Controlling COVID19 through enhanced population surveillance and intervention (Con-COV): a platform approach
Lead Research Organisation:
Swansea University
Department Name: Institute of Life Science Medical School
Abstract
In December 2019 the world learnt of the novel (new) virus; COVID-19, which has rapidly become a global pandemic. The virus has had an unprecedented effect on the global population in a very short space of time meaning international governing bodies and health care provisions have had to devise their responses to fight the virus and protect people, in real time based on ever evolving information.
In Wales a specialist research team made up of representatives from; Welsh Government, Public Health Wales, academia, and the public have come together to develop a project which will rapidly analyse data from numerous sectors including primary and secondary care. The project will ensure; 1) policy makers and health care providers are kept informed and have a detailed insight into the evolving pandemic; 2) interventions which are being used to fight and control the virus are evaluated for their effectiveness; 3) the general public are kept informed.
DHSC/UKRI COVID-19 Rapid Response Initiative - Proposal Form_v4.0
Note that while the form only offers plain text, special characters can be pasted into the form. For form queries contact ccf-nCoV@nihr.ac.uk
Each week the project will provide a report to Welsh Government COVID19 Technical Advisory Group (TAG) and British Government's SAGE; this will help inform evidencebased strategies to control the virus, safe guard the general population and bring the UK out of lockdown (Jan and Chris Davies, members of public).
In Wales a specialist research team made up of representatives from; Welsh Government, Public Health Wales, academia, and the public have come together to develop a project which will rapidly analyse data from numerous sectors including primary and secondary care. The project will ensure; 1) policy makers and health care providers are kept informed and have a detailed insight into the evolving pandemic; 2) interventions which are being used to fight and control the virus are evaluated for their effectiveness; 3) the general public are kept informed.
DHSC/UKRI COVID-19 Rapid Response Initiative - Proposal Form_v4.0
Note that while the form only offers plain text, special characters can be pasted into the form. For form queries contact ccf-nCoV@nihr.ac.uk
Each week the project will provide a report to Welsh Government COVID19 Technical Advisory Group (TAG) and British Government's SAGE; this will help inform evidencebased strategies to control the virus, safe guard the general population and bring the UK out of lockdown (Jan and Chris Davies, members of public).
Technical Summary
Con-COV Technical Summary.
Background: COVID19 is a rapidly evolving complex issue that requires near real time data, analyses and multidisciplinary team science to devise, implement and evaluate a wide variety of inter- and cross-sectoral interventions in order to minimise population harm.
Aims: to integrate multiple sources of data to produce timely and responsive analyses to: 1) provide detailed insight into the evolving pandemic in the general population, vulnerable groups and diverse settings (health care workers, social care workers, care homes and schools); 2) support and undertake evaluations of the effectiveness of adopted counter measures as these evolve; 3) rapidly inform policy and practice decision makers; and 4) communicate effectively with the general public.
Methods: We will build on the existing total population 3.2 million Wales Multimorbidity Cohort funded by HDRUK/MRC to create the greatest in-depth COVID19 population study with data enhancements on vulnerable groups and settings, serology and viral genomics, scale the breadth and depth of disciplines involved and support embedded evaluations of countermeasures. Our multi-agency team includes individuals from Welsh Government, Public Health Wales, academics from multiple disciplines and members of the public.
Deliverables: Reports on exposure risks, incidence and outcomes to Welsh Government COVID19 Technical Advisory Group (TAG) and onwards to SAGE; share models with multiple UK groups including SPI-M, triallists, and the Royal Society DELVE initiative; and provide evaluations of natural experiments in policy and practice.
Timeline: We will report weekly to TAG and monthly to funders, recognising the time-sensitive requirements needed to inform evidence-based control and exit strategies.
Background: COVID19 is a rapidly evolving complex issue that requires near real time data, analyses and multidisciplinary team science to devise, implement and evaluate a wide variety of inter- and cross-sectoral interventions in order to minimise population harm.
Aims: to integrate multiple sources of data to produce timely and responsive analyses to: 1) provide detailed insight into the evolving pandemic in the general population, vulnerable groups and diverse settings (health care workers, social care workers, care homes and schools); 2) support and undertake evaluations of the effectiveness of adopted counter measures as these evolve; 3) rapidly inform policy and practice decision makers; and 4) communicate effectively with the general public.
Methods: We will build on the existing total population 3.2 million Wales Multimorbidity Cohort funded by HDRUK/MRC to create the greatest in-depth COVID19 population study with data enhancements on vulnerable groups and settings, serology and viral genomics, scale the breadth and depth of disciplines involved and support embedded evaluations of countermeasures. Our multi-agency team includes individuals from Welsh Government, Public Health Wales, academics from multiple disciplines and members of the public.
