Alleviate: Hub for Pain
Lead Research Organisation:
University of Dundee
Department Name: Population Health and Genomics
Abstract
Our vision for the Alleviate Hub for Pain is to:
- Transform existing UK pain datasets to be Findable, Accessible, Interoperable and Reusable (FAIR)
- Link these datasets with expert data engineering, integrated into the Health Data Research (HDR) UK Gateway
- Catalyse responsible and trustworthy analysis by international researchers and innovators
Our UK-wide consortium will deliver world class health data infrastructure and services for pain research, guided by leading experts in pain research and in partnership with the NHS, Advanced Pain Discovery Platform (APDP) consortia, people with lived experience of chronic pain (PWLE) and industry. This consortium has a common desire and a commitment for change to a "data as infrastructure" approach. The fact that custodians of diverse datasets have chosen to join our consortium is testament to the need to develop new improved, more efficient methods of bringing everyone together under a common approach. Alleviate will engage directly with PWLE to maximise impact and patient benefit. We have already held our first 'In-Principle' meeting with 9 representatives, from diverse backgrounds, with 2 PWLE co-leading the Public and Patient Involvement and Engagement Work Package.
The Dundee Health Informatics Centre (HIC) has considerable data engineering expertise and has provided leadership in health data science and research services for over a decade. Using a secure ISO27001 certified Trusted Research Environment (TRE)/Safe-Haven (where data security and safety is guaranteed) managed by HIC, Alleviate will:
- Leverage existing open-source software and infrastructure to curate and manage data (research cohorts and routinely collected health (and social) care data), streamline access and support governance
- Provide a modern, secure, and flexible design, benefitting from HIC's secure, scalable hybrid cloud 'Next-Generation' infrastructure; supported by cloud computing expertise from Amazon Web Services (AWS), enhancing an existing successful partnership
- Support analysis of multi-modal data using artificial intelligence and machine learning (e.g. epidemiological, clinical, population health, genomics, imaging, psychological, social, biological)
- Deliver a hybrid model of data access and management, i.e. supporting UK-wide data federation combined with a centralised model (Figure.1). The model will also support international datasets in the future
- Enable pain research datasets and registries, facilitating their curation and further collaboration, linking with other HDR UK Hubs, related clinical datasets (e.g. mental health, cancer) and boosting their power and discovery potential for patient benefit
Our consortium has a considerable track record:
- Specific expertise in multi-centre pain-related data
- Leading academics in pain research covering the range of data modalities across biological, psychological and social factors that influence pain. Our Co-I's are leading applicants in 4 separate APDP consortia bids
- Experience in collaborating between clinical researchers, PWLE, laboratory scientists and data scientists at local, national and global level
- Experience as a data processor for several health boards, Scottish Government, and many UK and international research cohorts
- Existing HDR UK Alliance members and strong links with other hubs e.g. Breathe
- Custodians of a TRE for secure analysis of health data at scale
- Leading many HDR UK initiatives: Phenomics portal, Scottish Data Federation, Multiomics project, Biorepository management software, Imaging, open Connector, ATLAS
- Enabling c.900 national and international research projects as a service provider (c.5years)
- 'Big-data' pipelines for efficient operation including omics to explore the biopsychosocial model of chronic pain
- Experience of building research networks and with ready access to the UKCRC Tissue Directory and Coordination Centre of over 200 biobanks
- Transform existing UK pain datasets to be Findable, Accessible, Interoperable and Reusable (FAIR)
- Link these datasets with expert data engineering, integrated into the Health Data Research (HDR) UK Gateway
- Catalyse responsible and trustworthy analysis by international researchers and innovators
Our UK-wide consortium will deliver world class health data infrastructure and services for pain research, guided by leading experts in pain research and in partnership with the NHS, Advanced Pain Discovery Platform (APDP) consortia, people with lived experience of chronic pain (PWLE) and industry. This consortium has a common desire and a commitment for change to a "data as infrastructure" approach. The fact that custodians of diverse datasets have chosen to join our consortium is testament to the need to develop new improved, more efficient methods of bringing everyone together under a common approach. Alleviate will engage directly with PWLE to maximise impact and patient benefit. We have already held our first 'In-Principle' meeting with 9 representatives, from diverse backgrounds, with 2 PWLE co-leading the Public and Patient Involvement and Engagement Work Package.
The Dundee Health Informatics Centre (HIC) has considerable data engineering expertise and has provided leadership in health data science and research services for over a decade. Using a secure ISO27001 certified Trusted Research Environment (TRE)/Safe-Haven (where data security and safety is guaranteed) managed by HIC, Alleviate will:
- Leverage existing open-source software and infrastructure to curate and manage data (research cohorts and routinely collected health (and social) care data), streamline access and support governance
- Provide a modern, secure, and flexible design, benefitting from HIC's secure, scalable hybrid cloud 'Next-Generation' infrastructure; supported by cloud computing expertise from Amazon Web Services (AWS), enhancing an existing successful partnership
- Support analysis of multi-modal data using artificial intelligence and machine learning (e.g. epidemiological, clinical, population health, genomics, imaging, psychological, social, biological)
- Deliver a hybrid model of data access and management, i.e. supporting UK-wide data federation combined with a centralised model (Figure.1). The model will also support international datasets in the future
- Enable pain research datasets and registries, facilitating their curation and further collaboration, linking with other HDR UK Hubs, related clinical datasets (e.g. mental health, cancer) and boosting their power and discovery potential for patient benefit
Our consortium has a considerable track record:
- Specific expertise in multi-centre pain-related data
- Leading academics in pain research covering the range of data modalities across biological, psychological and social factors that influence pain. Our Co-I's are leading applicants in 4 separate APDP consortia bids
- Experience in collaborating between clinical researchers, PWLE, laboratory scientists and data scientists at local, national and global level
- Experience as a data processor for several health boards, Scottish Government, and many UK and international research cohorts
- Existing HDR UK Alliance members and strong links with other hubs e.g. Breathe
- Custodians of a TRE for secure analysis of health data at scale
- Leading many HDR UK initiatives: Phenomics portal, Scottish Data Federation, Multiomics project, Biorepository management software, Imaging, open Connector, ATLAS
- Enabling c.900 national and international research projects as a service provider (c.5years)
- 'Big-data' pipelines for efficient operation including omics to explore the biopsychosocial model of chronic pain
- Experience of building research networks and with ready access to the UKCRC Tissue Directory and Coordination Centre of over 200 biobanks
Technical Summary
The Alleviate will adopt a hybrid architecture: each group donating a pain dataset will choose whether to use the centralised hub or act as a federated node based upon data governance, size and complexity of the data and technical feasibility. The Research Data Management Platform (RDMP) open-source software tool will be utilised to curate, clean and transform data and automatically upload metadata and data dictionaries into the HDR Gateway.
