Disability and Community: Dis/engagement, dis/enfranchisement, dis/parity and dissent - aka The D4D project

Lead Research Organisation: Bath Spa University
Department Name: Finance

Abstract

Disability and Community: Dis/engagement, Dis/enfranchisement, Dis/parity and Dissent (aka the D4D project) will investigate the evolving ways in which disabled people express, perform, experience and practise 'community'.

The work will be informed by critical disability theory, and it will foreground the knowledge and lived experiences of disabled people. The project team brings together academics from a range of disciplines, community investigators with expertise in performance and arts practice, and community partners (including Shape, Accentuate and DRUK).

Our goals are to learn from participating communities, to build understanding, to generate opportunities for connections, solidarity, resilience and activism, and to create meaningful legacies for the communities and partners involved.

D4D will explore aspects of the historical, clinical, institutional, political and technological construction of disabled communities, and trace the ways in which community members have contested, rejected and embraced these varied possibilities over time. The project will facilitate agency and empowerment among participants, facilitate knowledge exchange and professional development, and create new spaces for dialogue and intervention.

D4D's research question is: In what ways are disabled people connected/disconnected to/from surrounding communities, and how might they trouble existing affiliations, re-situate themselves, and re-shape communities around them?

The team will explore this question while drawing on disability studies and community research literature, and engaging in continual collaboration and reflection (on issues of power, ethics and research practice, for example).

There will be 8 work streams:
WS1 - will explore issues of integration and marginalization, focusing on two settings: mainstream schools and the work-place. It will explore lived experience of 'inclusion'. This work will combine ethnographic studies, with a series of cultural animation workshops through which disabled participants will articulate and explore aspects of inclusion and marginalization.
WS2 - will explore the ways in which technology might impact on or facilitate experiences of social belonging, by focusing on play. The steam will support methodological development, as it will involve exploring the ways in which new technologies can support the agentic participation of non-traditional research participants.
WS3 - will examine the origins, development and future of the Disability Arts community. In particular, this will involve exploring the tensions within 'identity arts' movements regarding issues of affiliation and community.
WS4 - this strand will explore how participants form, experience and express alternative community, as well as how they manage their (dis)placement and disqualification by mainstream society. This research will also support disabled communities critically responds to clinical practice.
WS5- In this strand, arts based research will drive an investigation of past, present and future disabled communities. In particular, through the creation and exhibition of an interactive art-piece, 'Evolution', mainstream audiences will be asked to consider disability perspectives on such matters as eugenics and genetic screening.
WS6 - Playful Bodies, Technology and Community will address technologies, social change and the body, and identify the implications for disability and community, while drawing on player studies, social media research, collaborative game design, and public play.
WS7 - Ethics, reflection and learning for participation will inform all the above activities and support the practices and professional development of all those taking part.
WS8 - Will provide a forum for skill sharing and knowledge exchange across all streams, and work to maximize impact across and beyond the academic.

Planned Impact

Who will benefit?

The beneficiaries of this research fall into four main groupings:
1) The key beneficiaries of this project will be people with disabilities themselves, including user groups and activist communities. We particularly aim to improve service provision and quality of life for people with disabilities, not least by enabling the voices of people with disabilities to be heard as co-producers of the research;
2) Professional communities and service providers across a number of fields including arts, health and social care, education and employment;
3) The policy audience, including those government departments whose policies most directly impact upon the lives of people with disabilities, including the Departments of Health, Education, Work and Pensions, Business, Innovation and Skills, Culture, Media and Sport, and Communities and Local Government. Local Government itself will be another key beneficiary;
4) The general public.

How will they benefit?
Our aim is to create meaningful legacies for the communities and partners involved. Participants will benefit through the opportunities for reflection on their everyday lives, connections to others, and support with articulation of concerns and aspirations. D4D seeks to help them to establish both new voices and new networks.
We seek to provide a better, stronger evidence base which will challenge the assessment orientated, positivist models of disability that continue to manifest in economic policy and educational practices. We seek to address issues of power, alienation and marginalisation, shifting emphasis to the voices and lived experience of participants, promoting agency and integration, and providing a new model for people working with communities of people with disabilities.
This new model will improve engagement between manufacturers and providers of technology and the users of that technology, improving end products so that they better meet the needs of users. It will also inform and change practice so that schools and employers are better able to integrate people with disabilities.
Our focus on inclusivity will extend to the connections we create, as we will bring together organisations that have hitherto rarely worked together. Many of our partner organisations are local grassroots organisations, and we will help these link to national organisations involved with this project, such as DruK and Mencap.
Practitioners, professionals and policy-makers will be provided with new understandings and insights. They will be encouraged to engage with accounts that portray in vivid ways the outcomes of policy and entrenched practice. In each context we will seek to provide a forum for open and direct dialogue with disabled people and user groups.
Through pop-up and larger events, we will also assist the general public through thought-provoking performance that will engender more profound and humane understandings of disability and the issues that confront disabled people on an everyday basis.

