MRC Centre for Neuropsychiatric Genetics and Genomics
Lead Research Organisation:
CARDIFF UNIVERSITY
Department Name: School of Medicine
Abstract
The main goal of the Centre is to understand how genes are involved in a range of common psychiatric and neurological disorders, and to use this knowledge to improve our understanding of how these diseases arise and to develop new approaches to diagnosis and treatment. We have known for a long time that genes play an important role in disorders such as schizophrenia, bipolar disorder, depression, attention deficit hyperactivity disorder (ADHD), Alzheimer disease and Parkinson disease. Now, using modern genetic technologies, we have begun to identify some of the specific genes involved. Centre scientists have been at the heart of these exciting developments, which have begun to yield novel insights into the brain mechanisms involved, and which have also raised important questions about the validity of current diagnostic approaches. For example our work has shown that intellectual disability, autism, ADHD and schizophrenia are likely to be much more closely related than previously believed. Our success with existing methods, together with the development of new approaches particularly the ability to determine the sequence of DNA (the genetic code) in large numbers of patients, means that we are confident that further work will allow us to identify more of the genes involved in these disorders and that this will deliver greater understanding into how these diseases arise and the relationships between them. Thus a major focus of ours over the next 5 years will be to continue our work aimed at identifying disease genes in these disorders and in understanding how genetic risk operates both across and within current diagnostic categories.
The second major focus of our work will be look at how risk genes lead to illness. This will be essential if we are to understand the mechanisms by which these diseases come about. This work will use a variety of approaches. First, we will look at the impact of risk genes in the general population for example on indexes of brain and cognitive development in the case of psychiatric disorders and on markers of inflammation, and cardiovascular health in the case of Alzheimer disease. This will help us understand how disease develops across the lifespan, and identify potentially modifiable risk factors or makers of those at increased risk of subsequent disease. The latter will be important for future studies aimed at early intervention. Second, we will develop animal and cellular models allowing us to study in detail the impact of risk genes on the function of nerve cells and brain circuits and on behaviour. Finally, we will study in human volunteers and patients how risk genes impact on brain structure and function using brain imaging methods. By studying cells, animals and patients we will be able to link abnormalities in brain function and behaviour seen in patients to abnormalities in cells and brain circuits. This will help us develop methods to stratify patient populations into specific groups for treatment studies as well to understand the mechanisms by which these diseases develop. These advances will be essential if we are to develop novel and more effective treatments for these disabling conditions.
The second major focus of our work will be look at how risk genes lead to illness. This will be essential if we are to understand the mechanisms by which these diseases come about. This work will use a variety of approaches. First, we will look at the impact of risk genes in the general population for example on indexes of brain and cognitive development in the case of psychiatric disorders and on markers of inflammation, and cardiovascular health in the case of Alzheimer disease. This will help us understand how disease develops across the lifespan, and identify potentially modifiable risk factors or makers of those at increased risk of subsequent disease. The latter will be important for future studies aimed at early intervention. Second, we will develop animal and cellular models allowing us to study in detail the impact of risk genes on the function of nerve cells and brain circuits and on behaviour. Finally, we will study in human volunteers and patients how risk genes impact on brain structure and function using brain imaging methods. By studying cells, animals and patients we will be able to link abnormalities in brain function and behaviour seen in patients to abnormalities in cells and brain circuits. This will help us develop methods to stratify patient populations into specific groups for treatment studies as well to understand the mechanisms by which these diseases develop. These advances will be essential if we are to develop novel and more effective treatments for these disabling conditions.
Technical Summary
We have established a Centre of Excellence in psychiatric genetics, focusing on psychiatric and neurodegenerative disorders such as schizophrenia, bipolar disorder, depression, ADHD, Alzheimer disease and Parkinson disease. Over the next 5 years we will retain a strong focus on gene discovery in order to deliver further important insights into disease pathogenesis. We will do this though our clinical, genetic and statistical expertise, our access to suitable patient cohorts, and our proven ability to participate in and provide leadership in large consortia. We will also continue to benefit from our structure of overlapping disease themes supported by a strong genomics, statistical and bioinformatics core. There will be an increasing focus on identifying rare mutations by NGS, and on understanding the significance of genetic findings for risk mechanisms, which will require integration with data from a variety of sources. Moreover, we are now well placed to use genetic findings to obtain greater understanding of pathogenic mechanisms, improve classification, identify biomarkers to aid prediction and intervention and identify novel treatment targets. Broadly speaking this work will take place in two settings. First we will explore the factors that mediate the effects of risk alleles on clinical phenotypes in longitudinal, population-based cohorts and identify biomarkers and modifiable markers of risk through integration of data from other risk factors, gene expression and epigenomics. Second, we will study the impact of risk alleles at molecular, cellular and systems levels through our imaging and cellular/animal models themes. Work in these areas will benefit from our access to patients carrying specific rare, high-penetrance mutations and has been greatly strengthened by our central participation in the Cardiff University Neuroscience and Mental Health Research Institute with which we will be co-located in the new Hadyn Ellis building.
Planned Impact
The main aim of the Centre is to understand how genes are involved in common psychiatric and neurological disorders, and to use this knowledge to improve our understanding of how these diseases arise and to develop new approaches to diagnosis and treatment. The personal and economic burden of these disorders is the largest of all categories of disorder and the development of more effective therapies is a pressing requirement for global health and wellbeing. There will thus be many beneficiaries of our work including sufferers, their families and the wider population upon which much of the economic burden falls. All of the Centre's programmes have specific non-academic impacts linked to their own communications plans. Here we focus on the most immediate areas of impact for the Centre as a whole.
Commercial and Private Sector
The identification of disease risk alleles is of profound interest to molecular, cellular and systems neuroscientists working in the pharmaceutical industry (e.g. Lilly, AZ, Janssen). This allows disease risk to be modeled in systems that are tractable to invasive measurement and intervention, which will be essential in order to identify disease mechanisms and novel drug targets. Those risk alleles that have been identified to date have been the focus of intense industry scrutiny and those emerging from our future work will attract the same level of interest. In addition the rat models we will develop and validate as part of the DEFINE programme will be made available to industry via our agreement with Sigma-Aldrich as will iPSC derived neurons from our patient cohorts via StemBANCC. Our validation of novel animal models of psychiatric disorders will benefit our partners Sigma-Aldrich. Our work on cognition and neuroimaging in relation to genetic risk factors will inform the development of new biomarkers for patient stratification in drug trails and for use as surrogate endpoints in experimental medicine and early phase clinical trials.
Public sector, policy and practice
Our genetics work and theorising has already spearheaded contemporary debate about psychiatric classification and diagnosis. Our future findings on the genetic overlaps and distinctions between current diagnostic groups will continue to inform this debate as psychiatry moves inexorably from the current descriptive system to one that is more in tune with underlying pathogenesis. Our work on genetic and other epidemiological risk markers will be relevant to early diagnosis and identification of those at risk of subsequent psychiatric and neurodevelopmental disorders. These studies will also allow hypothesis-driven studies of causal processes in the general population as well as in clinical samples and longitudinal and quasi-experimental designs. This will inform future intervention policies.
Wider public
Engagement with the general public and with patients and carers is an important part of our mission. This serves not only to communicate our research findings and their relevance but also to address such issues as stigma and the research culture in the NHS in relation to Mental Health. Our commitment to this is based upon our belief that instead of regarding severe mental illnesses as essentially incurable conditions for which the therapeutic focus should be largely palliative, we should regard them as brain disorders which are increasingly tractable to research in genetics, neuroscience, epidemiology etc. We therefore aim to promote research into severe mental illness that focuses not only upon evaluating new models for delivering care but also on understanding pathogenesis and pathophysiology and developing new approaches to treatment.
Skills and Training
We train staff in genetics, statistics, bioinformatics, neuroscience, psychology and psychiatry. Their skills are applicable not only in academia but also more widely including in industry, the NHS, education and policy making.
Commercial and Private Sector
The identification of disease risk alleles is of profound interest to molecular, cellular and systems neuroscientists working in the pharmaceutical industry (e.g. Lilly, AZ, Janssen). This allows disease risk to be modeled in systems that are tractable to invasive measurement and intervention, which will be essential in order to identify disease mechanisms and novel drug targets. Those risk alleles that have been identified to date have been the focus of intense industry scrutiny and those emerging from our future work will attract the same level of interest. In addition the rat models we will develop and validate as part of the DEFINE programme will be made available to industry via our agreement with Sigma-Aldrich as will iPSC derived neurons from our patient cohorts via StemBANCC. Our validation of novel animal models of psychiatric disorders will benefit our partners Sigma-Aldrich. Our work on cognition and neuroimaging in relation to genetic risk factors will inform the development of new biomarkers for patient stratification in drug trails and for use as surrogate endpoints in experimental medicine and early phase clinical trials.
Public sector, policy and practice
Our genetics work and theorising has already spearheaded contemporary debate about psychiatric classification and diagnosis. Our future findings on the genetic overlaps and distinctions between current diagnostic groups will continue to inform this debate as psychiatry moves inexorably from the current descriptive system to one that is more in tune with underlying pathogenesis. Our work on genetic and other epidemiological risk markers will be relevant to early diagnosis and identification of those at risk of subsequent psychiatric and neurodevelopmental disorders. These studies will also allow hypothesis-driven studies of causal processes in the general population as well as in clinical samples and longitudinal and quasi-experimental designs. This will inform future intervention policies.
Wider public
Engagement with the general public and with patients and carers is an important part of our mission. This serves not only to communicate our research findings and their relevance but also to address such issues as stigma and the research culture in the NHS in relation to Mental Health. Our commitment to this is based upon our belief that instead of regarding severe mental illnesses as essentially incurable conditions for which the therapeutic focus should be largely palliative, we should regard them as brain disorders which are increasingly tractable to research in genetics, neuroscience, epidemiology etc. We therefore aim to promote research into severe mental illness that focuses not only upon evaluating new models for delivering care but also on understanding pathogenesis and pathophysiology and developing new approaches to treatment.
Skills and Training
We train staff in genetics, statistics, bioinformatics, neuroscience, psychology and psychiatry. Their skills are applicable not only in academia but also more widely including in industry, the NHS, education and policy making.
Organisations
- CARDIFF UNIVERSITY (Lead Research Organisation)
- Friedrich-Alexander University Erlangen-Nuremberg (Collaboration)
- University of Zurich (Collaboration)
- Neuroscience; IOP (Collaboration)
- University of Liege (Collaboration)
- International Multicentre persistent ADHD CollaboraTion (IMpACT) (Collaboration)
- Massachusetts General Hospital (Collaboration)
- Jackson Laboratory (Collaboration)
- Stanford University (Collaboration)
- Genetic and Environmental Risk in Alzheimer's Disease (GERAD) (Collaboration)
- Medical Research Council (MRC) (Collaboration)
- University of Navarra (Collaboration)
- Lancaster University (Collaboration)
- Sapienza University of Rome (Collaboration)
- University Duisburg-Essen (Collaboration)
- German Centre for Neurodegenerative Diseases (Collaboration)
- UNIVERSITY OF CAMBRIDGE (Collaboration)
- UNIVERSITY OF EXETER (Collaboration)
- MRC Harwell Institute (Collaboration)
- UNIVERSITY OF OXFORD (Collaboration)
- Universität Hamburg (Collaboration)
- Mayo Foundation for Medical Education and Research (MFMER) (Collaboration)
- University of Lille (Collaboration)
- National Institutes of Health (NIH) (Collaboration)
- KING'S COLLEGE LONDON (Collaboration)
- Psychiatric Genomics Consortium (PGC) (Collaboration)
- Eisai Ltd (Collaboration)
- Medical University of Sofia (Collaboration)
- Health and Care Research Wales (Collaboration)
- Broad Institute (Collaboration)
- AstraZeneca (Collaboration)
- UNIVERSITY OF EDINBURGH (Collaboration)
- University of Dublin (Collaboration)
- Central Institute for Mental Health (Collaboration)
- Hospital de Sant Pau (Collaboration)
- Social Research Unit at Dartington (Collaboration)
- UNIVERSITY OF LIVERPOOL (Collaboration)
- GlaxoSmithKline (GSK) (Collaboration)
- Mount Sinai Hospital (USA) (Collaboration)
- University of Bristol (Collaboration)
- Italian Institute of Technology (Istituto Italiano di Tecnologia IIT) (Collaboration)
- CHDI Foundation (Collaboration)
- Foundation for Prader-Willi Research (FPWR) (Collaboration)
- University of Oviedo (Collaboration)
- National Institute for Health Research (Collaboration)
- Trinity College Dublin (Collaboration)
- University of Sussex (Collaboration)
- University of Oregon (Collaboration)
- BANGOR UNIVERSITY (Collaboration)
- Bliss (Collaboration)
- Asterand (Collaboration)
- Karolinska Institute (Collaboration)
- Catalan Health Institute (ICS) (Collaboration)
- University of California, San Francisco (Collaboration)
- The Wellcome Trust Sanger Institute (Collaboration)
- Helmholtz Association of German Research Centres (Collaboration)
- OXFORD UNIVERSITY HOSPITALS NHS FOUNDATION TRUST (Collaboration)
- EMBL European Bioinformatics Institute (EMBL - EBI) (Collaboration)
- University of Bath (Collaboration)
- University of Pennsylvania (Collaboration)
- GW Pharmaceuticals (Collaboration)
- Ludwig Maximilian University of Munich (LMU Munich) (Collaboration)
- UNIVERSITY OF SOUTHAMPTON (Collaboration)
- Cardiff Metropolitan University (Collaboration)
- HARVARD UNIVERSITY (Collaboration)
- National Institute of Health and Medical Research (INSERM) (Collaboration)
- Fondazione Santa Lucia (Collaboration)
- Wellcome Trust (Collaboration)
- EU-T0 (Collaboration)
- National Center for Biotechnology Information (NCBI) (Collaboration)
- QUEEN'S UNIVERSITY BELFAST (Collaboration)
- Boston University (Collaboration)
- University of California, Irvine (Collaboration)
- Genomics England (Collaboration)
- SWANSEA UNIVERSITY (Collaboration)
- University of Glasgow (Collaboration)
- Brigham Young University (Collaboration)
- JPND Research (Collaboration)
- Autonomous University of Madrid (Collaboration)
- Cardiff University (Collaboration)
- Goethe University Frankfurt (Collaboration)
- Royal College of Surgeons in Ireland (Collaboration)
- FACE Recording & Measurement Systems Ltd (Collaboration)
- Government of Wales (Collaboration)
- Albert Ludwig University of Freiburg (Collaboration)
- Universidade de São Paulo (Collaboration)
- University College London (Collaboration)
- University of Manchester (Collaboration)
- UNIVERSITY OF NOTTINGHAM (Collaboration)
- Washington University in St. Louis (Collaboration)
- Takeda Pharmaceutical Company (Collaboration)
- Renishaw (United Kingdom) (Collaboration)
- Freie Universität Berlin (Collaboration)
- Syracuse University (Collaboration)
- Genetic Architecture of Rate of Alzheimer’s Decline (GENAROAD) Consortium (Collaboration)
- Psychiatric GWAS Consortium (PGC) (Collaboration)
- University of Cantabria (Collaboration)
- Saarland University (Collaboration)
- University of Leuven (Collaboration)
- University of Washington (Collaboration)
- University of Bonn (Collaboration)
- University of Würzburg (Collaboration)
People |
ORCID iD |
| Michael Owen (Principal Investigator) |
Publications
Absoud M
(2017)
A multicentre randomiSed controlled TRial of IntraVEnous immunoglobulin compared with standard therapy for the treatment of transverse myelitis in adults and children (STRIVE).
in Health technology assessment (Winchester, England)
Abu-Akel A
(2017)
Autistic and schizotypal traits and global functioning in bipolar I disorder.
in Journal of affective disorders
Adam M
(2017)
EHMT1/GLP; Biochemical Function and Association with Brain Disorders
in Epigenomes
Adams RL
(2023)
Psychopathology in adults with copy number variants.
in Psychological medicine
Addicoat A
(2020)
Adult mood problems in children with neurodevelopmental problems: evidence from a prospective birth cohort followed to age 50.
in Social psychiatry and psychiatric epidemiology
Adegboye D
(2021)
Understanding why the COVID-19 pandemic-related lockdown increases mental health difficulties in vulnerable young children
in JCPP Advances
Adegboye D
(2022)
Understanding de novo onset of anxiety during COVID-19: Pre-pandemic socio-emotional functioning in vulnerable children.
in JCPP advances
Agbaje A
(2023)
Elevated Blood Pressure and Worsening Cardiac Damage During Adolescence
in The Journal of Pediatrics
Agbaje AO
(2023)
Associations of Sedentary Time and Physical Activity From Childhood With Lipids: A 13-Year Mediation and Temporal Study.
in The Journal of clinical endocrinology and metabolism
| Description | Alzheimer Disease and APOE genotyping |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | Biomarkers in HD Group |
| Geographic Reach | Multiple continents/international |
| Policy Influence Type | Participation in a guidance/advisory committee |
| URL | https://www.ninds.nih.gov/Disorders/All-Disorders/Huntingtons-Disease-Information-Page |
| Description | Deputy Director DPUK |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Membership of a guideline committee |
| Description | Development of the world's first interactive programme to help sufferers of bipolar disorder better manage their conditions |
| Geographic Reach | National |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Impact | This has allowed those who suffer with bipolar disorder to better manager their conditions. |
| Description | Early Intervention for Psychosis in Wales |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Impact | I sit on the Welsh Early Intervention in Psychosis steering and advisory group. This is led by Public Health Wales and oversees a commitment of £1M from Welsh government which has been committed in recent years following consultation and lobbying by the national group on which I am the psychiatric lead. |
| Description | European Huntington's Disease Network (EHDN) |
| Geographic Reach | Europe |
| Policy Influence Type | Membership of a guideline committee |
| Impact | Aims to improve the quality of life and treatment available to HD patients and their families. Has working groups producing guidelines on specific issues in HD. Has updated genetic counselling and quality of life guidelines in HD in the past. Current initiatives include consideration and production of new guidelines for driving in HD, dysphagia in HD, reporting of incidental findings in HD. |
| URL | http://www.ehdn.org/ |
| Description | FPWR Pre-Clinical Animal Network |
| Geographic Reach | Multiple continents/international |
| Policy Influence Type | Participation in a guidance/advisory committee |
| URL | http://research.fpwr.org/blog/de-risking-pws-drug-development-through-preclinical-screening |
| Description | Founded and chair Campaign Working Group for Maternal Mental Health Alliance |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| Impact | Through Comic Relief Funded campaign "Everyone's Business" - have influenced provision of Perinatal Mental Health Services in UK. With 375 million pounds of new funding being committed to the development of new specialist services. |
| URL | http://everyonesbusiness.org.uk |
| Description | Huntington Society of Canada Research Board |
| Geographic Reach | North America |
| Policy Influence Type | Participation in a guidance/advisory committee |
| URL | https://www.huntingtonsociety.ca/ |
| Description | MQ Funding Priority Setting Meeting on Adolescent Mental Health |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | MRC Expert Group Discussion on Child and Adolescent Mental Health |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | Member FRIMEDBIO Panel 7 (Neuroscience) Research Council of Norway |
| Geographic Reach | Europe |
| Policy Influence Type | Participation in a guidance/advisory committee |
| URL | https://www.forskningsradet.no/en/Funding/FRIMEDBIO/1208964208385 |
| Description | Member of the BAP guidelines group on Bipolar Disorder |
| Geographic Reach | Multiple continents/international |
| Policy Influence Type | Membership of a guideline committee |
| Description | Member of the Executive Committee on ECT at the RCPsych |
| Geographic Reach | National |
| Policy Influence Type | Membership of a guideline committee |
| Impact | I am promoting the use of ECT and the use of maintenance ECT in the UK. This has already resulted in better acceptance of these treatments. |
| Description | Membership of ARUK grant review board |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | Paper (2016) Thapar A, Cooper M, Rutter M, Neurodevelopmental Disorders: a personal view, The Lancet Psychiatry [Epub ahead of print] |
| Geographic Reach | National |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Description | Paper in Child Psychology Psychiatry entitled "What have we learnt about the causes of ADHD?" |
| Geographic Reach | National |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Description | Paper in The Lancet entitled "Attention Deficit Hyperactivity Disorder" [In Press] 2016 |
| Geographic Reach | Europe |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Description | Speaking at V Annual Meeting on Therapeutics in Psychiatry, Barcelona, 2015 |
| Geographic Reach | Europe |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Description | Speaking at the Together for Children and Young People Conference, Cardiff, 22 June 2015 |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Description | Wellcome Trust Biomedical Resources and Technology Development Board |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| URL | https://wellcome.ac.uk/ |
| Description | Work on the penetrance of CNVs |
| Geographic Reach | Multiple continents/international |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Description | "UK DRI IPSC platform to model Alzheimer's disease risk (IPMAR) " |
| Amount | £1,866,149 (GBP) |
| Organisation | UK Dementia Research Institute |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 01/2021 |
| End | 07/2023 |
| Description | 1/3 genetic analysis of the international cohort collection for bipolar disorder |
| Amount | £101,154 (GBP) |
| Funding ID | MH106531-02 |
| Organisation | National Institute of Mental Health |
| Sector | Hospitals |
| Country | Sri Lanka |
| Start | 03/2015 |
| End | 01/2018 |
| Description | 3/3 Sequencing and Trans-Diagnostic Phenotyping of Severe Mental Illness in Diverse Populations |
| Amount | £413,336 (GBP) |
| Organisation | National Institute of Mental Health |
| Sector | Public |
| Country | United States |
| Start | 08/2022 |
| End | 08/2027 |
| Description | 5/7 Psychiatric genomics consortium: Advancing discovery and impact |
| Amount | £334,877 (GBP) |
| Organisation | National Institutes of Health (NIH) |
| Sector | Public |
| Country | United States |
| Start | 03/2021 |
| End | 02/2026 |
| Description | 5/7 Psychiatric genomics consortium: Finding actionable variation |
| Amount | £905,712 (GBP) |
| Funding ID | MH109514-01 |
| Organisation | National Institutes of Health (NIH) |
| Department | National Institute of Mental Health (NIMH) |
| Sector | Public |
| Country | United States |
| Start | 05/2016 |
| End | 03/2018 |
| Description | 7/9 rare genetics disorders as a window into the genetic architecture of mental disorders |
| Amount | £438,741 (GBP) |
| Organisation | National Institutes of Health (NIH) |
| Sector | Public |
| Country | United States |
| Start | 07/2019 |
| End | 03/2024 |
| Description | A 'Dark Genome' analysis suite |
| Amount | £690,000 (GBP) |
| Organisation | European Social Fund (Welsh Government/ EU) |
| Sector | Public |
| Country | United Kingdom |
| Start | 05/2020 |
| End | 03/2023 |
| Description | A Stratified Treatment Algorithm in Psychiatry: A program on stratified pharmacogenomics in severe mental illness |
| Amount | £399,100 (GBP) |
| Organisation | Innovate UK |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2022 |
| End | 09/2027 |
| Description | A detailed clinical-radiological correlation of disability in Multiple Sclerosis |
| Amount | £34,000 (GBP) |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 07/2015 |
| End | 07/2016 |
| Description | A device for delivering stem cell therapies to the human brain |
| Amount | £74,812 (GBP) |
| Organisation | European Social Fund (Welsh Government/ EU) |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2017 |
| End | 03/2018 |
| Description | A genetic study of the implications of gender in ADHD and other neurodevelopmental disorders |
| Amount | £250,000 (GBP) |
| Funding ID | 106047/Z/14/Z |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 01/2015 |
| End | 01/2019 |
| Description | A genomic medicine approach to identifying novel drug targets for Parkinson's disease |
| Amount | £45,903 (GBP) |
| Funding ID | Co-applicant |
| Organisation | Parkinson's UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2017 |
| End | 07/2018 |
| Description | A genomic medicine approach to identifying novel drug targets for dementia |
| Amount | £45,904 (GBP) |
| Funding ID | ARUK-PPG2017A-10 |
| Organisation | Alzheimer's Research UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 11/2017 |
| End | 10/2018 |
| Description | A high content analysis platform for analysing dementia-associated genetic variation |
| Amount | £108,300 (GBP) |
| Funding ID | ARUK-EG2017A-1 |
| Organisation | Alzheimer's Research UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2017 |
| End | 09/2017 |
| Description | A long term follow up study for MS patients who have completed the alumtuzumab extension study |
| Amount | £7,467 (GBP) |
| Organisation | Cardiff and Vale University Health Board |
| Sector | Public |
| Country | United Kingdom |
| Start | 05/2015 |
| End | 05/2020 |
| Description | A multi-center, open-label study evaluating the safety, tolerability and efficacy of pridopidine in patients with Huntington's disease (open PRIDE-HD) |
| Amount | £3,485 (GBP) |
| Organisation | Cardiff and Vale University Health Board |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2016 |
| End | 01/2018 |
| Description | A multi-site, prospective, longitudinal, cohort study measuring cerebrospinal fluid-mutant Huntington protein in patients with Huntington's disease |
| Amount | £45,500 (GBP) |
| Organisation | F. Hoffmann-La Roche AG |
| Sector | Private |
| Country | Global |
| Start | 01/2019 |
| End | 02/2021 |
| Description | A non-interventional post-authorisation safety study to investigate the risk of mortality in multiple sclerosis patients treated with alemtuzumab (LEMTRADA®) relative to comparable multiple sclerosis patients using other disease modifying therapies: |
| Amount | £1,305,612 (GBP) |
| Organisation | Sanofi |
| Sector | Private |
| Country | Global |
| Start | 06/2021 |
| End | 12/2024 |
| Description | A phase 2, dose escalating randomised parallel group double blind controlled study evaluating the safety and efficacy of pridopidine twice daily versus placebo for symptomatic treatment in patients with Huntington's disease |
| Amount | £70,220 (GBP) |
| Organisation | TEVA Pharmaceuticals |
| Sector | Private |
| Country | Israel |
| Start | 11/2014 |
| End | 11/2016 |
| Description | A phase 2, randomised, placebo-controlled, double blind, proof of concept study of the efficacy and safety of PF-02545920 in subjects with Huntington's Disease |
| Amount | £7,711 (GBP) |
| Organisation | Cardiff and Vale University Health Board |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2015 |
| End | 12/2017 |
| Description | A prospective multicentre observational post authorisation safety to evaluate the long term safety profile of lemtrada treatment in patients with relapsing forms of MS |
| Amount | £3,910 (GBP) |
| Organisation | Cardiff and Vale University Health Board |
| Sector | Public |
| Country | United Kingdom |
| Start | 11/2015 |
| End | 10/2020 |
| Description | A prospective, observational study to evaluate quality of life, patient reported outcomes, and safety in patients with relapsing-remitting Multiple Sclerosis who are being treated with Alemtuzumab (Lemtrada) in routine clinical practice |
| Amount | £1,456 (GBP) |
| Organisation | Sanofi |
| Sector | Private |
| Country | Global |
| Start | 12/2016 |
| End | 12/2019 |
| Description | A randomised, double blind placebo-controlled study to evaluate the safety, tolerability, pharmacokinetics, and pharmacodynamics of multiple ascending doses of intrathecally administered ISIS 443139 in patients with early manifest Huntingtons disease |
| Amount | £99,991 (GBP) |
| Organisation | Ionis Pharmaceuticals |
| Sector | Private |
| Country | United States |
| Start | 01/2017 |
| End | 12/2019 |
| Description | A randomized multicentre, double-blind placebo-controlled phase III clinical study to evaluate the efficacy and safety of intrathecally administered R07234292 (RG6042) in patients with manifest Huntington's disease |
| Amount | £64,701 (GBP) |
| Organisation | Roche Pharmaceuticals |
| Sector | Private |
| Country | Global |
| Start | 01/2019 |
| End | 05/2022 |
| Description | A study of prognostic and disease related biomarkers in MS and related disorders |
| Amount | £103,508 (GBP) |
| Organisation | Cardiff and Vale University Health Board |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2015 |
| End | 06/2018 |
| Description | ARUK Wales Network Centre |
| Amount | £40,000 (GBP) |
| Organisation | Alzheimer's Research UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 08/2017 |
| End | 08/2018 |
| Description | Addressing the global challenge of child mental health - a cross country comparison of temporal change in child emotional and conduct problems in the UK and Brazil |
| Amount | £6,583 (GBP) |
| Funding ID | 523678 |
| Organisation | The British Academy |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 07/2023 |
| End | 08/2024 |
| Description | Adolescent Data Platform - Co-Applicant |
| Amount | £799,963 (GBP) |
| Funding ID | MQBF/3 |
| Organisation | MQ Mental Health Research |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 02/2018 |
| End | 01/2020 |
| Description | Adult outcomes of childhood neurodevelopment problems |
| Amount | £20,494 (GBP) |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 06/2015 |
| End | 06/2016 |
| Description | Advanced pharmacological characterisation of a novel neuroprotective and cognitive enhancer drug for the treatment of neurodegenerative disorders |
| Amount | £49,423 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 07/2018 |
| End | 04/2019 |
| Description | Advancing a stem cell therapy for Huntington's disease towards the clinic |
| Amount | £49,776 (GBP) |
| Funding ID | 525506 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2024 |
| End | 05/2024 |
| Description | Allosteric modulators of extrasynaptic GABAA receptors for the treatment of postpartum depression |
| Amount | £2,220,683 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2022 |
| End | 12/2023 |
| Description | Alzheimer's Research UK Wales Network Centre |
| Amount | £40,000 (GBP) |
| Organisation | Alzheimer's Research UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 08/2016 |
| End | 08/2017 |
| Description | An observational study of neurocognitive function in patients undergoing stereotactic radiosurgery at Velindre Cancer Centre |
| Amount | £75,000 (GBP) |
| Funding ID | Co-applicant |
| Organisation | Velindre NHS Trust |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2017 |
| End | 02/2019 |
| Description | An open label extension study to investigate the long term safety, tolerability and efficacy of PF-02545920 in subjects with Huntington's disease who previously completed study A8241021 |
| Amount | £33,761 (GBP) |
| Organisation | Cardiff and Vale University Health Board |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2015 |
| End | 12/2017 |
| Description | An open-label extension study to evaluate the long-term safety and tolerability of intrathecally administered R07234292 (RG6042) in patients with Huntington's disease (BN40955) |
| Amount | £58,776 (GBP) |
| Organisation | Roche Pharmaceuticals |
| Sector | Private |
| Country | Global |
| Start | 09/2019 |
| End | 03/2023 |
| Description | An open-label extension study to evaluate the safety, tolerability, pharmacokinetics and pharmacodynamics of ISIS 443139 in Huntington's Disease patients who participated in prior investigational studies of ISIS 443139 |
| Amount | £57,291 (GBP) |
| Organisation | Ionis Pharmaceuticals |
| Sector | Private |
| Country | United States |
| Start | 03/2018 |
| End | 10/2019 |
| Description | Are Sleep Difficulties in ADHD an index of neurodevelopmental severity? - Co-Applicant |
| Amount | £57,539 (GBP) |
| Organisation | The Waterloo Foundation |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2017 |
| End | 07/2019 |
| Description | Are astrocytes required for optimal survival and function of dopaminergic implants |
| Amount | £19,812 (GBP) |
| Funding ID | G-1105 |
| Organisation | Parkinson's UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 06/2015 |
| End | 06/2016 |
| Description | Attention Deficit Hyperactivity Disorder |
| Amount | £250,000 (GBP) |
| Funding ID | Maria Niarchou |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 05/2016 |
| End | 05/2020 |
| Description | Attention Deficit Hyperactivity Disorder (ADHD) inattention symptoms as antecedents of later psychotic outcomes in 22q11.2 deletion syndrome and the contribution of genetic risk |
| Amount | £250,000 (GBP) |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 05/2016 |
| End | 05/2020 |
| Description | Automated assessment of timing and movement signatures in Huntington's disease |
| Amount | £41,672 (GBP) |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 01/2016 |
| End | 12/2016 |
| Description | Bioinformatics and Functional Genomics |
| Amount | £1,250,000 (GBP) |
| Organisation | UK Dementia Research Institute |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2023 |
| End | 03/2028 |
| Description | Biological dissection of phenotypic heterogeneity in HD |
| Amount | £100,000 (GBP) |
| Organisation | UK Dementia Research Institute |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2018 |
| End | 03/2022 |
| Description | Biomarkers in pain in Parkinson's disease |
| Amount | £5,000 (GBP) |
| Funding ID | K-1301 |
| Organisation | Parkinson's UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 05/2017 |
| End | 08/2017 |
| Description | Bipolar Education Programme (BEPC) |
| Amount | £5,000 (GBP) |
| Organisation | Baily Thomas Charitable Fund |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 11/2016 |
| End | 10/2017 |
| Description | Brain Repair And Intracranial Neurotherapeutics Unit |
| Amount | £787,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2020 |
| End | 03/2023 |
| Description | Brain Repair and Intracranial Neurotherapeutics (BRAIN) Unit |
| Amount | £757,000 (GBP) |
| Organisation | Government of Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2020 |
| End | 03/2023 |
| Description | Brain Repair and Intracranial Neurotherapeutics - the Wales BRAIN Unit |
| Amount | £800,000 (GBP) |
| Organisation | Welsh Assembly |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2018 |
| End | 03/2020 |
| Description | Brain Repair and Intracranial Neurotherapeutics - the Wales BRAIN Unit |
| Amount | £1,200,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2015 |
| End | 03/2018 |
| Description | CONNECT: Digital markers to predict psychosis relapse |
| Amount | £709,432 (GBP) |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 11/2022 |
| End | 03/2027 |
| Description | Cardiff Fetal Tissue Bank |
| Amount | £202,304 (GBP) |
| Funding ID | MR/M02475X/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2015 |
| End | 03/2018 |
| Description | Cardiff Translational Drug Discovery Centre (CTDDC) |
| Amount | £2,312,749 (GBP) |
| Funding ID | Co-applicant |
| Organisation | Government of Wales |
| Department | Welsh European Funding Office |
| Sector | Public |
| Country | United Kingdom |
| Start | 08/2017 |
| End | 08/2022 |
| Description | Cell therapy for Huntington's disease, addressing critical knowledge gaps |
| Amount | £2,495,569 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2021 |
| End | 12/2025 |
| Description | Cell-specific gene regulation in the developing human brain and genetic risk for neuropsychiatric disorders |
| Amount | £553,942 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 11/2019 |
| End | 04/2022 |
| Description | Cell-specific gene regulation in the developing human brain and genetic risk for neuropsychiatric disorders |
| Amount | £553,942 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 11/2019 |
| End | 04/2022 |
| Description | Cell-specific gene regulation in the developing human brain and genetic risk for neuropsychiatric disorders |
| Amount | £553,942 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 11/2019 |
| End | 04/2022 |
| Description | Cell-specific genetic regulatory mechanisms mediating risk for neuropsychiatric disorders in the developing human brain |
| Amount | £651,559 (GBP) |
| Funding ID | 524104 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2023 |
| End | 03/2026 |
| Description | Cellular and molecular brain research |
| Amount | £320,235 (GBP) |
| Organisation | Blake Morgan LLP |
| Sector | Private |
| Country | United Kingdom |
| Start | 01/2021 |
| End | 12/2025 |
| Description | Centre for Ageing and Dementia Research (CADR) |
| Amount | £386,341 (GBP) |
| Organisation | Welsh Assembly |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2018 |
| End | 03/2020 |
| Description | Centre for Ageing and Dementia Research (CADR) |
| Amount | £1,200,000 (GBP) |
| Funding ID | 507827 |
| Organisation | Welsh Assembly |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2015 |
| End | 03/2018 |
| Description | Centre of Excellence in Adolescent Mental Health |
| Amount | £10,000,000 (GBP) |
| Organisation | The Wolfson Foundation |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2020 |
| End | 03/2026 |
| Description | Characterisation of a cortical FoxP1 |
| Amount | £1,500 (GBP) |
| Funding ID | 202632/Z/16/Z |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 06/2016 |
| End | 08/2016 |
| Description | Characterisation of the natural history of HD and assessment of feasibility of HD clinical research within the network of HD clinical centres |
| Amount | £1,151,043 (GBP) |
| Organisation | University Hospital Ulm |
| Sector | Hospitals |
| Country | Germany |
| Start | 01/2016 |
| End | 12/2018 |
| Description | Characterisation of the neural basis underlaying appetitive extinction in a model of psychosis disorders |
| Amount | £2,456 (GBP) |
| Organisation | Ruhr University Bochum |
| Sector | Academic/University |
| Country | Germany |
| Start | 09/2020 |
| End | 12/2020 |
| Description | Characterising Genetic Modifiers of Huntington's Disease |
| Amount | £698,022 (GBP) |
| Organisation | CHDI Foundation |
| Sector | Charity/Non Profit |
| Country | United States |
| Start | 09/2021 |
| End | 09/2023 |
| Description | Characterising the dynamics of repeat expansion in Huntington's disease |
| Amount | £85,000 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2018 |
| End | 09/2021 |
| Description | Characterising the effects of genetic modifiers of Huntington's disease in the R6/1 HD mouse model |
| Amount | £199,788 (GBP) |
| Funding ID | 109087/Z/15/A |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2016 |
| End | 09/2019 |
| Description | Comorbidity and synapse biology in clinically overlapping psychiatric disorders (COSYN) |
| Amount | € 224,500 (EUR) |
| Organisation | European Commission H2020 |
| Sector | Public |
| Country | Belgium |
| Start | 01/2016 |
| End | 12/2020 |
| Description | Comorbidity and synapse biology in clinically overlapping psychiatric disorders (COSYN) |
| Amount | € 224,500 (EUR) |
| Funding ID | 667301 |
| Organisation | European Commission |
| Sector | Public |
| Country | European Union (EU) |
| Start | 01/2016 |
| End | 12/2020 |
| Description | Computational Analysis of brain transcriptomics and psychiatric risk genes |
| Amount | £2,100 (GBP) |
| Organisation | Universities UK |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 05/2020 |
| End | 11/2021 |
| Description | Consultation on the exploitation relating to drug discovery and biomarker development focused on targeting aberrant DNA damage repair to treat neurodegenerative trinucleotide repeat expansion discovery |
| Amount | £34,918 (GBP) |
| Organisation | LoQus23 Therapeutics |
| Sector | Private |
| Country | United Kingdom |
| Start | 09/2019 |
| End | 10/2023 |
| Description | Contemporary modelling of Multiple Sclerosis outcomes in a South Wales population |
| Amount | £45,760 (GBP) |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2020 |
| End | 01/2022 |
| Description | DATAMIND - The Data Hub for Mental Health Informatics Research and Development |
| Amount | £101,420 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 08/2021 |
| End | 08/2024 |
| Description | DGKH: A key link connecting fatty acid metabolism, stress and bipolar disorder |
| Amount | £128,638 (GBP) |
| Organisation | The Waterloo Foundation |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 01/2017 |
| End | 05/2019 |
| Description | DNA repair in Huntington's disease and other repeat-associated disorders |
| Amount | £150,321 (GBP) |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2016 |
| End | 09/2019 |
| Description | DRI Costs |
| Amount | £1,123,799 (GBP) |
| Organisation | UK Dementia Research Institute |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 08/2017 |
| End | 08/2022 |
| Description | Deconvoluting the dementia phenotype using functional genomics and computational approaches |
| Amount | £537,913 (GBP) |
| Organisation | Government of Wales |
| Department | Welsh European Funding Office |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2018 |
| End | 10/2022 |
| Description | Defining neural stem cell fates in adult human cortical stem cells post-traumatic brain injury |
| Amount | £2,500 (GBP) |
| Funding ID | 524715 |
| Organisation | Royal College of Surgeons of England |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 05/2023 |
| End | 05/2024 |
| Description | Dementia Research Institute - Cardiff Centre |
| Amount | £4,658,000 (GBP) |
| Organisation | UK Dementia Research Institute |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 04/2017 |
| End | 08/2022 |
| Description | Dementia Research Institute - Equipment and Capital Award |
| Amount | £4,500,000 (GBP) |
| Organisation | UK Dementia Research Institute |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2017 |
| End | 03/2020 |
| Description | Dementia Research Institute - High Content Imaging Systems |
| Amount | £600,000 (GBP) |
| Organisation | UK Dementia Research Institute |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 08/2017 |
| End | 08/2022 |
| Description | Dementia Research Institute - Studentship |
| Amount | £892,000 (GBP) |
| Organisation | UK Dementia Research Institute |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 08/2017 |
| End | 08/2022 |
| Description | Dementias Platform UK |
| Amount | £1,235,048 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 08/2015 |
| End | 06/2019 |
| Description | Depression Genetics in Africa (DepGenAfrica) |
| Amount | £960,918 (GBP) |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 02/2022 |
| End | 01/2027 |
| Description | Detecting simple repeat sequences in the genome and their effects in dementias |
| Amount | £48,508 (GBP) |
| Organisation | Alzheimer's Research UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 04/2018 |
| End | 04/2019 |
| Description | Determining mortality statistics for Multiple Sclerosis from South Wales registry |
| Amount | £61,368 (GBP) |
| Organisation | Novartis |
| Sector | Private |
| Country | Global |
| Start | 03/2015 |
| End | 12/2018 |
| Description | Determining the epidemiology of Multiple Sclerosis |
| Amount | £348,511 (GBP) |
| Organisation | Novartis |
| Sector | Private |
| Country | Global |
| Start | 08/2016 |
| End | 09/2019 |
| Description | Determining the mechanisms of striatal dysfunction in SGCE mutation positive myoclonus dystonia using an iPSC-derived neuronal cell model |
| Amount | £717,566 (GBP) |
| Funding ID | MR/P008593/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2017 |
| End | 03/2021 |
| Description | Developing a cognitive assessment tool for use in NHS psychiatric services |
| Amount | £47,080 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 08/2018 |
| End | 08/2019 |
| Description | Developing a short animation on what it means to have ADHD |
| Amount | £4,988 (GBP) |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 04/2018 |
| End | 06/2019 |
| Description | Developing clinical applications for a novel multi-task functional assessment |
| Amount | £49,902 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 08/2016 |
| End | 08/2017 |
| Description | Developing glioma organ dot cultures |
| Amount | £90,000 (GBP) |
| Funding ID | NC/N002423/1 |
| Organisation | National Centre for the Replacement, Refinement and Reduction of Animals in Research (NC3Rs) |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2016 |
| End | 09/2019 |
| Description | Developing small molecules as a neurosteroid replacement strategy for treating postpartum psychosis |
| Amount | £503,102 (GBP) |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2021 |
| End | 08/2023 |
| Description | Developing small molecules as a neurosteroid replacement strategy for treating postpartum psychosis |
| Amount | £503,102 (GBP) |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 01/2021 |
| End | 12/2022 |
| Description | Developing stem cell technologies for the neurodegeneration of Alzheimer's disease: Assessing the capacity of embryonic stem cell-derived projection neurons and interneurons to integrate in adult cortex |
| Amount | £150,000 (GBP) |
| Organisation | Campaign for Alzheimer's Research in Europe |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2017 |
| End | 09/2019 |
| Description | Development of a precision virotherapy for glioblastoma multiforme (GBM). |
| Amount | £149,835 (GBP) |
| Funding ID | 523785 |
| Organisation | Cancer Research Wales |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2023 |
| End | 01/2026 |
| Description | Development of head fixed behavioural paradigms to probe neural activity in neurological disease models in the awake brain |
| Amount | £33,833 (GBP) |
| Funding ID | Adam Ranson |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 04/2015 |
| End | 12/2016 |
| Description | Development of specialised devices to support cell replacement therapy research for neurodegenerative disease |
| Amount | £5,400 (GBP) |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 12/2020 |
| End | 02/2021 |
| Description | Does depression in pregnancy contribute to deficiencies in omega-3/6 fatty acids increasing the risk of neurodevelopmental disorders |
| Amount | £51,611 (GBP) |
| Organisation | The Waterloo Foundation |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 12/2021 |
| End | 11/2022 |
| Description | Dynamically networked brain - DyNet-BRAIN: A statistical machine learning approach to dynamic brain connectivity analysis for the extraction of dynamic and multimodal connectomic biomarkers for the diagnosis of psychiatric disorders |
| Amount | £86,904 (GBP) |
| Organisation | European Commission |
| Sector | Public |
| Country | European Union (EU) |
| Start | 09/2016 |
| End | 12/2019 |
| Description | Early-onset depression: Characterising development and identifying risks |
| Amount | £763,680 (GBP) |
| Funding ID | MR/R004609/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 11/2017 |
| End | 11/2020 |
| Description | Early-onset depression: Characterising development and identifying risks |
| Amount | £763,680 (GBP) |
| Funding ID | MR/R004609/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 11/2017 |
| End | 11/2020 |
| Description | Effect of APOE genotype on synaptic function in late onset Alzheimer's disease (LOAD) |
| Amount | £59,860 (GBP) |
| Funding ID | ARUK-CRF2016A-1 |
| Organisation | Alzheimer's Research UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2016 |
| End | 02/2019 |
| Description | Elucidating the genetic mechanisms underlying the presence and progression of psychiatric, cognitive and behavioural symptoms in HD |
| Amount | £337,727 (GBP) |
| Organisation | CHDI Foundation |
| Sector | Charity/Non Profit |
| Country | United States |
| Start | 05/2022 |
| End | 05/2024 |
| Description | Elucidating the genetic mechanisms underlying the presence and progression of psychiatric, cognitive and behavioural symptoms in HD |
| Amount | £319,294 (GBP) |
| Funding ID | 523537 |
| Organisation | CHDI Foundation |
| Sector | Charity/Non Profit |
| Country | United States |
| Start | 06/2023 |
| End | 06/2025 |
| Description | Ensuring quality maternal care in adverse environment |
| Amount | £505,203 (GBP) |
| Funding ID | BB/P002307/1 |
| Organisation | Biotechnology and Biological Sciences Research Council (BBSRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2016 |
| End | 12/2019 |
| Description | Establishing post-GWAS pharmaco-MRI: A Multimodal neuroimaging assessment of the molecules and confer genetic risk for psychiatric and neurodegenerative disorders |
| Amount | £85,213 (GBP) |
| Funding ID | Thomas Lancaster |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2017 |
| End | 03/2019 |
| Description | Establishing the relationship between anti-microbial host defence and the initiation of tissue fibrosis in peritoneal dialysis |
| Amount | £198,821 (GBP) |
| Funding ID | RP_024_20160304 |
| Organisation | Kidney Research UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2016 |
| End | 09/2019 |
| Description | European prevention of Alzheimer's dementia consortium |
| Amount | £104,414 (GBP) |
| Organisation | European Commission |
| Sector | Public |
| Country | European Union (EU) |
| Start | 01/2015 |
| End | 12/2019 |
| Description | Ex vivo cultures of fresh human brain tissues for testing the safety and efficacy of gene editing approaches for HD |
| Amount | £99,874 (GBP) |
| Organisation | Sigrid Rausing Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 11/2021 |
| End | 10/2023 |
| Description | Examining the effects of four phytocannabinoids (CBD, CBDV, DBDA, THCV (chronic dosing, at a range of doses) on PWS-IC behaviour in a number of tasks |
| Amount | £81,919 (GBP) |
| Funding ID | 20150827 |
| Organisation | GW Pharmaceuticals |
| Sector | Private |
| Country | United Kingdom |
| Start | 06/2015 |
| End | 03/2018 |
| Description | Expanding DPUK genetics and integrating with inflammation/immunity research |
| Amount | £100,000 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2018 |
| End | 03/2019 |
| Description | Exploration of inflammatory APOE44 astrocytic phenotypes |
| Amount | £29,723 (GBP) |
| Funding ID | 5245665 |
| Organisation | Alzheimer's Research UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 08/2023 |
| End | 02/2024 |
| Description | Exploring cognitive training as a non-pharmaceutical intervention for people with Huntington's disease |
| Amount | £94,714 (GBP) |
| Organisation | Gossweiler Foundation |
| Sector | Charity/Non Profit |
| Country | Switzerland |
| Start | 04/2016 |
| End | 09/2017 |
| Description | Exposing the link between placental endocrine dysfunction and offspring behavioural outcomes |