Deliverables: Reports on exposure risks, incidence and outcomes to Welsh Government COVID19 Technical Advisory Group (TAG) and onwards to SAGE; share models with multiple UK groups including SPI-M, triallists, and the Royal Society DELVE initiative; and provide evaluations of natural experiments in policy and practice.
Timeline: We will report weekly to TAG and monthly to funders, recognising the time-sensitive requirements needed to inform evidence-based control and exit strategies.
Publications
Abbasizanjani H
(2023)
Harmonising electronic health records for reproducible research: challenges, solutions and recommendations from a UK-wide COVID-19 research collaboration.
in BMC medical informatics and decision making
Bedston S
(2024)
Risk of severe COVID-19 outcomes after autumn 2022 COVID-19 booster vaccinations: a pooled analysis of national prospective cohort studies involving 7.4 million adults in England, Northern Ireland, Scotland and Wales.
in The Lancet regional health. Europe
Description | The Controlling COVID (ConCOV) electronic cohort derived from multiple de-identified linked electronic records for the population of Wales was successfully created. It contains information on 3.56 million individuals derived from 61 different databases to produce a pre-COVID cohort (2016-2019) and the COVID exposed cohort (2020-2023). It is updated monthly. The design was consulted upon and supported by members of the public through the Secure Anonymised Information Linkage (SAIL) Consumer Panel - https://saildatabank.com/governance/approvals-public-engagement/consumer-panel/ Prioritisation of investigations and findings have been discussed with the Consumer Panel on multiple occasions. The team worked to the Welsh Government COVID-19 Technical Advisory Group (TAG). Some analyses have also been reported to SAGE working groups, e.g. Social Care Group. TAG identified many questions where analysis could help policy appraisal and development. Around 170 academic, government and NHS analysts working in collaboration conducted many different analyses. There was also widespread collaboration with colleagues in England, Scotland and Northern Ireland on combining results to provide greater precision in answers, to increase the ability to assess the impact of the disease and countermeasures on uncommon outcomes, and to assess the effectiveness and safety of COVID-19 vaccines and treatments as early as possible. Example papers are included below - the titles are self-explanatory with URLs given for ease of access. Understanding and responding to COVID19 in Wales: protocol for a privacy protecting data platform for enhanced epidemiology and evaluation of interventions. BMJ Open 2020;10:e043010. https://bmjopen.bmj.com/content/bmjopen/10/10/e043010.full.pdf Impact of COVID-19 on Adjusted Mortality Risk in Care Homes for Older Adults in Wales, United Kingdom: A retrospective population-based cohort study for mortality in 2016-2020.. Age and Ageing 2021; 50:25-31.https://doi.org/10.1093/ageing/afaa207 Intensity of COVID-19 in care homes following Hospital Discharge in the early stage of the UK epidemic. Age Ageing. https://doi.org/10.1093/ageing/afac072 COVID-19 risk factors amongst 14,786 care home residents: An observational longitudinal analysis including daily community positive test rates of COVID-19, hospital stays, and vaccination status in Wales (UK) between 1st September 2020 and 1st May 2021. Age and Ageing. https://doi.org/10.1093/ageing/afac084 COVID-19 infection risk amongst 14,104 vaccinated care home residents: a national observational longitudinal cohort study in Wales, UK, December 2020-March 2021. Age and Ageing 2022;5:1 https://doi.org/10.1093/ageing/afab223 Living risk prediction algorithm (QCOVID) for risk of hospital admission and mortality from coronavirus 19 in adults: national derivation and validation cohort. BMJ 2020;371:m3731 https://doi.org/10.1136/bmj.m3731 Risk prediction of covid-19 related death and hospital admission in adults after covid-19 vaccination: national prospective cohort study. BMJ 2021;374:n2244 http://dx.doi.org/10.1136/bmj.n2244 Validating the QCOVID risk prediction algorithm for risk of mortality from COVID-19 in the adult population in Wales, UK, IJPDS 2022 5:4:13 (published 16/02/22). https://doi.org/10.23889/ijpds.v5i4.1697 Impact of COVID-19 lockdown on emergency asthma admissions and deaths: national interrupted time series analyses for Scotland and Wales. Thorax 2021 doi: 10.1136/thoraxjnl-2020-216380 (Published 29/03/21). https://thorax.bmj.com/content/early/2021/02/11/thoraxjnl-2020-216380 Impact of COVID-19 lockdown on the incidence and mortality of acute exacerbations of chronic obstructive pulmonary disease: national interrupted time series analyses for Scotland and Wales. BMC Med 19, 124 (2021). https://doi.org/10.1186/s12916-021-02000-w. Evaluating the effect of COVID-19 on dispensing patterns: a national cohort analysis. MedRxiv 2021.02.15.21251552; doi: https://doi.org/10.1101/2021.02.15.21251552 Surgical activity in England and Wales during the COVID-19 pandemic: a nationwide observational cohort study. British Journal of Anaesthesia 2021 https://doi.org/10.1016/j.bja.2021.05.001 Epilepsy mortality in Wales during COVID-19. Seizure 2021; 94: 39-42. https://doi.org/10.1016/j.seizure.2021.11.017 Healthcare contacts with