Within each federated node, a pseudonymised version of the data will be made available within a secure VM so that it can be queried by federation software integrated into the HDR Gateway. This will enable researchers and innovators to discover what data is available for pain research across the UK and run high level meta-analysis across the datasets to find relevant cohorts. Such capability will support the research community to find relevant datasets which can be efficiently re-used and support recruitment to clinical trials. Alleviate will automate the process to extract research project specific data from across the federated network into a single TRE, streamlining access to data once data governance approvals have been granted.
Alleviate will upload pain specific phenotypes into the HDR phenotype portal.
The Alleviate hybrid secure cloud Trusted Research Environment (TRE) will be delivered in partnership with Amazon Web Services, building on an existing successful collaboration over the past year. The environment will provide Next Generation capabilities including:
- A suite of regularly updated, out-the-box software tools supporting machine learning (ML) and artificial intelligence (AI) development, statistical analysis and data management
- Improved support for multi-modal data cohorts including imaging & genomics integration
- Rapid scalability / elasticity / flexibility - as project demands require
- Reduced capital investment in new physical infrastructure
- High-availability
- On-Demand Self-Service
Within each federated node, a pseudonymised version of the data will be made available within a secure VM so that it can be queried by federation software integrated into the HDR Gateway. This will enable researchers and innovators to discover what data is available for pain research across the UK and run high level meta-analysis across the datasets to find relevant cohorts. Such capability will support the research community to find relevant datasets which can be efficiently re-used and support recruitment to clinical trials. Alleviate will automate the process to extract research project specific data from across the federated network into a single TRE, streamlining access to data once data governance approvals have been granted.
Alleviate will upload pain specific phenotypes into the HDR phenotype portal.
The Alleviate hybrid secure cloud Trusted Research Environment (TRE) will be delivered in partnership with Amazon Web Services, building on an existing successful collaboration over the past year. The environment will provide Next Generation capabilities including:
- A suite of regularly updated, out-the-box software tools supporting machine learning (ML) and artificial intelligence (AI) development, statistical analysis and data management
- Improved support for multi-modal data cohorts including imaging & genomics integration
- Rapid scalability / elasticity / flexibility - as project demands require
- Reduced capital investment in new physical infrastructure
- High-availability
- On-Demand Self-Service
Publications
Hébert HL
(2023)
Big data, big consortia, and pain: UK Biobank, PAINSTORM, and DOLORisk.
in Pain reports
Jefferson E
(2022)
The COVID - Curated and Open aNalysis aNd rEsearCh plaTform (CO-CONNECT).
in International Journal of Population Data Science
Jefferson E
(2022)
A Hybrid Architecture (CO-CONNECT) to Facilitate Rapid Discovery and Access to Data Across the United Kingdom in Response to the COVID-19 Pandemic: Development Study.
in Journal of medical Internet research
Laskawska MS
(2022)
The core minimum dataset for measuring pain outcomes in pain services across Scotland. Developing and testing a brief multi-dimensional questionnaire.
in British journal of pain
Description | BY-COVID |
Amount | € 12,000,000 (EUR) |
Funding ID | 101046203 |
Organisation | European Commission H2020 |
Sector | Public |
Country | Belgium |
Start | 06/2022 |
End | 09/2024 |
Description | Federated Analytics Initiative for Regulatory Science in the UK: FAIRS-UK |
Amount | £60,000 (GBP) |
Funding ID | 10110646 |
Organisation | Innovate UK |
Sector | Public |
Country | United Kingdom |
Start | 03/2024 |
End | 09/2024 |
Description | Guidelines and Resources for AI Model Access from TrusTEd Research environments (GRAIMatter) |
Amount | £315,488 (GBP) |
Funding ID | MC_PC_21033 |
Organisation | Medical Research Council (MRC) |
Sector | Public |
Country | United Kingdom |
Start | 01/2022 |
End | 08/2022 |
Description | MIREDA (Mother and Infant Research Electronic Data Analysis) Partnership |
Amount | £1,236,698 (GBP) |
Funding ID | MR/X02055X/1 |
Organisation | Medical Research Council (MRC) |
Sector | Public |
Country | United Kingdom |
Start | 06/2023 |
End | 06/2026 |
Description | Trusted Research Environment and Enclave for Hosting Open Original Science Exploration (TREEHOOSE) |
Amount | £202,664 (GBP) |
Funding ID | MC_PC_21032 |
Organisation | Medical Research Council (MRC) |
Sector | Public |
Country | United Kingdom |
Start | 01/2022 |
End | 08/2022 |
Description | Collaboration with HDR UK |
Organisation | Health Data Research UK |
Country | United Kingdom |
Sector | Private |
PI Contribution | Alleviate is led by the Health Informatics Centre (HIC) at the University of Dundee. It is delivered in partnership with HDR UK as part of the Health Data Research Hub network. The Alleviate project team have been working with our key collaborating partner, Health Data Research UK, to ensure all the datasets are discoverable in the Innovation Gateway and that request can be accessed from this portal. |
Collaborator Contribution | Health Data Research (HDR) UK has transformed the UK landscape in health data science and provides a common entry point to discover the request access to UK health datasets. Users can search for health data tools, research projects, publications and collaborate via community forum. |
Impact | Due to this collaboration, the following data is in the process of being mapped and hosted on the HDR UK Cohort Discovery Tool for researchers to request access to: Pending > PAINSTORM, CAPE, ADVANTAGE, CRiiSP, FORECAST In-Progress > SHARE, KPIC, Synovial fibroblast pain pathotypes, MICA Being Validated > CTS PINS, DOLORisk Oxford, twins UK Completed > GOAL, Webex, Omega 3 |
Start Year | 2022 |
Description | Collaboration with PIONEER Data Hub |
Organisation | University Hospitals Birmingham NHS Foundation Trust |
Country | United Kingdom |
