Infrastructure and Services - The UK Health Data Research Alliance and Hub Network

Description	HDR UK's response to the NHS 10-year plan consultation
Geographic Reach	National
Policy Influence Type	Contribution to a national consultation/review
URL	https://www.hdruk.ac.uk/wp-content/uploads/2024/12/HDR-UK-Response-to-NHS-10-year-consultation.pdf

Description	HDR UK's response to the technical white paper challenge
Geographic Reach	National
Policy Influence Type	Contribution to a national consultation/review
URL	https://zenodo.org/records/14420590

Description	Health Data Research UK responds to draft Transparency in Health and Social Care guidance consultation
Geographic Reach	National
Policy Influence Type	Contribution to a national consultation/review
URL	https://www.hdruk.ac.uk/news/health-data-research-uk-responds-to-draft-transparency-in-health-and-so...

Description	Introductory letters to Secretary of States for DSIT and DHSC
Geographic Reach	National
Policy Influence Type	Implementation circular/rapid advice/letter to e.g. Ministry of Health

Description	EOSC-ENTRUST- A European Network of TRUSTed research environments
Amount	£765,442 (GBP)
Funding ID	01131056
Organisation	Innovate UK
Sector	Public
Country	United Kingdom
Start	03/2024
End	03/2027

Description	Action Against Age-related Macular Degeneration (AAAMD)
Organisation	Action against AMD
Country	United Kingdom
Sector	Charity/Non Profit
PI Contribution	The UK Health Data Research Alliance has been established as a member-led collaboration to develop a portfolio of standards, tools, processes, capabilities and information governance approaches that will help organisations to unlock data-driven research and innovation. Alliance Secretariat convene the Alliance and runs regular Alliance Council meetings bringing together representatives from each member organisation. In addition, we drive engagement with Alliance members in various workstream activities which leads to development of recommendations and best practice or policy documents made available for the wider community.
Collaborator Contribution	Partner organisations regularly attend quarterly Alliance Council meetings to discuss policy updates, recent development across the health data ecosystems and report on progress on data use for health research. Members also actively contribute to delivery sub-group or workstreams to shape standards and policies. Alliance members also use our infrastructure services, including the Gateway to make their data more discoverable and accessible, and meet the FAIR principles requirements.
Impact	No known research outcomes (as of yet) that have arisen as a result of this collaboration however representatives from member organisations actively contribute to delivery sub-group or workstreams to shape standards and policies.
Start Year	2024

Description	Alder Hey Children's NHS foundation Trust
Organisation	Alder Hey Children's NHS Foundation Trust
Country	United Kingdom
Sector	Public
PI Contribution	The UK Health Data Research Alliance has been established as a member-led collaboration to develop a portfolio of standards, tools, processes, capabilities and information governance approaches that will help organisations to unlock data-driven research and innovation. Alliance Secretariat convene the Alliance and runs regular Alliance Council meetings bringing together representatives from each member organisation. In addition, we drive engagement with Alliance members in various workstream activities which leads to development of recommendations and best practice or policy documents made available for the wider community.
Collaborator Contribution	Partner organisations regularly attend quarterly Alliance Council meetings to discuss policy updates, recent development across the health data ecosystems and report on progress on data use for health research. Members also actively contribute to delivery sub-group or workstreams to shape standards and policies. Alliance members also use our infrastructure services, including the Gateway to make their data more discoverable and accessible, and meet the FAIR principles requirements.
Impact	No known research outcomes (as of yet) that have arisen as a result of this collaboration however representatives from member organisations actively contribute to delivery sub-group or workstreams to shape standards and policies.
Start Year	2023

Description	Association of British HealthTech Industries (ABHI)
Organisation	Association of British Healthcare Industries (ABHI)
Country	United Kingdom
Sector	Charity/Non Profit
PI Contribution	The UK Health Data Research Alliance has been established as a member-led collaboration to develop a portfolio of standards, tools, processes, capabilities and information governance approaches that will help organisations to unlock data-driven research and innovation. Alliance Secretariat convene the Alliance and runs regular Alliance Council meetings bringing together representatives from each member organisation. In addition, we drive engagement with Alliance members in various workstream activities which leads to development of recommendations and best practice or policy documents made available for the wider community.
Collaborator Contribution	Partner organisations regularly attend quarterly Alliance Council meetings to discuss policy updates, recent development across the health data ecosystems and report on progress on data use for health research. Members also actively contribute to delivery sub-group or workstreams to shape standards and policies. Alliance members also use our infrastructure services, including the Gateway to make their data more discoverable and accessible, and meet the FAIR principles requirements.
Impact	No known research outcomes (as of yet) that have arisen as a result of this collaboration however representatives from member organisations actively contribute to delivery sub-group or workstreams to shape standards and policies.
Start Year	2024

Description	Association of British Pharmaceutical Industries (ABPI)
Organisation	Association of the British Pharmaceutical Industry
Country	United Kingdom
Sector	Charity/Non Profit
PI Contribution	The UK Health Data Research Alliance has been established as a member-led collaboration to develop a portfolio of standards, tools, processes, capabilities and information governance approaches that will help organisations to unlock data-driven research and innovation. Alliance Secretariat convene the Alliance and runs regular Alliance Council meetings bringing together representatives from each member organisation. In addition, we drive engagement with Alliance members in various workstream activities which leads to development of recommendations and best practice or policy documents made available for the wider community.
Collaborator Contribution	Partner organisations regularly attend quarterly Alliance Council meetings to discuss policy updates, recent development across the health data ecosystems and report on progress on data use for health research. Members also actively contribute to delivery sub-group or workstreams to shape standards and policies. Alliance members also use our infrastructure services, including the Gateway to make their data more discoverable and accessible, and meet the FAIR principles requirements.
Impact	No known research outcomes (as of yet) that have arisen as a result of this collaboration however representatives from member organisations actively contribute to delivery sub-group or workstreams to shape standards and policies.
Start Year	2023

Description	Association of Medical Research Charities (AMRC)
Organisation	Association of Medical Research Charities
Country	United Kingdom
Sector	Charity/Non Profit
PI Contribution	The UK Health Data Research Alliance has been established as a member-led collaboration to develop a portfolio of standards, tools, processes, capabilities and information governance approaches that will help organisations to unlock data-driven research and innovation. Alliance Secretariat convene the Alliance and runs regular Alliance Council meetings bringing together representatives from each member organisation. In addition, we drive engagement with Alliance members in various workstream activities which leads to development of recommendations and best practice or policy documents made available for the wider community.
Collaborator Contribution	Partner organisations regularly attend quarterly Alliance Council meetings to discuss policy updates, recent development across the health data ecosystems and report on progress on data use for health research. Members also actively contribute to delivery sub-group or workstreams to shape standards and policies. Alliance members also use our infrastructure services, including the Gateway to make their data more discoverable and accessible, and meet the FAIR principles requirements.
Impact	No known research outcomes (as of yet) that have arisen as a result of this collaboration however representatives from member organisations actively contribute to delivery sub-group or workstreams to shape standards and policies.
Start Year	2023

Description	BioIndustry Association (BIA)
Organisation	BioIndustry Association
Country	United Kingdom
Sector	Charity/Non Profit
PI Contribution	The UK Health Data Research Alliance has been established as a member-led collaboration to develop a portfolio of standards, tools, processes, capabilities and information governance approaches that will help organisations to unlock data-driven research and innovation. Alliance Secretariat convene the Alliance and runs regular Alliance Council meetings bringing together representatives from each member organisation. In addition, we drive engagement with Alliance members in various workstream activities which leads to development of recommendations and best practice or policy documents made available for the wider community.
Collaborator Contribution	Partner organisations regularly attend quarterly Alliance Council meetings to discuss policy updates, recent development across the health data ecosystems and report on progress on data use for health research. Members also actively contribute to delivery sub-group or workstreams to shape standards and policies. Alliance members also use our infrastructure services, including the Gateway to make their data more discoverable and accessible, and meet the FAIR principles requirements.
Impact	No known research outcomes (as of yet) that have arisen as a result of this collaboration however representatives from member organisations actively contribute to delivery sub-group or workstreams to shape standards and policies.
Start Year	2023

Description	Centre for Longitudinal Studies
Organisation	University College London
Department	Centre for Longitudinal Studies
Country	United Kingdom
Sector	Academic/University
PI Contribution	The UK Health Data Research Alliance has been established as a member-led collaboration to develop a portfolio of standards, tools, processes, capabilities and information governance approaches that will help organisations to unlock data-driven research and innovation. Alliance Secretariat convene the Alliance and runs regular Alliance Council meetings bringing together representatives from each member organisation. In addition, we drive engagement with Alliance members in various workstream activities which leads to development of recommendations and best practice or policy documents made available for the wider community.
Collaborator Contribution	Partner organisations regularly attend quarterly Alliance Council meetings to discuss policy updates, recent development across the health data ecosystems and report on progress on data use for health research. Members also actively contribute to delivery sub-group or workstreams to shape standards and policies. Alliance members also use our infrastructure services, including the Gateway to make their data more discoverable and accessible, and meet the FAIR principles requirements.
Impact	No known research outcomes (as of yet) that have arisen as a result of this collaboration however representatives from member organisations actively contribute to delivery sub-group or workstreams to shape standards and policies.
Start Year	2024

Description	Dementias Platform UK
Organisation	MRC Dementias Platform UK
Country	United Kingdom
Sector	Academic/University
PI Contribution	The UK Health Data Research Alliance has been established as a member-led collaboration to develop a portfolio of standards, tools, processes, capabilities and information governance approaches that will help organisations to unlock data-driven research and innovation. Alliance Secretariat convene the Alliance and runs regular Alliance Council meetings bringing together representatives from each member organisation. In addition, we drive engagement with Alliance members in various workstream activities which leads to development of recommendations and best practice or policy documents made available for the wider community.
Collaborator Contribution	Partner organisations regularly attend quarterly Alliance Council meetings to discuss policy updates, recent development across the health data ecosystems and report on progress on data use for health research. Members also actively contribute to delivery sub-group or workstreams to shape standards and policies. Alliance members also use our infrastructure services, including the Gateway to make their data more discoverable and accessible, and meet the FAIR principles requirements.
Impact	No known research outcomes (as of yet) that have arisen as a result of this collaboration however representatives from member organisations actively contribute to delivery sub-group or workstreams to shape standards and policies.
Start Year	2023

Description	Lancashire & South Cumbria NHS Foundation Trust
Organisation	Lancashire and South Cumbria NHS Foundation Trust
Country	United Kingdom
Sector	Public
PI Contribution	The UK Health Data Research Alliance has been established as a member-led collaboration to develop a portfolio of standards, tools, processes, capabilities and information governance approaches that will help organisations to unlock data-driven research and innovation. Alliance Secretariat convene the Alliance and runs regular Alliance Council meetings bringing together representatives from each member organisation. In addition, we drive engagement with Alliance members in various workstream activities which leads to development of recommendations and best practice or policy documents made available for the wider community.
Collaborator Contribution	Partner organisations regularly attend quarterly Alliance Council meetings to discuss policy updates, recent development across the health data ecosystems and report on progress on data use for health research. Members also actively contribute to delivery sub-group or workstreams to shape standards and policies. Alliance members also use our infrastructure services, including the Gateway to make their data more discoverable and accessible, and meet the FAIR principles requirements.
Impact	No known research outcomes (as of yet) that have arisen as a result of this collaboration however representatives from member organisations actively contribute to delivery sub-group or workstreams to shape standards and policies.
Start Year	2023

Description	MRC Regulatory Support Centre
Organisation	Medical Research Council (MRC)
Department	UK Regulatory Support Centre
Country	United Kingdom
Sector	Public
PI Contribution	The UK Health Data Research Alliance has been established as a member-led collaboration to develop a portfolio of standards, tools, processes, capabilities and information governance approaches that will help organisations to unlock data-driven research and innovation. Alliance Secretariat convene the Alliance and runs regular Alliance Council meetings bringing together representatives from each member organisation. In addition, we drive engagement with Alliance members in various workstream activities which leads to development of recommendations and best practice or policy documents made available for the wider community.
Collaborator Contribution	Partner organisations regularly attend quarterly Alliance Council meetings to discuss policy updates, recent development across the health data ecosystems and report on progress on data use for health research. Members also actively contribute to delivery sub-group or workstreams to shape standards and policies. Alliance members also use our infrastructure services, including the Gateway to make their data more discoverable and accessible, and meet the FAIR principles requirements.
Impact	No known research outcomes (as of yet) that have arisen as a result of this collaboration however representatives from member organisations actively contribute to delivery sub-group or workstreams to shape standards and policies.
Start Year	2024

