EN-REACH: Every Newborn - Reach up Early Education intervention for All Children in Bangladesh, Nepal & Tanzania
Lead Research Organisation:
London School of Hygiene & Tropical Medicine
Department Name: Epidemiology and Population Health
Abstract
The Sustainable Development Goals (SDGs) target the unfinished agenda for child survival with 5.3 million deaths of children before their fifth birthday. Importantly, the SDGs also reflect families' and national governments' aspirations that all children thrive as well as survive, meeting their full developmental potential. Unfortunately, children most at risk include those with neurodevelopmental delays and developmental disabilities like cerebral palsy, who are less likely than their peers to access pre-primary and primary school education. Whilst 48% of low- and middle-income countries (LMIC) countries have policies to address pre-primary education, there remain major gaps in provision, and major gaps for evidence-based, feasible approaches that are inclusive of children with NDD/D.
OPPORTUNITY: 'Reach Up' (a Jamaican home visiting programme) is one of the most evidence-based parenting programmes to support early child development and educational outcomes. Effects have been seen into adulthood, including increased earning power. Up until now 'Reach Up' has focused on children under 3 years of age and has not included those with severer developmental delays and disabilities. Effects on pre-school readiness children at the age of 5 years, an important factor in longer term educational achievement, have not to date been examined and is the focus of the 'Every Newborn-Reach Up Early Education Intervention For All Children' (EN-REACH) research
PARTNERSHIP: Our proposal builds on a well-established, equitable partnership since 2015 between three leading research institutions in Bangladesh, Nepal and Tanzania and the UK. We have a cohort of 2,000 children, now aged 2-3 years, in these three countries to compare accuracy and feasibility of range of early child development (ECD) assessment tools, known as the EN-SMILING study. EN-SMILING is partnering with the World Health Organization and UNICEF, to contribute to accurately measuring ECD and detecting disability early in children in LMICs and provides. It provides a timely opportunity to rigorously test more feasible ways to improve educational outcomes for all children, including those with disabilities.
OBJECTIVES:
The EN-REACH study has 3 objectives:
Objective 1: INNOVATION
To adapt the existing "Reach Up" parenting package to include those with disability and additional materials to support pre-school readiness for all children.
Objective 2: IMPACT EVALUATION
To conduct a 'quasi-experimental' research study to compare early child development markers for school readiness and other important development, health and well-being outcomes for children and their families between those receiving the adapted "Reach-Up" package, and those who did not.
Objective 3: IMPLEMENTATION:
To improve our understanding of important factors in implementing the new adapted 'Reach up' package to support integration of the package into routine child health systems if it is found to be effective.
IMPACT EXPECTED:
EN-REACH could have significant impact for children in these three high priority countries, both for education and care of children at risk of poor developmental outcomes, with strong links to national and global policy including MoHs WHO, UNICEF and many stakeholders. Direct research benefits will include identification and roll-out of testing tools to screen children for developmental delay and disability to ensure early detection of difficulties. This research would enable understanding of acceptability of the parenting package to be inclusive of children with disability more widely across Africa and Asia. Since the team have a 5-year track record of collaborative work, with strong site teams and have proven ability to deliver outputs and joint publications throughout 2020, ongoing effective work can be anticipated despite the COVID19 pandemic.
OPPORTUNITY: 'Reach Up' (a Jamaican home visiting programme) is one of the most evidence-based parenting programmes to support early child development and educational outcomes. Effects have been seen into adulthood, including increased earning power. Up until now 'Reach Up' has focused on children under 3 years of age and has not included those with severer developmental delays and disabilities. Effects on pre-school readiness children at the age of 5 years, an important factor in longer term educational achievement, have not to date been examined and is the focus of the 'Every Newborn-Reach Up Early Education Intervention For All Children' (EN-REACH) research
PARTNERSHIP: Our proposal builds on a well-established, equitable partnership since 2015 between three leading research institutions in Bangladesh, Nepal and Tanzania and the UK. We have a cohort of 2,000 children, now aged 2-3 years, in these three countries to compare accuracy and feasibility of range of early child development (ECD) assessment tools, known as the EN-SMILING study. EN-SMILING is partnering with the World Health Organization and UNICEF, to contribute to accurately measuring ECD and detecting disability early in children in LMICs and provides. It provides a timely opportunity to rigorously test more feasible ways to improve educational outcomes for all children, including those with disabilities.