Sector | Public |
PI Contribution | Shared knowledge of data sharing and data types within the OMOP common data model. |
Collaborator Contribution | Shared knowledge of longterm sustainability. |
Impact | None yet. |
Start Year | 2022 |
Description | Collaboration with PIONEER Data Hub |
Organisation | University of Birmingham |
Country | United Kingdom |
Sector | Academic/University |
PI Contribution | Shared knowledge of data sharing and data types within the OMOP common data model. |
Collaborator Contribution | Shared knowledge of longterm sustainability. |
Impact | None yet. |
Start Year | 2022 |
Description | Collaborations with other HDR UK DATA MIND Hub |
Organisation | Swansea University |
Department | College of Medicine |
Country | United Kingdom |
Sector | Academic/University |
PI Contribution | Working across the hubs to streamline activities and learn from each other |
Collaborator Contribution | Shared methodology |
Impact | Shared methodology |
Start Year | 2021 |
Title | CaRROT CDM |
Description | Ability to extract input datasets and Transform them using mapping rules. Functionality is used for performing ETL on health datasets, converting them to the OHDSI Common Data Model (CDM), via a command line interface. CaRROT-CDM contains a pythonic version1 of the OHDSI CDM, implemented via the class CommonDataModel. CDM tables, such as "Person" are defined as classes (e.g. Person) within the code base. |
Type Of Technology | Webtool/Application |
Year Produced | 2021 |
Open Source License? | Yes |
Impact | Alleviate currently has data sets standardised to the Observational Medical Outcomes Partnership (OMOP) Common Data Model (CDM) standard Data Standardisation - OHDSI and available on the HDR UK Cohort Discovery Tool for use by researchers to run discovery queries to find existing data that may fit their use case. HDR UK Metadata Catalogue, we have a collection of 20 different data sets registered within the Alleviate collection. From a researcher perspective, the catalogue is used for finding and requesting access to datasets and other useful resources for your research such as projects, courses, tools and publications. |
URL | https://www.healthdatagateway.org/ |
Title | CaRROT Mapper |
Description | CaRROT-Mapper is a webapp which allows the user to use the metadata (as output by WhiteRabbit) from a dataset to produce mapping rules to the OMOP standard, in the JSON format. These can be ingested by CaRROT-CDM to perform the mapping of the contents of the dataset to OMOP. |
Type Of Technology | Webtool/Application |
Year Produced | 2021 |
Open Source License? | Yes |
Impact | CaRROT-Mapper provides automated mapping from a selection of vocabularies, reuse of mapping rules across datasets, and manual mapping rule generation. CaRROT-Mapper also provides a number of helpful features to support and encourage standardised mappings across datasets. |
Title | HDR Cohort Discovery / TRE-FX / RQuest integration |
Description | It allows compatibility between the work of TRE-FX, the HDR Programme (Cohort Discovery) and BC Platforms software |
Type Of Technology | Software |
Year Produced | 2023 |
Open Source License? | Yes |
Impact | Now being assessed for use in the NHS England SDE Programme |
URL | https://github.com/Health-Informatics-UoN/rquest-tools |
Title | Workflow for RQuest integration |
Description | It is the workflow to process an HDR Cohort Discovery tool query |
Type Of Technology | Software |
Year Produced | 2023 |
Open Source License? | Yes |
Impact | Forms part of the work with NHS SDE Programme and HDR Programme |
URL | https://workflowhub.eu/workflows/471 |
Description | "Expressions of Pain" - Public Workshop (Art and Science) |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Patients, carers and/or patient groups |
Results and Impact | Around 50 people, including those living with pain, carers, and healthcare professionals, explored methods of expressing pain through artistic media, to complement formal "scientific" methods. This included a visual art workshop and a writing workshop led by professional artists, and an art gallery tour. Event held at Aberdeen Art Gallery, as part of British Science Week. |
Year(s) Of Engagement Activity | 2023 |
URL | https://www.eventbrite.co.uk/e/expressions-of-pain-british-science-week-event-tickets-542778664597?f... |
Description | @Alleviate_Data Twitter/X |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Our reach on Twitter (X) continues to grow, showing substantial engagement during two campaigns; Pain Awareness Month, which generated 10575 impressions and UK National Pain Survey, which generated 15239 impressions in September and November respectively. |
Year(s) Of Engagement Activity | 2022 |
URL | https://twitter.com/Alleviate_Data |
Description | A patient perspective on Alleviate |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Our patient and public involvement and engagement team lead, Antony Chuter, gives his perspective on the impact of the Alleviate project. |
Year(s) Of Engagement Activity | 2023 |
URL | https://alleviate.ac.uk/2023/01/06/a-patient-perspective-on-alleviate/ |
Description | APDP Pain Community Workshop Outcomes webinar |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Sharing the findings of the questions addressed: What pain data types are available, What current and future data barriers need to be overcome for researchers How best Alleviate Pain Data Hub can solve pain data needs. Giving participants a view of the upcoming priorities and plans of the Alleviate Pain Data Hub in 2023/24. |
Year(s) Of Engagement Activity | 2023 |
URL | https://www.eventbrite.co.uk/e/apdp-pain-community-workshop-outcomes-tickets-663037572227?keep_tld=1 |
Description | Advanced Pain Discovery Platform (APDP) Conference 2023 |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Blog post - Alleviate Pain Data Hub attended the 1st Annual Conference in Nottingham on Monday, 26th June where the APDP consortia came together with a shared purpose: to collaboratively accelerate progress in all areas of pain research. |
Year(s) Of Engagement Activity | 2023 |
URL | https://alleviate.ac.uk/2023/07/03/advanced-pain-discovery-platform-apdp-conference-2023/ |
Description | Advanced Pain Discovery Platform Conference |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | Presenation at the Advanced Pain Discovery Platform Conference |
Year(s) Of Engagement Activity | 2022 |
