Social media, Smartphone use and Self-harm in Young People (3S-YP study)
Lead Research Organisation:
King's College London
Department Name: Psychological Medicine
Abstract
Self-harm is when someone causes damage or injury to their body. Usually it is a way to relieve distressing thoughts and feelings. Often self-harm involves cutting or taking overdoses. However, it can also be any behaviour that causes injury such as burning, biting, scratching or hitting oneself.
Self-harm in young people is a major public health problem. Worldwide, it is the strongest risk factor for later suicide. More than 1 in 10 young people in the UK are thought to have self-harmed, but it could be more than double this. This is because self-harm that occurs in the community is largely hidden and does not come to the attention of clinical services.
The reasons behind self-harm are complex. The steep rise in reports of self-harm, especially amongst teenage girls in the UK has been linked to the impact of social media on mental wellbeing-although the evidence base is limited. Young people seem to be increasingly using social media to communicate distress to their peers. This is possible because they are the generation for whom smartphone ownership is the norm. Social media is ever-present in their lives, readily at hand at all times, day and night. Their smartphones are an integral part of life and a powerful social tool.
But which aspects of social media and smartphone use might increase vulnerability to self-harm? Is it excessive use, or night-time use with its impact on sleep? Young people's late-night smartphone use and waking to check social media updates is known to cause sleep disturbance. This has been linked to depressed moods and poorer self-esteem and coping ability, but might it also happen just before someone self-harms? Is an addictive pattern of use involved? Could it be that constant posting online opens young people up to receiving more negative comments or that cyberbullying itself is responsible, or a combination of factors?
We aim to study the mechanisms of social media and smartphone use that underpin self-harm in young people. We are most interested in the ways in which social media and smartphone use may change in the time leading up to a self-harm episode. We will also investigate how self-harm is related to smartphone addiction, sleep quality, depression, anxiety, loneliness and bullying over a 1 year follow-up period.
We will use data linkage between the type and content of an individual young person's social media footprint, their smartphone usage, and self-reported episodes of self-harm. We will do this for both a population-based group and a mental health patient group, who are at higher risk of self-harm. This will enable us to study a whole range of self-harm behaviours. In both groups we will be able to study community self-harm and self-harm treated in hopsitals, using hospital admission data. For the mental health patient group we will also be able to use emergency department attendance data and identify self-harm noted in the free text by clinicians.
We will develop profiles of behaviours that are linked to future self-harm episodes, and develop prediction rules for a future episode. The potential benefits of this research are to help inform the development of new interventions that might be used to ensure vulnerable young people are identified and get the help they need. This could be by harnessing the positive protective effects of social media, such as access to crisis support when someone really needs it, or empowering young people to make changes, manage their own risks and build resilience.
The design of our research questions and consideration of key ethical issues has already involved two young people expert advisory groups. Co-production will continue to be used throughout study development and in communicating the outcomes of the research, by active involvement of young people from both the groups we are studying, and representatives from YoungMinds: the UK leading charity for the wellbeing and mental health of young people.
Self-harm in young people is a major public health problem. Worldwide, it is the strongest risk factor for later suicide. More than 1 in 10 young people in the UK are thought to have self-harmed, but it could be more than double this. This is because self-harm that occurs in the community is largely hidden and does not come to the attention of clinical services.
The reasons behind self-harm are complex. The steep rise in reports of self-harm, especially amongst teenage girls in the UK has been linked to the impact of social media on mental wellbeing-although the evidence base is limited. Young people seem to be increasingly using social media to communicate distress to their peers. This is possible because they are the generation for whom smartphone ownership is the norm. Social media is ever-present in their lives, readily at hand at all times, day and night. Their smartphones are an integral part of life and a powerful social tool.
But which aspects of social media and smartphone use might increase vulnerability to self-harm? Is it excessive use, or night-time use with its impact on sleep? Young people's late-night smartphone use and waking to check social media updates is known to cause sleep disturbance. This has been linked to depressed moods and poorer self-esteem and coping ability, but might it also happen just before someone self-harms? Is an addictive pattern of use involved? Could it be that constant posting online opens young people up to receiving more negative comments or that cyberbullying itself is responsible, or a combination of factors?
We aim to study the mechanisms of social media and smartphone use that underpin self-harm in young people. We are most interested in the ways in which social media and smartphone use may change in the time leading up to a self-harm episode. We will also investigate how self-harm is related to smartphone addiction, sleep quality, depression, anxiety, loneliness and bullying over a 1 year follow-up period.
We will use data linkage between the type and content of an individual young person's social media footprint, their smartphone usage, and self-reported episodes of self-harm. We will do this for both a population-based group and a mental health patient group, who are at higher risk of self-harm. This will enable us to study a whole range of self-harm behaviours. In both groups we will be able to study community self-harm and self-harm treated in hopsitals, using hospital admission data. For the mental health patient group we will also be able to use emergency department attendance data and identify self-harm noted in the free text by clinicians.
We will develop profiles of behaviours that are linked to future self-harm episodes, and develop prediction rules for a future episode. The potential benefits of this research are to help inform the development of new interventions that might be used to ensure vulnerable young people are identified and get the help they need. This could be by harnessing the positive protective effects of social media, such as access to crisis support when someone really needs it, or empowering young people to make changes, manage their own risks and build resilience.
