EN-REACH: Every Newborn - Reach up Early Education intervention for All Children in Bangladesh, Nepal & Tanzania
Lead Research Organisation:
London Sch of Hygiene & Tropic. Medicine
Department Name: Epidemiology and Population Health
Abstract
The Sustainable Development Goals (SDGs) target the unfinished agenda for child survival with 5.3 million deaths of children before their fifth birthday. Importantly, the SDGs also reflect families' and national governments' aspirations that all children thrive as well as survive, meeting their full developmental potential. Unfortunately, children most at risk include those with neurodevelopmental delays and developmental disabilities like cerebral palsy, who are less likely than their peers to access pre-primary and primary school education. Whilst 48% of low- and middle-income countries (LMIC) countries have policies to address pre-primary education, there remain major gaps in provision, and major gaps for evidence-based, feasible approaches that are inclusive of children with NDD/D.
OPPORTUNITY: 'Reach Up' (a Jamaican home visiting programme) is one of the most evidence-based parenting programmes to support early child development and educational outcomes. Effects have been seen into adulthood, including increased earning power. Up until now 'Reach Up' has focused on children under 3 years of age and has not included those with severer developmental delays and disabilities. Effects on pre-school readiness children at the age of 5 years, an important factor in longer term educational achievement, have not to date been examined and is the focus of the 'Every Newborn-Reach Up Early Education Intervention For All Children' (EN-REACH) research
PARTNERSHIP: Our proposal builds on a well-established, equitable partnership since 2015 between three leading research institutions in Bangladesh, Nepal and Tanzania and the UK. We have a cohort of 2,000 children, now aged 2-3 years, in these three countries to compare accuracy and feasibility of range of early child development (ECD) assessment tools, known as the EN-SMILING study. EN-SMILING is partnering with the World Health Organization and UNICEF, to contribute to accurately measuring ECD and detecting disability early in children in LMICs and provides. It provides a timely opportunity to rigorously test more feasible ways to improve educational outcomes for all children, including those with disabilities.
OBJECTIVES:
The EN-REACH study has 3 objectives:
Objective 1: INNOVATION
To adapt the existing "Reach Up" parenting package to include those with disability and additional materials to support pre-school readiness for all children.
Objective 2: IMPACT EVALUATION
To conduct a 'quasi-experimental' research study to compare early child development markers for school readiness and other important development, health and well-being outcomes for children and their families between those receiving the adapted "Reach-Up" package, and those who did not.
Objective 3: IMPLEMENTATION:
To improve our understanding of important factors in implementing the new adapted 'Reach up' package to support integration of the package into routine child health systems if it is found to be effective.
IMPACT EXPECTED:
EN-REACH could have significant impact for children in these three high priority countries, both for education and care of children at risk of poor developmental outcomes, with strong links to national and global policy including MoHs WHO, UNICEF and many stakeholders. Direct research benefits will include identification and roll-out of testing tools to screen children for developmental delay and disability to ensure early detection of difficulties. This research would enable understanding of acceptability of the parenting package to be inclusive of children with disability more widely across Africa and Asia. Since the team have a 5-year track record of collaborative work, with strong site teams and have proven ability to deliver outputs and joint publications throughout 2020, ongoing effective work can be anticipated despite the COVID19 pandemic.
OPPORTUNITY: 'Reach Up' (a Jamaican home visiting programme) is one of the most evidence-based parenting programmes to support early child development and educational outcomes. Effects have been seen into adulthood, including increased earning power. Up until now 'Reach Up' has focused on children under 3 years of age and has not included those with severer developmental delays and disabilities. Effects on pre-school readiness children at the age of 5 years, an important factor in longer term educational achievement, have not to date been examined and is the focus of the 'Every Newborn-Reach Up Early Education Intervention For All Children' (EN-REACH) research
PARTNERSHIP: Our proposal builds on a well-established, equitable partnership since 2015 between three leading research institutions in Bangladesh, Nepal and Tanzania and the UK. We have a cohort of 2,000 children, now aged 2-3 years, in these three countries to compare accuracy and feasibility of range of early child development (ECD) assessment tools, known as the EN-SMILING study. EN-SMILING is partnering with the World Health Organization and UNICEF, to contribute to accurately measuring ECD and detecting disability early in children in LMICs and provides. It provides a timely opportunity to rigorously test more feasible ways to improve educational outcomes for all children, including those with disabilities.