Description | Advanced Pain Discovery Platform consortia and data hub team 'kick off' |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | . |
Year(s) Of Engagement Activity | 2021 |
Description | Alleviate - the Advanced Pain Discovery Platform |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | Invited speaker to present details of the Alleviate APDP data hub to an audience of researchers, clinicians and public memebers. |
Year(s) Of Engagement Activity | 2022 |
Description | Alleviate Hub for Pain - Public Launch |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Public/other audiences |
Results and Impact | Advanced Pain Discovery Platform Public Launch Webinar |
Year(s) Of Engagement Activity | 2022 |
Description | Alleviate PPIE poster win at the Advanced Pain Discovery Platform (APDP) Conference 2023 |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Blog post - Alleviate Pain Data Hub's 'Embedding Patient and Public Involvement in the Alleviate Pain Data Hub' won best poster at the APDP 1st Annual Conference 2023! |
Year(s) Of Engagement Activity | 2023 |
URL | https://alleviate.ac.uk/2023/07/03/alleviate-ppie-poster-win-at-the-advanced-pain-discovery-platform... |
Description | Alleviate Pain Data Hub - Upcoming Conferences |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Blog post - September will be an exciting month for Alleviate when various members of the team will be attending many conferences and presenting the fantastic work we are doing in Chronic Pain. |
Year(s) Of Engagement Activity | 2023 |
URL | https://alleviate.ac.uk/2023/09/01/alleviate-pain-data-hub-upcoming-conferences/ |
Description | Alleviate Pain Data Hub Community Event to Workshop the Future Data Needs for Pain Research |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Blog post - This Friday, the Alleviate Pain Data Hub are hosting an Advanced Pain Discovery Platform (APDP) community event in the picturesque location of the University of Dundee Botanic Gardens. These popular gardens overlook the River Tay and cover an area of 9.5 hectares. |
Year(s) Of Engagement Activity | 2023 |
URL | https://alleviate.ac.uk/2023/05/25/alleviate-pain-data-hub-community-event-to-workshop-the-future-da... |
Description | Alleviate Pain Data Hub Newsletter website |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Public/other audiences |
Results and Impact | The Alleviate Pain Data Hub website is a central point for researchers, patient and public involvement members and general public to learn about the work Alleviate is doing in the pain research community, including patient and public involvement and engagement activities, data services offered and blog articles on developments and achievements within the project. The website has supported our growth and presence in the pain research community, and we have had multiple enquiries from external researchers exploring possible collaboration opportunities. Input from our leading PPIE group is also being requested on other projects highlighting Alleviate's strength in this area. |
Year(s) Of Engagement Activity | 2023 |
URL | https://alleviate.ac.uk/ |
Description | Alleviate Pain Data Hub scores their first data set GOAL |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Alleviate Pain Data Hub hit a major milestone this week. We successfully facilitated our first curated data set being available within our new Pain Hub. |
Year(s) Of Engagement Activity | 2023 |
URL | https://alleviate.ac.uk/2023/03/10/alleviate-data-hub-scores-their-first-data-set-goal/ |
Description | Alleviate Pain Data Workshop |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Blog post - A wonderful day was had by all who attended the Alleviate Pain Data Hub Workshop in the picturesque location of the University of Dundee Botanic Gardens on Friday, May 26th. |
Year(s) Of Engagement Activity | 2023 |
URL | https://alleviate.ac.uk/2023/05/31/alleviate-pain-data-workshop/ |
Description | Alleviate YouTube channel |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | 15 new videos have been uploaded to the Alleviate YouTube channel over the last year, totalling over 500 views and over 10,000 impression: "Increasing awareness of the complexities of living with chronic pain" "Showing empathy and kindness to people living with chronic pain" "The importance of being believed when living with chronic pain" "Erum Masood - Standardising Pain Data" "Tom Giles - Discovery Queries" "How to bring out the best in your PPIE members" "The value of building relationships with people living with pain and empowerment through research" "Ways in which people living with pain can be involved in research" "Pain Awareness Month: Irene's Story" "Pain Awareness Month: Kathy's Story" "Pain Awareness Month: Kausar's Story" "Alleviate Pain Data Hub - UoD Art, Science and Visual Thinking Module" "Pain Awareness Month - Claire's Story" "Introduction to Quantitative Sensory Testing (QST) by Dr Bhushan Thakkar" "How can we help the Pain community? How to get involved with the Alleviate Pain Data Hub" |
Year(s) Of Engagement Activity | 2023,2024 |
URL | https://www.youtube.com/channel/UC9MNWgyvuYxh8jbu1FrUfLQ |
Description | Alleviate attended British Pain Society's Annual Scientific Meeting |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Blog post - Alleviate Director, Dr Christian Cole, attended the British Pain Society's Annual Scientific Meeting in Glasgow on Tuesday and presented our poster titled - The Alleviate Advanced Pain Discovery Platform Data Hub. |
Year(s) Of Engagement Activity | 2023 |
URL | https://alleviate.ac.uk/2023/05/11/alleviate-attended-british-pain-societys-annual-scientific-meetin... |
Description | Alleviate describer video |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | A youtube video was created to describe the purpose of the Alleviate project in an engaging and approachable manner. The project is very technical and therefore benefits from having many different ways of communicating with non-experts. |
Year(s) Of Engagement Activity | 2022 |
URL | https://youtu.be/Rwnj-OmtaHQ |
Description | Alleviate in Pain Matters |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Blog post - Alleviate is featured in issue 80 of Pain Matters magazine |
Year(s) Of Engagement Activity | 2023 |
URL | https://alleviate.ac.uk/2023/01/06/alleviate-in-pain-matters-issue-80/ |