The design of our research questions and consideration of key ethical issues has already involved two young people expert advisory groups. Co-production will continue to be used throughout study development and in communicating the outcomes of the research, by active involvement of young people from both the groups we are studying, and representatives from YoungMinds: the UK leading charity for the wellbeing and mental health of young people.
Technical Summary
Self-harm describes any behaviour where someone causes damage to themselves in response to distress. It is the strongest predictor of suicide, with 40-60% of people who die by suicide having self-harmed in the past.
Traditionally, researchers have mainly studied cutting or self-poisoning, rather than burning, scratching or hitting oneself. In epidemiological studies, self-harm is usually recorded from a report to health services, yet this is the 'tip of the iceberg', with most episodes not coming to medical attention. School-based and community studies have relied on individual retrospective reporting of lifetime self-harm, meaning that little is known about the specific timing or nature of non-help seeking self-harm.
There has been considerable media speculation that social media has been responsible for a steep rise in young people self-harming, especially teenage girls. However the evidence is limited to associations rather than offering insight into potential mechanisms underpinning a negative effect.
We aim to investigate these by prospectively studying 13-25 year olds from both a community and clinical cohort. Our objectives are novel: we will use retrospective social media data to identify vulnerability periods prior to self-harm; prospectively, we will assess whether these social media vulnerability profiles and smartphone use patterns in the times approaching an episode of self-harm, differ from those who do not have such an episode. If a relationship is established we shall explore mediating factors, e.g. sleep problems and bullying.
Our methodology is distinct because we are collecting user-generated social media public posts, passive smartphone usage patterns and monthly outcome data about self-harm to investigate the mechanistic links.
This grant has been designed in consultation with young people and YoungMinds, the UK leading national charity for mental health of young people. They will work closely throughout to co-produce the research.
Traditionally, researchers have mainly studied cutting or self-poisoning, rather than burning, scratching or hitting oneself. In epidemiological studies, self-harm is usually recorded from a report to health services, yet this is the 'tip of the iceberg', with most episodes not coming to medical attention. School-based and community studies have relied on individual retrospective reporting of lifetime self-harm, meaning that little is known about the specific timing or nature of non-help seeking self-harm.
There has been considerable media speculation that social media has been responsible for a steep rise in young people self-harming, especially teenage girls. However the evidence is limited to associations rather than offering insight into potential mechanisms underpinning a negative effect.
We aim to investigate these by prospectively studying 13-25 year olds from both a community and clinical cohort. Our objectives are novel: we will use retrospective social media data to identify vulnerability periods prior to self-harm; prospectively, we will assess whether these social media vulnerability profiles and smartphone use patterns in the times approaching an episode of self-harm, differ from those who do not have such an episode. If a relationship is established we shall explore mediating factors, e.g. sleep problems and bullying.
Our methodology is distinct because we are collecting user-generated social media public posts, passive smartphone usage patterns and monthly outcome data about self-harm to investigate the mechanistic links.
This grant has been designed in consultation with young people and YoungMinds, the UK leading national charity for mental health of young people. They will work closely throughout to co-produce the research.
Planned Impact
The 3S-YP grant proposal lays the scientific groundwork for understanding the mechanisms by which social media and smartphone use may underpin self-harm in young people.
Our study findings have the potential to benefit 7 groups of beneficiaries as follows:
1. Young people/Service users/Carers/Families
If our results show strong underpinning mechanisms, this will contribute to increased understanding amongst young people and their families about aspects of social media and smartphone use that are negative. They could take evidence-based decisions to modify behaviour, e.g. limiting night-time use. Conversely if there are only weak associations, this could be reassuring especially for parent groups. The increased public awareness generated will help reduce the stigma associated with self-harm, and increase the likelihood that individuals seek help.
2. Public health/Policy makers
The recent Government green paper Transforming Children and Young People's Mental Health Provision: Department of Health/Department for Education, 2017 (consultation ended March 2018) identifies a need to ensure young people showing early signs of distress are able to access child and adolescent mental health services. Our research may help in developing indicators of those in need of formal support.
3. Educational sector
Schools have been identified as priority places where self-harm prevention should be focused, due to staff's daily encounters with young people. However The Self-Harm and Suicide in Schools GW4 project (2016) revealed that many schools are engaged in a broad, often ad hoc range of non-evidence-based practice. Because staff have to manage social media and smartphone use at school, the results of our research will help schools understand the impacts of social media on self-harm and assist them in their duty of care.
4. Third Sector
Charities such as YoungMinds, but also the NSPCC, Mind, the Samaritans and the National Self Harm Network, work directly with young people and parents. They also train professionals in mental health subjects and are asked for media comment about social media and mental health. The evidence-base this research will provide will enable them to specifically improve the support and advice they offer, the content of their training and their media contributions.
5. Social media platform developers
Although numerous studies have examined social media usage, little is understood about how young people who are vulnerable for self-harm, use social media. Findings from this project could benefit platform developers in User Interface design and Human Factors research about supportive interfaces for social media. The data collected could also inform machine learning research that leads to early interventions in self-harm cases.
6. Social scientist networks
Our study will be beneficial to 2 networks:
(1) Natcen and Sage methodology network (#NSMNSS) is for people using social media in social science research who want to explore the implications of this methodology. By developing qualitative methodology for using social media textual data to explore vulnerability profiles for a self-harm episode, our research will be of conceptual benefit to this group.
