Controlling COVID19 through enhanced population surveillance and intervention (Con-COV): a platform approach

Lead Research Organisation: Swansea University
Department Name: Institute of Life Science Medical School

Abstract

In December 2019 the world learnt of the novel (new) virus; COVID-19, which has rapidly become a global pandemic. The virus has had an unprecedented effect on the global population in a very short space of time meaning international governing bodies and health care provisions have had to devise their responses to fight the virus and protect people, in real time based on ever evolving information.

In Wales a specialist research team made up of representatives from; Welsh Government, Public Health Wales, academia, and the public have come together to develop a project which will rapidly analyse data from numerous sectors including primary and secondary care. The project will ensure; 1) policy makers and health care providers are kept informed and have a detailed insight into the evolving pandemic; 2) interventions which are being used to fight and control the virus are evaluated for their effectiveness; 3) the general public are kept informed.
DHSC/UKRI COVID-19 Rapid Response Initiative - Proposal Form_v4.0

Note that while the form only offers plain text, special characters can be pasted into the form. For form queries contact ccf-nCoV@nihr.ac.uk
Each week the project will provide a report to Welsh Government COVID19 Technical Advisory Group (TAG) and British Government's SAGE; this will help inform evidencebased strategies to control the virus, safe guard the general population and bring the UK out of lockdown (Jan and Chris Davies, members of public).

Technical Summary

Con-COV Technical Summary.

Background: COVID19 is a rapidly evolving complex issue that requires near real time data, analyses and multidisciplinary team science to devise, implement and evaluate a wide variety of inter- and cross-sectoral interventions in order to minimise population harm.
Aims: to integrate multiple sources of data to produce timely and responsive analyses to: 1) provide detailed insight into the evolving pandemic in the general population, vulnerable groups and diverse settings (health care workers, social care workers, care homes and schools); 2) support and undertake evaluations of the effectiveness of adopted counter measures as these evolve; 3) rapidly inform policy and practice decision makers; and 4) communicate effectively with the general public.
Methods: We will build on the existing total population 3.2 million Wales Multimorbidity Cohort funded by HDRUK/MRC to create the greatest in-depth COVID19 population study with data enhancements on vulnerable groups and settings, serology and viral genomics, scale the breadth and depth of disciplines involved and support embedded evaluations of countermeasures. Our multi-agency team includes individuals from Welsh Government, Public Health Wales, academics from multiple disciplines and members of the public.
Deliverables: Reports on exposure risks, incidence and outcomes to Welsh Government COVID19 Technical Advisory Group (TAG) and onwards to SAGE; share models with multiple UK groups including SPI-M, triallists, and the Royal Society DELVE initiative; and provide evaluations of natural experiments in policy and practice.
Timeline: We will report weekly to TAG and monthly to funders, recognising the time-sensitive requirements needed to inform evidence-based control and exit strategies.

Publications

10 25 50

 
Description The Controlling COVID (ConCOV) electronic cohort derived from multiple de-identified linked electronic records for the population of Wales was successfully created. It contains information on 3.56 million individuals derived from 61 different databases to produce a pre-COVID cohort (2016-2019) and the COVID exposed cohort (2020-2023). It is updated monthly.

The design was consulted upon and supported by members of the public through the Secure Anonymised Information Linkage (SAIL) Consumer Panel - https://saildatabank.com/governance/approvals-public-engagement/consumer-panel/

Prioritisation of investigations and findings have been discussed with the Consumer Panel on multiple occasions.