OBJECTIVES:
The EN-REACH study has 3 objectives:
Objective 1: INNOVATION
To adapt the existing "Reach Up" parenting package to include those with disability and additional materials to support pre-school readiness for all children.
Objective 2: IMPACT EVALUATION
To conduct a 'quasi-experimental' research study to compare early child development markers for school readiness and other important development, health and well-being outcomes for children and their families between those receiving the adapted "Reach-Up" package, and those who did not.
Objective 3: IMPLEMENTATION:
To improve our understanding of important factors in implementing the new adapted 'Reach up' package to support integration of the package into routine child health systems if it is found to be effective.
IMPACT EXPECTED:
EN-REACH could have significant impact for children in these three high priority countries, both for education and care of children at risk of poor developmental outcomes, with strong links to national and global policy including MoHs WHO, UNICEF and many stakeholders. Direct research benefits will include identification and roll-out of testing tools to screen children for developmental delay and disability to ensure early detection of difficulties. This research would enable understanding of acceptability of the parenting package to be inclusive of children with disability more widely across Africa and Asia. Since the team have a 5-year track record of collaborative work, with strong site teams and have proven ability to deliver outputs and joint publications throughout 2020, ongoing effective work can be anticipated despite the COVID19 pandemic.
Technical Summary
Sustainable Development Goals (SDGs) include targets for the unfinished child survival agenda, given 5.3 million deaths of children before their 5th birthday, half in the neonatal period. SDG target 4.2 aims that, by 2030, all children access quality early child development (ECD), pre-primary education and are ready for primary education. However, children most at risk of poor educational outcomes, including those with neuro-developmental delay and disability (NDD/D), are less likely to access school, including pre-school services.
This proposal, co-led by Dr Jena Hamadani of iccdr,b and Prof Joy Lawn of LSHTM is called EN-REACH (Every Newborn - Reach up Early Education intervention for All CHildren) and will evaluate the impact and implementation of an adapted 'Reach Up' parenting program in in Bangladesh, Nepal & Tanzania with three objectives:
Objective 1: INNOVATION: To adapt 'Reach Up' parenting package for ECD for all children, inclusive of those with NDD and disability, in three diverse low-and middle- income countries (LMIC).
Objective 2: IMPACT EVALUATION: To use a quasi-experimental design to measure early child development markers for school readiness (cognition, psycho-social, etc), and child and caregiver quality of life after receiving the adapted "Reach-Up" package (delivered to 50% of the cohort, est:1000 children), compared to the other 50%.
Objective 3: IMPLEMENTATION: To undertake process evaluation of implementation, including examining barriers & enablers for uptake of adapted "Reach Up" package integrated into routine health systems.
EN-REACH aims to have significant impact for children and their families, at country level and on global policy for care of children with disabilities through links with global organisations such as UNICEF and WHO. This study will provide evidence on effectiveness and acceptability of a disability-inclusive and scalable parenting package in diverse Asian and African settings.
This proposal, co-led by Dr Jena Hamadani of iccdr,b and Prof Joy Lawn of LSHTM is called EN-REACH (Every Newborn - Reach up Early Education intervention for All CHildren) and will evaluate the impact and implementation of an adapted 'Reach Up' parenting program in in Bangladesh, Nepal & Tanzania with three objectives:
Objective 1: INNOVATION: To adapt 'Reach Up' parenting package for ECD for all children, inclusive of those with NDD and disability, in three diverse low-and middle- income countries (LMIC).
Objective 2: IMPACT EVALUATION: To use a quasi-experimental design to measure early child development markers for school readiness (cognition, psycho-social, etc), and child and caregiver quality of life after receiving the adapted "Reach-Up" package (delivered to 50% of the cohort, est:1000 children), compared to the other 50%.