Publications

10 25 50

Related Projects

Project Reference Relationship Related To Start End Award Value
AH/N004108/1 01/04/2016 01/01/2017 £1,296,407
AH/N004108/2 Transfer AH/N004108/1 02/01/2017 30/11/2020 £1,187,771
 
Title Esther Fox, WS5 Institutionalised, Homogenised, Vaporised: Creation of a series of images based on 'troubling legacies' 
Description This piece is a response to a series of images selected from the Wellcome Archive and related to the investigation of disability, eugenics and emergent genetic technologies. 
Type Of Art Image 
Year Produced 2017 
Impact The piece is currently being completed and has yet to be exhibited. Exhibition is planned for 2018 
 
Title NDACA films - D4D poetry 
Description Allan Sutherland reads from his D4D transcription poetry 'Electric Bodies' sequence. Also discussion of the transcription poetry process. 
Type Of Art Film/Video/Animation 
Year Produced 2019 
Impact NDACA (National Arts Disability Collection and Archive) breaks new ground in recording the contribution of disabled artists in the UK. It is a significant repository providing a new archive that showcases the work of both historical and contemporary disabled artists. This product is not just about legacy, but also of significance to a wider audience of researchers who are interested creative approaches to methodology. 
URL https://the-ndaca.org/video/allan-sutherland-reads-his-poems-about-tony-heatons-artworks-springback-...
 
Title Novel - Cull by Tanvir Bush 
Description 'Cull' is a novel written by Associate Research Fellow Tanvir Bush. It deals with themes that relate to D4D about the impact of austerity policies on disabled people. 
Type Of Art Artefact (including digital) 
Year Produced 2019 
Impact Ongoing. Book launch in 2019. Engagement with wider public both through book sales and online. 
URL https://tanvirbush.com
 
Title Novel by Tanvir Bush (Associate Research Fellow on D4D) 
Description Novel connecting to D4D research themes about impact of austerity on disabled people 
Type Of Art Artefact (including digital) 
Year Produced 2019 
Impact Engagement with wider public through sales of book and online. 
URL https://tanvirbush.com
 
Title Open Studio as part of Coastal Currents Arts Festival 2017 
Description Esther Fox (Co I) exhibited a range of new images inspired by my research of the Eugenics Archive housed within the Wellcome Trust. She printed a range of tea towels and seed packets asking people to consider the absurdity of Eugenics rhetoric. This work was displayed in a beach hut over two weekends, as part of the open studios programme. This is a well known and established arts festival with internationally acclaimed artists also taking part. There were around 100 visitors over the two weekends. 
Type Of Art Artwork 
Year Produced 2017 
Impact Many people were quite surprised to be confronted by such challenging images. Some of the comments included: "I am studying to be a doctor and I think art has a really important role to play in getting people to talk about issues of medical ethics" "These images are really difficult to look at - they really make you think". 
URL http://coastalcurrents.org.uk/about/
 
Title Transcript poetry by Allan Sutherland 
Description 'Thalidomide Acts', cycle of transcription poems by Allan Sutherland from interviews with actor Mat Fraser. Published on D4D website 'Making Links', cycle of transcription poems by Allan Sutherland from interviews with artist Tony Heaton. Published on D4D website 
Type Of Art Creative Writing 
Year Produced 2017 
Impact The impact is ongoing - in terms of audience responses, reflections by the artists involved in the interviews, and by the academic team with regard to this innovative way of conducting and representing research data. 
URL http://d4d.org.uk
 
Title Ws3 Electric Bodies Sutherland/Hambrook/Wheatley 'Thalidomide Acts' cycle of transcription poems 
Description cycle of poems created from interviews with Mat Fraser 
Type Of Art Creative Writing 
Year Produced 2017 
Impact The cycle will be shared at Daisyfest in Autumn 2017 
 
Description When the project began, the impact of austerity was only just beginning to be evident. Increased privation affecting many disabled people has led to a more acutely political response than originally envisaged. The team is compiling a series of reports relating to health, science, technology, social welfare and education. Some of these reports are already being disseminated - including engagement with UK policy-makers and a submission to the UN Human Rights Committee.

