MICA: Centre for the Improvement of Population Health through E-health Research (CIPHER)
Lead Research Organisation:
Swansea University
Department Name: Institute of Life Science Medical School
Abstract
The aim of the Centre for Improving Population Health through E-Health Research (CIPHER) is to carry out research that will improve the health of the nation. It will do this by developing new methods to anonymise, link and analyse healthcare and similar data, to answer a wide range of important research questions. We will often work with researchers who have established large cohort studies, helping them make their cohorts more powerful, longer lasting, and cheaper to operate. E-health research is a new field and so CIPHER will be focussing on training researchers in how to use these data and methods.
CIPHER has four core research programmes: The first focuses on developing robust new methods to allow health and other information to be anonymised and analysed. For example, developing ways in which researchers accessing data cannot possibly identify the individuals involved, thereby ensuring that privacy is protected. CIPHER's other three research programmes focus on the impact on people's lives of (1) injury and the built environment; (2) mental health and substance use; and (3) infection. CIPHER researchers will undertake a range of studies to provide better insight into the causes of disease and injury, the consequences of these conditions on individuals and the population, and evaluations of treatments and policies which are designed to improve health. Knowledge of the longer term individual and societal impact of many conditions and treatments is currently very limited, as long term studies are very expensive. CIPHER's work will enable the long term follow up of outcomes using anonymised data, answering these questions effectively but at far less cost. Within its research programmes CIPHER will address many scientific questions, including: How effective are fall-prevention initiatives for older people? What is the impact of giving Vitamin D supplements to people in care homes in reducing hip fractures? Can linked data be used to help Fire and Rescue services prevent more home fires? Have interventions to make homes warmer reduced the number of deaths in winter? How much does substance use in young adults contribute to mental health problems? Does opiate substitution therapy in prison reduce the risk of death following prison release? Can linked routine data be used to identify opportunities to intervene in pathways to harm for people who self-harm or die by suicide? How can information be better used to reduce antibiotic resistant infections? Are the different micro-organisms we carry in our bowels involved in the development of serious health conditions?
CIPHER will work with the NHS to develop better ways to measure patients' experiences and treatment outcomes. CIPHER will also develop methods to enable linkage of anonymised treatment data to important social outcomes such as staying in work, continuing in education, or being able to live independently at home. Such information will help the NHS design its services to meet a broader range of patients' needs. CIPHER's believes it is important to communicate effectively with patients, patient groups and the public at large about its research. A significant part of our work therefore will be setting up ways to aid this communication. We will have public representatives involved in our research throughout and they will help guide us and help us communicate effectively with wider groups.
CIPHER will be one of a small number of similar Centres that is being set up in the UK and we will be working together to train researchers in these new methods and making sure universities have suitable jobs for them. CIPHER aims to be an internationally recognised centre of expertise in the use of electronic health and associated records for research and, along with other network members, position the UK as the world leader in the field, improving the population's health, increasing UK research income, and improving the economy.
CIPHER has four core research programmes: The first focuses on developing robust new methods to allow health and other information to be anonymised and analysed. For example, developing ways in which researchers accessing data cannot possibly identify the individuals involved, thereby ensuring that privacy is protected. CIPHER's other three research programmes focus on the impact on people's lives of (1) injury and the built environment; (2) mental health and substance use; and (3) infection. CIPHER researchers will undertake a range of studies to provide better insight into the causes of disease and injury, the consequences of these conditions on individuals and the population, and evaluations of treatments and policies which are designed to improve health. Knowledge of the longer term individual and societal impact of many conditions and treatments is currently very limited, as long term studies are very expensive. CIPHER's work will enable the long term follow up of outcomes using anonymised data, answering these questions effectively but at far less cost. Within its research programmes CIPHER will address many scientific questions, including: How effective are fall-prevention initiatives for older people? What is the impact of giving Vitamin D supplements to people in care homes in reducing hip fractures? Can linked data be used to help Fire and Rescue services prevent more home fires? Have interventions to make homes warmer reduced the number of deaths in winter? How much does substance use in young adults contribute to mental health problems? Does opiate substitution therapy in prison reduce the risk of death following prison release? Can linked routine data be used to identify opportunities to intervene in pathways to harm for people who self-harm or die by suicide? How can information be better used to reduce antibiotic resistant infections? Are the different micro-organisms we carry in our bowels involved in the development of serious health conditions?
CIPHER will work with the NHS to develop better ways to measure patients' experiences and treatment outcomes. CIPHER will also develop methods to enable linkage of anonymised treatment data to important social outcomes such as staying in work, continuing in education, or being able to live independently at home. Such information will help the NHS design its services to meet a broader range of patients' needs. CIPHER's believes it is important to communicate effectively with patients, patient groups and the public at large about its research. A significant part of our work therefore will be setting up ways to aid this communication. We will have public representatives involved in our research throughout and they will help guide us and help us communicate effectively with wider groups.
CIPHER will be one of a small number of similar Centres that is being set up in the UK and we will be working together to train researchers in these new methods and making sure universities have suitable jobs for them. CIPHER aims to be an internationally recognised centre of expertise in the use of electronic health and associated records for research and, along with other network members, position the UK as the world leader in the field, improving the population's health, increasing UK research income, and improving the economy.
Technical Summary
The vision of the Centre for Improving Population Health through E-Health Research (CIPHER) is to maximise the utility of routine health-related data on the UK population to support research to improve the nation's health. Objectives are: to provide a focus for innovative research using electronic health records; undertake novel linkage and analyses of large datasets; and build multi-disciplinary research capacity. The Centre will deliver four research programmes in: methodological innovation; injury, the built environment and health; psychosocial determinants of health; and, population aspect of infection. Much of the methodological work will be on enabling data to be used whilst protecting and ensuring privacy. The development of an anonymised data linkage platform will enable previously infeasible, large scale observational and interventional studies to be undertaken. CIPHER will address many scientific questions, including those listed below. How can data linkage improve measurement of the national and global burden of injury? What is the population impact of fall-prevention initiatives, Vitamin D supplements and targeted fire prevention activities? Have energy efficiency interventions reduced excess winter mortality? What is the relationship between urban design, obesity and mental health? To what extent do care and repair services protect health and prolong independent living? Is cannabis, alcohol and tobacco use associated with increased risk of psychosis? What is the burden of mental disorder in the young adult population from substance use? Does opiate therapy in prison reduce risk of death in the period immediately following prison release? Can linked routine data be used to identify opportunities to intervene in pathways to harm for people who self-harm or die by suicide? How can linked data be used to evaluate interventions to reduce antibiotic resistant infections? Does carriage of bowel microflora influence development of bowel disorders?
Planned Impact
There are many different groups who will benefit from the research programmes outlined in this bid. The first group is the UK and global academic community. Creating novel methodologies and innovative e-health technology platforms will enable previously infeasible and unaffordable cutting-edge, large scale, observational and evaluative studies to be undertaken, resulting in a step change in research capability, capacity and efficiency. This is turn will result in substantially enhanced scientific understanding of disease aetiology, disease prevention and management. The scientific outputs of such research will be reflected in high impact scientific publications and the development of new research programmes by funding agencies.
Much of the research to be carried out by CIPHER is designed to be relevant to a very broad cross-cutting policy agenda and we would expect the results of the work to influence UK Government and international policies in several areas. Themes such as health and wellbeing, the 'Big Society' social mobility, housing, and healthy ageing are reflected in current UK policy documents and statements. Over time the focus may be on other areas but the breadth and scale of data linkage envisaged in the CIPHER application will be capable of dealing with new policy concerns. One of the difficulties policy makers face is great uncertainty about the impact of policies, particularly those which affect multiple Government departments or sectors. The research programmes outlined in this application demonstrate the potential to link data across multiple sectors to answer these difficult questions in a series of innovative demonstration studies. For example, anonymised linkage of health, benefits, housing and other datasets, together with the development of information platforms capable of evaluating natural experiments, policies, and interventions led by health, local government or the third sector, will provide new knowledge which will influence policy at multiple levels, including those who create, implement or evaluate policies. One would expect the results of such research to lead to increased effectiveness of public services, enhanced quality of life, and improved economic performance through better health and a variety of other mechanisms. Improved health results in reduced costs from disability associated benefits, delayed requirement for assisted living and care in an ageing population, increased employment, and improvements in the competitiveness of the UK economy. A considerable growth in e-health employment is envisaged in both academic and private sectors to take advantage of the increased availability of data and skills resulting from the e-health research initiative. This in turn should result in an increase in the UK capture of global research funds, greater inward investment and increased employment which will benefit the UK knowledge and general economy.
Research funding bodies and researchers are increasingly asked to demonstrate the social impact of their research. This has proven to be quite a challenge as many traditional research projects take time to impact as funding is generally over too short a period to capture much of the longer term benefits. It is likely that the financial and societal benefits from health research are considerably underestimated. Longitudinal cross-sectional data linkage is essential in accurately quantifying the longer term impact of investments in scientific research on the population's health, wellbeing and wealth.
The benefits of such research will start to be seen within the first few years of the Centre and should increase exponentially thereafter as the number of studies utilising the UK e-health platforms grows.
Much of the research to be carried out by CIPHER is designed to be relevant to a very broad cross-cutting policy agenda and we would expect the results of the work to influence UK Government and international policies in several areas. Themes such as health and wellbeing, the 'Big Society' social mobility, housing, and healthy ageing are reflected in current UK policy documents and statements. Over time the focus may be on other areas but the breadth and scale of data linkage envisaged in the CIPHER application will be capable of dealing with new policy concerns. One of the difficulties policy makers face is great uncertainty about the impact of policies, particularly those which affect multiple Government departments or sectors. The research programmes outlined in this application demonstrate the potential to link data across multiple sectors to answer these difficult questions in a series of innovative demonstration studies. For example, anonymised linkage of health, benefits, housing and other datasets, together with the development of information platforms capable of evaluating natural experiments, policies, and interventions led by health, local government or the third sector, will provide new knowledge which will influence policy at multiple levels, including those who create, implement or evaluate policies. One would expect the results of such research to lead to increased effectiveness of public services, enhanced quality of life, and improved economic performance through better health and a variety of other mechanisms. Improved health results in reduced costs from disability associated benefits, delayed requirement for assisted living and care in an ageing population, increased employment, and improvements in the competitiveness of the UK economy. A considerable growth in e-health employment is envisaged in both academic and private sectors to take advantage of the increased availability of data and skills resulting from the e-health research initiative. This in turn should result in an increase in the UK capture of global research funds, greater inward investment and increased employment which will benefit the UK knowledge and general economy.
Research funding bodies and researchers are increasingly asked to demonstrate the social impact of their research. This has proven to be quite a challenge as many traditional research projects take time to impact as funding is generally over too short a period to capture much of the longer term benefits. It is likely that the financial and societal benefits from health research are considerably underestimated. Longitudinal cross-sectional data linkage is essential in accurately quantifying the longer term impact of investments in scientific research on the population's health, wellbeing and wealth.
The benefits of such research will start to be seen within the first few years of the Centre and should increase exponentially thereafter as the number of studies utilising the UK e-health platforms grows.