Objective 3: IMPLEMENTATION: To undertake process evaluation of implementation, including examining barriers & enablers for uptake of adapted "Reach Up" package integrated into routine health systems.
EN-REACH aims to have significant impact for children and their families, at country level and on global policy for care of children with disabilities through links with global organisations such as UNICEF and WHO. This study will provide evidence on effectiveness and acceptability of a disability-inclusive and scalable parenting package in diverse Asian and African settings.
Organisations
- London School of Hygiene & Tropical Medicine (Lead Research Organisation, Project Partner)
- Economic and Social Research Council (Co-funder)
- University of Maryland, College Park (Collaboration)
- University of Melbourne (Collaboration)
- UNICEF (Collaboration)
- Rice University (Collaboration)
- University College London (Project Partner)
- Light For The World (Project Partner)
- Children's Investment Fund Foundation (Project Partner)
- Nepal Medical Association (Project Partner)
- United Nations Children's Fund (Project Partner)
- University of Maryland, College Park (Project Partner)
Publications
Agravat P
(2023)
Research funding for newborn health and stillbirths, 2011-20: a systematic analysis of levels and trends
in The Lancet Global Health
Hayes J
(2023)
Mid-upper arm circumference (MUAC) measurement usage among children with disabilities: A systematic review.
in Nutrition and health
Katumba KR
(2023)
The economic burden incurred by families caring for a young child with developmental disability in Uganda.
in PLOS global public health
KC A
(2023)
Recent Progress in Neonatal Global Health Quality Improvement
in Clinics in Perinatology
KC A
(2024)
Co-designing interventions for a continuum of care for children with cerebral palsy
in Developmental Medicine & Child Neurology
Kumar MB
(2023)
Donor aid mentioning newborns and stillbirths, 2002-19: an analysis of levels, trends, and equity.
in The Lancet. Global health
Title | Let Hope Grow: Communicating family experiences of caring for young children with disability |
Description | Let Hope Grow is a collaborative project between researchers, artists and families to raise public awareness around families experience of child disability after newborn conditions in Africa |
Type Of Art | Artistic/Creative Exhibition |
Year Produced | 2020 |
Impact | Highly positive review of the art exhibition in Lancet Child & Adolescent Health |
URL | https://blogs.lshtm.ac.uk/marchblog/2019/04/17/let-hope-grow-advocating-for-children-with-disability... |
Description | Memorandum of Understanding between Mnistry of Health Uganda and LSHTM on early care and support for neonatal survivors with developmental disability |
Geographic Reach | Africa |
Policy Influence Type | Contribution to a national consultation/review |
Impact | Renewed government committment t early care and support for children with disability and their families |
Description | Community scale-up of the Baby Ubuntu Early Intervention Programme in Uganda |
Amount | £93,000 (GBP) |
Organisation | Tropical Health & Education Trust (THET) |
Sector | Charity/Non Profit |
Country | United Kingdom |
Start | 08/2021 |
End | 05/2022 |
Description | Developing stigma module for participatory training programmes for caregivers of children with cerebral palsy |
Amount | € 47,000 (EUR) |
Organisation | Lillian og Dan Finks Fond |
Sector | Charity/Non Profit |
Country | Denmark |
Start | 03/2018 |
End | 09/2019 |
Description | Developing the WHO Caregiver Skills Training 0-3 years programme for young children with developmental disability |
Amount | $48,000 (USD) |
Organisation | World Health Organization (WHO) |
Sector | Public |
Country | Global |
Start | 08/2022 |
End | 06/2023 |
Description | Evaluation of the Ubuntu programmes for early child disability in East Africa. A cluster randomized controlled trial |
Amount | $1,098,000 (CAD) |
Organisation | Partners In Health |
Sector | Charity/Non Profit |
Country | United States |
Start | 06/2023 |
End | 05/2026 |
Description | Funding for Every Newborn - Reach up Early Education for All Children in Bangladesh |
Amount | £400,000 (GBP) |
Funding ID | GR-075636 |
Organisation | Porticus |
Sector | Charity/Non Profit |
Country | Global |
Start | 01/2021 |
End | 12/2023 |
Description | Dr Kate Milner -Neurodevelopmental Paediatric Advisor |
Organisation | University of Melbourne |
Country | Australia |
Sector | Academic/University |
PI Contribution | Sharing of measurement toolbox for ages 4-6 years old - and technical expertise on designing educational materials to be inclusive of children with disabilities. |