The team worked to the Welsh Government COVID-19 Technical Advisory Group (TAG). Some analyses have also been reported to SAGE working groups, e.g. Social Care Group. TAG identified many questions where analysis could help policy appraisal and development. Around 170 academic, government and NHS analysts working in collaboration conducted many different analyses. There was also widespread collaboration with colleagues in England, Scotland and Northern Ireland on combining results to provide greater precision in answers, to increase the ability to assess the impact of the disease and countermeasures on uncommon outcomes, and to assess the effectiveness and safety of COVID-19 vaccines and treatments as early as possible.
Example papers are included below - the titles are self-explanatory with URLs given for ease of access.
Understanding and responding to COVID19 in Wales: protocol for a privacy protecting data platform for enhanced epidemiology and evaluation of interventions. BMJ Open 2020;10:e043010. https://bmjopen.bmj.com/content/bmjopen/10/10/e043010.full.pdf
Impact of COVID-19 on Adjusted Mortality Risk in Care Homes for Older Adults in Wales, United Kingdom: A retrospective population-based cohort study for mortality in 2016-2020.. Age and Ageing 2021; 50:25-31.https://doi.org/10.1093/ageing/afaa207
Intensity of COVID-19 in care homes following Hospital Discharge in the early stage of the UK epidemic. Age Ageing. https://doi.org/10.1093/ageing/afac072
COVID-19 risk factors amongst 14,786 care home residents: An observational longitudinal analysis including daily community positive test rates of COVID-19, hospital stays, and vaccination status in Wales (UK) between 1st September 2020 and 1st May 2021. Age and Ageing. https://doi.org/10.1093/ageing/afac084
COVID-19 infection risk amongst 14,104 vaccinated care home residents: a national observational longitudinal cohort study in Wales, UK, December 2020-March 2021. Age and Ageing 2022;5:1 https://doi.org/10.1093/ageing/afab223
Living risk prediction algorithm (QCOVID) for risk of hospital admission and mortality from coronavirus 19 in adults: national derivation and validation cohort. BMJ 2020;371:m3731 https://doi.org/10.1136/bmj.m3731
Risk prediction of covid-19 related death and hospital admission in adults after covid-19 vaccination: national prospective cohort study. BMJ 2021;374:n2244 http://dx.doi.org/10.1136/bmj.n2244
Validating the QCOVID risk prediction algorithm for risk of mortality from COVID-19 in the adult population in Wales, UK, IJPDS 2022 5:4:13 (published 16/02/22). https://doi.org/10.23889/ijpds.v5i4.1697
Impact of COVID-19 lockdown on emergency asthma admissions and deaths: national interrupted time series analyses for Scotland and Wales. Thorax 2021 doi: 10.1136/thoraxjnl-2020-216380 (Published 29/03/21). https://thorax.bmj.com/content/early/2021/02/11/thoraxjnl-2020-216380
Impact of COVID-19 lockdown on the incidence and mortality of acute exacerbations of chronic obstructive pulmonary disease: national interrupted time series analyses for Scotland and Wales. BMC Med 19, 124 (2021). https://doi.org/10.1186/s12916-021-02000-w.
Evaluating the effect of COVID-19 on dispensing patterns: a national cohort analysis. MedRxiv 2021.02.15.21251552; doi: https://doi.org/10.1101/2021.02.15.21251552
Surgical activity in England and Wales during the COVID-19 pandemic: a nationwide observational cohort study. British Journal of Anaesthesia 2021 https://doi.org/10.1016/j.bja.2021.05.001
Epilepsy mortality in Wales during COVID-19. Seizure 2021; 94: 39-42. https://doi.org/10.1016/j.seizure.2021.11.017
Healthcare contacts with self-harm during COVID-19: an e-cohort whole-population-based study using individual-level linked routine electronic health records in Wales, UK, 2016 - March 2021.PLoS ONE (published 27/04/22). https://doi.org/10.1371/journal.pone.0266967
Staff-Pupil SARS-CoV-2 Infection Pathways in Schools in Wales: A Population Level Linked Data Approach. BMJ Paediatrics Open 2021;5:ee00149. doi:10.1136/ bmjpo-2021-001049 (published 10/05/21).
https://bmjpaedsopen.bmj.com/content/bmjpo/5/1/e001049.full.pdf
Widening excess mortality during the COVID-19 pandemic in individuals who self-harmed: a whole population based e-cohort study in Wales UK, April 2016-March 2021. Crisis 2022 (published 13/10/22). https://econtent.hogrefe.com/doi/10.1027/0227-5910/a000882

Investigating the uptake, effectiveness and safety of COVID-19 vaccines: protocol for an observational study using linked UK national data. BMJ Open 2022;12:e050062. doi:10.1136/bmjopen-2021-050062 https://bmjopen.bmj.com/content/bmjopen/12/2/e050062.full.pdf

