BRAIN UK: accessing NHS tissue archives for neuroscience research

Lead Research Organisation: University of Southampton
Department Name: Clinical Neurological Sciences

Abstract

The brain (and associated components including the spinal cord, nerves, muscle and eye) is important to us, essentially making us humans and giving us our identity and self awareness. It is composed of cells which, once formed in infancy, have to last us a lifetime. Inevitably, the brain is complex and may malfunction. Damage to, or disease of, any part of the nervous system is likely to result in physical disability, mental illness or may cause death. Study of brain tissue samples retained at post mortem examinations has led to many of the advances in our understanding of neurological disease in the last few decades, and led to new treatments. Animal models of human brain diseases have been helpful, but have the disadvantage that they are not the actual human disease itself, and therefore have in some instances been misleading. Work performed in the NHS by neuropathologists over the past 30-40 years across the UK, and which continues, has led to very substantial collections of stored brain tissue samples. The objective of BRAIN UK is to catalogue these samples and address ethical and legal issues, in order to allow release of appropriate samples for new research studies. The stream-lined application/review process and generic ethical approval has removed many of the bureaucratic hurdles until recently hindering researchers. Researchers can now access tissue for their studies from more than 60,000 cases through BRAIN UK. The ultimate aim, of course, is to further improve our understanding of the mechanisms involved in the development of neurological disease and eventually provide new forms of treatment or prevention for diseases of the nervous system.

Technical Summary

BRAIN UK is a virtual brain bank providing access to human tissue from more than 60,000 cases held in 13 NHS regional neuroscience centres across the UK. All ethical and NHS R&D permissions have been granted for blanket use of this tissue for researchers in the UK and overseas, so saving researchers considerable time and effort by removing these bureaucratic barriers to the use of human tissue. Many substantial advances in the understanding of neurological diseases have been made over the past decades from direct observations made on post mortem human tissue and further advances are to be anticipated. Animal models of disease have an important role, but also have their limitations. Types of tissue encompassed by BRAIN UK are the brain and associated components including the spinal cord, nerves, muscle, eye and samples of other organs when relevant to neurological disease. BRAIN UK is not limited to diseases that can attract sufficient funding for dedicated brain banks and is therefore complementary to them. For example, BRAIN UK has many hundreds of cases of head injury, stroke and mental health disorders and also examples of many rare conditions such as Progressive multifocal leucoencephalopathy and Neuromyelitis optica. The work in collecting, processing, categorising and archiving the samples has already been performed within the NHS; in providing a mechanism for access to this tissue for research BRAIN UK provides exceptional added value. With this proposal for continued funding for BRAIN UK we aim to: continue providing access to tissue for researchers, further refine the database for greater precision in access to information and put into place a mechanism to permit inclusion of new cases obtained now and into the future.

Organisations

Publications

10 25 50
 
Description Brain UK biopsy extension
Amount £90,000 (GBP)
Funding ID 512921101 
Organisation Brainstrust 
Sector Charity/Non Profit
Country United Kingdom
Start 08/2013 
End 07/2016
 
Description Bridging funding from "Brain Tumour Research"
Amount £27,031 (GBP)
Organisation Brain Tumour Research 
Sector Charity/Non Profit
Country United Kingdom
Start 03/2017 
End 09/2017
 
Title BRAIN UK Database 
Description The construction of a linked anonymised electronic database containing details of the archival tissue holdings of UK neuropathology centres to form a virtual brain bank consisting of: ? Diagnostic category ? Diagnostic code (SNOMED CT or equivalent) ? Laboratory/Post Mortem Number ? Tissue format ? Age at death ? Age at operation ? Sex ? Geographical location 
Type Of Material Database/Collection of data 
Provided To Others? No  
Impact Provided the project with a searchable dataset able to support applications for access to tissue. So far has supported 82 projects (2010 - 2016). 
URL http://www.southampton.ac.uk/brainuk/about/index.page?
 
