EN-REACH: Every Newborn - Reach up Early Education intervention for All Children in Bangladesh, Nepal & Tanzania

Lead Research Organisation: London School of Hygiene & Tropical Medicine
Department Name: Epidemiology and Population Health

Abstract

The Sustainable Development Goals (SDGs) target the unfinished agenda for child survival with 5.3 million deaths of children before their fifth birthday. Importantly, the SDGs also reflect families' and national governments' aspirations that all children thrive as well as survive, meeting their full developmental potential. Unfortunately, children most at risk include those with neurodevelopmental delays and developmental disabilities like cerebral palsy, who are less likely than their peers to access pre-primary and primary school education. Whilst 48% of low- and middle-income countries (LMIC) countries have policies to address pre-primary education, there remain major gaps in provision, and major gaps for evidence-based, feasible approaches that are inclusive of children with NDD/D.

OPPORTUNITY: 'Reach Up' (a Jamaican home visiting programme) is one of the most evidence-based parenting programmes to support early child development and educational outcomes. Effects have been seen into adulthood, including increased earning power. Up until now 'Reach Up' has focused on children under 3 years of age and has not included those with severer developmental delays and disabilities. Effects on pre-school readiness children at the age of 5 years, an important factor in longer term educational achievement, have not to date been examined and is the focus of the 'Every Newborn-Reach Up Early Education Intervention For All Children' (EN-REACH) research

PARTNERSHIP: Our proposal builds on a well-established, equitable partnership since 2015 between three leading research institutions in Bangladesh, Nepal and Tanzania and the UK. We have a cohort of 2,000 children, now aged 2-3 years, in these three countries to compare accuracy and feasibility of range of early child development (ECD) assessment tools, known as the EN-SMILING study. EN-SMILING is partnering with the World Health Organization and UNICEF, to contribute to accurately measuring ECD and detecting disability early in children in LMICs and provides. It provides a timely opportunity to rigorously test more feasible ways to improve educational outcomes for all children, including those with disabilities.

OBJECTIVES:
The EN-REACH study has 3 objectives:

Objective 1: INNOVATION
To adapt the existing "Reach Up" parenting package to include those with disability and additional materials to support pre-school readiness for all children.

Objective 2: IMPACT EVALUATION
To conduct a 'quasi-experimental' research study to compare early child development markers for school readiness and other important development, health and well-being outcomes for children and their families between those receiving the adapted "Reach-Up" package, and those who did not.

Objective 3: IMPLEMENTATION:
To improve our understanding of important factors in implementing the new adapted 'Reach up' package to support integration of the package into routine child health systems if it is found to be effective.

IMPACT EXPECTED:
EN-REACH could have significant impact for children in these three high priority countries, both for education and care of children at risk of poor developmental outcomes, with strong links to national and global policy including MoHs WHO, UNICEF and many stakeholders. Direct research benefits will include identification and roll-out of testing tools to screen children for developmental delay and disability to ensure early detection of difficulties. This research would enable understanding of acceptability of the parenting package to be inclusive of children with disability more widely across Africa and Asia. Since the team have a 5-year track record of collaborative work, with strong site teams and have proven ability to deliver outputs and joint publications throughout 2020, ongoing effective work can be anticipated despite the COVID19 pandemic.

Technical Summary

Sustainable Development Goals (SDGs) include targets for the unfinished child survival agenda, given 5.3 million deaths of children before their 5th birthday, half in the neonatal period. SDG target 4.2 aims that, by 2030, all children access quality early child development (ECD), pre-primary education and are ready for primary education. However, children most at risk of poor educational outcomes, including those with neuro-developmental delay and disability (NDD/D), are less likely to access school, including pre-school services.

This proposal, co-led by Dr Jena Hamadani of iccdr,b and Prof Joy Lawn of LSHTM is called EN-REACH (Every Newborn - Reach up Early Education intervention for All CHildren) and will evaluate the impact and implementation of an adapted 'Reach Up' parenting program in in Bangladesh, Nepal & Tanzania with three objectives:

Objective 1: INNOVATION: To adapt 'Reach Up' parenting package for ECD for all children, inclusive of those with NDD and disability, in three diverse low-and middle- income countries (LMIC).

Objective 2: IMPACT EVALUATION: To use a quasi-experimental design to measure early child development markers for school readiness (cognition, psycho-social, etc), and child and caregiver quality of life after receiving the adapted "Reach-Up" package (delivered to 50% of the cohort, est:1000 children), compared to the other 50%.

Objective 3: IMPLEMENTATION: To undertake process evaluation of implementation, including examining barriers & enablers for uptake of adapted "Reach Up" package integrated into routine health systems.

EN-REACH aims to have significant impact for children and their families, at country level and on global policy for care of children with disabilities through links with global organisations such as UNICEF and WHO. This study will provide evidence on effectiveness and acceptability of a disability-inclusive and scalable parenting package in diverse Asian and African settings.