(2) The Microanalysis of Online Data (MOOD) network comprises an interdisciplinary network of academic researchers who explore ways of conducting qualitative analysis of online interactions. Our study will be beneficial as we will have results about how to apply detailed qualitative analysis to a range of social media data from young people who self-harm.
7. Employment sector
Funding for this research will enable development of capacity of an outstanding cross-disciplinary team of academic experts, working with RD, a talented midcareer PI in the field of self-harm research. Our unique academic, clinical and technical expertise will potentially allow our team to develop further competitive proposals tackling the issue of self-harm.
Our study findings have the potential to benefit 7 groups of beneficiaries as follows:
1. Young people/Service users/Carers/Families
If our results show strong underpinning mechanisms, this will contribute to increased understanding amongst young people and their families about aspects of social media and smartphone use that are negative. They could take evidence-based decisions to modify behaviour, e.g. limiting night-time use. Conversely if there are only weak associations, this could be reassuring especially for parent groups. The increased public awareness generated will help reduce the stigma associated with self-harm, and increase the likelihood that individuals seek help.
2. Public health/Policy makers
The recent Government green paper Transforming Children and Young People's Mental Health Provision: Department of Health/Department for Education, 2017 (consultation ended March 2018) identifies a need to ensure young people showing early signs of distress are able to access child and adolescent mental health services. Our research may help in developing indicators of those in need of formal support.
3. Educational sector
Schools have been identified as priority places where self-harm prevention should be focused, due to staff's daily encounters with young people. However The Self-Harm and Suicide in Schools GW4 project (2016) revealed that many schools are engaged in a broad, often ad hoc range of non-evidence-based practice. Because staff have to manage social media and smartphone use at school, the results of our research will help schools understand the impacts of social media on self-harm and assist them in their duty of care.
4. Third Sector
Charities such as YoungMinds, but also the NSPCC, Mind, the Samaritans and the National Self Harm Network, work directly with young people and parents. They also train professionals in mental health subjects and are asked for media comment about social media and mental health. The evidence-base this research will provide will enable them to specifically improve the support and advice they offer, the content of their training and their media contributions.
5. Social media platform developers
Although numerous studies have examined social media usage, little is understood about how young people who are vulnerable for self-harm, use social media. Findings from this project could benefit platform developers in User Interface design and Human Factors research about supportive interfaces for social media. The data collected could also inform machine learning research that leads to early interventions in self-harm cases.
6. Social scientist networks
Our study will be beneficial to 2 networks:
(1) Natcen and Sage methodology network (#NSMNSS) is for people using social media in social science research who want to explore the implications of this methodology. By developing qualitative methodology for using social media textual data to explore vulnerability profiles for a self-harm episode, our research will be of conceptual benefit to this group.
(2) The Microanalysis of Online Data (MOOD) network comprises an interdisciplinary network of academic researchers who explore ways of conducting qualitative analysis of online interactions. Our study will be beneficial as we will have results about how to apply detailed qualitative analysis to a range of social media data from young people who self-harm.
7. Employment sector
Funding for this research will enable development of capacity of an outstanding cross-disciplinary team of academic experts, working with RD, a talented midcareer PI in the field of self-harm research. Our unique academic, clinical and technical expertise will potentially allow our team to develop further competitive proposals tackling the issue of self-harm.
Publications
Dutta R
(2021)
Temporal and diurnal variation in social media posts to a suicide support forum.
in BMC psychiatry
Leightley D
(2022)
Maximizing the positive and minimizing the negative: Social media data to study youth mental health with informed consent.
in Frontiers in psychiatry
Title | 3S-YP study: Learn more about the study and what taking part involves |
Description | Short animation video to briefly outline the purpose of the 3S-YP study and what participation in the study involves. The video was co-designed and co-produced with young people and representatives from our charity partner, YoungMinds, to ensure the product would be acceptable and inclusive to young people with different needs and experiences. The video is hosted on our bespoke study website and supplements the written participant information. Eligible young people are directed to the website (and the video) via a text message with a unique weblink when they are approached to participate in the study. This provides young people with an opportunity to consider participating in the study prior to receiving a follow up phone call from a member of the research team. |
Type Of Art | Film/Video/Animation |
Year Produced | 2021 |
Impact | Efficient, acceptable and inclusive method of participant recruitment. |
URL | https://youtu.be/ftfsXuB_P70 |
Title | About the 3S-YP study |
Description | Short animation video to briefly outline the purpose of the 3S-YP study. The video was co-designed and co-produced with young people and representatives from our charity partner, YoungMinds, to ensure the product would be acceptable and inclusive to young people with different needs and experiences. The video is hosted on our public-facing bespoke study website (https://3syp.co.uk/) and is shared via our social media channels (Twitter @3s_yp and Instagram @3syp_kcl). |
Type Of Art | Film/Video/Animation |
Year Produced | 2021 |
Impact | Efficient, acceptable and inclusive method of raising the study profile on social media. |
URL | https://youtu.be/u2l0O7BYiqc |
Description | Major conditions strategy: call for evidence |
Geographic Reach | National |