Description	MRC Unit for Lifelong Health and Ageing - UCL
Organisation	University College London
Department	MRC Unit for Lifelong Health and Ageing
Country	United Kingdom
Sector	Academic/University
PI Contribution	The UK Health Data Research Alliance has been established as a member-led collaboration to develop a portfolio of standards, tools, processes, capabilities and information governance approaches that will help organisations to unlock data-driven research and innovation. Alliance Secretariat convene the Alliance and runs regular Alliance Council meetings bringing together representatives from each member organisation. In addition, we drive engagement with Alliance members in various workstream activities which leads to development of recommendations and best practice or policy documents made available for the wider community.
Collaborator Contribution	Partner organisations regularly attend quarterly Alliance Council meetings to discuss policy updates, recent development across the health data ecosystems and report on progress on data use for health research. Members also actively contribute to delivery sub-group or workstreams to shape standards and policies. Alliance members also use our infrastructure services, including the Gateway to make their data more discoverable and accessible, and meet the FAIR principles requirements.
Impact	No known research outcomes (as of yet) that have arisen as a result of this collaboration however representatives from member organisations actively contribute to delivery sub-group or workstreams to shape standards and policies.
Start Year	2023

Description	NHS Education for Scotland
Organisation	NHS Education for Scotland (NES)
Country	United Kingdom
Sector	Public
PI Contribution	The UK Health Data Research Alliance has been established as a member-led collaboration to develop a portfolio of standards, tools, processes, capabilities and information governance approaches that will help organisations to unlock data-driven research and innovation. Alliance Secretariat convene the Alliance and runs regular Alliance Council meetings bringing together representatives from each member organisation. In addition, we drive engagement with Alliance members in various workstream activities which leads to development of recommendations and best practice or policy documents made available for the wider community.
Collaborator Contribution	Partner organisations regularly attend quarterly Alliance Council meetings to discuss policy updates, recent development across the health data ecosystems and report on progress on data use for health research. Members also actively contribute to delivery sub-group or workstreams to shape standards and policies. Alliance members also use our infrastructure services, including the Gateway to make their data more discoverable and accessible, and meet the FAIR principles requirements.
Impact	No known research outcomes (as of yet) that have arisen as a result of this collaboration however representatives from member organisations actively contribute to delivery sub-group or workstreams to shape standards and policies.
Start Year	2023

Description	National Institute for Health and Care Excellence (NICE)
Organisation	National Institute for Health and Care Excellence (NICE)
Country	United Kingdom
Sector	Public
PI Contribution	The UK Health Data Research Alliance has been established as a member-led collaboration to develop a portfolio of standards, tools, processes, capabilities and information governance approaches that will help organisations to unlock data-driven research and innovation. Alliance Secretariat convene the Alliance and runs regular Alliance Council meetings bringing together representatives from each member organisation. In addition, we drive engagement with Alliance members in various workstream activities which leads to development of recommendations and best practice or policy documents made available for the wider community.
Collaborator Contribution	Partner organisations regularly attend quarterly Alliance Council meetings to discuss policy updates, recent development across the health data ecosystems and report on progress on data use for health research. Members also actively contribute to delivery sub-group or workstreams to shape standards and policies. Alliance members also use our infrastructure services, including the Gateway to make their data more discoverable and accessible, and meet the FAIR principles requirements.
Impact	No known research outcomes (as of yet) that have arisen as a result of this collaboration however representatives from member organisations actively contribute to delivery sub-group or workstreams to shape standards and policies.
Start Year	2024

Description	Newcastle upon Tyne Hospitals NHS Foundation Trust
Organisation	Newcastle upon Tyne Hospitals NHS Foundation Trust
Country	United Kingdom
Sector	Academic/University
PI Contribution	The UK Health Data Research Alliance has been established as a member-led collaboration to develop a portfolio of standards, tools, processes, capabilities and information governance approaches that will help organisations to unlock data-driven research and innovation. Alliance Secretariat convene the Alliance and runs regular Alliance Council meetings bringing together representatives from each member organisation. In addition, we drive engagement with Alliance members in various workstream activities which leads to development of recommendations and best practice or policy documents made available for the wider community.
Collaborator Contribution	Partner organisations regularly attend quarterly Alliance Council meetings to discuss policy updates, recent development across the health data ecosystems and report on progress on data use for health research. Members also actively contribute to delivery sub-group or workstreams to shape standards and policies. Alliance members also use our infrastructure services, including the Gateway to make their data more discoverable and accessible, and meet the FAIR principles requirements.
Impact	No known research outcomes (as of yet) that have arisen as a result of this collaboration however representatives from member organisations actively contribute to delivery sub-group or workstreams to shape standards and policies.
Start Year	2023

Description	Norfolk and Norwich University Hospitals NHS Foundation Trust
Organisation	Norfolk and Norwich University Hospitals NHS Foundation Trust
Country	United Kingdom
Sector	Public
PI Contribution	The UK Health Data Research Alliance has been established as a member-led collaboration to develop a portfolio of standards, tools, processes, capabilities and information governance approaches that will help organisations to unlock data-driven research and innovation. Alliance Secretariat convene the Alliance and runs regular Alliance Council meetings bringing together representatives from each member organisation. In addition, we drive engagement with Alliance members in various workstream activities which leads to development of recommendations and best practice or policy documents made available for the wider community.
Collaborator Contribution	Partner organisations regularly attend quarterly Alliance Council meetings to discuss policy updates, recent development across the health data ecosystems and report on progress on data use for health research. Members also actively contribute to delivery sub-group or workstreams to shape standards and policies. Alliance members also use our infrastructure services, including the Gateway to make their data more discoverable and accessible, and meet the FAIR principles requirements.
Impact	No known research outcomes (as of yet) that have arisen as a result of this collaboration however representatives from member organisations actively contribute to delivery sub-group or workstreams to shape standards and policies.
Start Year	2023

Description	Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences (NDORMS)
Organisation	University of Oxford
Department	Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Diseases (NDORMS)
Country	United Kingdom
Sector	Academic/University
PI Contribution	The UK Health Data Research Alliance has been established as a member-led collaboration to develop a portfolio of standards, tools, processes, capabilities and information governance approaches that will help organisations to unlock data-driven research and innovation. Alliance Secretariat convene the Alliance and runs regular Alliance Council meetings bringing together representatives from each member organisation. In addition, we drive engagement with Alliance members in various workstream activities which leads to development of recommendations and best practice or policy documents made available for the wider community.
Collaborator Contribution	Partner organisations regularly attend quarterly Alliance Council meetings to discuss policy updates, recent development across the health data ecosystems and report on progress on data use for health research. Members also actively contribute to delivery sub-group or workstreams to shape standards and policies. Alliance members also use our infrastructure services, including the Gateway to make their data more discoverable and accessible, and meet the FAIR principles requirements.
Impact	No known research outcomes (as of yet) that have arisen as a result of this collaboration however representatives from member organisations actively contribute to delivery sub-group or workstreams to shape standards and policies.
Start Year	2024

Description	Royal Free London NHS Foundation Trust
Organisation	Royal Free London NHS Foundation Trust
Country	United Kingdom
Sector	Public
PI Contribution	The UK Health Data Research Alliance has been established as a member-led collaboration to develop a portfolio of standards, tools, processes, capabilities and information governance approaches that will help organisations to unlock data-driven research and innovation. Alliance Secretariat convene the Alliance and runs regular Alliance Council meetings bringing together representatives from each member organisation. In addition, we drive engagement with Alliance members in various workstream activities which leads to development of recommendations and best practice or policy documents made available for the wider community.
Collaborator Contribution	Partner organisations regularly attend quarterly Alliance Council meetings to discuss policy updates, recent development across the health data ecosystems and report on progress on data use for health research. Members also actively contribute to delivery sub-group or workstreams to shape standards and policies. Alliance members also use our infrastructure services, including the Gateway to make their data more discoverable and accessible, and meet the FAIR principles requirements.
Impact	No known research outcomes (as of yet) that have arisen as a result of this collaboration however representatives from member organisations actively contribute to delivery sub-group or workstreams to shape standards and policies.
Start Year	2023

Description	UK Dementia Research Institute (UKDRI)
Organisation	UK Dementia Research Institute
Country	United Kingdom
Sector	Charity/Non Profit
PI Contribution	The UK Health Data Research Alliance has been established as a member-led collaboration to develop a portfolio of standards, tools, processes, capabilities and information governance approaches that will help organisations to unlock data-driven research and innovation. Alliance Secretariat convene the Alliance and runs regular Alliance Council meetings bringing together representatives from each member organisation. In addition, we drive engagement with Alliance members in various workstream activities which leads to development of recommendations and best practice or policy documents made available for the wider community.
Collaborator Contribution	Partner organisations regularly attend quarterly Alliance Council meetings to discuss policy updates, recent development across the health data ecosystems and report on progress on data use for health research. Members also actively contribute to delivery sub-group or workstreams to shape standards and policies. Alliance members also use our infrastructure services, including the Gateway to make their data more discoverable and accessible, and meet the FAIR principles requirements.
Impact	No known research outcomes (as of yet) that have arisen as a result of this collaboration however representatives from member organisations actively contribute to delivery sub-group or workstreams to shape standards and policies.
Start Year	2024

Description	UK Health Security Agency (UKHSA)
Organisation	UK Health Security Agency
Country	United Kingdom
Sector	Public
PI Contribution	The UK Health Data Research Alliance has been established as a member-led collaboration to develop a portfolio of standards, tools, processes, capabilities and information governance approaches that will help organisations to unlock data-driven research and innovation. Alliance Secretariat convene the Alliance and runs regular Alliance Council meetings bringing together representatives from each member organisation. In addition, we drive engagement with Alliance members in various workstream activities which leads to development of recommendations and best practice or policy documents made available for the wider community.
Collaborator Contribution	Partner organisations regularly attend quarterly Alliance Council meetings to discuss policy updates, recent development across the health data ecosystems and report on progress on data use for health research. Members also actively contribute to delivery sub-group or workstreams to shape standards and policies. Alliance members also use our infrastructure services, including the Gateway to make their data more discoverable and accessible, and meet the FAIR principles requirements.
Impact	No known research outcomes (as of yet) that have arisen as a result of this collaboration however representatives from member organisations actively contribute to delivery sub-group or workstreams to shape standards and policies.
Start Year	2024

Description	Understanding Patient Data
Organisation	Wellcome Trust
Department	Understanding Patient Data
Country	United Kingdom
Sector	Charity/Non Profit
PI Contribution	The UK Health Data Research Alliance has been established as a member-led collaboration to develop a portfolio of standards, tools, processes, capabilities and information governance approaches that will help organisations to unlock data-driven research and innovation. Alliance Secretariat convene the Alliance and runs regular Alliance Council meetings bringing together representatives from each member organisation. In addition, we drive engagement with Alliance members in various workstream activities which leads to development of recommendations and best practice or policy documents made available for the wider community.
Collaborator Contribution	Partner organisations regularly attend quarterly Alliance Council meetings to discuss policy updates, recent development across the health data ecosystems and report on progress on data use for health research. Members also actively contribute to delivery sub-group or workstreams to shape standards and policies. Alliance members also use our infrastructure services, including the Gateway to make their data more discoverable and accessible, and meet the FAIR principles requirements.
Impact	No known research outcomes (as of yet) that have arisen as a result of this collaboration however representatives from member organisations actively contribute to delivery sub-group or workstreams to shape standards and policies.
Start Year	2023

Description	University Hospital Southampton NHS Foundation Trust
Organisation	University Hospital Southampton NHS Foundation Trust
Country	United Kingdom
Sector	Hospitals
PI Contribution	The UK Health Data Research Alliance has been established as a member-led collaboration to develop a portfolio of standards, tools, processes, capabilities and information governance approaches that will help organisations to unlock data-driven research and innovation. Alliance Secretariat convene the Alliance and runs regular Alliance Council meetings bringing together representatives from each member organisation. In addition, we drive engagement with Alliance members in various workstream activities which leads to development of recommendations and best practice or policy documents made available for the wider community.
Collaborator Contribution	Partner organisations regularly attend quarterly Alliance Council meetings to discuss policy updates, recent development across the health data ecosystems and report on progress on data use for health research. Members also actively contribute to delivery sub-group or workstreams to shape standards and policies. Alliance members also use our infrastructure services, including the Gateway to make their data more discoverable and accessible, and meet the FAIR principles requirements.
Impact	No known research outcomes (as of yet) that have arisen as a result of this collaboration however representatives from member organisations actively contribute to delivery sub-group or workstreams to shape standards and policies.
Start Year	2023

Description	University of Sheffield
Organisation	University of Sheffield
Country	United Kingdom
Sector	Academic/University
PI Contribution	The UK Health Data Research Alliance has been established as a member-led collaboration to develop a portfolio of standards, tools, processes, capabilities and information governance approaches that will help organisations to unlock data-driven research and innovation. Alliance Secretariat convene the Alliance and runs regular Alliance Council meetings bringing together representatives from each member organisation. In addition, we drive engagement with Alliance members in various workstream activities which leads to development of recommendations and best practice or policy documents made available for the wider community.
Collaborator Contribution	Partner organisations regularly attend quarterly Alliance Council meetings to discuss policy updates, recent development across the health data ecosystems and report on progress on data use for health research. Members also actively contribute to delivery sub-group or workstreams to shape standards and policies. Alliance members also use our infrastructure services, including the Gateway to make their data more discoverable and accessible, and meet the FAIR principles requirements.
Impact	No known research outcomes (as of yet) that have arisen as a result of this collaboration however representatives from member organisations actively contribute to delivery sub-group or workstreams to shape standards and policies.
Start Year	2023