Inequalities in coverage of COVID-19 vaccination: a population register based cross-sectional study in Wales, UK. Vaccine 2021 https://doi.org/10.1016/j.vaccine.2021.09.019

COVID-19 vaccine uptake, effectiveness and waning in 93,000 health care workers: a national prospective cohort study in Wales. Vaccine 2022;40:27 10.1016/j.vaccine.2021.11.061
First dose ChAdOx1 and BNT162b2 COVID-19 vaccinations and cerebral venous sinus thrombosis: A pooled self-controlled case series study of 11.6 million individuals in England, Scotland, and Wales. PLoS Medicine, 2022, 19(2):e1003927 https://doi.org/10.1371/journal.pmed.1003927
Severe COVID-19 outcomes post full vaccination of primary schedule and boosters: A meta-analysis of national prospective cohort studies of 30 million individuals in England, Northern Ireland, Scotland and Wales. The Lancet 2022 https://doi.org/10.1016/S0140-6736(22)01656-7https://www.sciencedirect.com/science/article/pii/S0140673622016567
Risk of thrombocytopenic, haemorrhagic and thromboembolic disorders following COVID-19 vaccination and positive test: a self-controlled case series analysis in Wales. Sci Rep 12, 16406 (2022). https://doi.org/10.1038/s41598-022-20118-6
Waning of first and second dose ChAdOx1 and BNT162b2 COVID-19 vaccinations: A pooled target trial study of 12.9 million individuals in England, Northern Ireland, Scotland and Wales. International Journal of Epidemiology, dyac199, https://doi.org/10.1093/ije/dyac199

Real-world effectiveness of molnupiravir, nirmatrelvir-ritonavir, and sotrovimab on preventing hospital admission among higher-risk patients with COVID-19 in Wales: a retrospective cohort study. Journal of Infection (published 10/02/23). https://doi.org/10.1016/j.jinf.2023.02.012
Exploitation Route We contributed to many different policy relevant questions including, the spread of the pandemic in the general Welsh population and subpopulations (care homes, health care workers, school children and staff, and clinical risk groups), the impact on COVID-19 related hospitalisations and deaths in diverse clinical populations, indirect effects such as the reduction in identification of new cases of cancer, and factors affecting the uptake, effectiveness and side effectiveness of vaccines and the real-world utility of monoclonal antibodies and anti-virals.
Sectors Communities and Social Services/Policy

Digital/Communication/Information Technologies (including Software)

Education

Environment

Healthcare

Government

Democracy and Justice

Pharmaceuticals and Medical Biotechnology

URL https://bmjopen.bmj.com/content/bmjopen/10/10/e043010.full.pdf
 
Description We contributed to many different policy relevant questions including, the spread of the pandemic in the general Welsh population and subpopulations (care homes, health care workers, school children and staff, and clinical risk groups), the impact on COVID-19 related hospitalisations and deaths in diverse clinical populations, indirect effects such as the reduction in identification of new cases of cancer, and factors affecting the uptake, effectiveness and side effectiveness of vaccines and the real-world utility of monoclonal antibodies and anti-virals. The team worked to the Welsh Government COVID-19 Technical Advisory Group (TAG). Some analyses have also been reported to SAGE working groups, e.g. Social Care Group. TAG identified many questions where analysis could help policy appraisal and development. Around 170 academic, government and NHS analysts working in collaboration conducted many different analyses. There was also widespread collaboration with colleagues in England, Scotland and Northern Ireland on combining results to provide greater precision in answers, to increase the ability to assess the impact of the disease and countermeasures on uncommon outcomes, and to assess the effectiveness and safety of COVID-19 vaccines and treatments as early as possible. Throughout the pandemic, the research team were guided by policy relevant questions from the Welsh Government COVID-19 Technical Advisory Group and fed back interim analyses before publication. Analyses were also presented to the First Minister's Black, Asian and Minority Ethnic Advisory Ethnic group and to multiple Welsh Government working groups on Education and Social Care. The UK wide collaborations also fed into SAGE, the Joint Committee on Vaccination and Immunisation (JCVI) and the Medicines and Health Care Regulatory Authority (MHRA). Findings from our research have been submitted to the COVID-19 Inquiry.
Sector Education,Healthcare,Government, Democracy and Justice,Pharmaceuticals and Medical Biotechnology
Impact Types Societal

