Neighbourhoods and Dementia: A mixed methods study

Lead Research Organisation: University of Manchester
Department Name: School of Health Sciences

Abstract

Dementia is often presented as a global issue with substantial economic consequences for all countries and societies providing diagnostic and/or supportive services. Whilst we believe this is necessary and important information, in our 5-year study we want to celebrate the achievements, growth and contribution that people with dementia and their carers make to society. To do this, we are putting the local neighbourhood and networks in which people with dementia and their carers live and belong at the centre of our work. We have designed a study on neighbourhood living that has 4 inter-linked work packages (WPs), an international partner , the Center for Dementia Research [CEDER] at Linköping University, Sweden, and strong user involvement through the EDUCATE and Open Doors groups [Greater Manchester, England]; The ACE Club [Rhyl, North Wales]; and the Scottish Dementia Working Group [Glasgow, Scotland]. In the UK our academic partners are situated in Manchester, Salford, Stirling, Liverpool and London and we have third sector involvement through the Deaf Heritage Project at the British Deaf Association, as well as a range of project partners which includes the North West People in Research Forum, the Citizen Scientist initiative and a Community Integrated Company that supports people with dementia through accessible technology [Finerday]. As this is a complex set of networks based around a neighbourhoods theme, each WP will use different research methods and partners to meet their primary aims and objectives. WP1 is a secondary analysis of the English Longitudinal Study of Aging database which will compile Neighbourhood Profiles that will be available for the whole country; these Profiles will include information on cognitive risk factors and clusters of population; WP2 will develop a set of core outcomes measures in dementia that will involve people with dementia and their carers in deciding what measures and priorities are important for them; WP3 will explore wha makes a dementia friendly neighbourhood and will take place in Stirling, Salford and Linköping; WP4 has 3 interventions representing various stages of the Medical Research Council's complex interventions framework. Intervention 1 will be a full RCT of an educational intervention for general hospitals that several members of the project team have developed and piloted over the last 2 years. In this study, we want to find out if the educational intervention results in people with dementia leaving hospital for their neighbourhood home sooner, but with high levels of satisfaction. Interventions 2 and 3 are pilot trials. Intervention 2 will be conducted in Sweden and Manchester, UK and will use technology to help couples, where one person has a dementia, to better self-manage the condition and, more importantly, their relationship. In intervention 3, we are looking at the diversity of a neighbourhood and will develop the first digitalised life story intervention in the world for Deaf people (BSL users) who live with dementia. This will be the first intervention for this group in the world. In this programme of work we will develop a user research programme as some people with dementia have told us that they would like to work alongside the research team as co-researchers. We will therefore appoint a PPI co-ordinator for the duration of the study with a responsibility for identifying co-researcher training needs, running a regular co-research programme, mentoring co-researchers, ensuring user goal preferences are met and facilitating user dissemination. Through the implementation of a neighbourhood approach each WP will promote closer relations and working between professionals, lay people and people living with dementia. This study will also contribute to the currently limited evidence base for dementia friendly communities and provide knowledge and insights to support a robust theoretical framework of neighbourhood work that will have international scope and relevance

Planned Impact

Building on our long-standing working relationship with 4 user groups: EDUCATE and Open Doors [Greater Manchester, England]; The ACE Club [Rhyl, North Wales]; and the Scottish Dementia Working Group [Glasgow, Scotland], the Neighbourhoods and Dementia study has integrated multiple pathways for members of these groups to engage throughout the 5-year programme. In consultation with each of the user groups, we have developed a Dementia User Involvement and Engagement Model and 6-module 'Co-researcher Education Programme' that prepares interested users to participate in all stages of the research programme. We have consulted with both the NIHR Research Design Service and the NIHR INVOLVE organisation, and their good practice guidance, to help us prepare both these innovations. Manchester Informatics will develop the software to assist users in their co-research work. Once suitably trained, user group members will take a full and active role as co-researchers in the work packages (WPs) and interventions outlined in the research programme. To date, user group members have expressed an interest in a direct data collection role in the dementia core outcomes data set (WP2), the dementia friendly neighbourhood work (WP3) and the pilot RCT aimed at developing a self-management education course to help couples, where one person has dementia, keep doing everyday tasks and activities together (WP4.2). Remunerated in accordance to NIHR INVOLVE guidance, co-researchers will also have the opportunity to act as consultants throughout each of the WPs offering advice and guidance to the PPI committee and PI (Prof Keady). We will facilitate separate co-researcher meetings for members to link-up outside the 'formal' research teams to discuss the project and set action plans. Through world-class videoconferencing facilities at the University of Manchester, we will organise an annual opportunity for UK co-researchers to meet those at our international partner based at the Center for Dementia Research [CEDER] in Linköping, Sweden, enabling cross-national learning, networking, project advice and friendship circles to emerge. As recommended by the NIHR EQUIP study, we will appoint a PPI co-ordinator (Dr Swarbrick) for the duration of the research programme with a responsibility for identifying user training needs, overseeing the co-researcher education programme, mentoring co-researchers, ensuring user goal preferences are met and facilitating co-researcher involvement in dissemination and evaluating impact. Dr Swarbrick has worked closely with EDUCATE and Open Doors over the last 4 years and Prof Keady helped establish the Open Doors position/network and has also worked with the ACE Club since their inception in 2002, as evidenced through joint publications with Club members. As the ACE Club is funded through donations, we have costed a part-time (0.2 WTE; over 5 years) project coordinator to be based with ACE Club members to facilitate involvement and liaise with the Dr Swarbrick and Prof Keady. Adapting user components of the NIHR Mental Health Research Network toolkit, Dr Swarbrick will monitor and facilitate the evaluation of user involvement in the Neighbourhood and Dementia study through evaluation forms administered every 6 months and at monthly face-to-face meetings. This information will be collated, analysed and fed back to the user groups and any identified points of action discussed directly with individuals, user groups, Prof Keady and the PPI Committee. All co-researchers will be invited to participate in an 'Impact on Policy' event, run by the Rt Hon Hazel Blears MP who is Vice Chair of the All Parliamentary Group on Dementia (and Project Partner) and Prof Alistair Burns, who is the National Clinical Director for Dementia for the Department of Health (Co-I). The event will give the opportunity for co-researchers to explore the potential contribution of the research programme and their own involvement on national guidance and policy.

Publications

10 25 50
 
Title 'Dementia and Everyday Life I: The Newspaper' 
Description Visual magazine depicting research findings. Co-designed/produced with study participants 
Type Of Art Artwork 
Year Produced 2018 
Impact
 
Title 'Dementia and Everyday Life II: Staying In' 
Description Visual magazine depicting research findings. Co-designed/produced with particpants from study 
Type Of Art Artwork 
Year Produced 2019 
Impact
 
Title 'Everyday Places: Why Neighborhoods Matter for People Living with Dementia' - I 
Description Exhibition displayed as part of ESRC FEstival of Social Science 
Type Of Art Artistic/Creative Exhibition 
Year Produced 2018 
Impact
 
Title 'Everyday Places: Why Neighborhoods Matter for People Living with Dementia' - II 
Description Exhibition displayed at 'Shifting Paradigms in Dementia: Arts & Dementia event, University of Stirling 
Type Of Art Artistic/Creative Exhibition 
Year Produced 2018 
Impact
 
Title Cultural Heritage Film 
Description Three Salford-based cultural heritage films (totalling 1hr 20mins). 
Type Of Art Film/Video/Animation 
Year Produced 2018 
Impact The films were only recently launched but we have been asked to produce dvds for dissemination. 
 
Title Exhibition, Everyday Places - why neighbourhoods matter to people living with dementia 
Description Exhibition held at Manchester Central Library 
Type Of Art Artistic/Creative Exhibition 
Year Produced 2017 
Impact Exhibition to engage members of the public about the research and encourage discussion about how people can contribute to making their own neighboruhoods more supportive for people living with dementia. Engaged directly with over 100 people. Attendees reported on how they might reconsider their neighbourhoods and local-roles to support others. Event garnered press and social media interest. 
 
Title Mr Alzheimer's 
Description Mr Alzheimer's (soft toy) has been designed and produced by the lead of Salford INSPIRE, who has young onset dementia. She has worked alongside pupils from local schools (as advisors) to make the toy accessible, whilst obtaining the necessary fire safety certificate and meeting European Standards for home made toys. 
Type Of Art Artefact (including digital) 
Year Produced 2017 
Impact Children have found the toy accessible and are now piloting by taking the toy home to engage with their families. 
 
Title Neighbourhoods: Our People, Our Places: Dementia Awareness Action Week Event 
Description Interactive event during Dementia Awareness Week at a dementia resource centre/hub. Engaged with c.30 people 
Type Of Art Artistic/Creative Exhibition 
Year Produced 2017 
Impact engagement and interactive with carers, people living with dementia and practitioners about how neighbourhoods can become more dementia-friendly 
 
Title Short film on the Neighbourhoods study for ITN productions in partnership with Alzheimer's Disease International 
Description Commissioning and development of the 'Every Three Seconds' film produced by Alzheimer's Disease International and ITN and launched at ADI conference, Chicago, July 2018. Celebrates the role of people with dementia leading and doing research on the ESRC/NIHR Neighbourhoods and dementia study. 
Type Of Art Film/Video/Animation 
Year Produced 2018 
Impact Selected as one of 25 projects from across the world to showcase at the ADI International Conference; only film chosen to celebrate the work and creativity of people with dementia in the doing of research 
URL http://www.neighbourhoodsanddementia.org/videos/
 
Description Work Programme 2 [of 8] is the only programme on the Neighbourhoods study to have completed their work. These key findings therefore only relate to work programme 2 which is titled: 'Generating Neighbourhood Profiles of Cognitive Ageing & Service Use Using Nationally Representative Population Data'

Supporting Narrative on Findings
The main team responsible for the activity is Dr Gindo Tambupolon, Professor James Nazroo and Professor Neil Pendleton, an interdisciplinary group of medical, social gerontologists, geriatrician and social statistician. The aim of work programme 2 on the Neighbourhoods study, using representative longitudinal cohort study in England, is to determine neighbourhood characteristics associated with good/poor cognitive ageing. We also show individual and area level associations with these different paths in ageing cognition. For this we have used the population representative sample of adults, the English Longitudinal Study of Ageing (ELSA). Using data from the Office of National Statistics and linked dementia prevalence data we have combined out-put areas into 310 local authorities or districts across England producing geographical maps. These show geographical variation in dementia prevalence across England. We followed this with a multilevel model to determine individual risk factors or area features associated with dementia prevalence. The results suggest that area differences in dementia prevalence are determined by individual risk factors such as gender, education, and physical activity but not area features such as index of deprivation or land use mixes. Of course this is the first analysis and cannot examine all area features effects regarding dementia prevalence. The main findings of this work are published in the International Journal of Geriatric Psychiatry:

Tampubolon, G., Nazroo, J., Keady, J. and Pendleton, N. Dementia across local districts in England 2014-2015. International Journal of Geriatric Psychiatry, 2018, 33:1127-1131. DOI: 10.1002/gps.4903
Exploitation Route Platform for further Big Data analysis and replication of studies
Sectors Communities and Social Services/Policy,Healthcare,Government, Democracy and Justice

 
Description Impact on the ESRC/NIHR Neighbourhoods and Dementia study [Neighbourhoods study] continues to be seen most readily in work programme 1 [of 8] led by Dr Caroline Swarbrick (University of Manchester until February 2019, now at Lancaster University) and work programme 4 [of 8] jointly led by Dr Richard Ward (Stirling University) and Professor Andrew Clarke (Salford University). As reported in the narrative statement in 2018, and supported through the funding structure for the Neighbourhoods study and the supporting sub-contracting arrangements, negotiated partnership working between Dr Caroline Swarbrick and the third sector (Age UK Salford) led to the development of a new group, Salford Inspire, which now employs a person living with dementia [Joy Watson] to coordinate its service and public engagement work in the neighbourhood. As reported in the Salford Inspire newsletters that are produced every quarter, Jo Watson has designed and led on the co-creation of an inter-generational educational toy and accompanying materials for schoolchildren to learn about dementia. This is called the 'The Mr Alzheimer's school campaign' and it has been piloted in three Salford schools with key input from St John's Primary School - 'Friends of Mr Alzheimer's'. The campaign is based around a soft toy - Mr Alzheimer's - who has a travel bag, diary, dementia information and stories. School children take Mr Alzheimer's home, read the stories with their families, take him on adventures and capture all of this in the diary. The campaign has created new opportunities for more dementia-related conversations within families and in the schools. The focus is now on finalising the Mr Alzheimer's pilot with a cartoon, puzzle sheets and a story. These are being co-produced with the Friends group and Paul Loudon, a local artist in Salford. All this work is led by Joy and impact supported through the Neighbourhoods study. The Mr Alzheimer's work was also presented by Joy at the Alzheimer's Europe conference in Barcelona at the end of October 2018. An example of the feedback from the initiate is as follows: 'The Mr Alzheimer project has given the children in my school important skills to make sense of the world around them. Children are naturally curious and the project has enabled the pupils to comfortably ask questions, research new areas and share their new knowledge with staff, peers and their families. Many of the pupils could identify with dementia and have come across this in their families or their local community. The children were able to easily share the stories in the pack and discuss the illness with their families and friends. They also adored taking Mr A on his various outings and recording this using pictures, photos and writing. We have many pupils waiting for their turn to take Mr A on his next exciting adventure! Leigh Hulme, Teaching Assistant of St Andrew's Primary School, Salford, has been The Open Doors Research Group (45 people with dementia and care partners working as co-researchers on the Neighbourhoods study) are also working with Tracks and Layers (an animation company in Salford), Manchester Camerata and Chronicle Films to bring to life their neighbourhood experiences of members of the Open Doors Research Group as seen on 'The Changing Face of Our Neighbourhood' films available on You Tube. In work programme 4, the team re engaged in the evaluation of two neighbourhood projects that support people living with dementia to continue to do ordinary things in the neighbourhood. These are the Dementia Dining Group, and the Paws for Dementia Dog Walking Group. Both projects are delivered through Open Doors and funded through Greater Manchester Mental Health NHS Foundation Trust. Led by the Chief Investigator, work programmes 1 and 4 have produced a short, four minute film produced by ITN Productions as part of the 'Every 3 seconds' campaign, a partnership between the Alzheimer's Disease International and ITN productions to showcase a number of studies around the world that are making a difference in dementia. Our four minute film focussed on the involvement and leadership of people with dementia on the doing of research, as conducted on the Neighbourhoods study. The film was launched in Chicago at the ADI conference in July 2018 and we also wrote a supportive article published in the Journal of Dementia Care that outlined this process: this article was led by people with dementia and involved the journalist from ITN Productions who helped to make our four minute film. This video is available on the neighbourhoods study website on the videos section: www.neighbourhoodsanddementia.org
First Year Of Impact 2018
Sector Education,Healthcare,Culture, Heritage, Museums and Collections
Impact Types Cultural,Societal

 
Description Consultation with Deaf community for Liverpool's Dementia Strategy 2020
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Gave evidence to a government review
Impact Support was given to Merseyside Society for Deaf people and Together in Dementia Everyday (TIDE) for a consultation about the experiences of Deaf people living with dementia and their carers. This input was embedded in a draft document - Dementia Strategy 2020 - which was directly sent to Liverpool City Council. This is the first time Deaf BSL users have been able to directly contribute at policy level to their local council.
 
Description Deaf Carers Toolkit Steering Group
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Membership of a guideline committee
Impact I am a member of the British Deaf Associations' Deaf with Dementia in Scotland's Steering Group. My involvement has contributed to the first edition of a Deaf carer's toolkit which will be disseminated to Deaf people living with dementia and their carers within Scotland. This toolkit (and the project) has been funded by Life Changes Trust.
 
Description Influenced decision to create dementia-enabling version of the Place Standard Tool (Scottish Government)
Geographic Reach National 
Policy Influence Type Participation in a national consultation
 
Description Alzheimer's Society Innovation and Research Fund
Amount £10,000 (GBP)
Organisation Alzheimer’s Society 
Sector Charity/Non Profit
Country United Kingdom
Start 05/2017 
End 04/2018
 
Description Dementia Friendly Community Development
Amount £223,000 (GBP)
Organisation The Life Changes Trust 
Sector Private
Country United Kingdom
Start 08/2017 
End 08/2020
 
Description ESRC Festival of Social Science
Amount £1,000 (GBP)
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 09/2017 
End 12/2017
 
Description ESRC Impact Acceleration
Amount £41,050 (GBP)
Funding ID ES/L001772/1 
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 03/2018 
End 04/2019
 
Description ESRC Strategic Investments - International Networking Competition
Amount £25,000 (GBP)
Funding ID ES/L001772/1 
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 08/2018 
End 03/2019
 
Description ESRC impact enhancement
Amount £15,434 (GBP)
Funding ID ES/L0017721/1 
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 03/2018 
End 06/2018
 
Description European Foundations Intervention on Dementia
Amount € 9,000 (EUR)
Organisation Network of European Foundations 
Start 03/2018 
End 04/2019
 
Description Higher Education Innovation Fund
Amount £6,100 (GBP)
Organisation University of Salford 
Sector Academic/University
Country United Kingdom
Start 05/2017 
End 07/2017
 
Description Lancaster University Division of Health Research Staff Development Award
Amount £1,176 (GBP)
Organisation Lancaster University 
Sector Academic/University
Country United Kingdom
Start 07/2018 
End 07/2018
 
Description Lancaster University Division of Health Research Staff Development Award - Work Programme 3 and Work Programme 5
Amount £5,800 (GBP)
Organisation Lancaster University 
Sector Academic/University
Country United Kingdom
Start 10/2017 
End 10/2017
 
Title WP3 Delphi Survey 
Description A Delphi survey administered to 288 participants, and designed to specifically accommodate people living with dementia as a participant group. Other participant groups are care partner (or carers), health & social care professionals, policy makers and researchers. 
Type Of Material Improvements to research infrastructure 
Year Produced 2017 
Provided To Others? No  
Impact Considering previous Delphi approaches with people living with dementia have been unsuccessful, WP3 undertook substantive member involvement consultation with people living with dementia in order to design an accessible data collection tool. This innovative method addresses the need to get the perspective of people living with dementia on core outcomes for community based non-pharmacological interventions. 
 
Title WP5 Organisational Hospital Survey tool 
Description Organisational level survey adminstered to 194 acute NHS hospitals to gather data and map: - hospital demographic information and dementia service provision and intiatives - hospital level data on dementia trained staff - indivdiual dementia training packages utilised within hospitals 
Type Of Material Improvements to research infrastructure 
Provided To Others? No  
Impact The orgainsational hospital survey tool has been received by all acute hospitals in England. We have worked with the Royal College of Psychiatrists National Audit on Dementia team to coordinate the distribution of the survey to specialist staff contact lists. This has contributed to national momentum for the evaluation of hospital dementia training, at a time of policy drive to improve provision of services to dementia patients in these settings. 
 
Title WP5 staff level hospital survey tool (developed with close involvement of people living with dementia and carers) 
Description Staff level survey will be administered to 24 acute NHS hospitals to gather on dementia training (approximately 350-720 staff to complete): staff demographic information and dementia related domains/outcomes (e.g. knowledge and attitudes, staff strain, and organisational culture). Developed in close involvement with key stakeholders; including people living with dementia and carers, hospital staff, dementia trainers and leads, and researcher. 
Type Of Material Improvements to research infrastructure 
Year Produced 2018 
Provided To Others? No  
Impact The staff survey tool will be received by 24 acute hospitals in England from a randomised list (approximately 350-720 staff to complete). We have worked with the Royal College of Psychiatrists National Audit on Dementia team and Royal College of Nursing to encourage the distribution and completion of the survey. Given the strong steer of work programme 1 to maximise the voice and representation of people living with dementia in our research, we involved people living with dementia and their carers from the early stages of study design and survey development. 
 
Description British Deaf Association Heritage Project 
Organisation British Deaf Association
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution A research requirement for the development of a digital life story tool for use by members of the Deaf community is access to an historical archive of pictures and photographs. Our partner organisation the BDA had already received a heritage lottery grant to make publicly available an archive of films from Deaf history. We contributed to the digitisation of over 30,000 images/photographs from Deaf history and these are being made available back for our use in the project as well as to the wider general public.
Collaborator Contribution We have provided the funds to permit the digitisation of the photographs to ensure the saliency and relevance of some of the materials to be used in one of the tools within within our research project.
Impact Outputs are still on-going. Yet to be fully realised with the digital life story tool we are developing.
Start Year 2015
 
Description Collaboration with the Centre for health Economics, University of York 
Organisation University of York
Department Centre for Health Economics (CHE)
Country United Kingdom 
Sector Academic/University 
PI Contribution Organised discussions with team at CHE, York, about analysis of hospital outcomes for patients with dementia, as they have worked in this area before
Collaborator Contribution Contributed to discussions. One CHE team member, Dr Panagiotis Kasteridis has joined and participated in the N&D WP5 scientifc advice committee
Impact Exchange of scientific expertise
Start Year 2016
 
Description Deaf carers of people with dementia 
Organisation Alzheimer’s Society
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution We provided specialist research expertise in dementia and Deaf people to the evolution of a pilot home based intervention aimed at Deaf carers of people with dementia. We became part o the delivery team for this pilot, carried out the underpinning consultation that supported the pilot and the initial evaluation of its process and outcomes.
Collaborator Contribution The partners were the Alzheimer's Society Northern Ireland and the British Deaf Association Northern Ireland along with the central research and development team at the Alzheimer's Society. The central team initiated the collaboration in the first place, Alzheimer's Society Northern Ireland and the BDA Northern Ireland worked in partnership with us on initial scoping research, the evolution of the pilot intervention and its initial delivery prior to full commissioning of the trial service.
Impact Internal scoping project report: Double time: Deaf carers of people with dementia. A commissioned journal article currently being written for publication later in 2018 based on the Deaf carer data.
Start Year 2017
 