Publications
Aboagye-Sarfo P
(2015)
Growth in Western Australian emergency department demand during 2007-2013 is due to people with urgent and complex care needs.
in Emergency medicine Australasia : EMA
Aboagye-Sarfo P
(2015)
A comparison of multivariate and univariate time series approaches to modelling and forecasting emergency department demand in Western Australia.
in Journal of biomedical informatics
Ahmed H
(2019)
Antibiotic prophylaxis and clinical outcomes among older adults with recurrent urinary tract infection: cohort study
in Age and Ageing
Aitken M
(2019)
Consensus Statement on Public Involvement and Engagement with Data Intensive Health Research.
in International journal of population data science
Akbari A
(2017)
The ELAStiC (Electronic Longitudinal Alcohol Study in Communities) project IJPDS (2017) Issue 1, Vol 1:264 Proceedings of the IPDLN Conference (August 2016)
in International Journal of Population Data Science
Al Sallakh M
(2015)
P225 Identifying asthma patients in Wales using latent class analysis of routine data
in Thorax
Al Sallakh MA
(2018)
Identifying patients with asthma-chronic obstructive pulmonary disease overlap syndrome using latent class analysis of electronic health record data: a study protocol.
in NPJ primary care respiratory medicine
| Title | Poster at Informatics for Health 2017 conference |
| Description | Poster displaying the results from the 'Longitudinal analysis of critical care outcomes in Wales' project |
| Type Of Art | Image |
| Year Produced | 2017 |
| Impact | Won Farr Institute prize for best abstract for poster |
| Description | Active Travel to School Advisory Group |
| Geographic Reach | National |
| Policy Influence Type | Participation in a advisory committee |
| Impact | Educated public health consultants on the use of data linkage to investigate travel mode and travel to school for children in Wales. Advised on methods of capturing useful data to investigate trends and complex evaluation opportunities. |
| Description | COVID19 vaccine uptake by ethnicity |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Participation in a advisory committee |
| Description | Controlling COVID19 through enhanced population surveillance and intervention (Con-COV): a platform approach. |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Participation in a advisory committee |
| Description | Controlling COVID19 through enhanced population surveillance and intervention (Con-COV): a platform approach. |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Participation in a advisory committee |
| Description | Discussion with alcohol-lead, Public Health Wales NHS Trust |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Description | Emergency Medicine, Retrieval and Trauma Service (EMRTS) Evaluation. |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Participation in a advisory committee |
| Description | Gave evidence on analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. School bubbles analysis. |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Gave evidence to a government review |
| Description | Giving input into the development of Welsh Governement's new Digital Health strategy |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Participation in a national consultation |
| Description | Influence on the development of Welsh Health Policy: Prudent Healthcare |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Citation in other policy documents |
| URL | http://www.prudenthealthcare.org.uk/ |
| Guideline Title | JRCALC (Joint Royal College Ambulance Liaison Committee) guideline on falls in older adults |
| Description | Input into JRCALC (Joint Royal College Ambulance Liaison Committee) guideline on falls in older adults |
| Geographic Reach | Europe |
| Policy Influence Type | Citation in clinical guidelines |
| Description | Member of SAGE Social Care Working Group |
| Geographic Reach | National |
| Policy Influence Type | Participation in a advisory committee |
| Impact | A member of the SAGE SCWG from May 2020 to time of submission. Informing national policy with insight from SAIL databank analyses. |
| URL | https://www.gov.uk/government/publications/scientific-advisory-group-for-emergencies-sage-coronaviru... |
| Description | Membership of the ABMU HealthBoard SBRI Project Board (funded by Innovate UK |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Membership of a guidance committee |
| Description | Membership of the Academy of Medical Sciences "Health of the Public 2040" Working group |
| Geographic Reach | National |
| Policy Influence Type | Membership of a guidance committee |
| Description | Membership of the Health and Social Care Information Centre's Expert Advisory Group |
| Geographic Reach | National |
| Policy Influence Type | Participation in advisory committee |
| Description | Ministerial Industry and Strategy Group's workshop on Maximising the potential of data assets for biomedical research and patient care |
| Geographic Reach | National |
| Policy Influence Type | Gave evidence to a government review |
| Description | Presented on SARS-CoV-2 vaccination by ethnicity update. |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Gave evidence to a government review |
| Guideline Title | Rapid Review Screening for Prostate Cancer. |
| Description | Rapid Review Screening for Prostate Cancer. Public Consultation Document |
| Geographic Reach | National |
| Policy Influence Type | Citation in clinical guidelines |
| Impact | The research has helped policymakers make evidence-based decisions about the population impact of PSA-based screening for prostate cancer. The CAP trial led to changes in health policy and professional guidelines around the world, with clinicians and health services now advised to encourage individualised shared decision-making (informing men of the possible harms and benefits and supporting decision making) rather than routine screening. These new guidelines help ensure that patients (men aged 50-69 years), GPs and urologists are better informed about the benefits and harms of PSA screening for prostate cancer. |
| URL | https://view-health-screening-recommendations.service.gov.uk/prostate-cancer/ |
| Description | Reinvigorating health registries during COVID for rapid policy analyses |
| Geographic Reach | Europe |
| Policy Influence Type | Participation in a advisory committee |
| URL | https://www.registerkonferansen.no/ |
| Description | Report on the development of Inspirational Case Study for INFACT |
| Geographic Reach | Europe |
| Policy Influence Type | Participation in a advisory committee |
| Description | Research use cases measuring the impact of COVID-19 on population health. |
| Geographic Reach | Europe |
| Policy Influence Type | Participation in a advisory committee |
| Description | The Secure Anonymised Information Linkage System |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Participation in a advisory committee |
| Description | Update on research |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Participation in a advisory committee |
| Description | Vulnerable populations and COVID: EU Population Health Information Research Infrastructure |
| Geographic Reach | Europe |
| Policy Influence Type | Participation in a advisory committee |
| URL | https://www.phiri.eu/ |
| Description | 2013 Project grant funding |
| Amount | $5,113,948 (AUD) |
| Organisation | National Health and Medical Research Council |
| Sector | Public |
| Country | Australia |
| Start | |
| Description | A Mapping Service for Census Data |
| Amount | £15,000 (GBP) |
| Organisation | UK Data Service |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 09/2014 |
| End | 01/2015 |
| Description | A profile of population-based stage at diagnosis by cancer type and geography in Wales, and one-year relative survival by stage for the main cancer types CRUK |
| Amount | £53,905 (GBP) |
| Organisation | Cancer Research UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2017 |
| End | 03/2018 |
| Description | A real time pharmacoepidemiological surveillance system for children with asthma (PhD Studentship) |
| Amount | £56,382 (GBP) |
| Organisation | Joseph Fourier University |
| Sector | Academic/University |
| Country | France |
| Start | |
| Description | A series of studies aimed at evaluating LASER (Learning about Safety by Experiencing Risk) safety education schemes |
| Amount | £52,971 (GBP) |
| Organisation | Royal Society for the Prevention of Accidents |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2013 |
| End | 09/2014 |
| Description | ACoRN - Advancing cross-centre research networks |
| Amount | £30,000 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2017 |
| End | 12/2017 |
| Description | ASTRODEM: Using astrophysics to close the "diagnosis gap" for dementia in UK general practice |
| Amount | £94,008 (GBP) |
| Funding ID | 202133/Z/16/Z |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 06/2016 |
| End | 06/2018 |
| Description | Abertawe Bro Morgannwg University Health Board - Pathway to Portfolio |
| Amount | £9,549 (GBP) |
| Organisation | Abertawe Bro Morgannwg University Health Board |
| Sector | Public |
| Country | United Kingdom |
| Start | 07/2014 |
| End | 05/2016 |
| Description | Administrative Data Research Centre Wales |
| Amount | £5,390,771 (GBP) |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 12/2018 |
| End | 03/2021 |
| Description | Administrative Data Research Centre Wales (Part of ADR UK) |
| Amount | £13,196,318 (GBP) |
| Funding ID | ES/W012227/1 |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2022 |
| End | 03/2026 |
| Description | Administrative Data Research Centres |
| Amount | £7,986,463 (GBP) |
| Funding ID | ES/L007444/1 |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2013 |
| End | 09/2018 |
| Description | Alcohol Misuse: Electronic Longitudinal Alcohol Study in Communities (ELAStiC) |
| Amount | £978,102 (GBP) |
| Funding ID | ES/L015471/1 |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 11/2014 |
| End | 10/2017 |
| Description | All Wales Injury Surveillance System |
| Amount | £64,000 (GBP) |
| Organisation | Public Health Wales NHS Trust |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2017 |
| End | 03/2018 |
| Description | All-Wales Injury Surveillance System (AWISS) : 2014-15 |
| Amount | £65,116 (GBP) |
| Organisation | Public Health Wales NHS Trust |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2014 |
| End | 03/2015 |
| Description | All-Wales Injury Surveillance System (AWISS) renewal : 2015-16 |
| Amount | £64,366 (GBP) |
| Organisation | Public Health Wales NHS Trust |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2015 |
| End | 03/2016 |
| Description | Alzheimer's Disease Data Enablement Fund sponsored project: Traumatic brain injury, emotional adversity and the long-term effects on adult outcomes and dementia. |
| Amount | £612,845 (GBP) |
| Organisation | National Philanthropic Trust |
| Sector | Charity/Non Profit |
| Country | United States |
| Start | 03/2019 |
| End | 12/2019 |
| Description | Application of machine learning to discover new multimorbidity phenotypes associated with poorer outcomes |
| Amount | £554,943 (GBP) |
| Funding ID | MR/S027750/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 06/2019 |
| End | 12/2021 |
| Description | Are people with COVID-19 and pre-existing respiratory disease at a higher risk of future cardiovascular and venous thromboembolic events compared with COVID-19 patients without pre-existing respiratory disease? HDRUK/Alan Turing Institute/ONS |
| Amount | £248,760 (GBP) |
| Organisation | Health Data Research UK |
| Sector | Private |
| Country | United Kingdom |
| Start | 09/2021 |
| End | 09/2022 |
| Description | Asthma UK Centre for Applied Research |
| Amount | £2,000,000 (GBP) |
| Funding ID | AUK-AC-2012-01 |
| Organisation | Asthma UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2013 |
| End | 09/2018 |
| Description | Asthma UK Centre for Applied Research |
| Amount | £120,000 (GBP) |
| Organisation | Asthma UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2014 |
| End | 09/2017 |
| Description | BRIDGE-Health (BRidging Information and Data Generation for Evidence-based Health Policy and Research) |
| Amount | € 5,833,629 (EUR) |
| Organisation | European Commission |
| Sector | Public |
| Country | European Union (EU) |
| Start | 03/2015 |
| End | 10/2017 |
| Description | Building an understanding of Ethnic minority people's Service Use Relating to Emergency care for injuries (BE SURE) |
| Amount | £737,510 (GBP) |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2021 |
| End | 09/2023 |
| Description | CEDAR Collaboration Agreement, |
| Amount | £94,927 (GBP) |
| Organisation | National Institute for Health and Care Excellence (NICE) |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2014 |
| End | 04/2017 |
| Description | Cardiff Regional Experimental Arthritis Treatment and Evaluation (CREATE) Centre |
| Amount | £450,000 (GBP) |
| Organisation | Versus Arthritis |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 06/2012 |
| End | 06/2017 |
| Description | Cardiovascular Risk In Patients with Psoriatic and Rheumatoid Arthritis (CRIPPRA) |
| Amount | £40,508 (GBP) |
| Funding ID | W12027776 |
| Organisation | Pfizer Ltd |
| Department | Pfizer Inflammation Competitive Research Programme (I-CRP) |
| Sector | Private |
| Country | United Kingdom |
| Start | 08/2015 |
| End | 08/2016 |
| Description | Centre for Administrative Data Research and Evaluation (CADRE) |
| Amount | £7,986,463 (GBP) |
| Funding ID | ES/L007444/1 |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2013 |
| End | 09/2018 |
| Description | Centre for the Improvement of Population Health through E-records Research (CIPHER) |
| Amount | £4,374,292 (GBP) |
| Funding ID | MR/K006525/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2012 |
| End | 09/2017 |
| Description | Centre of Research Excellence in Medicines and Ageing. National Health and Medical Research Council, Centre for Research Excellence Grant |
| Amount | £1,278,130 (GBP) |
| Organisation | National Health and Medical Research Council |
| Sector | Public |
| Country | Australia |
| Start | |
| Description | Centres of Excellence in Public Health Research |
| Amount | £2,935,823 (GBP) |
| Funding ID | MR/K023233/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2014 |
| End | 12/2018 |
| Description | Child Health Clinical Outcome Review Programme |
| Amount | £1,400,000 (GBP) |
| Organisation | The Health Quality Improvement Partnership (HQIP) |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | |
| Description | Childhood Obesity and Neighbourhood Environments: Integrating MEDMI and SAIL |
| Amount | £5,000 (GBP) |
| Organisation | Medical & Environmental Data Mash-up Infrastructure |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | |
| Description | Children of CALICE risk factors for alcohol-related emergency admission to hospital in children and young people |
| Amount | £6,846 (GBP) |
| Organisation | Wellcome Trust |
| Department | Wellcome Trust Institutional Strategic Support Fund |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2015 |
| End | 12/2017 |
| Description | Collaboration with HDRUK Data-Can cancer data initiative |
| Amount | £103,302 (GBP) |
| Organisation | Health Data Research UK |
| Sector | Private |
| Country | United Kingdom |
| Start | 09/2020 |
| End | 03/2022 |
| Description | Cost of not treating Multiple Sclerosis with Disease modifying therapy |
| Amount | £149,929 (GBP) |
| Organisation | Multiple Sclerosis Society |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 01/2017 |
| End | 12/2017 |
| Description | Cystic Fibrosis Epidemiological Network (CF EpiNet) (Identifying policy-relevant determinants of health inequalities in cystic fibrosis using data linkage) |
| Amount | £140,000 (GBP) |
| Funding ID | SRC004 |
| Organisation | Cystic Fibrosis Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | |
| Description | DECIPHer: Centre for the Development and Evaluation of Complex Interventions for Public Health Improvement |
| Amount | £2,935,823 (GBP) |
| Funding ID | MR/K023233/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2014 |
| End | 12/2018 |
| Description | DVLA/DfT commissioned research |
| Amount | £100,000 (GBP) |
| Organisation | Department of Transport |
| Department | DfT, DVLA and VOSA |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2014 |
| End | 03/2015 |
| Description | Data Linkage Australia: Development and expansion of data linkage infrastructure for Western Australia to support health research |
| Amount | $5,113,948 (AUD) |
| Organisation | National Health and Medical Research Council |
| Sector | Public |
| Country | Australia |
| Start | |
| Description | Data Linkage across ambulance services and acute trusts: assessing the potential for improving patient care |
| Amount | £486,405 (GBP) |
| Organisation | The Health Foundation |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2015 |
| End | 04/2017 |
| Description | Data phenotyping longitudinal multimorbidity trajectories in cardiovascular disease: a statistical machine learning approach using nationwide electronic healthcare records |
| Amount | £301,553 (GBP) |
| Organisation | Alan Turing Institute |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 12/2019 |
| End | 11/2022 |
| Description | DataSHIELD for Accessing Sensitive HEalth Data (DASHED) |
| Amount | £19,600 (GBP) |
| Funding ID | ES/L007444/1 |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2016 |
| End | 09/2019 |
| Description | Dataflow Development |
| Amount | £279,263 (GBP) |
| Organisation | Government of Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 08/2017 |
| End | 08/2018 |
| Description | Defying the odds': Exploring the impact of perinatal outcomes, maternal social and health outcomes and level of culturally appropriate service availability on the health of Western Australian Aboriginal infants and children. National Health and Medical Re |
| Amount | £331,684 (GBP) |
| Organisation | National Health and Medical Research Council |
