Monitoring symptoms of Parkinson's disease to improve quality of life

Lead Research Organisation: University of Wolverhampton
Department Name: Faculty of Education, Health & Wellbeing

Abstract

Parkinson's disease affects 1% of adults over 60 years old, and due to an ageing population, its prevalence is increasing. The disease is characterised by movement symptoms and as there is currently no cure, living well with these symptoms is a priority. Movement symptoms vary during the course of a day and over the long-term, and being able to monitor these symptoms accurately and precisely has various benefits. These include informing current health status to help plan daily activities, and recording changes over time to enable optimization of treatment.

We have a prototype device which accurately and precisely measures key features of upper limb movement relevant to symptoms of Parkinson's disease, while performing a short task. This project aims to develop our current prototype into a simple and easy to use home monitoring tool for people with the disease.

People with Parkinson's disease, their family members, and other key stakeholders, such as clinicians and General Practitioners, will be involved in the project and product design processes. That will ensure we understand the needs of people the device will benefit, to create something meaningful to them. We will also seek their thoughts on how to re-design the prototype including its digital interface, with the aim of providing a user-friendly product and digital output that allows easy interpretation of individual results.

The co-designing of the device will occur in stages so all stakeholders can have ongoing input. The overall development of the device as a home monitoring tool will be based on the information we receive. At the end of the project, we will evaluate the final product and identify early adopters ready to trial the product for home monitoring.

Publications

10 25 50
 
Description Co-design Workshop 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Study participants or study members
Results and Impact People with Parkinson's disease and their carers/close family members took part in a co-design session to help inform the innovation of our prototype device which monitors symptoms of Parkinson's disease. This was an interactive session and provided the research team with useful suggestions towards the development of the device.
Year(s) Of Engagement Activity 2023
 
Description PPIE Session 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Five people took part in a patient and public involvement and engagement (PPIE) session to guide and inform our current research project on monitoring symptoms of Parkinson's disease. The group were recruited through the VOICE citizen community and consisted of people living with Parkinson's disease, carers of people with Parkinson's disease and people with close friends and family who live with the disease. Interesting and lively discussion took place about the current project with suggestions provided to help the ongoing management and direction of the project.
Year(s) Of Engagement Activity 2023
 
Description PPIE Session & PPIE Group Formation 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact Four people agreed to form a Patient and Public Involvement and Engagement (PPIE) group for the duration of our current research project and completed initial PPIE activities to guide and inform our current research project on monitoring symptoms of Parkinson's disease. The group were recruited through the Parkinson's UK, PPI network and consisted of people living with Parkinson's disease. Three members of the group attended a PPIE workshop where interesting and lively discussion took place about the current project. The fourth member provided their input via written response. This resulted in suggestions being provided to help the ongoing management and direction of the project. The group will continue to engage in PPIE activities with us for the duration of our current research project on monitoring symptoms of Parkinson's disease.
Year(s) Of Engagement Activity 2023
 
Description Talk at Parkinson's support group (Gloucestershire) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Third sector organisations
Results and Impact Approximately 30 people from a local Parkinson's support group attended a talk about our current research into Parkinson's disease. The presentation was very well received and interesting and engaging discussion took place afterwards. The group asked to be kept informed about the progress of our research and many group members asked if they could volunteer to take part in future research activities.
Year(s) Of Engagement Activity 2022