Administrative Data Research Centres 2018

Lead Research Organisation: Swansea University
Department Name: Institute of Life Science Medical School

Abstract

ADRCW will build on its achievements over the last four years, learning the lessons from both its work in Wales and its involvement with other UK components of the ADRN. With even closer cooperation with Welsh Government, enabled by new, much-needed investment in Wales' NSA, and with new funding to expand the operational remit of the SAIL Databank to cover non-health subjects and data, we will work in a new focussed way to deliver research benefits straight to government. In doing so, we will build up our data assets, already better than any other parts of the UK, and make them more convenient to access and use. We will take advantage of our existing, innovative, and widely used data sharing tools and platforms (e.g. National Research Data Appliances) to support data owners in sharing their data for research safely, simply, efficiently and regularly. We will also utilise our data access platforms (UKSeRP and SAIL Gateway) to allow access to the data by any researcher across the UK (subject to permissions and approvals). We will work hard to integrate our Centre into the emerging UK-wide model for ADRP, and play our part in facilitating access to potent data across the UK. Our centre will provide a seamless services to research users (where this is sensible) and take a full part in delivering strategic programmes of research set at a UK level. We will continue to support our current portfolio of projects, but will begin to steer project proposals coming from the research community at large towards topics that fit with Wales' and the UK's strategic governmental interests. Our engagement with the Welsh population regarding the secondary use of their data will continue, and feed into a research programme where we strive to develop and test ways of improving privacy in the work of our Centre and others like it. We will continue to support the next generation of big data social scientists, supporting them at undergraduate, postgraduate and doctoral levels by providing them opportunities to interact with real data on real project wherever possible. Our Strategic Impact Programmes (SIPs) in Education, Housing and Homelessness, Health and the Environment, Future Generations, and Emerging Governmental Priorities have been devised in partnership with Welsh Government and are hard wired into policy areas. These SIPs are designed to deliver impact, which we shall collate, share and promote as part of an efficient management and reporting approach operating right across the Centre, and harmonised across all the ESRC ADRP investments.

Planned Impact

The Collaboration for Welsh Administrative Data Research (CWAR) will seek to build on our existing outstanding record on achieving impact and will contribute to maximising the impact of ADRC projects and SIPs during the next phase of the ADR partnership across the UK. We propose a mixture of proven activities based on our previous experience and a new, wider set of activities to maximise impact. The Collaboration will be devoted to the successful delivery of a range of SIPs and, by utilising impact focused postholders based in both WG and ADRC, will provide the ability to capitalise on previous activity to build impact. The availability of UK datasets via the ONS will also add significantly to the impact of projects on a national and potentially global basis. This activity will be driven towards national strategy priorities and will secure senior commitment to this agenda. This will ensure that projects in Wales will have maximum exposure to senior influential individuals and thus the maximum opportunity to achieve impact.
Activities to Maximise Impact
We will seek to maximise impact at the UK level, within Welsh Government, across the wider Welsh public sector, and within the academic community. At all levels, we will work with the Strategic Hub and the wider partnership to maximise impact by developing and feeding into an Impact Working Group. The Centre believes that this will be key to maximising impact across the partnership, taking lessons learned from all partners and building them into a determined, explicit impact strategy, ensuring every project is fully exploited for impact opportunities.
Building on existing success: In the short term, we will maximise impact from existing projects. For these projects, senior officials and ministers are already thoroughly engaged, experienced, and have highly trained analysts in place. Existing research partners are familiar not only with complex data and analysis methods but also the challenges and opportunities of working with government.
Maximising the impact of new projects:
Funding as a lever provides the ability to bridge the gap between Government (Show me what you can do and I'll invest) and researchers (Invest and we'll show you what we can do). A huge strength of Wales' success to date has been the ability to run projects with significant potential to deliver impact and/or act as exemplars to encourage further investment/engagement.
Focus on national priorities is a critical pre-requisite for achieving impact within Welsh Government and beyond. Through our over-arching governance, we will ensure that research programmes are continuously tested against those priorities to identify opportunities for impact. We will use our Emerging Governmental Priorities SIP as a tool to identify and deliver rapid, impactful pieces of analysis in response to emerging policy requirements.
Impact Accelerator Fund: controlled jointly by ADRC-W and Welsh Government, which can be used either to match-fund investments by policy departments or fully fund small demonstrator projects.
Incentivise and reward: As part of our yearly evidence planning process, we will run an annual process where policy teams within Welsh Government are encouraged to submit proposals for the use of CWAR resources. Creating a level of informal competition is highly likely to draw out the best ideas with the highest level of senior engagement and potential impact. This ADR Partnership Policy Impact Prize could be operated for Wales or could be adopted at the UK level.
Ruthlessly exploiting relationships: We welcome the opportunity to build on the virtuous circle already developing in Wales, which is in no small part due to the ruthless exploitation of relationships with policy officials at all levels. As policy officials move posts, they will use their relationship with us to champion the cause of administrative data research in new posts and we therefore spread virally.

Publications

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Aitken M (2020) Why the Public Need a Say in How Patient Data are Used for Covid-19 Responses. in International journal of population data science

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Alrouh B (2019) Born into Care: characterising newborn babies and infants in care proceedings in England and Wales in International Journal of Population Data Science

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Bandyopadhyay A (2020) Behavioural difficulties in early childhood and risk of adolescent injury. in Archives of disease in childhood

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Bauermeister S (2020) The Dementias Platform UK (DPUK) Data Portal. in European journal of epidemiology

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Bejko D (2018) "To survey or to register" is that the question for estimating population incidence of injuries? in Archives of public health = Archives belges de sante publique

 
Title ADR Wales overview video 
Description Overview video demonstrating the work of the centre to date. Included quotes from several Cardiff/Swansea based PI/Co-Investigator colleagues, as well as quotes from senior Welsh Government staff involved in the project. 
Type Of Art Film/Video/Animation 
Year Produced 2019 
Impact Video format adopted by ADR UK Hub for its own products. Valuable resource developed for demonstrating the work of ADR Wales at events 
URL https://www.youtube.com/watch?v=v3I8FWELrHo
 
Title Flying Start infographic - Childcare analysis 
Description Infographic providing an overview of the key findings from the research on the Flying Start project (Childcare analysis) 
Type Of Art Image 
Year Produced 2019 
Impact Image shared online and available for dissemination digitally and at events 
URL https://twitter.com/ADR_Wales/status/1200054440658649089
 
Title Flying Start infographic - Emerging findings 
Description Infographic providing an overview of the key findings from the research on the Flying Start project (Emerging Findings report) 
Type Of Art Image 
Year Produced 2019 
Impact Image shared online and available for dissemination digitally and at events 
URL https://twitter.com/ADR_Wales/status/1164107469288816641
 
Title Flying Start research overview video 
Description Overview video of the ongoing Flying Start project work and its outputs 
Type Of Art Film/Video/Animation 
Year Produced 2019 
Impact Video format adopted by ADR UK Hub for its own products. Valuable resource developed for demonstrating the work of ADR Wales at events 
URL https://www.youtube.com/watch?v=A9LTpPf2TDc
 
Title Flying Start research overview video (CYMRAEG) 
Description Welsh translation - Overview video of the ongoing Flying Start project work and its outputs 
Type Of Art Film/Video/Animation 
Year Produced 2019 
Impact Video format adopted by ADR UK Hub for its own products. Valuable resource developed for demonstrating the work of ADR Wales at events 
URL https://www.youtube.com/watch?v=ysua4GaT_Jw
 
Title Fuel Poverty inforgraphic 
Description Infographic providing an overview of the key findings from the research on the Fuel Poverty project 
Type Of Art Image 
Year Produced 2019 
Impact Infographic shared on social media and available for dissemination digitally or at events 
URL https://twitter.com/ADR_Wales/status/1182569289984991232
 
Title Fuel Poverty research overview video 
Description Overview video of the ongoing Fuel Poverty project work and its outputs 
Type Of Art Film/Video/Animation 
Year Produced 2019 
Impact Video format adopted by ADR UK Hub for its own products. Valuable resource developed for demonstrating the work of ADR Wales at events 
URL https://www.youtube.com/watch?v=88FG8oN_QRw
 
Title Fuel Poverty research overview video (CYMRAEG) 
Description Welsh translation - Overview video of the ongoing Fuel Poverty project work and its outputs 
Type Of Art Film/Video/Animation 
Year Produced 2019 
Impact Video format adopted by ADR UK Hub for its own products. Valuable resource developed for demonstrating the work of ADR Wales at events 
URL https://www.youtube.com/watch?v=k8a-kdI9XfM
 
Description The investment in ADR has enabled a strong robust infrastructure to deliver policy informing outputs to government and many associated research groups and data investments. These are documented and reported to ADRUK's UKRI Programme board and are disseminated widely as case studies.

Apart from the main 2018-21 funded objectives of ADR in terms of delivering policy relevant research to government in areas such as education, the Covid-19 pandemic has also allowed ADR as a data infrastructure and research centre to vastly increase the pace of policy informing outputs an be highly reactive to government information needs in an national emergency.

In 'normal' times, there have often been long lead times from research requirement, data acquisition to policy informing output. However ADR Wales was able to operate both in its funded mode proactively supporting 7 strategic impact programmes, as well as a very fast reactive service in a national emergency. The value of this ability to increase speed whilst maintaining standards and governance has been a great asset thanks to UKRI investment in ADR Wales.
Exploitation Route We will be developing a case study on the Covid-19 response outlines above.
The outcomes of the current funding 2018-21 are being shared with other groups and government. The learning from them will be applied in the 2021-22 extension of the grant issued by UKRI.
Sectors Agriculture, Food and Drink,Communities and Social Services/Policy,Education,Environment,Healthcare,Leisure Activities, including Sports, Recreation and Tourism,Government, Democracy and Justice

URL https://www.adruk.org/about-us/our-partnership/adr-wales
 
Description In March 2020 ADR Wales was asked by Welsh Government TAG (Technical Advisory Group) to provide direct support to the pandemic response in Wales. ADR Wales partnered directly with other groups (HDRUK, Public Health Wales, NHS Wales, NHS Wales Informatics, Welsh Government) to form 'One Wales' The purpose of this group was to be able to amass capability and expertise to respond to the pandemic. This work continues in 2021. ADR Wales managed all data acquisition and three ADR Co investigators managed the research programme. Finding have been used by - the First Minister of Wales in televised public briefings - A wide range of research questions were answered with fast policy outputs produced that fed into both Welsh Government, Scottish Government and SAGE and have been referenced in Government reports. - ADR has developed the ability to undertake 'fast response' research that is governed, but can still acquire data at the start of the week, gain project approval and deliver an output at the end of a week. - As of 9th March 2021 ADR Wales is supporting 123 Covid projects supporting the pandemic response. - ADR provisioned data has been and continues to be used by many local governments, NHS trusts, UK Govt departments (Inc Office of the CMO and Office of the CSA) Updates on the Covid response are supplied to ESRC ADRUK. However, for the 2022 ResearchFish submission there will be a full breakdown of the Covid related activity that ADR Wales has undertaken once the group have reflected on the period.
First Year Of Impact 2020
Sector Digital/Communication/Information Technologies (including Software),Education,Environment,Healthcare,Pharmaceuticals and Medical Biotechnology
Impact Types Societal,Policy & public services

 
Description ADR NI Steering board
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Participation in a advisory committee
 
Description Chair Ministry of Justice Data First group
Geographic Reach National 
Policy Influence Type Influenced training of practitioners or researchers
Impact As Chair of the MoJ Data Group, Prof Ford is supporting the MoJ programme of collation and sharing of their UK data for policy informing research purposes. This has led to agreed data shares which are an important development.
URL https://www.adruk.org/our-work/browse-all-projects/data-first-harnessing-the-potential-of-linked-adm...
 
Description Contributed to Learned Society of Wales response to Protecting and Transforming Health and Wellbeing and Planetary Health (Welsh Government) and engagement with the One Health Cymru Steering Group (Learned Society of Wales, Bevan Commission, Future Generations Commissioner)
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Gave evidence to a government review
 
Description Contributed to public debates and evidence submission to Welsh Government's ban on smacking children
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Gave evidence to a government review
 
Description Geonomic Partnership Wales R&I group
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Membership of a guideline committee
Impact Advising on genomic data at a Welsh National level - governance, research equity, uses
 
Description HMCTS Reform Panel
Geographic Reach National 
Policy Influence Type Membership of a guideline committee
URL https://www.gov.uk/guidance/the-hmcts-reform-programme
 
Description ICES Data Canada Advisory committee
Geographic Reach North America 
Policy Influence Type Participation in a advisory committee
URL https://www.ices.on.ca/
 
Description Membership of Welsh Government COVID19 Technical Advisory Group
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Participation in a advisory committee
Impact Professor Lyons has been an integral and valued member of the Covid-19 Technical advisory Group, reporting to both TAG and SAGE and providing crucial intelligence to researchers, public health experts and government advisors, policy officials and decision makers. This has enabled Welsh Government to act at pace to evaluate both the direct and indirect impacts of Covid-19 on the Welsh population. His work has been instrumental in informing the modelling and data used to help understand and predict the developing situation of the disease in Wales. Professor Lyons has been an insightful and candid voice at TAG and has contributed considerably to the consensus statements and advisory briefings that are formed there including: • Technical Advisory Group: Viral Variant VOC-202012/01 • Technical Advisory Group: Policy Modelling - December 2020 and January 2021 • Technical Advisory Group: Situation Report on COVID-19 Cases and Clusters associated with Schools • Technical Advisory Group: Statement regarding non-pharmaceutical interventions in the pre-Christmas period • Technical Advisory Group: Contacts with primary and secondary healthcare prior to suicide: case-control whole-population based study using person-level linked routine data in Wales, UK, 2000-2017 • Technical Advisory Group: Consensus statement on face coverings • Technical Advisory Group: The coronavirus pandemic: identifying and meeting future evidence and research needs for Wales • Technical Advisory Group: Pre and post-Christmas restrictions, • Technical Advisory Group: NHS and Health Harms • SAGE: NPIs toolbox • Technical Advisory Group: Preparing for a challenging winter in Wales 2020/21 • Technical Advisory Group: Face Coverings Consensus Statement • Technical Advisory Group: The coronavirus pandemic - research and evidence needs • Data sharing to support risk assessment for Health Care Workers - COVID19
 
