Creating Research Ecologies to Advance Transdiciplinary lEarning (CREATE) on arts-based programs through the study of adolescent loneliness

Lead Research Organisation: University of Leeds
Department Name: Sch of Languages, Cultures and Societies

Abstract

Arts-based mental health research, using creative practices like music, theatre, dance, drawing, poetry is enjoyed by many young people and can bring new insights and understanding about adolescent mental health in ways that traditional, often adult-led, research methods cannot. There is untapped potential to improve understanding of mental health if we could bring arts-approaches together with science and youth perspectives. However, this potential is held back by many research barriers. Scientists can find it hard to understand the processes and outcomes of arts-based research, meaning art-science collaborations face challenges. Youth, scientists and artists also have different vocabularies and research values. We are also without a shared view, across youth, scientists and artists, on how to interpret the meaning of the art produced by young people about their mental health. An understanding of exactly how and why arts-based approaches can be helpful to youth mental health is also lacking. Finally, arts researchers and youth can find the use of standardized measures of mental health, which are popular in science, difficult. Project CREATE will address each barrier by bringing youth, scientists and arts researchers together. We first conduct reviews of the main barriers and potential solutions and take these ideas into Living Labs. These bring youth lived experience into exploration around methods and interpretation with researchers. We focus our methods development in relation to adolescent loneliness as stimulus. Our ambition is to create a large resource hub, for anyone working at the intersection of arts, science and youth voice, presenting teaching tools, frameworks, glossaries, analysis methods and good practice guides to improve and optimise the learning we can glean from youth-informed, science friendly, arts-based research. Wide dissemination will be supported by the National Centre for Research Methods, and other networks, to both academic and non-academic research users.

Technical Summary

CREATE's goal is to improve transdisciplinary mental health research (MHR) across the arts and science by drawing on the strengths of each to inform the other, and by bringing these into dialogue with young people (YP). Arts-based approaches have well evidenced outcomes for youth MH. However, we lack shared vocabularies and methods, that 'make sense' across disciplines and youth, to interrogate their active processes (mechanisms of change) and to analyse the meaning in artistic outputs. Learning from these important and widely used approaches is therefore being constrained. Our objectives are to capitalise on the unique knowledges of art, science and YP to develop methods to unlock the learning potential from arts-based processes. Our interdisciplinary and youth consortium is uniquely positioned to produce an innovative transdisciplinary paradigm.
We address four unmet needs in adolescent MHR:1. resources to help this ecology better understand each other's vocabularies, values, perspectives and methods; 2. robust transdisciplinary methods for analysing artistic outputs of youth arts-based MHR; 3. characterisation and conceptualisation of key active processes in youth arts-based practices to increase transdisciplinary understanding of how these 'work' for MH; and, 4. integration of arts perspectives to overcome existing barriers to the use of standardised MH measures in arts approaches with YP.
We use Living Labs to optimise learning from arts, science and YP and to co-produce and test novel methods and resources addressing each unmet need. Labs build on initial wide scoping reviews of barriers and potential solutions to optimising learning across art, science and youth voice. We anchor the project to adolescent loneliness with learning transferable to other MH domains. Outputs will be made available through a new resource hub to support youth-science-art collaborations and widely disseminated through the National Centre for Research Methods and other platforms.
 
Description August Young Persons Advisory Group (YPAG) Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact An introduction to social action and the project that they will be creating and delivering as a group. introduced them to multiple online formats in which they could develop their ideas including blog, online zines, podcasts etc. We explored themes and issues which they feel are important and created a group 'skills CV' to help the group and individuals identify the roles that they might like to do during the project.
Year(s) Of Engagement Activity 2023
 
Description COMIC (Child Oriented Mental Health Innovation Collaboration) and University of Leeds - PPI methodology sharing. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Gathering of academics and researchers across multiple projects at the University of Leeds and Leeds and York Partnership NHS Foundation Trust COMIC York around participatory practice with young people and children. Presented on project CREATE's set up and progress regarding research focus and methodologies as well as the set up, engagement and considerations of the Project CREATE YPAG.
Year(s) Of Engagement Activity 2023
 
Description CPD Workshops 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Schools
Results and Impact Workshops on understanding neurodiversity, gender and adolescent mental health. These led to increased understanding of how to support autistic young people, and more awareness of their sensory needs. Teachers recognised the need for adaptations in classroom environments and curriculum.
Year(s) Of Engagement Activity 2023,2024
URL https://thebeacon.kent.sch.uk/
 
Description CREATE Living Lab #1 - Listening Lab 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact A two day face-to-face workshop with the YPAG and Co-I's of project CREATE delivered by musician and youth worker Paul Lewis of Mr Lewis Media and musician and academic Jackie Walduck from the Royal Academy of Music. The two days explored the terms related to mental health and research and their meanings as understood by the group who then transformed their understanding into either a group or solo musical performance using instruments and digital media platforms and soundscapes.
Year(s) Of Engagement Activity 2023
URL https://create.leeds.ac.uk/living-labs/
 
