Communication-centered Parent-mediated treatment for Autism Spectrum Disorder in South Asia (COMPASS).

Lead Research Organisation: University of Manchester
Department Name: School of Biological Sciences

Abstract

Eighty percent of the world's children with Autism Spectrum Disorders (ASD) live in low resource settings. Recent evidence from high-income countries supports the effectiveness of targeted parent-mediated interventions for the early treatment of children with ASD. Interventions that are delivered through parents have the additional advantages of improving parental knowledge and morale, potentially promoting the social empowerment of mothers, generalising into improvements in the family environment for the child and thus potentially conferring long-term impacts on the social context, the child's environment and functional outcomes. The Pre-school Autism Communication Therapy (PACT) trial conducted in the UK is the largest yet trial of this kind. It is targeted at getting parents to recognize their child's social communication difficulties and create an environment which gives the child a space and time to communicate at their own pace. This intervention uses video feedback techniques to work with parents to enhance their understanding and responsiveness to the atypical communications of young children with autism. The trial showed that children with ASD who received this treatment benefited from the enriched communication environment that their parents were able to create; this in turn had a positive impact on the social interactions the children initiated. More importantly these changes, in the parent child interaction and independent communication from the child, were sustained in a follow up study after six years which demonstrated a decrease in autism symptoms in children who received the intervention. The intervention has now been successfully adapted for use in South Asia, including relevant cultural adaptation to enhance parental acceptability, developing a supervision and training cascade to allow the intervention to be delivered by community based non-specialist workers, and delivery of the intervention at home. The resulting Parent mediated intervention for Autism Spectrum Disorders in South Asia (PASS) was subsequently evaluated in a pilot trial which demonstrated its acceptability, feasibility and efficacy. Subsequently, the team in India have developed and piloted a complementary comorbidity package creating a comprehensive intervention for children with ASD in the 2-9 year age group (PASS Plus). Evaluation methods have also been adapted and tested in both of these pilot studies. Most children with ASD in India and other low resource settings do not receive evidence based care which the proposal investigators have shown can reduce the symptoms of ASD and is feasible and acceptable for delivery in the proposed study setting. The proposed trial will build on this pilot work already carried out in India, and will carry out the largest, definitive, trial of the intervention, involving 240 participants recruited through two tertiary government hospitals in the capital city of New Delhi, which cater to an urban poor population. The intervention will be delivered through existing health system frontline workers. The trial will evaluate the effectiveness and cost effectiveness of the intervention on symptoms of ASD and parent-child interaction as well as more general impacts on child functioning, parental well-being and social empowerment. COMPASS will be the largest trial of its kind for ASD in any low resource setting and the evidence generated will have an impact not only health policy and practice in India, home to over 5 million children with ASD, but also other low resource settings in the region.

Technical Summary

Objectives: Phase 3 trial of the clinical and cost-effectiveness of the 'Parent-mediated intervention for Autism Spectrum Disorders in South Asia-Plus' (PASS+) intervention in addition to treatment as usual (TAU) compared to treatment as usual (TAU) alone in India. The study will take the already successfully piloted PASS+ intervention to scale.

Design: Two centre, two arm single (rater) blinded random allocation parallel group study of experimental treatment plus TAU against TAU alone. Primary endpoint 9 months, follow-up 15 months. Primary outcome: autism symptom severity (blind-rated Brief Observation of Social Communication Change). Secondary outcomes: include parent-child communication, child adaptation and QoL, parental wellbeing. Primary analysis intention to treat; planned secondary analysis of proposed mediators of treatment effect. Health Economic evaluation will estimate the cost-effectiveness of the intervention from a societal perspective using a QoL index valued to allow calculation of QALYs.

Participants: 240 children aged 2 to 9 years with ASD, recruited from Autism clinics in two tertiary government hospitals in New Delhi, India.

