatul Yusniyah (Nia), caregiver, member of KPSI, Yogyakarta chapter, with a training background in nursing 7. Tito Imanda, PhD, founder of Ben Pinter Tenan - partner of Together for Mental Health 8. dr. Mahar Agusno, SpKJ, psychiatrist, lecturer in Faculty of Medicine, University of Gadjah Mada, and member of Indonesian Psychocultural Consortium 9. Atik Triratnawati, medical anthropologist and lecturer in Cultural Science Faculty, University of Gadjah Mada 10. dr. Irwan Supriyanto, SpKJ, psychiatrist and lecturer in Faculty of Medicine University of Gadjah Mada The advisory committee meetings were intended to gather the existing experts' outlook about collaboration between healthcare professionals and traditional and faith-based healers for mental health, as well as to scope/identify potential sites for the research. The following is a short summary of the discussions: 1. General acknowledgment of traditional and faith-based healing as first point of contact for most patients All psychiatrists, psychologists, members of the caregiving community, and other stakeholders in the advisory committee acknowledged that most patients with mental illnesses would go to traditional or faith-based healers first before accessing the biomedical practices for their mental illnesses, and that traditional and faith-based healers are an undeniable phenomenon in Indonesia. 2. Factors pushing patients and/or their family members seeking help from traditional and faith-based healing practitioners The presence of systemic failure of the national health insurance to fund inpatient care for mental illnesses (no longer than 14 days at one hospitalization period) forces unprepared families to have to provide care for their ill family members, and this pushes them to seek suitable ways for caregiving. In that situation, the widespread conditioning of tradition and faith would often be the source of answer for families, from the traditional concepts of what is illness to what is healing. one of the fundamental understanding of 'healing' for family members is when there is no longer aggression or threat to the surrounding or to the patient themselves. Patients also often find themselves feeling bored and saturated from going through routine medication or rehabilitation exercises that they became curious of alternative approaches, and also feel cornered to find hope in other healing practices, regardless of how literate they are about the biomedical explanation of mental illnesses. Often times, the relationship between mental health professionals and traditional or faith-based healers is not solely due to the inherent differences in their practices. Instead, oftentimes the wedge is driven by the different perception of mental illness and healing between patients and their family members. The main problem of mental health care to be stigma against the use of medicine for medication. Stigmatisation by the society against medication hinders not only mental health program implementers from promoting mental healthcare, but also hinders mental health professionals from collaborating with other stakeholders. This stigma is made worse by the lack of quality medication in community-based health care facilities, as well as the under-developed competencies of healthcare practitioners at the community level for mental health. 3. Potential benefits and risks Most advisory committee members attending the meeting declared that there is a risk of an overextended authority claimed by traditional or faith-based healers who viewed their practices uncritically. However, most also agree that the biggest potential benefit which may result from such collaboration is increased access to mental healthcare. 4. Forms of collaboration between healthcare professionals and traditional and faith-based healers for mental healthcare Based on the discussion in the advisory committee meetings, there are several forms of collaboration relationship envisioned. Firstly, is the integration of traditional/faith-based healers into stratified referral system. Secondly, is the integration of traditional/faith-based healers into the primary healthcare provision for mental health. Thirdly, is a relationship based on co-existence, where healthcare professionals and traditional/faith-based healers work on 'separate tracks'. Fourthly, is by identifying the stage(s) of mental healthcare in which traditional and faith-based healing will be useful for the patients' conditions. The fifth form is the involvement of leadership in large, often national-level organisations. Lastly, is the natural, personal approach, as proposed by dr. Mahar, which envision community-based health professionals to accrue the skills to critically appreciate and be grounded in the local community's worldview, traditions, and expectation, in order to obtain the trust to establish working relationship. |
| Year(s) Of Engagement Activity | 2019 |
| Description | Advisory group |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | 25 stakeholders participated in the maiden Advisory Group workshop in Accra on 12 April 2019. Workshop was co-facilitated with NGO and arts organisation partners in Ghana, as well as partner from the University of Ghana Department of Theatre Arts. Stakeholders included traditional/faith healers, persons with lived experience of mental illness, family members, mental health workers, media, NGOs, and policy makers. The Advisory Group was inaugurated on that day and will be engaged in developing the research methods and impact activities going forward. |
| Year(s) Of Engagement Activity | 2019 |
| Description | Advisory group |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Stakeholders invited to join inaugural workshop for advisory group in Ghana to be held on 12 April 2019. Stakeholders include traditional/faith healers, persons with lived experience of mental illness, family members, mental health workers, media, NGOs, policy makers. Workshop to be co-facilitated by NGO and arts organisation partners. About 12 potential participants invited and 8 accepted to date. Advisory group will be engaged in developing the research methods and impact activities going forward. |