self-harm during COVID-19: an e-cohort whole-population-based study using individual-level linked routine electronic health records in Wales, UK, 2016 - March 2021.PLoS ONE (published 27/04/22). https://doi.org/10.1371/journal.pone.0266967 Staff-Pupil SARS-CoV-2 Infection Pathways in Schools in Wales: A Population Level Linked Data Approach. BMJ Paediatrics Open 2021;5:ee00149. doi:10.1136/ bmjpo-2021-001049 (published 10/05/21). https://bmjpaedsopen.bmj.com/content/bmjpo/5/1/e001049.full.pdf Widening excess mortality during the COVID-19 pandemic in individuals who self-harmed: a whole population based e-cohort study in Wales UK, April 2016-March 2021. Crisis 2022 (published 13/10/22). https://econtent.hogrefe.com/doi/10.1027/0227-5910/a000882 Investigating the uptake, effectiveness and safety of COVID-19 vaccines: protocol for an observational study using linked UK national data. BMJ Open 2022;12:e050062. doi:10.1136/bmjopen-2021-050062 https://bmjopen.bmj.com/content/bmjopen/12/2/e050062.full.pdf Inequalities in coverage of COVID-19 vaccination: a population register based cross-sectional study in Wales, UK. Vaccine 2021 https://doi.org/10.1016/j.vaccine.2021.09.019 COVID-19 vaccine uptake, effectiveness and waning in 93,000 health care workers: a national prospective cohort study in Wales. Vaccine 2022;40:27 10.1016/j.vaccine.2021.11.061 First dose ChAdOx1 and BNT162b2 COVID-19 vaccinations and cerebral venous sinus thrombosis: A pooled self-controlled case series study of 11.6 million individuals in England, Scotland, and Wales. PLoS Medicine, 2022, 19(2):e1003927 https://doi.org/10.1371/journal.pmed.1003927 Severe COVID-19 outcomes post full vaccination of primary schedule and boosters: A meta-analysis of national prospective cohort studies of 30 million individuals in England, Northern Ireland, Scotland and Wales. The Lancet 2022 https://doi.org/10.1016/S0140-6736(22)01656-7https://www.sciencedirect.com/science/article/pii/S0140673622016567 Risk of thrombocytopenic, haemorrhagic and thromboembolic disorders following COVID-19 vaccination and positive test: a self-controlled case series analysis in Wales. Sci Rep 12, 16406 (2022). https://doi.org/10.1038/s41598-022-20118-6 Waning of first and second dose ChAdOx1 and BNT162b2 COVID-19 vaccinations: A pooled target trial study of 12.9 million individuals in England, Northern Ireland, Scotland and Wales. International Journal of Epidemiology, dyac199, https://doi.org/10.1093/ije/dyac199 Real-world effectiveness of molnupiravir, nirmatrelvir-ritonavir, and sotrovimab on preventing hospital admission among higher-risk patients with COVID-19 in Wales: a retrospective cohort study. Journal of Infection (published 10/02/23). https://doi.org/10.1016/j.jinf.2023.02.012 |
Exploitation Route | We contributed to many different policy relevant questions including, the spread of the pandemic in the general Welsh population and subpopulations (care homes, health care workers, school children and staff, and clinical risk groups), the impact on COVID-19 related hospitalisations and deaths in diverse clinical populations, indirect effects such as the reduction in identification of new cases of cancer, and factors affecting the uptake, effectiveness and side effectiveness of vaccines and the real-world utility of monoclonal antibodies and anti-virals. |
Sectors | Communities and Social Services/Policy Digital/Communication/Information Technologies (including Software) Education Environment Healthcare Government Democracy and Justice Pharmaceuticals and Medical Biotechnology |
URL | https://bmjopen.bmj.com/content/bmjopen/10/10/e043010.full.pdf |
Description | We contributed to many different policy relevant questions including, the spread of the pandemic in the general Welsh population and subpopulations (care homes, health care workers, school children and staff, and clinical risk groups), the impact on COVID-19 related hospitalisations and deaths in diverse clinical populations, indirect effects such as the reduction in identification of new cases of cancer, and factors affecting the uptake, effectiveness and side effectiveness of vaccines and the real-world utility of monoclonal antibodies and anti-virals. The team worked to the Welsh Government COVID-19 Technical Advisory Group (TAG). Some analyses have also been reported to SAGE working groups, e.g. Social Care Group. TAG identified many questions where analysis could help policy appraisal and development. Around 170 academic, government and NHS analysts working in collaboration conducted many different analyses. There was also widespread collaboration with colleagues in England, Scotland and Northern Ireland on combining results to provide greater precision in answers, to increase the ability to assess the impact of the disease and countermeasures on uncommon outcomes, and to assess the effectiveness and safety of COVID-19 vaccines and treatments as early as possible. Throughout the pandemic, the research team were guided by policy relevant questions from the Welsh Government COVID-19 Technical Advisory Group and fed back interim analyses before publication. Analyses were also presented to the First Minister's Black, Asian and Minority Ethnic Advisory Ethnic group and to multiple Welsh Government working groups on Education and Social Care. The UK wide collaborations also fed into SAGE, the Joint Committee on Vaccination and Immunisation (JCVI) and the Medicines and Health Care Regulatory Authority (MHRA). Findings from our research have been submitted to the COVID-19 Inquiry. |
