Adolescence, digital technology and mental health care: exploring opportunity and harm.

Lead Research Organisation: University of Bristol
Department Name: Bristol Medical School

Abstract

This work will pave the way for a substantial programme of research focused on the relevance of adolescents' digital technology use to consultations about mental health. We will explore both opportunities and harms posed by digital technology use and if addressing these in consultations can help clinicians to manage patient risk. Specifically, we will pose questions around whether young people's technology use can be drawn upon to enrich face-to-face consultations, used as a tool to make these work better and more efficiently; and whether clinicians have a role to play in safeguarding against harmful use. There will be three workstreams of activity:
1) we will work closely with young people, their carers, mental health practitioners, general practitioners, social care workers, and technology providers to involve them in shaping our plans. We will ask what they consider to be the most important questions and needs in this area and explore their ideas about possible solutions and the type of research that would be acceptable to carry out. To do this, we will run a series of discussion workshops with these groups, consult practitioners to find out how they currently address issues relating to digital technology, and run a programme of arts-based activities with young people to help them express themselves and think about the issues under discussion. We will generate an online hub to make us a working community. This will help us jointly create research plans for a programme of research.
2) we will work with other researchers, especially those in general practice and data science, taking time to consider the best ways to include these important areas in our programme of research.
3) we will conduct two pilot projects. The first will look at a newly emerging example of where technology use may provide an opportunity: in this instance, for the MeeTwo teenage mental health app to provide information to mental health clinicians about a distressed young person, to help with history-taking and triage. We will build cases studies of where this happens, interviewing the young person and clinician involved to find out whether this was helpful, acceptable, and if it may have improved their relationship and the young person's care. Our second project stems from recent advice issued by the Royal College of Psychiatrists that mental health clinicians should ask young people about their online activities when assessing risk. This is in recognition of the harmful effects of some content, for instance, in relation to body image and self-harm. We know from our previous research that clinicians agree this is important but have concerns about how to engage in such conversations safely. Our project will gather together a virtual panel of mental health clinicians and of young people with experience of mental health difficulties. Each panel will be asked to rate statements (a Delphi study) about how clinicians should ask young people about technology use, including what should be asked, when and by whom. We will look for agreement, keeping the statements that receive a high level of endorsement. We will use the results to design a set of guidelines agreed by clinicians and young people about the best ways for mental health clinicians to talk to young people about technology use. Our pilot projects will provide the foundations for full-scale research. Project 1 leads into feasibility work exploring opportunities for technology enriched history taking and triage to be used more widely. Project 2 leads into research on clinical benefits and interventions that could follow from adding questions about technology use to mental health assessment.
Our activities will allow us to design a comprehensive programme of research informed by the key needs, questions, and possible solutions of those to whom it matters most; and to develop relationships with partners (clinical, academic, digital technology providers, and young people) to bring this to fruition

Technical Summary

This work will provide the basis of a large programme of research focused on adolescents' use of digital technology in the context of consultations about mental health. We will explore both opportunities and harms posed by use and whether addressing these in consultations can help clinicians to manage risk. There will be three workstreams. 1) we will engage young people, their carers, technology providers, and mental health, social care and general practitioners through an expert consultation and workshop sessions. We will scope current practice, determine the key questions and needs in this area, and seek co-created solutions. Arts-based activities will be used to facilitate involvement of young people, especially those with lived-experience. We will establish an online 'stakeholder hub' to facilitate shared-working and dissemination. 2) we will collaborate with primary care, data science and specialist qualitative methodologists to consider how input from these areas could strengthen our future research. 3) we will conduct two pilot projects. The first examines whether digital technology can interface with mental health services to enrich consultations by providing early history-taking and triage information. In partnership with the MeeTwo teenage mental health app, we will build a small number of cases studies of such newly emerging practice, interviewing the young person and clinician involved to explore acceptability and impact. The second develops Royal College of Psychiatrists advice that mental health clinicians should ask young people about their online activities when assessing risk. We will use a multi-panel Delphi study (mental health clinicians, adolescents with mental distress) to develop guidelines concerning how clinicians can safely address digital technology use with young people during mental health consultations. These projects will lay foundations for future feasibility work and interventions for safeguarding against harmful technology use.