Description Membership of Welsh Government Covid-19 Technical Advisory group
Geographic Reach National 
Policy Influence Type Participation in a advisory committee
Impact Membership of the group as an expert panel member. Specific advice on Mental health effects of the pandemic
URL https://gov.wales/technical-advisory-cell/terms-reference
 
Description Minimum passing distance
Geographic Reach National 
Policy Influence Type Gave evidence to a government review
 
Description Police and Crime Commissioners
Geographic Reach National 
Policy Influence Type Implementation circular/rapid advice/letter to e.g. Ministry of Health
 
Description SAIL access to education data
Geographic Reach National 
Policy Influence Type Implementation circular/rapid advice/letter to e.g. Ministry of Health
 
Description Strategic Coordination of Health of the Public Research Committee (SCHOPR) to develop a set of public health research principles and goals to guide funding decisions
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Participation in a national consultation
 
Description UKRI Panel - Secure Data Service
Geographic Reach National 
Policy Influence Type Citation in systematic reviews
 
Description UKRI e-Infrastructure Group
Geographic Reach National 
Policy Influence Type Participation in a advisory committee
 
Description A Data Platform and Analytics Service (DPAS)
Amount £998,608 (GBP)
Organisation Nuffield Foundation 
Sector Charity/Non Profit
Country United Kingdom
Start 09/2018 
End 03/2023
 
Description AWISS 2020-2021
Amount £64,000 (GBP)
Organisation Public Health Wales NHS Trust 
Sector Public
Country United Kingdom
Start 04/2020 
End 03/2021
 
Description BREATHE
Amount £925,000 (GBP)
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 10/2019 
End 08/2022
 
Description Built Environments And Child Health in WalEs and AuStralia (BEACHES)
Amount $800,000 (AUD)
Funding ID MR/T039329/1 
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 05/2020 
End 05/2023
 
Description COVID19 epidemic policy simulations for Wales: Integrating spatial structure and routine linked health data for disease modelling
Amount £100,000 (GBP)
Organisation Government of Wales 
Sector Public
Country United Kingdom
Start 09/2020 
End 08/2021
 
Description Controlling COVID-19 through enhanced population surveillance and intervention (Con-COV): a platform approach
Amount £833,046 (GBP)
Funding ID MR/V028367/1 
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 08/2020 
End 07/2021
 
Description Data phenotyping longitudinal multimorbidity trajectories in cardiovascular disease: a statistical machine learning approach using nationwide electronic healthcare records
Amount £301,553 (GBP)
Organisation Alan Turing Institute 
Sector Academic/University
Country United Kingdom
Start 12/2019 
End 11/2022
 
Description Does local authority care make a difference to the lives of vulnerable children? Longitudinal analyses of a retrospective electronic cohort
Amount £153,855 (GBP)
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 10/2018 
End 03/2020
 
Description HDRUK
Amount £3,003,650 (GBP)
Funding ID NIWA1 
Organisation Health Data Research UK 
Sector Private
Country United Kingdom
Start 05/2018 
End 04/2023
 
Description International COVID-19 Data Alliance
Amount £300,000 (GBP)
Funding ID 2020.112 
Organisation Health Data Research UK 
Sector Private
Country United Kingdom
Start 11/2020 
End 06/2021
 
Description Measuring and Understanding Multimorbidity Using Routine Data in the UK
Amount £1,004,703 (GBP)
Funding ID CFC0110 
Organisation Health Data Research UK 
Sector Private
Country United Kingdom
Start 07/2019 
End 03/2023
 
Description National Core Studies (Infrastruture)
Amount £987,000 (GBP)
Organisation Health Data Research UK 
Sector Private
Country United Kingdom
Start 10/2020 
End 03/2021
 
Description Nuffield Foundation Justice Observatory
Amount £988,000 (GBP)
Organisation Nuffield Foundation 
Sector Charity/Non Profit
Country United Kingdom
Start 01/2019 
End 06/2023
 
Description Population Health Information Research Infrastructure - PHIRI (Mobilisation of Research infrastructure for the COVID-19 Public Health Emergency)
Amount € 5,000,000 (EUR)
Funding ID Horizon 2020-IBA-INFRA-CORONA-2020 
Organisation European Commission 
Sector Public
Country European Union (EU)
Start 11/2020 
End 10/2023
 
Description Secondary Data Analysis Intitiative (Katy Huxley)
Amount £201,000 (GBP)
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 11/2019 
End 03/2021
 
Description Secure Anonymised Information Linkage Databank (SAIL).
Amount £4,837,844 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 04/2020 
End 03/2025
 
Description Senior Research Leaders award 2020-2021
Amount £15,000 (GBP)
Funding ID SRL-19-06 
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 04/2020 
End 03/2021
 
Description The epidemiology, healthcare and societal cost of Melanoma in Wales: Analyses of standalone and linked national databases
Amount £7,706 (GBP)
Funding ID TIG2019-08 
Organisation Tenovus Cancer Care 
Sector Charity/Non Profit
Country United Kingdom
Start 04/2019 
End 03/2021
 
Description UKRI Innovation / Rutherford Fund Fellowships at HDR UK
Amount £560,000 (GBP)
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 02/2018 
End 02/2021
 
Description WG Matched Funding for WISERD Education Data Lab (with Chris Taylor)
Amount £180,000 (GBP)
Organisation Government of Wales 
Sector Public
Country United Kingdom
Start 10/2019 
End 03/2021
 
Description WGP - Public attitudes and governance
Amount £130,347 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 03/2020 
End 03/2023
 
Description Wales Covid Evidence Centre
Amount £292,284 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 03/2021 
End 05/2022
 
Title Data Concept Library 
Description Development of a library of sharable code for new and existing researchers to utilise and share. 
Type Of Material Improvements to research infrastructure 
Year Produced 2020 
Provided To Others? Yes  
Impact Shared code has been utilised by researchers across a wide range of data investments (UKRI, Welsh Government, Nuffield funded and many more) 
 
Title Data quality assessment tool 
Description An automated tool has been developed that give a robust quality assessment of data before it is provisioned. This allows any negative elements in the data (such as incompleteness) to either be corrected (if possible) or the researcher made aware of the quality of the data. 
Type Of Material Improvements to research infrastructure 
Year Produced 2019 
Provided To Others? Yes  
Impact It has allowed data to be assessed much more closely before provisioning ensuring that the maximum research equity is obtained from the data. 
 
Title MetadataWorx - Metadata development for all data assets 
Description Work was undertaken (led by HDR) and an external organisation (MetadataWorx) to improve and standardise metadata related to the data holdings of TREs 
Type Of Material Improvements to research infrastructure 
Year Produced 2020 
Provided To Others? Yes  
Impact Standardised work made metadata more accessible to researchers and also the standardisation across TREs had been of benefit. 
 
Title Welsh Education Metadata 
Description Creation of a metadata spreadsheet to detail all education data available in Wales, to aid researchers in understanding the education data available 
Type Of Material Improvements to research infrastructure 
Year Produced 2020 
Provided To Others? Yes  
Impact Provided knowledge and understanding of data and codes for at least 10 researchers. Direct impact of the work yet to be determined 
 
Title Welsh Government UKSeRP 
Description Provision of UKSeRP secure data analysis infrastructure to the Welsh Government team for use across a range of their projects 
Type Of Material Improvements to research infrastructure 
Year Produced 2019 
Provided To Others? Yes  
Impact Welsh Government are assessing the capabilities that the platform offers them and are in the process of planning research projects that will benefit greatly from the project 
 
Title ADDD 
Description Covid rapid response data 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact ADR Wales acquisition of Covid datasets has supported a range of projects informing policy and care decisions across government (local and national) and the NHS. Collectively, Covid datasets have supported SAIL, ADR Wales and HDR UK in informing the Chief Medical Officer, SAGE, SPI-M and senior NHS decision makers 
 
Title CDDS 
Description Covid rapid response data 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact ADR Wales acquisition of Covid datasets has supported a range of projects informing policy and care decisions across government (local and national) and the NHS. Collectively, Covid datasets have supported SAIL, ADR Wales and HDR UK in informing the Chief Medical Officer, SAGE, SPI-M and senior NHS decision makers 
 
Title CENW 
Description Covid rapid response data 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact ADR Wales acquisition of Covid datasets has supported a range of projects informing policy and care decisions across government (local and national) and the NHS. Collectively, Covid datasets have supported SAIL, ADR Wales and HDR UK in informing the Chief Medical Officer, SAGE, SPI-M and senior NHS decision makers 
 
Title CVSP 
Description Covid rapid response data 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact ADR Wales acquisition of Covid datasets has supported a range of projects informing policy and care decisions across government (local and national) and the NHS. Collectively, Covid datasets have supported SAIL, ADR Wales and HDR UK in informing the Chief Medical Officer, SAGE, SPI-M and senior NHS decision makers 
 
Title CVST 
Description Covid rapid response data 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact ADR Wales acquisition of Covid datasets has supported a range of projects informing policy and care decisions across government (local and national) and the NHS. Collectively, Covid datasets have supported SAIL, ADR Wales and HDR UK in informing the Chief Medical Officer, SAGE, SPI-M and senior NHS decision makers 
 
Title Cafcass 
Description ADRWales undertook the acquisition of Cafcass (Children and Family Court Advisory and Support Service Wales) data. Successfully acquired and will be utilised by Early Years SIP as well as Nuffield Family Justice Data Platform 
Type Of Material Database/Collection of data 
Year Produced 2019 
Provided To Others? Yes  
Impact Increasing the research value of the overall datasets available to the ADR Wales/ADRU Welsh Government research teams. This in turn contributes to further engagements, collaborative opportunities and impact on policy (tracked separately in other ResearchFish sections) 
 
Title Careers Wales Data 
Description Data of all post 16 Careers advice and support in Wales 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact Currently being utilised to look at post 16 career choices and the structure of careers advice outcomes 
 
Title Census 2011 (Wales specific) 
Description Copy of the Wales extract of 2011 Census from ONS (Provisioned only under DEA accreditation process) 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact Impacts to be reported in 2022 submission 
 
Title Children receiving care and support 
Description Critical dataset for research on effects of Local Authority care on child outcomes 
Type Of Material Database/Collection of data 
Year Produced 2019 
Provided To Others? Yes  
Impact Increasing the research value of the overall datasets available to the ADR Wales/ADRU Welsh Government research teams. This in turn contributes to further engagements, collaborative opportunities and impact on policy (tracked separately in other ResearchFish sections) 
 
Title Children's Social Care dataset 
Description New pre 2016 Welsh Gov Children's Social Care dataset 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact Increasing the research value of the overall datasets available to the ADR Wales/ADRU Welsh Government research teams. This in turn contributes to further engagements, collaborative opportunities and impact on policy (tracked separately in other ResearchFish sections) 
 
Title DSRD 
Description Covid rapid response data 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact ADR Wales acquisition of Covid datasets has supported a range of projects informing policy and care decisions across government (local and national) and the NHS. Collectively, Covid datasets have supported SAIL, ADR Wales and HDR UK in informing the Chief Medical Officer, SAGE, SPI-M and senior NHS decision makers 
 
Title EDDD 
Description Covid rapid response data 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact ADR Wales acquisition of Covid datasets has supported a range of projects informing policy and care decisions across government (local and national) and the NHS. Collectively, Covid datasets have supported SAIL, ADR Wales and HDR UK in informing the Chief Medical Officer, SAGE, SPI-M and senior NHS decision makers 
 
Title Family Man, Courts Data 
Description MOJ Discussions underway for data that is being made available under Data First programme- courts data, Family man etc. 
Type Of Material Database/Collection of data 
Year Produced 2021 
Provided To Others? No  
Impact Increasing the research value of the overall datasets available to the ADR Wales/ADRU Welsh Government research teams. This in turn contributes to further engagements, collaborative opportunities and impact on policy (tracked separately in other ResearchFish sections) 
 
Title Gypsy and Travellers Caravan Count 
Description Gypsy and Travellers Caravan Count data has been uploaded into SAIL. 
Type Of Material Database/Collection of data 
Year Produced 2019 
Provided To Others? Yes  
Impact Increasing the research value of the overall datasets available to the ADR Wales/ADRU Welsh Government research teams. This in turn contributes to further engagements, collaborative opportunities and impact on policy (tracked separately in other ResearchFish sections) 
 
Title HSAR 
Description Major Housing Stock Analytical Resource (HSAR) files uploaded to ADR Wales WG UKSeRP 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact Increasing the research value of the overall datasets available to the ADR Wales/ADRU Welsh Government research teams. This in turn contributes to further engagements, collaborative opportunities and impact on policy (tracked separately in other ResearchFish sections) 
 
Title HWRA 
Description Covid rapid response data 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact ADR Wales acquisition of Covid datasets has supported a range of projects informing policy and care decisions across government (local and national) and the NHS. Collectively, Covid datasets have supported SAIL, ADR Wales and HDR UK in informing the Chief Medical Officer, SAGE, SPI-M and senior NHS decision makers 
 
Title Hwb 
Description HwB is the online learning platform for pupils in Wales and this dataset offers the potential for analysing the extent of virtual learning accessed by pupils during lockdown 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact Increasing the research value of the overall datasets available to the ADR Wales/ADRU Welsh Government research teams. This in turn contributes to further engagements, collaborative opportunities and impact on policy (tracked separately in other ResearchFish sections) 
 
Title ICNC 
Description Covid rapid response data 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact ADR Wales acquisition of Covid datasets has supported a range of projects informing policy and care decisions across government (local and national) and the NHS. Collectively, Covid datasets have supported SAIL, ADR Wales and HDR UK in informing the Chief Medical Officer, SAGE, SPI-M and senior NHS decision makers 
 
Title MoJ Prisoner Data 
Description In discussions with Ministry of Justice, SAIL colleagues and the Mental Health SIP lead, Professor Ann John, over the acquisition of prisoner data to enable research on the health of prisoners. Discussions positive. Police and crime commisoner x4 agreement. Jan 2020. Discussions ongoing with AJ, KH and MoJ. Feb 2021 - Imminent signing of agreement for data on prison population, also in discussions re data that is being made available under Data First programme- courts data, Family man etc. 
Type Of Material Database/Collection of data 
Year Produced 2021 
Provided To Others? No  
Impact Increasing the research value of the overall datasets available to the ADR Wales/ADRU Welsh Government research teams. This in turn contributes to further engagements, collaborative opportunities and impact on policy (tracked separately in other ResearchFish sections) 
 