Treatments: PASS+ is a manualised and piloted adaptation of the UK Pre-school Autism Communication Therapy (PACT), that uses video-feedback with parents to help them enhance social communication in their autistic child. It will be delivered by existing health system frontline workers, in 12 home-based sessions. TAU in the two recruitment centres is delivered through weekly autism clinics, an eclectic mix of behavioural therapy approaches which are delivered once a month delivered by specialists. The duration of therapy is based on the families' ability to follow up, adherence is under 50%.

Outcome: Generalizability and policy impact will be maximized through embedding the trial in routine facilities with embedded primary health-care workers, and using our policy influence to disseminate the findings.

Planned Impact

The primary stakeholders impacted by this work will be young people affected by ASD and their families and the wider communities where these individuals live.
Recent epidemiological evidence has shown that about 1% of children are affected by Autism Spectrum Disorders (ASD), translating to at least five million affected families in India alone. The vast majority, approaching nearly 100% of these children, do not receive community based interventions. COMPASS will represent the first definitive trial of the effectiveness and cost-effectiveness of such an intervention, which has been piloted to ensure contextual acceptability to parents and feasibility for delivery by low-cost frontline workers, in the region. The intervention has been carefully adapted to address social and cultural barriers through four years of systematic formative and piloting research.

Young people and their families will therefore benefit from improved social communication skills and thus improved social integration both with their families and within their communities, enhancing their wellbeing for all of these groups. Young people, families and communities will benefit from better understanding of ASD and the increased social acceptance of neurodevelopmental disability. A successful outcome from the trial will bring economic benefits to families (reducing costs associated with loss of wages for parents, changing residences to seek care, changing schools) and national healthcare systems (direct medical expenses born by the health system for autism care).

Healthcare workers and national health systems will benefit from the outcomes of this study along with the scientific community. Health workers will benefit from a defined programme of training and supervision, upskilling them and providing a resource which will be able to perpetuate these skills into the future. The team in India has developed and evaluated an enhancement of the core communication component with modules to address comorbidities to increase acceptability of the intervention by parents and the potential effectiveness of the intervention. We will also use a digital platform to embed self-learning and supervision needs of the health worker, preparing a way to take this intervention to scale. We are including a systematic tracking method for children and families with a view to assessing the long term impact of an early comprehensive intervention package on symptom severity and functioning.

Government and international policy bodies will benefit from the development of an evidenced protocol for a community based ASD intervention, applicable in India and other LMICs, which will have an impact on health and wealth of individuals and communities and therefore ultimately the country as a whole. We are generating key economic data on the cost-effectiveness of the interventions, based upon which we will be able to estimate the additional cost of scaling up this intervention across the country. The scientific community will benefit from the new knowledge generated by this trial which will inform the design and delivery of future interventions in LMICs. The model for management of a developmental disability through trained community based workers and parents working in partnership with specialists could be replicated for other neurodevelopmental disabilities in LMIC.

We will build on our policy influence and engagement to disseminate the findings; for instance Divan serves on WHO consultative groups for developing interventions for child mental disorders and on national committees for autism and developmental disabilities in India; Patel serves on the WHO expert advisory group for mental health; and this project has the backing of the two leading national institutions concerned with front-line workers (the National Health Systems Resource Centre) and child development (the Rashtriya Bal Swasthya Karykram) - see Letters of Support.

Publications

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Asarnow J (2018) Special Editorial: Open science and the Journal of Child Psychology & Psychiatry - next steps? in Journal of child psychology and psychiatry, and allied disciplines

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Garg S (2018) Studying child development in genetic models of ASD. in Progress in brain research

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Green J (2018) Pathological Demand Avoidance: symptoms but not a syndrome. in The Lancet. Child & adolescent health

 
Description Autistica, Autism Research Charity, Board of Trustees (2018 - ).
Geographic Reach National 
Policy Influence Type Membership of a guideline committee
Impact Work within Artistica has led to influence on early care pathways for autism spectrum disorder in the UK.
 