OBJECTIVES:
The EN-REACH study has 3 objectives:
Objective 1: INNOVATION
To adapt the existing "Reach Up" parenting package to include those with disability and additional materials to support pre-school readiness for all children.
Objective 2: IMPACT EVALUATION
To conduct a 'quasi-experimental' research study to compare early child development markers for school readiness and other important development, health and well-being outcomes for children and their families between those receiving the adapted "Reach-Up" package, and those who did not.
Objective 3: IMPLEMENTATION:
To improve our understanding of important factors in implementing the new adapted 'Reach up' package to support integration of the package into routine child health systems if it is found to be effective.
IMPACT EXPECTED:
EN-REACH could have significant impact for children in these three high priority countries, both for education and care of children at risk of poor developmental outcomes, with strong links to national and global policy including MoHs WHO, UNICEF and many stakeholders. Direct research benefits will include identification and roll-out of testing tools to screen children for developmental delay and disability to ensure early detection of difficulties. This research would enable understanding of acceptability of the parenting package to be inclusive of children with disability more widely across Africa and Asia. Since the team have a 5-year track record of collaborative work, with strong site teams and have proven ability to deliver outputs and joint publications throughout 2020, ongoing effective work can be anticipated despite the COVID19 pandemic.
Technical Summary
Sustainable Development Goals (SDGs) include targets for the unfinished child survival agenda, given 5.3 million deaths of children before their 5th birthday, half in the neonatal period. SDG target 4.2 aims that, by 2030, all children access quality early child development (ECD), pre-primary education and are ready for primary education. However, children most at risk of poor educational outcomes, including those with neuro-developmental delay and disability (NDD/D), are less likely to access school, including pre-school services.
This proposal, co-led by Dr Jena Hamadani of iccdr,b and Prof Joy Lawn of LSHTM is called EN-REACH (Every Newborn - Reach up Early Education intervention for All CHildren) and will evaluate the impact and implementation of an adapted 'Reach Up' parenting program in in Bangladesh, Nepal & Tanzania with three objectives:
Objective 1: INNOVATION: To adapt 'Reach Up' parenting package for ECD for all children, inclusive of those with NDD and disability, in three diverse low-and middle- income countries (LMIC).
Objective 2: IMPACT EVALUATION: To use a quasi-experimental design to measure early child development markers for school readiness (cognition, psycho-social, etc), and child and caregiver quality of life after receiving the adapted "Reach-Up" package (delivered to 50% of the cohort, est:1000 children), compared to the other 50%.
Objective 3: IMPLEMENTATION: To undertake process evaluation of implementation, including examining barriers & enablers for uptake of adapted "Reach Up" package integrated into routine health systems.
EN-REACH aims to have significant impact for children and their families, at country level and on global policy for care of children with disabilities through links with global organisations such as UNICEF and WHO. This study will provide evidence on effectiveness and acceptability of a disability-inclusive and scalable parenting package in diverse Asian and African settings.
This proposal, co-led by Dr Jena Hamadani of iccdr,b and Prof Joy Lawn of LSHTM is called EN-REACH (Every Newborn - Reach up Early Education intervention for All CHildren) and will evaluate the impact and implementation of an adapted 'Reach Up' parenting program in in Bangladesh, Nepal & Tanzania with three objectives:
Objective 1: INNOVATION: To adapt 'Reach Up' parenting package for ECD for all children, inclusive of those with NDD and disability, in three diverse low-and middle- income countries (LMIC).
Objective 2: IMPACT EVALUATION: To use a quasi-experimental design to measure early child development markers for school readiness (cognition, psycho-social, etc), and child and caregiver quality of life after receiving the adapted "Reach-Up" package (delivered to 50% of the cohort, est:1000 children), compared to the other 50%.
Objective 3: IMPLEMENTATION: To undertake process evaluation of implementation, including examining barriers & enablers for uptake of adapted "Reach Up" package integrated into routine health systems.
EN-REACH aims to have significant impact for children and their families, at country level and on global policy for care of children with disabilities through links with global organisations such as UNICEF and WHO. This study will provide evidence on effectiveness and acceptability of a disability-inclusive and scalable parenting package in diverse Asian and African settings.