The team is reviewing evidence to construct an ethics based model to respond to advances in the field of genomics involving technologies such as CRISPR that enable genetic editing / manipulation.

Through the work involving Bristol Robotics, team members are also developing concepts of ways in which technologies might be more user-led.

In areas such as education and employment, the team is developing a framework for more genuinely inclusive practices.
Exploitation Route The team envisages several ways in which the research might be taken forward in our own future work. For example, in the sphere of technology we would like to collaborate with a larger number of companies to develop fuller consultation processes with users at all stages. In the context of genomics we would like to engage with scientists and medical professionals to ensure that difficult ethical issues are considered and subsequently embedded in decision-making. There are also ways in which the legacy of this project can be extended and linked to other research across national boundaries.

One of the most ambitious elements of the project has been in changing wider public perceptions of disability, and this needs to be an ongoing process. We believe that there are opportunities for the development of materials across e.g. film and television.
Sectors Communities and Social Services/Policy,Creative Economy,Digital/Communication/Information Technologies (including Software),Education,Environment,Healthcare,Government, Democracy and Justice,Manufacturing, including Industrial Biotechology,Culture, Heritage, Museums and Collections,Pharmaceuticals and Medical Biotechnology

 
Description This is ongoing and will be reported at a later stage as the nature of the impact becomes clearer. In the first place, there are signs of impact among participant / participant groups / agencies supporting disabled groups. Organisations involved in this group have also been changed through involvement. For instance DAO (Disability Arts Online) have developed a relationship with a new group, Disconsortia. This connects two regional groups - South East and North East - and also facilitates the cross-fertilisation of skills. For instance, an artist from the South East has been working with an animator in the North East to create new artefacts. At a political level there has been engagement with central government policy-makers, such as Office for Disability Issues and Government Office for Equalities. At this stage it is too early to determine influence on policy, but a dialogue has been established that will continue. Meanwhile, a D4D report to the United Nations Human Rights Committee was published on the UN website, and a suggestion was made for further submissions /engagement.
First Year Of Impact 2019
Sector Communities and Social Services/Policy,Creative Economy,Education,Healthcare,Government, Democracy and Justice,Culture, Heritage, Museums and Collections
Impact Types Cultural,Societal,Policy & public services

 
Description Office for Disability Issues (ODI) consultation with D4D team member about engagement of grassroots organisations to inform future policy-making
Geographic Reach National 
Policy Influence Type Participation in a national consultation
URL https://www.gov.uk/government/organisations/office-for-disability-issues
 
Description Presentation to Civil Servants / Job Centre Senior Managers
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Participation in a advisory committee
 
Description Presentation to the Office for Disability Issues
Geographic Reach National 
Policy Influence Type Participation in a advisory committee
URL https://www.gov.uk/government/organisations/office-for-disability-issues
 
Description Presentation to the Office for Disability Issues
Geographic Reach National 
Policy Influence Type Participation in a advisory committee
 
Description Submission to UN's ICCPR (International Covenant on Civil and Political Rights) - Periodic Review
Geographic Reach Multiple continents/international 
Policy Influence Type Citation in systematic reviews
URL https://tbinternet.ohchr.org/_layouts/15/treatybodyexternal/SessionDetails1.aspx?SessionID=1371&Lang...
 