Sector | Education,Healthcare,Government, Democracy and Justice,Pharmaceuticals and Medical Biotechnology |
Impact Types | Societal Policy & public services |
Description | Member of the Bevan Commission Working Group |
Geographic Reach | Local/Municipal/Regional |
Policy Influence Type | Participation in a guidance/advisory committee |
Description | Member of the Welsh Government COVID-19 Technical Advisory Group |
Geographic Reach | National |
Policy Influence Type | Participation in a guidance/advisory committee |
Description | Are people with COVID-19 and pre-existing respiratory disease at a higher risk of future cardiovascular and venous thromboembolic events compared with COVID-19 patients without pre-existing respiratory disease? HDRUK/Alan Turing Institute/ONS |
Amount | £248,760 (GBP) |
Organisation | Health Data Research UK |
Sector | Private |
Country | United Kingdom |
Start | 09/2021 |
End | 09/2022 |
Description | COVID19 epidemic policy simulations for Wales: Integrating spatial structure and routine linked health data for disease modelling |
Amount | £100,000 (GBP) |
Organisation | Government of Wales |
Sector | Public |
Country | United Kingdom |
Start | 08/2020 |
End | 08/2021 |
Description | Collaboration with HDRUK Data-Can cancer data initiative |
Amount | £103,302 (GBP) |
Organisation | Health Data Research UK |
Sector | Private |
Country | United Kingdom |
Start | 09/2020 |
End | 03/2022 |
Description | Effects of shielding for Vulnerable people during COVID-19 pandemic on health outcomes, costs and Immunity including those with cancer: quasi-experimenTal Evaluation (EVITE Immunity) |
Amount | £174,318 (GBP) |
Funding ID | NCSi4P |
Organisation | Medical Research Council (MRC) |
Sector | Public |
Country | United Kingdom |
Start | 11/2020 |
End | 03/2021 |
Description | National Core Studies - Data Sprint |
Amount | £1,417,500 (GBP) |
Organisation | Medical Research Council (MRC) |
Sector | Public |
Country | United Kingdom |
Start | 09/2021 |
Description | Population Health Information Research Infrastructure - PHIRI (Mobilisation of Research infrastructure for the COVID-19 Public Health Emergency) |
Amount | € 5,000,000 (EUR) |
Funding ID | Horizon 2020-IBA-INFRA-CORONA-2020 |
Organisation | European Commission |
Sector | Public |
Country | European Union (EU) |
Start | 11/2020 |
End | 10/2023 |
Description | SERC- The SAIL Epilepsy Research Cohort - A scalable resource leveraging anonymized population data and natural language processing for epilepsy research, pilot study |
Amount | £50,000 (GBP) |
Organisation | Epilepsy Research UK |
Sector | Charity/Non Profit |
Country | United Kingdom |
Start | 03/2023 |
End | 03/2024 |
Description | Senior Research Leaders Discretionary Award |
Amount | £15,000 (GBP) |
Organisation | Health and Care Research Wales |
Sector | Public |
Country | United Kingdom |
Start | 03/2021 |
End | 03/2022 |
Description | Senior Research Leaders Discretionary Award |
Amount | £60,000 (GBP) |
Funding ID | SRL2022-25-09 |
Organisation | Health and Care Research Wales |
Sector | Public |
Country | United Kingdom |
Start | 03/2022 |
End | 03/2023 |
Description | The impact of COVID-19 on health equality and mortality in people with epilepsy in Wales |
Amount | £158,810 (GBP) |
Organisation | Health and Care Research Wales |
Sector | Public |
Country | United Kingdom |
Start | 09/2021 |
End | 09/2022 |
Description | Undertaking scientific analysis of policy relevant questions to support the work of the Welsh Government Covid-19 Evidence Centre |
Amount | £292,284 (GBP) |
Organisation | Health and Care Research Wales |
Sector | Public |
Country | United Kingdom |
Start | 03/2021 |
End | 06/2025 |
Description | Wales Critical Care and Trauma Network data scientist |
Amount | £130,000 (GBP) |
Organisation | Public Health Wales NHS Trust |
Sector | Public |
Country | United Kingdom |
Start | 03/2022 |
End | 06/2025 |
Description | What TRIage model is safest and most effective for the Management of 999 callers with suspected COVID19? A linked outcome study (TRIM) |
Amount | £358,400 (GBP) |
Funding ID | MR/V027808/1 |
Organisation | Medical Research Council (MRC) |
Sector | Public |
Country | United Kingdom |
Start | 06/2020 |
End | 06/2021 |
Description | What is the uptake, safety and effectiveness of COVID-19 vaccines in: a. pregnancy; b. children and young people; c. those receiving booster doses; d. those co-administered COVID-19 and influenza vaccines? |
Amount | £249,775 (GBP) |
Organisation | Health Data Research UK |
Sector | Private |
Country | United Kingdom |
Start | 09/2021 |
End | 09/2022 |
Title | Real-time spatial health surveillance: mapping the UK COVID-19 epidemic |
Description | Development of a rapid tool to demonstrate spread of COVID19 symptoms in near real-time |
Type Of Material | Improvements to research infrastructure |
Year Produced | 2021 |
Provided To Others? | Yes |
Impact | Model used by First Minister Welsh Government in COVID19 public briefings |
URL | https://www.sciencedirect.com/science/article/pii/S1386505621000265 |
