MICA: Partnership for Assessment and Investigation of Neuropathic Pain: Studies Tracking Outcomes, Risks and Mechanisms (PAINSTORM).

Lead Research Organisation: University of Oxford
Department Name: Clinical Neurosciences

Abstract

This consortium brings together experts in Neuropathic pain (NeuP). NeuP affects 8% of the population and is caused by damage to the sensory nervous system (through conditions such as diabetes, chemotherapy and HIV). It is increasingly common as a consequence of the ageing population, increasing levels of diabetes and enhanced cancer survival.

NeuP has a major negative impact on quality of life. Unfortunately current management options are inadequate as they are only effective in a small subgroup of patients. Additionally, whilst NeuP impact is multidimensional, most research and clinical management in this area is separate rather than being interdisciplinary. They over emphasise pharmacological approaches, often associated with side effects, rather than taking a more holistic approach addressing the complex social and psychological aspects of NeuP.

To rectify this situation we need to understand the mechanisms driving NeuP in patients. In order to do so, PAINSTORM will use a broad range of approaches cutting across traditional disciplinary boundaries, to uncover the causes of NeuP and understand how they interact.

This inter-disciplinary collaboration will include people living with NeuP (embedding patient and public involvement), scientists from diverse clinical and scientific backgrounds, and industry expertise to help translate the research into effective, multifaceted interventions.

Our focus will be on studying people at risk of NeuP and following their progress over time. We will use a number of established cohorts, as well as recruiting new participants, and harmonise outcomes with national scale community studies.

A key question is understanding why some people are severely impacted by NeuP whilst others with a similar pattern of nerve damage are not. Hence we will identify the personal characteristics (such as age, gender and ethnicity), environmental/social and clinical factors which determine NeuP risk. We will identify and validate novel genetic risk factors for NeuP.

Tissue samples and patient-derived cells will be used to validate molecular pathways contributing to chronic NeuP and help develop blood biomarkers. These samples will be stored and made available to other researchers via a biobank. We will optimise measures to assess NeuP, including sensory profiling, application of remote monitoring and assessment of psychosocial factors to understand the impact of pain on daily activities (from self-care to work) and important conditions that are often associated with chronic pain such as depression, anxiety and poor sleep.

We will use innovative technologies, including brain, spinal cord and nerve imaging and electrophysiology, to directly assess the factors that drive NeuP. We will integrate this multi-dimensional dataset to understand the interaction between risk and protective factors. We will develop biomarkers, as a means to measure pain and how it changes over time, which can be applied to clinical practice and drug trials. We aim to improve targeting of existing therapies, as well as identifying and prioritising novel treatment targets.

We will engage key stakeholder groups including health professionals, people living with NeuP and industry at the outset and throughout PAINSTORM. Results will be widely disseminated through development of accessible databases, lay summaries, an accessible biobank and ongoing training of scientists and clinicians both within and external to our consortium to enhance impact. Our aim is that PAINSTORM should transform lives through our understanding and future interdisciplinary management of NeuP.

Technical Summary

Neuropathic pain (NeuP) affects 8% of the population and prevalence is increasing due to the aging population, diabetes epidemic and enhanced cancer survival. It has a major negative impact on quality of life and current management options are inadequate due to poor efficacy and tolerability. PAINSTORM will bring together people living with NeuP, academics from diverse backgrounds, and industry in order to apply an inter-disciplinary approach to improve understanding and management of NeuP. Our focus will be prospective studies of people at risk of NeuP using established as well as new cohorts and harmonising outcomes with national scale community studies. We will identify the demographic, environmental/psychosocial and clinical factors which determine NeuP risk (both vulnerability and protective factors). We will validate and find novel genetic risk factors for NeuP. Tissue samples and patient-derived cells will be used to validate molecular pathways contributing to chronic NeuP and help develop blood biomarkers. We will optimise measures to assess NeuP in a person-centred manner, including sensory profiling, remote monitoring and assessment of psychosocial factors to understand the impact of pain on daily activities (from self-care to work) and important co-morbidities such as depression, anxiety and poor sleep. Functional brain and neural imaging as well as electrophysiology will be used to determine pathophysiological processes underlying NeuP. This multi-dimensional dataset will be integrated in order to understand the interaction between risk and protective factors, develop composite biomarkers, identify and prioritise novel treatment targets as well as improve the targeting of existing therapies. We will engage key stakeholder groups including health professionals, people living with NeuP and industry at the outset and throughout PAINSTORM. Our aim is that PAINSTORM will transform lives through our improved understanding and future management of NeuP.
 