Description Brave New World symposium in collaboration with Sick!Festival 2019 
Organisation SICK! Productions Ltd.
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Sick!Festival is an Arts Council England National Portfolio Organisation, Dr Lucy Burke (Co-I) is named on Sick! Festivals NPO aplication as an academic partner and is involved in the commissioning for Sick!Festival 2019 (encompassing research, development and scoping projects with academics, community and arts organisations across Greater Manchester). She also led panel discussions at Sick! 2017 on disability arts events: Claire Cunninghams Guide Gods, and Koen de Preter amd Theater Stap's To Belong (Lowry Theatre). The collaboration beween D4D and Sick! focuses on our Brave New World workstrand and will facilitate public engagement with our exploration of the implications of genetic screening technologies on disabled people.
Collaborator Contribution Sixk!Festival will support our activities by providing us with a venue, publicity and an enhanced opportunity to engage members of the public. We will also have the opportunity to share our work via the Sick!Radio podcasts.
Impact pending
Start Year 2018
 
Description Collaboration in bid led by Cardiff University 
Organisation Cardiff University
Country United Kingdom 
Sector Academic/University 
PI Contribution I was invited to participate in the project to provide expertise of evaluating arts-based interventions as developed through D4D.
Collaborator Contribution The research partnership was set up to enhance sight impairment rehabilitation in Ghana. It involved the University of Cardiff, London School of Hygiene and Tropical Medicine and University of Cape Coast, Ghana.
Impact Bid was made to AHRC/ MRC Global Health Fund call.
Start Year 2017
 
Description (Relaxed) Performance of 'Treasure Island' at New Vic Theatre, Stoke. 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Schools
Results and Impact The New Vic organised a relaxed performance of 'Treasure Island'. Some of the attendees we invited were from colleges and partners who have pupils, or end users of services, with some form of a disability. Others were from institutions such as
Strathcross. The purpose is to develop performance catered for the needs of disabled people.
Year(s) Of Engagement Activity 2018
 
Description 1. Presentation and 2.Poetry performance at Dada Fest, Liverpool. 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Hambrook and Wheatley from the D4D team gave a presentation to a panel and wider audience about disability arts communities. At a separate Festival event, Sutherland gave a reading from his D4D transcription poetry cycle. Dada is an international disability festival, entailing performances and exhibitions, presentations and panel debates, attracting prominent figures from across disability arts.
Year(s) Of Engagement Activity 2018
URL https://www.dadafest.co.uk/events/archived/dadafest-international/talks-and-workshops
 
Description After show discussion, Guide Gods by Claire Cunningham, Sick!Festival 2017, Rainbow Rooms, Eccles, Manchester 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact Lucy Burke led the after show discussion of Claire Cunningham's show 'Guide Gods' and explorations of disability and religion. This is part of our developing relationship with Sick!Festival and has contributed to further discussions which have placed disability at the centre of programming for Sick!Festival 2019, specifically around our exploration of the impact of genetic screening on particular groups of people.
Year(s) Of Engagement Activity 2017
 
Description Arts Event - Contested Spaces - The Foundry, London 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact Allan Sutherland performed poems from D4D's 'Electric Bodies' cycles of transcription poetry
Year(s) Of Engagement Activity 2019
URL https://disabilityarts.online/events/disability-arts-online-contested-spaces-london/
 
Description Book Launch by member of D4D team 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Tanvir Bush (Associate Research Fellow on D4D) had a book launch at Corsham Town Hall for her novel, 'Cull', dealing with themes relating to the D4D project. The town hall was packed for the event, with people queueing on the stairs. A local bookshop reported one customer coming in the following day and purchasing ten books, stating that she was planning to distribute them to her friends as the theme was so important. Other members of the public have approached Ms Bush asking how they can get involved in addressing the issues raised by the novel, around social exclusion.
Year(s) Of Engagement Activity 2019
URL https://www.gazetteandherald.co.uk/news/17467215.corsham-author-launches-hard-hitting-novel-cull/
 
Description Co-organisation of symposium and presentation at Nordic Network of Disability Research Conference 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Study participants or study members
Results and Impact Co-organised symposium at conference, and gave presentation. Audience included academics, practitioners, policy-makers, activists and a secretary to a UN special rapporteur. Developing of comparative understandings across Europe, new ideas about Eurocentricity in relation to underpinning disability rights. Strengthening of network and plans for follow-up publication and /or event
Year(s) Of Engagement Activity 2019
URL http://www.nndr2019.org
 
Description Contribution to DiGRA conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Media (as a channel to the public)
Results and Impact Dr Diane Carr gave 2 presentations: Carr, D (2016) Delicate Subjects: Vulnerability and validation in action adventure games. DiGRA/FDG '16 - Abstract Proceedings of the First International Joint Conference of DiGRA and FDG. Dundee August 2016.