Description	techUK
Organisation	techUK
Country	United Kingdom
Sector	Charity/Non Profit
PI Contribution	The UK Health Data Research Alliance has been established as a member-led collaboration to develop a portfolio of standards, tools, processes, capabilities and information governance approaches that will help organisations to unlock data-driven research and innovation. Alliance Secretariat convene the Alliance and runs regular Alliance Council meetings bringing together representatives from each member organisation. In addition, we drive engagement with Alliance members in various workstream activities which leads to development of recommendations and best practice or policy documents made available for the wider community.
Collaborator Contribution	Partner organisations regularly attend quarterly Alliance Council meetings to discuss policy updates, recent development across the health data ecosystems and report on progress on data use for health research. Members also actively contribute to delivery sub-group or workstreams to shape standards and policies. Alliance members also use our infrastructure services, including the Gateway to make their data more discoverable and accessible, and meet the FAIR principles requirements.
Impact	No known research outcomes (as of yet) that have arisen as a result of this collaboration however representatives from member organisations actively contribute to delivery sub-group or workstreams to shape standards and policies.
Start Year	2024

Description	use MY data
Organisation	use MY data
Sector	Charity/Non Profit
PI Contribution	The UK Health Data Research Alliance has been established as a member-led collaboration to develop a portfolio of standards, tools, processes, capabilities and information governance approaches that will help organisations to unlock data-driven research and innovation. Alliance Secretariat convene the Alliance and runs regular Alliance Council meetings bringing together representatives from each member organisation. In addition, we drive engagement with Alliance members in various workstream activities which leads to development of recommendations and best practice or policy documents made available for the wider community.
Collaborator Contribution	Partner organisations regularly attend quarterly Alliance Council meetings to discuss policy updates, recent development across the health data ecosystems and report on progress on data use for health research. Members also actively contribute to delivery sub-group or workstreams to shape standards and policies. Alliance members also use our infrastructure services, including the Gateway to make their data more discoverable and accessible, and meet the FAIR principles requirements.
Impact	No known research outcomes (as of yet) that have arisen as a result of this collaboration however representatives from member organisations actively contribute to delivery sub-group or workstreams to shape standards and policies.
Start Year	2023

Description	"If we're not counted, we don't count": Sexual orientation and gender identity data collection in healthcare services
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Postgraduate students
Results and Impact	In celebration of Pride month, our guest blog from post-graduate researcher Hayley Lowther-Payne explores how her own research is addressing the inequalities that exist in healthcare services for LGBTQ+ people.
Year(s) Of Engagement Activity	2024
URL	https://www.hdruk.ac.uk/news/pride-guest-blog/

Description	11 Dec 2023 - AI and Biomedicine Discussion Dinner
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Andrew Morris attended
Year(s) Of Engagement Activity	2023

Description	12 July 2023 - Special Academy of Medical Sciences 25th anniversary reception
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Andrew Morris attended
Year(s) Of Engagement Activity	2023

Description	12 Oct 2023 - Dutch Health-RI annual meeting (keynote speaker)
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Andrew Morris Keynote speaker
Year(s) Of Engagement Activity	2023

Description	13 Dec - UK Biobank Scientific Conference
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Andrew Morris attended
Year(s) Of Engagement Activity	2023
URL	https://www.ukbiobank.ac.uk/learn-more-about-uk-biobank/scientific-conference-2023

Description	13 Nov 2023- Lecture: Oxford Martin School - Medicine in the 4th Industrial Revolution lecture
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	Local
Primary Audience	Postgraduate students
Results and Impact	Andrew Morris delivered lecture
Year(s) Of Engagement Activity	2023

Description	16 Oct - HDR-UK / MET OFFICE MEETING: DATA DISCUSSIONS
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Industry/Business
Results and Impact	Working meeting to discuss partnership work with MET Office and HDR UK Driver Programmes
Year(s) Of Engagement Activity	2023

Description	19 Oct 2023 - Health Data Subgroup Biannual meeting
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Andrew Morris attended
Year(s) Of Engagement Activity	2023

Description	24 April 2023 - Committing to Change Shared Commitment to Public Involvement workshop
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Andrew Morris attended
Year(s) Of Engagement Activity	2023

Description	25 April 2023 - Nuffield - An ethical future for ageing: challenging ageism and inequity for better research and innovation
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Andrew Morris attended
Year(s) Of Engagement Activity	2023

Description	29 Nov 2023 - MSC HDR UK Partnership - chaired the Technology Enabled Healthcare Delivery: Creating a curriculum and ways of working fit for the future discussion
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Postgraduate students
Results and Impact	Andrew Morris chaired
Year(s) Of Engagement Activity	2023

Description	29 Sep 2023 - Delivered the Fitzgerald Peel Lecture at Scottish Society of Physicians 65th Annual Meeting
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Andrew Morris presented
Year(s) Of Engagement Activity	2023

Description	2nd Annual openSAFELY community symposium
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Two days of talks and workshops on research, data infrastructure, and open science.
Year(s) Of Engagement Activity	2024
URL	https://www.ox.ac.uk/event/2nd-annual-opensafely-symposium

Description	3 Nov 2023 - UK MND Research Institute Launch Event
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Andrew Morris attended
Year(s) Of Engagement Activity	2023

Description	30 May 2023 - Ditchley - Science and Technology Group
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Andrew Morris participated
Year(s) Of Engagement Activity	2023

Description	31 Oct 2023 CSO AT 50 - Scotland's Health Research and Innovation Conference 50 years of advancing healthcare
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Andrew Morris attended
Year(s) Of Engagement Activity	2023

Description	5 Dec 2023 - Annual Fellows Meeting and Jean Shanks Lecture 2023
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Professional Practitioners
Results and Impact	Andrew Morris lecutred.
Year(s) Of Engagement Activity	2023

Description	5 Dec 2023 - Our Future Health invitation Evening Reception
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Policymakers/politicians
Results and Impact	Andrew Morris attended
Year(s) Of Engagement Activity	2023

Description	6 Dec 2023 - IQVIA UK NHS & Life Science Leaders Forum
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Andrew Morris participated
Year(s) Of Engagement Activity	2023

Description	6 Oct 2023 - Tenovus Scotland Research Symposium (Keynote Speaker)
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Keynote speaker was Andrew Morris
Year(s) Of Engagement Activity	2023

Description	7 Aug 2023 - Unblocking GP Data for Researchers event
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Andrew Morris attended. This was event held by Secretary of State for Health's team in DHSC - attended by Chief Medical Officer for UK, National Statistician and other UK wide senior stakeholders - Cathie Sudlow was also at this and was invited to Chair it. Insights will feed into Sudlow Review.
Year(s) Of Engagement Activity	2023

Description	9 June 2023 - LifeArc - MND workshop
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Andrew Morris participated
Year(s) Of Engagement Activity	2023

Description	ABPI/HDRU UK Data Landscape Blueprint
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Attended by David Seymour
Year(s) Of Engagement Activity	2024

Description	AI UK unlocking Health Data for Safe Transparent and Fair AI
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	presenting at the event
Year(s) Of Engagement Activity	2024
URL	https://hackmd.io/@lilian-hughes/AIUKspeakerhelp

Description	AI in Healthcare
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Digital technology experts, legal practitioners and healthcare professionals exchanged best practices about the advances and risks posed by the increasing use of AI and associated technology in integrated healthcare systems at this one-day dialogue session
Year(s) Of Engagement Activity	2024
URL	https://www.ncl.ac.uk/singapore/news/news-items/dialogue-on-digital-trust-in-ai-for-healthcare/

Description	Acturus Show and Tell
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Attended by David Seymour
Year(s) Of Engagement Activity	2024

Description	Alliance Community Bulletin - Apr 23
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	These monthly bulletins are shared with all Alliance members and they include news about Alliance related activities, opportunities and events, and relevant news from the wider health data ecosystem. We also allow Member organisations the opportunity to share their news, with the Alliance community.
Year(s) Of Engagement Activity	2023
URL	https://ukhealthdata.org/wp-content/uploads/2023/09/Alliance-community-bulletin-April-2023.pdf

Description	Alliance Community Bulletin - April 24
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	These monthly bulletins are shared with all Alliance members and they include news about Alliance related activities, opportunities and events, and relevant news from the wider health data ecosystem. We also allow Member organisations the opportunity to share their news, with the Alliance community.
Year(s) Of Engagement Activity	2024
URL	https://ukhealthdata.org/wp-content/uploads/2024/04/Alliance-community-bulletin-April-2024.pdf

Description	Alliance Community Bulletin - Aug 23
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	These monthly bulletins are shared with all Alliance members and they include news about Alliance related activities, opportunities and events, and relevant news from the wider health data ecosystem. We also allow Member organisations the opportunity to share their news, with the Alliance community.
Year(s) Of Engagement Activity	2023
URL	https://ukhealthdata.org/wp-content/uploads/2023/09/Alliance-community-bulletin-August-2023.pdf

Description	Alliance Community Bulletin - August 24
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	These monthly bulletins are shared with all Alliance members and they include news about Alliance related activities, opportunities and events, and relevant news from the wider health data ecosystem. We also allow Member organisations the opportunity to share their news, with the Alliance community.
Year(s) Of Engagement Activity	2024
URL	https://ukhealthdata.org/wp-content/uploads/2024/08/Alliance-community-bulletin-August-2024.pdf

Description	Alliance Community Bulletin - Dec 23
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	These monthly bulletins are shared with all Alliance members and they include news about Alliance related activities, opportunities and events, and relevant news from the wider health data ecosystem. We also allow Member organisations the opportunity to share their news, with the Alliance community.
Year(s) Of Engagement Activity	2023
URL	https://ukhealthdata.org/wp-content/uploads/2023/12/Alliance-Community-Bulletin-December-2023.pdf

Description	Alliance Community Bulletin - December 24
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	These monthly bulletins are shared with all Alliance members and they include news about Alliance related activities, opportunities and events, and relevant news from the wider health data ecosystem. We also allow Member organisations the opportunity to share their news, with the Alliance community.
Year(s) Of Engagement Activity	2024
URL	https://ukhealthdata.org/wp-content/uploads/2025/01/Alliance-community-bulletin-December-2024.pdf

Description	Alliance Community Bulletin - February 24
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	These monthly bulletins are shared with all Alliance members and they include news about Alliance related activities, opportunities and events, and relevant news from the wider health data ecosystem. We also allow Member organisations the opportunity to share their news, with the Alliance community.
Year(s) Of Engagement Activity	2024
URL	https://ukhealthdata.org/wp-content/uploads/2024/03/Alliance-community-bulletin-February-2024.pdf

Description	Alliance Community Bulletin - January 24
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	These monthly bulletins are shared with all Alliance members and they include news about Alliance related activities, opportunities and events, and relevant news from the wider health data ecosystem. We also allow Member organisations the opportunity to share their news, with the Alliance community.
Year(s) Of Engagement Activity	2024
URL	https://ukhealthdata.org/wp-content/uploads/2024/01/Alliance-community-bulletin-January-2024.pdf

Description	Alliance Community Bulletin - Jul 23
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	These monthly bulletins are shared with all Alliance members and they include news about Alliance related activities, opportunities and events, and relevant news from the wider health data ecosystem. We also allow Member organisations the opportunity to share their news, with the Alliance community.
Year(s) Of Engagement Activity	2023
URL	https://ukhealthdata.org/wp-content/uploads/2023/09/Alliance-community-bulletin-July-2023.pdf

Description	Alliance Community Bulletin - July 24
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	These monthly bulletins are shared with all Alliance members and they include news about Alliance related activities, opportunities and events, and relevant news from the wider health data ecosystem. We also allow Member organisations the opportunity to share their news, with the Alliance community.
Year(s) Of Engagement Activity	2024
URL	https://ukhealthdata.org/wp-content/uploads/2024/08/Alliance-community-bulletin-July-2024.pdf

Description	Alliance Community Bulletin - Jun 23
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	These monthly bulletins are shared with all Alliance members and they include news about Alliance related activities, opportunities and events, and relevant news from the wider health data ecosystem. We also allow Member organisations the opportunity to share their news, with the Alliance community.
Year(s) Of Engagement Activity	2023
URL	https://ukhealthdata.org/wp-content/uploads/2023/09/Alliance-community-bulletin-June-2023.pdf