Title | Understanding and responding to COVID19 in Wales: protocol for a privacy protecting data platform for enhanced epidemiology and evaluation of interventions |
Description | Development of a total population platform to help control the COVID19 pandemic |
Type Of Material | Database/Collection of data |
Year Produced | 2020 |
Provided To Others? | Yes |
Impact | Analyses from this dataset has informed Welsh Government COVID19 Technical Advisory Group and SAGE on the development of the pandemic, transmission in care homes and schools and the effectiveness of countermeasures |
URL | https://bmjopen.bmj.com/content/bmjopen/10/10/e043010.full.pdf |
Description | Creation of OneWales team to maximise production of policy relevant research to Welsh Government |
Organisation | Government of Wales |
Country | United Kingdom |
Sector | Public |
PI Contribution | Our HDRUK and ADRUK funded analysts working in collaboration with colleagues at Public Health Wales NHS Trust and Swansea and Cardiff universities provide frequent analysed of data on the evolving COVID19 pandemic in Wales to Welsh Government COVID19 Technical Advisory Group and subgroups |
Collaborator Contribution | Contribution of funding for additional analyses and expertise from many areas of Government to help define and answer policy relevant questions |
Impact | Multiple outputs available at: https://gov.wales/publications?field_external_organisations%5B30180%5D=30180 |
Start Year | 2020 |
Description | 03/07/2020 - New approaches to data analytics in the COVID era. Invited plenary, Health Services Research UK 2020 Annual Conference |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | New approaches to data analytics in the COVID era. Invited plenary, Health Services Research UK 2020 Annual Conference, 03/07/20. |
Year(s) Of Engagement Activity | 2020 |
Description | 04/09/2020 - Analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. SAIL Consumer Panel |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Public/other audiences |
Results and Impact | Analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. SAIL Consumer Panel, 04/09/20 |
Year(s) Of Engagement Activity | 2020 |
Description | 04/09/2020 - Analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. Welsh Government COVID19 Technical Advisory Group |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Policymakers/politicians |
Results and Impact | Analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. Welsh Government COVID19 Technical Advisory Group, 04/09/20. |
Year(s) Of Engagement Activity | 2020 |
Description | 08/07/2020 - Controlling COVID19 through enhanced population surveillance and intervention (Con-COV): a platform approach. First Minister's BAME (Black Asian and Minority Ethnic) Advisory Group |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Policymakers/politicians |
Results and Impact | Controlling COVID19 through enhanced population surveillance and intervention (Con-COV): a platform approach. First Minister's BAME (Black Asian and Minority Ethnic) Advisory Group, 08/07/20. |
Year(s) Of Engagement Activity | 2020 |
Description | 09/11/2020 - Contribution to BBC Wales Investigates programme on the impact of COVID19 on the Welsh population. |
Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Public/other audiences |
Results and Impact | Contribution to BBC Wales Investigates programme on the impact of COVID19 on the Welsh population, 09/11/20. See links to coverage below: BBC Wales Investigates - https://www.bbc.co.uk/news/uk-wales-54808693 Programme available: https://www.bbc.co.uk/iplayer/episode/m000pfhy/bbc-wales-investigates-the-hidden-cost-of-covid |
Year(s) Of Engagement Activity | 2020 |
URL | https://www.bbc.co.uk/news/uk-wales-54808693 |
Description | 16/02/2021 - SARS-CoV-2 vaccination by ethnicity update. First Minister's BAME (Black Asian and Minority Ethnic) Advisory Group |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Policymakers/politicians |
Results and Impact | SARS-CoV-2 vaccination by ethnicity update. First Minister's BAME (Black Asian and Minority Ethnic) Advisory Group, 16/02/21. |
Year(s) Of Engagement Activity | 2021 |
Description | 17/11/2020 - Update on analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. Welsh Government COVID19 Technical Advisory Group |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Policymakers/politicians |
Results and Impact | Update on analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. Welsh Government COVID19 Technical Advisory Group, 17/11/20. |
Year(s) Of Engagement Activity | 2020 |
Description | 18/11/2020 - COVID19 and ethnicity in Wales - findings from linked data. First Minister's BAME (Black Asian and Minority Ethnic) Advisory Group |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Policymakers/politicians |
Results and Impact | COVID19 and ethnicity in Wales - findings from linked data. First Minister's BAME (Black Asian and Minority Ethnic) Advisory Group, 18/11/20. |
Year(s) Of Engagement Activity | 2020 |
Description | 19/01/2021 - Analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. School bubbles analysis. Welsh Government COVID19 Technical Advisory Group |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Policymakers/politicians |
Results and Impact | Analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. School bubbles analysis. Welsh Government COVID19 Technical Advisory Group, 19/01/2021. |