Policy & public services

 
Description Member of the Bevan Commission Working Group
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Participation in a guidance/advisory committee
 
Description Member of the Welsh Government COVID-19 Technical Advisory Group
Geographic Reach National 
Policy Influence Type Participation in a guidance/advisory committee
 
Description Are people with COVID-19 and pre-existing respiratory disease at a higher risk of future cardiovascular and venous thromboembolic events compared with COVID-19 patients without pre-existing respiratory disease? HDRUK/Alan Turing Institute/ONS
Amount £248,760 (GBP)
Organisation Health Data Research UK 
Sector Private
Country United Kingdom
Start 09/2021 
End 09/2022
 
Description COVID19 epidemic policy simulations for Wales: Integrating spatial structure and routine linked health data for disease modelling
Amount £100,000 (GBP)
Organisation Government of Wales 
Sector Public
Country United Kingdom
Start 08/2020 
End 08/2021
 
Description Collaboration with HDRUK Data-Can cancer data initiative
Amount £103,302 (GBP)
Organisation Health Data Research UK 
Sector Private
Country United Kingdom
Start 09/2020 
End 03/2022
 
Description Effects of shielding for Vulnerable people during COVID-19 pandemic on health outcomes, costs and Immunity including those with cancer: quasi-experimenTal Evaluation (EVITE Immunity)
Amount £174,318 (GBP)
Funding ID NCSi4P 
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 11/2020 
End 03/2021
 
Description National Core Studies - Data Sprint
Amount £1,417,500 (GBP)
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 09/2021 
 
Description Population Health Information Research Infrastructure - PHIRI (Mobilisation of Research infrastructure for the COVID-19 Public Health Emergency)
Amount € 5,000,000 (EUR)
Funding ID Horizon 2020-IBA-INFRA-CORONA-2020 
Organisation European Commission 
Sector Public
Country European Union (EU)
Start 11/2020 
End 10/2023
 
Description SERC- The SAIL Epilepsy Research Cohort - A scalable resource leveraging anonymized population data and natural language processing for epilepsy research, pilot study
Amount £50,000 (GBP)
Organisation Epilepsy Research UK 
Sector Charity/Non Profit
Country United Kingdom
Start 03/2023 
End 03/2024
 
Description Senior Research Leaders Discretionary Award
Amount £15,000 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 03/2021 
End 03/2022
 
Description Senior Research Leaders Discretionary Award
Amount £60,000 (GBP)
Funding ID SRL2022-25-09 
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 03/2022 
End 03/2023
 
Description The impact of COVID-19 on health equality and mortality in people with epilepsy in Wales
Amount £158,810 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 09/2021 
End 09/2022
 
Description Undertaking scientific analysis of policy relevant questions to support the work of the Welsh Government Covid-19 Evidence Centre
Amount £292,284 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 03/2021 
End 06/2025
 
Description Wales Critical Care and Trauma Network data scientist
Amount £130,000 (GBP)
Organisation Public Health Wales NHS Trust 
Sector Public
Country United Kingdom
Start 03/2022 
End 06/2025
 
Description What TRIage model is safest and most effective for the Management of 999 callers with suspected COVID19? A linked outcome study (TRIM)
Amount £358,400 (GBP)
Funding ID MR/V027808/1 
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 06/2020 
End 06/2021
 
Description What is the uptake, safety and effectiveness of COVID-19 vaccines in: a. pregnancy; b. children and young people; c. those receiving booster doses; d. those co-administered COVID-19 and influenza vaccines?
Amount £249,775 (GBP)
Organisation Health Data Research UK 
Sector Private
Country United Kingdom
Start 09/2021 
End 09/2022
 
Title Real-time spatial health surveillance: mapping the UK COVID-19 epidemic 
Description Development of a rapid tool to demonstrate spread of COVID19 symptoms in near real-time 
Type Of Material Improvements to research infrastructure 
Year Produced 2021 
Provided To Others? Yes  
Impact Model used by First Minister Welsh Government in COVID19 public briefings 
URL https://www.sciencedirect.com/science/article/pii/S1386505621000265
 