Description | Alleviate in the news! |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Alleviate will be at the New Treatments in Pain meeting on 9th November 2022 |
Year(s) Of Engagement Activity | 2023 |
URL | https://alleviate.ac.uk/2023/01/06/alleviate-in-the-news/ |
Description | Alleviate website |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | . |
Year(s) Of Engagement Activity | 2022 |
URL | https://sites.dundee.ac.uk/alleviate |
Description | Another award win for Alleviate! |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Blog post detailing Alleviate's award win for Positive Impact in the Dundee Difference Awards. |
Year(s) Of Engagement Activity | 2024 |
URL | https://alleviate.ac.uk/2024/01/26/another-award-win-for-alleviate/ |
Description | BC Platforms Event in Singapore |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Other audiences |
Results and Impact | International meeting to hear about our work and to create further collaborations |
Year(s) Of Engagement Activity | 2023 |
Description | Cambridge Spark Lecture Series |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Industry/Business |
Results and Impact | Presentation: Overcoming the Challenges of Providing Access to Population Scale, Routinely Collected Health and Imaging Data for AI Development whilst Protecting Patient Confidentiality. |
Year(s) Of Engagement Activity | 2022 |
Description | Chronic pain: listening to people with lived experience |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Blog post - in December 2021, our previous Director, Professor Emily Jefferson, attended the Chronic pain: experimental medicine and clinical insights workshop jointly hosted by Academy of Medical Sciences, the British Neuroscience Association, the Physiological Society and Versus Arthritis. |
Year(s) Of Engagement Activity | 2023 |
URL | https://alleviate.ac.uk/2023/03/10/alleviate-data-hub-scores-their-first-data-set-goal/ |
Description | Digital Research Environment (DRE) & Analytics seminar |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Other audiences |
Results and Impact | Invitation from the Clinical Intelligence Unit Lead at Great Ormond Street Hospital to present at a seminar aimed at data scientists, clinicians, researchers and others on topics related to clinical informatics, data science, analytics and infrastructure. Alleviate's Erum Masood presented, along with another colleague, on 'Mapping Scottish Population Scale Health Data to Observational Medical Outcomes Partnership (OMOP) Common Data Model (CDM) standard to support FAIR Principles.' This was requested for the audience to hear about our experiences in OMOP, and to inform them on wider considerations around setting up and running federated analytics platforms as they begin mapping datasets into OMOP to support research and operational analytics projects. |
Year(s) Of Engagement Activity | 2024 |
Description | Enormous Benefits of Embedding Public Involvement and Engagement |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Blog post - The Alleviate Pain Hub has a strong Patient and Public Involvement and Engagement team. In this article, our Deputy Director discusses the benefits they provide to the Alleviate Pain Data Hub since they became embedded in our project. |
Year(s) Of Engagement Activity | 2023 |
URL | https://alleviate.ac.uk/2023/03/22/benefits-of-embedding-ppie/ |
Description | Federated Learning Workshop: Share the Code |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Other audiences |
Results and Impact | International workshop to develop common understandings for the deployment of federated learning tools. |
Year(s) Of Engagement Activity | 2023 |
Description | HDR UK Community Meeting - Scotland (speaker) |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Other audiences |
Results and Impact | Invited speaker to HDR UK Community Meeting (Scotland) - one of a series of meetings intended to build partnerships and collaborations across the health data research community. Presentation: The Technology Ecosystem, Phenomics and Prognostic Atlas. |
Year(s) Of Engagement Activity | 2022 |
Description | HDR UK Data Access and Discovery Webinar |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Exploring some of the data services and expertise on offer from Alleviate |
Year(s) Of Engagement Activity | 2024 |
URL | https://www.hdruk.ac.uk/events/data-access-and-discovery-february-2024/?utm_source=twitter&utm_mediu... |
Description | HDR UK Data Access and Discovery Webinar: Alleviate and DATAMIND |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Public/other audiences |
Results and Impact | Data Access and Discovery webinar explored the data journeys of two health data research hubs. Christian Cole and Gordon Milligan showcased Alleviate's impact in the chronic pain community by sharing the importance of PPIE in the project, the data harmonisation & standardisation process, what data is being mapped, how researchers can access this data. This was arranged by HDR UK and was open to the general public to widen reach and knowledge exchange. |
Year(s) Of Engagement Activity | 2024 |
URL | https://www.hdruk.ac.uk/events/data-access-and-discovery-february-2024/?utm_campaign=dadfeb24&utm_me... |
Description | HDR UK Science and Infrastructure Delivery Group |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | . |
Year(s) Of Engagement Activity | 2021 |
Description | Happy New Year from Alleviate! |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Blog post detailing Alleviate's achievements in 2023 and plans for 2024 . |
Year(s) Of Engagement Activity | 2024 |
URL | https://alleviate.ac.uk/2024/01/12/happy-new-year-from-alleviate/ |
Description | How To Bring Out The Best In Your PPIE Members |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Blog post - Our patient and public involvement and engagement team lead, Antony Chuter, has lived with chronic pain for over 30 years. He recently spoke to the Alleviate research team about his experiences. Watch the fourth of six episodes from the series 'Antony Chuter- Living with Pain and What is PPI?' |
Year(s) Of Engagement Activity | 2023 |
URL | https://alleviate.ac.uk/2023/04/27/how-to-bring-out-the-best-in-your-ppie-members/ |