Organisations
- London Sch of Hygiene & Tropic. Medicine (Lead Research Organisation, Project Partner)
- ESRC (Co-funder)
- World Health Organization (WHO) (Collaboration)
- Foreign Commonwealth and Development Office (FCDO) (Collaboration)
- Rwanda Biomedical Center (Collaboration)
- Partners In Health (Collaboration)
- University of Maryland (Collaboration, Project Partner)
- University of Melbourne (Collaboration)
- UNICEF (Collaboration)
- Light For The World (Project Partner)
- Childrens Investment Fund Foundation (Project Partner)
- UNICEF (Global) (Project Partner)
- Nepal Medical Association (Project Partner)
- UNIVERSITY COLLEGE LONDON (Project Partner)
Publications
Agravat P
(2023)
Research funding for newborn health and stillbirths, 2011-20: a systematic analysis of levels and trends.
in The Lancet. Global health
Darmstadt GL
(2023)
WHO Global Position Paper and Implementation Strategy on kangaroo mother care call for fundamental reorganisation of maternal-infant care.
in Lancet (London, England)
Hayes J
(2023)
Mid-upper arm circumference (MUAC) measurement usage among children with disabilities: A systematic review.
in Nutrition and health
Katumba KR
(2023)
The economic burden incurred by families caring for a young child with developmental disability in Uganda.
in PLOS global public health
Kc A
(2023)
Recent Progress in Neonatal Global Health Quality Improvement.
in Clinics in perinatology
KC A
(2024)
Co-designing interventions for a continuum of care for children with cerebral palsy
in Developmental Medicine & Child Neurology
| Title | Let Hope Grow: Communicating family experiences of caring for young children with disability |
| Description | Let Hope Grow is a collaborative project between researchers, artists and families to raise public awareness around families experience of child disability after newborn conditions in Africa |
| Type Of Art | Artistic/Creative Exhibition |
| Year Produced | 2020 |
| Impact | Highly positive review of the art exhibition in Lancet Child & Adolescent Health |
| URL | https://blogs.lshtm.ac.uk/marchblog/2019/04/17/let-hope-grow-advocating-for-children-with-disability... |
| Description | Contributed to the development of Rwanda national policy on disability rehabilitation |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Impact | Meeting the needs of young children with developmental disabilities intergrated into national policies of disability rehabilitation |
| Description | Development of a WHO global programme for care and support of children with developmental disabilities and their caregivers |
| Geographic Reach | Multiple continents/international |
| Policy Influence Type | Contribution to new or improved professional practice |
| Description | Dissemination Event with Ministry of Education |
| Geographic Reach | National |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Description | Meeting with Centre for Human Resource Development and Ministry of Education |
| Geographic Reach | National |
| Policy Influence Type | Contribution to new or improved professional practice |
| Impact | Introduction of new measurement tool to identify school readiness in children under 5 in Nepal. |
| Description | Memorandum of Understanding between Mnistry of Health Uganda and LSHTM on early care and support for neonatal survivors with developmental disability |
| Geographic Reach | Africa |
| Policy Influence Type | Contribution to a national consultation/review |
| Impact | Renewed government committment t early care and support for children with disability and their families |
| Description | Community scale-up of the Baby Ubuntu Early Intervention Programme in Uganda |
| Amount | £93,000 (GBP) |
| Organisation | Tropical Health & Education Trust (THET) |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 07/2021 |
| End | 05/2022 |
| Description | Developing stigma module for participatory training programmes for caregivers of children with cerebral palsy |
| Amount | € 47,000 (EUR) |
| Organisation | Lillian og Dan Finks Fond |
| Sector | Charity/Non Profit |
| Country | Denmark |
| Start | 03/2018 |
| End | 09/2019 |
| Description | Developing the WHO Caregiver Skills Training 0-3 years programme for young children with developmental disability |
| Amount | $48,000 (USD) |
| Organisation | World Health Organization (WHO) |
| Sector | Public |
| Country | Switzerland |
| Start | 07/2022 |
| End | 06/2023 |
| Description | Evaluation of the Ubuntu programmes for early child disability in East Africa. A cluster randomized controlled trial |
| Amount | $1,098,000 (CAD) |
| Organisation | Partners In Health |
| Sector | Charity/Non Profit |
| Country | United States |
| Start | 05/2023 |
| End | 05/2026 |
| Description | Funding for Every Newborn - Reach up Early Education for All Children in Bangladesh |
| Amount | £400,000 (GBP) |
| Funding ID | GR-075636 |
| Organisation | Porticus |
| Sector | Charity/Non Profit |
| Country | Global |
| Start | 01/2021 |
| End | 12/2023 |
| Description | Partnership for Accelerating Newborn Survival Across Africa (PANSAA) |
| Amount | £691,984 (GBP) |
| Funding ID | UKRI685 |
| Organisation | United Kingdom Research and Innovation |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2025 |
| End | 03/2028 |
| Description | Technical Advisor to Bill & Melinda Gates Foundation - Neuroprotection Consultant |
| Amount | £68,510 (GBP) |
| Organisation | Bill and Melinda Gates Foundation |
| Sector | Charity/Non Profit |
| Country | United States |
| Start | 09/2022 |
| End | 10/2024 |
| Description | Transitioning a Bundle of Early Detection, Care and Support for Children with Developmental Disabilities in Rwanda |
| Amount | $1,093,979 (CAD) |
| Organisation | London School of Hygiene and Tropical Medicine (LSHTM) |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 06/2023 |
| End | 06/2026 |
| Description | Dr Kate Milner -Neurodevelopmental Paediatric Advisor |
| Organisation | University of Melbourne |
| Country | Australia |
| Sector | Academic/University |
| PI Contribution | Sharing of measurement toolbox for ages 4-6 years old - and technical expertise on designing educational materials to be inclusive of children with disabilities. |
| Collaborator Contribution | Technical expertise in assessing neurodevelopmental disability in particular assessing vision and hearing in low resource settings. General oversight and advice on intervention study design and engaging parents of children with disabilities. |
| Impact | Design of study and ethics protocol. |
| Start Year | 2018 |
| Description | Dr Maureen Black - Chair Technical Advisory Group |
| Organisation | University of Maryland |
| Country | United States |
| Sector | Academic/University |
| PI Contribution | N/A |
| Collaborator Contribution | Provided oversight and technical advise on overall ethics protocol - in particular on measurement of early child development. |
| Impact | Refined ethics protocol Chaired 1st TAG meetingM March 2023 |
| Start Year | 2022 |
| Description | FCDO PENDA consortium evaluations disability interventions |
| Organisation | Foreign Commonwealth and Development Office (FCDO) |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | The PENDA consortium is collaborating with our team to support the evaluation of our programme of early care and support for young children with developmental disability and their caregivers in Rwanda |
| Collaborator Contribution | Funding contribution towards data collection, supervisiom, management, analysis and dissemination |
| Impact | Cluster randomised trial with embedded process and economic evaluations underway. Policy change in Rwanda relating to disability and rehabilitation for children |
| Start Year | 2023 |
| Description | The Pediatric Developmental Clinic/Baby Ubuntu Programme Rwanda collaboration: Partners in Health |
| Organisation | Partners In Health |
| Country | United States |
| Sector | Charity/Non Profit |
| PI Contribution | Providing expertise in clinical trials, process and economic evaluation |
| Collaborator Contribution | Implementation partner for the programme and evaluation |
| Impact | Evaluating a programme of early assessment, care and support for children at risk of developmental disabilities in Rwanda through a cluster randomised trial inclusive of process and economic evaluations |
| Start Year | 2023 |
| Description | The Pediatric Developmental Clinic/Baby Ubuntu Programme Rwanda collaboration: Partners in Health |
| Organisation | Rwanda Biomedical Center |
| Country | Rwanda |
| Sector | Hospitals |
| PI Contribution | Providing expertise in clinical trials, process and economic evaluation |
| Collaborator Contribution | Implementation partner for the programme and evaluation |
| Impact | Evaluating a programme of early assessment, care and support for children at risk of developmental disabilities in Rwanda through a cluster randomised trial inclusive of process and economic evaluations |
| Start Year | 2023 |
| Description | UNICEF Nurturing Care and Partnerships - Boniface Kakhowbe |
| Organisation | UNICEF |
| Country | United States |
| Sector | Public |
| PI Contribution | N/A |
| Collaborator Contribution | Technical oversight on ethics protocol - in particular on integrating interventions into community spaces |
| Impact | Advised on overall study protocol |
| Start Year | 2023 |
| Description | WHO consultancy to develop a global programme of Caregiver Skills Training for Infants & Young Children with developmental disabilities |
| Organisation | World Health Organization (WHO) |
| Country | Switzerland |
| Sector | Public |
| PI Contribution | Contributing content to this new WHO global training programme for young children with developmental disabilties and their caregivers. Our research team is contributing content specifically to meet the needs for children with cerebral palsy and other motor impairments. |
| Collaborator Contribution | WHO are leading on this initiative |
| Impact | A field test version of the programme will be launched later in 2024 |
| Start Year | 2022 |
| Title | 'Let's get ready' school readiness intervention |
| Description | Under this grant we have designed and piloted a nine session school readiness intervention inclusive of disability specific material in Bangladesh, Nepal and Tanzania with involvement from ministry of health and education in each country. Each country has completed 2 months of piloting with two groups of 10 caregiver-child dyads. Materials are now being updated and context specific material has been added. |