Title Understanding and responding to COVID19 in Wales: protocol for a privacy protecting data platform for enhanced epidemiology and evaluation of interventions 
Description Development of a total population platform to help control the COVID19 pandemic 
Type Of Material Database/Collection of data 
Year Produced 2020 
Provided To Others? Yes  
Impact Analyses from this dataset has informed Welsh Government COVID19 Technical Advisory Group and SAGE on the development of the pandemic, transmission in care homes and schools and the effectiveness of countermeasures 
URL https://bmjopen.bmj.com/content/bmjopen/10/10/e043010.full.pdf
 
Description Creation of OneWales team to maximise production of policy relevant research to Welsh Government 
Organisation Government of Wales
Country United Kingdom 
Sector Public 
PI Contribution Our HDRUK and ADRUK funded analysts working in collaboration with colleagues at Public Health Wales NHS Trust and Swansea and Cardiff universities provide frequent analysed of data on the evolving COVID19 pandemic in Wales to Welsh Government COVID19 Technical Advisory Group and subgroups
Collaborator Contribution Contribution of funding for additional analyses and expertise from many areas of Government to help define and answer policy relevant questions
Impact Multiple outputs available at: https://gov.wales/publications?field_external_organisations%5B30180%5D=30180
Start Year 2020
 
Description 03/07/2020 - New approaches to data analytics in the COVID era. Invited plenary, Health Services Research UK 2020 Annual Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact New approaches to data analytics in the COVID era. Invited plenary, Health Services Research UK 2020 Annual Conference, 03/07/20.
Year(s) Of Engagement Activity 2020
 
Description 04/09/2020 - Analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. SAIL Consumer Panel 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact Analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. SAIL Consumer Panel, 04/09/20
Year(s) Of Engagement Activity 2020
 
Description 04/09/2020 - Analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. Welsh Government COVID19 Technical Advisory Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. Welsh Government COVID19 Technical Advisory Group, 04/09/20.
Year(s) Of Engagement Activity 2020
 
Description 08/07/2020 - Controlling COVID19 through enhanced population surveillance and intervention (Con-COV): a platform approach. First Minister's BAME (Black Asian and Minority Ethnic) Advisory Group 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Controlling COVID19 through enhanced population surveillance and intervention (Con-COV): a platform approach. First Minister's BAME (Black Asian and Minority Ethnic) Advisory Group, 08/07/20.
Year(s) Of Engagement Activity 2020
 
Description 09/11/2020 - Contribution to BBC Wales Investigates programme on the impact of COVID19 on the Welsh population. 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Contribution to BBC Wales Investigates programme on the impact of COVID19 on the Welsh population, 09/11/20. See links to coverage below:

BBC Wales Investigates - https://www.bbc.co.uk/news/uk-wales-54808693

Programme available: https://www.bbc.co.uk/iplayer/episode/m000pfhy/bbc-wales-investigates-the-hidden-cost-of-covid
Year(s) Of Engagement Activity 2020
URL https://www.bbc.co.uk/news/uk-wales-54808693
 
Description 16/02/2021 - SARS-CoV-2 vaccination by ethnicity update. First Minister's BAME (Black Asian and Minority Ethnic) Advisory Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact SARS-CoV-2 vaccination by ethnicity update. First Minister's BAME (Black Asian and Minority Ethnic) Advisory Group, 16/02/21.
Year(s) Of Engagement Activity 2021
 
Description 17/11/2020 - Update on analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. Welsh Government COVID19 Technical Advisory Group 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Update on analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. Welsh Government COVID19 Technical Advisory Group, 17/11/20.
Year(s) Of Engagement Activity 2020
 
Description 18/11/2020 - COVID19 and ethnicity in Wales - findings from linked data. First Minister's BAME (Black Asian and Minority Ethnic) Advisory Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact COVID19 and ethnicity in Wales - findings from linked data. First Minister's BAME (Black Asian and Minority Ethnic) Advisory Group, 18/11/20.
Year(s) Of Engagement Activity 2020
 