Description	Alliance Community Bulletin - June 24
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	These monthly bulletins are shared with all Alliance members and they include news about Alliance related activities, opportunities and events, and relevant news from the wider health data ecosystem. We also allow Member organisations the opportunity to share their news, with the Alliance community.
Year(s) Of Engagement Activity	2024
URL	https://ukhealthdata.org/wp-content/uploads/2024/08/Alliance-community-bulletin-June-2024.pdf

Description	Alliance Community Bulletin - March 24
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	These monthly bulletins are shared with all Alliance members and they include news about Alliance related activities, opportunities and events, and relevant news from the wider health data ecosystem. We also allow Member organisations the opportunity to share their news, with the Alliance community.
Year(s) Of Engagement Activity	2024
URL	https://ukhealthdata.org/wp-content/uploads/2024/03/Alliance-community-bulletin-March-2024.pdf

Description	Alliance Community Bulletin - May 23
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	These monthly bulletins are shared with all Alliance members and they include news about Alliance related activities, opportunities and events, and relevant news from the wider health data ecosystem. We also allow Member organisations the opportunity to share their news, with the Alliance community.
Year(s) Of Engagement Activity	2023
URL	https://ukhealthdata.org/wp-content/uploads/2023/09/Alliance-community-bulletin-May-2023.pdf

Description	Alliance Community Bulletin - May 24
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	These monthly bulletins are shared with all Alliance members and they include news about Alliance related activities, opportunities and events, and relevant news from the wider health data ecosystem. We also allow Member organisations the opportunity to share their news, with the Alliance community.
Year(s) Of Engagement Activity	2024
URL	https://ukhealthdata.org/wp-content/uploads/2024/06/Alliance-community-bulletin-May-2024.pdf

Description	Alliance Community Bulletin - Nov 23
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	These monthly bulletins are shared with all Alliance members and they include news about Alliance related activities, opportunities and events, and relevant news from the wider health data ecosystem. We also allow Member organisations the opportunity to share their news, with the Alliance community.
Year(s) Of Engagement Activity	2023
URL	https://ukhealthdata.org/wp-content/uploads/2023/12/Alliance-community-bulletin-November-2023.pdf

Description	Alliance Community Bulletin - November 24
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	These monthly bulletins are shared with all Alliance members and they include news about Alliance related activities, opportunities and events, and relevant news from the wider health data ecosystem. We also allow Member organisations the opportunity to share their news, with the Alliance community.
Year(s) Of Engagement Activity	2024
URL	https://ukhealthdata.org/wp-content/uploads/2024/11/Alliance-community-bulletin-November-2024.pdf

Description	Alliance Community Bulletin - Oct 23
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	These monthly bulletins are shared with all Alliance members and they include news about Alliance related activities, opportunities and events, and relevant news from the wider health data ecosystem. We also allow Member organisations the opportunity to share their news, with the Alliance community.
Year(s) Of Engagement Activity	2023
URL	https://ukhealthdata.org/wp-content/uploads/2023/12/Alliance-community-bulletin-October-2023.pdf

Description	Alliance Community Bulletin - October 24
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	These monthly bulletins are shared with all Alliance members and they include news about Alliance related activities, opportunities and events, and relevant news from the wider health data ecosystem. We also allow Member organisations the opportunity to share their news, with the Alliance community.
Year(s) Of Engagement Activity	2024
URL	https://ukhealthdata.org/wp-content/uploads/2024/11/Alliance-community-bulletin-October-2024.pdf

Description	Alliance Community Bulletin - Sep 23
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	These monthly bulletins are shared with all Alliance members and they include news about Alliance related activities, opportunities and events, and relevant news from the wider health data ecosystem. We also allow Member organisations the opportunity to share their news, with the Alliance community.
Year(s) Of Engagement Activity	2023
URL	https://ukhealthdata.org/wp-content/uploads/2023/12/Alliance-community-bulletin-September-2023.pdf

Description	Alliance Community Bulletin - September 24
Form Of Engagement Activity	A magazine, newsletter or online publication
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	These monthly bulletins are shared with all Alliance members and they include news about Alliance related activities, opportunities and events, and relevant news from the wider health data ecosystem. We also allow Member organisations the opportunity to share their news, with the Alliance community.
Year(s) Of Engagement Activity	2024
URL	https://ukhealthdata.org/wp-content/uploads/2024/10/Alliance-community-bulletin-September-2024.pdf

Description	Alliance Council Meeting - August 24
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Senior leaders from partner organisations join the Alliance Council to provide oversight and direction of the Alliance
Year(s) Of Engagement Activity	2024
URL	https://ukhealthdata.org/wp-content/uploads/2024/08/20240814-Alliance-Council-Report-Actions-and-Mee...

Description	Alliance Council Meeting - January 24
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Senior leaders from partner organisations join the Alliance Council to provide oversight and direction of the Alliance
Year(s) Of Engagement Activity	2024
URL	https://ukhealthdata.org/wp-content/uploads/2024/01/20240117-Alliance-Council-Meeting-Actions-and-me...

Description	Alliance Council Meeting - May 24
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Senior leaders from partner organisations join the Alliance Council to provide oversight and direction of the Alliance
Year(s) Of Engagement Activity	2024
URL	https://ukhealthdata.org/wp-content/uploads/2024/06/20240522-Alliance-Council-Meeting-Actions-and-me...

Description	Alliance Council Meeting - October 24
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Senior leaders from partner organisations join the Alliance Council to provide oversight and direction of the Alliance
Year(s) Of Engagement Activity	2024
URL	https://ukhealthdata.org/wp-content/uploads/2024/11/20241023-Alliance-Council-Meeting-Actions-and-me...

Description	Alliance Data Officers' Group Meeting - January 24
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	We bring together data officers from across the Alliance to oversee, coordinate, and produce Alliance guidance and policy regarding: data quality, data standards, meta data standards, dataset publishing, data provenance, ontology / terminology services and use
Year(s) Of Engagement Activity	2024
URL	https://zenodo.org/records/10805551

Description	Alliance Data Officers' Group Meeting - May 24
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	We bring together data officers from across the Alliance to oversee, coordinate, and produce Alliance guidance and policy regarding: data quality, data standards, meta data standards, dataset publishing, data provenance, ontology / terminology services and use
Year(s) Of Engagement Activity	2024
URL	https://zenodo.org/records/13167389

Description	Alliance Data Officers' Group Meeting - September 24
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	We bring together data officers from across the Alliance to oversee, coordinate, and produce Alliance guidance and policy regarding: data quality, data standards, meta data standards, dataset publishing, data provenance, ontology / terminology services and use
Year(s) Of Engagement Activity	2024
URL	https://zenodo.org/records/14442065

Description	Alliance Transparency Showcase Event
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	In October 2023, a Call for Funding was launched to support Alliance members and other custodians of health and health-relevant data in adopting the Alliance Transparency Standards. The Transparency Standards are designed to support data custodians in improving the clarity and accessibility of information about data access processes for the public and researchers. 19 organisations were awarded funding and this in-person event was to celebrate the project outputs and was an opportunity to meet the project leads in person and to gain further insight into the impacts of the 19 funded projects and lessons learnt on adoption of the Transparency Standards.
Year(s) Of Engagement Activity	2024
URL	https://www.eventbrite.co.uk/e/alliance-transparency-showcase-tickets-809177942007?aff=oddtdtcreator

Description	Alliance and Hubs Data Officers Group Meeting - Sep 23
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	We bring together data officers from across the Alliance to oversee, coordinate, and produce Alliance guidance and policy regarding: data quality, data standards, meta data standards, dataset publishing, data provenance, ontology / terminology services and use.
Year(s) Of Engagement Activity	2023
URL	https://zenodo.org/records/10362543

Description	Alliance/PEDRI partnership meeting - Dec 23
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	This newly-formed Public Involvement and Engagement working group, convened by the Alliance in partnership with PEDRI (Public Engagement in Data Research Initiative) met to discuss key considerations regarding the adoption of standards for public involvement and engagement in the context of data science.
Year(s) Of Engagement Activity	2023
URL	https://zenodo.org/records/10473491

Description	Anaesthesia's Annual Congress, 13-15th Sept EICC, Edinburgh. "structured/unstructured data saving live
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Cathie Sudlow delivered keynote lecture
Year(s) Of Engagement Activity	2023

Description	Analyst X Strategic Partners meet up
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Discussions and plans around data analytics priorities in 2023 and beyond. The event aimed to bring together healthcare professionals, members of the public and industry to understand priorities and ways to collaborate to maximise use of health data assets in the UK.
Year(s) Of Engagement Activity	2023
URL	https://www.linkedin.com/pulse/analystx-may-update-analystx/

Description	Apprenticeships - boosting careers and benefitting employers
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Industry/Business
Results and Impact	To mark National Apprenticeship Week we interviewed Stephanie Parrott about her time as a senior manager with HDR UK. We also discussed her Level 3 Data Citizen Apprenticeship for which she has been shortlisted for the Data Citizen Apprentice of the Year award. Skills learnt on her apprenticeship not only contributed to her job with the Institute but also helped propel her forward to the next stage in her career as the marketing analytics and insights manager at Google DeepMind.
Year(s) Of Engagement Activity	2023
URL	https://www.hdruk.ac.uk/news/apprenticeships-boosting-careers-and-benefitting-employers/

Description	As the NHS turns 75, and Genomics England 10, a data driven golden age for health is possible
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Supporters
Results and Impact	Blog post following tenth anniversary of Genomics England. Setup to deliver the 100,000 Genomes Project, it provided evidence to justify use of whole genome sequencing for individual care and now delivers this component of NHS England's integrated Genomic Medicine Service.
Year(s) Of Engagement Activity	2023
URL	https://www.hdruk.ac.uk/news/as-the-nhs-turns-75-and-genomics-england-10-a-data-driven-golden-age-fo...

Description	Association of Physicians of Great Britain and Ireland Event 20 April 2023
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Andrew Morris attended
Year(s) Of Engagement Activity	2023

Description	Asthma UK Centre for Applied Research - Annual Scientific Meeting
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Industry/Business
Results and Impact	Asthma UK Centre for Applied Research - Annual Scientific Meeting "Improving Respiratory Health: The Impact of Collaborative Research and Innovation"
Year(s) Of Engagement Activity	2024

Description	BHF Data Science Centre Cambridge Evening Reception
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Professional Practitioners
Results and Impact	Informal evening reception to find out how BHF DSC are enabling data-led research to improve heart and circulatory health.
Year(s) Of Engagement Activity	2023
URL	https://www.eventbrite.co.uk/e/684994907207?aff=oddtdtcreator

Description	BMJ Research Forum December 2023
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Cathie Sudlow Attended
Year(s) Of Engagement Activity	2023

Description	Blog posts for International Women's Day
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	Sharing quotes and insights on how we can inspire more women to pursue a career in health data science for International Women's Day, including five blog posts from members of the HDR UK community.
Year(s) Of Engagement Activity	2024
URL	https://www.hdruk.ac.uk/news/celebrating-international-womens-day-2024-with-our-community/

Description	British Science Association 'For Thought' summit (4 person panel - talk & Q&A) -
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Cathie Sudlow member of discussion panel
Year(s) Of Engagement Activity	2023

Description	CD3 CRUK/NHSE Data Access Partnership
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Attended by David Seymour
Year(s) Of Engagement Activity	2024

Description	Cancer Data Driven Detection Workshop
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	2 day workshop - future funding opportunities
Year(s) Of Engagement Activity	2024

Description	Cancer Data Driven Detection Workshop
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	David Seymour (Director of Infrastructure & Services, HDR UK) was an invited speaker at the first Cancer Data Driven Detection Workshop, where he gave a presentation on the research data infrastucture landscape. This workshops intention was for this initiative to convene the leading experts from across the United Kingdom in cancer risk, epidemiology, multi-omics, early detection, prevention, health informatics and data science and showcase the breadth of expertise in the research community and scope available data sets/methodologies/infrastructure. The development of this programme will be over a one-year build phase.
Year(s) Of Engagement Activity	2023
URL	https://www.earlycancer.cam.ac.uk/events/cancer-data-driven-detection-cd3-workshop

Description	Celebrating impact from our Health Data Research Hubs
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Supporters
Results and Impact	Looking back to see how the Digital Innovation Hubs programme has evolved since set up in 2019, and how they're enabling impactful research in a safe and secure way.
Year(s) Of Engagement Activity	2023
URL	https://www.hdruk.ac.uk/news/celebrating-impact-from-our-health-data-research-hubs/

Description	Celebrating our Shared Commitment to Public Involvement milestones
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Demonstrating HDR UK's Shared Commitment to Public Involvement, for the anniversary of HRA launching the commitment.
Year(s) Of Engagement Activity	2024
URL	https://www.hdruk.ac.uk/news/celebrating-our-shared-commitment-to-public-involvement-milestones/

Description	Celebrating women in health data research - International Day of Women and Girls in Science 2023
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	This International Day of Women and Girls in Science, we're sharing the career stories of women in health data science and encouraging people on social media to celebrate their role models.
Year(s) Of Engagement Activity	2023
URL	https://www.hdruk.ac.uk/news/celebrating-women-in-health-data-research-idwgs-2023/

Description	Challenges and opportunities for involving and engaging patients and the public, as an early career researcher
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Are you an Early Career Researcher (ECR) passionate about making a difference in health research? Ester Bellavia, Patient and Public Involvement and Engagement Manager at HDR UK, talks about an exciting opportunity for you to share your insights and support innovative research that resonates with patients and the public.
Year(s) Of Engagement Activity	2024
URL	https://www.hdruk.ac.uk/news/challenges-and-opportunities-for-involving-and-engaging-patients-and-th...