Description Global Senior Leader for the UK, International Society for Autism Research
Geographic Reach Multiple continents/international 
Policy Influence Type Influenced training of practitioners or researchers
 
Description UK NHS England: National Autism Taskforce
Geographic Reach National 
Policy Influence Type Citation in other policy documents
 
Description 'Pint of Science', Didsbury Manchester, 'Improving the outcome for Autism', 20th May 2019. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact lecture in a debate series with general public on mental health
Year(s) Of Engagement Activity 2019
 
Description A talk on global innovations for Autism conducted in Sangath, India at the Annual INSAR conference by Prof Vikram Patel 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Prof Vikram Patel gave a keynote address at the International Society for Autism Research (INSAR) Conference which described the work leading up to and conducted in COMPASS
Year(s) Of Engagement Activity 2019
 
Description Abstract Presentation - International Developmental Pediatrics Association (IDPA) Congress 2023 - Johannesburg, South Africa 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact R Roy presented key strategies used in the COMPASS trial to enhance engagement with families especially in the complex context of the pandemic. Various methods used with trial participants including sharing of regular newsletters addressing specific information needs of the study population, celebrating birthdays of children recruited to the trial etc were presented.
Year(s) Of Engagement Activity 2023
 
Description Abstract presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Abstract presentation on 'Digital Tools for Building Capacity of Non-Specialist Workers to Deliver Interventions for Mental Health Conditions: Lessons learned from Three Research Projects from Diverse Community Settings in India' delivered by Lavangi Naithani and Sangath team at The Global Health Network Conference, South Africa. Result was abstract accepted for publication in conference proceedings
Year(s) Of Engagement Activity 2022
 
Description All India Institute of Medical Sciences, Lecture, 'The ASD phenotype in Neurofibromatosis and its intervention', 23rd Jan 2019. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact invited lecture in India
Year(s) Of Engagement Activity 2019
 
Description Autism Lecture to the Child Psychiatry Research Society (2021) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Lecture to the Child Psychiatry Research Society in the United Kingdom on a new integrated care pathway for autism
Year(s) Of Engagement Activity 2021
 
Description Autistic identities, participatory research & gender, National Conference, University of Kent, Keynote and Panel, 4th July 2019. 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Patients, carers and/or patient groups
Results and Impact keynote lecture and debate on autistic identiy
Year(s) Of Engagement Activity 2019
 
Description British Association of Clinical Psychology, National Conference; Bath UK, , Keynote, Early development intervention for Autism Spectum Disorder', 5th Sept 2019 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact keynote lecture
Year(s) Of Engagement Activity 2019
 
Description Dr Gauri Divan - Keynote Speaker at INSAR conference 2023 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Dr Gauri Divan was an Invited Keynote Speaker on 'Adapting and Innovating for autism in Low resource settings'. Dr. Divan described Sangath's journey towards development and implementation of an autism intervention which can be delivered in home-based settings by non-specialist health workers
Year(s) Of Engagement Activity 2023
 
Description How can we help Autism 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact invited participation in Manchester's Pint of Science event 2019
Year(s) Of Engagement Activity 2019
 
Description In person invited lecture at the National Belgian clinical conference (2023) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact In person invited lecture to National Belgian clinical conference in Brussels on iBASIS and PACT: towards an evidenced integrated detection care pathway for early autism
Year(s) Of Engagement Activity 2023
 
Description In person lecture at the annual conference of the national literacy trust (2023) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact In person lecture to the annual conference of the national literacy trust on iBASIS and PACT: towards an evidenced integrated detection care pathway for early autism
Year(s) Of Engagement Activity 2023
 
Description In person lecture+ seminar on early intervention for autism at the UK national autism show Manchester (2022) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact In person lecture and seminar on early intervention for autism delivered to the UK national autism show Manchester UK
Year(s) Of Engagement Activity 2022
 