Description 19/01/2021 - Analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. School bubbles analysis. Welsh Government COVID19 Technical Advisory Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. School bubbles analysis. Welsh Government COVID19 Technical Advisory Group, 19/01/2021.
Year(s) Of Engagement Activity 2021
 
Description 21/01/2021 - Data Science and Population Health Research. University of British Columbia, Canada 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Data Science and Population Health Research. University of British Columbia, Canada, 21/01/21.
Year(s) Of Engagement Activity 2021
 
Description 28/01/2020 Big Data and Public Health. Sandra Macara BMA Memorial Lecture 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Industry/Business
Results and Impact PRESENTATION TO BIG DATA AND PUBLIC HEALTH, SANDRA MACARA MEMORIAL LECTURE IN CARDIFF
Year(s) Of Engagement Activity 2020
 
Description 30/09/2020 - Using linked data to respond to the COVID-19 pandemic in Wales. Workshop for Health and Care Research Wales annual conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Using linked data to respond to the COVID-19 pandemic in Wales. Workshop for Health and Care Research Wales annual conference, 30/09/20.
Year(s) Of Engagement Activity 2020
 
Description Academia Europaea Induction - Trusted Research Environments, Munich 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Industry/Business
Results and Impact Academia Europaea Induction - Trusted Research Environments, Munich
Year(s) Of Engagement Activity 2023
 
Description Analysis of linked de-identified data of the impact of COVID19 on the Welsh population using the Secure Anonymised Information Linkage (SAIL) system. School bubbles analysis. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Engagement and networking.
Year(s) Of Engagement Activity 2021
 
Description COVID-19 through a public health data lens 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact COVID-19 through a public health data lens. Health Services Research UK national conference, 08/07/21
Year(s) Of Engagement Activity 2021
 
Description COVID19 through a public health and data lens. Swansea University Faculty of Medicine, Health and Life Sciences 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact COVID19 through a public health and data lens. Swansea University Faculty of Medicine, Health and Life Sciences. Summer Scientific meeting, 22/06/21
Year(s) Of Engagement Activity 2021
 
Description COVID19 vaccine uptake by ethnicity. First Minister's BAME (Black Asian and Minority Ethnic) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact COVID19 vaccine uptake by ethnicity. First Minister's BAME (Black Asian and Minority Ethnic) Advisory Group, 21/04/21
Year(s) Of Engagement Activity 2021
 
Description Conducting research through globally accessible trusted research environments, University of Sydney 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Conducting research through globally accessible trusted research environments, University of Sydney, 11/11/22
Year(s) Of Engagement Activity 2022
 
Description Consumer Panel meeting - Januray 2021 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Patients, carers and/or patient groups
Results and Impact Topics covered;
• UCL - AIM project proposal
• Public Health Wales - The mental health in shielded children and children living in shielded households
• HDR UK - How has COVID-19 impacted non-COVID-19 healthcare service use and provision in Wales?
• Examining associations between complications of pregnancy and incident cardiovascular disease
Year(s) Of Engagement Activity 2021
 
Description Consumer Panel meeting - June 2020 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Patients, carers and/or patient groups
Results and Impact 16 members of the public who meet on a quarterly basis to provide public persepctive on health data research projects. This meeting covered the topics of;
PPI/E impact pathway for the BREATHE Hub
Contact Tracing App deliberation project PPI/E plan
Year(s) Of Engagement Activity 2020
 
Description Consumer Panel meeting - September 2020 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Patients, carers and/or patient groups
Results and Impact 16 members of the public who meet on a quarterly basis to provide public persepctive on health data research projects. This meeting covered the topics of;
Agriculture community wellbeing study
Summary of work carried out by HDR UK during the pandemic
Health Foundation; Networked Data Labs Wales - discussion on topic selection
Year(s) Of Engagement Activity 2020
 
Description Controlling COVID19 through enhanced population surveillance and intervention (Con-COV): a platform approach 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Controlling COVID19 through enhanced population surveillance and intervention (Con-COV): a platform approach. Public Health Wales Research and Evaluation Conference, 23/09/21.
Year(s) Of Engagement Activity 2021
 