Description	Continuing my Uncle Clem's mission - the NHS 75 years on
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	Member of HDR UK staff shares how her family ties to the beginning of the NHS sparked her passion for health data research and why it's important for the nation's healthcare.
Year(s) Of Engagement Activity	2023
URL	https://www.hdruk.ac.uk/news/continuing-my-uncle-clems-mission-the-nhs-75-years-on/

Description	Data Access through an NHS Research Secure Data Environment Network Workshop
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	David Seymour (Director of Infrastructure & Services, HDR UK) was an invited speaker at the Data Access through an NHS Research Secure Data Environment Network Workshop, where he gave a presentation on the Pan UK Data Governance steering group.
Year(s) Of Engagement Activity	2023

Description	Data Driven Cancer Research Conference
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	A conference to discuss how cancer research data can impact discovery and innovation for patient benefit.
Year(s) Of Engagement Activity	2024
URL	https://www.eventbrite.co.uk/e/data-driven-cancer-research-conference-tickets-658578244257?msockid=3...

Description	Data Landscape Mapping - APBI
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Influencing Policy - To begin diving deeper into the topics that were identified for potential collaboration after the in person HDR
Year(s) Of Engagement Activity	2024

Description	Data for R&D Autumn Conference (speaking slot 14:45) - "A new era in health data: mapping strengths and identifying opportunities for research".
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Cathie Sudlow Key note speech at 14:45
Year(s) Of Engagement Activity	2023

Description	Data for Research and Development: Autumn 2023 Update
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Industry/Business
Results and Impact	David Seymour (Director of Infrastructure & Services, HDR UK) was a participant at the Data for Research and Development: Autumn 2023 Update, where the latest progress, next steps and how attendees can get involved were discussed.
Year(s) Of Engagement Activity	2023
URL	https://www.eventbrite.co.uk/e/data-for-research-and-development-autumn-2023-update-tickets-68071891...

Description	Datamind Data Science meeting, Deutsche Bank, London
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Policymakers/politicians
Results and Impact	Cathie Sudlow speaker slot in afternoon
Year(s) Of Engagement Activity	2023

Description	Diversity in Data - Ethnicity coding working group - May 23
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	This working group is convened by the UK Health Data Research Alliance with the aim to bring together communities to address concerns around use of ethnicity data. The interactive discussions at this last in person event, combined with insights from previous online sessions, have demonstrated a broad interest in improving collection of data on ethnicity, as well as other personal demographic information. Most participants recognised that high quality data collection can benefit people through data-driven research, innovation, and policy decisions. But improvements and action from key decision makers across the four nations of the UK are needed. The UK Health Data Research Alliance can offer a forum to bring forward the discussion and drive adoption of best practice.
Year(s) Of Engagement Activity	2023
URL	https://ukhealthdata.org/projects/diversity-in-data/

Description	EHDEN Conference Symposium ( Euorpean Health Data and Evidence network)
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Work on the EHDEN IHI 2 project and the impact on European healthcare
Year(s) Of Engagement Activity	2024
URL	https://www.ehden.eu/ehden-symposium-barcelona-spain-10-october-2024/

Description	ELIXIR Bioinformatics Industry Forum: Trusted research environments for sharing data in life sciences
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Industry/Business
Results and Impact	A forum to bring together bioinformaticians, industry and business to discuss interoperability, technology and tools to enable analytical research across sectors.
Year(s) Of Engagement Activity	2023
URL	https://elixir-europe.org/events/elixir-bioinformatics-industry-forum-2023

Description	Early Detection of Cancer Conference, Central Hall, Westminster October 2023
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Cathie Sudlow attended conference for 3 days
Year(s) Of Engagement Activity	2023

Description	Early-career researchers play a vital role in celebrating impact at HDR UK
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Postgraduate students
Results and Impact	Applications are currently open for early-career researchers to join the HDR UK impact committee. Two current members, Dr Anmol Arora and Dr Louise Marryat, share their experiences of being on the committee and why you should consider applying.
Year(s) Of Engagement Activity	2024
URL	https://www.hdruk.ac.uk/news/early-career-researchers-play-a-vital-role-in-celebrating-impact-at-hdr...

Description	Edinburgh Collaborative Opportunities in Data Science
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Workshop co-organised by HDR UK, UKDRI and DZNE to discuss partnership opportunities using big data and imaging for brain health initiatives and projects.
Year(s) Of Engagement Activity	2024

Description	Empowering women in health data science to break barriers and embrace opportunities
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	For International Day of Women and Girls in Science, Rhoswyn Walker shares shares her motivations, career highlights and challenges she has faced as a female leader in health data science.
Year(s) Of Engagement Activity	2024
URL	https://www.hdruk.ac.uk/news/empowering-women-in-health-data-science-to-break-barriers-and-embrace-o...

Description	Enabling GP Data for Research and Patient Outcomes Workshop
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Industry/Business
Results and Impact	David Seymour (Director of Infrastructure & Services, HDR UK) was a participate in a workshop on enabling use of GP data for research and patient outcomes. This workshop was an opportunity to address one of the Secretary of State's priorities by bringing together some of the best minds in this area. The workshop intends to get as much information as possible on the impact and potential barriers to enabling GP data use, from relevant experts. Specifically, in this workshop, the focus was on any legal/technical/IG considerations to using GP data for research, various methods for using the data in a safe and confidential manner; their merits and limitations and any concerns and mitigations about GP data becoming more accessible.
Year(s) Of Engagement Activity	2023

Description	Expert Advisory Group - APBI/HDR UK - Health Data Project
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Attended by David Seymour
Year(s) Of Engagement Activity	2024

Description	Final preparations are underway ahead of the inaugural Alliance Transparency Showcase
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	A news piece spotlighting the work carried out by three of the organisations who will be showcasing at the event.
Year(s) Of Engagement Activity	2024
URL	https://ukhealthdata.org/news/final-preparations-are-underway-ahead-of-the-inaugural-alliance-transp...

Description	First whole UK population study reveals impact of COVID-19 under-vaccination
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Public/other audiences
Results and Impact	Story to celebrate the largest ever study to be conducted in the UK of 67 million people across all four nations reveals the consequences of missed COVID-19 vaccines.
Year(s) Of Engagement Activity	2024
URL	https://www.hdruk.ac.uk/news/first-whole-uk-population-study-reveals-impact-of-covid-19-under-vaccin...

Description	Five years of the Alliance: the story so far
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	A blog/opinion piece looking back on five incredible years of partnership and impact from the UK Health Data Research Alliance. The Authors reflect on establishing the Alliance, expanding the Alliance Membership, accelerating data discovery and access, recognising the potential of TREs, improving transparency, embracing international standards and look ahead to what the future holds for the Alliance.
Year(s) Of Engagement Activity	2024
URL	https://www.hdruk.ac.uk/news/five-years-of-the-alliance-the-story-so-far/

Description	Fourth OMOP Special Interest Group Meeting - June 24
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	The UK Health data Research Alliance convenes a Special Interest Group meeting, which is devoted to the OMOP common Data Model. This meetings aims to support the user community of those transforming and have transformed their data set to OMOP.
Year(s) Of Engagement Activity	2024
URL	https://zenodo.org/records/14887110

Description	From Pharmacist to Health Data Scientist: My HDR UK Internship Journey
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	Oluwatobi Oni took part in the HDR UK Health Data Science Black Internship Programme at the University of Glasgow in summer 2024. In this blog, Oluwatobi charts his journey into health data science and how the internship has shaped his career ambitions.
Year(s) Of Engagement Activity	2024
URL	https://www.hdruk.ac.uk/news/from-pharmacist-to-health-data-scientist-my-hdr-uk-internship-journey/

Description	From smarter search to faster access: A deep dive into the enhanced Gateway
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	We recently unveiled a major update to the Health Data Research Gateway! From a fresh, intuitive redesign to powerful search enhancements, these changes are all about making the experience of the Gateway faster, easier, and more effective. Here, we take a closer look at what's new and how it can help your journey to impactful research.
Year(s) Of Engagement Activity	2024
URL	https://www.hdruk.ac.uk/news/from-smarter-search-to-faster-access-a-deep-dive-into-the-enhanced-gate...

Description	Gender inequality and bias persists in European cancer research, new study suggests
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	Study led by Professor Mark Lawler, co-lead of HDR UK's Big Data for Complex Disease programme, found that senior female academics working in cancer research continue to face gender inequality.
Year(s) Of Engagement Activity	2023
URL	https://www.hdruk.ac.uk/news/gender-inequality-and-bias-persists-in-european-cancer-research-new-stu...

Description	Global Alliance for Genomics and Health networking drinks reception
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Andrew Morris attended. GA4GH are a strategic partner with HDRUK and collaborating on work prrogrammes within the Technology Ecosystem Pillar in QQ2
Year(s) Of Engagement Activity	2023

Description	HDR UK Advanced Computer Science Summit: AI and Healthcare
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	This event aims to anticipate advances in technologies that are on the horizon and discuss the impact these may have on our research over the quinquennium.
Year(s) Of Engagement Activity	2024
URL	https://hdrwales.org.uk/hdr-uk-advanced-computer-science-summit-ai-and-healthcare-april-24/

Description	HDR UK Community Meeting - Birmingham, 9th Nov 2022
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Study participants or study members
Results and Impact	Bringing together people in the region through community meetings to enable collaboration and sharing of progress
Year(s) Of Engagement Activity	2023
URL	https://www.eventbrite.co.uk/e/387548135907?aff=oddtdtcreator

Description	HDR UK Conference
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Health Data Research UK's annual conference celebrates progress and brings people together to accelerate the trustworthy use of health data for public benefit.
Year(s) Of Engagement Activity	2024
URL	https://www.hdruk.ac.uk/hdruk-conference-2024/

Description	HDR UK Conference 2024
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Other audiences
Results and Impact	The 6th annual Health Data Research UK (HDR UK) conference 2024, was held on 5-6 March. Hosted by HDR UK, this hybrid event was designed to highlight the 'Grand challenges in health data'. The packed two-day event showcased talks and panels from leaders in the health data field and provided an interactive platform to share experiences, drive progress and consider future priorities. The wide-ranging sessions revealed the depth, breadth and speed of the ever-changing UK health data community's progress, demonstrating a commitment to open science and highlighting thanks to the NHS and its cradle-to-grave records for a population of over 65 million people. The last few years have demonstrated the enormous power of data to advance medical knowledge and deliver radical improvements to people's lives. But there is much more that can be done through large-scale data, advanced analytics, and innovative developments in data governance. For the 2024 HDR UK Conference, we introduce a two-day event, the event took place on the 5-6 March at the Royal Armouries Museum in Leeds. We organised 20 bursary spaces for public attendees, of which only 17 were taken up. We also had sponsorship stands for the conference where industry partners could pay to give a talk and be included in the agenda of the second day. The first day was dedicated to a lay public audience with a mixture of Keynotes and Panel sessions as well as Lightning Talks, a Fireside Chat and the HDR UK Annual Award ceremony. We had 16 exhibitor stands made up of sponsors and invited partners as well as an HDR UK, Technology and DARE stand. This was followed by a drinks reception and a networking dinner. • We had over 700 people attend the conference over the two days, in person as well as 570 online attendees. • We had a diverse range of speakers from GPs, academics, Government Officials, Charities, and various Tech companies. • We had thirteen exhibitors from our partners, to tech companies such as Google Cloud, Dexter and Research Data Scotland.
Year(s) Of Engagement Activity	2024
URL	https://www.hdruk.ac.uk/hdruk-conference-2024

Description	HDR UK Leadership and Strategy Retreats
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	Regional
Primary Audience	Supporters
Results and Impact	Two-day HDR UK Leadership and Strategy Retreat
Year(s) Of Engagement Activity	2023
URL	https://www.eventbrite.co.uk/e/594840222117?aff=oddtdtcreator

Description	HDR UK Midlands Insight Sharing Day: Data Diversity and Health Inequalities in Data
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Presented the work of the Alliance around ethnicity data standards and data collection.
Year(s) Of Engagement Activity	2023
URL	https://www.hdrmidlands.org.uk/hdrevents/health-inequalities-and-diversity-in-health-data-science-18...