Carr, D (2016) Players, Diverse Bodies and Embodied Interpretation: Issues in Research Design. DiGRA/FDG '16 - Abstract Proceedings of the First International Joint Conference of DiGRA and FDG. Dundee August 2016.
Game designers, artists, Digital games research community, Foundations of Digital Games community, students and academics.

Purpose of intervention: To disrupt and problematize the dominant models of 'disability' within digital games and digital technology design and research communities. This was successful. It has become more common to see critical, cultural and social models of disability acknowledged across the field. This research also functioned as preparation for the disability and science fictions audience studies work for 2018.
Year(s) Of Engagement Activity 2018
URL http://www.digra.org/digital-library/forums/13-digra-fdg2106/
 
Description Contribution to DiGRA conference, Turin 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact (Carr, D) Body Count, paper for DiGRA 2018: The Game is the Message Campus Luigi Einaudi, Università di Torino, Turin, Italy July 25-28th.

DIGRA = Digital Games Research Association
Year(s) Of Engagement Activity 2018
URL http://digra2018.com
 
Description D4D Facebook and Twitter Pages 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact D4D Facebook and Twitter pages brings news items about disability to a wider audience and opportunities to discuss current issues and events.
Year(s) Of Engagement Activity 2018,2019
URL https://d4d.org.uk
 
Description D4D: DIY cabaret, ARC Stockton Arts Centre 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Cabaret show performed at venue in the North East of England with a reputation for supporting disabled art. The event gave artists and opportunity to exchange ideas, enabling disabled artists to build a community and non-disabled audience members to review their ideas about disability.
Year(s) Of Engagement Activity 2019
URL https://arconline.co.uk/whats-on/theatre-dance/disconsortia-diy-cabaret
 
Description Disconsortia Group meeting, NewBridge, Gateshead 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Disconsortia is a disabled-led consortium reviewing opportunities in the arts for disabled artists, and disseminating information to other artists. While Disconsortia itself consists of a relatively small number of practitioners, it accesses far larger numbers through online dissemination.
Year(s) Of Engagement Activity 2020
URL https://disabilityarts.online/magazine/opinion/disconsortia-a-disabled-artist-led-consortium-of-extr...
 
Description Events at New Vic Theatre 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact Work with 'Strathcross' - a group of participants made up of Adults with learning disabilities.

The participants at the event were accessed from 2 different residential houses as well as participants who live independently.

Through using a series of creative techniques, participants were encouraged to explore ideas surrounding life experiences, personal skills and work related aspirations. The end goal of the project was for participants to exhibit and showcase their personal life journeys and ambitions both individually and as a group.

Participants were able to express their highest aspirations regarding their own lives and also had peer to peer testimony fed back to them from their friends and people who know them best. Along with this came spontaneous self-expression about the state of the world as they see it including current political events and emotive responses to pertinent subject matters that affect them both locally and globally.

This was both an unexpected and a genuinely enlightening outcome to the project.

The same group are currently doing a further Employment based project which will include roleplay in the work in which they aspire to and to ask questions to employers about the kind of skills and life experiences that led them to their roles. This will be a co-designed outcome and will readdresses the balance between interviewer and interviewee as the roles are reversed in terms of asking questions. This will also have the added dynamic of people who are seen to have a disability asking pertinent questions about their potential futures in employment and there is some scope to address several key points, Either directly or indirectly:

What are the barriers to employment?
How can these barriers be overcome for people who may or may not define themselves as " disabled"
Why and If such barriers exist.
And what could be done to resolve this?
Year(s) Of Engagement Activity 2017
 
Description Exhibition and Workshop, 20.10.17, at MShed Bristol - The Guild of the Brave, Poor Things 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact An exhibition was held at MShed, Bristol (20.10.17). This was part of the History of Place events across the UK, and was an opportunity for D4D to showcase ongoing work. The event included a workshop. 3 members of the D4D team gave presentations - and Co I, Esther Fox (Accentuate) played a central role in organising the event in conjunction with Bristol Museums. Dr Praminda Caleb-Solly spoke about technology and disability, and Dr Susan Moffat spoke about Cultural Animation as a research tool. The event was attended by people from a wide range of backgrounds. Apart from being thought-provoking, it facilitated networking across organisations, and heightened awareness of the D4D project.
Year(s) Of Engagement Activity 2017
URL https://www.bristolmuseums.org.uk/m-shed/whats-on/brave-poor-things/
 