Planned Impact

Beneficiaries include young people, mental health, primary and social care practitioners, youth workers, digital technology providers, and academics.
In the short-term, our engagement work will create a new research community, integrating those who deliver, use and design services, paving the way for future impactful research. Our stakeholder hub will provide a unique platform for prioritising research, ensuring members of the public and users of services can contribute at all research stages, and clear pathways for implementation. This will be essential to ensuring our future research is robust, responsive and can deliver impact, and could become a resource for adolescent mental health research in the UK.
This award and the ensuing research will lead to health gains for young people by improving adolescent mental health care around risk detection, clinical history taking, safeguarding against online harm, and mutual doctor-patient relationships. In the short term, the award will creating clinician awareness of emerging opportunities for technology-enriched consultations and the importance of asking adolescents about their online behaviour (which could provide immediate safeguarding benefit). In the long term, the award offers foundations for research of impactful new interventions, (eg. brief intervention on online risk taking) and practices (eg. interfacing with app data; crisis planning incorporating online safety).
Of immediate value to practitioners, we will produce a set of guidelines addressing how to talk with young patients about their online behaviour and technology use during mental health consultations in a way that is safe and acceptable, and to explore where use may be harmful. These will be co-produced through a Delphi exercise with clinicians and young people and direct relevance to a recent statement issued by the Royal College of Psychiatrists advising online behaviour should be explored with all young people during mental health assessment. We know from our previous work that clinicians regard this as import but also an area of uncertainty: practitioners and clinical bodies taking part in round table discussions, expressed a need for evidence and guidance. Our work will directly respond to this need and contribute to practitioners' skill-base and confidence. In the long-term, effective methods for addressing harmful online behaviour within the clinical consultation could support clinical risk assessment. Our guidelines will transfer to practitioners working in adult mental health, primary care, and to others in the care pathway including social care workers and school counsellors.
Academics: Our research will contribute knowledge in the areas of digital health, child and adolescent mental health, and doctor-patient communications, and transfer to other age groups and conditions.
Our work will help digital providers shape their products according to stakeholder feedback. Pilot 1 explores how technology can interface with clinical consultations. We have an established relationship with the MeeTwo teenage mental health app, who are looking to expand their work in this area. They will benefit from the insight of our interdisciplinary academic team and our findings, supporting them in their attempts to strengthen clinical links and in the future to increase the scope and efficiency of their services using data science.
Economic impacts: Adolescent mental ill-health is associated with poorer social and educational outcomes, which have associated economic implications. Our work to improve information available to clinicians during mental health assessments has the potential to create future cost-savings to healthcare and other public sectors. In the long-term, project 1 may shed light on whether consultations and the associated paperwork could be made more efficient through technology assisted history-taking. Our pilot work could be used as a foundation towards designing a trial and economic evaluation.
 
Title How to talk to young people about their online activities: guidance for mental health and social care practitioners 
Description Artwork and infographics to accompany and illustrate a set of good practice indicators for practitioners. This artwork is currently in production and will be completed in November 2021. 
Type Of Art Artwork 
Year Produced 2021 
Impact Will be used to disseminate good practice indicators to practitioners. 
 
Title Website for practitioners 
Description Our guidance for practitioners derived through Delphi research is now hosted on a website www.digital-chats.com 
Type Of Art Artefact (including digital) 
Year Produced 2022 
Impact Webpage is accessible to all practitioners. Webpage currently being used by student wellbeing services to support consultations with students. 
URL http://www.digital-chats.com
 
Title Young people's experiences of digital technology and mental health 
Description Film created by young people at Creative Youth Network on the basis of a series of engagement workshops. 
Type Of Art Film/Video/Animation 
Year Produced 2021 
Impact Film will be used in dissemination activities to create awareness of young person perspective 
 