| Sector | Public |
| Country | Australia |
| Start | |
| Description | Development and feasibility cluster randomised controlled trial evaluation of a Peer-Led physical Activity iNtervention for Adolescent girls (PLAN-A) |
| Amount | £527,571 (GBP) |
| Funding ID | PHR/13/90/16 |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2015 |
| End | 07/2017 |
| Description | Did the Communities First regeneration programme improve mental health and enhance social cohesion? A natural experiment |
| Amount | £247,937 (GBP) |
| Funding ID | RFS-12-05 |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2012 |
| End | 09/2014 |
| Description | Does continuity of primary care reduce demand on emergency department presentations and hospital admissions? National Health & Medical Research Council, Project Grant |
| Amount | £414,739 (GBP) |
| Organisation | National Health and Medical Research Council |
| Sector | Public |
| Country | Australia |
| Start | |
| Description | Does local authority care make a difference to the lives of vulnerable children? Longitudinal analyses of a retrospective electronic cohort |
| Amount | £153,855 (GBP) |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2018 |
| End | 03/2020 |
| Description | Does local authority care make a difference to the lives of vulnerable children? Longitudinal analyses of a retrospective electronic cohort |
| Amount | £153,855 (GBP) |
| Funding ID | ES/R005478/1 |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2018 |
| End | 03/2020 |
| Description | Dynamic Insights for Health and Care |
| Amount | £57,006 (GBP) |
| Funding ID | NE/N007255/1 |
| Organisation | Natural Environment Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2016 |
| End | 04/2018 |
| Description | Dynamic Wales Electronic Cohort for Children (D-WECC): a dynamic e-cohort to assess the impact of health and social factors on inequalities in educational outcomes and child health in Wales |
| Amount | £249,010 (GBP) |
| Funding ID | RFS-12-05 |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2012 |
| End | 03/2015 |
| Description | EMRTS - ABMU |
| Amount | £31,701 (GBP) |
| Organisation | Abertawe Bro Morgannwg University Health Board |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2018 |
| End | 03/2019 |
| Description | ERA - Electronic Records in Ambulances to support the shift to out of hospital care: challenges, opportunities and workforce implications |
| Amount | £380,318 (GBP) |
| Funding ID | HS&DR/14/47/22 |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2016 |
| End | 02/2018 |
| Description | ERA - Electronic records in ambulances |
| Amount | £380,318 (GBP) |
| Funding ID | HS&DR/14/47/22 |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2016 |
| End | 02/2018 |
| Description | ERA - Electronic records in ambulances |
| Amount | £380,317 (GBP) |
| Funding ID | 14/47/22 |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2016 |
| End | 02/2018 |
| Description | EVALUATION OF THE OUTCOMES OF THE FAMILY NURSE PARTNERSHIP PROGRAMME IN SCOTLAND |
| Amount | £183,000 (GBP) |
| Organisation | Government of Scotland |
| Sector | Public |
| Country | United Kingdom |
| Start | |
| Description | Electricity Safety Council |
| Amount | £5,000 (GBP) |
| Organisation | National Home Improvement Council (NHIC) |
| Department | Electricity Safety Council |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2012 |
| End | 09/2013 |
| Description | Enabling data linkage in CLOSER studies: The DaLEC study (Data Linkage in Epidemiological Cohorts). CLOSER internal investigator award |
| Amount | £140,000 (GBP) |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2016 |
| End | 12/2016 |
| Description | Epidemiology of rheumatoid arthritis in Western Australia. |
| Amount | £13,060 (GBP) |
| Organisation | Arthritis Australia |
| Sector | Charity/Non Profit |
| Country | Australia |
| Start | |
| Description | Evaluating the impact of opiate substitution treatment on drug related deaths in the population: a natural experiment using primary care, other drug treatment databases and model projections (NIHR HS&DR CPRD) |
| Amount | £262,873 (GBP) |
| Funding ID | HS&DR/12/136/105 |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2014 |
| End | 12/2015 |
| Description | Evaluation of "LIVING WELL LIVING LONGER" programme |
| Amount | £41,600 (GBP) |
| Organisation | Aneurin Bevan University Health Board |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2016 |
| End | 03/2019 |
| Description | Evaluation of an Integrated Healthcare Services Model of Care. Medibank Health Solutions Grant |
| Amount | £179,198 (GBP) |
| Organisation | Medibank Health Solutions |
| Sector | Private |
| Country | Australia |
| Start | |
| Description | Evaluation of the Neath Port Talbot Air Quality Alert System |
| Amount | £20,000 (GBP) |
| Organisation | Neath Port Talbot County Borough Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 08/2011 |
| End | 12/2014 |
| Description | Farr Institute: A collaborative proposal submitted by the four UK Health Informatics Research Centres |
| Amount | £5,000,000 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2013 |
| End | 03/2014 |
| Description | Farr NLP open source software development |
| Amount | £48,470 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 11/2017 |
| End | 10/2018 |
| Description | Feasibility of using consumer-targeted activity monitors in collecting physical activity data within the HealthWise Wales cohort: A pragmatic pilot study |
| Amount | £22,731 (GBP) |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | |
| Description | Green-blue space exposure changes and impact on individual-level wellbeing and mental health: a population-wide record-linked natural experiment |
| Amount | £613,804 (GBP) |
| Funding ID | PHR/16/07/07 |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2018 |
| End | 03/2021 |
| Description | HDRUK |
| Amount | £3,003,650 (GBP) |
| Funding ID | NIWA1 |
| Organisation | Health Data Research UK |
| Sector | Private |
| Country | United Kingdom |
| Start | 04/2018 |
| End | 04/2023 |
| Description | HGT5 funding for SBRI Innovation Catalyst Programme |
| Amount | £49,552 (GBP) |
| Organisation | European Commission |
| Department | European Social Fund |
| Sector | Public |
| Country | European Union (EU) |
| Start | 03/2014 |
| End | 04/2016 |
| Description | HTA Primary Care Interventions Themed Call |
| Amount | £1,691,831 (GBP) |
| Organisation | National Institute for Health Research |
| Department | Health Technology Assessment Programme (HTA) |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2015 |
| End | 12/2018 |
| Description | Health and social consequences of child abuse and neglect: an analysis using South Australian linked data. |
| Amount | £357,576 (GBP) |
| Organisation | National Health and Medical Research Council |
| Sector | Public |
| Country | Australia |
| Start | |
| Description | Health outcomes of children and adults with learning difficulties |
| Amount | £30,000 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2016 |
| End | 04/2017 |
| Description | HealthWise Wales |
| Amount | £1,600,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2015 |
| End | 03/2018 |
| Description | Identifying the true cost of asthma in the UK: secondary analyses of national stand-alone and linked databases in England, Northern Ireland, Scotland and Wales |
| Amount | £99,608 (GBP) |
| Funding ID | AUK-PG-2012-178 |
| Organisation | Asthma UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | |
| Description | Increasing neonatal survival in low-resource settings: evidence from South Africa's Perinatal Problem Identification Program. UWA Research Collaboration Award |
| Amount | £8,881 (GBP) |
| Organisation | UWA Research Collaboration Award (RCA) |
| Sector | Academic/University |
| Country | Australia |
| Start | |
| Description | Information for Action (InfAct) |
| Amount | € 151,003 (EUR) |
| Funding ID | 776487 |
| Organisation | European Commission |
| Sector | Public |
| Country | European Union (EU) |
| Start | 03/2018 |
| End | 02/2021 |
| Description | Innovative Governance Workstream |
| Amount | £45,000 (GBP) |
| Organisation | University of Edinburgh |
| Department | Health Informatics Research Network, Edinburgh University |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | |
| Description | Integrated DEmentiA research environment (IDEA) |
| Amount | £321,000 (GBP) |
| Funding ID | MR/M024881/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2015 |
| End | 03/2016 |
| Description | Integrating personalised genomics into risk stratification models of population screening for cancer. Cancer Council Wester Australia, Capacity Building & Collaboration Grant |
| Amount | £626,917 (GBP) |
| Organisation | Cancer Council Western Australia |
| Sector | Hospitals |
| Country | Australia |
| Start | |
| Description | International Digital Healthcare Conference grant |
| Amount | £50,000 (GBP) |
| Organisation | Welsh Assembly |
| Department | Welsh Government A4B programme |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2014 |
| End | 04/2016 |
| Description | MQ Adolescent Data Platform. MQ Transforming Lives |
| Amount | £800,000 (GBP) |
| Organisation | MQ Mental Health Research |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 01/2018 |
| End | 12/2020 |
| Description | MRC |
| Amount | £1,328,163 (GBP) |
| Funding ID | MR/M006727/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | |
| Description | MRC Dementias Platform |
| Amount | £4,511,230 (GBP) |
| Funding ID | MR/L015382/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2014 |
| End | 03/2019 |
| Description | MRC Medical Bioinformatics |
| Amount | £8,500,000 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | |
| Description | MRC Strategic Skills Fellowship |
| Amount | £197,300 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2014 |
| End | 03/2019 |
| Description | MS register - Extension |
| Amount | £181,244 (GBP) |
| Organisation | Multiple Sclerosis Society |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2018 |
| End | 11/2018 |
| Description | Machine learning and text mining techniques for accurate disease phenotyping from SNOMED derived clinical texts |
| Amount | £55,026 (GBP) |
| Organisation | Government of Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | |
| Description | Mind the Gap! An examination of the interface between primary and secondary healthcare for eating disorders |
| Amount | £212,312 (GBP) |
| Funding ID | HRA-1079 |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2015 |
| End | 09/2017 |
| Description | Mobile Operator-Related Phone & Health Data (MORPHeD) Governance: A review of the information governance implications of combining mobile phone network data with health data |
| Amount | £45,000 (GBP) |
| Organisation | Natural Environment Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2016 |
| End | 09/2017 |
| Description | Morbidity following urinary tract infection in young children: an electronic record- linked cohort study |
| Amount | £284,000 (GBP) |
| Funding ID | HRA-15-1068 |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | |
| Description | Morbidity following urnary tract infection in young children: an electronic record-linked cohort study |
| Amount | £248,000 (GBP) |
| Funding ID | HRA-15-1068 |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | |
| Description | Multi-funder call (MRC, BHF, CRUK, ESRC, Welsh Govt, Wellcome, UKCRC) : DECIPHer |
| Amount | £2,935,822 (GBP) |
| Funding ID | MR/K023233/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2014 |
| End | 12/2018 |
| Description | MytHICAL- Mental Health Informatics in Children, Adolescents and young adults How do my feelings become numbers? |
| Amount | £708,219 (GBP) |
| Funding ID | MC_PC_17211 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2018 |
| End | 03/2020 |
| Description | NICE Cardiac Ablation Project |
| Amount | £19,624 (GBP) |
| Organisation | Cardiff University |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 03/2014 |
| End | 04/2016 |
| Description | NIHR Doctoral Fellowship |
| Amount | £247,752 (GBP) |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | |
| Description | NIHR HS&DR Programme - GPs in EDs - Evaluating Effectiveness, safety, patient experience and system implications of different models of using GPs in or alongside Emergency Departments |
| Amount | £943,936 (GBP) |
| Funding ID | 15/145/04 |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2017 |
| End | 09/2019 |
| Description | NIHR Health Protection Research Unit (Evaluation) (NIHR HPRU) |
| Amount | £3,865,761 (GBP) |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2014 |
| End | 03/2019 |
| Description | NIHR Health Technology Assessment Programme - Care of older people who fall: evaluation of the clinical and cost effectiveness of new protocols for emergency ambulance paramedics to assess and refer to appropriate community based care |
| Amount | £1,843,786 (GBP) |
| Funding ID | 07/01/21 |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2009 |
| End | 01/2014 |
| Description | NIHR Public Health Research Programme |
| Amount | £736,755 (GBP) |
| Funding ID | 11/3020/05 |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2013 |
| End | 12/2015 |
| Description | NISCHR |
| Amount | £1,600,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | |
| Description | NISCHR Centre for Population Health and Wellbeing Research |
| Amount | £2,250,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2015 |
| End | 03/2018 |
| Description | NISCHR Health Call |
| Amount | £247,937 (GBP) |
| Funding ID | RFS-12-05 |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2012 |
| End | 09/2014 |
| Description | NISCHR Health Call |
| Amount | £249,010 (GBP) |
| Funding ID | RFS-12-39 |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2012 |
| End | 09/2014 |
| Description | NISCHR Health Call |
| Amount | £247,937 (GBP) |
| Funding ID | RFS-12-05 |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2012 |
| End | 09/2014 |
| Description | NISCHR Health Fellowship Award 2014 |
| Amount | £258,167 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2015 |
| End | 09/2017 |
| Description | NISCHR RFS: Social Care Research Award |
| Amount | £175,445 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2013 |
| End | 03/2015 |
| Description | NISCHR RfPB |
| Amount | £170,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2013 |
| End | 03/2015 |
| Description | NISCHR: RFS Social Care Research Award |
| Amount | £151,464 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2013 |
| End | 03/2015 |
| Description | National Ankylosing Spondylitis Society |
| Amount | £30,000 (GBP) |
| Organisation | National Ankylosing Spondylitis Society |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 07/2015 |
| End | 07/2016 |
| Description | National Centre for Population Health and Wellbeing Research (NCPHWR) |
| Amount | £3,356,125 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2020 |
| End | 03/2025 |
| Description | National Core Studies - Data Sprint |
| Amount | £1,417,500 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2021 |
| Description | National Health and Medical Research Council (NHMRC) Project Grants 2014 |
| Amount | $738,450 (AUD) |
| Funding ID | APP1061786 |
| Organisation | National Health and Medical Research Council |
| Sector | Public |
| Country | Australia |
| Start | 03/2014 |
| End | 03/2018 |
| Description | National Virtual Incubator at Swansea |
| Amount | £205,000 (GBP) |
| Organisation | Government of Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2013 |
| End | 03/2016 |
| Description | PREVENTING CHILD INJURIES IN WALES NEEDS ASSESSMENT |
| Amount | £25,985 (GBP) |
| Organisation | Public Health Wales NHS Trust |
| Sector | Public |
| Country | United Kingdom |
| Start | 08/2015 |
| End | 03/2016 |
| Description | PRIME Centre Wales - Wales Centre for Primary and Emergency Care Research |
| Amount | £2,666,903 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2015 |
| End | 03/2018 |
| Description | PRISMATIC - Predictive risk stratification: impact on care for people with or at risk of chronic conditions |
| Amount | £691,101 (GBP) |
| Funding ID | 09/1801/1054 |
| Organisation | National Institute for Health Research |
| Department | Health Services and Delivery Research (HS&DR) Programme |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 08/2010 |
| End | 08/2015 |
| Description | Paediatric Validating Injury Burden Estimates Study (VIBES-Junior) |
| Amount | $490,000 (AUD) |
| Organisation | National Health and Medical Research Council |
| Sector | Public |
| Country | Australia |
| Start | |
| Description | Pattern of recovery following serious injury and implications for service delivery |
| Amount | $738,450 (AUD) |
| Funding ID | APP1061786 |
| Organisation | National Health and Medical Research Council |
| Sector | Public |
| Country | Australia |
| Start | 03/2014 |
| End | 03/2018 |
| Description | Pattern of recovery following serious injury and implications for service delivery |
| Amount | $872,800 (AUD) |
| Organisation | National Health and Medical Research Council |
| Sector | Public |
| Country | Australia |
| Start | 03/2014 |
| End | 03/2018 |
| Description | PhD Studentship in applied asthma research : A validation of the health and social costs of asthma using questionnaire data |
| Amount | £60,000 (GBP) |
| Organisation | Asthma UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | |
| Description | Pharmacoepidemiological surveillance for children with chronic conditions using data mining |
| Amount | £15,000 (GBP) |
| Organisation | Farr Institute of Health Informatics Research |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 09/2016 |
| End | 09/2017 |
| Description | Professor Lyons, Swansea University, Health Attainment of Pupils in Primary Education Network (HAPPEN), +3 (Fellowship) - start date Oct16 (3 years) (Ronan) |
| Amount | £57,501 (GBP) |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2016 |
| End | 09/2019 |