Publications

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KC A (2023) Recent Progress in Neonatal Global Health Quality Improvement in Clinics in Perinatology

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KC A (2024) Co-designing interventions for a continuum of care for children with cerebral palsy in Developmental Medicine & Child Neurology

 
Title Let Hope Grow: Communicating family experiences of caring for young children with disability 
Description Let Hope Grow is a collaborative project between researchers, artists and families to raise public awareness around families experience of child disability after newborn conditions in Africa 
Type Of Art Artistic/Creative Exhibition 
Year Produced 2020 
Impact Highly positive review of the art exhibition in Lancet Child & Adolescent Health 
URL https://blogs.lshtm.ac.uk/marchblog/2019/04/17/let-hope-grow-advocating-for-children-with-disability...
 
Description Memorandum of Understanding between Mnistry of Health Uganda and LSHTM on early care and support for neonatal survivors with developmental disability
Geographic Reach Africa 
Policy Influence Type Contribution to a national consultation/review
Impact Renewed government committment t early care and support for children with disability and their families
 
Description Community scale-up of the Baby Ubuntu Early Intervention Programme in Uganda
Amount £93,000 (GBP)
Organisation Tropical Health & Education Trust (THET) 
Sector Charity/Non Profit
Country United Kingdom
Start 08/2021 
End 05/2022
 
Description Developing stigma module for participatory training programmes for caregivers of children with cerebral palsy
Amount € 47,000 (EUR)
Organisation Lillian og Dan Finks Fond 
Sector Charity/Non Profit
Country Denmark
Start 03/2018 
End 09/2019
 
Description Developing the WHO Caregiver Skills Training 0-3 years programme for young children with developmental disability
Amount $48,000 (USD)
Organisation World Health Organization (WHO) 
Sector Public
Country Global
Start 08/2022 
End 06/2023
 
Description Evaluation of the Ubuntu programmes for early child disability in East Africa. A cluster randomized controlled trial
Amount $1,098,000 (CAD)
Organisation Partners In Health 
Sector Charity/Non Profit
Country United States
Start 06/2023 
End 05/2026
 
Description Funding for Every Newborn - Reach up Early Education for All Children in Bangladesh
Amount £400,000 (GBP)
Funding ID GR-075636 
Organisation Porticus 
Sector Charity/Non Profit
Country Global
Start 01/2021 
End 12/2023
 
Description Dr Kate Milner -Neurodevelopmental Paediatric Advisor 
Organisation University of Melbourne
Country Australia 
Sector Academic/University 
PI Contribution Sharing of measurement toolbox for ages 4-6 years old - and technical expertise on designing educational materials to be inclusive of children with disabilities.
Collaborator Contribution Technical expertise in assessing neurodevelopmental disability in particular assessing vision and hearing in low resource settings. General oversight and advice on intervention study design and engaging parents of children with disabilities.
Impact Design of study and ethics protocol.
Start Year 2018
 
Description Dr Maureen Black - Chair Technical Advisory Group 
Organisation University of Maryland
Country United States 
Sector Academic/University 
PI Contribution N/A
Collaborator Contribution Provided oversight and technical advise on overall ethics protocol - in particular on measurement of early child development.
Impact Refined ethics protocol Chaired 1st TAG meetingM March 2023
Start Year 2022
 
Description NEST360 including Health facility assessments with 
Organisation Rice University
Department Department of Bioengineering
Country United States 
Sector Academic/University 
PI Contribution In collaboration with the NEST 360° initiative, we have undertaken health facility assessments at the four OMWaNA trial hospitals to evaluate readiness for the care of small and sick newborns. These assessments encompass the following areas: • Infrastructure for neonatal care, including neonatal unit space, kangaroo mother care resources, water and electrical supply, and infection control • Physical resources for neonatal care, including supplies, medications, laboratory capacity, and essential devices and equipment • Human resource issues, including facility policies and working conditions, neonatal unit staffing, clinical care guidelines, and supervisory support and motivation • Health information systems, including sources and quality of neonatal care data
Collaborator Contribution NEST 360 together with UNICEF and 4 African governments co-developed the tools used to assess facility readiness for neonatal care. Joy Lawn is PI for The NEST 360 complex evaluation. OMWaNA trial staff attended a Health Facilities Assessment Training in Nairobi in December 2019 with participants from Kenya, Malawi and Uganda and then used the same HFA tool for the OMWaNA sites
Impact Health Facility Assessments in OMWaNA sites NEST360 alliance is 16 organisations, 12 in Africa, working with 4 African governments to scale up small and sick newborn care. NEST360 is multi-disciplinary including neonatal clinicians, biomedical engineers, technicians, health systems experts, and individuals with expertise in market shaping and product development. LSHTM leads the complex evalaution for NEST360.
Start Year 2019
 
Description UNICEF Nurturing Care and Partnerships - Boniface Kakhowbe 
Organisation UNICEF
Country United States 
Sector Public 
PI Contribution N/A
Collaborator Contribution Technical oversight on ethics protocol - in particular on integrating interventions into community spaces
Impact Advised on overall study protocol
Start Year 2023
 