| Year(s) Of Engagement Activity | 2019 |
| Description | Advisory group Ghana |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Advisory group with key stakeholders set up to advise on the study in Ghana First workshop held 12/04/19 before commencement of filming. Due to the pandemic the second workshop was held online to review the rough cut of the film. The first workshop was held at the University of Ghana. We took care to include people from the region where the fieldsite is located and to include representation across gender, education level and socio-economic status. The advisory group was held in Twi and English. At the suggestion of our partner at Nubuke Arts Foundation we employed Sarah Dzorgbadzi from the School of Performing Arts who facilitated in Twi. Participants included: People with lived experience of mental illness - 1 male, 1 female Family caregivers - 1 female 3 mental health workers - 2 female 1 nurse educator - male Healers - 2 male Mental Health Authority - 1 female Mental health and human rights NGO representatives - 1 male, 1 female Regional mental health co-ordinator - male Psychiatrist - female Participants provided advice on the following topics: • Factors informing treatment options • Challenges to collaboration • Who, what and where to film • Advantages and disadvantages of using film as a method • Best ways for healers and health workers to collaborate. Changes to the rough cut and ideas for screenings and dissemination |
| Year(s) Of Engagement Activity | 2019,2020 |
| Description | Arts-based and visual methodologies as tools for collaborative mental health research and human rights activism |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Workshop on using visual methods for human rights and mental health research and activism/advocacy at the annual conference of the Society for the Study of Psychiatry and Culture (SSPC). |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://psychiatryandculture.org/events/past-annual-meetings/ |
| Description | Arts-based and visual methods workshop (14 hours) at Universitas Airlangga (Surabaya, Indonesia) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Intensive workshop aimed to learn how to use arts-based and visual method for mental health research. Participants were presented several examples of visual outputs, including from the Together for Mental Health and Covid-19 projects, and methodological informations and where then asked to apply the learning by developing and presenting a visual research group project. |
| Year(s) Of Engagement Activity | 2023 |
| Description | Black Star International Film Festival, Ghana |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Screening of Nkabom: A Little Medicine, A Little Prayer at Black Star International Film Festival in Ghana |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://www.bsiff.org/ |
| Description | Colloquium presentation |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | A colloquium presentation about the benefits of using visual and participatory methods for mental health advocacy and activism in Ghana. Approximately 80 people attended and there were subsequent discussions about using similar methods for other projects in other African countries |
| Year(s) Of Engagement Activity | 2021 |
| Description | Conference presentation-World Federation of Mental Health Congress |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation of 'Together for Mental Health': A visual research to explore collaboration between mental health workers and healers to improve mental health care and reduce coercion and restraint in Ghana and Indonesia at the World Federation of Mental Health Congress (28 Jun 2022, London, UK) who was attended by academic and non-academic audiences who showed an increased interest in the topic as well as the methodology. |
| Year(s) Of Engagement Activity | 2022 |
| Description | Engagement via social media accounts |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Set up various social media accounts (Twitter, Facebook, Instagram) to engage with people in the digital space. Through these accounts, we have been able to provide up to date information on the progress of the project, to generate an interest in mental health promotion/advocacy through visual means, and to network with people/groups/organisations which share similar interests |
| Year(s) Of Engagement Activity | 2019,2020,2021,2022 |
| Description | Eye on Africa talk and film-screening |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | 30 academics and mental health practitioners, including community mental health nurses who were part of our research, attended a presentation and film screening by Dr Ursula Read and Dr Lily Kpobi. The talk was part of the Eye on Africa series for Michigan State University, African Studies Centre. Title of the talk: The interdependence of human rights in mental health in Ghana: why breaking the chains is not enough. The talk was followed by a discussion in which mental health nurses and psychiatrists from Ghana participated, alongside students, academics and researchers. The talk was subsequently posted on YouTube and circulated on mental health platforms used by Ghanaians and social media. |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://www.youtube.com/watch?v=1fMJWlVMTeQ&t=1134s |
| Description | Feedback on Film Rough-cut from Advisory Committee Meetings in Indonesia |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | The feedback forum was held on the 23rd and 24th of November, 2020, led by Diana Setiyawati, PhD. Two advisory group members from the ministry of health gave their feedback on the 23rd, and six advisory committee members participated in the 24th, including the Director of Mental Health from the Ministry of Health. Written feedbacks were collected via online form prior to the meeting and discussed more deeply during the group discussion forum. Both groups provided valuable feedback to improve the quality and impact of the film. |