Title NHSO 
Description Covid rapid response data 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact ADR Wales acquisition of Covid datasets has supported a range of projects informing policy and care decisions across government (local and national) and the NHS. Collectively, Covid datasets have supported SAIL, ADR Wales and HDR UK in informing the Chief Medical Officer, SAGE, SPI-M and senior NHS decision makers 
 
Title NPD 
Description NPD data for Wales uploaded to SAIL with Welsh Examinations Database. 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact Increasing the research value of the overall datasets available to the ADR Wales/ADRU Welsh Government research teams. This in turn contributes to further engagements, collaborative opportunities and impact on policy (tracked separately in other ResearchFish sections) 
 
Title PATD 
Description Covid rapid response data 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact ADR Wales acquisition of Covid datasets has supported a range of projects informing policy and care decisions across government (local and national) and the NHS. Collectively, Covid datasets have supported SAIL, ADR Wales and HDR UK in informing the Chief Medical Officer, SAGE, SPI-M and senior NHS decision makers 
 
Title PLASC 
Description NPD, HESA, PLASC data made available for Education Data Lab (funded by ESRC and WG). 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact Increasing the research value of the overall datasets available to the ADR Wales/ADRU Welsh Government research teams. This in turn contributes to further engagements, collaborative opportunities and impact on policy (tracked separately in other ResearchFish sections) 
 
Title SWAC 
Description School Workforce Annual Census 
Type Of Material Database/Collection of data 
Year Produced 2019 
Provided To Others? Yes  
Impact Increasing the research value of the overall datasets available to the ADR Wales/ADRU Welsh Government research teams. This in turn contributes to further engagements, collaborative opportunities and impact on policy (tracked separately in other ResearchFish sections) 
 
Title UK Level HESA 
Description First UK level dataset has been uploaded to SAIL: Higher Education Statistics Agency data. This is the first new UK level dataset which will be made available to researchers across the UK. This will support projects on the labour market, and work of work, and education sectors. Academics and researchers are very excited! NPD, HESA, PLASC data made available for Education Data Lab (funded by ESRC and WG). 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact Increasing the research value of the overall datasets available to the ADR Wales/ADRU Welsh Government research teams. This in turn contributes to further engagements, collaborative opportunities and impact on policy (tracked separately in other ResearchFish sections) 
 
Title Understanding and responding to COVID19 in Wales: protocol for a privacy protecting data platform for enhanced epidemiology and evaluation of interventions 
Description Development of a total population platform to help control the COVID19 pandemic 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact Analyses from this dataset has informed Welsh Government COVID19 Technical Advisory Group and SAGE on the development of the pandemic, transmission in care homes and schools and the effectiveness of countermeasures 
URL https://bmjopen.bmj.com/content/bmjopen/10/10/e043010.full.pdf
 
Title WASD 
Description Covid rapid response data 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact ADR Wales acquisition of Covid datasets has supported a range of projects informing policy and care decisions across government (local and national) and the NHS. Collectively, Covid datasets have supported SAIL, ADR Wales and HDR UK in informing the Chief Medical Officer, SAGE, SPI-M and senior NHS decision makers 
 
Title WDDS 
Description Covid rapid response data 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact ADR Wales acquisition of Covid datasets has supported a range of projects informing policy and care decisions across government (local and national) and the NHS. Collectively, Covid datasets have supported SAIL, ADR Wales and HDR UK in informing the Chief Medical Officer, SAGE, SPI-M and senior NHS decision makers 
 
Title WEDL Database 
Description Amalgamation of education records held within SAIL Databank to create analytical data base 
Type Of Material Database/Collection of data 
Year Produced 2019 
Provided To Others? No  
Impact Not yet known - the funding award was recent, but the additional research capacity within the ADR Wales Skills and Employability SIP provides an opportunity for an even broader range of impactful research attributable to ADR Wales 
 
Title WLGP 
Description Covid rapid response data 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact ADR Wales acquisition of Covid datasets has supported a range of projects informing policy and care decisions across government (local and national) and the NHS. Collectively, Covid datasets have supported SAIL, ADR Wales and HDR UK in informing the Chief Medical Officer, SAGE, SPI-M and senior NHS decision makers 
 
Description CAFCASS 
Organisation Children and Family Court Advisory and Support Service
Country United Kingdom 
Sector Public 
PI Contribution ADR Wales commit to undertake policy impact driven data research using provided datasets linked with additional data assets
Collaborator Contribution Provision of public and private law case management system data from CAFCASS Wales. Provision of case file data from CAFCASS England.
Impact Research is ongoing with data provision from CAFCASS Wales, whilst discussions around the use of case data (CAFCASS England provision) are ongoing
Start Year 2019
 
Description Creation of OneWales team to maximise production of policy relevant research to Welsh Government 
Organisation Government of Wales
Country United Kingdom 
Sector Public 
PI Contribution Our HDRUK and ADRUK funded analysts working in collaboration with colleagues at Public Health Wales NHS Trust and Swansea and Cardiff universities provide frequent analysed of data on the evolving COVID19 pandemic in Wales to Welsh Government COVID19 Technical Advisory Group and subgroups
Collaborator Contribution Contribution of funding for additional analyses and expertise from many areas of Government to help define and answer policy relevant questions
Impact Multiple outputs available at: https://gov.wales/publications?field_external_organisations%5B30180%5D=30180
Start Year 2020
 
Description Healthwise Wales 
Organisation Cardiff University
Country United Kingdom 
Sector Academic/University 
PI Contribution ADR has supported the development of the HWW national survey data to be used as a consented cohort in their research. Knowledge exchange
Collaborator Contribution Supply of their data for use by other researchers
Impact Collaboration supports the provision of data to external projects rather than actual inclusion in the research being undertaken.
Start Year 2020
 
Description MCS - UCL 
Organisation University College London
Country United Kingdom 
Sector Academic/University 
PI Contribution ADR Wales commit to undertake policy impact driven data research using provided datasets linked with additional data assets
Collaborator Contribution Provision of agreed MCS datasets. The study began in 2000 and is conducted by the Centre for Longitudinal Studies (CLS), it aims to chart the conditions of social, economic and health advantages and disadvantages facing children born at the start of the 21st Century.
Impact Research using provisioned data is ongoing
Start Year 2019
 
Description ONS Data Provision 
Organisation Office for National Statistics
Country United Kingdom 
Sector Private 
PI Contribution ADR Wales commit to undertake policy impact driven data research using provided datasets linked with additional data assets
Collaborator Contribution Providing users the opportunity to make online researcher and project accreditation applications under the DEA, and enable researchers to make change requests to their projects. The facility to request output clearances, data ingests and software will only be available for projects in the SRS, in RAS at this time. The research project application process will enable researchers to select a data access processor in RAS on the basis of the data they have selected for their research. A number of ONS data owners have indicated that they are happy to make their secure data available for research via all DEA accredited data access (provision) processors. SAIL is one of these. This has opened up a vast range of opportunities for data acquisition
Impact DEA accreditation confirmed following ONS site visit and audit response.
Start Year 2019
 
Description WEFO data 
Organisation Government of Wales
Department Welsh European Funding Office
Country United Kingdom 
Sector Public 
PI Contribution ADR Wales commit to undertake policy impact driven data research using provided datasets linked with additional data assets
Collaborator Contribution Provision of 2007-2013 European Social Fund data.
Impact Provision of 2007-2013 European Social Fund data.
Start Year 2019
 
Description ZOE 
Organisation ZOE Global Ltd
Country United Kingdom 
Sector Private 
PI Contribution The organisation provides the ZOE team with infrastructure to host their Covid Symptom Tracker dataset at no cost. Additionally, the team fully support the governance arrangements around this dataset and manage the data access process, from application through to provisioning.
Collaborator Contribution ZOE provide their Covid-19 Symtpom Tracker data and daily updates for the SAIL platform to host. This data is not owned by SAIL, but is entrusted to them for provisioning to external researchers following an application and governance process
Impact Multiple internal and external projects using the dataset have informed decisions and policy making plans at a government and national NHS level
Start Year 2020
 
Title DAPPA (Data Assets Project Programme Administration) In house developed MIS sysem for management and monitoring of all data and project systems 
Description Using PowerBI, the team transitioned distributed un joined systems that were only accessible by sole users into a web based accessible dashboard that has feeds from multiple areas such as data acquisition, provisioning, researcher numbers. It is now the primary MIS system ADR uses. 
Type Of Technology e-Business Platform 
Year Produced 2020 
Impact Much better monitoring of systems and processes Negates the relaince on single staff members (who previously owned Excel type systems inaccessible to other staff) Allows management of performance and performance reporting Shows capacity management and efficiency for specific areas (each system has a time response criteria eg 'within 5 days) 
 
Title Data Catalogue 
Description Oxford Data Catalogue based - Supports the management and access of available data to potential users. 
Type Of Technology Webtool/Application 
Year Produced 2020 
Impact Much better access for potential researchers to see data holdings Entries can be ported and shown on other catalogues (such as HDR Gateway) 
URL https://saildatabank.com/saildata/sail-datasets/
 
Title GP Data Reporting 
Description New Reports and software to compute GP data summary information 
Type Of Technology Software 
Year Produced 2020 
Impact More timely information about GP data uploads now available 
 
Title Lee Au-Yeung - Automated data upload for WRRS 
Description New software to automate the upload of WRRS pathology data to SAIL 
Type Of Technology Software 
Year Produced 2018 
Impact Software is able to complete a full refresh in 2 days, if this was done manually, this would take about 4 weeks. 
 
Title Lee Au-Yeung - Data Processing tool for NWIS 
Description New data processing service to automate upload of NHS Wales Warehouse Datasets to SAIL and perform uploading via scheduler 
Type Of Technology Software 
Year Produced 2018 
Impact Reduced upload processing time for 12 datasets from 10 days to 3 days. 
 
Description Mission 3 (Data and collaboration) of the Digital Strategy for Wales blog 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Glyn Jones' blog outlining Mission 3 (Data and collaboration) of the Digital Strategy for Wales.
Year(s) Of Engagement Activity 2021
URL https://digitalanddata.blog.gov.wales/2021/01/05/digital-strategy-for-wales-mission-3-data-and-colla...
 
Description Public Health Wales Homelessness Prevention presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact Public Health Wales Homelessness Prevention presentation by Dr Pete Mackie. Invited to present on homelessness prevention at Public Health Wales event for health and homelessness sectors.
Year(s) Of Engagement Activity 2020
 
Description 03/07/2020 - New approaches to data analytics in the COVID era. Invited plenary, Health Services Research UK 2020 Annual Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact New approaches to data analytics in the COVID era. Invited plenary, Health Services Research UK 2020 Annual Conference, 03/07/20.
Year(s) Of Engagement Activity 2020
 
Description 04/09/2020 - Analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. SAIL Consumer Panel 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact Analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. SAIL Consumer Panel, 04/09/20
Year(s) Of Engagement Activity 2020
 
Description 04/09/2020 - Analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. Welsh Government COVID19 Technical Advisory Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. Welsh Government COVID19 Technical Advisory Group, 04/09/20.
Year(s) Of Engagement Activity 2020
 
Description 08/07/2020 - Controlling COVID19 through enhanced population surveillance and intervention (Con-COV): a platform approach. First Minister's BAME (Black Asian and Minority Ethnic) Advisory Group 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Controlling COVID19 through enhanced population surveillance and intervention (Con-COV): a platform approach. First Minister's BAME (Black Asian and Minority Ethnic) Advisory Group, 08/07/20.
Year(s) Of Engagement Activity 2020
 
Description 09/11/2020 - Contribution to BBC Wales Investigates programme on the impact of COVID19 on the Welsh population. 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Contribution to BBC Wales Investigates programme on the impact of COVID19 on the Welsh population, 09/11/20. See links to coverage below:

BBC Wales Investigates - https://www.bbc.co.uk/news/uk-wales-54808693

Programme available: https://www.bbc.co.uk/iplayer/episode/m000pfhy/bbc-wales-investigates-the-hidden-cost-of-covid
Year(s) Of Engagement Activity 2020
URL https://www.bbc.co.uk/news/uk-wales-54808693
 
Description 16/02/2021 - SARS-CoV-2 vaccination by ethnicity update. First Minister's BAME (Black Asian and Minority Ethnic) Advisory Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact SARS-CoV-2 vaccination by ethnicity update. First Minister's BAME (Black Asian and Minority Ethnic) Advisory Group, 16/02/21.
Year(s) Of Engagement Activity 2021
 
Description 17/05/2020 - HDRUK Public Health Research Strategy, HDRUK International Scientific Advisory Board 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact HDRUK Public Health Research Strategy, HDRUK International Scientific Advisory Board, 17/05/20.
Year(s) Of Engagement Activity 2020
 
Description 17/06/2020 - Public Health Research at HDRUK. International Scientific Advisory Board 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Public Health Research at HDRUK. International Scientific Advisory Board, 17/06/20.
Year(s) Of Engagement Activity 2020
 
Description 17/11/2020 - Update on analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. Welsh Government COVID19 Technical Advisory Group 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Update on analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. Welsh Government COVID19 Technical Advisory Group, 17/11/20.
Year(s) Of Engagement Activity 2020
 
Description 18/11/2020 - COVID19 and ethnicity in Wales - findings from linked data. First Minister's BAME (Black Asian and Minority Ethnic) Advisory Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact COVID19 and ethnicity in Wales - findings from linked data. First Minister's BAME (Black Asian and Minority Ethnic) Advisory Group, 18/11/20.
Year(s) Of Engagement Activity 2020
 
Description 19/01/2021 - Analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. School bubbles analysis. Welsh Government COVID19 Technical Advisory Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. School bubbles analysis. Welsh Government COVID19 Technical Advisory Group, 19/01/2021.
Year(s) Of Engagement Activity 2021
 