Title PAINSTORM logo 
Description The PAINSTORM logo was developed by Emma Rankin and Angela Gillies, MFA candidates in Art, Science and Visual Thinking from the Duncan of Jordanstone College of Art & Design at the University of Dundee. The logo aims to represent not only pain, but also hope: the image begins from a central point that evokes a tangle of nerve endings, and unwinds towards a representation of lights, which will call to mind the journey from illness to recovery. 
Type Of Art Artwork 
Year Produced 2021 
Impact The logo gives PAINSTORM a distinct, recognisable identity, which is valuable for public engagement. 
 
Description Lead of the sciatica working group commissioned by the Neuropathic Pain Special Interest Group of the International Association for the Study of Pain
Geographic Reach Multiple continents/international 
Policy Influence Type Membership of a guideline committee
 
Description FORECAST: Advanced Pain Discovery Platform
Amount £57,822,179 (GBP)
Funding ID MR/W027003/1 
Organisation United Kingdom Research and Innovation 
Sector Public
Country United Kingdom
Start 04/2022 
End 05/2025
 
Description Collaboration between FORECAST and ALLEVIATE 
Organisation University of Dundee
Country United Kingdom 
Sector Academic/University 
PI Contribution we will on-board our dataset to the APDP ALLEVIATE hub.
Collaborator Contribution the Alleviate hub will curate our FORECAST dataset
Impact no output yet
Start Year 2022
 
Description Collaboration between FORECAST and PAINSTORM 
Organisation University of Oxford
Country United Kingdom 
Sector Academic/University 
PI Contribution collaboration between FORECAST and PAINSTORM based on data sharing and harmonisation of cohorts. Also overlap of PPI activities.
Collaborator Contribution collaboration between FORECAST and PAINSTORM based on data sharing and harmonisation of cohorts. Also overlap of PPI activities.
Impact Multidisciplinary collaboration, including physiotherapists, neurologists, spinal orthopaedic surgeons, clincial psychologists, bioinformaticians, MR physicists, biomedical scientists, analytical chemists, patient insight partners
Start Year 2022
 
Description Collaboration between PAINSTORM and Alleviate 
Organisation University of Dundee
Country United Kingdom 
Sector Academic/University 
PI Contribution We will contribute the PAINSTORM data, in an anonymised format, to the Alleviate project, as well as our expertise on data related to neuropathic pain. Several PAINSTORM members are also members of the Alleviate consortium.
Collaborator Contribution Alleviate is the APDP Pain Research Data Hub. Alleviate will transform UK pain datasets, including the PAINSTORM dataset, to be Findable, Accessible, Interoperable and Reusable (FAIR), and provide expert data engineering, to enhance responsible, timely and trustworthy analysis by researchers and innovators.
Impact This is a multi-disciplinary collaboration, involving clinicians, psychologists, geneticists, and data scientists.
Start Year 2021
 
Description Collaboration between PAINSTORM and CRISPP consortium 
Organisation Bath Spa University
Country United Kingdom 
Sector Academic/University 
PI Contribution Professor Geert Crombez is on the advisory board for the UKRI/Versus Arthritis funded APDP CRISPP consortium led by Professor Ed Keogh. Professor Crombez along with other members of PAINSTORM will work with the CRISPP consortium to harmonize psychosocial measurement/models where possible.
Collaborator Contribution Findings from the CRISPP consortium will be drawn upon particularly in the psychosocial work package of PAINSTORM to further develop or conceptual models and assessment approaches.
Impact This collaboration is multidisciplinary and includes clinicians, psychologists, social scientists, and data scientists.
Start Year 2021
 
Description Collaboration between PAINSTORM and CRISPP consortium 
Organisation Cardiff University
Country United Kingdom 
Sector Academic/University 
PI Contribution Professor Geert Crombez is on the advisory board for the UKRI/Versus Arthritis funded APDP CRISPP consortium led by Professor Ed Keogh. Professor Crombez along with other members of PAINSTORM will work with the CRISPP consortium to harmonize psychosocial measurement/models where possible.
Collaborator Contribution Findings from the CRISPP consortium will be drawn upon particularly in the psychosocial work package of PAINSTORM to further develop or conceptual models and assessment approaches.
Impact This collaboration is multidisciplinary and includes clinicians, psychologists, social scientists, and data scientists.
Start Year 2021
 
