Administrative Data Research Centres 2018

Lead Research Organisation: Swansea University
Department Name: Institute of Life Science Medical School

Abstract

ADRCW will build on its achievements over the last four years, learning the lessons from both its work in Wales and its involvement with other UK components of the ADRN. With even closer cooperation with Welsh Government, enabled by new, much-needed investment in Wales' NSA, and with new funding to expand the operational remit of the SAIL Databank to cover non-health subjects and data, we will work in a new focussed way to deliver research benefits straight to government. In doing so, we will build up our data assets, already better than any other parts of the UK, and make them more convenient to access and use. We will take advantage of our existing, innovative, and widely used data sharing tools and platforms (e.g. National Research Data Appliances) to support data owners in sharing their data for research safely, simply, efficiently and regularly. We will also utilise our data access platforms (UKSeRP and SAIL Gateway) to allow access to the data by any researcher across the UK (subject to permissions and approvals). We will work hard to integrate our Centre into the emerging UK-wide model for ADRP, and play our part in facilitating access to potent data across the UK. Our centre will provide a seamless services to research users (where this is sensible) and take a full part in delivering strategic programmes of research set at a UK level. We will continue to support our current portfolio of projects, but will begin to steer project proposals coming from the research community at large towards topics that fit with Wales' and the UK's strategic governmental interests. Our engagement with the Welsh population regarding the secondary use of their data will continue, and feed into a research programme where we strive to develop and test ways of improving privacy in the work of our Centre and others like it. We will continue to support the next generation of big data social scientists, supporting them at undergraduate, postgraduate and doctoral levels by providing them opportunities to interact with real data on real project wherever possible. Our Strategic Impact Programmes (SIPs) in Education, Housing and Homelessness, Health and the Environment, Future Generations, and Emerging Governmental Priorities have been devised in partnership with Welsh Government and are hard wired into policy areas. These SIPs are designed to deliver impact, which we shall collate, share and promote as part of an efficient management and reporting approach operating right across the Centre, and harmonised across all the ESRC ADRP investments.

Planned Impact

The Collaboration for Welsh Administrative Data Research (CWAR) will seek to build on our existing outstanding record on achieving impact and will contribute to maximising the impact of ADRC projects and SIPs during the next phase of the ADR partnership across the UK. We propose a mixture of proven activities based on our previous experience and a new, wider set of activities to maximise impact. The Collaboration will be devoted to the successful delivery of a range of SIPs and, by utilising impact focused postholders based in both WG and ADRC, will provide the ability to capitalise on previous activity to build impact. The availability of UK datasets via the ONS will also add significantly to the impact of projects on a national and potentially global basis. This activity will be driven towards national strategy priorities and will secure senior commitment to this agenda. This will ensure that projects in Wales will have maximum exposure to senior influential individuals and thus the maximum opportunity to achieve impact.
Activities to Maximise Impact
We will seek to maximise impact at the UK level, within Welsh Government, across the wider Welsh public sector, and within the academic community. At all levels, we will work with the Strategic Hub and the wider partnership to maximise impact by developing and feeding into an Impact Working Group. The Centre believes that this will be key to maximising impact across the partnership, taking lessons learned from all partners and building them into a determined, explicit impact strategy, ensuring every project is fully exploited for impact opportunities.
Building on existing success: In the short term, we will maximise impact from existing projects. For these projects, senior officials and ministers are already thoroughly engaged, experienced, and have highly trained analysts in place. Existing research partners are familiar not only with complex data and analysis methods but also the challenges and opportunities of working with government.
Maximising the impact of new projects:
Funding as a lever provides the ability to bridge the gap between Government (Show me what you can do and I'll invest) and researchers (Invest and we'll show you what we can do). A huge strength of Wales' success to date has been the ability to run projects with significant potential to deliver impact and/or act as exemplars to encourage further investment/engagement.
Focus on national priorities is a critical pre-requisite for achieving impact within Welsh Government and beyond. Through our over-arching governance, we will ensure that research programmes are continuously tested against those priorities to identify opportunities for impact. We will use our Emerging Governmental Priorities SIP as a tool to identify and deliver rapid, impactful pieces of analysis in response to emerging policy requirements.
Impact Accelerator Fund: controlled jointly by ADRC-W and Welsh Government, which can be used either to match-fund investments by policy departments or fully fund small demonstrator projects.
Incentivise and reward: As part of our yearly evidence planning process, we will run an annual process where policy teams within Welsh Government are encouraged to submit proposals for the use of CWAR resources. Creating a level of informal competition is highly likely to draw out the best ideas with the highest level of senior engagement and potential impact. This ADR Partnership Policy Impact Prize could be operated for Wales or could be adopted at the UK level.
Ruthlessly exploiting relationships: We welcome the opportunity to build on the virtuous circle already developing in Wales, which is in no small part due to the ruthless exploitation of relationships with policy officials at all levels. As policy officials move posts, they will use their relationship with us to champion the cause of administrative data research in new posts and we therefore spread virally.
 
Title ADR Wales overview video 
Description Overview video demonstrating the work of the centre to date. Included quotes from several Cardiff/Swansea based PI/Co-Investigator colleagues, as well as quotes from senior Welsh Government staff involved in the project. 
Type Of Art Film/Video/Animation 
Year Produced 2019 
Impact Video format adopted by ADR UK Hub for its own products. Valuable resource developed for demonstrating the work of ADR Wales at events 
URL https://www.youtube.com/watch?v=v3I8FWELrHo
 
Title Did school-based measures to reduce the spread of COVID-19 impact outbreaks in primary schools? 
Description A video outlining research undertaken by the ESRC post doctoral fellow Dr Emily Marchant, as part of the ADR Wales supported HAPPEN project. The video outlines the key findings from the study. 
Type Of Art Film/Video/Animation 
Year Produced 2022 
Impact The video is an easy to digest, visually attractive depiction of the work undertaken. The HAPPEN project centres on school pupil engagement and feedback. 
URL https://www.youtube.com/watch?v=A4Qa5IJm_24
 
Title Flying Start infographic - Childcare analysis 
Description Infographic providing an overview of the key findings from the research on the Flying Start project (Childcare analysis) 
Type Of Art Image 
Year Produced 2019 
Impact Image shared online and available for dissemination digitally and at events 
URL https://twitter.com/ADR_Wales/status/1200054440658649089
 
Title Flying Start infographic - Emerging findings 
Description Infographic providing an overview of the key findings from the research on the Flying Start project (Emerging Findings report) 
Type Of Art Image 
Year Produced 2019 
Impact Image shared online and available for dissemination digitally and at events 
URL https://twitter.com/ADR_Wales/status/1164107469288816641
 
Title Flying Start research overview video 
Description Overview video of the ongoing Flying Start project work and its outputs 
Type Of Art Film/Video/Animation 
Year Produced 2019 
Impact Video format adopted by ADR UK Hub for its own products. Valuable resource developed for demonstrating the work of ADR Wales at events 
URL https://www.youtube.com/watch?v=A9LTpPf2TDc
 
Title Flying Start research overview video (CYMRAEG) 
Description Welsh translation - Overview video of the ongoing Flying Start project work and its outputs 
Type Of Art Film/Video/Animation 
Year Produced 2019 
Impact Video format adopted by ADR UK Hub for its own products. Valuable resource developed for demonstrating the work of ADR Wales at events 
URL https://www.youtube.com/watch?v=ysua4GaT_Jw
 
Title Fuel Poverty inforgraphic 
Description Infographic providing an overview of the key findings from the research on the Fuel Poverty project 
Type Of Art Image 
Year Produced 2019 
Impact Infographic shared on social media and available for dissemination digitally or at events 
URL https://twitter.com/ADR_Wales/status/1182569289984991232
 
Title Fuel Poverty research overview video 
Description Overview video of the ongoing Fuel Poverty project work and its outputs 
Type Of Art Film/Video/Animation 
Year Produced 2019 
Impact Video format adopted by ADR UK Hub for its own products. Valuable resource developed for demonstrating the work of ADR Wales at events 
URL https://www.youtube.com/watch?v=88FG8oN_QRw
 
Title Fuel Poverty research overview video (CYMRAEG) 
Description Welsh translation - Overview video of the ongoing Fuel Poverty project work and its outputs 
Type Of Art Film/Video/Animation 
Year Produced 2019 
Impact Video format adopted by ADR UK Hub for its own products. Valuable resource developed for demonstrating the work of ADR Wales at events 
URL https://www.youtube.com/watch?v=k8a-kdI9XfM
 
Title Mapping Covid 19 infections in Wales 
Description This video by Ass Prof Richard Fry was created to demonstrate the transmission of Covid-19 infections across Wales during the height of the pandemic in Wales. This video was used as part of both the First Minister and the Health Minister's daily televised briefings to the nation. 
Type Of Art Film/Video/Animation 
Year Produced 2020 
Impact This video was commended as being an easy to digest, highly visual depiction of the rapid spread of Covid-19 in Wales. It was used in the daily briefings and again by Welsh media. 
URL https://vimeo.com/554828934
 
Title Population Data Science 15 Year Anniversary Review 
Description A video charting the progress of Population Data Science at Swansea University which is led by Professors David Ford and Ronan Lyons. The video documents the key achievements of the Group, including the success of SAIL and the development of ADR Wales. 
Type Of Art Film/Video/Animation 
Year Produced 2021 
Impact This video has helped to demonstrate the considerable and notable growth and reach of our Group, the developments undertaken as part of it and the significant impact and reach of our team's work. 
URL https://www.youtube.com/watch?v=mYCcT3IIiJ0
 
Title Showcase video of ADR Wales/HDRUK Wales Internship programme 
Description A video showcasing the Data Science annual summer internship programme developed by SAIL/ADR Wales/HDRUK Undergraduates/Postgraduates/Early Career researchers skills development via working on active projects within established teams 
Type Of Art Film/Video/Animation 
Year Produced 2019 
Impact A commitment by Welsh Government to expand the placements into their analytical departments A review by ADRUK training and capacity strategy group as a model to include nationally. 
URL https://www.youtube.com/watch?v=XFkBK-nqBYc
 
Title The One Wales response to Covid-19 in Wales 
Description A video produced by ADR Wales/Population Data Science at Swansea University detailing the One Wales response, its origins, its partners and the work that it produced. 
Type Of Art Film/Video/Animation 
Year Produced 2022 
Impact This video documents the tremendous effort and partnership of all involved in the One Wales response to work together to provide rapid data driven response to inform the understanding of, and subsequent planning for, services and provisions around Covid-19 in Wales during the height of the pandemic. 
 
Description The investment has proven that a research collaboration between government and academia can deliver research that informs policy decision making around key issues in education, mental health, housing, social care, employability, wellbeing and early years. It has also shown that this effective partnership can acquire and securely provision the data required for research efficiently.

Though much of the period of the investment was covered by the pandemic and most of the team were required to focus on Covid-19, the team were still able to deliver the existing research as outlined in the initial bid document.

The investment delivered the following:

Undertook research that supported 7 policy areas in Welsh Government delivering policy papers and academic publications via our dual publication policy.
The acquisition of over 30 new datasets covering various policy areas to support research and established new relationships with data owning organisations.
The direct linking of government decision makers to research teams to shape research requirements.
The establishment of the first 4 nations data linkage research project.
The widening of public involvement and engagement activities where the public, in addition to our citizen panel, sit on project approval boards and internal SAIL/ADR
committees.
It was discovered that a research group could quickly pivot its activities to focus on fast operational information requirements for government/NHS at a time of national emergency, this ability has been retained in the follow on investment.
New approaches were discovered in the building of research ready datasets, these are data that have been fully documented and reviewed.
Knowledge exchange activities to support researchers and other centres by sharing our knowledge around a range of subjects.
The development of a new model to embed data science skills for undergraduates.
A significant increase in reputation and userbase, especially in England
An increase in the networks and investments we are now involved in, particularly as a result of the recognition achieved during the pandemic.

One of the major factors that was discovered in the award is the benefits and robustness of our data research centres (SAIL Databank) operating model. On the 17th March 2020, all staff were required to work remotely due to the risks posed by Covid-19. The SAIL systems and research platform do not require staff on site and staff were able to easily operate systems from home and researchers continue their activity via our remote research gateway. This learning has now been shared with other research centres whose ability to operate during the pandemic was severely impacted as they required both staff and researchers to be physically on site to operate.

The major achievement of the award however has been the response to Covid-19 which demonstrated the benefits of linked data research, skilled and dedicated staff and robust systems. The scale and pressures of the work required tested staff and systems as tasks that were previously weeks in development were now required within days to ensure information got to the various government and NHS groups. The group has been commended by the public during our engagements as well as senior government and NHS staff.
Exploitation Route The outcomes of the award are being taken forward as follows:

- Lessons learnt and experience from the delivery of the 2018-2022 award have informed the structure of the newly commissioned 2022 - 2026 ADR UK award
- Outputs delivered during the investment (Covid and the established social research thematic areas) are all being considered by the relevant policy area and the impact pathway is being managed.
- The collaboration established under the ADR Wales AD|ARC programme has informed a new group that focusses on 4 Nation collaborations around shared data research that is policy impactful
- ADR Wales is sharing knowledge derived during the investments and especially during the pandemic, and is sharing this knowledge with partners, specifically around data acquisition processes, remote access platforms, management information systems in a TRE and sharing of reusable code.
- The work during the pandemic highlighted the strengths of a remote access TRE and both Welsh Government and the NI Honest Broker service has renewed their Serp TRE instances and discussions around adoption of
- The fast response policy work on Covid led to an investment by Welsh Government in a dedicated Covid Evidence Centre to centralise activity around Covid research.
Sectors Agriculture, Food and Drink,Communities and Social Services/Policy,Education,Environment,Healthcare,Leisure Activities, including Sports, Recreation and Tourism,Government, Democracy and Justice

URL https://www.adruk.org/about-us/our-partnership/adr-wales/
 
Description The fast response research undertaken to support the Welsh Government and UK SAGE pandemic response were generally in the format of short policy reports or papers that were tabled and reviewed contributing to the evidence base to allow Ministers to make decisions.. The range of questions was vast and covered many areas from geographic spread of the virus, shielding groups, educational impacts, research on testing, vaccine at risk groups and many other short fast response policy questions. Many of the questions asked of the research teams have now been written up as academic papers, though the impact was derived from the initial (non academic) policy papers. Findings during the pandemic have been used by Welsh Government, Scottish Government, Public Health Wales, UK SAGE in the pandemic response.. The supporting evidence for this impact is included as a series of testimonials from senior civil service and NHS staff under the 'Awards and recognition' section.
First Year Of Impact 2020
Sector Digital/Communication/Information Technologies (including Software),Education,Healthcare,Government, Democracy and Justice,Pharmaceuticals and Medical Biotechnology
Impact Types Societal,Policy & public services

 
Description 2021.09.29 Presentation of ADR Wales ongoing work to Minister
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Membership of a guideline committee
 
Description 2021.10.07 Work included in 'Improving health and social care statistics: lessons learned from the COVID-19 pandemic', Office for Statistics Regulation
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Contribution to new or Improved professional practice
Impact The One Wales approach brought together partners from the Welsh Government, the NHS, academia and public health to share datasets and expertise. This strong analytical collaboration resulted in valuable, high-quality, coherent statistics during the pandemic. The publication recommends that taking this approach to other topics will help overcome existing and future problems. In addition, data sharing and linking increased significantly during the pandemic which allowed governments to develop policies and carry out rapid operational responses. An example from our team was the use of data linking to analyse the number of teachers and teaching assistants who were shielding, allowing the Welsh Government to understand the impact of the shielding policy on the provision of schooling during the pandemic. This publication recognises that sharing and linking data can have life-saving impacts and it recommends that this must be prioritised by governments beyond the pandemic.
URL https://osr.statisticsauthority.gov.uk/publication/improving-health-and-social-care-statistics-lesso...
 
Description 2021.11 Response to third national consultation on the UK National Data Strategy, 'Data: a new direction'
Geographic Reach National 
Policy Influence Type Participation in a national consultation
 
Description 2021.12 Response to the Information Commissioner's Office call for views: Anonymisation, pseudonymisation and privacy enhancing technologies guidance
Geographic Reach National 
Policy Influence Type Participation in a national consultation
 
Description ADR NI Steering board
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Participation in a advisory committee
 
Description ADR Wales cited in Welsh Governments National Digital Strategy 2021 as exemplar in academic/government partnership
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Gave evidence to a government review
URL https://gov.wales/digital-strategy-wales-html#section-66667
 
Description COVID19 vaccine uptake by ethnicity
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Participation in a advisory committee
 
Description Chair Ministry of Justice Data First group
Geographic Reach National 
Policy Influence Type Influenced training of practitioners or researchers
Impact As Chair of the MoJ Data Group, Prof Ford is supporting the MoJ programme of collation and sharing of their UK data for policy informing research purposes. This has led to agreed data shares which are an important development.
URL https://www.adruk.org/our-work/browse-all-projects/data-first-harnessing-the-potential-of-linked-adm...
 
Description Contributed to Learned Society of Wales response to Protecting and Transforming Health and Wellbeing and Planetary Health (Welsh Government) and engagement with the One Health Cymru Steering Group (Learned Society of Wales, Bevan Commission, Future Generations Commissioner)
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Gave evidence to a government review
 
Description Contributed to public debates and evidence submission to Welsh Government's ban on smacking children
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Gave evidence to a government review
 
Description Controlling COVID19 through enhanced population surveillance and intervention (Con-COV): a platform approach.
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Participation in a advisory committee
 
Description Controlling COVID19 through enhanced population surveillance and intervention (Con-COV): a platform approach.
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Participation in a advisory committee
 
Description Data Science Internship Programme
Geographic Reach National 
Policy Influence Type Influenced training of practitioners or researchers
URL https://www.youtube.com/watch?v=XFkBK-nqBYc
 
Description Emergency Medicine, Retrieval and Trauma Service (EMRTS) Evaluation.
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Participation in a advisory committee
 
Description Gave evidence on analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. School bubbles analysis.
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Gave evidence to a government review
 
Description Geonomic Partnership Wales R&I group
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Membership of a guideline committee
Impact Advising on genomic data at a Welsh National level - governance, research equity, uses
 
Description HMCTS Reform Panel
Geographic Reach National 
Policy Influence Type Membership of a guideline committee
URL https://www.gov.uk/guidance/the-hmcts-reform-programme
 
Description ICES Data Canada Advisory committee
Geographic Reach North America 
Policy Influence Type Participation in a advisory committee
URL https://www.ices.on.ca/
 
Description Membership of Welsh Government COVID19 Technical Advisory Group
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Participation in a advisory committee
Impact Professor Lyons has been an integral and valued member of the Covid-19 Technical advisory Group, reporting to both TAG and SAGE and providing crucial intelligence to researchers, public health experts and government advisors, policy officials and decision makers. This has enabled Welsh Government to act at pace to evaluate both the direct and indirect impacts of Covid-19 on the Welsh population. His work has been instrumental in informing the modelling and data used to help understand and predict the developing situation of the disease in Wales. Professor Lyons has been an insightful and candid voice at TAG and has contributed considerably to the consensus statements and advisory briefings that are formed there including: • Technical Advisory Group: Viral Variant VOC-202012/01 • Technical Advisory Group: Policy Modelling - December 2020 and January 2021 • Technical Advisory Group: Situation Report on COVID-19 Cases and Clusters associated with Schools • Technical Advisory Group: Statement regarding non-pharmaceutical interventions in the pre-Christmas period • Technical Advisory Group: Contacts with primary and secondary healthcare prior to suicide: case-control whole-population based study using person-level linked routine data in Wales, UK, 2000-2017 • Technical Advisory Group: Consensus statement on face coverings • Technical Advisory Group: The coronavirus pandemic: identifying and meeting future evidence and research needs for Wales • Technical Advisory Group: Pre and post-Christmas restrictions, • Technical Advisory Group: NHS and Health Harms • SAGE: NPIs toolbox • Technical Advisory Group: Preparing for a challenging winter in Wales 2020/21 • Technical Advisory Group: Face Coverings Consensus Statement • Technical Advisory Group: The coronavirus pandemic - research and evidence needs • Data sharing to support risk assessment for Health Care Workers - COVID19
 
Description Membership of Welsh Government Covid-19 Technical Advisory group
Geographic Reach National 
Policy Influence Type Participation in a advisory committee
Impact Membership of the group as an expert panel member. Specific advice on Mental health effects of the pandemic
URL https://gov.wales/technical-advisory-cell/terms-reference
 
Description Minimum passing distance
Geographic Reach National 
Policy Influence Type Gave evidence to a government review
 
Description Police and Crime Commissioners
Geographic Reach National 
Policy Influence Type Implementation circular/rapid advice/letter to e.g. Ministry of Health
 
Description Presented on SARS-CoV-2 vaccination by ethnicity update.
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Gave evidence to a government review
 
Description Reinvigorating health registries during COVID for rapid policy analyses
Geographic Reach Europe 
Policy Influence Type Participation in a advisory committee
URL https://www.registerkonferansen.no/
 
Description Report on the development of Inspirational Case Study for INFACT
Geographic Reach Europe 
Policy Influence Type Participation in a advisory committee
 
Description Research use cases measuring the impact of COVID-19 on population health.
Geographic Reach Europe 
Policy Influence Type Participation in a advisory committee
 
Description SAGE subcommittee participation - SPI-M and SPI-B
Geographic Reach National 
Policy Influence Type Membership of a guideline committee
Impact Both Prof Ann John and Dr Richard Fry have been active participants in the SAGE groups and their published works are included in 'publications' section and SAGE documents.
URL https://www.gov.uk/government/publications/scientific-advisory-group-for-emergencies-sage-coronaviru...
 