Description 19/10/2020 - Data-driven approaches at the heart of understanding multiple long term conditions - harnessing existing assets and creating new ones. Academy of Medical Sciences Forum on multiple long term conditions 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Data-driven approaches at the heart of understanding multiple long term conditions - harnessing existing assets and creating new ones. Academy of Medical Sciences Forum on multiple long term conditions, 19/10/20.
Year(s) Of Engagement Activity 2020
 
Description 2019.01.11 - NWIS NDR Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Discussion with NWIS around collaborative opportunities with NDR development
Year(s) Of Engagement Activity 2019
 
Description 2019.01.22 - ONS SIP development roadshow 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Planning session with ONS and ADR Wales colleagues to develop Welsh SIPs and guide national data acquisition strategy
Year(s) Of Engagement Activity 2019
 
Description 2019.01.28 - Legal Needs project advisory group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact ADR Wales participation on the Legal Needs advisory group - collaboration between Swansea University and UCL to identify service gaps in Welsh legal needs through data research
Year(s) Of Engagement Activity 2019
 
Description 2019.02.01 - Leadership Committee 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Committee to support close collaboration between the accountable leads within the ADR partner organisations.
Year(s) Of Engagement Activity 2019
 
Description 2019.02.04 - Lecturing PMIM 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Postgraduate students
Results and Impact Teaching delivery to postgraduate students (PMIM)
Year(s) Of Engagement Activity 2019
 
Description 2019.02.08 - HCRW Centre & Unit Leads Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Study participants or study members
Results and Impact Discussion on collaborative working with Health and Care Research Wales Centre and Unit leads
Year(s) Of Engagement Activity 2019
 
Description 2019.02.11 - HCRW Infrastructure call w/ Donald Forrester 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Discussion on children social care data with Prof Donald Forrester, Director of CASCADE at Cardiff University
Year(s) Of Engagement Activity 2019
 
Description 2019.02.11 - SAIL & Social Care Research call w/ Lisa Trigg 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Discussion on opportunities with Lisa Trigg, Assistant Director at Social Care Wales.
Year(s) Of Engagement Activity 2019
 
Description 2019.02.12 - Exascale Science Board Teleconference 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Regular meetings to understand researcher requirements and to assess if supercomputing techniques could assist
Year(s) Of Engagement Activity 2019
 
Description 2019.02.13 - GSK: clinical imaging analytics 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Industry/Business
Results and Impact Explore potential for collaborative projects particularly around the reanalysis of clinical imaging datasets.
Year(s) Of Engagement Activity 2019
 
Description 2019.02.18 - DPAS Project start 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact Collaborative work with Nuffield, Lancaster University and Swansea University to set up DPAS platform for analysis of CAFCASS family justice datasets
Year(s) Of Engagement Activity 2019
 
Description 2019.02.18 - Health Foundation Project - Abertawe Medical Partnership 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Collaborative work with GP cluster in Swansea - Health Foundation Project
Year(s) Of Engagement Activity 2019
 
Description 2019.02.25 - DAFNI (Marion Samler) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Meeting with Marion Samler from DAFNI (Data & Analytics for National Infrastructure Research) to discuss collaborative opportunities
Year(s) Of Engagement Activity 2019
 
Description 2019.02.26 - Healthwise Wales Scientific Steering Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Study participants or study members
Results and Impact ADR Wales representation at the Healthwise Wales Scientific Steering Group
Year(s) Of Engagement Activity 2019
 
Description 2019.02.27 - Data linkage discussion: Swansea Council 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Study participants or study members
Results and Impact Discussion with Swansea Council Flying Start team and Welsh Government policy to identify opportunities for data usage. Flying Start had shared data with ADR Wales, and there was the possibility of bringing their team in to directly influence the direction of research using their data.
Year(s) Of Engagement Activity 2019
 
Description 2019.02.28 - ESRC Admin Data Spine Scoping w/ Andy Boyd & Rob Wilson 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact ADR Wales support provided to the scoping process around the ESRC Admin Data Spine
Year(s) Of Engagement Activity 2019
 
Description 2019.02.28 - Teresa Williams (CAFCASS) telecon 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Discussion with Teresa Williams on acquiring CAFCASS data
Year(s) Of Engagement Activity 2019
 
Description 2019.03.05 - ADSS Spring Seminar 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Participation in the ADSS Spring Seminar, representing ADR Wales/SAIL at a government seminar covering R&D strategy
Year(s) Of Engagement Activity 2019
 
Description 2019.03.08 - Admin Data Research Centre Wales Catch-up 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Regular update meeting series with Glyn Jones, Chief Statistician for Wales, and ADR Wales Operations colleagues (including Welsh Government). Direct working with senior Welsh Government colleagues allows an effective method for identifying jointly beneficial opportunities
Year(s) Of Engagement Activity 2019
 
Description 2019.03.11 - Glyn Jones SAIL mapping 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Engagement with Chief Statistician for Wales - mapping the SAIL Databank
Year(s) Of Engagement Activity 2019
 
Description 2019.03.11 - QUB: NI Health Data & SAIL 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Engagement with Queen's University Belfast - linkage and project collaboration potential between SAIL and Northern Ireland health datasets
Year(s) Of Engagement Activity 2019
 
Description 2019.03.13 - Meeting with Prof Andrew Morris HDRUK 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Meeting with Prof Andrew Morris HDRUK
Year(s) Of Engagement Activity 2019
 
Description 2019.03.15 - Telecon w/ Lisa Holmes regarding Department for Education 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Teleconference with Lisa Holmes, Director of the Rees Centre (Department of Education, Oxford University)
Year(s) Of Engagement Activity 2019
 
Description 2019.03.15 - UKSeRP Discussion w/ AISP, Asemio (Dennis Culhane) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Meeting with Prof Dennis Culhane, Co-PI for Actionable Intelligence for Social Policy (AISP) at Penn University (Philadelphia). Discussion around UKSeRP infrastructure and opportunities for collaboration
Year(s) Of Engagement Activity 2019
 
Description 2019.03.18 - UKRI Infra Roadmap - Social sciences/Arts & Humanities Sector Roundtable 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact UKRI Infra Roadmap - Social sciences/Arts & Humanities Sector Roundtable
Year(s) Of Engagement Activity 2019
 
Description 2019.03.19 - Paul Jackson 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Ad hoc catch up meeting with Paul Jackson
Year(s) Of Engagement Activity 2019
 
Description 2019.03.21 - UKRI e-Infrastructure Expert Group Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation at UKRI e-Infrastructure Expert Group Meeting
Year(s) Of Engagement Activity 2019
 
Description 2019.03.25 - Interoperability PoC Update w/ Kay Snowley (HDR) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Interoperability PoC Update w/ Kay Snowley (HDR)
Year(s) Of Engagement Activity 2019
 
Description 2019.03.27 - Flying Start reference group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Participation in Flying Start reference group meeting series - advisory and planning meetings with local authority participant groups and Welsh Government policy to support and shape Flying Start research project
Year(s) Of Engagement Activity 2019
 
Description 2019.03.27 - HDR Scotland - connect represcribing initiative 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Participation in the HDR Scotland - connect represcribing initiative event
Year(s) Of Engagement Activity 2019
 
Description 2019.04.03 - ADR Hack Day 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation at the ADR Hack Day event
Year(s) Of Engagement Activity 2019
 
Description 2019.04.08 - ADR Steering group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Planning, coordianting and attendance of the ADR Steering Group meeting series, which aimed to engage with policy leads in government outside of the ADRU (Welsh Government) project team
Year(s) Of Engagement Activity 2019
 
Description 2019.04.08 - Blackpool Council/Better Start/Swansea Uni 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Potential collaboration opportunity - Sharing best practice advice and the potential to support with UKSeRP infrastructure a Blackpool Council project
Year(s) Of Engagement Activity 2019
 
Description 2019.04.10 - Teleconference w/ ScHARR team 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Teleconference with University of Sheffield, School of Health and Related Research (ScHARR)
Year(s) Of Engagement Activity 2019
 
Description 2019.04.21 - Census data discussion 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Hosted ONS colleagues to advise on the development of the Welsh Census data dictionary and variables involved in data linkage process
Year(s) Of Engagement Activity 2019
 
Description 2019.04.24 - Developing the ADR UK brand and website 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation in developing the ADR UK brand and website
Year(s) Of Engagement Activity 2019
 
Description 2019.04.29 - Karen Dennison: embedding longitudinal cohort studies into population administrative data sets 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Meeting with Karen Dennison: embedding longitudinal cohort studies into population administrative data sets
Year(s) Of Engagement Activity 2019
 
Description 2019.05.01 - ONS Census Data into SAIL 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Welsh Government and SAIL discussions to co-ordinate the approach to ONS Census data acquisition
Year(s) Of Engagement Activity 2019
 
Description 2019.05.10 - DPAS development meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Participation in major planning session for the development of DPAS data analysis programme; a collaboration across multiple government and academic groups to analyse Family Justice data
Year(s) Of Engagement Activity 2019
 
Description 2019.05.14 - TC Betsy Stanko (UCL) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Teleconference call with Prof Betsy Stanko OBE, Visiting Professor at UCL and former Head of Evidence and Insight at Mayor of London's Office for Policing and Crime.
Year(s) Of Engagement Activity 2019
 
Description 2019.05.21 - ADRP Gateway review w/ Tricia Dodd & Glyn Jones 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact ADR Wales participation in the ADRP Gateway review
Year(s) Of Engagement Activity 2019
 
Description 2019.05.22 - Court Reform Evaluation Advisory Panel (MoJ) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Court Reform Evaluation Advisory Panel: Arranged by MoJ; multidisciplinary expert meeting
Year(s) Of Engagement Activity 2019
 
Description 2019.05.24 - Population Research Resources Workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Population Research Resources Workshop
Year(s) Of Engagement Activity 2019
 
Description 2019.05.28 - Meeting with Tiffany Veinot, University of Michigan 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Potential collaboration discussion with Tiffany Veinot, University of Michigan
Year(s) Of Engagement Activity 2019
 
Description 2019.05.29 - Tom Margrain collaboration meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Tom Margrain collaboration meeting re: WOPEC (Optometry)
Year(s) Of Engagement Activity 2019
 
Description 2019.05.30 - MoJ Family Justice Meeting w/ Emma Gordon 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Engagement with Emma Gordon regarding MoJ Family Justice work
Year(s) Of Engagement Activity 2019
 
Description 2019.06.04 - Progressing Further Data Linkage for Family Justice 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Progressing Further Data Linkage for Family Justice: Engaging MoJ into the DPAS arena
Year(s) Of Engagement Activity 2019
 
Description 2019.06.12 - Wellcome Event Belfast 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Participation in an event delivering a series of presentations to Wellcome
Year(s) Of Engagement Activity 2019
 
Description 2019.06.13 - AOCDRCA project 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Postgraduate students
Results and Impact ADR Wales staff have provided ongoing coordination and technical support to a South Wales police sponsored data research project. This project is undertaken by a Swansea/Cardiff university research team, which is looking into linguistic trends used by child groomers. Due to the incredibly sensitive nature of the data, ADR Wales safe room infrastructure (and associated accreditations) provided the sponsor with the confidence they needed to commission the research
Year(s) Of Engagement Activity 2019
 
Description 2019.06.13 - HDRUK BSO Project Update 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact ADR Wales participation at HDRUK BSO Project Update meeting
Year(s) Of Engagement Activity 2019
 
Description 2019.06.13 - Mark Lawler (QUB) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Meeting with Prof Mark Lawler, Associate Pro-VC and Professor of Digital Health at QUB. Meeting to update on areas of research/collaboration potential
Year(s) Of Engagement Activity 2019
 
Description 2019.06.17 - Collaboration between Life Sciences Hub & SAIL 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Collaboration meeting between Life Sciences Hub & SAIL/ADR teams
Year(s) Of Engagement Activity 2019
 
Description 2019.06.17 - Collaboration between MS Register - Christoph Weidemann 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Postgraduate students
Results and Impact Discussion on potential collaboration between MS Register and Christoph Weidemann, Associate Professor in Swansea University Department of Psycology
Year(s) Of Engagement Activity 2019
 
Description 2019.06.18 - Prof Anna Vignoles & Judge Carol Atkinson 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Lectures as part of a NFJO agenda
Year(s) Of Engagement Activity 2019
 
Description 2019.06.19 - NFJO Data Partnership Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation in a series of regular catch ups around Nuffield Family Justice Observatory
Year(s) Of Engagement Activity 2019
 
Description 2019.06.20 - Justice Data Set w/ Kim McGrail 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Discussion, and giving advice, to Australian colleagues (Prof Kim McGrail) on their justice datasets.
Year(s) Of Engagement Activity 2019
 
Description 2019.06.24 - MoJ & DfE Discussion w/ Lisa Holmes & Laura Nicosia 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact MoJ & DfE Discussion w/ Lisa Holmes & Laura Nicosia
Year(s) Of Engagement Activity 2019
 
Description 2019.06.24 - SAIL Scientific Advisory Group 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact ADR Wales participation on the SAIL Scientific Advisory Group
Year(s) Of Engagement Activity 2019
 
Description 2019.06.25 - Harmonisation of legal frameworks for UK Health Data w/ HDR & NHS 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Meeting with HDR UK and NHS colleagues around harmonisation of legal frameworks for UK Health Data
Year(s) Of Engagement Activity 2019
 
Description 2019.06.25 - Safepod discussion 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation in discussions around the Safepod secure analysis technology
Year(s) Of Engagement Activity 2019
 
Description 2019.06.26 - UKRI Supercomputing Science Case TC 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Teleconference to discuss ADR Wales involvement in the UKRI Supercomputing Science case
Year(s) Of Engagement Activity 2019
 
Description 2019.07.01 - Whitehall data acquisition meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Discussion re: development of a joint strategy for acquiring data from Whitehall departments
Year(s) Of Engagement Activity 2019
 
Description 2019.07.04 - CME (Children Missing Education) Meeting with Paul Howells (NHS) and Welsh Government 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact CME (Children Missing Education) Meeting with Paul Howells (NHS) and Welsh Government
Year(s) Of Engagement Activity 2019
 
Description 2019.07.05 - Nick Moberly & UK MS Register team meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact ADR Wales participation at meeting between Nick Moberly (Chief Executive for the MS Society) and MS Register team
Year(s) Of Engagement Activity 2019
 