| Type | Therapeutic Intervention - Psychological/Behavioural |
| Current Stage Of Development | Initial development |
| Year Development Stage Completed | 2023 |
| Development Status | Under active development/distribution |
| Impact | During development process a scoping exercise of available educational material in each country was conducted allowing for a full review of school readiness materials. |
| URL | https://lshtm-my.sharepoint.com/:f:/g/personal/eidejcha_lshtm_ac_uk/EijGXgivPH1GiHUJvb0l8lMBnKzgAhKB... |
| Title | Ubuntu Hub website |
| Description | Website for the Ubuntu Hub learning platform of care and support programmes for children with developmental disabilities and their families. |
| Type Of Technology | Webtool/Application |
| Year Produced | 2018 |
| Open Source License? | Yes |
| Impact | Improved engagement of implemntation partners in LMICs. Improved reach and coverage of earky care and support for children and their families |
| URL | https://www.ubuntu-hub.org/ |
| Description | (Early care and support for young children with developmental disability and their caregivers in East Africa: Baby Ubuntu. TANN CJ African Regional Convening to Support Parents and Caregivers, Geneva, Switzerland, online. 21-23rd June 2022. Invited speaker |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited speaker at the African Regional Convening to Support Parents and Caregivers, Geneva, Switzerland, online. 21-23rd June 2022. Presenting on Early care and support for young children with developmental disability and their caregivers in East Africa: Baby Ubuntu. |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://www.afro.who.int/publications/african-regional-convening-support-parents-and-caregivers-june... |
| Description | A Call to Action: Neonatal Encephalopathy in Low- & Middle-Income Country settings. 12th International Congress of the Union of European Neonatal & Perinatal Societies, Krakow, Poland. 2nd-4th September 2022. Invited speaker |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | (1) A Call to Action: Neonatal Encephalopathy in Low- & Middle-Income Country settings. TANN CJ 12th International Congress of the Union of European Neonatal & Perinatal Societies, Krakow, Poland. 2nd-4th September 2022. Invited speaker |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://www.mcascientificevents.eu/uenps/ |
| Description | CHILDREN WITH DEVELOPMENTAL DELAY AT PRESCHOOL YEARS IN RURAL BANGLADESH: A DESCRIPTIVE ANALYSIS |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussion on the importance of early detection of developmental delays, referral pathways and targeted interventions which involved discussion with many practitioners working in this area. |
| Year(s) Of Engagement Activity | 2023 |
| Description | Community of Practice for early care and support for children with developmental disabilies and their families |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Community of practice for professionals caring for children with developmental disabilities and their families. CoP has 523 members spanning more than 80 countries and territories. |
| Year(s) Of Engagement Activity | 2022,2023 |
| URL | https://knowledge-gateway.org/working-in-community-children-cerebral-palsy |
| Description | Every New-born Reach up Early Education Intervention for All children(EN-REACH): A cluster randomised trial in Bangladesh, Nepal and Tanzania of a parent group intervention for school |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Describing risk factors for school readiness at age 5 which involved lively debate around key areas for intervention design |
| Year(s) Of Engagement Activity | 2023 |
| Description | Implementation Toolkit for Small and Sick Newborn care website with UNICEF, and reach of 55,000 unique users across >190 countries |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The Implementation Toolkit for Small and Sick Newborn Care was launched by NEST360 and UNICEF on November 17, 2021, World Prematurity Day and the event was co chaired by Prof Joy Lawn, who was the lead developer for NEST360 in partnership with UNICEF. The website has a with a brand neutral domain name (www.newborntoolkit.org) The primary audience for the Toolkit is implementers at national, regional, and facility levels with varying roles: doctors, nurses, biomedical engineers, policymakers, implementers, innovators, and researchers, among others. The Toolkit was co-designed with >300 implementers from all over the world, and brings together >1000 readings, tools, and implementation learnings that support WHO norms and standards to advance scale up of small and sick newborn care. It includes materials from many organizations including: data tools in open source, education resources, device landscaping and TPPs, and other global public goods. The Toolkit website has been accessed by >55000 users from >190 countries during 2024 |
| Year(s) Of Engagement Activity | 2021,2022,2023,2024,2025 |
| URL | http://www.newborntoolkit.org |
| Description | Neonatal Brain Health in Africa: Risks, Outcomes & Interventions. TANN CJ University of Trondheim, 12th May 2022. Invited speaker |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited speakerUniversity of Trondheim, 12th May 2022. |
| Year(s) Of Engagement Activity | 2022 |
| Description | Policy makers and Ministry engagement - Bangladesh |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Sensitisation workshop with policy makers - officials from and education and health ministers a presentation and open discussion improved engagement between officials and the study team resulting in involvement from and approval from ministry on study activities. |
| Year(s) Of Engagement Activity | 2022 |
| Description | Policy makers and Ministry engagement - Nepal |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Sensitisation workshop with policy makers - officials from centre for education and human resource development (CEHRD) and education and health ministers a presentation and open discussion improved engagement between officials and the study team resulting in involvement from and approval from ministry on study activities. |
| Year(s) Of Engagement Activity | 2023 |
| Description | Policy makers and Ministry engagement - Tanzania |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | An information evening held in Dar Es Salaam Tanzania to discuss EN-REACH with key policymakers and stakeholders (members from UNICEF Tanzania, and the ministry of education) were invited. The overall aims and objectives of EN-REACH were presented followed by a discussion with stakeholders. |
| Year(s) Of Engagement Activity | 2022 |
| Description | Presentation to the annual European Society for Disability Research conference in Lausanne |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | In this presentation (Let's Grow Together: Lessons from the Field in Malawi) I shared some of the some of the main results from the first stage of the project which used a community-based participatory research (CBPR) approach to gather the different experiences of parents who have children with disabilities in 10 villages. This approach involves a commitment to sharing power and resources and working towards beneficial outcomes for all participants, especially communities. CBPR, as a partnership approach, aims to equitably involve community members, organisational representatives and researchers, who contribute expertise and share decision-making and ownership. A CBPR training workshop for the volunteer peer researchers from within community-based child care centres community and were trained to take part in interviewing their peers individually and within focus groups about their peers' experiences of early childhood development at the time. This included asking about the challenges, tensions, successes and views related to educational inclusion of their children into the centres. This training stemmed from the CBPR ethical guidelines. The volunteer peer researchers were able to carry out a total of 9 focus group discussions with parents of children with disabilities and a further 9 recordings with volunteer pre-school teachers at 9 community-based community centres. I will discuss the process of how the transcripts were coded by the research team in collaboration with the peer researchers. Finally, I will reflect on whether we were able to maintain a power-sharing and balance whilst utilising this methodology and make some suggestions pn how it could be used in disability research in the global south. |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://alter-asso.org/lausanne-conference-2017/?lang=en |
| Description | Supporting quality care for children with developmental disabilities during the pandemic: Challenges, solutions and silver linings. Tropical Health Education Trust conference 2022: Transformative pathways for a healthy recovery. 12th April 2022. |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Supporting quality care for children with developmental disabilities during the pandemic: Challenges, solutions and silver linings. Tropical Health Education Trust conference 2022: Transformative pathways for a healthy recovery. 12th April 2022. |
| Year(s) Of Engagement Activity | 2022 |
| Description | WHO Meeting: Follow Up Care for Small Sick Newborns |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Geneva, June 2024 - presented baseline EN-REACH results and intervention design and materials. Feedback from WHO committee and participants. Noted by practitioners working in LMICs, major gap for supportive interventions for families post discharge. |
| Year(s) Of Engagement Activity | 2024 |
| Description | We Thought Assessment Would Include Medicines": En-Smiling Qualitative Study of Routine Neurodevelopmental Assessments for Children in Bangladesh, Nepal and Tanzania |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation at the International Developmental Peadiatrics Association in South Africa. Discussing importance of targeted routine measurement and the key barriers and enablers to assessment from the family perspective which involved interesting in depth discussion on the need for targeted comprehensive developmental screening. |
| Year(s) Of Engagement Activity | 2023 |