Description SAIL access to education data
Geographic Reach National 
Policy Influence Type Implementation circular/rapid advice/letter to e.g. Ministry of Health
 
Description Strategic Coordination of Health of the Public Research Committee (SCHOPR) to develop a set of public health research principles and goals to guide funding decisions
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Participation in a national consultation
 
Description The Secure Anonymised Information Linkage System
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Participation in a advisory committee
 
Description UKRI Panel - Secure Data Service
Geographic Reach National 
Policy Influence Type Citation in systematic reviews
 
Description UKRI e-Infrastructure Group
Geographic Reach National 
Policy Influence Type Participation in a advisory committee
 
Description Undergraduate TRE Pilot - Training and Capacity building
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Influenced training of practitioners or researchers
 
Description Update on research
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Participation in a advisory committee
 
Description Vulnerable populations and COVID: EU Population Health Information Research Infrastructure
Geographic Reach Europe 
Policy Influence Type Participation in a advisory committee
URL https://www.phiri.eu/
 
Description Welsh Government Homelessness Outcomes T&F Group
Geographic Reach Europe 
Policy Influence Type Membership of a guideline committee
 
Description A Data Platform and Analytics Service (DPAS)
Amount £998,608 (GBP)
Organisation Nuffield Foundation 
Sector Charity/Non Profit
Country United Kingdom
Start 08/2018 
End 03/2023
 
Description AD|ARC Project (Led by Welsh Government)
Amount £86,111 (GBP)
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 03/2022 
End 03/2023
 
Description AWISS 2020-2021
Amount £64,000 (GBP)
Organisation Public Health Wales NHS Trust 
Sector Public
Country United Kingdom
Start 03/2020 
End 03/2021
 
Description Administrative Data Research Centre Wales (Part of ADR UK)
Amount £13,196,318 (GBP)
Funding ID ES/W012227/1 
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 03/2022 
End 03/2026
 
Description Are people with COVID-19 and pre-existing respiratory disease at a higher risk of future cardiovascular and venous thromboembolic events compared with COVID-19 patients without pre-existing respiratory disease? HDRUK/Alan Turing Institute/ONS
Amount £248,760 (GBP)
Organisation Health Data Research UK 
Sector Private
Country United Kingdom
Start 09/2021 
End 09/2022
 
Description BREATHE
Amount £925,000 (GBP)
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 09/2019 
End 08/2022
 
Description Built Environments And Child Health in WalEs and AuStralia (BEACHES)
Amount $800,000 (AUD)
Funding ID MR/T039329/1 
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 04/2020 
End 05/2023
 
Description COVID19 epidemic policy simulations for Wales: Integrating spatial structure and routine linked health data for disease modelling
Amount £100,000 (GBP)
Organisation Government of Wales 
Sector Public
Country United Kingdom
Start 08/2020 
End 08/2021
 
Description Community level mapping of the impact of COVID-19 on non-COVID related service utilisation in Wales
Amount £252,015 (GBP)
Funding ID HRG-20-1755(P) 
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 09/2021 
End 10/2023
 
Description Controlling COVID-19 through enhanced population surveillance and intervention (Con-COV): a platform approach
Amount £833,046 (GBP)
Funding ID MR/V028367/1 
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 07/2020 
End 07/2021
 
Description Data phenotyping longitudinal multimorbidity trajectories in cardiovascular disease: a statistical machine learning approach using nationwide electronic healthcare records
Amount £301,553 (GBP)
Organisation Alan Turing Institute 
Sector Academic/University
Country United Kingdom
Start 12/2019 
End 11/2022
 
Description Development of a data cohort identifier system - Special Opportunities funding
Amount £68,000 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 03/2022 
End 03/2022
 
Description Does local authority care make a difference to the lives of vulnerable children? Longitudinal analyses of a retrospective electronic cohort
Amount £153,855 (GBP)
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 09/2018 
End 03/2020
 
Description Effects of shielding for Vulnerable people during COVID-19 pandemic on health outcomes, costs and Immunity including those with cancer: quasi-experimenTal Evaluation (EVITE Immunity)
Amount £174,318 (GBP)
Funding ID NCSi4P 
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 11/2020 
End 03/2021
 
Description Funding for ICNARC Data (Data required for pandemic response)
Amount £30,000 (GBP)
Organisation Government of Wales 
Sector Public
Country United Kingdom
Start 08/2020 
End 09/2021
 
Description HDR National Core Studies - Phase 1 2021-2022
Amount £2,300,000 (GBP)
Organisation Health Data Research UK 
Sector Private
Country United Kingdom
Start 03/2021 
End 09/2022
 
Description HDRUK
Amount £3,003,650 (GBP)
Funding ID NIWA1 
Organisation Health Data Research UK 
Sector Private
Country United Kingdom
Start 04/2018 
End 04/2023
 
Description Health wise Wales (Population Health data cohort) - Provision of Serp TRE
Amount £39,000 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 08/2020 
End 09/2022
 
Description How does the environment in and around the home impact social care and health outcomes for older people?
Amount £322,000 (GBP)
Funding ID SCG-19-1654 
Organisation Swansea University 
Sector Academic/University
Country United Kingdom
Start 01/2021 
End 01/2023
 
Description International COVID-19 Data Alliance
Amount £300,000 (GBP)
Funding ID 2020.112 
Organisation Health Data Research UK 
Sector Private
Country United Kingdom
Start 11/2020 
End 06/2021
 
Description Measuring and Understanding Multimorbidity Using Routine Data in the UK
Amount £1,004,703 (GBP)
Funding ID CFC0110 
Organisation Health Data Research UK 
Sector Private
Country United Kingdom
Start 06/2019 
End 03/2023
 
Description MoJ BOLD - Substance Misuse Project (Welsh Government and Public Health Wales Partners)
Amount £281,725 (GBP)
Organisation Ministry of Justice 
Sector Public
Country United Kingdom
Start 03/2022 
End 03/2024
 
Description NIHR RSF Support Service - Provision of support service for TRE linked data research and PI/E management
Amount £780,119 (GBP)
Funding ID NIHR202647 
Organisation National Institute for Health Research 
Sector Public
Country United Kingdom
Start 03/2021 
End 03/2024
 
Description National Core Studies (Infrastruture)
Amount £987,000 (GBP)
Organisation Health Data Research UK 
Sector Private
Country United Kingdom
Start 09/2020 
End 03/2021
 
Description Nuffield Foundation Justice Observatory
Amount £988,000 (GBP)
Organisation Nuffield Foundation 
Sector Charity/Non Profit
Country United Kingdom
Start 01/2019 
End 06/2023
 
Description Population Health Information Research Infrastructure - PHIRI (Mobilisation of Research infrastructure for the COVID-19 Public Health Emergency)
Amount € 5,000,000 (EUR)
Funding ID Horizon 2020-IBA-INFRA-CORONA-2020 
Organisation European Commission 
Sector Public
Country European Union (EU)
Start 11/2020 
End 10/2023
 
Description SAIL Dementia eCohort
Amount £50,308 (GBP)
Organisation UK Dementia Research Institute 
Sector Charity/Non Profit
Country United Kingdom
Start 01/2021 
End 08/2021
 
Description Secondary Data Analysis Intitiative (Katy Huxley)
Amount £201,000 (GBP)
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 11/2019 
End 03/2021
 
Description Secure Anonymised Information Linkage Databank (SAIL).
Amount £4,837,844 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 03/2020 
End 03/2025
 
Description Senior Research Leaders Discretionary Award
Amount £15,000 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 03/2021 
End 03/2022
 
Description Senior Research Leaders award 2020-2021
Amount £15,000 (GBP)
Funding ID SRL-19-06 
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 03/2020 
End 03/2021
 
Description TexGov Data Governance
Amount £12,386 (GBP)
Organisation Engineering and Physical Sciences Research Council (EPSRC) 
Sector Public
Country United Kingdom
Start 11/2018 
End 04/2019
 
Description The epidemiology, healthcare and societal cost of Melanoma in Wales: Analyses of standalone and linked national databases
Amount £7,706 (GBP)
Funding ID TIG2019-08 
Organisation Tenovus Cancer Care 
Sector Charity/Non Profit
Country United Kingdom
Start 03/2019 
End 03/2021
 
Description UKRI Innovation / Rutherford Fund Fellowships at HDR UK
Amount £560,000 (GBP)
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 02/2018 
End 02/2021
 
Description Unmet Legal Needs Project
Amount £76,000 (GBP)
Organisation The Legal Education Foundation 
Sector Charity/Non Profit
Country United Kingdom
Start 08/2018 
End 06/2019
 
Description WG Matched Funding for WISERD Education Data Lab (with Chris Taylor)
Amount £180,000 (GBP)
Organisation Government of Wales 
Sector Public
Country United Kingdom
Start 09/2019 
End 03/2021
 
Description WGP - Public attitudes and governance
Amount £130,347 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 03/2020 
End 03/2023
 
Description Wales Covid Evidence Centre
Amount £292,284 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 03/2021 
End 05/2022
 
Description Wales Covid Evidence Centre (Additional) - Special Opportunities funding
Amount £65,000 (GBP)
Organisation Cardiff University 
Sector Academic/University
Country United Kingdom
Start 03/2022 
End 03/2023
 
Description What is the uptake, safety and effectiveness of COVID-19 vaccines in: a. pregnancy; b. children and young people; c. those receiving booster doses; d. those co-administered COVID-19 and influenza vaccines?
Amount £249,775 (GBP)
Organisation Health Data Research UK 
Sector Private
Country United Kingdom
Start 09/2021 
End 09/2022
 
Title Data Concept Library 
Description Development of a library of sharable code for new and existing researchers to utilise and share. 
Type Of Material Improvements to research infrastructure 
Year Produced 2020 
Provided To Others? Yes  
Impact Shared code has been utilised by researchers across a wide range of data investments (UKRI, Welsh Government, Nuffield funded and many more) 
 
Title Data quality assessment tool 
Description An automated tool has been developed that give a robust quality assessment of data before it is provisioned. This allows any negative elements in the data (such as incompleteness) to either be corrected (if possible) or the researcher made aware of the quality of the data. 
Type Of Material Improvements to research infrastructure 
Year Produced 2019 
Provided To Others? Yes  
Impact It has allowed data to be assessed much more closely before provisioning ensuring that the maximum research equity is obtained from the data. 
 
Title Health wise Wales (National population data cohort survey) provision of Serp TRE 
Description Health wise Wales is a Welsh Government population health survey which acquires survey data across a wide range of health, wellbeing and societal states. The Serp technology allows them to securely analyse their own data whilst also making it securely available to other users remotely for analysis. Secure eResearch Platform (SeRP) developed by SAIL/ADR Wales/HDR UK at Swansea University is a complete customisable solution for data sharing, linkage and analysis in a safe, secure and controlled environment that's accredited to the highest international standard. It does this in a governed environment allowing data owners to remain in full control at all times. SeRP is independently audited and accredited to the highest standards. ISO 27001 is an internationally recognised best-practice standard for an information Security Management System (ISMS). A UK Statistics Authority accreditation also means that SeRP is an 'Accredited Processor' under the terms of the Digital Economy Act 2017. SeRP is entrusted by world-leading organisations and institutions as a comprehensive data platform. These accreditations, and dedicated legal and compliance expertise, demonstrate SeRP's commitment to a robust governance policy and to the continuous improvement of its systems and associated controls. 
Type Of Material Improvements to research infrastructure 
Year Produced 2018 
Provided To Others? Yes  
Impact Provided ability to link Health wise Wales data to Covid-19 related data for pandemic understanding amongst specific groups Allows the value of the Health wise Wales data to be analysed remotely beyond Wales Allows greater collaboration as the platform governance and stringent accreditations are an assurance to data owners. Has allowed Health wise Wales to setup an income generation service that will assist with their groups sustainability 
URL https://popdatasci.swan.ac.uk/products-services/secure-e-research-platform/
 
Title MetadataWorx - Metadata development for all data assets 
Description Work was undertaken (led by HDR) and an external organisation (MetadataWorx) to improve and standardise metadata related to the data holdings of TREs 
Type Of Material Improvements to research infrastructure 
Year Produced 2020 
Provided To Others? Yes  
Impact Standardised work made metadata more accessible to researchers and also the standardisation across TREs had been of benefit. 
 
Title Phenotype Library (Development of Concept Library) 
Description The SAIL Analytical Team has created the Concept Library, a web application for creating, sharing, and using phenotypes. The Phenotype library is a specific development for projects large enough to require their own subset library with additional functionality. Phenotype Library Key features: • A custom site within the existing Concepts Library that can display phenotypes created by an individual project (admin data or health data). • Customized phenotype definitions that support a projects specific reporting requirements. • The ability to instantly share content so that it appears in the HDR-UK Phenotype Library. • Access for researchers to be able to create and modify phenotype content. • New authorship features to be able to support rapid comparative analysis of published code lists for the creation of additional phenotypes. 
Type Of Material Improvements to research infrastructure 
Year Produced 2021 
Provided To Others? No  
Impact The first project to utilise the specific Phenotype library (HDR BREATHE) is BETA testing it, an update on the progress of the tool will be included in the 2023 RFish. 
 
Title Provision of Serp Trusted Research environment to Northern Ireland 'Honest Broker service' 
Description The NI HBS provides approved researchers with access to linked, de-identified health data via a safe setting. The HBS works under the Five Safes Framework to protect data confidentiality. All research projects are approved by the Honest Broker Service Governance Board, projects must relate to Health and Social Care and be in the public interest in that they will support development/delivery of public policy. The safe setting is either accessed via attendance at the Safe Haven in BSO's headquarters in Franklin Street Belfast or via the Health Data Research Northern Ireland UK Secure e-Research Platform (HDRNI UK SeRP). The Serp was developed by SAIL/ADR Wales staff and the Secure eResearch Platform (SeRP) is the complete customisable solution for data sharing, linkage and analysis in a safe, secure and controlled environment that's accredited to the highest international standard. It does this in a governed environment allowing data owners to remain in full control at all times. SeRP is independently audited and accredited to the highest standards. ISO 27001 is an internationally recognised best-practice standard for an information Security Management System (ISMS). A UK Statistics Authority accreditation also means that SeRP is an 'Accredited Processor' under the terms of the Digital Economy Act 2017. SeRP is entrusted by world-leading organisations and institutions as a comprehensive data platform. These accreditations, and dedicated legal and compliance expertise, demonstrate SeRP's commitment to a robust governance policy and to the continuous improvement of its systems and associated controls. The service provides secure project areas where researchers can collaborate, link data, share code and results within their same approved research project. Researchers attending the safe haven or accessing data remotely via the HDRNI UK SeRP have access to a range of analytical and statistical tools to support the project. This development of the NI infrastructure by ADR Wales colleagues has significantly increased the ability of HDRUK NI and ADR NI to remotely access linked data securely. This has been especially beneficial during the pandemic. 
Type Of Material Improvements to research infrastructure 
Year Produced 2019 
Provided To Others? Yes  
Impact HDRUK and ADR NI staff as well as government and NHS researchers were able to remotely access a fully accredited data research environment. It has massively improved the ability of NI to ingest and link new data sources 
URL https://hscbusiness.hscni.net/services/2454.htm
 
Title Rapid cohort identification system 
Description The tool will allow rapid identification of cohorts from population level data for the following purposes: 1. Identification of clinical trial participants (not disclosed at individual level, it provides a feasibility assessment that a viable cohort exists within a geography) 2. Identification of groups with specific characteristics (not disclosed at individual level) The purpose of the tool is to allow a rapid assessment of the size of a pre defined group within a population that have specific societal status and/or health issues. It will operate as an information and feasibility tool. It has been funded by Welsh Government to build on work that was undertaken to identify specific groups that were at risk during the pandemic. 
Type Of Material Improvements to research infrastructure 
Year Produced 2022 
Provided To Others? No  
Impact The Beta model has just been developed and is undergoing testing, impacts will be reported in the next submission. 
 
Title Welsh Education Metadata 
Description Creation of a metadata spreadsheet to detail all education data available in Wales, to aid researchers in understanding the education data available 
Type Of Material Improvements to research infrastructure 
Year Produced 2020 
Provided To Others? Yes  
Impact Provided knowledge and understanding of data and codes for at least 10 researchers. Direct impact of the work yet to be determined 
 
Title Welsh Government UKSeRP 
Description Provision of UKSeRP secure data analysis infrastructure to the Welsh Government team for use across a range of their projects 
Type Of Material Improvements to research infrastructure 
Year Produced 2019 
Provided To Others? Yes  
Impact Welsh Government are assessing the capabilities that the platform offers them and are in the process of planning research projects that will benefit greatly from the project 
 
Title CDDS 
Description Covid rapid response data 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact ADR Wales acquisition of Covid datasets has supported a range of projects informing policy and care decisions across government (local and national) and the NHS. Collectively, Covid datasets have supported SAIL, ADR Wales and HDR UK in informing the Chief Medical Officer, SAGE, SPI-M and senior NHS decision makers 
 
Title CENW 
Description Covid rapid response data 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact ADR Wales acquisition of Covid datasets has supported a range of projects informing policy and care decisions across government (local and national) and the NHS. Collectively, Covid datasets have supported SAIL, ADR Wales and HDR UK in informing the Chief Medical Officer, SAGE, SPI-M and senior NHS decision makers 
 
Title Cafcass - England 
Description Cafcass (Court and Family Advisory And Support Service - Data covers all activities relating to children and family justice that Cafcass England undertake. 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact Utilised by Nuffield Family Justice observatory and SAIL - Outputs in RFish 
 
Title Cafcass - Wales 
Description ADRWales undertook the acquisition of Cafcass (Children and Family Court Advisory and Support Service Wales) data. Successfully acquired and will be utilised by Early Years SIP as well as Nuffield Family Justice Data Platform 
Type Of Material Database/Collection of data 
Year Produced 2019 
Provided To Others? Yes  
Impact Increasing the research value of the overall datasets available to the ADR Wales/ADRU Welsh Government research teams. This in turn contributes to further engagements, collaborative opportunities and impact on policy (tracked separately in other ResearchFish sections) 
 
Title Cancer Network Information System Cymru (CaNISC) 
Description Details of cancer services and patients across Wales. 
Type Of Material Database/Collection of data 
Year Produced 2021 
Provided To Others? Yes  
Impact Utilised by SAIL and HDR researchers. 
 