Policy Influence Type | Contribution to a national consultation/review |
URL | https://www.gov.uk/government/consultations/major-conditions-strategy-call-for-evidence/major-condit... |
Description | Training for clinicians (Psychiatrists, Nurses, Allied Health Professionals) |
Geographic Reach | Local/Municipal/Regional |
Policy Influence Type | Contribution to new or improved professional practice |
Description | Evaluating models of health-based Independent Domestic Violence Advisor (IDVA) provision within maternity services |
Amount | £356,595 (GBP) |
Organisation | National Institute for Health Research |
Sector | Public |
Country | United Kingdom |
Start | 08/2021 |
End | 09/2023 |
Description | King's Undergraduate Research Fellowships - KURF - Summer student placement - 4 week undergraduate student placement |
Amount | £1,400 (GBP) |
Organisation | King's College London |
Sector | Academic/University |
Country | United Kingdom |
Start | 06/2022 |
End | 08/2022 |
Description | MRC/MRF costed extension to Grant MR/S020365/1 |
Amount | £33,021 (GBP) |
Organisation | Medical Research Council (MRC) |
Sector | Public |
Country | United Kingdom |
Start | 08/2022 |
End | 08/2023 |
Description | Mental Health Policy Research Unit |
Amount | £1,822,619 (GBP) |
Organisation | National Institute for Health Research |
Sector | Public |
Country | United Kingdom |
Start | 01/2024 |
End | 12/2028 |
Description | Prevention of Risks and Onset of Mental Health problems through Interdisciplinary Stakeholder Engagement-PROMISE Population Health Improvement Cluster |
Amount | £8,212,315 (GBP) |
Funding ID | MR/Y030788/1 |
Organisation | Medical Research Council (MRC) |
Sector | Public |
Country | United Kingdom |
Start | 03/2024 |
End | 03/2028 |
Description | The environment and eating disorders: developing novel measures and hypotheses through inter-disciplinary collaborations - Research Grant, Joint Funded Initiatives |
Amount | £1,093,376 (GBP) |
Funding ID | MR/X030725/1 |
Organisation | Medical Research Council (MRC) |
Sector | Public |
Country | United Kingdom |
Start | 09/2023 |
End | 09/2026 |
Description | Why are people with eating disorders at higher risk of suicide? Understanding this association using data science and insights from lived experience |
Amount | £2,242,268 (GBP) |
Funding ID | MQF2210 |
Organisation | MQ Mental Health Research |
Sector | Charity/Non Profit |
Country | United Kingdom |
Start | 01/2023 |
End | 02/2026 |
Title | Research governance approvals |
Description | South London and Maudsley NHS Foundation Trust (SLaM) accepted the application for co-sponsorship with King's College London on 09.10.20. This enabled the study documentation to be submitted for approval by the NHS REC and HRA, which was granted on 25.11.2020. Following which, SLaM confirmed Capacity and Capability on 14.01.21 and the BRC CRIS Oversight Committee approved for the study to utilise the SLaM Consent for Contact (C4C) mental health participation register to recruit eligible young people on 20.01.21. |
Type Of Material | Improvements to research infrastructure |
Year Produced | 2021 |
Provided To Others? | No |
Impact | These research governance approvals are essential for the delivery of the study. |
Title | Research governance approvals for addition of a process evaluation component |
Description | NHS REC and HRA approval in 11/2021 for the inclusion of a process evaluation component in the 3S-YP study to gather acceptability and feasibility data on participation experience and youth perspectives on the use of social media and smartphone data in mental health research. |
Type Of Material | Improvements to research infrastructure |
Year Produced | 2021 |
Provided To Others? | No |
Impact | Enables the collection of acceptability and feasibility feedback on the use of social media data in mental health research to inform future research and initiatives to empower youth on the use of their data. |
Title | Research governance approvals for feasibility study with the offspring of mothers recruited to the Southampton Women's Survey |
Description | Governance approvals were obtained to conduct a feasibility study with the offspring of mothers recruited to the Southampton Women's Survey (SWS). |
Type Of Material | Improvements to research infrastructure |
Year Produced | 2021 |
Provided To Others? | No |
Impact | These research governance approvals are an essential precursor to enable the research team to seek NHS REC and HRA approval to approach the offspring of mothers recruited to the Southampton Women's Survey (SWS) directly (as is appropriate given their age) to participate in the larger study to collect real-world data on social media, smartphone use and self-harm in a general population sample to parallel the data collected from a clinical sample. |
Title | Research governance approvals for study with the offspring of mothers recruited to the Southampton Women's Survey |
Description | Governance approvals are being sought to directly approach the offspring of mothers recruited to the Southampton Women's Survey (SWS) via the consent for contact mechanism provided by the feasibility study. |
Type Of Material | Improvements to research infrastructure |
Year Produced | 2022 |
Provided To Others? | No |
Impact | These research governance approvals are essential for the delivery of the study in a general population sample to parallel the data collected from a clinical sample. |
Title | Study registered on a public database |
Description | The study has been registered on a public database: ClinicalTrials.gov (Identifier: NCT04601220) |
Type Of Material | Improvements to research infrastructure |
Year Produced | 2020 |
Provided To Others? | Yes |
Impact | Registration of research studies on a public database is encouraged by the NHS REC. |
URL | https://www.clinicaltrials.gov/ct2/show/NCT04601220 |
Title | 3S-YP study - participant data |
Description | Development of dataset for the 3S-YP study, comprising of a range of participant data on social media activity, smartphone usage and mental health. Participant recruitment is now complete and follow up is ongoing. Of N = 1,288 eligible young people approached to take part in the study, n = 388 enrolled. There is no plan to make the participant data publicly available as it is not possible to guarantee that an individual could not be identified as a participant from their publicly available social media data. |
Type Of Material | Database/Collection of data |
Year Produced | 2022 |
Provided To Others? | No |
Impact | Impact not realised yet as data collection ongoing. |
Title | 3S-YP study - process evaluation data |