| Year(s) Of Engagement Activity | 2020 |
| Description | Film festival screening |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | One of the visual outputs of the project, i.e. the full-lenght ethnographic documentary 'Harmoni: Healing together', was screened at the Picasso Einstein Buddha international film festival |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://filmfreeway.com/festivals |
| Description | Film festival screening |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | One of the visual outputs of the project, i.e. the full-lenght ethnographic documentary 'Harmoni: Healing together', was screened at a Essex Docfest film festival |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://filmfreeway.com/festivals |
| Description | Film festival screening |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | One of the visual outputs of the project, i.e. the full-lenght ethnographic documentary 'Harmoni: Healing together', was screened at an international film festival |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://filmfreeway.com/festivals |
| Description | Film festival screening |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | One of the visual outputs of the project, i.e. the full-lenght ethnographic documentary 'Nkabom: A little medicine, a little prayer', was screened at the Glocal Health Methods film festival |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://raifilm.org.uk/ |
| Description | Film festival screening |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | One of the visual outputs of the project, i.e. the full-lenght ethnographic documentary 'Harmoni: Healing together', was screened at Kalakan film festival |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://filmfreeway.com/festivals |
| Description | Film festival screening |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | The film "Harmoni: healing together' was sceened at at Castellabate Film Festival |
| Year(s) Of Engagement Activity | 2022 |
| URL | http://giannipetrizzo.com/castellabatefilmfestival/ |
| Description | Film festival screening |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Harmoni was shown in an international mainstream film festival 'kalakari film fest' |
| Year(s) Of Engagement Activity | 2022 |
| Description | Film festival screening |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | One of the visual outputs of the project, i.e. the full-lenght ethnographic documentary 'Harmoni: Healing together', was screened at the Glocal Health Methods film festival |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://raifilm.org.uk/ |
| Description | Film festival screening |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | One of the visual outputs of the project, i.e. the full-lenght ethnographic documentary 'Harmoni: Healing together', was screened at an international film festival |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://filmfreeway.com/festivals |
| Description | Film festival screening |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | One of the visual outputs of the project, i.e. the full-lenght ethnographic documentary 'Harmoni: Healing together', was screened at This is my Brave international film festival |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://filmfreeway.com/festivals |
| Description | Film festival screening |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Screening of one of our research-film to a general audience attending Love & Hope International Film Festival |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://www.lhifilmfestival.com/ |
| Description | Film festival screening- Royal Anthropological Institute Film Festival |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Nkabom: A little medicine. A little prayer was selected as part of this festival and selected for the prestigious Webner Award |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://raifilm.org.uk/ |
| Description | Film festival screening: Cinemaking International Film Festival |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Screening of our research documentary Nkabom in a mainstream festival |
| Year(s) Of Engagement Activity | 2022 |
| Description | Film festival screening: Society for Visual Anthropology Film and Media Festival |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Nkabom was screened in the most important visual anthropology festival in USA and one of the most important worldwide, giving access to a broad audience to our research outcomes |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://svafilmandmediafestival.org/ |
| Description | Film launch and discussion at CMB Humboldt University |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Screening and discussion of the Ghana film Nkabom at the international conference 'New perspectives in transcultural and post-colonial psychiatry', held in at the Centre Marc Bloch. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Film screening Birkbeck 12 October 2022 |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Film screening of Nkabom: A Little Medicine, A Little Prayer at Birkbeck, University of London followed by discussion with members of the research team and a religious leader from a Black majority church in London |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://www.eventbrite.co.uk/e/film-screening-nkabom-a-little-medicine-a-little-prayer-tickets-42908... |
| Description | Film screening Ghana Studies Association Conference July 2022 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Screening of Nkabom: A Little Medicine, A Little Prayer to attendees of Ghana Studies Association conference. Followed by discussion with research team members |
| Year(s) Of Engagement Activity | 2022 |