Description CREATE Living Lab #2 - Learning Lab 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact This is the second two day Living Lab workshop aimed at develop methods (accepted across youth, science, and art) to interpret the meaning and learning about mental health from youth-generated creative products in arts-based research. The workshop was facilitated by independent researcher, author, teacher, and speaker Helen Kara who specialises in research methods, particularly creative methods, and research ethics. The Living Lab brought together, in a live environment, young people (from our CREATE YPAG), social scientists, and arts researchers with the aim of generating and exploring up to five analytic frameworks that support transdisciplinary and youth-informed analysis of creative products generated in mental-health research.
Year(s) Of Engagement Activity 2024
 
Description December Young Persons Advisory Group (YPAG) Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact YPAG developing design ideas around campaign project raising awareness about adolescent loneliness. Group have identified project name - Not So Alone and identifying accurate and accesible design and marketing maerial to appeal to their peers.
Year(s) Of Engagement Activity 2023
 
Description Focus group - Listening Lab/Terms/Values 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Participants who completed the Delphi survey were subsequently invited to participate in a focus group session aimed at delving deeper into their interpretations of selected research and mental health terminology within their respective areas of expertise. The focus group comprised arts practitioners and social scientists from diverse backgrounds and disciplines.
Year(s) Of Engagement Activity 2023
 
Description January Young Persons Advisory Group (YPAG) Meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Group have begun to plan delivery of their campaign and have created a social media platform with supported media to improve reach of their campaign.
Year(s) Of Engagement Activity 2024
URL https://www.instagram.com/not.soalone/?hl=en-gb
 
Description July Young Persons Advisory Group (YPAG) Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Online YPAG meeting that 1. Reflected on the Listening Lab workshop, reviewed the groups feedback as well as the actions taken in response to these. 2. An introduction to analytical methodologies and the role that this would play in Project CREATEs second work-stream.
Year(s) Of Engagement Activity 2023
 
Description June Young Persons Advisory Group (YPAG) Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact YPAG members were able to meet Co-I's working on the project as well as an introduction to Agnes Wood the Public and Patient Engagement Ambassador for Leeds and York Partnership NHS Foundation Trust COMIC York. Aim of the session was 1.) To build contacts and connections between Co-I's and the YPAG as well as with external organisations. 2.)Continue to build relationships and rapport among the YPAG. 3.) Begin to explore the themes of the upcoming Living Lab - with a focus on how and when participants listen to music, the role that music plays in their everyday lives.
Year(s) Of Engagement Activity 2023
 
Description Listening Lab - Cornwall Regional Workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Study participants or study members
Results and Impact Collaborative day long workshop delivered in collaboration with Arts Well and Music for Good (in Cornwall) to ten young people aged 10-17. Workshop focused on exploring mental health and research terminology through the interpretation of the terminology (through music) by other young people and then the collaborative creation of a piece of music called 'Safe Space'.
Year(s) Of Engagement Activity 2023
URL https://create.leeds.ac.uk/project-create-in-cornwall-short-film/
 
Description May Young Persons Advisory Group (YPAG) Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Delivery of project CREATE first two hour online session with the newly formed YPAG group. The session began to introduce the young people to one another, the goals of the YPAG and project CREATE (with a focus on work stream one) and to build the foundations of a co-productive relationship. We introduced the group to Padlet and the 14 terms and values previously identified from the artists/scientist focus group held earlier in the month. The group was asked to identify the terms that they knew and give a brief description with either words or images of what they thought that term to mean.
Year(s) Of Engagement Activity 2023
 
Description October Young Persons Advisory Group (YPAG) Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact YPAG worked at understanding and developing the skills required to fully engage with their roles within their social action projects. The groups also created a 'Team Charter' to identify their preferred working practices when working with one another and the wider project CREATE team. Exploring boundaries, personal responsibilities and managing expectations on themselves and each other.
Year(s) Of Engagement Activity 2023
 
Description Participatory methods in mental health research with children and young people 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Networking event led by COMIC for researchers, academics and young perrson focused mental health organisations which: shared innovative ways to effectively co-produce research with young people; Discuss participatory research methods. Presentations delivered by:
Co-Production: Westfield Centre - Alexandra Tucker and Carrie Megaw
Young Children's Recommendations: Interview Methods for 4 to 5 Year Olds' - Arwa Katab
Creative participatory methods with children - Kara Gray-Burrows (BRUSH and Tooth PASTE)
Involving young people in research Mental health and gaming PPI - DR HANNAH ARMITT
CHILYPEP: Children and Young People's Empowerment Project - Presented by CHILYPEP participants
Year(s) Of Engagement Activity 2023
 
Description Project CREATE Content analysis with YPAG members 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact A two hour content analysis session run by Dr. Georgia Pavlopoulou with partiicpants from the Project CREATE YPAGs. Session took text transcribed from previous workshops and worked with the participants to help them provide their insight into the transcriptions.
Year(s) Of Engagement Activity 2024
 
Description September Young Persons Advisory Group (YPAG) Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact The groups narrowed down their social action project ideas (aimed at raising awareness about adolescent loneliness) by identifying the What they want to do and How they want to do it. Also presented the groups with the various roles a project needs and alongside their skills CV created in the precious session they identified the roles that they wanted to do.
Year(s) Of Engagement Activity 2023
 
Description WS1 - Delphi Survey 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact A survey was distributed to gather insights on research and mental health-related terminology, which were to be explored in the initial phase of our project. The survey was disseminated among project team members and other collaborators involved in mental health initiatives to solicit their perspectives on terms that pose challenges when working with young people, artists, and scientists in mental health projects.
Year(s) Of Engagement Activity 2023