Description | How can we help the Pain community? webinar |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Showcasing the data assets currently available through Alleviate and how they can be securely accessed for pain research in the UK. The following topics will be discussed: Onboarding data to our Hub to boost discoverability and re-use (FAIR) OMOP analysis/dashboard demo Data management to support standardisation Cohort Discovery tool demo Governance Impact and future for Alleviate |
Year(s) Of Engagement Activity | 2024 |
URL | https://www.eventbrite.co.uk/e/alleviate-hub-how-can-we-help-the-pain-community-tickets-807657063017 |
Description | How will our research help people living with chronic pain? |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Supporters |
Results and Impact | . |
Year(s) Of Engagement Activity | 2021 |
URL | http://www.versusarthritis.org/news/2021/may/how-will-our-research-help-people-living-with-chronic-p... |
Description | Increasing Awareness Of The Complexities Of Living With Chronic Pain |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Our patient and public involvement and engagement team lead, Antony Chuter, has lived with chronic pain for over 30 years. He recently spoke to the Alleviate research team about his experiences. Watch the first of six episodes of the series 'Antony Chuter- Living with Pain and What is PPI?' |
Year(s) Of Engagement Activity | 2023 |
URL | https://alleviate.ac.uk/2023/04/06/increasing-awareness-of-the-complexities-of-living-with-chronic-p... |
Description | Introduction video for Alleviate |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Patients, carers and/or patient groups |
Results and Impact | This a person with lived experience-focused online video describing the significance and importance of the Alleviate Data Hub project. |
Year(s) Of Engagement Activity | 2022 |
URL | https://youtu.be/ujW6qOlDUG8 |
Description | Keynote speaker: Towards Federated Analytics for Population Data. International Data Science Conference - Tokyo, Japan, 22/05/23 |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | Emily Jefferson was invited as a keynote speaker to present 'Towards Federated Analytics for Population Data. International Data Science Conference - Tokyo, Japan' on 22/05/23 |
Year(s) Of Engagement Activity | 2023 |
Description | Launch of Alleviate - our Advanced Pain Discovery Platform (APDP) Hub |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | . |
Year(s) Of Engagement Activity | 2022 |
URL | https://www.hdruk.ac.uk/helping-with-health-data/health-data-research-hubs/alleviate/ |
Description | Machine Learning for Multi-Omics Data Analysis: Case Study & Models of PPIE |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | A short talk on Machine Learning Approaches for Multi-Omics Data Analysis: A Hypertension ENSAT-HT Project Case Study, followed by a discussion of PPIE models in research projects, and the differences between academic and social models. |
Year(s) Of Engagement Activity | 2023 |
URL | https://www.eventbrite.co.uk/e/machine-learning-for-multi-omics-data-analysis-case-study-models-of-p... |
Description | Major funding success for research into chronic pain |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | . |
Year(s) Of Engagement Activity | 2021 |
URL | https://www.dundee.ac.uk/stories/major-funding-success-research-chronic-pain |
Description | More awards success for Alleviate |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Blog post - The Alleviate Pain Data Hub Team are off to a flying start in 2024 with a string of awards, professional recognition for their work on chronic pain and a prestigious speaking opportunity for one of their colleagues. |
Year(s) Of Engagement Activity | 2024 |
URL | https://alleviate.ac.uk/2024/02/15/more-awards-success-for-alleviate/ |
Description | New data hub and research into chronic pain |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | . |
Year(s) Of Engagement Activity | 2021 |
URL | http://www.cambridgenetwork.co.uk/news/new-data-hub-and-research-chronic-pain |
Description | Onlion patient community meeting |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Patients, carers and/or patient groups |
Results and Impact | This online event organised by the Alleviate PPIE team was set up to re-engage with the patient community. We talked about the project aims and objectives and fielded questions about it. We also solicted comments and suggestions of next steps in the project. |
Year(s) Of Engagement Activity | 2023 |
Description | Overcoming the Challenges of Providing Access to Population Scale, Routinely Collected Health and Imaging Data for AI Development whilst Protecting Patient Confidentiality |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Industry/Business |
Results and Impact | Presentation to the AI summit in London covering the work of PICTURES, CO-CONNECT and GRAIMATTER |
Year(s) Of Engagement Activity | 2022 |
Description | Pain Awareness Month - September 2023 |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Blog post - Throughout September we will be sharing a series of video stories from our Patient and Public Involvement and Engagement (PPIE) members, detailing their lived experience with pain. |
Year(s) Of Engagement Activity | 2023 |
URL | https://alleviate.ac.uk/2023/08/31/pain-awareness-month-september-2023/ |
Description | Pain Awareness Month - a thank you |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Blog post - A big thanks to Alleviate's PPIE members for their invaluable contributions to our Pain Awareness Month campaign. |
Year(s) Of Engagement Activity | 2023 |
URL | https://alleviate.ac.uk/2023/11/01/pain-awareness-month-a-thank-you/ |
Description | Pain Awareness Month: Claire's experience of foot pain due to osteoarthritis |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Blog post - Our Patient and Public Involvement and Engagement member, Claire, recently spoke to the Alleviate research team about her experience of living with pain in her foot caused by osteoarthritis. Watch the final episode in our 'Pain Awareness Month' series. |
Year(s) Of Engagement Activity | 2023 |
URL | https://alleviate.ac.uk/2023/09/28/pain-awareness-month-claires-experience-of-foot-pain-due-to-osteo... |
Description | Pain Awareness Month: Irene's experience of living with nerve pain |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Blog post - Our Patient and Public Involvement and Engagement member, Irene, recently spoke to the Alleviate research team about her experience of living with pain since developing shingles in August 2020. Watch the first of four episodes in our 'Pain Awareness Month' series. |