| Description | Film screening and discussion Accra, Ghana |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Screening of documentary Nkabom: A Little Medicine, A Little Prayer at St Barnabas Anglican Church, Osu, Accra, Ghana. The event was co-hosted with Mindfreedom Ghana. 32 people attended including members of the public, church members, representatives of mental health advocacy groups, people with lived experience of mental illness, caregivers, research participants and local media. The screening was followed by a discussion which was primarily in the Ga language. This involved questions and active discussion with the audience on the potential of collaboration with healers for mental health care, protecting the rights of people with psychosocial disabilities, how to access mental health support and reducing stigma. The discussion was co-facilitated by peer researchers with lived experience who had been trained as part of our research on the impact of COVID-19 on people with psychosocial disabilities. |
| Year(s) Of Engagement Activity | 2023 |
| Description | Film screening and discussion Nkoranza, Ghana |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Study participants or study members |
| Results and Impact | Screening of documentary Nkabom: A Little Medicine, A Little Prayer in Nkoranza, Ghana. 30 people attended including participants from the research (traditional healers, church leader, people with lived experience of mental illness, mental health workers, social worker, community philanthropist) and other stakeholders (local government, mental health workers/trainees and NGOs). The screening was followed by a discussion which was primarily in the Twi language. This involved questions and active discussion with the audience on collaboration with healers for mental health care, protecting the rights of people with psychosocial disabilities, how to access mental health support and reducing stigma. The discussion was co-facilitated by peer researchers with lived experience who had been trained as part of our research on the impact of COVID-19 on people with psychosocial disabilities. |
| Year(s) Of Engagement Activity | 2023 |
| Description | Film screening and guest lecture |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Undergraduate students |
| Results and Impact | Online screening of "Nkabom" ethnographic documentary followed by a guest lecture with undergraduate Social Work students at Sheffield University. |
| Year(s) Of Engagement Activity | 2022 |
| Description | Film screening at Kintampo College of Health & Wellbeing, Ghana |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Study participants or study members |
| Results and Impact | Screened the ethnographic documentary 'Nkabom' to study participants, mental health professionals, researchers, people with lived experience and carers. The screening was followed by a discussion of experiences and dissemination opportunities. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Films discussion |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Third sector organisations |
| Results and Impact | As part of the Mobilising Methods in Medical Anthropology Methods conference organized by the Royal Anthropology Institute, the Together for Mental Health films were screened and discussed with film-makers and general audience |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://www.therai.org.uk/conferences/mobilising-methods-in-medical-anthropology-2022/programme#time... |
| Description | Ghana Studies Association conference 18-20 July 2022. Panel: Mental Health in Ghana at the Crossroads |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Panel on mental health convened as part of Ghana Studies Association conference. Featured academics, students and practitioners from diverse disciplines from across Ghana and internationally Panel was co-hosted with research collaborators Dr Sarah Marks (Birkbeck) and Dr Lily Kpobi (University of Ghana) with Cecila Draicchio (Sapienza, Rome) and featured findings from several research projects. Presentations: Healing at the crossroads: Collaborations between mental health workers and traditional and faith-based healers in Ghana with Lily Kpobi (University of Ghana) Representation at a crossroads: challenges and opportunities for lived experience engagement in mental health in Ghana Therapy at the crossroads: tracing the emergence of psychological therapies in Ghana with Sarah Marks (Birkbeck) and Lily Kpobi (University of Ghana) |
| Year(s) Of Engagement Activity | 2022 |
| URL | http://ghanastudies.com/announcements/gsa-triennial-conferences/tamale-triennial/ |
| Description | Grant announcement in KCL GHSM newsletter |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Short piece published in newsletter of department of Global Health and Social Medicine, Kings College London newsletter. Announced grant award and topic of investigation. |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://www.kcl.ac.uk/ghsm/assets/kcl-ghsm-newsletter-winter-2018.pdf |
| Description | Grant announcement in Middlesex University newsletter and social media |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | In parternship with Middlesex media office we published a short piece announcing the two GCRF grants I was awarded (one as PI and one as Co-I). The announcement was published in the newsletter and website as well as throughMiddlesex and my own social media. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://www.mdx.ac.uk/news/2018/10/mdx-academic-wins-two-major-global-challenges-research-fund-grant... |
| Description | Guest lecture for MSc International Health & Tropical Medicine at Oxford University |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | A guest lecture on collaboration between mental health workers and traditional healers in resource-constrained contexts. Based on the ethnographic documentaries "Nkabom: A little medicine, a little prayer" and "Harmoni: Healing together". |
| Year(s) Of Engagement Activity | 2023 |