Description Collaboration between PAINSTORM and CRISPP consortium 
Organisation Keele University
Country United Kingdom 
Sector Academic/University 
PI Contribution Professor Geert Crombez is on the advisory board for the UKRI/Versus Arthritis funded APDP CRISPP consortium led by Professor Ed Keogh. Professor Crombez along with other members of PAINSTORM will work with the CRISPP consortium to harmonize psychosocial measurement/models where possible.
Collaborator Contribution Findings from the CRISPP consortium will be drawn upon particularly in the psychosocial work package of PAINSTORM to further develop or conceptual models and assessment approaches.
Impact This collaboration is multidisciplinary and includes clinicians, psychologists, social scientists, and data scientists.
Start Year 2021
 
Description Collaboration between PAINSTORM and CRISPP consortium 
Organisation Royal Holloway, University of London
Country United Kingdom 
Sector Academic/University 
PI Contribution Professor Geert Crombez is on the advisory board for the UKRI/Versus Arthritis funded APDP CRISPP consortium led by Professor Ed Keogh. Professor Crombez along with other members of PAINSTORM will work with the CRISPP consortium to harmonize psychosocial measurement/models where possible.
Collaborator Contribution Findings from the CRISPP consortium will be drawn upon particularly in the psychosocial work package of PAINSTORM to further develop or conceptual models and assessment approaches.
Impact This collaboration is multidisciplinary and includes clinicians, psychologists, social scientists, and data scientists.
Start Year 2021
 
Description Collaboration between PAINSTORM and CRISPP consortium 
Organisation University College London
Country United Kingdom 
Sector Academic/University 
PI Contribution Professor Geert Crombez is on the advisory board for the UKRI/Versus Arthritis funded APDP CRISPP consortium led by Professor Ed Keogh. Professor Crombez along with other members of PAINSTORM will work with the CRISPP consortium to harmonize psychosocial measurement/models where possible.
Collaborator Contribution Findings from the CRISPP consortium will be drawn upon particularly in the psychosocial work package of PAINSTORM to further develop or conceptual models and assessment approaches.
Impact This collaboration is multidisciplinary and includes clinicians, psychologists, social scientists, and data scientists.
Start Year 2021
 
Description Collaboration between PAINSTORM and CRISPP consortium 
Organisation University of Bath
Country United Kingdom 
Sector Academic/University 
PI Contribution Professor Geert Crombez is on the advisory board for the UKRI/Versus Arthritis funded APDP CRISPP consortium led by Professor Ed Keogh. Professor Crombez along with other members of PAINSTORM will work with the CRISPP consortium to harmonize psychosocial measurement/models where possible.
Collaborator Contribution Findings from the CRISPP consortium will be drawn upon particularly in the psychosocial work package of PAINSTORM to further develop or conceptual models and assessment approaches.
Impact This collaboration is multidisciplinary and includes clinicians, psychologists, social scientists, and data scientists.
Start Year 2021
 
Description Collaboration between PAINSTORM and CRISPP consortium 
Organisation University of Bristol
Country United Kingdom 
Sector Academic/University 
PI Contribution Professor Geert Crombez is on the advisory board for the UKRI/Versus Arthritis funded APDP CRISPP consortium led by Professor Ed Keogh. Professor Crombez along with other members of PAINSTORM will work with the CRISPP consortium to harmonize psychosocial measurement/models where possible.
Collaborator Contribution Findings from the CRISPP consortium will be drawn upon particularly in the psychosocial work package of PAINSTORM to further develop or conceptual models and assessment approaches.
Impact This collaboration is multidisciplinary and includes clinicians, psychologists, social scientists, and data scientists.
Start Year 2021
 
Description Collaboration between PAINSTORM and CRISPP consortium 
Organisation University of the West of England
Country United Kingdom 
Sector Academic/University 
PI Contribution Professor Geert Crombez is on the advisory board for the UKRI/Versus Arthritis funded APDP CRISPP consortium led by Professor Ed Keogh. Professor Crombez along with other members of PAINSTORM will work with the CRISPP consortium to harmonize psychosocial measurement/models where possible.
Collaborator Contribution Findings from the CRISPP consortium will be drawn upon particularly in the psychosocial work package of PAINSTORM to further develop or conceptual models and assessment approaches.
Impact This collaboration is multidisciplinary and includes clinicians, psychologists, social scientists, and data scientists.
Start Year 2021
 