Description Use of Delphi guidelines by student wellbeing services
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Contribution to new or improved professional practice
Impact Our training and guidance has allowed student wellbeing practitioners to address issues relating to social media and internet use and impact on wellbeing with students. Our guidance has enable practitioners to initiate and manage supportive conversations with young people and has helped them to identify risk relating to the online environment.
URL http://www.digital-chats.com
 
Description Health Integration Team funding
Amount £800 (GBP)
Organisation Bristol Health Partners 
Sector Charity/Non Profit
Country United Kingdom
Start 04/2021 
End 04/2023
 
Description Seed Corn Funding
Amount £4,887 (GBP)
Organisation University of Bristol 
Department Jean Golding Institute
Sector Academic/University
Country United Kingdom
Start 01/2022 
End 07/2022
 
Description Smart Grant
Amount £393,823 (GBP)
Organisation Innovate UK 
Sector Public
Country United Kingdom
Start 04/2022 
End 09/2023
 
Title Delphi study to explore best ways for practitioners to discuss online activities with young people during mental health consultations 
Description 3 round, two-panel Delphi study (Practitoner panel and young people panel) comprised of 23 participants in each panel (i.e. total n=46). 
Type Of Material Database/Collection of data 
Year Produced 2021 
Provided To Others? No  
Impact Good practice guidelines for health and social care practitioners supporting mental health in adolescents/ young people. 
 
Title Exploring the potential to share app data to enhance mental health consultations with young people 
Description Vignette-based survey with MeeToo mental health app users aged 16-25yrs (n=98) exploring benefits and barriers associated with data sharing in consultations. Qualitative interviews with app users (young people aged 16-25yrs) (n=4) and mental/ social care practitioners (n=5). 
Type Of Material Database/Collection of data 
Year Produced 2021 
Provided To Others? No  
Impact Information obtained to inform app providers about document design and processes relating to possible data sharing. 
 
Title Mental Health Practitioner survey 
Description UK Survey (n=99) of mental health practitioners exploring current practice, understanding and attitudes towards young people's digital technology use and the potential to incorporate this in clinical practice. 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? No  
Impact Findings have shaped ongoing research within the grant, specifically: i) Delphi study concerning best ways for practitioners to discuss online activities with young people in mental health consultations; ii) Pilot study of data sharing within mental health consultations. Findings contributing to manuscript describing practitioners perceptions/ use of digital technology in relation to young people's mental health. 
 
Title Qualitative data exploring young people's digital technology use, mental health and mental health consultations 
Description This dataset comprises in-depth interview and focus group data collected from mental health practitioners, young people and the parents of young people using mental health services. 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? No  
Impact The data have shaped ongoing work within the grant - especially around i) how practitioners should talk with young people about online activities during mental health consultations; ii) opportunities for app data sharing to enrich mental health consultations; iii) experiences of remote (i.e. digital video conferencing) delivery of therapy to young people with mental health problems during COVID-19. The data have identified focus/ stakeholder priorities for future research. 
 
Title Young person survey 
Description UK survey (n>300) of young people aged 14 - 24 years exploring current use of digital technology in relation to mental health, experiences of and attitudes towards digital technology use in the context of mental health consultations. 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? No  
Impact Findings has shaped further work within the grant, specifically: i) Delphi study exploring best ways for practitioners to discuss online activities with young people during mental health consultations; ii) Pilot study of data sharing in mental health consultations. Findings contributing towards preparation of manuscripts describing young adults' experiences of remote therapy (via digital video conferencing platforms) during COVID-19, and patterns in young people's digital technology use in relation to mental health. 
 