Title 'Let's get ready' school readiness intervention 
Description Under this grant we have designed and piloted a nine session school readiness intervention inclusive of disability specific material in Bangladesh, Nepal and Tanzania with involvement from ministry of health and education in each country. Each country has completed 2 months of piloting with two groups of 10 caregiver-child dyads. Materials are now being updated and context specific material has been added. 
Type Therapeutic Intervention - Psychological/Behavioural
Current Stage Of Development Initial development
Year Development Stage Completed 2023
Development Status Under active development/distribution
Impact During development process a scoping exercise of available educational material in each country was conducted allowing for a full review of school readiness materials. 
URL https://lshtm-my.sharepoint.com/:f:/g/personal/eidejcha_lshtm_ac_uk/EijGXgivPH1GiHUJvb0l8lMBnKzgAhKB...
 
Title Ubuntu Hub website 
Description Website for the Ubuntu Hub learning platform of care and support programmes for children with developmental disabilities and their families. 
Type Of Technology Webtool/Application 
Year Produced 2018 
Open Source License? Yes  
Impact Improved engagement of implemntation partners in LMICs. Improved reach and coverage of earky care and support for children and their families 
URL https://www.ubuntu-hub.org/
 
Description (6) Early child disability - The Voice of the Carer. Early Child Development. Silent emergency or Unique Opportunity. The 2021 RCPCH International Child Health Group Virtual Conference, 12th November 2021. Invited speaker. 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact (6) Early child disability - The Voice of the Carer. Early Child Development. Silent emergency or Unique Opportunity. The 2021 RCPCH International Child Health Group Virtual Conference, 12th November 2021. Facilitated group discussion/expert panel
Year(s) Of Engagement Activity 2021
URL https://www.rcpch.ac.uk/work-we-do/global-child-health
 
Description (Early care and support for young children with developmental disability and their caregivers in East Africa: Baby Ubuntu. TANN CJ African Regional Convening to Support Parents and Caregivers, Geneva, Switzerland, online. 21-23rd June 2022. Invited speaker 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Invited speaker at the African Regional Convening to Support Parents and Caregivers, Geneva, Switzerland, online. 21-23rd June 2022. Presenting on Early care and support for young children with developmental disability and their caregivers in East Africa: Baby Ubuntu.
Year(s) Of Engagement Activity 2022
URL https://www.afro.who.int/publications/african-regional-convening-support-parents-and-caregivers-june...
 
Description A Call to Action: Neonatal Encephalopathy in Low- & Middle-Income Country settings. 12th International Congress of the Union of European Neonatal & Perinatal Societies, Krakow, Poland. 2nd-4th September 2022. Invited speaker 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact (1) A Call to Action: Neonatal Encephalopathy in Low- & Middle-Income Country settings. TANN CJ 12th International Congress of the Union of European Neonatal & Perinatal Societies, Krakow, Poland. 2nd-4th September 2022. Invited speaker
Year(s) Of Engagement Activity 2022
URL https://www.mcascientificevents.eu/uenps/
 
Description Community of Practice for early care and support for children with developmental disabilies and their families 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Community of practice for professionals caring for children with developmental disabilities and their families. CoP has 523 members spanning more than 80 countries and territories.
Year(s) Of Engagement Activity 2022,2023
URL https://knowledge-gateway.org/working-in-community-children-cerebral-palsy
 
Description Neonatal Brain Health in Africa: Risks, Outcomes & Interventions. TANN CJ University of Trondheim, 12th May 2022. Invited speaker 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Invited speakerUniversity of Trondheim, 12th May 2022.
Year(s) Of Engagement Activity 2022
 
Description Policy makers and Ministry engagement - Bangladesh 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Sensitisation workshop with policy makers - officials from and education and health ministers a presentation and open discussion improved engagement between officials and the study team resulting in involvement from and approval from ministry on study activities.
Year(s) Of Engagement Activity 2022
 
Description Policy makers and Ministry engagement - Nepal 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Sensitisation workshop with policy makers - officials from centre for education and human resource development (CEHRD) and education and health ministers a presentation and open discussion improved engagement between officials and the study team resulting in involvement from and approval from ministry on study activities.
Year(s) Of Engagement Activity 2023
 
Description Policy makers and Ministry engagement - Tanzania 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact An information evening held in Dar Es Salaam Tanzania to discuss EN-REACH with key policymakers and stakeholders (members from UNICEF Tanzania, and the ministry of education) were invited. The overall aims and objectives of EN-REACH were presented followed by a discussion with stakeholders.
Year(s) Of Engagement Activity 2022
 
Description Supporting quality care for children with developmental disabilities during the pandemic: Challenges, solutions and silver linings. Tropical Health Education Trust conference 2022: Transformative pathways for a healthy recovery. 12th April 2022. 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Supporting quality care for children with developmental disabilities during the pandemic: Challenges, solutions and silver linings. Tropical Health Education Trust conference 2022: Transformative pathways for a healthy recovery. 12th April 2022.
Year(s) Of Engagement Activity 2022