| Description | Provision of healthcare data and support to the UK Biobank cohor |
| Amount | £429,544 (GBP) |
| Organisation | UK Biobank |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 01/2012 |
| End | 12/2015 |
| Description | RCT of ACTIVE - Randomised Control Trial of Active Children Through Individual Vouchers Evaluation |
| Amount | £299,904 (GBP) |
| Funding ID | PG/16/16/32057 |
| Organisation | British Heart Foundation (BHF) |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | |
| Description | Reducing Arthritis Fatigue - clinical teams using cognitive behavioural approaches (RAFT) |
| Amount | £448,024 (GBP) |
| Funding ID | HTA/11/112/01 |
| Organisation | National Institute for Health Research |
| Department | Health Technology Assessment Programme (HTA) |
| Sector | Public |
| Country | United Kingdom |
| Start | 11/2013 |
| End | 07/2017 |
| Description | Research grant, Innovation "Air pollution, pollen, asthma and hayfever and their interactive effect on cognitive development: an environment and health data linkage feasibility study" |
| Amount | £109,851 (GBP) |
| Funding ID | NE/P010660/1 |
| Organisation | Natural Environment Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2017 |
| End | 12/2017 |
| Description | Review of evidence relating to harms resulting from security breaches or infringement of privacy involving sensitive personal biomedical and health data (including any knock on effects on beneficial data sharing). (Nuffield Evidence Review) |
| Amount | £8,000 (GBP) |
| Organisation | Nuffield Council on Bioethics |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2014 |
| End | 08/2015 |
| Description | SAIL Dementia eCohort |
| Amount | £50,308 (GBP) |
| Organisation | UK Dementia Research Institute |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 01/2021 |
| End | 08/2021 |
| Description | Sail Databank extension |
| Amount | £1,373,112 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2018 |
| End | 03/2020 |
| Description | School Health Action Research Partnership and Network (SHARPEN): scoping and feasibility study |
| Amount | £500,755 (GBP) |
| Funding ID | MR/L002787/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2013 |
| End | 04/2015 |
| Description | Secure Anonymised Information Linkage (SAIL) Databank |
| Amount | £2,059,668 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2015 |
| End | 03/2018 |
| Description | Secure Anonymised Information Linkage Databank (SAIL). |
| Amount | £4,837,844 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2020 |
| End | 03/2025 |
| Description | Self Harm electronic Portal (SHeP) |
| Amount | £66,000 (GBP) |
| Funding ID | SCS-14-11 |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | |
| Description | Senior Faculty Award |
| Amount | £15,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2017 |
| End | 03/2018 |
| Description | Senior Faculty Award |
| Amount | £15,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2018 |
| End | 03/2019 |
| Description | Senior Faculty Award (2013/14) |
| Amount | £15,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2013 |
| End | 03/2014 |
| Description | Senior Faculty Award (2014/15) |
| Amount | £15,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2014 |
| End | 03/2015 |
| Description | Senior Faculty Award (2015/16) |
| Amount | £15,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2015 |
| End | 03/2016 |
| Description | Senior Faculty Award (2016-17) |
| Amount | £15,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2016 |
| End | 03/2017 |
| Description | Senior Research Leaders Discretionary Award |
| Amount | £15,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2021 |
| End | 03/2022 |
| Description | Support to Public Health Wales' Specialist Training Programme |
| Amount | £54,212 (GBP) |
| Organisation | Public Health Wales NHS Trust |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2015 |
| End | 03/2017 |
| Description | Supporting people |
| Amount | £268,000 (GBP) |
| Organisation | Government of Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2016 |
| End | 03/2020 |
| Description | Swansea University Staff Bursary |
| Amount | £9,300 (GBP) |
| Funding ID | 451864 |
| Organisation | Swansea University |
| Department | College of Medicine |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 06/2014 |
| End | 09/2021 |
| Description | The Airwave Health Monitoring Study (AHMS). An Occupational Cohort Study of the British Police Forces |
| Amount | £1,941,097 (GBP) |
| Funding ID | MR/R023484/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2018 |
| End | 04/2023 |
| Description | The CHERISH_DE Centre |
| Amount | £3,017,488 (GBP) |
| Organisation | Engineering and Physical Sciences Research Council (EPSRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 12/2015 |
| End | 12/2020 |
| Description | The National Centre for Mental Health (NCMH) |
| Amount | £3,833,764 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2015 |
| End | 03/2018 |
| Description | The UK Birth Cohort Study of environment, development, health and wellbeing: interim contract |
| Amount | £12,248 (GBP) |
| Funding ID | ES/J007501/1 |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2011 |
| End | 09/2012 |
| Description | The UK Multiple Sclerosis Register |
| Amount | £755,611 (GBP) |
| Organisation | Multiple Sclerosis Society |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2014 |
| End | 04/2017 |
| Description | The UK Multiple Sclerosis Register |
| Amount | £285,212 (GBP) |
| Organisation | Multiple Sclerosis Society |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2013 |
| End | 03/2014 |
| Description | The Welsh Study of Mothers and Babies: Follow-up of a population-based cohort of children aged 4-6 years |
| Amount | £24,000 (GBP) |
| Organisation | Wellcome Trust |
| Department | Wellcome Trust Institutional Strategic Support Fund |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | |
| Description | The cost of ankylosing spondylitis using patient reported outcomes and routine anonymised linked data |
| Amount | £44,234 (GBP) |
| Organisation | Pfizer Ltd |
| Sector | Private |
| Country | United Kingdom |
| Start | 07/2012 |
| End | 07/2013 |
| Description | The cost of ankylosing spondylitis using patient reported outcomes and routine anonymised linked data |
| Amount | £44,234 (GBP) |
| Organisation | Pfizer Ltd |
| Department | Pfizer Inflammation Competitive Research Programme (I-CRP) |
| Sector | Private |
| Country | United Kingdom |
| Start | 07/2013 |
| End | 08/2014 |
| Description | The effectiveness and cost effectiveness of an employer-led intervention to increase walking during the daily commute |
| Amount | £972,682 (GBP) |
| Funding ID | PHR/13/117/01 |
| Organisation | National Institute for Health Research |
| Department | Public Health Research (PHR) Programme |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | |
| Description | The epidemiology, healthcare and societal cost of Melanoma in Wales: Analyses of standalone and linked national databases |
| Amount | £7,706 (GBP) |
| Funding ID | TIG2019-08 |
| Organisation | Tenovus Cancer Care |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2019 |
| End | 03/2021 |
| Description | The health impacts of structural energy performance investments in Wales: an evaluation of the Arbed Programme |
| Amount | £736,755 (GBP) |
| Funding ID | 11/3020/05 |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2013 |
| End | 12/2015 |
| Description | The impact of COVID-19 on health equality and mortality in people with epilepsy in Wales |
| Amount | £158,810 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2021 |
| End | 09/2022 |
| Description | The role of SL-6R Mediated Trans-signalling in Cardiovascular Morbidity |
| Amount | £100,000 (GBP) |
| Organisation | F. Hoffmann-La Roche AG |
| Sector | Private |
| Country | Global |
| Start | |
| Description | Transient Ischaemic Attack 999 Emergency Referral (TIER): feasibility trial |
| Amount | £238,139 (GBP) |
| Funding ID | RfPPB-1053 |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2015 |
| End | 02/2016 |
| Description | UK MEDical BIOinformatics partnership - aggregation, integration, visualisation and analysis of large, complex data (UK MED-BIO). |
| Amount | £5,941,410 (GBP) |
| Funding ID | MR/L01632X/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 05/2014 |
| End | 05/2019 |
| Description | UK MS Register |
| Amount | £897,833 (GBP) |
| Organisation | Multiple Sclerosis Society |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2014 |
| End | 03/2017 |
| Description | UK MS register |
| Amount | £309,267 (GBP) |
| Organisation | Multiple Sclerosis Society |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2017 |
| End | 05/2018 |
| Description | UKRI Innovation / Rutherford Fund Fellowships at HDR UK |
| Amount | £560,000 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 02/2018 |
| End | 02/2021 |
| Description | Understanding healthcare utilisation of responders and non-responders to the bowel screening programme in Wales before and after invitation to screening in order to improve early detection either through screening or opportunistic testing |
| Amount | £103,603 (GBP) |
| Funding ID | C42767/A13690 |
| Organisation | Cancer Research UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 05/2012 |
| End | 05/2014 |
| Description | Unravelling polypharmacy: Mining the complex interaction patterns between medications for enhanced patient care |
| Amount | £56,000 (GBP) |
| Organisation | Swansea University |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | |
| Description | Using electronic linkage analysis to inform the development of an improved care pathway for psychiatric and self-harm emergencies currently transferred by ambulance to Emergency Departments |
| Amount | £30,000 (GBP) |
| Funding ID | HICG/1/27 |
| Organisation | Chief Fire Officers Associaton (CFOA) |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 04/2015 |
| End | 02/2016 |
| Description | Using health record linkage in the Millennium Cohort Study to investigate childhood obesity, asthma and infections |
| Amount | £313,934 (GBP) |
| Funding ID | 087389/B/08/Z |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2015 |
| End | 03/2017 |
| Description | WCRC |
| Amount | £4,500,000 (GBP) |
| Organisation | NHS England |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2015 |
| End | 03/2018 |
| Description | Wales Cancer Bank. Subcontract to Cardiff University for information system development. |
| Amount | £502,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | |
| Description | Wales Centre for Primary and Emergency Care Research - PRIME Centre Wales |
| Amount | £2,700,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2015 |
| End | 03/2018 |
| Description | Wales Kidney Research Unit |
| Amount | £121,644 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2018 |
| End | 09/2020 |
| Description | Wales Kidney Research Unit (WKRU) |
| Amount | £212,313 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2015 |
| End | 03/2018 |
| Description | Wales/NI substantive site. HDR UK |
| Amount | £3,003,650 (GBP) |
| Organisation | Health Data Research UK |
| Sector | Private |
| Country | United Kingdom |
| Start | 04/2018 |
| End | 04/2023 |
| Description | Web-Based recruitment to cohort studies |
| Amount | £93,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | |
| Description | Wellcome Trust Strategic Award |
| Amount | £7,756,000 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2014 |
| End | 03/2019 |
| Description | Welsh Government Social Policy Research Funding: Fuel Poverty |
| Amount | £190,000 (GBP) |
| Organisation | Government of Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2014 |
| End | 01/2018 |
| Description | Welsh Government Social Policy Research Funding: Supporting People (Feasibility Study) |
| Amount | £60,000 (GBP) |
| Organisation | Government of Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2015 |
| End | 05/2016 |
| Description | Welsh SBRI Innovation Catalyst Programme |
| Amount | £785,010 (GBP) |
| Organisation | Government of Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2014 |
| End | 04/2016 |
| Description | What is the uptake, safety and effectiveness of COVID-19 vaccines in: a. pregnancy; b. children and young people; c. those receiving booster doses; d. those co-administered COVID-19 and influenza vaccines? |
| Amount | £249,775 (GBP) |
| Organisation | Health Data Research UK |
| Sector | Private |
| Country | United Kingdom |
| Start | 09/2021 |
| End | 09/2022 |
| Description | Whole Genome Sequencing for Health and Wealth: A bid to establish the Wales Genomic Medicine Centre to contribute to the UK 100,000 Genomes Project and Strengthen Genomics in Wales |
| Amount | £2,351,522 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 12/2016 |
| End | 11/2018 |
| Description | Wolfson Foundation |
| Amount | £10,000,000 (GBP) |
| Organisation | The Wolfson Foundation |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 08/2019 |
| Description | World Universities Network Research Development Fund - Workshop on sharing sensitive data |
| Amount | £25,028 (GBP) |
| Organisation | Worldwide Universities Network |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 07/2016 |
| End | 08/2017 |
| Title | DPUK Data Portal |
| Description | The DPUK Data Portal has been relaunched to include a seamless transition from the DPUK main welcome site into the research infrastructure. The Portal, hosted by Swansea University, now includes openly available metadata on the DPUK cohorts, as well as information on the various parts of the infrastructure, which include: Portal analysis environment powered by virtual desktop infrastructure, imaging platform powered by XNAT, genetic platform created by Digital Health Labs, data linkage possibilities using world-leading matching technology, and a new and easy-to-use application form for researchers to apply for access to data, based on categorised dementia-specific data ontologies. The Portal is now supporting data access applications with dedicated resource to manage this process, and data management based on consultation with other data consortia and the cohorts themselves is underway using novel data management infrastructure (research data appliance based at Swansea University), enabling governance to remain entirely with the data provider and data access permissions to be managed by a central facility. |
| Type Of Material | Improvements to research infrastructure |
| Year Produced | 2017 |
| Provided To Others? | Yes |
| Impact | The relaunch of the Portal has seen a surge in scientific collaboration in DPUK - for the period November 2017-January 2018, there are 12 live studies on the Portal, all using multiple cohorts and all cross-institution, including internationally-led studies from Maastricht University and the University of Hong Kong. These studies have primarily phenotypic data as their main modality, however we are also seeing the combination of phenotypic, genotypic and imaging data in studies, thus showing the power of a central system for accessing and analysing data from previously disparate sources. Genetics and imaging work packages are also contributing to the studies being supported by DPUK, and the Portal is making data available to specialists in these areas in order for them to derive services for the epidemiological community to make use of data that was previously unobtainable, either due to access difficulties or specialist intervention being necessary. |
| URL | https://portal.dementiasplatform.uk/ |
| Title | DPUK Data Portal Datathon Virtual Desktop |
| Description | Bespoke virtual desktop infrastructure for DPUK Datathons - comprising of dedicated 32GB RAM/4 CPU machines supporting up to 60 concurrent users. Pre-loaded with software such as Stata 16, SPSS, SAS, R, Python (Anaconda), PyCharm, Spyder, Jupyter Notebook, Eclipse, SQL Server Management Studio, Matlab, and Office. |
| Type Of Material | Improvements to research infrastructure |
| Year Produced | 2018 |
| Provided To Others? | Yes |
| Impact | The dedicated Datathon desktop has allowed us to run 4 DPUK Datathon events across the UK, which have had an international audience of over 150 researchers cumulatively. |
| URL | https://portal.dementiasplatform.uk/ |
| Title | SAIL Dementia eCohort (SAILDeC) |
| Description | DPUK has funded the creation of the SAIL (Secure Anonymised Information Linkage) Databank Dementia eCohort, known as SAILDeC. A team from the University of Edinburgh, led by Dr Tim Wilkinson and Dr Christian Schnier, have developed a research cohort from routine healthcare records found in the SAIL Databank, a research databank containing routine healthcare and adminstrative records for the Welsh populace. The eCohort is derived from 1.2 million individuals who met the inclusion criteria, and of those, ~130,000 dementia cases throughout the data coverage have been identified. This represents the first UK research-ready disease cohort derived solely from routine healthcare records, which can be analysed in its own right or combined with other rich sources of cohort and routine data. It is thought that the technical components of creating the cohort, in terms of coding and initial analysis, could be the lead for future eCohort generation in other disease fields. These eCohorts could then be analysed within their specific area of science, or combined for a rich multi-morbidity database. |
| Type Of Material | Database/Collection of data |
| Year Produced | 2019 |
| Provided To Others? | Yes |
| Impact | This is the first disease-specific eCohort of patients to be created from ~20 years of routine healthcare data. It provides a rich dementia-specific resource for episodic progression of patients with initial MCI through to mortality, and every stage in between. The process of creating the cohort can inform the creation of such cohorts from the SAIL source and other routine clinical data sources in many disease areas. |
| Title | The Housing Regeneration and Health Study dataset |