Description Dogwalking with Dementia support/activity group 
Organisation Greater Manchester Mental Health NHS Foundation Trust
Country United Kingdom 
Sector Hospitals 
PI Contribution Approach and findings from research led directly to development of a dogwalking activity group for people living with dementia, funded for 2 years by GM NHS Mental lHealth Foundation. Funding includes employemnt of individual living with dementia to support the group as well as time for GM NHS MHF staff to attend in support capacity
Collaborator Contribution Initiatied idea; input to evaluation
Impact too early to indicate/assess
Start Year 2018
 
Description Heritage Project 
Organisation Salford Museum and Art Gallery
Country United Kingdom 
Sector Public 
PI Contribution I am working with Salford Museum and Art Gallery to design and undertake a cultural heritage project alongside Open Doors, Salford (group of people living with dementia).
Collaborator Contribution An Outreach Officer is working alongside the research team to provide the cultural heritage expertise and resources for the project. She also facilitates some of the meeting sessions which take place at Salford Museum and Art Gallery.
Impact The project has recently obtained HRA, NHS and Trust ethical approval to commence.
Start Year 2015
 
Description National Audit of Dementia 
Organisation Royal College of Psychiatrists
Country United Kingdom 
Sector Learned Society 
PI Contribution - Use of secondary data for national recruitment strategy of NHS hospitals.
Collaborator Contribution - Dataset sharing for development of hospital sample frame to recruit for organisational and staff survey. -Sharing pre final report Audit results. - Advisory Group membership.
Impact Acute hospitals sample frame.
Start Year 2015
 
Description Salford INSPIRE 
Organisation Age UK
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Through agreement from the funders, we have re-allocated funding to set up an information-giving, awareness-raising group of people living with dementia based in Salford. The group is facilitated by a person living with dementia supported by a Support Worker, both as 0.2WTE salaried positions. To support in an advisory capacity.
Collaborator Contribution To take responsibility for recruitment to Salford INSPIRE, supervision / management of staff and overall day-to-day management of the group.
Impact Person specification and job adverts have been developed and promoted. Shortlisting has taken place and the interviews were conducted on 2 March 2016. Applicants for both posts have been successfully appointed with a provisional start date of 1 May 2016.
Start Year 2015
 
Description Scottish Dementia Working Group 
Organisation Alzheimer Scotland
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution WP3 and WP5 Researchers attended a meeting of the Scottish Dementia Working Group in Glasgow in April 2017.
Collaborator Contribution Members of the Scottish Dementia Working Group helped review the WP5 organisation and staff surveys which were due to be launched later in the Study.
Impact Person Living with Dementia involved in the research.
Start Year 2016
 
Description The Memory Friendly Neighbourhoods Knowledge Exchange programme 
Organisation University of Edinburgh
Country United Kingdom 
Sector Academic/University 
PI Contribution I (Richard Ward) was co-PI on this knowledge exchange programme funding. The programme was aimed at bringing together academics, policy-makers, practitioners and people living with dementia to explore the issue of memory friendly neighbourhoods. The collaboration has led to the creation of an online resource to facilitate sharing of knowledge and good practice and we have recently secured funding for a second phase of the work, this time ensuring that the website is dementia-friendly by consulting with people with dementia and carers.
Collaborator Contribution The partners were co-PI's and co-hosts for the programme.
Impact The collaboration was interdisciplinary combining, social care/work, social policy, nursing, architecture, and town planning. Outputs to date include a presentation about the programme to the European Alzheimer Annual Conference in Glasgow 2014, a project report available on the funders website and a dedicated website which is due to be revamped and made dementia-accessible.
Start Year 2014
 
Description WP5 Organisational hospital dementia training survey (Royal College of Nursing and Dementia Action Alliance) 
Organisation Dementia Action Alliance
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution We have successfully gained endorsement of a national research tool by the Royal College of Nursing and Dementia Action Alliance
Collaborator Contribution National professional organisation logos (Royal College of Nursing and Dementia Action Alliance) dded to survey tool
Impact Raised profile and visibility of national survey
Start Year 2016
 
Description WP5 Organisational hospital dementia training survey (Royal College of Nursing and Dementia Action Alliance) 
Organisation Royal College of Nursing
Country United Kingdom 
Sector Learned Society 
PI Contribution We have successfully gained endorsement of a national research tool by the Royal College of Nursing and Dementia Action Alliance
Collaborator Contribution National professional organisation logos (Royal College of Nursing and Dementia Action Alliance) dded to survey tool
Impact Raised profile and visibility of national survey
Start Year 2016
 
Description Work Programme 3 (Core Outcome Set) linking with Work Programme 4 (Our People, Our Places) 
Organisation Places for People
Country United Kingdom 
Sector Private 
PI Contribution We have collaborated with WP4 study researchers to share qualitative data, themes and early findings.
Collaborator Contribution We have collaborated with WP4 study researchers to share qualitative data, themes and early findings.
Impact To share qualitative data, themes and early findings
Start Year 2016
 
Title DemPower couple self-management app - specification, development and delivery 
Description The DemPower guide is a couple-management app aimed at enhancing well-being and relationship for couples where one partner has a diagnosis of dementia. The contents of the guide are based on experience, available research and practice evidence as well as common sense tips and advice. The guide covers aspects related to life at home and in the neighbourhood, physical and mental activities, social life, managing emotions and tips for maintaining a healthy relationship and lifestyle. It is an interactive guide that uses art illustrations, short films, music, games, suggestions for activities together with other useful information such as contact details for relevant organisations. The guide is available in English and Swedish. The app is stored in the GitHub version control system at this private URL: https://github.com/UoMResearchIT/DemPower. There is a public issues tracker page used by the developer (me) & two researchers: https://github.com/jim1001/DemPower-Issues 
Type Of Technology Software 
Year Produced 2018 
Impact The app was issued on tablets to trial couples first in in the UK (starting April 2018) and later in the year to couples in Sweden. The results of the trial are yet to be evaluated. 
 
Title Fuze videoconferencing account 
Description Videoconferencing tool for communication between colleagues working at remote sites 
Type Of Technology Webtool/Application 
Year Produced 2015 
Impact Better communication between remote sites. Update: Our Fuze subscription was ended prematurely before its scheduled expiry on 28 April 2016. The company were taken over and did not reply to our queries. We decided not to renew but to look for another videoconferencing tool 
 
Title Life Story app requirement gathering and initial development training 
Description Tablet application (working name "Memory Box") that enables Deaf people living with dementia to: |add| / |view| / |tag| / |mark as favourite| videos / images and which records the number of times an item has been viewed with accompanying date-time stamp 
Type Of Technology Software 
Year Produced 2016 
Impact Initial requirements gathered. Initial training for development environment begun. A prototype app was produced in Summer 2016 and demonstrated to the researchers. The researchers decided at this stage it would be better to adapt an existing app already close to their requirements. This work will be undertaken by the Swedish developers of the original app. 
 
Title Living Life and Doing Things Together self-management app - requirement gathering & initial development training 
Description The app will take forward self-management as a social intervention for couples where one person has had an early diagnosis of dementia. 
Type Of Technology Software 
Year Produced 2016 
Impact The 'Living Life and Doing Things Together' self-management app will aim to enrich everyday life and neighbourhood integration and include a focus on material (such as tips and cues) to support: 'Communicating Everyday'; 'Maintaining our Social Life'; 'Managing Household Tasks'; and 'Planning to Go Out and About' 
 
Title Scoping & design of a post-funding study website 
Description Design & scoping of a simplified public-facing study website that can easily be maintained after funding finishes (end April 2019). A template form has been circulated to each Work programme for them to supply concise content for the website. 
Type Of Technology Webtool/Application 
Year Produced 2019 
Impact This will be the main source of information for the study after funding finishes. 
 
Title SharePoint Team Area 
Description Study shared working space hosted at University of Manchester but reachable by all project members 
Type Of Technology Webtool/Application 
Year Produced 2015 
Impact Better team collaboration 
URL https://xorg.manchester.ac.uk/sites/ndp
 
Title Study websites 
Description The main publicly-facing website for the study and two internal supporting websites 
Type Of Technology Webtool/Application 
Year Produced 2015 
Impact Web presence for the study 
URL http://www.neighbourhoodsanddementia.org
 
Title Twitter account 
Description Study Twitter account 
Type Of Technology Webtool/Application 
Year Produced 2015 
Impact Twitter presence for study @nbdem. Update: the account has been extended by using software called TweetDeck. TweetDeck allows other authorised accounts to Tweet as if it came from the main study account. This helps us to both increase and unify the social media presence of the study. 
 
Title Zoom videoconferencing training and use 
Description Videoconferencing tool for communication between colleagues working at remote sites 
Type Of Technology Webtool/Application 
Year Produced 2017 
Impact Better communication between remote sites 
URL https://zoom.us/
 
Description 'Together We Can' event 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact Together We Can was a family event organised by Salford INSPIRE. Held at Salford Museum and Art Gallery, the event involved various accessible activities exploring creatives approaches to living with dementia. Attendee feedback was very positive and the host of one of the activities was invited to run further workshops for a local third sector organisation.
Year(s) Of Engagement Activity 2018
 
Description 'Together We Can' film 
Form Of Engagement Activity A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact The purpose was to showcase some of the activities held in Salford (Greater Manchester) for people living with dementia and care partners.
Year(s) Of Engagement Activity 2018
URL https://www.youtube.com/watch?v=S12HtDkJZuI
 
Description 2 x workshops: Doncaster 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Patients, carers and/or patient groups
Results and Impact 2 x presentations given about Deaf people living with dementia and their families and their stories shared.
Year(s) Of Engagement Activity 2017
URL http://www.disabilitysheffield.org.uk/event/2017-11-09-deaf-with-dementia-presentation-1-2pm-and-7-8...
 
Description 21st IAGG World Congress of Gerontology and Geriatrics 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Presentation given by WP3 Researcher Andrew Harding: What is Important to People with Dementia Versus Trial Outcomes: A Neighbourhoods and Dementia Study at conference held in San Francisco on 23-25 July 2017
Year(s) Of Engagement Activity 2017
URL https://www.geron.org/meetings-events/iagg-2017-world-congress-of-gerontology-and-geriatrics/program...
 
Description 27th Alzheimer Europe Conference - Care today, cure tomorrow 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Conference was held in Berlin on 2-4 October and Study presented a talk "Variation in dementia training provided to hospital staff in England:Opportunities and challenges for research"
Year(s) Of Engagement Activity 2017
URL http://www.alzheimer-europe.org/Conferences/Previous-conferences/2017-Berlin/Detailed-programme-and-...
 