Title Careers Wales Data 
Description Data of all post 16 Careers advice and support in Wales 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact Currently being utilised to look at post 16 career choices and the structure of careers advice outcomes 
 
Title Census 2011 (Wales specific) 
Description Copy of the Wales extract of 2011 Census from ONS (Provisioned only under DEA accreditation process) 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact Impacts to be reported in 2022 submission 
 
Title Children receiving care and support 
Description Critical dataset for research on effects of Local Authority care on child outcomes 
Type Of Material Database/Collection of data 
Year Produced 2019 
Provided To Others? Yes  
Impact Increasing the research value of the overall datasets available to the ADR Wales/ADRU Welsh Government research teams. This in turn contributes to further engagements, collaborative opportunities and impact on policy (tracked separately in other ResearchFish sections) 
 
Title Children's Social Care dataset 
Description New pre 2016 Welsh Gov Children's Social Care dataset 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact Increasing the research value of the overall datasets available to the ADR Wales/ADRU Welsh Government research teams. This in turn contributes to further engagements, collaborative opportunities and impact on policy (tracked separately in other ResearchFish sections) 
 
Title Covid Vaccine Dataset - Wales 
Description Covid rapid response data - Dataset covering vaccine status of demographic groups across Wales 
Type Of Material Database/Collection of data 
Year Produced 2021 
Provided To Others? Yes  
Impact ADR Wales acquisition of Covid datasets has supported a range of projects informing policy and care decisions across government (local and national) and the NHS. Collectively, Covid datasets have supported SAIL, ADR Wales and HDR UK in informing the Chief Medical Officer, SAGE, SPI-M and senior NHS decision makers 
 
Title Covid-19 Lateral flow Test data 
Description Covid rapid response data - Lateral flow test data (separate dataset to PCR) 
Type Of Material Database/Collection of data 
Year Produced 2021 
Provided To Others? Yes  
Impact ADR Wales acquisition of Covid datasets has supported a range of projects informing policy and care decisions across government (local and national) and the NHS. Collectively, Covid datasets have supported SAIL, ADR Wales and HDR UK in informing the Chief Medical Officer, SAGE, SPI-M and senior NHS decision makers 
 
Title Covid-19 Pathology Data 
Description Patient data to analyse pathology relating to Covid-19 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact ADR Wales acquisition of Covid datasets has supported a range of projects informing policy and care decisions across government (local and national) and the NHS. Collectively, Covid datasets have supported SAIL, ADR Wales and HDR UK in informing the Chief Medical Officer, SAGE, SPI-M and senior NHS decision makers 
 
Title Covid-19 Sequencing Data 
Description Covid rapid response data - Sequencing of Covid-19 
Type Of Material Database/Collection of data 
Year Produced 2021 
Provided To Others? Yes  
Impact ADR Wales acquisition of Covid datasets has supported a range of projects informing policy and care decisions across government (local and national) and the NHS. Collectively, Covid datasets have supported SAIL, ADR Wales and HDR UK in informing the Chief Medical Officer, SAGE, SPI-M and senior NHS decision makers 
 
Title Covid-19 Shielded people list 
Description Covid rapid response data - details of older people and clinically vulnerable who are actively shielding 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact ADR Wales acquisition of Covid datasets has supported a range of projects informing policy and care decisions across government (local and national) and the NHS. Collectively, Covid datasets have supported SAIL, ADR Wales and HDR UK in informing the Chief Medical Officer, SAGE, SPI-M and senior NHS decision makers 
 
Title Covid-19 Test, Trace, Protect Wales dataset 
Description Dataset contains full details of the test, trace protect system in operation during the pandemic. 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact ADR Wales acquisition of Covid datasets has supported a range of projects informing policy and care decisions across government (local and national) and the NHS. Collectively, Covid datasets have supported SAIL, ADR Wales and HDR UK in informing the Chief Medical Officer, SAGE, SPI-M and senior NHS decision makers 
 
Title Cystic Fibrosis Register 
Description Register of cystic fibrosis patients in Wales 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact Greater focus on CS research 
 
Title Domiciliary Social Care Workforce Dataset 
Description Dataset covers full range of domiciliary care staff and services in Wales 
Type Of Material Database/Collection of data 
Year Produced 2021 
Provided To Others? Yes  
Impact Currently being used for Covid-19 response 
 
Title EU Farm Structure Survey Wales 
Description Survey that outlines location, size and configuration of farms in Wales 
Type Of Material Database/Collection of data 
Year Produced 2021 
Provided To Others? Yes  
Impact Utilised in ADR UK AD|ARC 4 nations project 
 
Title Emergency Department Admissions Data Wales 
Description Covid rapid response data 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact ADR Wales acquisition of Covid datasets has supported a range of projects informing policy and care decisions across government (local and national) and the NHS. Collectively, Covid datasets have supported SAIL, ADR Wales and HDR UK in informing the Chief Medical Officer, SAGE, SPI-M and senior NHS decision makers 
 
Title Emma Squires - Swansea University Data Science Impact Tracker 
Description Outputs and impact tracking system for Swansea University Data Science research projects 
Type Of Material Database/Collection of data 
Year Produced 2018 
Provided To Others? Yes  
Impact Assists with the collation and further dissemination of outputs generated by research centre for the purposes of driving and deriving impact. 
 
Title Family Man, Courts Data 
Description MOJ Discussions underway for data that is being made available under Data First programme- courts data, Family man etc. 
Type Of Material Database/Collection of data 
Year Produced 2021 
Provided To Others? No  
Impact Increasing the research value of the overall datasets available to the ADR Wales/ADRU Welsh Government research teams. This in turn contributes to further engagements, collaborative opportunities and impact on policy (tracked separately in other ResearchFish sections) 
 
Title Gypsy and Travellers Caravan Count 
Description Gypsy and Travellers Caravan Count data has been uploaded into SAIL. 
Type Of Material Database/Collection of data 
Year Produced 2019 
Provided To Others? Yes  
Impact Increasing the research value of the overall datasets available to the ADR Wales/ADRU Welsh Government research teams. This in turn contributes to further engagements, collaborative opportunities and impact on policy (tracked separately in other ResearchFish sections) 
 
Title Housing Stock Analytical Resource - HSAR 
Description Major Housing Stock Analytical Resource (HSAR) files uploaded to ADR Wales WG UKSeRP 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact Increasing the research value of the overall datasets available to the ADR Wales/ADRU Welsh Government research teams. This in turn contributes to further engagements, collaborative opportunities and impact on policy (tracked separately in other ResearchFish sections) 
 
Title Hwb 
Description HwB is the online learning platform for pupils in Wales and this dataset offers the potential for analysing the extent of virtual learning accessed by pupils during lockdown 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact Increasing the research value of the overall datasets available to the ADR Wales/ADRU Welsh Government research teams. This in turn contributes to further engagements, collaborative opportunities and impact on policy (tracked separately in other ResearchFish sections) 
 
Title ICNARC Intensive Care Data (Covid-19 response) 
Description Comprehensive weekly extract concerning ICU and HDU occupancy in UK 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact Used as part of National Core Studies and the One Wales Covid response for Welsh Government and UK SAGE 
 
Title Ian Thomas - Data provisioning for Supporting People 
Description Data from Swansea Housing Options was sent to SAIL/NWIS. Housing Options data relates to assistance provided to people who are homeless or at risk of homelessness by the City and County of Swansea Council. Data were primarily for use in ADRC-W project PROJ-0127. 
Type Of Material Database/Collection of data 
Year Produced 2018 
Provided To Others? Yes  
Impact Data have also been explored for use as part of ADRC-W project PROJ-0118 (Supporting People). Intended use of the data will be to create a comparison group of homeless people. Housing Options data has become a core restricted resource within the Secure Anonymised Information (SAIL) databank, and can therefore be used in other studies wishing to explore homelessness. 
 
Title Lifelong Learning Wales Record (Wales) LLWR new 
Description Comprehensive set of data covering all post 16 education in Wales including adult learning. 
Type Of Material Database/Collection of data 
Year Produced 2019 
Provided To Others? Yes  
Impact Data has been used in a range of thematic research projects from investments including: ADR Wales (Policy informing research education) SAIL Databank (Children's health and child wellbeing) HDR UK Nuffield Family Justice Data Platform 
URL https://gov.wales/lifelong-learning-wales-record-llwr
 
Title Millennium Cohort Study (MCS) 
Description he Millennium Cohort Study (MCS), known as 'Child of the New Century' to cohort members and their families, is following the lives of around 19,000 young people born across England, Scotland, Wales and Northern Ireland in 2000-02. The study began with an original sample of 18,818 cohort members. 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact Utilised by researchers across SAIL, ADR Wales and HDR UK. 
 
Title MoJ Prisoner Data 
Description In discussions with Ministry of Justice, SAIL colleagues and the Mental Health SIP lead, Professor Ann John, over the acquisition of prisoner data to enable research on the health of prisoners. Discussions positive. Police and crime commisoner x4 agreement. Jan 2020. Discussions ongoing with AJ, KH and MoJ. Feb 2021 - Imminent signing of agreement for data on prison population, also in discussions re data that is being made available under Data First programme- courts data, Family man etc. 
Type Of Material Database/Collection of data 
Year Produced 2021 
Provided To Others? No  
Impact Increasing the research value of the overall datasets available to the ADR Wales/ADRU Welsh Government research teams. This in turn contributes to further engagements, collaborative opportunities and impact on policy (tracked separately in other ResearchFish sections) 
 
Title National Pupil Database Wales (NPD) 
Description NPD data for Wales uploaded to SAIL with Welsh Examinations Database. 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact Increasing the research value of the overall datasets available to the ADR Wales/ADRU Welsh Government research teams. This in turn contributes to further engagements, collaborative opportunities and impact on policy (tracked separately in other ResearchFish sections) 
 
Title Prisoner population dataset 
Description Dataset provided by National Offender Management Service for a specific mental health project. 
Type Of Material Database/Collection of data 
Year Produced 2021 
Provided To Others? No  
Impact Dataset being utilised for a specific project concerning prisoners mental health. It is currently not accessible to other research groups. 
 
Title Pupil Level Annual Census - PLAC 
Description NPD, HESA, PLASC data made available for Education Data Lab (funded by ESRC and WG). 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact Increasing the research value of the overall datasets available to the ADR Wales/ADRU Welsh Government research teams. This in turn contributes to further engagements, collaborative opportunities and impact on policy (tracked separately in other ResearchFish sections) 
 
Title Rural Payments Wales 
Description Record of rural payments to agricultural and rural businesses who qualify for government support 
Type Of Material Database/Collection of data 
Year Produced 2021 
Provided To Others? Yes  
Impact Used in 4 nations AD|ARC project. Assisting policy in each administration. 
 
Title School Workforce Annual Census Wales - SWAC 
Description School Workforce Annual Census 
Type Of Material Database/Collection of data 
Year Produced 2019 
Provided To Others? Yes  
Impact Increasing the research value of the overall datasets available to the ADR Wales/ADRU Welsh Government research teams. This in turn contributes to further engagements, collaborative opportunities and impact on policy (tracked separately in other ResearchFish sections) 
 
Title Suspected Cancer Pathway 
Description Cancer pathway data 
Type Of Material Database/Collection of data 
Year Produced 2021 
Provided To Others? No  
Impact Being used by SAIL users 
 
Title Systemic Anti-Cancer Therapy 
Description Details of type and patients undergoing systemic anti cancer treatment. 
Type Of Material Database/Collection of data 
Year Produced 2021 
Provided To Others? Yes  
Impact Currently being utilised by SAIL users 
 
Title UK Level HESA 
Description First UK level dataset has been uploaded to SAIL: Higher Education Statistics Agency data. This is the first new UK level dataset which will be made available to researchers across the UK. This will support projects on the labour market, and work of work, and education sectors. Academics and researchers are very excited! NPD, HESA, PLASC data made available for Education Data Lab (funded by ESRC and WG). 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact Increasing the research value of the overall datasets available to the ADR Wales/ADRU Welsh Government research teams. This in turn contributes to further engagements, collaborative opportunities and impact on policy (tracked separately in other ResearchFish sections) 
 
Title Understanding and responding to COVID19 in Wales: protocol for a privacy protecting data platform for enhanced epidemiology and evaluation of interventions 
Description Development of a total population platform to help control the COVID19 pandemic 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact Analyses from this dataset has informed Welsh Government COVID19 Technical Advisory Group and SAGE on the development of the pandemic, transmission in care homes and schools and the effectiveness of countermeasures 
URL https://bmjopen.bmj.com/content/bmjopen/10/10/e043010.full.pdf
 
Title WASD - Wales Ambulance Service Dataset 
Description Covid rapid response data - Welsh Ambulance data Events Responses Clinical information 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact ADR Wales acquisition of Covid datasets has supported a range of projects informing policy and care decisions across government (local and national) and the NHS. Collectively, Covid datasets have supported SAIL, ADR Wales and HDR UK in informing the Chief Medical Officer, SAGE, SPI-M and senior NHS decision makers 
 
Title WEDL Database 
Description Amalgamation of education records held within SAIL Databank to create analytical data base 
Type Of Material Database/Collection of data 
Year Produced 2019 
Provided To Others? No  
Impact Not yet known - the funding award was recent, but the additional research capacity within the ADR Wales Skills and Employability SIP provides an opportunity for an even broader range of impactful research attributable to ADR Wales 
 
Title Wales Demographic Service 
Description Longitudinal linkage dataset based on NHS numbers 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact WDS data allows the linkage of new datasets based on the presence of a unique identifier (NHS number) 
 
Title Welsh GP Data renewal and uplift of refresh 
Description Covid rapid response data 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact ADR Wales acquisition of Covid datasets has supported a range of projects informing policy and care decisions across government (local and national) and the NHS. Collectively, Covid datasets have supported SAIL, ADR Wales and HDR UK in informing the Chief Medical Officer, SAGE, SPI-M and senior NHS decision makers. Data also widely used across many thematic research areas. 
 
Title Zoe Symptom Tracker App Data 
Description Covid rapid response data - Zoe Covid Symptom App data (community collected) Kings College London. Prof T Spector PI 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact Data used for studi3es in SAIL and also used on Zoe data platform (See clinical section on RFish) 
 
Description ADR Wales Priority Project Development Team 
Organisation Government of Scotland
Country United Kingdom 
Sector Public 
PI Contribution Building on the success of ADR Wales in developing cross-UK collaborative projects (in particular the strong, successful collaboration across all four countries of the UK created to secure RCB funding for the AD|ARC project), the Priority Projects Development Team, made up of government analysts and ADR Wales academics, is responsible for managing relationships and partnerships to develop proposals for new large-scale projects and seek out opportunities to lever in additional funding. Both the academic and government support the delivery of this group which is actively engaging with partners from ADR UK and across the UK to develop priority data research projects and leverage additional funding.
Collaborator Contribution Welsh Government and partners in bids work jointly with academic partners to liaise with policy areas, define objectives, identify funding and develop bids and/or business cases.
Impact Active bids are under consideration. Results will be recorded in the next ResearchFish session in 2023.
Start Year 2021
 
Description ADR Wales Priority Project Development Team 
Organisation Government of Wales
Country United Kingdom 
Sector Public 
PI Contribution Building on the success of ADR Wales in developing cross-UK collaborative projects (in particular the strong, successful collaboration across all four countries of the UK created to secure RCB funding for the AD|ARC project), the Priority Projects Development Team, made up of government analysts and ADR Wales academics, is responsible for managing relationships and partnerships to develop proposals for new large-scale projects and seek out opportunities to lever in additional funding. Both the academic and government support the delivery of this group which is actively engaging with partners from ADR UK and across the UK to develop priority data research projects and leverage additional funding.
Collaborator Contribution Welsh Government and partners in bids work jointly with academic partners to liaise with policy areas, define objectives, identify funding and develop bids and/or business cases.
Impact Active bids are under consideration. Results will be recorded in the next ResearchFish session in 2023.
Start Year 2021
 
Description CAFCASS 
Organisation Children and Family Court Advisory and Support Service
Country United Kingdom 
Sector Public 
PI Contribution ADR Wales commit to undertake policy impact driven data research using provided datasets linked with additional data assets
Collaborator Contribution Provision of public and private law case management system data from CAFCASS Wales. Provision of case file data from CAFCASS England.
Impact Research is ongoing with data provision from CAFCASS Wales, whilst discussions around the use of case data (CAFCASS England provision) are ongoing
Start Year 2019
 
Description Careers Wales - Employability knowledge development 
Organisation Careers Wales
Country United Kingdom 
Sector Public 
PI Contribution ADR Wales engaged with Careers |Wales initially to progress a sharing of a dataset that contained all Wales coverage of young people career progression and returners to the labour force. ADR Wales supported all elements of the data share from governance to technical. We then agreed a programme of outputs for Careers Wales as a benefit for them sharing data.
Collaborator Contribution Provision of data Provision of policy imperative research questions
Impact Data shared to SAIL Databank (Listed in another section of RFish) Policy relevant findings derived from the research and sent to Careers Wales
Start Year 2020
 
Description Careers Wales - Employability knowledge development 
Organisation Government of Wales
Country United Kingdom 
Sector Public 
PI Contribution ADR Wales engaged with Careers |Wales initially to progress a sharing of a dataset that contained all Wales coverage of young people career progression and returners to the labour force. ADR Wales supported all elements of the data share from governance to technical. We then agreed a programme of outputs for Careers Wales as a benefit for them sharing data.
Collaborator Contribution Provision of data Provision of policy imperative research questions
Impact Data shared to SAIL Databank (Listed in another section of RFish) Policy relevant findings derived from the research and sent to Careers Wales
Start Year 2020
 
Description Creation of OneWales team to maximise production of policy relevant research to Welsh Government 
Organisation Government of Wales
Country United Kingdom 
Sector Public 
PI Contribution Our HDRUK and ADRUK funded analysts working in collaboration with colleagues at Public Health Wales NHS Trust and Swansea and Cardiff universities provide frequent analysed of data on the evolving COVID19 pandemic in Wales to Welsh Government COVID19 Technical Advisory Group and subgroups
Collaborator Contribution Contribution of funding for additional analyses and expertise from many areas of Government to help define and answer policy relevant questions
Impact Multiple outputs available at: https://gov.wales/publications?field_external_organisations%5B30180%5D=30180
Start Year 2020
 
Description ESRC DTC 
Organisation Cardiff University
Country United Kingdom 
Sector Academic/University 
PI Contribution Undertaking work with the DTC concerning supporting PhDs in linked data research. Running a pilot between SAIL and the CASCADE partnership, supporting 3 PhDs with a package of linked data support.
Collaborator Contribution Provided information and a pilot programme to assist in developing future models of support for PhD students that are undertaking linked data research with a TRE for their PhD. Feeding this knowledge up to the ADRUK/ESRC Strategic Training and Capacity Building Group
Impact Pilot programme of 3 PhDs (with package of linked data support)
Start Year 2021
 
Description Healthwise Wales 
Organisation Cardiff University
Country United Kingdom 
Sector Academic/University 
PI Contribution ADR has supported the development of the HWW national survey data to be used as a consented cohort in their research. Knowledge exchange
Collaborator Contribution Supply of their data for use by other researchers
Impact Collaboration supports the provision of data to external projects rather than actual inclusion in the research being undertaken.
Start Year 2020
 
Description ICODA - International Workbench 
Organisation Health Data Research UK
Country United Kingdom 
Sector Private 
PI Contribution The International COVID-19 Data Research Alliance (ICODA) provides a co-ordinated international platform for researchers to discover and request access global data, helping to drive rapid insights into COVID-19 and speed up the development of treatments. Convened by Health Data Research UK (HDR UK), ICODA is an independent consortium of leading life science, philanthropic and research organisations uniting to respond to the COVID-19 global pandemic. ICODA is funded by the COVID-19 Therapeutics Accelerator Program. SAIL provided the TRE to support the 'workbench' data product an ingested and provisioned data from countries across the World as part of a phase 1 pilot.
Collaborator Contribution HDR UK managed the components of the project including oversight of SAIL technical delivery work package.
Impact Outcomes - Developed governance model and ability to ingest, manage and provision international data for individual countries, in effect making SAIL a 'hub' TRE for less developed countries.
Start Year 2021
 
Description MCS - UCL 
Organisation University College London
Country United Kingdom 
Sector Academic/University 
PI Contribution ADR Wales commit to undertake policy impact driven data research using provided datasets linked with additional data assets
Collaborator Contribution Provision of agreed MCS datasets. The study began in 2000 and is conducted by the Centre for Longitudinal Studies (CLS), it aims to chart the conditions of social, economic and health advantages and disadvantages facing children born at the start of the 21st Century.
Impact Research using provisioned data is ongoing
Start Year 2019
 
Description MoJ BOLD Research Programme (Better Outcomes from Linked Data) 
Organisation Government of Wales
Country United Kingdom 
Sector Public 
PI Contribution The MoJ BOLD Team, Public Health Wales and Welsh Government and ADR Wales have partnered on a project to analyse impacts of substance misuse on individuals, health services and society. Project in very early stages Also supporting BOLD, via ADRUK with its stragey
Collaborator Contribution Outlines the benefits of using a TRE for this activity Promoted the work of ADRUK and an assurance to BOLD that the team had extensive experience in linked data research at a UK level. Developed project methodology and research objectives Identified required data
Impact Early stages, no outputs yet. Will be captured in the next RFish period.
Start Year 2022
 
Description MoJ BOLD Research Programme (Better Outcomes from Linked Data) 
Organisation Ministry of Justice
Country United Kingdom 
Sector Public 
PI Contribution The MoJ BOLD Team, Public Health Wales and Welsh Government and ADR Wales have partnered on a project to analyse impacts of substance misuse on individuals, health services and society. Project in very early stages Also supporting BOLD, via ADRUK with its stragey
Collaborator Contribution Outlines the benefits of using a TRE for this activity Promoted the work of ADRUK and an assurance to BOLD that the team had extensive experience in linked data research at a UK level. Developed project methodology and research objectives Identified required data
Impact Early stages, no outputs yet. Will be captured in the next RFish period.
Start Year 2022
 