Description In person meeting 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Formal talk presentation on Sangath's roadmap to Global Health Research Units - Neurodevelopment & AutisM in South Asia Treatment and Evidence presentation by Lavangi Naithani & Abhipreet Kaur on behalf of Sangath team at British High Commission, Delhi.
Year(s) Of Engagement Activity 2023
 
Description In person presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact In person meeeting attended by Gauri Divan and Reetabrata Roy at the First Vellore Child Development Meeting. Attended by approximately 50 early child development researches, implementation scientists, funding agencies and early career researchers from India, Australia and Europe aimed to understand India specific factors contributing to childhood growth and neurodevelopment from available literature, specify gaps in research knowledge and enumerate plans for future research and community-based interventions using a collaborative approach.
Year(s) Of Engagement Activity 2023
 
Description Innovating for Autism in India at 5th Biennial Scientific Conference of the Sri Lanka Association of Child Development by Gauri Diva 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact A talk describing the work conducted in the preparatory years to the COMPASS trial at the 5th Biennial Scientific Conference of the Sri Lanka Association of Child Development
Year(s) Of Engagement Activity 2021
 
Description Institute of Neurology, London, Karl Friston Research Seminar, 'Autistic experience and cognitive neuroscience', 12th March 2019. 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact a neuroscience presentation with autism advocates
Year(s) Of Engagement Activity 2019
 
Description Invited Ann Le Couteur to give a Lecture Seminar (2022) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Invited Le Couteur to the University Of-plus seminar
Year(s) Of Engagement Activity 2022
 
Description Invited Keynote to a Community Meeting - Karolinska University - Stockholm 2023 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Patients, carers and/or patient groups
Results and Impact Dr. Divan described Sangath's journey towards development and implementation of an autism intervention and detection delivered in home-based settings by non-specialist health workers.
Year(s) Of Engagement Activity 2023
 
Description Lecture to the University of Haifa on early dyadic intervention for autism (2021) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Lecture to the University of Haifa on early dyadic intervention for autism
Year(s) Of Engagement Activity 2021
 
Description National Conference, Autistica, University of Reading, , 'Global Evidence to local action; evidence based intervention for autism', 23rd May 2019 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Third sector organisations
Results and Impact keynote lecture and debate
Year(s) Of Engagement Activity 2019
 
Description Online Lecture on iBASIS and PACT delivered at a national French conference (2022) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Online Lecture on iBASIS and PACT: towards an evidenced integrated detection care pathway for early autism delivered to a national French conference on end it if innovative collaborative research with French colleagues on implementation of autism intervention worldwide
Year(s) Of Engagement Activity 2022
 
Description Online Lecture to the World Association of Infant Mental health, Brisbane Australia (2021) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Lecture to the world Association of infant mental health Brisbane Australia 2021 - online
Year(s) Of Engagement Activity 2021
 
Description Online lecture seminar at INSAR conference (2021) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Postgraduate students
Results and Impact International Society for Autism Research annual summer Institute - online seminar
Year(s) Of Engagement Activity 2021
 
Description Online lecture to a national French conference on dyadic intervention for early autism (2022) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Delivered online lecture to a national French conference on dyadic intervention for early autism dash implementation science and mediation leading to innovative collaborative research with French colleagues on implementation of autism intervention worldwide
Year(s) Of Engagement Activity 2022
 
Description Online lecture to the national autism conference in Spain on iBASIS and PACT (2022) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Online lecture to national autism conference in Spain on iBASIS and PACT: towards an evidenced integrated detection care pathway for early autism
Year(s) Of Engagement Activity 2022
 
Description Oral presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Oral presentation on The Development and evaluation of intervention module on Sensory Processing Disorders as a part of comprehensive Autism intervention package for the community based lay health workers delivered by Vivek Vajaratkar at the World Federation of Occupational Therapy Congress 2022. In this congress, occupational therapists and other healthcare professionals were highlighted their many experiences of research and practice.
Year(s) Of Engagement Activity 2022
 