Year(s) Of Engagement Activity | 2023 |
URL | https://alleviate.ac.uk/2023/09/07/pain-awareness-month-irenes-experience-of-living-with-nerve-pain/ |
Description | Pain Awareness Month: Kathy's experience of nerve pain post cancer surgery |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Blog post - Our Patient and Public Involvement and Engagement member, Kathy, spoke to the Alleviate research team about her experience of living with nerve type pain following complex surgery due to vaginal cancer. Watch the latest episode in our 'Pain Awareness Month' series. |
Year(s) Of Engagement Activity | 2023 |
URL | https://alleviate.ac.uk/2023/09/14/pain-awareness-month-kathys-experience-of-nerve-pain-post-cancer-... |
Description | Pain Awareness Month: Kausar's experience of living with back pain |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Our Patient and Public Involvement and Engagement member, Kausar, spoke to the Alleviate research team about her experience of living with back pain while caring for her 2 brothers. Watch the latest episode in our 'Pain Awareness Month' series. |
Year(s) Of Engagement Activity | 2023 |
URL | https://alleviate.ac.uk/2023/09/21/pain-awareness-month-kausars-experience-of-living-with-back-pain/ |
Description | Pain Data Standardisation webinar |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Demonstration of the OMOP mapping process used by the Alleviate Pain Data Hub and how this allows discovery queries to be ran via the HDR UK Cohort Discovery Tool. |
Year(s) Of Engagement Activity | 2023 |
URL | https://www.eventbrite.co.uk/e/pain-data-standardisation-and-discovery-queries-tickets-603561798587 |
Description | Pain Data Workshop - APDP Community Event |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | This in-person one-day event gave participants the opportunity to share their needs and experience of sharing pain-related datasets for research using FAIR principles: Findable, Accessible, Interoperable and Reusable. Event Objectives: Identify what data needs there are within the APDP community and what can Alleviate do to support them. By the end of the event you will have: Have a better idea of the Alleviate Data Hub and FAIR data. Understand the process of OMOP mapping. Shared your research needs using other pain data resources. Identified the next steps for finding, accessing and sharing pain data to improve research impact. |
Year(s) Of Engagement Activity | 2023 |
URL | https://apdp.sixcircles.co/events/pain-data-workshop-apdp-community-event |
Description | Patient Partner reflections on the Scottish Research and Innovation Conference |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Blog post - Alleviate Patient Advisory Group member, Irene Soulsby, recently attended the Scottish Research and Innovation Conference. In this article, she shares some reflections on the event. |
Year(s) Of Engagement Activity | 2023 |
URL | https://alleviate.ac.uk/2023/11/30/patient-partner-reflections-on-the-scottish-research-and-innovati... |
Description | Plenary Lecture at International Conference (Wellcome Connecting Science): Can population-based genetic studies phenotype chronic pain? |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | Invited lecture in closing sessions of this international conference, held at Wellcome Genome Campus, Hinxton (Campbridge) and Virtual |
Year(s) Of Engagement Activity | 2023 |
URL | https://coursesandconferences.wellcomeconnectingscience.org/event/the-challenge-of-chronic-pain-from... |
Description | Podcast - Health Data Science Black Internship Programme |
Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | This podcast discusses the HDR UK involvement in the Black Internship programme and there were contributions from Dr Christian Cole and HDR UK intern Anthony Ehimare. |
Year(s) Of Engagement Activity | 2022 |
URL | https://soundcloud.com/streamdna/fika-episode-28-health-data-science-black-internship-programme |
Description | Presentation at HDR UK Tech meeting 6th Feb |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | Presented the Alleviate and TRE technology developments to an HDR UK technology workshop. |
Year(s) Of Engagement Activity | 2023 |
Description | Press release 'This will change lives' - UK's first National Pain Survey launched |
Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Media (as a channel to the public) |
Results and Impact | University of Dundee distributed a press release advertising Alleviate's UK National Pain Survey launch in collaboration with the Advanced Pain Discovery Platform (APDP), Chronic Pain Australia and Pain UK, building on work from a similar survey run by Chronic Pain Australia. The UK National Pain Survey was open to adult participants from the UK for 6 weeks (Nov-Dec 23) who have direct experience of living with chronic pain. As research is key for every condition, this survey will aid the chance of finding new treatments, new ways of treating pain and new ways of managing pain. 623 responses were received and the data is currently being analysed. |
Year(s) Of Engagement Activity | 2023 |
URL | https://www.dundee.ac.uk/stories/will-change-lives-uks-first-national-pain-survey-launched |
Description | Press release of change of leadership in project |
Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Media (as a channel to the public) |
Results and Impact | Announcement of changes of leadership in Alleviate |
Year(s) Of Engagement Activity | 2022 |
URL | https://www.dundee.ac.uk/stories/alleviate-project-update-new-leadership-roles |
Description | Scotland's Health Research and Innovation Conference 2023 |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Blog post - Alleviate Pain Data Hub attended Scotland's Health Research and Innovation Conference in Glasgow on Tuesday 31st October where the team enjoyed a varied programme of presentations and discussions reflecting the diversity of health research and innovation activity across Scotland. |
Year(s) Of Engagement Activity | 2023 |
URL | https://alleviate.ac.uk/2023/11/03/scotlands-health-research-and-innovation-conference-2023/ |
Description | Showing Empathy And Kindness To People Living With Chronic Pain |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Our patient and public involvement and engagement team lead, Antony Chuter, has lived with chronic pain for over 30 years. He recently spoke to the Alleviate research team about his experiences. Watch the second of six episodes from the series 'Antony Chuter- Living with Pain and What is PPI?' |