| Description | Data held within the SAIL gateway to analyse an intervention on housing and health |
| Type Of Material | Database/Collection of data |
| Year Produced | 2016 |
| Provided To Others? | Yes |
| Impact | Dataset allowed us to evaluate a regional housing intervention at the individual level to produce exciting results about the impact on emergency hospital admissions. Dataset is available to use through the SAIL gateway. We are attempting to secure funding for further analyses through the ESRC Doctoral Training Partnership awards |
| Title | Dementias Platform UK Data Portal |
| Description | The DPUK Data Portal is a platform to allow the ingress of data from cohort studies and real-world evidence data from across the UK and internationally. The Portal allows access, subject to data provider approval, to said data via an integrated application system, and provides an analysis environment on remote desktop to allow distributed team science from anywhere in the world. The Portal environment comprises of front end user tools, a virtual desktop infrastructure for data analysis, a security system for permissions management and data upload, and an underlying architecture of substantial storage and applications to support the data needs. |
| Type Of Technology | Webtool/Application |
| Year Produced | 2017 |
| Impact | To date (early 2019) we have had ~80 applications for cohort data via our new processes. Of these, 50 have been approved and at least 25 studies are underway with analysis of their approved cohort data. All of these studies are contributing to the dementia research community with a mixture of traditional epidemiological hypotheses, methodology validation, complex machine learning, and statistical modelling all being achieved in the Portal. Website: https://portal.dementiasplatform.uk |
| Title | UKSeRP (UK Secure eResearch Platform) |
| Description | UKSeRP is a secure data management and analysis platform created through MRC's capital investment in the Farr Institute. It is an integrated suite of hardware and software tools that enables uses to upload and remotely manage their data and make the data available for analysis to distributed research teams. UKSeRP instances have been created for the MRC Dementias Platform UK, UK Biobank outcome adjudication group, ALSPAC, linked Millennium Cohort Data and the Multiple Sclerosis Register. |
| Type Of Technology | Webtool/Application |
| Year Produced | 2014 |
| Impact | UKSeRP supports the development and implementation of distributed multi-disciplinary UK Team Science in providing access to multi-modal multi-cohort data. |
| Description | Secure Anonymised Information Linkage (SAIL) and Wales Electronic Cohort for Children (WECC) - 22/4/16 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Secure Anonymised Information Linkage (SAIL) and Wales Electronic Cohort for Children (WECC). National Centre for Population Health and Wellbeing Research, Newport |
| Year(s) Of Engagement Activity | 2016 |
| Description | Understanding and improving complex interventions through linked data - The Informatics for Health Conference, Manchester 2017 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation at the Informatics for Health conference in Manchester 2017 to an audience of about 60 including professional practitioners, third party organisations. Following the presentation there were many questions and the audience had increased in the topic area. |
| Year(s) Of Engagement Activity | 2018 |
| URL | http://informaticsforhealth.org/ |
| Description | "Data-driven drug safety signal detection methods in pharmacovigilance using electronic primary care records: A population based study, 2016 International Population Data Linkage Conference" |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Raised the awareness of adverse drug issues and inspired the application of data-driven approach to this new domain |
| Year(s) Of Engagement Activity | 2016 |
| Description | "Development of data-driven framework for automatically identifying patient cohorts from linked electronic health records, 2016 International Population Data Linkage Conference" |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Inspired the cross-disciplinary research across computer science, epidemiology, public health, health informatics |
| Year(s) Of Engagement Activity | 2016 |
| Description | "Presentation entitled Data Linking Progress and Plans at Welsh Statistical Liaison Committee" |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Around 20 attendees; further discussions re use of data linking across public sector in Wales - Sarah Lowe |
| Year(s) Of Engagement Activity | 2014 |
| Description | "Presentation entitled The WG Programme to Maximise the Use of Existing Data Data Linkage Demonstration Projects at the WISERD Conference" - June 2014 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | "Presentation entitled The WG Programme to Maximise the Use of Existing Data Data Linkage Demonstration Projects at the WISERD Conference" - Sarah Lowe |
| Year(s) Of Engagement Activity | 2014 |
| Description | (2015.04.17) - Working Group: ABMU and Swansea University SBRI Project Board Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Intended purpose: To make decisions Outcomes: New direction for important new initiaitve in Wales |
| Year(s) Of Engagement Activity | 2015 |
| Description | 03/07/17 Data Science at Swansea. Meeting with International Consortium for Health Outcome Measurement (ICHOM), Swansea |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Meeting with International Consortium for Health Outcome Measurement (ICHOM), Swansea |
| Year(s) Of Engagement Activity | 2017 |
| Description | 07/03/17 Evaluation of natural experiments of social & environmental interventions with potential impacts on population risk of diabetes and cardio-metabolic disease: the challenge of data availability |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | National Network of Public Health Institutes, Atlanta, US |
| Year(s) Of Engagement Activity | 2017 |
| Description | 10/08/17 Injury surveillance in Europe and the international context. Presentation to Royal Society for the Prevention of Accidents (RoSPA)., Public Health England and Royal Society of Emergency Medicine meeting 'Delivering the benefits of the ECDC', Birmingham |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Public Health England and Royal Society of Emergency Medicine meeting 'Delivering the benefits of the ECDC', Birmingham |
| Year(s) Of Engagement Activity | 2017 |
| Description | 11/05/17 Data Science Developments: options and opportunities for UK health data science. Presentation to All-Wales Critical Care and Trauma Network, Cardiff |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation to All-Wales Critical Care and Trauma Network, Cardiff |
| Year(s) Of Engagement Activity | 2017 |
| Description | 12-14/9/18 - IPDLN conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Linking Data - Improving Lives, a forum for the presentation and discussion of research and innovation in the area of Linked Population Data Science and Policy Impact. |
| Year(s) Of Engagement Activity | 2018 |
| Description | 15/06/17 Health informatics research - a view from Wales. OSCHR Health Informatics Group, London |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | OSCHR Health Informatics Group, London |
| Year(s) Of Engagement Activity | 2017 |
| Description | 16-02-17 - HealthWise Wales Steering Group (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Board meeting - Steering national strategy for new research infrastucture |
| Year(s) Of Engagement Activity | 2016 |
| Description | 16/05/17 Big data approaches to population health, Cardiff University Population Health Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Cardiff University Population Health Conference |
| Year(s) Of Engagement Activity | 2017 |
| Description | 16/08/17 SAIL. Presentation to British medical association and GPC Wales Committee, Cardiff |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Cardiff |
| Year(s) Of Engagement Activity | 2017 |
| Description | 17/01/17 Data linkage: an essential tool for efficient observational and interventional research and service delivery |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation for visit of Graham Spittle (MRC), Swansea |
| Year(s) Of Engagement Activity | 2017 |
| Description | 19/06/17 Linkage of routine data, use of the SAIL database and its application in orthopaedic research, Trauma and Orthopaedic Department Cardiff and Vale NHS Trust, Cardiff |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Trauma and Orthopaedic Department Cardiff and Vale NHS Trust |
| Year(s) Of Engagement Activity | 2017 |
| Description | 19/07/17 Harnessing Big Data to improve Respiratory Health, Cardiff, |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Asthma UK and British Lung Foundation |
| Year(s) Of Engagement Activity | 2017 |
| Description | 19/07/17 Round table discussion with NHS, academia, and funders (Asthma UK and British Lung Foundation) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Asthma UK and British Lung Foundation |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2-3/7/18 - International Workshop to develop a Burn Prevention Toolkit for resource-poor settings |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | As part of our comprehensive approach to improving burn care and prevention in resource poor setting, Interburns will be developing a Burn Prevention & Implementation Toolkit. The purpose of this Toolkit is to provide an evidence-based resource on the different tools available for primary prevention of burn injuries at the community level, which can be adapted to the specific needs and context of a country, region or individual community. In order to ensure this Toolkit can be effective in a wide range of settings internationally, the development workshop will bring together a wide range of professionals with relevant expertise from across the world. Ronan invited to participate in the development workshop for this programme, which is hosted in Swansea over 2 days on 2nd & 3rd July 2018, by the Centre for Global Burn Injury Policy and Research (CGBIPR) at Swansea University in the UK. |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2016-05-24 - Launch of the Irish Research Board' national data strategy (DVF) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Outlining Swansea's contribution to the Irish national strategy |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.hrb.ie/uploads/tx_hrbpublications/Proposals_for_an_Enabling_Data_Environment_for_Health_a... |
| Description | 2016-06-07 - HealthWise Wales Scientific Steering Group (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Steering high profile project with large public engagement component |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.healthwisewales.gov.wales/landingPage.php |
| Description | 2016-06-28 - Presentation to DVLA new CTO and colleagues (DVF) |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Better understanding of Swansea's data linkage facilities |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.01.14 Academy or Medical Sciences working group - 2016.01.14 (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Working up high impact publication, shaping data collection mechanisms |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://acmedsci.ac.uk/file-download/41399-5807581429f81.pdf |
| Description | 2016.01.16 - HealthWise Wales Biosampling Workshop (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussion of new approaches to sample collection for Health Wise Wales program |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.01.18 - Strategy meeting with Janssen Pharmaceuticals (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Establishing a working relationship with the company for joint research |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.01.19 - Health and Care Research Wales Board (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | National health R&D strategic development |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.01.21 CHERISH-DE National Center Launch (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Launch event |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.02.02 - Presentation to NHS Digital's Data Access Advisory Group (DVF) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Overview of safe data linkage and sharing opportunities |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.02.11 - Meeting with GE Healthcare (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Supporters |
| Results and Impact | Discussions leading to a research collaboration |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.02.29 - Novartis Steering Group Meeting (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Establishing a working relationship with the company for joint research |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.02.29 - Precision Medicine Catapult Meeting (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Building the case for a catapult node in Wales |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.03.01 - ADRC Wales seminar (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Expert Seminar |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.03.22 - Cabinet Office Data Sharing workshop (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Resulted in important sections being included in the Digital Economy bill |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.04.13 - Conference on ME / Chronic Fatigue |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Debate about how to bring together a definitive research study to better understand ME/CFS |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.04.18 - Dynamic Insights discussion with 02 - Major mobile operator (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Workshop to agree a programme of joint research |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.04.27 - People Verus Data debate (DVF) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Industry/Business |
| Results and Impact | Debate on personal privacy and whether it is still possible in the digital age |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.05.09 - Open data in Healthcare conference (SCATA) (DVF) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation to delegates on making valuable personal based data safe for research use |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.05.10 - Introduction to ADRC W at Welsh Government |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Sharing the benefits of ADRN with a wide selection of policymakers in Welsh Government |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.05.11 - Health and Care Research Wales Board meeting (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Formulating research strategy for Wales |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.06.09 - EDARA Study Steering Committee |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Steering important study on changing alcohol care |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.06.13 - MediWales Directors meeting (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Industry/Business |
| Results and Impact | Steering national strategy of this membership organisation of life science businesses |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.06.13 - International Administrative Data Meeting (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Establishing a relationship with representatives of a major US initiative |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.06.14 - Meeting with US colleagues setting up a national data sharing initiative (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Establishing a relationship with the representative of a major US initiative |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.06.21 - Strategic discussions with the DVLA (DVF) |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Describing trustworthy data safe haven approaches at Swansea |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.06.24 - Meeting with GE Healthcare (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Building a strategic relationship with an international company |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.06.27 - Presentation of MS register to patient audiences (DVF) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Heighten awareness of opportunity to become involved in sharing data for MS research |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.06.29 - Asthma charity and Welsh Government lobbying event (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Discussions and presentations of Asthma and asthma research strategy |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.07.13 - Visit of US colleagues interested in national systems for data sharing (DVF) |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Increased understanding of Swansea's capabilities and systems |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.07.21 - Visit of national delegation from Ireland (DVF) |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Detailed fact finding mission from Irish government organisations |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.07.26 - The Royal Society and the British Academy seminar on connecting debates on the governance of data and its uses (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Thought provoking event about the possible futures for personal data in the UK |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.08.10 - National taskforce looking at NHS data secondary use strategy / policy (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Development of policy recommendations for Wales on data sharing |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.08.28 - Running and chairing of international conference on data linkage (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | 600+ researchers from across the world, coming to hear about advances in safe and effective data sharing |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.08.30 - Public Engagement activity (Tenovus) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Third sector organisations |