| Description | Inside Indonesia Magazine: "Priests, a grandmother and schizophrenia" |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | The article tells the finding of this project from Sikka Regency, Flores, where Catholic priests from the St. Camilus Order are collaborating with local health professionals in the care of people living with mental illness, especially those who were in restraint (Pasung). This article is written in both Indonesian language and in English. Inside Indonesia is an Australian based online magazine about Indonesia which is run by the Indonesian Resources and Information Program (IRIP). The magazine has always been one of the most lively platform of Indonesian academics and activists and international academics focusing on Indonesian contemporary issues that have high relevance to the popular discussion and policy discourse. The special edition on Mental Health, of which this article is a part, has attracted numerous attention from mental health practitioners and academics, as well as the general public. |
| Year(s) Of Engagement Activity | 2020 |
| URL | https://www.insideindonesia.org/priests-grandmothers-and-schizophrenia |
| Description | Interview for university news |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | Media office released a new about the research topic as well as a participatory video launched on the 19th march 2020 which was partially funded with this grant |
| Year(s) Of Engagement Activity | 2020 |
| URL | https://www.mdx.ac.uk/news/2020/02/breaking-the-chains |
| Description | Interview on local radio |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | Held discussion with local radio morning show host about community mental health in the district, the importance of understanding collaboration with traditional/faith healers, and the focus of our current research project |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://twitter.com/Together4MH/status/1134858937780658178 |
| Description | Lauching movie "Harmoni : Healing Together" Online |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | The academic discussion and movie launching Harmony: Healing Together |
| Year(s) Of Engagement Activity | 2021 |
| Description | Mad in America podcast |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | Podcast for Mad In America - discussed research activities and findings, methodological and theoretical approaches, ethical issues Mad in America is a well-regarded mental health advocacy/activist group - podcast was widely shared on social media and podcast platforms (e.g. Spotify) and posted on the Mad in America Twitter feed and webpage. |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://www.madinamerica.com/2021/08/rights-based-mental-health-social-exclusion-interview-ursula-re... |
| Description | News |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | An online news press release to publicize this award to the University blog subscribers and beyond |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://www.mdx.ac.uk/news/2021/10/mental-health-indonesia-harmoni-healing-together |
| Description | Nkabom Fim screening at SCCA Tamale |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | Conducted a screening of the ethnographic film 'Nkabom' at SCCA. Present were mental health professionals, service users, local artists and caregivers. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Online launch of Nkabom: A Little Medicine, A Little Prayer 24 March 2022 |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Launch of documentary Nkabom: A Little Medicine, A Little Prayer followed by discussion with research team. Watched by international audience |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://www.eventbrite.co.uk/e/launch-of-nkabom-a-little-medicine-a-little-prayer-tickets-2912369766... |
| Description | Panel discussion |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | The Together for Mental Health team was invited to take part in a panel discussion on Mental Health in Indonesia organized by the Australia National University (Canberra). In addition to the people attending the live event, over 600 people to date have watched the youtube recording of it https://www.youtube.com/watch?v=wooKw8vPfB4 |
| Year(s) Of Engagement Activity | 2021 |
| URL | http://asiapacific.anu.edu.au/cap-events/2021-10-14/mental-health-indonesia |
| Description | Participatory Action Research workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | Conducted a Participatory Action workshop to engage with service users, caregivers and other stakeholders to refine the research methods and context. The participants provided information which helped to shape our approach to fieldwork and analysis. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Participatory Video workshops |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Study participants, peer researchers and research team participated in a participatory video workshop where they learned about the method, and developed case studies to produce two participatory videos about thematic areas related to the research findings |
| Year(s) Of Engagement Activity | 2021 |
| Description | Participatory group |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Meetings of participatory group established in Accra and Kintampo, Ghana attended by 8-15 people with lived experience of mental illness, including members of patient advocacy groups (Mindfreedom and Psychosocial Africa) Meetings held in Kintampo in Dec 2018 and in Accra in Dec 2018 and March 2019. Informed group about research plans and opportunities for involvement in participatory videos. |
| Year(s) Of Engagement Activity | 2018,2019 |
| Description | Participatory video workshop with people with lived experience of mental illness and carers at Universitas Gadjah Mada (Yogyakarta, Indonesia) |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | This intensive workshop was facilitated by Erminia Colucci and a PhD candidate Sara Haragonics and funded by the Centre for Public Mental Health. Over 3 days, people with lived experience and some carers were supported in developing small groups'short films about mental health using examples and guidance from the participatory videos produced as part of the Together for Mental Health and Covid-19 projects. The workshop concluded with the screening of the resulting 4 short-films, which are owned by the participants and will be posted on the Movie-ment.org channels after approval. |