Description MoJ BOLD Research Programme (Better Outcomes from Linked Data) 
Organisation Public Health Wales NHS Trust
Country United Kingdom 
Sector Public 
PI Contribution The MoJ BOLD Team, Public Health Wales and Welsh Government and ADR Wales have partnered on a project to analyse impacts of substance misuse on individuals, health services and society. Project in very early stages Also supporting BOLD, via ADRUK with its stragey
Collaborator Contribution Outlines the benefits of using a TRE for this activity Promoted the work of ADRUK and an assurance to BOLD that the team had extensive experience in linked data research at a UK level. Developed project methodology and research objectives Identified required data
Impact Early stages, no outputs yet. Will be captured in the next RFish period.
Start Year 2022
 
Description MoJ Datafirst 
Organisation Ministry of Justice
Country United Kingdom 
Sector Public 
PI Contribution Data First is an ambitious data-linking programme led by the Ministry of Justice (MoJ) and funded by ADR UK. It aims to harness the potential of the wealth of data already created by MoJ, by linking administrative datasets from across the justice system and beyond, and enabling researchers within government as well as approved academics - to access the data in an ethical and responsible way. It is led by ADRUK and the data group is chaired by Prof David Ford as the PI of ADRC Wales
Collaborator Contribution Partners will enhance the potential of data linking, both internally within MoJ, as well as externally with other government departments. Internal data linking work will link civil, family and criminal justice administrative datasets held by MoJ, including datasets from its executive agencies such as Her Majesty's Prison and Probation Service (HMPPS) and HM Courts and Tribunals Service (HMCTS). External data linking will seek to bring justice data together with data held by other large government departments, such as the Department for Education.
Impact Initial outputs not yet published
Start Year 2021
 
Description National Core Studies (NCS) 
Organisation Department for Work and Pensions
Country United Kingdom 
Sector Public 
PI Contribution The National Core Studies were initiated by the CSA Sir Patrick Vallance as part of teh response to Covid-19. The SAIL Databank and the population data science group at Swansea were well-positioned to rapidly support the NCS Data & Connectivity objectives owing to its: Well established infrastructure and networks that have existed since 2006. Robust governance mechanisms to ensure safe researcher access and high-quality research output. High Performance Computing capabilities afforded by the Secure eResearch Platform (SeRP) technology. Emphasis on public involvement to ensure all research using SAIL data delivers positive outcomes for people and society. Expertise from researchers and data scientists to deliver research and intelligence, as well as enable and support collaboration across the UK. The success of the One Wales response has been driven by NCS foresight and the strong collaborative bond between HDR UK, ADR UK and SAIL Databank to work adaptively and with urgency to confront COVID-19. The Data & Connectivity arm of NCS has supported the acquisition of a host of new COVID-19-specific data, along with the increased cadence and availability of flows of existing data sources within SAIL Databank. The vital new data assets include: COVID-19 Consolidated Deaths (CDDS) COVID-19 Shielded People List (CVSP) COVID-19 Test Results (PATD) Healthcare Workers Risk Assessment (HWRA) Critical Care Dataset (CCDS) COVID-19 Symptom Tracker Dataset (CVST) Covid Lateral Flow Test (CVLF) COVID-19 Test Trace and Protect (CTTP) Intensive Care National Audit and Research Centre - Covid19 (ICNC) Intensive Care National Audit and Research Centre - Covid19 (ICNC) ADDD Annual District Death Daily CVVD COVID Vaccine Data DSRD Daily Situation Report Data EDDD Emergency Department Dataset Daily GPCD General Practice COVID daily NHSO NHS 111 Call data SACT Systemic Anti-Cancer Therapy WASD Welsh Ambulance Service Dataset CNIS Cancer Network Information System Cymru (CaNISC) CVSD COVID-19 Sequence Data EDAD Education Attendance Data SCPM Suspected Cancer Pathway Monthly WDDS Wales Dispensing DataSet DSCW Domiciliary Social Care Workers SWAC School Workforce Annual Census The acquisition of this data allowed over 130 collaborative research projects to be executed.
Collaborator Contribution The collaborative partnership that enabled the NCS work which was led by the Swansea University Health Data Research UK team under the direction of the Welsh Government Technical Advisory Cell (TAC) and includes the following groups and organisations: the Secure Anonymised Information Linkage (SAIL) Databank, Administrative Data Research (ADR) Wales, Digital Health and Care Wales (DHCW formerly NHS Wales Informatics Service (NWIS), Public Health Wales, NHS Shared Services and the Welsh Ambulance Service Trust (WAST). Partners provided policy requirements, research capability and made available data. Strategic NCS partners included ONS, DWP, ADRUK, HDRUK and provided strong strategic direction and oversight of the programme.
Impact Below are a list of some of the outputs. All research was undertaken by a multidisciplinary team consisting of SAIL/ADR Wales/HDRUK/Welsh Government/Public Health Wales Vulnerable People - REPORT ON COVID-19 IMPACT ON SHIELDED PEOPLE - Provided evidence to Welsh Government of the support needs of those shielding. Children & Young People - STUDY SHOWS THE OPENING OF SCHOOLS IN WALES WAS NOT ASSOCIATED WITH AN INCREASED COVID-19 RISK TO STAFF- Informed government's approach to re-opening schools following lockdown. Ethnic Minority Groups THE COLLABORATIVE APPROACH AIDING UNDERSTANDING OF VACCINE UPTAKE AND SAFETY IN WALES- Highlighted vaccination gaps between ethnic minorities and general population for targeted interventions. People Living in Deprived Areas RESEARCH UNCOVERS COVID-19 VACCINATION INEQUALITIES THROUGHOUT WALES- Enabled Welsh Government to target interventions towards specific communities. Healthcare Workers STUDY TO ASSESS RISK OF COVID-19 TO HEALTH OF DOMICILIARY CARE WORKERS IN WALES- Highlight the risks to staff to support safety improvements for this essential workforce. Elderly People SAIL DATABANK REVEALS NO CASES OF RARE FORM OF CLOTTING IN COVID-19 VACCINATED POPULATION IN WALES - Analysis of early vaccination data, following reports of blood clotting, showed no significant risk for the elderly. General Populations GEOSPATIAL MODELLING TO PREDICT COVID PREVALENCE AT COMMUNITY LEVEL - Mapping of COVID-19 'hotspots' across Welsh communities to inform Government's lockdown strategy.
Start Year 2020
 
Description National Core Studies (NCS) 
Organisation Department of Health (DH)
Country United Kingdom 
Sector Public 
PI Contribution The National Core Studies were initiated by the CSA Sir Patrick Vallance as part of teh response to Covid-19. The SAIL Databank and the population data science group at Swansea were well-positioned to rapidly support the NCS Data & Connectivity objectives owing to its: Well established infrastructure and networks that have existed since 2006. Robust governance mechanisms to ensure safe researcher access and high-quality research output. High Performance Computing capabilities afforded by the Secure eResearch Platform (SeRP) technology. Emphasis on public involvement to ensure all research using SAIL data delivers positive outcomes for people and society. Expertise from researchers and data scientists to deliver research and intelligence, as well as enable and support collaboration across the UK. The success of the One Wales response has been driven by NCS foresight and the strong collaborative bond between HDR UK, ADR UK and SAIL Databank to work adaptively and with urgency to confront COVID-19. The Data & Connectivity arm of NCS has supported the acquisition of a host of new COVID-19-specific data, along with the increased cadence and availability of flows of existing data sources within SAIL Databank. The vital new data assets include: COVID-19 Consolidated Deaths (CDDS) COVID-19 Shielded People List (CVSP) COVID-19 Test Results (PATD) Healthcare Workers Risk Assessment (HWRA) Critical Care Dataset (CCDS) COVID-19 Symptom Tracker Dataset (CVST) Covid Lateral Flow Test (CVLF) COVID-19 Test Trace and Protect (CTTP) Intensive Care National Audit and Research Centre - Covid19 (ICNC) Intensive Care National Audit and Research Centre - Covid19 (ICNC) ADDD Annual District Death Daily CVVD COVID Vaccine Data DSRD Daily Situation Report Data EDDD Emergency Department Dataset Daily GPCD General Practice COVID daily NHSO NHS 111 Call data SACT Systemic Anti-Cancer Therapy WASD Welsh Ambulance Service Dataset CNIS Cancer Network Information System Cymru (CaNISC) CVSD COVID-19 Sequence Data EDAD Education Attendance Data SCPM Suspected Cancer Pathway Monthly WDDS Wales Dispensing DataSet DSCW Domiciliary Social Care Workers SWAC School Workforce Annual Census The acquisition of this data allowed over 130 collaborative research projects to be executed.
Collaborator Contribution The collaborative partnership that enabled the NCS work which was led by the Swansea University Health Data Research UK team under the direction of the Welsh Government Technical Advisory Cell (TAC) and includes the following groups and organisations: the Secure Anonymised Information Linkage (SAIL) Databank, Administrative Data Research (ADR) Wales, Digital Health and Care Wales (DHCW formerly NHS Wales Informatics Service (NWIS), Public Health Wales, NHS Shared Services and the Welsh Ambulance Service Trust (WAST). Partners provided policy requirements, research capability and made available data. Strategic NCS partners included ONS, DWP, ADRUK, HDRUK and provided strong strategic direction and oversight of the programme.
Impact Below are a list of some of the outputs. All research was undertaken by a multidisciplinary team consisting of SAIL/ADR Wales/HDRUK/Welsh Government/Public Health Wales Vulnerable People - REPORT ON COVID-19 IMPACT ON SHIELDED PEOPLE - Provided evidence to Welsh Government of the support needs of those shielding. Children & Young People - STUDY SHOWS THE OPENING OF SCHOOLS IN WALES WAS NOT ASSOCIATED WITH AN INCREASED COVID-19 RISK TO STAFF- Informed government's approach to re-opening schools following lockdown. Ethnic Minority Groups THE COLLABORATIVE APPROACH AIDING UNDERSTANDING OF VACCINE UPTAKE AND SAFETY IN WALES- Highlighted vaccination gaps between ethnic minorities and general population for targeted interventions. People Living in Deprived Areas RESEARCH UNCOVERS COVID-19 VACCINATION INEQUALITIES THROUGHOUT WALES- Enabled Welsh Government to target interventions towards specific communities. Healthcare Workers STUDY TO ASSESS RISK OF COVID-19 TO HEALTH OF DOMICILIARY CARE WORKERS IN WALES- Highlight the risks to staff to support safety improvements for this essential workforce. Elderly People SAIL DATABANK REVEALS NO CASES OF RARE FORM OF CLOTTING IN COVID-19 VACCINATED POPULATION IN WALES - Analysis of early vaccination data, following reports of blood clotting, showed no significant risk for the elderly. General Populations GEOSPATIAL MODELLING TO PREDICT COVID PREVALENCE AT COMMUNITY LEVEL - Mapping of COVID-19 'hotspots' across Welsh communities to inform Government's lockdown strategy.
Start Year 2020
 
Description National Core Studies (NCS) 
Organisation NHS Digital
Country United Kingdom 
Sector Public 
PI Contribution The National Core Studies were initiated by the CSA Sir Patrick Vallance as part of teh response to Covid-19. The SAIL Databank and the population data science group at Swansea were well-positioned to rapidly support the NCS Data & Connectivity objectives owing to its: Well established infrastructure and networks that have existed since 2006. Robust governance mechanisms to ensure safe researcher access and high-quality research output. High Performance Computing capabilities afforded by the Secure eResearch Platform (SeRP) technology. Emphasis on public involvement to ensure all research using SAIL data delivers positive outcomes for people and society. Expertise from researchers and data scientists to deliver research and intelligence, as well as enable and support collaboration across the UK. The success of the One Wales response has been driven by NCS foresight and the strong collaborative bond between HDR UK, ADR UK and SAIL Databank to work adaptively and with urgency to confront COVID-19. The Data & Connectivity arm of NCS has supported the acquisition of a host of new COVID-19-specific data, along with the increased cadence and availability of flows of existing data sources within SAIL Databank. The vital new data assets include: COVID-19 Consolidated Deaths (CDDS) COVID-19 Shielded People List (CVSP) COVID-19 Test Results (PATD) Healthcare Workers Risk Assessment (HWRA) Critical Care Dataset (CCDS) COVID-19 Symptom Tracker Dataset (CVST) Covid Lateral Flow Test (CVLF) COVID-19 Test Trace and Protect (CTTP) Intensive Care National Audit and Research Centre - Covid19 (ICNC) Intensive Care National Audit and Research Centre - Covid19 (ICNC) ADDD Annual District Death Daily CVVD COVID Vaccine Data DSRD Daily Situation Report Data EDDD Emergency Department Dataset Daily GPCD General Practice COVID daily NHSO NHS 111 Call data SACT Systemic Anti-Cancer Therapy WASD Welsh Ambulance Service Dataset CNIS Cancer Network Information System Cymru (CaNISC) CVSD COVID-19 Sequence Data EDAD Education Attendance Data SCPM Suspected Cancer Pathway Monthly WDDS Wales Dispensing DataSet DSCW Domiciliary Social Care Workers SWAC School Workforce Annual Census The acquisition of this data allowed over 130 collaborative research projects to be executed.
Collaborator Contribution The collaborative partnership that enabled the NCS work which was led by the Swansea University Health Data Research UK team under the direction of the Welsh Government Technical Advisory Cell (TAC) and includes the following groups and organisations: the Secure Anonymised Information Linkage (SAIL) Databank, Administrative Data Research (ADR) Wales, Digital Health and Care Wales (DHCW formerly NHS Wales Informatics Service (NWIS), Public Health Wales, NHS Shared Services and the Welsh Ambulance Service Trust (WAST). Partners provided policy requirements, research capability and made available data. Strategic NCS partners included ONS, DWP, ADRUK, HDRUK and provided strong strategic direction and oversight of the programme.
Impact Below are a list of some of the outputs. All research was undertaken by a multidisciplinary team consisting of SAIL/ADR Wales/HDRUK/Welsh Government/Public Health Wales Vulnerable People - REPORT ON COVID-19 IMPACT ON SHIELDED PEOPLE - Provided evidence to Welsh Government of the support needs of those shielding. Children & Young People - STUDY SHOWS THE OPENING OF SCHOOLS IN WALES WAS NOT ASSOCIATED WITH AN INCREASED COVID-19 RISK TO STAFF- Informed government's approach to re-opening schools following lockdown. Ethnic Minority Groups THE COLLABORATIVE APPROACH AIDING UNDERSTANDING OF VACCINE UPTAKE AND SAFETY IN WALES- Highlighted vaccination gaps between ethnic minorities and general population for targeted interventions. People Living in Deprived Areas RESEARCH UNCOVERS COVID-19 VACCINATION INEQUALITIES THROUGHOUT WALES- Enabled Welsh Government to target interventions towards specific communities. Healthcare Workers STUDY TO ASSESS RISK OF COVID-19 TO HEALTH OF DOMICILIARY CARE WORKERS IN WALES- Highlight the risks to staff to support safety improvements for this essential workforce. Elderly People SAIL DATABANK REVEALS NO CASES OF RARE FORM OF CLOTTING IN COVID-19 VACCINATED POPULATION IN WALES - Analysis of early vaccination data, following reports of blood clotting, showed no significant risk for the elderly. General Populations GEOSPATIAL MODELLING TO PREDICT COVID PREVALENCE AT COMMUNITY LEVEL - Mapping of COVID-19 'hotspots' across Welsh communities to inform Government's lockdown strategy.
Start Year 2020
 
Description National Core Studies (NCS) 
Organisation Office for National Statistics
Country United Kingdom 
Sector Private 
PI Contribution The National Core Studies were initiated by the CSA Sir Patrick Vallance as part of teh response to Covid-19. The SAIL Databank and the population data science group at Swansea were well-positioned to rapidly support the NCS Data & Connectivity objectives owing to its: Well established infrastructure and networks that have existed since 2006. Robust governance mechanisms to ensure safe researcher access and high-quality research output. High Performance Computing capabilities afforded by the Secure eResearch Platform (SeRP) technology. Emphasis on public involvement to ensure all research using SAIL data delivers positive outcomes for people and society. Expertise from researchers and data scientists to deliver research and intelligence, as well as enable and support collaboration across the UK. The success of the One Wales response has been driven by NCS foresight and the strong collaborative bond between HDR UK, ADR UK and SAIL Databank to work adaptively and with urgency to confront COVID-19. The Data & Connectivity arm of NCS has supported the acquisition of a host of new COVID-19-specific data, along with the increased cadence and availability of flows of existing data sources within SAIL Databank. The vital new data assets include: COVID-19 Consolidated Deaths (CDDS) COVID-19 Shielded People List (CVSP) COVID-19 Test Results (PATD) Healthcare Workers Risk Assessment (HWRA) Critical Care Dataset (CCDS) COVID-19 Symptom Tracker Dataset (CVST) Covid Lateral Flow Test (CVLF) COVID-19 Test Trace and Protect (CTTP) Intensive Care National Audit and Research Centre - Covid19 (ICNC) Intensive Care National Audit and Research Centre - Covid19 (ICNC) ADDD Annual District Death Daily CVVD COVID Vaccine Data DSRD Daily Situation Report Data EDDD Emergency Department Dataset Daily GPCD General Practice COVID daily NHSO NHS 111 Call data SACT Systemic Anti-Cancer Therapy WASD Welsh Ambulance Service Dataset CNIS Cancer Network Information System Cymru (CaNISC) CVSD COVID-19 Sequence Data EDAD Education Attendance Data SCPM Suspected Cancer Pathway Monthly WDDS Wales Dispensing DataSet DSCW Domiciliary Social Care Workers SWAC School Workforce Annual Census The acquisition of this data allowed over 130 collaborative research projects to be executed.
Collaborator Contribution The collaborative partnership that enabled the NCS work which was led by the Swansea University Health Data Research UK team under the direction of the Welsh Government Technical Advisory Cell (TAC) and includes the following groups and organisations: the Secure Anonymised Information Linkage (SAIL) Databank, Administrative Data Research (ADR) Wales, Digital Health and Care Wales (DHCW formerly NHS Wales Informatics Service (NWIS), Public Health Wales, NHS Shared Services and the Welsh Ambulance Service Trust (WAST). Partners provided policy requirements, research capability and made available data. Strategic NCS partners included ONS, DWP, ADRUK, HDRUK and provided strong strategic direction and oversight of the programme.
Impact Below are a list of some of the outputs. All research was undertaken by a multidisciplinary team consisting of SAIL/ADR Wales/HDRUK/Welsh Government/Public Health Wales Vulnerable People - REPORT ON COVID-19 IMPACT ON SHIELDED PEOPLE - Provided evidence to Welsh Government of the support needs of those shielding. Children & Young People - STUDY SHOWS THE OPENING OF SCHOOLS IN WALES WAS NOT ASSOCIATED WITH AN INCREASED COVID-19 RISK TO STAFF- Informed government's approach to re-opening schools following lockdown. Ethnic Minority Groups THE COLLABORATIVE APPROACH AIDING UNDERSTANDING OF VACCINE UPTAKE AND SAFETY IN WALES- Highlighted vaccination gaps between ethnic minorities and general population for targeted interventions. People Living in Deprived Areas RESEARCH UNCOVERS COVID-19 VACCINATION INEQUALITIES THROUGHOUT WALES- Enabled Welsh Government to target interventions towards specific communities. Healthcare Workers STUDY TO ASSESS RISK OF COVID-19 TO HEALTH OF DOMICILIARY CARE WORKERS IN WALES- Highlight the risks to staff to support safety improvements for this essential workforce. Elderly People SAIL DATABANK REVEALS NO CASES OF RARE FORM OF CLOTTING IN COVID-19 VACCINATED POPULATION IN WALES - Analysis of early vaccination data, following reports of blood clotting, showed no significant risk for the elderly. General Populations GEOSPATIAL MODELLING TO PREDICT COVID PREVALENCE AT COMMUNITY LEVEL - Mapping of COVID-19 'hotspots' across Welsh communities to inform Government's lockdown strategy.
Start Year 2020
 