| Results and Impact | Tenovus networking meeting |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.05 - Public Engagement activity (Age Cymru) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Third sector organisations |
| Results and Impact | Age Cymru Swansea Bay networking meeting |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.06 - Public Engagement activity (Swansea County Council) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Swansea County Council - Local Area Coordination team networking meeting |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.06 - Visit of New Zealand's national data sharing infrastucture (DVF) |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Recognition on Swansea's contribution to the formulation of New Zealand's national architecture and systems for data linkage and sharing |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.13 - Presentation of MS register to patient audiences (DVF) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Heighten awareness of opportunity to become involved in sharing data for MS research |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.13 - Public Engagement activity (SCVS) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Third sector organisations |
| Results and Impact | SCVS networking meeting |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.14 - Public Engagement activity (Involving People) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | Involving People Network networking meeting |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.14 - Public Engagement activity (Technocamps) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Technocamps networking meeting |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.15 - Follow up meeting on opportunites for data-driven asthma research (DVF) |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Devising opportunities to use data to drive insights into asthma in the UK |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.15 - Public Engagement activity (Carmarthenshire 50+) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Carmarthenshire 50+ Networking Event |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.15 - Public Engagement activity (Dementia Friends) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Third sector organisations |
| Results and Impact | Dementia Friends Networking Meeting |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.19 - Public Engagement activity (PHW Carmarthenshire and Pembrokeshire) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Public Health Wales Carmarthenshire and Pembrokeshire networking meeting |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.20 - Public Engagement activity (CETMA) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Third sector organisations |
| Results and Impact | CETMA Llanelli |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.21 - Public Engagement activity (Llanelli Town Council) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Llanelli Town Council |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.22 - CHERISH Imaginarium (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Industry/Business |
| Results and Impact | Running a workshop to surface exciting new research and innovation project ideas |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.23 - National taskforce looking at NHS data secondary use strategy / policy (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Development of policy recommendations for Wales on data sharing |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.23 - Public Engagement activity (Carmarthenshire Communities First) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Third sector organisations |
| Results and Impact | Carmarthenshire Communities First |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.26 - Strategic discussions about cooperation with new ONS Data Science campus (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Open discussion about opportunities |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.28 - Conference on ME / Chronic Fatigue (DVF) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Debate about how to bring together a definitive research study to better understand ME/CFS |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.09.29 - Public Engagement activity (Age Cymru Sir Gar) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Third sector organisations |
| Results and Impact | Age Cymru Sir Gar |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.10.02 - ICES Scientific Advisory Committee - International steering group of major Canadian data research centre (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Advising on strategy |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.10.14 - Public Engagement activity (Afan Communities First) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Third sector organisations |
| Results and Impact | Afan Communities First |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.10.19 - Public Engagement activity (Carmarthenshire 3rd sector Brokers) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Third sector organisations |
| Results and Impact | Carmarthenshire 3rd Sector Brokers |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.11.04 - National taskforce looking at NHS data secondary use strategy / policy (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Development of policy recommendations for Wales on data sharing |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.11.04 - Public Engagement activity (Digital Communities) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Third sector organisations |
| Results and Impact | Carmarthenshire County Council - Digital Communities |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.11.11 - Early discussions about collaborative opportunites with industry leader in data platforms (DVF) |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Industry/Business |
| Results and Impact | Scoping collaborative opportunities |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.11.11 - Public Engagement activity |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Third sector organisations |
| Results and Impact | SPICE - Time Banking Network |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.11.23 - Public-Academic Research Colloquium - International conference in the US on data sharing of US public data for social research (DVF) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Highlighted UK's strengths in platforms and approaches |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.11.24 - Public Engagement activity |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Third sector organisations |
| Results and Impact | Ataxia and me |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.11.25 - Public Engagement activity (ACTIVE project) |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Schools |
| Results and Impact | Filming of participants of the ACTIVE project |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.11.29 - Public Engagement activity |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Engage conference |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.12.06 - Chairing a panel session of digital healthcare for a major life sciences conference (DVF) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Industry/Business |
| Results and Impact | Heightened understand on the future direction of digital health and healthcare |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.12.09 - Public Engagement activity (ACTIVE project) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Schools |
| Results and Impact | ACTIVE project peer mentoring day |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2016.12.12 - Telephone meeting as part of a recommisioning expert panel for Arthritis Research UK (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Evaluating the performance of a UK research infrastructure against best practice in the field |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2017.01.05 - Health of the public in 2040: implementation workshop (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Wide range of governmental, research and charitable bodies working to move froward the recommendations of the report |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://acmedsci.ac.uk/file-download/41399-5807581429f81.pdf |
| Description | 2017.01.06 - Public Engagement activity (ACTIVE project) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Schools |
| Results and Impact | ACTIVE project media launch |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.01.11 - Data Journeys in Biomedicine: Research Translation and Infrastructure Management workshop (DVF) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Identifying best practice in safely sharing data from and for research |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.datastudies.eu/data-journeys-in-biomedicine-2017 |
| Description | 2017.01.11 - Public Engagement activity (Oriel Science) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Schools |
| Results and Impact | Oriel Science project meeting |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.01.17 - Referee for the Research council of Norway (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Sitting in judgement about the quality and strategic fit for Norway's research infrastructure for next 5-10 years |
| Year(s) Of Engagement Activity | 2016 |
| Description | 2017.01.21 - Member of panel awarding research grants for ESRC on proposals for the use of new and emerging forms of data (DVF) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Multiple awards made to the best project proposals |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.01.26 - Public Engagement activity |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | NCPHWR Knowledge Exhange Group meeting presentation |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.03 - Public Engagement activity (British Heart Foundation) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Planning meeting with British Heart Foundation |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.07 - EDARA Steering Committee |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Steering group for a major national research study aimed at improving alcohol related hard in the UK. Significant public policy interest. Outcome: Changing the policy and practice landscape in the UK for alcohol |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.08 - Precision Medicine Catapult meeting |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Summarising the work, data and facilities of Swansea to support possible involvement in industrial development activities with private and public sector around precision medicine. Outcome: Potential involvement in UK-wide data infrastructures for PM |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.09 - Finnish Government visit |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Delegation from Finnish government and health system representative with some senior academic collaborators to discuss how Finland might build on the work of Swansea in Final for a national data sharing architecture. Outcome: Influencing national policy for Finland, potential involvement in the supply of system to support Finland's progress. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.10 - RITREVA Project |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Sharing plans to develop an extension to Swansea's National Research Data Appliances to provide NLP facilities in support of clinical trials. Outcome: Potential funding for Wales-wide project |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.13 - BMS / Pfizer collaboration |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | A round table meeting to discuss the development of a formal MOU to cement relationship between two pharmaceutical companies and Swansea. Outcome: Formal MOU drafted and signed by both parties + initial funded project agreed and underway. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.14 - Children's Legal Centre for Wales |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Third sector organisations |
| Results and Impact | Discussion to assess how Swansea's data and facilities could be extended to support work in Human Rights of the Child. Outcome: Potential for collaborative activities |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.14 - MSSN |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Project Board overseeing development of national safe setting architecture for the UK, based on "pods" technology. Outcome: Rollout of 40+ preconfigured and approved "safe" settings for use in universities and other sites across the UK to receive access to sensitive data for analysis |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.14 - Public Engagement activity (NCMH) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Third sector organisations |
| Results and Impact | NCMH networking meeting |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.15 - Public Engagement activity (Wales Digital Communities) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Supporters |
| Results and Impact | Wales Digital Communities networking meeting |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.20 - MediWales |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Industry/Business |
| Results and Impact | Development of national strategy to support medical technology companies of Wales. Outcome: National strategy, programme of activities including learning academy, support services, seminar programme +++ |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.27 - Cardiff Capital City Deal |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Early meetings with local and government reps to discuss how Cardiff City deal could benefit from the work of the Swansea Group. Outcome: Increased awareness of Swansea's facilities and collaborative opportunities |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.27 - Public Engagement activity |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Postgraduate students |
| Results and Impact | NHS - District Nursing Student visit |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.02.28 - Cancer Research UK |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Strategic discussions to understand how Swansea data, facilities and expertise could support the work of Cancer Research UK. Outcome: High level understanding of Swansea potential contribution to CRUK's national activities |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.03.07 - GE Healthcare |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Strategic workshop designed to better understand collaborative opportunities between one of the world's biggest companies and Swansea group. Outcome: Further meetings / project discussions |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.03.07 - Public Engagement activity |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Study participants or study members |
| Results and Impact | Internal staff public engagement workshop |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.03.08 - IPDLN Executive Team meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Overseeing the strategic development of the international society for academic, governmental and health system centres that use data linkage mechanism to conduct research. Outcome: Programme of events and activities across the world to support this interest group - showcasing UK and Swansea achievements internationally |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.03.11 - Public Engagement activity |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Schools |