Description BRAIN UK network of participating neuropathology centres 
Organisation Barking, Havering and Redbridge University Hospitals NHS Trust
Country United Kingdom 
Sector Public 
PI Contribution Formation of BRAIN UK
Collaborator Contribution Collaboration to provide data about archives and to satisfy requests for tissue. Supplying of tissue to ethically approved studies.
Impact Formation of BRAIN UK database. Provision of brain tissue for research. Supported 82 projects, 29 of which have produced 52 platform presentations, 49 posters, 24 publications and 18 grants (generating over £1,300,000 income). Around 90 interactions or collaborations generated by applicants and Participating Centres working within the BRAIN UK network.
Start Year 2008
 
Description BRAIN UK network of participating neuropathology centres 
Organisation Barts Health NHS Trust
Country United Kingdom 
Sector Public 
PI Contribution Formation of BRAIN UK
Collaborator Contribution Collaboration to provide data about archives and to satisfy requests for tissue. Supplying of tissue to ethically approved studies.
Impact Formation of BRAIN UK database. Provision of brain tissue for research. Supported 82 projects, 29 of which have produced 52 platform presentations, 49 posters, 24 publications and 18 grants (generating over £1,300,000 income). Around 90 interactions or collaborations generated by applicants and Participating Centres working within the BRAIN UK network.
Start Year 2008
 
Description BRAIN UK network of participating neuropathology centres 
Organisation Cambridge University Hospitals NHS Foundation Trust
Country United Kingdom 
Sector Public 
PI Contribution Formation of BRAIN UK
Collaborator Contribution Collaboration to provide data about archives and to satisfy requests for tissue. Supplying of tissue to ethically approved studies.
Impact Formation of BRAIN UK database. Provision of brain tissue for research. Supported 82 projects, 29 of which have produced 52 platform presentations, 49 posters, 24 publications and 18 grants (generating over £1,300,000 income). Around 90 interactions or collaborations generated by applicants and Participating Centres working within the BRAIN UK network.
Start Year 2008
 
Description BRAIN UK network of participating neuropathology centres 
Organisation Cardiff and Vale University Health Board
Country United Kingdom 
Sector Public 
PI Contribution Formation of BRAIN UK
Collaborator Contribution Collaboration to provide data about archives and to satisfy requests for tissue. Supplying of tissue to ethically approved studies.
Impact Formation of BRAIN UK database. Provision of brain tissue for research. Supported 82 projects, 29 of which have produced 52 platform presentations, 49 posters, 24 publications and 18 grants (generating over £1,300,000 income). Around 90 interactions or collaborations generated by applicants and Participating Centres working within the BRAIN UK network.
Start Year 2008
 
Description BRAIN UK network of participating neuropathology centres 
Organisation Great Ormond Street Hospital (GOSH)
Country United Kingdom 
Sector Hospitals 
PI Contribution Formation of BRAIN UK
Collaborator Contribution Collaboration to provide data about archives and to satisfy requests for tissue. Supplying of tissue to ethically approved studies.
Impact Formation of BRAIN UK database. Provision of brain tissue for research. Supported 82 projects, 29 of which have produced 52 platform presentations, 49 posters, 24 publications and 18 grants (generating over £1,300,000 income). Around 90 interactions or collaborations generated by applicants and Participating Centres working within the BRAIN UK network.
Start Year 2008
 
Description BRAIN UK network of participating neuropathology centres 
Organisation Hull and East Yorkshire Hospitals NHS Trust
Country United Kingdom 
Sector Public 
PI Contribution Formation of BRAIN UK
Collaborator Contribution Collaboration to provide data about archives and to satisfy requests for tissue. Supplying of tissue to ethically approved studies.
Impact Formation of BRAIN UK database. Provision of brain tissue for research. Supported 82 projects, 29 of which have produced 52 platform presentations, 49 posters, 24 publications and 18 grants (generating over £1,300,000 income). Around 90 interactions or collaborations generated by applicants and Participating Centres working within the BRAIN UK network.
Start Year 2008
 