Description National Core Studies (NCS) 
Organisation United Kingdom Research and Innovation
Country United Kingdom 
Sector Public 
PI Contribution The National Core Studies were initiated by the CSA Sir Patrick Vallance as part of teh response to Covid-19. The SAIL Databank and the population data science group at Swansea were well-positioned to rapidly support the NCS Data & Connectivity objectives owing to its: Well established infrastructure and networks that have existed since 2006. Robust governance mechanisms to ensure safe researcher access and high-quality research output. High Performance Computing capabilities afforded by the Secure eResearch Platform (SeRP) technology. Emphasis on public involvement to ensure all research using SAIL data delivers positive outcomes for people and society. Expertise from researchers and data scientists to deliver research and intelligence, as well as enable and support collaboration across the UK. The success of the One Wales response has been driven by NCS foresight and the strong collaborative bond between HDR UK, ADR UK and SAIL Databank to work adaptively and with urgency to confront COVID-19. The Data & Connectivity arm of NCS has supported the acquisition of a host of new COVID-19-specific data, along with the increased cadence and availability of flows of existing data sources within SAIL Databank. The vital new data assets include: COVID-19 Consolidated Deaths (CDDS) COVID-19 Shielded People List (CVSP) COVID-19 Test Results (PATD) Healthcare Workers Risk Assessment (HWRA) Critical Care Dataset (CCDS) COVID-19 Symptom Tracker Dataset (CVST) Covid Lateral Flow Test (CVLF) COVID-19 Test Trace and Protect (CTTP) Intensive Care National Audit and Research Centre - Covid19 (ICNC) Intensive Care National Audit and Research Centre - Covid19 (ICNC) ADDD Annual District Death Daily CVVD COVID Vaccine Data DSRD Daily Situation Report Data EDDD Emergency Department Dataset Daily GPCD General Practice COVID daily NHSO NHS 111 Call data SACT Systemic Anti-Cancer Therapy WASD Welsh Ambulance Service Dataset CNIS Cancer Network Information System Cymru (CaNISC) CVSD COVID-19 Sequence Data EDAD Education Attendance Data SCPM Suspected Cancer Pathway Monthly WDDS Wales Dispensing DataSet DSCW Domiciliary Social Care Workers SWAC School Workforce Annual Census The acquisition of this data allowed over 130 collaborative research projects to be executed.
Collaborator Contribution The collaborative partnership that enabled the NCS work which was led by the Swansea University Health Data Research UK team under the direction of the Welsh Government Technical Advisory Cell (TAC) and includes the following groups and organisations: the Secure Anonymised Information Linkage (SAIL) Databank, Administrative Data Research (ADR) Wales, Digital Health and Care Wales (DHCW formerly NHS Wales Informatics Service (NWIS), Public Health Wales, NHS Shared Services and the Welsh Ambulance Service Trust (WAST). Partners provided policy requirements, research capability and made available data. Strategic NCS partners included ONS, DWP, ADRUK, HDRUK and provided strong strategic direction and oversight of the programme.
Impact Below are a list of some of the outputs. All research was undertaken by a multidisciplinary team consisting of SAIL/ADR Wales/HDRUK/Welsh Government/Public Health Wales Vulnerable People - REPORT ON COVID-19 IMPACT ON SHIELDED PEOPLE - Provided evidence to Welsh Government of the support needs of those shielding. Children & Young People - STUDY SHOWS THE OPENING OF SCHOOLS IN WALES WAS NOT ASSOCIATED WITH AN INCREASED COVID-19 RISK TO STAFF- Informed government's approach to re-opening schools following lockdown. Ethnic Minority Groups THE COLLABORATIVE APPROACH AIDING UNDERSTANDING OF VACCINE UPTAKE AND SAFETY IN WALES- Highlighted vaccination gaps between ethnic minorities and general population for targeted interventions. People Living in Deprived Areas RESEARCH UNCOVERS COVID-19 VACCINATION INEQUALITIES THROUGHOUT WALES- Enabled Welsh Government to target interventions towards specific communities. Healthcare Workers STUDY TO ASSESS RISK OF COVID-19 TO HEALTH OF DOMICILIARY CARE WORKERS IN WALES- Highlight the risks to staff to support safety improvements for this essential workforce. Elderly People SAIL DATABANK REVEALS NO CASES OF RARE FORM OF CLOTTING IN COVID-19 VACCINATED POPULATION IN WALES - Analysis of early vaccination data, following reports of blood clotting, showed no significant risk for the elderly. General Populations GEOSPATIAL MODELLING TO PREDICT COVID PREVALENCE AT COMMUNITY LEVEL - Mapping of COVID-19 'hotspots' across Welsh communities to inform Government's lockdown strategy.
Start Year 2020
 
Description ONS Data Provision 
Organisation Office for National Statistics
Country United Kingdom 
Sector Private 
PI Contribution ADR Wales commit to undertake policy impact driven data research using provided datasets linked with additional data assets
Collaborator Contribution Providing users the opportunity to make online researcher and project accreditation applications under the DEA, and enable researchers to make change requests to their projects. The facility to request output clearances, data ingests and software will only be available for projects in the SRS, in RAS at this time. The research project application process will enable researchers to select a data access processor in RAS on the basis of the data they have selected for their research. A number of ONS data owners have indicated that they are happy to make their secure data available for research via all DEA accredited data access (provision) processors. SAIL is one of these. This has opened up a vast range of opportunities for data acquisition
Impact DEA accreditation confirmed following ONS site visit and audit response.
Start Year 2019
 
Description Police PPN and domestic violence data group 
Organisation North Wales Police
Country United Kingdom 
Sector Public 
PI Contribution Analysis of the PEDW and GP datasets before the police PPN incidents to see if PPN and resultant domestic violence incidents could be predicted. Group is preparing for a data share of police data to SAIL/ADR and developing a set of analysis questions to address domestic abuse and vulnerable persons
Collaborator Contribution Promoted the benefits of sharing data and linked data research Provided an initial pilot report outlaying findings and the power of linked data research to inform policy
Impact Initial analysis report, however will result in a data share (which will be captured in the next RFish period) and a set on ongoing analysis
Start Year 2021
 
Description Police PPN and domestic violence data group 
Organisation Public Health Wales NHS Trust
Country United Kingdom 
Sector Public 
PI Contribution Analysis of the PEDW and GP datasets before the police PPN incidents to see if PPN and resultant domestic violence incidents could be predicted. Group is preparing for a data share of police data to SAIL/ADR and developing a set of analysis questions to address domestic abuse and vulnerable persons
Collaborator Contribution Promoted the benefits of sharing data and linked data research Provided an initial pilot report outlaying findings and the power of linked data research to inform policy
Impact Initial analysis report, however will result in a data share (which will be captured in the next RFish period) and a set on ongoing analysis
Start Year 2021
 
Description Police PPN and domestic violence data group 
Organisation South Wales Police
Country United Kingdom 
Sector Public 
PI Contribution Analysis of the PEDW and GP datasets before the police PPN incidents to see if PPN and resultant domestic violence incidents could be predicted. Group is preparing for a data share of police data to SAIL/ADR and developing a set of analysis questions to address domestic abuse and vulnerable persons
Collaborator Contribution Promoted the benefits of sharing data and linked data research Provided an initial pilot report outlaying findings and the power of linked data research to inform policy
Impact Initial analysis report, however will result in a data share (which will be captured in the next RFish period) and a set on ongoing analysis
Start Year 2021
 
Description UKRI DARE Programme 
Organisation Health Data Research UK
Country United Kingdom 
Sector Private 
PI Contribution Providing input into planning of DARE at strategic level via UKRI groups and HDR UK/ADR UK management meetings.
Collaborator Contribution Management of the delivery of the DARE programme
Impact No outcomes realised yet.
Start Year 2021
 
Description UKRI MoJ Cafcass Fellowship 
Organisation Children and Family Court Advisory and Support Service
Country United Kingdom 
Sector Public 
PI Contribution SAIL/ADR has assisted in the setting up of a UKRI funded research fellowship that focusses on the use of Cafcass and MoJ data within SAIL. The ADR Wales team have had many negotiations and approval meetings with the two data owners to agree a process ADR Wales have assisted UKRI with all the procedural and systems required to run the fellowship
Collaborator Contribution Providing data and research thematic knowledge to applicants Providing strategic steer on policy important projects.
Impact Fellowship is due to commence in Summer 2022
Start Year 2021
 
Description UKRI MoJ Cafcass Fellowship 
Organisation Government of Wales
Country United Kingdom 
Sector Public 
PI Contribution SAIL/ADR has assisted in the setting up of a UKRI funded research fellowship that focusses on the use of Cafcass and MoJ data within SAIL. The ADR Wales team have had many negotiations and approval meetings with the two data owners to agree a process ADR Wales have assisted UKRI with all the procedural and systems required to run the fellowship
Collaborator Contribution Providing data and research thematic knowledge to applicants Providing strategic steer on policy important projects.
Impact Fellowship is due to commence in Summer 2022
Start Year 2021
 
Description UKRI MoJ Cafcass Fellowship 
Organisation Ministry of Justice
Country United Kingdom 
Sector Public 
PI Contribution SAIL/ADR has assisted in the setting up of a UKRI funded research fellowship that focusses on the use of Cafcass and MoJ data within SAIL. The ADR Wales team have had many negotiations and approval meetings with the two data owners to agree a process ADR Wales have assisted UKRI with all the procedural and systems required to run the fellowship
Collaborator Contribution Providing data and research thematic knowledge to applicants Providing strategic steer on policy important projects.
Impact Fellowship is due to commence in Summer 2022
Start Year 2021
 
Description UKRI MoJ Cafcass Fellowship 
Organisation United Kingdom Research and Innovation
Country United Kingdom 
Sector Public 
PI Contribution SAIL/ADR has assisted in the setting up of a UKRI funded research fellowship that focusses on the use of Cafcass and MoJ data within SAIL. The ADR Wales team have had many negotiations and approval meetings with the two data owners to agree a process ADR Wales have assisted UKRI with all the procedural and systems required to run the fellowship
Collaborator Contribution Providing data and research thematic knowledge to applicants Providing strategic steer on policy important projects.
Impact Fellowship is due to commence in Summer 2022
Start Year 2021
 
Description WEFO data 
Organisation Government of Wales
Department Welsh European Funding Office
Country United Kingdom 
Sector Public 
PI Contribution ADR Wales commit to undertake policy impact driven data research using provided datasets linked with additional data assets
Collaborator Contribution Provision of 2007-2013 European Social Fund data.
Impact Provision of 2007-2013 European Social Fund data.
Start Year 2019
 
Description Welsh Government Covid Evidence Centre 
Organisation Bangor University
Country United Kingdom 
Sector Academic/University 
PI Contribution From March 2020 to present, SAIL has undertaken a vast range of research under the collaborative 'One Wales' banner which includes HDR UK, SAIL, ADR UK, NCS funded research centres. This work is now delivered partially through the Covid Evidence centre, where SAIL/ADR provides the infrastructure and three research posts as well as the NCS investment The Covid Evidence centre focusses research resource onto pandemic research, previously to the setup of the centre, research was dispersed. The contribution made builds on the collaborative work over the pandemic which is outlined by a statement from the CMO Wales Sir Frank Atherton 'On my own behalf and that of the Welsh Government, I write to offer our thanks for the support offered by the SAIL team and partners in aiding our response to the COVID-19 pandemic. The Welsh Government has benefitted enormously from its partnership with the SAIL databank to date, and this is no better exemplified than through the relationship with the Technical Advisory Group who are responsible to the Welsh Government for developing and interpreting the scientific and technical advice relating to the pandemic. From the earliest days of the pandemic, the One Wales team approach to developing data resources and analysis, coordinated by SAIL colleagues, has been immensely helpful. These contributions have meant we have been able to: · Provide a better understanding and interpretation of the epidemiology of the virus in Wales, the UK and in a global context. · Provide advice on appropriate interventions to protect the wellbeing of the Welsh people during the COVID-19 pandemic · Advise on potential implications for current and planned interventions. Many of our insights would not have been so timely had we not spent the last decade investing in such excellent high-performance computing and data sharing, and it would be fitting for everyone involved in the One Wales approach to be recognised for their contributions. I understand that you are considering nominating the team for the Swansea University awards for researchers and I fully endorse such a recommendation. My thanks to you and the team for your unstinting support throughout the pandemic' Sir Frank Atherton Chief Medical Officer/Medical Director NHS Wales - January 28th, 2022
Collaborator Contribution Providing strategic direction Access to fast publication routes for Ministers Facilitating data acquisition Multi disciplinary research resources
Impact Outputs recorded under 'Publications' section.
Start Year 2020
 
Description Welsh Government Covid Evidence Centre 
Organisation Cardiff University
Country United Kingdom 
Sector Academic/University 
PI Contribution From March 2020 to present, SAIL has undertaken a vast range of research under the collaborative 'One Wales' banner which includes HDR UK, SAIL, ADR UK, NCS funded research centres. This work is now delivered partially through the Covid Evidence centre, where SAIL/ADR provides the infrastructure and three research posts as well as the NCS investment The Covid Evidence centre focusses research resource onto pandemic research, previously to the setup of the centre, research was dispersed. The contribution made builds on the collaborative work over the pandemic which is outlined by a statement from the CMO Wales Sir Frank Atherton 'On my own behalf and that of the Welsh Government, I write to offer our thanks for the support offered by the SAIL team and partners in aiding our response to the COVID-19 pandemic. The Welsh Government has benefitted enormously from its partnership with the SAIL databank to date, and this is no better exemplified than through the relationship with the Technical Advisory Group who are responsible to the Welsh Government for developing and interpreting the scientific and technical advice relating to the pandemic. From the earliest days of the pandemic, the One Wales team approach to developing data resources and analysis, coordinated by SAIL colleagues, has been immensely helpful. These contributions have meant we have been able to: · Provide a better understanding and interpretation of the epidemiology of the virus in Wales, the UK and in a global context. · Provide advice on appropriate interventions to protect the wellbeing of the Welsh people during the COVID-19 pandemic · Advise on potential implications for current and planned interventions. Many of our insights would not have been so timely had we not spent the last decade investing in such excellent high-performance computing and data sharing, and it would be fitting for everyone involved in the One Wales approach to be recognised for their contributions. I understand that you are considering nominating the team for the Swansea University awards for researchers and I fully endorse such a recommendation. My thanks to you and the team for your unstinting support throughout the pandemic' Sir Frank Atherton Chief Medical Officer/Medical Director NHS Wales - January 28th, 2022
Collaborator Contribution Providing strategic direction Access to fast publication routes for Ministers Facilitating data acquisition Multi disciplinary research resources
Impact Outputs recorded under 'Publications' section.
Start Year 2020
 
Description Welsh Government Covid Evidence Centre 
Organisation Government of Wales
Country United Kingdom 
Sector Public 
PI Contribution From March 2020 to present, SAIL has undertaken a vast range of research under the collaborative 'One Wales' banner which includes HDR UK, SAIL, ADR UK, NCS funded research centres. This work is now delivered partially through the Covid Evidence centre, where SAIL/ADR provides the infrastructure and three research posts as well as the NCS investment The Covid Evidence centre focusses research resource onto pandemic research, previously to the setup of the centre, research was dispersed. The contribution made builds on the collaborative work over the pandemic which is outlined by a statement from the CMO Wales Sir Frank Atherton 'On my own behalf and that of the Welsh Government, I write to offer our thanks for the support offered by the SAIL team and partners in aiding our response to the COVID-19 pandemic. The Welsh Government has benefitted enormously from its partnership with the SAIL databank to date, and this is no better exemplified than through the relationship with the Technical Advisory Group who are responsible to the Welsh Government for developing and interpreting the scientific and technical advice relating to the pandemic. From the earliest days of the pandemic, the One Wales team approach to developing data resources and analysis, coordinated by SAIL colleagues, has been immensely helpful. These contributions have meant we have been able to: · Provide a better understanding and interpretation of the epidemiology of the virus in Wales, the UK and in a global context. · Provide advice on appropriate interventions to protect the wellbeing of the Welsh people during the COVID-19 pandemic · Advise on potential implications for current and planned interventions. Many of our insights would not have been so timely had we not spent the last decade investing in such excellent high-performance computing and data sharing, and it would be fitting for everyone involved in the One Wales approach to be recognised for their contributions. I understand that you are considering nominating the team for the Swansea University awards for researchers and I fully endorse such a recommendation. My thanks to you and the team for your unstinting support throughout the pandemic' Sir Frank Atherton Chief Medical Officer/Medical Director NHS Wales - January 28th, 2022
Collaborator Contribution Providing strategic direction Access to fast publication routes for Ministers Facilitating data acquisition Multi disciplinary research resources
Impact Outputs recorded under 'Publications' section.
Start Year 2020
 
Description Welsh Government Covid Evidence Centre 
Organisation Health Data Research UK
Country United Kingdom 
Sector Private 
PI Contribution From March 2020 to present, SAIL has undertaken a vast range of research under the collaborative 'One Wales' banner which includes HDR UK, SAIL, ADR UK, NCS funded research centres. This work is now delivered partially through the Covid Evidence centre, where SAIL/ADR provides the infrastructure and three research posts as well as the NCS investment The Covid Evidence centre focusses research resource onto pandemic research, previously to the setup of the centre, research was dispersed. The contribution made builds on the collaborative work over the pandemic which is outlined by a statement from the CMO Wales Sir Frank Atherton 'On my own behalf and that of the Welsh Government, I write to offer our thanks for the support offered by the SAIL team and partners in aiding our response to the COVID-19 pandemic. The Welsh Government has benefitted enormously from its partnership with the SAIL databank to date, and this is no better exemplified than through the relationship with the Technical Advisory Group who are responsible to the Welsh Government for developing and interpreting the scientific and technical advice relating to the pandemic. From the earliest days of the pandemic, the One Wales team approach to developing data resources and analysis, coordinated by SAIL colleagues, has been immensely helpful. These contributions have meant we have been able to: · Provide a better understanding and interpretation of the epidemiology of the virus in Wales, the UK and in a global context. · Provide advice on appropriate interventions to protect the wellbeing of the Welsh people during the COVID-19 pandemic · Advise on potential implications for current and planned interventions. Many of our insights would not have been so timely had we not spent the last decade investing in such excellent high-performance computing and data sharing, and it would be fitting for everyone involved in the One Wales approach to be recognised for their contributions. I understand that you are considering nominating the team for the Swansea University awards for researchers and I fully endorse such a recommendation. My thanks to you and the team for your unstinting support throughout the pandemic' Sir Frank Atherton Chief Medical Officer/Medical Director NHS Wales - January 28th, 2022
Collaborator Contribution Providing strategic direction Access to fast publication routes for Ministers Facilitating data acquisition Multi disciplinary research resources
Impact Outputs recorded under 'Publications' section.
Start Year 2020
 
Description Welsh Government Covid Evidence Centre 
Organisation Public Health Wales NHS Trust
Country United Kingdom 
Sector Public 
PI Contribution From March 2020 to present, SAIL has undertaken a vast range of research under the collaborative 'One Wales' banner which includes HDR UK, SAIL, ADR UK, NCS funded research centres. This work is now delivered partially through the Covid Evidence centre, where SAIL/ADR provides the infrastructure and three research posts as well as the NCS investment The Covid Evidence centre focusses research resource onto pandemic research, previously to the setup of the centre, research was dispersed. The contribution made builds on the collaborative work over the pandemic which is outlined by a statement from the CMO Wales Sir Frank Atherton 'On my own behalf and that of the Welsh Government, I write to offer our thanks for the support offered by the SAIL team and partners in aiding our response to the COVID-19 pandemic. The Welsh Government has benefitted enormously from its partnership with the SAIL databank to date, and this is no better exemplified than through the relationship with the Technical Advisory Group who are responsible to the Welsh Government for developing and interpreting the scientific and technical advice relating to the pandemic. From the earliest days of the pandemic, the One Wales team approach to developing data resources and analysis, coordinated by SAIL colleagues, has been immensely helpful. These contributions have meant we have been able to: · Provide a better understanding and interpretation of the epidemiology of the virus in Wales, the UK and in a global context. · Provide advice on appropriate interventions to protect the wellbeing of the Welsh people during the COVID-19 pandemic · Advise on potential implications for current and planned interventions. Many of our insights would not have been so timely had we not spent the last decade investing in such excellent high-performance computing and data sharing, and it would be fitting for everyone involved in the One Wales approach to be recognised for their contributions. I understand that you are considering nominating the team for the Swansea University awards for researchers and I fully endorse such a recommendation. My thanks to you and the team for your unstinting support throughout the pandemic' Sir Frank Atherton Chief Medical Officer/Medical Director NHS Wales - January 28th, 2022
Collaborator Contribution Providing strategic direction Access to fast publication routes for Ministers Facilitating data acquisition Multi disciplinary research resources
Impact Outputs recorded under 'Publications' section.
Start Year 2020
 