| Results and Impact | Swansea University school engagement day |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.03.13 - Familiy Justice Observatory |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Planning of the development of a potential new centre to help better understand family justice matters in the UK, with support and funding from the Nuffield. Outcome: Invitation to request funding in support of the development |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.03.17 - WCRC |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Group to take forward the development of a programme of work in support of Wales Cancer Research centre's community aspirations. Outcome: Funded programme of work |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.03.28 - Digital Economy Imaginarium |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Delivered workshop to gain better understanding of business and public sector needs and match them to expertise in academia. Outcome: Range of collaborative projects have arisen and been taken forward |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.03.29 - NHS Digital Roundtable |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Strategic discussions to better understand how NHS Digital can take part in data sharing projects to support public policy research. Outcome: Joint plan to address NHSD's current improvements to collaboration |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.04.04 - Digital Economy Crucible |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Workshop held to support ECR's idea development in support of the digital economy. Outcome: Range of project proposals with buy-in from public sectors and industrial partners |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.04.04 - Primary Care Public Health Information |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Steering group to help support needs of primary care in Wales through information provision. Outcome: Development of a project to deliver information products to support their needs |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.04.06 - Familiy Justice Observatory |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Presentation and discussion on how Swansea's work could support family justice research in the UK. Outcome: Invitation to sumbit costed proposals |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.04.06 - Welsh Scientific Advisory Committee |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation to Wales' primary scientific advisory committee on SAIL Databank, ADRC Wales, and associated work. Outcome: Inclusion of Swansea's work in national strategy |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.04.07 - AAAI Project Board |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Member of steering group overseeing the development of a national "safe" technical infrastructure (networking) for use across the UK in sharing sensitive data. Outcome: Available national system |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.05.03 - ONS Data Science Campus |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Strategic planning meeting to understand the collaborative opportunities possible between Swansea and the new ONS Data Science campus. Outcome: List of potential areas / projects for collaboration |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.05.04 - GE Healthcare |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Strategic workshop designed to better understand collaborative opportunities between one of the world's biggest companies and Swansea group. Outcome: Further meetings / project discussions |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.05.08 - Welsh Governement Informatics Task Force |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Member of task force, influencing high-level governmental strategy for the use of data in Wales. Outcome: Statement of Intent produced and published |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.05.09 - Keynote talk at ISBER 2017 (Toronto, Canada) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Provided talk on safe data infrastructures to support international biobanking initiatives. Outcome: Further discussions with various delegates who heard the talk (various countries) |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.05.16 - H&CRW Board meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Input into national strategy for health and care research in Wales through Board membership. Outcome: Maintaining continuing focus on data and how it can support a wide range of research |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.05.17 - Nuffield Foundation (Oliver Bird fund) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Providing advice, based on Swansea's expertise and facilities, to the Nuffield on how to best utilise their Oliver Bird endowment. Outcome: New focussed plans for investment into data-related activities in the UK |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.05.22 - NWIS health data strategy meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | High level meeting to agree national approach to providing safe and secure access to health data for research. Outcome: Agreement in approach 2017-2020 |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.05.23 - Dynamic Insights Steering Group meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Board meeting for collaboration with O2 telecoms company. Outcome: funded InnovateUK collaborative project |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.06.07 - Digital Health Federation Board meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | First meeting of an international Board to steer the development of an international federations of data facilities, to answer requirements of internationally scaled research and industrial needs. Outcome: Agreement of basic HoA agreement for members to sign (subsequently signs as partner) |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.06.12 - AAAI Project Board |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Member of steering group overseeing the development of a national "safe" technical infrastructure (networking) for use across the UK in sharing sensitive data. Outcome: Available national system |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.06.13 - NHS Digital Roundtable |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Strategic discussions to better understand how NHS Digital can take part in data sharing projects to support public policy research. Outcome: Joint plan to address NHSD's current improvements to collaboration |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.06.15 - MD2i (innovative and intelligent Medical Device) Grenoble, France |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Talk on UK and Swansea data infrastructures to support research. Outcome: Invitation to sit on Grenoble's Board overseeing their own local strategy |
| Year(s) Of Engagement Activity | 2007,2017 |
| Description | 2017.06.22 - Funding Panel: Canadian Cyber Infrastructure Initiative Toronto |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Supporting Canadian Government make strategic funding decisions on national data infrastructures. Outcome: Shortlisting of best proposals received |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.06.26 - Ser Cymru |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Developing strategy for Climate Impact modelling for Wales. Outcome: Development of strategic plans for climate modelling |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.06.29 - MS Frontiers - Multiple Sclerosis Register outreach |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | High profile stand, talks and demos showcasing Swansea's MS Register project to people with MS and their families visiting this, the largest conference for people with MS in the country. Outcome: Large number of sign-ups to the Register, increased research and governmental interest, increased enthususaim in existing MS Register participants |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.07.05 - Familiy Justice Observatory |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Presentation and discussion on how Swansea's work could support family justice research in the UK. Outcome: Invitation to submit costed proposals |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.07.14 - MediWales |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Industry/Business |
| Results and Impact | Development of national strategy to support medical technology companies of Wales. Outcome: National strategy, programme of activities including learning academy, support services, seminar programme +++ |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.07.20 - UK e-Infrastrucure consortium meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Working group developing a business case, in conjuntion with the UK research councils, to support funding for the UK's national e-infrastructures, across all science domains. Outcome: Business developed |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.07.21 - AMS Health of the Public 2040 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Impact event leading on from publication of the "Health of the Public 2040" (DVF co-author) with the aim of gathering action and momentum around the report's recommendations. Outcome: Numerous accepted tasks and actions from the meeting |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.07.28 - Digital Economy Crucible |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Workshop held to support ECRs idea development in support of the digital economy. Outcome: Range of project proposals with buy-in from public sectors and industrial partners |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.08.01 - IPDLN 2018 Conference - Scientific Committee |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Planning the scientific content for the next international conference on data linkage research. Outcome: Speaker invites, topics selected, programme in draft |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.08.02 - Welsh Governement Informatics Task Force |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Member of task force, influencing high-level governmental strategy for the use of data in Wales. Outcome: Statement of Intent produced and published |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.08.09 - Webinar for the Asia eHealth Information Network (AeHIN) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | 100 interested parties from government, academia and industry from Asia and the far east sat in on this webinar to understand how Swansea has built and operates its data infrastructure. Outcome: Potential collaborative activities and technology sharing (Swansea's technologies to Asia) |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.08.10 - AMS Health of the Public 2040 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Impact event leading on from publication of the "Health of the Public 2040" (DVF co-author) with the aim of gathering action and momentum around the report's recommendations. Outcome: Numerous accepted tasks and actions from the meeting |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.08.10 - Giving evidence to the UK's Longitudinal studies review (Prof Ray Chambers) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Detailed discussion on the state of play of the UK's data systems to support longitudinal research. Outcome: Not aware of any outcome |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.08.11 - Strategic meeting with CEQUR Ltd |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Industry/Business |
| Results and Impact | Establishing needs and capabilities between Swansea Group and a major new industrial company. Outcome: Potential collaboration |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.09.05 - New Brunswick (Canada) visit |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Deputation from province of New Brunswick (Canada) made up of government executives, research funders, and academics to understand how Swansea has set up and run SAIL DataBank and other initiatives. Outcome: Agreement to support New Brunswick as they develop their plans to build a similar data infrastructure |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.09.20 - H&CRW Board meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Input into national strategy for health and care research in Wales through Board membership. Outcome: Maintaining continuing focus on data and how it can support a wide range of research |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.09.22 - Familiy Justice Observatory |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Presentation and discussion on how Swansea's work could support family justice research in the UK |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.09.25 - Joint Clinical Research Board meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Board meeting agreeing strategy for this research facility operated in partnership with NHS Wales' Health Board. Outcome: New focus on research in Wales |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.09.26 - Pfizer UK Board meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Industry/Business |
| Results and Impact | Attending Pfizer pharmaceutical Board meeting to provide updates into Wales' data systems and collaboration opportunities. Outcome: Further research opportunities |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.09.29 - MediWales |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Industry/Business |
| Results and Impact | Development of national strategy to support medical technology companies of Wales. Outcome: National strategy, programme of activities including learning academy, support services, seminar programme +++ |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.10.01 - ICES Scientific Advisory Board |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Seat on the Institute of Clinical Evaluatiative sciences (ICES) Scientific Advisory Committee to provide guidance on their strategic development and recommendations to their funders and Board. Outcome: Insights into overseas centres similar to ours |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.10.06 - International Collaboration meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Supporters |
| Results and Impact | International strategic meeting, mapping future collaborative opportunities across jurisdictions |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.10.19 - Centre for Epidemiology Renewal Site visit |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Part of a multi-expert team of assessors, working for Asthma Research UK to assess the progress and plans of Manchester's Centre for Epidemiology. Outcome: A formal report leading to a recommendation to refund |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.10.24 - Biobanking task and finish group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | A formal Welsh Government Task and Finish group considering the medium to long term strategy for the organisation and development of tissue and bio banking in Wales. Outcome: The development of a new national strategy (pending) |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.10.27 - Digital Economy Act regualtion consultation event |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Participation in workshop to help refine the regulations that are currently in development to operationalise the Digital Economy Act's Research and Statistics strand. Outcome: Revised regulations |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.11.07 - Data Linkage courses and teaching |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Development of an extended agreement to provide University of Western Australia teaching and expertise to the UK via Swansea. Outcome: Continuation of high quality, subject relevant teaching to any student in the UK (short course and MSc) |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.11.10 - Super Computing Wales |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussion with Welsh national supercomputing programme (all sciences) to discover levels of support and facilities potentially on offer to support health and social data sciences in Wales. Outcome: Agreement on the level and nature of on-going facilities and expertise available |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.11.14 - Discussions with Paul Bonnington and colleagues (Research Computing, Montash Universty, Australia) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Supporters |
| Results and Impact | A set of discussions to scope the sharing of Swansea's data sharing platforms (SeRP and NRDAs) for use in Australia via Monash University. Outcome: An agreement for them to fund the costs of providing our technology to Australia |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.11.22 - Presentation to the English NHS National Data Opt Out Advisroy Group on SAIL Databank |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Provided a high level overview of the differing emergent strategies in Wales and England relating to patient opt-out and how Wales has managed to maintain high trust and support with its population and practitioners throughout. Outcome: Better understanding (in NHS England) about how Wales has managed population trust in health data research |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.11.27 - Presentation and facilitiate workshop to various SMEs about opportunities to access PhD studentships |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Industry/Business |
| Results and Impact | Presentation on Swansea's data expertise and facilities available to support data science agenda with industry partners and mechanisms by which Swansea can support the needs of Welsh companies. Outcome: DTC proposal |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.12.01 - Presentation and workshop participating to help Nuffield Foundation and Arthritis Research UK develop a data strategy for musculoskeletal research in the UK |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | To inform the development of a new data strategy for ARUK and Nuffield. Outcome: New strategy |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.12.06 - Working group to devise plan to move NHS Wales to using SNOMED CT in future years |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Conducting baselines review of compliant systems and framework for moving towards 100% use of SNOMED CT in the future. Outcome: New approach for Wales |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.12.12 - Annual Awards ceremony, giving prizes to the NSH and to industry for a range of awards |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Industry/Business |