Description	HDR UK Research Case Studies
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Case studies of research that HDR UK has enabled, intended to showcase an overview, challenge, solution and impact of particular research projects.
Year(s) Of Engagement Activity	2024
URL	https://www.hdruk.ac.uk/research/case-studies/

Description	Health Data Research UK responds to DHSC Data access policy consultation
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Supporters
Results and Impact	The Department for Health and Social Care (DHSC) published their draft Data access policy update in May 2023, opening a period of consultation (now closed) to gather feedback to inform the final version and longer-term priorities and actions for data access policy. In preparing our response to the consultation we gathered a wider range of views from across the health data science community and brought these together in our formal submission.
Year(s) Of Engagement Activity	2023
URL	https://www.hdruk.ac.uk/news/health-data-research-uk-responds-to-dhsc-data-access-policy-consultatio...

Description	Health Data Research UK's response on NHS data platform announcement
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Public/other audiences
Results and Impact	Professor Andrew Morris, Director of HDR UK, responds to an announcement from NHS England on a new Federated Data Platform (FDP). Public response to the FDP announcement could have an impact on HDR UK's work if people opt out of use of data for research (which would not stop FDP utilisation) therefore we released statement to bring awareness to this.
Year(s) Of Engagement Activity	2023
URL	https://www.hdruk.ac.uk/news/health-data-research-uks-response-on-nhs-data-platform-announcement/

Description	Health Data Science Seminar Series
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Other audiences
Results and Impact	This series of seminars presents an exciting opportunity to hear about recent developments in health data science, generate ideas and help build the health data science community. It is hosted by the ONS's Data Science Campus and Health Analysis Team in partnership with Health Data Research UK (HDR UK). The Health Data Science Seminar series provides a dedicated space for data scientists, policymakers, health professionals, academics, epidemiologists, statisticians and other members of the data science community to come together and explore the potential of data science, to help improve health and health policy. Sign up now and be part of the conversation. Themes in 2024 included: Ethnicity and Inequality - 13 November 2024 Speakers: Alastair Denniston, Professor of Regulatory Science and Innovation, University of Birmingham Marta Pineda Moncusi, MSc, PhD, Postdoctoral Research Assistant in Health Data, University of Oxford Cameron Razieh, Principal Research Statistician, Health Research Group, Office for National Statistics Transforming Healthcare: AI in Health Data Science - 12 September 2024 Speakers: 'Oculomics: Understanding eye-body relationships through health data linkage', Dr Siegfried Karl Wagner - Ophthalmologist and senior research fellow, University College London 'New Developments and old problems with the application of Artificial Intelligence in Health Data Science', Professor Christopher Yau - Professor of Artificial Intelligence and Turing AI Fellow, University of Oxford 'Data stewardship and data readiness for AI', Dr Robert Andrews - Senior Lecturer in Bioinformatics, Cardiff University and Co-director of the Systems Immunity Institute Data-driven science informing policy and health and care practice - 8 May 2024 Speakers: Dr Lewis, Dr Jacques and Dr Simpson will be discussing two sister-projects in three parts: a section on the federated methods these projects used and the results from the two projects. Dr Richard Jacques - Senior lecturer in Medical Statistics. Dr Jacques will be presenting the analysis methods used for these two projects. His talk, entitled "Exploring regional linked health data capability for research", will cover the novel approach used. Dr Jen lewis - Research Fellow. Dr Lewis will be presenting: " Winter Pressures: Understanding seasonal variation in demand for emergency care using regional routine data from EDs and acute hospital admissions.". This looks for differences in key performance markers and patient case mix in winter compared with non-winter months, and explores regional variation in seasonal demand. Dr Beckie Simpson - Lecturer in Medical Statistics. Dr Simpson will be presenting: "Exploring variation in ED attendances and acute hospital admissions for Ambulatory Care Sensitive Conditions". This examines patient demographics, attendance characteristics and outcomes for patients presenting with Ambulatory Care Sensitive Conditions. Dr Daniel Chalk - The Health Service Modelling Associates (HSMA) Programme Lead. Dr Chalk, the HSMA Preogramme Lead, will be presenting about the Health Service Modelling Associates (HSMA) Programme. This is a free 15-month programme open to staff working in health, social care and policing anywhere in England. Dr Chalk will introduce the programme and talk about the impact it has had as well as directions for the future. Digital footprints - 25 January 2024 Speakers: Dr Anya Skatova, Senior Research Fellow at the University of Bristol Professor Will Dixon, Professor of Digital Epidemiology, The University of Manchester Professor Tim Chico, Professor of Cardiovascular Medicine, from the University of Sheffield.
Year(s) Of Engagement Activity	2024

Description	Health Data User Group Conference
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	The day will bring together users of NHS data infrastructure for research purposes, including industry, technology, charities and academic partners to showcase key progress and achievements from across both the NHS Research SDE Network and NHS DigiTrials service. Lunch and refreshments will be provided throughout the day and a full agenda will follow.
Year(s) Of Engagement Activity	2024

Description	Health Data User Group Conference 2024
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Policymakers/politicians
Results and Impact	Take part in a panel discussion on: NHS research ecosystem with co presenter Hilary Fanning, Ming Tang, and Verena Stocker.
Year(s) Of Engagement Activity	2024

Description	Health Foundation & Wellcome Trust roundtable - Improving UK population health through advances in the use of data
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Policymakers/politicians
Results and Impact	Discussions around "What are the main issues to focus on and the data developments, tools and research needed as a priority?".
Year(s) Of Engagement Activity	2024

Description	House of Lords Event
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	VIP Event for celebrating 5 yrs of HDR UK.
Year(s) Of Engagement Activity	2023

Description	How CPRD is driving more equitable research
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Other audiences
Results and Impact	The Clinical Practice Research Datalink is a world-leading research resource that has been empowering researchers with data-driven insights for more than 30 years. Its new Ethnicity Records are a step closer to more inclusive public health research and clinical practice.
Year(s) Of Engagement Activity	2023
URL	https://www.hdruk.ac.uk/news/how-cprd-is-driving-more-equitable-research/

Description	How do HDR UK decide who wins the Patient and Public Involvement and Engagement (PPIE) Award?
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	Jan Speechley provides insight into the PPIE Award panel process.
Year(s) Of Engagement Activity	2024
URL	https://www.hdruk.ac.uk/news/how-do-hdr-uk-decide-who-wins-the-patient-and-public-involvement-and-en...

Description	I love a technical challenge!
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Postgraduate students
Results and Impact	Ayoola Dosu recently joined HDR UK's Technology Team as part of the 2024 Black Internship Programme. Here, she shares her passion for data analysis in the health sector and the significance of the BIP programme in her professional journey.
Year(s) Of Engagement Activity	2024
URL	https://www.hdruk.ac.uk/news/i-love-a-technical-challenge/

Description	INSIGHT Transition Partnership Steering Group
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Attended by David Seymour
Year(s) Of Engagement Activity	2024

Description	Improving Access to Linked Data for Research workshop - April 23
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	The UK Health Data Research Alliance (the Alliance) recently organised a series of working group sessions to address the challenges and opportunities associated with utilising linked data for health research in the UK. These sessions aimed to improve accessibility to linked data, streamline data access processes, and enhance collaborations among stakeholders in the UK health data ecosystem.
Year(s) Of Engagement Activity	2023
URL	https://ukhealthdata.org/wp-content/uploads/2023/06/UK-Health-Data-Research-Alliance-Improving-Acces...

Description	Infrastructure Services Working Session
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Delivering a sustainable technology ecosystem and Gateway developments, building capacity
Year(s) Of Engagement Activity	2024

Description	Innovation through collaboration: Standout moments from the Digital Innovation Hub Programme 2018-2023
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Industry/Business
Results and Impact	Personal reflections from two key contributors to the delivery and success of the pioneering Digital Innovation Hub programme.
Year(s) Of Engagement Activity	2023
URL	https://www.hdruk.ac.uk/news/innovation-through-collaboration-standout-moments-from-the-digital-inno...

Description	Introduction to the Stroke Data Science Catalyst
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Policymakers/politicians
Results and Impact	Webinar to hear about our Stroke Catalyst's aims, insights and an update on our open funding call.
Year(s) Of Engagement Activity	2023
URL	https://www.eventbrite.co.uk/e/794124185817?aff=oddtdtcreator

Description	Learnings from ICODA initiative highlight importance of data science in addressing COVID-19 research challenges
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	The International COVID-19 Data Alliance (ICODA) research studies made a significant contribution to the global pandemic response, harnessing the power of health data research approaches to address major research questions.
Year(s) Of Engagement Activity	2023
URL	https://www.hdruk.ac.uk/news/learnings-from-icoda-partnership-reveal-importance-of-continued-transpa...

Description	Lifebit webinar - Data Harmony: Standardising Data to Enable Life-saving Research
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Industry/Business
Results and Impact	Panel about international data standards, common data models and interoperability across systems
Year(s) Of Engagement Activity	2023
URL	https://www.lifebit.ai/blog/data-harmony-webinar-report

Description	Maintaining Brain Health in an Aging Society
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Schools
Results and Impact	Attend a meeting with the Centre for Brain Research (Indian Institute of Science Campus) on "Maintaining Brain Health in an Aging Society" in line with HDR UK's brain health work.
Year(s) Of Engagement Activity	2024

Description	Mentorships Inspire Black Interns to Aim High in Their Careers
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Postgraduate students
Results and Impact	Weyinmi Guate, who led the Black Internship Programme (BIP) mentorships in 2023, shares insight into how the programme came about and its impact.
Year(s) Of Engagement Activity	2024
URL	https://www.hdruk.ac.uk/news/mentorships-inspire-black-interns-to-aim-high-in-their-careers/

Description	Michelle Donalan invitation to The Dame Barbara Windsor Dementia Mission
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Policymakers/politicians
Results and Impact	Reception at Downing Street organised by Michelle Donelan MP and Victoria Atkins MP to support the next steps for "The Dame Barbara Windsor Dementia Mission"
Year(s) Of Engagement Activity	2024

Description	NHS England Transformation Directorate
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	NHS England Transformation Directorate
Year(s) Of Engagement Activity	2024

Description	NHS Research SDE Network agrees to adopt common data model
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Dr Chris Russell, Head of Delivery, Data for Research and Development at NHS England, discusses how adoption of a common data model can help our complex healthcare system
Year(s) Of Engagement Activity	2023
URL	https://www.hdruk.ac.uk/news/nhs-research-sde-network-agrees-to-adopt-common-data-model/

Description	NHS Research SDE Network launch event
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Industry/Business
Results and Impact	David Seymour (Director of Infrastructure & Services, HDR UK) was a participant at the NHS Research SDE Network launch event. The event was a mix of plenary, networking, SRO Board, and workshops.
Year(s) Of Engagement Activity	2023

Description	NHS Research Secure Data Environment (SDE) Network Residential
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Industry/Business
Results and Impact	David Seymour (Director of Infrastructure & Services, HDR UK) was a participant at the three day NHS Research Secure Data Environment (SDE) Network Residential event from 11th - 13th December 2023.
Year(s) Of Engagement Activity	2023

Description	NHS SDE Access Workshop
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Attended by David Seymour
Year(s) Of Engagement Activity	2024

Description	NHS data: 'Maximising its impact for all' launch event
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Industry/Business
Results and Impact	David Seymour (Director of Infrastructure & Services, HDR UK) attended the launch event, NHS Data: Maximising its impact for all on 20th April. The events was to identify strategic and technical recommendations to move towards developing a health data policy ecosystem that is designed so that value, either clinical, societal or financial, is more readily extracted from patient data.
Year(s) Of Engagement Activity	2023

Description	NIHR Challenge - Maternity Inequalities Webinar
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	NIHR Webinar
Year(s) Of Engagement Activity	2024

Description	NIHR Digital Health Collaboration kick-off meeting
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Industry/Business
Results and Impact	David Seymour (Director of Infrastructure & Services, HDR UK) was an invited speaker at the National Institute for Health and Care Research (NIHR) Digital Health Collaboration kick-off meeting, where he gave a joint presentation with NHSE on the Secure Data Environment landscape to representatives from all NIHR Biomedical Research Centres.
Year(s) Of Engagement Activity	2023

Description	Navigating the ever-evolving landscape of technology careers
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Undergraduate students
Results and Impact	Following a Cambridge Spark 'Industry Insights Session', Monica Jones shares her experience and practical advice for professionals looking to propel technology careers.
Year(s) Of Engagement Activity	2024
URL	https://www.hdruk.ac.uk/news/navigating-the-ever-evolving-landscape-of-technology-careers-with-monic...

Description	New AI tool may offer insights into patients' future health
Form Of Engagement Activity	A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	press release announcing Researchers have developed and tested a new AI tool called Foresight which recognises complex patterns in health data to gain insights and offer predictions of the future health of patients.
Year(s) Of Engagement Activity	2024
URL	https://www.hdruk.ac.uk/news/new-ai-tool-may-offer-insights-into-patients-future-health/

Description	New Digital Health Programmes Manager Is Inspired By The Potential For Innovation
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Antonia Dingle shares her career journey into health data science and her new role as HDR UK's Digital Health Programmes Manager.
Year(s) Of Engagement Activity	2024
URL	https://www.hdruk.ac.uk/news/new-digital-health-programmes-manager-is-inspired-by-the-potential-for-...