Description Invitation to showcase D4D work with telepresence robots at Mudec Museum, Milan 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Professor Praminda Caleb-Solly (D4D Co I) showcasing use of telepresence robots - as used in D4D project, at Exposition of Robotics at Mudec Museum, Milan, after invitation from BioRobotics Institute of Pisa.
Year(s) Of Engagement Activity 2019
URL https://www.mudec.it/eng/
 
Description Invited presentation / keynote at GamesLit, 2019, Kolkata, India 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Postgraduate students
Results and Impact Dr Diane Carr (UCL) from the D4D team was invited to give a keynote presentation at GamesLit 2019 an international conference in Kolkata, India on Games and Literacy Theory.
Year(s) Of Engagement Activity 2019
URL https://gameslit2019.wordpress.com
 
Description Mahdlo Youth Zone, Oldham 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Schools
Results and Impact Co Is Lucy Burke and Susan Moffat met with approximately 20 potential participants at Mahdlo and talked about the kind of things they are currently involved in and what would like to do within the project. There was a lot of interest in creating new worlds and what that would mean, what things they would take with them and what would they leave behind.
We also linked up with musicians who are working with Mahdlo, to add a musical element to workshops. We would like to take a co-design, co-created approach with the group ensign that their voices, ideas, further themes questions for research guide to the development the work

It was clear that they would like to come to the New Vic Theatre to have a tour as well as attending a workshop with us.
Year(s) Of Engagement Activity 2018
URL https://www.mahdloyz.org
 
Description One day 'symposium' - Let's Talk About Disability - at Sick!Festival 2019 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact Let's Talk About Disability was a one day workshop at the Lowry Theatre Salford. The programme was devised by Lucy Burke and featured members of the D4D team: Tanvir Bush, Esther Fox, Praminda Caleb-Solly, Colin Hambrook, Allan Sutherland and Disability Arts Online, alongside speakers such as the actor Cherylee Houston, the comedian Lawrence Clark, the journalists Richard Butchins and Frances Ryan, and activists such as Dennis Queen and Simone Aspis. Panel discussions explored themes such as care, technology, media representations and the right to exist (ie genetic screening and the 'new eugenics'). These were all filmed. Other activities included zine-making with Disability Arts Online and Esther Fox's virtual reality 'game' about Galton and genetic selection. Audience feedback indicates that the event introduced new ways of thinking about disability and the value of different ways of being in the world.
Year(s) Of Engagement Activity 2019
URL http://www.sickfestival.com/events/disability-and-society/
 
Description Panel presentation at DadaFest 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Media (as a channel to the public)
Results and Impact DadaFest runs a prestigious international event. The event was streamed live and reached an international audience. DadaFest was one of the first disabled-led arts organisations in the UK and has played an integral part of the campaign for greater equality and access for disabled people.

Based in the heart of Liverpool, DadaFest has built a national and international reputation for delivering high quality and accessible events and projects, including a critically acclaimed biennial festival.

See - https://www.dadafest.co.uk/who-we-are/history/

Co Is Allan Sutherland, Colin Hambrook and Trish Wheatley (Ceo of Disability Arts Online) read poetry that emerged from D4D and led a panel discussion about disability and the arts.
Year(s) Of Engagement Activity 2018
URL https://www.youtube.com/watch?v=PVLj51CiXz0&feature=youtu.be
 
Description Podcast 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Media (as a channel to the public)
Results and Impact Disability Arts Online (partner organisation) (in conjunction with Graeae) producing a monthly podcast on themes relating to D4D interests. Set up involving members of D4D team and including interviews with D4D team members. Circa 1500 listens in total on checking (17.10.19)
Year(s) Of Engagement Activity 2019
URL https://podcasts.apple.com/gb/podcast/disability-arts-online-graeae-present-disability-podcast/id146...
 