Description Welsh Government Covid Evidence Centre 
Organisation SAIL Databank
Country United Kingdom 
Sector Public 
PI Contribution From March 2020 to present, SAIL has undertaken a vast range of research under the collaborative 'One Wales' banner which includes HDR UK, SAIL, ADR UK, NCS funded research centres. This work is now delivered partially through the Covid Evidence centre, where SAIL/ADR provides the infrastructure and three research posts as well as the NCS investment The Covid Evidence centre focusses research resource onto pandemic research, previously to the setup of the centre, research was dispersed. The contribution made builds on the collaborative work over the pandemic which is outlined by a statement from the CMO Wales Sir Frank Atherton 'On my own behalf and that of the Welsh Government, I write to offer our thanks for the support offered by the SAIL team and partners in aiding our response to the COVID-19 pandemic. The Welsh Government has benefitted enormously from its partnership with the SAIL databank to date, and this is no better exemplified than through the relationship with the Technical Advisory Group who are responsible to the Welsh Government for developing and interpreting the scientific and technical advice relating to the pandemic. From the earliest days of the pandemic, the One Wales team approach to developing data resources and analysis, coordinated by SAIL colleagues, has been immensely helpful. These contributions have meant we have been able to: · Provide a better understanding and interpretation of the epidemiology of the virus in Wales, the UK and in a global context. · Provide advice on appropriate interventions to protect the wellbeing of the Welsh people during the COVID-19 pandemic · Advise on potential implications for current and planned interventions. Many of our insights would not have been so timely had we not spent the last decade investing in such excellent high-performance computing and data sharing, and it would be fitting for everyone involved in the One Wales approach to be recognised for their contributions. I understand that you are considering nominating the team for the Swansea University awards for researchers and I fully endorse such a recommendation. My thanks to you and the team for your unstinting support throughout the pandemic' Sir Frank Atherton Chief Medical Officer/Medical Director NHS Wales - January 28th, 2022
Collaborator Contribution Providing strategic direction Access to fast publication routes for Ministers Facilitating data acquisition Multi disciplinary research resources
Impact Outputs recorded under 'Publications' section.
Start Year 2020
 
Description ZOE 
Organisation ZOE Global Ltd
Country United Kingdom 
Sector Private 
PI Contribution The organisation provides the ZOE team with infrastructure to host their Covid Symptom Tracker dataset at no cost. Additionally, the team fully support the governance arrangements around this dataset and manage the data access process, from application through to provisioning.
Collaborator Contribution ZOE provide their Covid-19 Symtpom Tracker data and daily updates for the SAIL platform to host. This data is not owned by SAIL, but is entrusted to them for provisioning to external researchers following an application and governance process
Impact Multiple internal and external projects using the dataset have informed decisions and policy making plans at a government and national NHS level
Start Year 2020
 
Title Data Platform for ZOE Covid-19 Symptom Study App data to be rapidly and securely analysed remotely across the UK 
Description As part of the Covid-19 response work for UK and devolved government, in 2020, SAIL/ADR Wales developed an access platform within SAIL that hosted the Kings College London (KCL) Zoe Symptom Study App, which was developed by Prof Tim Spector (PI) The app was ingesting several million records a day at points and colleagues in KCL needed a dedicated TRE infrastructure that could collate, review and provision data quickly to support wider sharing and understanding of Covid-19. The platform within SAIL has its own governance model, data ingest ability was increased to manage daily extracts and approval and provisioning was very fast in comparison with standard TRE approval timeframes. The platform allowed secure and rapid access to the data by organisations across the UK including CMO England office, NHS trusts, local authorities, It is now linked with the ONS Secure Research Service to deposit the data. It was extremely successful tool especially in the early stages of the pandemic as the ZOE Symptom data was one of the only sources of community spread of the virus. Over the period of 2021, the platform is still used (notably when new variants have appeared) but as national knowledge bases have developed the need for the data has lessened. Despite this, the platform was a key tool for research in the early stages of the pandemic. The work was funded by existing UKRI centre grants (ADR and HDR grants) as the staff who developed and delivered the service are ADRUK and HDR UK funded. 
Type Support Tool - For Fundamental Research
Current Stage Of Development Refinement. Non-clinical
Year Development Stage Completed 2020
Development Status On hold
Impact The platform allowed secure and rapid access to the data by organisations across the UK including CMO England office, NHS trusts, local authorities, It is now linked with the ONS Secure Research Service to deposit the data. Impacts - It allowed a range of organisations to rapidly analyse the first community acquired data of its type on Covid-19 Access was remote and secure so it was accessible by home/remote workers during lock down periods. 
URL https://popdatasci.swan.ac.uk/new-app-created-to-track-coronavirus-in-wales/
 
Title DAPPA (Data Assets Project Programme Administration) In house developed MIS sysem for management and monitoring of all data and project systems 
Description Using PowerBI, the team transitioned distributed un joined systems that were only accessible by sole users into a web based accessible dashboard that has feeds from multiple areas such as data acquisition, provisioning, researcher numbers. It is now the primary MIS system ADR uses. 
Type Of Technology e-Business Platform 
Year Produced 2020 
Impact Much better monitoring of systems and processes Negates the relaince on single staff members (who previously owned Excel type systems inaccessible to other staff) Allows management of performance and performance reporting Shows capacity management and efficiency for specific areas (each system has a time response criteria eg 'within 5 days) 
 
Title Data Catalogue 
Description Oxford Data Catalogue based - Supports the management and access of available data to potential users. 
Type Of Technology Webtool/Application 
Year Produced 2020 
Impact Much better access for potential researchers to see data holdings Entries can be ported and shown on other catalogues (such as HDR Gateway) 
URL https://saildatabank.com/saildata/sail-datasets/
 
Title GP Data Reporting 
Description New Reports and software to compute GP data summary information 
Type Of Technology Software 
Year Produced 2020 
Impact More timely information about GP data uploads now available 
 
Title Lee Au-Yeung - Automated data upload for WRRS 
Description New software to automate the upload of WRRS pathology data to SAIL 
Type Of Technology Software 
Year Produced 2018 
Impact Software is able to complete a full refresh in 2 days, if this was done manually, this would take about 4 weeks. 
 
Title Lee Au-Yeung - Data Processing tool for NWIS 
Description New data processing service to automate upload of NHS Wales Warehouse Datasets to SAIL and perform uploading via scheduler 
Type Of Technology Software 
Year Produced 2018 
Impact Reduced upload processing time for 12 datasets from 10 days to 3 days. 
 
Title New data linkage engine for producing linked datasets in trusted Third Party (TTP) 
Description The existing technology in the SAIL TTP (Digital Health and Care Wales) has been in operation since 2010. The purpose of the linkage technology is to allow identifiable records to be submitted by a data owner, then automatically anonymised and then linked via an encrypted key to the 'payload data' that resides in the SAIL Databank. The old system was nearing its end of life and ability to be incrementally upgraded. 
Type Of Technology New/Improved Technique/Technology 
Year Produced 2022 
Impact - Fast upload of data by data owners and very little technical expertise required - Better probabilistic matching - Greater ability to manage new kinds of data eg imaging - Greater ability to upload larger datasets (previously large datasets would have to be divided) - Automated quality checks 
 
Description 2021-10-20 Tseliou, F. WISERD Blog: How special educational needs change over time 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact The WISERD Blog posts are written by academics to engage and inform stakeholders about research being carried out by WISERD researchers and associates. This Blog was written by Foteini Tseliou (Cardiff University).
Year(s) Of Engagement Activity 2021
URL https://wiserd.ac.uk/news/how-special-education-needs-change-over-time
 
Description Mission 3 (Data and collaboration) of the Digital Strategy for Wales blog 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Glyn Jones' blog outlining Mission 3 (Data and collaboration) of the Digital Strategy for Wales.
Year(s) Of Engagement Activity 2021
URL https://digitalanddata.blog.gov.wales/2021/01/05/digital-strategy-for-wales-mission-3-data-and-colla...
 
Description Public Health Wales Homelessness Prevention presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact Public Health Wales Homelessness Prevention presentation by Dr Pete Mackie. Invited to present on homelessness prevention at Public Health Wales event for health and homelessness sectors.
Year(s) Of Engagement Activity 2020
 
Description 03/07/2020 - New approaches to data analytics in the COVID era. Invited plenary, Health Services Research UK 2020 Annual Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact New approaches to data analytics in the COVID era. Invited plenary, Health Services Research UK 2020 Annual Conference, 03/07/20.
Year(s) Of Engagement Activity 2020
 
Description 04/09/2020 - Analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. SAIL Consumer Panel 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact Analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. SAIL Consumer Panel, 04/09/20
Year(s) Of Engagement Activity 2020
 
Description 04/09/2020 - Analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. Welsh Government COVID19 Technical Advisory Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. Welsh Government COVID19 Technical Advisory Group, 04/09/20.
Year(s) Of Engagement Activity 2020
 
Description 08/07/2020 - Controlling COVID19 through enhanced population surveillance and intervention (Con-COV): a platform approach. First Minister's BAME (Black Asian and Minority Ethnic) Advisory Group 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Controlling COVID19 through enhanced population surveillance and intervention (Con-COV): a platform approach. First Minister's BAME (Black Asian and Minority Ethnic) Advisory Group, 08/07/20.
Year(s) Of Engagement Activity 2020
 
Description 09/11/2020 - Contribution to BBC Wales Investigates programme on the impact of COVID19 on the Welsh population. 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Contribution to BBC Wales Investigates programme on the impact of COVID19 on the Welsh population, 09/11/20. See links to coverage below:

BBC Wales Investigates - https://www.bbc.co.uk/news/uk-wales-54808693

Programme available: https://www.bbc.co.uk/iplayer/episode/m000pfhy/bbc-wales-investigates-the-hidden-cost-of-covid
Year(s) Of Engagement Activity 2020
URL https://www.bbc.co.uk/news/uk-wales-54808693
 
Description 16/02/2021 - SARS-CoV-2 vaccination by ethnicity update. First Minister's BAME (Black Asian and Minority Ethnic) Advisory Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact SARS-CoV-2 vaccination by ethnicity update. First Minister's BAME (Black Asian and Minority Ethnic) Advisory Group, 16/02/21.
Year(s) Of Engagement Activity 2021
 
Description 17/05/2020 - HDRUK Public Health Research Strategy, HDRUK International Scientific Advisory Board 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact HDRUK Public Health Research Strategy, HDRUK International Scientific Advisory Board, 17/05/20.
Year(s) Of Engagement Activity 2020
 
Description 17/06/2020 - Public Health Research at HDRUK. International Scientific Advisory Board 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Public Health Research at HDRUK. International Scientific Advisory Board, 17/06/20.
Year(s) Of Engagement Activity 2020
 
Description 17/11/2020 - Update on analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. Welsh Government COVID19 Technical Advisory Group 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Update on analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. Welsh Government COVID19 Technical Advisory Group, 17/11/20.
Year(s) Of Engagement Activity 2020
 
Description 18/11/2020 - COVID19 and ethnicity in Wales - findings from linked data. First Minister's BAME (Black Asian and Minority Ethnic) Advisory Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact COVID19 and ethnicity in Wales - findings from linked data. First Minister's BAME (Black Asian and Minority Ethnic) Advisory Group, 18/11/20.
Year(s) Of Engagement Activity 2020
 
Description 19/01/2021 - Analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. School bubbles analysis. Welsh Government COVID19 Technical Advisory Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. School bubbles analysis. Welsh Government COVID19 Technical Advisory Group, 19/01/2021.
Year(s) Of Engagement Activity 2021
 
Description 19/10/2020 - Data-driven approaches at the heart of understanding multiple long term conditions - harnessing existing assets and creating new ones. Academy of Medical Sciences Forum on multiple long term conditions 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Data-driven approaches at the heart of understanding multiple long term conditions - harnessing existing assets and creating new ones. Academy of Medical Sciences Forum on multiple long term conditions, 19/10/20.
Year(s) Of Engagement Activity 2020
 
Description 2019-10-22 Chris Taylor WISERD Lunchtime Seminar: The political economy of school exclusions. Cardiff 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact This event was part of the WISERD lunchtime seminar series which focuses on research currently being undertaken by WISERD researchers. This seminar was presented by Chris Taylor
Year(s) Of Engagement Activity 2019
URL https://wiserd.ac.uk/events/political-economy-school-exclusions
 
Description 2019-11-05 Hampton, J.M. and Hogerbrugge, M. SOCSI Survey Data Users Brown Bag Seminar: Introducing the WISERD Education Data Lab & Analysis of More Able and Talented Pupils. Cardiff 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact The WISERD Lunchtime Seminars are to engage and inform internal and external stakeholders about research being carried out by WISERD academics.
Year(s) Of Engagement Activity 2019
 
Description 2019-11-06 Hampton, J.M. and Hogerbrugge, M. WISERD Lunchtime Seminar: Introducing the WISERD Education Data Lab & Analysis of More Able and Talented Pupils. Cardiff 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Presentation given to Cardiff University's School of Social Sciences Survey Data User Group to disseminate the education work being carried out by the WISERD Education Data Lab.
Year(s) Of Engagement Activity 2019
 
Description 2019-11-12 Mackie, P. WISERD Housing Research Network: Delivering additional affordable housing in Wales. Cardiff 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Run by the School of Geography and Planning, in collaboration with UK Collaborative Centre for Housing Evidence (CaCHE) and Wales Institute for Social and Economic Research and Data (WISERD). Following the Independent Review of Affordable Housing Supply in Wales the event brought together key members of the Review Panel and policy makers and practitioners to assess progress and key challenges. Speakers from Welsh Government and social housing sector considered the future of social housing, proposals for a new model of funding and opportunities for collaboration to deliver affordable housing.
Year(s) Of Engagement Activity 2019
URL https://wiserd.ac.uk/events/delivering-additional-affordable-housing-wales
 
Description 2019-12-07 Hampton, J.M., Hogebrugge, M. and Huxley, K. Exhibition Stall: WEDL. Regional Autumn Term Conference, Central South Consortium Joint Education Service. South Wales 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact WEDL stall at Central South Consortium Joint Education Service, Autumn Regional Conference
Year(s) Of Engagement Activity 2019
 
Description 2019.01.11 - NWIS NDR Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Discussion with NWIS around collaborative opportunities with NDR development
Year(s) Of Engagement Activity 2019
 
Description 2019.01.22 - ONS SIP development roadshow 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Planning session with ONS and ADR Wales colleagues to develop Welsh SIPs and guide national data acquisition strategy
Year(s) Of Engagement Activity 2019
 
Description 2019.01.28 - Legal Needs project advisory group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact ADR Wales participation on the Legal Needs advisory group - collaboration between Swansea University and UCL to identify service gaps in Welsh legal needs through data research
Year(s) Of Engagement Activity 2019
 
Description 2019.02.01 - Leadership Committee 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Committee to support close collaboration between the accountable leads within the ADR partner organisations.
Year(s) Of Engagement Activity 2019
 
Description 2019.02.04 - Lecturing PMIM 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Postgraduate students
Results and Impact Teaching delivery to postgraduate students (PMIM)
Year(s) Of Engagement Activity 2019
 
Description 2019.02.08 - HCRW Centre & Unit Leads Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Study participants or study members
Results and Impact Discussion on collaborative working with Health and Care Research Wales Centre and Unit leads
Year(s) Of Engagement Activity 2019
 
Description 2019.02.11 - HCRW Infrastructure call w/ Donald Forrester 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Discussion on children social care data with Prof Donald Forrester, Director of CASCADE at Cardiff University
Year(s) Of Engagement Activity 2019
 
Description 2019.02.11 - SAIL & Social Care Research call w/ Lisa Trigg 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Discussion on opportunities with Lisa Trigg, Assistant Director at Social Care Wales.
Year(s) Of Engagement Activity 2019
 
Description 2019.02.12 - Exascale Science Board Teleconference 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Regular meetings to understand researcher requirements and to assess if supercomputing techniques could assist
Year(s) Of Engagement Activity 2019
 
Description 2019.02.13 - GSK: clinical imaging analytics 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Industry/Business
Results and Impact Explore potential for collaborative projects particularly around the reanalysis of clinical imaging datasets.
Year(s) Of Engagement Activity 2019
 
Description 2019.02.18 - DPAS Project start 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact Collaborative work with Nuffield, Lancaster University and Swansea University to set up DPAS platform for analysis of CAFCASS family justice datasets
Year(s) Of Engagement Activity 2019
 
Description 2019.02.18 - Health Foundation Project - Abertawe Medical Partnership 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Collaborative work with GP cluster in Swansea - Health Foundation Project
Year(s) Of Engagement Activity 2019
 
Description 2019.02.25 - DAFNI (Marion Samler) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Meeting with Marion Samler from DAFNI (Data & Analytics for National Infrastructure Research) to discuss collaborative opportunities
Year(s) Of Engagement Activity 2019
 
Description 2019.02.26 - Healthwise Wales Scientific Steering Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Study participants or study members
Results and Impact ADR Wales representation at the Healthwise Wales Scientific Steering Group
Year(s) Of Engagement Activity 2019
 
Description 2019.02.27 - Data linkage discussion: Swansea Council 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Study participants or study members
Results and Impact Discussion with Swansea Council Flying Start team and Welsh Government policy to identify opportunities for data usage. Flying Start had shared data with ADR Wales, and there was the possibility of bringing their team in to directly influence the direction of research using their data.
Year(s) Of Engagement Activity 2019
 
Description 2019.02.28 - ESRC Admin Data Spine Scoping w/ Andy Boyd & Rob Wilson 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact ADR Wales support provided to the scoping process around the ESRC Admin Data Spine
Year(s) Of Engagement Activity 2019
 
Description 2019.02.28 - Teresa Williams (CAFCASS) telecon 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Discussion with Teresa Williams on acquiring CAFCASS data
Year(s) Of Engagement Activity 2019
 
Description 2019.03.05 - ADSS Spring Seminar 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Participation in the ADSS Spring Seminar, representing ADR Wales/SAIL at a government seminar covering R&D strategy
Year(s) Of Engagement Activity 2019
 
Description 2019.03.08 - Admin Data Research Centre Wales Catch-up 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Regular update meeting series with Glyn Jones, Chief Statistician for Wales, and ADR Wales Operations colleagues (including Welsh Government). Direct working with senior Welsh Government colleagues allows an effective method for identifying jointly beneficial opportunities
Year(s) Of Engagement Activity 2019
 
Description 2019.03.11 - Glyn Jones SAIL mapping 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Engagement with Chief Statistician for Wales - mapping the SAIL Databank
Year(s) Of Engagement Activity 2019
 
Description 2019.03.11 - QUB: NI Health Data & SAIL 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Engagement with Queen's University Belfast - linkage and project collaboration potential between SAIL and Northern Ireland health datasets
Year(s) Of Engagement Activity 2019
 
Description 2019.03.13 - Meeting with Prof Andrew Morris HDRUK 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Meeting with Prof Andrew Morris HDRUK
Year(s) Of Engagement Activity 2019
 
Description 2019.03.15 - Telecon w/ Lisa Holmes regarding Department for Education 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Teleconference with Lisa Holmes, Director of the Rees Centre (Department of Education, Oxford University)
Year(s) Of Engagement Activity 2019
 
Description 2019.03.15 - UKSeRP Discussion w/ AISP, Asemio (Dennis Culhane) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Meeting with Prof Dennis Culhane, Co-PI for Actionable Intelligence for Social Policy (AISP) at Penn University (Philadelphia). Discussion around UKSeRP infrastructure and opportunities for collaboration
Year(s) Of Engagement Activity 2019
 
Description 2019.03.18 - UKRI Infra Roadmap - Social sciences/Arts & Humanities Sector Roundtable 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact UKRI Infra Roadmap - Social sciences/Arts & Humanities Sector Roundtable
Year(s) Of Engagement Activity 2019
 
Description 2019.03.19 - Paul Jackson 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Ad hoc catch up meeting with Paul Jackson
Year(s) Of Engagement Activity 2019
 
Description 2019.03.21 - UKRI e-Infrastructure Expert Group Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation at UKRI e-Infrastructure Expert Group Meeting
Year(s) Of Engagement Activity 2019
 
Description 2019.03.25 - Interoperability PoC Update w/ Kay Snowley (HDR) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Interoperability PoC Update w/ Kay Snowley (HDR)
Year(s) Of Engagement Activity 2019
 
Description 2019.03.27 - Flying Start reference group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Participation in Flying Start reference group meeting series - advisory and planning meetings with local authority participant groups and Welsh Government policy to support and shape Flying Start research project
Year(s) Of Engagement Activity 2019
 
Description 2019.03.27 - HDR Scotland - connect represcribing initiative 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Participation in the HDR Scotland - connect represcribing initiative event
Year(s) Of Engagement Activity 2019
 
Description 2019.04.03 - ADR Hack Day 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation at the ADR Hack Day event
Year(s) Of Engagement Activity 2019
 
Description 2019.04.08 - ADR Steering group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Planning, coordianting and attendance of the ADR Steering Group meeting series, which aimed to engage with policy leads in government outside of the ADRU (Welsh Government) project team
Year(s) Of Engagement Activity 2019
 
Description 2019.04.08 - Blackpool Council/Better Start/Swansea Uni 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Potential collaboration opportunity - Sharing best practice advice and the potential to support with UKSeRP infrastructure a Blackpool Council project
Year(s) Of Engagement Activity 2019
 
Description 2019.04.10 - Teleconference w/ ScHARR team 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Teleconference with University of Sheffield, School of Health and Related Research (ScHARR)
Year(s) Of Engagement Activity 2019
 
Description 2019.04.21 - Census data discussion 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Hosted ONS colleagues to advise on the development of the Welsh Census data dictionary and variables involved in data linkage process
Year(s) Of Engagement Activity 2019
 