Description | Development of datasets for the 3S-YP study on study uptake, acceptability and feasibility on participation experience and youth perspectives on the use of social media and smartphone data in mental health research. We are in the process of analysing data collected during the recruitment phase of the study. We have also conducted and begun analysing n = 6 interviews with young people who have finished taking part in the study. There is no plan to make the data publicly available as it is not possible to guarantee that an individual could not be identified as a participant. |
Type Of Material | Database/Collection of data |
Year Produced | 2022 |
Provided To Others? | No |
Impact | The collection of acceptability and feasibility feedback on participation experience and youth perspectives on the use of social media and smartphone data in mental health research will inform future research in the field and discussions around data empowerment. |
Title | Feasibility study with the offspring of mothers recruited to the Southampton Women's Survey |
Description | Governance approvals were obtained to conduct a feasibility study with the offspring of mothers recruited to the Southampton Women's Survey (SWS). The offspring (aged 17-19 years old; n = 1000) were approached to take part in an online survey via their mother who is a participant in the SWS. The survey examines health behaviours, mental health and social media and smartphone use, of which 443 young people have taken part in the 17-19-year follow-up with 305 completing the paper version of the questionnaire and 138 online. |
Type Of Material | Database/Collection of data |
Year Produced | 2024 |
Provided To Others? | No |
Impact | Participants are asked to consent for contact for future research, which may in the future enable the research team to approach the offspring directly (as is appropriate given their age) to participate in a larger study to collect real-world data on social media, smartphone use and self-harm in a general population sample to parallel the data collected from a clinical sample. |
Title | Feasibility study with the offspring of mothers recruited to the Southampton Women's Survey |
Description | Governance approvals were obtained to conduct a feasibility study with the offspring of mothers recruited to the Southampton Women's Survey (SWS). The offspring (aged 17-19 years old; n = 1000) were approached to take part in an online survey via their mother who is a participant in the SWS. The survey examines health behaviours, mental health and social media and smartphone use, of which n = 434 offspring have participated, giving a response rate 43.4%, with data collection still ongoing. Participants are asked to consent for contact for future research, which enables the research team to approach the offspring directly (as is appropriate given their age) to participate in the larger study to collect real-world data on social media, smartphone use and self-harm in a general population sample to parallel the data collected from a clinical sample. |
Type Of Material | Database/Collection of data |
Year Produced | 2021 |
Provided To Others? | No |
Impact | The feasibility study is an essential precursor to enable the research team to approach the offspring of mothers recruited to the Southampton Women's Survey (SWS) directly (as is appropriate given their age) to participate in the larger study to collect real-world data on social media, smartphone use and self-harm in a general population sample to parallel the data collected from a clinical sample. |
Title | Social media, Smartphone use and Self-Harm (3S-YP) study data |
Description | The Social media, Smartphone use and Self-Harm (3S-YP) study is a prospective observational cohort study to investigate the associations between social media and smartphone use and self-harm in young people. Young people aged 13-25 years old from secondary mental health services were recruited and followed for up to 6 months. Data collected in the study includes questionnaire data and data extracted from electronic health records (EHR) and user generated data sources. |
Type Of Material | Database/Collection of data |
Year Produced | 2024 |
Provided To Others? | Yes |
Impact | Data analysis in progress |
URL | https://kcl.figshare.com/articles/dataset/Social_media_Smartphone_use_and_Self-Harm_3S-YP_study_data... |
Description | Collaboration with subject experts - Professor Tamsin Ford (University of Cambridge) and Dr Amy Orben (University of Cambridge) |
Organisation | University of Cambridge |
Country | United Kingdom |
Sector | Academic/University |
PI Contribution | Generating impact by maximising reach of progress regarding research using social media data. |
Collaborator Contribution | Professor Tamsin Ford brings National and International expertise in Child and Adolescent mental health, and Dr Amy Orben expertise in social media use in society to the partnership. |
Impact | Commentary under submission - multidisciplinary: Computer sciences, Psychiatry, Psychology, Patient and Public Involvement, Engagement and Participation, Biostatistics and Informatics, Data sciences, in particular Natural Language Processing, Industry, Health services research |
Start Year | 2021 |
Description | New collaborator, Dr Daniel Leightley, computer science expertise |
Organisation | King's College London |
Country | United Kingdom |
Sector | Academic/University |
PI Contribution | Dr Daniel Leightley is a Post-Doctoral Research Associate in the Department of Psychological Medicine at King's College London, as is Dr Rina Dutta, CI for the 3S-YP study. The CI and Co-I on the 3S-YP have used their expertise to inform the recruitment and data collection methods to be used in the 3S-YP study. |
Collaborator Contribution | Dr Daniel Leightley's research focuses on the interface between machine learning and mobile health technologies, specifically focused on diagnosis, treatment, intervention and management of physical and mental health conditions. Dr Leightley has contributed to the development of the recruitment and data collection methods for the 3S-YP study. |
Impact | Development of a web-based sign-up process for recruitment, study software application for the collection of smartphone and questionnaire data, and development of the Application Programming Interface for the collection of social media data. |
Start Year | 2020 |
Description | Partnership with YoungMinds |
Organisation | YoungMinds |
Country | United Kingdom |
Sector | Charity/Non Profit |