Description	New UK-wide platform for uniting health data in traumatic brain injury research
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Public/other audiences
Results and Impact	The TBI-REPORTER research platform, led by the University of Cambridge in collaboration with HDR UK, launched to boost the use of data to advance treatment and care for people with traumatic brain injury.
Year(s) Of Engagement Activity	2023
URL	https://www.hdruk.ac.uk/news/new-uk-wide-platform-to-unite-health-data-in-traumatic-brain-injury-res...

Description	New collaboration tackling dementia research challenges through health data and AI
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Public/other audiences
Results and Impact	NEURii launched by HDR UK, the University of Edinburgh, LifeArc, Eisai and Gates Ventures to translate healthcare data and digital sciences into projects that will transform care for people living with dementia, beiginning with a two-year pilot period.
Year(s) Of Engagement Activity	2023
URL	https://www.hdruk.ac.uk/news/new-collaboration-tackling-dementia-research-challenges-through-health-...

Description	Norway Life Science2024
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Invited as guest speaker to present on "a broad introduction to health data and share your reflections about how health data can be used to improve diagnostics and treatments of patients". Chair a panel on "International perspectives on health data" with Katarina Nyström (Swedish government special investigator), Päivi Sillanaukee, Permanent Secretary of the Ministry of Social Affairs and Health of Finland, and Henrik Ullum CEO of Statens Serum Institut, Denmark
Year(s) Of Engagement Activity	2024

Description	OFCOM/SDR/HDR UK
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	What Ofcom is required to do about researchers' access to data for our obligations under the Online Safety Act and what we're hoping to learn from other industries and sectors.
Year(s) Of Engagement Activity	2024

Description	One London Research Workshop
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	NIHR Strategic Investments and discussions on joint plan London working
Year(s) Of Engagement Activity	2024

Description	Our Future Health - A model of transparency in health data access and use
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Member spotlight: Our Future Health demonstrates its commitment to transparency and the Alliance Principles for Participation by publishing its first data use register, making access processes clearer and data more findable.
Year(s) Of Engagement Activity	2024
URL	https://ukhealthdata.org/news/our-future-health-a-model-of-transparency-in-health-data-access-and-us...

Description	PEDRI: A place where people and data come together
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Interested in public engagement in data and statistics research? In this guest blog, Shayda Kashef from Administrative Data Research UK (ADR UK) reflects on her involvement in the Public Engagement with Data Research Initiative (PEDRI) and the opportunities for you and your organisation.
Year(s) Of Engagement Activity	2024
URL	https://www.hdruk.ac.uk/news/pedri-a-place-where-people-and-data-come-together/

Description	PRSB 10th Anniversary Celebration and AGM
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Conference to celebrate achievements of the PRSB first 10 years and priorities for future work
Year(s) Of Engagement Activity	2023
URL	https://theprsb.org/news/10-years-of-driving-better-health-and-care-outcomes-with-information-standa...

Description	Pankhurst Institute/HDR UK
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Collaborations and Partnership work
Year(s) Of Engagement Activity	2024

Description	Patient benefits are always our 'North Star'
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Supporters
Results and Impact	The first HDR UK and University of Birmingham Immersion Week was all about working with real-world data and is being delivered by PIONEER, the Health Data Research Hub for Acute Care. One of the speakers for the week, Suzy Gallier, who is PIONEER's Technical and Deputy Director, discussed the course, and careers in health data science on HDR UK's blog.
Year(s) Of Engagement Activity	2023
URL	https://www.hdruk.ac.uk/news/patient-benefits-are-always-our-north-star/

Description	President's Lecture 2024 - British Pharmacological Society
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Present at the event.
Year(s) Of Engagement Activity	2024

Description	Professor Andrew Morris presented with Royal Medal from the Royal Society of Edinburgh
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Other audiences
Results and Impact	Announcement of Professor Andrew Morris, Director of Health Data Research UK (HDR UK), being presented with a medal from the Royal Society of Edinburgh (RSE) for outstanding contributions to scientific research.
Year(s) Of Engagement Activity	2023
URL	https://www.hdruk.ac.uk/news/professor-andrew-morris-presented-with-royal-medal-from-the-royal-socie...

Description	Professor Steffen Petersen appointed as BHF Data Science Centre Deputy Director
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Supporters
Results and Impact	Leading cardiologist Steffen Petersen has been named inaugural Deputy Director of the British Heart Foundation Data Science Centre, where he will support Cathie Sudlow in spearheading data-led science to improve heart health.
Year(s) Of Engagement Activity	2023
URL	https://www.hdruk.ac.uk/news/professor-steffen-petersen-appointed-as-bhf-data-science-centre-deputy-...

Description	Progress update on addressing NHS winter pressures through health data research
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Policymakers/politicians
Results and Impact	Update report on 16 projects, funded by the Department of Health and Social Care (DHSC) through the National Institute for Health and Care Research (NIHR), that aimed to use rapid data-driven approaches to identify and tackle winter pressures in the health care system.
Year(s) Of Engagement Activity	2024
URL	https://www.hdruk.ac.uk/news/progress-update-on-addressing-nhs-winter-pressures-through-health-data-...

Description	Public Involvement and Engagement Practices in Data Research and Statistics: Insights from PEDRI Public Consultation
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	In today's data-driven landscape, involving and engaging the public in research is not just important-it's absolutely necessary. Recognising this need, the Public Engagement in Data Research Initiative (PEDRI) has embarked on a collaborative effort to establish Best Practice Standards for Public Involvement and Engagement (PIE) in data research and statistics.
Year(s) Of Engagement Activity	2024
URL	https://www.hdruk.ac.uk/news/public-involvement-and-engagement-practices-in-data-research-and-statis...

Description	QResearch - high-quality data for world-leading research
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Explanation for QResearch, a not-for-profit collaboration between healthcare technology provider Egton Medical Information Systems (EMIS) and the University of Oxford (it was originally with the University of Nottingham).
Year(s) Of Engagement Activity	2023
URL	https://www.hdruk.ac.uk/news/qresearch-high-quality-data-for-world-leading-research/

Description	Redesigning Research Assessment
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	The recent release of the highly anticipated initial decisions by the Future Research Assessment Programme unveils the suggested structure of the forthcoming Research Excellence Framework (REF) in 2028. HDR UK Head of Open Science, Research Culture and Impact, wrote a blog post to discuss the important developments and what they mean to HDR UK. This piece has been used in further comms around research culture and the material will be referenced in content relating to HDR UK Impact Assessment.
Year(s) Of Engagement Activity	2023
URL	https://www.hdruk.ac.uk/news/redesigning-research-assessment/

Description	Reflecting on our science festival journey - and what's next
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	Over the past year, HDR UK have brought health data research to science festivals and events across the UK. Anna Woolman, Public Engagement Manager, reflects on our journey so far and what's next.
Year(s) Of Engagement Activity	2024
URL	https://www.hdruk.ac.uk/news/reflecting-on-our-science-festival-journey-and-whats-next/

Description	Remote health monitoring smartphone app reduces emergency hospital admissions from care homes by 25%
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	News story setting out findings from research supported by HDR UK's Better Care programme. Through the HDR UK Better Care programme, a collaboration between the universities of Sheffield, Durham, Lancaster and Newcastle, researchers set out to investigate the benefits of using a digital technology for remote health monitoring within care homes. By linking routinely collected NHS secondary care data from County Durham and Darlington NHS Foundation Trust with data gathered within the care homes, the team show that using the Health Call app reduced the number of attendances to A&E by 11% and unplanned emergency admissions by 25%.
Year(s) Of Engagement Activity	2024
URL	https://www.hdruk.ac.uk/news/remote-monitoring-app-reduces-emergency-hospital-admissions-from-care-h...

Description	Research Centre/Portfolio Planning and Implementation Webinar
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	One-hour webinar delivered by HDR UK International Advisory Board member that focused on adapting selected project management tools so they can be applied to research centers and portfolios
Year(s) Of Engagement Activity	2023
URL	https://www.eventbrite.co.uk/e/691529311787?aff=oddtdtcreator

Description	Scholarship Was A Fast Way To Develop My Skills
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Undergraduate students
Results and Impact	Emma Hesketh, one of the first people awarded an HDR UK-Wellcome Biomedical Vacation Scholarship (BVS), shares her experience and key takeaways from the scholarship.
Year(s) Of Engagement Activity	2024
URL	https://www.hdruk.ac.uk/news/scholarship-was-a-fast-way-to-develop-my-skills/

Description	Science Festivals: Reaching out to new audiences about health data
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Other audiences
Results and Impact	PPIE team share insights into preparations, importance and learnings from HDR UK's first science festival attendance.
Year(s) Of Engagement Activity	2024
URL	https://www.hdruk.ac.uk/news/science-festivals-reaching-out-to-new-audiences-about-health-data/

Description	Second Clinical Trials Prioritisation Forum meeting - April 24
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	This working group aims to facilitate an exchange of ideas between data providers, consumers of trial results and the wider trials community, covering how challenges can be addressed and to prioritise the necessary actions to realise the potential benefits.
Year(s) Of Engagement Activity	2024
URL	https://zenodo.org/records/12532996

Description	Showcasing and bringing together emerging health data researchers and technologists
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Postgraduate students
Results and Impact	Elliot McClenaghan and Fatemeh Torabi, the co-hosts of our recent Early Career Researcher (ECR) Forum, reflect on the event's success and key takeaways.
Year(s) Of Engagement Activity	2024
URL	https://www.hdruk.ac.uk/news/showcasing-and-bringing-together-emerging-health-data-researchers-and-t...

Description	Tech UK Life Sciences Working Group
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Discussion on the technical consistency and maturity challenges within Secure Data Environments
Year(s) Of Engagement Activity	2024

Description	TechXBio event
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Industry/Business
Results and Impact	Conference and panel discussion on data standards and interoperability of systems for data and data access challenges for industry.
Year(s) Of Engagement Activity	2023
URL	https://www.bioindustry.org/event-listing/techbio-x-north-west.html

Description	The Alliance marks its fifth anniversary
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	A news story to mark the five year anniversary of the UK Health Data Research Alliance highlighting some of the programmes major achievements to date
Year(s) Of Engagement Activity	2024
URL	https://www.hdruk.ac.uk/news/the-alliance-marks-its-fifth-anniversary/

Description	The Alliance marks its fifth anniversary
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Industry/Business
Results and Impact	News story marking The UK Health Data Research Alliance's five remarkable years of progress and commitment to maximising the benefits of health data research for all.
Year(s) Of Engagement Activity	2024
URL	https://www.hdruk.ac.uk/news/the-alliance-marks-its-fifth-anniversary/

Description	The HDR UK-Roche Hackathon 2024
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Postgraduate students
Results and Impact	The HDR UK-Roche Hackathon, held in April 2024, saw 18 PhD students from eight universities across the UK converge at the Wellcome Collection in London for the second joint collaborative training event between Health Data Research UK and the Data & Analytics unit of Pharmaceutical Research and Development at Roche.
Year(s) Of Engagement Activity	2024
URL	https://www.hdruk.ac.uk/news/the-hdr-uk-roche-hackathon-2024/

Description	The Health Foundation & Ada Lovelace Institute: Tackling health and social inequalities in data-driven systems
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Policymakers/politicians
Results and Impact	Panel discussion about data-driven health systems and how technology can help tackle health inequalities. Shared work of the Alliance around ethnicity data standards and data collection.
Year(s) Of Engagement Activity	2023
URL	https://www.eventbrite.co.uk/e/tackling-health-and-social-inequalities-in-data-driven-systems-ticket...

Description	The Patient Data Revolution: From Promise to Realization, Clinical Research Data Sharing Alliance
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Industry/Business
Results and Impact	Attended event on expert insights into the latest developments in the responsible reuse of patient data. Summit Agenda o Keynote: Mark McClellan, Director, Duke-Margolis Center for Health Policy and former Commissioner of the U.S. Food and Drug Administration o Regulatory Panel: A realistic look at diverse data types and alternative methodological approaches in regulatory submissions o Introduction to standards for clinical trial data contributions and for the responsible research use of secondary patient data o Data Governance and Privacy Methodology: Moving from confusion to clarity
Year(s) Of Engagement Activity	2024
URL	https://crdsalliance.org/

Description	The Scottish National Safe Haven - a secure research environment for health data research
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Industry/Business
Results and Impact	The Scottish National Safe Haven (NSH) is part of the UK's growing TRE network and provides researchers with a high-powered computing service, secure analytic environment, secure file transfer and a range of analytic software.We asked Carole Morris, Head of Data and Modelling Services at Public Health Scotland to tell us more about the Scottish NSH and its importance in advancing health data research.
Year(s) Of Engagement Activity	2023
URL	https://www.hdruk.ac.uk/news/the-scottish-national-safe-haven-a-secure-research-environment-for-heal...