Description 2019.04.24 - Developing the ADR UK brand and website 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation in developing the ADR UK brand and website
Year(s) Of Engagement Activity 2019
 
Description 2019.04.29 - Karen Dennison: embedding longitudinal cohort studies into population administrative data sets 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Meeting with Karen Dennison: embedding longitudinal cohort studies into population administrative data sets
Year(s) Of Engagement Activity 2019
 
Description 2019.05.01 - ONS Census Data into SAIL 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Welsh Government and SAIL discussions to co-ordinate the approach to ONS Census data acquisition
Year(s) Of Engagement Activity 2019
 
Description 2019.05.10 - DPAS development meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Participation in major planning session for the development of DPAS data analysis programme; a collaboration across multiple government and academic groups to analyse Family Justice data
Year(s) Of Engagement Activity 2019
 
Description 2019.05.14 - TC Betsy Stanko (UCL) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Teleconference call with Prof Betsy Stanko OBE, Visiting Professor at UCL and former Head of Evidence and Insight at Mayor of London's Office for Policing and Crime.
Year(s) Of Engagement Activity 2019
 
Description 2019.05.21 - ADRP Gateway review w/ Tricia Dodd & Glyn Jones 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact ADR Wales participation in the ADRP Gateway review
Year(s) Of Engagement Activity 2019
 
Description 2019.05.22 - Court Reform Evaluation Advisory Panel (MoJ) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Court Reform Evaluation Advisory Panel: Arranged by MoJ; multidisciplinary expert meeting
Year(s) Of Engagement Activity 2019
 
Description 2019.05.24 - Population Research Resources Workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Population Research Resources Workshop
Year(s) Of Engagement Activity 2019
 
Description 2019.05.28 - Meeting with Tiffany Veinot, University of Michigan 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Potential collaboration discussion with Tiffany Veinot, University of Michigan
Year(s) Of Engagement Activity 2019
 
Description 2019.05.29 - Tom Margrain collaboration meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Tom Margrain collaboration meeting re: WOPEC (Optometry)
Year(s) Of Engagement Activity 2019
 
Description 2019.05.30 - MoJ Family Justice Meeting w/ Emma Gordon 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Engagement with Emma Gordon regarding MoJ Family Justice work
Year(s) Of Engagement Activity 2019
 
Description 2019.06.04 - Progressing Further Data Linkage for Family Justice 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Progressing Further Data Linkage for Family Justice: Engaging MoJ into the DPAS arena
Year(s) Of Engagement Activity 2019
 
Description 2019.06.12 - Wellcome Event Belfast 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Participation in an event delivering a series of presentations to Wellcome
Year(s) Of Engagement Activity 2019
 
Description 2019.06.13 - AOCDRCA project 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Postgraduate students
Results and Impact ADR Wales staff have provided ongoing coordination and technical support to a South Wales police sponsored data research project. This project is undertaken by a Swansea/Cardiff university research team, which is looking into linguistic trends used by child groomers. Due to the incredibly sensitive nature of the data, ADR Wales safe room infrastructure (and associated accreditations) provided the sponsor with the confidence they needed to commission the research
Year(s) Of Engagement Activity 2019
 
Description 2019.06.13 - HDRUK BSO Project Update 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact ADR Wales participation at HDRUK BSO Project Update meeting
Year(s) Of Engagement Activity 2019
 
Description 2019.06.13 - Mark Lawler (QUB) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Meeting with Prof Mark Lawler, Associate Pro-VC and Professor of Digital Health at QUB. Meeting to update on areas of research/collaboration potential
Year(s) Of Engagement Activity 2019
 
Description 2019.06.17 - Collaboration between Life Sciences Hub & SAIL 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Collaboration meeting between Life Sciences Hub & SAIL/ADR teams
Year(s) Of Engagement Activity 2019
 
Description 2019.06.17 - Collaboration between MS Register - Christoph Weidemann 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Postgraduate students
Results and Impact Discussion on potential collaboration between MS Register and Christoph Weidemann, Associate Professor in Swansea University Department of Psycology
Year(s) Of Engagement Activity 2019
 
Description 2019.06.18 - Prof Anna Vignoles & Judge Carol Atkinson 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Lectures as part of a NFJO agenda
Year(s) Of Engagement Activity 2019
 
Description 2019.06.19 - NFJO Data Partnership Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation in a series of regular catch ups around Nuffield Family Justice Observatory
Year(s) Of Engagement Activity 2019
 
Description 2019.06.20 - Justice Data Set w/ Kim McGrail 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Discussion, and giving advice, to Australian colleagues (Prof Kim McGrail) on their justice datasets.
Year(s) Of Engagement Activity 2019
 
Description 2019.06.24 - MoJ & DfE Discussion w/ Lisa Holmes & Laura Nicosia 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact MoJ & DfE Discussion w/ Lisa Holmes & Laura Nicosia
Year(s) Of Engagement Activity 2019
 
Description 2019.06.24 - SAIL Scientific Advisory Group 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact ADR Wales participation on the SAIL Scientific Advisory Group
Year(s) Of Engagement Activity 2019
 
Description 2019.06.25 - Harmonisation of legal frameworks for UK Health Data w/ HDR & NHS 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Meeting with HDR UK and NHS colleagues around harmonisation of legal frameworks for UK Health Data
Year(s) Of Engagement Activity 2019
 
Description 2019.06.25 - Safepod discussion 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation in discussions around the Safepod secure analysis technology
Year(s) Of Engagement Activity 2019
 
Description 2019.06.26 - UKRI Supercomputing Science Case TC 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Teleconference to discuss ADR Wales involvement in the UKRI Supercomputing Science case
Year(s) Of Engagement Activity 2019
 
Description 2019.07.01 - Whitehall data acquisition meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Discussion re: development of a joint strategy for acquiring data from Whitehall departments
Year(s) Of Engagement Activity 2019
 
Description 2019.07.04 - CME (Children Missing Education) Meeting with Paul Howells (NHS) and Welsh Government 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact CME (Children Missing Education) Meeting with Paul Howells (NHS) and Welsh Government
Year(s) Of Engagement Activity 2019
 
Description 2019.07.05 - Nick Moberly & UK MS Register team meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact ADR Wales participation at meeting between Nick Moberly (Chief Executive for the MS Society) and MS Register team
Year(s) Of Engagement Activity 2019
 
Description 2019.07.08 - CAFCASS data transfer workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact ADR Wales participation in formal planning session re: streamlining the CAFCASS data transfer process. Participation from Lancaster University, Swansea University (including senior SAIL analysts and ADR Co-investigators) and CAFCASS
Year(s) Of Engagement Activity 2019
 
Description 2019.07.08 - Cancer IT Provision (Richard Clarkson) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Engagement with Dr Richard Clarkson to discuss potential support opportunities with his cancer research department
Year(s) Of Engagement Activity 2019
 
Description 2019.07.09 - ONS metadata meeting 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact ADR Wales hosted event to inform on and plan the development of ONS's metadata across the ADR partnership. Included colleagues from HDR and SAIL to share their existing approaches
Year(s) Of Engagement Activity 2019
 
Description 2019.07.10 - Monash ARDC Proposal discussion 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Monash ARDC Proposal discussion
Year(s) Of Engagement Activity 2019
 
Description 2019.07.12 - MoJ Discussion with Karen Broadhurst and Lisa Harker 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact ADR Wales participation in MoJ discussion with Karen Broadhurst and Lisa Harker
Year(s) Of Engagement Activity 2019
 
Description 2019.07.15 - Jeff Giansiracusa - application for ESPRC funded hub for mathematical sciences in healthcare 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Postgraduate students
Results and Impact Engagement with Prof Jeff Giansiracusa around an application for ESPRC funded hub for mathematical sciences in healthcare
Year(s) Of Engagement Activity 2019
 
Description 2019.07.17 - Manchester Digital Epidemiology Summer School 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Undergraduate students
Results and Impact David Ford participation in a wider programme of lecturing at the Manchester Digital Epidemiology Summer School
Year(s) Of Engagement Activity 2019
 
Description 2019.07.19 - SAIL External Advisory Board - Paul Roderick 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Engagement with Prof Paul Roderick (University of Southampton) in advance of the SAIL Advisory panel
Year(s) Of Engagement Activity 2019
 
Description 2019.07.23 - Conference call with Univeristy of Chicago (Ronan Lyons, Ziad Obermeyer, Ryan Burke & Sendhil Mullainathan) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Discussion around potential collaborations with University of Chicago (Ziad Obermeyer, Ryan Burke & Sendhil Mullainathan)
Year(s) Of Engagement Activity 2019
 
Description 2019.07.29 - Australian Global Experiences Digital Research Infrastructure Federations 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact ADR Wales participation and coordination of a fact finding delegation visiting Swansea from the Australian Global Experiences Digital Research Infrastructure Federations.
Year(s) Of Engagement Activity 2019
 
Description 2019.08.06 - Oliver Bird Fund Research Programme Panel Meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Participation as a member of the funding decision panel (Oliver Bird Fund Research Programme)
Year(s) Of Engagement Activity 2019
 
Description 2019.08.07 - Digital Health CRC w/ Victor Pantano 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Supporters
Results and Impact Discussion on Australia's use of data sharing with Victor Pantano, CEO of Digital Health CRC.
Year(s) Of Engagement Activity 2019
 
Description 2019.08.07 - ONS National Statician's Quality Review (Anthony Edwards) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact ADR Wales engagement with an ONS review - assessing current linkage across government and linking across academia.
Year(s) Of Engagement Activity 2019
 
Description 2019.08.29 - Karen Broadhurst update 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Update discussion with senior academic colleagues in Lancaster University around the opportunities to connect various justice data research projects. This was with a view to avoiding unnecessary duplication of work and building on existing work to maximise outputs.
Year(s) Of Engagement Activity 2019
 
Description 2019.09.02 - Healthwise Wales External Panel Discussion (Shantini Parajothy) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Healthwise Wales External Panel Discussion (Shantini Parajothy)
Year(s) Of Engagement Activity 2019
 
Description 2019.09.05 - ADR 2019 2nd Scientific Committee Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact ADR Wales membership and participation on ADR 2019 Scientific Committee
Year(s) Of Engagement Activity 2019
 
Description 2019.09.06 - EHDEN Data Partner Call (Nigel Hughes) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Discussion on a potential application - EHDEN Data Partner Call (Nigel Hughes)
Year(s) Of Engagement Activity 2019
 
Description 2019.09.16 - Population segmentation w/ CTMUHB 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Collaboration discussions with Cwm Taf Morgannwg University Health Board re: population segmentation
Year(s) Of Engagement Activity 2019
 
Description 2019.09.17 - BREATHE discussion w/ Gwyn Davies 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Discussion around research opportunities with Gwyn Davies re: BREATHE project.
Year(s) Of Engagement Activity 2019
 
Description 2019.09.18 - Health Foundation social care call (Sarah Lowe & Lisa Trigg) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Health Foundation social care call (Sarah Lowe & Lisa Trigg)
Year(s) Of Engagement Activity 2019
 
Description 2019.09.19 - ADR Wales: DDP Discussion & Monthly catch-up 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact As part of a regular catch up with senior Welsh Government colleagues, ADR Wales staff discussed the future options for the development of a data sharing solution for use with local authorities in Wales
Year(s) Of Engagement Activity 2019
 
Description 2019.09.20 - MediWales Directors Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact ADR Wales participation in the MediWales Directors meeting (David Ford is a Director)
Year(s) Of Engagement Activity 2019
 
Description 2019.09.25 - Digital Leaders Wales (Swansea School of Management) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Study participants or study members
Results and Impact ADR Wales participation in Digital Leaders Wales (Swansea School of Management) event
Year(s) Of Engagement Activity 2019
 
Description 2019.09.25 - Fliss Bennee (WG) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Engagement with Fliss Bennee, Deputy Director of Technology and Digital at Welsh Government
Year(s) Of Engagement Activity 2019
 
Description 2019.10.01 - ICES Scientific Advisory Committee 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Membership of the ICES Scientific Advisory Committee
Year(s) Of Engagement Activity 2019
 
Description 2019.10.04 - PHRN RIIP Funding Call 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales engagement with the Population Health Research Network re: RIIP funding call
Year(s) Of Engagement Activity 2019
 
Description 2019.10.08 - HealthWise Wales Meeting with HCRW 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation in discussions between HealthWise Wales and Health and Care Research Wales
Year(s) Of Engagement Activity 2019
 
Description 2019.10.09 - Rebecca Cosgriff - CFT & BREATHE 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Potential collaboration discussion with Rebecca Cosgriff, Director of Data and Quality Improvement at Cystic Fibrosis Trust (CFT)
Year(s) Of Engagement Activity 2019
 
Description 2019.10.14 - Barry Sandison CEO AIHW 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Engagement with Barry Sandison, CEO for Australian Institute of Health and Welfare (AIHW). AIHW is an independent group which provides information and statistics to the Australian Government in order to support better policy and service delivery decisions.
Year(s) Of Engagement Activity 2019
 
Description 2019.10.16 - OECD Workshop in Paris 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact ADR Wales attendance at the Organisation for Economic Co-operation and Development (OECD) event in Paris
Year(s) Of Engagement Activity 2019
 
Description 2019.10.22 - HCRW Infrastructure Away Day 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales attendance at Health and Care Research Wales away day - with a focus on health data infrastructure across Wales
Year(s) Of Engagement Activity 2019
 
Description 2019.10.23 - GSS Data Linkage Symposium 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales attendance at GSS Data Linkage Symposium
Year(s) Of Engagement Activity 2019
 
Description 2019.10.28 - BREATHE project setup 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Study participants or study members
Results and Impact ADR staff supported the development of BREATHE. The BREATHE Digital Innovation Hub is a consortium of five academic institutions in the UK and several industry partner seeking to facilitate and accelerate respiratory science initiatives and outcomes.
Year(s) Of Engagement Activity 2019
 
Description 2019.10.28 - Daniel Reidpath Safe Havens (Bangladesh) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Discussion around potential collaboration with Daniel Reidpath, Senior Director for Health Systems and Population Studies Division in Bangladesh
Year(s) Of Engagement Activity 2019
 
Description 2019.10.29 - UK Health Data Research Alliance Board 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation in the UK Health Data Research Alliance Board
Year(s) Of Engagement Activity 2019
 
Description 2019.10.30 - Current Australian Initiatives - Merran Smith 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Engagement with Merran Smith, Chief Executive for Population Health Research Network in Australia. Discussion was re current Australian initiatives
Year(s) Of Engagement Activity 2019
 
Description 2019.10.30 - Wellcome Landscape Review - UCL team on lesssons learnt from longitudinal population studies 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Feedback discussion with UCL team on lesssons learnt from longitudinal population studies
Year(s) Of Engagement Activity 2019
 
Description 2019.10.30 - Welsh Centre for Emergency Medicine Research (WCEMR) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Discussions around collaborative opportunities with the Welsh Centre for Emergency Medicine Research (WCEMR)
Year(s) Of Engagement Activity 2019
 
Description 2019.11.06 - Office for Statistics Regulations Conference 'A New Regulatory Vision' 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact ADR Wales attendance at the ONS Regulations Conference 'A New Regulatory Vision'
Year(s) Of Engagement Activity 2019
 
Description 2019.11.13 - Hub Commerical Leads Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact ADR Wales participation at the Hub Commercial leads meeting
Year(s) Of Engagement Activity 2019
 
Description 2019.11.18 - Daffodil Cymru meeting 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Supporters
Results and Impact ADR staff supported an engagement with Daffodil Cymru, an organisation that utilises multiple sources of data to identify care services needs across Wales. This discussion was aimed at identifying opportunities for joint working between Daffodil and the research centres that work alongside ADR Wales
Year(s) Of Engagement Activity 2019
 
Description 2019.11.19 - Technical Team Meeting/Trusted Research Environments (Gerry Reilly) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation in a discussion led by Gerry Reilly, Chief Technology Officer for HDR UK. Discussion was around trusted research environments
Year(s) Of Engagement Activity 2019
 
Description 2019.11.21 - Health Data Research UK Science Leadership Symposium and Dinner 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales colleagues (alongside other Swansea University data research teams) attended Health Data Research UK Science Leadership Symposium and Dinner
Year(s) Of Engagement Activity 2019
 
Description 2019.11.26 - Fuel Poverty presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Presentation on 'The Impact on Health of the Welsh Government Warm Homes Schemes' at Fuel Poverty in Wales conference
Year(s) Of Engagement Activity 2019
 
Description 2019.11.27 - HDR UK Public Health meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation at the HDR UK public health meeting
Year(s) Of Engagement Activity 2019
 
Description 2019.12.02 - SAIL External Scientific Advisory Board 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact ADR Wales staff participated and supported the coordination of the SAIL External Scientific Advisory Board
Year(s) Of Engagement Activity 2019
 
Description 2019.12.03 - Housing, Health & Fuel Poverty (Paul Roderick) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Development of ongoing collaborative discussions and planning with Paul Roderick in the areas of housing, health and fuel poverty data. Conversations included research team members on the Welsh Government Fuel Poverty project
Year(s) Of Engagement Activity 2019
 
Description 2019.12.06 - PPHI Management Board 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other audiences
Results and Impact ADR Wales participation in the Population and Patient Health Informatics (PPHI) Management Board. PPHI is a cross disciplinary research group within Swansea University which brings together academic colleagues that have a joint interest in population data research
Year(s) Of Engagement Activity 2019
 
Description 2019.12.09 - 4th International Conference on Administrative Data Research 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Study participants or study members
Results and Impact ADR Wales team heavily supported the delivery of the ADR 2019 conference, with a number of staff facilitating the events and discussions throughout the day. A number of associated researchers and academics attended and presented
Year(s) Of Engagement Activity 2019
 
Description 2019.12.09 - Fuel Poverty presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presentation on 'The Impact on Health of the Welsh Government Warm Homes Schemes' at ADR 2019 conference
Year(s) Of Engagement Activity 2019
 
Description 2019.12.09 - Presentation of research at International Conference on Administrative Data Research 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presented paper on Receipt and Effectiveness of Careers Guidance in Wales (with Katy Huxley)
Year(s) Of Engagement Activity 2019
 
Description 2019.12.09 - Presentation of research at International Conference on Administrative Data Research 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presented Paper on Careers Guidance and Transitions to Further Education in Wales (with Katy Huxley)
Year(s) Of Engagement Activity 2019
 
Description 2019.12.10 - Flying Start presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presentation on 'Analysis of Flying Start outcomes using linked data: Childcare analysis' at ADR 2019 conference
Year(s) Of Engagement Activity 2019
 
Description 2019.12.10 - Ministerial speech at ADR Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Minister for Finance and Trefyndd opened the second day of the ADR Conference with a speech that reflected their strong support for the work of ADR Wales and the SAIL Databank
Year(s) Of Engagement Activity 2019
 
Description 2019.12.10 - Well-being SIP presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presentation on 'Assessing the health impacts of adults' participation in Wales: Investigating the mediating role of accesibility to sports facilities' at ADR 2019 conference. Presntation was a high level descriptive/text based update on the work of an upcoming report.
Year(s) Of Engagement Activity 2019
 
Description 2019.12.11 - Early Years SIP presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact The association between mother's alcohol consumption during pregnancy and their child's educational attainment and risk of hospitalisation by age 14 - presentation at ADR 2019 conference
Year(s) Of Engagement Activity 2019
 
Description 2019.12.11 - Housing and homelessness presentation (IT) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Better data, better knowledge: developing an ideal honlessness data system drawing on lessons from global practice' - presentation at ADR 2019 conference
Year(s) Of Engagement Activity 2019
 
Description 2019.12.11 - Housing and homelessness presentation (PM) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact The Prevention priority - linking education and homelessness data to inform policy in Wales' - presentation at ADR 2019 conference
Year(s) Of Engagement Activity 2019
 
Description 2019.12.12 - Pennsylvania University visit 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact ADR Wales hosted a visit from senior research and academic visitors from Pennsylvania University to discuss opportunitites for future collaboration
Year(s) Of Engagement Activity 2019
 
Description 2019.12.18 - GPW & SAIL - UK Genomics Strategy 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales engagement with colleagues at the Genomic Partnership Wales (GPW - Wales Gene Park) to support development of the UK Genomics Strategy
Year(s) Of Engagement Activity 2019
 
Description 2019.12.19 - CDSI visit to SAIL 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Hosted a visit from the Leicester Clinical Data Science Institute. ADR staff in attendance provided an overview of the model utilised in Wales to help identify opportunities for the CDSI to utilise a similar method (supported by the UKSeRP)
Year(s) Of Engagement Activity 2019
 
Description 2020-01-09 Mackie, P. WISERD Housing Research Network: Wales Housing Research Conference 2020. Cardiff 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact This conference was co-hosted by Dr Pete Mackie and the WISERD Housing Research Network, the UK Collaborative Centre for Housing Evidence, Shelter Cymru and Welsh Government. The event showcased research and evaluations on contemporary Welsh housing issues and provided a platform for reflection and knowledge exchange. It was held at Cardiff University on 9th January 2020 and 140 delegates booked to attend.
Year(s) Of Engagement Activity 2020
URL https://wiserd.ac.uk/events/wales-housing-research-conference-2020
 
Description 2020-01-21 Davies, R. WISERD Cardiff Lunchtime Seminar: Careers Guidance and Progression to Post-Compulsory Education in Wales. Cardiff 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact This event was part of the WISERD Cardiff lunchtime seminar series which focused on research currently being undertaken by WISERD researchers. This seminar was presented by Rhys Davies.
Year(s) Of Engagement Activity 2020
 
Description 2020-01-28 Mackie, P. WISERD Cardiff Lunchtime Seminar: Exploring the Mobilities of Welsh Homelessness Prevention Policy. Cardiff 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact This event was part of the WISERD Cardiff lunchtime seminar series which focused on research currently being undertaken by WISERD researchers. This seminar was presented by Dr Peter Mackie.
Year(s) Of Engagement Activity 2020
URL https://wiserd.ac.uk/events/wiserd-lunchtime-seminar-exploring-mobilities-welsh-homelessness-prevent...
 