Description Collaboration between PAINSTORM and DOLORisk 
Organisation Aarhus University
Country Denmark 
Sector Academic/University 
PI Contribution We will follow up some of the cross-sectional cohorts recruited in DOLORisk, a Horizon 2020-funded project (2015-2020). The longitudinal design of PAINSTORM will allow us to expand the understanding of neuropathic pain that was achieved in the DOLORisk project and draw new conclusions on risk and protective factors.
Collaborator Contribution Some baseline phenotypic data will be provided by DOLORisk and we will aim to follow up these participants after 2 years and 5 years. We will also be able to use the genetic data generated in DOLORisk to add to the PAINSTORM cohorts and replicate these results. The DOLORisk study protocol forms the basis of the PAINSTORM common protocol for deep phenotyping of participants.
Impact It is multi-disciplinary including clinicians, geneticists and psychologists.
Start Year 2021
 
Description Collaboration between PAINSTORM and DOLORisk 
Organisation Aarhus University Hospital
Country Denmark 
Sector Hospitals 
PI Contribution We will follow up some of the cross-sectional cohorts recruited in DOLORisk, a Horizon 2020-funded project (2015-2020). The longitudinal design of PAINSTORM will allow us to expand the understanding of neuropathic pain that was achieved in the DOLORisk project and draw new conclusions on risk and protective factors.
Collaborator Contribution Some baseline phenotypic data will be provided by DOLORisk and we will aim to follow up these participants after 2 years and 5 years. We will also be able to use the genetic data generated in DOLORisk to add to the PAINSTORM cohorts and replicate these results. The DOLORisk study protocol forms the basis of the PAINSTORM common protocol for deep phenotyping of participants.
Impact It is multi-disciplinary including clinicians, geneticists and psychologists.
Start Year 2021
 
Description Collaboration between PAINSTORM and DOLORisk 
Organisation Imperial College London
Country United Kingdom 
Sector Academic/University 
PI Contribution We will follow up some of the cross-sectional cohorts recruited in DOLORisk, a Horizon 2020-funded project (2015-2020). The longitudinal design of PAINSTORM will allow us to expand the understanding of neuropathic pain that was achieved in the DOLORisk project and draw new conclusions on risk and protective factors.
Collaborator Contribution Some baseline phenotypic data will be provided by DOLORisk and we will aim to follow up these participants after 2 years and 5 years. We will also be able to use the genetic data generated in DOLORisk to add to the PAINSTORM cohorts and replicate these results. The DOLORisk study protocol forms the basis of the PAINSTORM common protocol for deep phenotyping of participants.
Impact It is multi-disciplinary including clinicians, geneticists and psychologists.
Start Year 2021
 
Description Collaboration between PAINSTORM and DOLORisk 
Organisation Lund University
Country Sweden 
Sector Academic/University 
PI Contribution We will follow up some of the cross-sectional cohorts recruited in DOLORisk, a Horizon 2020-funded project (2015-2020). The longitudinal design of PAINSTORM will allow us to expand the understanding of neuropathic pain that was achieved in the DOLORisk project and draw new conclusions on risk and protective factors.
Collaborator Contribution Some baseline phenotypic data will be provided by DOLORisk and we will aim to follow up these participants after 2 years and 5 years. We will also be able to use the genetic data generated in DOLORisk to add to the PAINSTORM cohorts and replicate these results. The DOLORisk study protocol forms the basis of the PAINSTORM common protocol for deep phenotyping of participants.
Impact It is multi-disciplinary including clinicians, geneticists and psychologists.
Start Year 2021
 
Description Collaboration between PAINSTORM and DOLORisk 
Organisation National Institute of Health and Medical Research (INSERM)
Country France 
Sector Academic/University 
PI Contribution We will follow up some of the cross-sectional cohorts recruited in DOLORisk, a Horizon 2020-funded project (2015-2020). The longitudinal design of PAINSTORM will allow us to expand the understanding of neuropathic pain that was achieved in the DOLORisk project and draw new conclusions on risk and protective factors.
Collaborator Contribution Some baseline phenotypic data will be provided by DOLORisk and we will aim to follow up these participants after 2 years and 5 years. We will also be able to use the genetic data generated in DOLORisk to add to the PAINSTORM cohorts and replicate these results. The DOLORisk study protocol forms the basis of the PAINSTORM common protocol for deep phenotyping of participants.
Impact It is multi-disciplinary including clinicians, geneticists and psychologists.
Start Year 2021
 