| Amount | £551,834 (GBP) |
| Funding ID | BB/P008623/1 |
| Organisation | Biotechnology and Biological Sciences Research Council (BBSRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2017 |
| End | 09/2020 |
| Description | Feasibility Study of a Neurodevelopmental Research Assessment Centre |
| Amount | £287,278 (GBP) |
| Funding ID | 267-2825 |
| Organisation | The Waterloo Foundation |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2016 |
| End | 09/2019 |
| Description | Feasibility of a walking programme for people with Huntington's disease within a city environment |
| Amount | £9,240 (GBP) |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 02/2016 |
| End | 12/2016 |
| Description | Feasibility of large-scale, international, clinical-genetic study of postpartum psychosis |
| Amount | £89,126 (GBP) |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 11/2019 |
| End | 11/2021 |
| Description | Fetal derived iPS cells as a source of donor cells for a regeneration medicine approach to treating Huntington's disease |
| Amount | £36,875 (GBP) |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2015 |
| End | 03/2017 |
| Description | Flexible Funding |
| Amount | £625,000 (GBP) |
| Organisation | UK Dementia Research Institute |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 06/2019 |
| End | 03/2023 |
| Description | Further development and feasibility trial of an online psychoeducational intervention for adolescent depression |
| Amount | £740,642 (GBP) |
| Funding ID | NIHR-FS-PD-2018 |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2018 |
| End | 09/2022 |
| Description | Future Minds Programme |
| Amount | £650,000 (GBP) |
| Organisation | The Waterloo Foundation |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2018 |
| End | 09/2024 |
| Description | GW4 Biomed DTP - Optimizing adult mental health outcomes in children with neuordevelopmental problems |
| Amount | £75,457 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2019 |
| End | 04/2023 |
| Description | Gene Environment interactions in Mental health trajectories of Youth |
| Amount | £547,428 (GBP) |
| Organisation | Innovate UK |
| Sector | Public |
| Country | United Kingdom |
| Start | 05/2022 |
| End | 05/2027 |
| Description | Gene expression regulation in CD4+ T cell dysfunction in multiple sclerosis |
| Amount | £39,798 (GBP) |
| Organisation | Multiple Sclerosis Society |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2017 |
| End | 09/2018 |
| Description | Gene regulatory variation in the developing human brain and its role in neuropsychiatric disorders |
| Amount | £245,707 (GBP) |
| Funding ID | MR/L010674/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2015 |
| End | 12/2017 |
| Description | Generating cells for cell replacement therapy in Huntington's: Is FoxP1 important for the production of striatal donor cells |
| Amount | £10,000 (GBP) |
| Funding ID | M423-F1 |
| Organisation | Rosetrees Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2016 |
| End | 03/2017 |
| Description | Generation of a human iPSC model of X-linked frontotemporal dementia: modelling proteostasis network dysfunction in dementia |
| Amount | £78,948 (GBP) |
| Funding ID | Co-applicant |
| Organisation | BRACE (Alzheimer's disease charity) |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2017 |
| End | 07/2018 |
| Description | Genetics collaboration with Prof Bart De Strooper UK DRI programme |
| Amount | £50,000 (GBP) |
| Organisation | UK Dementia Research Institute |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 04/2021 |
| End | 04/2022 |
| Description | Genetics collaboration with Prof Bart De Strooper UK DRI programme |
| Amount | £50,000 (GBP) |
| Organisation | UK Dementia Research Institute |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 04/2021 |
| End | 04/2022 |
| Description | HiSeq 4000 sequencing system |
| Amount | £452,826 (GBP) |
| Organisation | Welsh Assembly |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2016 |
| End | 03/2016 |
| Description | How CTIP2 deficiency drives medium spiny neuron degeneration and dysfunction: implications in Huntington's disease pathogenesis |
| Amount | £708,068 (GBP) |
| Funding ID | MR/R022429/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2018 |
| End | 04/2021 |
| Description | How do cytokines signalling via STAT1 and STAT3 determine the course of synovial inflammation |
| Amount | £898,336 (GBP) |
| Funding ID | 20770 |
| Organisation | Versus Arthritis |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 11/2015 |
| End | 11/2020 |
| Description | How does hippocampal maturation support the development of episodic memory? |
| Amount | £150,000 (GBP) |
| Organisation | The Waterloo Foundation |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 08/2021 |
| End | 03/2023 |
| Description | Human Brain Project |
| Amount | £152,154 (GBP) |
| Organisation | European Commission |
| Sector | Public |
| Country | European Union (EU) |
| Start | 03/2016 |
| End | 03/2018 |
| Description | IDEA - Integrated DEmentiA research enviornment |
| Amount | £1,882,982 (GBP) |
| Funding ID | MR/M009076/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2015 |
| End | 03/2016 |
| Description | IMAGINE-2: Stratifying genomic causes of intellectual disability by mental health outcomes in childhood and adolescence |
| Amount | £1,124,249 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2020 |
| End | 09/2024 |
| Description | IMPC: Characterisation a novel Alzheimer's disease susceptibility locus |
| Amount | £24,317 (GBP) |
| Funding ID | MR/P024939/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 12/2016 |
| End | 11/2018 |
| Description | IMPETUS: Investigating Markers derived from Proteomics for Estimation of Transition from the Ultra high risk State to psychotic disorder |
| Amount | £1,122,676 (GBP) |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 05/2020 |
| End | 12/2023 |
| Description | INTENSE - Integrated neurotoxicity testing for electrophysiological and neurocellular and seizurogenic effects |
| Amount | £21,861 (GBP) |
| Funding ID | NC/C014101/1 |
| Organisation | National Centre for the Replacement, Refinement and Reduction of Animals in Research (NC3Rs) |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2015 |
| End | 06/2015 |
| Description | Identification and characterisation of genetic variation that modifies age at onset in Huntington's disease |
| Amount | £82,000 (GBP) |
| Organisation | Cardiff University |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 09/2016 |
| End | 09/2019 |
| Description | Identification of coding variants in DNA repair genes affecting age at onset of Huntington's disease |
| Amount | £18,911 (GBP) |
| Organisation | European Huntington's Disease Network (Euro-HD) |
| Sector | Charity/Non Profit |
| Country | Germany |
| Start | 07/2016 |
| End | 07/2017 |
| Description | Identification of genetic modifiers in Huntington's disease |
| Amount | £132,459 (GBP) |
| Funding ID | A-10482 |
| Organisation | CHDI Foundation |
| Sector | Charity/Non Profit |
| Country | United States |
| Start | 03/2016 |
| End | 02/2018 |
| Description | Identify new potential cellular targets (pathways, molecules, genes) for therapeutic intervention in schizophrenia |
| Amount | £1,021,691 (GBP) |
| Organisation | Takeda Pharmaceutical Company |
| Sector | Private |
| Country | Japan |
| Start | 09/2018 |
| End | 09/2022 |
| Description | Identify new potential cellular targets (pathways, molecules, genes) for therapeutic intervention in schizophrenia |
| Amount | £1,021,691 (GBP) |
| Organisation | Takeda Pharmaceutical Company |
| Sector | Private |
| Country | Japan |
| Start | 09/2018 |
| End | 09/2022 |
| Description | Identify new potential cellular targets (pathways, molecules, genes) for therapeutic intervention in schizophrenia |
| Amount | £1,021,691 (GBP) |
| Organisation | Takeda Pharmaceutical Company |
| Sector | Private |
| Country | Japan |
| Start | 09/2018 |
| End | 09/2022 |
| Description | Identifying Disease mechanisms caused by endocytic genes in late onset Alzheimer's Disease |
| Amount | £172,976 (GBP) |
| Organisation | Alzheimer's Research UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2021 |
| End | 03/2024 |
| Description | Identifying Disease mechanisms caused by endocytic genes in late onset Alzheimer's Disease |
| Amount | £40,000 (GBP) |
| Organisation | Higher Education Funding Council for Wales (HEFCW) |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2021 |
| End | 09/2021 |
| Description | Identifying clinical and cognitive endophenotypes for bipolar disorder: Genetic risk score analysis of tow large poplulation charts |
| Amount | £73,207 (GBP) |
| Organisation | Mental Health Research UK (MHRUK) |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2015 |
| End | 09/2019 |
| Description | Identifying genetic biomarkers of survival for bowel cancer to aid patient management |
| Amount | £90,000 (GBP) |
| Organisation | Tenovus Cancer Care |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2019 |
| End | 09/2022 |
| Description | Identifying the contribution of mental disorder risk alleles to childhood neurodevelopment |
| Amount | £237,940 (GBP) |
| Funding ID | MR/M012964/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2015 |
| End | 08/2017 |
| Description | Identifying the pathogenic triggers of CD8 T cells in multiple sclerosis |
| Amount | £173,892 (GBP) |
| Funding ID | 105753/Z/14/Z |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 01/2015 |
| End | 08/2017 |
| Description | Image Clarity for a multi-site collection of MRI data aimed at linking brain imaging markers with biofluid markers (Protocol and Imaging Manual drafting and review) |
| Amount | £20,329 (GBP) |
| Organisation | CHDI Foundation |
| Sector | Charity/Non Profit |
| Country | United States |
| Start | 06/2019 |
| End | 04/2022 |
| Description | Imaging immunity in the genetic risk for Alzheimer's disease |
| Amount | £191,580 (GBP) |
| Organisation | Government of Wales |
| Department | Welsh European Funding Office |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2018 |
| End | 09/2021 |
| Description | Improving mental health outcomes in children born with an orofacial cleft: Identifying children at most risk to target clinical provision. |
| Amount | £748,523 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2022 |
| End | 12/2024 |
| Description | In vivo imaging of Tau distribution in the brain |
| Amount | £44,743 (GBP) |
| Organisation | Welsh Local Government Association |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2016 |
| End | 03/2017 |
| Description | Individualising the risk of recurrence for women with bipolar disorder in the perinatal period |
| Amount | £275,769 (GBP) |
| Funding ID | MR/R017557/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 06/2018 |
| End | 08/2021 |
| Description | Integrated Neuroscience Programme |
| Amount | £865,074 (GBP) |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2015 |
| End | 09/2019 |
| Description | Integrated Neuroscience Programme |
| Amount | £772,390 (GBP) |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2016 |
| End | 09/2020 |
| Description | Integrating genetic and functional data to identify pathogenic pathways modifying the progression and phenotypic expression of Huntington's disease |
| Amount | £353,485 (GBP) |
| Organisation | CHDI Foundation |
| Sector | Charity/Non Profit |
| Country | United States |
| Start | 04/2019 |
| End | 04/2021 |
| Description | Integrating genetic, clinical and phenotypic data to advance stratification, prediction and treatment in mental health. |
| Amount | £971,676 (GBP) |
| Funding ID | MC_PC_17212 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2018 |
| End | 03/2020 |
| Description | Integrating microarray and sequencing data to identify rare risk and protective genetic variants for schizophrenia |
| Amount | £80,768 (GBP) |
| Organisation | Mental Health Research UK (MHRUK) |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 06/2021 |
| End | 06/2025 |
| Description | Intellectual disability and mental health: Assessing genomic impact on neurodevelopment (IMAGINE) |
| Amount | £850,450 (GBP) |
| Funding ID | MR/N022572/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 02/2016 |
| End | 07/2019 |
| Description | Investigating PLCG2 and P522R variant PLCG2 in human IPSC models of dementia |
| Amount | £275,000 (GBP) |
| Organisation | Eisai Ltd |
| Department | Eisai Inc |
| Sector | Private |
| Country | United States |
| Start | 05/2018 |
| End | 05/2020 |
| Description | Investigating a placental origin for pregnancy and postpartum mood disorders |
| Amount | £719,568 (GBP) |
| Funding ID | MR/M013960/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 05/2015 |
| End | 05/2018 |
| Description | Investigating alternative immunosuppression regimes to promote survival of human esc-derived dopaminergic grafts for Parkinson's disease |
| Amount | £2,000 (GBP) |
| Organisation | Lister Institute of Preventive Medicine |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 05/2016 |
| End | 07/2016 |
| Description | Investigating five large population-based cohort studies to understand for the precursors of multimorbidity risk |
| Amount | £92,700 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 08/2020 |
| End | 02/2021 |
| Description | Investigating genetic and environmental risk for psychosis mediated through L-Type voltage gated calcium channels |
| Amount | £764,295 (GBP) |
| Funding ID | MR/R011397/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2018 |
| End | 10/2022 |
| Description | Investigating genetic and environmental risk for psychosis mediated through l-type voltage gated calcium channels |
| Amount | £50,491 (GBP) |
| Organisation | United Kingdom Research and Innovation |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2021 |
| End | 09/2021 |
| Description | Investigating physical and mental health multi-morbidity determinants throughout the lifespan. |
| Amount | £66,000 (GBP) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2023 |
| End | 12/2025 |
| Description | Investigating physical and mental health multimorbidity determinants throughout the lifespan. |
| Amount | £66,000 (GBP) |
| Funding ID | HS-22-04 |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2023 |
| End | 12/2025 |
| Description | Investigating resilience to schizophrenia in those at genetic risk |
| Amount | £75,040 (GBP) |
| Organisation | Brain & Behaviour Research Foundation |
| Sector | Charity/Non Profit |
| Country | United States |
| Start | 08/2017 |
| End | 09/2019 |
| Description | Investigating sex differences in risk for common mental health problems |
| Amount | £103,347 (GBP) |
| Organisation | Government of Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 08/2019 |
| End | 02/2021 |
| Description | Investigating synaptic health over time in neurodegeneration to identify dysfunctional mechanisms and early stage modifiable therapeutic targets |
| Amount | £1,223,782 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 02/2021 |
| End | 01/2025 |
| Description | Investigating the association between large rare genetic copy number variants and physical illness in schizophrenia |
| Amount | £30,811 (GBP) |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 08/2015 |
| End | 12/2016 |
| Description | Investigating the brain role of Setd1a in relation to schizophrenia and developmental disorders |
| Amount | £18,012 (GBP) |
| Funding ID | MR/P026176/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 12/2016 |
| End | 03/2018 |
| Description | Investigating the early outcomes of child ADHD: Establishing a Wales-wide sample - Co-Investigator |
| Amount | £47,712 (GBP) |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2017 |
| End | 01/2018 |
| Description | Investigating the potential of the sphingosine-1-phosphate receptor 1 modulators for the treatment of psychiatric disorders |
| Amount | £47,621 (GBP) |
| Organisation | Government of Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2015 |
| End | 03/2017 |
| Description | Investigating the role of gene expression regulation in pathological CD4+ T-cell function in multiple sclerosis |
| Amount | £150,518 (GBP) |
| Organisation | Guarantors of Brain |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2016 |
| End | 07/2019 |
| Description | Investigating the significance of novel splice variants of the Htt gene in Huntington's disease |
| Amount | £39,900 (GBP) |
| Funding ID | Alis Hughes |
| Organisation | European Huntington's Disease Network (Euro-HD) |
| Sector | Charity/Non Profit |
| Country | Germany |
| Start | 01/2015 |
| End | 07/2016 |
| Description | Investigating the therapeutic potential of manipulating DNA repair in Huntington's disease |
| Amount | £31,184 (GBP) |
| Organisation | European Huntington's Disease Network (Euro-HD) |
| Sector | Charity/Non Profit |
| Country | Germany |
| Start | 02/2016 |
| End | 01/2017 |
| Description | Is a lack of glucose the cause of graft death? Towards the first glucose releasing biomaterials for cell therapies |
| Amount | £18,868 (GBP) |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2019 |
| End | 07/2019 |
| Description | Is interneuron transplantation feasible in temporal lobe epilepsy |
| Amount | £30,000 (GBP) |
| Funding ID | PGE1601 |
| Organisation | Epilepsy Research UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 05/2016 |
| End | 05/2018 |
| Description | Japan Partnering Award: The generation of eye tissues from human induced pluripotent stem (iPS) cells |
| Amount | £47,959 (GBP) |
| Funding ID | BB/R021244/1 |
| Organisation | Biotechnology and Biological Sciences Research Council (BBSRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2018 |
| End | 04/2022 |
| Description | Large scale linkage of genetic and health informatics data in schizophrenia to investigate the impact of copy number variants on physical health |
| Amount | £50,000 (GBP) |
| Funding ID | MQDS16/36 |
| Organisation | MQ Mental Health Research |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2018 |
| End | 09/2020 |
| Description | Leveraging human genetics to identify target populations for dementia therapeutics |
| Amount | £200,134 (GBP) |
| Organisation | UK Dementia Research Institute |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2020 |
| End | 02/2023 |
| Description | Leveraging human genetics to identify target populations for dementia therapeutics (Eisai/DRI), project grant |
| Amount | £200,000 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2020 |
| End | 02/2023 |
| Description | Life-style, exercise and activity package for people living with progressive Multiple Sclerosis |
| Amount | £293,296 (GBP) |
| Organisation | Multiple Sclerosis Society |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 02/2018 |
| End | 01/2021 |
| Description | Lifestyle targets for improving prognosis in Huntington's disease (DOMINO-HD) |
| Amount | £154,673 (GBP) |
| Organisation | Gossweiler Foundation |
| Sector | Charity/Non Profit |
| Country | Switzerland |
| Start | 03/2019 |
| End | 03/2023 |
| Description | MHS3: A disease modifying approach to Huntington's disease |
| Amount | £535,349 (GBP) |
| Organisation | LoQus23 Therapeutics |
| Sector | Private |
| Country | United Kingdom |
| Start | 09/2019 |
| End | 03/2021 |
| Description | MRC Centre for Neuropsychiatric Genetics and Genomics |
| Amount | £15,000 (GBP) |
| Organisation | Government of Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2019 |
| End | 03/2019 |
| Description | MRC Centre for Neuropsychiatric genetics and genomics |
| Amount | £155,077 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 11/2020 |
| End | 03/2021 |
| Description | MRC World Class Labs Capital Funding 2023/24 |
| Amount | £54,000 (GBP) |
| Funding ID | 526618 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 12/2023 |
| End | 03/2024 |
| Description | Maintaining authentic human fetal neural tissue identity in vitro |
| Amount | £25,000 (GBP) |
| Organisation | Campaign for Alzheimer's Research in Europe |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 02/2020 |
| End | 04/2021 |
| Description | Making the invisible visible: A multi-scale imaging approach to detect and characterise cortical pathology |
| Amount | £1,003,042 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2023 |
| End | 01/2025 |
| Description | Making the invisible visible: Using lived experiences of severe mental illness around childbirth to co-produce tools for individualised pregnancy planning |
| Amount | £66,000 (GBP) |
| Funding ID | HS-18-33(T) |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2018 |
| End | 09/2021 |
| Description | MassArray System: Nucleic Acid detection and Quantification Platform |
| Amount | £115,517 (GBP) |
| Funding ID | SCCEG-05 |
| Organisation | Government of Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2015 |
| End | 03/2016 |
| Description | MeOmics Commercial Readiness |
| Amount | £9,500 (GBP) |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 12/2020 |
| End | 01/2021 |
| Description | Miniature microscope to image neuronal ensembles in rodent models of neuropsychiatric disorders |
| Amount | £210,000 (GBP) |
| Organisation | Welsh Local Government Association |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2015 |
| End | 03/2016 |
| Description | Modalities for Understanding, Recording and Integrating Data Across Early life (MURIDAE) |
| Amount | £1,061,704 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2022 |
| End | 03/2027 |
| Description | Modelling motor disease using patient derived iPS cells for novel therapeutic discovery |
| Amount | £10,000 (GBP) |
| Organisation | Welsh Assembly |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2015 |
| End | 02/2016 |
| Description | Molecular Genetic Studies of Schizophrenia |
| Amount | £2,407,099 (GBP) |
| Funding ID | MR/P005748/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 12/2016 |
| End | 11/2021 |
| Description | Molecular Genetic Studies of Schizophrenia: Understanding Treatment Resistance and Outcomes to Inform Precision Psychiatry |
| Amount | £2,776,736 (GBP) |
| Funding ID | MR/Y004094/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 12/2023 |
| End | 11/2028 |
| Description | Molecular Genetic Studies of Schizophrenia: Understanding Treatment Resistance and Outcomes to Inform Precision Psychiatry |
| Amount | £2,776,736 (GBP) |
| Funding ID | MR/Y004094/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 12/2023 |
| End | 11/2028 |
| Description | Multi-Domain lifestyle targets for improving prognosis in Huntington's disease (DOMINO-HD) |
| Amount | £254,588 (GBP) |
| Organisation | Alzheimer's Society |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2019 |
| End | 03/2022 |
| Description | Multi-centre, randomized, double-blind, parallel-group, active-controlled, superiority study to compare the efficacy and safety of poesimod to teriflunomide to teriflunomid in subjects with relapsing multiple sclerosis |
| Amount | £26,089 (GBP) |
| Organisation | Cardiff and Vale University Health Board |
| Sector | Public |
| Country | United Kingdom |
| Start | 06/2016 |
| End | 12/2016 |
| Description | Multi-scale and multi-modal assessment of coupling in the healthy and diseased brain |
| Amount | £4,953,467 (GBP) |
| Funding ID | 104943/Z/14/Z |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 06/2016 |
| End | 06/2021 |
| Description | National Centre for Mental Health |
| Amount | £2,000,000 (GBP) |
| Organisation | Welsh Assembly |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2018 |
| End | 03/2020 |
| Description | National Centre for Mental Health |
| Amount | £2,000,000 (GBP) |
| Organisation | Welsh Assembly |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2018 |
| End | 03/2020 |
| Description | National Centre for Mental Health |
| Amount | £2,000,000 (GBP) |
| Organisation | Government of Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2018 |
| End | 03/2020 |
| Description | National Centre for Mental Health |
| Amount | £3,000,000 (GBP) |
| Organisation | Government of Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2015 |
| End | 03/2018 |
| Description | National Centre for Mental Health Renewal |
| Amount | £4,749,753 (GBP) |
| Organisation | Government of Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2020 |
| End | 03/2025 |
| Description | Navigating social media, emotions, and mental health |
| Amount | £4,100 (GBP) |
| Funding ID | 525504 |
| Organisation | Arts & Humanities Research Council (AHRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2023 |
| End | 09/2024 |
| Description | Neurodevelopmental Disorders: What happens when children grow up and why? |
| Amount | £893,353 (GBP) |
| Funding ID | 204895/Z/16/ZI |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 02/2017 |
| End | 01/2021 |
| Description | Neuroimmunology fellowship training program |
| Amount | £347,034 (GBP) |
| Organisation | Sanofi |
| Department | Genzyme Therapeutics Ltd |
| Sector | Private |
| Country | United Kingdom |
| Start | 01/2018 |
| End | 12/2020 |
| Description | Neuronal mechanisms of developmental cognitive impairment in the Snord1 16del model for Prader-Willi Syndrome |
| Amount | £3,300 (GBP) |
| Organisation | Prader-Willi Syndrome Association |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 01/2019 |
| End | 12/2019 |
| Description | Neuroscience Research Fellows Programme |
| Amount | £470,637 (GBP) |
| Organisation | The Jane Hodge Foundation |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 02/2015 |
| End | 08/2020 |
| Description | New approaches in precision psychiatry: Exploring genomic markers and linked health records to predict symptom improvement and drug response in schizophrenia |
| Amount | £84,460 (GBP) |
| Organisation | Mental Health Research UK (MHRUK) |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2022 |
| End | 09/2026 |
| Description | Novel strategies for cell-based neural reconstruction |
| Amount | £415,000 (GBP) |
| Organisation | European Commission |
| Sector | Public |
| Country | European Union (EU) |
| Start | 01/2020 |
| End | 12/2023 |
| Description | Optimizing outcomes in children of depressed parents: Identification of modifiable promoters of sustained mental health resilience |
| Amount | £77,344 (GBP) |
| Organisation | Mental Health Research UK (MHRUK) |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2020 |
| End | 09/2024 |
| Description | Pathways to psychosis: Investigating environmental, cognitive and genetic mechanisms underlying development of psychotic experiences in young adults |
| Amount | £1,062,530 (GBP) |
| Funding ID | MR/M006727/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 05/2015 |
| End | 02/2020 |
| Description | Perimenopause and risk of psychiatric disorders: a longitudinal, population-based study |
| Amount | £434,692 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 11/2021 |
| End | 10/2024 |
| Description | Perimenopause and risk of psychiatric disorders: a longitudinal, population-based study |
| Amount | £434,692 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2022 |
| End | 04/2025 |
| Description | Physical activity and exercise outcomes in Huntington's disease |
| Amount | £411,005 (GBP) |
| Funding ID | Co-applicant |
| Organisation | Gossweiler Foundation |
| Sector | Charity/Non Profit |
| Country | Switzerland |
| Start | 06/2017 |
| End | 12/2019 |
| Description | Physical and mental health multimorbidity across the lifespan |
| Amount | £3,034,323 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 12/2021 |
| End | 11/2025 |
| Description | Pilot investigation to characterise the in vitro effects of FAN1 in Huntington's disease |
| Amount | £470,460 (GBP) |
| Organisation | CHDI Foundation |
| Sector | Charity/Non Profit |
| Country | United States |
| Start | 06/2018 |
| End | 06/2020 |
| Description | Pilot study of motor coordination disorder in 22q11.2 deletion syndrome |
| Amount | £8,935 (GBP) |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 02/2016 |
| End | 12/2016 |
| Description | Pilot study to develop an instrument to capture broad-ranging neurodevelopmental problems in children with a genetic diagnosis of intellectual disability |
| Amount | £48,502 (GBP) |
| Organisation | Baily Thomas Charitable Fund |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 11/2019 |
| End | 10/2020 |
| Description | Pilot study to develop an instrument to capture broad-ranging neurodevelopmental problems in children with a genetic diagnosis of intellectual disability |
| Amount | £48,502 (GBP) |
| Organisation | Baily Thomas Charitable Fund |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 11/2019 |
| End | 10/2020 |
| Description | Pilot study to develop an instrument to capture broad-ranging neurodevelopmental problems in children with a genetic diagnosis of intellectual disability |
| Amount | £48,502 (GBP) |
| Organisation | Baily Thomas Charitable Fund |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 11/2019 |
| End | 10/2020 |
| Description | Polygenic risk scores for neurodegeneration and Alzheimer's pathophysiology |
| Amount | £951 (GBP) |
| Organisation | UK Dementia Research Institute |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 07/2020 |
| End | 11/2021 |
| Description | Preclinical evaluation of a novel "precision virotherapy" for glioblastoma multiforme (GBM) |
| Amount | £50,000 (GBP) |
| Funding ID | 524180 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 04/2023 |
| End | 04/2024 |
| Description | Prenatal adversity and the intergenerational transmission of suboptimal maternal caregiving |
| Amount | £573,411 (GBP) |
| Organisation | Biotechnology and Biological Sciences Research Council (BBSRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2021 |
| End | 03/2024 |
| Description | Preterm birth and neuropsychiatric genetic risks: a pilot investigation |
| Amount | £291,744 (GBP) |
| Funding ID | MR/N025288/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 08/2016 |
| End | 08/2018 |
| Description | Profiling post-translational modifications of histone proteins as a determinant of Parkinson's susceptibility |
| Amount | £232,404 (GBP) |
| Funding ID | G-1502 |
| Organisation | Parkinson's UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 01/2016 |
| End | 07/2018 |
| Description | Profiling post-translational modifications of histone proteins as a determinant of Parkinson's susceptibility |
| Amount | £232,404 (GBP) |
| Funding ID | G-1502 |
| Organisation | Parkinson's UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 01/2016 |
| End | 07/2018 |
| Description | Prognosis following early aggressive disease-modifying therapy in MS |
| Amount | £44,696 (GBP) |
| Funding ID | 49 |
| Organisation | Multiple Sclerosis Society |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 05/2016 |
| End | 02/2018 |
| Description | Proinflammatory cytokines as Parkinson's biomarkers |
| Amount | $184,247 (USD) |
| Organisation | Michael J Fox Foundation |
| Sector | Charity/Non Profit |
| Country | United States |
| Start | 06/2023 |
| End | 12/2024 |
| Description | Promoting neural transplantation-induced brain repair by modulating the local immune environment, using an implantable delivery system |
| Amount | £40,000 (GBP) |
| Organisation | Oakgrove Medical Charitable Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2015 |
| End | 09/2018 |
| Description | Promotion of physical activity in Huntington's Disease clinics |
| Amount | £10,300 (GBP) |
| Funding ID | Co-applicant |
| Organisation | Huntington's Disease Association |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 08/2017 |
| End | 03/2019 |
| Description | Protein Tyrosine Phosphatases as Rheostats of Jak-stat Cytokine signals and determinants of disease heterogeneity |
| Amount | £1,018,618 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 11/2022 |
| End | 11/2025 |
| Description | Psychosocial effects of the COVID-19 pandemic: Identifying mental health problems and supporting wellbeing in vulnerable children and families |
| Amount | £518,260 (GBP) |
| Organisation | Economical and Social Research Centre |
| Sector | Public |
| Country | Italy |
| Start | 06/2020 |
| End | 01/2022 |
| Description | Rapid detection and characterisation of life-threatening neurological infections |
| Amount | £24,161 (GBP) |
| Funding ID | Co-applicant |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2017 |
| End | 08/2017 |
| Description | Rapid detection of life threatening neurological infection by detecting immune fingerprints in cerebrospinal fluid |
| Amount | £49,996 (GBP) |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2019 |
| End | 03/2020 |
| Description | Real-time MRI neurofeedback market evaluation |
| Amount | £10,258 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 12/2016 |
| End | 12/2016 |
| Description | Real-time functional magnetic resonance imaging neurofeedback for functional motor recovery after stroke |
| Amount | £54,194 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 07/2015 |
| End | 12/2016 |
| Description | Repeat-induced mutagenesis in Huntington's disease |
| Amount | £1,230,137 (GBP) |
| Funding ID | 523354 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 08/2023 |
| End | 08/2027 |
| Description | Rescue of neuronal and behavioural deficits using a novel PAMs |
| Amount | £96,000 (GBP) |
| Funding ID | 524764 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 11/2023 |
| End | 10/2024 |
| Description | Stratification of bipolar disorder: Harnessing clinical heterogeneity and genetics shared with other disorders |
| Amount | £310,234 (GBP) |
| Funding ID | Judith Allardyce |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 01/2018 |
| End | 12/2021 |
| Description | Stratification of bipolar disorder: Harnessing clinical heterogeneity and genetics shared with other disorders |
| Amount | £310,234 (GBP) |
| Funding ID | 209176 |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 06/2018 |
| End | 06/2022 |
| Description | Stratification of bipolar disorder: Harnessing clinical heterogeneity and genetics shared with other disorders |
| Amount | £310,234 (GBP) |
| Funding ID | 209176 |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 06/2018 |
| End | 06/2022 |
| Description | Stratification of bipolar disorder: Harnessing clinical heterogeneity and genetics shared with other disorders |
| Amount | £310,234 (GBP) |
| Funding ID | Judith Allardyce |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 01/2018 |
| End | 12/2021 |
| Description | Stratification of bipolar disorder: Harnessing clinical heterogeneity and genetics shared with other disorders |
| Amount | £310,234 (GBP) |
| Funding ID | Judith Allardyce |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 01/2018 |
| End | 12/2021 |
| Description | Stratification of bipolar disorder: Harnessing clinical heterogeneity and genetics shared with other disorders |
| Amount | £310,234 (GBP) |
| Funding ID | 209176 |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 06/2018 |
| End | 06/2022 |
| Description | Studentship |
| Amount | £5,000 (GBP) |
| Organisation | Hashemite University |
| Sector | Academic/University |
| Country | Jordan |
| Start | 09/2018 |
| End | 09/2019 |
| Description | TG1101-RMS302 Phase III: UbLiTuximab in Multiple Sclerosis treatment effects (ULTIMATE II STUDY) |
| Amount | £5,527 (GBP) |
| Organisation | Cardiff and Vale University Health Board |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2019 |
| End | 01/2021 |
| Description | TRanslating Individual Alzheimer GEnetic risk into disease phenotypes [TRIAGE] |
| Amount | € 420,000 (EUR) |
| Organisation | JPND Research |
| Sector | Academic/University |
| Country | Global |
| Start | 04/2020 |
| End | 04/2023 |
| Description | TRial designs for DElivery of Novel Therapies for Neurodegeneration (TRIDENT) |
| Amount | £184,128 (GBP) |
| Funding ID | RfPPB-16a-1298 |
| Organisation | Health and Care Research Wales |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2017 |
| End | 09/2019 |
| Description | Targeting ERK signalling to emeliorate intellectual disability and autism spectrum disorder associated with chromosomal rearrangements at 16p11.2 |
| Amount | £1,329,545 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 11/2019 |
| End | 10/2023 |
| Description | Targeting ERK signalling to emeliorate intellectual disability and autism spectrum disorder associated with chromosomal rearrangements at 16p11.2 |
| Amount | £196,566 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 11/2019 |
| End | 10/2023 |
| Description | The Hodge Centre for Neuropsychiatric Immunology |
| Amount | £1,021,169 (GBP) |
| Organisation | The Jane Hodge Foundation |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 02/2017 |
| End | 01/2022 |
| Description | The Hodge Centre for Neuropsychiatric Immunology |
| Amount | £1,021,169 (GBP) |
| Funding ID | Co-applicant |
| Organisation | The Jane Hodge Foundation |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 02/2017 |
| End | 01/2022 |
| Description | The Moondance Dementia Research Laboratory |
| Amount | £5,000,000 (GBP) |
| Funding ID | 525036 |
| Organisation | The Moondance Foundation |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 08/2023 |
| End | 08/2028 |
| Description | The UK7T network: Developing the ultra-high field MRI platform for biomedical research |
| Amount | £180,843 (GBP) |
| Funding ID | MR/N008537/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2016 |
| End | 12/2018 |
| Description | The contribution of maternally expressed imprinted genes to parental behaviour |
| Amount | £185,917 (GBP) |
| Organisation | The Leverhulme Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 12/2022 |
| End | 04/2026 |
| Description | The contribution of maternally expressed imprinted genes to parental behaviour |
| Amount | £185,917 (GBP) |
| Organisation | The Leverhulme Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 11/2021 |
| End | 10/2024 |
| Description | The development and implementation of polygenic risk algorithms for stratifying individuals for future cognitive decline due to Alzheimer's disease in non-symptomatic and early cognitive impaired subjects |
| Amount | £288,555 (GBP) |
| Funding ID | 104210 |
| Organisation | Innovate UK |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2018 |
| End | 02/2020 |
| Description | The development and implementation of polygenic risk algorithms for stratifying individuals for future cognitive decline due to Alzheimers disease |
| Amount | £298,040 (GBP) |
| Funding ID | 2018/20180222 |
| Organisation | Innovate UK |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2018 |
| End | 03/2020 |
| Description | The genomic basis of human induced pluripotent stem (iPS) cell differentiation into eye-like tissues |
| Amount | £610,953 (GBP) |
| Organisation | Biotechnology and Biological Sciences Research Council (BBSRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 11/2019 |
| End | 12/2022 |
| Description | The impact of AD-associated risk variants in complement genes on neurodegeneration |
| Amount | £271,303 (GBP) |
| Funding ID | 523088 |
| Organisation | Alzheimer's Research UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2023 |
| End | 09/2026 |
| Description | The impact of rare variants affecting GABA and glutamate gene sets in schizophrenia: An MEG study |
| Amount | £44,206 (GBP) |
| Organisation | Brain & Behaviour Research Foundation |
| Sector | Charity/Non Profit |
| Country | United States |
| Start | 01/2016 |
| End | 01/2019 |
| Description | The impact of schizophrenia-associated copy number variants on cortical network dynamics |
| Amount | £2,502,600 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2022 |
| End | 04/2027 |
| Description | The impact of schizophrenia-associated copy number variants on cortical network dynamics |
| Amount | £2,002,079 (GBP) |
| Funding ID | MR/W028395/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2022 |
| End | 04/2027 |
| Description | The mediating effect of inflammatory markers on the association between genetic risk for psychiatric disorders and psychosis, negative symptoms, depression and anxiety |
| Amount | £29,874 (GBP) |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 04/2020 |
| End | 07/2022 |
| Description | The phenotypic expression of autism spectrum disorder in adults |
| Amount | £29,984 (GBP) |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 07/2018 |
| End | 01/2019 |
| Description | The phenotypic expression of neuropsychiatric copy number variants |
| Amount | £193,209 (GBP) |
| Funding ID | Kim Kendall |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 02/2017 |
| End | 01/2020 |
| Description | The phenotypic expression of neuropsychiatric copy number variants |
| Amount | £193,209 (GBP) |
| Funding ID | Kim Kendall |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 02/2017 |
| End | 01/2020 |
| Description | The relationship between the 16p11.2 locus and eating disorders: Novel insights from rare genetic conditions |
| Amount | £289,575 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2021 |
| End | 09/2024 |
| Description | The role of the HMGB1 alarmin in oligodenrogliogenesis and white matter repair |
| Amount | £5,000 (GBP) |
| Organisation | Royal College of Surgeons of England |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 07/2019 |
| End | 07/2020 |
| Description | The role of the placenta in PWS: mapping the expression of PWS genes |
| Amount | £33,651 (GBP) |
| Organisation | Foundation for Prader-Willi Research (FPWR) |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 08/2020 |
| End | 08/2022 |
| Description | The roles of the alarmin HMGB1 in injury and repair of white matter after traumatic brain injury |
| Amount | £204,531 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 12/2021 |
| End | 11/2024 |
| Description | Therapeutic targeting of impaired lysosomal flux in Alzheimer's disease |
| Amount | £136,502 (GBP) |
| Funding ID | MR/P007651/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 07/2016 |
| End | 07/2018 |
| Description | To develop, design, promote and evaluate an online community portal and app |
| Amount | £30,000 (GBP) |
| Organisation | Big Lottery Fund |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2015 |
| End | 10/2018 |
| Description | To establish a scalable set of assay platforms against which the phenotype consequences of manipulating the identified exclusive targets can be screened and effects the drug compounds assessed to develop therapeutics for schizophrenia |
| Amount | £2,960,749 (GBP) |
| Organisation | Takeda Pharmaceutical Company |
| Sector | Private |
| Country | Japan |
| Start | 09/2018 |
| End | 09/2022 |
| Description | To establish a scalable set of assay platforms against which the phenotype consequences of manipulating the identified exclusive targets can be screened and effects the drug compounds assessed to develop therapeutics for schizophrenia |
| Amount | £2,960,749 (GBP) |
| Organisation | Takeda Pharmaceutical Company |
| Sector | Private |
| Country | Japan |
| Start | 09/2018 |
| End | 09/2022 |
| Description | To establish a scalable set of assay platforms against which the phenotype consequences of manipulating the identified exclusive targets can be screened and effects the drug compounds assessed to develop therapeutics for schizophrenia |
| Amount | £2,960,749 (GBP) |
| Organisation | Takeda Pharmaceutical Company |
| Sector | Private |
| Country | Japan |
| Start | 09/2018 |
| End | 09/2022 |
| Description | To establish a scalable set of assay platforms against which the phenotype consequences of manipulating the identified exclusive targets can be screened and effects the drug compounds assessed to develop therapeutics for schizophrenia |
| Amount | £2,960,749 (GBP) |
| Organisation | Takeda Pharmaceutical Company |
| Sector | Private |
| Country | Japan |
| Start | 09/2018 |
| End | 09/2022 |
| Description | To support families of children with brain disorders by exploiting an embedding new knowledge and capabilities to develop highly innovative solutions and collaborative partnership that bring lasting improvements to the lives of thousands of children |
| Amount | £274,115 (GBP) |
| Organisation | Cerebra |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 01/2019 |
| End | 01/2022 |
| Description | Tracking Parkinson's - the long term development and analysis of the Parkinson's repository of biomarkers and networked datasets |
| Amount | £125,535 (GBP) |
| Organisation | Parkinson's UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 11/2016 |
| End | 11/2020 |
| Description | Training on advanced stem cell technologies in neurology |
| Amount | £484,652 (GBP) |
| Funding ID | 813851 |
| Organisation | European Commission |
| Sector | Public |
| Country | European Union (EU) |
| Start | 09/2018 |
| End | 12/2023 |
| Description | Transatlantic Exchange for Neuroscience Discovery (TEND) |
| Amount | £66,698 (GBP) |
| Organisation | European Social Fund (Welsh Government/ EU) |
| Sector | Public |
| Country | United Kingdom |
| Start | 08/2020 |
| End | 03/2022 |
| Description | Treading Anxiety to PreEnt Relapse in Schizophrenia (TAPERS) - a feasibility trial |
| Amount | £174,314 (GBP) |
| Organisation | Welsh Assembly |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2018 |
| End | 09/2020 |
| Description | UK DRI at Cardiff |
| Amount | £710,042 (GBP) |
| Organisation | UK Dementia Research Institute |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 08/2017 |
| End | 08/2022 |
| Description | UKDRI Core Budget - Project 1 |
| Amount | £1,686,147 (GBP) |
| Funding ID | 524209 |
| Organisation | UK Dementia Research Institute |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2023 |
| End | 03/2028 |
| Description | UKDRI Core Budget - Project 2 |
| Amount | £1,547,766 (GBP) |
| Funding ID | 524210 |
| Organisation | UK Dementia Research Institute |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2023 |
| End | 03/2024 |
| Description | UKRI CoA: Early-onset depression: Characterising development and identifying risks |
| Amount | £59,924 (GBP) |
| Organisation | United Kingdom Research and Innovation |
| Sector | Public |
| Country | United Kingdom |
| Start | 11/2020 |
| End | 05/2021 |
| Description | Ultra-high field MRI: Advancing clinical neuroscientific research in experimental medicine. |
| Amount | £6,700,929 (GBP) |
| Funding ID | MR/M008932/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2015 |
| End | 03/2016 |
| Description | Understanding adverse mental health outcomes in children born with cleft lip and/or palate using genetics . |
| Amount | £40,698 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 08/2022 |
| End | 08/2025 |
| Description | Understanding the interplay between APOE and BIN1 in molecular mechanisms of late onset Alzheimer's Disease |
| Amount | £95,283 (GBP) |
| Organisation | BRACE |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 06/2022 |
| End | 07/2025 |
| Description | Understanding the interplay between APOE and BIN1 in the molecular mechanisms of late onset Alzheimer's Disease |
| Amount | £95,000 (GBP) |
| Organisation | Alzheimer's Society |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2022 |
| End | 09/2025 |
| Description | Understanding the role of DNA repair in Huntington's disease pathogenesis: towards novel therapeutic target |
| Amount | £304,780 (GBP) |
| Funding ID | MR/P001629/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 07/2016 |
| End | 07/2019 |
| Description | Understanding the role of secondary school environments and policies as drivers of school connectedness to prevent anxiety and depression |
| Amount | £40,000 (GBP) |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 07/2022 |
| End | 02/2023 |
| Description | Using deep learning approaches to examine serious mental illness and physical multimorbidity across the life-course: from mechanisms towards novel interventions |
| Amount | £118,422 (GBP) |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2021 |
| End | 09/2021 |
| Description | Using real-world big data from eHealth, biobanks and national registries, integrated with clinical trial data to improve outcome of severe mental disorders - REALMENT |
| Amount | £361,821 (GBP) |
| Organisation | European Commission |
| Sector | Public |
| Country | European Union (EU) |
| Start | 05/2021 |
| End | 05/2025 |
| Description | Using shape memory scaffolds to increase transplant survival and prepare a nigro/stiratal "bridge" |
| Amount | £28,839 (GBP) |
| Organisation | Parkinson's UK |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2015 |
| End | 10/2017 |
| Description | Using the smartphone to monitor mood states |
| Amount | £45,775 (GBP) |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 07/2015 |
| End | 11/2016 |
| Description | Utilising adoption-based research designs to examine the interplay between family relationship processes and child developmental outcomes |
| Amount | £199,868 (GBP) |
| Funding ID | ES/L014718/1 |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2015 |
| End | 01/2017 |
| Description | Validating prognostic biomarkers for colorectal cancer and determining their clinical utility |
| Amount | £155,801 (GBP) |
| Organisation | Cancer Research Wales |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 11/2018 |
| End | 10/2021 |
| Description | WESley |
| Amount | £1,787,134 (GBP) |
| Organisation | Akrivia Health |
| Sector | Hospitals |
| Country | United Kingdom |
| Start | 03/2022 |
| End | 02/2025 |
| Description | World Class Labs capital equipment award : Miltenyi Biotec LaVision Ultramicroscope |
| Amount | £148,000 (GBP) |
| Organisation | UK Dementia Research Institute |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 11/2020 |
| End | 03/2021 |
| Description | nanoString GeoMX/nCounter single cell and spatial transcriptomics system |
| Amount | £444,188 (GBP) |
| Organisation | UK Dementia Research Institute |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 11/2021 |
| End | 03/2022 |
| Title | AD Genetics Scotland |
| Description | Blood samples are collected from participants and sent directly from research sites to European Collection of Authenticated Cell Cultures (ECACC), a Culture Collection of Public Health England. Upon arrival, ECACC process the blood and transform into cell lines- peripheral blood lymphocytes (PBLs) and Lymphoblastoid cell lines (LCLs). Cell lines are frozen and stored at ECACC until they are required by the team at Cardiff. |
| Type Of Material | Biological samples |
| Year Produced | 2018 |
| Provided To Others? | No |
| Impact | Ongoing collection of samples, no publications to date. |
| Title | BAC cell lines |
| Description | Bacterial method to insert gene mutations of interest into cell lines |
| Type Of Material | Cell line |
| Provided To Others? | No |
| Impact | none yet |
| Title | Brain Bank - Alzheimers |
| Description | We have recently created a brain bank based upon the longitudinal sample, to provide the wider research community with multiple tissue samples on well characterised individuals. |
| Type Of Material | Biological samples |
| Year Produced | 2007 |
| Provided To Others? | Yes |
| Impact | Multiple publications and media coverage |
| Title | Brains for Dementia Research |
| Description | Brains; cases and controls |
| Type Of Material | Biological samples |
| Year Produced | 2007 |
| Provided To Others? | Yes |
| Impact | unknown |
| Title | CRISPR generated cell lines |
| Description | Cell lines created using genome editing tool |
| Type Of Material | Cell line |
| Provided To Others? | No |
| Impact | none yet |
| Title | Calibration |
| Description | Calibration methods development |
| Type Of Material | Improvements to research infrastructure |
| Provided To Others? | No |
| Impact | ESRC Research methods festival presentation on cross-cohort comparisons, including calibration. Invited Annual Research Review on time trends in press in Journal of Child Psychology and Psychiatry. |
| URL | http://www.ncrm.ac.uk/RMF2014/home.php |
| Title | EOAD cohort |
| Description | We are collecting a biological sample of early onset Alzheimer's disease individuals for research. This includes phenotypic data and biological data and is set to become the largest EOAD biobank in the world. |
| Type Of Material | Biological samples |
| Provided To Others? | No |
| Impact | This earlier more aggressive form of the disease will be studied in order to shed light on disease mechanisms and prospective therapies. |
| Title | Further developing HiSpot Cultures |
| Description | Further refinement and validation of HiSpot / OrganDot cultures for studying altered hippocampal neurogenesis in human Temporal Lobe Epilepsy |
| Type Of Material | Model of mechanisms or symptoms - human |
| Year Produced | 2017 |
| Provided To Others? | No |
| Impact | Paper in Preparation - further validation work in progress |
| Title | Generated a tm1d constitutive Setd1a knockout mouse model |
| Description | By crossing our Tm1c Setd1a conditional ready knockout model to a CMV-cre (a ubiquitous cre-line) we were able to generate a full (constitutive) Setd1a knockout mouse line free from the targeting construct and markers (such as LacZ) |
| Type Of Material | Model of mechanisms or symptoms - mammalian in vivo |
| Year Produced | 2019 |
| Provided To Others? | Yes |
| Impact | None as yet |
| Title | Generation of conditional-ready (Tm1c) Setd1a knockout |
| Description | A conditional-ready (Tm1c) knockout mouse model of the schizophrenia and developmental delay gene, Setd1a |
| Type Of Material | Model of mechanisms or symptoms - mammalian in vivo |
| Year Produced | 2017 |
| Provided To Others? | Yes |
| Impact | This model allows us and other researchers to generate region specific knockouts of this key schizophrenia and developmental delay gene |
| Title | Human Stem Cell Modelling of Brain Disease |
| Description | Cellular models in vitro |
| Type Of Material | Model of mechanisms or symptoms - in vitro |
| Provided To Others? | No |
| Impact | unknown |
| Title | Novel method for detecting pure and interrupted short tandem repeat sequences in next-generation sequencing data |
| Description | This is an algorithm developed by Sergey (the bioinformaticist who worked on this project) to detect both pure and quasi-short tandem repeats in the genome. Previous algorithms only detect pure short tandem repeats. |
| Type Of Material | Improvements to research infrastructure |
| Year Produced | 2019 |
| Provided To Others? | No |
| Impact | It has enables us to read the sequence of several quasi repeats in our sequencing data which previously were unreadable. |