Description 30th International Conference of Alzheimer's Disease International, April, 2015, Perth Australia 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Presentation of WP6, "Living Life and doing Things Together -Developing a self-management course with and for couples living with dementia". Discussions regarding research design with the audience.
Year(s) Of Engagement Activity 2015
 
Description @nbdem (WP3 Core Outcome Set and WP5 DEMTRAIN) 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact We regularly Tweet using the @nbdem Twitter account
To raise profile and visibility of the studies especially when engaged in active data collection.
We hope to improved recruitment to the studies through targeted recruitment through twitter
To enhance networks of practice and research
Year(s) Of Engagement Activity 2016,2017
URL http://www.neighbourhoodsanddementia.org/
 
Description AGENET Conference, University of Hertfordshire 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Presentation of the Neighbourhoods and Dementia Study - 19 July 2016 generated discussions around the practicalities of involving people living with dementia in service planning and development.
Year(s) Of Engagement Activity 2016
 
Description Advisory Group (WP3 Core Outcome Set) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Face-to-face Advisory Groups, teleconferences and emails between group members and research team for input, feedback on study design, tools and outputs/ dissemination. The WP3 Advisory Group Chair is Professor Bob Woods, Bangor University. Our Member Involvement (Public Involvement) representative is Dr Daphne Wallace supported by Rev Richard Wallace. Group membership also includes Professor Gail Mountain, Bradford University, and Dr Louise LaFortune, Cambridge NIHR Institute of Public Health.
Year(s) Of Engagement Activity 2016,2017
 
Description Advisory Group (WP5 DEMTRAIN) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact WP5 Advisory Group meet face to face, via teleconference and email. A face-to-face meeting held at the University of Manchester in July 2016. The Advisory Group comprises Dawne Garrett RCN Chair, Ann Johnson Member Involvement Representative (Public Involvement), Janice McGrory Pennine Acute Trust, Chloe Hood National Audit Dementia, Angela Parker Greater Manchester CRN,Dr Panagiotis Kasteridis Centre for Health Economics, University of York, Dr Karen Harrison-Dening Dementia UK, Susan Davidson Age UK,Karen Brewin Lancashire Teaching Hospitals NHS Trust, Karen Partington Lancashire Teaching Hospitals NHS Trust, Dianne Smith University Hospitals Morecambe Bay, Shaun Lever Royal Liverpool and Broad Green Hospitals NHS Trust, Angela Rippon CBE Alzheimer's Society Ambassador, Kelly Kaye Alzheimer's UK.
This group provides input/ feedback on study design, tools and outputs / dissemination.
Year(s) Of Engagement Activity 2016,2017
 
Description Alzheimer Europe conference presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Salford INSPIRE presented their project - 'Mr Alzheimer's' at the Alzheimer Europe conference in Barcelona (October 2018). Interest was expressed from other delegates to roll out the campaign in their respective countries.
Year(s) Of Engagement Activity 2018
URL https://www.alzheimer-europe.org/Conferences/Previous-conferences/2018-Barcelona
 
Description Awareness-raising in Salford 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact Salford INSPIRE ran a Dementia Discovery Day in a local shopping precinct, challenging some of the myths around dementia and raising public awareness.
Year(s) Of Engagement Activity 2017,2018
 
Description BBC Radio Lancashire (9am show) (live/onair) 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Contribution to BBC Radio Lancashire show, 07 May
Year(s) Of Engagement Activity 2018
 
Description Blog for project designed and led by people living with dementia 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Project blog to share the journey of the development of a project, which has been designed and is being led by people living with dementia.
Year(s) Of Engagement Activity 2016,2017
URL https://salfordneighbourhoods.wordpress.com/
 
Description British Society of Gerontology 2017 Annual Meeting - Do Not Go Gentle: Gerontology and A Good Old Age. The Art of Ageing 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Researchers gave a talk "Work Programme 3: Developing a core outcome set for people with dementia living at home in their neighbourhoods and communities" at the annual British Society of Gerontology Annual Conference on 5-7 July 2017 at Swansea University.
Year(s) Of Engagement Activity 2017
URL http://www.britishgerontology.org/events-jobs-news/bsg-events/past-conferences.html
 
Description British Society of Gerontology Annual Conference, BSG 16 on 5-8 July 2016 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Dr Hazel Morbey, Research Fellow and Dr Carol Opdebeeck Research Associate attended the British Society of Gerontology Annual Conference, BSG 16 on 5-8 July 2016 held at Stirling University, Scotland where they gave a presentation entitled: "What is important to people with dementia? Neighbourhoods and Dementia programme study: Core Outcome Set (COS) for People with Dementia Living at Home"
Year(s) Of Engagement Activity 2016
 
Description British Society of Gerontology, University of Stirling 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Work Programme 1 presentation alongside members of the Scottish Dementia Working Group at the British Society of Gerontology Conference, University of Stirling, 6-8 July 2016. The presentation was titled: 'Researching Together: involving people living with dementia as co-researchers'. Co-presenters commented that they (and the wider group) seldom receive feedback from projects they have been involved with. Recent reports from the co-presenters indicated that there has been an increase in research feedback to the group.
Year(s) Of Engagement Activity 2016
URL http://britishgerontology.org/Private/3130/Live/24665_Conference%20brochure_Web%20.pdf
 
Description COMET Amsterdam 2016 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Presentation to other core outcome set developers - sparked debate on importance of qualitative techniques to uncover what outcomes really matter to people with dementia - participants reported increase awareness of the importance of building a qualitative component into the development of core outcome sets. COMET VI was held at De Rode Hoed in Amsterdam, where 170 people came together for two days of plenary talks, workshops, contributed presentations and posters.
Year(s) Of Engagement Activity 2016
URL http://cometinitiative.org/events/SixthCometMeeting
 
Description COMET UK Meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact A researcher from Work Programme 3 (Developing the Core Outcome Set) was invited to attend this meeting to hear about latest developments in COS development. It was an opportunity to share findings from the Work Programme also.
Year(s) Of Engagement Activity 2018
 
Description Café Förget mig ej [Memory Café], Linköping, Sweden 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Patients, carers and/or patient groups
Results and Impact Informal discussions and feed-back on material connected to WP6.
Year(s) Of Engagement Activity 2016
 
Description Capacity building 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Third sector organisations
Results and Impact Formal and informal connections between regional organisations working in the field of dementia have been brokered by the team, with an impact on dialogue between providers, increased cross-referral of service users and overall improved communication.This has involved a series of meetings and planning sessions over the last year and formal partner meetings to bring the different providers together.
Year(s) Of Engagement Activity 2018,2019
 
Description Care home engagement activity 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Patients, carers and/or patient groups
Results and Impact Piloted arts-based activity looking at connections to neighbourhood for people with dementia residing in a care hom
Year(s) Of Engagement Activity 2018
 
Description Clinical input workshop (DEMTRAIN - outcome selection and inclusion/exclusion criteria) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Workshop convened with specialist clinicians to identify patient outcomes and exclusion/inclusion criteria for hospital data analysis.
Year(s) Of Engagement Activity 2016
 
Description Collaboration with the University of Auckland 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Through collaboration with the University of Auckland, Dr Caroline Swarbrick has been invited to give a presentation at a conference in November 2018 as well as collaborate (alongside Prof John Keady) to develop work related to our co-research programme.
Year(s) Of Engagement Activity 2017,2018
 
Description Consulted with the NIHR Complex Reviews Support Unit http://www.nihrcrsu.org/researchinstitutes/healthwellbeing/crsu/ about WP5 systematic review. 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Advice received from Mhairi Mackenzie Professor of Public Policy and Hilary Thomson, Senior Investigator Scientist at the MRC/CSO Social & Public Health Sciences Unit at the University of Glasgow, on our a critical interpretive synthesis of hospital training literature covered within the WP5 programme of work. The advice has influenced the planning and execution of the review.
Year(s) Of Engagement Activity 2016
 
Description Cycle-athon 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact Joy Watson (who is living with young onset dementia), undertook a two-day cycle challenge dressed as a cupcake promoting the work of Salford INSPIRE. Cycling across Salford, Joy disseminated information to a range of local businesses and organisations including the local town hall, as well as the general public. This led to an invitation to lead on the 'Together We Can ' event (held on 24 March 2018).
Year(s) Of Engagement Activity 2017
 
Description Deaf Access: Bedford 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Patients, carers and/or patient groups
Results and Impact A presentation was given to the Deaf community about Deaf people living with dementia and understanding how to support one another.
Year(s) Of Engagement Activity 2017
URL http://www.healthwatchbedfordborough.co.uk/sites/default/files/deaf_dementia_professionals.pdf
 
Description Deaf community and interpreters: Derby 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Two workshops were delivered, one to Deaf community and practicitioners, and the other to several BSL interpreters to understand the stories of Deaf people living with dementia.
Year(s) Of Engagement Activity 2017
 
Description Deaf with Dementia Lecture: Manchester 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact This was a 2 hour lecture with Dementia MSc students based at the University of Manchester.
Year(s) Of Engagement Activity 2017,2018,2019
 
Description Deaf with Dementia Training with BSL Interpreters 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact A series of all-day workshops have been delivered regionally to BSL interpreters to offer awareness of dementia, the work from research studies and with guidance how to be effective BSL interpreters when working with Deaf people with dementia and their families.
Year(s) Of Engagement Activity 2018
 
Description Deaf with Dementia lecture 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Postgraduate students
Results and Impact A two hour lecture was delivered to 20 postgraduate students who are all professional practitioners working with people who are living with dementia. My PhD findings and ideas for good practice were discussed.
Year(s) Of Engagement Activity 2016
 
Description Deaf with Dementia training: Warrington 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact All day workshop with BSL interpreters to discuss working practices with Deaf people living with dementia
Year(s) Of Engagement Activity 2017
URL http://ibsl.org.uk/events/deaf-with-dementia/
 
Description Deaf with Dementia: Challenges in Consultation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact A keynote presentation about Deaf people with dementia was given to the Royal College of Nursing with guidance on how to better support this minority population.
Year(s) Of Engagement Activity 2018
 
Description Deaf with dementia lecture: Dundee 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact This was a videoconference for dementia nurses based in Dundee and the surrounding region to learn more about Deaf people with dementia.
Year(s) Of Engagement Activity 2017
 
Description Dementia Action Plans - GP Practices 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Salford INSPIRE worked alongside staff in 37 GP practices in Salford (Greater Manchester) to develop and implement dementia action plans for each practice.
Year(s) Of Engagement Activity 2017,2018,2019
 
Description Dementia Awareness Week 2017 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact Salford INSPIRE led on a range of dementia initiatives across Salford for Dementia Awareness Week. This led to recruitment of volunteers as well as ifnomration giving and further collaborations.
Year(s) Of Engagement Activity 2017
 