Year(s) Of Engagement Activity | 2021 |
Description | 21/01/2021 - Data Science and Population Health Research. University of British Columbia, Canada |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | Data Science and Population Health Research. University of British Columbia, Canada, 21/01/21. |
Year(s) Of Engagement Activity | 2021 |
Description | 28/01/2020 Big Data and Public Health. Sandra Macara BMA Memorial Lecture |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Industry/Business |
Results and Impact | PRESENTATION TO BIG DATA AND PUBLIC HEALTH, SANDRA MACARA MEMORIAL LECTURE IN CARDIFF |
Year(s) Of Engagement Activity | 2020 |
Description | 30/09/2020 - Using linked data to respond to the COVID-19 pandemic in Wales. Workshop for Health and Care Research Wales annual conference |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Professional Practitioners |
Results and Impact | Using linked data to respond to the COVID-19 pandemic in Wales. Workshop for Health and Care Research Wales annual conference, 30/09/20. |
Year(s) Of Engagement Activity | 2020 |
Description | Academia Europaea Induction - Trusted Research Environments, Munich |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Industry/Business |
Results and Impact | Academia Europaea Induction - Trusted Research Environments, Munich |
Year(s) Of Engagement Activity | 2023 |
Description | Analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. School bubbles analysis. |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Professional Practitioners |
Results and Impact | Engagement and networking. |
Year(s) Of Engagement Activity | 2021 |
Description | COVID-19 through a public health data lens |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | COVID-19 through a public health data lens. Health Services Research UK national conference, 08/07/21 |
Year(s) Of Engagement Activity | 2021 |
Description | COVID19 through a public health and data lens. Swansea University Faculty of Medicine, Health and Life Sciences |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | Local |
Primary Audience | Professional Practitioners |
Results and Impact | COVID19 through a public health and data lens. Swansea University Faculty of Medicine, Health and Life Sciences. Summer Scientific meeting, 22/06/21 |
Year(s) Of Engagement Activity | 2021 |
Description | COVID19 vaccine uptake by ethnicity. First Minister's BAME (Black Asian and Minority Ethnic) |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Policymakers/politicians |
Results and Impact | COVID19 vaccine uptake by ethnicity. First Minister's BAME (Black Asian and Minority Ethnic) Advisory Group, 21/04/21 |
Year(s) Of Engagement Activity | 2021 |
Description | Conducting research through globally accessible trusted research environments, University of Sydney |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | Conducting research through globally accessible trusted research environments, University of Sydney, 11/11/22 |
Year(s) Of Engagement Activity | 2022 |
Description | Consumer Panel meeting - Januray 2021 |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | Local |
Primary Audience | Patients, carers and/or patient groups |
Results and Impact | Topics covered; • UCL - AIM project proposal • Public Health Wales - The mental health in shielded children and children living in shielded households • HDR UK - How has COVID-19 impacted non-COVID-19 healthcare service use and provision in Wales? • Examining associations between complications of pregnancy and incident cardiovascular disease |
Year(s) Of Engagement Activity | 2021 |
Description | Consumer Panel meeting - June 2020 |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Patients, carers and/or patient groups |
Results and Impact | 16 members of the public who meet on a quarterly basis to provide public persepctive on health data research projects. This meeting covered the topics of; PPI/E impact pathway for the BREATHE Hub Contact Tracing App deliberation project PPI/E plan |
Year(s) Of Engagement Activity | 2020 |
Description | Consumer Panel meeting - September 2020 |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Patients, carers and/or patient groups |
Results and Impact | 16 members of the public who meet on a quarterly basis to provide public persepctive on health data research projects. This meeting covered the topics of; Agriculture community wellbeing study Summary of work carried out by HDR UK during the pandemic Health Foundation; Networked Data Labs Wales - discussion on topic selection |
Year(s) Of Engagement Activity | 2020 |
Description | Controlling COVID19 through enhanced population surveillance and intervention (Con-COV): a platform approach |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Professional Practitioners |
Results and Impact | Controlling COVID19 through enhanced population surveillance and intervention (Con-COV): a platform approach. Public Health Wales Research and Evaluation Conference, 23/09/21. |
Year(s) Of Engagement Activity | 2021 |
Description | Controlling COVID19 through enhanced population surveillance and intervention (Con-COV): a platform approach |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Policymakers/politicians |