Description BRAIN UK network of participating neuropathology centres 
Organisation Imperial College Healthcare NHS Trust
Country United Kingdom 
Sector Hospitals 
PI Contribution Formation of BRAIN UK
Collaborator Contribution Collaboration to provide data about archives and to satisfy requests for tissue. Supplying of tissue to ethically approved studies.
Impact Formation of BRAIN UK database. Provision of brain tissue for research. Supported 82 projects, 29 of which have produced 52 platform presentations, 49 posters, 24 publications and 18 grants (generating over £1,300,000 income). Around 90 interactions or collaborations generated by applicants and Participating Centres working within the BRAIN UK network.
Start Year 2008
 
Description BRAIN UK network of participating neuropathology centres 
Organisation King's College University Hospital NHS Trust
Country United Kingdom 
Sector Hospitals 
PI Contribution Formation of BRAIN UK
Collaborator Contribution Collaboration to provide data about archives and to satisfy requests for tissue. Supplying of tissue to ethically approved studies.
Impact Formation of BRAIN UK database. Provision of brain tissue for research. Supported 82 projects, 29 of which have produced 52 platform presentations, 49 posters, 24 publications and 18 grants (generating over £1,300,000 income). Around 90 interactions or collaborations generated by applicants and Participating Centres working within the BRAIN UK network.
Start Year 2008
 
Description BRAIN UK network of participating neuropathology centres 
Organisation Lancashire Teaching Hospitals NHS Foundation Trust
Country United Kingdom 
Sector Public 
PI Contribution Formation of BRAIN UK
Collaborator Contribution Collaboration to provide data about archives and to satisfy requests for tissue. Supplying of tissue to ethically approved studies.
Impact Formation of BRAIN UK database. Provision of brain tissue for research. Supported 82 projects, 29 of which have produced 52 platform presentations, 49 posters, 24 publications and 18 grants (generating over £1,300,000 income). Around 90 interactions or collaborations generated by applicants and Participating Centres working within the BRAIN UK network.
Start Year 2008
 
Description BRAIN UK network of participating neuropathology centres 
Organisation Leeds Teaching Hospitals NHS Trust
Country United Kingdom 
Sector Public 
PI Contribution Formation of BRAIN UK
Collaborator Contribution Collaboration to provide data about archives and to satisfy requests for tissue. Supplying of tissue to ethically approved studies.
Impact Formation of BRAIN UK database. Provision of brain tissue for research. Supported 82 projects, 29 of which have produced 52 platform presentations, 49 posters, 24 publications and 18 grants (generating over £1,300,000 income). Around 90 interactions or collaborations generated by applicants and Participating Centres working within the BRAIN UK network.
Start Year 2008
 
Description BRAIN UK network of participating neuropathology centres 
Organisation NHS Greater Glasgow and Clyde (NHSGGC)
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Formation of BRAIN UK
Collaborator Contribution Collaboration to provide data about archives and to satisfy requests for tissue. Supplying of tissue to ethically approved studies.
Impact Formation of BRAIN UK database. Provision of brain tissue for research. Supported 82 projects, 29 of which have produced 52 platform presentations, 49 posters, 24 publications and 18 grants (generating over £1,300,000 income). Around 90 interactions or collaborations generated by applicants and Participating Centres working within the BRAIN UK network.
Start Year 2008
 
Description BRAIN UK network of participating neuropathology centres 
Organisation NHS Lothian
Country United Kingdom 
Sector Public 
PI Contribution Formation of BRAIN UK
Collaborator Contribution Collaboration to provide data about archives and to satisfy requests for tissue. Supplying of tissue to ethically approved studies.
Impact Formation of BRAIN UK database. Provision of brain tissue for research. Supported 82 projects, 29 of which have produced 52 platform presentations, 49 posters, 24 publications and 18 grants (generating over £1,300,000 income). Around 90 interactions or collaborations generated by applicants and Participating Centres working within the BRAIN UK network.
Start Year 2008
 