Description Dementia Conference (Sweden) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Presentation at the Center for Dementia Research conference 'Relations' in Norrköping, Sweden in October 2014. Presentation generated interest in the project with questions asked about each of the work programmes and their inter-relationship
Year(s) Of Engagement Activity 2014
 
Description Dementia Congress in Brighton on 2-4 November 2016 (WP5 DEMTRAIN) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Intended purpose: recruitment and increase study visibility.
Faraz Ahmed, Research Associate attended the Dementia Congress in Brighton on 2-4 November and presented a poster entitled "Developing the evidence base for evaluating dementia training in NHS hospitals (DEMTRAIN). The 11th UK Dementia was attended by over 700 delegates, with participation from professional experts, people living with dementia and carers, health and social care workers as well as specialists in dementia from other sectors including care homes, academia and the creative arts.
Year(s) Of Engagement Activity 2016
URL http://www.careinfo.org/ukdc-2016/
 
Description Dementia Core Outcome Set (WP3) Consensus event 22nd March 2018 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact Consensus meeting
Twenty participants attended the consensus meeting. There was approximately an equal number of those with lived experiences (people living with dementia and care partners) and those from professional groups (health & social care professionals, policy makers and researchers)
Thirteen outcomes were included in the final core outcome set.
Year(s) Of Engagement Activity 2018
URL http://www.neighbourhoodsanddementia.org/work-programme-3/
 
Description Dementia Friends sessions 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other audiences
Results and Impact Two members of Salford INSPIRE (who are living with dementia) are Dementia Champions and have run numerous dementia friends sessions raising awareness of dementia, including firefighters at the local fire station, retail outlets, dental practices and GP surgeries. This has raised awareness and changes have been made to facilitate accessibility for people living with dementia in several GP surgeries and dental practices.
Year(s) Of Engagement Activity 2017,2018
 
Description Dementia Futures event - Lancaster Town Hall, Lancaster, WP5 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Third sector organisations
Results and Impact Lancaster University Centre for Ageing Research "Dementia Futures" event - 18 September 2015. YouTube short film of researchers discussing dementia training provision in NHS hospitals.
Year(s) Of Engagement Activity 2015
URL https://www.youtube.com/watch?v=UAD_aaUUAIk
 
Description Dementia Futures: Lancaster University Public Engagement event (Presentation on WP3 Dementia Core Outcome Set) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact Researchers attended the event entitled "Dementia Futures" at Lancaster Town Hall on 19 September 2016. The event was organised by the Centre for Ageing Research, based at Lancaster University.

To increase awareness of dementia research taking place at Lancaster University
Year(s) Of Engagement Activity 2015
 
Description Dementia Strategy Event Forth Valley 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Participation in the Forth Valley Dementia Strategy Planning Event
Year(s) Of Engagement Activity 2018
 
Description Dementia friendly communities in Greater Manchester 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other audiences
Results and Impact Presentation to Salford Dementia Action Alliance
Year(s) Of Engagement Activity 2017
 
Description Digital skills workshops for people with dementia 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Patients, carers and/or patient groups
Results and Impact A series of digital skills workshops aimed at supporting people with dementia to maintain social connections and community participation through online media
Year(s) Of Engagement Activity 2019
 
Description Discussion forum (Canada) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Evening talk on 'Engaging People with Dementia in Research: Pushing the Envelope' at the Centre for Research on Personhood at UBC
Year(s) Of Engagement Activity 2016
 
Description EDUCATE (group of people living with dementia) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact To give an overview of the Study and to invite people to participate in a newly established EDUCATE Neighbourhoods Research Group. The group was subsequently set up and has up to 12 members attending on a bi-monthly basis. We are currently designing a member-led research project and are involved as Consultants / Advisors in several other Work Programmes in the Neighbourhoods and Dementia Research Study.
Year(s) Of Engagement Activity 2015,2016,2017
 
Description Engagement with Town Break day care service users 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Patients, carers and/or patient groups
Results and Impact First engagement activity for Our Connected Neighbourhood project
Year(s) Of Engagement Activity 2018
 
Description Environmental audit 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Patients, carers and/or patient groups
Results and Impact Audit of Sainsbury's supermarket led by people with dementia aimed at creating a more dementia-enabling environment
Year(s) Of Engagement Activity 2018
 
Description Environmental audit 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Patients, carers and/or patient groups
Results and Impact Environmental audit of two care homes to increase awareness of dementia-enabling design and inform changes to the interior of the homes
Year(s) Of Engagement Activity 2019
 
Description Ersta Sköndal University - Stockholm, Sweden 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Researchers got together to discuss their work and WP6 presented the work in progress.
Year(s) Of Engagement Activity 2016
 
Description Everyday places and the fascination of method 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other audiences
Results and Impact Invited presentation to University of Salford School of Art & Media staff and students as part of a series of events to promote interdiscipinary work between the social sciences and arts & media
Year(s) Of Engagement Activity 2016
 
Description Expert advice and review of the Deaf and dementia sections of the DH Action Plan on Hearing Loss draft document 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Prof Young and Dr Ferguson-Coleman are identified as nationally leading experts in approaches to care and support for Deaf people who are sign language users and who have dementia. We were asked to review the relevant sections of the draft 'living well' part of the proposed DH Action Plan on Hearing Loss which cites much of our published work.
Year(s) Of Engagement Activity 2016
 
Description Facebook profile 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Facebook profile to promote Salford INSPIRE activities
Year(s) Of Engagement Activity 2017,2018
URL https://www.facebook.com/SalfordInspire/
 
Description Film Launch - Buile Hill, Salford 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Study participants or study members
Results and Impact The public launch of 'The Changing Face of Our Neighbourhoods' films was held on 22 February 2018. This gave the opportunity for co-researchers to share their films with family members and the wider public. Members of the wider Open Doors Network attended and expressed an interest in being part of the next co-researcher-led projects. Verbal feedback was very positive, including some family members saying that they had learnt new things about their parents' childhood and about the history of their locality.
Year(s) Of Engagement Activity 2018
 
Description Filming for wider community about my role as a researcher 
Form Of Engagement Activity A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Media (as a channel to the public)
Results and Impact I was filmed with a colleague discussing my research with Deaf people living with dementia and their carers. This was distributed via the 'Signed Voices' exhibition and online via YouTube.
Year(s) Of Engagement Activity 2016
URL https://www.youtube.com/watch?v=YF_txuDF7VE
 
Description First International Arts and Dementia conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presented a project (for Work Programme 1) which was designed by people living with dementia. The presentation was delivered jointly with a member of Open Doors (a peer support group for people living with dementia) and the Open Doors Manager. The presentation raised discussion about the different ways people living with dementia can share their own lived experiences and ways in which these can be recorded / documented.
Year(s) Of Engagement Activity 2017
URL http://uk.icom.museum/events/international-events/international-research-conference-arts-dementia-9-...
 
Description Flippin Calligraphy 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact Ongoing Calligraphy workshops flipping negative experiences with positive experiences
Year(s) Of Engagement Activity 2018
URL https://twitter.com/hashtag/flippincalligraphy?src=hash
 
Description Garstang memory café, Parbold Dementia Cafe and Halton Dementia Cafe (people living with dementia and carers) (WP3) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Patients, carers and/or patient groups
Results and Impact Regular visits to the memory café at Garstang, Parbold and Halton predominantly to recruit people with dementia and their carers but we also engage in consultation, informal discussions and speak to the whole group, whether they choose to participate in the research or not.
Year(s) Of Engagement Activity 2015,2016
 
Description Good Life Festival 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact The Good Life Festival was help at the local water sports centre to raise awareness of dementia. It brought together a wide range of people and families in fun activities, raising the profile of Salford INSPIRE.
Year(s) Of Engagement Activity 2017
 
Description Graphics audit tool development 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Patients, carers and/or patient groups
Results and Impact Development of guidance for dementia-enabling graphics for groups and organisations working with people living with dementia. The guidance has been distributed to partner organisations to help improve their online and analogue presentation and communication.
Year(s) Of Engagement Activity 2018
 
Description Greater Manchester Ageing Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact Invited panel member for a debate on age-friendly and dementia-friendly places. Led to contact made with external voluntary organisation.
Year(s) Of Engagement Activity 2017
URL http://www.micra.manchester.ac.uk/connect/events/gm-ageing-conference-2017/
 
Description Greater Manchester Mental Health Carers Forim 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Patients, carers and/or patient groups
Results and Impact Information gathering and dissemination at the Greater Manchester Mental Health Carers forum
Year(s) Of Engagement Activity 2017
 
Description HSRUK Symposium 2017 (Health Services Research UK) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Dr Siobhan Reilly and Dr Faraz Ahmed from Work Programme 5 attended and presented a poster: "Developing a programme theory for dementia training in hospitals: Why we need a critical interpretive synthesis review of current evidence-base" (5-6 July 2017)
Year(s) Of Engagement Activity 2017
URL https://www.eventsforce.net/eventage/frontend/reg/tOtherPage.csp?pageID=58830&ef_sel_menu=1155&event...
 
Description ITN/ADI 'Every Three Seconds' film 
Form Of Engagement Activity A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Open Doors (work programme 1) were involved (alongisde work programme 4) in contirbuting to the ITN/ADI 'Every three seconds' film which was launched at the Alzheimer's Disease International conference in Chicago (July 2018).
Year(s) Of Engagement Activity 2018
URL https://www.alz.co.uk/everythreeseconds
 
Description Information sharing workshop with local water sports centre 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Industry/Business
Results and Impact This workshop led to Salford INSPIRE delivering dementia training to staff and plan for the Good Life Festival.
Year(s) Of Engagement Activity 2017
 
Description Interdem 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Dr Siobhan Reilly was invited to join Interdem, the pan-European network of researchers and looks forward to presenting at a future Interdem Meeting.
Year(s) Of Engagement Activity 2018
URL http://interdem.org/
 
Description International dementia friendly communities 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Particpaton in panel discussion on Dementia Friendly Communities as part of 'Young Leaders in Dementia' international networking event
Year(s) Of Engagement Activity 2017
 
Description Interpreter Training Day 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact A training workshop about Deaf people living with dementia was delivered to 12 British Sign Language interpreters. This was an interactive workshop with lots of dialogue about positive working practices exchanged with ideas for future development of skills.
Year(s) Of Engagement Activity 2016
URL https://www.facebook.com/IBSL2011/photos/a.1678157779106127.1073741828.1676220292633209/182120021813...
 