Description AI driven signposting for suicide support for young people 
Organisation MeeToo Education Ltd
Department MeeToo
Country United Kingdom 
Sector Private 
PI Contribution Subject expertise, research methods expertise
Collaborator Contribution Expertise in data science; expertise in app design
Impact Still in progress
Start Year 2021
 
Description AI driven signposting for suicide support for young people 
Organisation University of Sussex
Country United Kingdom 
Sector Academic/University 
PI Contribution Subject expertise, research methods expertise
Collaborator Contribution Expertise in data science; expertise in app design
Impact Still in progress
Start Year 2021
 
Description Creative Youth Network lived-experience film 
Organisation Creative Youth Network
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Intellectual input. Access to participants
Collaborator Contribution Technical input, production and facilities. Creative input.
Impact Short film.
Start Year 2021
 
Description Informing clinical conversations about online activities 
Organisation The Samaritans
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Research data, advisory role
Collaborator Contribution Research data, dissemination
Impact None to date as this is a new collaboration
Start Year 2021
 
Description Meetoo young person's mental health app data sharing study 
Organisation MeeToo Education Ltd
Department MeeToo
Country United Kingdom 
Sector Private 
PI Contribution Research expertise
Collaborator Contribution Access to research participants and data
Impact Mixed methods data set comprised of survey data and in-depth interview data. Outputs in the form of report to industry collaborator and academic paper still pending.
Start Year 2020
 
Description Somerset NHS CAMHS data sharing study 
Organisation Somerset NHS Foundation Trust
Country United Kingdom 
Sector Public 
PI Contribution Research expertise
Collaborator Contribution Recruitment of research participants
Impact Qualitative case study/ data set
Start Year 2021
 
Description Delphi group newsletter 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Electronic newsletter created and disseminated to all Delphi Study Panel Members (Young people, practitioners) following each Delphi round to share emerging findings and provide updates about the study.
Year(s) Of Engagement Activity 2021
 
Description Discussion with industry provider 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Discussion around potential for data sharing in conversations with young people with major online platform.
Year(s) Of Engagement Activity 2021
 
Description Dissemination of Delphi study findings 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Delphi study findings and proposed next steps presented at Bristol Health Partners Health Integration Team meeting. Lead to discuss around potential for piloting guidelines within student wellbeing services.
Year(s) Of Engagement Activity 2022
 
Description Engaging parents 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact Discussion about methods to secure involvement from parent stakeholders. Lead to advertisement of involvement/ research opportunity on third sector website and 4 parents being recruited to the study
Year(s) Of Engagement Activity 2021
 
Description Open Mic session - discussing Delphi study 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Disseminated information about Delphi Study findings during open mic session at workshop re: young people and students mental health. Resulted in several networking opportunities for piloting of Delphi findings.
Year(s) Of Engagement Activity 2022
 
Description Research seminar (use of app data sharing to enhance consultations) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other audiences
Results and Impact Research data relating to pilot study around sharing app data to enhance consultations presented, leading to significant discussion amongst researchers and practitioners about possible ways forward.
Year(s) Of Engagement Activity 2021
 
Description Stakeholder advice on questionnaire design 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Patients, carers and/or patient groups
Results and Impact Sharing of draft questionnaire with specific patient group to ensure appropriateness and inclusiveness
Year(s) Of Engagement Activity 2020
 
Description Stakeholder advisory meetings re participant recruitment 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact Meetings/ dialogue with key third sector organisations involved in young people's mental health to inform study plans and recruitment strategies
Year(s) Of Engagement Activity 2020
 
Description Stakeholder workshops 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Workshops/ meetings held with 3 key stakeholder groups (practitioners, young people, parents) to explore pertinent issues relating to the research question
Year(s) Of Engagement Activity 2020
 
Description Young People and Clinician 'DigiHub' 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact We created a Padlet site called 'The digiHub' for young people and practitioners to learn about and comment on our research findings and also to share/ discuss other relevant information. Digihub is on-going and is supplemented by occasional Zoom 'drop in' sessions. Approx. 15 participants have signed up to the Padlet.
Year(s) Of Engagement Activity 2020
 
Description Young people advisory group workshops 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact Series of workshops with young people advisers to discuss research plans and to seek input on research priorities and tools
Year(s) Of Engagement Activity 2020
 
Description Young people workshops and film project 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact Collaboration with creative youth network led to series of workshop sessions with local young people involving discussion and creation of a summary film.
Year(s) Of Engagement Activity 2021