| Title | POLARIS |
| Description | We developed a novel approach to genetic set-based analysis, which accounts for linkage disequilibrium between SNPs and informs the analysis with previously reported effect sizes of a SNP's association to disease. We call this method POLARIS: POlygenic Linkage disequilibrium-Adjusted RIsk Score. |
| Type Of Material | Improvements to research infrastructure |
| Year Produced | 2017 |
| Provided To Others? | Yes |
| Impact | the paper is under review, the software tool is available for testing |
| URL | http://github.com/BakerEA/POLARIS |
| Title | Polygenic score |
| Description | With 80,000 variants included to create a measure of risk of Alzheimer's disease, the polygenic score is an excellent predictive tool to determine case/control status with high accuracy. The polygenic score encompasses the majority of genetic risk of disease, and can be fine-tuned to identify the pathways involved in disease, for example, immune cell activity or endocytosis. |
| Type Of Material | Model of mechanisms or symptoms - human |
| Year Produced | 2016 |
| Provided To Others? | Yes |
| Impact | We are working to translate this method from the basic science environment in which it was created into a predictive tool used to select participants for clinical trials, based on their disease status and type. We are currently in discussions with a number of potential collaborators to take this forward. |
| Title | Setd1a-nestin-cre knockout |
| Description | A knockout of the schizophrenia and developmental delay gene Setd1a limited to nestin expressing cells only. |
| Type Of Material | Model of mechanisms or symptoms - mammalian in vivo |
| Year Produced | 2018 |
| Provided To Others? | Yes |
| Impact | Allows behavioural assessment of thisschizophrenia and developmental delay gene |
| Title | 1000 brains |
| Description | I have lead the creation of a research resource (database) of around 1000 brain MRI scans and full genomic data to estimulate and facilitate research into neuroimgaing genetics. We make this database freely available to interested researchers within Cardiff University |
| Type Of Material | Database/Collection of data |
| Year Produced | 2015 |
| Provided To Others? | Yes |
| Impact | Two papers have been recently published using this resource: PMID: 26048451 doi:10.1038/tp.2015.195. another paper is currently under revision two further research projects are undergoing using data from the '1000 brains'. |
| Title | ANOVA output for Gal, Calcr and Fos RNAscope data. |
| Description | Statistical analysis of Galanin, Calcr and Fos RNAscope data. |
| Type Of Material | Database/Collection of data |
| Year Produced | 2023 |
| Provided To Others? | Yes |
| Impact | Further interest from researchers |
| URL | https://doi.org/10.1371/journal.pgen.1010961.s003 |
| Title | Additional file 1: of Effects of pathogenic CNVs on physical traits in participants of the UK Biobank |
| Description | Table S1. All results from linear regression analysis. Separate tables are provided for each CNV. (DOCX 1040 kb) (XLSX 335 kb) |
| Type Of Material | Database/Collection of data |
| Year Produced | 2018 |
| Provided To Others? | Yes |
| URL | https://springernature.figshare.com/articles/Additional_file_1_of_Effects_of_pathogenic_CNVs_on_phys... |
| Title | Additional file 1: of Effects of pathogenic CNVs on physical traits in participants of the UK Biobank |
| Description | Table S1. All results from linear regression analysis. Separate tables are provided for each CNV. (DOCX 1040 kb) (XLSX 335 kb) |
| Type Of Material | Database/Collection of data |
| Year Produced | 2018 |
| Provided To Others? | Yes |
| URL | https://springernature.figshare.com/articles/Additional_file_1_of_Effects_of_pathogenic_CNVs_on_phys... |
| Title | Additional file 1: of Increased alternate splicing of Htr2c in a mouse model for Prader-Willi syndrome leads disruption of 5HT2C receptor mediated appetite |
| Description | Hypothalamus qPCR analysis. (XLSX 28 kb) |
| Type Of Material | Database/Collection of data |
| Year Produced | 2016 |
| Provided To Others? | Yes |
| Impact | None as yet |
| URL | https://springernature.figshare.com/articles/dataset/Additional_file_1_of_Increased_alternate_splici... |
| Title | Additional file 1: of Increased alternate splicing of Htr2c in a mouse model for Prader-Willi syndrome leads disruption of 5HT2C receptor mediated appetite |
| Description | Hypothalamus qPCR analysis. (XLSX 28 kb) |
| Type Of Material | Database/Collection of data |
| Year Produced | 2016 |
| Provided To Others? | Yes |
| Impact | None as yet |
| URL | https://springernature.figshare.com/articles/dataset/Additional_file_1_of_Increased_alternate_splici... |
| Title | Additional file 2: of Increased alternate splicing of Htr2c in a mouse model for Prader-Willi syndrome leads disruption of 5HT2C receptor mediated appetite |
| Description | Pomc, AgRP, Npy, Bdnf densitometry. (XLSX 11 kb) |
| Type Of Material | Database/Collection of data |
| Year Produced | 2016 |
| Provided To Others? | Yes |
| Impact | None as yet |
| URL | https://springernature.figshare.com/articles/dataset/Additional_file_2_of_Increased_alternate_splici... |
| Title | Additional file 2: of Increased alternate splicing of Htr2c in a mouse model for Prader-Willi syndrome leads disruption of 5HT2C receptor mediated appetite |
| Description | Pomc, AgRP, Npy, Bdnf densitometry. (XLSX 11 kb) |
| Type Of Material | Database/Collection of data |
| Year Produced | 2016 |
| Provided To Others? | Yes |
| Impact | None as yet |
| URL | https://springernature.figshare.com/articles/dataset/Additional_file_2_of_Increased_alternate_splici... |
| Title | Additional file 3: of Effects of pathogenic CNVs on physical traits in participants of the UK Biobank |
| Description | Table S3. Comparison of all associations before and after the exclusion of 1179 people with a neurodevelopmental diagnosis: schizophrenia, autism and "mental retardation". "new" refers to results obtained after the exclusion of these people. The scatter plot compares the normalised z-score values form linear regression analysis before and after the exclusions. The few outliers are generated from three CNVs: 3q29 deletions, Potocki-Lupski Syndrome duplications and 22q11.2 deletions where a disproportionate number of carriers had neurodevelopmental disorders (details in Discussion). (XLSX 14 kb) (XLSX 197 kb) |
| Type Of Material | Database/Collection of data |
| Year Produced | 2018 |
| Provided To Others? | Yes |
| URL | https://springernature.figshare.com/articles/Additional_file_3_of_Effects_of_pathogenic_CNVs_on_phys... |
| Title | Additional file 3: of Effects of pathogenic CNVs on physical traits in participants of the UK Biobank |
| Description | Table S3. Comparison of all associations before and after the exclusion of 1179 people with a neurodevelopmental diagnosis: schizophrenia, autism and "mental retardation". "new" refers to results obtained after the exclusion of these people. The scatter plot compares the normalised z-score values form linear regression analysis before and after the exclusions. The few outliers are generated from three CNVs: 3q29 deletions, Potocki-Lupski Syndrome duplications and 22q11.2 deletions where a disproportionate number of carriers had neurodevelopmental disorders (details in Discussion). (XLSX 14 kb) (XLSX 197 kb) |
| Type Of Material | Database/Collection of data |
| Year Produced | 2018 |
| Provided To Others? | Yes |
| URL | https://springernature.figshare.com/articles/Additional_file_3_of_Effects_of_pathogenic_CNVs_on_phys... |
| Title | Additional file 3: of Increased alternate splicing of Htr2c in a mouse model for Prader-Willi syndrome leads disruption of 5HT2C receptor mediated appetite |
| Description | PWS feeding and serotonin pharmacology. (XLS 173 kb) |
| Type Of Material | Database/Collection of data |
| Year Produced | 2016 |
| Provided To Others? | Yes |
| Impact | None as yet |
| URL | https://springernature.figshare.com/articles/dataset/Additional_file_3_of_Increased_alternate_splici... |
| Title | Additional file 3: of Increased alternate splicing of Htr2c in a mouse model for Prader-Willi syndrome leads disruption of 5HT2C receptor mediated appetite |
| Description | PWS feeding and serotonin pharmacology. (XLS 173 kb) |
| Type Of Material | Database/Collection of data |
| Year Produced | 2016 |
| Provided To Others? | Yes |
| Impact | None as yet |
| URL | https://springernature.figshare.com/articles/dataset/Additional_file_3_of_Increased_alternate_splici... |
| Title | Additional file 4: of Effects of pathogenic CNVs on physical traits in participants of the UK Biobank |
| Description | Table S2. List of the 92 CNVs considered for analysis. "Significant (Coe, 2014)" indicates the CNVs that have been shown to be significantly associated with developmental delay, autism spectrum disorders or multiple congenital anomalies in that study [23]. "Genomic disorder (Dittwald et al, 2013)" indicates the CNVs included in the study by Dittwald et al. [32] as implicated in genomic disorders or clinically significant phenotypes. "Unreliable" indicates those CNVs (mostly telomeric) that produced calls predominantly on arrays that failed QC. This indicates that they could generate false-positive calls even on arrays that pass QC and therefore were excluded from analysis. "Rare" CNVs are those with |
| Type Of Material | Database/Collection of data |
| Year Produced | 2018 |
| Provided To Others? | Yes |
| URL | https://springernature.figshare.com/articles/Additional_file_4_of_Effects_of_pathogenic_CNVs_on_phys... |
| Title | Additional file 4: of Effects of pathogenic CNVs on physical traits in participants of the UK Biobank |
| Description | Table S2. List of the 92 CNVs considered for analysis. "Significant (Coe, 2014)" indicates the CNVs that have been shown to be significantly associated with developmental delay, autism spectrum disorders or multiple congenital anomalies in that study [23]. "Genomic disorder (Dittwald et al, 2013)" indicates the CNVs included in the study by Dittwald et al. [32] as implicated in genomic disorders or clinically significant phenotypes. "Unreliable" indicates those CNVs (mostly telomeric) that produced calls predominantly on arrays that failed QC. This indicates that they could generate false-positive calls even on arrays that pass QC and therefore were excluded from analysis. "Rare" CNVs are those with |
| Type Of Material | Database/Collection of data |
| Year Produced | 2018 |
| Provided To Others? | Yes |
| URL | https://springernature.figshare.com/articles/Additional_file_4_of_Effects_of_pathogenic_CNVs_on_phys... |
| Title | Additional file 4: of Increased alternate splicing of Htr2c in a mouse model for Prader-Willi syndrome leads disruption of 5HT2C receptor mediated appetite |
| Description | WAY 0 v 3mg/kg ARC cFos. (XLSX 17 kb) |
| Type Of Material | Database/Collection of data |
| Year Produced | 2016 |
| Provided To Others? | Yes |
| Impact | None as yet |
| URL | https://springernature.figshare.com/articles/dataset/Additional_file_4_of_Increased_alternate_splici... |
| Title | Alzhemer's Disease Polygenic Risk Profiling |
| Description | This model used data from the powerful dataset comprising 17 008 cases and 37 154 controls obtained from the International Genomics of Alzheimer's Project (IGAP). Alzheimer's disease (AD) Polygenic risk scores were generated for 3177 cases and 7277 controls (GERAD data) and tested whether the alleles identified to associate with disease in IGAP sample are significantly enriched in the cases relative to the controls in the GERAD sample. The disease prediction accuracy was investigated in a sample of 3049 cases and 1554 controls (for whom APOE genotype data was available) by means of sensitivity, specificity, area under the receiver operating characteristic curve (AUC) and positive and negative predictive values. The best prediction accuracy AUC = 78.2% (95% confidence interval 77-80%) was achieved by a logistic regression model with APOE, the polygenic score, sex and age as predictors. |
| Type Of Material | Computer model/algorithm |
| Year Produced | 2016 |
| Provided To Others? | Yes |
| Impact | This approach is used to create SNP arrays for AD prediction (for research only so far). |
| Title | Cell marker genes used in the three different scRNA-seq datasets. |
| Description | Cell marker genes used to identify specific cell-types in the three different scRNA-seq datasets. |
| Type Of Material | Database/Collection of data |
| Year Produced | 2023 |
| Provided To Others? | Yes |
| Impact | Further interest |
| URL | https://doi.org/10.1371/journal.pgen.1010961.s002 |
| Title | Comparison of mouse models reveals the molecular bases for psychotic illness in Prader-Willi syndrome |
| Description | Prader-Willi Syndrome (PWS) is a neurodevelopmental disorder caused by mutations affecting paternal chromosome 15q11-q13, characterized by hypotonia, hyperphagia, impaired cognition and behavioural problems. Psychotic illness is a challenging problem for individuals with PWS, and has different rates of prevalence in distinct PWS genotypes. Previously, we demonstrated behavioural and cognitive endophenotypes of relevance to psychiatric illness in a mouse model for one of the associated PWS genotypes, namely PWS-IC, in which deletion of the imprinting centre leads to loss of paternal imprinted gene expression and over-expression of Ube3a. Here we examine the broader gene expression changes that are specific to the psychiatric endophenotypes seen in this model. To do this we compared the brain transcriptomic profile of the PWS-IC mouse to the PWS-cr model that carries a deletion of the PWS minimal critical interval spanning the snoRNA Snord116 and Ipw. Firstly, we examined the same behavioural and cognitive endophenotypes of relevance to psychiatric illness in the PWS-cr mice. PWS-cr exhibit no differences in locomotor activity, sensory-motor gating and attention of relevance to psychotic illness, and previously seen in the PWS-IC mice. RNA-seq analysis of neonatal brain revealed a greater number of transcriptional changes between PWS-IC and wild-type littermates, than between PWS-cr and wild-type littermates. Moreover, the differentially expressed genes in PWS-IC brain were enriched for GWAS variants associated with episodes of psychotic illness but, interestingly, not schizophrenia. These data illustrate the molecular pathways that may underpin psychotic illness in PWS and have implication for potential therapeutic interventions. |
| Type Of Material | Database/Collection of data |
| Year Produced | 2021 |
| Provided To Others? | Yes |
| Impact | Further interest in research |
| URL | https://osf.io/wnx8r/ |
| Title | DPUK Genomics portal |
| Description | The DPUK Genetics portal provides a collaborative platform for individuals, DPUK cohorts and the wider research community to share and access research outputs from genetic research. The platform provides two key tools for finding, sharing and analysing genetic data; The Results Registry tool, accessible via the main DPUK web portal, allows searching and uploading of genetic results data. This tool provides a rich set of search tools specific to genetic data and includes visualisation using the popular JBrowse genomic browser. This tool will allow users to share this data. This can be done under secure data transfer agreements if necessary. The second tool is the Genetic Data Browser this is available exclusively within the secure DPUK infrastructure. This will allow users to create cross-cohort comparison studies based on genotypic datasets and linked phenotypic data. This tool provides an interactive dashboard which can pull in phenotypic data and genetic markers from GWAS data and allow users to intuitively explore, combine and export patient cohorts. |
| Type Of Material | Database/Collection of data |
| Year Produced | 2017 |
| Provided To Others? | Yes |
| Impact | The DPUK Genetics portal, housed on the DPUK platform, allows non bioinformatic-expert users to explore components of genetic data within a secure environment. We have provided access to an international consortium, GERAD, via the DPUK data portal. This is a dataset of over 18,000 cases and controls (detailed in Table 2), as well as over 5,600 samples to date submitted to the EADB, the European AD DNA bank for deciphering the missing heritability of Alzheimer's disease |
| URL | https://portal.dementiasplatform.uk/ |
| Title | Data from: CAG repeat not polyglutamine length determines timing of Huntington's disease onset |
| Description | Variable, glutamine-encoding, CAA interruptions indicate that a property of the uninterrupted HTT CAG repeat sequence, distinct from the length of huntingtin's polyglutamine segment, dictates the rate at which Huntington's disease (HD) develops. The timing of onset shows no significant association with HTT cis-eQTLs but is influenced, sometimes in a sex-specific manner, by polymorphic variation at multiple DNA maintenance genes, suggesting that the special onset-determining property of the uninterrupted CAG repeat is a propensity for length instability that leads to its somatic expansion. Additional naturally occurring genetic modifier loci, defined by GWAS, may influence HD pathogenesis through other mechanisms. These findings have profound implications for the pathogenesis of HD and other repeat diseases and question the fundamental premise that polyglutamine length determines the rate of pathogenesis in the "polyglutamine disorders." |
| Type Of Material | Database/Collection of data |
| Year Produced | 2019 |
| Provided To Others? | Yes |
| URL | https://datadryad.org/stash/dataset/doi:10.5061/dryad.5d4s2r8 |
| Title | Data from: Population-specific genetic modification of Huntington's disease in Venezuela |
| Description | Modifiers of Mendelian disorders can provide insights into disease mechanisms and guide therapeutic strategies. A recent genome-wide association (GWA) study discovered genetic modifiers of Huntington's disease (HD) onset in Europeans. Here, we performed whole genome sequencing and GWA analysis of a Venezuelan HD cluster whose families were crucial for the original mapping of the HD gene defect. The Venezuelan HD subjects develop motor symptoms earlier than their European counterparts, implying the potential for population-specific modifiers. The main Venezuelan HD family inherits HTT haplotype hap.03, which differs subtly at the sequence level from European HD hap.03, suggesting a different ancestral origin but not explaining the earlier age at onset in these Venezuelans. GWA analysis of the Venezuelan HD cluster suggests both population-specific and population-shared genetic modifiers. Genome-wide significant signals at 7p21.2-21.1 and suggestive association signals at 4p14 and 17q21.2 are evident only in Venezuelan HD, but genome-wide significant association signals at the established European chromosome 15 modifier locus are improved when Venezuelan HD data are included in the meta-analysis. Venezuelan-specific association signals on chromosome 7 center on SOSTDC1, which encodes a bone morphogenetic protein antagonist. The corresponding SNPs are associated with reduced expression of SOSTDC1 in non-Venezuelan tissue samples, suggesting that interaction of reduced SOSTDC1 expression with a population-specific genetic or environmental factor may be responsible for modification of HD onset in Venezuela. Detection of population-specific modification in Venezuelan HD supports the value of distinct disease populations in revealing novel aspects of a disease and population-relevant therapeutic strategies. |
| Type Of Material | Database/Collection of data |
| Year Produced | 2019 |
| Provided To Others? | Yes |
| URL | https://datadryad.org/stash/dataset/doi:10.5061/dryad.tg5f2hp |
| Title | GERAD Exome chip data |
| Description | Dataset from Illumina Exome chip platform (version 1.0 and v1.1), approximately 6,000 cases and 4,000 controls |
| Type Of Material | Database/Collection of data |
| Year Produced | 2014 |
| Provided To Others? | Yes |
| Impact | papers in press |
| Title | GERAD GWAS |
| Description | Genome-wide association study data of over 3,000 AD cases and 7,000 controls |
| Type Of Material | Database/Collection of data |
| Year Produced | 2009 |
| Provided To Others? | Yes |
| Impact | multiple publications |
| Title | Genetic modifiers of Huntington's disease differentially influence motor and cognitive domains |
| Description | Genome-wide association studies (GWAS) of Huntington's disease (HD) have identified six DNA maintenance gene loci (among others) as modifiers and implicated a two step-mechanism of pathogenesis: somatic instability of the causative HTT CAG repeat with subsequent triggering of neuronal damage. The largest studies have been limited to HD individuals with a rater-estimated age at motor onset. To capitalize on the wealth of phenotypic data in several large HD natural history studies, we have performed algorithmic prediction using common motor and cognitive measures to predict age at other disease landmarks as additional phenotypes for GWAS. Combined with imputation using the Trans-Omics for Precision Medicine reference panel, predictions using integrated measures provided objective landmark phenotypes with greater power to detect most modifier loci. Importantly, substantial differences in the relative modifier signal across loci, highlighted by comparing common modifiers at MSH3 and FAN1, revealed that individual modifier effects can act preferentially in the motor or cognitive domains. Individual components of the DNA maintenance modifier mechanisms may therefore act differentially on the neuronal circuits underlying the corresponding clinical measures. In addition, we identified new modifier effects at the PMS1 and PMS2 loci and implicated a potential new locus on chromosome 7. These findings indicate that broadened discovery and characterization of HD genetic modifiers based on additional quantitative or qualitative phenotypes offers not only the promise of in-human validated therapeutic targets, but also a route to dissecting the mechanisms and cell types involved in both the somatic instability and toxicity components of HD pathogenesis. |
| Type Of Material | Database/Collection of data |
| Year Produced | 2022 |
| Provided To Others? | Yes |
| URL | https://datadryad.org/stash/dataset/doi:10.5061/dryad.dr7sqvb11 |
| Title | IG-Single-Cell-Enrichment |
| Description | Scripts to reproduce data found in "Systematic investigation of imprinted gene expression and enrichment in the mouse brain explored at single-cell resolution" |
| Type Of Material | Computer model/algorithm |
| Year Produced | 2022 |
| Provided To Others? | Yes |
| Impact | None as yet |
| URL | https://github.com/MJHiggs/IG-Single-Cell-Enrichment |
| Title | IGAP dataset |
| Description | Mega-meta analysis data of over 17,000 AD cases and 30,000 controls |
| Type Of Material | Database/Collection of data |
| Year Produced | 2013 |
| Provided To Others? | Yes |
| Impact | Lambert et al. 2013 (PMID:24162737), Escott-Price et al. 2014(in press), Farrer et al. 2014 (submitted) |
| Title | Identifying CNVs in the UK Biobank |
| Description | I am caling all CNVs in the 502,000 people from the UK Biobank. These will be made avaialble to the Biobank, for use by researchers from all over the world. |
| Type Of Material | Database/Collection of data |
| Provided To Others? | No |
| Impact | This is still on-going and the data have not been uploaded yet (probably late 2016. |
| Title | Imprinted Gene Enrichment at Single-Cell Resolution |
| Description | Imprinted Gene Enrichment at Single-Cell Resolution - analyses linked to doi: 10.1186/s12864-022-08986-8 |
| Type Of Material | Database/Collection of data |
| Year Produced | 2022 |
| Provided To Others? | Yes |
| Impact | None as yet |
| URL | https://osf.io/jx7kr/ |
| Title | Imprinted gene list used in enrichment analysis. |
| Description | The list of imprinted gene list used in analysis of scRNA-seq data that was used to determine enrichment of expression in key cell-types |
| Type Of Material | Database/Collection of data |
| Year Produced | 2023 |
| Provided To Others? | Yes |
| Impact | Further interest from researchers |
| URL | https://doi.org/10.1371/journal.pgen.1010961.s004 |
| Title | MOESM1 of Decreasing the expression of PICALM reduces endocytosis and the activity of ß-secretase: implications for Alzheimer's disease |
| Description | Additional file 1. These data were used to produce the graphs shown in Figures 1, 3, 4, 5, 6, 7, 8 and 9. |
| Type Of Material | Database/Collection of data |
| Year Produced | 2016 |
| Provided To Others? | Yes |
| URL | https://springernature.figshare.com/articles/dataset/MOESM1_of_Decreasing_the_expression_of_PICALM_r... |
| Title | MOESM1 of Decreasing the expression of PICALM reduces endocytosis and the activity of ß-secretase: implications for Alzheimer's disease |
| Description | Additional file 1. These data were used to produce the graphs shown in Figures 1, 3, 4, 5, 6, 7, 8 and 9. |
| Type Of Material | Database/Collection of data |
| Year Produced | 2016 |
| Provided To Others? | Yes |
| URL | https://springernature.figshare.com/articles/dataset/MOESM1_of_Decreasing_the_expression_of_PICALM_r... |
| Title | PGC Pathways |
| Description | Combining results of several pathway methods on PGC GWAS data |
| Type Of Material | Data analysis technique |
| Year Produced | 2015 |
| Provided To Others? | Yes |
| Impact | Publication |
| URL | http://www.ncbi.nlm.nih.gov/pubmed/25599223 |
| Title | RNAseq analysis of two PWS mouse model brains |
| Description | We report the RNAseq analysis of transcription in the brains of two mouse models for PWS. PWScr and and PWS-IC mice have overlapping and and distinct changes in gene expression and isoform usage. The increased number of changes seen in PWS-IC brain are enriched for genetic variants associated with psychotic illness. |
| Type Of Material | Database/Collection of data |
| Year Produced | 2022 |
| Provided To Others? | Yes |
| Impact | Re-use of data / interest from other researchers |
| URL | https://www.ncbi.nlm.nih.gov/geo/query/acc.cgi?acc=GSE198260 |
| Title | Regulation of glutamate transport and neuroinflammation following HIE |
| Description | DNA methylation and gene expression dataset |
| Type Of Material | Database/Collection of data |
| Year Produced | 2021 |
| Provided To Others? | Yes |
| Impact | None as yet |
| URL | https://data.bris.ac.uk/data/dataset/1rzx8spcol0mk24zjh3hnmbvdd/ |
| Title | Schizophrenia GWAS meta-analysis results |
| Description | Full genome results of our recent Nature Genetics paper CLOZUK schizophrenia GWAS meta-analysis |
| Type Of Material | Database/Collection of data |
| Year Produced | 2018 |
| Provided To Others? | Yes |
| Impact | has only been active since publication 1 week ago |
| URL | http://walters.psycm.cf.ac.uk |
| Title | Single nuclei gene expression matrix from 5 regions of the human prenatal brain |
| Description | Data generated through single nuclei RNA sequencing on 5 regions of the brain (frontal cortex, ganglionic eminence, hippocampus, thalamus and cerebellum) from 3 fetuses (two of 14 and one of 15 post-conception weeks, all female). Tissue was acquired from the MRC-Wellcome Trust Human Developmental Biology Resource (HDBR) with ethical approval. snRNA-seq libraries were prepared from ~10,000 nuclei from each sample using Chromium Single Cell 3' (v3) reagents (10X Genomics). Quality control of libraries was performed using the Agilent 5200 Fragment Analyzer before sequencing on an Illumina NovaSeq 6000 to a depth of at least 865 million (median = 1.01 billion) read pairs per library. Raw sequencing data were converted into FASTQ files, aligned to the hg38 build of the human reference genome and quantified using cellranger count (10X Genomics). For a full description of data generation, please see Cameron et al, Biological Psychiatry 2022 https://doi.org/10.1016/j.biopsych.2022.06.033 |
| Type Of Material | Database/Collection of data |
| Year Produced | 2022 |
| Provided To Others? | Yes |
| URL | https://figshare.com/articles/dataset/Single_nuclei_gene_expression_matrix_from_5_regions_of_the_hum... |
| Title | Summary statistics for expression quantitative trait loci in the developing human brain and their enrichment in neuropsychiatric disorders |
| Description | This dataset contains summary statistics for eQTL (Expression Quantitative Trait Loci) analyses using 120 human fetal brains from the second trimester of gestation (12 to 19 post-conception weeks). Expression matrices, covariates, and summary statistics are provided for all tested eQTL and for top eQTL for all genes and transcripts. |
| Type Of Material | Database/Collection of data |
| Year Produced | 2018 |
| Provided To Others? | Yes |
| Impact | As of 12th Feb 2019, the data have been downloaded 135 times in the 2.5 months that they have been available. |
| URL | https://doi.org/10.6084/m9.figshare.6881825 |
| Title | Whole hypothalamus datasets |
| Description | i. Medial Preotic Area dataset. ii. Mouse Brain Atlas dataset. iii. |
| Type Of Material | Data analysis technique |
| Year Produced | 2023 |
| Provided To Others? | Yes |
| Impact | None as yet |
| URL | https://doi.org/10.1371/journal.pgen.1010961.s001 |
| Title | a github repository |
| Description | This pipeline takes a published mouse gene list for astrocytes, converts to human, and creates a file for grch38 with and without the APOE region. |
| Type Of Material | Data analysis technique |
| Year Produced | 2024 |
| Provided To Others? | No |
| Impact | This tool will used for a publication which is currently in preparation. |
| URL | https://github.com/seafloor/escott-price-lab-pipelines/tree/main |
| Description | ADHD genetics |
| Organisation | Psychiatric GWAS Consortium (PGC) |
| Department | ADHD Sub Group |
| Country | United States |
| Sector | Academic/University |
| PI Contribution | joint papers, samples |
| Collaborator Contribution | joint papers |
| Impact | papers published |
| Start Year | 2007 |
| Description | Asterand Biosciences |
| Organisation | Asterand |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | Developing the culture technology for 3D cultures of Huamn Glioma tumours |
| Collaborator Contribution | Potential to commercialise and develop SOPs |
| Impact | N/A |
| Start Year | 2016 |
| Description | Atmohealth |
| Organisation | FACE Recording & Measurement Systems Ltd |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | Working with FACE to develop bespoke database solutions for the departments research |
| Collaborator Contribution | developing bespoke database solutions |
| Impact | None to date |
| Start Year | 2016 |
| Description | BLISS -the preterm birth charity |
| Organisation | Bliss |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | WE are working with BLISS as we will do the science and they will conduct focus groups with parents |
| Collaborator Contribution | They will conduct two focus groups |
| Impact | None yet |
| Start Year | 2017 |
| Description | BRACE |
| Organisation | University of Bristol |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | advice and training on genomic data analysis |
| Collaborator Contribution | Investigating the genetic overlap between AD and other diseases or traits using polygenic risk scores in Avon Longitudinal Study of Parents and Children (ALSPAC) |
| Impact | 1. Application of newly developed methodology (MR-Base), which hallows to do rapid high-throughput analysis of potentially interesting traits and environmental exposures. 2. Test for shared genetic susceptibility between AD and early life lipid levels, glycaemic, anthropometric, behavioral and cognitive traits in ALSPAC children |
| Start Year | 2016 |
| Description | Biomarkers for psychosis - RCSI |
| Organisation | Royal College of Surgeons in Ireland |
| Country | Ireland |
| Sector | Academic/University |
| PI Contribution | Co-app on grant, obtaining data, co-authoring papers |
| Collaborator Contribution | Led grant application and co-authored/led papers |
| Impact | HBI Research Grants Publications |
| Start Year | 2014 |
| Description | Biopsy tissue from glioma. |
| Organisation | Cardiff University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Provision of biological samples and clinical data. |
| Collaborator Contribution | Provision of biochemical and genomic analysis. |
| Impact | For publications, either published or in process. |
| Start Year | 2017 |
| Description | Bipolar - Glasgow |
| Organisation | University of Glasgow |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Grant lead, co-supervising student |
| Collaborator Contribution | n/a |
| Impact | MHRUK studentship and publications |
| Start Year | 2015 |
| Description | Broad Institute collaboration |
| Organisation | Broad Institute |
| Department | Stanley Center for Psychiatric Research |
| Country | United States |
| Sector | Academic/University |
| PI Contribution | Provided well characterised samples for genotyping. |
| Collaborator Contribution | SNP genotyping and exome sequencing. |
| Impact | none as yet |
| Description | CADR |
| Organisation | Bangor University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | sample preparation, data analysis |
| Collaborator Contribution | data analysis, sample collections |
| Impact | none yet |
| Start Year | 2014 |
| Description | CADR |
| Organisation | Swansea University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | sample preparation, data analysis |
| Collaborator Contribution | data analysis, sample collections |
| Impact | none yet |
| Start Year | 2014 |
| Description | CD59 quantification in MS/NMO/CIS/controls |
| Organisation | Cardiff University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Provision of biological samples and clinical data |
| Collaborator Contribution | Provision of biological samples and clinical data |
| Impact | For publications, either published or in process. |
| Start Year | 2016 |
| Description | CFAS |
| Organisation | Bangor University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | We are working together with CFAS to prepare the 3,000 participant cohort for genetic research. |
| Collaborator Contribution | Provided cohort |
| Impact | CFAS prepared for Genetic analysis |
| Start Year | 2009 |
| Description | CFAS |
| Organisation | Swansea University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | We are working together with CFAS to prepare the 3,000 participant cohort for genetic research. |
| Collaborator Contribution | Provided cohort |
| Impact | CFAS prepared for Genetic analysis |
| Start Year | 2009 |
| Description | CNV in drug-resitant JME |
| Organisation | Cardiff University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Provision of biological samples and clinical data. |
| Collaborator Contribution | Provision of biochemical and genomic analysis. |
| Impact | For publications, either published or in process. |
| Start Year | 2015 |
| Description | Cambridge Centre for Ageing and Neuroscience |
| Organisation | University of Cambridge |
| Department | Cambridge Neuroscience |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | My research team has received the permission and access to the genetic data of the CamCan cohort with the aim to analyse the genetic data and calculate dementia related PRS for this cohort. |
| Collaborator Contribution | The partners have provided us with the data |
| Impact | not yet |
| Start Year | 2022 |
| Description | Cardiovascular drugs and dementia |
| Organisation | University of Glasgow |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Advice on statistical data analyses |
| Collaborator Contribution | Collaboration with clinicians to assess a variety of medications and validity of the 'dementia' diagnosis |
| Impact | Collaboration between clinicians and data analysts |
| Start Year | 2024 |
| Description | Cell Therapy for Brain repair |
| Organisation | Cardiff University |
| Department | Brain repair group |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Demonstration of the effect of the microenvironment on cell transplants |
| Collaborator Contribution | Expertise in animal models of cell transplantation |
| Impact | Life Sciences Bridging Fund grant |
| Start Year | 2015 |
| Description | Child and Adolescent Research |
| Organisation | University of Sussex |
| Department | School of Psychology Sussex |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | scientific input to design of grant and ongoing papers |
| Collaborator Contribution | scientific input to design of grant and ongoing papers |
| Impact | Multiple papers |
| Start Year | 2013 |
| Description | Collaboration with Bristol MRC Unit |
| Organisation | University of Bristol |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Joint work on ADHD and risk alleles |
| Collaborator Contribution | ALSPAC data and science |
| Impact | Multiple papers and ongoing collaboration |
| Start Year | 2009 |
| Description | Collaboration with Eisai AiM Institute |
| Organisation | Eisai Ltd |
| Department | Eisai Inc |
| Country | United States |
| Sector | Private |
| PI Contribution | Consultancy on Polygenic risk score for clinical trials |
| Collaborator Contribution | We are in the process of negotiations |
| Impact | potentially this collaboration will pay for a time of a postdoctoral researcher |
| Start Year | 2018 |
| Description | Collaboration with European Bioinformatics institute |
| Organisation | EMBL European Bioinformatics Institute (EMBL - EBI) |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | We plan to provide a software for polygenic risk score calculation and prosess the GWAS summary statistics for all current GWASes available in EBI GWAS catalogue |
| Collaborator Contribution | provide data access to the GWAS catalogue |
| Impact | This collaboration will provide the GWAS processed data to the research community for quick and efficient calculation of polygenic risk score for any disorder (stored in the EBI GWAS catalogue) |
| Start Year | 2019 |
| Description | Collaboration with NIMH |
| Organisation | National Institutes of Health (NIH) |
| Department | National Institute of Mental Health (NIMH) |
| Country | United States |
| Sector | Public |
| PI Contribution | Joint paper on genetic architecture of irritability. |
| Collaborator Contribution | We jointly have written a paper on findings to do with the genetic architecture of irritability |
| Impact | Paper submitted for publication |
| Start Year | 2016 |
| Description | Collaboration with the University of Wuerzburg |
| Organisation | University of Wurzburg |
| Country | Germany |
| Sector | Academic/University |
| PI Contribution | We are using my expertise in CNV and sequencing analysis and the German team are contributing their 2000 patients/controls DNA samples |
| Collaborator Contribution | The team in Wuerzburg has collected one of the largest and best-characterised datasets of schizophrenia patients. They are happy to collaborate with us, due to my long-term involvement with their research. We will probably genotype and sequence their samples. |
| Impact | CNV analsyis of de novos: this will make part of a large paper under preparation. |
| Start Year | 2010 |
| Description | Complement System in MS |
| Organisation | Cardiff University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Provision of biological samples and clinical data. |
| Collaborator Contribution | Provision of biochemical and genomic analysis. |
| Impact | For publications, either published or in process |
| Start Year | 2015 |
| Description | Complement biomarkers in epilepsy |
| Organisation | Cardiff University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Provision of biological samples and clinical data. |
| Collaborator Contribution | Provision of biochemical and genomic analysis. |
| Impact | For publications, either published or in process. |
| Start Year | 2016 |
| Description | DNA genome screening, Illumina |
| Organisation | University of Bristol |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Provision of biological samples and clinical data. |
| Collaborator Contribution | Provision of biochemical and genomic analysis. |
| Impact | For publications, either published or in process. |
| Start Year | 2016 |
| Description | DPUK |
| Organisation | Medical Research Council (MRC) |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Steering Group member, DPUK work package lead. |
| Collaborator Contribution | Creating Dementia Platform UK Data Portal |
| Impact | In the process of creating on-line database with dementia cohorts, available in the UK and pipelines for data analyses. Multidisceplinary: genetics, bioinfirmatics, IT. |
| Start Year | 2014 |
| Description | DPUK-2 (2020 - 2025) |
| Organisation | University of Oxford |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Calculation of pathway specific PRS, relevant to the Neuroinflammation work package. |
| Collaborator Contribution | Access to the DPUK cohorts |
| Impact | data access to DPUK cohorts |
| Start Year | 2020 |
| Description | DartingtonSRUresilience |
| Organisation | Social Research Unit at Dartington |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Informed senior research staff and trustees of findings from the project |
| Collaborator Contribution | Hosted seminar, and agreed to assist in preparation of policy brief and dissemination of findings to local and national stakeholders |
| Impact | Dartington Social Research Unit hosted seminar to discuss findings |
| Start Year | 2015 |
| Description | Disentangling the population- versus treatment-specific effect on the milder disease course observed during Interferon beta treatment in patients with Multiple Sclerosis |
| Organisation | Sapienza University of Rome |
| Country | Italy |
| Sector | Academic/University |
| PI Contribution | This is a collaboration aimed at disentanginge the population- versus treatment-specific effect on the disease course during IFN beta treatment in patients with MS by testing, in two cohorts belonging to different geographical areas of MS risk (UK and Italy), the impact of demographic and clinical variables that, at the time of treatment commencement, can affect the disease course on treatment and thus can confound the interpretation of treatment influence on clinical outcomes. We will contribute with anonymised patients' data and clinical expertise. |
| Collaborator Contribution | Our collaborators will contribute with with anonymised patients' data and statistical expertise. |
| Impact | No outputs yet. |
| Start Year | 2015 |
| Description | EISAI |
| Organisation | Eisai Ltd |
| Department | Eisai Europe Ltd |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | we provide expertise and data analysis of pathways and gene networks related to neurodegeneration |
| Collaborator Contribution | The partner provide expertise the the biological definition of neurodegenerative gene networks |
| Impact | NA |
| Start Year | 2019 |
| Description | ENIGMA |
| Organisation | National Center for Biotechnology Information (NCBI) |
| Country | United States |
| Sector | Public |
| PI Contribution | We share and contribute data across different research centres around the world to enhance our statisitical power |
| Collaborator Contribution | We are involved in several projects within ENIGMA: Investigating neuroanatomical biomarkers of Bipolar Disorder. Investigating neuroanatomical abnormalities in psychiatric patients and unaffected relatives. Investigating common genetic variances associated to neuroanatomy. |
| Impact | Two papers have so far resulted from this collaboration: doi: 10.1038/mp.2015.227 doi: 10.1007/s11682-013-9269-5 and several contributions to scientific meetings |
| Start Year | 2014 |
| Description | EPAD |
| Organisation | GlaxoSmithKline (GSK) |
| Department | Epidemiology |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | GENOTYPING AND ANALYSIS |
| Collaborator Contribution | cohorts, biomarker studies, epidemiological studies, random control studies |
| Impact | none yet |
| Start Year | 2014 |
| Description | Early adversity |
| Organisation | National Institute of Health and Medical Research (INSERM) |
| Country | France |
| Sector | Academic/University |
| PI Contribution | Hosted visit and organised seminar; Joint symposium for NCDS@60 |
| Collaborator Contribution | Coding of prospectively assessed ACEs in National Child Development Study; Joint symposium for NCDS@60 |
| Impact | The long term psychological and physiological consequences of childhood adversities: identifying exposures and pathways over the life course using the NCDS. Paper symposium to be presented at "NCDS 60 years of our lives". London, 2018 |
| Start Year | 2017 |
| Description | Eisai Collaboration |
| Organisation | Eisai Ltd |
| Country | Japan |
| Sector | Private |
| PI Contribution | We are identifying important genes and pathways involved in Alzheimer's disease for further investigation in functional experiments and drug-based tests. |
| Collaborator Contribution | Expertise in functional biology |
| Impact | None yet |
| Start Year | 2015 |
| Description | Electronic health records |
| Organisation | National Institutes of Health (NIH) |
| Country | United States |
| Sector | Public |
| PI Contribution | Discussion of data analyses and results using Electronic Health records in the UK databases |
| Collaborator Contribution | Discussion of data analyses and results using Electronic Health records in international databases, replication |
| Impact | Two papers have been submitted. |
| Start Year | 2023 |
| Description | EpiPGX - biomarkers in epilepsy |
| Organisation | University of Dublin |
| Country | Ireland |
| Sector | Academic/University |
| PI Contribution | Provision of biological samples and clinical data. |
| Collaborator Contribution | Provision of biochemical and genomic analysis. |
| Impact | For publications, either published or in process. |
| Start Year | 2016 |
| Description | European Alzheimer's disease databank |
| Organisation | University of Lille |
| Country | France |
| Sector | Academic/University |
| PI Contribution | Machine learning based data analysis |
| Collaborator Contribution | Provided access to the data and HPC facilities |
| Impact | Paper in preparation |
| Start Year | 2022 |
| Description | Eurostemcells |
| Organisation | EU-T0 |
| Country | European Union (EU) |
| Sector | Public |
| PI Contribution | Eurostemcells is an educational Consortium to provide reliable information about stem cells and their application including their impact on society. My/my team contribute articles, edit reports and information leaflets. |
| Collaborator Contribution | Coordinated by University of Edinburgh. |
| Impact | Information and reports |
| Start Year | 2014 |
| Description | Foundation for Prader-Willi Research "Pre-Clinical Animal Network" (FPWR-PCAN) |
| Organisation | Foundation for Prader-Willi Research (FPWR) |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Our expertise has been used to shape the decision making with regards to animal models to be generated and the phenotyping pipeline. |
| Collaborator Contribution | FPWR facilitated the formation and meetings of the FPWR-PCAN and drove the decision-making MRC Harwell, IIT & INMED helped shape the decision making with regards to animal models to be generated and the phenotyping pipeline |
| Impact | Generation of new PWS mouse models by MRC Harwell - these are underway currently; follow-on funding to support analysis of data generated by MRC Harwell (funding to Tucci, Isles and Muscatelli) |
| Start Year | 2016 |
| Description | Foundation for Prader-Willi Research "Pre-Clinical Animal Network" (FPWR-PCAN) |
| Organisation | Italian Institute of Technology (Istituto Italiano di Tecnologia IIT) |
| Country | Italy |
| Sector | Academic/University |
| PI Contribution | Our expertise has been used to shape the decision making with regards to animal models to be generated and the phenotyping pipeline. |
| Collaborator Contribution | FPWR facilitated the formation and meetings of the FPWR-PCAN and drove the decision-making MRC Harwell, IIT & INMED helped shape the decision making with regards to animal models to be generated and the phenotyping pipeline |
| Impact | Generation of new PWS mouse models by MRC Harwell - these are underway currently; follow-on funding to support analysis of data generated by MRC Harwell (funding to Tucci, Isles and Muscatelli) |
| Start Year | 2016 |
| Description | Foundation for Prader-Willi Research "Pre-Clinical Animal Network" (FPWR-PCAN) |
| Organisation | MRC Harwell |
| Department | MRC Mammalian Genetics Unit |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Our expertise has been used to shape the decision making with regards to animal models to be generated and the phenotyping pipeline. |
| Collaborator Contribution | FPWR facilitated the formation and meetings of the FPWR-PCAN and drove the decision-making MRC Harwell, IIT & INMED helped shape the decision making with regards to animal models to be generated and the phenotyping pipeline |
| Impact | Generation of new PWS mouse models by MRC Harwell - these are underway currently; follow-on funding to support analysis of data generated by MRC Harwell (funding to Tucci, Isles and Muscatelli) |
| Start Year | 2016 |
| Description | Foundation for Prader-Willi Research "Pre-Clinical Animal Network" (FPWR-PCAN) |
| Organisation | National Institute of Health and Medical Research (INSERM) |
| Department | Neurobiology Institute of the Mediterranean |
| Country | France |
| Sector | Academic/University |
| PI Contribution | Our expertise has been used to shape the decision making with regards to animal models to be generated and the phenotyping pipeline. |
| Collaborator Contribution | FPWR facilitated the formation and meetings of the FPWR-PCAN and drove the decision-making MRC Harwell, IIT & INMED helped shape the decision making with regards to animal models to be generated and the phenotyping pipeline |
| Impact | Generation of new PWS mouse models by MRC Harwell - these are underway currently; follow-on funding to support analysis of data generated by MRC Harwell (funding to Tucci, Isles and Muscatelli) |
| Start Year | 2016 |
| Description | GENAROAD |
| Organisation | Genetic Architecture of Rate of Alzheimer’s Decline (GENAROAD) Consortium |
| Country | Global |
| Sector | Charity/Non Profit |
| PI Contribution | data and analyses |
| Collaborator Contribution | data analysis |
| Impact | none yet, paper being prepared for publication |
| Start Year | 2013 |
| Description | GERAD (Genetic and Environmental Risk in Alzheimer's Disease) |
| Organisation | Albert Ludwig University of Freiburg |
| Country | Germany |
| Sector | Academic/University |
| PI Contribution | Leadership, management, DNA from AD cases & controls, Data analysis, directs study design & joint papers |
| Collaborator Contribution | DNA from AD cases and/or controls, GWAS data from AD cases and/or controls, input into study design, input into manuscript preparation |
| Impact | Publications: PMED IDs: 19734902; 20862329; 20460622, 21085570, 22005930, 22027014, 21220680, 21460840, 20029910, 22445811, 22693153, 21812096, 22442439, 22430674, 22405046, 23150934 |
| Start Year | 2008 |
| Description | GERAD (Genetic and Environmental Risk in Alzheimer's Disease) |
| Organisation | Brigham Young University |
| Country | United States |
| Sector | Academic/University |
| PI Contribution | Leadership, management, DNA from AD cases & controls, Data analysis, directs study design & joint papers |
| Collaborator Contribution | DNA from AD cases and/or controls, GWAS data from AD cases and/or controls, input into study design, input into manuscript preparation |
| Impact | Publications: PMED IDs: 19734902; 20862329; 20460622, 21085570, 22005930, 22027014, 21220680, 21460840, 20029910, 22445811, 22693153, 21812096, 22442439, 22430674, 22405046, 23150934 |
| Start Year | 2008 |
| Description | GERAD (Genetic and Environmental Risk in Alzheimer's Disease) |
| Organisation | Central Institute for Mental Health |
| Country | Germany |
| Sector | Academic/University |
| PI Contribution | Leadership, management, DNA from AD cases & controls, Data analysis, directs study design & joint papers |
| Collaborator Contribution | DNA from AD cases and/or controls, GWAS data from AD cases and/or controls, input into study design, input into manuscript preparation |
| Impact | Publications: PMED IDs: 19734902; 20862329; 20460622, 21085570, 22005930, 22027014, 21220680, 21460840, 20029910, 22445811, 22693153, 21812096, 22442439, 22430674, 22405046, 23150934 |
| Start Year | 2008 |
| Description | GERAD (Genetic and Environmental Risk in Alzheimer's Disease) |
| Organisation | Free University of Berlin |
| Country | Germany |
| Sector | Academic/University |
| PI Contribution | Leadership, management, DNA from AD cases & controls, Data analysis, directs study design & joint papers |
| Collaborator Contribution | DNA from AD cases and/or controls, GWAS data from AD cases and/or controls, input into study design, input into manuscript preparation |
| Impact | Publications: PMED IDs: 19734902; 20862329; 20460622, 21085570, 22005930, 22027014, 21220680, 21460840, 20029910, 22445811, 22693153, 21812096, 22442439, 22430674, 22405046, 23150934 |
| Start Year | 2008 |
| Description | GERAD (Genetic and Environmental Risk in Alzheimer's Disease) |
| Organisation | Friedrich-Alexander University Erlangen-Nuremberg |
| Department | Department of Psychiatry |
| Country | Germany |
| Sector | Academic/University |
| PI Contribution | Leadership, management, DNA from AD cases & controls, Data analysis, directs study design & joint papers |
| Collaborator Contribution | DNA from AD cases and/or controls, GWAS data from AD cases and/or controls, input into study design, input into manuscript preparation |
| Impact | Publications: PMED IDs: 19734902; 20862329; 20460622, 21085570, 22005930, 22027014, 21220680, 21460840, 20029910, 22445811, 22693153, 21812096, 22442439, 22430674, 22405046, 23150934 |
| Start Year | 2008 |
| Description | GERAD (Genetic and Environmental Risk in Alzheimer's Disease) |
| Organisation | German Centre for Neurodegenerative Diseases |
| Country | Germany |
| Sector | Public |
| PI Contribution | Leadership, management, DNA from AD cases & controls, Data analysis, directs study design & joint papers |
| Collaborator Contribution | DNA from AD cases and/or controls, GWAS data from AD cases and/or controls, input into study design, input into manuscript preparation |
| Impact | Publications: PMED IDs: 19734902; 20862329; 20460622, 21085570, 22005930, 22027014, 21220680, 21460840, 20029910, 22445811, 22693153, 21812096, 22442439, 22430674, 22405046, 23150934 |
| Start Year | 2008 |