Results and Impact | Controlling COVID19 through enhanced population surveillance and intervention (Con-COV): a platform approach. Welsh Government COVID19 Technical Advisory Group's Research and Development Subcommittee. 28/04/21. |
Year(s) Of Engagement Activity | 2021 |
Description | Data Science and Population Health : a Team Science Approach |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Postgraduate students |
Results and Impact | Data Science and Population Health : a Team Science Approach. Liverpool University MSc in Data Science lecture, 03/11/21. |
Year(s) Of Engagement Activity | 2021 |
Description | Data Science and Population Health Research |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Policymakers/politicians |
Results and Impact | Data Science and Population Health Research. University of British Columbia, Canada, 21/01/21 |
Year(s) Of Engagement Activity | 2021 |
Description | Data linkage research- opportunities for enhanced UK/Australia collaboration |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | Data linkage research- opportunities for enhanced UK/Australia collaboration, University of New South Wales, 08/11/22 |
Year(s) Of Engagement Activity | 2022 |
Description | Development of a collaboration with NHS Wales organisations and Chicago Medical School to develop a system to evaluate the utility of artificial intelligence/machine learning to derive additional information from medical images to support research and ultimately efficient health service delivery and patient outcomes. |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Professional Practitioners |
Results and Impact | Development of a collaboration with NHS Wales organisations and Chicago Medical School to develop a system to evaluate the utility of artificial intelligence/machine learning to derive additional information from medical images to support research and ultimately efficient health service delivery and patient outcomes. Presentation to SAIL Consumer Panel. |
Year(s) Of Engagement Activity | 2022 |
Description | Emergency Medicine, Retrieval and Trauma Service (EMRTS) Evaluation. |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Professional Practitioners |
Results and Impact | Emergency Medicine, Retrieval and Trauma Service (EMRTS) Evaluation. EMERTS Governance Meeting, 22/06/21. |
Year(s) Of Engagement Activity | 2021 |
Description | Ethnic Minority Women in Welsh Healthcare Health Inequalities conference |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Professional Practitioners |
Results and Impact | Using data linkage to understand the impact of social and ethnic inequalities in health. Ethnic Minority Women in Welsh Healthcare Health Inequalities conference, Cardiff 24/09/22 |
Year(s) Of Engagement Activity | 2022 |
Description | HDRUK QQR2 Public Health Research Vision |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | HDRUK QQR2 Public Health Research Vision. HDRUK national meeting, 26/04/21 |
Year(s) Of Engagement Activity | 2021 |
Description | Introduction to SAIL - Rural Health and Care Wales Stakeholder Group |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Industry/Business |
Results and Impact | Introduction to SAIL - Rural Health and Care Wales Stakeholder Group |
Year(s) Of Engagement Activity | 2023 |
Description | NIHR AI for Multiple Long Term Conditions Research Support Facility. Panel Discussion on Public and Patient, Involvement and Engagement |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | NIHR AI for Multiple Long Term Conditions Research Support Facility. Panel Discussion on Public and Patient, Involvement and Engagement. 16/09/22 |
Year(s) Of Engagement Activity | 2022 |
Description | Neuroimaging symposium - DPUK Data Portal, Sophia Gardens, Cardiff |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Industry/Business |
Results and Impact | Neuroimaging symposium - DPUK Data Portal, Sophia Gardens, Cardiff |
Year(s) Of Engagement Activity | 2023 |
Description | Overview of Trusted Research Environment globally, Dementias Platform Australia, University of New South Wales |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | Overview of Trusted Research Environment globally, Dementias Platform Australia, University of New South Wales, 08/11/22 |
Year(s) Of Engagement Activity | 2022 |
Description | Presentation to Public Health Wales trainees |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Study participants or study members |
Results and Impact | SAIL databank, presentation to Public Health Wales trainees |
Year(s) Of Engagement Activity | 2023 |
Description | Proposal for a Population Data Science Research Institute (PDRSI) - presentation to Swansea University faculties |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Other audiences |
Results and Impact | Proposal for a Population Data Science Research Institute (PDRSI) - presentation to Swansea University faculties 13/12/22 |
Year(s) Of Engagement Activity | 2022 |
Description | Reinvigorating health registries during COVID for rapid policy analyses. |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Policymakers/politicians |
Results and Impact | Reinvigorating health registries during COVID for rapid policy analyses. Norwegian Health Registry Conference, Oslo, 16/11/21. Helse- og Kvalitetsregisterkonferansen 2021 | Keynote presentation. |
Year(s) Of Engagement Activity | 2021 |