Description 2020-02-24 Davies, R. UK Data Service Blog: Why is understanding trade union membership from survey data harder than it might first seem? 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact The WISERD Blog posts are written by academics to engage and inform stakeholders about research being carried out by WISERD researchers and associates. This Blog was written by Rhys Davies (Cardiff University).
Year(s) Of Engagement Activity 2020
 
Description 2020-04-22 Hampton, J.M. Welsh Government Webinar: Children's Worlds: International Survey of Children's Subjective Wellbeing. Online 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact The seminar was run specifically for Welsh Government colleagues, presenting findings from international comparisons of the Children's Worlds Survey data, written and presented by Jennifer Hampton.
Year(s) Of Engagement Activity 2020
 
Description 2020-05-14 Taylor, C. WISERD Blog: COVID-19 and pupil assessment 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact The WISERD Blog posts are written by academics to engage and inform stakeholders about research being carried out by WISERD researchers and associates. This Blog was written by Chris Taylor (Cardiff University).
Year(s) Of Engagement Activity 2020
 
Description 2020-06-07 Taylor, C. WalesOnline: Interview regarding Year Six students in lockdown 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Professor Chris Taylor was quoted in an article about Year six pupils missing the end of primary school. He explained that much of the research on transitions says that it is the familiarisation with high school that is important, rather than the social aspects of saying goodbye.
Year(s) Of Engagement Activity 2020
 
Description 2020-06-26 Hampton, J.M. WISERD Blog: Early GCSE entry: multiple entry 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact The WISERD Blog posts are written by academics to engage and inform stakeholders about research being carried out by WISERD researchers and associates. This Blog was written by Jennifer May Hampton (Cardiff University).
Year(s) Of Engagement Activity 2020
 
Description 2020-06-26 Hampton, J.M. WISERD Blog: Early GCSE entry: patterns over time 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact The WISERD Blog posts are written by academics to engage and inform stakeholders about research being carried out by WISERD researchers and associates. This Blog was written by Jennifer May Hampton (Cardiff University).
Year(s) Of Engagement Activity 2020
 
Description 2020-06-26 Thomas, I. WISERD Blog: Patterns of school non-attendance over the educational lifecourse 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact The WISERD Blog posts are written by academics to engage and inform stakeholders about research being carried out by WISERD researchers and associates. This Blog was written by Ian Thomas (Cardiff University).
Year(s) Of Engagement Activity 2020
 
Description 2020-07-06 Hampton, J.M. WISERD Blog: COVID-19 and the uncertainty for new Welsh undergraduates 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact The WISERD Blog posts are written by academics to engage and inform stakeholders about research being carried out by WISERD researchers and associates. This Blog was written by Jennifer May Hampton (Cardiff University).
Year(s) Of Engagement Activity 2020
 
Description 2020-08-12 Hampton, J.M. Wales Online: Wales makes A-level grades pledge to students amid lowered grades controversy 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Media (as a channel to the public)
Results and Impact Wales Online news article about the A level examination grades of 2020. Jennifer Hampton interviewed and quoted for the piece
Year(s) Of Engagement Activity 2020
URL https://www.walesonline.co.uk/news/education/a-levels-grades-wales-downgraded
 
Description 2020-08-13 Hampton, J.M. WISERD Blog: A-level results day 2020 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact The WISERD Blog posts are written by academics to engage and inform stakeholders about research being carried out by WISERD researchers and associates. This Blog was written by Jennifer May Hampton (Cardiff University).
Year(s) Of Engagement Activity 2020
URL https://wiserd.ac.uk/news/level-results-day-2020
 
Description 2020-08-20 Hampton, J.M. Cardiff University News: International study reveals low levels of well-being amongst children in Wales 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Media (as a channel to the public)
Results and Impact A Cardiff University news article, written by Jennifer Hampton, reporting the main findings of the study for children and young people in Wales.
Year(s) Of Engagement Activity 2020
URL https://www.cardiff.ac.uk/news/view/2431870-international-study-reveals-low-levels-of-wellbeing-amon...
 
Description 2020-08-20 Hampton, J.M. WISERD Blog: GCSE results day 2020 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact The WISERD Blog posts are written by academics to engage and inform stakeholders about research being carried out by WISERD researchers and associates. This Blog was written by Jennifer May Hampton (Cardiff University).
Year(s) Of Engagement Activity 2020
URL https://wiserd.ac.uk/news/gcse-results-day-2020
 
Description 2020-08-20 Hampton, J.M. WISERD Blog: Well-being of school children in Wales: European comparisons 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact The WISERD Blog posts are written by academics to engage and inform stakeholders about research being carried out by WISERD researchers and associates. This Blog was written by Jennifer May Hampton (Cardiff University).
Year(s) Of Engagement Activity 2020
URL https://wiserd.ac.uk/news/well-being-school-children-wales-european-comparisons
 
Description 2020-08-20 Hampton, J.M. WISERD Blog: Well-being of school children in Wales: bullying 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact The WISERD Blog posts are written by academics to engage and inform stakeholders about research being carried out by WISERD researchers and associates. This Blog was written by Jennifer May Hampton (Cardiff University).
Year(s) Of Engagement Activity 2020
URL https://wiserd.ac.uk/news/well-being-school-children-wales-bullying
 
Description 2020-08-26 Hampton, J.M. BBC Wales: BTec: 'Welsh solution needed' for qualifications 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Media (as a channel to the public)
Results and Impact Jennifer Hampton interviewed for BBC Wales, resulting in online news article and appearing in Wales Today, Evening News segment
Year(s) Of Engagement Activity 2020
URL https://www.bbc.co.uk/news/uk-wales-
 
Description 2020-08-26 Hampton, J.M. Nation Cymru: Children in Wales least positive about their future across 35 countries, international study shows 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Media (as a channel to the public)
Results and Impact A Nation Cymru article reporting the main findings of the study for children and young people in Wales.
Year(s) Of Engagement Activity 2020
URL https://nation.cymru/news/children-in-wales-least-positive-about-their-future-across-35-countries-in...
 
Description 2020-08-30 Hampton, J.M. Plaid Cymru: Report finds children in Wales have lowest levels of well-being 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Media (as a channel to the public)
Results and Impact A Plaid Cymru statement, written in response to the main findings of the study for children and young people in Wales.
Year(s) Of Engagement Activity 2020
URL https://www.partyof.wales/wellbeing_young_people_llesiant_pobl_ifanc
 
Description 2020-08-30 Hampton, J.M. Wales News Online: Report finds children in Wales have lowest levels of well-being 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Media (as a channel to the public)
Results and Impact A Wales News Online article reporting the main findings of the study for children and young people in Wales.
Year(s) Of Engagement Activity 2020
URL https://walesnewsonline.com/report-finds-children-in-wales-have-lowest-levels-of-well-being/
 
Description 2020-09-01 Hampton, J.M. Institute of Welsh Affairs Blog: Pass or fail? Reflections on the Welsh exams debacle 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Jennifer Hampton contributed to a blog for the Institute of Welsh Affairs, a Welsh think-tank and charity
Year(s) Of Engagement Activity 2020
URL https://www.iwa.wales/agenda/2020/09/pass-or-fail-reflections-on-the-welsh-exams-debacle/
 
Description 2020-09-01 Hampton, J.M. Play Wales: Low levels of well-being amongst children in Wales 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Media (as a channel to the public)
Results and Impact A Play Wales article reporting the main findings of the study for children and young people in Wales.
Year(s) Of Engagement Activity 2020
URL https://www.playwales.org.uk/eng/news/1407-low-levels-of-well-being-amongst-children-in-wales
 
Description 2020-09-30 Hampton, J.M. WISERD Blog: COVID-19, home learning and educational inequalities 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact The WISERD Blog posts are written by academics to engage and inform stakeholders about research being carried out by WISERD researchers and associates. This Blog was written by Jennifer May Hampton (Cardiff University).
Year(s) Of Engagement Activity 2020
URL https://wiserd.ac.uk/news/covid-19-home-learning-and-educational-inequalities
 
Description 2020-10-02 Hampton, J.M. BBC Wales Today, BBC: Interview regarding qualifications and assessment 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Dr Jennifer May Hampton was interviewed by BBC Wales Today about the Welsh Government being forced to backtrack on the grading method agreed with regulator Qualifications Wales. The decision came after an outcry over students being downgraded led to a u-turn in Scotland and changes in England. The interview drew on work carried out in the WISERD Education Data Lab.
Year(s) Of Engagement Activity 2020
URL https://wiserd.ac.uk/news/qualifications-and-assessment
 
Description 2020-10-02 Hampton, J.M. Western Mail: Press release regarding Children's Worlds 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Dr Jennifer May Hampton was interviewed by Wales Online about the Children's' Worlds survey, which found that children in Wales have some of the lowest levels of well-being amongst children across 35 countries.
Year(s) Of Engagement Activity 2020
URL https://wiserd.ac.uk/news/childrens-worlds
 
Description 2020-10-06 Taylor, C. WISERD Blog: The impact of COVID-19 on children's learning in Wales 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact The WISERD Blog posts are written by academics to engage and inform stakeholders about research being carried out by WISERD researchers and associates. This Blog was written by Chris Taylor (Cardiff University).
Year(s) Of Engagement Activity 2020
URL https://wiserd.ac.uk/news/impact-covid-19-childrens-learning-wales
 
Description 2020-10-15 Hampton, J.M. WEDL seminar: Hwb platform data - an initial analysis on digital learning during the COVID-19 lockdown 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Presentation and discussion of initial findings of Ser Cymru funded analysis of Hwb data, aimed at dissemination and participation of policy makers and education practitioners
Year(s) Of Engagement Activity 2020
 
Description 2020-10-20 Hampton, J.M. and Muddiman, E. WISERD Online Lunchtime Seminar: Home learning in Wales during a global pandemic. Online 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact The WISERD Lunchtime Seminars are to engage and inform internal and external stakeholders about research being carried out by WISERD academics. This Seminar was written and presented by Dr Jennifer May Hampton, Cardiff University, and Dr Esther Muddiman, Cardiff University.
Year(s) Of Engagement Activity 2020
URL https://wiserd.ac.uk/events/wiserd-online-lunchtime-seminar-home-learning-wales-during-global-pandem...
 
Description 2020.01.08 - HDRUK/Hub Commercial Framework Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Meeting with HDR UK to discuss the Hub Commercial Framework
Year(s) Of Engagement Activity 2020
 
Description 2020.01.09 - CTUHB/Sollis Project Plan 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Collaboration discussions
Year(s) Of Engagement Activity 2020
 
Description 2020.01.09 - Pfizer project meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Potential collaboration
Year(s) Of Engagement Activity 2020
 
Description 2020.01.10 - Hubs Commercial Framework Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Potential collaboration
Year(s) Of Engagement Activity 2020
 
Description 2020.01.10 - UKRI discussion on Swansea business model and costings 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Undergraduate students
Results and Impact Meeting
Year(s) Of Engagement Activity 2020
 
Description 2020.01.14 - MoJ, FJO and SAIL data linkages 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales participation in discussions around data linkage opportunities between Moj, Family Justice Observatory, and SAIL datasets.
Year(s) Of Engagement Activity 2020
 
Description 2020.01.16 - MS Register Monthly Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Regular meeting
Year(s) Of Engagement Activity 2020
 
Description 2020.01.23 - Presentation to WRA 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Supported Chief Statistician for Wales in an engagement with the Welsh Revenue Authority to discuss the development of a collaborative research project
Year(s) Of Engagement Activity 2020
 
Description 2020.01.27 - ADR Wales monthly catch up 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Regular meeting
Year(s) Of Engagement Activity 2020
 
Description 2020.01.27 - ALABAMA TSC Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Update meeting
Year(s) Of Engagement Activity 2020
 
Description 2020.01.29 - ADR Wales Mental Health User Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact A formal group bring together ADR Wales team members, mental health leads, policy individuals, third sector organisation and researchers to outline the work of ADR Wales' mental health SIP, and how it can aid and assist policy requirements within Welsh Government.
Year(s) Of Engagement Activity 2020
 
Description 2020.01.29 - CAFCASS Discussion 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Meeting
Year(s) Of Engagement Activity 2020
 
Description 2020.01.30 - ADRNI Coordinating Committee 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Regular meeting
Year(s) Of Engagement Activity 2020
 
Description 2020.01.30 - Fuel Poverty presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Presentation on 'The Impact on Health of the Welsh Government Warm Homes Schemes' at Housing Information Group event
Year(s) Of Engagement Activity 2020
 
Description 2020.01.30 - Research and Innovation Awards 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other audiences
Results and Impact Swansea University reward and recognition event
Year(s) Of Engagement Activity 2020
 
Description 2020.01.31 - MS Register Scientific Strategy Consultation 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact To drive forwards the MS research agenda and focus on outputs
Year(s) Of Engagement Activity 2020
 
Description 2020.02.03 - BREATHE meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Regular meeting
Year(s) Of Engagement Activity 2020
 
Description 2020.02.04 - DIH Programme Symposium & Hybrid Cloud Architecture Discussion 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Attendance at external workshop to represent ADR Wales and identify opportunities for collaboration
Year(s) Of Engagement Activity 2020
 
Description 2020.02.05 - ADR Leadership Committee 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Regular meeting
Year(s) Of Engagement Activity 2020
 
Description 2020.02.05 - Data First AAG Initial meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Attendance at meeting to represent ADR Wales and identify opportunities for collaboration
Year(s) Of Engagement Activity 2020
 
Description 2020.02.06 - ADP Steering Group meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Regular Meeting
Year(s) Of Engagement Activity 2020
 
Description 2020.02.06 - Welsh Government Quarterly Contract Management Review 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Regular meeting
Year(s) Of Engagement Activity 2020
 
Description 2020.02.10 - Meeting with Jonathan Brown - Gloucester 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Informing Jonathan Brown's presentation to the RCP regarding 'Big Data'
Year(s) Of Engagement Activity 2020
 
Description 2020.02.11 - ADR UK Deep Dive 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Review
Year(s) Of Engagement Activity 2020
 
Description 2020.02.12 - HWW forward planning meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Discussion re: future strategy for health data research under the HealthWise Wales project
Year(s) Of Engagement Activity 2020
 
Description 2020.02.17 - ADR Steering Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact ADR Wales undertook a process of refocusing the programme steering group to include participants from senior policy (Welsh Government) who could take a more active advisory role. This re-aligned group included the senior SIP academics as well, with the intention of reinforcing a direct link between the work being done at a research level and the policy team implementing the outputs
Year(s) Of Engagement Activity 2020
 
Description 2020.02.17 - ADR Wales Leadership Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact A formal group bring together ADR Wales SIP leads, management and policy within Welsh Government to oversee the delivery of the ADR Wales programme of work and its effectiveness in providing insight to policy and insightful academic work.
Year(s) Of Engagement Activity 2020
 
Description 2020.02.19 - Stroke Epidemiological Data Meeting w/ Janet Whitley & Philip Evans 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Discussions on data held & IGRP
Year(s) Of Engagement Activity 2020
 
Description 2020.02.21 - Casefiles w/ Matthew Pinnell CAFCASS CYMRU 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Discussions on CAFCASS Cymru data
Year(s) Of Engagement Activity 2020
 
Description 2020.02.21 - PAA Presentation Planning Meeting (UPENN) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Invite to attend the PAA later in the year
Year(s) Of Engagement Activity 2020
 
Description 2020.02.25 - Patients know best (Sarah White) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Exploring collaborations and synergies
Year(s) Of Engagement Activity 2020
 
Description 2020.02.27 - HDR UK Collaboration AIMES 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Exploring opportunities for collaborations
Year(s) Of Engagement Activity 2020
 
Description 2020.03.03 - Data Partnership Quarterly Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Regular meeting on data partnership (Nuffield & University of Lancaster)
Year(s) Of Engagement Activity 2020
 
Description 2020.03.05 - Quebec delegation discussion on data and technology 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Invitation by WG to speak with a fact finding delegation from Quebec
Year(s) Of Engagement Activity 2020
 
Description 2020.03.06 - SAIL HDR Phenomics discussion 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Swansea & UCL collaboration
Year(s) Of Engagement Activity 2020
 
Description 2020.03.11 - HCRW Directors Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Discussion re: future strategy for health data research
Year(s) Of Engagement Activity 2020
 
Description 2020.03.13 - Cardiovascular Research in Wales Event 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact BHF new opportunities event
Year(s) Of Engagement Activity 2020
 
Description 2020.03.18 - Chiesi & BREATHE discussions 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Discussions re: existing collaboration and opportunities to support ongoing work
Year(s) Of Engagement Activity 2020
 
Description 2020.03.19 - MOJ discussion - panel set up 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Attendance at external advisory group to represent ADR Wales and identify opportunities for to support the MOJ re: data research requirements
Year(s) Of Engagement Activity 2020
 
Description 2020.03.19 - Novartis discussions 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Potential collaboration
Year(s) Of Engagement Activity 2020
 
Description 2020.03.24 - NWEH & BREATHE 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Discussions re: existing collaboration and opportunities to support ongoing work
Year(s) Of Engagement Activity 2020
 
Description 2020.03.31 - ADR Wales Housing & Homelessness Strategic Impact Programme Leadership Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact A formal working group to manage the delivery of ADR Wales' Housing and Homelessness body of work
Year(s) Of Engagement Activity 2020
 
Description 2020.03.31 - ADR Wales Skills & Employability Strategic Impact Programme leadership meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact A formal working group to manage the delivery of ADR Wales' Skills & Employability body of work
Year(s) Of Engagement Activity 2020
 
Description 2020.03.31 - ZOE technical meeting w/ HDR UK 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Discussions re: existing collaboration and opportunities to support ongoing work
Year(s) Of Engagement Activity 2020
 
Description 2020.04.01 - Roche, BREATHE & Discover now 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Potential collaboration
Year(s) Of Engagement Activity 2020
 
Description 2020.04.02 - Gates Foundation Proposal 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADR Wales support of the Gates Foundation proposal for collaborating on data research infrastructure project
Year(s) Of Engagement Activity 2020
 
Description 2020.04.03 - GSK discussion 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Discussions re: existing collaboration and opportunities to support ongoing work
Year(s) Of Engagement Activity 2020
 
Description 2020.04.07 - Data First Seminar (MOJ) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Discussions re: existing collaboration and opportunities to support ongoing work
Year(s) Of Engagement Activity 2020
 
Description 2020.04.17 - AAG 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Meeting
Year(s) Of Engagement Activity 2020
 
Description 2020.04.20 - EHDEN & COVID 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Discussions re: existing collaboration and opportunities to support ongoing work
Year(s) Of Engagement Activity 2020
 
Description 2020.04.21 - FRQS Committee 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Fonds de rechereche du Quebec. Committee member to assess innovation funds for AI and deep learning bids
Year(s) Of Engagement Activity 2020
 
Description 2020.04.27 - meeting with Renate Apse (mendelian) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Questions regarding SAIL database application
Year(s) Of Engagement Activity 2020
 
Description 2020.04.28 - ADR Wales Mental Health Strategic Impact Programme Leadership Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact A formal working group to manage the delivery of ADR Wales' mental health body of work
Year(s) Of Engagement Activity 2020
 
Description 2020.05.05 - BME proposal with Leicester 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Potential collaboration - Leicester council
Year(s) Of Engagement Activity 2020
 
Description 2020.05.05 - National Data Strategy for social services and social care in Wales (KPMG) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No