| Results and Impact | Giving prizes (previously selected) to the winner of a range of awards. Outcome: Increased focus on co-working between NHS, government, academia and industry in Wales |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2017.12.12 - Wales Centre of Public Policy / SAIL Databank strategy meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | First of a series of workshops to help the newly formed WCPP understand how it might pursue its work through using data and data science techniques. Outcome: Close working relationship |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2018.01.03 - Follow on to conversation with Ministry of Health (England) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Scoping discussion to asses how SAIL / ADRN / HDR UK can support DoH taking part in data sharing projects for public good. Outcome: Not aware of any outcome |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2018.01.08 - Early scoping discussions about utilising GeL's genetics platforms to process Welsh patinet sames and return the data. |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | Scoping discussion. Outcome: Potential agreement |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.01.11 - Familiy Justice Observatory |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Presentation and discussion on how Swansea's work could support family justice research in the UK. Outcome: Invitation to submit costed proposals |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.01.16 - Informatics Statment of Intent implementation workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Workshop participation to shape implementation plans. Outcome: Implemented policy for data reuse in Wales |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.01.17 - Research Data Alliance Workshop and Invited talk - Amsterdam |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Keynote talk on the issues related to curation and sharing of highly sensitive person-based data + workshops participation. Outcome: New highlighted focus on person-based data and privacy in the RDA |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.01.22 - Biobanking task and finish group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | A formal Welsh Government Task and Finish group considering the medium to long term strategy for the organisation and development of tissue and bio banking in Wales. Outcome: The development of a new national strategy (pending) |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.01.30 - Strategic meetings with ONS in the context of next stage of what was ADRN |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | New understanding of the role of the devolved administration in data acquisition, research priorities, public engagement and researcher support, shared with ONS colleague. Outcome: New understanding within ONS |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.02.01 - Public Health Wales / ADRC / SAIL strategic meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Framing a new relationship between Swansea's data platforms and Public Health Wales. Outcome: More policy-relevant research analyses |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.02.02 - Data for Children themed workshop - Chair Leon Feinstein |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Co-chair and participation in a workshop to frame a new data request to multiple government ministries and agencies to construct a linked data resource for the benefit of children though research |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.02.07 - Informatics Statement of Intent implementation workship |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Workshop participation to shape implementation plans. Outcome: Implemented policy for data reuse in Wales |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.02.13 - Biobanking task and finish group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | A formal Welsh Government Task and Finish group considering the medium to long term strategy for the organisation and development of tissue and bio banking in Wales. Outcome: The development of a new national strategy (pending) |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.02.14 - ONS and Welsh Government meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | New understanding of the role of the devolved administration in data acquisition, research priorities, public engagement and researcher support, shared with ONS colleague. Outcome: New understanding within ONS |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.02.27 - Asthma Data and Digital Funding Call Frontiers Meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Helping to devise a new approach to the use of data to drive forward asthma research in the UK. Outcome: New data investments for asthma data research |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.02.28 - Workshop to help support a new mean of producing national statistics from routine administrative data |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Helping to devise a new approach to the use of data to support the production of national statistics. Outcome: New use and methodologies |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.01 - Further clarifying implementation place, costs and time scales |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Agreement for Monash to use Swansea's data platforms to support research and public analyses in Australia. Outcome: Closer to agreement |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.06 - Workshop with British Columbia Government officals about data sharing facilities |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Scoping exercise to understand whether Swansea technology platforms and expertise could support the plans of British Columbia government for research and governmental analyses. Outcome: Closer to agreement |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.07 - Workshop with British Columbia Health system officals about data sharing facilities |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Scoping exercise to understand whether Swansea technology platforms and expertise could support the plans of British Columbia government for research and governmental analyses. Outcome: Closer to agreement |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.08 - Talk on data sharing system to support Learning Health Systems in the UK and internationally |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | To highlight the good practice in the UK and in Wales, to promote the use of Swansea's technology set and expertise. Outcome: Possible inquiries |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.14 - Cardiovascular research workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Talk on data opportunities and ways of achieving joint research objectives. Resulted in a decision being made to engage in project |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.16 - SNOMED CT Workshop |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Developing SNOMED strategy for Wales, resulting in the formulation of a national strategy |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.19 - UKRI e-Infrastructure Expert Group Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Development of UKRI Roadmap with senior UKRI staff |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.21 - UKSeRP, DDP and HSAR meeting. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Infrastructure development meeting with Welsh Government colleagues |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.22 - Innovator Workshop |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | David Ford took part in an innovation workshop as a member of the judging panel for proposed innovations |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.26 - IPDLN Conference Scientific Committee meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Development of the international conference programme |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.27 - WCRC Senior Operational meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | David Ford attendance at steering group for major Welsh Research Centre |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.03.28 - DKUT, NMAIST & Kabarak Universities discussion |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | International collaborative project with African univeristies discussing opportunities for collaboration on MRC funding call |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.04.18 - ADRN Data for Children |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Developing new Data for Children resource |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.04.20 - HDR UK Site visit |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | David Ford attended a series of meetings with HDR UK representatives on their visit to Swansea University and the Data Science research teams based there, following which the decision was made to establish Swansea as an HDR site |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.04.24 - Biobanking Task and Finish Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | Discussions primarily focused around the Wales Biobank, which is supported with staff based within the Swansea University Data Science team |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.04.25 - Workstream 3 - Stakeholders event |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | This event contributed towards the development of a new vision for a national data resource for NHS Wales |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.04.26 - Health Data Research UK - Scientific Retreat |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Senior ADRC Wales staff participated in a strategic planning event for HDR |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.05.02 - DataLab with ADRC Wales |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussions about development of Education data resources for use with ADRC Wales data research projects |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.05.14 - The Future of Justice International Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Event to take forward evidence production for the court systems |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.05.17 - HDR UK Technical meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | ADRC Wales attended a wider discussion around understanding data infrastructure needs for UK |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.05.18 - Commission on Justice in Wales Scoping |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Scoping unmet legal needs in Wales, with a view to developing research opportunities with government and academics in this field |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.05.24 - GeDI workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Developing genetic data strategy in Wales |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.01 - Talk in Victoria, Canada |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentations to Ministry of Health, British Columbia |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.05 - Qresearch, SHIP and SAIL discussion for HDR |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation and discussion with Q Research |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.07 - UKRI Event on "Places" |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Cluster development workshop |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.08 - National MSK Health Data Group |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Presentation on SAIL Databank to ARUK |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.11 - ADRN Directors Group meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Discussion around how to manage new elements of transition work following London meetings the previous week |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.12 - ADRC Stakeholder meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Developing working arrangements with Welsh Government |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.14 - MS Society Research Strategy Committee |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Presentation on UKMS Register |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.20 - HDR UK Infrastructure meeting (Technical) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Follow up discussion with sector experts on the data infrastructure needs for UK |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.21 - ADRN Directors Conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Round table strategy event with ADRN Directors |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.22 - Health and Wellbeing Childhood & Mental Health |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | David Ford led a research theme discussion around Health and Wellbeing Childhood & Mental Health at the ADR Conference in Belfast |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.27 - Panel meeting to discuss Family Justice Research |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | David Ford delivered a presentation to a senior research group around Family Justice and the opportunities for using linked data in this area |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.06.28 - SAIL scientific External Advisory Board |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | David Ford attended an event around the launch and future plans for an International expert panel |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.07.09 - Due diligence & MoU ceremony |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Supporters |
| Results and Impact | Formal signing of MoU with Bangalore |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.07.13 - ADRN Themed Data for children Partners meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Roundtable to devise data build for data research resources using assets relating to children/young people's data |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.07.18 - Summer School in digital Epidemiology from the Arthritis Research UK Centre for Epidemiology |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | David Ford participated in a talk on linking EHRdata to other data sources |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.07.20 - MRC Mental Health Data Pathfinder meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussions with colleagues involved in other research council funded project around the development of a common data platform |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.07.24 - AAAI workshop |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | UKRI e-infrastructre development |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.07.27 - Research and Innovation Infrastructure Workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | David Ford participated in an innovation workshop as a 'Dragons Den' judge |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.08.23 - Developing an admin data spine |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Providing expert advice to UKRI on the development of a cross sector administrative data resource |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.08.24 - Meeting RE: HDR UK Implementation Projects |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Meeting with senior NHS Wales Informatics Service colleagues around the development of a Welsh response to DIH initiative |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.08.28 - Meeting: MS Society and Benevolent AI |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Round table with innovative AI company |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.08.30 - Scottish Government visit |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Hosted visit from Scottish Government to demonstrate arrangements in place for admin data research at Swansea University |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.08.31 - Visit to Blackpool Local Authority |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentations around the opportunities for collaborating with Swansea University on data research projects and work |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.03 - Chris Newbrook meeting RE: Info Governance - and Wales' "Data Promise" |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Round table session with senior Welsh Government to develop national strategy to data sharing |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.03 - Longitudinal administrative data spine meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Discussions around the further development of an administrative data resource |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.04 - HDR UK Science Strategy visit |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADRC Wales staff inputted into the development of a science strategy with HDR colleagues |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.04 - Haroldas Petkus re: RE: Previous 'NHS in a lab' facilities |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Discussions to share experience and best practice around data infrastructure technology |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.05 - HDR UK Design thinking workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADRC Wales staff participation in an HDR UK design workshop |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.07 - ADRN Data for Children Technical Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Through this event, David Ford supported further development around a new Data for Children resource in line with ADRN data research themes |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.07 - ADRN Data for Children Technical Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Through this event, David Ford supported further development around a new Data for Children resource in line with ADRN data research themes |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.24 - EDARA Study Steering Committee |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | David Ford attended and chaired a session of the EDARA Study Steering Committee |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.24 - Scoping an administrative spine with ESRC |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Further work building upon initial discussions with research council colleagues around the development of an administrative data research resource |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.25 - UKRI MRC |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | David Ford attended and chaired a workshop on e-infrastructure requirement for MRC |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.09.28 - Morgan Academy to host cabinet office innovation team |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | David Ford gave a presentation to Cabinet Office team |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.10.02 - ICES Scientific Advisory Committee meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Participation as a formal member of the External Advisory Board to ICEs |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.10.04 - ADRC Wales impact and engagement overview meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Impact strategy for Wales discussions |
| Year(s) Of Engagement Activity | 2018 |
| Description | 2018.10.04 - Pfizer programme of work |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |