MICA: Centre for the Improvement of Population Health through E-health Research (CIPHER)

Lead Research Organisation: Swansea University
Department Name: Institute of Life Science Medical School

Abstract

The aim of the Centre for Improving Population Health through E-Health Research (CIPHER) is to carry out research that will improve the health of the nation. It will do this by developing new methods to anonymise, link and analyse healthcare and similar data, to answer a wide range of important research questions. We will often work with researchers who have established large cohort studies, helping them make their cohorts more powerful, longer lasting, and cheaper to operate. E-health research is a new field and so CIPHER will be focussing on training researchers in how to use these data and methods.

CIPHER has four core research programmes: The first focuses on developing robust new methods to allow health and other information to be anonymised and analysed. For example, developing ways in which researchers accessing data cannot possibly identify the individuals involved, thereby ensuring that privacy is protected. CIPHER's other three research programmes focus on the impact on people's lives of (1) injury and the built environment; (2) mental health and substance use; and (3) infection. CIPHER researchers will undertake a range of studies to provide better insight into the causes of disease and injury, the consequences of these conditions on individuals and the population, and evaluations of treatments and policies which are designed to improve health. Knowledge of the longer term individual and societal impact of many conditions and treatments is currently very limited, as long term studies are very expensive. CIPHER's work will enable the long term follow up of outcomes using anonymised data, answering these questions effectively but at far less cost. Within its research programmes CIPHER will address many scientific questions, including: How effective are fall-prevention initiatives for older people? What is the impact of giving Vitamin D supplements to people in care homes in reducing hip fractures? Can linked data be used to help Fire and Rescue services prevent more home fires? Have interventions to make homes warmer reduced the number of deaths in winter? How much does substance use in young adults contribute to mental health problems? Does opiate substitution therapy in prison reduce the risk of death following prison release? Can linked routine data be used to identify opportunities to intervene in pathways to harm for people who self-harm or die by suicide? How can information be better used to reduce antibiotic resistant infections? Are the different micro-organisms we carry in our bowels involved in the development of serious health conditions?

CIPHER will work with the NHS to develop better ways to measure patients' experiences and treatment outcomes. CIPHER will also develop methods to enable linkage of anonymised treatment data to important social outcomes such as staying in work, continuing in education, or being able to live independently at home. Such information will help the NHS design its services to meet a broader range of patients' needs. CIPHER's believes it is important to communicate effectively with patients, patient groups and the public at large about its research. A significant part of our work therefore will be setting up ways to aid this communication. We will have public representatives involved in our research throughout and they will help guide us and help us communicate effectively with wider groups.

CIPHER will be one of a small number of similar Centres that is being set up in the UK and we will be working together to train researchers in these new methods and making sure universities have suitable jobs for them. CIPHER aims to be an internationally recognised centre of expertise in the use of electronic health and associated records for research and, along with other network members, position the UK as the world leader in the field, improving the population's health, increasing UK research income, and improving the economy.

Technical Summary

The vision of the Centre for Improving Population Health through E-Health Research (CIPHER) is to maximise the utility of routine health-related data on the UK population to support research to improve the nation's health. Objectives are: to provide a focus for innovative research using electronic health records; undertake novel linkage and analyses of large datasets; and build multi-disciplinary research capacity. The Centre will deliver four research programmes in: methodological innovation; injury, the built environment and health; psychosocial determinants of health; and, population aspect of infection. Much of the methodological work will be on enabling data to be used whilst protecting and ensuring privacy. The development of an anonymised data linkage platform will enable previously infeasible, large scale observational and interventional studies to be undertaken. CIPHER will address many scientific questions, including those listed below. How can data linkage improve measurement of the national and global burden of injury? What is the population impact of fall-prevention initiatives, Vitamin D supplements and targeted fire prevention activities? Have energy efficiency interventions reduced excess winter mortality? What is the relationship between urban design, obesity and mental health? To what extent do care and repair services protect health and prolong independent living? Is cannabis, alcohol and tobacco use associated with increased risk of psychosis? What is the burden of mental disorder in the young adult population from substance use? Does opiate therapy in prison reduce risk of death in the period immediately following prison release? Can linked routine data be used to identify opportunities to intervene in pathways to harm for people who self-harm or die by suicide? How can linked data be used to evaluate interventions to reduce antibiotic resistant infections? Does carriage of bowel microflora influence development of bowel disorders?

Planned Impact

There are many different groups who will benefit from the research programmes outlined in this bid. The first group is the UK and global academic community. Creating novel methodologies and innovative e-health technology platforms will enable previously infeasible and unaffordable cutting-edge, large scale, observational and evaluative studies to be undertaken, resulting in a step change in research capability, capacity and efficiency. This is turn will result in substantially enhanced scientific understanding of disease aetiology, disease prevention and management. The scientific outputs of such research will be reflected in high impact scientific publications and the development of new research programmes by funding agencies.

Much of the research to be carried out by CIPHER is designed to be relevant to a very broad cross-cutting policy agenda and we would expect the results of the work to influence UK Government and international policies in several areas. Themes such as health and wellbeing, the 'Big Society' social mobility, housing, and healthy ageing are reflected in current UK policy documents and statements. Over time the focus may be on other areas but the breadth and scale of data linkage envisaged in the CIPHER application will be capable of dealing with new policy concerns. One of the difficulties policy makers face is great uncertainty about the impact of policies, particularly those which affect multiple Government departments or sectors. The research programmes outlined in this application demonstrate the potential to link data across multiple sectors to answer these difficult questions in a series of innovative demonstration studies. For example, anonymised linkage of health, benefits, housing and other datasets, together with the development of information platforms capable of evaluating natural experiments, policies, and interventions led by health, local government or the third sector, will provide new knowledge which will influence policy at multiple levels, including those who create, implement or evaluate policies. One would expect the results of such research to lead to increased effectiveness of public services, enhanced quality of life, and improved economic performance through better health and a variety of other mechanisms. Improved health results in reduced costs from disability associated benefits, delayed requirement for assisted living and care in an ageing population, increased employment, and improvements in the competitiveness of the UK economy. A considerable growth in e-health employment is envisaged in both academic and private sectors to take advantage of the increased availability of data and skills resulting from the e-health research initiative. This in turn should result in an increase in the UK capture of global research funds, greater inward investment and increased employment which will benefit the UK knowledge and general economy.

Research funding bodies and researchers are increasingly asked to demonstrate the social impact of their research. This has proven to be quite a challenge as many traditional research projects take time to impact as funding is generally over too short a period to capture much of the longer term benefits. It is likely that the financial and societal benefits from health research are considerably underestimated. Longitudinal cross-sectional data linkage is essential in accurately quantifying the longer term impact of investments in scientific research on the population's health, wellbeing and wealth.

The benefits of such research will start to be seen within the first few years of the Centre and should increase exponentially thereafter as the number of studies utilising the UK e-health platforms grows.

People

ORCID iD

Shantini Paranjothy (Principal Investigator)
Ronan Anthony Lyons (Principal Investigator) orcid http://orcid.org/0000-0001-5225-000X
Mika Gissler (Co-Investigator)
Christopher C Butler (Co-Investigator) orcid http://orcid.org/0000-0002-0102-3453
Ann John (Co-Investigator)
Hilary Margaret Fielder (Co-Investigator)
Ian Trevor Russell (Co-Investigator)
David Vincent Ford (Co-Investigator)
Michael Dennis (Co-Investigator)
David Preen (Co-Investigator)
Sarah Rodgers (Co-Investigator)
John Gallacher (Co-Investigator)
Laurence Anthony Moore (Co-Investigator) orcid http://orcid.org/0000-0003-2182-823X
Stephen E Roberts (Co-Investigator)
Kerina Helen Jones (Co-Investigator)
Michael Gravenor (Co-Investigator)
Matthew Hickman (Co-Investigator) orcid http://orcid.org/0000-0001-9864-459X
Cashel D'Arcy James Holman (Co-Investigator)
David Lawrence Fone (Co-Investigator)
Sarah Elizabeth Lowe (Co-Investigator)
Gareth John (Co-Investigator)
Jacqueline Anne Cassell (Co-Investigator)
Richard Michael Martin (Co-Investigator)
EDWARD CLARKE CONLEY (Co-Investigator)
Stefan Siebert (Co-Investigator)
Stephen Palmer (Co-Investigator)
David John Gunnell (Co-Investigator)
John Macleod (Co-Investigator)
Belinda Gabbe (Co-Investigator)
Helen Anne Snooks (Co-Investigator)
Keith Lloyd (Co-Investigator)
John Gordon Williams (Co-Investigator)
John Carroll (Co-Investigator)
Khaled El Emam (Co-Investigator)
Sinead Brophy (Co-Investigator) orcid http://orcid.org/0000-0001-7417-2858
Paul Richard Burton (Co-Investigator)

Publications

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Aitken M (2019) Consensus Statement on Public Involvement and Engagement with Data-Intensive Health Research in International Journal of Population Data Science

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Akbari A (2017) The ELAStiC (Electronic Longitudinal Alcohol Study in Communities) project in International Journal of Population Data Science

 
Title Poster at Informatics for Health 2017 conference 
Description Poster displaying the results from the 'Longitudinal analysis of critical care outcomes in Wales' project 
Type Of Art Image 
Year Produced 2017 
Impact Won Farr Institute prize for best abstract for poster 
 
Description Active Travel to School Advisory Group
Geographic Reach National 
Policy Influence Type Participation in a advisory committee
Impact Educated public health consultants on the use of data linkage to investigate travel mode and travel to school for children in Wales. Advised on methods of capturing useful data to investigate trends and complex evaluation opportunities.
 
Description Discussion with alcohol-lead, Public Health Wales NHS Trust
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Influenced training of practitioners or researchers
 
Description Giving input into the development of Welsh Governement's new Digital Health strategy
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Participation in a national consultation
 
Description Influence on the development of Welsh Health Policy: Prudent Healthcare
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Citation in other policy documents
URL http://www.prudenthealthcare.org.uk/
 
Guideline Title JRCALC (Joint Royal College Ambulance Liaison Committee) guideline on falls in older adults
Description Input into JRCALC (Joint Royal College Ambulance Liaison Committee) guideline on falls in older adults
Geographic Reach Europe 
Policy Influence Type Citation in clinical guidelines
 
Description Membership of the ABMU HealthBoard SBRI Project Board (funded by Innovate UK
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Membership of a guidance committee
 
Description Membership of the Academy of Medical Sciences "Health of the Public 2040" Working group
Geographic Reach National 
Policy Influence Type Membership of a guidance committee
 
Description Membership of the Health and Social Care Information Centre's Expert Advisory Group
Geographic Reach National 
Policy Influence Type Participation in advisory committee
 
Description Ministerial Industry and Strategy Group's workshop on Maximising the potential of data assets for biomedical research and patient care
Geographic Reach National 
Policy Influence Type Gave evidence to a government review
 
Description 2013 Project grant funding
Amount $5,113,948 (AUD)
Organisation National Health and Medical Research Council 
Sector Public
Country Australia
Start  
 
Description A Mapping Service for Census Data
Amount £15,000 (GBP)
Organisation UK Data Service 
Sector Academic/University
Country United Kingdom
Start 10/2014 
End 01/2015
 
Description A profile of population-based stage at diagnosis by cancer type and geography in Wales, and one-year relative survival by stage for the main cancer types CRUK
Amount £53,905 (GBP)
Organisation Cancer Research UK 
Sector Charity/Non Profit
Country United Kingdom
Start 03/2017 
End 03/2018
 
Description A real time pharmacoepidemiological surveillance system for children with asthma (PhD Studentship)
Amount £56,382 (GBP)
Organisation Joseph Fourier University 
Sector Academic/University
Country France
Start  
 
Description A series of studies aimed at evaluating LASER (Learning about Safety by Experiencing Risk) safety education schemes
Amount £52,971 (GBP)
Organisation Royal Society for the Prevention of Accidents 
Sector Charity/Non Profit
Country United Kingdom
Start 10/2013 
End 09/2014
 
Description ACoRN - Advancing cross-centre research networks
Amount £30,000 (GBP)
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 01/2017 
End 12/2017
 
Description ASTRODEM: Using astrophysics to close the "diagnosis gap" for dementia in UK general practice
Amount £94,008 (GBP)
Funding ID 202133/Z/16/Z 
Organisation Wellcome Trust 
Sector Charity/Non Profit
Country United Kingdom
Start 07/2016 
End 06/2018
 
Description Abertawe Bro Morgannwg University Health Board - Pathway to Portfolio
Amount £9,549 (GBP)
Organisation Abertawe Bro Morgannwg University Health Board 
Sector Public
Country United Kingdom
Start 08/2014 
End 05/2016
 
Description Administrative Data Research Centre Wales
Amount £5,390,771 (GBP)
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 12/2018 
End 03/2021
 
Description Administrative Data Research Centres
Amount £7,986,463 (GBP)
Funding ID ES/L007444/1 
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 10/2013 
End 09/2018
 
Description Alcohol Misuse: Electronic Longitudinal Alcohol Study in Communities (ELAStiC)
Amount £978,102 (GBP)
Funding ID ES/L015471/1 
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 11/2014 
End 10/2017
 
Description All Wales Injury Surveillance System
Amount £64,000 (GBP)
Organisation Public Health Wales NHS Trust 
Sector Public
Country United Kingdom
Start 04/2017 
End 03/2018
 
Description All-Wales Injury Surveillance System (AWISS) : 2014-15
Amount £65,116 (GBP)
Organisation Public Health Wales NHS Trust 
Sector Public
Country United Kingdom
Start 04/2014 
End 03/2015
 
Description All-Wales Injury Surveillance System (AWISS) renewal : 2015-16
Amount £64,366 (GBP)
Organisation Public Health Wales NHS Trust 
Sector Public
Country United Kingdom
Start 04/2015 
End 03/2016
 
Description Application of machine learning to discover new multimorbidity phenotypes associated with poorer outcomes
Amount £554,943 (GBP)
Funding ID MR/S027750/1 
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 07/2019 
End 12/2021
 
Description Asthma UK Centre for Applied Research
Amount £2,000,000 (GBP)
Funding ID AUK-AC-2012-01 
Organisation Asthma UK 
Sector Charity/Non Profit
Country United Kingdom
Start 10/2013 
End 09/2018
 
Description Asthma UK Centre for Applied Research
Amount £120,000 (GBP)
Organisation Asthma UK 
Sector Charity/Non Profit
Country United Kingdom
Start 10/2014 
End 09/2017
 
Description BRIDGE-Health (BRidging Information and Data Generation for Evidence-based Health Policy and Research)
Amount € 5,833,629 (EUR)
Organisation European Commission 
Sector Public
Country European Union (EU)
Start 04/2015 
End 10/2017
 
Description CEDAR Collaboration Agreement,
Amount £94,927 (GBP)
Organisation National Institute for Health and Care Excellence (NICE) 
Sector Public
Country United Kingdom
Start 04/2014 
End 04/2017
 
Description Cardiff Regional Experimental Arthritis Treatment and Evaluation (CREATE) Centre
Amount £450,000 (GBP)
Organisation Versus Arthritis 
Sector Charity/Non Profit
Country United Kingdom
Start 07/2012 
End 06/2017
 
Description Cardiovascular Risk In Patients with Psoriatic and Rheumatoid Arthritis (CRIPPRA)
Amount £40,508 (GBP)
Funding ID W12027776 
Organisation Pfizer Ltd 
Department Pfizer Inflammation Competitive Research Programme (I-CRP)
Sector Private
Country United Kingdom
Start 09/2015 
End 08/2016
 
Description Centre for Administrative Data Research and Evaluation (CADRE)
Amount £7,986,463 (GBP)
Funding ID ES/L007444/1 
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 10/2013 
End 09/2018
 
Description Centre for the Improvement of Population Health through E-records Research (CIPHER)
Amount £4,374,292 (GBP)
Funding ID MR/K006525/1 
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 10/2012 
End 09/2017
 
Description Centre of Research Excellence in Medicines and Ageing. National Health and Medical Research Council, Centre for Research Excellence Grant
Amount £1,278,130 (GBP)
Organisation National Health and Medical Research Council 
Sector Public
Country Australia
Start  
 
Description Centres of Excellence in Public Health Research
Amount £2,935,823 (GBP)
Funding ID MR/K023233/1 
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 01/2014 
End 12/2018
 
Description Child Health Clinical Outcome Review Programme
Amount £1,400,000 (GBP)
Organisation The Health Quality Improvement Partnership (HQIP) 
Sector Charity/Non Profit
Country United Kingdom
Start  
 
Description Childhood Obesity and Neighbourhood Environments: Integrating MEDMI and SAIL
Amount £5,000 (GBP)
Organisation Medical & Environmental Data Mash-up Infrastructure 
Sector Academic/University
Country United Kingdom
Start  
 
Description Children of CALICE risk factors for alcohol-related emergency admission to hospital in children and young people
Amount £6,846 (GBP)
Organisation Wellcome Trust 
Department Wellcome Trust Institutional Strategic Support Fund
Sector Charity/Non Profit
Country United Kingdom
Start 10/2015 
End 12/2017
 
Description Cost of not treating Multiple Sclerosis with Disease modifying therapy
Amount £149,929 (GBP)
Organisation Multiple Sclerosis Society 
Sector Charity/Non Profit
Country United Kingdom
Start 01/2017 
End 12/2017
 
Description Cystic Fibrosis Epidemiological Network (CF EpiNet) (Identifying policy-relevant determinants of health inequalities in cystic fibrosis using data linkage)
Amount £140,000 (GBP)
Funding ID SRC004 
Organisation Cystic Fibrosis Trust 
Sector Charity/Non Profit
Country United Kingdom
Start  
 
Description DECIPHer: Centre for the Development and Evaluation of Complex Interventions for Public Health Improvement
Amount £2,935,823 (GBP)
Funding ID MR/K023233/1 
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 01/2014 
End 12/2018
 
Description DVLA/DfT commissioned research
Amount £100,000 (GBP)
Organisation Department of Transport 
Department DfT, DVLA and VOSA
Sector Public
Country United Kingdom
Start 04/2014 
End 03/2015
 
Description Data Linkage Australia: Development and expansion of data linkage infrastructure for Western Australia to support health research
Amount $5,113,948 (AUD)
Organisation National Health and Medical Research Council 
Sector Public
Country Australia
Start  
 
Description Data Linkage across ambulance services and acute trusts: assessing the potential for improving patient care
Amount £486,405 (GBP)
Organisation The Health Foundation 
Sector Charity/Non Profit
Country United Kingdom
Start 04/2015 
End 04/2017
 
Description Data phenotyping longitudinal multimorbidity trajectories in cardiovascular disease: a statistical machine learning approach using nationwide electronic healthcare records
Amount £301,553 (GBP)
Organisation Alan Turing Institute 
Sector Academic/University
Country United Kingdom
Start 12/2019 
End 11/2022
 
Description DataSHIELD for Accessing Sensitive HEalth Data (DASHED)
Amount £19,600 (GBP)
Funding ID ES/L007444/1 
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 10/2016 
End 09/2019
 
Description Dataflow Development
Amount £279,263 (GBP)
Organisation Government of Wales 
Sector Public
Country United Kingdom
Start 09/2017 
End 08/2018
 
Description Defying the odds': Exploring the impact of perinatal outcomes, maternal social and health outcomes and level of culturally appropriate service availability on the health of Western Australian Aboriginal infants and children. National Health and Medical Re
Amount £331,684 (GBP)
Organisation National Health and Medical Research Council 
Sector Public
Country Australia
Start  
 
Description Development and feasibility cluster randomised controlled trial evaluation of a Peer-Led physical Activity iNtervention for Adolescent girls (PLAN-A)
Amount £527,571 (GBP)
Funding ID PHR/13/90/16 
Organisation National Institute for Health Research 
Sector Public
Country United Kingdom
Start 04/2015 
End 07/2017
 
Description Did the Communities First regeneration programme improve mental health and enhance social cohesion? A natural experiment
Amount £247,937 (GBP)
Funding ID RFS-12-05 
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 10/2012 
End 09/2014
 
Description Does continuity of primary care reduce demand on emergency department presentations and hospital admissions? National Health & Medical Research Council, Project Grant
Amount £414,739 (GBP)
Organisation National Health and Medical Research Council 
Sector Public
Country Australia
Start  
 
Description Does local authority care make a difference to the lives of vulnerable children? Longitudinal analyses of a retrospective electronic cohort
Amount £153,855 (GBP)
Funding ID ES/R005478/1 
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 10/2018 
End 03/2020
 
Description Does local authority care make a difference to the lives of vulnerable children? Longitudinal analyses of a retrospective electronic cohort
Amount £153,855 (GBP)
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 10/2018 
End 03/2020
 
Description Dynamic Insights for Health and Care
Amount £57,006 (GBP)
Funding ID NE/N007255/1 
Organisation Natural Environment Research Council 
Sector Public
Country United Kingdom
Start 04/2016 
End 04/2018
 
Description Dynamic Wales Electronic Cohort for Children (D-WECC): a dynamic e-cohort to assess the impact of health and social factors on inequalities in educational outcomes and child health in Wales
Amount £249,010 (GBP)
Funding ID RFS-12-05 
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 10/2012 
End 03/2015
 
Description EMRTS - ABMU
Amount £31,701 (GBP)
Organisation Abertawe Bro Morgannwg University Health Board 
Sector Public
Country United Kingdom
Start 04/2018 
End 03/2019
 
Description ERA - Electronic Records in Ambulances to support the shift to out of hospital care: challenges, opportunities and workforce implications
Amount £380,318 (GBP)
Funding ID HS&DR/14/47/22 
Organisation National Institute for Health Research 
Sector Public
Country United Kingdom
Start 03/2016 
End 02/2018
 
Description ERA - Electronic records in ambulances
Amount £380,317 (GBP)
Funding ID 14/47/22 
Organisation National Institute for Health Research 
Sector Public
Country United Kingdom
Start 03/2016 
End 02/2018
 
Description ERA - Electronic records in ambulances
Amount £380,318 (GBP)
Funding ID HS&DR/14/47/22 
Organisation National Institute for Health Research 
Sector Public
Country United Kingdom
Start 03/2016 
End 02/2018
 
Description EVALUATION OF THE OUTCOMES OF THE FAMILY NURSE PARTNERSHIP PROGRAMME IN SCOTLAND
Amount £183,000 (GBP)
Organisation Government of Scotland 
Sector Public
Country United Kingdom
Start  
 
Description Electricity Safety Council
Amount £5,000 (GBP)
Organisation National Home Improvement Council (NHIC) 
Department Electricity Safety Council
Sector Charity/Non Profit
Country United Kingdom
Start 10/2012 
End 09/2013
 
Description Enabling data linkage in CLOSER studies: The DaLEC study (Data Linkage in Epidemiological Cohorts). CLOSER internal investigator award
Amount £140,000 (GBP)
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 01/2016 
End 12/2016
 
Description Epidemiology of rheumatoid arthritis in Western Australia.
Amount £13,060 (GBP)
Organisation Arthritis Australia 
Sector Charity/Non Profit
Country Australia
Start  
 
Description Evaluating the impact of opiate substitution treatment on drug related deaths in the population: a natural experiment using primary care, other drug treatment databases and model projections (NIHR HS&DR CPRD)
Amount £262,873 (GBP)
Funding ID HS&DR/12/136/105 
Organisation National Institute for Health Research 
Sector Public
Country United Kingdom
Start 01/2014 
End 12/2015
 
Description Evaluation of "LIVING WELL LIVING LONGER" programme
Amount £41,600 (GBP)
Organisation Aneurin Bevan University Health Board 
Sector Public
Country United Kingdom
Start 03/2016 
End 03/2019
 
Description Evaluation of an Integrated Healthcare Services Model of Care. Medibank Health Solutions Grant
Amount £179,198 (GBP)
Organisation Medibank Health Solutions 
Sector Private
Country Australia
Start  
 
Description Evaluation of the Neath Port Talbot Air Quality Alert System
Amount £20,000 (GBP)
Organisation Neath Port Talbot County Borough Council 
Sector Public
Country United Kingdom
Start 09/2011 
End 12/2014
 
Description Farr Institute: A collaborative proposal submitted by the four UK Health Informatics Research Centres
Amount £5,000,000 (GBP)
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 04/2013 
End 03/2014
 
Description Farr NLP open source software development
Amount £48,470 (GBP)
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 11/2017 
End 10/2018
 
Description Feasibility of using consumer-targeted activity monitors in collecting physical activity data within the HealthWise Wales cohort: A pragmatic pilot study
Amount £22,731 (GBP)
Organisation Wellcome Trust 
Sector Charity/Non Profit
Country United Kingdom
Start  
 
Description Green-blue space exposure changes and impact on individual-level wellbeing and mental health: a population-wide record-linked natural experiment
Amount £613,804 (GBP)
Funding ID PHR/16/07/07 
Organisation National Institute for Health Research 
Sector Public
Country United Kingdom
Start 04/2018 
End 03/2021
 
Description HDRUK
Amount £3,003,650 (GBP)
Funding ID NIWA1 
Organisation Health Data Research UK 
Sector Private
Country United Kingdom
Start 05/2018 
End 04/2023
 
Description HGT5 funding for SBRI Innovation Catalyst Programme
Amount £49,552 (GBP)
Organisation European Commission 
Department European Social Fund
Sector Public
Country European Union (EU)
Start 03/2014 
End 04/2016
 
Description HTA Primary Care Interventions Themed Call
Amount £1,691,831 (GBP)
Organisation National Institute for Health Research 
Department Health Technology Assessment Programme (HTA)
Sector Public
Country United Kingdom
Start 01/2015 
End 12/2018
 
Description Health and social consequences of child abuse and neglect: an analysis using South Australian linked data.
Amount £357,576 (GBP)
Organisation National Health and Medical Research Council 
Sector Public
Country Australia
Start  
 
Description Health outcomes of children and adults with learning difficulties
Amount £30,000 (GBP)
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 03/2016 
End 04/2017
 
Description HealthWise Wales
Amount £1,600,000 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 04/2015 
End 03/2018
 
Description Identifying the true cost of asthma in the UK: secondary analyses of national stand-alone and linked databases in England, Northern Ireland, Scotland and Wales
Amount £99,608 (GBP)
Funding ID AUK-PG-2012-178 
Organisation Asthma UK 
Sector Charity/Non Profit
Country United Kingdom
Start  
 
Description Increasing neonatal survival in low-resource settings: evidence from South Africa's Perinatal Problem Identification Program. UWA Research Collaboration Award
Amount £8,881 (GBP)
Organisation UWA Research Collaboration Award (RCA) 
Sector Academic/University
Country Australia
Start  
 
Description Information for Action (InfAct)
Amount € 151,003 (EUR)
Funding ID 776487 
Organisation European Commission 
Sector Public
Country European Union (EU)
Start 03/2018 
End 02/2021
 
Description Innovative Governance Workstream
Amount £45,000 (GBP)
Organisation University of Edinburgh 
Department Health Informatics Research Network, Edinburgh University
Sector Academic/University
Country United Kingdom
Start  
 
Description Integrated DEmentiA research environment (IDEA)
Amount £321,000 (GBP)
Funding ID MR/M024881/1 
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 04/2015 
End 03/2016
 
Description Integrating personalised genomics into risk stratification models of population screening for cancer. Cancer Council Wester Australia, Capacity Building & Collaboration Grant
Amount £626,917 (GBP)
Organisation Cancer Council Western Australia 
Sector Hospitals
Country Australia
Start  
 
Description International Digital Healthcare Conference grant
Amount £50,000 (GBP)
Organisation Welsh Assembly 
Department Welsh Government A4B programme
Sector Public
Country United Kingdom
Start 03/2014 
End 04/2016
 
Description MQ Adolescent Data Platform. MQ Transforming Lives
Amount £800,000 (GBP)
Organisation MQ Transforming Mental Health 
Sector Charity/Non Profit
Country United Kingdom
Start 01/2018 
End 12/2020
 
Description MRC
Amount £1,328,163 (GBP)
Funding ID MR/M006727/1 
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start  
 
Description MRC Dementias Platform
Amount £4,511,230 (GBP)
Funding ID MR/L015382/1 
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 04/2014 
End 03/2019
 
Description MRC Medical Bioinformatics
Amount £8,500,000 (GBP)
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start  
 
Description MRC Strategic Skills Fellowship
Amount £197,300 (GBP)
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 04/2014 
End 03/2019
 
Description MS register - Extension
Amount £181,244 (GBP)
Organisation Multiple Sclerosis Society 
Sector Charity/Non Profit
Country United Kingdom
Start 04/2018 
End 11/2018
 
Description Machine learning and text mining techniques for accurate disease phenotyping from SNOMED derived clinical texts
Amount £55,026 (GBP)
Organisation Government of Wales 
Sector Public
Country United Kingdom
Start  
 
Description Mind the Gap! An examination of the interface between primary and secondary healthcare for eating disorders
Amount £212,312 (GBP)
Funding ID HRA-1079 
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 10/2015 
End 09/2017
 
Description Mobile Operator-Related Phone & Health Data (MORPHeD) Governance: A review of the information governance implications of combining mobile phone network data with health data
Amount £45,000 (GBP)
Organisation Natural Environment Research Council 
Sector Public
Country United Kingdom
Start 04/2016 
End 09/2017
 
Description Morbidity following urinary tract infection in young children: an electronic record- linked cohort study
Amount £284,000 (GBP)
Funding ID HRA-15-1068 
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start  
 
Description Morbidity following urnary tract infection in young children: an electronic record-linked cohort study
Amount £248,000 (GBP)
Funding ID HRA-15-1068 
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start  
 
Description Multi-funder call (MRC, BHF, CRUK, ESRC, Welsh Govt, Wellcome, UKCRC) : DECIPHer
Amount £2,935,822 (GBP)
Funding ID MR/K023233/1 
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 01/2014 
End 12/2018
 
Description MytHICAL- Mental Health Informatics in Children, Adolescents and young adults How do my feelings become numbers?
Amount £708,219 (GBP)
Funding ID MC_PC_17211 
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 03/2018 
End 03/2020
 
Description NICE Cardiac Ablation Project
Amount £19,624 (GBP)
Organisation Cardiff University 
Sector Academic/University
Country United Kingdom
Start 04/2014 
End 04/2016
 
Description NIHR Doctoral Fellowship
Amount £247,752 (GBP)
Organisation National Institute for Health Research 
Sector Public
Country United Kingdom
Start  
 
Description NIHR HS&DR Programme - GPs in EDs - Evaluating Effectiveness, safety, patient experience and system implications of different models of using GPs in or alongside Emergency Departments
Amount £943,936 (GBP)
Funding ID 15/145/04 
Organisation National Institute for Health Research 
Sector Public
Country United Kingdom
Start 04/2017 
End 09/2019
 
Description NIHR Health Protection Research Unit (Evaluation) (NIHR HPRU)
Amount £3,865,761 (GBP)
Organisation National Institute for Health Research 
Sector Public
Country United Kingdom
Start 04/2014 
End 03/2019
 
Description NIHR Health Technology Assessment Programme - Care of older people who fall: evaluation of the clinical and cost effectiveness of new protocols for emergency ambulance paramedics to assess and refer to appropriate community based care
Amount £1,843,786 (GBP)
Funding ID 07/01/21 
Organisation National Institute for Health Research 
Sector Public
Country United Kingdom
Start 04/2009 
End 01/2014
 
Description NIHR Public Health Research Programme
Amount £736,755 (GBP)
Funding ID 11/3020/05 
Organisation National Institute for Health Research 
Sector Public
Country United Kingdom
Start 01/2013 
End 12/2015
 
Description NISCHR
Amount £1,600,000 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start  
 
Description NISCHR Centre for Population Health and Wellbeing Research
Amount £2,250,000 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 04/2015 
End 03/2018
 
Description NISCHR Health Call
Amount £249,010 (GBP)
Funding ID RFS-12-39 
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 10/2012 
End 09/2014
 
Description NISCHR Health Call
Amount £247,937 (GBP)
Funding ID RFS-12-05 
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 10/2012 
End 09/2014
 
Description NISCHR Health Fellowship Award 2014
Amount £258,167 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 10/2015 
End 09/2017
 
Description NISCHR RFS: Social Care Research Award
Amount £175,445 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 10/2013 
End 03/2015
 
Description NISCHR RfPB
Amount £170,000 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 04/2013 
End 03/2015
 
Description NISCHR: RFS Social Care Research Award
Amount £151,464 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 10/2013 
End 03/2015
 
Description National Ankylosing Spondylitis Society
Amount £30,000 (GBP)
Organisation National Ankylosing Spondylitis Society 
Sector Charity/Non Profit
Country United Kingdom
Start 08/2015 
End 07/2016
 
Description National Centre for Population Health and Wellbeing Research (NCPHWR)
Amount £3,356,125 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 04/2020 
End 03/2025
 
Description National Confidential Enquiry into Patient Outcome and Death
Amount £1,400,823 (GBP)
Organisation The Health Quality Improvement Partnership (HQIP) 
Sector Charity/Non Profit
Country United Kingdom
Start  
 
Description National Health and Medical Research Council (NHMRC) Project Grants 2014
Amount $738,450 (AUD)
Funding ID APP1061786 
Organisation National Health and Medical Research Council 
Sector Public
Country Australia
Start 04/2014 
End 03/2018
 
Description National Virtual Incubator at Swansea
Amount £205,000 (GBP)
Organisation Government of Wales 
Sector Public
Country United Kingdom
Start 03/2013 
End 03/2016
 
Description PREVENTING CHILD INJURIES IN WALES NEEDS ASSESSMENT
Amount £25,985 (GBP)
Organisation Public Health Wales NHS Trust 
Sector Public
Country United Kingdom
Start 09/2015 
End 03/2016
 
Description PRIME Centre Wales - Wales Centre for Primary and Emergency Care Research
Amount £2,666,903 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 04/2015 
End 03/2018
 
Description PRISMATIC - Predictive risk stratification: impact on care for people with or at risk of chronic conditions
Amount £691,101 (GBP)
Funding ID 09/1801/1054 
Organisation National Institute for Health Research 
Department Health Services and Delivery Research (HS&DR) Programme
Sector Charity/Non Profit
Country United Kingdom
Start 09/2010 
End 08/2015
 
Description Paediatric Validating Injury Burden Estimates Study (VIBES-Junior)
Amount $490,000 (AUD)
Organisation National Health and Medical Research Council 
Sector Public
Country Australia
Start  
 
Description Pattern of recovery following serious injury and implications for service delivery
Amount $738,450 (AUD)
Funding ID APP1061786 
Organisation National Health and Medical Research Council 
Sector Public
Country Australia
Start 04/2014 
End 03/2018
 
Description Pattern of recovery following serious injury and implications for service delivery
Amount $872,800 (AUD)
Organisation National Health and Medical Research Council 
Sector Public
Country Australia
Start 04/2014 
End 03/2018
 
Description PhD Studentship in applied asthma research : A validation of the health and social costs of asthma using questionnaire data
Amount £60,000 (GBP)
Organisation Asthma UK 
Sector Charity/Non Profit
Country United Kingdom
Start  
 
Description Pharmacoepidemiological surveillance for children with chronic conditions using data mining
Amount £15,000 (GBP)
Organisation Farr Institute of Health Informatics Research 
Sector Academic/University
Country United Kingdom
Start 10/2016 
End 09/2017
 
Description Professor Lyons, Swansea University, Health Attainment of Pupils in Primary Education Network (HAPPEN), +3 (Fellowship) - start date Oct16 (3 years) (Ronan)
Amount £57,501 (GBP)
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 10/2016 
End 09/2019
 
Description Provision of healthcare data and support to the UK Biobank cohor
Amount £429,544 (GBP)
Organisation UK Biobank 
Sector Charity/Non Profit
Country United Kingdom
Start 01/2012 
End 12/2015
 
Description RCT of ACTIVE - Randomised Control Trial of Active Children Through Individual Vouchers Evaluation
Amount £299,904 (GBP)
Funding ID PG/16/16/32057 
Organisation British Heart Foundation (BHF) 
Sector Charity/Non Profit
Country United Kingdom
Start  
 
Description Reducing Arthritis Fatigue - clinical teams using cognitive behavioural approaches (RAFT)
Amount £448,024 (GBP)
Funding ID HTA/11/112/01 
Organisation National Institute for Health Research 
Department Health Technology Assessment Programme (HTA)
Sector Public
Country United Kingdom
Start 11/2013 
End 07/2017
 
Description Research grant, Innovation "Air pollution, pollen, asthma and hayfever and their interactive effect on cognitive development: an environment and health data linkage feasibility study"
Amount £109,851 (GBP)
Funding ID NE/P010660/1 
Organisation Natural Environment Research Council 
Sector Public
Country United Kingdom
Start 01/2017 
End 12/2017
 
Description Review of evidence relating to harms resulting from security breaches or infringement of privacy involving sensitive personal biomedical and health data (including any knock on effects on beneficial data sharing). (Nuffield Evidence Review)
Amount £8,000 (GBP)
Organisation Nuffield Council on Bioethics 
Sector Charity/Non Profit
Country United Kingdom
Start 03/2014 
End 08/2015
 
Description Sail Databank extension
Amount £1,373,112 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 04/2018 
End 03/2020
 
Description School Health Action Research Partnership and Network (SHARPEN): scoping and feasibility study
Amount £500,755 (GBP)
Funding ID MR/L002787/1 
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 10/2013 
End 04/2015
 
Description Secure Anonymised Information Linkage (SAIL) Databank
Amount £2,059,668 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 04/2015 
End 03/2018
 
Description Secure Anonymised Information Linkage Databank (SAIL).
Amount £4,545,558 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 04/2020 
End 03/2025
 
Description Self Harm electronic Portal (SHeP)
Amount £66,000 (GBP)
Funding ID SCS-14-11 
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start  
 
Description Senior Faculty Award
Amount £15,000 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 04/2018 
End 03/2019
 
Description Senior Faculty Award
Amount £15,000 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 04/2017 
End 03/2018
 
Description Senior Faculty Award (2013/14)
Amount £15,000 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 04/2013 
End 03/2014
 
Description Senior Faculty Award (2014/15)
Amount £15,000 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 04/2014 
End 03/2015
 
Description Senior Faculty Award (2015/16)
Amount £15,000 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 04/2015 
End 03/2016
 
Description Senior Faculty Award (2016-17)
Amount £15,000 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 04/2016 
End 03/2017
 
Description Support to Public Health Wales' Specialist Training Programme
Amount £54,212 (GBP)
Organisation Public Health Wales NHS Trust 
Sector Public
Country United Kingdom
Start 04/2015 
End 03/2017
 
Description Supporting people
Amount £268,000 (GBP)
Organisation Government of Wales 
Sector Public
Country United Kingdom
Start 04/2016 
End 03/2020
 
Description Swansea University Staff Bursary
Amount £9,300 (GBP)
Funding ID 451864 
Organisation Swansea University 
Department College of Medicine
Sector Academic/University
Country United Kingdom
Start 07/2014 
End 09/2021
 
Description The Airwave Health Monitoring Study (AHMS). An Occupational Cohort Study of the British Police Forces
Amount £1,941,097 (GBP)
Funding ID MR/R023484/1 
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 05/2018 
End 04/2023
 
Description The CHERISH_DE Centre
Amount £3,017,488 (GBP)
Organisation Engineering and Physical Sciences Research Council (EPSRC) 
Sector Public
Country United Kingdom
Start 12/2015 
End 12/2020
 
Description The National Centre for Mental Health (NCMH)
Amount £3,833,764 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 04/2015 
End 03/2018
 
Description The UK Birth Cohort Study of environment, development, health and wellbeing: interim contract
Amount £12,248 (GBP)
Funding ID ES/J007501/1 
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 10/2011 
End 09/2012
 
Description The UK Multiple Sclerosis Register
Amount £285,212 (GBP)
Organisation Multiple Sclerosis Society 
Sector Charity/Non Profit
Country United Kingdom
Start 04/2013 
End 03/2014
 
Description The UK Multiple Sclerosis Register
Amount £755,611 (GBP)
Organisation Multiple Sclerosis Society 
Sector Charity/Non Profit
Country United Kingdom
Start 04/2014 
End 04/2017
 
Description The Welsh Study of Mothers and Babies: Follow-up of a population-based cohort of children aged 4-6 years
Amount £24,000 (GBP)
Organisation Wellcome Trust 
Department Wellcome Trust Institutional Strategic Support Fund
Sector Charity/Non Profit
Country United Kingdom
Start  
 
Description The cost of ankylosing spondylitis using patient reported outcomes and routine anonymised linked data
Amount £44,234 (GBP)
Organisation Pfizer Ltd 
Sector Private
Country United Kingdom
Start 08/2012 
End 07/2013
 
Description The cost of ankylosing spondylitis using patient reported outcomes and routine anonymised linked data
Amount £44,234 (GBP)
Organisation Pfizer Ltd 
Department Pfizer Inflammation Competitive Research Programme (I-CRP)
Sector Private
Country United Kingdom
Start 08/2013 
End 08/2014
 
Description The effectiveness and cost effectiveness of an employer-led intervention to increase walking during the daily commute
Amount £972,682 (GBP)
Funding ID PHR/13/117/01 
Organisation National Institute for Health Research 
Department Public Health Research (PHR) Programme
Sector Charity/Non Profit
Country United Kingdom
Start  
 
Description The epidemiology, healthcare and societal cost of Melanoma in Wales: Analyses of standalone and linked national databases
Amount £7,706 (GBP)
Funding ID TIG2019-08 
Organisation Tenovus 
Sector Charity/Non Profit
Country United Kingdom
Start 04/2019 
End 03/2021
 
Description The health impacts of structural energy performance investments in Wales: an evaluation of the Arbed Programme
Amount £736,755 (GBP)
Funding ID 11/3020/05 
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 01/2013 
End 12/2015
 
Description The role of SL-6R Mediated Trans-signalling in Cardiovascular Morbidity
Amount £100,000 (GBP)
Organisation F. Hoffmann-La Roche AG 
Sector Private
Country Global
Start  
 
Description Transient Ischaemic Attack 999 Emergency Referral (TIER): feasibility trial
Amount £238,139 (GBP)
Funding ID RfPPB-1053 
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 10/2015 
End 02/2016
 
Description UK MEDical BIOinformatics partnership - aggregation, integration, visualisation and analysis of large, complex data (UK MED-BIO).
Amount £5,941,410 (GBP)
Funding ID MR/L01632X/1 
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 06/2014 
End 05/2019
 
Description UK MS Register
Amount £897,833 (GBP)
Organisation Multiple Sclerosis Society 
Sector Charity/Non Profit
Country United Kingdom
Start 04/2014 
End 03/2017
 
Description UK MS register
Amount £309,267 (GBP)
Organisation Multiple Sclerosis Society 
Sector Charity/Non Profit
Country United Kingdom
Start 04/2017 
End 05/2018
 
Description UKRI Innovation / Rutherford Fund Fellowships at HDR UK
Amount £560,000 (GBP)
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 02/2018 
End 02/2021
 
Description Understanding healthcare utilisation of responders and non-responders to the bowel screening programme in Wales before and after invitation to screening in order to improve early detection either through screening or opportunistic testing
Amount £103,603 (GBP)
Funding ID C42767/A13690 
Organisation Cancer Research UK 
Sector Charity/Non Profit
Country United Kingdom
Start 06/2012 
End 05/2014
 
Description Unravelling polypharmacy: Mining the complex interaction patterns between medications for enhanced patient care
Amount £56,000 (GBP)
Organisation Swansea University 
Sector Academic/University
Country United Kingdom
Start  
 
Description Using electronic linkage analysis to inform the development of an improved care pathway for psychiatric and self-harm emergencies currently transferred by ambulance to Emergency Departments
Amount £30,000 (GBP)
Funding ID HICG/1/27 
Organisation Chief Fire Officers Associaton (CFOA) 
Sector Charity/Non Profit
Country United Kingdom
Start 05/2015 
End 02/2016
 
Description Using health record linkage in the Millennium Cohort Study to investigate childhood obesity, asthma and infections
Amount £313,934 (GBP)
Funding ID 087389/B/08/Z 
Organisation Wellcome Trust 
Sector Charity/Non Profit
Country United Kingdom
Start 04/2015 
End 03/2017
 
Description WCRC
Amount £4,500,000 (GBP)
Organisation NHS England 
Sector Public
Country United Kingdom
Start 04/2015 
End 03/2018
 
Description Wales Cancer Bank. Subcontract to Cardiff University for information system development.
Amount £502,000 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start  
 
Description Wales Centre for Primary and Emergency Care Research - PRIME Centre Wales
Amount £2,700,000 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 04/2015 
End 03/2018
 
Description Wales Kidney Research Unit
Amount £121,644 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 04/2018 
End 03/2020
 
Description Wales Kidney Research Unit (WKRU)
Amount £212,313 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 04/2015 
End 03/2018
 
Description Wales/NI substantive site. HDR UK
Amount £3,003,650 (GBP)
Organisation Health Data Research UK 
Sector Private
Country United Kingdom
Start 05/2018 
End 04/2023
 
Description Web-Based recruitment to cohort studies
Amount £93,000 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start  
 
Description Wellcome Trust Strategic Award
Amount £7,756,000 (GBP)
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 04/2014 
End 03/2019
 
Description Welsh Government Social Policy Research Funding: Fuel Poverty
Amount £190,000 (GBP)
Organisation Government of Wales 
Sector Public
Country United Kingdom
Start 03/2014 
End 01/2018
 
Description Welsh Government Social Policy Research Funding: Supporting People (Feasibility Study)
Amount £60,000 (GBP)
Organisation Government of Wales 
Sector Public
Country United Kingdom
Start 03/2015 
End 05/2016
 
Description Welsh SBRI Innovation Catalyst Programme
Amount £785,010 (GBP)
Organisation Government of Wales 
Sector Public
Country United Kingdom
Start 03/2014 
End 04/2016
 
Description Whole Genome Sequencing for Health and Wealth: A bid to establish the Wales Genomic Medicine Centre to contribute to the UK 100,000 Genomes Project and Strengthen Genomics in Wales
Amount £2,351,522 (GBP)
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 12/2016 
End 11/2018
 
Description Wolfson Foundation
Amount £10,000,000 (GBP)
Organisation The Wolfson Foundation 
Sector Charity/Non Profit
Country United Kingdom
Start 09/2019 
 
Description World Universities Network Research Development Fund - Workshop on sharing sensitive data
Amount £25,028 (GBP)
Organisation Worldwide Universities Network 
Sector Academic/University
Country United Kingdom
Start 08/2016 
End 08/2017
 
Title DPUK Data Portal 
Description The DPUK Data Portal has been relaunched to include a seamless transition from the DPUK main welcome site into the research infrastructure. The Portal, hosted by Swansea University, now includes openly available metadata on the DPUK cohorts, as well as information on the various parts of the infrastructure, which include: Portal analysis environment powered by virtual desktop infrastructure, imaging platform powered by XNAT, genetic platform created by Digital Health Labs, data linkage possibilities using world-leading matching technology, and a new and easy-to-use application form for researchers to apply for access to data, based on categorised dementia-specific data ontologies. The Portal is now supporting data access applications with dedicated resource to manage this process, and data management based on consultation with other data consortia and the cohorts themselves is underway using novel data management infrastructure (research data appliance based at Swansea University), enabling governance to remain entirely with the data provider and data access permissions to be managed by a central facility. 
Type Of Material Improvements to research infrastructure 
Year Produced 2017 
Provided To Others? Yes  
Impact The relaunch of the Portal has seen a surge in scientific collaboration in DPUK - for the period November 2017-January 2018, there are 12 live studies on the Portal, all using multiple cohorts and all cross-institution, including internationally-led studies from Maastricht University and the University of Hong Kong. These studies have primarily phenotypic data as their main modality, however we are also seeing the combination of phenotypic, genotypic and imaging data in studies, thus showing the power of a central system for accessing and analysing data from previously disparate sources. Genetics and imaging work packages are also contributing to the studies being supported by DPUK, and the Portal is making data available to specialists in these areas in order for them to derive services for the epidemiological community to make use of data that was previously unobtainable, either due to access difficulties or specialist intervention being necessary. 
URL https://portal.dementiasplatform.uk/
 
Title DPUK Data Portal Datathon Virtual Desktop 
Description Bespoke virtual desktop infrastructure for DPUK Datathons - comprising of dedicated 32GB RAM/4 CPU machines supporting up to 60 concurrent users. Pre-loaded with software such as Stata 16, SPSS, SAS, R, Python (Anaconda), PyCharm, Spyder, Jupyter Notebook, Eclipse, SQL Server Management Studio, Matlab, and Office. 
Type Of Material Improvements to research infrastructure 
Year Produced 2018 
Provided To Others? Yes  
Impact The dedicated Datathon desktop has allowed us to run 4 DPUK Datathon events across the UK, which have had an international audience of over 150 researchers cumulatively. 
URL https://portal.dementiasplatform.uk/
 
Title SAIL Dementia eCohort (SAILDeC) 
Description DPUK has funded the creation of the SAIL (Secure Anonymised Information Linkage) Databank Dementia eCohort, known as SAILDeC. A team from the University of Edinburgh, led by Dr Tim Wilkinson and Dr Christian Schnier, have developed a research cohort from routine healthcare records found in the SAIL Databank, a research databank containing routine healthcare and adminstrative records for the Welsh populace. The eCohort is derived from 1.2 million individuals who met the inclusion criteria, and of those, ~130,000 dementia cases throughout the data coverage have been identified. This represents the first UK research-ready disease cohort derived solely from routine healthcare records, which can be analysed in its own right or combined with other rich sources of cohort and routine data. It is thought that the technical components of creating the cohort, in terms of coding and initial analysis, could be the lead for future eCohort generation in other disease fields. These eCohorts could then be analysed within their specific area of science, or combined for a rich multi-morbidity database. 
Type Of Material Database/Collection of data 
Year Produced 2019 
Provided To Others? Yes  
Impact This is the first disease-specific eCohort of patients to be created from ~20 years of routine healthcare data. It provides a rich dementia-specific resource for episodic progression of patients with initial MCI through to mortality, and every stage in between. The process of creating the cohort can inform the creation of such cohorts from the SAIL source and other routine clinical data sources in many disease areas. 
 
Title The Housing Regeneration and Health Study dataset 
Description Data held within the SAIL gateway to analyse an intervention on housing and health 
Type Of Material Database/Collection of data 
Year Produced 2016 
Provided To Others? Yes  
Impact Dataset allowed us to evaluate a regional housing intervention at the individual level to produce exciting results about the impact on emergency hospital admissions. Dataset is available to use through the SAIL gateway. We are attempting to secure funding for further analyses through the ESRC Doctoral Training Partnership awards 
 
Title Dementias Platform UK Data Portal 
Description The DPUK Data Portal is a platform to allow the ingress of data from cohort studies and real-world evidence data from across the UK and internationally. The Portal allows access, subject to data provider approval, to said data via an integrated application system, and provides an analysis environment on remote desktop to allow distributed team science from anywhere in the world. The Portal environment comprises of front end user tools, a virtual desktop infrastructure for data analysis, a security system for permissions management and data upload, and an underlying architecture of substantial storage and applications to support the data needs. 
Type Of Technology Webtool/Application 
Year Produced 2017 
Impact To date (early 2019) we have had ~80 applications for cohort data via our new processes. Of these, 50 have been approved and at least 25 studies are underway with analysis of their approved cohort data. All of these studies are contributing to the dementia research community with a mixture of traditional epidemiological hypotheses, methodology validation, complex machine learning, and statistical modelling all being achieved in the Portal. Website: https://portal.dementiasplatform.uk 
 
Title UKSeRP (UK Secure eResearch Platform) 
Description UKSeRP is a secure data management and analysis platform created through MRC's capital investment in the Farr Institute. It is an integrated suite of hardware and software tools that enables uses to upload and remotely manage their data and make the data available for analysis to distributed research teams. UKSeRP instances have been created for the MRC Dementias Platform UK, UK Biobank outcome adjudication group, ALSPAC, linked Millennium Cohort Data and the Multiple Sclerosis Register. 
Type Of Technology Webtool/Application 
Year Produced 2014 
Impact UKSeRP supports the development and implementation of distributed multi-disciplinary UK Team Science in providing access to multi-modal multi-cohort data. 
 
Description Secure Anonymised Information Linkage (SAIL) and Wales Electronic Cohort for Children (WECC) - 22/4/16 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Secure Anonymised Information Linkage (SAIL) and Wales Electronic Cohort for Children (WECC). National Centre for Population Health and Wellbeing Research, Newport
Year(s) Of Engagement Activity 2016
 
Description Understanding and improving complex interventions through linked data - The Informatics for Health Conference, Manchester 2017 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Presentation at the Informatics for Health conference in Manchester 2017 to an audience of about 60 including professional practitioners, third party organisations. Following the presentation there were many questions and the audience had increased in the topic area.
Year(s) Of Engagement Activity 2018
URL http://informaticsforhealth.org/
 
Description "Data-driven drug safety signal detection methods in pharmacovigilance using electronic primary care records: A population based study, 2016 International Population Data Linkage Conference" 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Raised the awareness of adverse drug issues and inspired the application of data-driven approach to this new domain
Year(s) Of Engagement Activity 2016
 
Description "Development of data-driven framework for automatically identifying patient cohorts from linked electronic health records, 2016 International Population Data Linkage Conference" 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Inspired the cross-disciplinary research across computer science, epidemiology, public health, health informatics
Year(s) Of Engagement Activity 2016
 
Description "Presentation entitled Data Linking Progress and Plans at Welsh Statistical Liaison Committee" 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Around 20 attendees; further discussions re use of data linking across public sector in Wales - Sarah Lowe
Year(s) Of Engagement Activity 2014
 
Description "Presentation entitled The WG Programme to Maximise the Use of Existing Data Data Linkage Demonstration Projects at the WISERD Conference" - June 2014 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact "Presentation entitled The WG Programme to Maximise the Use of Existing Data Data Linkage Demonstration Projects
at the WISERD Conference" - Sarah Lowe
Year(s) Of Engagement Activity 2014
 
Description (2015.04.17) - Working Group: ABMU and Swansea University SBRI Project Board Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Intended purpose: To make decisions

Outcomes: New direction for important new initiaitve in Wales
Year(s) Of Engagement Activity 2015
 
Description 03/07/17 Data Science at Swansea. Meeting with International Consortium for Health Outcome Measurement (ICHOM), Swansea 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Meeting with International Consortium for Health Outcome Measurement (ICHOM), Swansea
Year(s) Of Engagement Activity 2017
 