PI Contribution | The research team have invited representatives and Youth Advisors from YoungMinds to join the 3S-YP Steering Group, have contributed to youth engagement activities and co-design workshops and contributed to the YoungMinds portfolio to demonstrate the ways in which they work with academic groups. |
Collaborator Contribution | YoungMinds are facilitating youth involvement in the 3S-YP Study and working collaboratively to consider next steps and future opportunities. |
Impact | - The research team contributed to the YoungMinds portfolio to demonstrate the ways in which they work with academic groups. - The research team and representatives from YoungMinds have co-facilitated youth engagement activities and co-design workshops. |
Start Year | 2020 |
Description | Queen Mary University Collaboration |
Organisation | University of Warwick |
Country | United Kingdom |
Sector | Academic/University |
PI Contribution | Sharing of expertise and specialist knowledge in informatics. |
Collaborator Contribution | Sharing of expertise and specialist knowledge in informatics. |
Impact | The following paper had input from Warwick collaborator Dr Maria Liakata: Gkotsis, G., Velupillai, S., Oellrich, A., Dean, H., Liakata, M. and Dutta, R. Don't Let Notes Be Misunderstood: A Negation Detection Method for Assessing Risk of Suicide in Mental Health Records has been accepted as an oral submission to Computational Linguistics and Clinical Psychology - From Linguistic Signal to Clinical Reality in 2016 and will be presented by post-doctoral informatician, Dr George Gkotsis on 16th June 2016, San Diego, California, USA. Maria Liakata is now an Associate Professor in Natural Language Processing (NLP) at Queen Mary, University of London This research collaboration remains active. |
Start Year | 2021 |
Title | Study software application |
Description | The study software application was developed with support from Dr Daniel Leightley and Digital Marmalade. The application is an efficient and user friendly means of collecting smartphone and questionnaire data over the 12 month participation period. Shared intellectual property rights between King's College London and Digital Marmalade Ltd. |
IP Reference | |
Protection | Trade Mark |
Year Protection Granted | 2021 |
Licensed | No |
Impact | The development of this software application has enhanced the participant experience. |
Title | Development of Application Programming Interface for the collection of social media data |
Description | Development of Application Programming Interface (API) for the collection of participants' social media data from social media platforms - Facebook, Instagram, Twitter, Youtube. |
Type Of Technology | Webtool/Application |
Year Produced | 2021 |
Impact | Efficient method for collecting participants' social media data that conforms with the rules of the social media platforms. |
Title | Development of a bespoke public-facing website |
Description | Development of a bespoke public-facing study website that hosts information about the study and study team, with links to the study's social media profiles. |
Type Of Technology | Webtool/Application |
Year Produced | 2021 |
Impact | Efficient and accessible means of raising the study profile in the general public. |
URL | https://3syp.com/ |
Title | Development of a social media data upload portal |
Description | A web-based portal was developed to enable participants to manually upload their social support data for the study using a unique web-link. This is a streamline process for the remote recruitment of young people as following the national restrictions in place since March 2020, a decision was made to change from the planned method of approaching young people in person. |
Type Of Technology | Webtool/Application |
Year Produced | 2021 |
Impact | This is a streamline process for participants to manually upload their social media data for the study, following restrictions applied by certain social media platforms. |
Title | Development of a web-based sign-up process for recruitment |
Description | A web-based sign-up process was developed to support remote recruitment of young people to the study. Eligible young people will be sent a welcome text to invite them to participate in the study. The text will include a unique web-link to access the participant information and consent form, and for those who consent to participate, instructions to provide their social media data and download the study software application to complete the questionnaire (or link to an online survey platform for those that do not consent to the study collecting their smartphone data). |
Type Of Technology | Webtool/Application |
Year Produced | 2021 |
Impact | This is a streamline process for the remote recruitment of young people as following the national restrictions in place since March 2020, a decision was made to change from the planned method of approaching young people in person. |
Title | Development of study software application |
Description | The study software application was developed with support from Dr Daniel Leightley and Digital Marmalade. The application is an efficient and user friendly means of collecting smartphone and questionnaire data over the 12 month participation period. |
Type Of Technology | Webtool/Application |
Year Produced | 2021 |
Impact | The development of this software application has enhanced the participant experience. |
Description | 3S-YP social media channels |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | We have set up and regularly post from the 3S-YP social media accounts on Twitter and Instagram. We post updates on the study and promote related research, initiatives and and links to resources for support. We have had requests for further information and have had our posts promoted by our charity partner and supporting institutions, which has enhanced study reach. |
Year(s) Of Engagement Activity | 2020,2021,2022,2023 |
URL | https://twitter.com/3s_yp |
Description | 3S-YP study website |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Study participants or study members |
Results and Impact | We launched the 3S-YP study website in 2020 and regularly update the website with information about the study. The website provides an introduction to the study team, a lay summary of the study, links to relevant research outputs, resources for support and our social media channels, as well as responses to some frequently asked questions specifically for study participants. The website has provided a useful means of communicating study information with study participants and other interested stakeholders. |
Year(s) Of Engagement Activity | 2020,2021,2022,2023 |
URL | https://3syp.com/ |
Description | Co-design workshop facilitated by YoungMinds |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Other audiences |