Collaborator Contribution | Technical expertise in assessing neurodevelopmental disability in particular assessing vision and hearing in low resource settings. General oversight and advice on intervention study design and engaging parents of children with disabilities. |
Impact | Design of study and ethics protocol. |
Start Year | 2018 |
Description | Dr Maureen Black - Chair Technical Advisory Group |
Organisation | University of Maryland |
Country | United States |
Sector | Academic/University |
PI Contribution | N/A |
Collaborator Contribution | Provided oversight and technical advise on overall ethics protocol - in particular on measurement of early child development. |
Impact | Refined ethics protocol Chaired 1st TAG meetingM March 2023 |
Start Year | 2022 |
Description | NEST360 including Health facility assessments with |
Organisation | Rice University |
Department | Department of Bioengineering |
Country | United States |
Sector | Academic/University |
PI Contribution | In collaboration with the NEST 360° initiative, we have undertaken health facility assessments at the four OMWaNA trial hospitals to evaluate readiness for the care of small and sick newborns. These assessments encompass the following areas: • Infrastructure for neonatal care, including neonatal unit space, kangaroo mother care resources, water and electrical supply, and infection control • Physical resources for neonatal care, including supplies, medications, laboratory capacity, and essential devices and equipment • Human resource issues, including facility policies and working conditions, neonatal unit staffing, clinical care guidelines, and supervisory support and motivation • Health information systems, including sources and quality of neonatal care data |
Collaborator Contribution | NEST 360 together with UNICEF and 4 African governments co-developed the tools used to assess facility readiness for neonatal care. Joy Lawn is PI for The NEST 360 complex evaluation. OMWaNA trial staff attended a Health Facilities Assessment Training in Nairobi in December 2019 with participants from Kenya, Malawi and Uganda and then used the same HFA tool for the OMWaNA sites |
Impact | Health Facility Assessments in OMWaNA sites NEST360 alliance is 16 organisations, 12 in Africa, working with 4 African governments to scale up small and sick newborn care. NEST360 is multi-disciplinary including neonatal clinicians, biomedical engineers, technicians, health systems experts, and individuals with expertise in market shaping and product development. LSHTM leads the complex evalaution for NEST360. |
Start Year | 2019 |
Description | UNICEF Nurturing Care and Partnerships - Boniface Kakhowbe |
Organisation | UNICEF |
Country | United States |
Sector | Public |
PI Contribution | N/A |
Collaborator Contribution | Technical oversight on ethics protocol - in particular on integrating interventions into community spaces |
Impact | Advised on overall study protocol |
Start Year | 2023 |
Title | 'Let's get ready' school readiness intervention |
Description | Under this grant we have designed and piloted a nine session school readiness intervention inclusive of disability specific material in Bangladesh, Nepal and Tanzania with involvement from ministry of health and education in each country. Each country has completed 2 months of piloting with two groups of 10 caregiver-child dyads. Materials are now being updated and context specific material has been added. |
Type | Therapeutic Intervention - Psychological/Behavioural |
Current Stage Of Development | Initial development |
Year Development Stage Completed | 2023 |
Development Status | Under active development/distribution |
Impact | During development process a scoping exercise of available educational material in each country was conducted allowing for a full review of school readiness materials. |
URL | https://lshtm-my.sharepoint.com/:f:/g/personal/eidejcha_lshtm_ac_uk/EijGXgivPH1GiHUJvb0l8lMBnKzgAhKB... |
Title | Ubuntu Hub website |
Description | Website for the Ubuntu Hub learning platform of care and support programmes for children with developmental disabilities and their families. |
Type Of Technology | Webtool/Application |
Year Produced | 2018 |
Open Source License? | Yes |
Impact | Improved engagement of implemntation partners in LMICs. Improved reach and coverage of earky care and support for children and their families |
URL | https://www.ubuntu-hub.org/ |