Description Controlling COVID19 through enhanced population surveillance and intervention (Con-COV): a platform approach 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Controlling COVID19 through enhanced population surveillance and intervention (Con-COV): a platform approach. Welsh Government COVID19 Technical Advisory Group's Research and Development Subcommittee. 28/04/21.
Year(s) Of Engagement Activity 2021
 
Description Data Science and Population Health : a Team Science Approach 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Postgraduate students
Results and Impact Data Science and Population Health : a Team Science Approach. Liverpool University MSc in Data Science lecture, 03/11/21.
Year(s) Of Engagement Activity 2021
 
Description Data Science and Population Health Research 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Data Science and Population Health Research. University of British Columbia, Canada, 21/01/21
Year(s) Of Engagement Activity 2021
 
Description Data linkage research- opportunities for enhanced UK/Australia collaboration 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Data linkage research- opportunities for enhanced UK/Australia collaboration, University of New South Wales, 08/11/22
Year(s) Of Engagement Activity 2022
 
Description Development of a collaboration with NHS Wales organisations and Chicago Medical School to develop a system to evaluate the utility of artificial intelligence/machine learning to derive additional information from medical images to support research and ultimately efficient health service delivery and patient outcomes. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Development of a collaboration with NHS Wales organisations and Chicago Medical School to develop a system to evaluate the utility of artificial intelligence/machine learning to derive additional information from medical images to support research and ultimately efficient health service delivery and patient outcomes. Presentation to SAIL Consumer Panel.
Year(s) Of Engagement Activity 2022
 
Description Emergency Medicine, Retrieval and Trauma Service (EMRTS) Evaluation. 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Emergency Medicine, Retrieval and Trauma Service (EMRTS) Evaluation. EMERTS Governance Meeting, 22/06/21.
Year(s) Of Engagement Activity 2021
 
Description Ethnic Minority Women in Welsh Healthcare Health Inequalities conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Using data linkage to understand the impact of social and ethnic inequalities in health. Ethnic Minority Women in Welsh Healthcare Health Inequalities conference, Cardiff 24/09/22
Year(s) Of Engagement Activity 2022
 
Description HDRUK QQR2 Public Health Research Vision 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact HDRUK QQR2 Public Health Research Vision. HDRUK national meeting, 26/04/21
Year(s) Of Engagement Activity 2021
 
Description Introduction to SAIL - Rural Health and Care Wales Stakeholder Group 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Industry/Business
Results and Impact Introduction to SAIL - Rural Health and Care Wales Stakeholder Group
Year(s) Of Engagement Activity 2023
 
Description NIHR AI for Multiple Long Term Conditions Research Support Facility. Panel Discussion on Public and Patient, Involvement and Engagement 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact NIHR AI for Multiple Long Term Conditions Research Support Facility. Panel Discussion on Public and Patient, Involvement and Engagement. 16/09/22
Year(s) Of Engagement Activity 2022
 
Description Neuroimaging symposium - DPUK Data Portal, Sophia Gardens, Cardiff 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Neuroimaging symposium - DPUK Data Portal, Sophia Gardens, Cardiff
Year(s) Of Engagement Activity 2023
 
Description Overview of Trusted Research Environment globally, Dementias Platform Australia, University of New South Wales 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Overview of Trusted Research Environment globally, Dementias Platform Australia, University of New South Wales, 08/11/22
Year(s) Of Engagement Activity 2022
 
Description Presentation to Public Health Wales trainees 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Study participants or study members
Results and Impact SAIL databank, presentation to Public Health Wales trainees
Year(s) Of Engagement Activity 2023
 
Description Proposal for a Population Data Science Research Institute (PDRSI) - presentation to Swansea University faculties 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact Proposal for a Population Data Science Research Institute (PDRSI) - presentation to Swansea University faculties 13/12/22
Year(s) Of Engagement Activity 2022
 
Description Reinvigorating health registries during COVID for rapid policy analyses. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Reinvigorating health registries during COVID for rapid policy analyses. Norwegian Health Registry Conference, Oslo, 16/11/21. Helse- og Kvalitetsregisterkonferansen 2021 | Keynote presentation.
Year(s) Of Engagement Activity 2021
URL https://www.registerkonferansen.no/
 