Description Oral session on 'Standardizing Measures Across Cultures' - INSAR conference Stockholm 2023 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Oral presentation by Dr Abhilashi on Cross-Cultural Adaptation of Measures of Childhood Functioning in Low- and Middle-Income Countries: A process description in a Northern Indian context. Presented as part of Oral session on 'Standardizing Measures Across Cultures' at INSAR conference - 2023.
Year(s) Of Engagement Activity 2023
 
Description Panel discussion at INSAR conference 2023 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Panel discussion - Invited Panellist for Promoting the Quality of Intervention Science; Reporting Standards and Criteria for Autism Journals: A Perspective from Global Health. (205.003) Program Book INSAR 2023, Stockholm
Year(s) Of Engagement Activity 2023
 
Description Perth Children's Hospital Telethon Institute. Keynote: 'Parent-mediated Developmental Interventions for Autism', June 2018. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Postgraduate students
Results and Impact Compaiired looks for sericulse be cose it absence of h
Year(s) Of Engagement Activity 2018
 
Description Poster presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Poster presentation on LOCKDOWN -LOCKED IN: Understanding experiences of families of children with Autism Spectrum Disorders in NCR, India delivered virtually by Abhipreet Kaur at INSAR conference 2022
Year(s) Of Engagement Activity 2022
 
Description Poster presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Poster presentation on Early autism intervention components deliverable by non-specialists in low- and middle-income countries delivered by Lavangi Naithani at INSAR 2022.
Year(s) Of Engagement Activity 2022
 
Description Presentation - PACT Mediation outcomes - Warsaw June 2023 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Presentation by Prof Jonathan Green titled ' PACT Mediation outcomes' delivered to Clinical Research Associates in Warsaw, June 2023.
Year(s) Of Engagement Activity 2023
 
Description Presentation - Towards an evidenced, integrated early care pathway for autism - Birmingham 2023 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact A talk by Prof Jonathan Green titled 'Towards an evidenced, integrated early care pathway for autism' - Birmingham 2023
Year(s) Of Engagement Activity 2023
 
Description Presentation at the ACAMH annual meeting in June 2018 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Presentation ACAMH annual meeting June 2018
Year(s) Of Engagement Activity 2018
 
Description Presentation of work leading up to COMPASS in an international conference on Autism in Kolkata, India. By Gauri Divan 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Presentation of the formative, development and piloting of the PASS Plus intervention which is being trialed in COMPASS
Year(s) Of Engagement Activity 2019
 
Description Presentation on PACT and iBASIS - Brussels, April 2023 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Presentation by Prof Jonathan Green titled 'Parent-mediated social communication intervention for early neurodiversity and autism (PACT and iBASIS)' - Brussels, April 2023
Year(s) Of Engagement Activity 2023
 
Description Presentation on 'Translational Global Health' Manchester - March 2024 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Presentation by Jonathan Green on 'Translational Global Health' delivered at University of Manchester to small group of researchers and students - March 2024
Year(s) Of Engagement Activity 2024
 
Description Presentation on PACT and iBASIS - Linz, March 2024 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Presentation by Prof Jonathan Green titled' Parent-mediated social communication intervention for early neurodiversity and autism (PACT and iBASIS); long-term outcome, mechanism and integrated care' - Linz, March 2024
Year(s) Of Engagement Activity 2024
 
Description Presentation on PACT/iBASIS - Linz, OCT 2023 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Presentation by Prof Jonathan Green titled 'Parent-mediated social communication intervention for early neurodiversity and autism (PACT and iBASIS); long-term outcome, mechanism and integrated care' in Linz, OCT 2023.
Year(s) Of Engagement Activity 2023
 
Description Public lunch of the COMPASS project in India 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact COMPASS had a public launch in New Delhi India, via a public engagement activity which reached out to collaborators, policy makers, parent groups and students. The aim of the meeting was to create awareness about the trial and use this as a platform for advocay
Year(s) Of Engagement Activity 2018
 