| Description | GERAD (Genetic and Environmental Risk in Alzheimer's Disease) |
| Organisation | Goethe University Frankfurt |
| Country | Germany |
| Sector | Academic/University |
| PI Contribution | Leadership, management, DNA from AD cases & controls, Data analysis, directs study design & joint papers |
| Collaborator Contribution | DNA from AD cases and/or controls, GWAS data from AD cases and/or controls, input into study design, input into manuscript preparation |
| Impact | Publications: PMED IDs: 19734902; 20862329; 20460622, 21085570, 22005930, 22027014, 21220680, 21460840, 20029910, 22445811, 22693153, 21812096, 22442439, 22430674, 22405046, 23150934 |
| Start Year | 2008 |
| Description | GERAD (Genetic and Environmental Risk in Alzheimer's Disease) |
| Organisation | Helmholtz Association of German Research Centres |
| Department | Helmholtz Zentrum Munchen |
| Country | Germany |
| Sector | Academic/University |
| PI Contribution | Leadership, management, DNA from AD cases & controls, Data analysis, directs study design & joint papers |
| Collaborator Contribution | DNA from AD cases and/or controls, GWAS data from AD cases and/or controls, input into study design, input into manuscript preparation |
| Impact | Publications: PMED IDs: 19734902; 20862329; 20460622, 21085570, 22005930, 22027014, 21220680, 21460840, 20029910, 22445811, 22693153, 21812096, 22442439, 22430674, 22405046, 23150934 |
| Start Year | 2008 |
| Description | GERAD (Genetic and Environmental Risk in Alzheimer's Disease) |
| Organisation | King's College London |
| Department | Institute of Psychiatry, Psychology & Neuroscience |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Leadership, management, DNA from AD cases & controls, Data analysis, directs study design & joint papers |
| Collaborator Contribution | DNA from AD cases and/or controls, GWAS data from AD cases and/or controls, input into study design, input into manuscript preparation |
| Impact | Publications: PMED IDs: 19734902; 20862329; 20460622, 21085570, 22005930, 22027014, 21220680, 21460840, 20029910, 22445811, 22693153, 21812096, 22442439, 22430674, 22405046, 23150934 |
| Start Year | 2008 |
| Description | GERAD (Genetic and Environmental Risk in Alzheimer's Disease) |
| Organisation | Ludwig Maximilian University of Munich (LMU Munich) |
| Department | Department of Neurology |
| Country | Germany |
| Sector | Academic/University |
| PI Contribution | Leadership, management, DNA from AD cases & controls, Data analysis, directs study design & joint papers |
| Collaborator Contribution | DNA from AD cases and/or controls, GWAS data from AD cases and/or controls, input into study design, input into manuscript preparation |
| Impact | Publications: PMED IDs: 19734902; 20862329; 20460622, 21085570, 22005930, 22027014, 21220680, 21460840, 20029910, 22445811, 22693153, 21812096, 22442439, 22430674, 22405046, 23150934 |
| Start Year | 2008 |
| Description | GERAD (Genetic and Environmental Risk in Alzheimer's Disease) |
| Organisation | Mayo Foundation for Medical Education and Research (MFMER) |
| Country | United States |
| Sector | Charity/Non Profit |
| PI Contribution | Leadership, management, DNA from AD cases & controls, Data analysis, directs study design & joint papers |
| Collaborator Contribution | DNA from AD cases and/or controls, GWAS data from AD cases and/or controls, input into study design, input into manuscript preparation |
| Impact | Publications: PMED IDs: 19734902; 20862329; 20460622, 21085570, 22005930, 22027014, 21220680, 21460840, 20029910, 22445811, 22693153, 21812096, 22442439, 22430674, 22405046, 23150934 |
| Start Year | 2008 |
| Description | GERAD (Genetic and Environmental Risk in Alzheimer's Disease) |
| Organisation | Medical Research Council (MRC) |
| Department | MRC Centre for Neuropsychiatric Genetics and Genomics |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Leadership, management, DNA from AD cases & controls, Data analysis, directs study design & joint papers |
| Collaborator Contribution | DNA from AD cases and/or controls, GWAS data from AD cases and/or controls, input into study design, input into manuscript preparation |
| Impact | Publications: PMED IDs: 19734902; 20862329; 20460622, 21085570, 22005930, 22027014, 21220680, 21460840, 20029910, 22445811, 22693153, 21812096, 22442439, 22430674, 22405046, 23150934 |
| Start Year | 2008 |
| Description | GERAD (Genetic and Environmental Risk in Alzheimer's Disease) |
| Organisation | National Institutes of Health (NIH) |
| Country | United States |
| Sector | Public |
| PI Contribution | Leadership, management, DNA from AD cases & controls, Data analysis, directs study design & joint papers |
| Collaborator Contribution | DNA from AD cases and/or controls, GWAS data from AD cases and/or controls, input into study design, input into manuscript preparation |
| Impact | Publications: PMED IDs: 19734902; 20862329; 20460622, 21085570, 22005930, 22027014, 21220680, 21460840, 20029910, 22445811, 22693153, 21812096, 22442439, 22430674, 22405046, 23150934 |
| Start Year | 2008 |
| Description | GERAD (Genetic and Environmental Risk in Alzheimer's Disease) |
| Organisation | Oxford University Hospitals NHS Foundation Trust |
| Department | NIHR Oxford Biomedical Research Centre |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Leadership, management, DNA from AD cases & controls, Data analysis, directs study design & joint papers |
| Collaborator Contribution | DNA from AD cases and/or controls, GWAS data from AD cases and/or controls, input into study design, input into manuscript preparation |
| Impact | Publications: PMED IDs: 19734902; 20862329; 20460622, 21085570, 22005930, 22027014, 21220680, 21460840, 20029910, 22445811, 22693153, 21812096, 22442439, 22430674, 22405046, 23150934 |
| Start Year | 2008 |
| Description | GERAD (Genetic and Environmental Risk in Alzheimer's Disease) |
| Organisation | Queen's University Belfast |
| Department | Aging group |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Leadership, management, DNA from AD cases & controls, Data analysis, directs study design & joint papers |
| Collaborator Contribution | DNA from AD cases and/or controls, GWAS data from AD cases and/or controls, input into study design, input into manuscript preparation |
| Impact | Publications: PMED IDs: 19734902; 20862329; 20460622, 21085570, 22005930, 22027014, 21220680, 21460840, 20029910, 22445811, 22693153, 21812096, 22442439, 22430674, 22405046, 23150934 |
| Start Year | 2008 |
| Description | GERAD (Genetic and Environmental Risk in Alzheimer's Disease) |
| Organisation | The Wellcome Trust Sanger Institute |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Leadership, management, DNA from AD cases & controls, Data analysis, directs study design & joint papers |
| Collaborator Contribution | DNA from AD cases and/or controls, GWAS data from AD cases and/or controls, input into study design, input into manuscript preparation |
| Impact | Publications: PMED IDs: 19734902; 20862329; 20460622, 21085570, 22005930, 22027014, 21220680, 21460840, 20029910, 22445811, 22693153, 21812096, 22442439, 22430674, 22405046, 23150934 |
| Start Year | 2008 |
| Description | GERAD (Genetic and Environmental Risk in Alzheimer's Disease) |
| Organisation | Trinity College Dublin |
| Country | Ireland |
| Sector | Academic/University |
| PI Contribution | Leadership, management, DNA from AD cases & controls, Data analysis, directs study design & joint papers |
| Collaborator Contribution | DNA from AD cases and/or controls, GWAS data from AD cases and/or controls, input into study design, input into manuscript preparation |
| Impact | Publications: PMED IDs: 19734902; 20862329; 20460622, 21085570, 22005930, 22027014, 21220680, 21460840, 20029910, 22445811, 22693153, 21812096, 22442439, 22430674, 22405046, 23150934 |
| Start Year | 2008 |
| Description | GERAD (Genetic and Environmental Risk in Alzheimer's Disease) |
| Organisation | University College London |
| Department | Institute of Neurology |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Leadership, management, DNA from AD cases & controls, Data analysis, directs study design & joint papers |
| Collaborator Contribution | DNA from AD cases and/or controls, GWAS data from AD cases and/or controls, input into study design, input into manuscript preparation |
| Impact | Publications: PMED IDs: 19734902; 20862329; 20460622, 21085570, 22005930, 22027014, 21220680, 21460840, 20029910, 22445811, 22693153, 21812096, 22442439, 22430674, 22405046, 23150934 |
| Start Year | 2008 |
| Description | GERAD (Genetic and Environmental Risk in Alzheimer's Disease) |
| Organisation | University College London |
| Department | MRC Prion Unit and the Dementia Research Centre |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Leadership, management, DNA from AD cases & controls, Data analysis, directs study design & joint papers |
| Collaborator Contribution | DNA from AD cases and/or controls, GWAS data from AD cases and/or controls, input into study design, input into manuscript preparation |
| Impact | Publications: PMED IDs: 19734902; 20862329; 20460622, 21085570, 22005930, 22027014, 21220680, 21460840, 20029910, 22445811, 22693153, 21812096, 22442439, 22430674, 22405046, 23150934 |
| Start Year | 2008 |
| Description | GERAD (Genetic and Environmental Risk in Alzheimer's Disease) |
| Organisation | University Duisburg-Essen |
| Country | Germany |
| Sector | Academic/University |
| PI Contribution | Leadership, management, DNA from AD cases & controls, Data analysis, directs study design & joint papers |
| Collaborator Contribution | DNA from AD cases and/or controls, GWAS data from AD cases and/or controls, input into study design, input into manuscript preparation |
| Impact | Publications: PMED IDs: 19734902; 20862329; 20460622, 21085570, 22005930, 22027014, 21220680, 21460840, 20029910, 22445811, 22693153, 21812096, 22442439, 22430674, 22405046, 23150934 |
| Start Year | 2008 |
| Description | GERAD (Genetic and Environmental Risk in Alzheimer's Disease) |
| Organisation | University of Bonn |
| Department | Department of Psychiatry |
| Country | Germany |
| Sector | Academic/University |
| PI Contribution | Leadership, management, DNA from AD cases & controls, Data analysis, directs study design & joint papers |
| Collaborator Contribution | DNA from AD cases and/or controls, GWAS data from AD cases and/or controls, input into study design, input into manuscript preparation |
| Impact | Publications: PMED IDs: 19734902; 20862329; 20460622, 21085570, 22005930, 22027014, 21220680, 21460840, 20029910, 22445811, 22693153, 21812096, 22442439, 22430674, 22405046, 23150934 |
| Start Year | 2008 |
| Description | GERAD (Genetic and Environmental Risk in Alzheimer's Disease) |
| Organisation | University of Bristol |
| Department | Dementia Research Group |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Leadership, management, DNA from AD cases & controls, Data analysis, directs study design & joint papers |
| Collaborator Contribution | DNA from AD cases and/or controls, GWAS data from AD cases and/or controls, input into study design, input into manuscript preparation |
| Impact | Publications: PMED IDs: 19734902; 20862329; 20460622, 21085570, 22005930, 22027014, 21220680, 21460840, 20029910, 22445811, 22693153, 21812096, 22442439, 22430674, 22405046, 23150934 |
| Start Year | 2008 |
| Description | GERAD (Genetic and Environmental Risk in Alzheimer's Disease) |
| Organisation | University of Cambridge |
| Department | Cambridge Institute of Public Health |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Leadership, management, DNA from AD cases & controls, Data analysis, directs study design & joint papers |
| Collaborator Contribution | DNA from AD cases and/or controls, GWAS data from AD cases and/or controls, input into study design, input into manuscript preparation |
| Impact | Publications: PMED IDs: 19734902; 20862329; 20460622, 21085570, 22005930, 22027014, 21220680, 21460840, 20029910, 22445811, 22693153, 21812096, 22442439, 22430674, 22405046, 23150934 |
| Start Year | 2008 |
| Description | GERAD (Genetic and Environmental Risk in Alzheimer's Disease) |
| Organisation | University of Hamburg |
| Country | Germany |
| Sector | Academic/University |
| PI Contribution | Leadership, management, DNA from AD cases & controls, Data analysis, directs study design & joint papers |
| Collaborator Contribution | DNA from AD cases and/or controls, GWAS data from AD cases and/or controls, input into study design, input into manuscript preparation |
| Impact | Publications: PMED IDs: 19734902; 20862329; 20460622, 21085570, 22005930, 22027014, 21220680, 21460840, 20029910, 22445811, 22693153, 21812096, 22442439, 22430674, 22405046, 23150934 |
| Start Year | 2008 |
| Description | GERAD (Genetic and Environmental Risk in Alzheimer's Disease) |
| Organisation | University of Manchester |
| Department | Neuroscience Research Institute (NRI) |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Leadership, management, DNA from AD cases & controls, Data analysis, directs study design & joint papers |
| Collaborator Contribution | DNA from AD cases and/or controls, GWAS data from AD cases and/or controls, input into study design, input into manuscript preparation |
| Impact | Publications: PMED IDs: 19734902; 20862329; 20460622, 21085570, 22005930, 22027014, 21220680, 21460840, 20029910, 22445811, 22693153, 21812096, 22442439, 22430674, 22405046, 23150934 |
| Start Year | 2008 |
| Description | GERAD (Genetic and Environmental Risk in Alzheimer's Disease) |
| Organisation | University of Nottingham |
| Department | Centre for Genetics and Genomics |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Leadership, management, DNA from AD cases & controls, Data analysis, directs study design & joint papers |
| Collaborator Contribution | DNA from AD cases and/or controls, GWAS data from AD cases and/or controls, input into study design, input into manuscript preparation |
| Impact | Publications: PMED IDs: 19734902; 20862329; 20460622, 21085570, 22005930, 22027014, 21220680, 21460840, 20029910, 22445811, 22693153, 21812096, 22442439, 22430674, 22405046, 23150934 |
| Start Year | 2008 |
| Description | GERAD (Genetic and Environmental Risk in Alzheimer's Disease) |
| Organisation | University of Southampton |
| Department | Clinical and Experimental Sciences |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Leadership, management, DNA from AD cases & controls, Data analysis, directs study design & joint papers |
| Collaborator Contribution | DNA from AD cases and/or controls, GWAS data from AD cases and/or controls, input into study design, input into manuscript preparation |
| Impact | Publications: PMED IDs: 19734902; 20862329; 20460622, 21085570, 22005930, 22027014, 21220680, 21460840, 20029910, 22445811, 22693153, 21812096, 22442439, 22430674, 22405046, 23150934 |
| Start Year | 2008 |
| Description | GERAD (Genetic and Environmental Risk in Alzheimer's Disease) |
| Organisation | University of Zurich |
| Department | Functional Genomics Centre Zurich |
| Country | Switzerland |
| Sector | Academic/University |
| PI Contribution | Leadership, management, DNA from AD cases & controls, Data analysis, directs study design & joint papers |
| Collaborator Contribution | DNA from AD cases and/or controls, GWAS data from AD cases and/or controls, input into study design, input into manuscript preparation |
| Impact | Publications: PMED IDs: 19734902; 20862329; 20460622, 21085570, 22005930, 22027014, 21220680, 21460840, 20029910, 22445811, 22693153, 21812096, 22442439, 22430674, 22405046, 23150934 |
| Start Year | 2008 |
| Description | GERAD (Genetic and Environmental Risk in Alzheimer's Disease) |
| Organisation | Washington University in St Louis |
| Country | United States |
| Sector | Academic/University |
| PI Contribution | Leadership, management, DNA from AD cases & controls, Data analysis, directs study design & joint papers |
| Collaborator Contribution | DNA from AD cases and/or controls, GWAS data from AD cases and/or controls, input into study design, input into manuscript preparation |
| Impact | Publications: PMED IDs: 19734902; 20862329; 20460622, 21085570, 22005930, 22027014, 21220680, 21460840, 20029910, 22445811, 22693153, 21812096, 22442439, 22430674, 22405046, 23150934 |
| Start Year | 2008 |
| Description | GERAD Exome Chip Consortium |
| Organisation | Autonomous University of Madrid |
| Country | Spain |
| Sector | Academic/University |
| PI Contribution | Leads the (GERAD) consortium, management, DNA from AD cases and controls, access to exome chip data from elderly, screened controls, data ananlysis, directs study design |
| Collaborator Contribution | DNA from AD cases and/or controls, access to exome chip data from population controls, input into study design, input into manuscript preparation |
| Impact | Exome chip paper replication on just under 90k subjects is in preparation (submitted to Nature Genetics Letters). |
| Start Year | 2012 |
| Description | GERAD Exome Chip Consortium |
| Organisation | Brigham Young University |
| Country | United States |
| Sector | Academic/University |
| PI Contribution | Leads the (GERAD) consortium, management, DNA from AD cases and controls, access to exome chip data from elderly, screened controls, data ananlysis, directs study design |
| Collaborator Contribution | DNA from AD cases and/or controls, access to exome chip data from population controls, input into study design, input into manuscript preparation |
| Impact | Exome chip paper replication on just under 90k subjects is in preparation (submitted to Nature Genetics Letters). |
| Start Year | 2012 |
| Description | GERAD Exome Chip Consortium |
| Organisation | Cardiff University |
| Department | School of Medicine |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Leads the (GERAD) consortium, management, DNA from AD cases and controls, access to exome chip data from elderly, screened controls, data ananlysis, directs study design |
| Collaborator Contribution | DNA from AD cases and/or controls, access to exome chip data from population controls, input into study design, input into manuscript preparation |
| Impact | Exome chip paper replication on just under 90k subjects is in preparation (submitted to Nature Genetics Letters). |
| Start Year | 2012 |
| Description | GERAD Exome Chip Consortium |
| Organisation | Fondazione Santa Lucia |
| Country | Italy |
| Sector | Charity/Non Profit |
| PI Contribution | Leads the (GERAD) consortium, management, DNA from AD cases and controls, access to exome chip data from elderly, screened controls, data ananlysis, directs study design |
| Collaborator Contribution | DNA from AD cases and/or controls, access to exome chip data from population controls, input into study design, input into manuscript preparation |
| Impact | Exome chip paper replication on just under 90k subjects is in preparation (submitted to Nature Genetics Letters). |
| Start Year | 2012 |
| Description | GERAD Exome Chip Consortium |
| Organisation | Hospital de Sant Pau |
| Country | Spain |
| Sector | Hospitals |
| PI Contribution | Leads the (GERAD) consortium, management, DNA from AD cases and controls, access to exome chip data from elderly, screened controls, data ananlysis, directs study design |
| Collaborator Contribution | DNA from AD cases and/or controls, access to exome chip data from population controls, input into study design, input into manuscript preparation |
| Impact | Exome chip paper replication on just under 90k subjects is in preparation (submitted to Nature Genetics Letters). |
| Start Year | 2012 |
| Description | GERAD Exome Chip Consortium |
| Organisation | Ludwig Maximilian University of Munich (LMU Munich) |
| Country | Germany |
| Sector | Academic/University |
| PI Contribution | Leads the (GERAD) consortium, management, DNA from AD cases and controls, access to exome chip data from elderly, screened controls, data ananlysis, directs study design |
| Collaborator Contribution | DNA from AD cases and/or controls, access to exome chip data from population controls, input into study design, input into manuscript preparation |
| Impact | Exome chip paper replication on just under 90k subjects is in preparation (submitted to Nature Genetics Letters). |
| Start Year | 2012 |
| Description | GERAD Exome Chip Consortium |
| Organisation | Neuroscience; IOP |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Leads the (GERAD) consortium, management, DNA from AD cases and controls, access to exome chip data from elderly, screened controls, data ananlysis, directs study design |
| Collaborator Contribution | DNA from AD cases and/or controls, access to exome chip data from population controls, input into study design, input into manuscript preparation |
| Impact | Exome chip paper replication on just under 90k subjects is in preparation (submitted to Nature Genetics Letters). |
| Start Year | 2012 |
| Description | GERAD Exome Chip Consortium |
| Organisation | Queen's University Belfast |
| Department | Aging group |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Leads the (GERAD) consortium, management, DNA from AD cases and controls, access to exome chip data from elderly, screened controls, data ananlysis, directs study design |
| Collaborator Contribution | DNA from AD cases and/or controls, access to exome chip data from population controls, input into study design, input into manuscript preparation |
| Impact | Exome chip paper replication on just under 90k subjects is in preparation (submitted to Nature Genetics Letters). |
| Start Year | 2012 |
| Description | GERAD Exome Chip Consortium |
| Organisation | Saarland University |
| Country | Germany |
| Sector | Academic/University |
| PI Contribution | Leads the (GERAD) consortium, management, DNA from AD cases and controls, access to exome chip data from elderly, screened controls, data ananlysis, directs study design |
| Collaborator Contribution | DNA from AD cases and/or controls, access to exome chip data from population controls, input into study design, input into manuscript preparation |
| Impact | Exome chip paper replication on just under 90k subjects is in preparation (submitted to Nature Genetics Letters). |
| Start Year | 2012 |
| Description | GERAD Exome Chip Consortium |
| Organisation | University College London |
| Department | MRC Prion Unit |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Leads the (GERAD) consortium, management, DNA from AD cases and controls, access to exome chip data from elderly, screened controls, data ananlysis, directs study design |
| Collaborator Contribution | DNA from AD cases and/or controls, access to exome chip data from population controls, input into study design, input into manuscript preparation |
| Impact | Exome chip paper replication on just under 90k subjects is in preparation (submitted to Nature Genetics Letters). |
| Start Year | 2012 |
| Description | GERAD Exome Chip Consortium |
| Organisation | University of Bonn |
| Department | Department of Psychiatry |
| Country | Germany |
| Sector | Academic/University |
| PI Contribution | Leads the (GERAD) consortium, management, DNA from AD cases and controls, access to exome chip data from elderly, screened controls, data ananlysis, directs study design |
| Collaborator Contribution | DNA from AD cases and/or controls, access to exome chip data from population controls, input into study design, input into manuscript preparation |
| Impact | Exome chip paper replication on just under 90k subjects is in preparation (submitted to Nature Genetics Letters). |
| Start Year | 2012 |
| Description | GERAD Exome Chip Consortium |
| Organisation | University of Cantabria |
| Country | Spain |
| Sector | Academic/University |
| PI Contribution | Leads the (GERAD) consortium, management, DNA from AD cases and controls, access to exome chip data from elderly, screened controls, data ananlysis, directs study design |
| Collaborator Contribution | DNA from AD cases and/or controls, access to exome chip data from population controls, input into study design, input into manuscript preparation |
| Impact | Exome chip paper replication on just under 90k subjects is in preparation (submitted to Nature Genetics Letters). |
| Start Year | 2012 |
| Description | GERAD Exome Chip Consortium |
| Organisation | University of Navarra |
| Country | Spain |
| Sector | Academic/University |
| PI Contribution | Leads the (GERAD) consortium, management, DNA from AD cases and controls, access to exome chip data from elderly, screened controls, data ananlysis, directs study design |
| Collaborator Contribution | DNA from AD cases and/or controls, access to exome chip data from population controls, input into study design, input into manuscript preparation |
| Impact | Exome chip paper replication on just under 90k subjects is in preparation (submitted to Nature Genetics Letters). |
| Start Year | 2012 |
| Description | GERAD Exome Chip Consortium |
| Organisation | University of Nottingham |
| Department | Centre for Genetics and Genomics |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Leads the (GERAD) consortium, management, DNA from AD cases and controls, access to exome chip data from elderly, screened controls, data ananlysis, directs study design |
| Collaborator Contribution | DNA from AD cases and/or controls, access to exome chip data from population controls, input into study design, input into manuscript preparation |
| Impact | Exome chip paper replication on just under 90k subjects is in preparation (submitted to Nature Genetics Letters). |
| Start Year | 2012 |
| Description | GERAD Exome Chip Consortium |
| Organisation | University of Oviedo |
| Country | Spain |
| Sector | Academic/University |
| PI Contribution | Leads the (GERAD) consortium, management, DNA from AD cases and controls, access to exome chip data from elderly, screened controls, data ananlysis, directs study design |
| Collaborator Contribution | DNA from AD cases and/or controls, access to exome chip data from population controls, input into study design, input into manuscript preparation |
| Impact | Exome chip paper replication on just under 90k subjects is in preparation (submitted to Nature Genetics Letters). |
| Start Year | 2012 |
| Description | GERAD Exome Chip Consortium |
| Organisation | University of Oxford |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Leads the (GERAD) consortium, management, DNA from AD cases and controls, access to exome chip data from elderly, screened controls, data ananlysis, directs study design |
| Collaborator Contribution | DNA from AD cases and/or controls, access to exome chip data from population controls, input into study design, input into manuscript preparation |
| Impact | Exome chip paper replication on just under 90k subjects is in preparation (submitted to Nature Genetics Letters). |
| Start Year | 2012 |
| Description | GERAD Exome Chip Consortium |
| Organisation | University of Southampton |
| Department | Clinical and Experimental Sciences |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Leads the (GERAD) consortium, management, DNA from AD cases and controls, access to exome chip data from elderly, screened controls, data ananlysis, directs study design |
| Collaborator Contribution | DNA from AD cases and/or controls, access to exome chip data from population controls, input into study design, input into manuscript preparation |
| Impact | Exome chip paper replication on just under 90k subjects is in preparation (submitted to Nature Genetics Letters). |
| Start Year | 2012 |
| Description | GERAD Exome Chip Consortium |
| Organisation | University of Washington |
| Country | United States |
| Sector | Academic/University |
| PI Contribution | Leads the (GERAD) consortium, management, DNA from AD cases and controls, access to exome chip data from elderly, screened controls, data ananlysis, directs study design |
| Collaborator Contribution | DNA from AD cases and/or controls, access to exome chip data from population controls, input into study design, input into manuscript preparation |
| Impact | Exome chip paper replication on just under 90k subjects is in preparation (submitted to Nature Genetics Letters). |
| Start Year | 2012 |
| Description | GR@CE |
| Organisation | Catalan Health Institute (ICS) |
| Country | Spain |
| Sector | Public |
| PI Contribution | we analyse the genome-wide data |
| Collaborator Contribution | the collaborators provided the data to us |
| Impact | it is a multidisciplinary collaboration, involve clinicians, biologists and bioinformaticians |
| Start Year | 2020 |
| Description | GW Pharmaceuticals |
| Organisation | GW Pharmaceuticals |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | Using data acquired under previous grants to guide research into potential therapeutics |
| Collaborator Contribution | Providing therapeutics (subject to confidentiality agreement) for testing |
| Impact | Research contract funding |
| Start Year | 2015 |
| Description | GW4 epigenetics consortium |
| Organisation | Cardiff University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Overview of Research Discussion of proposal for GW4 Epigenetics consortium doctoral training scheme, how this would be structured and where to go for further funding. Discussion of establishing an "GW4 Epigenetics club" for junior scientists to discuss research; application for this from the GW4 Accelerator fund |
| Collaborator Contribution | Overview of Research Discussion of proposal for GW4 Epigenetics consortium doctoral training scheme, how this would be structured and where to go for further funding. Discussion of establishing an "GW4 Epigenetics club" for junior scientists to discuss research; application for this from the GW4 Accelerator fund |
| Impact | Discussion of proposal for GW4 Epigenetics consortium doctoral training scheme, how this would be structured and where to go for further funding. Commitment to apply for GW4 Accelerator funding to establish an "GW4 Epigenetics club" for junior scientists to discuss research; application for this from the GW4 Initiator fund |
| Start Year | 2014 |
| Description | GW4 epigenetics consortium |
| Organisation | University of Bath |
| Department | Department of Biology and Biochemistry |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Overview of Research Discussion of proposal for GW4 Epigenetics consortium doctoral training scheme, how this would be structured and where to go for further funding. Discussion of establishing an "GW4 Epigenetics club" for junior scientists to discuss research; application for this from the GW4 Accelerator fund |
| Collaborator Contribution | Overview of Research Discussion of proposal for GW4 Epigenetics consortium doctoral training scheme, how this would be structured and where to go for further funding. Discussion of establishing an "GW4 Epigenetics club" for junior scientists to discuss research; application for this from the GW4 Accelerator fund |
| Impact | Discussion of proposal for GW4 Epigenetics consortium doctoral training scheme, how this would be structured and where to go for further funding. Commitment to apply for GW4 Accelerator funding to establish an "GW4 Epigenetics club" for junior scientists to discuss research; application for this from the GW4 Initiator fund |
| Start Year | 2014 |
| Description | GW4 epigenetics consortium |
| Organisation | University of Bristol |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Overview of Research Discussion of proposal for GW4 Epigenetics consortium doctoral training scheme, how this would be structured and where to go for further funding. Discussion of establishing an "GW4 Epigenetics club" for junior scientists to discuss research; application for this from the GW4 Accelerator fund |
| Collaborator Contribution | Overview of Research Discussion of proposal for GW4 Epigenetics consortium doctoral training scheme, how this would be structured and where to go for further funding. Discussion of establishing an "GW4 Epigenetics club" for junior scientists to discuss research; application for this from the GW4 Accelerator fund |
| Impact | Discussion of proposal for GW4 Epigenetics consortium doctoral training scheme, how this would be structured and where to go for further funding. Commitment to apply for GW4 Accelerator funding to establish an "GW4 Epigenetics club" for junior scientists to discuss research; application for this from the GW4 Initiator fund |
| Start Year | 2014 |
| Description | GW4 epigenetics consortium |
| Organisation | University of Exeter |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Overview of Research Discussion of proposal for GW4 Epigenetics consortium doctoral training scheme, how this would be structured and where to go for further funding. Discussion of establishing an "GW4 Epigenetics club" for junior scientists to discuss research; application for this from the GW4 Accelerator fund |
| Collaborator Contribution | Overview of Research Discussion of proposal for GW4 Epigenetics consortium doctoral training scheme, how this would be structured and where to go for further funding. Discussion of establishing an "GW4 Epigenetics club" for junior scientists to discuss research; application for this from the GW4 Accelerator fund |
| Impact | Discussion of proposal for GW4 Epigenetics consortium doctoral training scheme, how this would be structured and where to go for further funding. Commitment to apply for GW4 Accelerator funding to establish an "GW4 Epigenetics club" for junior scientists to discuss research; application for this from the GW4 Initiator fund |
| Start Year | 2014 |
| Description | GWAIS |
| Organisation | University of Liege |
| Country | Belgium |
| Sector | Academic/University |
| PI Contribution | We bring our expertise in AI and ML |
| Collaborator Contribution | Collaborators bring their expertise in genetic interaction analyses. |
| Impact | It is a multidisciplinary collaboration involving mathematicians, software developers and bioinformaticians |
| Start Year | 2021 |
| Description | Gene expression in Huntington's disease |
| Organisation | University College London |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Analysis of gene expression data. |
| Collaborator Contribution | generation of gene expression data |
| Impact | 10.1093/hmg/ddw142, 10.1038/srep44849 . multidisciplinary - biostatistics/bioinformatics/molecular biology |
| Start Year | 2013 |
| Description | Genetic Modifiers in Huntington's disease |
| Organisation | Massachusetts General Hospital |
| Department | Centre for Human Genetic Research |
| Country | United States |
| Sector | Hospitals |
| PI Contribution | I am the European lead of the Genetic Modifiers in Huntington's disease (GeM-HD) collaboration. They pay for an analyst in my research group. |
| Collaborator Contribution | The partners conduct the genotyping for this project and also perform some analysis. |
| Impact | Keum, J.et al. 2016. The HTT CAG expansion mutation determines age at death but not disease duration in Huntington's Disease. American Journal of Human Genetics 98(2), pp. 287-298. pdf Lee, J.et al. 2015. Identification of Genetic Factors that Modify Clinical Onset of Huntington's Disease. Cell 162(3), pp. 516-26. (10.1016/j.cell.2015.07.003) Correia, K.et al. 2015. The Genetic Modifiers of Motor OnsetAge (GeM MOA) Website: Genome-wide Association Analysis for Genetic Modifiers of Huntington's Disease. Journal of Huntington's Disease 4(3), pp. 279-284. (10.3233/JHD-150169) . http://dx.doi.org/10.1093/hmg/ddx286; doi: 10.1038/ejhg.2017. |
| Start Year | 2010 |
| Description | Genetics of trinucleotide repeat disorders |
| Organisation | University College London |
| Department | Institute of Neurology |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | I led a collaboration investigating whether the genetic modifiers of Huntington's disease also acted as modifiers in other repeat disorders |
| Collaborator Contribution | DNA from subjects with trinucleotide repeat disorders, genotyping. |
| Impact | Jones, L., Houlden, H. and Tabrizi, S. J. 2017. DNA repair in the trinucleotide repeat disorders. The Lancet Neurology 16(1), pp. 88-96. (10.1016/S1474-4422(16)30350-7) pdf Bettencourt, C.et al. 2016. DNA repair pathways underlie a common genetic mechanism modulating onset in polyglutamine diseases. Annals of Neurology 79(6), pp. 983-990. (10.1002/ana.24656) pdf |
| Start Year | 2015 |
| Description | Genomics England |
| Organisation | Genomics England |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | We are in the very early stages of discussion with Genomics England, but we hope to be able to use their facilities for whole Genome sequencing. This will mean that we generate valuable data on the largest EOAD cohort world-wide. |
| Collaborator Contribution | Genomics England have the equipment and infrastructure set up for the very expensive and technical whole exome sequencing. |
| Impact | None yet |
| Start Year | 2015 |
| Description | GlaxoSmithKline Cardiff Collaboration |
| Organisation | GlaxoSmithKline (GSK) |
| Country | Global |
| Sector | Private |
| PI Contribution | Prof Williams made contact with a GSK rep at the Global Genetics Congress in Baltimore, September 2016. GSK were extremely interested in collaborating with the Cardiff team. Specifically, GSK have an interest in the latest confidential experimental results and translating these from genetic to biological meaning. This will speed up the Cardiff Team's discovery of potential molecular targets for personalised disease treatment. Cardiff will contribute expertise in Alzheimer's disease genetics. |
| Collaborator Contribution | GSK will contribute their expertise in disease models and drug mechanisms. |
| Impact | This collaboration has been brought under a confidentiality agreement. Parties involved are experts in genetics and functional biology. |
| Start Year | 2016 |
| Description | Graves disease, alemtuzamab patients |
| Organisation | Cardiff University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Provision of biological samples and clinical data. |
| Collaborator Contribution | Provision of biochemical and genomic analysis. |
| Impact | For publications, either published or in process. |
| Start Year | 2015 |
| Description | HCRW Brain Repair and Intracranial Neurotherapeutics (B.R.A.I.N.) Unit |
| Organisation | Health and Care Research Wales |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Director of BRAIN Unit |
| Collaborator Contribution | Supported Bionbanking, R&D regulation, Technician support for Human tissue Biobanking, Suport of Clinical Research Fellow for consent and Tissue Collection |
| Impact | Research just commenced. |
| Start Year | 2016 |
| Description | HD modifiers |
| Organisation | CHDI Foundation |
| Country | United States |
| Sector | Charity/Non Profit |
| PI Contribution | Analysis of genome-wide HD data |
| Collaborator Contribution | Provision of data, paying salary of researcher |
| Impact | Analysis of genome-wide HD data |
| Start Year | 2015 |
| Description | Harvard University |
| Organisation | Harvard University |
| Department | Harvard Medical School |
| Country | United States |
| Sector | Academic/University |
| PI Contribution | generation of polygenic risk scores |
| Collaborator Contribution | provision of tissue samples and genotyped data |
| Impact | none yet |
| Start Year | 2019 |
| Description | Identifying the pathogenic triggers of CD8 T-cels in MS |
| Organisation | Cardiff University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Provision of biological samples and clinical data. |
| Collaborator Contribution | Provision of biochemical and genomic analysis. |
| Impact | For publications, either published or in process. |
| Start Year | 2015 |
| Description | Informed Consent for DMTs in MS |
| Organisation | International Multicentre persistent ADHD CollaboraTion (IMpACT) |
| Country | Global |
| Sector | Academic/University |
| PI Contribution | I am contributing to write information sheets and informed consents for DMTs in MS. |
| Collaborator Contribution | My collaborators are also contributing to the writing of these information and consents |
| Impact | No outputs yet. |
| Start Year | 2014 |
| Description | Informed consent for disease modifying treatments in MS |
| Organisation | Sapienza University of Rome |
| Country | Italy |
| Sector | Academic/University |
| PI Contribution | Multicentre collaboration to gain an international consensus on informed consent for disease modifying treatments in MS. I contributed to the project by drafting consent forms for patients and by participating to workshops and discussions of the group. |
| Collaborator Contribution | Intellectual contribution and medico-legal revision of the documents. |
| Impact | This is a multidisciplinary collaboration. The consensus group has drafted informed consents for the licensed disease modifying treatments in MS. |
| Start Year | 2014 |
| Description | Innovate UK |
| Organisation | University College London |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Consultancy |
| Collaborator Contribution | Design of Alzhemer's disease chip |
| Impact | In the process of designing of Alzhemer's disease SNP array. Multidisceplinary: medical genetics, bioinformatics, statistics |
| Start Year | 2015 |
| Description | International Genomics of Alzheimer's Project (IGAP) |
| Organisation | Boston University |
| Country | United States |
| Sector | Academic/University |
| PI Contribution | Co-leadership, management, DNA from AD cases and controls, GWAS data from AD cases and controls, data analysis and joint papers |
| Collaborator Contribution | DNA from AD cases and/or controls, GWAS data from AD cases and/or controls, input into study design, input into manuscript preparation, data analysis |
| Impact | papers in progress |
| Start Year | 2012 |
| Description | International Genomics of Alzheimer's Project (IGAP) |
| Organisation | Genetic and Environmental Risk in Alzheimer's Disease (GERAD) |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Co-leadership, management, DNA from AD cases and controls, GWAS data from AD cases and controls, data analysis and joint papers |
| Collaborator Contribution | DNA from AD cases and/or controls, GWAS data from AD cases and/or controls, input into study design, input into manuscript preparation, data analysis |
| Impact | papers in progress |
| Start Year | 2012 |
| Description | International Genomics of Alzheimer's Project (IGAP) |
| Organisation | University of Lille |
| Country | France |
| Sector | Academic/University |
| PI Contribution | Co-leadership, management, DNA from AD cases and controls, GWAS data from AD cases and controls, data analysis and joint papers |
| Collaborator Contribution | DNA from AD cases and/or controls, GWAS data from AD cases and/or controls, input into study design, input into manuscript preparation, data analysis |
| Impact | papers in progress |
| Start Year | 2012 |
| Description | International Genomics of Alzheimer's Project (IGAP) |
| Organisation | University of Pennsylvania |
| Department | Alzheimer's Disease Genetics Consortium (ADGC) |
| Country | United States |
| Sector | Academic/University |
| PI Contribution | Co-leadership, management, DNA from AD cases and controls, GWAS data from AD cases and controls, data analysis and joint papers |
| Collaborator Contribution | DNA from AD cases and/or controls, GWAS data from AD cases and/or controls, input into study design, input into manuscript preparation, data analysis |
| Impact | papers in progress |
| Start Year | 2012 |
| Description | International Multiple Sclerosis Genetics Consortium |
| Organisation | Karolinska Institute |
| Country | Sweden |
| Sector | Academic/University |
| PI Contribution | Provision of DNA from an established patient cohort. |
| Collaborator Contribution | Genomic analysis |
| Impact | Numerous publications |
| Start Year | 2014 |
| Description | International Multiple Sclerosis Genetics Consortium |
| Organisation | University of California, San Francisco |
| Department | School of Medicine (UCSF) |
| Country | United States |
| Sector | Academic/University |
| PI Contribution | Provision of DNA from an established patient cohort. |
| Collaborator Contribution | Genomic analysis |
| Impact | Numerous publications |
| Start Year | 2014 |
| Description | International Multiple Sclerosis Genetics Consortium |
| Organisation | University of Cambridge |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Provision of DNA from an established patient cohort. |
| Collaborator Contribution | Genomic analysis |
| Impact | Numerous publications |
| Start Year | 2014 |
| Description | JPND PERADES |
| Organisation | JPND Research |
| Country | Global |
| Sector | Academic/University |
| PI Contribution | Coordinator of the EU Joint Programme - Neurodegenerative Disease Research PERADES project |
| Collaborator Contribution | Containing researchers from 11 countries. Exploiting new statistical approaches to genetic data, researchers will calculate polygenic risk scores and use these to identify individuals at both high and low risk of developing Alzheimer's disease. |
| Impact | The JPND project brings together researchers across Europe to perform vast replication studies of variants of interest in Alzheimer's disease. The project is also the first to begin exome sequencing of the EOAD cohort, which we hope will shed light on the early stages of disease. Importantly, this project brings together the areas of genetics, a variety of omics, polygenic scores, and population studies in a powerful combination to further our knowledge of Alzheimer's disease. |
| Start Year | 2013 |
| Description | Jackson labs collaboration |
| Organisation | The Jackson Laboratory |
| Country | United States |
| Sector | Charity/Non Profit |
| PI Contribution | We provide the most up to date genetic human Alzheimer's disease study results and interpretation. |
| Collaborator Contribution | Jackson labs provide their expertise in translation of human study findings into small animal transgenic models of genetic diseases. |
| Impact | Attempts so far to tie down both a project plan and committed funding, have not been successful. We are currently exploring alternative methods to whole animal experiments. We hope that in the future we will be able to regenerate interest in this promising collaboration. |
| Start Year | 2016 |
| Description | Karen Usdin somatic instability Fragile X |
| Organisation | National Institutes of Health (NIH) |
| Department | National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) |
| Country | United States |
| Sector | Public |
| PI Contribution | I have performed statistical analysis testing for association between SNPs previously implicated in HD and somatic instability of the Fragile X repeat. |
| Collaborator Contribution | Partners have provided the genetic data (SNP genotypes and somatic instability measures) |
| Impact | Manuscript published in Scientific Reports: https://pubmed.ncbi.nlm.nih.gov/35729184/ |
| Start Year | 2021 |
| Description | Leuven University |
| Organisation | University of Leuven |
| Country | Belgium |
| Sector | Academic/University |
| PI Contribution | generation of polygenic risk scores |
| Collaborator Contribution | sharing genotyped data and PRS |
| Impact | none yet |
| Start Year | 2018 |
| Description | Lothian birth cohorts |
| Organisation | University of Edinburgh |
| Department | Edinburgh Neuroscience |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | My research team will analyse the genetic and phenotypic data from the Lothian birth cohorts with the primary aim to investigate genetic of cognitive rate of decline in healthy ageing cohort. |
| Collaborator Contribution | Provided the data. |
| Impact | not yet |
| Start Year | 2022 |
| Description | MRC AD Cohort |
| Organisation | King's College London |
| Department | Institute of Psychiatry, Psychology & Neuroscience |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | We contributed DNA, clinical follow up information, genotyping and other laboratory work and complex data analysis. |
| Collaborator Contribution | The MRC AD cohort was collected with MRC funding in a previous grant. This collaboration continues to function looking at candidate genes and candidate regions testing for association with AD and further enriching our clinical data longitudinally, on the remaining members of the cohort. A proportion of this research was directly funded by the MRC grant in question.The MRC AD cohort was collected with MRC funding in a previous grant. This collaboration continues to function looking at candidate genes and candidate regions testing for association with AD and further enriching our clinical data longitudinally, on the remaining members of the cohort. A proportion of this research was directly funded by the MRC grant in question.The MRC AD cohort was collected with MRC funding in a previous grant. This collaboration continues to function looking at candidate genes and candidate regions testing for association with AD and further enriching our clinical data longitudinally, on the remaining members of the cohort. A proportion of this research was directly funded by the MRC grant in question. The MRC AD cohort was collected with MRC funding in a previous grant. This collaboration continues to function looking at candidate genes and candidate regions testing for association with AD and further enriching our clinical data longitudinally, on the remaining members of the cohort. A proportion of this research was directly funded by the MRC grant in question. The MRC AD cohort was collected with MRC funding in a previous grant. This collaboration continues to function looking at candidate genes and candidate regions testing for association with AD and further enriching our clinical data longitudinally, on the remaining members of the cohort. A proportion of this research was directly funded by the MRC grant in question. |
| Impact | 16970641 17322133 17530621 17440948 17440933 17373700 17999207 18163421 |
| Description | MRC AD Cohort |
| Organisation | Medical Research Council (MRC) |
| Department | MRC Centre for Developmental Neurobiology |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | We contributed DNA, clinical follow up information, genotyping and other laboratory work and complex data analysis. |
| Collaborator Contribution | The MRC AD cohort was collected with MRC funding in a previous grant. This collaboration continues to function looking at candidate genes and candidate regions testing for association with AD and further enriching our clinical data longitudinally, on the remaining members of the cohort. A proportion of this research was directly funded by the MRC grant in question.The MRC AD cohort was collected with MRC funding in a previous grant. This collaboration continues to function looking at candidate genes and candidate regions testing for association with AD and further enriching our clinical data longitudinally, on the remaining members of the cohort. A proportion of this research was directly funded by the MRC grant in question.The MRC AD cohort was collected with MRC funding in a previous grant. This collaboration continues to function looking at candidate genes and candidate regions testing for association with AD and further enriching our clinical data longitudinally, on the remaining members of the cohort. A proportion of this research was directly funded by the MRC grant in question. The MRC AD cohort was collected with MRC funding in a previous grant. This collaboration continues to function looking at candidate genes and candidate regions testing for association with AD and further enriching our clinical data longitudinally, on the remaining members of the cohort. A proportion of this research was directly funded by the MRC grant in question. The MRC AD cohort was collected with MRC funding in a previous grant. This collaboration continues to function looking at candidate genes and candidate regions testing for association with AD and further enriching our clinical data longitudinally, on the remaining members of the cohort. A proportion of this research was directly funded by the MRC grant in question. |
| Impact | 16970641 17322133 17530621 17440948 17440933 17373700 17999207 18163421 |
| Description | MRC AD Cohort |
| Organisation | Trinity College Dublin |
| Country | Ireland |
| Sector | Academic/University |
| PI Contribution | We contributed DNA, clinical follow up information, genotyping and other laboratory work and complex data analysis. |
| Collaborator Contribution | The MRC AD cohort was collected with MRC funding in a previous grant. This collaboration continues to function looking at candidate genes and candidate regions testing for association with AD and further enriching our clinical data longitudinally, on the remaining members of the cohort. A proportion of this research was directly funded by the MRC grant in question.The MRC AD cohort was collected with MRC funding in a previous grant. This collaboration continues to function looking at candidate genes and candidate regions testing for association with AD and further enriching our clinical data longitudinally, on the remaining members of the cohort. A proportion of this research was directly funded by the MRC grant in question.The MRC AD cohort was collected with MRC funding in a previous grant. This collaboration continues to function looking at candidate genes and candidate regions testing for association with AD and further enriching our clinical data longitudinally, on the remaining members of the cohort. A proportion of this research was directly funded by the MRC grant in question. The MRC AD cohort was collected with MRC funding in a previous grant. This collaboration continues to function looking at candidate genes and candidate regions testing for association with AD and further enriching our clinical data longitudinally, on the remaining members of the cohort. A proportion of this research was directly funded by the MRC grant in question. The MRC AD cohort was collected with MRC funding in a previous grant. This collaboration continues to function looking at candidate genes and candidate regions testing for association with AD and further enriching our clinical data longitudinally, on the remaining members of the cohort. A proportion of this research was directly funded by the MRC grant in question. |
| Impact | 16970641 17322133 17530621 17440948 17440933 17373700 17999207 18163421 |
| Description | MRC AD Cohort |
| Organisation | University of Cambridge |
| Department | Department of Medical Genetics |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | We contributed DNA, clinical follow up information, genotyping and other laboratory work and complex data analysis. |