Description 07/03/17 Evaluation of natural experiments of social & environmental interventions with potential impacts on population risk of diabetes and cardio-metabolic disease: the challenge of data availability 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact National Network of Public Health Institutes, Atlanta, US
Year(s) Of Engagement Activity 2017
 
Description 10/08/17 Injury surveillance in Europe and the international context. Presentation to Royal Society for the Prevention of Accidents (RoSPA)., Public Health England and Royal Society of Emergency Medicine meeting 'Delivering the benefits of the ECDC', Birmingham 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Public Health England and Royal Society of Emergency Medicine meeting 'Delivering the benefits of the ECDC', Birmingham
Year(s) Of Engagement Activity 2017
 
Description 11/05/17 Data Science Developments: options and opportunities for UK health data science. Presentation to All-Wales Critical Care and Trauma Network, Cardiff 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Presentation to All-Wales Critical Care and Trauma Network, Cardiff
Year(s) Of Engagement Activity 2017
 
Description 12-14/9/18 - IPDLN conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Linking Data - Improving Lives, a forum for the presentation and discussion of research and innovation in the area of Linked Population Data Science and Policy Impact.
Year(s) Of Engagement Activity 2018
 
Description 15/06/17 Health informatics research - a view from Wales. OSCHR Health Informatics Group, London 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact OSCHR Health Informatics Group, London
Year(s) Of Engagement Activity 2017
 
Description 16-02-17 - HealthWise Wales Steering Group (DVF) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Board meeting - Steering national strategy for new research infrastucture
Year(s) Of Engagement Activity 2016
 
Description 16/05/17 Big data approaches to population health, Cardiff University Population Health Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Cardiff University Population Health Conference
Year(s) Of Engagement Activity 2017
 
Description 16/08/17 SAIL. Presentation to British medical association and GPC Wales Committee, Cardiff 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Cardiff
Year(s) Of Engagement Activity 2017
 
Description 17/01/17 Data linkage: an essential tool for efficient observational and interventional research and service delivery 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Presentation for visit of Graham Spittle (MRC), Swansea
Year(s) Of Engagement Activity 2017
 
Description 19/06/17 Linkage of routine data, use of the SAIL database and its application in orthopaedic research, Trauma and Orthopaedic Department Cardiff and Vale NHS Trust, Cardiff 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Trauma and Orthopaedic Department Cardiff and Vale NHS Trust
Year(s) Of Engagement Activity 2017
 
Description 19/07/17 Harnessing Big Data to improve Respiratory Health, Cardiff, 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Asthma UK and British Lung Foundation
Year(s) Of Engagement Activity 2017
 
Description 19/07/17 Round table discussion with NHS, academia, and funders (Asthma UK and British Lung Foundation) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Asthma UK and British Lung Foundation
Year(s) Of Engagement Activity 2017
 
Description 2-3/7/18 - International Workshop to develop a Burn Prevention Toolkit for resource-poor settings 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact As part of our comprehensive approach to improving burn care and prevention in resource poor setting, Interburns will be developing a Burn Prevention & Implementation Toolkit. The purpose of this Toolkit is to provide an evidence-based resource on the different tools available for primary prevention of burn injuries at the community level, which can be adapted to the specific needs and context of a country, region or individual community. In order to ensure this Toolkit can be effective in a wide range of settings internationally, the development workshop will bring together a wide range of professionals with relevant expertise from across the world.
Ronan invited to participate in the development workshop for this programme, which is hosted in Swansea over 2 days on 2nd & 3rd July 2018, by the Centre for Global Burn Injury Policy and Research (CGBIPR) at Swansea University in the UK.
Year(s) Of Engagement Activity 2018
 
Description 2016-05-24 - Launch of the Irish Research Board' national data strategy (DVF) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Outlining Swansea's contribution to the Irish national strategy
Year(s) Of Engagement Activity 2016
URL http://www.hrb.ie/uploads/tx_hrbpublications/Proposals_for_an_Enabling_Data_Environment_for_Health_a...
 
Description 2016-06-07 - HealthWise Wales Scientific Steering Group (DVF) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Steering high profile project with large public engagement component
Year(s) Of Engagement Activity 2016
URL https://www.healthwisewales.gov.wales/landingPage.php
 
Description 2016-06-28 - Presentation to DVLA new CTO and colleagues (DVF) 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Better understanding of Swansea's data linkage facilities
Year(s) Of Engagement Activity 2016
 
Description 2016.01.14 Academy or Medical Sciences working group - 2016.01.14 (DVF) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Working up high impact publication, shaping data collection mechanisms
Year(s) Of Engagement Activity 2016
URL https://acmedsci.ac.uk/file-download/41399-5807581429f81.pdf
 
Description 2016.01.16 - HealthWise Wales Biosampling Workshop (DVF) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Discussion of new approaches to sample collection for Health Wise Wales program
Year(s) Of Engagement Activity 2016
 
Description 2016.01.18 - Strategy meeting with Janssen Pharmaceuticals (DVF) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Establishing a working relationship with the company for joint research
Year(s) Of Engagement Activity 2016
 
Description 2016.01.19 - Health and Care Research Wales Board (DVF) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact National health R&D strategic development
Year(s) Of Engagement Activity 2016
 
Description 2016.01.21 CHERISH-DE National Center Launch (DVF) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Launch event
Year(s) Of Engagement Activity 2016
 
Description 2016.02.02 - Presentation to NHS Digital's Data Access Advisory Group (DVF) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Overview of safe data linkage and sharing opportunities
Year(s) Of Engagement Activity 2016
 
Description 2016.02.11 - Meeting with GE Healthcare (DVF) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Supporters
Results and Impact Discussions leading to a research collaboration
Year(s) Of Engagement Activity 2016
 
Description 2016.02.29 - Novartis Steering Group Meeting (DVF) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Establishing a working relationship with the company for joint research
Year(s) Of Engagement Activity 2016
 
Description 2016.02.29 - Precision Medicine Catapult Meeting (DVF) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Building the case for a catapult node in Wales
Year(s) Of Engagement Activity 2016
 
Description 2016.03.01 - ADRC Wales seminar (DVF) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Expert Seminar
Year(s) Of Engagement Activity 2016
 
Description 2016.03.22 - Cabinet Office Data Sharing workshop (DVF) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Resulted in important sections being included in the Digital Economy bill
Year(s) Of Engagement Activity 2016
 
Description 2016.04.13 - Conference on ME / Chronic Fatigue 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Debate about how to bring together a definitive research study to better understand ME/CFS
Year(s) Of Engagement Activity 2016
 
Description 2016.04.18 - Dynamic Insights discussion with 02 - Major mobile operator (DVF) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Workshop to agree a programme of joint research
Year(s) Of Engagement Activity 2016
 
Description 2016.04.27 - People Verus Data debate (DVF) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Industry/Business
Results and Impact Debate on personal privacy and whether it is still possible in the digital age
Year(s) Of Engagement Activity 2016
 
Description 2016.05.09 - Open data in Healthcare conference (SCATA) (DVF) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Presentation to delegates on making valuable personal based data safe for research use
Year(s) Of Engagement Activity 2016
 
Description 2016.05.10 - Introduction to ADRC W at Welsh Government 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Sharing the benefits of ADRN with a wide selection of policymakers in Welsh Government
Year(s) Of Engagement Activity 2016
 
Description 2016.05.11 - Health and Care Research Wales Board meeting (DVF) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Formulating research strategy for Wales
Year(s) Of Engagement Activity 2016
 
Description 2016.06.09 - EDARA Study Steering Committee 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Steering important study on changing alcohol care
Year(s) Of Engagement Activity 2016
 
Description 2016.06.13 - MediWales Directors meeting (DVF) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Industry/Business
Results and Impact Steering national strategy of this membership organisation of life science businesses
Year(s) Of Engagement Activity 2016
 
Description 2016.06.13 - International Administrative Data Meeting (DVF) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Establishing a relationship with representatives of a major US initiative
Year(s) Of Engagement Activity 2016
 
Description 2016.06.14 - Meeting with US colleagues setting up a national data sharing initiative (DVF) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Establishing a relationship with the representative of a major US initiative
Year(s) Of Engagement Activity 2016
 
Description 2016.06.21 - Strategic discussions with the DVLA (DVF) 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Describing trustworthy data safe haven approaches at Swansea
Year(s) Of Engagement Activity 2016
 
Description 2016.06.24 - Meeting with GE Healthcare (DVF) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Building a strategic relationship with an international company
Year(s) Of Engagement Activity 2016
 
Description 2016.06.27 - Presentation of MS register to patient audiences (DVF) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Patients, carers and/or patient groups
Results and Impact Heighten awareness of opportunity to become involved in sharing data for MS research
Year(s) Of Engagement Activity 2016
 
Description 2016.06.29 - Asthma charity and Welsh Government lobbying event (DVF) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Discussions and presentations of Asthma and asthma research strategy
Year(s) Of Engagement Activity 2016
 
Description 2016.07.13 - Visit of US colleagues interested in national systems for data sharing (DVF) 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Increased understanding of Swansea's capabilities and systems
Year(s) Of Engagement Activity 2016
 
Description 2016.07.21 - Visit of national delegation from Ireland (DVF) 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Detailed fact finding mission from Irish government organisations
Year(s) Of Engagement Activity 2016
 
Description 2016.07.26 - The Royal Society and the British Academy seminar on connecting debates on the governance of data and its uses (DVF) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Thought provoking event about the possible futures for personal data in the UK
Year(s) Of Engagement Activity 2016
 
Description 2016.08.10 - National taskforce looking at NHS data secondary use strategy / policy (DVF) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Development of policy recommendations for Wales on data sharing
Year(s) Of Engagement Activity 2016
 
Description 2016.08.28 - Running and chairing of international conference on data linkage (DVF) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact 600+ researchers from across the world, coming to hear about advances in safe and effective data sharing
Year(s) Of Engagement Activity 2016
 
Description 2016.08.30 - Public Engagement activity (Tenovus) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Third sector organisations
Results and Impact Tenovus networking meeting
Year(s) Of Engagement Activity 2016
 
Description 2016.09.05 - Public Engagement activity (Age Cymru) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Third sector organisations
Results and Impact Age Cymru Swansea Bay networking meeting
Year(s) Of Engagement Activity 2016
 
Description 2016.09.06 - Public Engagement activity (Swansea County Council) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Policymakers/politicians
Results and Impact Swansea County Council - Local Area Coordination team networking meeting
Year(s) Of Engagement Activity 2016
 
Description 2016.09.06 - Visit of New Zealand's national data sharing infrastucture (DVF) 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Recognition on Swansea's contribution to the formulation of New Zealand's national architecture and systems for data linkage and sharing
Year(s) Of Engagement Activity 2016
 
Description 2016.09.13 - Presentation of MS register to patient audiences (DVF) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Patients, carers and/or patient groups
Results and Impact Heighten awareness of opportunity to become involved in sharing data for MS research
Year(s) Of Engagement Activity 2016
 
Description 2016.09.13 - Public Engagement activity (SCVS) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Third sector organisations
Results and Impact SCVS networking meeting
Year(s) Of Engagement Activity 2016
 
Description 2016.09.14 - Public Engagement activity (Involving People) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other audiences
Results and Impact Involving People Network networking meeting
Year(s) Of Engagement Activity 2016
 
Description 2016.09.14 - Public Engagement activity (Technocamps) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Technocamps networking meeting
Year(s) Of Engagement Activity 2016
 
Description 2016.09.15 - Follow up meeting on opportunites for data-driven asthma research (DVF) 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Devising opportunities to use data to drive insights into asthma in the UK
Year(s) Of Engagement Activity 2016
 
Description 2016.09.15 - Public Engagement activity (Carmarthenshire 50+) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact Carmarthenshire 50+ Networking Event
Year(s) Of Engagement Activity 2016
 
Description 2016.09.15 - Public Engagement activity (Dementia Friends) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Third sector organisations
Results and Impact Dementia Friends Networking Meeting
Year(s) Of Engagement Activity 2016
 
Description 2016.09.19 - Public Engagement activity (PHW Carmarthenshire and Pembrokeshire) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Public Health Wales Carmarthenshire and Pembrokeshire networking meeting
Year(s) Of Engagement Activity 2016
 
Description 2016.09.20 - Public Engagement activity (CETMA) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Third sector organisations
Results and Impact CETMA Llanelli
Year(s) Of Engagement Activity 2016
 
Description 2016.09.21 - Public Engagement activity (Llanelli Town Council) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Policymakers/politicians
Results and Impact Llanelli Town Council
Year(s) Of Engagement Activity 2016
 
Description 2016.09.22 - CHERISH Imaginarium (DVF) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Industry/Business
Results and Impact Running a workshop to surface exciting new research and innovation project ideas
Year(s) Of Engagement Activity 2016
 
Description 2016.09.23 - National taskforce looking at NHS data secondary use strategy / policy (DVF) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Development of policy recommendations for Wales on data sharing
Year(s) Of Engagement Activity 2016
 
Description 2016.09.23 - Public Engagement activity (Carmarthenshire Communities First) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Third sector organisations
Results and Impact Carmarthenshire Communities First
Year(s) Of Engagement Activity 2016
 
Description 2016.09.26 - Strategic discussions about cooperation with new ONS Data Science campus (DVF) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Open discussion about opportunities
Year(s) Of Engagement Activity 2016
 
Description 2016.09.28 - Conference on ME / Chronic Fatigue (DVF) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Debate about how to bring together a definitive research study to better understand ME/CFS
Year(s) Of Engagement Activity 2016
 
Description 2016.09.29 - Public Engagement activity (Age Cymru Sir Gar) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Third sector organisations
Results and Impact Age Cymru Sir Gar
Year(s) Of Engagement Activity 2016
 