| Year(s) Of Engagement Activity | 2023 |
| Description | Participatory visual methods |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | As part of the Online Summer Lecture Series on Mental Health Issues in Pandemics 2020 by Center for Public Mental Health , Universitas Gadjah Mada, Indonesia, Colucci E.was invited to give a talk about 'Participatory visual methods' with a particular reference to this funded project. This was the first time that most of the participants learnt about this methodology. |
| Year(s) Of Engagement Activity | 2020 |
| Description | Planning meeting with Indonesia service users organization (KPSI) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | During a series of discussion in Jakarta (Indonesia), the PI engaged with KPSI lead and some members, a journalist and a local representative of a US-based psychological anthropology/film charity to develop an approach and strategy for the Indonesian participatory videos. The journalist has indicated interest to engage with local and international media throughout the project and the charity has agreed to involve a local college to work together with KPSI and the ESRC research team to engage students to develop short-films with KPSI members who have experienced confinement or restraint. A screening with discussion has been planned at the college in March, during another PI's visit, with the objective to engage the teachers and pupils in this college and plan next stage of the participatory video development. |
| Year(s) Of Engagement Activity | 2018 |
| Description | Politics, Power & Psychology debate |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Undergraduate students |
| Results and Impact | Dr Colucci (PI) and Dr Kpobi took part in a debate about the role of Psychology in politics and social justice issues with undergraduate Psychology students at Middlesex University London. The discussions with the other members in the debate and the students prompt important reflections that shifted views in several students, as they stated in the chat and by emails, around the role that psychologists can play in politics and social injustice. |
| Year(s) Of Engagement Activity | 2020 |
| Description | Premiere Warak Keruron: Healing the Mothers of Lost Souls (Indonesia, 27 min) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Together with the screening of Harmoni:Healing together, the Indonesian CO-I and the PI premiered the short film Warak Keruron: Healing the Mothers of Lost Souls (Indonesia, 27 min) based on the balinese film/fieldwork. The participants in the film and local politicians engaged in discussion about the project topic around healing and care |
| Year(s) Of Engagement Activity | 2023 |
| Description | Premiere of the italian version of 'Harmoni: Healing together' |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | The italian version of one of the two main research-films from this project was premiered in Rome with the support of various organizations including Regione Lazio (the regional government body) followed by Q&A with the film director Erminia Colucci (PI) and the previous and current heads of the Roma-3 psychiatric unit (Prof Alfredo Ancora and Antonino Colajanni) |
| Year(s) Of Engagement Activity | 2022 |
| Description | Presentation at International Visual Methods Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Presentation on Decolonising mental health care: Understanding collaborative mental health care in Ghana using visual research methods at the 7th International Visual Methods Conference. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Presentation at Royal Anthropological Institute Film Festival |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Presentation on lessons learned from the Together for Mental Health visual research project as part of the RAI Film Festival |
| Year(s) Of Engagement Activity | 2021 |
| Description | Presentation at Universitas Gadja Mada (Indonesia) Online Summer School |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | A presentation on the Together for Mental Health project at the 2022 Online Summer School of Universitas Gadja Mada. |
| Year(s) Of Engagement Activity | 2022 |
| Description | Presentation at Universitas Gadja Mada Online Summer School |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Postgraduate students |
| Results and Impact | A presentation on "Collaboration with traditional healers to strengthen mental health systems" at the 2022 Online Summer School of Universitas Gadja Mada. |
| Year(s) Of Engagement Activity | 2022 |
| Description | Preview of 'Breaking the chains: Anto's story' with discussion |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | preview screening of a participatory film partially funded by this grant followed by discussion. Media, film industry as well professional staff and students attended and participated in the debate |
| Year(s) Of Engagement Activity | 2020 |
| URL | http://middlesexpsychology.blogspot.com/2020/01/psychology-dept-research-seminar-13th.html |
| Description | Projiwa Short Film Festival |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Undergraduate students |
| Results and Impact | Projiwa Short Film Festival "Behind the Story of People with Schizophrenia" is a film festival held by Faculty of Psychology, Catholic University of Atma Jaya Jakarta in collaboration with Together for Mental Health Indonesia which screened for the first time the 11 short participatory videos created by participants of the Participatory Video Workshop in October 2019. Dr. Erminia Colucci, Mrs. Ninik Supartini (Elemental Productions), and Dr. Angela Oktavia Suryani (Dean of Faculty of Psychology, Catholic University of Atma Jaya Jakarta) were judges of the film festival competitions. The three winning films were creation of Stevani and Siti Anisah (title: My Pain, Schizophrenia, second runner up), Annisa Gifi and Ayna Alifia (Nuraga: Ayna's Story, first runner up), and Hadi Sucarsa and Yossi Meilisa (Hadi's Schizophrenia Story, first place). |