| Collaborator Contribution | The MRC AD cohort was collected with MRC funding in a previous grant. This collaboration continues to function looking at candidate genes and candidate regions testing for association with AD and further enriching our clinical data longitudinally, on the remaining members of the cohort. A proportion of this research was directly funded by the MRC grant in question.The MRC AD cohort was collected with MRC funding in a previous grant. This collaboration continues to function looking at candidate genes and candidate regions testing for association with AD and further enriching our clinical data longitudinally, on the remaining members of the cohort. A proportion of this research was directly funded by the MRC grant in question.The MRC AD cohort was collected with MRC funding in a previous grant. This collaboration continues to function looking at candidate genes and candidate regions testing for association with AD and further enriching our clinical data longitudinally, on the remaining members of the cohort. A proportion of this research was directly funded by the MRC grant in question. The MRC AD cohort was collected with MRC funding in a previous grant. This collaboration continues to function looking at candidate genes and candidate regions testing for association with AD and further enriching our clinical data longitudinally, on the remaining members of the cohort. A proportion of this research was directly funded by the MRC grant in question. The MRC AD cohort was collected with MRC funding in a previous grant. This collaboration continues to function looking at candidate genes and candidate regions testing for association with AD and further enriching our clinical data longitudinally, on the remaining members of the cohort. A proportion of this research was directly funded by the MRC grant in question. |
| Impact | 16970641 17322133 17530621 17440948 17440933 17373700 17999207 18163421 |
| Description | MRC AD Cohort |
| Organisation | University of Cambridge |
| Department | Department of Public Health and Primary Care |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | We contributed DNA, clinical follow up information, genotyping and other laboratory work and complex data analysis. |
| Collaborator Contribution | The MRC AD cohort was collected with MRC funding in a previous grant. This collaboration continues to function looking at candidate genes and candidate regions testing for association with AD and further enriching our clinical data longitudinally, on the remaining members of the cohort. A proportion of this research was directly funded by the MRC grant in question.The MRC AD cohort was collected with MRC funding in a previous grant. This collaboration continues to function looking at candidate genes and candidate regions testing for association with AD and further enriching our clinical data longitudinally, on the remaining members of the cohort. A proportion of this research was directly funded by the MRC grant in question.The MRC AD cohort was collected with MRC funding in a previous grant. This collaboration continues to function looking at candidate genes and candidate regions testing for association with AD and further enriching our clinical data longitudinally, on the remaining members of the cohort. A proportion of this research was directly funded by the MRC grant in question. The MRC AD cohort was collected with MRC funding in a previous grant. This collaboration continues to function looking at candidate genes and candidate regions testing for association with AD and further enriching our clinical data longitudinally, on the remaining members of the cohort. A proportion of this research was directly funded by the MRC grant in question. The MRC AD cohort was collected with MRC funding in a previous grant. This collaboration continues to function looking at candidate genes and candidate regions testing for association with AD and further enriching our clinical data longitudinally, on the remaining members of the cohort. A proportion of this research was directly funded by the MRC grant in question. |
| Impact | 16970641 17322133 17530621 17440948 17440933 17373700 17999207 18163421 |
| Description | MRC fellowship |
| Organisation | University of Bristol |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | advice and training on genomic data analysis |
| Collaborator Contribution | A researcher, Dr. Emma Anderson, who is a highly productive junior researcher |
| Impact | 1. To improve causal inference in mendelian randomization studies of dementia 2. To improve understanding of the genetic risk for dementia and trajectories of cognitive capabilities in aging 3. To identify modifiable risk factors that are related to dementia and cognitive decline |
| Start Year | 2016 |
| Description | Measuring complement activation in diagnosis and management of neuromyelitis optica |
| Organisation | Cardiff University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Provision of biological samples and clinical data. |
| Collaborator Contribution | Provision of biochemical and genomic analysis. |
| Impact | For publications, either published or in process. |
| Start Year | 2014 |
| Description | Metabolomics study |
| Organisation | University of Oxford |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Provision of biological samples and clinical data. |
| Collaborator Contribution | Provision of biochemical and genomic analysis. |
| Impact | For publications, either published or in process. |
| Start Year | 2016 |
| Description | NIHR Developing and evaluating an online psychoeducation package for adolescent depression |
| Organisation | National Institute for Health Research |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Advisor on resilience in adolescents at high risk of developing depression. Thapar is supervisor of NIHR Fellowship |
| Collaborator Contribution | Development of evidence-based psychoeducation package for young people with or at high-risk of depression. Elements informed by findings of resilience grant (e.g. role of co-parent when one parent is depressed). Provided input from clinical and psychoeducation perspectives. Now advising on prevention and intervention approaches as part of new Wolfson Centre for Young People's Mental Health |
| Impact | None as yet |
| Start Year | 2013 |
| Description | NIMH fellowship partnerships |
| Organisation | National Institutes of Health (NIH) |
| Department | National Institute of Mental Health (NIMH) |
| Country | United States |
| Sector | Public |
| PI Contribution | Joint research supervision of fellowship |
| Collaborator Contribution | Hosting and cosupervising WT clinical research fellow |
| Impact | None yet-fellow was on maternity leave |
| Start Year | 2015 |
| Description | Neuroscience stem cell PhD collaboration |
| Organisation | AstraZeneca |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | Knowledge of stem cell neuroscience and analysis |
| Collaborator Contribution | Knowledge of phenotyping |
| Impact | Ongoing research |
| Start Year | 2014 |
| Description | Open Network for Frontotemporal dementia Inflammation Research |
| Organisation | University of Cambridge |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Collaboration for establishing a national network and collaborative platform for blood marker discovery in FTD; recruiting participants across the whole UK, in diverse healthcare settings. |
| Collaborator Contribution | Discussion of the data collection protocol. |
| Impact | It is a collaboration between clinicians, biologists and bioinformaticians |
| Start Year | 2024 |
| Description | PGC |
| Organisation | Psychiatric GWAS Consortium (PGC) |
| Country | Global |
| Sector | Academic/University |
| PI Contribution | We contribute to the international Psychiatric Genetics Consortium PGC-data, analysis, initating new papers and helping with co-ordination. AThapar was the ADHD representative for the Cross Disorders Group for 2 years. We remain active contributors to the PGC ADHD group |
| Collaborator Contribution | PGC involves the largest world wide psychiatric genetics collaboration and data set. This allows us access to the data set for hypothesis generation |
| Impact | Research papers as recorded under publications. PhD studentship data. |
| Start Year | 2008 |
| Description | PGC |
| Organisation | Psychiatric GWAS Consortium (PGC) |
| Country | Global |
| Sector | Academic/University |
| PI Contribution | We contribute to the international Psychiatric Genetics Consortium PGC-data, analysis, initating new papers and helping with co-ordination. AThapar was the ADHD representative for the Cross Disorders Group for 2 years. We remain active contributors to the PGC ADHD group |
| Collaborator Contribution | PGC involves the largest world wide psychiatric genetics collaboration and data set. This allows us access to the data set for hypothesis generation |
| Impact | Research papers as recorded under publications. PhD studentship data. |
| Start Year | 2008 |
| Description | PTSD and psychosis - Lancaster |
| Organisation | Lancaster University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Preparation of grant application |
| Collaborator Contribution | n/a |
| Impact | Grant application |
| Start Year | 2015 |
| Description | PTSD and psychosis - Liverpool |
| Organisation | University of Liverpool |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Preparation of grant application (Bentall) Publications (Gage) |
| Collaborator Contribution | Co-authored and led publications Led grant application |
| Impact | Publications |
| Start Year | 2015 |
| Description | PTSD and psychosis - Manchester |
| Organisation | University of Manchester |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Preparation of grant application |
| Collaborator Contribution | Leading grant application |
| Impact | Grant application |
| Start Year | 2015 |
| Description | Pilot study, exosomes in MS plasma |
| Organisation | Cardiff Metropolitan University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Provision of biological samples and clinical data. |
| Collaborator Contribution | Provision of biochemical and genomic analysis. |
| Impact | For publications, either published or in process. |
| Start Year | 2017 |
| Description | Psychiatric Genetics Consortium |
| Organisation | Psychiatric Genomics Consortium (PGC) |
| Country | Global |
| Sector | Learned Society |
| PI Contribution | I am a PI in the PGC and lead the PGC Cognition in Schizophrenia sub-group as well as lead the treatment-resistant schizophrenia analytic group |
| Collaborator Contribution | This is an international collaboration of hundreds of investigators. Within the cognition group we have been joined by 8 other groups and 12 investigators. In the treatment-resistant schizophrenia group there are another 14 investigators |
| Impact | Biological insights from 108 schizophrenia-associated genetic loci Schizophrenia Working Group of the Psychiatric Genomics Consortium Nature 511 (7510), 421-427 |
| Start Year | 2015 |
| Description | Psychosis epidemiology - Mt Sinai |
| Organisation | Mount Sinai Hospital (USA) |
| Country | United States |
| Sector | Hospitals |
| PI Contribution | Preparation & submission of grant applications |
| Collaborator Contribution | Grant funding |
| Impact | Publications Research Grant |
| Start Year | 2015 |
| Description | Psychosis epidemiology - RCSI |
| Organisation | Royal College of Surgeons in Ireland |
| Country | Ireland |
| Sector | Academic/University |
| PI Contribution | Grant lead, analysis of data, writing papers |
| Collaborator Contribution | n/a |
| Impact | MRC & HBRI Research Grants, publications |
| Start Year | 2010 |
| Description | Recruitment of psychiatric patients in Bulgaria |
| Organisation | Medical University of Sofia |
| Department | Psychiatry |
| Country | Bulgaria |
| Sector | Academic/University |
| PI Contribution | I provide research expertise, supervise the project and enter the data into a database. |
| Collaborator Contribution | The collaborators recruit and rate the participants |
| Impact | none yet |
| Start Year | 2012 |
| Description | Renishaw - testing of CED device for Cell delivery |
| Organisation | Renishaw PLC |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | Intellectual property supporting cell therapy delivery Model generation Device Testing |
| Collaborator Contribution | Supply of research grade devices Knowledge on in-vitro gel testing |
| Impact | papers in preparation |
| Start Year | 2016 |
| Description | Repeat analysis in next generation sequencing data |
| Organisation | National Institute for Health Research |
| Department | UCLH/UCL Biomedical Research Centre |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Analysis of next generation sequencing data |
| Collaborator Contribution | provision of next generation sequencing data from subjects with dementias |
| Impact | ARUK pilot funding award ARUK-PPG2018A-015 |
| Start Year | 2017 |
| Description | Repeat analysis in next generation sequencing data |
| Organisation | National Institutes of Health (NIH) |
| Department | National Institute of Neurological Disorders and Stroke (NINDS) |
| Country | United States |
| Sector | Public |
| PI Contribution | Analysis of next generation sequencing data |
| Collaborator Contribution | provision of next generation sequencing data from subjects with dementias |
| Impact | ARUK pilot funding award ARUK-PPG2018A-015 |
| Start Year | 2017 |
| Description | Rutter text book |
| Organisation | National Institutes of Health (NIH) |
| Department | National Institute of Mental Health (NIMH) |
| Country | United States |
| Sector | Public |
| PI Contribution | Lead editor of the Rutter text book |
| Collaborator Contribution | co lead editor of the Rutter text book |
| Impact | The Rutter text book was published in 2015 |
| Start Year | 2012 |
| Description | STRATA |
| Organisation | Universidade de São Paulo |
| Department | Institute of Psychiatry |
| Country | Brazil |
| Sector | Academic/University |
| PI Contribution | work stream lead for multisite MRC stratified medicine study |
| Collaborator Contribution | they have led on project |
| Impact | grant started Oct 2014 |
| Start Year | 2013 |
| Description | SerCymru Fellowship |
| Organisation | Government of Wales |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Supervising a Research Fellow. Project title: Deconvoluting the dementia phenotype using functional genomics and computational approaches |
| Collaborator Contribution | Funding the project |
| Impact | This is a multidisciplinary collaboration between biological sciences and informatics/statistic. We have gained assess to EBI data resources which will be analyzed within the scope of the project. |
| Start Year | 2017 |
| Description | Somatic expansion of simple repeats |
| Organisation | University of Glasgow |
| Department | Institute of Molecular Cell and Systems Biology |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Identifying subjects with specific variants for analysis using methods available in Glasgow |
| Collaborator Contribution | Analysis of repeat lengths using next generation sequencing technology |
| Impact | none yet multidisciplinary, bioinformatics, statstics, molecular biology, genetics |
| Start Year | 2017 |
| Description | Stanford University |
| Organisation | Stanford University |
| Country | United States |
| Sector | Academic/University |
| PI Contribution | generation of polygenic risk scores |
| Collaborator Contribution | sharing genotyped data and PRS |
| Impact | none yet |
| Start Year | 2019 |
| Description | Synaptic signalling in neuropsychiatric disorders |
| Organisation | University of Edinburgh |
| Department | Centre for Clinical Brain Sciences (CCBS) |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Test whether novel sets of genes relevant to synaptic function (e.g. synaptic signalling complexes characterised via proteomics) are enriched for genetic variants associated with neuropsychiatric disorders. |
| Collaborator Contribution | Access to unpublished molecular neuroscience data (e.g. proteomic data for complexes derived from TAP-tagged synaptic proteins). |
| Impact | Multi-disciplinary: molecular neuroscience, psychiatric genetics PMID: 22083728 |
| Start Year | 2010 |
| Description | Syracuse University |
| Organisation | Syracuse University |
| Country | United States |
| Sector | Academic/University |
| PI Contribution | still under negotiation |
| Collaborator Contribution | data analysis consultancy |
| Impact | none yet |
| Start Year | 2019 |
| Description | Tabrizi |
| Organisation | University College London |
| Department | Institute of Neurology |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Statistical pathway analysis of RNA-seq data in HD patients |
| Collaborator Contribution | Data to test analysis methods |
| Impact | No outcomes yet. |
| Start Year | 2015 |
| Description | Takeda |
| Organisation | Takeda Pharmaceutical Company |
| Country | Japan |
| Sector | Private |
| PI Contribution | This collaboration aims to identify new drug targets from genomic data generated by our research groups. |
| Collaborator Contribution | Funding |
| Impact | none as yet |
| Start Year | 2019 |
| Description | The DNA damage response in Huntington's disease |
| Organisation | University of Cambridge |
| Department | Gurdon Institute |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Generation of an assay for repeat analysis in cells and mice. |
| Collaborator Contribution | Expertise and compounds to probe the DDR. Generation of gene-edited mice for crossing with Huntington's model mice. |
| Impact | No outputs yet. |
| Start Year | 2015 |
| Description | Trends in prognosis for children with mental health disorders |
| Organisation | University of Exeter |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Development of project aims and plans, contribution to data analysis and planning of academic outputs. |
| Collaborator Contribution | Hosting research fellow for analysis |
| Impact | None as yet |
| Start Year | 2021 |
| Description | UC Irvine |
| Organisation | University of California, Irvine |
| Country | United States |
| Sector | Academic/University |
| PI Contribution | generation of polygenic risk scores |
| Collaborator Contribution | sharing genotyped data and PRS |
| Impact | none yet |
| Start Year | 2019 |
| Description | UK Biobank neurodenerative disease platform |
| Organisation | King's College London |
| Department | NIHR Biomedical Research Centre |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Named investigator on grant application |
| Collaborator Contribution | co-investigators on grant application |
| Impact | Grant application currently under review |
| Start Year | 2013 |
| Description | UK Biobank neurodenerative disease platform |
| Organisation | University College London |
| Department | Dementia Research Centre (DRC) |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Named investigator on grant application |
| Collaborator Contribution | co-investigators on grant application |
| Impact | Grant application currently under review |
| Start Year | 2013 |
| Description | UK Biobank neurodenerative disease platform |
| Organisation | University College London |
| Department | Institute of Neurology |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Named investigator on grant application |
| Collaborator Contribution | co-investigators on grant application |
| Impact | Grant application currently under review |
| Start Year | 2013 |
| Description | UK Biobank neurodenerative disease platform |
| Organisation | University of Oxford |
| Department | Department of Physiology, Anatomy and Genetics |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Named investigator on grant application |
| Collaborator Contribution | co-investigators on grant application |
| Impact | Grant application currently under review |
| Start Year | 2013 |
| Description | Utilising Adoption-Based Research Designs to Examine the interplay between family relationship processes and child development outcomes |
| Organisation | University of Oregon |
| Department | PSY Department of Psychology |
| Country | United States |
| Sector | Academic/University |
| PI Contribution | scientific input to design of grant and ongoing papers |
| Collaborator Contribution | scientific input to design of grant and ongoing papers |
| Impact | ESRC Secondary Data Initiative: Joint grant application to the ESRC (University of Sussex, Cardiff University, University of Oregon, The Penn State University). Application title: Utilising Adoption-Based Research Designs to Examine the interplay between family relationship processes and child development outcomes |
| Start Year | 2013 |
| Description | Utilising Adoption-Based Research Designs to Examine the interplay between family relationship processes and child development outcomes |
| Organisation | University of Sussex |
| Department | School of Psychology Sussex |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | scientific input to design of grant and ongoing papers |
| Collaborator Contribution | scientific input to design of grant and ongoing papers |
| Impact | ESRC Secondary Data Initiative: Joint grant application to the ESRC (University of Sussex, Cardiff University, University of Oregon, The Penn State University). Application title: Utilising Adoption-Based Research Designs to Examine the interplay between family relationship processes and child development outcomes |
| Start Year | 2013 |
| Description | WT Clinical fellowship |
| Organisation | Wellcome Trust |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | I will be contributing to the supervision of a Clinical Research Fellow. Project title: Stratification of bipolar disorder: harnessing clinical heterogeneity and genetics shared with other disorders |
| Collaborator Contribution | The WT has funded the fellowship |
| Impact | Allardyce J, , Escott-Price V (2017) Psychosis and the level of mood incongruence in Bipolar Disorder are related to genetic liability for Schizophrenia. JAMA Psychiatry (10.1101/160119) |
| Start Year | 2017 |
| Title | DIAGNOSIS AND TREATMENT OF ALZHEIMER'S DISEASE |
| Description | The invention relates to novel variants that associate with Alzheimer's disease AD and their use in kits as a means for diagnosing AD; and also their use in nucleic acid molecules or cells/cell lines for identifying novel therapeutic, label of identification means. |
| IP Reference | WO2011001135 |
| Protection | Patent granted |
| Year Protection Granted | 2011 |
| Licensed | No |
| Impact | This has had huge worldwide impact through media coverage and was originally highlighted in the press with the discovery of an additional 5 genes. We are currently in the process of seeking a licencee for the patented technology which encompasses a diagnostic test for the protected gene SNPs. Recent advances include generation of a polygenic score including the licensed SNPs for the detection of AD risk. We are working together with industry on basic genetic testing, cohort studies, cognitive te |
| Title | ALIGATOR |
| Description | ALIGATOR is a Fortran program for testing the enrichment of biological pathways in summary statistics from a genome-wide association study (GWAS). |
| Type Of Technology | Software |
| Year Produced | 2009 |
| Impact | ALIGATOR has been widely used to analyse GWAS data. In particular, we used it to highlight involvement of immune pathways in Alzheimer's disease, which has proved to be the basis for a number of grants to follow up the results. |
| Title | Dementia's Platform UK Biostatistics Tool |
| Description | Bespoke analysis tool to perform the latest analyses on the largest UK datasets available. |
| Type Of Technology | Software |
| Year Produced | 2016 |
| Impact | Product still under development / improvement following user feedback. |
| Title | Dementia's Platform UK Cohort Selection Tool |
| Description | Used to select cohorts of interest, and to put a research proposal to them for feedback under the DPUK research protocol. |
| Type Of Technology | Webtool/Application |
| Year Produced | 2016 |
| Impact | Improvements ongoing to develop impacts. |
| URL | http://www.dementiasplatform.uk/cohort-tools/ |
| Title | Effective |
| Description | We have developed a novel approach to account for multiple testing in genome-wide association studies as published in (Moskvina and Schmidt, 2008). The software is C++ code, which can be compiled for any computational platform (Windows, Unix, Linux). |
| Type Of Technology | Software |
| Year Produced | 2008 |
| Open Source License? | Yes |
| Impact | The software was requested from the authors more than 10 times since the paper was published. We have made it now publicly available. |
| URL | http://github.com/DRI-Cardiff/Keffective |
| Title | POLARIS |
| Description | We developed a novel approach to genetic set-based analysis and polygenic risk scoring, which accounts for linkage disequilibrium between SNPs and informs the analysis with previously reported effect sizes of a SNP's association to disease. We call this method POLARIS: POlygenic Linkage disequilibrium-Adjusted RIsk Score. |
| Type Of Technology | Software |
| Year Produced | 2017 |
| Open Source License? | Yes |
| Impact | NA |
| URL | https://github.com/BakerEA/POLARIS |
| Title | Statistical phasing in gnomAD |
| Description | Phase of compound heterozygotes in gnomAD This repository serves as a home for the pipeline used to infer the phase of rare variants in the gnomAD v2 exomes, as reported in our corresponding manuscript (see https://www.biorxiv.org/content/10.1101/2023.03.19.533370v2), and is coded in Hail 0.2. The main components of the pipeline can be found in "phasing.py". Briefly, to infer variant phase, we generate haplotype frequency estimates from genotype counts by applying the expectation-maximization (EM) algorithm (see "get_em_expressions" function) and calculate the probability of two variants being in trans (compound heterozygous, "p_chet"), using the haplotype frequency estimates in a simple equation ("get_em_expr" function). The remaining scripts in the repository serve to compute the phase of rare variant pairs specifically in the gnomAD and Center for Mendelian Genetics rare disease datasets, and to generate the gnomAD variant co-occurrence look-up tool (see https://gnomad.broadinstitute.org/variant-cooccurrence) and variant co-occurrence counts by gene resource (see https://gnomad.broadinstitute.org/news/2023-03-variant-co-occurrence-counts-by-gene-in-gnomad/). These scripts cannot be run outside of the gnomAD team, as they require access to the individual level data, and are provided for reference only. |
| Type Of Technology | Software |
| Year Produced | 2023 |
| Open Source License? | Yes |
| URL | https://zenodo.org/doi/10.5281/zenodo.10034662 |
| Description | "Genetics of schizophrenia - where to go next?" |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Gave talk at European Congress of Psychiatry entitled "Genetics of schizophrenia - where to go next?" |
| Year(s) Of Engagement Activity | 2015 |
| Description | "The Nature of Schizophrenia" |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Undergraduate students |
| Results and Impact | Gave a talk at UCL entitled "The Nature of Schizophrenia" |
| Year(s) Of Engagement Activity | 2015 |
| Description | 'Online article for the conversation |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | 'News piece for the conversation about a recent paper |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://theconversation.com/emotional-problems-in-young-people-were-rising-rapidly-even-before-the-p... |
| Description | 01/02/18 - MQ mental health science meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | MQ mental health science meeting - "Psychiatric genetics: implications for prevention and early intervention." |
| Year(s) Of Engagement Activity | 2018 |
| Description | 02/03/17 - Llandough lecture series |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | Llandough lecture series - "Psychiatric Genetics: Implications for treatment, prevention and personalised medicine." |
| Year(s) Of Engagement Activity | 2018 |
| Description | 02/06/17 - Neuroscience in Bordeaux Association |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Neuroscience in Bordeaux Association talk - Genomics and the Nature of Schizophrenia. |
| Year(s) Of Engagement Activity | 2017 |
| Description | 09/10/17 - Stanley Center Biennial Symposium |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Stanley Center Biennial Symposium SEVERE MENTAL ILLNESS: FROM GENES TO MODELS TO MECHANISM - talk, "Identifying and exploiting risk alleles in psychosis'. " |
| Year(s) Of Engagement Activity | 2017 |
| Description | 10/07/17 - NIMH Psychiatric Genomics in the Era of Team Science Symposium |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | NIMH Psychiatric Genomics in the Era of Team Science Symposium |
| Year(s) Of Engagement Activity | 2017 |
| Description | 11 new susceptibility genes linked with Alzheimer's disease |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | In the largest ever study of its kind, an international collaboration of scientists, jointly led by Cardiff, has uncovered 11 new susceptibility genes linked with Alzheimer's disease. Worldwide TV and Newspaper Coverage received |
| Year(s) Of Engagement Activity | 2013 |
| Description | 11/05/17 - St George's Tooting talk |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | St George's Tooting talk - "Genetics of Mental Illness " |
| Year(s) Of Engagement Activity | 2017 |
| Description | 12th Congress of the Italian Society of Biological Psychiatry |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | 12th Congress of the Italian Society of Biological Psychiatry talk - "Implications of psychiatric genetics for research and practice", Naples |
| Year(s) Of Engagement Activity | 2019 |
| Description | 14/06/17 - MRC Symposium - The Developing Brain in Health and Disease |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | MRC Symposium - The Developing Brain in Health and Disease - talk "Schizophrenia and neurodevelopmental continuum" |
| Year(s) Of Engagement Activity | 2017 |
| Description | 14th World Congress of Biological Psychiatry |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | 14th World Congress of Biological Psychiatry talk - "The PGC Schizophrenia GWAS: Phase 3", Vancouver, Canada |
| Year(s) Of Engagement Activity | 2019 |
| Description | 15/09/17 - European Conference on Schizophrenia Research |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | European Conference on Schizophrenia Research - "Genomics and the Nature of Schizophrenia" |
| Year(s) Of Engagement Activity | 2017 |
| Description | 2013 Open Day |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | Yes |
| Geographic Reach | Regional |
| Primary Audience | Undergraduate students |
| Results and Impact | 150 people attended an open day which included a series of talks, poster presentations, lab tours and informal question and answer sessions. The event was featured on the BBC Radio Wales Science Cafe Show which resulted in increased enquiries from members of the public. |
| Year(s) Of Engagement Activity | 2013 |
| URL | http://www.alzheimersresearchuk.org/news-detail/10941/Public-invited-to-day-of-dementia-talks-tours-... |
| Description | 2014 Brain & Behavior Research Foundation Ruane Prize for Child and Adolescent Psychiatry |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | Education and Information |
| Year(s) Of Engagement Activity | 2014 |
| URL | http://youtu.be/1k82NwFc2_Y |
| Description | 22q11 syndrome All-Party Parliamentary Group launch |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Attended 22q11 syndrome All-Party Parliamentary Group launch |
| Year(s) Of Engagement Activity | 2015 |
| Description | 24/01/18 - Exeter Uni talk |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | "Psychosis Genomics: Discovery and Exploitation" talk given at University of Exeter Medical School |
| Year(s) Of Engagement Activity | 2018 |
| Description | 25th Neuropharmacology Conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Attended the 25th Neuropharmacology Conference in Chicago |
| Year(s) Of Engagement Activity | 2015 |
| Description | 26/06/17 - RCPsych International Congress |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | RCPsych International Congress - talk, "Genes, schizophrenia and treatment response" |
| Year(s) Of Engagement Activity | 2017 |
| Description | 27/04/17 - 2 day symposium, Cardiff |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | TWO-DAY SYMPOSIUM ON `NEUROPLASTICITY AND SYNAPTIC FUNCTION IN NEUROPSYCHIATRIC DISORDERS' |
| Year(s) Of Engagement Activity | 2017 |
| Description | 31/05/17 - Mediterrean Maudsley Forum |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Mediterrean Maudsley Forum - talk "Is the Genetics Revolution here at last: The success of the Psychiatric Genetics Consortium" |
| Year(s) Of Engagement Activity | 2017 |
| Description | 31/10/17 - Oxford University talk, Dept. of Psychiatry |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Oxford University talk, Dept. of Psychiatry, "The Nature of Schizophrenia" |
| Year(s) Of Engagement Activity | 2017 |
| Description | 4th International Symposium - Autism spectrum disorders: From Genes to Interventions |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Gave a talk at 4th International Symposium - Autism spectrum disorders: From Genes to Interventions entitled "Schizophrenia, autism and the neurodevelopmental continuum" |
| Year(s) Of Engagement Activity | 2016 |
| Description | 6th form talk |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Schools |
| Results and Impact | Talk to 6th form students at the Royal Grammar School Worcester about a career in science and medicine. |
| Year(s) Of Engagement Activity | 2015 |
| Description | 7th World Congress on ADHD, Portugal |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Member of 2 x symposiums HOT TOPIC SESSION PRETERM BIRTH AND ADHD A. Thapar, United Kingdom Preterm birth and neuropsychiatric genetic risks: investigating their interplay in a UK neonatal cohort. NEW CONCEPTS AND APPROACHES TO STUDY ADHD Chairs: including A. Thapar, United Kingdom A Thapar, United Kingdom Is there yet a role for classical longitudinal epidemiological studies to inform our understanding of ADHD? |
| Year(s) Of Engagement Activity | 2019 |
| Description | 9th World Congress on ADHD |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Presentation at the Plenary Session ADHD and comorbidities - on Is Depression a red flag for ADHD? |
| Year(s) Of Engagement Activity | 2023 |
| Description | A formal working group, expert panel or dialogue - DPUK Annual Conference 2018: The power of cohorts 23 April 2018 |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Attended one-day conference on using DPUK platform. |
| Year(s) Of Engagement Activity | 2018 |
| Description | A healthy future - BBC Radio Wales |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | BBC Radio Wales programme focused on mental health research - interviews with Ian and Catrin. Also with Laura (research champion) and Sarah (PTSD PPI rep). |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://www.bbc.co.uk/programmes/m0008269 |
| Description | ADHD Open Day |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | An event for the public to learn more about ADHD, latest findings and how parents and their families can help with research. Adult attendees were 98% satisfied with the event and there was a likelihood of 87% that they would take part in future research studies. 21.4% of the child attendees said the event was great fun, 21.4% said it was quite good and 57.1% said it was ok. |
| Year(s) Of Engagement Activity | 2016 |
| Description | ADHD parenting group meeting - ADHD Cardiff - Sharifah Agha |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Talking about ADHD research and discussing the myths and facts about ADHD |
| Year(s) Of Engagement Activity | 2017 |
| Description | ADHD, autism and the elevated risk of later depression: A conversation with Professor Anita Thapar |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Professor Thapar was interviewed by The Association for Child and Adolescent Mental Health to discuss the relationship between ADHD, autism and the potential risk of developing depression in later life. |
| Year(s) Of Engagement Activity | 2021 |
| Description | AMS council meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Attended Academy of Medical Sciences meeting as an elected member of the council |
| Year(s) Of Engagement Activity | 2015 |
| Description | APP webinar: Essential knowledge for preventing maternal suicide |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | NCMH hosted and supported the Action on Postpartum Psychosis led webinar on maternal suicide. More than 2500 people signed up to attend. |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://youtu.be/yQgfpy2SBtk?si=z5IgcK8ydcIDlVzK |
| Description | ART at the Bay |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Type Of Presentation | Keynote/Invited Speaker |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Presented a talk at the ART at the bay exhibition Unknown |
| Year(s) Of Engagement Activity | 2013 |
| Description | ARUK 2014 Annual Meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | Yes |
| Type Of Presentation | keynote/invited speaker |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Julie Williams took part in a debate at the 2014 ARUK conference titled: Alzheimer's disease: The relative importance of Genes and Environment The conference audience took part in the debate and positive feedback was recieved about this part of the conference. |
| Year(s) Of Engagement Activity | 2014 |
| URL | http://www.alzheimersresearchuk.org/conference-programme/ |
| Description | ARUK Iceland donation press release |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | A press release was issued announcing new funding from ARUK raised by Iceland foods The press release mentioned research investigating Early Onset AD, this resulted in an increase in enquiries about research |
| Year(s) Of Engagement Activity | 2014 |
| URL | http://www.alzheimersresearchuk.org/news-detail/10984/Cardiff-researchers-lead-global-hunt-for-early... |
| Description | ARUK Oxford Drug Discovery Institute |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited presenter at the ARUK Oxford Drug Discovery Institute (ODDI) Collaborators meeting |
| Year(s) Of Engagement Activity | 2020 |
| Description | ARUK Public Engagement event |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | The ARUK event was a meeting of around 100 researchers, clinicians, family members and carers involved with Alzheimers disease, with the purpose of informing people of the research being performed in Cardiff. |
| Year(s) Of Engagement Activity | 2015 |
| Description | ARUK Public Engagement open day |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Public engagement |
| Year(s) Of Engagement Activity | 2015 |
| Description | ARUK Roundtable |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | I have been invited and participated in a Roundtable discussion organized by Alzheimer's Research UK: "Where now for Alzheimer's disease research? Learning from recent clinical trials failures and planning for the future", 19 January, 2017 |
| Year(s) Of Engagement Activity | 2017 |
| Description | ARUK Scientific meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | Scientific meeting |
| Year(s) Of Engagement Activity | 2015 |
| Description | ARUK grant board |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | To decide which research applications ARUK should fund. |
| Year(s) Of Engagement Activity | 2015 |
| Description | ARUK public event |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | To communicate our research on dementia to the public. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Advances Wales |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Overview of ECHO Study/CNV research lead by Prof Marianne van den Bree |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://businesswales.uberflip.com/i/521757-advances-wales-issue-76-the-digital-revolution/26 |
| Description | Advances Wales - schizophrenia genetics |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Schizophrenia GWAS study featured in Summer 2018 edition of Advances Wales, a Welsh Government magazine focused on science, technology and innovation in Welsh business and academia. Scanned copy on shared drive, online copies available via https://businesswales.gov.wales/innovation/advances-wales |
| Year(s) Of Engagement Activity | 2018 |
| Description | Alzheimer's Society legacy event |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | Yes |
| Geographic Reach | Regional |
| Primary Audience | Supporters |
| Results and Impact | Dr Rebecca Sims spoke at an Alzheimer's Society legacy event An increase in legacy donations |
| Year(s) Of Engagement Activity | 2013 |
| Description | An invited interview at the Alzheimer's Research UK (ARUK) 2019 the Video Journal of Dementia |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | An interview for Video Journal of Dementia |
| Year(s) Of Engagement Activity | 2019 |
| URL | http://www.vjdementia.com |
| Description | An invited interview on issues facing researchers in Brexit for the Cross Party Group on Medical Research for Alzheimer's Society, UK |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Have provided an opinion on issues facing researchers in Brexit for the Cross Party Group in the Welsh Assembly looking at Medical Research |
| Year(s) Of Engagement Activity | 2018 |
| Description | Anita Thapar, genetic risk factors of ADHD |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Undergraduate students |
| Results and Impact | For the first time, researchers at the University of Cardiff have discovered there are common genetic tendencies linked to the disorder found in around one in 20 children. The genetic information of around 55,000 people was analysed to identify differences between people with and without the condition. The team also found these same genetic factors are shared with other psychiatric and physical disorders, including depression, obesity, and type 2 diabetes. Dr Joanna Martin, a research associate based at Cardiff University, said: "We identified 12 genomic regions at which people with ADHD differed compared to unaffected individuals, and several of these regions are in or near genes with a known relationship to biological processes involved in healthy brain development." Surveying more than 20,000 people with ADHD, and 35,000 without, this study was the largest on the condition to date, and researchers believe it could help lead to better treatments in the future. Professor Anita Thapar said: "This study marks a very important step in beginning to understand the genetic and biological underpinnings of ADHD. "The genetic risk variants related to this condition play a significant role in brain-related and other core biological processes. "The next step is to determine the exact role of these genes in ADHD to help us inform better treatments to support those affected by the condition." She added: "This is a landmark study because it involved patients from all over the world. "This large number of patient samples has been lacking for ADHD, meaning our understanding of ADHD genetics has lagged behind physical disorders and other psychiatric disorders like schizophrenia and depression. "Every person with ADHD who has participated in research is making a real difference to advancing our understanding of the condition, and we hope this study leads to higher levels of participation and a greater interest from the UK in supporting ADHD research." https://www.sciencedaily.com/releases/2018/11/181127111020.htm https://www.dailymail.co.uk/wires/pa/article-6439177/ADHD-genetic-risks-time.html https://www.newsshopper.co.uk/news/national/17262545.adhd-genetic-risks-found-for-first-time/?ref=rss https://www.gazetteseries.co.uk/news/national/17262545.adhd-genetic-risks-found-for-first-time/?ref=rss https://www.bioportfolio.com/news/article/3830027/ADHD-genetic-risks-found-for-first-time-Belfast-Telegraph.html https://www.thetelegraphandargus.co.uk/uk_national_news/17262545.adhd-genetic-risks-found-for-first-time/ https://www.eveningexpress.co.uk/news/adhd-genetic-risks-found-for-first-time/ https://www.aol.co.uk/news/2018/11/28/adhd-genetic-risks-found-for-first-time/ https://guce.oath.com/collectConsent?sessionId=3_cc-session_5dad7939-7f57-4bf5-b2ae-54da96513816?=en-GB?line=false&jsVersion=null&experiment=null" |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://www.sciencedaily.com/releases/2018/11/181127111020.htm |
| Description | Artificial Intelligence for Precision Dementia Medicine Summit at the Royal Society |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited to the round table discussion at the Artificial Intelligence for Precision Dementia Medicine Summit at the Royal Society |
| Year(s) Of Engagement Activity | 2022 |
| Description | Attending World Congress of Psychiatric Genetics, Glasgow |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Discussant for the symposia "Insights into the Genetics of ADHD from Human and Animal Studies" |
| Year(s) Of Engagement Activity | 2018 |
| Description | B debate Barcelona 2014 |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | Yes |
| Geographic Reach | International |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | Two day debate to inform future international epidemiological studies involving brain sciences, and to discuss and inform public health policy. Possible future collaborations discussed including possible links with WHO asthma worldwide monitoring to consider whether could be extended to cover child mental health trends. |
| Year(s) Of Engagement Activity | 2014 |
| URL | http://www.bdebate.org/en/forum/environment-and-child-brain-development-challenges-global-context |
| Description | BAP |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk on research |
| Year(s) Of Engagement Activity | 2015 |
| Description | BAP summer meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Gave a talk and attended British Association for Psychopharmacology summer meeting |
| Year(s) Of Engagement Activity | 2015 |
| Description | BBC (online and local news) |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Prof Julie Williams on AD gene study |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.bbc.co.uk/news/uk-wales-36286847 |
| Description | BBC - ECT |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Interviewed about ECT live on Victoria Derbyshire Show |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.bbc.co.uk/programmes/b08qlycy |
| Description | BBC - HD cells |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Quoted on upcoming trial for cell transplantation in Huntington's disease |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://www.bbc.co.uk/news/uk-wales-south-east-wales-39922901 |
| Description | BBC - postpartum psychosis |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Quoted on clinical aspects of postpartum psychosis |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://www.bbc.co.uk/news/uk-wales-39205485 |
| Description | BBC - robotic surgery |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Quoted on performing the first robotic surgery for epilepsy in Wales |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://www.bbc.co.uk/news/uk-wales-south-west-wales-39506214 |
| Description | BBC Breakfast interview |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | "Marianne interviewed about 22q11.2DS and the ECHO study for a package on BBC Breakfast. It also included interviews with ECHO study participants and their families. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://www.bbc.co.uk/news/uk-wales-46292480 |
| Description | BBC News Parkinson's treatment news piece |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | BBC News Parkinson's treatment news piece |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://www.bbc.co.uk/news/health-47370498 |
| Description | BBC Panorama |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Prof Julie Williams Research Team were approached to be involved in a BBC documentary. The documentary followed one of our research participants and his family through everyday life with Alzheimer's disease. Field workers and laboratory staff were also filmed in their roles. The documentary was screened on BBC1 in Panorama on 2nd June 2016. |
| Year(s) Of Engagement Activity | 2016 |
| Description | BBC Radio 4: Women's Hour |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Prof Ian Jones talking about postpartum psychosis |
| Year(s) Of Engagement Activity | 2017 |
| Description | BBC Radio Wales |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Further coverage: Interview with Prof Mick O'Donovan on schizophrenia findings (Andrew Pocklington) |
| Year(s) Of Engagement Activity | 2015 |
| Description | BBC Radio Wales interview - 22q |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Marianne van den Bree interviewed about 22q11.2DS on BBC Radio Wales (Good Morning Wales). |
| Year(s) Of Engagement Activity | 2018 |
| Description | BBC Wales |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | I have given an interview for BBC Wales, broadcasted 20 April 2017 |
| Year(s) Of Engagement Activity | 2017 |
| Description | BBC Wales Dementia Week 2016 |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Filming with BBC Wales's Owain Clarke on Thursday (12th May, 10-12). Interview is part of a package he's doing for Alzheimer's Awareness Week. Owain will be asking Prof Williams about Wales's research contribution; her own specific research and; look ahead at what's next. Various excerpts were screened on BBC news throughout the week, featuring a number of different staff from the team at Cardiff. This raised awareness of our work and the profile of the team. |
| Year(s) Of Engagement Activity | 2016 |
| Description | BBC Wales Science Cafe |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Interviewed on BBC Radio Wales Science Cafe about recent schizophrenia genetics paper |
| Year(s) Of Engagement Activity | 2018 |
| Description | BBC Wales online |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Ian Jones commenting on perinatal mental health care provision in Wales. |
| Year(s) Of Engagement Activity | 2018 |
| URL | http://www.bbc.co.uk/news/uk-wales-43825394 |
| Description | BBC online article |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | George's post on The Conversation around ECT quoted in BBC news story. |
| Year(s) Of Engagement Activity | 2018 |
| URL | http://www.bbc.com/future/story/20180502-the-surprising-benefits-of-electroshock-therapy-or-ect |
| Description | BBC panorama |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | BBC Panorama are following an EOAD participant. The initial interview was filmed by the BBC |
| Year(s) Of Engagement Activity | 2016 |
| Description | BBC, Mail Online, Guardian |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Prof Mike Owen commenting on research at KCL |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.bbc.co.uk/news/health-33464480 |
| Description | BEPC and Bipolar UK webinar - 4th session (family and friends) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | The fourth taster session of BEPC held in partnership with Bipolar UK. |
| Year(s) Of Engagement Activity | 2020 |
| URL | http://www.bit.ly/bitesizeBEPC |
| Description | BEPC and Bipolar UK webinar - 5th session (Women, pregnancy and childbirth) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Fifth session of the BEPC taster session webinars focussing on women with bipolar disorder considering pregnancy and their families. |
| Year(s) Of Engagement Activity | 2020 |
| URL | http://www.bit.ly/bitesizeBEPC |
| Description | BEPC and Bipolar UK webinar - session three |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Third of several webinars aimed at people living with bipolar disorder. The webinars were taster sessions of the full Bipolar Education Programme Cymru (BEPC). |
| Year(s) Of Engagement Activity | 2020 |
| URL | http://www.bit.ly/bitesizeBEPC |
| Description | BEPC and Bipolar UK webinar - session two |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Session two of the BEPC taster sessions. 2nd of several webinars aimed at people living with bipolar disorder |
| Year(s) Of Engagement Activity | 2020 |
| URL | http://www.bit.ly/bitesizeBEPC |
| Description | BNA Festival of Neuroscience |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | Presented a poster describing the aims of MURIDAE at the Festival of Neuroscience, the British Neuroscience Association international biennial meeting. |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://meetings.bna.org.uk/bna2023/ |
| Description | BNPA Teaching Weekend |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | BNPA Teaching Weekend - The Essentials of Neuropsychiatry at the Mathematical Institute, University of Oxford, |
| Year(s) Of Engagement Activity | 2018 |
| Description | BRAINTRAIN workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Workshop delivered to share findings of BRAINTRAIN research |
| Year(s) Of Engagement Activity | 2018 |
| Description | Baglan hospital resilience talk |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | attended by CAMHS psychiatrists and psychologists. Discussed implications for clinical practice been invited to give further talks |
| Year(s) Of Engagement Activity | 2013 |
| Description | Barnados ADHD parenting group meeting attended by Sharifah Agha |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | To talk about ADHD research and the myths and facts about ADHD |
| Year(s) Of Engagement Activity | 2017,2018 |
| Description | Bayesian statistics workshops CUBRIC |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Postgraduate students |
| Results and Impact | Regular workshops (appr. 2/ year) organised at Cardiff University Brain Research Imaging Centre by PhD student holding the studentship from this award. |
| Year(s) Of Engagement Activity | 2016,2017 |
| Description | Behavior Genetics Association Annual meeting - Oral presentation and poster |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Oral presentation: Identifying novel types of irritability using a developmental genetic approach. Poster presentation: Investigating the genetic architecture of ADHD and ASD in young adulthood |
| Year(s) Of Engagement Activity | 2019 |