Description BRAIN UK network of participating neuropathology centres 
Organisation Newcastle upon Tyne Hospitals NHS Foundation Trust
Country United Kingdom 
Sector Public 
PI Contribution Formation of BRAIN UK
Collaborator Contribution Collaboration to provide data about archives and to satisfy requests for tissue. Supplying of tissue to ethically approved studies.
Impact Formation of BRAIN UK database. Provision of brain tissue for research. Supported 82 projects, 29 of which have produced 52 platform presentations, 49 posters, 24 publications and 18 grants (generating over £1,300,000 income). Around 90 interactions or collaborations generated by applicants and Participating Centres working within the BRAIN UK network.
Start Year 2008
 
Description BRAIN UK network of participating neuropathology centres 
Organisation North Bristol NHS Trust
Country United Kingdom 
Sector Public 
PI Contribution Formation of BRAIN UK
Collaborator Contribution Collaboration to provide data about archives and to satisfy requests for tissue. Supplying of tissue to ethically approved studies.
Impact Formation of BRAIN UK database. Provision of brain tissue for research. Supported 82 projects, 29 of which have produced 52 platform presentations, 49 posters, 24 publications and 18 grants (generating over £1,300,000 income). Around 90 interactions or collaborations generated by applicants and Participating Centres working within the BRAIN UK network.
Start Year 2008
 
Description BRAIN UK network of participating neuropathology centres 
Organisation Nottingham University Hospitals NHS Trust
Country United Kingdom 
Sector Public 
PI Contribution Formation of BRAIN UK
Collaborator Contribution Collaboration to provide data about archives and to satisfy requests for tissue. Supplying of tissue to ethically approved studies.
Impact Formation of BRAIN UK database. Provision of brain tissue for research. Supported 82 projects, 29 of which have produced 52 platform presentations, 49 posters, 24 publications and 18 grants (generating over £1,300,000 income). Around 90 interactions or collaborations generated by applicants and Participating Centres working within the BRAIN UK network.
Start Year 2008
 
Description BRAIN UK network of participating neuropathology centres 
Organisation Oxford University Hospitals NHS Foundation Trust
Country United Kingdom 
Sector Public 
PI Contribution Formation of BRAIN UK
Collaborator Contribution Collaboration to provide data about archives and to satisfy requests for tissue. Supplying of tissue to ethically approved studies.
Impact Formation of BRAIN UK database. Provision of brain tissue for research. Supported 82 projects, 29 of which have produced 52 platform presentations, 49 posters, 24 publications and 18 grants (generating over £1,300,000 income). Around 90 interactions or collaborations generated by applicants and Participating Centres working within the BRAIN UK network.
Start Year 2008
 
Description BRAIN UK network of participating neuropathology centres 
Organisation Plymouth Hospitals NHS Trust
Country United Kingdom 
Sector Public 
PI Contribution Formation of BRAIN UK
Collaborator Contribution Collaboration to provide data about archives and to satisfy requests for tissue. Supplying of tissue to ethically approved studies.
Impact Formation of BRAIN UK database. Provision of brain tissue for research. Supported 82 projects, 29 of which have produced 52 platform presentations, 49 posters, 24 publications and 18 grants (generating over £1,300,000 income). Around 90 interactions or collaborations generated by applicants and Participating Centres working within the BRAIN UK network.
Start Year 2008
 
Description BRAIN UK network of participating neuropathology centres 
Organisation Royal Free London NHS Foundation Trust
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Formation of BRAIN UK
Collaborator Contribution Collaboration to provide data about archives and to satisfy requests for tissue. Supplying of tissue to ethically approved studies.
Impact Formation of BRAIN UK database. Provision of brain tissue for research. Supported 82 projects, 29 of which have produced 52 platform presentations, 49 posters, 24 publications and 18 grants (generating over £1,300,000 income). Around 90 interactions or collaborations generated by applicants and Participating Centres working within the BRAIN UK network.
Start Year 2008
 
Description BRAIN UK network of participating neuropathology centres 
Organisation Salford Royal NHS Foundation Trust
Country United Kingdom 
Sector Public 
PI Contribution Formation of BRAIN UK
Collaborator Contribution Collaboration to provide data about archives and to satisfy requests for tissue. Supplying of tissue to ethically approved studies.
Impact Formation of BRAIN UK database. Provision of brain tissue for research. Supported 82 projects, 29 of which have produced 52 platform presentations, 49 posters, 24 publications and 18 grants (generating over £1,300,000 income). Around 90 interactions or collaborations generated by applicants and Participating Centres working within the BRAIN UK network.
Start Year 2008
 