| Year(s) Of Engagement Activity | 2020 |
| URL | https://qswownews.com/understand-schizophrenia-disorders-through-film-festivals/ |
| Description | Screening of "Nkabom: A little medicine, a little prayer" at Wellcome Collection (London)- hybrid |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | On 18 October 2022, the Wellcome funded hub 'Land Body Ecologies' hosted the screening of Nkabom: A little medicine, a little prayer in the Forum of the Wellcome Collection. After the film there was a chance to reflect on the processes of visual and creative methodologies between a panel of speakers thinking about sound and film as data. We had an insightful discussion with Dr Erminia Colucci (Moderator and speaker) and speakers Ben Eaton, Dr Lily Kpobi, Lilian Maina, Dr Ursula Read and Anto (Agus) Sugianto connecting with us both in the UK, as well as from Indonesia, Ghana, Kenya and Pakistan. Together, we exchanged stories of mental health, the realities of collaboration between mental health nurses and local healers in communities, funding difficulties with mental health research, and more. |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://www.youtube.com/watch?v=p0Ngl1zSFCo |
| Description | Screening of Nkabom at Stellenbosch University |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Postgraduate students |
| Results and Impact | The documentary film, "Nkabom: A little medicine, a little prayer" was screened to postgraduate students from the Psychology Department at Stellenbosch University |
| Year(s) Of Engagement Activity | 2022 |
| Description | Seminar and film screening (hybrid) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The Wellcome Centre (at The University of Exeter) invited the PI to talk about the project and one of the films as part of the seminar 'Transcending Boundaries: Exploring the Intersection of Faith & Health'. In addition to lively discussion, participants have contacted the PI with request for further info and also to indicate impact of the event on their views |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://www.youtube.com/watch?v=lF0G_AGI9bE&t=3095s |
| Description | Steering Committee meetings |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | An international panel of 14th experts across sectors and disciplines (including academics, service providers and people with lived experience of mental illness) agreed to become part of the Together for Mental Health Steering Committee, which was formalized through a Terms of Reference document. The committee met regularly across the project for a total of 10 2-hours long discussions, which guided the research process and contributed to establish a network around this project and its implications. |
| Year(s) Of Engagement Activity | 2019,2020,2021 |
| Description | Symposium Presentation: Australian National University's College of Asia & the Pacific's School of Culture, History & Language - "INTERDISCIPLINARY PERSPECTIVES ON LANGUAGE, HEALTH AND WELLBEING IN ASIA AND THE PACIFIC" |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The interdisciplinary academic symposium presents researchers/research groups and invited speakers from around the world whose work were on the convergence of language and health-related behaviours, health care services, as well as health policies in countries in Asia and the Pacific. The virtual symposium was held on the 25th to the 27th November. Together for Mental Health Indonesia team was accepted to present "Operating 'Rwa Bhineda': Construction of Meanings in Collaboration of Pluralistic Healing Approaches for Mental Health in Denpasar, Bali". The discussion session received positive responses from the audience. |
| Year(s) Of Engagement Activity | 2020 |
| URL | http://chl.anu.edu.au/sites/default/files/events/attachments/2020-10/Language%20Health%20Wellbeing.p... |
| Description | Symposium presentation on using visual methods for mental health research in Ghana and Indonesia |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Symposium organised on using visual research methods to understand how health workers, families and healers work together to improve mental health and reduce coercion and restraint in Ghana and Indonesia at the annual conference of the Society for the Study of Psychiatry and Culture (SSPC). |
| Year(s) Of Engagement Activity | 2021 |
| Description | The Movie "Harmoni: Healing Together" become a regular teaching resource for mental health class at the Faculty of Psychology, Universitas Gadjah Mada |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | "300 undergraduate students regularly attend the mental health subject every year. The movie becomes a great resource that opens their understanding of the real conditions of Indonesia's mental health system. This movie always triggered deep reflections and discussions" |
| Year(s) Of Engagement Activity | 2021,2022,2023 |
| URL | https://youtu.be/GjTk9wyuHEY |
| Description | Together for Mental Health Online Preview |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The virtual event was held on the 1st of December, 2020. Moderated by Dr. Roberto Mezzina, the event previewed excerpts from the films which are the result of the study and discussed a snapshot of the findings from both Ghana and Indonesia, presented by Dr. Erminia Colucci, Dr. Diana Setiyawati, dr. Ade Prastyani, Dr. Lily Kpobi, and Dr. Ursula Read. More than 620 people registered for the event from around the world. Around 272 of them joined the event via Zoom. It was also live streamed on Youtube and gathered 125 viewers. Excerpt from Indonesia can be found at https://youtu.be/VxbayyyOPB8. Excerpt from Ghana can be found at https://youtu.be/nMNtZEqUxxA. |
| Year(s) Of Engagement Activity | 2020 |
| URL | https://www.youtube.com/watch?v=Bv4tHnzNxvw&t=59s |
| Description | Together for Mental Health Online Preview Event |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | During this online preview event, excerpts from the ethnographic fllms from Indonesia and Ghana were released as well as key preliminary findings. The event had a wide participation and raised interest towards the topic and the project as indicated by the engagement with the event on social media and follow up invitations to take part in other events. The Centre for Global Mental health (LSHTM) also selected this event in the Global Mental health best of 2020. |