Description Interpreter training session: Belfast 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact All day workshop provided with BSL and ISL interpreters based in Northern Ireland.
Year(s) Of Engagement Activity 2017
 
Description Interview for BBC Radio Manchester (live/on-air) 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Live interview - BBC Radio Manchester breakfast show, 03 May
Year(s) Of Engagement Activity 2018
 
Description Interview for BBC Radio Manchester daily news bulletin (recorded) 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Interview recorded to be played across day on BBC Radio Manchester news bulletin, 02 May
Year(s) Of Engagement Activity 2018
 
Description Interview for a MOOC related to the study 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Filming on neighbourhood and dementia friendly community practice took place for inclusion in the University of Tasmania's Massive Open Online Course [MOOC] on dementia which is the largest of its type in the world with the highest completion rate: 44% as at 2015. The MOOC was completed by 70,000 students in 2015 from 126 different countries across the world.
Year(s) Of Engagement Activity 2016
 
Description Introduction to the Neighbourhoods study by the CI 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Opening address to the symposium: Neighbourhoods and dementia: involving people living with dementia as co-researchers, BSG Conference, Manchester July 2018.
Year(s) Of Engagement Activity 2018
 
Description Introduction to the Neighbourhoods: Our people, our places' study 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Presentation about the project and its aims and objectives given to the Stirling Dementia Friendly City event
Year(s) Of Engagement Activity 2015
 
Description Invited presentation to Manchester Medical Society IChief Investigator) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other audiences
Results and Impact Invited presentation on the creative methods used on the Neighbourhoods study to a symposium on 'arts, medicine and science' organised by Manchester Medical; Society and undertaken at the Whitworth Art Gallery, University of Manchester
Year(s) Of Engagement Activity 2018
 
Description Joint presentation at the First International Arts and Dementia Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Undertook a joint presentation alongside a member of the Open Doors Neighbourhoods Research Group who is living with dementia (and co-researcher on the Changing Face of Our Neighbourhoods project). Feedback indicated a raise in interest in involving people living with dementia as co-researchers.
Year(s) Of Engagement Activity 2017
 
Description Keynote (Nottingham) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Invited keynote to the Network for Psychiatric Nursing Research conference in Nottingham Conference Centre. Focus on the neighbourhoods and dementia study
Year(s) Of Engagement Activity 2016
 
Description Keynote presentation 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Invited key note presentation by the Chief Investigator on the Neighbourhoods study at the University of Leuven which generated a number of questions from the audience
Year(s) Of Engagement Activity 2018
 
Description Keynote presentation (Australia) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Evening public lecture with simultaneous transmission on facebook [the video reached 1,993 Facebook users and 401 users viewed the live stream/video]. Presentation covered the neighbourhoods study and an outline of the 8 research programmes
Year(s) Of Engagement Activity 2016
URL https://www.facebook.com/WickingDementiaCentre/
 
Description Knowledge Exchange Programme: Shifting Paradigms on Dementia 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact A series of knowledge exchange events linked to innovative practice in dementia.
Year(s) Of Engagement Activity 2017
URL https://memoryfriendly.org.uk/
 
Description Let's Talk about Deaf with Dementia 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Patients, carers and/or patient groups
Results and Impact A Deaf with Dementia workshop was organised by the British Deaf Association in Glasgow for the Deaf community. A presentation was shared with the Deaf community, followed by facilitating a workshop with TIDE to support their engagement with the Deaf community.
Year(s) Of Engagement Activity 2018
 
Description Life Changes Trust Funding Panel 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact Participation in funding award panel for Third Sector funder.
Year(s) Of Engagement Activity 2017
 
Description Life with Dementia International Conference, University of Linkoping, Sweden 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Work Programme 1 presentation has lead to an international collaboration with the University of British Columbia
Year(s) Of Engagement Activity 2016
URL http://www.isv.liu.se/ceder/konferens/ett-liv-med-demenssjukdom-hoger/1.698814/Listofabstracts_alfab...
 
Description Life with dementia conference - Sweden 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact The presentation of the self management guide at the conference, brought out interesting discussion around methods, cultural competency and theoretical underpinning.
Year(s) Of Engagement Activity 2016
 
Description Looking out for and looking in on: the neighbourhood experiences of people with dementia. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Presentation given at British Society of Gerontology annual conference, Stirling, Scotland
Year(s) Of Engagement Activity 2016
 
Description Mad Pride Community Festival 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact Mad Pride was a fesitval raising awareness of mental health issues. Members from Salford INSPIRE held an awareness-raising stand.
Year(s) Of Engagement Activity 2018
URL http://www.salfordmadpride.co.uk/
 
Description Making Research Count: Why do neighbourhoods matter for people living with dementia? 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Invited presentation given at a workshop for qualified/working social workers about how to provide support for people living with dementia
Year(s) Of Engagement Activity 2019
 
Description Meeting with the Friendly Face Initiative 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact Alongside Salford INSPIRE and the Open Doors Neighbourhoods Research Group, we arranged to meet with a newly formed group in North Wales, led by a person living with dementia. There were discussions around how to set up a group, employing someone living with dementia and setting up an awareness raising campaign.
Year(s) Of Engagement Activity 2017
 
Description Membership of the Life Changes Trust Advisory Panel 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact I have been invited to be part of the Life Changes Trust Advisory Panel with particular input on issues of rights and equalities issues. This invitation came as a result of my leadership of Work Package 4' Neighbourhoods: our people, our places project. I will also participate in funding decisions for an upcoming funding call.
Year(s) Of Engagement Activity 2016
 
Description Mental Health Student Conference, University of Manchester 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Undergraduate students
Results and Impact A workshop 'Advances in Dementia Research and Practice' was delivered to 12 undergraduate student mental health practitioners. I co-designed and presented this workshop with colleagues from the Dementia and Ageing Research Team.
Year(s) Of Engagement Activity 2017
 
Description Mr Alzheimer's School Campaign 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Schools
Results and Impact Ongoing campaign in three primary schools (more being recruited to explore dementia. This has led to pupil-led school councils running dementia school assemblies and a dementia week. Pupils can take a Mr Alzheimer's pack home to engage with their families. The local Dementia Action Alliance have expressed an interest in using Mr Alzheimer's to engage with local communities. .
Year(s) Of Engagement Activity 2017,2018
 
Description Multi-practitioner Consultation Group to discuss dementia training in hospitals (WP5 Evaluation of Dementia Training in NHS Hospitals) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Expert consultation group to develop study design and recruitment strategies for the evaluation of staff dementia training in NHS hospitals.
Year(s) Of Engagement Activity 2015
 
Description Neighbouhoods and Dementia Study newsletter (Winter 2016) 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Newsletter distributed to network via mailing list, available via Twitter, available on Study website, link to newsletter included in other newsletters, such as the Manchester Institute for the Collaboration on Ageing (MICRA).
Year(s) Of Engagement Activity 2016
URL http://www.neighbourhoodsanddementia.org/wp-content/uploads/Neighbourhoods-and-Dementia-Newsletter-W...
 
Description Neighbourhods and Dementia Study Symposium Presentation: Gerontological Society of America (GSA) Annual Scientific Meeting- The Purposes of Longer Lives 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact John Keady (chief investigator), Andrew Clark (work programme 4), Ingrid Hellstrom and Therese Bielsten (work programme 6), Emma Ferguson-Coleman (work programme 7) and two BSL interpreters, were able to attend the Gerontological Society of America (GSA) Annual Scientific Meeting which, this year, was called 'The Purposes of Longer Lives.' The event was held in Boston on the east coast of the USA. The team delivered an hour and a half long symposium titled 'Neighbourhoods and a life with dementia: Navigating new understandings. There was a was real and genuine interest in the Neighbourhoods and Dementia study and in the range of qualitative and quantitative research methods that were employed to support various aspects of the research work.
Year(s) Of Engagement Activity 2018
URL http://www.neighbourhoodsanddementia.org/presentations/?doing_wp_cron=1550572570.7435550689697265625...
 
Description Neighbourhoods and Dementia Study newsletter (Autumn 2016) 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Newsletter distributed to network via mailing list, available via Twitter, available on Study website, link to newsletter included in other newsletters, such as the Manchester Institute for the Collaboration on Ageing (MICRA).
Year(s) Of Engagement Activity 2016
URL http://www.neighbourhoodsanddementia.org/wp-content/uploads/Neighbourhoods-and-Dementia-Newsletter-A...
 
Description Neighbourhoods and Dementia. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other audiences
Results and Impact Presentation delivered to 'Dementia@Manchester' event showcasing dementia-related research being conducted at universities across the Greater Manchester region
Year(s) Of Engagement Activity 2016
 
Description Neighbourhoods as context: Findings form an international study of how people with dementia experience neighbourhood life. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Oral presentation at International Conference, Graz (Austria)
Year(s) Of Engagement Activity 2017
 
Description Neighbourhoods: Our people, our places. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other audiences
Results and Impact Presentation of work at 'Dementia Research Showcase'; an event promoting dementia related research being undertaken across Greater Manchester
Year(s) Of Engagement Activity 2017
 
Description Newspaper Interview 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Media (as a channel to the public)
Results and Impact Interview about the neighbourhoods study to The Mercury newspaper, Tasmania
Year(s) Of Engagement Activity 2016
URL http://www.themercury.com.au/news/tasmania/community-key-to-dementia-support-says-visiting-uk-expert...
 
Description Nordic conference in nursing research- Stockholm, Sweden 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Networking and poster presentation. The poster highlighted the contents of self management guide and press of development.
Year(s) Of Engagement Activity 2016
 
Description North Sea Dementia Group Therése Bielsten (member) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact North Sea Dementia Group is a network with regularly meetings (every year).
Year(s) Of Engagement Activity 2018
 
Description On-going Open Doors Co-researcher group meetings 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Patients, carers and/or patient groups
Results and Impact From the period March 2018-February 2019, we have had 9 co-research group meetings (peopel living with dementia and care partners), which has led to the design and production of an animation with co-researcher composed soundtrack. We are currently writing a further proposal which we will submit for funding during 2019.
Year(s) Of Engagement Activity 2014,2015,2016,2017,2018
 
Description On-going collaboration with primary schools 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Schools
Results and Impact Mr Alzhimer's is a campaign developed and run by Salford INSPIRE working alongside children from three primary schools in Salford (Greater Manchester). The children have run their own dementia days, held school dementia assemblies and are very involved in the runnign of the campaign.
Year(s) Of Engagement Activity 2016,2017,2018,2019
 
Description Ongoing Open Doors Neighbourhoods Research Group bi-monthly meetings 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Study participants or study members
Results and Impact As part of ongoing meetings, we have designed two new projects in addition to the recently completed project. Meetings have also increased in attendance.
Year(s) Of Engagement Activity 2016,2017,2018
 
Description Open Doors Network (people living with dementia and carers) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact To give an overview of the Study and to invite people to participate in a newly established Open Doors Neighbourhoods Research Group. The group was subsequently set up and has up to 18 members attending on a bi-monthly basis. We are currently involved as Consultants / Advisors in several other Work Programmes in the Neighbourhoods and Dementia Research Study.
Year(s) Of Engagement Activity 2015,2016
 
Description Open Doors Project Blog 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact To provide ongoing progress and updates on the Changing Face of Our Neighbourhoods project.
Year(s) Of Engagement Activity 2016,2017,2018
 