| Description | Benchmarking Alzheimer's Disease polygenic risk scores for disease prediction in diverse samples |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | DEMON Network Genetics and Omics group meeting: Benchmarking Alzheimer's Disease polygenic risk scores for disease prediction in diverse samples |
| Year(s) Of Engagement Activity | 2023 |
| Description | Bipolar UK Conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Bipolar UK conference in London - Ian Jones gave a talk and the comms and field team ran a stand. |
| Year(s) Of Engagement Activity | 2019 |
| Description | Bipolar UK conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Workshop and discussion at the Bipolar UK conference with 80 women and their partners. Discussion on post partum episodes. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Bitesize BEPC online webinar session one |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | First of several webinars aimed at people living with bipolar disorder. The webinars were taster sessions of the full Bipolar Education Programme Cymru (BEPC). |
| Year(s) Of Engagement Activity | 2020 |
| URL | http://www.bit.ly/bitesizeBEPC |
| Description | Blog (Cognitive Neuroscience) |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Blog posts (1/year) by PhD student in receipt of the studentship of this award on statistics of fMRI data analysis and on neurofeedback and its clinical applications. |
| Year(s) Of Engagement Activity | 2016,2017 |
| Description | Blog post: Does taking antidepressants during pregnancy harm the child? Here are the facts |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Prof Ian Jones on depression during pregnancy and postpartum |
| Year(s) Of Engagement Activity | 2015,2016 |
| URL | http://blogs.cardiff.ac.uk/mental-health/2016/10/24/does-taking-antidepressants-during-pregnancy-har... |
| Description | Blog post: Mental health: United we stand, divided we fall |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Prof Mike Owen introducing the mental health blog |
| Year(s) Of Engagement Activity | 2007,2016 |
| URL | http://blogs.cardiff.ac.uk/mental-health/2016/06/06/mental-health-united-we-stand-divided-we-fall/ |
| Description | Blog post: Supporting the next generation of mental health scientists and clinicians |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | A blog post summarising the Summer School in Brain Disorders Research hosted by the Centre. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://blogs.cardiff.ac.uk/mental-health/2016/07/12/supporting-the-next-generation-of-mental-health-... |
| Description | Blog post: Understanding the causes of perinatal mental illness by working with those who've lived through it |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Prof Ian Jones on perinatal mental health |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://blogs.cardiff.ac.uk/mental-health/2016/07/08/understanding-the-causes-of-perinatal-mental-ill... |
| Description | Blog post: What has neuroscience ever done for psychiatry? |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Prof Jeremy Hall on neuroscience and psychiatry |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://blogs.cardiff.ac.uk/mental-health/2016/07/14/what-has-neuroscience-ever-done-for-psychaitry/ |
| Description | Blog post: Why we use animals in mental health research |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | A blog post highlighting the use of animals in mental health research |
| Year(s) Of Engagement Activity | 2008,2016 |
| URL | http://blogs.cardiff.ac.uk/mental-health/2016/10/05/why-we-use-animals-in-mental-health-research/ |
| Description | Brains for Dementia Research |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | A public engagement event for brain donors, their carriers and the researches who will access the data. |
| Year(s) Of Engagement Activity | 2022 |
| Description | Bristolintervention |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | Met with colleagues at Bristol University undertaking research on interventions aimed at fathers in early childhood (J Evans group). Shared findings on role of fathers in promoting resilience in order to influence planned intervention trials conducted at Bristol. Grant applications adapted to take account of new findings. Rebecca Pearson at Bristol involved in resilience paper. |
| Year(s) Of Engagement Activity | 2014 |
| Description | British Science Festival 2016 Workshops |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | We used VR tools to demonstrate the impact of dementia on people's everyday lives. These included using the experiences "A Walk Through Dementia", our citizen science game "Sea Hero Quest", some activities from out children's website, as well as hands on activities and memory games. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.britishsciencefestival.org/ |
| Description | Building Bridges in Medical Sciences conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Participant in Building Bridges in Medical Sciences conference - University of Cambridge |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.bbmscambridge.com/programme/ |
| Description | CADR Annual Public Conference, 5th October 2016 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | The Centre for Aging and Dementia Research (CADR) annual public meeting was held on 5th October in City Hall, Cardiff. A variety of individuals attended including the general public, and NHS staff working in dementia. Feedback received indicated that the event was regarded as training for NHS staff. Discussion groups were lively, and focused on clinical dementia. A number of information stands were manned during the meeting, including an ARUK stand, a Cardiff University Alzheimer's Team Recruitment stand, a Join Dementia Research (JDR) Stand, and a variety of others. The Cardiff research team have had an increased number of volunteer queries. We have also furthered collaborations with CFAS Wales, Dr John Hindle (DLB/PD expert) and others as a direct result of this meeting. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.cadr.cymru/en/ |
| Description | CADR Presentation to Minister |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Policymakers/politicians |
| Results and Impact | The Welsh Assembly Government Minister for Health visited Swansea University on 15th August, 2016. CADR staff/scientific leads were asked to prepare short presentations to inform the Minister of the on-going work of the research teams involved in CADR. Prof Julie Williams gave a brief presentation about the research of her team |
| Year(s) Of Engagement Activity | 2016 |
| Description | CALPDN Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | Delivered a talk about Neurodevelopmental Disorders at the CALPDN Conference Unknown |
| Year(s) Of Engagement Activity | 2014 |
| Description | CAMHS Network Training Day |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Gave a talk about Tourette's Syndrome at the CAMHS Network Training Day Unknown |
| Year(s) Of Engagement Activity | 2014 |
| Description | CLINICAL TRIALS IN HD: WHAT HAPPENED IN 2020 AND WHAT CAN WE EXPECT IN 2021, European Huntington's Association Family meeting. Online, 16th Dec 2020 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Presentation and discussion with European Huntington's patient and family group. Presentation on current and future research prospects for Huntington's disease. |
| Year(s) Of Engagement Activity | 2020 |
| Description | CNGG Summer School in Brain Disorders Research 2023 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | This year we welcomed over thirty in-person attendees to the annual CNGG Summer School in Brain Disorders Research, alongisde over fifteen online attendees. This school took place over four days with talks from members across the division, including lab-tours. We received lot's of positive feedback from this year's school - the attendees really enjoyed and have even made a WhatsApp group so that they can stay in contact with each other. |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://www.cardiff.ac.uk/centre-neuropsychiatric-genetics-genomics/study/summer-school |
| Description | CNGG Winter School |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | Winter school for NCMH. |
| Year(s) Of Engagement Activity | 2015 |
| Description | CNGG launch event |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Marking the launch of the Centre for Neuropsychiatric Genetics and Genomics as a Cardiff University centre. |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://cardiff.cloud.panopto.eu/Panopto/Pages/Viewer.aspx?id=e6abb066-a66c-4fe9-9290-b02f00ab2b7c |
| Description | CNN |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Prof David Linden comments on Alzheimer's paper |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://edition.cnn.com/2016/07/06/health/alzheimers-risk-young-adults/index.html |
| Description | CRIS and participate launch |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Launch of the CRIS and Participate tools - partnership between CU and Cardiff Health Board. NCMH stand to support event. |
| Year(s) Of Engagement Activity | 2019 |
| Description | CU Yr 1 Med school intro week talk |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Postgraduate students |
| Results and Impact | Gave talk to Cardiff Uni Yr 1 Med school intro week - 'I will talk about my career in psychiatric genetics and neuroscience, outlining some of the discoveries we have made and the research opportunities in the future. I will also introduce the students to academic medicine and describe how they might pursue an interest in becoming a clinical academic.' |
| Year(s) Of Engagement Activity | 2016 |
| Description | CU mental health blog |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | 'Meet the Researcher' style blog for CU mental health blog. |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://blogs.cardiff.ac.uk/mental-health/2019/07/05/meet-the-researcher-professor-sir-michael-owen/ |
| Description | Cambridge Public Health Annual Showcase |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Professor Thapar presented a talk as part of the showcase updating on Environmental risks and ADHD |
| Year(s) Of Engagement Activity | 2021 |
| Description | Can Anti-sense oligonucleotides (ASOs) provide a disease-modifying strategy for Huntington's disease? British Pharmacological Society, online, 14- 18 Dec 2020 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation to British Pharmacology Society |
| Year(s) Of Engagement Activity | 2020 |
| Description | Cardiff Univeristy Lab Talk - 26 January 2016 - Attention Deficit Hyperactivity Disorder: a developmental journey |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Postgraduate students |
| Results and Impact | Talk to the Cardiff University MRC Centre staff and students - approximately 70 people attended with discussion time. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Cardiff University ADHD Day held on 28.10.2016 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Approximately 60 people attended an afternoon of talks and workshops to provide information and support to individuals and families with ADHD. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.ncmh.info/2016/11/07/adhd-open-day-for-families-a-success/ |
| Description | Cardiff University Science in Health Public Lecture Talk given on Attention Deficit Hyperactivity Disorder: separating facts from fiction |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | Talk given to school children, general public and undergraduates to inform on ADHD |
| Year(s) Of Engagement Activity | 2014 |
| URL | http://ncmh.info/videos/adhd-facts-fiction/ |
| Description | Chairing conference session |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Session at the 'Future MINDDS: Recent advances and future directions for research of Neurodevelopmental Disorders (NDD) associated with pathogenic CNV (Copy Number Variants) conference, EU COST action funded. Cardiff |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://mindds.eu/activities/meetings/ |
| Description | Challenge Cardiff Magazine Interview and video |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | To inform and educate |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://youtu.be/OSBdjgNDAHE |
| Description | Child Psychiatry Research Society Meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Focus on the day was on on Fellowships and Career Progression |
| Year(s) Of Engagement Activity | 2020 |
| Description | Clinical Academic Showcase at Bristol University |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Undergraduate students |
| Results and Impact | Clinical Academic Showcase organised jointly by University of Bristol and NHS Health Education England, Severn Postgraduate Medical Education. Talk by Anita Thapar entitled Attention Deficit Hyperactivity Disorder: a Developmental Journey as a Clinical Academic. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Clinical Genetics & Psychiatry - whats new? |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Delivered talk: Schizophrenia Genetics: Implications for Clinical Practice |
| Year(s) Of Engagement Activity | 2017 |
| Description | Clinical Genetics and Psychiatry , whats new? |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Delivered talk: One risk factor, many disorders - evidence for overlaps between intellectual disability, autism and schizophrenia |
| Year(s) Of Engagement Activity | 2017 |
| Description | Closer website: Promoting excellence in longitudinal research |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Overview of study looking at schizophrenia risk and childhood developmental problems. |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://www.closer.ac.uk/news-opinion/2017/childrens-emotional-behavioural-problems-schizophrenia/ |
| Description | Co-organisation of conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Future MINDDS: Recent advances and future directions for research of Neurodevelopmental Disorders (NDD) associated with pathogenic CNV (Copy Number Variants) conference, EU-COST-funded. Cardiff |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://mindds.eu/activities/meetings/ |
| Description | Cold Spring Harbour Laboratory - Workshop on Schizophrenia & Related Disorders |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Talk given at Cold Spring Harbour Laboratory - Workshop on Schizophrenia & Related Disorders entitled "Schizophrenia, autism and the neurodevelopmental continuum" |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://meetings.cshl.edu/courses.aspx?course=C-SCHIZ&year=16 |
| Description | Comment on the Polygenic Hazard scores for AD study by Tan et al (2019), Brain 142; 460-470 for Alzforum |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | I have commented on a study which was covered on Alzforum about polygenic hazard scores for AD, and shared my opinion on their availability to the public. |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://www.alzforum.org/news/research-news/multi-gene-score-predicts-cognitive-decline-independentl... |
| Description | Common Disease Meeting in Oxford |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | scientific meeting to convene three diverse communities to envision the next phase of human genetics: moving systematically and rapidly from genetic variation to the mechanistic basis of disease and health |
| Year(s) Of Engagement Activity | 2018 |
| Description | Company Visit (Boston) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Industry/Business |
| Results and Impact | ~50 industrial partners attended my talk about blood biomarkers in neurodegeneration |
| Year(s) Of Engagement Activity | 2022 |
| Description | Congress of human genetics |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Attended International Congress of Human Genetics in Tokyo. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.ichg2016.org/contents/program.html |
| Description | Cornwall meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk to Cornwall psychiatrists about NCMH research. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Crestar GA meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Met with Crestar EU grant General Assembly in Budapest |
| Year(s) Of Engagement Activity | 2015 |
| Description | Crestar SC meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Attended Crestar grant steering committee meeting in Mallorca |
| Year(s) Of Engagement Activity | 2015 |
| Description | Cym Taf Health Board R&D conference (clinicians) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation of findings from time trends project to clinicians who helped in recruiting participants for calibration substudy None as yet |
| Year(s) Of Engagement Activity | 2014 |
| Description | DEVAR public lecture - Nature and Nurture |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | "Public event aimed at alumni, took place at the Royal Society in London. Jeremy and Mike both gave 10 minute presentations on the work of NMHRI/MRC Centre and were then joined by Sophie Dix (MQ) for Q&A with the audience. Questions were about prevelance of mental health problems, importance of early intervention, alternative treatments and the need to research environmental factors alongside genetics. Approximately 50 attendees." |
| Year(s) Of Engagement Activity | 2018 |
| Description | DPMCN staff retreat 2016 |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | Staff retreat including talks and workshops |
| Year(s) Of Engagement Activity | 2016 |
| Description | DRI workshop on Parkinson's disease |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | Presented and engaged regarding future genetics of Parkinson's disease |
| Year(s) Of Engagement Activity | 2019 |
| Description | Daily Mail |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Prof Ian Jones comments on prenatal depression |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.dailymail.co.uk/health/article-3416377/When-baby-blues-hit-birth-s-common-think-heartbrea... |
| Description | Daily Mail, Mail Online |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Prof Ian Jones commenting on postnatal OCD |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.dailymail.co.uk/health/article-3135076/Why-having-baby-OCD-Doctors-dismiss-new-mums-bizar... |
| Description | Dartington November 2015 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Dartington Centre for Social Policy seminar for Fellows on risk and resilience in young people with a depressed parent. Audience included wide range of professionals (Head teachers, youth offending, judiciary, CAMHS). Debate and discussion about implications for policy and practice. Request for more information and links from audience on whom to disseminate resilience findings |
| Year(s) Of Engagement Activity | 2015 |
| Description | DartingtonSRUseminar |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | Discussed implications of findings of resilience project for policy and practice. Considered ways in which to maximise impact. Agreed to collaborate on policy/practice briefings and further dissemination of findings to policy makers, including directors of local authorities. Dartington SRU staff and trustees expressed interest in the project and offered to facilitate dissemination and host future seminar |
| Year(s) Of Engagement Activity | 2015 |
| Description | Darwin Lecture |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | "The Genetics of Schizophrenia: Darwin, Linnaeus and Precision Psychiatry" - Darwin Lecture 2019 |
| Year(s) Of Engagement Activity | 2019 |
| Description | Developing Brain |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Postgraduate students |
| Results and Impact | Anita gave a talk titled 'The value of cohort and population studies in neurodevelopmental research'. |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://acmedsci.ac.uk/policy/policy-projects/the-developing-brain-in-health-and-disease |
| Description | Docbate |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | This event was sponsored by NCMH, but part of a national series of event. It was a panel debate (Ian was on the panel) about mental health care where the audience were also invited to ask questions. |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.docbate.com/cardiff/ |
| Description | ECHO Study newsweek |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | ECHO Study newsweek |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://www.newsweek.com/16p112-dna-autism-psychiatric-disorders-1347869 |
| Description | ECNP plenary speaker |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | ECNP plenary speaker - "Applications and interpretations of genomics in schizophrenia", Copenhagen |
| Year(s) Of Engagement Activity | 2019 |
| Description | ECNP science meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Met with colleagues at European College of Neuropsychopharmacology science meeting in Nice |
| Year(s) Of Engagement Activity | 2015 |
| Description | ECR DPUK Genetics Platform presentation - AAIC July 2017 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Georgina Menzies - ECR DPUK Genetics Platform presentation - AAIC July 2017 |
| Year(s) Of Engagement Activity | 2017 |
| Description | ECR Poster presentation at European Society of Human Genetics Conference 2019 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Detelina Grozeva - ECR Poster presentation at European Society of Human Genetics Conference |
| Year(s) Of Engagement Activity | 2019 |
| Description | ECR Presentation at the MRC Oversight Board in London |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Georgina Menzies - ECR Presentation at the MRC Oversight Board in London |
| Year(s) Of Engagement Activity | 2018 |
| Description | ECR Presentations at cohort workshops - Dec 2017 and Feb 2018 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Georgina Menzies - ECR Presentations at cohort workshops Dec 2017 and Feb 2018 |
| Year(s) Of Engagement Activity | 2017,2018 |
| Description | ECR Presentations at cohort workshops - May and September 2017 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Georgina Menzies - ECR Presentations at cohort workshops - May and September 2017 |
| Year(s) Of Engagement Activity | 2017 |
| Description | ECT therapy - Independent |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Media piece written around ECT, how it works and what impact it can have |
| Year(s) Of Engagement Activity | Pre-2006,2017 |
| URL | http://www.independent.co.uk/news/health/electroconvulsive-therapy-does-work-and-it-can-be-miraculou... |
| Description | EMWWH lecture - Anita |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Postgraduate students |
| Results and Impact | Professor Anita Thapar delivered a lecture (Development of my career and scientific knowledge on ADHD) in the Ethnic Minority Women in Welsh Healthcare lecture series. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://www.cardiff.ac.uk/events/view/development-of-my-career-and-scientific-knowledge-on-adhd |
| Description | ESCR Festival: Debate |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Schools |
| Results and Impact | An event for schools to discuss psycho-social research into mental health disorders and how this relates to biological approaches. |
| Year(s) Of Engagement Activity | 2016 |
| Description | ESHG meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | talk entitled "Genetics of Schizophrenia" given at ESHG conference in Barcelona 21/05/16 |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.eshg.org/programme2016.0.html |
| Description | ESRC Society Now article and news release |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | Article in ESRC Society Today magazine about mental health resilience study. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.esrc.ac.uk/files/news-events-and-publications/publications/magazines/society-now/society-... |
| Description | ESRC social science festival - panel event |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | members of the public, third sector organisations and academic attended a panel discussion on the loneliness and its impacts on society. A wide ranging discussion including a focus on secular trends in loneliness and the importance of youth mental health for society |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://www.eventbrite.co.uk/e/dathlu-lles-gydol-oes-yng-nghymru-celebrating-lifelong-wellbeing-in-w... |
| Description | ESRCResearchMethods |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | Yes |
| Geographic Reach | National |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | Well attended talk on methods for undertaking cross-cohort comparisons in understanding trends in mental health, e.g. calibration. Talk filmed and publically available. Requests for further information on calibration methods |
| Year(s) Of Engagement Activity | 2014 |
| URL | http://www.ncrm.ac.uk/TandE/video/RMF2014/filmed.php?id=24ca418 |
| Description | Eastenders |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | Meeting with script writers and producers to develop a storyline on post partum psychosis. Consultation continued after this meeting. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Editorial team of special edition of 'Frontiers in Psychiatry' |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Special edition on a rare genetic condition. |
| Year(s) Of Engagement Activity | 2022 |
| Description | Eisai Ltd webinar |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Industry/Business |
| Results and Impact | Invited presenter at Eisai Ltd webinar |
| Year(s) Of Engagement Activity | 2020 |
| Description | Enabling dementia research using UK Biobank |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Webinar: 'Enabling dementia research using UK Biobank'. |
| Year(s) Of Engagement Activity | 2023 |
| Description | Epigenetics workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Postgraduate students |
| Results and Impact | 80 PhD students and post-doctoral researchers attend one of two workshops are the MRC Centre open day Further interest in topic area |
| Year(s) Of Engagement Activity | 2014 |
| Description | Eunethydis Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | Delivered a talk at the Eunethydis Conference entitled The origins of conduct problems in ADHD - causes and clinical implications Unknown |
| Year(s) Of Engagement Activity | 2014 |
| Description | Eunethydis Conference in Glasgow |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Gave a talk in two symposiums. 1: Onset and course of ADHD; 2: Genetic Studies of ADHD |
| Year(s) Of Engagement Activity | 2018 |
| Description | Exeter seminar |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Postgraduate students |
| Results and Impact | Open seminar at Exeter University Mood Disorders Centre, Think Tank series. Talk to academics and general public on intergenerational risks for depression and resilience sparked questions and discussion on future research possibilities as well as policy and practice implications |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.exeter.ac.uk/mooddisorders/thinktank/previousexternalspeakers/ |
| Description | Expo 2020 Dubai |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Industry/Business |
| Results and Impact | James Walters was a panellist at Expo 2020 Dubai, discussing the importance or technology to improve (mental health) research. The talk was called, 'Mental Health Digital Science'. |
| Year(s) Of Engagement Activity | 2021 |
| Description | FENS 2018 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | PhD student Matt Bosworth attended and presented a poster at FENS 2018 in Berlin, Germany |
| Year(s) Of Engagement Activity | 2018 |
| Description | FENS Brain conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Gave talk at FENS brain conference in Copenhagen entitled "Genetic evidence for synaptic dysfunction in schizophrenia and related disorders". |
| Year(s) Of Engagement Activity | 2016 |
| Description | FENS2020 - Bosworth |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Poster presentation at FENS 2020 - Matthew Bosworth |
| Year(s) Of Engagement Activity | 2020 |
| Description | FENS2020 - Zahova |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Simona ZAhova poster presentation at the FENS Forum for Neuroscience 2020 |
| Year(s) Of Engagement Activity | 2020 |
| Description | FPWR-PCAN |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Supporters |
| Results and Impact | Participation in the Foundation for Prader-Willi Research "Pre-clinical animal network" (PCAN), an expert group advising the charity in relation to its strategy for developing and using animal models to test novel therapeutics |
| Year(s) Of Engagement Activity | 2016,2017,2018 |
| Description | Facebook live - postpartum psychosis |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | "Ian took part in a Facebook live broadcast to discuss postpartum psychosis. The video has been had >4,700 views, 186 comments, 48 shares and 99 'reactions' e.g. likes. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://business.facebook.com/PerinatalMHPartnershipUK/videos/764093897115182/ |
| Description | Festival of Genomics and Biodata |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presented at he Festival of Genomics and Biodata |
| Year(s) Of Engagement Activity | 2022 |
| Description | Fifth Annual ADHD Conference, Liverpool |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Anita Thapar gave a talk on "The overlap of neurodevelopmental disorders: what does it mean for people with ADHD?" The conference is attended by over 800 professionals mainly NHS clinicians but also educationalists. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.adhdfoundation.org.uk/training-and-events/conference-2017/ |
| Description | Finding and Losing Schizophrenia |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Event held at Big Moose Coffee Co involved James Walters interviewing author Nathan Filer about schizophrenia with a Q&A session with the audience. |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://www.ncmh.info/2019/09/25/podcast-finding-and-losing-schizophrenia/ |
| Description | Free Screening of Disney Pixar's Inside Out |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | A free screening of Disney Pixar's Inside Out (PG) for children and parents in Cardiff and a chance to part in Brain Games and learn more about mental health. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Free Screening of Disney Pixar's Inside Out at Cardiff University |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Schools |
| Results and Impact | A film screening followed by psychology/neuroscience based games to introduce basic concepts of the brain function |
| Year(s) Of Engagement Activity | 2016 |
| Description | Free Screening: The Machinist - an MRC Festival SciScreen Special |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | A film screening followed by a discussion of themes - the aim was to improve understanding of psychosis and the links between sleep and mental health |
| Year(s) Of Engagement Activity | 2016 |
| Description | Future of publishing discussion |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | Chair of a panel discussing the future of scientific publishing held at the British Neuroscience Association "Festival of Neuroscience" in Birmingham |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.bna.org.uk/bna2017/ |
| Description | GCSE work placement 2015 |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Schools |
| Results and Impact | Work placement for GCSE school students. Two students were supervised on a one week placement in the MRC Centre and were given the opportunity to see genetics, imaging, and psychophysics labs. They engaged with clinicians and researchers, and considered issues such as research in psychiatry, ethics, and stigma. They tweeted and wrote a blog |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://ncmh.info/blog/2015/07/17/our-week-as-mental-health-researchers/ |
| Description | GEHC/CU Symposium |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Type Of Presentation | Keynote/Invited Speaker |
| Geographic Reach | Local |
| Primary Audience | Third sector organisations |
| Results and Impact | Provided a talk entitled "Opportunities in Wales: WG" at the Joint GE Healthcare / Cardiff University Symposium (Theme: Stem Cell technologies) Unknown |
| Year(s) Of Engagement Activity | 2013 |
| Description | GH children services meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Talk on improving mental health outcomes for children in Wales - Welsh Government, children's services meeting not sure |
| Year(s) Of Engagement Activity | 2013 |
| Description | GHtalkBristol |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | Talk on family relationship influences not known |
| Year(s) Of Engagement Activity | 2014 |
| Description | GHtalkYouthJustice |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Youth Justice Board seminar not known |
| Year(s) Of Engagement Activity | 2013 |
| Description | GW4 BioMed Congress 2018 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | GW4 BioMed Congress 2018 - talks, workshops etc. |
| Year(s) Of Engagement Activity | 2018 |
| Description | Gatsby/Wellcome Neuroscience Spring Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | "Epidemiology of psychiatric disorders" talk given at Royal College of Psychiatrists, London |
| Year(s) Of Engagement Activity | 2019 |
| Description | Genetics, Psychiatry and Neuroscience meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | talk given at Sanger Institute, Hinxton, Cambs |
| Year(s) Of Engagement Activity | 2018 |
| Description | Genomic Imprinting an Physiological Functions |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Co-organised a research meeting focused on genomic imprinting and physiological functions |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://genomicimprinting.eu |
| Description | Genomics of Brain conference (Wellcome) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | talk at Genomics of Brain conference (Wellcome) |
| Year(s) Of Engagement Activity | 2018 |
| Description | Girls Make a Difference Conference, Cardiff, 22 September 2014 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Schools |
| Results and Impact | Attended by approx 120 Year 12 girls aspiring to achieve in science and to show the range of different career pathways and opportunities available. |
| Year(s) Of Engagement Activity | 2014 |
| Description | Giving a talk at the Neonatal Update Conference, London 1 December 2014 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Speaking at one of the largest international speciality meetings in neonatal medicine on "Causal mechanisms in Attention Deficit Hyperactivity Disorder" |
| Year(s) Of Engagement Activity | 2014 |
| Description | Giving talk on "ADHD: What next?" at the Royal College of Psychiatrists in Wales Faculty of Child & Adolescent Psychiatry meeting in Wales on 29 April 2016 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk to clinical practitioner members of the Royal College of Psychiatrists in Wales Faculty of Child & Adolescent Psychiatry to discuss research into ADHD |
| Year(s) Of Engagement Activity | 2016 |
| Description | Glamorgan Gazette |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | Zoe shares ADHD story, Prof Thapar comments |
| Year(s) Of Engagement Activity | 2016 |
| Description | Glasgow Lecture |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Talk entitled "Genetics of Schizophrenia" given as the Glasgow Lecture, Glasgow University, 02/06/16 |
| Year(s) Of Engagement Activity | 2016 |
| Description | Global Parkinson's Genetics Program |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Third sector organisations |
| Results and Impact | Steering committee meetings for this international endeavour |
| Year(s) Of Engagement Activity | 2019,2020 |
| Description | Gods and Kings |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Research group stand in the reception of the theatre after performance around personal experiences of bipolar disorder. Member of research group on post-show Q&A panel |
| Year(s) Of Engagement Activity | 2017 |
| Description | Group member interview - BBC Radio Wales |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Member of research group commenting on NCMH involvement in Engage to Change project |
| Year(s) Of Engagement Activity | 2016 |
| Description | Group member interview about research project - WalesOnline |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Member of research group interviewed about a new study. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.walesonline.co.uk/news/health/computer-games-could-answer-slowing-11979222 |
| Description | Guardian |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Prof Ian Jones on postpartum psychosis |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.theguardian.com/healthcare-network/2016/may/17/perinatal-mental-health-depression-psycho... |
| Description | Guardian, Daily Mail, BT.com |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Prof Mike Owen comments on new schizophrenia research from Broad Institute and Harvard |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.theguardian.com/science/2016/jan/27/schizophrenia-breakthrough-as-genetic-study-reveals-... |
| Description | HCRW Conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Presented at HCRW Conference. |
| Year(s) Of Engagement Activity | 2020 |
| Description | HD event |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Huntington's disease patient day |
| Year(s) Of Engagement Activity | 2019 |
| Description | HHP training day |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk at Health for health professionals event "Schizophrenia - recent advances" |
| Year(s) Of Engagement Activity | 2015 |
| Description | Hafal Campaign launch |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Research group stand at third sector campaign launch event |
| Year(s) Of Engagement Activity | 2017 |
| Description | Healio |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Dr Fran Rice comments on her paper about antecedents to adolescent depression |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.healio.com/psychiatry/depression/news/online/%7B20bca360-609e-4352-ae79-9e2e0dcbe431%7D/i... |
| Description | Health Board R&D conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Engage with clinicians interested in research |
| Year(s) Of Engagement Activity | 2008,2017 |
| Description | Health Board R&D conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Engage with clinicians interested in research |
| Year(s) Of Engagement Activity | 2017 |
| Description | Health and Care Research Wales Public Engagement talk 2016 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Institute of Psychological Medicine and Clinical Neurosciences staff at Cardiff University School of Medicine were required to attend a one hour presentation on the importance of engaging with the public in scientific research. The aim was to give staff a greater appreciation of public involvement, and the benefits of this in research. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.healthandcareresearch.gov.wales/involving-the-public-in-your-research |
| Description | Herrenhausen Symposium on Psychiatric Disorders |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Gave talk at the Herrenhausen Symposium on Psychiatric Disorders in Hannover 12/05/16 |
| Year(s) Of Engagement Activity | 2016 |
| Description | Hodge Centre public lecture |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Hosted a public lecture by Professor Ed Bullmore (Cambridge) |
| Year(s) Of Engagement Activity | 2017 |
| Description | Hosted international meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Hosted European Huntington's disease Scientific conference, Bologna, 15-17 September. |
| Year(s) Of Engagement Activity | 2022 |
| Description | Hôpital de la Salpêtrière, Paris, neurofeedback conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | PhD student in receipt of studentship from this award presented on progress in clinical neurofeedback research to French consortium of psychiatrists and neurologists interested in this area of research and clinical development. |
| Year(s) Of Engagement Activity | 2016 |
| Description | IPMCN retreat |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | Annual department retreat to discuss past, present and future plans for the MRC Centre |
| Year(s) Of Engagement Activity | 2015 |
| Description | IPWSO Leadership ECHO |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | The goal of the IPWSO Leadership ECHO programme is to bring together people who are active in existing associations and others who are starting on the journey to establish groups or associations within their country. We believe that strong national PWS bodies can play an important role in collectively working to solve problems and can help to address disparities in services and supports, for the benefit of people with PWS, their families and carers. |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://www.youtube.com/watch?v=ea2B9WFV9Kc |
| Description | IPWSO Mental Health workshop |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Mental Health Workshop just prior to the 11th IPWSO meeting in Galway, Ireland |
| Year(s) Of Engagement Activity | 2022 |
| Description | IPWSO meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | PhD student Simona Zahova attended and present at the IPWSO meeting in Cuba. |
| Year(s) Of Engagement Activity | 2019 |
| Description | ITV - Pint of Science |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Interviewed about Pint of Science festival |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://www.itv.com/news/wales/2017-05-17/pint-of-science-the-science-festival-held-in-pubs-and-cafes... |
| Description | ITV Wales - DRI interview |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Professor Julie Williams from the Dementia Research Institute and Dr Claudia Metzler-Baddeley and Umesh Rudrapatna from CUBRIC were featured on Wales This Week: Memory Matters (ITV Wales) |
| Year(s) Of Engagement Activity | 2018 |
| Description | ITV Wales interview |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Interview with James Crichton-Smith at ITV Wales - ITV Wales are running a piece on early onset Alzheimers. |
| Year(s) Of Engagement Activity | 2015 |
| Description | ITV Wales interview Dec. 2015 |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Interview with James Crichton-Smith at ITV Wales - ITV Wales are running a piece on early onset Alzheimers. |
| Year(s) Of Engagement Activity | 2015 |
| Description | ITV news interview |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | ITV news interview with Julie Williams discussing research and new funding. Increase in requests for information from individuals wishing to take part in research |
| Year(s) Of Engagement Activity | 2014 |
| URL | http://www.itv.com/news/wales/update/2014-04-03/cardiff-university-leads-new-global-alzheimers-resea... |
| Description | Inaugural talk in honour of Professor Sir Michael Rutter |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Invited to give the inaugural talk in honour of Professor Sir Michael Rutter at the Institute of Psychiatry, King's College, London |
| Year(s) Of Engagement Activity | 2018 |
| Description | India Times |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Prof Anita Thapar awarded CBE |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://www.indiatimes.com/news/india/indian-origin-professor-gets-knighthood-for-inventing-the-world... |
| Description | Industry Day |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Industry/Business |
| Results and Impact | Attended by ~20 industry representatives. The day consisted of talks by senior PIs and different companies with stands representing different research themes/groups in the Division. |
| Year(s) Of Engagement Activity | 2018 |
| URL | http://www.cardiff.ac.uk/news/view/1194739-mental-health-industry-day |
| Description | International ADHD Congress - Vitual, one day event |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Anita Thapar - Invited speaker and faculty member: Talk on Genetic liability to ADHD and substance use disorders in individuals with ADHD or identify environmental risk factors more broadly using genetic designs as part of the ADHD Stress and Abnormal Development symposium |
| Year(s) Of Engagement Activity | 2020 |
| Description | International Clinical Trials Day |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Research group stand at Welsh Government main offices to engage with policy makers about clinical trials being conducted in Wales |
| Year(s) Of Engagement Activity | 2017 |
| Description | Interview for British Medical Journal - BMJ Careers Role Model feature |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Telephone interview with journalist from the British Medical Journal . Every four weeks they interview a doctor who has been nominated as a role model by another doctor. The article focuses on a doctor's career to date, their inspirations, motivations and highs and lows. It's meant to inspire others. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Interview for UKDRI news and events |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | Spotlight on Prof Valentina Escott-Price |
| Year(s) Of Engagement Activity | 2020 |
| URL | https://ukdri.ac.uk/news-and-events/spotlight-on-prof-valentina-escott-price |
| Description | Interview on study |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | To engage public in research study |
| Year(s) Of Engagement Activity | 2015 |
| Description | Interview with ITV news |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | Julie Williams was interviewed by ITV news in the HEB labs regarding Alzheimer's disease research |
| Year(s) Of Engagement Activity | 2015 |
| Description | Interviewed by Royal Society for an update of case study for their Parent, Carer, Scientist project |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Royal Society - update of case study for Royal Society's Parent, Carer, Scientist project, |
| Year(s) Of Engagement Activity | 2021 |
| Description | Interviewed for the magasine New Scientist |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | I was interviewed about the rols of ECT in the treatment of severe depression. The article has probably contributed to the better understanding of this treatment. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.newscientist.com/article/mg23130874-400-shock-therapy-to-make-a-comeback-as-evidence-gro... |
| Description | Invited member of Polygenic Risk Scoring Expert Panel |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited member of Polygenic Risk Scoring Expert Panel for Illumina company, Batimore, USA |
| Year(s) Of Engagement Activity | 2019 |
| Description | Invited plenary talk |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Chinese Huntington's network (online), plenary |
| Year(s) Of Engagement Activity | 2022 |
| Description | Invited plenary talk |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Hereditary disease Foundation plenary, Boston |
| Year(s) Of Engagement Activity | 2022 |
| Description | Invited presentation on future of research into rare genomic variants. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation at the Future MINDDS: Recent advances and future directions for research of Neurodevelopmental Disorders (NDD) associated with pathogenic CNV (Copy Number Variants), conference, EU COST action-funded, Cardiff. |
| Year(s) Of Engagement Activity | 2022 |
| Description | Invited seminar at Icahn School of Medicine at Mount Sinai |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited seminar at Icahn School of Medicine at Mount Sinai, NY, USA |
| Year(s) Of Engagement Activity | 2019 |
| Description | Invited speaker at Alzheimer's Research UK conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited speaker at Alzheimer's Research UK conference, Harrogate UK |
| Year(s) Of Engagement Activity | 2019 |
| Description | Invited speaker to FBRI Alzheimer's Disease Workshop |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited speaker to FBRI Alzheimer's Disease Workshop, Boston, USA |
| Year(s) Of Engagement Activity | 2019 |
| Description | Involving People |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Research group stand at Wales' Involving People annual meeting |
| Year(s) Of Engagement Activity | 2017 |
| Description | Irene's ghost |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | Filmed by documentary makers for Irene's ghost. This was a part animated feature documentary about maternal mental illness. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Keynote Lecture ESCAP Conference Copenhagen 2023 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Talk on Genetics: how has it helped conceptualise psychopathology? |
| Year(s) Of Engagement Activity | 2023 |
| Description | Keynote invited speaker, Genetics and epigenetics of mental disorders international conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Keynote invited speaker, Genetics and epigenetics of mental disorders international conference, St Petersburg 2019. |
| Year(s) Of Engagement Activity | 2019 |
| Description | Keynote speaker - Cwm Taf University Health Board Research and Development conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Anita Thapar gave the keynote talk at the Cwm Taf UHB Research and Development Conference in November 2017 on "Attention Deficit Hyperactivity Disorder: what impact does research have?" This conference was attended by medical practitioners and there was a question and answer discussion afterwards. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.healthandcareresearch.gov.wales/g_images/large/2017-09-04-16-42-11-cwm-taf-university-he... |
| Description | Keynote speaker at The University of Reading SIAM-IMA student chapter conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Undergraduate students |
| Results and Impact | Keynote speaker at The University of Reading SIAM-IMA student chapter conference, Reading, UK. |
| Year(s) Of Engagement Activity | 2019 |
| Description | Keynote talk at UK DRI ECR Informatics symposium |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Keynote talk at UK DRI ECR Informatics symposium: Learning from Machine Learning in genetics of brain disorders |
| Year(s) Of Engagement Activity | 2024 |
| Description | LHR14child effects |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | Several hundred people attended the Life History Research Society Meeting. This talk was part of a symposium addressing issues regarding the intergenerational transmission of risk and resilience in offspring of depressed mothers. The talk was well attended and resulted in questions and discussions both at the meeting and subsequently Adapted publication in light of comments |
| Year(s) Of Engagement Activity | 2014 |
| Description | Lab News |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Queen's Anniversary Prize, comment from Prof Mike Owen |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.labnews.co.uk/news/cardiff-university-wins-prestigious-award-18-12-2015/ |
| Description | Leap MS Co-production Day |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | The BRAIN Unit funded the venue hire of Insole Court for the LEAP MS Co-production Day. The day consisted of a mixture of workshops addressing different areas of the study, using patient involvement and input to shape decisions for the project . The BRAIN unit had a stand and interacted with all of the attendees. Contacts were made with MS society groups in Rhonda CT and Merthyr, with researchers potentially interested in developing a BRAIN Games activities and another patient involved in putting on a theatre production for people suffering with MS to take part in. |
| Year(s) Of Engagement Activity | 2018 |
| Description | Learning Disability Today |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Engage to Change project - Prof Ian Jones quoted |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.learningdisabilitytoday.co.uk/new-10-million-project-launched-to-improve-job-prospects-o... |
| Description | Learning Disability Today article |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | Professor Anita Thapar was featured in an article on Learning Disability Today discussing ADHD clinic referrals discussing the symptoms and presentations of ADHD. |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://www.learningdisabilitytoday.co.uk/why-are-clinic-referrals-for-adhd-on-the-rise |
| Description | Learning Disability and Mental Health Training Day |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Genetic overlap of intellectual disability and schizophrenia |
| Year(s) Of Engagement Activity | 2016 |
| Description | Learning Disability and Mental Health Training Day |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Cognitive function and psychiatric disorder in children and adolescents with 22q11.2 Deletion Syndrome (22q11.2DS) |
| Year(s) Of Engagement Activity | 2016 |
| Description | Learning Disability and Mental Health Training Day |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Neuroimaging and the new CUBRIC - opportunities for neurodevelopmental disorders |
| Year(s) Of Engagement Activity | 2016 |
| Description | Lets Talk Bipolar Podcast - Bipolar UK |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Third sector organisations |
| Results and Impact | Professor Ian Jones made guest appearance on new Bipolar UK podcast Let's Bipolar. He talked with the host about his research and Bipolar disorder in general. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Liberal Democrat conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Panel discussion and talk on Mental Health. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Library of Imagined Genes |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Research group re-delivering engagaement activity around genetics and mental health (originally delivered at Greenman Festival in 2016) |
| Year(s) Of Engagement Activity | 2017 |
| Description | Lived experience group to advise new cohort study design |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Meeting with Wolfson Centre Young Persons Advisory Group to discuss plans for application for Welsh arm of the proposed Adolescent Health Study . The group includes young people with lived experience of mental health and neurodevelopmental conditions |
| Year(s) Of Engagement Activity | 2024 |