Description 2019.07.08 - CAFCASS data transfer workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact ADR Wales participation in formal planning session re: streamlining the CAFCASS data transfer process. Participation from Lancaster University, Swansea University (including senior SAIL analysts and ADR Co-investigators) and CAFCASS
Year(s) Of Engagement Activity 2019
 
Description 2019.07.08 - Cancer IT Provision (Richard Clarkson) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Engagement with Dr Richard Clarkson to discuss potential support opportunities with his cancer research department
Year(s) Of Engagement Activity 2019
 
Description 2019.07.09 - ONS metadata meeting 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact ADR Wales hosted event to inform on and plan the development of ONS's metadata across the ADR partnership. Included colleagues from HDR and SAIL to share their existing approaches
Year(s) Of Engagement Activity 2019
 
Description 2019.07.10 - Monash ARDC Proposal discussion 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Monash ARDC Proposal discussion
Year(s) Of Engagement Activity 2019
 
Description 2019.07.12 - MoJ Discussion with Karen Broadhurst and Lisa Harker 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact ADR Wales participation in MoJ discussion with Karen Broadhurst and Lisa Harker
Year(s) Of Engagement Activity 2019
 
Description 2019.07.15 - Jeff Giansiracusa - application for ESPRC funded hub for mathematical sciences in healthcare 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Postgraduate students
Results and Impact Engagement with Prof Jeff Giansiracusa around an application for ESPRC funded hub for mathematical sciences in healthcare
Year(s) Of Engagement Activity 2019
 
Description 2019.07.17 - Manchester Digital Epidemiology Summer School 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Undergraduate students
Results and Impact David Ford participation in a wider programme of lecturing at the Manchester Digital Epidemiology Summer School
Year(s) Of Engagement Activity 2019
 
Description 2019.07.19 - SAIL External Advisory Board - Paul Roderick 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Engagement with Prof Paul Roderick (University of Southampton) in advance of the SAIL Advisory panel
Year(s) Of Engagement Activity 2019
 
Description 2019.07.23 - Conference call with Univeristy of Chicago (Ronan Lyons, Ziad Obermeyer, Ryan Burke & Sendhil Mullainathan) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Discussion around potential collaborations with University of Chicago (Ziad Obermeyer, Ryan Burke & Sendhil Mullainathan)
Year(s) Of Engagement Activity 2019
 
Description 2019.07.29 - Australian Global Experiences Digital Research Infrastructure Federations 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact ADR Wales participation and coordination of a fact finding delegation visiting Swansea from the Australian Global Experiences Digital Research Infrastructure Federations.
Year(s) Of Engagement Activity 2019
 
Description 2019.08.06 - Oliver Bird Fund Research Programme Panel Meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Participation as a member of the funding decision panel (Oliver Bird Fund Research Programme)
Year(s) Of Engagement Activity 2019
 
Description 2019.08.07 - Digital Health CRC w/ Victor Pantano 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Supporters
Results and Impact Discussion on Australia's use of data sharing with Victor Pantano, CEO of Digital Health CRC.
Year(s) Of Engagement Activity 2019
 
Description 2019.08.07 - ONS National Statician's Quality Review (Anthony Edwards) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact ADR Wales engagement with an ONS review - assessing current linkage across government and linking across academia.
Year(s) Of Engagement Activity 2019
 
Description 2019.08.29 - Karen Broadhurst update 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Update discussion with senior academic colleagues in Lancaster University around the opportunities to connect various justice data research projects. This was with a view to avoiding unnecessary duplication of work and building on existing work to maximise outputs.
Year(s) Of Engagement Activity 2019
 
Description 2019.09.02 - Healthwise Wales External Panel Discussion (Shantini Parajothy) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Healthwise Wales External Panel Discussion (Shantini Parajothy)
Year(s) Of Engagement Activity 2019
 
Description 2019.09.05 - ADR 2019 2nd Scientific Committee Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact ADR Wales membership and participation on ADR 2019 Scientific Committee
Year(s) Of Engagement Activity 2019
 
Description 2019.09.06 - EHDEN Data Partner Call (Nigel Hughes) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Discussion on a potential application - EHDEN Data Partner Call (Nigel Hughes)
Year(s) Of Engagement Activity 2019
 
Description 2019.09.16 - Population segmentation w/ CTMUHB 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Collaboration discussions with Cwm Taf Morgannwg University Health Board re: population segmentation
Year(s) Of Engagement Activity 2019
 
Description 2019.09.17 - BREATHE discussion w/ Gwyn Davies 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Discussion around research opportunities with Gwyn Davies re: BREATHE project.
Year(s) Of Engagement Activity 2019
 
Description 2019.09.18 - Health Foundation social care call (Sarah Lowe & Lisa Trigg) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Health Foundation social care call (Sarah Lowe & Lisa Trigg)
Year(s) Of Engagement Activity 2019
 
Description 2019.09.19 - ADR Wales: DDP Discussion & Monthly catch-up 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact As part of a regular catch up with senior Welsh Government colleagues, ADR Wales staff discussed the future options for the development of a data sharing solution for use with local authorities in Wales
Year(s) Of Engagement Activity 2019
 
Description 2019.09.20 - MediWales Directors Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact ADR Wales participation in the MediWales Directors meeting (David Ford is a Director)
Year(s) Of Engagement Activity 2019
 
Description 2019.09.25 - Digital Leaders Wales (Swansea School of Management) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Study participants or study members
Results and Impact ADR Wales participation in Digital Leaders Wales (Swansea School of Management) event
Year(s) Of Engagement Activity 2019
 
Description 2019.09.25 - Fliss Bennee (WG) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Engagement with Fliss Bennee, Deputy Director of Technology and Digital at Welsh Government
Year(s) Of Engagement Activity 2019
 
Description 2019.10.01 - ICES Scientific Advisory Committee 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Membership of the ICES Scientific Advisory Committee
Year(s) Of Engagement Activity 2019
 
Description 2019.10.04 - PHRN RIIP Funding Call 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales engagement with the Population Health Research Network re: RIIP funding call
Year(s) Of Engagement Activity 2019
 
Description 2019.10.08 - HealthWise Wales Meeting with HCRW 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation in discussions between HealthWise Wales and Health and Care Research Wales
Year(s) Of Engagement Activity 2019
 
Description 2019.10.09 - Rebecca Cosgriff - CFT & BREATHE 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Potential collaboration discussion with Rebecca Cosgriff, Director of Data and Quality Improvement at Cystic Fibrosis Trust (CFT)
Year(s) Of Engagement Activity 2019
 
Description 2019.10.14 - Barry Sandison CEO AIHW 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Engagement with Barry Sandison, CEO for Australian Institute of Health and Welfare (AIHW). AIHW is an independent group which provides information and statistics to the Australian Government in order to support better policy and service delivery decisions.
Year(s) Of Engagement Activity 2019
 
Description 2019.10.16 - OECD Workshop in Paris 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact ADR Wales attendance at the Organisation for Economic Co-operation and Development (OECD) event in Paris
Year(s) Of Engagement Activity 2019
 
Description 2019.10.22 - HCRW Infrastructure Away Day 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales attendance at Health and Care Research Wales away day - with a focus on health data infrastructure across Wales
Year(s) Of Engagement Activity 2019
 
Description 2019.10.23 - GSS Data Linkage Symposium 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales attendance at GSS Data Linkage Symposium
Year(s) Of Engagement Activity 2019
 
Description 2019.10.28 - BREATHE project setup 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Study participants or study members
Results and Impact ADR staff supported the development of BREATHE. The BREATHE Digital Innovation Hub is a consortium of five academic institutions in the UK and several industry partner seeking to facilitate and accelerate respiratory science initiatives and outcomes.
Year(s) Of Engagement Activity 2019
 
Description 2019.10.28 - Daniel Reidpath Safe Havens (Bangladesh) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Discussion around potential collaboration with Daniel Reidpath, Senior Director for Health Systems and Population Studies Division in Bangladesh
Year(s) Of Engagement Activity 2019
 
Description 2019.10.29 - UK Health Data Research Alliance Board 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation in the UK Health Data Research Alliance Board
Year(s) Of Engagement Activity 2019
 
Description 2019.10.30 - Current Australian Initiatives - Merran Smith 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Engagement with Merran Smith, Chief Executive for Population Health Research Network in Australia. Discussion was re current Australian initiatives
Year(s) Of Engagement Activity 2019
 
Description 2019.10.30 - Wellcome Landscape Review - UCL team on lesssons learnt from longitudinal population studies 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Feedback discussion with UCL team on lesssons learnt from longitudinal population studies
Year(s) Of Engagement Activity 2019
 
Description 2019.10.30 - Welsh Centre for Emergency Medicine Research (WCEMR) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Discussions around collaborative opportunities with the Welsh Centre for Emergency Medicine Research (WCEMR)
Year(s) Of Engagement Activity 2019
 
Description 2019.11.06 - Office for Statistics Regulations Conference 'A New Regulatory Vision' 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact ADR Wales attendance at the ONS Regulations Conference 'A New Regulatory Vision'
Year(s) Of Engagement Activity 2019
 
Description 2019.11.13 - Hub Commerical Leads Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact ADR Wales participation at the Hub Commercial leads meeting
Year(s) Of Engagement Activity 2019
 
Description 2019.11.18 - Daffodil Cymru meeting 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Supporters
Results and Impact ADR staff supported an engagement with Daffodil Cymru, an organisation that utilises multiple sources of data to identify care services needs across Wales. This discussion was aimed at identifying opportunities for joint working between Daffodil and the research centres that work alongside ADR Wales
Year(s) Of Engagement Activity 2019
 
Description 2019.11.19 - Technical Team Meeting/Trusted Research Environments (Gerry Reilly) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation in a discussion led by Gerry Reilly, Chief Technology Officer for HDR UK. Discussion was around trusted research environments
Year(s) Of Engagement Activity 2019
 
Description 2019.11.21 - Health Data Research UK Science Leadership Symposium and Dinner 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales colleagues (alongside other Swansea University data research teams) attended Health Data Research UK Science Leadership Symposium and Dinner
Year(s) Of Engagement Activity 2019
 
Description 2019.11.26 - Fuel Poverty presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Presentation on 'The Impact on Health of the Welsh Government Warm Homes Schemes' at Fuel Poverty in Wales conference
Year(s) Of Engagement Activity 2019
 
Description 2019.11.27 - HDR UK Public Health meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation at the HDR UK public health meeting
Year(s) Of Engagement Activity 2019
 
Description 2019.12.02 - SAIL External Scientific Advisory Board 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact ADR Wales staff participated and supported the coordination of the SAIL External Scientific Advisory Board
Year(s) Of Engagement Activity 2019
 
Description 2019.12.03 - Housing, Health & Fuel Poverty (Paul Roderick) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Development of ongoing collaborative discussions and planning with Paul Roderick in the areas of housing, health and fuel poverty data. Conversations included research team members on the Welsh Government Fuel Poverty project
Year(s) Of Engagement Activity 2019
 
Description 2019.12.06 - PPHI Management Board 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other audiences
Results and Impact ADR Wales participation in the Population and Patient Health Informatics (PPHI) Management Board. PPHI is a cross disciplinary research group within Swansea University which brings together academic colleagues that have a joint interest in population data research
Year(s) Of Engagement Activity 2019
 
Description 2019.12.09 - 4th International Conference on Administrative Data Research 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Study participants or study members
Results and Impact ADR Wales team heavily supported the delivery of the ADR 2019 conference, with a number of staff facilitating the events and discussions throughout the day. A number of associated researchers and academics attended and presented
Year(s) Of Engagement Activity 2019
 
Description 2019.12.09 - Fuel Poverty presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presentation on 'The Impact on Health of the Welsh Government Warm Homes Schemes' at ADR 2019 conference
Year(s) Of Engagement Activity 2019
 
Description 2019.12.09 - Presentation of research at International Conference on Administrative Data Research 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presented paper on Receipt and Effectiveness of Careers Guidance in Wales (with Katy Huxley)
Year(s) Of Engagement Activity 2019
 
Description 2019.12.09 - Presentation of research at International Conference on Administrative Data Research 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presented Paper on Careers Guidance and Transitions to Further Education in Wales (with Katy Huxley)
Year(s) Of Engagement Activity 2019
 
Description 2019.12.10 - Flying Start presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presentation on 'Analysis of Flying Start outcomes using linked data: Childcare analysis' at ADR 2019 conference
Year(s) Of Engagement Activity 2019
 
Description 2019.12.10 - Ministerial speech at ADR Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Minister for Finance and Trefyndd opened the second day of the ADR Conference with a speech that reflected their strong support for the work of ADR Wales and the SAIL Databank
Year(s) Of Engagement Activity 2019
 
Description 2019.12.10 - Well-being SIP presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presentation on 'Assessing the health impacts of adults' participation in Wales: Investigating the mediating role of accesibility to sports facilities' at ADR 2019 conference. Presntation was a high level descriptive/text based update on the work of an upcoming report.
Year(s) Of Engagement Activity 2019
 
Description 2019.12.11 - Early Years SIP presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact The association between mother's alcohol consumption during pregnancy and their child's educational attainment and risk of hospitalisation by age 14 - presentation at ADR 2019 conference
Year(s) Of Engagement Activity 2019
 
Description 2019.12.11 - Housing and homelessness presentation (IT) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Better data, better knowledge: developing an ideal honlessness data system drawing on lessons from global practice' - presentation at ADR 2019 conference
Year(s) Of Engagement Activity 2019
 
Description 2019.12.11 - Housing and homelessness presentation (PM) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact The Prevention priority - linking education and homelessness data to inform policy in Wales' - presentation at ADR 2019 conference
Year(s) Of Engagement Activity 2019
 
Description 2019.12.12 - Pennsylvania University visit 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact ADR Wales hosted a visit from senior research and academic visitors from Pennsylvania University to discuss opportunitites for future collaboration
Year(s) Of Engagement Activity 2019
 
Description 2019.12.18 - GPW & SAIL - UK Genomics Strategy 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales engagement with colleagues at the Genomic Partnership Wales (GPW - Wales Gene Park) to support development of the UK Genomics Strategy
Year(s) Of Engagement Activity 2019
 