| Year(s) Of Engagement Activity | 2020 |
| URL | https://movie-ment.org/2020/11/25/t4mh-online-preview-event/ |
| Description | Together for Mental Health films preview |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | A limited screening for the two ethnographic films.This served as a soft launch event before the more formal release of the films. It generated interest and discussion on mental health, human rights, visual research methods and advocacy. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Together for Mental Health: Ethnographic documentary and participatory visual methodologies to address the mental health crisis |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Symposium organization and presentation of four papers on Together for Mental Health by the UK, Ghana and Indonesia-based research teams with excerpts of the two ethnographic films for the Royal Anthropological Institute festival and conference |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://raifilm.org.uk/ |
| Description | Visual Research Method workshop at Universitas Negeri Padang (Sumatra, Indonesia) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Workshop (8 hours) on how to use visual research methods for mental health research, including presentation of methodology and key findings and screening of the films produced as outcomes of these projects |
| Year(s) Of Engagement Activity | 2023 |
| Description | Visual methods course with a focus on Asian countries |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Undergraduate students |
| Results and Impact | Funded by an Erasmus+ and in parternship with L'Orientale University in Naples, I held a course comprising of lectures, workshops and film screenings and debates on using visual methods in research, with a focus on Asian countries given that all students do research and internships in Asia. The debates were held with other film-makers and a journalist. |
| Year(s) Of Engagement Activity | 2019 |
| URL | http://docenti2.unior.it/index2.php?content_id=17832&content_id_start=1&ID_Utente=2816 |
| Description | Website |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Specific webpages dedicated to collect together and share the project outcomes as well as engage the audience through blogs and comments to the blogs |
| Year(s) Of Engagement Activity | 2019,2020,2021,2022 |
| URL | https://movie-ment.org/together4mh/ |
| Description | Workshop Research Ethic in MH fieldwork for Postgraduate Students at UGM |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | We taught students how to do research ethic in the fieldwork |
| Year(s) Of Engagement Activity | 2021,2022 |
| Description | Workshop on Participatory Video Production for Mental Health Advocacy |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | 12 members of the local Jakarta chapter of Indonesian Community Care for Schizophrenia (KPSI) organization, a national peer-support and advocacy group for mental illness, and 11 students and staff of Catholic University of Atma Jaya Jakarta, especially from the Faculty of Psychology, joined a two-day workshop on the principles of participatory visual method for mental health advocacy. Born out of the workshop was 11 short films produced from the collaboration of participants in the workshop. The 11 short films were screened for the first time in the Projiwa (Pekan Proyeksi Jiwa) Mental Health Film Festival on 17 January 2020, held by the Faculty of Psychology of Atma Jaya Catholic University in Jakarta. Three teams were declared winners of the festival. These three winners went on to submit their short films to the "Health for All Film Festival" held by the World Health Organization. In addition, the members of the winning team were invited as guests to the Indonesian radio broadcast 'RPKFM 96.30' talk show (https://www.youtube.com/watch?v=PWQurCXMYKY) |
| Year(s) Of Engagement Activity | 2020 |
| URL | https://qswownews.com/understand-schizophrenia-disorders-through-film-festivals/ |
| Description | Workshop on Research Ethics in Mental Health Fieldwork |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | The Workshop on Research Ethics in Mental Health Fieldwork was held virtually on the 5th of February 2021. It was attended by 85 participants from various professions in related areas including psychology, psychiatry, and pharmacy. Dr. Diana Setiyawati as the first speaker presented her lecture on the principles of research ethics in mental health, whereas Dr. Erminia Colucci in the second session discussed about research ethics in visual research methods, remarking Together for Mental Health project as one example. The event has raised the awareness of the importance of ethics in visual psychology as for some participants the knowledge is new. |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://youtu.be/-Inig5H_BVM |
| Description | Workshop on using visual methods for research on disability |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Postgraduate students |
| Results and Impact | Workshop on using visual methods in disability research conducted with MSc students at the Centre for Disability and Rehabilitation Studies, Stellenbosch University |
| Year(s) Of Engagement Activity | 2022 |
| Description | Writing workshop 25-27 Nov 2020 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | Writing workshop held for early career researchers and postgraduates alongside members of the research team. The writing workshop was attended by people from Ghana, Indonesia and Palestine. Professor Leslie Swartz, University of Stellenbosch, S Africa who chairs our steering committee provided tips on writing for publication. Dr Ursula Read then presented on academic writing skills and writing up qualitative findings. |
| Year(s) Of Engagement Activity | 2020 |