Description BRAIN UK network of participating neuropathology centres 
Organisation Sheffield Teaching Hospitals NHS Foundation Trust
Country United Kingdom 
Sector Public 
PI Contribution Formation of BRAIN UK
Collaborator Contribution Collaboration to provide data about archives and to satisfy requests for tissue. Supplying of tissue to ethically approved studies.
Impact Formation of BRAIN UK database. Provision of brain tissue for research. Supported 82 projects, 29 of which have produced 52 platform presentations, 49 posters, 24 publications and 18 grants (generating over £1,300,000 income). Around 90 interactions or collaborations generated by applicants and Participating Centres working within the BRAIN UK network.
Start Year 2008
 
Description BRAIN UK network of participating neuropathology centres 
Organisation South Tees Hospitals NHS Foundation Trust
Department Department of Cellular Pathology
Country United Kingdom 
Sector Hospitals 
PI Contribution Formation of BRAIN UK
Collaborator Contribution Collaboration to provide data about archives and to satisfy requests for tissue. Supplying of tissue to ethically approved studies.
Impact Formation of BRAIN UK database. Provision of brain tissue for research. Supported 82 projects, 29 of which have produced 52 platform presentations, 49 posters, 24 publications and 18 grants (generating over £1,300,000 income). Around 90 interactions or collaborations generated by applicants and Participating Centres working within the BRAIN UK network.
Start Year 2008
 
Description BRAIN UK network of participating neuropathology centres 
Organisation Southampton University Hospitals NHS Trust (SUHT)
Country United Kingdom 
Sector Public 
PI Contribution Formation of BRAIN UK
Collaborator Contribution Collaboration to provide data about archives and to satisfy requests for tissue. Supplying of tissue to ethically approved studies.
Impact Formation of BRAIN UK database. Provision of brain tissue for research. Supported 82 projects, 29 of which have produced 52 platform presentations, 49 posters, 24 publications and 18 grants (generating over £1,300,000 income). Around 90 interactions or collaborations generated by applicants and Participating Centres working within the BRAIN UK network.
Start Year 2008
 
Description BRAIN UK network of participating neuropathology centres 
Organisation St George's Healthcare NHS Trust
Country United Kingdom 
Sector Public 
PI Contribution Formation of BRAIN UK
Collaborator Contribution Collaboration to provide data about archives and to satisfy requests for tissue. Supplying of tissue to ethically approved studies.
Impact Formation of BRAIN UK database. Provision of brain tissue for research. Supported 82 projects, 29 of which have produced 52 platform presentations, 49 posters, 24 publications and 18 grants (generating over £1,300,000 income). Around 90 interactions or collaborations generated by applicants and Participating Centres working within the BRAIN UK network.
Start Year 2008
 
Description BRAIN UK network of participating neuropathology centres 
Organisation The Walton Centre NHS Foundation Trust
Country United Kingdom 
Sector Public 
PI Contribution Formation of BRAIN UK
Collaborator Contribution Collaboration to provide data about archives and to satisfy requests for tissue. Supplying of tissue to ethically approved studies.
Impact Formation of BRAIN UK database. Provision of brain tissue for research. Supported 82 projects, 29 of which have produced 52 platform presentations, 49 posters, 24 publications and 18 grants (generating over £1,300,000 income). Around 90 interactions or collaborations generated by applicants and Participating Centres working within the BRAIN UK network.
Start Year 2008
 