Description Podcast for Sick! Festival 2019 
Form Of Engagement Activity A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact 'What's Normal?' Podcast interview of Lucy Burke, D4D Co-I and curator of the Let's Talk About Disability Strand of Sick! Festival 2019 in Manchester. The interview was conducted by the comedian Smug Roberts at the Miners Community Centre in Moston, North Manchester. The aim of the podcast was to explore attitudes towards disability, community and belonging. It encompassed the main themes of the Disability Strand of Sick! Festival and Lucy's experiences as a mother of a young man with autism and a learning disability. Sick! Festival feedback indicates that the podcast changed audience perceptions of disability (particularly learning disability).
Year(s) Of Engagement Activity 2019
URL http://www.sickfestival.com/smug-roberts-sick-festival-2019-episode-2-lucy-burke/
 
Description Post-Show Discussion UK Premiere Performance: To Belong by Koen de Preter and Theater Stap (BE), Sick!Festival The Lowry Theatre 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact Post show discussion about the meaning of belonging and community as explored in the performance of 'To Belong' by a theatre group comprising adults with learning disabilities.
Year(s) Of Engagement Activity 2017
URL http://www.sickfestival.com/whats-on/sick-festival-2017-manchester/koendepretertobelong17
 
Description Post-show discussion, Let's Talk about Dis, Candoco/Hetain Patel 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact Lucy Burke lead the post-show discussion and 'talk' after the performance of Candoco dance company's 'Let's Talk About Dis' at the Lowry Theatre, Salford on 18.9.19
This discussion included members of the cast and the show's creator Hetain Patel. It explored attitudes disability and difference in relation to dance and to everyday life. Audience feedback indicated that the experience changed their perceptions of disability art and ideas of 'normalcy'.
Year(s) Of Engagement Activity 2019
URL http://www.sickfestival.com/events/lets-talk-about-dis/
 
Description Presentation at ECER (European Conference on Educational Research), Bolzano, Italy 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact The aim of the 'European Conference on Educational Research' is to create an inclusive platform for initiating, reporting, discussing and promoting high quality educational research, that not only acknowledges its own context but also recognises wider, transnational contexts with their social, cultural and political similarities and differences.

The presentation by Dr Burke and Professor Levinson introduced innovative arts-based practices to the audience. There was significant interest in the approaches - as reflected by discussion after the presentation and e-mail inquiries. Since ECER - and with an interest in D4D methodology - Professor Levinson has been approached by a team led by the University of Oslo to participate in proposed research around citizenship, inclusive education and relations between mainstream and migrant populations. The outline bid has been submitted to NordForsk and is currently under review.
Year(s) Of Engagement Activity 2018
URL https://eera-ecer.de/ecer-2018-bolzano/
 
Description Presentation at Oxford Law and Disability Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact 80 people attended the Disability Law and Policy Conference at Oxford University, including representatives of stakeholder groups, charities, grassroots organisations, academics, and policy-makers. Academics involved included Professor Michael Stein from Harvard Law School. Steph Harvey, D4D team member, presented findings on her work - 'Diversity in Disability: Ethnicity and cross-cultural considerations in the UK UN CRPD'. Given the topic, and in the light of Steph's background in government work, she was approached afterwards by other delegates seeking advice on ways of having impact among policy-makers.
Year(s) Of Engagement Activity 2018
URL https://www.law.ox.ac.uk/events/inaugural-oxford-disability-law-and-policy-conference-2018
 
Description Series of D4D presentations, exhibition and participation in expert panels at 2019 SICK! Festival, Manchester 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Media (as a channel to the public)
Results and Impact The SICK! Festival is an international arts programme that commissions artists and academics from around the world. It took place at the Lowry Arts Centre in Manchester. The D4D team was invited to run presentations and an exhibition which involved a VR installation and use of robot-doubles showing the uses of technology in both research and care contexts. The team was also involved in expert panel discussions, involving 50-100 people, with others accessing via video link.
Year(s) Of Engagement Activity 2019
URL http://www.sickfestival.com
 
Description Three small group workshops with established and emerging disabled artists 14/9/17, 212/9/17/28/9/17 at Graeae Theatre 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Allan Sutherland (Co I) ran three workshops at Graeae Theatre, London, for disabled artists. The workshops explored attitudes among participants around 'disability' and 'art', and invited participants to reflect on ways which disability had had an impact on their own art. Art was considered in social and political contexts.
Year(s) Of Engagement Activity 2017
 
Description Troubling Legacies, Fractured Futures Research Seminar and Workshop at University College, London 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Postgraduate students
Results and Impact Two D4D team members played central roles in an event at UCL in March 2019 considering the Galton exhibition, and the implications of Galton's theories in the context of current development of genetic technology.
Year(s) Of Engagement Activity 2019
URL https://playhouse.wordpress.com/2019/01/31/troubled-legacies-fractured-futures/