Year(s) Of Engagement Activity | 2023 |
URL | https://alleviate.ac.uk/2023/04/13/showing-empathy-and-kindness-to-people-living-with-chronic-pain/ |
Description | TRE demo webinar |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Public/other audiences |
Results and Impact | Demonstration on the operation of the regional Trusted Research Environment (TRE), managed by Health Informatics Centre (HIC) of Dundee, followed by a brief talk on the Data Linkage services offered by Health Informatics Centre. |
Year(s) Of Engagement Activity | 2023 |
URL | https://www.eventbrite.co.uk/e/trusted-research-environment-demo-and-intro-to-hic-data-linkage-servi... |
Description | The Alleviate Pain Data Hub Newsletter |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Public/other audiences |
Results and Impact | A monthly newsletter is sent to our pain community. It includes information about Alleviate's data onboarding progress, conference attendance, achievements, surveys, pain related articles, webinars etc. This is a forum to engage with the public on all pain related activities and generates feedback, discussion and interest. We regularly receive requests from people who want to join our pain community and be kept up to date on engagement & involvement opportunities. |
Year(s) Of Engagement Activity | 2022 |
URL | https://hdruk.us20.list-manage.com/subscribe?u=ad46e02048d115455f041c126&id=5194956fe3 |
Description | The Importance Of Being Believed When Living With Chronic Pain |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Our patient and public involvement and engagement team lead, Antony Chuter, has lived with chronic pain for over 30 years. He recently spoke to the Alleviate research team about his experiences. Watch the third of six episodes from the series 'Antony Chuter- Living with Pain and What is PPI?' |
Year(s) Of Engagement Activity | 2023 |
URL | https://alleviate.ac.uk/2023/04/20/the-importance-of-being-believed-when-living-with-chronic-pain/ |
Description | The Value Of Building Relationships With People Living With Pain And Empowerment Through Research |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Our patient and public involvement and engagement team lead, Antony Chuter, has lived with chronic pain for over 30 years. He recently spoke to the Alleviate research team about his experiences. Watch the fifth of six episodes from the series 'Antony Chuter- Living with Pain and What is PPI?' |
Year(s) Of Engagement Activity | 2023 |
URL | https://alleviate.ac.uk/2023/05/04/the-value-of-building-relationships-with-people-living-with-pain-... |
Description | UK National Pain Survey |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Public/other audiences |
Results and Impact | A longstanding relationship between one of our PPIE team members with Chronic Pain Australia and Pain UK led to a collaboration with the APDP to replicate an Australian annual national pain survey within the UK. The aim of the survey is to bring to the surface the voices of those with lived experience of pain to provide input into the areas of research and policy that matter. The survey ran for one month and attracted 623 responses. We are currently analysing the data and planning to produce multiple outputs targeted at different stakeholder groups such as Public and Patients, health professionals, government policy makers. These outputs will cover infographics, reports, various webinars, posters/talks at conferences and potentially academic publications. |
Year(s) Of Engagement Activity | 2023 |
Description | UK National Pain Survey 2023 |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Blog post - The Alleviate Pain Data Hub, in collaboration with Chronic Pain Australia and Pain UK, is launching the first UK National Pain Survey in November 2023. |
Year(s) Of Engagement Activity | 2023 |
URL | https://alleviate.ac.uk/2023/11/07/uk-national-pain-survey-2023/ |
Description | UK National Pain Survey 2023 - Now launched |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Blog post - Call to action to take part in the inaugural UK National Pain survey |
Year(s) Of Engagement Activity | 2023 |
URL | https://alleviate.ac.uk/2023/11/16/uk-national-pain-survey-2023-now-launched/ |
Description | UK data Hub to advance necessary research into chronic pain |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | Health Data Research UK (HDR UK), the Medical Research Council (MRC) and Versus Arthritis announced a new Hub called Alleviate: APDP Pain Research Data Hub (Alleviate Hub); advancing necessary research into chronic pain. |
Year(s) Of Engagement Activity | 2021 |
URL | https://www.hdruk.ac.uk/news/uk-data-hub-to-advance-necessary-research-into-chronic-pain/?utm_source... |
Description | Unlocking the benefits of Omega-3 on the gut microbiome |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Alleviate Pain Data Hub has successfully facilitated our second curated data set to be available within our new Pain Hub. |
Year(s) Of Engagement Activity | 2023 |
URL | https://alleviate.ac.uk/2023/04/21/unlocking-the-benefits-of-omega-3-on-the-gut-microbiome/ |
Description | Versus Arthritis 3rd Annual Pain Research Conference |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | Keynote speaker: Big data for patient benefit: Opportunities for pain research. Following the conference, attended by many APDP Members, several pharmaceutical companies made contact with Alleviate. In addition, Alleviate has been approached to act as a consultant to work with Wellcome Trust on the feasibility of creating a Pain Data prize, with funding associated. |
Year(s) Of Engagement Activity | 2021 |
URL | https://www.nottingham.ac.uk/paincentre/documents/conferences/2022/2022-conference-flyer.pdf |
Description | Ways In Which The Public Can Be Involved With Research |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Blog post - Our patient and public involvement and engagement team lead, Antony Chuter, has lived with chronic pain for over 30 years. He recently spoke to the Alleviate research team about his experiences. Watch the final episodes from the series 'Antony Chuter- Living with Pain and What is PPI?' |
Year(s) Of Engagement Activity | 2023 |
URL | https://alleviate.ac.uk/2023/05/11/ways-in-which-the-public-can-be-involved-with-research/ |