Description Round table discussions 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact In person, round table discussions on UK-India Health Research Roundtable, National Institute of Health Research award-holders at the British High Commission in the UK led by Reetabrata Roy from Sangath
Year(s) Of Engagement Activity 2023
 
Description The Danish Mental Health Foundation; Keynote, 11th workshop on applied research for mental health in children and adolescents. Dec, 2018 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact keynote lecture led to research collaboration
Year(s) Of Engagement Activity 2018
 
Description The Danish Mental Health Foundation; Keynote, 11th workshop on applied research for mental health in children and adolescents. Dec, 2018 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact keynote in US charity
Year(s) Of Engagement Activity 2018
 
Description The PDA Society, Research Meeting, Kings College, London, 'PDA, a sceptical viewpoint', 8th January 2019. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Patients, carers and/or patient groups
Results and Impact talk at seminar
Year(s) Of Engagement Activity 2019
 
Description The Supporting Child Caregivers Podcast 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Patients, carers and/or patient groups
Results and Impact Podcast giving Helpful information about child development and parenting issues for child caregivers--parents, teachers, health workers, and other child caregivers across the globe.
Year(s) Of Engagement Activity 2023
URL https://podcasts.apple.com/be/podcast/the-supporting-child-caregivers-podcast/id1510818873
 
Description UK Association of Child Psychology and Psychiatry National Conference, London, Keynote, 'Early dyadic intervention in Autism Spectrum Disorder', 8th March 2019 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact keynote lecture at annual meeting of main professional association in child mental health in UK
Year(s) Of Engagement Activity 2019
 
Description Virtual Poster presentation at the ITAKOM conference (2023) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Delivered a poster presentation virtually to to the ITAKOM conference Edinburgh on iBASIS and PACT: towards an evidenced integrated detection care pathway for early autism
Year(s) Of Engagement Activity 2023
 
Description Virtual presentation 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Virtual presentation from Sangath team delivered at GEEK meeting organised by University of Manchester on LOCKDOWN -LOCKED IN: Understanding experiences of families of children with Autism Spectrum Disorders in NCR, India
Year(s) Of Engagement Activity 2022
 
Description Virtual presentation on Addressing the Needs of Families of Young Children with Autism in Low Resource Settings - India - Jan 2024 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Dr. Divan described Sangath's journey towards development and implementation of an autism intervention and detection delivered in home-based settings by non-specialist health workers at the Indian Forum for Rehabilitation and Assistive Technology (IFRA) and Indian Disability Forum (IDF) Webinar
Year(s) Of Engagement Activity 2023
 
Description Webinar presentation on Sangath's work in Autism for scaling up services orgniased by Brincar based in Buenos Aires, Argentina 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Webinar presentation on the formative and developmental work leading up to the COMPASS trial for Brincar based in Buenos Aires, Argentina
Year(s) Of Engagement Activity 2020
 
Description Welsh Neurodevelopmental Service Improvement Programme in September 2018 Regards 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Welsh Neurodevelopmental Service Improvement Programme in September 2018
Year(s) Of Engagement Activity 2018
 
Description Workshop : Intervención en niños con autismo.Teachers Education and Resource Centre, Oviedo, Asturias. Jan 19 2018 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Workshop : Intervención en niños con autismo.Teachers Education and Resource Centre, Oviedo, Asturias. Jan 19 2018
Year(s) Of Engagement Activity 2018
 
Description World Association of Infant Mental Health 17th World Congress, Brisbane Australia, Keynote, 'Developmentally-focused early intervention for Autism', 7th June 2020. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact key note lecture
Year(s) Of Engagement Activity 2020
 
Description World Health Organisation, Experts Conference on Childhood Disability, Rome, Italy, 6th December 2018. 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact WHO expert meeting Milano
Year(s) Of Engagement Activity 2018
 
Description Zero to Three Annual Conference, Ft Lauderdale Florida, USA, Keynote, 'Delivering Autism Intervention in Development', 4th October 2019. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact keynote lecture
Year(s) Of Engagement Activity 2019