| Description | Llandough CME lecture |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | Talk entitled "Exploiting developments in schizophrenia genomics" given at Cardiff University Centre for Medical Education, Llandough Hospital |
| Year(s) Of Engagement Activity | 2016 |
| Description | Llandough lecture series |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Postgraduate students |
| Results and Impact | Talk at Llandough hospital - "Psychiatric Genetics: Implications for treatment, prevention and personalised medicine." |
| Year(s) Of Engagement Activity | 2018 |
| Description | Local Branch meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Participants in your research and patient groups |
| Results and Impact | Presentation was well received, and stimulated discussion and a future invitation to present to the group. NA |
| Year(s) Of Engagement Activity | 2015 |
| Description | Local news item on brain donation for dementia research |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Older people in Wales are being urged to think about donating their brains after they die to help scientists researching dementia. This has sparked questions and debates - 80 comments within 24 hours. It will definitely influence people by raising awareness of the disease, the process of donation, benefits of donation/research and also opting in/out law change. We are confident this will increase the number of healthy/diseased donations and positively impact research field. |
| Year(s) Of Engagement Activity | 2018 |
| URL | http://www.bbc.co.uk/news/uk-wales-43084710 |
| Description | Lunchtime Live @ Y Plas |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Undergraduate students |
| Results and Impact | An event for Cardiff University students that aims to raise awareness of mental health issues, the support available, and how students can help with research into better diagnosis and treatment. |
| Year(s) Of Engagement Activity | 2016 |
| Description | MHRUK scholars day |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | MHRUK Scholars day, KCL, London |
| Year(s) Of Engagement Activity | 2019 |
| Description | MND Association local branch public engagement event |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | MND Association visited Cardiff University DRI facilities, had lab tour, overview of MND work, had a Q&A with Cardiff researchers/clinicians. |
| Year(s) Of Engagement Activity | 2024 |
| Description | MQ Funding Priority Setting Meeting on Adolescent Mental Health |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Third sector organisations |
| Results and Impact | Invited priority setting meetings on adolescent mental health. International experts participated in panel discussions in order to identify research priorities for the MQ charity funding program on adolescent mental health. |
| Year(s) Of Engagement Activity | 2016 |
| Description | MQ Mental Health Science Meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | "Psychiatric genetics: implications for prevention and early intervention." talk given at conference |
| Year(s) Of Engagement Activity | 2018 |
| Description | MRC 10 year Showcase |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | An academic afternoon sharing our latest findings and results of the research undertaken over the last 10 years of the centre. Followed by an evening panel event with Mike, James and Anita chaired by the VC and joined by Robin Buckle of MRC. |
| Year(s) Of Engagement Activity | 2019 |
| Description | MRC 10 year Showcase |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | An academic afternoon sharing our latest findings and results of the research undertaken over the last 10 years of the centre. Followed by an evening panel event with Mike, James and Anita chaired by the VC and joined by Robin Buckle of MRC. |
| Year(s) Of Engagement Activity | 2019 |
| Description | MRC 10 year Showcase |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | An academic afternoon sharing our latest findings and results of the research undertaken over the last 10 years of the centre. Followed by an evening panel event with Mike, James and Anita chaired by the VC and joined by Robin Buckle of MRC. |
| Year(s) Of Engagement Activity | 2019 |
| Description | MRC Biannual directors meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Attended MRC Biannual directors meeting |
| Year(s) Of Engagement Activity | 2015 |
| Description | MRC Brain disorders summer school |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk titled 'Putting psychiatric genetics to work using neuroscience to convert statistics into biology.' 83% of delegates rated the summer school as 'very good', with 100% saying they would recommend it to others. |
| Year(s) Of Engagement Activity | 2016 |
| Description | MRC Brain disorders summer school |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk titled 'Diagnosis, dimensions and big data.' 83% of delegates rated the summer school as 'very good', with 100% saying they would reccommend it to others. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.cardiff.ac.uk/mrc-centre-neuropsychiatric-genetics-genomics/study/summer-school |
| Description | MRC Brain disorders summer school |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk titled 'Advances in the treatment of multiple sclerosis.' 83% of delegates rated the summer school as 'very good', with 100% saying they would recommend it to others. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.cardiff.ac.uk/mrc-centre-neuropsychiatric-genetics-genomics/study/summer-school |
| Description | MRC Brain disorders summer school |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk titled 'Epigenetics and the brain.' 83% of delegates rated the summer school as 'very good', with 100% saying they would reccommend it to others. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.cardiff.ac.uk/mrc-centre-neuropsychiatric-genetics-genomics/study/summer-school |
| Description | MRC Brain disorders summer school |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk titled 'Developmental disorders - child and adolescent psychiatry'. 83% of delegates rated the summer school as 'very good', with 100% saying they would recommend it to others. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.cardiff.ac.uk/mrc-centre-neuropsychiatric-genetics-genomics/study/summer-school |
| Description | MRC Brain disorders summer school |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk titled 'Bipolar disorder, postpartum psychosis and the Bipolar Disorder Research Network (BDRN).' 83% of delegates rated the summer school as 'very good', with 100% saying they would recommend it to others. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.cardiff.ac.uk/mrc-centre-neuropsychiatric-genetics-genomics/study/summer-school |
| Description | MRC Brain disorders summer school |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk titled 'Sex differences in normal and abnormal psychology.' 83% of delegates rated the summer school as 'very good', with 100% saying they would recommend it to others. Workshop: Careers in scientific research. 83% of delegates rated the summer school as 'very good', with 100% saying they would recommend it to others. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.cardiff.ac.uk/mrc-centre-neuropsychiatric-genetics-genomics/study/summer-school |
| Description | MRC Brain disorders summer school |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk titled 'The technical challenges of complex genetics.' 83% of delegates rated the summer school as 'very good', with 100% saying they would recommend it to others. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.cardiff.ac.uk/mrc-centre-neuropsychiatric-genetics-genomics/study/summer-school |
| Description | MRC Brain disorders summer school |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Neuroimaging introduction and short facilities tour. 83% of delegates rated the summer school as 'very good', with 100% saying they would recommend it to others. |
| Year(s) Of Engagement Activity | 2014,2015,2016,2017,2018,2019 |
| URL | http://www.cardiff.ac.uk/mrc-centre-neuropsychiatric-genetics-genomics/study/summer-school |
| Description | MRC Brain disorders summer school |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk titled 'Neuroimaging and psychiatric genetics.' 83% of delegates rated the summer school as 'very good', with 100% saying they would reccommend it to others. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.cardiff.ac.uk/mrc-centre-neuropsychiatric-genetics-genomics/study/summer-school |
| Description | MRC Brain disorders summer school |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Phenotypic assessments: tutorial. 83% of delegates rated the summer school as 'very good', with 100% saying they would reccommend it to others. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.cardiff.ac.uk/mrc-centre-neuropsychiatric-genetics-genomics/study/summer-school |
| Description | MRC Brain disorders summer school |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk titled 'Copy number variations (CNVs) in neurodevelopmental disorders.' 83% of delegates rated the summer school as 'very good', with 100% saying they would reccommend it to others. Workshop: Careers in clinical research. 83% of delegates rated the summer school as 'very good', with 100% saying they would reccommend it to others. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.cardiff.ac.uk/mrc-centre-neuropsychiatric-genetics-genomics/study/summer-school |
| Description | MRC Brain disorders summer school |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk titled 'Neurodegeneration: translating genetics into therapies.' 83% of delegates rated the summer school as 'very good', with 100% saying they would recommend it to others. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.cardiff.ac.uk/mrc-centre-neuropsychiatric-genetics-genomics/study/summer-school |
| Description | MRC Brain disorders summer school |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Talk titled 'Why this is the best time for neuroscience in psychiatry'. 83% of delegates rated the summer school as 'very good', with 100% saying they would recommend it to others. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.cardiff.ac.uk/mrc-centre-neuropsychiatric-genetics-genomics/study/summer-school |
| Description | MRC CBU Centre for Attention, Learning and Memory - CALM Workshop (Virtual) Neuroimaging and Genetics within CALM - What have we done? What are we doing now? What can we do next? |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | "Sharing your take on the major live questions within the fields of developmental disorders / imaging / genetics, or the opportunities you see for new discoveries within the CALM cohort, or links to your own current work and opportunities for collaboration." |
| Year(s) Of Engagement Activity | 2020 |
| URL | http://calm.mrc-cbu.cam.ac.uk/ |
| Description | MRC CNGG Summer School |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | 20-30 F1 and F2 clinicians, PhD and undergraduate student attended a summer school I co-organised. The summer school lasted 4 days. In addition to co-organising, I ran workshops and gave a lecture. |
| Year(s) Of Engagement Activity | 2009,2011,2012,2013,2014,2015 |
| URL | http://medicine.cardiff.ac.uk/event/cngg-summer-school/ |
| Description | MRC CNGG/NCMH/CADR stand at the Wales Gene park's Genetics and Genomics Conference |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Representatives from the Alzheimer's Genetics Team manned a stand at the Wales Gene Park's Genetics and Genomics Conference on 22nd June, 2016. A number of individuals were interested in discussing the research environment, and how participants could help with discovery science. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.eventbrite.co.uk/e/genetics-and-genomics-for-the-3rd-generation-tickets-24871582573 |
| Description | MRC Centenary event talk |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Type Of Presentation | Keynote/Invited Speaker |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Presented a talk as part of the MRC Centenary public lecture asked to deliver further talks |
| Year(s) Of Engagement Activity | 2013 |
| URL | http://medicine.cardiff.ac.uk/event/mrc-centenary-event/ |
| Description | MRC Centre Senior staff retreat 2018 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | MRC Centre Senior staff retreat 2018 - talks, workshops, staff integration |
| Year(s) Of Engagement Activity | 2018 |
| Description | MRC Centre Summer School talks |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Undergraduate students |
| Results and Impact | Gave talks at the MRC Centre for Neuropsychiatric Genetics and Genomics Summer School, entitled "Major breakthroughs in schizophrenia genetics provide insights into pathogenesis" |
| Year(s) Of Engagement Activity | 2016 |
| Description | MRC Epigenetics workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Attended MRC Epigenetics workshop in London |
| Year(s) Of Engagement Activity | 2015 |
| Description | MRC Festival 2017 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Talk and panel discussion with Jonny Benjamin and Neil Laybourn about psychosis and schizophrenia |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.cardiff.ac.uk/news/view/804231-mrc-festival-voices-of-hope-and-progress |
| Description | MRC Insight - blog |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Blog on the need for a united approach to psychiatric research |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://www.insight.mrc.ac.uk/2017/03/13/mental-health-united-stand-divided-fall/ |
| Description | MRC Millennium Medal award ceremony |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Ceremony at House of Parliament in London. Jeremy took some materials showcases research from across the Division. |
| Year(s) Of Engagement Activity | 2011,2018 |
| Description | MRC NMGN Industry day |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Presented at and participated in the MRC National Mouse Genetics Network Industry Day at the Royal Society of Medicine, London. |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://nmgn.mrc.ukri.org/news/launching-our-business-engagement-fund-whilst-talking-to-industry/ |
| Description | MRC NMGN science meeting: Setd1a mutant mice reveal novel physiological and molecular pathways underpinning schizophrenia |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Gave a talk entitled "Setd1a mutant mice reveal novel physiological and molecular pathways underpinning schizophrenia" at the MRC NMGN science day in York |
| Year(s) Of Engagement Activity | 2024 |
| Description | MRC NMHB board meetings |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Contributed to MRC Neuroscience and Mental Health Board meeting |
| Year(s) Of Engagement Activity | 2015 |
| Description | MRC NMHB strategy workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Attended MRC NMHB strategy workshop |
| Year(s) Of Engagement Activity | 2015 |
| Description | MRC Science Fair |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | The Fair was held at the DEPOT Cardiff and was part of the UK-wide MRC Festival of Research. Approx 85 people attended. |
| Year(s) Of Engagement Activity | 2018 |
| URL | http://www.cardiff.ac.uk/news/view/1222479-all-the-fun-of-the-fair-at-cardiffs-mrc-festival |
| Description | MRC Science Fair |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | The Fair was held at the DEPOT Cardiff and was part of the UK-wide MRC Festival of Research. Approx 85 people attended. http://www.cardiff.ac.uk/news/view/1222479-all-the-fun-of-the-fair-at-cardiffs-mrc-festival |
| Year(s) Of Engagement Activity | 2013,2018 |
| Description | MRC Summer School |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Mainly held in the Hadyn Ellis Building, 38 attendees spent three days attending talks, workshops and lab tours covering all the research taking place at MRC Cardiff. Several people agreed to write up their experiences which will be shared on the website and in future advertising for the programme. |
| Year(s) Of Engagement Activity | 2018 |
| Description | MRC festival 2019 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Schools |
| Results and Impact | Provided activities, lab tours and discussion sessions for 39 year 10 pupils from St Joseph's RC High School (Newport). |
| Year(s) Of Engagement Activity | 2019 |
| Description | MRC neurodevelopmental network |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Attended MRC neurodevelopmental network |
| Year(s) Of Engagement Activity | 2015 |
| Description | MRC senior staff retreat |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | MRC senior staff retreat, including talks, discussions and staff integration |
| Year(s) Of Engagement Activity | 2018 |
| Description | MRC talk |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Gave talk and met with colleagues at the MRC Centre for Developmental Neurobiology in London |
| Year(s) Of Engagement Activity | 2015 |
| Description | Mail Online |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Prof Ian Jones comments on increased risk of mental health problems following cryptic pregnancies |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.dailymail.co.uk/health/article-3558353/How-Klara-gave-birth-without-realising-pregnant-s-... |
| Description | Malta Talk |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Research presentation |
| Year(s) Of Engagement Activity | 2017 |
| Description | Malta talk |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk on research |
| Year(s) Of Engagement Activity | 2015 |
| Description | Media Interviews about Schizophrenia Genetics paper |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | Multiple on-line and hard copy press reports of our paper (Pardinas et al, Nature Genetics, 2018). I conducted a radio interview and several web-based interviews for broadcasters, media firms |
| Year(s) Of Engagement Activity | 2018 |
| Description | Media comment - Ian Jones/postpartum psychosis |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Dr Ian Jones, a perinatal psychiatrist from Cardiff University, comments in article about postpartum psychosis and the number of mums who suffer from it (Babyexpert.com - Aug 15, 2018). |
| Year(s) Of Engagement Activity | 2018 |
| URL | http://www.madeformums.com/news-and-gossip/psychosis-after-birth--just-how-many-mums-suffer-from-it/... |
| Description | Meet the Wolfson Centre webinar |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Third sector organisations |
| Results and Impact | Over 100 people joined online for the webinar which aimed to introduce the Wolfson Centre to the world. It featured interactive sessions which were well received and lots of positive feedback from the attendees during and after the event. The WG Deputy Minister for Mental Health also joined for the duration of the event. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Member of executive committee European Huntington's disease Network |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Study participants or study members |
| Results and Impact | Executive committee acts to promote the European Huntington's disease Network. Runs conferences, working groups, gives funding, decides scientific and clinical strategy, promotes and endorses clinical trials in HD. |
| Year(s) Of Engagement Activity | 2015,2016,2017 |
| URL | http://www.ehdn.org/ |
| Description | Men's Mental Health Day |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Aimed at engaging young men about mental health. |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://ncmh.info/man-thing/ |
| Description | Mental Health Blog |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | Meet the Researcher blog |
| Year(s) Of Engagement Activity | 2019 |
| Description | Mental Health Data Science Meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation made at the Mental health data science meeting in Edinburgh. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Mental Health Research Showcase 2016 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | A talk on first episode psychosis and research within this area |
| Year(s) Of Engagement Activity | 2016 |
| Description | Mental Health Research Showcase 2016 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Part of an expert panel answering audience questions on the latest developments in psychiatric research |
| Year(s) Of Engagement Activity | 2016 |
| Description | Mental Health Science: a field fit for purpose? |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Mental Health Science: a field fit for purpose? Wellcome, London |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://cdn.eventsforce.net/files/ef-lpifs4q56r2a/website/903/booklet_final_2_-_mental_health_scienc... |
| Description | Mental Health Today |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Research group stand at Mental Health Today 2017 conference |
| Year(s) Of Engagement Activity | 2017 |
| Description | Mental Health Today magazine |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Prof Ian Jones quoted on perinatal mental health |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.mentalhealthtoday.co.uk/perinatal-mental-health-issues-more-than-just-baby-blues.aspx |
| Description | Mental health outcomes in UK Biobank |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Attended workshop on Mental health outcomes in UK Biobank |
| Year(s) Of Engagement Activity | 2015 |
| Description | Mental health outcomes in UK Biobank |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Attended Mental Health Outcomes in UK Biobank: One-Day Workshop |
| Year(s) Of Engagement Activity | 2015 |
| Description | Mental health resilience (School Ysgol Plasmawr) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Schools |
| Results and Impact | Invited talk for school Inset day to train teachers in relation to youth mental health resilience |
| Year(s) Of Engagement Activity | 2018 |
| Description | Missing People conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Research group stand aiming to build relationships with third sector and public health organisations |
| Year(s) Of Engagement Activity | 2017 |
| Description | Movember launch party |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | Movember launch party (Cardiff) - Collaboration with Movember UK. Event targeted at engaging young men and raising awareness of mental health problems. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Mums, babies, and bumps coffee morning |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | A morning of tea, coffee, cakes and chat where you can learn more about staying well during and after your pregnancy. |
| Year(s) Of Engagement Activity | 2016 |
| Description | My Science |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Prof Jeremy Hall quoted on new Hodge Centre launch |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.myscience.org/wire/the_hodge_centre_for_neuropsychiatric_immunology-2016-cardiff |
| Description | NCCR conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Gave talk entitled "Genes, synapses and schizophrenia" at the 2nd Conference on the Neurobiology of Mental Health (National Centre of Competence in Research). |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.nccr-synapsy.ch/conference |
| Description | NCMH Insider - July 2018 |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Study participants or study members |
| Results and Impact | NCMH cohort newsletter/magazine updating study participants on the latest projects/activities/findings. |
| Year(s) Of Engagement Activity | 2018 |
| URL | http://www.ncmh.info/wp-content/uploads/2018/06/NCMH-Insider-June-2018.pdf |
| Description | NCMH Newsletter |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Digital newsletter updating all current research participants |
| Year(s) Of Engagement Activity | 2017 |
| Description | NCMH Piece of Mind Podcast on ADHD |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Pod cast discussion with Anita Thapar and Zoe Piper of ADHD Connections Bridgend about ADHD, their relative experience as a researcher working on ADHD and as someone who has direct experience of ADHD. They talk about the science behind psychiatry, as well as somebody with lived experience of a mental health problem to bring a real-life perspective. By combining people's personal experiences of mental health with an overview of the latest research in the field, Piece of Mind aims to help tackle stigma and encourage more people to get involved in research. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.cardiff.ac.uk/mrc-centre-neuropsychiatric-genetics-genomics/get-involved/public-engageme... |
| Description | NCMH Renewal |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Supporters |
| Results and Impact | Event to celebrate renewal of NCMH funding and review achievements to date. Audience was academics, third sector, NHS and government. |
| Year(s) Of Engagement Activity | 2015 |
| Description | NCMH Taster Day |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Undergraduate students |
| Results and Impact | An event for students to learn more about NCMH and career options open to psychology graduates with an interest in mental health. 71% of attendees were extremely satisfied with the event and 88% would recommend it to others. |
| Year(s) Of Engagement Activity | 2016 |
| Description | NCMH documentary - BBC Radio Wales |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | 30 minute NCMH documentary |
| Year(s) Of Engagement Activity | 2016 |
| Description | NCMH webinar: ten years of mental health research |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | 60 people attended a webinar to mark ten years of research at NCMH. The session featured updates from the teams within the centre, a video message from Research Champion Laura, and an update on involvement from lead Sarah Rees and PAR lead Alan Meudell. |
| Year(s) Of Engagement Activity | 2021 |
| Description | NICE guideline development group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | The GDG Considered the evidence on the guidance topic and develop recommendations for policy and practice- influenced policy and practice. |
| Year(s) Of Engagement Activity | 2014 |
| URL | http://www.nice.org.uk/ |
| Description | NMHRI scouts night |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | Hosted a visit of scouts group, offering variety of interactive activities to introduce basic ideas of neuroscience and psychology |
| Year(s) Of Engagement Activity | 2017 |
| Description | National Safeguarding Week |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited presentation about promoting mental health resilience in at-risk young people today followed by debate. Around 40 social care and educational practitioners attended this session as part of National Safeguarding Week |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.cardiffandvalelscb.co.uk/wp-content/uploads/Final-Programme-of-Events.pdf |
| Description | National Youth Work Conference- CWYVS |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Council for Wales of Voluntary Youth Services offered a wide range of workshop sessions on issues affecting the youth work sector. Prof Rice presented a talk relating to the Wolfson Centre's work and aims. |
| Year(s) Of Engagement Activity | 2021 |
| Description | National maternity review |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Gave Evidence to National maternity review. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Natural History Study SHIELD HD EHDN Virtual Plenary Session September 11th 2020 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | plenary talk in collaboration with Triplet Therapeutics |
| Year(s) Of Engagement Activity | 2020 |
| URL | http://www.ehdn.org/events/ehdn2020-plenary-meeting-2/ |
| Description | Neuroscience and Mental Health Research Showcase |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | • Two 10-minute presentations about our academic research (aimed at a lay audience). These should be given by leading academics around the agreed theme. • An interactive audience Q&A session with the presenters and our external guest panellist, who we would like ideally to come from MQ. The Q&A will be chaired by the VC. • Following the event there will be a small private dinner hosted by the VC for senior alumni and key prospects of the University where they will be able to continue their conversation with the expert academics and guest panellist in a more informal and intimate setting. |
| Year(s) Of Engagement Activity | 2018 |
| Description | Neuroscience careers workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Participated in a "Speed-dating"-style Q&A focused on careers in neuroscience at the British Neuroscience Association Festival of Neuroscience 2017 |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.bna.org.uk/bna2017/ |
| Description | New Alzheimer's risk genes discovered in record study |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | A press release was issued highlighting the discovery of 11 new susceptibility genes for AD by the IGAP consortium. Details of these findings were published by all of the main UK news organisations. |
| Year(s) Of Engagement Activity | 2013 |
| URL | http://www.cardiff.ac.uk/news/articles/new-alzheimers-risk-genes-discovered-in-record-study-11975.ht... |
| Description | New MS Patient Day |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Providing information on research and disease management to patients and their carers newly diagnosed with MS. |
| Year(s) Of Engagement Activity | Pre-2006,2006,2007,2008,2009,2010,2011,2012,2013,2014,2015,2016 |
| Description | New Scientist - comment |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | "Jeremy Hall comments on study suggesting creative people are more likely to experience schizophrenia (New Scientist). |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://www.newscientist.com/article/2168161-creative-people-are-90-per-cent-more-likely-to-get-schi... |
| Description | New challenges in the Biomedical Sciences symposium |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Attended the 'New challenges in the Biomedical Sciences' symposium |
| Year(s) Of Engagement Activity | 2015 |
| Description | Observer article |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Observer article on Schizophrenia |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://www.theguardian.com/society/2019/nov/16/gene-mutations-key-to-treating-schizophrenia |
| Description | Occupational health vocational day. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk at occupational health vocational day to 90 health physicians. To create a better understanding of mental health. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Oldcastle Primary School visit |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Schools |
| Results and Impact | Centre hosted a visit of three primary school classes, offering a variety of interactive activities to introduce basic ideas of genetics and neuroscience |
| Year(s) Of Engagement Activity | 2017 |
| Description | Organiser of ESRC Festival of Social Science. 'How can science improve mental health' |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Schools |
| Results and Impact | A level students from two secondary schools attended an event in which they were able to engage with researchers in psychology, mental health and neuroscience with interactive displays showcasing mental health research. Students were given guided tours of the genetics labs and the Cardiff University Brain Research Imaging Centre. The second part of the visit involved a debate about youth mental health with an expert panel comprising researchers and clinicians. Feedback from students and their teachers was very positive, and students reported better understanding about mental health, both schools agreed to strengthen links with our department, and one of the schools has already helped by participating in research since the event. Other plans are to have a youth advisory group to guide future research studies. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Organising a session at the EHDN plenary meeting 2016 (The Hague) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Organised and chaired a plenary session at a meeting attended by Huntington's disease subjects and their families, professionals working with patients and scientists. Ensured it was accessible to all audiences. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Oxford Uni talk |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Undergraduate students |
| Results and Impact | Gave a talk at Oxford Uni entitled "Genomics and the nature of schizophrenia" |
| Year(s) Of Engagement Activity | 2015 |
| Description | Parents advisory group |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Parent advisory group to inform design and implementation of Mental Health Genes and Environment Study (MAGES) |
| Year(s) Of Engagement Activity | 2019 |
| Description | Parkinson's disease event |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | BRAIN Involve will feature a stand alongside PD researchers and post-doctorates |
| Year(s) Of Engagement Activity | 2018 |
| Description | Parkinson's research public engagement event Cardiff University |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Talk stimulated discussion during the event and afterwards. The event stimulated two follow-up invitations to talk at local Parkinson branch meetings. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Perinatal mental health - better outcomes for mum and baby |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Panel discussion chaired by Eluned Parrot, other panelist was Francesca Fearn |
| Year(s) Of Engagement Activity | 2016 |
| Description | Perinatal report launch |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | "Joint-event with NSPCC, Mind Cymru, Mental Health Foundation and Maternal Mental Health Alliance to launch our report into perinatal mental health care in Wales. Opening address from Lynn Neagle AM with talks from Sarah Witcombe-Hayes (NSPCC), Emily Slater (MMHA) and Sally Wilson (APP expert by experience), as well as a panel discussion featuring Ian Jones. Approx. 80 people attended, NCMH stand had conversations with a number of perinatal mental health professionals and also met a documentary maker interested in producing a documentary of lack of mother and baby unit in Wales - introduced to Ian Jones, Sue Smith (Cardiff and Vale perinatal psychiatrist) and Jess Heron (Director of APP) about getting involved." |
| Year(s) Of Engagement Activity | 2018 |
| Description | Piece of Mind podcast - 22q |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Full-length episode on 22q for 22Q awareness month - tied in with BBC feature. |
| Year(s) Of Engagement Activity | 2018 |
| Description | Piece of Mind podcast: Getting young people involved in mental health research |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Becs Parker sat down with Pro Frances Rice and Catrin to discuss SWELL, a new research study from the Wolfson Centre for Young People's Mental Health for young people who have a parent with a history of depression. Catrin emphasised the value of being involved in advisory groups. |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://shows.acast.com/piece-of-mind/episodes/episode-10-involving-young-people-in-mental-health-re... |
| Description | Piece on our published work |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Piece about our research in the newsletter of a national charity for families with a child with a brain condition. |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://cerebra.org.uk/?mailpoet_router&endpoint=view_in_browser&action=view&data=WzE0OSwiNDYzMWU1MT... |
| Description | Pint of Science |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Delivered talk: Big mutations in humans and survival of the fittest |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://pintofscience.co.uk/event/sex-drugs-and-big-mutations |
| Description | Pint of Science |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Delivered talk: The neurology of epilepsy |
| Year(s) Of Engagement Activity | Pre-2006,2017 |
| URL | https://pintofscience.co.uk/event/curious-connections |
| Description | Pint of Science |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Delivered talk: Does sex matter?....(in depression and other mood disorders) |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://pintofscience.co.uk/event/sex-drugs-and-big-mutations |
| Description | Pint of Science - Tiny Rebel (Cardiff) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | Annual national festival taking science communication to pubs with interactive games and talks |
| Year(s) Of Engagement Activity | 2018 |
| Description | Plenary talk at the 11th International Prader-Willi Syndrome Organisation meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited plenary talk at a major clinical and scientific research conference. |
| Year(s) Of Engagement Activity | 2022 |
| Description | Plenary talk at virtual NECTAR meeting Dec 2020 - Cell therapy for Huntington's Disease: whjat are the next steps |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation to NECTAR (European Network for CNS transplantation and repair) community. |
| Year(s) Of Engagement Activity | 2020 |
| Description | Podcast - Autism |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Podcast discussing autism. Jeremy joined by Kat Williams, who was diagnosed as autistic in her thirties. |
| Year(s) Of Engagement Activity | 2019 |
| URL | http://www.ncmh.info/videos-and-podcasts/podcast/autism/ |
| Description | Podcast and reps release of our genetic finding specific to those of African ancestry taking clozapine |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | publicising the publication of what we think is an important paper (Legge et al, Molecular Psychiatry, 2019) with potentially important clinical implications |
| Year(s) Of Engagement Activity | 2019 |
| Description | Podcast for The Bridge - ACAMH |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Interviewed for a podcast for the Bridge - ACAMH - on the topic of - 'ADHD, autism, and the elevated risk of depression' |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://www.acamh.org/blog/anita-thapar-adhd-autism_depression/ |
| Description | Podcast for Association for Child and Adolescent Mental Health |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Podcast regarding research to for the ACAMH |
| Year(s) Of Engagement Activity | 2020 |
| Description | Podcast with science quickly |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | 'Science quickly' podcast about the role of independent play in child mental health trends - interviewed alongside other international experts |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://www.scientificamerican.com/podcast/episode/is-too-little-play-hurting-our-kids/ |
| Description | Podcast: HD Buzz |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Podcast interview about HD research |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://en.hdbuzz.net/system/originals/episode/audio/8/HDBuzzCast.mp3 |
| Description | Podcast: Lancet Neurology |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Discussion of latest HD research |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://www.thelancet.com/pb-assets/Lancet/stories/audio/laneur/2017/laneur_080817_huntingtons.mp3 |
| Description | Podcast: Piece of Mind |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Interviewed for podcast on ADHD, along with a patient and past research participant |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://soundcloud.com/pieceofmindpodcast/adhd |
| Description | Podcast: Piece of Mind |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Interviewed for podcast on perinatal mental health, along with a patient and past research participant |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://soundcloud.com/pieceofmindpodcast/postnatal-depression |
| Description | Polish Science Towards EMBL |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Polish Science Towards EMBL Conference to be held on June 19-20, 2018 at the Nencki Institute in Warsaw, Poland. |
| Year(s) Of Engagement Activity | 2018 |
| Description | Poster at AAIC Conference July 2017 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Emily Baker, PhD Student (Supervisor - Prof Valentina Escott-Price) Poster at AAIC Conference - July 2017 |
| Year(s) Of Engagement Activity | 2017 |
| Description | Poster at ASHG Conference - October 2017 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Emily Baker, PhD Student (Supervisor - Prof Valentina Escott-Price) Poster at ASHG Conference - October 2017 |
| Year(s) Of Engagement Activity | 2017 |
| Description | Poster presentation x 2 at the World Congress of Psychiatric Genetics - Lucy Riglin |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Poster - Identifying novel types of irritability using a developmental genetic approach. Poster - The genetic epidemiology of ADHD and Autism Spectrum Disorder traits in the general population: what happens in adult life? |
| Year(s) Of Engagement Activity | 2019 |
| Description | Poster: The role of the placenta in PWS: mapping the expression of PWS genes |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Poster presentation at the Wellcome connecting science conference on "Genomic Imprinting - from Biology to Disease" |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://coursesandconferences.wellcomeconnectingscience.org/event/genomic-imprinting-from-biology-to... |
| Description | Pratchett play for Alzheimer's |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | A researcher at Cardiff University's National Centre for Mental Health has produced a play adapted from a Terry Pratchett novel in a bid to raise money for Alzheimer's Research UK. Unknown |
| Year(s) Of Engagement Activity | 2013 |
| URL | http://www.cardiff.ac.uk/news/articles/pratchett-play-for-alzheimers-11246.html |
| Description | Presentation about neurodevelopmental conditions in young people with rare genetic deletions or duplications |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation given at the NEURODEV conference. Neurodevelopmental disorders: from molecular mechanisms to social inclusion. 7th Bordeaux Neurocampus Conference, Bordeaux University, Bordeaux, France. |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://brainconf.u-bordeaux.fr/en/Former-conferences/NeuroDev-May-2022/r1228.html |
| Description | Presentation at BAP |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Research presentation |
| Year(s) Of Engagement Activity | 2016 |
| Description | Presentation at King's College London Away Day |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Delivered a talk as part of Social, Genetic & Developmental Psychiatry Centre, Institute of Psychiatry, Psychology and Neuroscience, King's College London during an away day. Dr Cathryn Lewis Professor of Statistical Genetics at Kings College shared the details on social media and listed this talk as a highlight of the afternoon. Increased awareness of Wolfson Centre's work as a result. |
| Year(s) Of Engagement Activity | 2022 |
| Description | Presentation at MRC Science Showcase in Parliament |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presented in the area of mental health research at MRC Science Showcase at parliament. Engaged with parliamentarians including head of parliamentary science committee MP Norman Lamb. |
| Year(s) Of Engagement Activity | 2018 |
| Description | Presentation by Megan Wadon for the Neonatal Education meeting at University Hospital Wales |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | The presentation was on the current knowledge of the genetics of preterm birth and the SPRING project. |
| Year(s) Of Engagement Activity | 2018 |
| Description | Presentation to Bristol Cleft Collective |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation about our research findings of the phenotypic features associated with having a rare chromosomal deletion or duplication (as Copy Number Variant). |
| Year(s) Of Engagement Activity | 2023 |
| Description | Presentation to the general public on the DRI program at the DRI launch in Cardiff |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | I have presented on my DRI program "Bioinformatics and Functional genomics" to patients, their families, journalists and other invited guests from the general public at the DRI launch in Cardiff, October 2018. |
| Year(s) Of Engagement Activity | 2018 |
| Description | Preterm birth and ADHD |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADHD Foundation is a national organisation At their annual meeting where pupils, school staff, NHS practitioners and those affected are invited I presented research on preterm birth |
| Year(s) Of Engagement Activity | 2019 |
| Description | Prof Michael O'Donovan quoted in Nature |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Professor Michael O'Donovan from Cardiff University is quoted in article about an enormous genomic analysis that has yielded tantalizing insights into mechanisms behind conditions such as schizophrenia and bipolar disorder (Nature - Nature.com - Dec 13, 2018) |
| Year(s) Of Engagement Activity | 2018 |
| Description | Profile piece for Lancet Psychiatry |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | A profile of Anita Thapar and her work and research |
| Year(s) Of Engagement Activity | 2020 |
| Description | Programme committee chair for European Huntington's disease Network Plenary Meeting. Organised the scientific and lay content of the meeting including several sessions aimed at HD patients and their families. |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The meeting is a biennial forum for disseminating the latest research in HD with a varied programme. It is aimed at both lay and professional audiences with clinical and non-clinical sessions. We had a debate on genetic testing for HD and the rights and responsibilities of families and professionals in imparting or withholding information which sparked much discussion and was well received. Other sessions included scientific highlights, clinical sessions on specific aspects of HD and sessions for family members to meet clinicians in an informal atmosphere. It included active participation of young at risk family members. Presentation of the latest therapeutic advances took place in the final session and managed to tread a fine line between optimism and caution. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://www.euro-hd.net/html/ehdn2018/announcement |
| Description | Psychiatry Consortium targets workshop |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Industry/Business |
| Results and Impact | Psychiatry Consortium organised a workshop to discuss possible therapeutic targets for neuropsychiatric disorders - Setd1a was one of the targets and I was invited because of my expertise in this area and in preclinical models more generally |
| Year(s) Of Engagement Activity | 2022 |
| Description | Psychology Today article |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Good Genes for Mental Health, Psychology Today |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://www.psychologytoday.com/za/blog/survive-anything/201911/good-genes-mental-health |
| Description | Public engagement event for patients and carers |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Event for patients with Huntington's disease and carers on the topic of activity as a therapy. Format: plenary talk by national patient advocate, international speaker on activity in HD, and then stands and posters to represent other areas of work going on in Cardiff including work of FoxP1 |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://sites.cardiff.ac.uk/events/view/healthy-living-with-hd-2/ |
| Description | PÂR North Wales launch |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | The launch of the rebranded PÂR group - presentations and feddback sessions. |
| Year(s) Of Engagement Activity | 2018 |
| Description | PÂR launch south Wales |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | The launch of the rebranded PÂR group - presentations and feedback sessions. |
| Year(s) Of Engagement Activity | 2018 |
| Description | Queen's anniversary prize announcement |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | Attended reception for Queen's anniversary prize announcement |
| Year(s) Of Engagement Activity | 2015 |
| Description | RBJ - MHTW |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk on development of psycheducation package none as yet |
| Year(s) Of Engagement Activity | 2014 |
| Description | RBJ BAPSCAN |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussion of how professionals can best help young people with depression not known |
| Year(s) Of Engagement Activity | 2014 |
| Description | RCGP Mental Health |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Research group stand at Royal College of General Practitioners mental health event |
| Year(s) Of Engagement Activity | 2017 |
| Description | RCP Higher Trainees |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | Yes |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation of resilience research findings to Child Adolescent Psychiatry trainees Great interest from conference attendees and reported that relevant to clinical practice |
| Year(s) Of Engagement Activity | 2014 |
| Description | RCPannualtrends |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | Yes |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Symposium on trends in child mental heath, autism, and prenatal risk factors. Stimulated much discussion in this important annual meeting of UK Child and Adolescent Psychiatrists. none as yet |
| Year(s) Of Engagement Activity | 2014 |
| Description | RCPsych Conf |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | Delivered a talk entitled Current Research and Reflections on Child Psychiatry at the RCPsych Conference Unknown |
| Year(s) Of Engagement Activity | 2014 |
| Description | RCPsych Faculty of Neuropsychiatry Annual Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | RCPsych Faculty of Neuropsychiatry Annual Conference talk - "Neuropsychiatric Genetics of Psychosis and Major Affective Disorders: Implications for treatment, prevention and personalised psychiatry" |
| Year(s) Of Engagement Activity | 2019 |
| Description | RCPsych Wales newsletter |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Piece about NCMH in the RCPsych Wales newsletter highlight the study milestone and promoting further participations. |
| Year(s) Of Engagement Activity | 2018 |
| URL | http://www.rcpsych.ac.uk/workinpsychiatry/divisions/rcpsychinwales/news/enewsletterspring2018.aspx |
| Description | RCPsych in Wales talk |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Talk given at the RCPsych in Wales & The Welsh Psychiatric Society Joint Winter meeting entitled "The Nature of Schizophrenia" |
| Year(s) Of Engagement Activity | 2015 |
| Description | RCPsych international congress |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Attended RCPsych international congress |
| Year(s) Of Engagement Activity | 2015 |
| Description | RCPsych international congress |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Met with fellow researchers and peers at RCPsych International Congress in Birmingham |
| Year(s) Of Engagement Activity | 2015 |
| Description | Radio Cymru Discussion on Alzheimer's disease. Participant = Alun Meggy, AD Team |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Mr Alun Meggy took part in a Welsh discussion group broadcast live on Radio Cymru on 17th February 2017. Alun spoke in Welsh regarding Alzhiemer's disease research, and how we are working hard to develop our knowledge of this debilitating disease. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Recording for ACAMH for CAMHS trainees |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Anita Thapar recording a talk for ACAMH as part of a new project hosted by ACAMH for trainees working in CAMHS. |
| Year(s) Of Engagement Activity | 2020 |
| Description | Rehabilitation conference talk |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | Talk given at Rehabilitation Conference at the Royal College of Psychiatrists 17/11/16 |
| Year(s) Of Engagement Activity | 2016 |
| Description | Research Features article |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Article on "Identifying the impact of neuropsychiatric genetic risk scores in childhood - an insight" |
| Year(s) Of Engagement Activity | 2017 |
| Description | Research Issue (Hafal) |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Interview with Prof Ian Jones |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.hafal.org/wp-content/uploads/2015/05/Summer-15-1.pdf |
| Description | Research Issue (Hafal) |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Interview with Prof Jeremy Hall |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.hafal.org/wp-content/uploads/2015/05/Summer-15-1.pdf |
| Description | Research group stand at British Science Festival |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Research group stand engaging public about neuroscience research at Cardiff University |
| Year(s) Of Engagement Activity | 2017 |
| Description | Research group stand at Denbigh and Flint Show |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Encourage people to volunteer as a research participant |
| Year(s) Of Engagement Activity | 2017 |
| Description | Research group stand at Maindee Festival (Newport) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Encourage people to volunteer as a research participant |
| Year(s) Of Engagement Activity | 2017 |
| Description | Research group stand at North Wales Armed Forces Day |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Encourage people to volunteer as a research participant |
| Year(s) Of Engagement Activity | 2017 |
| Description | Research group stand at Party in the Park (Pontypool) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Encourage people to volunteer as a research participant |
| Year(s) Of Engagement Activity | 2017 |
| Description | Research group stand at Royal Welsh Show |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Encourage people to volunteer as a research participant |
| Year(s) Of Engagement Activity | 2017 |
| Description | Research group stand at Vale of Glamorgan Show |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Encourage people to volunteer as a research participant |