Description	The gift that keeps on giving: From intern to ceremony host of the HDR UK Black Internship Programme
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Postgraduate students
Results and Impact	People often have moments or experiences that are pivotal to their life journey - things they must mention when they talk about their story. For Isaac Newton, it was the discovery of gravity, for Marie Curie it was radium and polonium and for me it is the HDR UK Black Internship Programme. Since completing the internship, my confidence and expertise as a data scientist has increased by leaps and bounds.
Year(s) Of Engagement Activity	2024
URL	https://www.hdruk.ac.uk/news/the-gift-that-keeps-on-giving-from-intern-to-ceremony-host-of-the-hdr-u...

Description	The unsung heroes of data science - defining standards and best practice
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Professor Michelle Williams recently collaborated on a new British Standards Institution framework focused on artificial intelligence (AI). This blog post from the BHF Data Science Centre covers how such frameworks and guidelines are vital to good quality research in hot topic areas like AI for the research community.
Year(s) Of Engagement Activity	2023
URL	https://bhfdatasciencecentre.org/news-and-events/the-unsung-heroes-of-data-science-defining-standard...

Description	Third Clinical Trials Prioritisation Forum meeting - September 24
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	This working group aims to facilitate an exchange of ideas between data providers, consumers of trial results and the wider trials community, covering how challenges can be addressed and to prioritise the necessary actions to realise the potential benefits.
Year(s) Of Engagement Activity	2024
URL	https://zenodo.org/records/14025151

Description	Third OMOP Special Interest Group Meeting - February 24
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	The UK Health data Research Alliance convenes a Special Interest Group meeting, which is devoted to the OMOP common Data Model. This meetings aims to support the user community of those transforming and have transformed their data set to OMOP.
Year(s) Of Engagement Activity	2024
URL	https://zenodo.org/records/14945182

Description	Tim Hubbard announced as the next Director of ELIXIR
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	Professor Tim Hubbard, Associate Director of the London region of Health Data Research UK (HDR UK), was announced as the next Director of ELIXIR - a distributed European research infrastructure for life-science data
Year(s) Of Engagement Activity	2023
URL	https://www.hdruk.ac.uk/news/tim-hubbard-announced-as-the-next-director-of-elixir/

Description	Transforming randomised clinical trials with healthcare data: Experts respond to the Lord O'Shaughnessy review
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Following the publication of the Lord O'Shaughnessy review on the UK's commercial clinical trials landscape, Professors Marion Mafham and Matt Sydes discussed the potential of healthcare systems data to transform clinical trials in the UK - and the changes needed to achieve this.
Year(s) Of Engagement Activity	2023
URL	https://www.hdruk.ac.uk/news/transforming-randomised-clinical-trials-response-to-lord-oshaughnessy-r...

Description	Turing/HDR Collab
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	The first, is a one-off meeting to discuss how Turing/HDR UK can work together on a joint dialogue with NHS England and to include a subject raised by Aldo around the UK's powerful compute resources such as ARCHER2
Year(s) Of Engagement Activity	2024

Description	UK Health Data Research Alliance Council meeting - April 23
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Senior leaders from partner organisations join the Alliance Council to provide oversight and direction of the Alliance
Year(s) Of Engagement Activity	2023
URL	https://ukhealthdata.org/wp-content/uploads/2023/05/20230428-Alliance-Council-Meeting-Actions-and-me...

Description	UK Health Data Research Alliance Council meeting - July 23
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Senior leaders from partner organisations join the Alliance Council to provide oversight and direction of the Alliance
Year(s) Of Engagement Activity	2023
URL	https://ukhealthdata.org/wp-content/uploads/2023/07/20230713-Alliance-Council-Meeting-Actions-and-me...

Description	UK Health Data Research Alliance Council meeting - October 23
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Senior leaders from partner organisations join the Alliance Council to provide oversight and direction of the Alliance
Year(s) Of Engagement Activity	2023
URL	https://ukhealthdata.org/wp-content/uploads/2023/11/20231010-Alliance-Council-Meeting-Actions-and-Me...

Description	UK Health Data Research Alliance Executive Committee - April 24
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	The Alliance Executive Committee's purpose is to provide strategic leadership of the Alliance and to ensure its activities are in alignment with strategies across all areas of the health data ecosystem, as well as major infrastructure investments outside of, but relevant to, health and social care. It is responsible to the Alliance membership, represented through the Alliance Council. Its remit is: Guiding principles and growth, Programme development and prioritisation, Fostering collaboration, Communication and Engagement. The Alliance Executive Committee meet on a quarterly basis.
Year(s) Of Engagement Activity	2024
URL	https://ukhealthdata.org/wp-content/uploads/2024/05/UK-Health-Data-Research-Alliance-Executive-Commi...

Description	UK Health Data Research Alliance Executive Committee - December 24
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	The Alliance Executive Committee's purpose is to provide strategic leadership of the Alliance and to ensure its activities are in alignment with strategies across all areas of the health data ecosystem, as well as major infrastructure investments outside of, but relevant to, health and social care. It is responsible to the Alliance membership, represented through the Alliance Council. Its remit is: Guiding principles and growth, Programme development and prioritisation, Fostering collaboration, Communication and Engagement. The Alliance Executive Committee meet on a quarterly basis.
Year(s) Of Engagement Activity	2024

Description	UK Health Data Research Alliance Executive Committee - Introductory Meeting
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	The Alliance Executive Committee's purpose is to provide strategic leadership of the Alliance and to ensure its activities are in alignment with strategies across all areas of the health data ecosystem, as well as major infrastructure investments outside of, but relevant to, health and social care. It is responsible to the Alliance membership, represented through the Alliance Council. Its remit is: Guiding principles and growth, Programme development and prioritisation, Fostering collaboration, Communication and Engagement. The Alliance Executive Committee meet on a quarterly basis.
Year(s) Of Engagement Activity	2023

Description	UK Health Data Research Alliance Executive Committee - July 24
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	The Alliance Executive Committee's purpose is to provide strategic leadership of the Alliance and to ensure its activities are in alignment with strategies across all areas of the health data ecosystem, as well as major infrastructure investments outside of, but relevant to, health and social care. It is responsible to the Alliance membership, represented through the Alliance Council. Its remit is: Guiding principles and growth, Programme development and prioritisation, Fostering collaboration, Communication and Engagement. The Alliance Executive Committee meet on a quarterly basis.
Year(s) Of Engagement Activity	2024
URL	https://ukhealthdata.org/wp-content/uploads/2024/08/UK-Health-Data-Research-Alliance-Executive-Commi...

Description	UK Health Data Research Alliance Executive Committee - October 24
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	The Alliance Executive Committee's purpose is to provide strategic leadership of the Alliance and to ensure its activities are in alignment with strategies across all areas of the health data ecosystem, as well as major infrastructure investments outside of, but relevant to, health and social care. It is responsible to the Alliance membership, represented through the Alliance Council. Its remit is: Guiding principles and growth, Programme development and prioritisation, Fostering collaboration, Communication and Engagement. The Alliance Executive Committee meet on a quarterly basis.
Year(s) Of Engagement Activity	2024
URL	https://ukhealthdata.org/wp-content/uploads/2024/10/UK-Health-Data-Research-Alliance-Executive-Commi...

Description	UK Health Data Research Alliance Executive Committee - Sep 23
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	The Alliance Executive Committee's purpose is to provide strategic leadership of the Alliance and to ensure its activities are in alignment with strategies across all areas of the health data ecosystem, as well as major infrastructure investments outside of, but relevant to, health and social care. It is responsible to the Alliance membership, represented through the Alliance Council. Its remit is: Guiding principles and growth, Programme development and prioritisation, Fostering collaboration, Communication and Engagement. The Alliance Executive Committee meet on a quarterly basis.
Year(s) Of Engagement Activity	2023

Description	UK Health Data Research Alliance Executive Committee Meeting - Dec 23
Form Of Engagement Activity	A formal working group, expert panel or dialogue
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	The Alliance Executive Committee's purpose is to provide strategic leadership of the Alliance and to ensure its activities are in alignment with strategies across all areas of the health data ecosystem, as well as major infrastructure investments outside of, but relevant to, health and social care. It is responsible to the Alliance membership, represented through the Alliance Council. Its remit is: Guiding principles and growth, Programme development and prioritisation, Fostering collaboration, Communication and Engagement. The Alliance Executive Committee meet on a quarterly basis.
Year(s) Of Engagement Activity	2023

Description	UK Health Data Research Alliance calls for action to improve coding of ethnicity data
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	In 2021, the UK Health Data Research Alliance established the Ethnicity Coding Working Group to tackle the challenges and explore opportunities in the use of data reporting ethnicity. In this opinion piece the Head of Alliance Strategy and Engagement discusses the progress that has been made over the last two years and the future for the group
Year(s) Of Engagement Activity	2023
URL	https://www.hdruk.ac.uk/news/uk-health-data-research-alliance-calls-for-action-to-improve-coding-of-...

Description	UK Health Data Research Alliance welcomes patient and public groups to its membership
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Announcement that demonstrates that UK Health Data Research Alliance continues to expand and diversify by welcoming seven new members and for the first time, two patient and public representative bodies.
Year(s) Of Engagement Activity	2023
URL	https://www.hdruk.ac.uk/news/uk-health-data-research-alliance-welcomes-patient-and-public-groups-to-...

Description	UK Secure Data Environments: A New Approach to Population-Scale Real World Evidence
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Professional Practitioners
Results and Impact	The symposium will explore the UK approach to medicine data & electronic health records from the lens of global causal inference research.
Year(s) Of Engagement Activity	2024
URL	https://hsph.harvard.edu/events/uk-secure-data-environments-a-new-approach-to-population-scale-real-...

Description	UK health data landscape review commissioned
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Media (as a channel to the public)
Results and Impact	Professor Cathie Sudlow OBE, Chief Scientist at HDR UK, commissioned to conduct an independent review mapping the UK's health-relevant data landscape, identifying barriers and reccommending solutions.
Year(s) Of Engagement Activity	2023

Description	Verily and HDR UK -meeting to discuss partnership working
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Professional Practitioners
Results and Impact	Andrew Morris attended
Year(s) Of Engagement Activity	2023
URL	https://verily.com/

Description	Webinar: Ethnic Minority Research Inclusion (EMRI)
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Patients, carers and/or patient groups
Results and Impact	Presented the work of the Alliance on enabling representative research through better collection of ethnicity data.
Year(s) Of Engagement Activity	2023

Description	Webinars: Using Docker for Reproducible Health Data Research
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Industry/Business
Results and Impact	Webinar series exploring the use of containers (Docker) for reproducibly interrogating multiple biobanks and other data enclaves.
Year(s) Of Engagement Activity	2023
URL	https://www.eventbrite.co.uk/e/740697775987?aff=oddtdtcreator

Description	Why do we need a National Health Data Service?
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Policymakers/politicians
Results and Impact	One of the eye-catching recommendations of the Sudlow Review was to set up a National Health Data Service. But why do we need one, what would it do and how would it make a difference?
Year(s) Of Engagement Activity	2024
URL	https://www.hdruk.ac.uk/news/showcasing-and-bringing-together-emerging-health-data-researchers-and-t...

Description	techUK roundtable on OMOP
Form Of Engagement Activity	A talk or presentation
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Industry/Business
Results and Impact	David Seymour (Director of Infrastructure & Services, HDR UK) was an invited speaker at the tech UK & HDR UK OMOP Roundtable. The aim of this roundtable was to explore the use of Observational Medical Outcomes Partnership (OMOP) Common Data Model (CDM) for Secure Data Environments. More specifically, the challenges and progress with the adoption of OMOP thus far, current challenges enabling large scale research, how to ease the adoption of OMOP going forward and encourage use across Secure Data Environments (SDEs), how to get the right incentives in place and the role of system suppliers in transformation of data to OMOP at source.
Year(s) Of Engagement Activity	2023
URL	https://www.techuk.org/what-we-deliver/events/techuk-hdr-uk-omop-roundtable.html

Description	use MY data education session
Form Of Engagement Activity	Participation in an activity, workshop or similar
Part Of Official Scheme?	No
Geographic Reach	National
Primary Audience	Public/other audiences
Results and Impact	Introduction to the Alliance network and invitation to collaborate
Year(s) Of Engagement Activity	2023

Description	£650m for UK's life sciences sector may contribute to improved clinical trials
Form Of Engagement Activity	Engagement focused website, blog or social media channel
Part Of Official Scheme?	No
Geographic Reach	International
Primary Audience	Other audiences
Results and Impact	HDR UK welcomes the Chancellor of the Exchequer's pledge of £650 million for the UK's life sciences including £121 million to improve clinical trials to bring new medicines to patients faster.
Year(s) Of Engagement Activity	2023