Results and Impact | YoungMinds, the UK's leading charity championing the well-being and mental health of young people, engages with young people in a variety of ways including recruiting young people to act as Youth Activists and Advisors. Youth Activists are volunteers for the charity, aged 14 to 25 who come from across England and who have experience related to mental health (including personal experience or caring for someone with a mental health problem). Some Youth Activists will progress to Youth Advisors, which are paid roles for specific forms of engagement and discussion. The Youth Engagement team at YoungMinds recruited a group of Activists to participate in a virtual co-design workshop for the study. The workshop was facilitated by a Senior Project Officer and the two Youth Advisors, who have been recruited to advise on the study progress and participate in the Study Steering Group. The purpose of the workshop was to co-design the web-based sign-up process and the software application, advise on key ethical issues and review the participant-facing documentation. There was a high level of engagement from the young people attending the co-design workshop. Below is a summary of the key feedback: - Young people felt that the language used in the sign-up process section was easy to understand but the formatting of the text was challenging for young people who are neurodivergent. They suggested several stylistic changes to make it more aesthetically pleasing. - Young people found it easy to download the software application and complete the questionnaire. They felt the app was aesthetically pleasing. Some young people found the questions about self-harm upsetting so they appreciated the option to skip questions they did not want to complete and the link to useful resources. They suggested a trigger warning could be presented before these questions so that participants were prepared. Some young people found the question about gender not inclusive and suggested adding another option for those that do not identify with the traditional binary gender options. - Young people felt that the participant information sheet was well structured and accessible, but needed to expand on the rationale for the study and the data being collected. These changes were considered important to alleviate concerns young people may have about providing their social media, smartphone and hospital records data to the study. Their constructive feedback has led to important changes to the recruitment and data collection methods and participant-facing documentation so the study will be more acceptable to other young people. |
Year(s) Of Engagement Activity | 2020 |
Description | Co-production of short animation video about the 3S-YP study |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Patients, carers and/or patient groups |
Results and Impact | Co-produced a short animation video about the 3S-YP with young people and representatives from our charity partner, YoungMinds, to ensure the product would be acceptable and inclusive to young people with different needs and experiences. The video is hosted on a bespoke public-facing study website (https://3syp.co.uk/) and is shared via the study's social media profiles (Twitter handle: @3s_yp; Instagram handle: @3syp_kcl). |
Year(s) Of Engagement Activity | 2021 |
URL | https://youtu.be/u2l0O7BYiqc |
Description | Co-production of short animation video about the 3S-YP study and participation |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Patients, carers and/or patient groups |
Results and Impact | Co-produced short animation video briefly outlining the purpose of the 3S-YP study and what participation in the study involves with young people and representatives from our charity partner, YoungMinds, to ensure the product would be acceptable and inclusive to young people with different needs and experiences. The video is hosted on a bespoke study website (accessed via a unique weblink) and supplements the written participant information. Eligible young people are directed to the website (and the video) via a text message with a unique weblink when they are approached to participate in the study. This provides young people with an opportunity to consider participating in the study prior to receiving a follow up phone call from a member of the research team. |
Year(s) Of Engagement Activity | 2021 |
URL | https://youtu.be/hED8bKbN3ec |
Description | Interview for BBC Radio Scotland 19th October 2021 |
Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Public/other audiences |
Results and Impact | Interview regarding "inking" / tattoo work intervention following remission from self-harm |
Year(s) Of Engagement Activity | 2021 |
Description | Invited attendance to 'Horizons: An Evening With YoungMinds' at the Bank of England |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Third sector organisations |
Results and Impact | Invited attendance at 'Horizons: An Evening With YoungMinds' at the Bank of England. The event provided an opportunity to meet the CEO of YoungMinds and the young people they are working with. |
Year(s) Of Engagement Activity | 2024 |
Description | Launch of 3S-YP study blog |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Study participants or study members |
Results and Impact | We published a blog post for the 3S-YP study via the 3S-YP website. We promoted the blog via social media including Twitter and Instagram. The blog provided a lay summary of the study and an update on current progress. |
Year(s) Of Engagement Activity | 2022 |
URL | https://3syp.co.uk/how-does-the-use-of-social-media-and-smartphones-link-with-youth-mental-health-st... |
Description | Media interview by Dr Rina Dutta |
Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Media (as a channel to the public) |
Results and Impact | The NIHR South London and Maudsley NHS Foundation Trust (SLaM) Biomedical Research Centre (BRC) posted a video interview with Dr Rina Dutta from their Twitter account. The purpose of the interview was an expert opinion on how young people can stay safe on social media from an expert opinion. The post had a wide reach and promoted public awareness. |
Year(s) Of Engagement Activity | 2023 |
URL | https://twitter.com/NIHRMaudsleyBRC/status/1623261233565560833?s=20 |
Description | Presentation with YoungMinds at MQ Data Science Meeting |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | Presentation with a representative from YoungMinds at the MQ Data Science Meeting 2023, which led to questions and discussion afterwards about the research and participatory model, and strengthened collaborative partnership between research team and YoungMinds. |