Description PPI activity for Deaf with Dementia Life-Stories Project 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Patients, carers and/or patient groups
Results and Impact Face to face and Skype dialogue has been held with one PPI advisor in the South-West region to discuss the usability of the Deaf with Dementia Life-Stories app. This person is our ongoing advisor for the development of the app that will be used with Deaf people with dementia and their carers.
Year(s) Of Engagement Activity 2015,2016
URL http://www.neighbourhoodsanddementia.org/category/work-programme-7/work-programme-7-news/
 
Description PPI dialogue for app development 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Patients, carers and/or patient groups
Results and Impact Multiple meetings face to face and via Skype were held with Deaf carers to co-design of an app that will support Deaf sign language users living with dementia and their carers. This has meant that for the first time, Deaf people have been able to offer, with their personal experience, input and expertise into designing a user-friendly platform.
Year(s) Of Engagement Activity 2016,2017
 
Description Person with dementia conference Bangor, Gwynedd 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Invited main hall presentation to the first North Wales Network on Dementia hosted by Bangor University
Year(s) Of Engagement Activity 2017
 
Description PhD summer school, Sweden 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Postgraduate students
Results and Impact The summer school was organised in collaboration with Ruth Bartlett and Ceder in Sweden. It aimed to bring together doctoral students from across Europe to discuss their work, obtain review from senior researchers and establish a network.
Year(s) Of Engagement Activity 2016
 
Description Place Standard Tool workshops 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Patients, carers and/or patient groups
Results and Impact A series of 6 focus groups with residents living with dementia, including carers, to apply the Place Standard Tool to their neighbourhood. The workshops raised awareness with NHS Scotland of the need to adapt the this national auditing tool to make it dementia-enabling.
Year(s) Of Engagement Activity 2019
 
Description Pop-up dementia cafes 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact Members of Salford INSPIRE have been running pop-up cafes in local supermarkets (including Tesco, Asda and Morrisons) to raise awareness of dementia and the work/activities of Salford INSPIRE. There has been a lot of requests for information and also signposting to additional support services.
Year(s) Of Engagement Activity 2017,2018
 
Description Poster - Neighbourhoods: Our people, our places. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Poster about research presented at Higher Education Dementia Network meeting
Year(s) Of Engagement Activity 2017
 
Description Presentation - 'Dementia time: pasts, presents and futures' 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presentation at European Sociological Association 4th Mid-term Conference on Ageing: Agency, Citizenship and the Dynamics of Power; Brno, Czech Republic.
Year(s) Of Engagement Activity 2018
 
Description Presentation - 'Neighbourhoods as relational spaces for people living with dementia' 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presentation at British Society of Gerontology Annual Conference, Manchester
Year(s) Of Engagement Activity 2018
 
Description Presentation - 'Using art and leisure to retell and recast research findings' 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presentation at British Society of Gerontology Annual Conference, Manchester
Year(s) Of Engagement Activity 2018
 
Description Presentation - 'Using arts-based methods to communicate findings from research' 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact Presentation at one-day conference/event, "Shifting Paradigms in Dementia: Arts & Dementia" held at University Stirling
Year(s) Of Engagement Activity 2018
 
Description Presentation - 'Why do neighbourhoods matter for people living with dementia?' 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Invited presentation at conference organsied by Greater Manchester Combined Authorities, 'Doing Ageing Differently'
Year(s) Of Engagement Activity 2018
 
Description Presentation - Dementia and design of the social environment. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Presentation at CPD conference on Dementia and Design of the Environment
Year(s) Of Engagement Activity 2018
 
Description Presentation - How People Living with Dementia Experience Everyday Neighbourhood Life 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presentation at British Society of Gerontology Annual Conference, Manchester
Year(s) Of Engagement Activity 2018
 
Description Presentation Scottish Dementia Congress 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Paper reporting on research at Dementia Congress
Year(s) Of Engagement Activity 2017
 
Description Presentation at World Hearing Day 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact A presentation was given to delegates at the World Hearing Day conference about Deaf people living with dementia and their carers' experiences of accessing services.
Year(s) Of Engagement Activity 2018
 
Description Presentation at the Royal Preston Hospital (WP5 DEMTRAIN) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Intended purpose: study recruitment, regional visibility and engagement.
Faraz Ahmed presented at the Research and Innovation Showcase at the Royal Preston Hospital hosted by Lancashire Teaching Hospitals Trust at the Royal Preston Hospital, Preston on 28 November 2016 in which he outlined work on the Developing the evidence base for evaluating dementia training in NHS hospitals (DEMTRAIN) study. The presentation which comprised a poster and a presentation was entitled "Developing the evidence base for evaluating dementia training in NHS hospitals (DEMTRAIN):
A mixed method study"
Year(s) Of Engagement Activity 2016
 
Description Presentation at the UK Dementia Congress 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact The joint presentation was in collaboration with a person living with dementia who was involved as a co-researcher in an ongoing project. The audience of around 15 was part of a parallel session and raised questions around involving people living with dementia as co-researchers. There was discussion around how project output (film) could be made accessible for a younger generation (school age).
Year(s) Of Engagement Activity 2017
 
Description Presentation on dementia friendly communities to Edinburgh School of Architecture and Landscape Architecture 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Postgraduate students
Results and Impact As part of a wider collaboration with Edinburgh School of Architecture we gave a presentation to students on the theme of dementia friendly communities before participating with them on a participatory mapping activity in the city.
Year(s) Of Engagement Activity 2016
 
Description Presentation to 2nd Dementia Friendly Stirling event 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Third sector organisations
Results and Impact An update on the research to the 2nd Dementia Friendly Stirling meeting/workshop
Year(s) Of Engagement Activity 2016
 
Description Presentation to Dementia Friendly Stirling event 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Third sector organisations
Results and Impact Presentation on the Neighbourhoods research to the first Dementia Friendly Stirling event.
Year(s) Of Engagement Activity 2016
 
Description Presentation to Life Changes TRust Dementia Friendly Communities event 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact This paper reported on the preliminary findings of the Neighbourhoods project to a group representing dementia friendly initiatives around Scotland.
Year(s) Of Engagement Activity 2016
 
Description Presentation to Norrkoping Centre for Caregivers 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Patients, carers and/or patient groups
Results and Impact Presentation of research from Swedish fieldsite to carers for people with dementia
Year(s) Of Engagement Activity 2016
 
Description Presentation to Swedish Dementia Association 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact Presentation of research in Swedish fieldsite.
Year(s) Of Engagement Activity 2015
 
Description Presentation to Swedish Dementia Association 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Third sector organisations
Results and Impact Presentation to the Swedish Dementia Association
Year(s) Of Engagement Activity 2017
 
Description Presentation to healthcare staff 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Presentation to healthcare staff in the municipality of Finspang, Sweden
Year(s) Of Engagement Activity 2016
 
Description Presentation to the Deaf community about dementia 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Patients, carers and/or patient groups
Results and Impact A workshop about dementia was provided at Huddersfield Deaf Centre to raise awareness about dementia and it's symptoms and how to support Deaf people living with dementia.
Year(s) Of Engagement Activity 2018
 
Description Presentation with Salford CVS, 'The Salford Way' 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Patients, carers and/or patient groups
Results and Impact Presentation with Salford CVS about 'The Salford Way' app at Alzheimers' Society annual conference, London
Year(s) Of Engagement Activity 2018
 
Description Presentation with Salford CVS, 'The Salford Way' 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Presentation and demosntration of The Salford Way app at NHS Expo with Salford CVS
Year(s) Of Engagement Activity 2018
 
Description Presentations to local service providers in Norrkoping 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Research briefings to day and home care services and memory clinics in the Norrkoping area.
Year(s) Of Engagement Activity 2016
 
Description Project design - Open Doors 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Patients, carers and/or patient groups
Results and Impact The group has spent the last 12 months designing their own project We have recently (1 Feb 2017) obtained ethical approval to undertake a cultural heritage project which has been designed and is being led by the group, which is now underway.
Year(s) Of Engagement Activity 2016,2017
URL https://salfordneighbourhoods.wordpress.com/
 
Description Project design - Scottish Dementia Working Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Patients, carers and/or patient groups
Results and Impact We are currently developing some training for academic researchers and are planning for our invited guest editor role for the 2019 special edition of the Dementia journal.
Year(s) Of Engagement Activity 2016,2017
 
Description Public Address 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Explanation of the creative methods used on the neighbourhoods study
Year(s) Of Engagement Activity 2017
 
Description Quarterly Partner Meetings for Our Connected Neighbourhood Project 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Third sector organisations
Results and Impact Running series of quarterly meeting for planning and development of the Our Connected Neighbourhood project
Year(s) Of Engagement Activity 2017
 
Description Radio interview 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact Interview/recorded discussion for 'popular science' show on community radio
Year(s) Of Engagement Activity 2017
 
Description Radio interview about research programme 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact Study PI was interviewed by Nigel Thompson on BBC Radio Lancashire on 11th December 2013 to discuss the research in the context of the dementia summit.
Year(s) Of Engagement Activity 2013
 
Description Remote Presentation: University of Tasmania, Australia 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Undergraduate students
Results and Impact A remote presentation was delivered to over 20 undergraduate students at the University of Tasmania, Australia.
Year(s) Of Engagement Activity 2017
 
Description Report in the Memory Friendly Neighbourhoods knowledge exchange programme 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact A presentation given to the 24th Annual Conference of Alzheimer's Europe.
Year(s) Of Engagement Activity 2014
 
Description Research presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Third sector organisations
Results and Impact Research briefing on findings from the Neighbourhoods project to support planning and future collaborations
Year(s) Of Engagement Activity 2019
 
Description Research presentation - Alzheimer's Scotland Annual Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Research presentation to audience of mainly practitioners
Year(s) Of Engagement Activity 2017
 
Description Salford INSPIRE 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact Raising awareness of dementia in Salford, including drop in clinics, dementia friends sessions; engagement with local businesses and organisations, such as training staff at a local watersports centre.
Year(s) Of Engagement Activity 2017
URL http://www.neighbourhoodsanddementia.org/category/work-programme-1/work-programme-1-news/
 
Description Salford INSPIRE newsletter 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact We have produced newsletters celebrating Salford INSPIRE's development, which have been disseminated internationally.
Year(s) Of Engagement Activity 2017,2018
URL http://www.neighbourhoodsanddementia.org/category/work-programme-1/work-programme-1-impacts-and-outp...
 