Description 2019.12.19 - CDSI visit to SAIL 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Hosted a visit from the Leicester Clinical Data Science Institute. ADR staff in attendance provided an overview of the model utilised in Wales to help identify opportunities for the CDSI to utilise a similar method (supported by the UKSeRP)
Year(s) Of Engagement Activity 2019
 
Description 2020.01.08 - HDRUK/Hub Commercial Framework Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Meeting with HDR UK to discuss the Hub Commercial Framework
Year(s) Of Engagement Activity 2020
 
Description 2020.01.09 - CTUHB/Sollis Project Plan 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Collaboration discussions
Year(s) Of Engagement Activity 2020
 
Description 2020.01.09 - Pfizer project meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Potential collaboration
Year(s) Of Engagement Activity 2020
 
Description 2020.01.10 - Hubs Commercial Framework Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Potential collaboration
Year(s) Of Engagement Activity 2020
 
Description 2020.01.10 - UKRI discussion on Swansea business model and costings 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Undergraduate students
Results and Impact Meeting
Year(s) Of Engagement Activity 2020
 
Description 2020.01.14 - MoJ, FJO and SAIL data linkages 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation in discussions around data linkage opportunities between Moj, Family Justice Observatory, and SAIL datasets.
Year(s) Of Engagement Activity 2020
 
Description 2020.01.16 - MS Register Monthly Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Regular meeting
Year(s) Of Engagement Activity 2020
 
Description 2020.01.23 - Presentation to WRA 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Supported Chief Statistician for Wales in an engagement with the Welsh Revenue Authority to discuss the development of a collaborative research project
Year(s) Of Engagement Activity 2020
 
Description 2020.01.27 - ADR Wales monthly catch up 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Regular meeting
Year(s) Of Engagement Activity 2020
 
Description 2020.01.27 - ALABAMA TSC Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Update meeting
Year(s) Of Engagement Activity 2020
 
Description 2020.01.29 - ADR Wales Mental Health User Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact A formal group bring together ADR Wales team members, mental health leads, policy individuals, third sector organisation and researchers to outline the work of ADR Wales' mental health SIP, and how it can aid and assist policy requirements within Welsh Government.
Year(s) Of Engagement Activity 2020
 
Description 2020.01.29 - CAFCASS Discussion 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Meeting
Year(s) Of Engagement Activity 2020
 
Description 2020.01.30 - ADRNI Coordinating Committee 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Regular meeting
Year(s) Of Engagement Activity 2020
 
Description 2020.01.30 - Fuel Poverty presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Presentation on 'The Impact on Health of the Welsh Government Warm Homes Schemes' at Housing Information Group event
Year(s) Of Engagement Activity 2020
 
Description 2020.01.30 - Research and Innovation Awards 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other audiences
Results and Impact Swansea University reward and recognition event
Year(s) Of Engagement Activity 2020
 
Description 2020.01.31 - MS Register Scientific Strategy Consultation 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact To drive forwards the MS research agenda and focus on outputs
Year(s) Of Engagement Activity 2020
 
Description 2020.02.03 - BREATHE meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Regular meeting
Year(s) Of Engagement Activity 2020
 
Description 2020.02.04 - DIH Programme Symposium & Hybrid Cloud Architecture Discussion 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Attendance at external workshop to represent ADR Wales and identify opportunities for collaboration
Year(s) Of Engagement Activity 2020
 
Description 2020.02.05 - ADR Leadership Committee 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Regular meeting
Year(s) Of Engagement Activity 2020
 
Description 2020.02.05 - Data First AAG Initial meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Attendance at meeting to represent ADR Wales and identify opportunities for collaboration
Year(s) Of Engagement Activity 2020
 
Description 2020.02.06 - ADP Steering Group meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Regular Meeting
Year(s) Of Engagement Activity 2020
 
Description 2020.02.06 - Welsh Government Quarterly Contract Management Review 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Regular meeting
Year(s) Of Engagement Activity 2020
 
Description 2020.02.10 - Meeting with Jonathan Brown - Gloucester 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Informing Jonathan Brown's presentation to the RCP regarding 'Big Data'
Year(s) Of Engagement Activity 2020
 
Description 2020.02.11 - ADR UK Deep Dive 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Review
Year(s) Of Engagement Activity 2020
 
Description 2020.02.12 - HWW forward planning meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Discussion re: future strategy for health data research under the HealthWise Wales project
Year(s) Of Engagement Activity 2020
 
Description 2020.02.17 - ADR Steering Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact ADR Wales undertook a process of refocusing the programme steering group to include participants from senior policy (Welsh Government) who could take a more active advisory role. This re-aligned group included the senior SIP academics as well, with the intention of reinforcing a direct link between the work being done at a research level and the policy team implementing the outputs
Year(s) Of Engagement Activity 2020
 
Description 2020.02.17 - ADR Wales Leadership Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact A formal group bring together ADR Wales SIP leads, management and policy within Welsh Government to oversee the delivery of the ADR Wales programme of work and its effectiveness in providing insight to policy and insightful academic work.
Year(s) Of Engagement Activity 2020
 
Description 2020.02.19 - Stroke Epidemiological Data Meeting w/ Janet Whitley & Philip Evans 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Discussions on data held & IGRP
Year(s) Of Engagement Activity 2020
 
Description 2020.02.21 - Casefiles w/ Matthew Pinnell CAFCASS CYMRU 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Discussions on CAFCASS Cymru data
Year(s) Of Engagement Activity 2020
 
Description 2020.02.21 - PAA Presentation Planning Meeting (UPENN) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Invite to attend the PAA later in the year
Year(s) Of Engagement Activity 2020
 
Description 2020.02.25 - Patients know best (Sarah White) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Exploring collaborations and synergies
Year(s) Of Engagement Activity 2020
 
Description 2020.02.27 - HDR UK Collaboration AIMES 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Exploring opportunities for collaborations
Year(s) Of Engagement Activity 2020
 
Description 2020.03.03 - Data Partnership Quarterly Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Regular meeting on data partnership (Nuffield & University of Lancaster)
Year(s) Of Engagement Activity 2020
 
Description 2020.03.05 - Quebec delegation discussion on data and technology 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Invitation by WG to speak with a fact finding delegation from Quebec
Year(s) Of Engagement Activity 2020
 
Description 2020.03.06 - SAIL HDR Phenomics discussion 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Swansea & UCL collaboration
Year(s) Of Engagement Activity 2020
 
Description 2020.03.11 - HCRW Directors Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Discussion re: future strategy for health data research
Year(s) Of Engagement Activity 2020
 
Description 2020.03.13 - Cardiovascular Research in Wales Event 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact BHF new opportunities event
Year(s) Of Engagement Activity 2020
 
Description 2020.03.18 - Chiesi & BREATHE discussions 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Discussions re: existing collaboration and opportunities to support ongoing work
Year(s) Of Engagement Activity 2020
 
Description 2020.03.19 - MOJ discussion - panel set up 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Attendance at external advisory group to represent ADR Wales and identify opportunities for to support the MOJ re: data research requirements
Year(s) Of Engagement Activity 2020
 
Description 2020.03.19 - Novartis discussions 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Potential collaboration
Year(s) Of Engagement Activity 2020
 
Description 2020.03.24 - NWEH & BREATHE 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Discussions re: existing collaboration and opportunities to support ongoing work
Year(s) Of Engagement Activity 2020
 
Description 2020.03.31 - ADR Wales Housing & Homelessness Strategic Impact Programme Leadership Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact A formal working group to manage the delivery of ADR Wales' Housing and Homelessness body of work
Year(s) Of Engagement Activity 2020
 
Description 2020.03.31 - ADR Wales Skills & Employability Strategic Impact Programme leadership meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact A formal working group to manage the delivery of ADR Wales' Skills & Employability body of work
Year(s) Of Engagement Activity 2020
 
Description 2020.03.31 - ZOE technical meeting w/ HDR UK 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Discussions re: existing collaboration and opportunities to support ongoing work
Year(s) Of Engagement Activity 2020
 
Description 2020.04.01 - Roche, BREATHE & Discover now 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Potential collaboration
Year(s) Of Engagement Activity 2020
 
Description 2020.04.02 - Gates Foundation Proposal 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales support of the Gates Foundation proposal for collaborating on data research infrastructure project
Year(s) Of Engagement Activity 2020
 
Description 2020.04.03 - GSK discussion 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Discussions re: existing collaboration and opportunities to support ongoing work
Year(s) Of Engagement Activity 2020
 
Description 2020.04.07 - Data First Seminar (MOJ) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Discussions re: existing collaboration and opportunities to support ongoing work
Year(s) Of Engagement Activity 2020
 
Description 2020.04.17 - AAG 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Meeting
Year(s) Of Engagement Activity 2020
 
Description 2020.04.20 - EHDEN & COVID 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Discussions re: existing collaboration and opportunities to support ongoing work
Year(s) Of Engagement Activity 2020
 
Description 2020.04.21 - FRQS Committee 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Fonds de rechereche du Quebec. Committee member to assess innovation funds for AI and deep learning bids
Year(s) Of Engagement Activity 2020
 
Description 2020.04.27 - meeting with Renate Apse (mendelian) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Questions regarding SAIL database application
Year(s) Of Engagement Activity 2020
 
Description 2020.04.28 - ADR Wales Mental Health Strategic Impact Programme Leadership Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact A formal working group to manage the delivery of ADR Wales' mental health body of work
Year(s) Of Engagement Activity 2020
 
Description 2020.05.05 - BME proposal with Leicester 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Potential collaboration - Leicester council
Year(s) Of Engagement Activity 2020
 
Description 2020.05.05 - National Data Strategy for social services and social care in Wales (KPMG) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Strategy discussion
Year(s) Of Engagement Activity 2020
 
Description 2020.05.07 - Contact tracing in ABUHB 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Patients, carers and/or patient groups
Results and Impact Potential collaboration - ABUHB
Year(s) Of Engagement Activity 2020
 
Description 2020.05.08 - UKRI MRC Digital Research infrastructure bid 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales support of upcoming proposal for collaborating on data research infrastructure project
Year(s) Of Engagement Activity 2020
 
Description 2020.05.12 - LPS linkage to NHS X 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Potential collaboration - NHS X
Year(s) Of Engagement Activity 2020
 
Description 2020.05.15 - UDG session chair discussion 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Meeting
Year(s) Of Engagement Activity 2020
 
Description 2020.05.19 - DSAG Data Science Advisory Group 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Attendance at advisory group to represent ADR Wales and other Swansea University data research initiatives
Year(s) Of Engagement Activity 2020
 
Description 2020.05.20 - Care Home Working Group (DHSC) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Potential collaboration - DHSC
Year(s) Of Engagement Activity 2020
 
Description 2020.05.28 Shirley Wong BC 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Report discussion
Year(s) Of Engagement Activity 2020
 
Description 2020.06.01 SAIL Scientific External Advisory Board 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Invited attendance to the SAIL Advisory Group to input on discussion items raised by the panel
Year(s) Of Engagement Activity 2020
 
Description 2020.06.04 CTUHB - Welsh Health Specialised Services Committee 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Patients, carers and/or patient groups
Results and Impact Meeting
Year(s) Of Engagement Activity 2020
 
Description 2020.06.11 Inspirata and HDR UK Data Quality 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Potential collaboration
Year(s) Of Engagement Activity 2020
 
Description 2020.06.17 BREATHE and Respiri 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Potential collaboration
Year(s) Of Engagement Activity 2020
 
Description 2020.06.17 CICERO - CATALINI Databank 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Potential collaboration
Year(s) Of Engagement Activity 2020
 
Description 2020.06.18 ADD Advisory Group (accelerating disease detection)_ 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Attendance at advisory group to represent ADR Wales and other Swansea University data research initiatives
Year(s) Of Engagement Activity 2020
 
Description 2020.06.30 CASCADE Infrastructure Governance 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Potential collaboration
Year(s) Of Engagement Activity 2020
 
Description 2020.07.01 HSR UK (Health Services Research) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Potential collaboration
Year(s) Of Engagement Activity 2020
 
Description 2020.07.09 REACH meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Initial meeting in a series
Year(s) Of Engagement Activity 2020
 
Description 2020.07.16 ICES Scientific Advisory Committee Call 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Regular meeting
Year(s) Of Engagement Activity 2020
 
Description 2020.07.20 AI Pattern recognition - OCT retinal scans & linking 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Potential SAIL collaboration
Year(s) Of Engagement Activity 2020
 
Description 2020.08.17 - ADR Wales Leadership Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact A formal group bring together ADR Wales SIP leads, management and policy within Welsh Government to oversee the delivery of the ADR Wales programme of work and its effectiveness in providing insight to policy and insightful academic work.
Year(s) Of Engagement Activity 2020
 
Description 2020.08.28 Stroke Register (Anne Freeman) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Patients, carers and/or patient groups
Results and Impact Potential collaboration
Year(s) Of Engagement Activity 2020
 
Description 2020.09.01 ADHD Registry (Anita Thapar) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Update
Year(s) Of Engagement Activity 2020
 
Description 2020.09.07 UKAD Anti Doping Research collaboration 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Potential collaboration
Year(s) Of Engagement Activity 2020
 
Description 2020.09.14 Turing collaboration 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Potential collaboration
Year(s) Of Engagement Activity 2020
 
Description 2020.09.15 Paul Watry (Liverpool) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Potential collaboration
Year(s) Of Engagement Activity 2020
 
Description 2020.09.16 GSK - SLS data 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Potential collaboration
Year(s) Of Engagement Activity 2020
 
Description 2020.09.23 - Data Connecitivity CO-CIN 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact UK wide approach to routine health data for linkage
Year(s) Of Engagement Activity 2020
 
Description 2020.09.23 - Meeting with Mark Parsons (Edinburgh) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Potential collaboration
Year(s) Of Engagement Activity 2020
 
Description 2020.09.25 - LEO hosting meeting w/ UKRI 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Potential collaboration
Year(s) Of Engagement Activity 2020
 
Description 2020.09.30 - Wales Data Nation Accelerator - health and wellbeing workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Attendance at external workshop to represent ADR Wales and identify opportunities to support upcoming health data research initiatives
Year(s) Of Engagement Activity 2020
 