Year(s) Of Engagement Activity | 2023 |
URL | https://datamind.org.uk/mq-and-datamind-data-science-meeting-october-2023/ |
Description | Press release by King's College London |
Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Media (as a channel to the public) |
Results and Impact | King's College London posted a press release on their website following the publication of the following article - Leightley, D., Bye, A., Carter, B., Trevillion, K., Branthonne-Foster, S., Liakata, M., Wood, A., Ougrin, D., Orben, A., Ford, T., & Dutta, R. (2023). Maximizing the positive and minimizing the negative: Social media data to study youth mental health with informed consent. Frontiers in psychiatry, 13, 1096253. https://doi.org/10.3389/fpsyt.2022.1096253. |
Year(s) Of Engagement Activity | 2023 |
URL | https://www.kcl.ac.uk/news/new-framework-aims-to-unlock-the-potential-for-social-media-research-into... |
Description | Press release by NIHR South London and Maudsley NHS Foundation Trust (SLaM) Biomedical Research Centre (BRC) |
Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | The NIHR South London and Maudsley NHS Foundation Trust (SLaM) Biomedical Research Centre (BRC) posted a press release, including a video interview with Dr Rina Dutta, on their website following the publication of the following article - Leightley, D., Bye, A., Carter, B., Trevillion, K., Branthonne-Foster, S., Liakata, M., Wood, A., Ougrin, D., Orben, A., Ford, T., & Dutta, R. (2023). Maximizing the positive and minimizing the negative: Social media data to study youth mental health with informed consent. Frontiers in psychiatry, 13, 1096253. https://doi.org/10.3389/fpsyt.2022.1096253. |
Year(s) Of Engagement Activity | 2023 |
URL | https://www.maudsleybrc.nihr.ac.uk/posts/2023/january/new-framework-aims-to-unlock-the-potential-for... |
Description | Science Media Centre: Background Briefing on social media, online harms and mental health |
Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Media (as a channel to the public) |
Results and Impact | 18 journalist representatives from BBC News, CNN, Daily Express, El Pais, Mail Online, Medscape, New Scientist, PA Media, Swedish National Radio, Telegraph, The Sun, The Sunday Times, The Telegraph, The Times and Freelance attended Press Panel with Dr Rina Dutta, Reader in Suicidology and Psychiatry, Institute of Psychiatry, Psychology and Neurosciences, King's College London (IoPPN), Prof Ann John, Professor of Health Data Science and Personal Chair in Public Health and Psychiatry, Swansea University, Prof Sonia Livingstone, Professor of Social Psychology, London School of Economics and Political Science (LSE), Dr Lucy Biddle, Associate Professor in Qualitative Mental Health Research, University of Bristol and Jacqui Morrissey, Assistant Director, Research & Influencing, Samaritans. Areas discussed: Media guidelines and responsible reporting discussed with Press panel Importance of not over-simplifying the issue Positives of the online environment as a place to speak openly and share experiences But also evidence that it provides access to content that can be harmful Content isn't just harmful for children, also for adults Current policy context of Online Safety Bill and its partial approach Need to act on best available evidence (and keep adding to this evidence) The Q&A and discussion generated informed future reports with more nuance on the complexities of what can be described as 'harmful' content. |
Year(s) Of Engagement Activity | 2023 |
Description | Speaker at International Plenary Mental Health Symposium |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | Internationally broadcast plenary talk "Using data science to understand suicidality" at the British Association for Psychopharmacology Summer Meeting - 19th July 2021. Key note speaker with Professor Leonardo Tondo (Harvard) and Dr Phillippe Courtet (Montpellier, France). Attended by >500. Sparked live discussion and questions afterwards - both in "chat" facility and live. |
Year(s) Of Engagement Activity | 2021 |
URL | https://www.bap.org.uk/summersessiondetails.php?meetingID=14&sessionID=483 |
Description | Youth Advisors idea-generation session with YoungMinds |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Other audiences |
Results and Impact | Youth Advisors idea-generation session with YoungMinds to inform about the study background and progress, collaborate on ideas for a dissemination workshop with Youth Activists and provide a space for them to lead discussions on future engagement activities with a wider group of young people. |
Year(s) Of Engagement Activity | 2023 |
Description | Youth Advisors working with YoungMinds conducted interviews and a focus group |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Other audiences |
Results and Impact | Youth Advisors working with YoungMinds conducted interviews and a focus group with Youth Activists to gain insights into youth perspectives of social media and smartphone use and the impact on mental health. The Advisors led on devising the topic guide, with input from the research team, and co-facilitated the sessions with colleagues from YoungMinds. |
Year(s) Of Engagement Activity | 2023,2024 |
Description | Youth Advisors working with YoungMinds recruited to the Study Steering Group |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Third sector organisations |
Results and Impact | Young Minds, the UK's leading charity championing the well-being and mental health of young people, engages with young people in a variety of ways including recruiting young people to act as Youth Advisors. Youth Advisors are paid roles for young people aged 14 to 25 who come from across England and who have experience related to mental health (including personal experience or caring for someone with a mental health problem). The Youth Engagement team at Young Minds recruited two Youth Advisors to participate in the Study Steering Group, supported by their Senior Project Officer. The group meets at regular intervals for the duration of the study. It is comprised of the research team and other experts from self-harm/suicide research, developmental psychology, CAMHS, paediatrics, sleep medicine, addictions, and data science, as well as young people with lived experience of self-harm and the representatives from YoungMinds. To purpose of the group is to act as a decision making forum for the study and provide expert input to the study processes, and analysis and dissemination plans. |
Year(s) Of Engagement Activity | 2020,2021,2022,2023 |