| Year(s) Of Engagement Activity | 2017 |
| Description | Research group stand at Wales Air Show |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Encourage people to volunteer as a research participant |
| Year(s) Of Engagement Activity | 2017 |
| Description | Research group stand at third sector event |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Research group stand at third sector event aimed at encouraging service users to try new physical activities |
| Year(s) Of Engagement Activity | 2017 |
| Description | Research group stand at third sector event (MOTIV8) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Research group stand at third sector event aimed at engaging with BAME communities around mental health |
| Year(s) Of Engagement Activity | 2017 |
| Description | Research group stand at third sector event (SNUG) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Research group stand at third sector event aimed at mental health service users in Swansea |
| Year(s) Of Engagement Activity | 2017 |
| Description | Resilience info sheet |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Information on resilience study sent to policy makers, intervention experts and third sector (e.g. Chief Scientific Officer, Wales; YoungMinds; NICE) |
| Year(s) Of Engagement Activity | 2016 |
| Description | Response to bullying letter in The Guardian. |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Response to bullying letter in The Guardian. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://www.theguardian.com/society/2018/sep/02/progress-still-too-slow-in-dealing-with-bullying-in-... |
| Description | Reuters, GMA Network |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Dr Stephan Collishaw commenting on his research about resilience factors protecting adolescents with depressed parents |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://uk.reuters.com/article/us-health-adolescents-depression-teens-idUKKBN0TZ2L220151216 |
| Description | Roche symposium |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Gave a presentaiton on Advances in Schizophrenia at the Roche Symposium in Basel |
| Year(s) Of Engagement Activity | 2015 |
| Description | Royal Philosophical Society of Glasgow |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Royal Philosophical Society of Glasgow talk - "Genes and mental illness: what are their properties and how might discovery enhance future care" |
| Year(s) Of Engagement Activity | 2019 |
| Description | Rudd Centre, Sussex |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | Delivered a talk entitled Genes, Environment and Interplay at the Rudd Centre, Sussex Unknown |
| Year(s) Of Engagement Activity | 2014 |
| Description | Rugby legend's research donation |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | A Wales and British Lions rugby legend will help boost the University's world-leading Alzheimer's research by chipping-in with a charity donation. Charitable donation received |
| Year(s) Of Engagement Activity | 2013 |
| URL | http://www.cardiff.ac.uk/news/articles/rugby-legends-research-donation-9461.html |
| Description | S4C 'Newyddion' |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | Prof Ian Jones interviewed about perinatal mental health |
| Year(s) Of Engagement Activity | 2016 |
| Description | SIRS conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Genomics and Psychiatric Diagnosis talk given at 6th Biennial Schizophrenia International Research Society Conference |
| Year(s) Of Engagement Activity | 2018 |
| Description | SPARK 1 Year anniversary community engagement event |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Industry/Business |
| Results and Impact | To celebrate Spark's 1 year anniversary, there was a community engagement event being held in the building. Attendees included over 25 SPARK member organisations & Innovations tenant companies, spanning the public, private and third sectors, 13 SPARK research centres, local community member representatives, Professional services staff specialising in research & innovation and wider university colleagues. The aim of the event was to network and promote collaboration across the different organizations. |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://twitter.com/wolfsoncentre/status/1651235007917174787 |
| Description | Sackler 2017 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Hosted a public lecture by Professor Mike Merzinech (University of California) |
| Year(s) Of Engagement Activity | 2017 |
| Description | Sackler 2017 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Hosted a public lecture by Professor Mike Merzinech (University of California) |
| Year(s) Of Engagement Activity | 2017 |
| Description | Schizophrenia International Research Society Biennial meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Gave a presentation at the SIRS biennial meeting in Florence which resulted in research related questions and debate. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Schizophrenia Studey |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Led by MRC Centre scientists, the largest-ever genetic study of schizophrenia by the Psychiatric Genomics Consortium's findings were published by 170 news sites around the UK, including The Herald, Mail Online, MSN UK, London Evening Standard, and the Independent; Ireland (Irish Sun); the US (Washington Post and Boston Globe); Germany (Deutsche Welle), and broadcast on Nation Cymru and regional Welsh radio. News of the study has reached the general public across the UK, Europe and the USA, raising awareness of the developments in schizophrenia. The NCMH study will also have reached potential participants. The paper is published here: https://www.nature.com/articles/s41586-022-04434-5 NCMH study: https://www.ncmh.info/psresearch |
| Year(s) Of Engagement Activity | 2022 |
| Description | Schizophrenia and Psychosis webinar |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | A webinar to mark Schizophrenia Awareness Day with the NCMH and CNGG team discussing the latest research and sharing a lived-experience story from Mustak from the UKMinds PPI group |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://youtu.be/Y6E1rJrGwX8 |
| Description | School STEM week at the Hadyn Ellis Building, Cardiff University - Sharifah Agha |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Schools |
| Results and Impact | Block design activity which looks at thinking and problem solving skills |
| Year(s) Of Engagement Activity | 2017 |
| Description | School Visit (Treorchy Comprehensive) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Schools |
| Results and Impact | Presentation on genetics of Parkinson's disease followed by debate |
| Year(s) Of Engagement Activity | 2019 |
| Description | Schools advisory events |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Schools |
| Results and Impact | School leaders from 5 schools attended workshop and University facilities tour to advise on planned Mental Health in Adolescence Genes and Environment Study (MAGES). Discussion resulted in significant amendments to study research protocol. Three schools now agreed to take part in study. One school requested formal links with Cardiff University as 'twinned' school. |
| Year(s) Of Engagement Activity | 2018 |
| Description | SciScreen Dementia Event |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | Dr Rebecca Sims gave a public presentation on Dementia research before a free screening of the film "Away from Her", post-film discussion and free drinks reception. The purpose of the event is for scientists to engage with the general public for mutual benefit. The presentation was well received, and the discussions were lively. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Science - comment on HD trial |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Professor Anne Rosser, from the School of Medicine, describes the difficulties in managing expectations when new treatments for Huntington disease are proposed. |
| Year(s) Of Engagement Activity | 2018 |
| URL | http://science.sciencemag.org/content/361/6404/742 |
| Description | Science Cafe talk 10th May 2016 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | A talk was given by PhD student and Neurologist, Dr Jude Harrison. Science Cafe events are designed to encourage the general public to engage with science in an informal environment. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Scientific Talk (Haifa) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Type Of Presentation | keynote/invited speaker |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Around 200 scientific delegates attended talk as part of the Haifa (Israel) Forum on Brain and Behaviour Possible future scientific collabroations |
| Year(s) Of Engagement Activity | 2014 |
| URL | http://elsc.huji.ac.il/content/good-stress-bad-stress-and-very-bad-stress |
| Description | Scientists at Cardiff University say they are a step closer to understanding the causes of dementia |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | Scientists at Cardiff University say they are a step closer to understanding the causes of dementia, thanks to a grant of nearly £250,000. The money will fund its brain bank, a centre which encourages people to donate their brains for medical research. Professor Julie Williams comments (BBC Wales On-line, 04.07.2013 Unknown |
| Year(s) Of Engagement Activity | 2013 |
| URL | http://www.bbc.co.uk/news/uk-wales-22288025 |
| Description | Scout Night |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | A combination of neuroscience games and interactive tasks with lab tours to encourage young people to learn more about the brain and take up STEM subjects in further and higher education |
| Year(s) Of Engagement Activity | 2016 |
| Description | Scout evening - genetics workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Third sector organisations |
| Results and Impact | Educational workshop around genetics with scouts group comprising presentation and practical activities. |
| Year(s) Of Engagement Activity | 2019 |
| Description | Senior staff retreat |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | Attended and gave talk at IPMCN Senior staff retreat, Gregynog. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Senior staff retreat |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | Senior staff retreat, talks and discussions. |
| Year(s) Of Engagement Activity | 2023 |
| Description | Session at Bipolar UK Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Third sector organisations |
| Results and Impact | Professor Ian Jones presented a session at the Bipolar UK conference about the Bipolar Education Programme Cymru. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Society for Neuroscience Poster presentation |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | 10 people independently visited a poster presentation by Jennifer Davies that included detailed discussion. |
| Year(s) Of Engagement Activity | 2014 |
| Description | Southampton Neuroscience conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Talk given entitled "The Nature of Schizophrenia" at the Southampton Neuroscience conference |
| Year(s) Of Engagement Activity | 2015 |
| Description | Speaker at EFPT Neuroscience Day, Bristol |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | A talk entitled "ADHD: progress in identifying genetic and environmental risk factors" given to an audience comprising 200 attendees, the majority being psychiatric trainees from across wider Europe (>35 countries), with the rest being UK psychiatric trainees. Trainees at different training levels, and a significant minority Child & Adolescent Psychiatry Trainees. 120 EFPT delegates from over thirty European Countries will attend along with a further 60 post graduate psychiatry trainees from around the UK |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://www.rcpsych.ac.uk/traininpsychiatry/conferencestraining/conferencesandcourses/joininginstruc... |
| Description | Speaking at MiND International Conference, Barcelona |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited speaker to the MiND International Conference - talk given entitled "ADHD: its overlap with child neurodevelopmental disorders" |
| Year(s) Of Engagement Activity | 2018 |
| URL | http://www.mind-project.eu/news-and-events/mind-international-meeting-barcelona-may-31-june-1 |
| Description | St Petersburg conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | " Genetics and pharmacogenetics of mental illnesses" conference - talk "Genomics in Schizophrenia: Application and Interpretation" - St Petersburg, Russia |
| Year(s) Of Engagement Activity | 2019 |
| Description | Student clinical neuroscience conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Undergraduate students |
| Results and Impact | Talk entitled "Genes, Brains and Psychiatry" given at the Student clinical neuroscience conference |
| Year(s) Of Engagement Activity | 2015 |
| Description | Student psychiatry conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Undergraduate students |
| Results and Impact | Largely run by the student psychiatry society we helped organise the three day conference and provided experts and people with lived experience for the talks. |
| Year(s) Of Engagement Activity | 2019 |
| Description | Summer School |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Delivered a talk entitled Developmental Disorders / Child and Adolescent Psychiatry to MRC CNGG Summer School Participants Unknown |
| Year(s) Of Engagement Activity | 2010,2014,2015 |
| Description | Summer School 2017 talk |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Undergraduate students |
| Results and Impact | Talk given at MRC Summer School 2017 |
| Year(s) Of Engagement Activity | 2017 |
| Description | Surgam 2019 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Postgraduate students |
| Results and Impact | Surgam, Centre for Medical Education Celebration Event |
| Year(s) Of Engagement Activity | 2019 |
| Description | TALK TO PARLIAMENTARY SCIENCE GROUP |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | spoke on mental health research issues to the Science in Parliament group |
| Year(s) Of Engagement Activity | 2017 |
| Description | TTC Wales event |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Research group stand at annual Time to Change Wales mental health event |
| Year(s) Of Engagement Activity | 2017 |
| Description | TWF Scientific Meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Annual TWF meeting |
| Year(s) Of Engagement Activity | 2020 |
| Description | TWF lecture 2017 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Hosted a public lecture by Professor Margaret Rayman (University of Surrey) |
| Year(s) Of Engagement Activity | 2017 |
| Description | Tackling tomorrow (Cardiff, 2016) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Cymorth Cymru, Tackling tomorrow, 2016 aimed at understanding challenges affecting young people in Wales and to promote Welsh Assembly government and third sector organisation planning to meet future challenges. Workshops given to delegates at the conference on the theme of youth mental health trends. The workshops involved presenting the most up to date information on the prevalence and impact of mental health problems in young people and how these are and likely to continue changing this Century. The debate focused on possible areas of policy and practice intervention to promote youth mental health and to provide appropriate services to young people with mental health problems. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.cymorthcymru.org.uk/en/events-and-training/events/tackling-tomorrow |
| Description | Talk |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Supporters |
| Results and Impact | Talk on research |
| Year(s) Of Engagement Activity | 2016 |
| Description | Talk - Training and engaging in research when you are a clinician |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | A talk to SpRs from regional healthboards |
| Year(s) Of Engagement Activity | 2020 |
| Description | Talk King's College |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Postgraduate students |
| Results and Impact | Talk by Dr Thomas Lancaster (Research Associated on the project) on Genetic risk for psychosis and mechanisms of aetiology; evidence from imaging genetics: MRC Social, Genetic & Developmental Psychiatry Centre, King's College London 24/06/2016 |
| Year(s) Of Engagement Activity | 2016 |
| Description | Talk Pembroke dock |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk to local health services about NCMH |
| Year(s) Of Engagement Activity | 2015 |
| Description | Talk at ADHD event organised by Cardiff and Vale Parents' Federation, 24 February 2016 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | Talk entitled "What do we know about ADHD" given by Sharifah Syed to inform and educate |
| Year(s) Of Engagement Activity | 2016 |
| Description | Talk at BAP meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | Overview of genetics utility and potential in treatment-resistant schizophrenia |
| Year(s) Of Engagement Activity | 2017 |
| Description | Talk at Cardiff University Summer School on 12 July 2016 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | Talk by Prof Thapar to 60 delegates of the Cardiff University Summer School on Developmental Disorders/Child & Adolescent Psychiatry |
| Year(s) Of Engagement Activity | 2016 |
| Description | Talk at D'Or Institute for Research and Education (IDOR), Rio de Janeiro, Brazil on 24.11.2016 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk on the subject of ADHD: a developmental journey. A talk given to physicians (neurologists, psychiatrists and other specialities), psychologists, speech therapists and some PhD students from all areas. Followed by a discussion with the audience. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Talk at St George's hospital, Stafford |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Gave a talk at St George's hospital, Stafford |
| Year(s) Of Engagement Activity | 2015 |
| Description | Talk at iPSYCH Conference, Denmark |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | Invited speaker at annual meeting in June 2018. Spoke on: "What does the world need to learn about ADHD?" |
| Year(s) Of Engagement Activity | 2018 |
| Description | Talk at the XIV ProDAH Meeting at the University of Rio Grande Do Sul in Porto Alegre, Brazil on 25.11.2016 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk on ADHD: a developmental journey given to a mix of mater degree, doctoral degree and post-doc students, Professors and clinical instructors of psychiatry and genetics, including students of genetics. Joint grant (Wellcome Trust) and joint paper. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Talk for RCPsych In Wales |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited speaker at RCPsych in Wales meeting in June 2018. Talk: "An update on Academic Child and Adolescent Psychiatry" |
| Year(s) Of Engagement Activity | 2018 |
| Description | Talk for Wales Gene Park |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Schools |
| Results and Impact | To talk about the influence of genetics in research. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Talk in London |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk to maternity health professionals in London on Bipolar disorder, pregnancy and childbirth. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Talk in Sweden |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Public lecture in Sweden on post partum psychosis to around 60 people. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Talk to EMWWAA (Ethnic Minority Welsh Women Achievement Association) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | Invited speaker at EMWWAA meeting in April 2018. Spoke on "Attention Deficit Hyperactivity Disorder: a developmental journey as a clinical academic" |
| Year(s) Of Engagement Activity | 2018 |
| Description | Talk to Huntington's Disease (lay) Association |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Presentation to HD lay organisation on clinical progress in Huntington's disease research? |
| Year(s) Of Engagement Activity | 2019 |
| Description | Talk to SPRs, 2016 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Seminar on life course links, risk and resilience in psychopathology for SPRs and consultant psychiatrists in South Wales |
| Year(s) Of Engagement Activity | 2016 |
| Description | Talk to the Child Psychiatry Research Society on 6 May 2016 on Neurodevelopmental disorders: what happens when children grow up and why? |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Approximately 30 members of the CPRS attended the meeting where new research activity was presented followed by a discussion. Talks also presented by three other members of the Cardiff University Child and Adolescent Group - Miriam Cooper, Olga Eyre and Rhys Bevan-Jones. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Telegraph - perinatal |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Quoted on research around taking anti-depressants in pregnancy and link to increased risk of autism |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://www.telegraph.co.uk/science/2017/07/19/taking-antidepressants-pregnancy-may-raise-risk-autist... |
| Description | Tenby Observer |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | Talk by Prof Julie Williams (at Oriel y Parc, 5 Aug) advertised |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.tenby-today.co.uk/article.cfm?id=105748&headline=Oriel%20y%20Parc%20to%20host%20second%20... |
| Description | The Conversation: Mental Elf |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Prof Ian Jones writes about antidepressants in pregnancy |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://theconversation.com/does-taking-antidepressants-during-pregnancy-harm-the-child-here-are-the... |
| Description | The Developing Brain |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Postgraduate students |
| Results and Impact | Mike co-chaired the event and was part of the steering committee. Mike also took part in a media briefing which included journalists from BBC, Press Association, Daily Mail, The Economist, The Telegraph and Daily Express. Anita gave a talk titled 'The value of cohort and population studies in neurodevelopmental research'. |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://acmedsci.ac.uk/policy/policy-projects/the-developing-brain-in-health-and-disease |
| Description | The First Minister for Wales Carwyn Jones has appointed Cardiff University's Professor Julie Williams, School of Medicine, as Wales' Chief Scientific Adviser. |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | The First Minister for Wales Carwyn Jones has appointed Cardiff University's Professor Julie Williams, School of Medicine, as Wales' Chief Scientific Adviser. Unknown |
| Year(s) Of Engagement Activity | 2013 |
| Description | The Genomics of Common Diseases |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Met with collaborators and fellow researchers at The Genomics of Common Diseases workshop, Wellocme genome campus |
| Year(s) Of Engagement Activity | 2015 |
| Description | The Guardian, New Scientist |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Prof Ian Jones commenting on perinatal suicides |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://www.theguardian.com/society/2015/dec/08/half-perinatal-suicides-women-prevented-better-care |
| Description | The Hodge Foundation annual public lecture |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Professor Andy Miller presented the public lecture. His talk was titled: Depression: Mechanisms and Translational Implications. It was followed by a Q&A session |
| Year(s) Of Engagement Activity | 2021 |
| Description | The New Anatomy of Melancholy |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Professor Frances Rice, co-director of Cardiff University's Wolfson Centre for Young People's Mental Health, spoke about actions people might take if they are feeling depressed, such as scheduling time with friends or taking part in an exercise class (The New Anatomy of Melancholy, BBC Radio 4, 19/05/20). |
| Year(s) Of Engagement Activity | 2020 |
| URL | https://www.bbc.co.uk/programmes/m000j1jq |
| Description | The Telegraph, Independent, Japan Today, Mail Online, IB Times |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Prof Ian Jones commenting on antidepressants in pregnancy and risk of autism |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.telegraph.co.uk/news/12050044/Antidepressants-during-pregnancy-doubles-the-risk-of-autism... |
| Description | The Times |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | I have given an interview to "The Times" newspaper published 22 March, 2017 |
| Year(s) Of Engagement Activity | 2017 |
| Description | The Times (Education Supplement) |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Dr Frances Rice, from the School of Medicine, describes several ways in which a child can successfully transition from primary to secondary school. (Times Education Supplement, 24/8/18) |
| Year(s) Of Engagement Activity | 2018 |
| Description | The Waterloo Foundation Annual Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | People attended the academic sessions with lots of questions generated by talks from Laura, Stephanie and Frances. The public lecture given by Professor Tamsin Ford of Cambridge was attended by 77 people. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Together for Children and Young People, Cardiff 2015 |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Participated in debate and workshops on CAMHS service development in Wales |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://www.eventsforce.net/nliah/frontend/reg/thome.csp?pageID=210965&eventID=662&eventID=662&CSPCH... |
| Description | Treating Schizophrenia conference (Mark Allen group) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Talk entitled "Genetics of schizophrenia: implications for clinical practice" given at Treating Schizophrenia conference (Mark Allen group) 18/01/17 |
| Year(s) Of Engagement Activity | 2017 |
| Description | UK Biobank Winter Scientific Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Dementia session at the UK Biobank Winter Scientific Conference |
| Year(s) Of Engagement Activity | 2022 |
| Description | UK/Korea neuroscience symposium |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Gave a talk entitiled "What genetics tells us about the biology of schizophrenia" at the UK/Korea neuroscience symposium |
| Year(s) Of Engagement Activity | 2015 |
| Description | Understanding Postpartum Psychosis webinar |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Third sector organisations |
| Results and Impact | Dr Sally Wilson and Zebunisa from Action on Postpartum Psychosis (APP) shared their personal experiences with Professor Ian Jones, director of the National Centre for Mental Health. Professor Jones discussed the latest research in this area. |
| Year(s) Of Engagement Activity | 2022 |
| Description | Understanding the crisis: young people's mental health (Digital Showcase event) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Supporters |
| Results and Impact | Raising awareness of priorities in young people's mental health research |
| Year(s) Of Engagement Activity | 2021 |
| Description | University Mental Health Day |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Undergraduate students |
| Results and Impact | Hosted an art competition on the theme of mental health and displayed the top 10 entries at event on University Mental Health Day (including talks and opportunities to learn more about our research). |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://www.ncmh.info/2017/03/07/university-mental-health-day-express-art-exhibition/ |
| Description | University of Bristol CAMH seminar |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | University of Bristol's Centre for Academic Mental Health (CAMH), These seminars aim to cover a wide range of topics related to mental health and are aimed at a broad audience consisting of staff and students from across the School. |
| Year(s) Of Engagement Activity | 2018 |
| Description | University of Exeter Medical School |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | University of Exeter Medical School talk "Psychosis Genomics: Discovery and Exploitation" |
| Year(s) Of Engagement Activity | 2018 |
| Description | VII International Forum of Schizophrenia |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | VII International Forum of Schizophrenia - talk "Genetics of schizophrenia and its relationship to treatment" |
| Year(s) Of Engagement Activity | 2018 |
| Description | Van Praag lecture |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Gave the Van Praag Lecture at University of Utrecht |
| Year(s) Of Engagement Activity | 2016 |
| Description | Vice magazine: Broadly |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Prof Ian Jones interviewed about precscribing in pregnancy |
| Year(s) Of Engagement Activity | 2016 |
| Description | Vice/The Scientist/Tech Times/The Positive/Consultant 360 |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Schziophrenia findings (Andrew Pocklington) |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://motherboard.vice.com/en_us/article/schizophrenia-is-a-disorder-of-information-ruled-by-genes |
| Description | Video presentation on Youtube |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presented a video abstract of a recently published paper |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://www.youtube.com/channel/UClJJHH2xKQk8uZTC7-mJICg |
| Description | Virtual round table debate - Improving access to care and treatment for HD patients and families: what role for policymakers?" Hosted by the European Huntington's Association and the European Federation of Neurological Associations. |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Virtual "Round table event" of professionals, politicians, patient organisations, policy makers, professionals to discuss patient access to current and future care and treatments for Huntington's disease. |
| Year(s) Of Engagement Activity | 2020 |
| URL | https://www.youtube.com/watch?v=Lq_8BHFBL7s |
| Description | Visit to MEB, Karolinska Institutet, Stockholm Sweden |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | Invited to visit the Institutet in February 2018 and to meet the members of the department, mainly PhD and Post -graduate students. Gave a talk "Attention Deficit Hyperactivity Disorder-a developmental journey" |
| Year(s) Of Engagement Activity | 2018 |
| Description | WSJ |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Inform a piece in the Wall Street Journal on psychiatric application of neurofeedback Improved the linkup of this journalistic piece with published scientific evidence |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.wsj.com/articles/brain-training-for-anxiety-depression-and-other-mental-conditions-145314... |
| Description | Wales Brain Bee |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Schools |
| Results and Impact | A mix of practical lab work, video clips and written exercises to encourage A-level biology students to learn more about the brain. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Wales Brain Bee |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Schools |
| Results and Impact | Hosted Wales Brain Bee - a competition aimed at A level students studying the neuroscience module of WJEC biology |
| Year(s) Of Engagement Activity | 2017 |
| Description | Wales Gene Park 3G conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Encourage people to volunteer as a research participant |
| Year(s) Of Engagement Activity | 2017 |
| Description | Wales Live - BBC Wales |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Professor Ian Jones interviewed by comedian Wes Packer about depression, mental health and research on Wales Live - a current affairs programme broadcast on BBC One Wales. |
| Year(s) Of Engagement Activity | 2018 |
| Description | Wales Multiple Sceloris Day |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Clinical research update for professionals involved in care of patients with MS and related diseases. |
| Year(s) Of Engagement Activity | 2013,2014,2015,2016 |
| Description | Wales On Sunday, WalesOnline |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Interview with Mair on ED, comment from Prof Ian Jones on NCMH |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.walesonline.co.uk/news/health/what-its-like-live-eating-10886483 |
| Description | Wales Online |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Prof Anita Thapar awarded CBE |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.walesonline.co.uk/news/wales-news/here-welsh-people-named-new-12388199 |
| Description | Wales Online |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Prof Ian Jones on perinatal mental health in Wales |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.walesonline.co.uk/news/health/wales-punching-above-weight-comes-11554954 |
| Description | Wales Online |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Anna Preece on bipolar disorder, Prof Ian Jones comments |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.walesonline.co.uk/news/health/what-its-like-bipolar-disorder-12328130 |
| Description | Wales Online |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Mair's video/Do you Care? |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.walesonline.co.uk/news/health/womans-experience-being-carer-husband-11433745 |
| Description | Wales Online |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Prof Ian Jones commenting on percentage of people in Wales being treated for a mental health condition |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.walesonline.co.uk/news/health/percentage-people-needing-underfunded-mental-9605725 |
| Description | Wales Online |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Zoe shares ADHD story, Prof Thapar comments |
| Year(s) Of Engagement Activity | 2015,2016 |
| URL | http://www.walesonline.co.uk/news/health/mum-explains-what-its-like-11924647 |
| Description | Wales Online |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Prof Ian Jones commenting on Eastenders PP storyline |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.walesonline.co.uk/news/health/eastenders-scriptwriters-team-welsh-professor-10711092 |
| Description | Wall Street Journal |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Prof David Linden comments on neurofeedback and treatment of depression |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.wsj.com/articles/brain-training-for-anxiety-depression-and-other-mental-conditions-14531... |
| Description | Waterloo Foundation Annual Conference 2021 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | The annual conference for the Waterloo Foundation focused on the impact of COVID-19 on young people and parents. Professor Rice presented at the event on the increased risk of depression for a young person when a parent already has depression and the lasting impact. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Waterloo Foundation Annual Conference 2021 |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | People attended the academic sessions with lots of questions generated by talks from Laura, Stephanie and Frances |
| Year(s) Of Engagement Activity | 2021 |
| Description | Webinar on recent research findings in adult ADHD |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Anita Thapar invited to present a webinar on Recent research findings in adult ADHD. Increasing the reputation of the Child and Adolescent department and Cardiff University |
| Year(s) Of Engagement Activity | 2021 |
| Description | Wellbeing in Schools: sharing learning to support children and young people event |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Schools |
| Results and Impact | A joint online event between Wolfson Centre for Together for Children and Young People which aimed to provide information to mental health specialists working in schools to help them support children and young people's wellbeing. Over 200 people registered for the event and 156 active participants were online during the event itself. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Wellbeing in Schools: sharing learning to support children and young people event |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | A joint online event between Wolfson Centre for Together for Children and Young People which aimed to provide information to mental health specialists working in schools to help them support children and young people's wellbeing. Over 200 people registered for the event and 156 active participants were online during the event itself. |
| Year(s) Of Engagement Activity | 2022 |
| Description | Wellcome Trust conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Participant in Genomics of Brain Disorders conference held by the Wellcome Trust |
| Year(s) Of Engagement Activity | 2016 |
| Description | Wellcome Trust researcher meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Attended the Wellcome Trust researcher meeting |
| Year(s) Of Engagement Activity | 2015 |
| Description | Wellcome Trust: Genomics of Brain Disorders conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Attended Genomics of Brain Disorders 25-27 April 2016 Wellcome Genome Campus, Hinxton, Cambridge Chaired Session 3: Connecting Genetics To Biology |
| Year(s) Of Engagement Activity | 2016 |
| Description | Wellcome-HRB Irish Clinical Academic Training |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Wellcome-HRB Irish Clinical Academic Training retreat and talk |
| Year(s) Of Engagement Activity | 2018 |
| Description | Welsh presentation (Cardiff Science Society) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | A presentation was given in Welsh, by Alzheimer's Field Worker, Alun Meggy to the Cardiff Science Society on 21st November 2016. This was followed by questions and a discussion. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.cymdeithaswyddonolcaerdydd.org |
| Description | West Wales Chronicle - media comment |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Professor Ian Jones, Director of the National Centre for Mental Health at Cardiff University, is quoted in an article about new research, which finds thousands of new mums in Wales who need treatment for mental health problems during pregnancy or following birth are facing different levels of specialist care based on where they live. (West Wales Chronicle, 12/06/18) |
| Year(s) Of Engagement Activity | 2018 |
| Description | Western Mail (repeated in SW Echo on 23.03.16) |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Coverage of actigraph study looking at relationship between sleep and bipolar disorder |
| Year(s) Of Engagement Activity | 2016 |
| Description | Western Mail and Echo |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Print coverage. HCW: Anna Preece shares experience of bipolar disorder and BEPC, Prof Ian Jones comments |
| Year(s) Of Engagement Activity | 2016 |
| Description | Western Mail and Echo |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | HCW: NCMH & CUBRIC, Prof David Linden quoted |
| Year(s) Of Engagement Activity | 2016 |
| Description | Western Mail and Echo |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | HCW: Zoe Piper on ADHD, Prof Anita Thapar comments |
| Year(s) Of Engagement Activity | 2016 |
| Description | Western Mail and Echo |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | HCW: Interview with Prof Ian Jones |
| Year(s) Of Engagement Activity | 2016 |
| Description | Western Mail/ Wales online interview |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | An article was published online and in print not known |
| Year(s) Of Engagement Activity | 2012 |
| URL | http://www.walesonline.co.uk/lifestyle/showbiz/how-professor-julie-williams-went-2017479 |
| Description | Western Mail/SW Echo |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Case study published in local media on mental health in old age |
| Year(s) Of Engagement Activity | 2017 |
| Description | Whitchurch Historical Society |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | Research group stand at exhibition at Chapter Arts Centre |
| Year(s) Of Engagement Activity | 2017 |
| Description | Whitchurch Historical Society |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | Research group stand at week-long exhibition at Cardiff Central Library |
| Year(s) Of Engagement Activity | 2017 |
| Description | Will members of my family develop Alzheimers disease?' |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Dr Rebecca Sims presented "Will members of my family develop Alzheimer's disease?" at CADR Meeting Swansea, 2/8/2018. This reached an audience of 50 persons including general public, medical professionals, researchers and carers. This generated a number of questions and discussion after the talk, and was part of a wider discussion following other presentations focusing on similar topics. |
| Year(s) Of Engagement Activity | 2018 |
| Description | Winter School |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Undergraduate students |
| Results and Impact | Delivered talk: 21st Century Psychiatry |
| Year(s) Of Engagement Activity | 2018 |
| Description | Winter School |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Undergraduate students |
| Results and Impact | Member of panel for Q&A session |
| Year(s) Of Engagement Activity | 2018 |
| Description | Winter School |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Undergraduate students |
| Results and Impact | Delivered talk: Psychosocial interventions - a basic introduction |
| Year(s) Of Engagement Activity | 2016 |
| Description | Winter School in Psychiatry |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presenting an update on the research that the MRC Centre for Neuropyschiatric Genetics and Genomics runs on imaging genetics - i.e. trying to identify the effects over brain of allele risk variants for mental disorders. This is attended by clinicians and researchers with an interest in psychiatric genetics and over the years has inspired future researchers and also triggered collaborations with other reserach groups. |
| Year(s) Of Engagement Activity | 2014,2015,2016,2017,2018,2019 |
| Description | Winter School in Psychiatry |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Undergraduate students |
| Results and Impact | Winter School in Psychiatry - run annually for medical students Wales wide and led by the MRC Centre for Neuropsychiatric Genetics and Genomics along with the National Centre for Mental Health. Also attended by limited number of MRC and other PhD students as well as contributions from patients/service users and patient orgranisations. Format is a film night and discussion one Friday evening followed by all day Saturday with psychiatrists, talks from MRC Centre leads, "Question Time" discussion, networking event and small group sessions for discussion. Feedback from attendees is excellent and as a result the Undergrad Psychiatry team received the Cardiff University Innovative Teaching Award. |
| Year(s) Of Engagement Activity | 2013,2015,2016 |
| URL | http://www.cardiff.ac.uk/news/view/192632-winter-school-boosts-students-awareness-of-psychiatry |
| Description | Winter School in Psychiatry |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Undergraduate students |
| Results and Impact | Research team hosted a workshop on: ADHD - experiences from a personal and family perspective. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Winter School in Psychiatry |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Undergraduate students |
| Results and Impact | Talk titled '21st Century Psychiatry', aimed to encourage students into psychiatry |
| Year(s) Of Engagement Activity | 2016 |
| Description | Winter School in Psychiatry 2018 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Undergraduate students |
| Results and Impact | Two day event at Hadyn Ellis aimed at medical undergraduates. https://www.eventbrite.co.uk/e/winter-school-in-psychiatry-2018-tickets-40548337168 |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://www.eventbrite.co.uk/e/winter-school-in-psychiatry-2018-tickets-40548337168 |
| Description | Winter School in Psychiatry 2021 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Postgraduate students |
| Results and Impact | One-day event online-only (COVID-19) aimed at medical undergraduates, which introduced practitioners to students, creating opportunities to learn and discussion on topics in psychiatry. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Winter School in Psychiatry 2021 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Postgraduate students |
| Results and Impact | One-day event online-only (COVID-19) aimed at medical undergraduates, which introduced practitioners to students, creating opportunities to learn and discussion on topics in psychiatry. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Wired Gov |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Dr Stephan Collishaw commenting on his research about resilience factors protecting adolescents with depressed parents |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.wired-gov.net/wg/news.nsf/articles/Mental+health+problems+for+children+of+depressed+paren... |
| Description | Wolfson Centre Lectures - Professor Lucie Cluver |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The first public lecture in a new Wolfson Centre Lectures series, organised by Becs, Yulia and Lucy. Stephan introduced series and first speaker, Lucie Cluver who spoke about parenting in emergencies and working to support families impacted by humanitarian crises. 84 signs up, 55 online on the day and recording already viewed 15 times |
| Year(s) Of Engagement Activity | 2022 |
| Description | Wolfson funding - broadcast |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Fran and Stephan interviewed about funding for new Wolfson centre for a segment on BBC Wales Breakfast |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://www.bbc.co.uk/news/av/uk-wales-49853169/teenage-mental-health-as-important-as-physical-healt... |
| Description | Wolfson funding - print |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Stephan and Fran quoted in news story about funding for Wolfson centre; BBC News: https://www.bbc.co.uk/news/uk-wales-49810929 Children and Young People Now: https://www.cypnow.co.uk/cyp/news/2007195/adolescent-mental-health-research-receives-gbp10m-boost Western Mail (page 7 - no copy on file) South Wales Echo (page 9 - no copy on file) |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://www.bbc.co.uk/news/uk-wales-49810929 |
| Description | World Alzheimer's Month social post |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | For World Alzheimer's Month social posts we aimed to highlight examples of WHAT is being studied - and WHY it might make a difference to our prevention, risk reduction or better understanding of identifying risk around dementia in the theme is 'Risk and Risk reduction'. We developed a post about the Dementias Platform UK Data Portal, which is a data repository bringing together a wide range of cohorts with genetic and phenotypic data. We aggregated and harmonized genetic data from research groups across the UK and internationally, allowing the wider research community to access and process data at scale and pace, ensuring compliance with the permissions and ethics of individual studies. DPUK now provides a platform for comprehensive genetic analyses of the mixed population for both predictive utility and for clinical trials. |
| Year(s) Of Engagement Activity | 2023 |
| Description | World Congress of Psychiatric Genetics |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | met with collaborators and fellow researchers at World Congress of Psychiatric genetics in Toronto |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://2015.ispg.net/ |
| Description | World Congress of Psychiatric Genetics |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Attended the World Congress on Psychiatric Genetics |
| Year(s) Of Engagement Activity | 2015 |
| Description | Writing Out PTSD |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | Invited a speaker with personal experience of PTSD to share how he used writing as a way of overcoming his symptoms. The night also included a presentation on the clinical aspects of PTSD. Three people signed up to take part in further research studies, all of those who attended and completed our feedback questionnaire (50% response rate) reported an increased understand of PTSD as a result of the event. |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://www.ncmh.info/writing-out-ptsd |
| Description | Writing out PTSD |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Hosted an evening event with talks from an author with experience of PTSD and a clinician who works closely with our research team. There was also an opportunity for people to find out about our PTSD research. |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://www.ncmh.info/writing-out-ptsd |
| Description | Young Onset Dementia: Different impact, positive solutions conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | This public meeting was held on 27th September, 2016. This was a recruitment opportunity. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.youngdementiauk.org/sites/default/files/Young%20Dementia%202016%20programme.pdf |
| Description | Youth Mental Health |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Meeting to devise policy recommendations to present to EU government |
| Year(s) Of Engagement Activity | 2014 |
| Description | Youth advisory group |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Schools |
| Results and Impact | Youth advisory group to inform design and implementation of MAGES schools study |
| Year(s) Of Engagement Activity | 2019 |
| Description | Youth advisory group discussion on teenage depression research |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Two discussion groups with young people who are experts by experience of anxiety and/or depression. We described the research carried out to date and took advice and opinion from the young people on the real world implications of using depression risk prediction methods. Activities were informal discussions, question and answer sessions and mentimeter for summarising and prioritising input from young people. |
| Year(s) Of Engagement Activity | 2021,2022 |
| Description | added in error |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Talk and panel discussion with Jonny Benjamin and Neil Laybourn about psychosis and schizophrenia |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.cardiff.ac.uk/news/view/804231-mrc-festival-voices-of-hope-and-progress |
| Description | alt.Cardiff blog entry |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Journalist Jessica Phillips interviews Julie Williams for an article on her blog |
| Year(s) Of Engagement Activity | 2015 |
| Description | focus group |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Focus groups with preterm birth mothers |
| Year(s) Of Engagement Activity | 2018 |
| Description | formal meeting with Cardiff and Vale UHB to discuss joint research |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Meeting with health board directors to discuss plans for joint funded post and research collaboration in area of youth mental health. |
| Year(s) Of Engagement Activity | 2020 |
| Description | formal meeting with Prince's Trust to discuss joint activity |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | Agreement reached on future research collaboration and letter of support provided for funding application for new Youth Centre |
| Year(s) Of Engagement Activity | 2019 |
| Description | formal meeting with Welsh Assembly Government to discuss joint research |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Agreement to take forward joint post to ensure policy-research linkage in area of youth mental health |
| Year(s) Of Engagement Activity | 2020 |
| Description | iPsych IAB meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Attended iPsych IAB meeting in Copenhagen |
| Year(s) Of Engagement Activity | 2015 |
| Description | interview on paper |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | To educate readers about our research |
| Year(s) Of Engagement Activity | 2016 |
| Description | keynote talk at ADHD Foundation Neurodiversity Conference 19/01/2024 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | 'Is Neurodiversity compatible with a medical model? Do dyslexia and dyscalculia fall outside the realm of medicine or are they factored into holistic measures of impairment when co-occurring with ADHD, Autism and Developmental Coordination Disorder? with Professor Edmund Sonuga-Barke at the conference's Healthcare and Medicine Forum |
| Year(s) Of Engagement Activity | 2024 |
| Description | medicalresearch.com |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Dr Lucy Riglin interviewed about research into Genetic Predisposition To Schizophrenia Associated With Childhood Impairments |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://medicalresearch.com/author-interviews/genetic-predisposition-to-schizophrenia-associated-wit... |
| Description | public engagement for PTSD event |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | An introductory talk about the National Centre for Mental Health which supported an engagement day about PTSD |
| Year(s) Of Engagement Activity | 2016 |
| Description | sciSCREEN - Sleepwalk with me |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Hosted a film screen of sleepwalk with me, followed by talks and panel discussion focused around sleep and mental health |
| Year(s) Of Engagement Activity | 2017 |
| Description | the UK Pharmacogenetics and Stratified Medicine Network |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited presenter at the UK Pharmacogenetics and Stratified Medicine Network Workshop |
| Year(s) Of Engagement Activity | 2021 |
| Description | winter school in psychiatry |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Undergraduate students |
| Results and Impact | this winter school runs over a weekend and is targeted at medical students in their initial years. We aim to garner an interest in psychiatry and psychiatric/neuroscience research |
| Year(s) Of Engagement Activity | 2014,2016,2017 |