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Changing the pace of change: Disability inclusion in development responses to sexual violence for women with disabilities through arts & humanities

Lead Research Organisation: University of Leeds
Department Name: School of Medicine

Abstract

The proposed network will tackle one of the most significant global challenges facing people with disabilities by connecting interdisciplinary researchers with communities and external partners allowing the network to reconceptualize the problem and its solutions. We will promote a diversity of voices in order to provoke, disrupt and challenge received thinking and create opportunities for meaningful innovation in arts and humanities methods to respond to sexual and domestic violence against women with disabilities.

Sexual and domestic violence disproportionately affect cis and trans women with disabilities. It inhibits their participation in society, creating shame, stigma and fear. It creates barriers to their ability to live in good health and to equitably access health services.

Furthermore, health and social care staff attitudes can mean women with disabilities are not believed when reporting sexual or domestic violence. Their testimonies can be questioned, or they are silenced by the assumption women with disabilities are not sexually active and discussion of topics around sexual health and wellbeing are shut down - effectively censoring their ability to report violence.

At development policy and service commissioning levels, change is slow and public health interventions and sexual & reproductive health services are often commissioned without considering the needs of women with disabilities. Appeals for change have been repeatedly made by key global organizations like WHO but they do not achieve the urgent change needed to address this significant health inequality. It is becoming increasingly important to shift the conversation, reimagine the problem and reconceptualize the solutions.

The proposed network will do exactly this. It will bring together representatives of academia, non-governmental and multilateral organisations, organisations of persons with disabilities and advocates. Each individual will bring a different perspective and lived experience. The network will explore innovative responses to improve disability inclusion through arts and humanities methods and interventions.

The network will meet once face-to-face to agree how to work together inclusively, establishing communication preferences and safe conduct. We will decide how we will conduct our scoping review of evidence and the types of facilitators we would like to join our meetings. We will identify a network of stakeholders who we will open discussion with through our social media strategy.

We will then meet online, with each meeting facilitated by someone whose expertise is relevant to the Network. Facilitators will come from a variety of backgrounds including community practitioners, using arts and humanities with women with disabilities, representatives of organisations of persons with disabilities addressing stigma and taboos in healthcare staff and representatives of multilateral organisations negotiating political commitment to change at an international level, reflecting on how arts and humanities methods may be useful to change the pace of change within their messaging.

The Network will then reflect on the practical and theoretical challenges each presenters' work poses, identifying any research questions for future grant applications. We will communicate progress of the network through social media and our network website.

In the remaining project time we will discuss the findings of our scoping review (creating Article 1), write up our reflections on the theoretical challenges of disability inclusion in SRH through arts and humanities methods (for Article 2). We will create our Guidance and Toolkit and plan our webinar. The webinar will share the learning of the network with a wide audience and open up debate with stakeholders on this topic. We will also agree the next steps of the network to further develop our collaboration.

Publications

10 25 50
 
Description The network linked 2 organisations of persons with disabilities that had not previously done research to 2 research universities, entering into discussions on how research can support third sector organisation aims. It linked a global organisation to 2 local disability organisations forming enduring links.
The network defined its terms of reference and preferred ways of working. We discussed and made reasonable adjustments to ensure every member could participate fully.
We conducted a systematic review of arts and humanities interventions to improve sexual and reproductive health services for disabled women and girls. Network members were trained in systematic reviewing which built capacity in members to engage with evidence. We questioned the types of evidence used to evaluate interventions and debated as a group how success is evidenced in arts and humanities, the level of public involvement in the design of studies and the movement of interventions from global south to north and north to south. This review is being written up and will be published. The network discussed the projects we were identifying. We explored the potential of arts and humanities in a development setting based upon the review findings. One network member travelled to the UK to present preliminary findings at the Disability Studies international conference and attended facilitated networking hosted by University of Leeds.
The network invited guest speakers from arts and humanities initiatives to meet the network and discuss how they use arts and humanities to improve sexual and reproductive health services for disabled women and girls and how they challenge stigma and violence against disabled women and girls using arts and humanities. This was a new network of contacts for the network members and future projects and connections were discussed.

The network is still in contact and finalising its outputs at this time.
Exploitation Route Our evidence review and the debates inherent in the review that will be reflected on in the write up will link individuals utilizing arts and humanities methods in a development context. Network partners are keen to engage further with arts and humanities to challenge stigma in development settings and have a greater understanding of what this may look like and how to work with cultural and arts based partners.
Sectors Communities and Social Services/Policy

Creative Economy

Healthcare

 
Description Official development assistance
Amount £4,505 (GBP)
Organisation University of Leeds 
Sector Academic/University
Country United Kingdom
Start 08/2024 
End 03/2025
 
Description Changing the pace of change network collaborates with WHO Disability Team and Pan American Health Organisation (PAHO) 
Organisation World Health Organization (WHO)
Country Switzerland 
Sector Public 
PI Contribution We discussed the plans of the team from PAHO and reviewed a draft of the video script and made comments. We also suggested revised wording and approaches to campaign aims. We then reviewed the images and revised script in the video and made further comments based on responses and in discussion with the team from PAHO.
Collaborator Contribution They approached us, explained their request for expertise and feedback. They created a draft script for the video and the campaign. They reviewed our responses, revised the video and returned it to us for further review. We discussed our responses and they engaged with the discussion and revised the video and the campaign based on our feedback.
Impact Our network was approached by the WHO disability team to partner with PAHO to inform their campaign to end violence against women. We collaborated to create the video on the website and refine the campaign messages.
Start Year 2024
 
Description A twitter account was created, developed and used during the project until it was withdrawn 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact WE launched a twitter account and linked to people working in the area of sexual and reproductive heath for women with disabilities, we then linked to groups utilizing arts and humanities for health interventions. We tweeted about our project, our team and their work. Sadly we decided as a group to stop using twitter when Elon Musk began using abelist slurs on the platform.
Year(s) Of Engagement Activity 2023,2024
 
Description Blog showcasing the project on university website that was picked up by N8 university partners 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Undergraduate students
Results and Impact The University of Leeds showcased the network to promote it and wrote a blog about its aims. The N8 university partnership picked it up and did a spotlight interview as a result.
Year(s) Of Engagement Activity 2024
URL https://medicinehealth.leeds.ac.uk/faculty-/news/article/607/new-ahrc-networking-grant-looks-to-chan...