Description Collaboration between PAINSTORM and DOLORisk 
Organisation Technion - Israel Institute of Technology
Country Israel 
Sector Academic/University 
PI Contribution We will follow up some of the cross-sectional cohorts recruited in DOLORisk, a Horizon 2020-funded project (2015-2020). The longitudinal design of PAINSTORM will allow us to expand the understanding of neuropathic pain that was achieved in the DOLORisk project and draw new conclusions on risk and protective factors.
Collaborator Contribution Some baseline phenotypic data will be provided by DOLORisk and we will aim to follow up these participants after 2 years and 5 years. We will also be able to use the genetic data generated in DOLORisk to add to the PAINSTORM cohorts and replicate these results. The DOLORisk study protocol forms the basis of the PAINSTORM common protocol for deep phenotyping of participants.
Impact It is multi-disciplinary including clinicians, geneticists and psychologists.
Start Year 2021
 
Description Collaboration between PAINSTORM and DOLORisk 
Organisation University of Dundee
Country United Kingdom 
Sector Academic/University 
PI Contribution We will follow up some of the cross-sectional cohorts recruited in DOLORisk, a Horizon 2020-funded project (2015-2020). The longitudinal design of PAINSTORM will allow us to expand the understanding of neuropathic pain that was achieved in the DOLORisk project and draw new conclusions on risk and protective factors.
Collaborator Contribution Some baseline phenotypic data will be provided by DOLORisk and we will aim to follow up these participants after 2 years and 5 years. We will also be able to use the genetic data generated in DOLORisk to add to the PAINSTORM cohorts and replicate these results. The DOLORisk study protocol forms the basis of the PAINSTORM common protocol for deep phenotyping of participants.
Impact It is multi-disciplinary including clinicians, geneticists and psychologists.
Start Year 2021
 
Description Collaboration between PAINSTORM and DOLORisk 
Organisation University of Ghent
Country Belgium 
Sector Academic/University 
PI Contribution We will follow up some of the cross-sectional cohorts recruited in DOLORisk, a Horizon 2020-funded project (2015-2020). The longitudinal design of PAINSTORM will allow us to expand the understanding of neuropathic pain that was achieved in the DOLORisk project and draw new conclusions on risk and protective factors.
Collaborator Contribution Some baseline phenotypic data will be provided by DOLORisk and we will aim to follow up these participants after 2 years and 5 years. We will also be able to use the genetic data generated in DOLORisk to add to the PAINSTORM cohorts and replicate these results. The DOLORisk study protocol forms the basis of the PAINSTORM common protocol for deep phenotyping of participants.
Impact It is multi-disciplinary including clinicians, geneticists and psychologists.
Start Year 2021
 
Description Collaboration between PAINSTORM and DOLORisk 
Organisation University of Kiel
Country Germany 
Sector Academic/University 
PI Contribution We will follow up some of the cross-sectional cohorts recruited in DOLORisk, a Horizon 2020-funded project (2015-2020). The longitudinal design of PAINSTORM will allow us to expand the understanding of neuropathic pain that was achieved in the DOLORisk project and draw new conclusions on risk and protective factors.
Collaborator Contribution Some baseline phenotypic data will be provided by DOLORisk and we will aim to follow up these participants after 2 years and 5 years. We will also be able to use the genetic data generated in DOLORisk to add to the PAINSTORM cohorts and replicate these results. The DOLORisk study protocol forms the basis of the PAINSTORM common protocol for deep phenotyping of participants.
Impact It is multi-disciplinary including clinicians, geneticists and psychologists.
Start Year 2021
 
Description Collaboration between PAINSTORM and DOLORisk 
Organisation University of Oxford
Country United Kingdom 
Sector Academic/University 
PI Contribution We will follow up some of the cross-sectional cohorts recruited in DOLORisk, a Horizon 2020-funded project (2015-2020). The longitudinal design of PAINSTORM will allow us to expand the understanding of neuropathic pain that was achieved in the DOLORisk project and draw new conclusions on risk and protective factors.
Collaborator Contribution Some baseline phenotypic data will be provided by DOLORisk and we will aim to follow up these participants after 2 years and 5 years. We will also be able to use the genetic data generated in DOLORisk to add to the PAINSTORM cohorts and replicate these results. The DOLORisk study protocol forms the basis of the PAINSTORM common protocol for deep phenotyping of participants.
Impact It is multi-disciplinary including clinicians, geneticists and psychologists.
Start Year 2021
 