Description BRAIN UK network of participating neuropathology centres 
Organisation University College London Hospitals NHS Foundation Trust
Country United Kingdom 
Sector Public 
PI Contribution Formation of BRAIN UK
Collaborator Contribution Collaboration to provide data about archives and to satisfy requests for tissue. Supplying of tissue to ethically approved studies.
Impact Formation of BRAIN UK database. Provision of brain tissue for research. Supported 82 projects, 29 of which have produced 52 platform presentations, 49 posters, 24 publications and 18 grants (generating over £1,300,000 income). Around 90 interactions or collaborations generated by applicants and Participating Centres working within the BRAIN UK network.
Start Year 2008
 
Description BRAIN UK network of participating neuropathology centres 
Organisation University Hospitals Birmingham NHS Foundation Trust
Country United Kingdom 
Sector Public 
PI Contribution Formation of BRAIN UK
Collaborator Contribution Collaboration to provide data about archives and to satisfy requests for tissue. Supplying of tissue to ethically approved studies.
Impact Formation of BRAIN UK database. Provision of brain tissue for research. Supported 82 projects, 29 of which have produced 52 platform presentations, 49 posters, 24 publications and 18 grants (generating over £1,300,000 income). Around 90 interactions or collaborations generated by applicants and Participating Centres working within the BRAIN UK network.
Start Year 2008
 
Description MRC UK Brain Banks Network 
Organisation Medical Research Council (MRC)
Country United Kingdom 
Sector Academic/University 
PI Contribution BRAIN UK compliments the tissue that the other brain banks within the MRC network provide. BRAIN UK (through data supplied by the participating neuropathology centres) have identified very useful quantities of rare neurological diseases and disorders as well as larger quantities of common and medically important disorders (such as stroke) and tumours that are currently not catered for by existing brain banking facilities. Participation at meetings and training events ensures that BRAIN UK's experiences of working with researchers are represented and that the brain banks work towards common aims.
Collaborator Contribution By 2015 BRAIN UK collaborating centres contributed data relating to over 130,000 available research cases to the centralised BRAIN UK database.
Impact No formal outcomes.
Start Year 2009
 
Description Annual report to the BRAIN UK Committee 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Annual meeting of BRAIN UK committee. Metrics data supplied to members to give an insight into how study is progressing, intention is to provide a support and challenge environment. As the study and the format of the meeting is well established good level of discussion around direction of the study with supportive suggestions for future direction and practical offers of support.
Year(s) Of Engagement Activity 2010,2011,2012,2013,2014
 
Description Annual report to the British Neuropathological Society 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Brief update delivered to the British Neuropathological Society Business Meeting as part of their annual meeting. Main aim is to keep the Neuropathology community aware of the work of BRAIN UK with the intention to keep receiving their support through the supply of data and tissue and for them to recommend the service to researchers. Also, to maintain engagement with neuropathologists and researchers and ensure that we are meeting their current and future needs.
Year(s) Of Engagement Activity 2010,2011,2012,2013,2014
 
Description BRAIN UK biopsy extension press release 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact BRAIN UK biopsy extension press release published on some trust websites and local news papers such as the Daily Echo in Southampton.
Year(s) Of Engagement Activity 2014
 
Description BRAIN UK, the National Brain Tumour Bank Network Three Years On; Oncology News, Vol 11, Issue 5, Nov/Dec 2016. ISSN 1751-4975 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Article published highlighting achievements of the first three years of the study's extension to include surgical material.
Year(s) Of Engagement Activity 2016
URL https://issuu.com/oncologynews/docs/011116
 
Description Development of BRAIN UK website 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Improvements to BRAIN UK website - including improvements, extensions and new sections to website and creation of BRAIN UK branding. Aim was to give BRAIN UK a web presence, provide information to different stakeholders in the project and improve the efficiency of transfer of information.
Year(s) Of Engagement Activity 2015,2016,2017
URL http://www.brain-uk.org
 
Description Interview promoting the launch of BRAIN UK biopsy extension on JACK FM 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact Radio interview promoting the launch of the BRAIN UK biopsy extension on Jack FM.
Year(s) Of Engagement Activity 2014
 
Description Interview promoting the launch of BRAIN UK biopsy extension on Wave 105 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact Radio interview promoting the launch of the BRAIN UK biopsy extension on Wave 105.
Year(s) Of Engagement Activity 2014
 