Description 2016.10.02 - ICES Scientific Advisory Committee - International steering group of major Canadian data research centre (DVF) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Advising on strategy
Year(s) Of Engagement Activity 2016
 
Description 2016.10.14 - Public Engagement activity (Afan Communities First) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Third sector organisations
Results and Impact Afan Communities First
Year(s) Of Engagement Activity 2016
 
Description 2016.10.19 - Public Engagement activity (Carmarthenshire 3rd sector Brokers) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Third sector organisations
Results and Impact Carmarthenshire 3rd Sector Brokers
Year(s) Of Engagement Activity 2016
 
Description 2016.11.04 - National taskforce looking at NHS data secondary use strategy / policy (DVF) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Development of policy recommendations for Wales on data sharing
Year(s) Of Engagement Activity 2016
 
Description 2016.11.04 - Public Engagement activity (Digital Communities) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Third sector organisations
Results and Impact Carmarthenshire County Council - Digital Communities
Year(s) Of Engagement Activity 2016
 
Description 2016.11.11 - Early discussions about collaborative opportunites with industry leader in data platforms (DVF) 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Industry/Business
Results and Impact Scoping collaborative opportunities
Year(s) Of Engagement Activity 2016
 
Description 2016.11.11 - Public Engagement activity 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Third sector organisations
Results and Impact SPICE - Time Banking Network
Year(s) Of Engagement Activity 2016
 
Description 2016.11.23 - Public-Academic Research Colloquium - International conference in the US on data sharing of US public data for social research (DVF) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Highlighted UK's strengths in platforms and approaches
Year(s) Of Engagement Activity 2016
 
Description 2016.11.24 - Public Engagement activity 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Third sector organisations
Results and Impact Ataxia and me
Year(s) Of Engagement Activity 2016
 
Description 2016.11.25 - Public Engagement activity (ACTIVE project) 
Form Of Engagement Activity A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Schools
Results and Impact Filming of participants of the ACTIVE project
Year(s) Of Engagement Activity 2016
 
Description 2016.11.29 - Public Engagement activity 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Engage conference
Year(s) Of Engagement Activity 2016
 
Description 2016.12.06 - Chairing a panel session of digital healthcare for a major life sciences conference (DVF) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Industry/Business
Results and Impact Heightened understand on the future direction of digital health and healthcare
Year(s) Of Engagement Activity 2016
 
Description 2016.12.09 - Public Engagement activity (ACTIVE project) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Schools
Results and Impact ACTIVE project peer mentoring day
Year(s) Of Engagement Activity 2016
 
Description 2016.12.12 - Telephone meeting as part of a recommisioning expert panel for Arthritis Research UK (DVF) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Evaluating the performance of a UK research infrastructure against best practice in the field
Year(s) Of Engagement Activity 2016
 
Description 2017.01.05 - Health of the public in 2040: implementation workshop (DVF) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Wide range of governmental, research and charitable bodies working to move froward the recommendations of the report
Year(s) Of Engagement Activity 2016
URL https://acmedsci.ac.uk/file-download/41399-5807581429f81.pdf
 
Description 2017.01.06 - Public Engagement activity (ACTIVE project) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Schools
Results and Impact ACTIVE project media launch
Year(s) Of Engagement Activity 2017
 
Description 2017.01.11 - Data Journeys in Biomedicine: Research Translation and Infrastructure Management workshop (DVF) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Identifying best practice in safely sharing data from and for research
Year(s) Of Engagement Activity 2016
URL http://www.datastudies.eu/data-journeys-in-biomedicine-2017
 
Description 2017.01.11 - Public Engagement activity (Oriel Science) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Schools
Results and Impact Oriel Science project meeting
Year(s) Of Engagement Activity 2017
 
Description 2017.01.17 - Referee for the Research council of Norway (DVF) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Sitting in judgement about the quality and strategic fit for Norway's research infrastructure for next 5-10 years
Year(s) Of Engagement Activity 2016
 
Description 2017.01.21 - Member of panel awarding research grants for ESRC on proposals for the use of new and emerging forms of data (DVF) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Multiple awards made to the best project proposals
Year(s) Of Engagement Activity 2017
 
Description 2017.01.26 - Public Engagement activity 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact NCPHWR Knowledge Exhange Group meeting presentation
Year(s) Of Engagement Activity 2017
 
Description 2017.02.03 - Public Engagement activity (British Heart Foundation) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Planning meeting with British Heart Foundation
Year(s) Of Engagement Activity 2017
 
Description 2017.02.07 - EDARA Steering Committee 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Steering group for a major national research study aimed at improving alcohol related hard in the UK. Significant public policy interest. Outcome: Changing the policy and practice landscape in the UK for alcohol
Year(s) Of Engagement Activity 2017
 
Description 2017.02.08 - Precision Medicine Catapult meeting 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Summarising the work, data and facilities of Swansea to support possible involvement in industrial development activities with private and public sector around precision medicine. Outcome: Potential involvement in UK-wide data infrastructures for PM
Year(s) Of Engagement Activity 2017
 
Description 2017.02.09 - Finnish Government visit 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Delegation from Finnish government and health system representative with some senior academic collaborators to discuss how Finland might build on the work of Swansea in Final for a national data sharing architecture. Outcome: Influencing national policy for Finland, potential involvement in the supply of system to support Finland's progress.
Year(s) Of Engagement Activity 2017
 
Description 2017.02.10 - RITREVA Project 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Sharing plans to develop an extension to Swansea's National Research Data Appliances to provide NLP facilities in support of clinical trials. Outcome: Potential funding for Wales-wide project
Year(s) Of Engagement Activity 2017
 
Description 2017.02.13 - BMS / Pfizer collaboration 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact A round table meeting to discuss the development of a formal MOU to cement relationship between two pharmaceutical companies and Swansea. Outcome: Formal MOU drafted and signed by both parties + initial funded project agreed and underway.
Year(s) Of Engagement Activity 2017
 
Description 2017.02.14 - Children's Legal Centre for Wales 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Third sector organisations
Results and Impact Discussion to assess how Swansea's data and facilities could be extended to support work in Human Rights of the Child. Outcome: Potential for collaborative activities
Year(s) Of Engagement Activity 2017
 
Description 2017.02.14 - MSSN 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Project Board overseeing development of national safe setting architecture for the UK, based on "pods" technology. Outcome: Rollout of 40+ preconfigured and approved "safe" settings for use in universities and other sites across the UK to receive access to sensitive data for analysis
Year(s) Of Engagement Activity 2017
 
Description 2017.02.14 - Public Engagement activity (NCMH) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Third sector organisations
Results and Impact NCMH networking meeting
Year(s) Of Engagement Activity 2017
 
Description 2017.02.15 - Public Engagement activity (Wales Digital Communities) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Supporters
Results and Impact Wales Digital Communities networking meeting
Year(s) Of Engagement Activity 2017
 
Description 2017.02.20 - MediWales 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Industry/Business
Results and Impact Development of national strategy to support medical technology companies of Wales. Outcome: National strategy, programme of activities including learning academy, support services, seminar programme +++
Year(s) Of Engagement Activity 2017
 
Description 2017.02.27 - Cardiff Capital City Deal 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Early meetings with local and government reps to discuss how Cardiff City deal could benefit from the work of the Swansea Group. Outcome: Increased awareness of Swansea's facilities and collaborative opportunities
Year(s) Of Engagement Activity 2017
 
Description 2017.02.27 - Public Engagement activity 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Postgraduate students
Results and Impact NHS - District Nursing Student visit
Year(s) Of Engagement Activity 2017
 
Description 2017.02.28 - Cancer Research UK 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Strategic discussions to understand how Swansea data, facilities and expertise could support the work of Cancer Research UK. Outcome: High level understanding of Swansea potential contribution to CRUK's national activities
Year(s) Of Engagement Activity 2017
 
Description 2017.03.07 - GE Healthcare 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Strategic workshop designed to better understand collaborative opportunities between one of the world's biggest companies and Swansea group. Outcome: Further meetings / project discussions
Year(s) Of Engagement Activity 2017
 
Description 2017.03.07 - Public Engagement activity 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Study participants or study members
Results and Impact Internal staff public engagement workshop
Year(s) Of Engagement Activity 2017
 
Description 2017.03.08 - IPDLN Executive Team meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Overseeing the strategic development of the international society for academic, governmental and health system centres that use data linkage mechanism to conduct research. Outcome: Programme of events and activities across the world to support this interest group - showcasing UK and Swansea achievements internationally
Year(s) Of Engagement Activity 2017
 
Description 2017.03.11 - Public Engagement activity 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Schools
Results and Impact Swansea University school engagement day
Year(s) Of Engagement Activity 2017
 
Description 2017.03.13 - Familiy Justice Observatory 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Planning of the development of a potential new centre to help better understand family justice matters in the UK, with support and funding from the Nuffield. Outcome: Invitation to request funding in support of the development
Year(s) Of Engagement Activity 2017
 
Description 2017.03.17 - WCRC 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Group to take forward the development of a programme of work in support of Wales Cancer Research centre's community aspirations. Outcome: Funded programme of work
Year(s) Of Engagement Activity 2017
 
Description 2017.03.28 - Digital Economy Imaginarium 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Delivered workshop to gain better understanding of business and public sector needs and match them to expertise in academia. Outcome: Range of collaborative projects have arisen and been taken forward
Year(s) Of Engagement Activity 2017
 
Description 2017.03.29 - NHS Digital Roundtable 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Strategic discussions to better understand how NHS Digital can take part in data sharing projects to support public policy research. Outcome: Joint plan to address NHSD's current improvements to collaboration
Year(s) Of Engagement Activity 2017
 
Description 2017.04.04 - Digital Economy Crucible 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Postgraduate students
Results and Impact Workshop held to support ECR's idea development in support of the digital economy. Outcome: Range of project proposals with buy-in from public sectors and industrial partners
Year(s) Of Engagement Activity 2017
 
Description 2017.04.04 - Primary Care Public Health Information 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Steering group to help support needs of primary care in Wales through information provision. Outcome: Development of a project to deliver information products to support their needs
Year(s) Of Engagement Activity 2017
 
Description 2017.04.06 - Familiy Justice Observatory 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Presentation and discussion on how Swansea's work could support family justice research in the UK. Outcome: Invitation to sumbit costed proposals
Year(s) Of Engagement Activity 2017
 
Description 2017.04.06 - Welsh Scientific Advisory Committee 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Presentation to Wales' primary scientific advisory committee on SAIL Databank, ADRC Wales, and associated work. Outcome: Inclusion of Swansea's work in national strategy
Year(s) Of Engagement Activity 2017
 
Description 2017.04.07 - AAAI Project Board 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Member of steering group overseeing the development of a national "safe" technical infrastructure (networking) for use across the UK in sharing sensitive data. Outcome: Available national system
Year(s) Of Engagement Activity 2017
 
Description 2017.05.03 - ONS Data Science Campus 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Strategic planning meeting to understand the collaborative opportunities possible between Swansea and the new ONS Data Science campus. Outcome: List of potential areas / projects for collaboration
Year(s) Of Engagement Activity 2017
 
Description 2017.05.04 - GE Healthcare 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Strategic workshop designed to better understand collaborative opportunities between one of the world's biggest companies and Swansea group. Outcome: Further meetings / project discussions
Year(s) Of Engagement Activity 2017
 
Description 2017.05.08 - Welsh Governement Informatics Task Force 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Member of task force, influencing high-level governmental strategy for the use of data in Wales. Outcome: Statement of Intent produced and published
Year(s) Of Engagement Activity 2017
 
Description 2017.05.09 - Keynote talk at ISBER 2017 (Toronto, Canada) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Provided talk on safe data infrastructures to support international biobanking initiatives. Outcome: Further discussions with various delegates who heard the talk (various countries)
Year(s) Of Engagement Activity 2017
 
Description 2017.05.16 - H&CRW Board meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Input into national strategy for health and care research in Wales through Board membership. Outcome: Maintaining continuing focus on data and how it can support a wide range of research
Year(s) Of Engagement Activity 2017
 
Description 2017.05.17 - Nuffield Foundation (Oliver Bird fund) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Providing advice, based on Swansea's expertise and facilities, to the Nuffield on how to best utilise their Oliver Bird endowment. Outcome: New focussed plans for investment into data-related activities in the UK
Year(s) Of Engagement Activity 2017
 
Description 2017.05.22 - NWIS health data strategy meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact High level meeting to agree national approach to providing safe and secure access to health data for research. Outcome: Agreement in approach 2017-2020
Year(s) Of Engagement Activity 2017
 
Description 2017.05.23 - Dynamic Insights Steering Group meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Board meeting for collaboration with O2 telecoms company. Outcome: funded InnovateUK collaborative project
Year(s) Of Engagement Activity 2017
 
Description 2017.06.07 - Digital Health Federation Board meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact First meeting of an international Board to steer the development of an international federations of data facilities, to answer requirements of internationally scaled research and industrial needs. Outcome: Agreement of basic HoA agreement for members to sign (subsequently signs as partner)
Year(s) Of Engagement Activity 2017
 
Description 2017.06.12 - AAAI Project Board 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Member of steering group overseeing the development of a national "safe" technical infrastructure (networking) for use across the UK in sharing sensitive data. Outcome: Available national system
Year(s) Of Engagement Activity 2017
 
Description 2017.06.13 - NHS Digital Roundtable 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Strategic discussions to better understand how NHS Digital can take part in data sharing projects to support public policy research. Outcome: Joint plan to address NHSD's current improvements to collaboration
Year(s) Of Engagement Activity 2017
 
Description 2017.06.15 - MD2i (innovative and intelligent Medical Device) Grenoble, France 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Talk on UK and Swansea data infrastructures to support research. Outcome: Invitation to sit on Grenoble's Board overseeing their own local strategy
Year(s) Of Engagement Activity 2007,2017
 
Description 2017.06.22 - Funding Panel: Canadian Cyber Infrastructure Initiative Toronto 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Supporting Canadian Government make strategic funding decisions on national data infrastructures. Outcome: Shortlisting of best proposals received
Year(s) Of Engagement Activity 2017
 
Description 2017.06.26 - Ser Cymru 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Developing strategy for Climate Impact modelling for Wales. Outcome: Development of strategic plans for climate modelling
Year(s) Of Engagement Activity 2017
 
Description 2017.06.29 - MS Frontiers - Multiple Sclerosis Register outreach 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Patients, carers and/or patient groups
Results and Impact High profile stand, talks and demos showcasing Swansea's MS Register project to people with MS and their families visiting this, the largest conference for people with MS in the country. Outcome: Large number of sign-ups to the Register, increased research and governmental interest, increased enthususaim in existing MS Register participants
Year(s) Of Engagement Activity 2017
 
Description 2017.07.05 - Familiy Justice Observatory 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Presentation and discussion on how Swansea's work could support family justice research in the UK. Outcome: Invitation to submit costed proposals
Year(s) Of Engagement Activity 2017
 
Description 2017.07.14 - MediWales 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Industry/Business
Results and Impact Development of national strategy to support medical technology companies of Wales. Outcome: National strategy, programme of activities including learning academy, support services, seminar programme +++
Year(s) Of Engagement Activity 2017
 
Description 2017.07.20 - UK e-Infrastrucure consortium meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Working group developing a business case, in conjuntion with the UK research councils, to support funding for the UK's national e-infrastructures, across all science domains. Outcome: Business developed
Year(s) Of Engagement Activity 2017
 
Description 2017.07.21 - AMS Health of the Public 2040 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Impact event leading on from publication of the "Health of the Public 2040" (DVF co-author) with the aim of gathering action and momentum around the report's recommendations. Outcome: Numerous accepted tasks and actions from the meeting
Year(s) Of Engagement Activity 2017
 
Description 2017.07.28 - Digital Economy Crucible 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Postgraduate students
Results and Impact Workshop held to support ECRs idea development in support of the digital economy. Outcome: Range of project proposals with buy-in from public sectors and industrial partners
Year(s) Of Engagement Activity 2017
 
Description 2017.08.01 - IPDLN 2018 Conference - Scientific Committee 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Planning the scientific content for the next international conference on data linkage research. Outcome: Speaker invites, topics selected, programme in draft
Year(s) Of Engagement Activity 2017
 
Description 2017.08.02 - Welsh Governement Informatics Task Force 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Member of task force, influencing high-level governmental strategy for the use of data in Wales. Outcome: Statement of Intent produced and published
Year(s) Of Engagement Activity 2017
 
Description 2017.08.09 - Webinar for the Asia eHealth Information Network (AeHIN) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact 100 interested parties from government, academia and industry from Asia and the far east sat in on this webinar to understand how Swansea has built and operates its data infrastructure. Outcome: Potential collaborative activities and technology sharing (Swansea's technologies to Asia)
Year(s) Of Engagement Activity 2017
 
Description 2017.08.10 - AMS Health of the Public 2040 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Impact event leading on from publication of the "Health of the Public 2040" (DVF co-author) with the aim of gathering action and momentum around the report's recommendations. Outcome: Numerous accepted tasks and actions from the meeting
Year(s) Of Engagement Activity 2017
 
Description 2017.08.10 - Giving evidence to the UK's Longitudinal studies review (Prof Ray Chambers) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Detailed discussion on the state of play of the UK's data systems to support longitudinal research. Outcome: Not aware of any outcome
Year(s) Of Engagement Activity 2017
 
Description 2017.08.11 - Strategic meeting with CEQUR Ltd 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Industry/Business
Results and Impact Establishing needs and capabilities between Swansea Group and a major new industrial company. Outcome: Potential collaboration
Year(s) Of Engagement Activity 2017
 
Description 2017.09.05 - New Brunswick (Canada) visit 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Deputation from province of New Brunswick (Canada) made up of government executives, research funders, and academics to understand how Swansea has set up and run SAIL DataBank and other initiatives. Outcome: Agreement to support New Brunswick as they develop their plans to build a similar data infrastructure
Year(s) Of Engagement Activity 2017
 
Description 2017.09.20 - H&CRW Board meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Input into national strategy for health and care research in Wales through Board membership. Outcome: Maintaining continuing focus on data and how it can support a wide range of research
Year(s) Of Engagement Activity 2017
 
Description 2017.09.22 - Familiy Justice Observatory 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Presentation and discussion on how Swansea's work could support family justice research in the UK
Year(s) Of Engagement Activity 2017
 
Description 2017.09.25 - Joint Clinical Research Board meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Board meeting agreeing strategy for this research facility operated in partnership with NHS Wales' Health Board. Outcome: New focus on research in Wales
Year(s) Of Engagement Activity 2017
 
Description 2017.09.26 - Pfizer UK Board meeting 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Industry/Business
Results and Impact Attending Pfizer pharmaceutical Board meeting to provide updates into Wales' data systems and collaboration opportunities. Outcome: Further research opportunities
Year(s) Of Engagement Activity 2017
 
Description 2017.09.29 - MediWales 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Industry/Business
Results and Impact Development of national strategy to support medical technology companies of Wales. Outcome: National strategy, programme of activities including learning academy, support services, seminar programme +++
Year(s) Of Engagement Activity 2017
 
Description 2017.10.01 - ICES Scientific Advisory Board 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Seat on the Institute of Clinical Evaluatiative sciences (ICES) Scientific Advisory Committee to provide guidance on their strategic development and recommendations to their funders and Board. Outcome: Insights into overseas centres similar to ours
Year(s) Of Engagement Activity 2017
 
Description 2017.10.06 - International Collaboration meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Supporters
Results and Impact International strategic meeting, mapping future collaborative opportunities across jurisdictions
Year(s) Of Engagement Activity 2017
 
Description 2017.10.19 - Centre for Epidemiology Renewal Site visit 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Part of a multi-expert team of assessors, working for Asthma Research UK to assess the progress and plans of Manchester's Centre for Epidemiology. Outcome: A formal report leading to a recommendation to refund
Year(s) Of Engagement Activity 2017
 
Description 2017.10.24 - Biobanking task and finish group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact A formal Welsh Government Task and Finish group considering the medium to long term strategy for the organisation and development of tissue and bio banking in Wales. Outcome: The development of a new national strategy (pending)
Year(s) Of Engagement Activity 2017
 
Description 2017.10.27 - Digital Economy Act regualtion consultation event 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Participation in workshop to help refine the regulations that are currently in development to operationalise the Digital Economy Act's Research and Statistics strand. Outcome: Revised regulations
Year(s) Of Engagement Activity 2017
 
Description 2017.11.07 - Data Linkage courses and teaching 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Development of an extended agreement to provide University of Western Australia teaching and expertise to the UK via Swansea. Outcome: Continuation of high quality, subject relevant teaching to any student in the UK (short course and MSc)
Year(s) Of Engagement Activity 2017
 
Description 2017.11.10 - Super Computing Wales 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Discussion with Welsh national supercomputing programme (all sciences) to discover levels of support and facilities potentially on offer to support health and social data sciences in Wales. Outcome: Agreement on the level and nature of on-going facilities and expertise available
Year(s) Of Engagement Activity 2017
 
Description 2017.11.14 - Discussions with Paul Bonnington and colleagues (Research Computing, Montash Universty, Australia) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Supporters
Results and Impact A set of discussions to scope the sharing of Swansea's data sharing platforms (SeRP and NRDAs) for use in Australia via Monash University. Outcome: An agreement for them to fund the costs of providing our technology to Australia
Year(s) Of Engagement Activity 2017
 
Description 2017.11.22 - Presentation to the English NHS National Data Opt Out Advisroy Group on SAIL Databank 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Provided a high level overview of the differing emergent strategies in Wales and England relating to patient opt-out and how Wales has managed to maintain high trust and support with its population and practitioners throughout. Outcome: Better understanding (in NHS England) about how Wales has managed population trust in health data research
Year(s) Of Engagement Activity 2017
 
Description 2017.11.27 - Presentation and facilitiate workshop to various SMEs about opportunities to access PhD studentships 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Industry/Business
Results and Impact Presentation on Swansea's data expertise and facilities available to support data science agenda with industry partners and mechanisms by which Swansea can support the needs of Welsh companies. Outcome: DTC proposal
Year(s) Of Engagement Activity 2017
 
Description 2017.12.01 - Presentation and workshop participating to help Nuffield Foundation and Arthritis Research UK develop a data strategy for musculoskeletal research in the UK 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact To inform the development of a new data strategy for ARUK and Nuffield. Outcome: New strategy
Year(s) Of Engagement Activity 2017
 
Description 2017.12.06 - Working group to devise plan to move NHS Wales to using SNOMED CT in future years 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Conducting baselines review of compliant systems and framework for moving towards 100% use of SNOMED CT in the future. Outcome: New approach for Wales
Year(s) Of Engagement Activity 2017
 
Description 2017.12.12 - Annual Awards ceremony, giving prizes to the NSH and to industry for a range of awards 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Industry/Business
Results and Impact Giving prizes (previously selected) to the winner of a range of awards. Outcome: Increased focus on co-working between NHS, government, academia and industry in Wales
Year(s) Of Engagement Activity 2017
 
Description 2017.12.12 - Wales Centre of Public Policy / SAIL Databank strategy meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact First of a series of workshops to help the newly formed WCPP understand how it might pursue its work through using data and data science techniques. Outcome: Close working relationship
Year(s) Of Engagement Activity 2017
 
Description 2018.01.03 - Follow on to conversation with Ministry of Health (England) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Scoping discussion to asses how SAIL / ADRN / HDR UK can support DoH taking part in data sharing projects for public good. Outcome: Not aware of any outcome
Year(s) Of Engagement Activity 2017
 
Description 2018.01.08 - Early scoping discussions about utilising GeL's genetics platforms to process Welsh patinet sames and return the data. 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact Scoping discussion. Outcome: Potential agreement
Year(s) Of Engagement Activity 2018
 
Description 2018.01.11 - Familiy Justice Observatory 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Presentation and discussion on how Swansea's work could support family justice research in the UK. Outcome: Invitation to submit costed proposals
Year(s) Of Engagement Activity 2018
 
Description 2018.01.16 - Informatics Statment of Intent implementation workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Workshop participation to shape implementation plans. Outcome: Implemented policy for data reuse in Wales
Year(s) Of Engagement Activity 2018
 
Description 2018.01.17 - Research Data Alliance Workshop and Invited talk - Amsterdam 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Keynote talk on the issues related to curation and sharing of highly sensitive person-based data + workshops participation. Outcome: New highlighted focus on person-based data and privacy in the RDA
Year(s) Of Engagement Activity 2018
 
Description 2018.01.22 - Biobanking task and finish group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact A formal Welsh Government Task and Finish group considering the medium to long term strategy for the organisation and development of tissue and bio banking in Wales. Outcome: The development of a new national strategy (pending)
Year(s) Of Engagement Activity 2018
 
Description 2018.01.30 - Strategic meetings with ONS in the context of next stage of what was ADRN 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact New understanding of the role of the devolved administration in data acquisition, research priorities, public engagement and researcher support, shared with ONS colleague. Outcome: New understanding within ONS
Year(s) Of Engagement Activity 2018
 
Description 2018.02.01 - Public Health Wales / ADRC / SAIL strategic meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Framing a new relationship between Swansea's data platforms and Public Health Wales. Outcome: More policy-relevant research analyses
Year(s) Of Engagement Activity 2018
 
Description 2018.02.02 - Data for Children themed workshop - Chair Leon Feinstein 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Co-chair and participation in a workshop to frame a new data request to multiple government ministries and agencies to construct a linked data resource for the benefit of children though research
Year(s) Of Engagement Activity 2018
 
Description 2018.02.07 - Informatics Statement of Intent implementation workship 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Workshop participation to shape implementation plans. Outcome: Implemented policy for data reuse in Wales
Year(s) Of Engagement Activity 2018
 
Description 2018.02.13 - Biobanking task and finish group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact A formal Welsh Government Task and Finish group considering the medium to long term strategy for the organisation and development of tissue and bio banking in Wales. Outcome: The development of a new national strategy (pending)
Year(s) Of Engagement Activity 2018
 
Description 2018.02.14 - ONS and Welsh Government meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact New understanding of the role of the devolved administration in data acquisition, research priorities, public engagement and researcher support, shared with ONS colleague. Outcome: New understanding within ONS
Year(s) Of Engagement Activity 2018
 
Description 2018.02.27 - Asthma Data and Digital Funding Call Frontiers Meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Helping to devise a new approach to the use of data to drive forward asthma research in the UK. Outcome: New data investments for asthma data research
Year(s) Of Engagement Activity 2018
 
Description 2018.02.28 - Workshop to help support a new mean of producing national statistics from routine administrative data 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Helping to devise a new approach to the use of data to support the production of national statistics. Outcome: New use and methodologies
Year(s) Of Engagement Activity 2018
 
Description 2018.03.01 - Further clarifying implementation place, costs and time scales 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Agreement for Monash to use Swansea's data platforms to support research and public analyses in Australia. Outcome: Closer to agreement
Year(s) Of Engagement Activity 2018
 
Description 2018.03.06 - Workshop with British Columbia Government officals about data sharing facilities 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Scoping exercise to understand whether Swansea technology platforms and expertise could support the plans of British Columbia government for research and governmental analyses. Outcome: Closer to agreement
Year(s) Of Engagement Activity 2018
 
Description 2018.03.07 - Workshop with British Columbia Health system officals about data sharing facilities 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Scoping exercise to understand whether Swansea technology platforms and expertise could support the plans of British Columbia government for research and governmental analyses. Outcome: Closer to agreement
Year(s) Of Engagement Activity 2018
 
Description 2018.03.08 - Talk on data sharing system to support Learning Health Systems in the UK and internationally 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact To highlight the good practice in the UK and in Wales, to promote the use of Swansea's technology set and expertise. Outcome: Possible inquiries
Year(s) Of Engagement Activity 2018
 
Description 2018.03.14 - Cardiovascular research workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Talk on data opportunities and ways of achieving joint research objectives. Resulted in a decision being made to engage in project
Year(s) Of Engagement Activity 2018
 
Description 2018.03.16 - SNOMED CT Workshop 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Developing SNOMED strategy for Wales, resulting in the formulation of a national strategy
Year(s) Of Engagement Activity 2018
 
Description 2018.03.19 - UKRI e-Infrastructure Expert Group Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Development of UKRI Roadmap with senior UKRI staff
Year(s) Of Engagement Activity 2018
 
Description 2018.03.21 - UKSeRP, DDP and HSAR meeting. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Infrastructure development meeting with Welsh Government colleagues
Year(s) Of Engagement Activity 2018
 
Description 2018.03.22 - Innovator Workshop 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Postgraduate students
Results and Impact David Ford took part in an innovation workshop as a member of the judging panel for proposed innovations
Year(s) Of Engagement Activity 2018
 
Description 2018.03.26 - IPDLN Conference Scientific Committee meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Development of the international conference programme
Year(s) Of Engagement Activity 2018
 
Description 2018.03.27 - WCRC Senior Operational meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact David Ford attendance at steering group for major Welsh Research Centre
Year(s) Of Engagement Activity 2018
 
Description 2018.03.28 - DKUT, NMAIST & Kabarak Universities discussion 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact International collaborative project with African univeristies discussing opportunities for collaboration on MRC funding call
Year(s) Of Engagement Activity 2018
 
Description 2018.04.18 - ADRN Data for Children 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Developing new Data for Children resource
Year(s) Of Engagement Activity 2018
 
Description 2018.04.20 - HDR UK Site visit 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact David Ford attended a series of meetings with HDR UK representatives on their visit to Swansea University and the Data Science research teams based there, following which the decision was made to establish Swansea as an HDR site
Year(s) Of Engagement Activity 2018
 
Description 2018.04.24 - Biobanking Task and Finish Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact Discussions primarily focused around the Wales Biobank, which is supported with staff based within the Swansea University Data Science team
Year(s) Of Engagement Activity 2018
 
Description 2018.04.25 - Workstream 3 - Stakeholders event 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact This event contributed towards the development of a new vision for a national data resource for NHS Wales
Year(s) Of Engagement Activity 2018
 
Description 2018.04.26 - Health Data Research UK - Scientific Retreat 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Senior ADRC Wales staff participated in a strategic planning event for HDR
Year(s) Of Engagement Activity 2018
 
Description 2018.05.02 - DataLab with ADRC Wales 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Discussions about development of Education data resources for use with ADRC Wales data research projects
Year(s) Of Engagement Activity 2018
 
Description 2018.05.14 - The Future of Justice International Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Event to take forward evidence production for the court systems
Year(s) Of Engagement Activity 2018
 
Description 2018.05.17 - HDR UK Technical meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact ADRC Wales attended a wider discussion around understanding data infrastructure needs for UK
Year(s) Of Engagement Activity 2018
 
Description 2018.05.18 - Commission on Justice in Wales Scoping 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Scoping unmet legal needs in Wales, with a view to developing research opportunities with government and academics in this field
Year(s) Of Engagement Activity 2018
 
Description 2018.05.24 - GeDI workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Developing genetic data strategy in Wales
Year(s) Of Engagement Activity 2018
 
Description 2018.06.01 - Talk in Victoria, Canada 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Presentations to Ministry of Health, British Columbia
Year(s) Of Engagement Activity 2018
 
Description 2018.06.05 - Qresearch, SHIP and SAIL discussion for HDR 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Presentation and discussion with Q Research
Year(s) Of Engagement Activity 2018
 
Description 2018.06.07 - UKRI Event on "Places" 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Cluster development workshop
Year(s) Of Engagement Activity 2018
 
Description 2018.06.08 - National MSK Health Data Group 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Presentation on SAIL Databank to ARUK
Year(s) Of Engagement Activity 2018
 
Description 2018.06.11 - ADRN Directors Group meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Discussion around how to manage new elements of transition work following London meetings the previous week
Year(s) Of Engagement Activity 2018
 
Description 2018.06.12 - ADRC Stakeholder meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Developing working arrangements with Welsh Government
Year(s) Of Engagement Activity 2018
 
Description 2018.06.14 - MS Society Research Strategy Committee 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Presentation on UKMS Register
Year(s) Of Engagement Activity 2018
 
Description 2018.06.20 - HDR UK Infrastructure meeting (Technical) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Follow up discussion with sector experts on the data infrastructure needs for UK
Year(s) Of Engagement Activity 2018
 
Description 2018.06.21 - ADRN Directors Conference 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Round table strategy event with ADRN Directors
Year(s) Of Engagement Activity 2018
 
Description 2018.06.22 - Health and Wellbeing Childhood & Mental Health 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact David Ford led a research theme discussion around Health and Wellbeing Childhood & Mental Health at the ADR Conference in Belfast
Year(s) Of Engagement Activity 2018
 
Description 2018.06.27 - Panel meeting to discuss Family Justice Research 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact David Ford delivered a presentation to a senior research group around Family Justice and the opportunities for using linked data in this area
Year(s) Of Engagement Activity 2018
 
Description 2018.06.28 - SAIL scientific External Advisory Board 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact David Ford attended an event around the launch and future plans for an International expert panel
Year(s) Of Engagement Activity 2018
 
Description 2018.07.09 - Due diligence & MoU ceremony 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Supporters
Results and Impact Formal signing of MoU with Bangalore
Year(s) Of Engagement Activity 2018
 
Description 2018.07.13 - ADRN Themed Data for children Partners meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Roundtable to devise data build for data research resources using assets relating to children/young people's data
Year(s) Of Engagement Activity 2018
 
Description 2018.07.18 - Summer School in digital Epidemiology from the Arthritis Research UK Centre for Epidemiology 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Postgraduate students
Results and Impact David Ford participated in a talk on linking EHRdata to other data sources
Year(s) Of Engagement Activity 2018
 
Description 2018.07.20 - MRC Mental Health Data Pathfinder meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Discussions with colleagues involved in other research council funded project around the development of a common data platform
Year(s) Of Engagement Activity 2018
 
Description 2018.07.24 - AAAI workshop 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact UKRI e-infrastructre development
Year(s) Of Engagement Activity 2018
 
Description 2018.07.27 - Research and Innovation Infrastructure Workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Postgraduate students
Results and Impact David Ford participated in an innovation workshop as a 'Dragons Den' judge
Year(s) Of Engagement Activity 2018
 
Description 2018.08.23 - Developing an admin data spine 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Providing expert advice to UKRI on the development of a cross sector administrative data resource
Year(s) Of Engagement Activity 2018
 
Description 2018.08.24 - Meeting RE: HDR UK Implementation Projects 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Meeting with senior NHS Wales Informatics Service colleagues around the development of a Welsh response to DIH initiative
Year(s) Of Engagement Activity 2018
 
Description 2018.08.28 - Meeting: MS Society and Benevolent AI 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Round table with innovative AI company
Year(s) Of Engagement Activity 2018
 
Description 2018.08.30 - Scottish Government visit 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Hosted visit from Scottish Government to demonstrate arrangements in place for admin data research at Swansea University
Year(s) Of Engagement Activity 2018
 
Description 2018.08.31 - Visit to Blackpool Local Authority 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Presentations around the opportunities for collaborating with Swansea University on data research projects and work
Year(s) Of Engagement Activity 2018
 
Description 2018.09.03 - Chris Newbrook meeting RE: Info Governance - and Wales' "Data Promise" 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Round table session with senior Welsh Government to develop national strategy to data sharing
Year(s) Of Engagement Activity 2018
 
Description 2018.09.03 - Longitudinal administrative data spine meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Discussions around the further development of an administrative data resource
Year(s) Of Engagement Activity 2018
 
Description 2018.09.04 - HDR UK Science Strategy visit 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADRC Wales staff inputted into the development of a science strategy with HDR colleagues
Year(s) Of Engagement Activity 2018
 
Description 2018.09.04 - Haroldas Petkus re: RE: Previous 'NHS in a lab' facilities 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Discussions to share experience and best practice around data infrastructure technology
Year(s) Of Engagement Activity 2018
 
Description 2018.09.05 - HDR UK Design thinking workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact ADRC Wales staff participation in an HDR UK design workshop
Year(s) Of Engagement Activity 2018
 
Description 2018.09.07 - ADRN Data for Children Technical Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Through this event, David Ford supported further development around a new Data for Children resource in line with ADRN data research themes
Year(s) Of Engagement Activity 2018
 
Description 2018.09.07 - ADRN Data for Children Technical Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Through this event, David Ford supported further development around a new Data for Children resource in line with ADRN data research themes
Year(s) Of Engagement Activity 2018
 
Description 2018.09.24 - EDARA Study Steering Committee 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact David Ford attended and chaired a session of the EDARA Study Steering Committee
Year(s) Of Engagement Activity 2018
 
Description 2018.09.24 - Scoping an administrative spine with ESRC 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Further work building upon initial discussions with research council colleagues around the development of an administrative data research resource
Year(s) Of Engagement Activity 2018
 
Description 2018.09.25 - UKRI MRC 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact David Ford attended and chaired a workshop on e-infrastructure requirement for MRC
Year(s) Of Engagement Activity 2018
 
Description 2018.09.28 - Morgan Academy to host cabinet office innovation team 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact David Ford gave a presentation to Cabinet Office team
Year(s) Of Engagement Activity 2018
 
Description 2018.10.02 - ICES Scientific Advisory Committee meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Participation as a formal member of the External Advisory Board to ICEs
Year(s) Of Engagement Activity 2018
 
Description 2018.10.04 - ADRC Wales impact and engagement overview meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Impact strategy for Wales discussions
Year(s) Of Engagement Activity 2018
 
Description 2018.10.04 - Pfizer programme of work 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Presentation and collaboration discussions with Pfizer Ltd
Year(s) Of Engagement Activity 2018
 
Description 2018.10.05 - SAIL scientific External Advisory Board Launch event 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Presentation on data research in Wales
Year(s) Of Engagement Activity 2018
 
Description 2018.10.08 - Discussions with MoJ about Data sharing for family justice 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Building on previous discussions, this event aimed to define some of the plans made around Ministry of Justice data sharing for family justice research
Year(s) Of Engagement Activity 2018
 
Description 2018.10.15 - Launch of Monash University HeLIX data platform 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact David Ford was an invited speaker at a launch event for HeLIX
Year(s) Of Engagement Activity 2018
 
Description 2018.10.16 - Keynote speaker at E-Research Australia conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact David Ford participated in an Australian e-Research Conference as a keynote speaker
Year(s) Of Engagement Activity 2018
 
Description 2018.10.19 - Keynote talk at Precision Public Health 2018 conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact David Ford participated at a Precision Public Health conference in Australia as a keynote speaker
Year(s) Of Engagement Activity 2018
 
Description 2018.10.24 - Presentations to Sydney Ministry of Health, Australia 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact David Ford delivered a presentation on the work being done in the Swansea University Data Science research team to the Ministry of Health, Sydney, Australia
Year(s) Of Engagement Activity 2018
 
Description 2018.11.02 - Nuffield Foundation Oliver Bird Tendering Consultation Group Teleconference 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact Expert advice to funder, resulting in decisions taken around shaping a funding call
Year(s) Of Engagement Activity 2018
 
Description 2018.11.07 - New Brunswick Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact David Ford delivered a keynote talk at New Brunswick conference, Canada
Year(s) Of Engagement Activity 2018
 
Description 2018.11.09 - Meeting with Ted McDonald's team 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Roundtable workshop New Brunswick centre
Year(s) Of Engagement Activity 2018
 
Description 2018.11.15 - Administrative Data Spine Scoping 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Further discussions around developments of an administrative data research resource, with a focus on defining future work
Year(s) Of Engagement Activity 2018
 
Description 2018.11.21 - HCRW Centre and Unit leads' meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Roundtable strategy meeting for Welsh research infrastructure
Year(s) Of Engagement Activity 2018
 
Description 2018.11.28 - Science Strategy Board 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Participation in a Science Strategy Board with colleagues from Oxford academia
Year(s) Of Engagement Activity 2018
 
Description 2018.12.10 - UKCRIS visit 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Roundtable with research group from London, focussing on the development of collaborative work being undertaken
Year(s) Of Engagement Activity 2018
 
Description 2019.01.07 - NHS Digital/HDR UK Interoperability Workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Participation in an NHS Digital/HDR UK Interoperability Workshop
Year(s) Of Engagement Activity 2019
 
Description 2019.01.08 - National Social Care Data set linking to SAIL databank 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact David Ford attendance at a workshop with Social Care Wales
Year(s) Of Engagement Activity 2019
 
Description 2019.01.09 - UKRI Research and Innovation Infrastructure Roadmap 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact UKRI workshop on research infrastructure
Year(s) Of Engagement Activity 2019
 
Description 2019.01.10 - MRC Mental Health Data Pathfinder meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact MRC workshop on mental health platform
Year(s) Of Engagement Activity 2019
 
Description 2019.01.15 - Health & Care Research Wales Board 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Participation at a session of the Wales Research Board (funders)
Year(s) Of Engagement Activity 2019
 
Description 2019.01.16 - TexGov workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact NLP for research workshop
Year(s) Of Engagement Activity 2019
 
Description 2019.01.23 - Inward Investment team from Welsh Assembly Gov 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Presentation on Swansea research
Year(s) Of Engagement Activity