Description Collaboration with University of Sussex on multi centre whiplash cohort 
Organisation University of Sussex
Department Brighton and Sussex Medical School
Country United Kingdom 
Sector Academic/University 
PI Contribution This project is part of a multi centre cohort study in collaboration with the University of Sussex (Prof Andrew Dilley). Half of the participants' data are being collected in Brighton, and half in Oxford. Oxford has been leading on the question relating to small fibre degeneration and its prognostic ability after whiplash injury. We have trained the Brighton team in skin biopsy acquisition and processing.
Collaborator Contribution This project is part of a multi centre cohort study in collaboration with the University of Sussex (Prof Andrew Dilley). Half of the participants' data are being collected in Brighton, and half in Oxford. Brighton has the lead of the Versus Arthritis funded project onto which this project is added to.
Impact 1. publication in PAIN: • Fundaun J, Kolski M, Baskozos G, Dilley A, Sterling M, Schmid AB. Nerve pathology and neuropathic pain after whiplash injury: a systematic review and meta-analysis. Pain 2021; online ahead of print. this is a multidisciplinary collaboration, including Physiotherapists, MR physicists, statisticians and neurophysiologists.
Start Year 2020
 
Description collaboration between APDP FORECAST and PAINSTORM consortium 
Organisation University of Oxford
Country United Kingdom 
Sector Academic/University 
PI Contribution The whiplash cohort has been added to the Advanced Pain Discovery Platform funded PAINSTORM consortium.
Collaborator Contribution The industry partner of PAINSTORM (Eli Lilly) will provide in-kind provision of neurofilament light chain evaluation in blood of patients after whiplash injury as a marker of neuronal injury.
Impact This is an interdisciplinary collaboration involving academia and industry. no outputs as yet, as we are still finalising data collection
Start Year 2022
 
Description International Association for the Study of Pain Virtual Congress, June, 2021. Poster. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact poster presentation at largest Conference of Pain worldwide. Engaged with attendees online and had stimulating discussions.
Year(s) Of Engagement Activity 2021
 
Description Invited speaker British Peripheral Nerve Society Annual Meeting 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact invited lecture at BPNS annual meeting.
Sparked interesting discussions and networking.
Year(s) Of Engagement Activity 2022
 
Description PAINSTORM Harmonisation meeting (27/09/2021) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Study participants or study members
Results and Impact Members of the PAINSTORM consortium, in particular those involved in the recruitment of study participants and data handling, met to agree on the set of questionnaires that would form a common protocol to all PAINSTORM centres. The aim was to guarantee data harmonisation across the consortium. We based the protocols on the DOLORisk study, and discussed modifications and enhancements, especially in terms of better capturing the participants' lived experience of pain. The list of questionnaires was finalised in the weeks following the meeting.
Year(s) Of Engagement Activity 2021
 
Description PAINSTORM Kick-off meeting (26/07/2021) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Study participants or study members
Results and Impact 30 members of the PAINSTORM consortium (academics, patient partners and industry partners) took part in an online kick-off meeting to go through the project's objectives and plans. We discussed management issues, went through each work package to define priorities for the first months of the project, and set out some principles for public and patient involvement.
Year(s) Of Engagement Activity 2021
 
Description Presentation on the use of 'Big Data' to a pain workshop at the Academy of Medical Sciences aimed at improving development of new analgesics. 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact This was a broad workshop organised by the Academy of Medical Sciences. The aim was to facilitate understanding of and develop new treatments for pain. It involved some lectures but also breakout session/workshop to discuss issues in the pain field. There were diverse participants which made for a very interactive discussion.
Year(s) Of Engagement Activity 2021
 
Description Talk at Physio UK conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact invited talk at Physio UK conferences, presenting our data on the whiplash systematic review. Conference was held online due to COVID-19, which meant a larger audience could be reached. Sparked many questions and good discussions.
Year(s) Of Engagement Activity 2021
 
Description podcast tete a tete podcast 
Form Of Engagement Activity A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact invited speaker on tete a tete podcast with Niklaus Haldimann, who interviews interesting people from diverse backgrounds.
Year(s) Of Engagement Activity 2022
URL https://podcast-tete-a-tete.podigee.io
 
Description presentation at online datablitz session IASP 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact competitively selected for Data Blitz Presentation for IASP. Presented whiplash systematic review and participated in question and answer session. This session reached an international audience and is still available online for members of IASP.
Year(s) Of Engagement Activity 2021
URL https://www.iasp-pain.org/event/iasp-neupsig-data-blitz-group-3/