Description | (6) Early child disability - The Voice of the Carer. Early Child Development. Silent emergency or Unique Opportunity. The 2021 RCPCH International Child Health Group Virtual Conference, 12th November 2021. Invited speaker. |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | (6) Early child disability - The Voice of the Carer. Early Child Development. Silent emergency or Unique Opportunity. The 2021 RCPCH International Child Health Group Virtual Conference, 12th November 2021. Facilitated group discussion/expert panel |
Year(s) Of Engagement Activity | 2021 |
URL | https://www.rcpch.ac.uk/work-we-do/global-child-health |
Description | (Early care and support for young children with developmental disability and their caregivers in East Africa: Baby Ubuntu. TANN CJ African Regional Convening to Support Parents and Caregivers, Geneva, Switzerland, online. 21-23rd June 2022. Invited speaker |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | Invited speaker at the African Regional Convening to Support Parents and Caregivers, Geneva, Switzerland, online. 21-23rd June 2022. Presenting on Early care and support for young children with developmental disability and their caregivers in East Africa: Baby Ubuntu. |
Year(s) Of Engagement Activity | 2022 |
URL | https://www.afro.who.int/publications/african-regional-convening-support-parents-and-caregivers-june... |
Description | A Call to Action: Neonatal Encephalopathy in Low- & Middle-Income Country settings. 12th International Congress of the Union of European Neonatal & Perinatal Societies, Krakow, Poland. 2nd-4th September 2022. Invited speaker |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | (1) A Call to Action: Neonatal Encephalopathy in Low- & Middle-Income Country settings. TANN CJ 12th International Congress of the Union of European Neonatal & Perinatal Societies, Krakow, Poland. 2nd-4th September 2022. Invited speaker |
Year(s) Of Engagement Activity | 2022 |
URL | https://www.mcascientificevents.eu/uenps/ |
Description | Community of Practice for early care and support for children with developmental disabilies and their families |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | Community of practice for professionals caring for children with developmental disabilities and their families. CoP has 523 members spanning more than 80 countries and territories. |
Year(s) Of Engagement Activity | 2022,2023 |
URL | https://knowledge-gateway.org/working-in-community-children-cerebral-palsy |
Description | Neonatal Brain Health in Africa: Risks, Outcomes & Interventions. TANN CJ University of Trondheim, 12th May 2022. Invited speaker |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | Invited speakerUniversity of Trondheim, 12th May 2022. |
Year(s) Of Engagement Activity | 2022 |
Description | Policy makers and Ministry engagement - Bangladesh |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Policymakers/politicians |
Results and Impact | Sensitisation workshop with policy makers - officials from and education and health ministers a presentation and open discussion improved engagement between officials and the study team resulting in involvement from and approval from ministry on study activities. |
Year(s) Of Engagement Activity | 2022 |
Description | Policy makers and Ministry engagement - Nepal |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Policymakers/politicians |
Results and Impact | Sensitisation workshop with policy makers - officials from centre for education and human resource development (CEHRD) and education and health ministers a presentation and open discussion improved engagement between officials and the study team resulting in involvement from and approval from ministry on study activities. |
Year(s) Of Engagement Activity | 2023 |
Description | Policy makers and Ministry engagement - Tanzania |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Policymakers/politicians |
Results and Impact | An information evening held in Dar Es Salaam Tanzania to discuss EN-REACH with key policymakers and stakeholders (members from UNICEF Tanzania, and the ministry of education) were invited. The overall aims and objectives of EN-REACH were presented followed by a discussion with stakeholders. |
Year(s) Of Engagement Activity | 2022 |
Description | Supporting quality care for children with developmental disabilities during the pandemic: Challenges, solutions and silver linings. Tropical Health Education Trust conference 2022: Transformative pathways for a healthy recovery. 12th April 2022. |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Policymakers/politicians |
Results and Impact | Supporting quality care for children with developmental disabilities during the pandemic: Challenges, solutions and silver linings. Tropical Health Education Trust conference 2022: Transformative pathways for a healthy recovery. 12th April 2022. |
Year(s) Of Engagement Activity | 2022 |