Description 2020.10.01 - Meeting with Michael Schull ICES 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Potential collaboration
Year(s) Of Engagement Activity 2020
 
Description 2020.10.05 - ADR Wales Skills and Employability Strategic Impact Programme Leadership Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact A formal working group to manage the delivery of ADR Wales' Skills & Employability body of work
Year(s) Of Engagement Activity 2020
 
Description 2020.10.12 - ADR Wales Housing & Homelessness Strategic Impact Programme Leadership Meeting 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact A formal working group to manage the delivery of ADR Wales' Housing and Homelessness body of work
Year(s) Of Engagement Activity 2020
 
Description 2020.10.14 - ADR Wales Early Years Strategic Impact Programme Leadership Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact A formal working group to manage the delivery of ADR Wales' Early Years body of work
Year(s) Of Engagement Activity 2020
 
Description 2020.10.14 - NCS D&C Federation Workshop 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Attendees from various sectors
Year(s) Of Engagement Activity 2020
 
Description 2020.10.21 - ADR Wales Mental Health Strategic Impact Programme Leadership Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact A formal working group to manage the delivery of ADR Wales' Mental Health body of work
Year(s) Of Engagement Activity 2020
 
Description 2020.10.22 - ADR Wales Mental Health User Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact A formal group bring together ADR Wales team members, mental health leads, policy individuals, third sector organisation and researchers to outline the work of ADR Wales' mental health SIP, and how it can aid and assist policy requirements within Welsh Government.
Year(s) Of Engagement Activity 2020
 
Description 2020.10.26 - Welsh Police introduction to the SAIL Databank 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact Introduction to SAIL for the Violence prevention unit - representation from all forces in Wales
Year(s) Of Engagement Activity 2020
 
Description 2020.10.27 - ESRC early life cohort feasibility study 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Collaboration with UCL and Cardiff
Year(s) Of Engagement Activity 2020
 
Description 2020.11.02 - BREATHE & ISARIC 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Discussion on sustainable approach to data access for ISARIC data
Year(s) Of Engagement Activity 2020
 
Description 2020.11.02 - IPDLN Virtual Conference 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Conference
Year(s) Of Engagement Activity 2020
 
Description 2020.11.10 - DSAG and DARE 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Discussion
Year(s) Of Engagement Activity 2020
 
Description 2020.11.11 - BEDL Colin Dayan (Cardiff) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Potential collaboration
Year(s) Of Engagement Activity 2020
 
Description 2020.11.16 - WSIB 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Industry/Business
Results and Impact Fact finding discussion with Canadian company
Year(s) Of Engagement Activity 2020
 
Description 2020.11.23 - Wales Cancer Bank Advisory Board meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Board meeting
Year(s) Of Engagement Activity 2020
 
Description 2020.11.24 - Ben Goldacre 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Discussion on SAIL databank
Year(s) Of Engagement Activity 2020
 
Description 2020.11.27 - CoRePa UK Long Covid Partnership 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Potential collaboration
Year(s) Of Engagement Activity 2020
 
Description 2020.11.30 - ADR Wales Leadership Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact A formal group bring together ADR Wales SIP leads, management and policy within Welsh Government to oversee the delivery of the ADR Wales programme of work and its effectiveness in providing insight to policy and insightful academic work.
Year(s) Of Engagement Activity 2020
 
Description 2020.11.30 - CASP meeting with Andrew Jones (DVLA) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Fact finding discussion
Year(s) Of Engagement Activity 2020
 
Description 2020.12.04 - Asymptomatic mass testing and NCS 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact DHSC and others
Year(s) Of Engagement Activity 2020
 
Description 2020.12.04 - MSK Health Data Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Versus Arthritis
Year(s) Of Engagement Activity 2020
 
Description 2021.02.10 - Dr Richard Fry Presentation at ADR UK Researcher Network Symposium on Health and Wellbeing 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact A presentation given by Dr Richard Fry to all researchers and members of the investment across ADR UK on the Covid-19 rapid response analysis carried out in Wales.
Year(s) Of Engagement Activity 2021
 
Description 2021.02.16 - ADR Wales Leadership Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact A formal group bring together ADR Wales SIP leads, management and policy within Welsh Government to oversee the delivery of the ADR Wales programme of work and its effectiveness in providing insight to policy and insightful academic work.
Year(s) Of Engagement Activity 2021
 
Description 21/01/2021 - Data Science and Population Health Research. University of British Columbia, Canada 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Data Science and Population Health Research. University of British Columbia, Canada, 21/01/21.
Year(s) Of Engagement Activity 2021
 
Description 28/01/2020 Big Data and Public Health. Sandra Macara BMA Memorial Lecture 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Industry/Business
Results and Impact PRESENTATION TO BIG DATA AND PUBLIC HEALTH, SANDRA MACARA MEMORIAL LECTURE IN CARDIFF
Year(s) Of Engagement Activity 2020
 
Description 30/09/2020 - Using linked data to respond to the COVID-19 pandemic in Wales. Workshop for Health and Care Research Wales annual conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Using linked data to respond to the COVID-19 pandemic in Wales. Workshop for Health and Care Research Wales annual conference, 30/09/20.
Year(s) Of Engagement Activity 2020
 
Description 4th International Conference on Administrative Data Research 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Cardiff
Year(s) Of Engagement Activity 2019
 
Description A blog on the ageing of homeless people. 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Dr Ian Thomas wrote a blog for the ADR Scotland website (SCADR) outlining analysis of Scottsh homelessness data. The focus of the blog was the ageing of homeless people, and the potential for certain groups of people in society to be at persistently greater risk of homelessness as they age. The blog also linked through to a data insight outlining the analysis. The blog was titled: Ageing and Homelessness in Scotland.
Year(s) Of Engagement Activity 2020
 
Description A geospatial perspective from Wales - Blog 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact A blog by Dr Richard Fry for the Geospatial Commission
Year(s) Of Engagement Activity 2020
URL https://geospatialcommission.blog.gov.uk/2020/08/13/datgloi-pwer-lleoliad-strategaeth-geo-ofodol-a-g...
 
Description ADR UK blog outlining analysis using homelessness data from the City and County of Swansea. 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Dr Ian Thomas wrote a blog for the ADR UK website outlining analysis using homelessness data from the City and County of Swansea. The focus of the blog was the use of case level administrative data in order to measure repeat homelessness. The blog was titled: Data Insights: Measuring repeat homelessness. Wales Government aspire to a Wales where homelessness is rare, brief, and non-recurrent. The analysis presented in this blog (also in a data insight) will help Welsh Government measure recurrence of homelessness, and therefore assess the effectiveness of policy and practice achieving 'non-recurrence'
Year(s) Of Engagement Activity 2020
 
Description ADR UK blog related to the measurement of homelessness. 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Dr Ian Thomas wrote a blog for the ADR website introducing 2 'data insights' related to the measurement of homelessness. The blog outlined findings from the data insights, and was titled: Data Insights: The power of case level data and data linkage in homelessness research. The first insght related to measuring the dynamics of homelessness assistance, and highlighted the potential under counting of local authority homelessness assistance in current Welsh Government statistics. The second insight related to using data linkaeg to improve estimates of the scale of homelessness, specifically where homeless people do not access local authority housing services.
Year(s) Of Engagement Activity 2021
 
Description ADR UK funds innovative data research project to improve the lives and productivity of farmers in the UK 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact A news release outlining the AD|ARC award
Year(s) Of Engagement Activity 2020
URL https://www.adruk.org/news-publications/news-blogs/adr-uk-funds-innovative-data-research-project-to-...
 
Description ADR UK funds research to understand experiences of people with EU pre settled and Settled Status 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact A press release announcing EUSS project funding and intentions
Year(s) Of Engagement Activity 2021
URL https://www.adruk.org/news-publications/news-blogs/adr-uk-funds-innovative-data-research-project-to-...
 
Description ADR Wales Covid 19 response: Children living in shielded households 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact A press release outlining a new publication on ADR Wales Covid 19 response: Children living in shielded households
Year(s) Of Engagement Activity 2020
URL https://www.adruk.org/news-publications/news-blogs/adr-wales-covid-19-response-children-living-in-sh...
 
Description ADR Wales Covid 19 response: Shielded Patients' access to private outdoor space 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact A press release outlining a new publication; ADR Wales Covid 19 response: Shielded Patients' access to private outdoor space
Year(s) Of Engagement Activity 2020
URL https://www.adruk.org/news-publications/news-blogs/adr-wales-covid-19-response-shielded-patients-acc...
 
Description ADR Wales Covid 19 response: Shielding teachers and teaching assistants 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact A press release outlining a new publication
Year(s) Of Engagement Activity 2020
URL https://www.adruk.org/news-publications/news-blogs/adr-wales-covid-19-response-shielding-teachers-an...
 
Description AD|ARC Wales Stakeholder engagement meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact First stakeholder engagement meeting
Year(s) Of Engagement Activity 2021
 
Description AD|ARC discussion with ADRC NI on previous and future work 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Discussions opened between ADR NI and ADR Wales on lessons of work in the area of agriculture and research and emerging interests.
Year(s) Of Engagement Activity 2021
 
Description Academy of Medical Sciences' policy workshop on health data and future data driven technologies 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact London
Year(s) Of Engagement Activity 2019
 
Description Alzheimer's Disease Data Initiative Working Group 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Washington and London
Year(s) Of Engagement Activity 2018,2019
 
Description An introduction to AD|ARC - BLOG 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact A blog by Dr Paul Caskie on AD|ARC's purpose and role.
Year(s) Of Engagement Activity 2021
URL https://www.adruk.org/news-publications/news-blogs/ad-arc-understanding-the-people-who-live-and-work...
 
Description BBC Wales Investigates the hidden cost of Covid 
Form Of Engagement Activity A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact A BBC documentary featuring Professor Ronan Lyons on the hidden cost of Covid
Year(s) Of Engagement Activity 2020
URL https://www.bbc.co.uk/iplayer/episode/m000pfhy/bbc-wales-investigates-the-hidden-cost-of-covid
 
Description BBC Wales documentary on the life of First Minister Mark Drakeford during Covid 19 pandemic in Wales, includes reference to and images of Dr Richard Fry's One Wales mapping activity as used in daily TV briefing. 
Form Of Engagement Activity A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact BBC Wales documentary on the life of First Minister Mark Drakeford during Covid 19 pandemic in Wales, includes reference to and images of Dr Richard Fry's One Wales mapping activity as used in the First Minister and the Health Minister's daily TV briefing.
Year(s) Of Engagement Activity 2021
URL https://www.bbc.co.uk/iplayer/episode/p097p0jv/prif-weinidog-mewn-pandemig
 
Description Big data and public health 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Sanda Macara BMA Memorial Lecture, Cardiff
Year(s) Of Engagement Activity 2020
 
Description Blog for CaCHE website on a new homelessness data collection for Wales. 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Dr Ian Thomas wrote a blog for the CaCHE website outlining the findings from a report written on a new homelessness data collection for Wales. The title for the blog was: Possible new approaches to the collection and use of homelessness data in Wales. The report was the end product of an 11 month secondment with Welsh Government. The blog outlined a series of potential new data collection approaches for homelessness data in Wales.
Year(s) Of Engagement Activity 2020
 
Description British Heart Foundation Data Science Centre Implementation Group 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact London
Year(s) Of Engagement Activity 2018,2019
 
Description Chief Statistician for Wales update: Explaining Covid-19 mortality data sources for Wales 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Blog an ADR UK and GOV.UK from Chief Statistician and ADR Wales Co-Director
Year(s) Of Engagement Activity 2020
URL https://www.adruk.org/news-publications/news-blogs/chief-statistician-for-wales-update-explaining-co...
 
Description Chief Statistician for Wales update: How does Covid-19 mortality in Wales compare with the rest of the UK? - BLOG 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Chief Statistician for Wales update: How does Covid-19 mortality in Wales compare with the rest of the UK? A blog for ADR UK and GOV.Wales
Year(s) Of Engagement Activity 2020
URL https://www.adruk.org/news-publications/news-blogs/chief-statistician-for-wales-update-how-does-covi...
 
Description Chief Statistician for Wales update: Measuring people in hospital, and some thoughts on data quality -BLOG 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Chief Statistician for Wales update: Measuring people in hospital, and some thoughts on data quality blog on ADR UK and GOV.Wales
Year(s) Of Engagement Activity 2020
URL https://www.adruk.org/news-publications/news-blogs/chief-statistician-for-wales-update-measuring-peo...
 
Description Chief Statistician's update: A few final reflections as Chief Statistician - BLOG 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Chief Statistician's update: A few final reflections as Chief Statistician - blog for ADR UK and GOV.wales
Year(s) Of Engagement Activity 2020
URL https://www.adruk.org/news-publications/news-blogs/chief-statisticians-update-a-few-final-reflection...
 
Description Children in Wales annual conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Cardiff
Year(s) Of Engagement Activity 2018
 
Description Consumer Panel for Data Linkage, Development of Wales Multi-morbidity Cohort 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Swansea
Year(s) Of Engagement Activity 2019
 
Description Covid: Cancer delays 'could cause 2,000 deaths in Wales' 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Professor Ronan Lyons article on BBC Covid: Cancer delays 'could cause 2,000 deaths in Wales'
Year(s) Of Engagement Activity 2020
URL https://www.bbc.co.uk/news/uk-wales-54808693
 
Description Creating a national approach: the SAIL Databank 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Joint UK-Switzerland Research Symposium, Zurich
Year(s) Of Engagement Activity 2019
 
Description Cwm Taf University Health Board and Public Health Wales, Learning Health System meeting 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Telephone conference
Year(s) Of Engagement Activity 2020
 
Description Data Scientists supporting the One Wales response 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact A blog by Ashley Akbari on Data Scientists supporting the One Wales response
Year(s) Of Engagement Activity 2020
URL https://popdatasci.swan.ac.uk/the-one-wales-vision-informing-decisions-during-covid-19-2/
 
Description Data science and linked data aiding understanding of the unfolding Covid-19 epidemic in Wales 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact A blog from Ashley Akbari on Data science and linked data aiding understanding of the unfolding Covid-19 epidemic in Wales
Year(s) Of Engagement Activity 2020
URL https://www.adruk.org/news-publications/news-blogs/data-science-and-linked-data-aiding-understanding...
 