Description Linkage from British Neuroscience Association (BNA) 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact URL link established from ABN website (http://www.bna.org.uk/about/related-links.html) to BRAIN UK and dissemination of information in ABN e-Newsletter January 2012.
Year(s) Of Engagement Activity 2012
URL http://www.bna.org.uk/about/related-links.html
 
Description Linkage from MRC Brain Banks Network website 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Postgraduate students
Results and Impact Link from the MRC Brain Banks Network http://www.mrc.ac.uk/research/facilities/brain-banks/access-for-research/ to promote the usage of BRAIN UK.
Year(s) Of Engagement Activity 2010,2011,2012,2013,2014
URL http://www.mrc.ac.uk/research/facilities/brain-banks/access-for-research/
 
Description Platform presentation to British Neuro-Oncology Society Conference 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Platform presentation to describe the biopsy extension to conference participants to raise awareness and support for project. Questions and discussion afterwards and two enquiries for applications for tissues and additional centre request to participate in the project.
Year(s) Of Engagement Activity 2014
 
Description Platform presetation to British Neuro-Oncology Society Conference (Leeds) 2016 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Platform presentation to describe the progress made with the biopsy extension to conference participants to raise awareness and support for project. Questions and discussion afterwards and enquiries for applications for tissues
Year(s) Of Engagement Activity 2016
URL http://www.bnos.org.uk/wp-content/uploads/2015/06/BNOS-2016-Conference-Report.pdf
 
Description Platform presetation to British Neuropathological Society Conference (London) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Platform presentation to describe the latest activities of BRAIN UK to conference participants to raise awareness and support for project. Questions and discussion afterwards and enquiries for applications for tissues.
Year(s) Of Engagement Activity 2016
URL http://onlinelibrary.wiley.com/doi/10.1111/nan.2016.42.issue-S1/issuetoc
 
Description Poster at British Neuropathological Society (London) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Poster to describe BRAIN UK to conference participants to raise awareness and support for project. Questions and discussion afterwards and enquiries for applications for tissues
Year(s) Of Engagement Activity 2015
URL http://onlinelibrary.wiley.com/doi/10.1111/nan.2015.41.issue-S1/issuetoc
 
Description Poster at Society for Neuro-Oncology Conference on Meningioma ( June 17-18, 2016 in Toronto, Ontario, Canada) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Interest in BRAIN UK
Year(s) Of Engagement Activity 2016
 
Description Poster at Southampton Neuroscience Group (SoNG) Conference 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other audiences
Results and Impact Poster to promote BRAIN UK project locally
Year(s) Of Engagement Activity 2014,2015
 
Description Presentation to National Cancer Research Institute Brain Tumour Clinical Studies Group 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Describe the biopsy extension to National Cancer Research Institute Brain Tumour Clinical Studies Group to raise awareness and support for project. Questions and discussion afterwards.
Year(s) Of Engagement Activity 2014
 
Description Presentation to National Cancer Research Institute Brain Tumour Clinical Studies Group 'Hot Topics and New Directions' Meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Describe the biopsy extension to National Cancer Research Institute Brain Tumour Clinical Studies Group organised meeting, mostly to wide group of neuro-oncologists and neurologists, to raise awareness and support for project, raise awareness of the issues around consent to research. Questions and discussion afterwards.
Year(s) Of Engagement Activity 2014
 
Description Promotion of Corsellis Collection for "All in the Mind" on Radio 4 
Form Of Engagement Activity A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Involvement with making of an "All in the Mind" Radio 4 programme , highlighting the closure the Corsellis Collection and the benefits of brain banking and research on human tissue. This resulted in further press interest and funding opportunities.
Year(s) Of Engagement Activity 2015
URL http://www.bbc.co.uk/programmes/b06r5d0h
 
Description Raise awareness of BRAIN UK with the CCLG 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Raise awareness of BRAIN UK activities with the Children's Cancer and Leukaemia Group Biological Studies Steering Group. Discussion on how can work together and how BRAIN UK fits with other brain banks.
Year(s) Of Engagement Activity 2014