Description Report on the development of Inspirational Case Study for INFACT Desirable Healthcare Utilisation Profiles and Indicator 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Report on the development of Inspirational Case Study for INFACT
Desirable Healthcare Utilisation Profiles and Indicator, European Union Information for Action meeting
Year(s) Of Engagement Activity 2021
 
Description Research use cases measuring the impact of COVID-19 on population health 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Research use cases measuring the impact of COVID-19 on population health. The European Health Data Space (THEDAS), Brussels.
Year(s) Of Engagement Activity 2021
 
Description SARS-CoV-2 vaccination by ethnicity update. First Minister's BAME (Black Asian and Minority Ethnic) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact SARS-CoV-2 vaccination by ethnicity update. First Minister's BAME (Black Asian and Minority Ethnic) Advisory Group, 16/02/21
Year(s) Of Engagement Activity 2021
 
Description Statistical Methods for Covid-19: Mortality Statistics - Wales (Royal Statistical Society) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Statistical Methods for Covid-19: Mortality Statistics - Wales. Presentation to Royal Statistical Society four nation meeting on COVID-19 mortality, 23/03/22
Year(s) Of Engagement Activity 2022
 
Description Statistical Methods for Covid-19: Mortality Statistics - Wales (Welsh Government) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Statistical Methods for Covid-19: Mortality Statistics - Wales. Presentation to Welsh Government COVID-19 Technical Advisory Group, 25/03/22
Year(s) Of Engagement Activity 2022
 
Description Swansea Volunteer Management Network Meeting 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Third sector organisations
Results and Impact Around 30 volunteer managers from a wide range of third sector organisations from across the Swansea area meet on a regular basis to support one another and share good practice, this is a reccuring bimonthly meeting. In the October 2020 meeting, Lynsey Cross delivered a presentation on the PPI/E work which is carried out by HDR UK. From this presentation a number of working relationships have been forged and a new member of the public has applied to become a member of the Consumer Panel.
Year(s) Of Engagement Activity 2021
 
Description The Secure Anonymised Information Linkage System 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact The Secure Anonymised Information Linkage System. Presentation to PHW Specialist Registrars, 04/08/21
Year(s) Of Engagement Activity 2021
 
Description The Secure Anonymised Information Linkage System 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact The Secure Anonymised Information Linkage System. Edinburgh University Usher Institute, 05/07/21
Year(s) Of Engagement Activity 2021
 
Description Update for SAIL Consumer Panel 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact Update for SAIL Consumer Panel. 29/06/22
Year(s) Of Engagement Activity 2022
 
Description Update on research 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Update on research. SAIL Consumer Panel, 30/06/21.
Year(s) Of Engagement Activity 2021
 
Description Using an advanced routine healthcare data systems to improve population health, clinical care and inform policy: the COVID-19 pandemic and beyond 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Using an advanced routine healthcare data systems to improve population health, clinical care and inform policy: the COVID-19 pandemic and beyond. Maurice Bloch Lecture, Glasgow University, 26/01/22. https://youtu.be/2B4Ak0YuOng
Year(s) Of Engagement Activity 2022
URL https://youtu.be/2B4Ak0YuOng
 
Description Using an advanced routine healthcare data systems to improve population health, clinical care and inform policy: the COVID-19 pandemic and beyond. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Using an advanced routine healthcare data systems to improve population health, clinical care and inform policy: the COVID-19 pandemic and beyond. Maurice Bloch Lecture, Glasgow University, 26/01/22.
Year(s) Of Engagement Activity 2021
URL https://youtu.be/2B4Ak0YuOng
 
Description Vulnerable populations and COVID: EU Population Health Information Research Infrastructure 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Vulnerable populations and COVID: EU Population Health Information Research Infrastructure (PHIRI - https://www.phiri.eu/ ) meeting with OECD, ECDC, 24/09/21.
Year(s) Of Engagement Activity 2021
URL https://www.phiri.eu/
 
Description Working with Swansea University on the ARDC Secure eResearch Platform, Monash University 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Working with Swansea University on the ARDC Secure eResearch Platform, Monash University, 15/11/22
Year(s) Of Engagement Activity 2022