Description Dementias Platform UK: Data Portal 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Presentation to MRC Oversight Board, London
Year(s) Of Engagement Activity 2019
 
Description Developing the HDR UK Public Health Research Strategy 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Wellcome Trust, London
Year(s) Of Engagement Activity 2019
 
Description Dr Ian Thomas presented at a WISERD lunchtime seminar on Using data to end homelessness in Wales: Learning from international practice. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact Dr Ian Thomas presented at a WISERD lunchtime seminar on the 15 October 2019. The title for his presentation was: Using data to end homelessness in Wales: Learning from international practice. The presentation drew on Ian's secondment into Welsh Government to help explore the feasibility of developing a new system of collecting homelessness data in Wales. Attendees at the seminar included students and staff from Cardiff University.
Year(s) Of Engagement Activity 2019
 
Description ESRC Expert Advisory Group on Longitudinal Studies 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact London
Year(s) Of Engagement Activity 2018
 
Description European Injury Database Advisory Board 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Telephone conference
Year(s) Of Engagement Activity 2019
 
Description European Union Health Programme: Information for Action 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Brussels
Year(s) Of Engagement Activity 2019
 
Description From Cradle to Care, BBC Radio 4 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Radio 4 programme featuring research
Year(s) Of Engagement Activity 2019
URL https://www.bbc.co.uk/sounds/play/m000bb6w
 
Description Health and Care Research Wales Scientific Advisory Board 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Wales
Year(s) Of Engagement Activity 2019
 
Description Hosting NHS Digital visit to Swansea University 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Swansea University
Year(s) Of Engagement Activity 2018
 
Description Housing Studies Association Conference presentation - homelessness and devolution 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Dr Pete Mackie Presentation on homelessness policy developments since devolution
Year(s) Of Engagement Activity 2020
 
Description Housing Studies Association Conference presentation on homelessness policy mobility 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Dr Pete Mackie Presentation on homelessness prevention policy mobility
Year(s) Of Engagement Activity 2020
 
Description Internal collaboration meeting with Welsh Government Children's social care policy team 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Collaboration meeting with Welsh Government children's social care policy team to ascertain direction and scope for ADR Wales research going forward.
Year(s) Of Engagement Activity 2021
 
Description International Collaborative Effort on Injury Statistics 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Hanoi, Vietnam
Year(s) Of Engagement Activity 2018
 
Description International Scientific Advisory Board, Lady Davis Institute 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact McGill University, Montreal
Year(s) Of Engagement Activity 2019
 
Description Keeping the research flowing - the technical effort behind the One Wales research - BLOG 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact A blog on Keeping the research flowing - the technical effort behind the One Wales research
Year(s) Of Engagement Activity 2020
URL https://popdatasci.swan.ac.uk/keeping-the-research-flowing-the-technical-effort-behind-the-one-wales...
 
Description MRC Biannual Leaders' Meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact London
Year(s) Of Engagement Activity 2018
 
Description MRC Methodology Research Panel 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact London
Year(s) Of Engagement Activity 2019
 
Description MRC expert workshop on the development of guidance for complex evaluation 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact London
Year(s) Of Engagement Activity 2018
 
Description Making game changing improvements in the health of patients and populations 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Adelaide University, Australia
Year(s) Of Engagement Activity 2018
 
Description Measuring homelessness COST Action meeting, Leuven 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Dr Pete Mackie Presented and discussed methods of measuring homelessness.
Year(s) Of Engagement Activity 2020
 
Description Meeting with CMO Wales, Dr Frank Atherton, on big data and public health evaluation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Swansea
Year(s) Of Engagement Activity 2019
 
Description Meeting with Director of Social Services and Well-being in Welsh Government 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Meeting with Director of Social Services and Well being in Welsh Government to discuss progress and short and long term goals for social care policy in Wales and ADR Wales assistance.
Year(s) Of Engagement Activity 2021
 
Description Meeting with GSK Imaging Analytics 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Swansea
Year(s) Of Engagement Activity 2019
 
Description Meeting with Health Foundation on Data Science 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact London
Year(s) Of Engagement Activity 2019
 
Description Meeting with Public Health Wales re Injury Surveillance 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Swansea
Year(s) Of Engagement Activity 2019
 
Description Mental health: Expert tips on tackling anxiety and depression 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact BBC news article featuring Prof Ann John
Year(s) Of Engagement Activity 2020
URL https://www.bbc.co.uk/news/uk-wales-50658446
 
Description New real-time analysis demonstrating the spread of Covid-19 in Wales has directly informed the One Wales response to Covid-19 in Wales. 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact A blog by Dr Richard Fry outlining the real-time analysis demonstrating the spread of Covid-19 in Wales has directly informed the One Wales response to Covid-19 in Wales.
Year(s) Of Engagement Activity 2020
URL https://popdatasci.swan.ac.uk/geospatial-modelling-to-predict-covid-prevalence-at-community-level/
 
Description Northern Ireland Honest Broker Service 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Belfast
Year(s) Of Engagement Activity 2018
 
Description OSCHR Health Informatics Expert Group 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact London
Year(s) Of Engagement Activity 2018
 
Description One Wales - Collaboration key to delivering intelligence 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact A blog outlining One Wales - Collaboration key to delivering intelligence
Year(s) Of Engagement Activity 2020
URL https://popdatasci.swan.ac.uk/collaboration-key-to-delivering-intelligence-the-one-wales-response-to...
 
Description Pathways to impact: ADR UK partners share their insight 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact A blog outlining Pathways to impact: ADR UK partners share their insight
Year(s) Of Engagement Activity 2020
URL https://www.adruk.org/news-publications/news-blogs/pathways-to-impact-adr-uk-partners-share-their-in...
 
Description Population Research Resources Workshop (ESRC, MRC, Wellcome) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact London
Year(s) Of Engagement Activity 2019
 
Description Potential of big data research for geriatric medicine, British Geriatric Scoiety 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact British Geriatric Society, Cardiff
Year(s) Of Engagement Activity 2019
 
Description Precision public health: the value of disparate sources of data in understanding and improving health 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Public Health England Scientific Conference, Warwick
Year(s) Of Engagement Activity 2019
 
Description Presentation at IPPO round table on homelessness policy and COVID 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Dr Pete Mackie presentation and round table discussion on the key homelessness policy challenges in the UK
Year(s) Of Engagement Activity 2021
 
Description Presentation at a WISERD lunchtime seminar on Designing a new homelessness data system for Wales. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact Dr Ian Thomas presented at a WISERD lunchtime seminar on the 5th March 2019. The title for his presentation was: Designing a new homelessness data system for Wales. The presentation drew on Dr Thomas' secondment into Welsh Government to help explore the feasibility of developing a new system of collecting homelessness data in Wales. Attendees at the seminar included third sector organisations working to end homelessness, along with students and staff from Cardiff University.
Year(s) Of Engagement Activity 2019
 
Description Presentation at an ONS run event on homelessness data collection. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Dr Ian Thomas presented at an ONS run event on homelessness data collection. Participants at the meeting included policymakers and data scientists working at ONS and other housing departments throughout the devolved nations. Dr Thomas was asked by Welsh Government to present the findings of his feasibility study into a new homelessness data collection for Wales. The title of the presentation was: A new homelessness data system for Wales.
Year(s) Of Engagement Activity 2019
 
Description Presentation at the 4th International Conference on Administrative Data Research 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Dr Ian Thomas presented at the 4th International Conference on Administrative Data Research 9 - 11 December 2019. The title for his presentation was: Better data, better knowledge, better society: The principles of an ideal homelessness data system drawing on lessons from global practice. Attendees at the presentation included Welsh Government statisticians from Knowledge Analytical Services, researchers working in the field of homelessness, and third sector organisations.
Year(s) Of Engagement Activity 2019
 
Description Presentation at the ADR UK Researcher Network Symposium 2020. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Dr Ian Thomas presented at the ADR UK Researcher Network Symposium on 23rd September 2020. The purpose of the event was to provide an opportunity exclusively for ADR UK-funded researchers to discuss the work underway across the partnership in the theme of Inequality & Social Inclusion. The title Dr Thomas' presentation was: Generating evidence to end homelessness: Case studies in the use of administrative data linkage.
Year(s) Of Engagement Activity 2020
 
Description Presentation at the Wales Housing Research Network Conference at Cardiff University. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Dr Ian Thomas presented at the Wales Housing Research Network Conference at Cardiff University. The title of Dr Thomas's presentation was: Crime, substance use and homelessness: how a data revolution in Wales could answer new questions. The presentation drew on Dr Thomas's secondment to Welsh Government in exploring new homelessness data collections for Wales. Attendees included third sector organisations, practitioners, and researchers working in the field of homelessness.
Year(s) Of Engagement Activity 2019
 
Description Presentation at the dynamics of homelessness measurement seminar 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Dr Pete Mackie Presented and discussed methods of measuring homelessness
Year(s) Of Engagement Activity 2021
 
Description Presentation on analysis of Careers Wales and education data 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Presentation by Rhys Davies and Katy Huxley on analysis of Careers Wales and education data, exploring socio-economic disadvantage in relation to education and career aspirations. 2021.03.09 "Understanding the origins of labour market disadvantage"
Year(s) Of Engagement Activity 2021
 
Description Presentation to project steering group on new homelessness data collection for Wales 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Dr Ian Thomas presented the findings from a feasibility study on a new homelessness data collection for Wales to the project steering group. Attendees included the head and deputy head of housing policy at Welsh Government, as well as members from Knowledge Analytical Services. The title of the presentation was: A new homelessness data system for Wales.
Year(s) Of Engagement Activity 2019
 
Description Preventing Youth homelessness conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Dr Pete Mackie invited to present at the international youth homelessness prevention conference
Year(s) Of Engagement Activity 2020
 
Description Public data for public good: Towards a better understanding of the children's lives online seminar 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Dr Lucy Griffiths presentation at UK wide event held to illustrate and explore the value of meaningful administrative data research as a tool to better understand children's lives, including the health and well being of children known to social services. Successful online event featuring almost 100 participants across the UK. Positive feedback gained and impotus to explore this group and topic further including a network group. Second event being discussed.
Year(s) Of Engagement Activity 2020
 
Description Royal College of Physicians. Cardiovascular, metabolic and kidney disease: crosscutting science and best practice in multimorbidity 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact London
Year(s) Of Engagement Activity 2019
 
Description SAIL Databank - health data research during a global pandemic 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact A blog by Ashley Akbari on SAIL Databank - health data research during a global pandemic
Year(s) Of Engagement Activity 2020
URL https://digitalhealth.wales/sail-databank-blog
 
Description Saving the NHS through Data Science 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Health and Care Research Wales conference, Cardiff
Year(s) Of Engagement Activity 2018
 
Description Sharp rise in babies facing being taken into care 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact BBC article based on publication findings.
Year(s) Of Engagement Activity 2020
URL https://www.bbc.co.uk/news/uk-wales-50042589
 
Description Social care data meeting with ONS 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Meeting with ONS discussing social care data access.
Year(s) Of Engagement Activity 2021
 
Description Symposium on Big Data in Healthcare. Distributed team science: real world and cohort data 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Partnership between Weizmann Institute of Science and Nature Medicine, Tel Aviv
Year(s) Of Engagement Activity 2019
 
Description Technology Sector Symposium, Developing a Health Data Research Platform 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact London
Year(s) Of Engagement Activity 2019
 
Description The One Wales vision informing decisions during Covid-19 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact A blog on the One Wales vision informing decisions during Covid-19
Year(s) Of Engagement Activity 2020
URL https://popdatasci.swan.ac.uk/the-one-wales-vision-informing-decisions-during-covid-19/
 
Description The governance and data flows making the One Wales response possible 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact A blog outlining the governance and data flows making the One Wales response possible
Year(s) Of Engagement Activity 2020
URL https://popdatasci.swan.ac.uk/the-governance-and-data-flows-making-the-one-wales-response-possible/
 
Description Trends in public and private family law cases in Wales over time - what can mapping tell us? 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact A blog outlining trends found.
Year(s) Of Engagement Activity 2020
URL https://www.nuffieldfjo.org.uk/news/trends-family-law-wales-mapping
 
Description UK Biobank Outcomes Working Group 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact London
Year(s) Of Engagement Activity 2020
 
Description UK Public Health Sciences Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact London
Year(s) Of Engagement Activity 2019
 
Description Update on SAIL Databank and related activities. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Presentation to Chief Medical Officer, Wales, Swansea
Year(s) Of Engagement Activity 2019
 
Description Use of geo spatial analysis in First Minister's public Covid briefing 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact During the daily public coronavirus briefing televised on BBC Wales, First Minister Mark Drakeford introduces the real time spatial analysis of covid 19 spread in Wales using a video created by Dr Richard Fry as part of the One Wales body of work. MD sites the work of the SAIL Databank in creating this analysis.
Year(s) Of Engagement Activity 2020
 
Description Use of geo spatial analysis in Health Minister's public Covid briefing 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact During the daily Coronavirus briefing televised on BBC Wales, Health Minister Vaughan Gething cites the real time spatial analysis of covid 19 spread in Wales using a video created by Dr Richard Fry as part of the One Wales body of work. VG sites the work of the SAIL Databank in creating this analysis.
Year(s) Of Engagement Activity 2020
URL https://www.walesonline.co.uk/news/wales-news/vaughan-gething-coronavirus-press-conference-19051114
 
Description Wales Critical Care Network - development of linked data resource for evaluation Office for National Statistics; SAIL and census data 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Swansea
Year(s) Of Engagement Activity 2019
 
Description Wales Housing Research Conference 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Organisation of the Wales Housing Research conference. Dr Pete Mackie.
Year(s) Of Engagement Activity 2020
 
Description Wales Trauma Network - development of linked data resource for evaluation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Videoconference
Year(s) Of Engagement Activity 2019
 
Description Weizmann Institute of Science, Big Data Meeting, Tel-Aviv 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Tel-Aviv
Year(s) Of Engagement Activity 2019
 
Description Wellcome Science Interview Panel 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact London
Year(s) Of Engagement Activity 2019
 
Description Welsh Government Homeless data collection meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No