URL | https://www.registerkonferansen.no/ |
Description | Report on the development of Inspirational Case Study for INFACT Desirable Healthcare Utilisation Profiles and Indicator |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | Report on the development of Inspirational Case Study for INFACT Desirable Healthcare Utilisation Profiles and Indicator, European Union Information for Action meeting |
Year(s) Of Engagement Activity | 2021 |
Description | Research use cases measuring the impact of COVID-19 on population health |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | Research use cases measuring the impact of COVID-19 on population health. The European Health Data Space (THEDAS), Brussels. |
Year(s) Of Engagement Activity | 2021 |
Description | SARS-CoV-2 vaccination by ethnicity update. First Minister's BAME (Black Asian and Minority Ethnic) |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Policymakers/politicians |
Results and Impact | SARS-CoV-2 vaccination by ethnicity update. First Minister's BAME (Black Asian and Minority Ethnic) Advisory Group, 16/02/21 |
Year(s) Of Engagement Activity | 2021 |
Description | Statistical Methods for Covid-19: Mortality Statistics - Wales (Royal Statistical Society) |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | Statistical Methods for Covid-19: Mortality Statistics - Wales. Presentation to Royal Statistical Society four nation meeting on COVID-19 mortality, 23/03/22 |
Year(s) Of Engagement Activity | 2022 |
Description | Statistical Methods for Covid-19: Mortality Statistics - Wales (Welsh Government) |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Policymakers/politicians |
Results and Impact | Statistical Methods for Covid-19: Mortality Statistics - Wales. Presentation to Welsh Government COVID-19 Technical Advisory Group, 25/03/22 |
Year(s) Of Engagement Activity | 2022 |
Description | Swansea Volunteer Management Network Meeting |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | Local |
Primary Audience | Third sector organisations |
Results and Impact | Around 30 volunteer managers from a wide range of third sector organisations from across the Swansea area meet on a regular basis to support one another and share good practice, this is a reccuring bimonthly meeting. In the October 2020 meeting, Lynsey Cross delivered a presentation on the PPI/E work which is carried out by HDR UK. From this presentation a number of working relationships have been forged and a new member of the public has applied to become a member of the Consumer Panel. |
Year(s) Of Engagement Activity | 2021 |
Description | The Secure Anonymised Information Linkage System |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Professional Practitioners |
Results and Impact | The Secure Anonymised Information Linkage System. Presentation to PHW Specialist Registrars, 04/08/21 |
Year(s) Of Engagement Activity | 2021 |
Description | The Secure Anonymised Information Linkage System |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | The Secure Anonymised Information Linkage System. Edinburgh University Usher Institute, 05/07/21 |
Year(s) Of Engagement Activity | 2021 |
Description | Update for SAIL Consumer Panel |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Other audiences |
Results and Impact | Update for SAIL Consumer Panel. 29/06/22 |
Year(s) Of Engagement Activity | 2022 |
Description | Update on research |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | Local |
Primary Audience | Professional Practitioners |
Results and Impact | Update on research. SAIL Consumer Panel, 30/06/21. |
Year(s) Of Engagement Activity | 2021 |
Description | Using an advanced routine healthcare data systems to improve population health, clinical care and inform policy: the COVID-19 pandemic and beyond |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | Using an advanced routine healthcare data systems to improve population health, clinical care and inform policy: the COVID-19 pandemic and beyond. Maurice Bloch Lecture, Glasgow University, 26/01/22. https://youtu.be/2B4Ak0YuOng |
Year(s) Of Engagement Activity | 2022 |
URL | https://youtu.be/2B4Ak0YuOng |
Description | Using an advanced routine healthcare data systems to improve population health, clinical care and inform policy: the COVID-19 pandemic and beyond. |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | Using an advanced routine healthcare data systems to improve population health, clinical care and inform policy: the COVID-19 pandemic and beyond. Maurice Bloch Lecture, Glasgow University, 26/01/22. |
Year(s) Of Engagement Activity | 2021 |
URL | https://youtu.be/2B4Ak0YuOng |
Description | Vulnerable populations and COVID: EU Population Health Information Research Infrastructure |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | Vulnerable populations and COVID: EU Population Health Information Research Infrastructure (PHIRI - https://www.phiri.eu/ ) meeting with OECD, ECDC, 24/09/21. |
Year(s) Of Engagement Activity | 2021 |
URL | https://www.phiri.eu/ |
Description | Working with Swansea University on the ARDC Secure eResearch Platform, Monash University |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | Working with Swansea University on the ARDC Secure eResearch Platform, Monash University, 15/11/22 |
Year(s) Of Engagement Activity | 2022 |