Description Salford INSPIRE newsletters 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact The Salford INSPIRE newsletter is published three times a year and details the activities of the group.
Year(s) Of Engagement Activity 2017,2018,2019
 
Description Scottish Dementia Working Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact To give an overview of the Study to the Scottish Dementia Working Group (SDWG) and to invite people to participate in a newly established SDWG Neighbourhoods Research Group. The group was subsequently set up and has up to 8 members attending on a bi-monthly basis. Members are involved as Consultants / Advisors in several other Work Programmes in the Neighbourhoods and Dementia Research Study.
Year(s) Of Engagement Activity 2015,2016
 
Description Scottish Dementia Working Group: Neighbourhoods and Dementia Research Group consultation (WP 5 DEMTRAIN) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Patients, carers and/or patient groups
Results and Impact Intended purpose: to gain Public Involvement in study and survey tool design.
Group identified key domains that are paramount to dementia training for hospital staff.
Year(s) Of Engagement Activity 2016
 
Description Series of engagement activities for Our Connected Neighbourhood project Stirling 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Third sector organisations
Results and Impact On-going engagement activities in Stirling area linked to setting up the dementia friendly community development project.
Year(s) Of Engagement Activity 2018
 
Description Speaking Engagement (26th Bradford Hill Memorial Lecture) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Keynote address by Professor Paula Williamson, co-investigator on Work Programme 3 entitled "Improving health by improving trials: from outcomes to recruitment and back again" at London School of Hygience and Tropical Medicine - 12 June 2017
Year(s) Of Engagement Activity 2017
URL https://www.lshtm.ac.uk/newsevents/events/26th-bradford-hill-memorial-lecture
 
Description Study PI attendance at Age UK Lancashire Strategy & Innovation Event 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Around 60 people attended the event - questions and discussion allowed researcher to highlight this funded research.
Year(s) Of Engagement Activity 2015
 
Description Symposium at the British Gerontology Association AGM 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact We held a neighbourhoods symposium at the BSG AGM. It helped to develop networks and raise awareness of the study.
Year(s) Of Engagement Activity 2016
 
Description Talk to practitioners (Manchester) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Presentation on 'Dementia Friendly Neighbourhoods' to Later Life CMHT North team in Crumpsall, Manchester.
Year(s) Of Engagement Activity 2016
 
Description Ted-Talk Style event for PhD students (UOM Stories) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Postgraduate students
Results and Impact This was an invited presentation to share my personal experiences of being a Deaf researcher, which included my PhD journey and my academic research journey.
Year(s) Of Engagement Activity 2019
URL https://studentnews.manchester.ac.uk/2019/02/14/resilience-reflections-on-uom-stories/
 
Description The 'Neighbourhoods: our people, our places' Study 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact This was an introduction to the project presented at an Alzheimer's Society conference event
Year(s) Of Engagement Activity 2015
 
Description The 'neighbourhood: our people, our places' study newsletter 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Patients, carers and/or patient groups
Results and Impact We publish a quarterly newsletter detailing progress on the neighbourhoods project.
Year(s) Of Engagement Activity 2015
URL http://www.neighbourhoodsanddementia.org/category/work-programme-4/work-programme-4-news/
 
Description The Lived Neighbourhood: Understanding how people with dementia and their carers engage with their local environments. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Oral presentation delivered by Sarah Campbell at International Conference in Graz (Austria)
Year(s) Of Engagement Activity 2017
 
Description The neighbourhoods study and participatory research 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Postgraduate students
Results and Impact Invited presentation to a new established international network on dementia established through the University of Leuven, Belgium. CI made a Fellow of the University of Leuven and will collaborate with the international network in 2019
Year(s) Of Engagement Activity 2018
 
Description Town and Gown, Lancaster September 2017 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact Work Programme 5 "DEMTRAIN" attended the Town and Gown Event organised by the Centre for Ageing Research, Lancaster University and presented a poster "Developing the evidence base for evaluating dementia training in NHS hospitals (DEMTRAIN): A mixed method study*
Year(s) Of Engagement Activity 2017
URL http://www.lancaster.ac.uk/fhm/research/centre-for-ageing-research/#resources
 
Description Twitter account 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Twitter: @nbdem. As of 7 February 2017, there were 522 tweets and 227 followers.
Year(s) Of Engagement Activity 2016,2017
URL https://twitter.com/nbdem?lang=en-gb
 
Description Visit Book cafe for couples with dementia, Norrköping 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Patients, carers and/or patient groups
Results and Impact An informal collaboration is set up with the Book cafe hosted at the Norrköping city library. The members are consulted on an ongoing basis to inform the development of the core content for the self management guide and the design.
Year(s) Of Engagement Activity 2016
 
Description Visit Caregiver centre - Norrköping 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Patients, carers and/or patient groups
Results and Impact Presented the Self-help guide and discussed its contents.
Year(s) Of Engagement Activity 2016
 
Description Visit Mount Chapel Champions support group 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Patients, carers and/or patient groups
Results and Impact Presentation and discussion of the self management guide contents.
Year(s) Of Engagement Activity 2016
 
Description Vrinnevisjukhuset hospital, Norrköping - Lunch time seminar 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Presentation and discussion of the theoretical underpinning and contents of the self management guide.
Year(s) Of Engagement Activity 2016
 
Description WP3 and WP5: Population Health Conference - Lancaster University - 17 September 2018 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Dr Siobhan Reilly attended the 2018 Population Health Conference hosted by Lancaster University at Lancaster on 17 September 2018. The keynote speech was delivered by Dean Sandro Galea, University of Boston.
Year(s) Of Engagement Activity 2018
URL https://www.lancaster.ac.uk/health-innovation/events/lancaster-health-innovation-conference-innovati...
 
Description WP3 attendance at Alzheimer Europe Conference 2018, Barcelona 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Dr Andrew Harding gave an oral presentation on the co-research collaboration to develop core outcome set methodology.
Year(s) Of Engagement Activity 2018
 
Description WP3 attended British Society of Gerontology 47th Annual Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Dr Siobhan Reilly, Dr Hazel Morbey, Dr Andrew Harding and Dr Faraz Ahmed attended BSG 2018 held in July 2018 at the University of Manchester where Dr Morbey gave a presentation on "The role of co-research with people living with dementia and carers in the design and implementation of an accessible Delphi survey". This was a member involvement co- presentation with Rita Brady.
Year(s) Of Engagement Activity 2018
URL http://www.neighbourhoodsanddementia.org/category/work-programme-3/work-programme-3-impacts-and-outp...
 
Description WP3 researchers invited to attend the launch of Dementia Carers Instrument Development (DECIDE) study SIDECAR event - LEEDS 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Dr Siobhan Reilly and Dr Andrew Harding were invited to attend the Dementia Carers Instrument Development (DECIDE) study SIDECAR event LEEDS held on 18 September 2018 at the University of Leeds. The tool, called SIDECAR (Scale measuring the Impact of DEmentia on CARers) was developed through a 3 year study co-funded by the Medical Research Council (MRC) and the National Institute for Health Research (NIHR).
Year(s) Of Engagement Activity 2018
 
Description WP3: Delphi and Consensus Meeting - 22 March 2018 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Patients, carers and/or patient groups
Results and Impact The Work Programme 3 research team was keen to find out which outcomes are important to people living with dementia. The team completed its Delphi survey in February 2018. This was a two round process involving people living with dementia, carers, health & social care professionals, policy makers and researchers (n=288 R1, with an 84% response rate for R2). Following the Delphi survey, a successful Consensus Meeting was held at Lancaster University to which participants in the Delphi survey were invited to attend. The team were delighted to have such a high proportion of people living with dementia and their carers attend the day and the meeting was chaired by experienced and skilled facilitator Katherine Cowan. The results of the Consensus Meeting were fed back to the participants in the meeting and will be written up and published over the coming months.
Year(s) Of Engagement Activity 2018
URL http://www.neighbourhoodsanddementia.org/category/work-programme-3/work-programme-3-impacts-and-outp...
 
Description WP3: The COMET (Core Outcome Measures in Effectiveness Trials) Initiative annual meeting - 15-16 November 2018 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Supporters
Results and Impact Dr Hazel Morbey and Dr Andrew Harding attended the COMET annual meeting in Amsterdam in order to present a poster on the latest findings on its Core Outcome Set (COS) research. The meeting was aimed at people interested in the development and application of agreed standardised core outcome sets (COS).
Year(s) Of Engagement Activity 2018
URL http://www.comet-initiative.org/events/SeventhCometMeeting
 
Description WP5 attendance at Alzheimer Europe Conference 2018 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Dr Siobhan Reilly, Dr Hazel Morbey, Dr Faraz Ahmed and Dr Andrew Harding attended Alzheimer Europe Conference held in Barcelona on 29-31 November 2018. Dr Hazel Morbey gave an oral presentation on the co-research undertaken for the Case Study Phase of the DEMTRAIN Study.
Year(s) Of Engagement Activity 2018
URL http://www.neighbourhoodsanddementia.org/category/work-programme-5/work-programme-5-impacts-and-outp...
 
Description WP5 attended British Society of Gerontology conference - July 2018 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Work Programme 5 recently participated in the British Society of Gerontology conference in Manchester, which was attended by researchers and interested audiences alike from all over the world. It took as its theme "Ageing in an unequal world: Shaping environments for the 21st Century". Dr Faraz Ahmed presented the DEMTRAIN work at the symposium, which highlighted "the role of co-researcher in the development of a hospital organisational and staff survey exploring dementia training in acute hospitals". Faraz in a separation presentation, described the work on the main theory underpinning the DEMTRAIN study, which is exploring the impact of dementia training in hospital settings in a presentation titled "Developing an initial programme theory for dementia training in hospitals: An experiential and consultation review exercise".
Year(s) Of Engagement Activity 2018
URL http://www.neighbourhoodsanddementia.org/category/work-programme-5/work-programme-5-impacts-and-outp...
 
Description WP5: Health Education England - Dementia Workforce Advisory Group meeting 17 September 2018 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Dr Hazel Morbey and Dr Faraz Ahmed represented the DEMTRAIN Work Programme at the HEE Dementia Workforce Advisory Group meeting and presented an update on the Study's work and research.
Year(s) Of Engagement Activity 2018
 
Description WP5: UK Dementia Congress 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact Dr Hazel Morbey and Dr Faraz Ahmed attended the UK Dementia Congress held in Brighton on 6-8 November 2018 and presented their DEMTRAIN work with a poster "Developing a programme theory for dementia training in hospitals".The UK Dementia Congress provided an excellent opportunity for professionals to learn more about the DEMTRAIN work as well to hear from other studies and healthcare professionals with an interest in this area.
Year(s) Of Engagement Activity 2018
URL https://careinfo.org/wp-content/uploads/2018/09/2018UKDC12pp_v10.pdf
 
Description Wai Yin Society - Luncheon Club, Manchester 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other audiences
Results and Impact An informal presentation and discussion of the self management guide with older Chinese women. Explored the feasibility of the guide for Chinese community.
Year(s) Of Engagement Activity 2016
 
Description West Lancs Dementia Action Alliance group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Intended purpose: establishing regional networks and involvement in establishing future aims of the group, and links to evidence research.
Year(s) Of Engagement Activity 2017
URL http://www.dementiaaction.org.uk/local_alliances/17867_west_lancashire_dementia_action_alliance
 
Description What Works In Dementia Education and Training (WP5 DEMTRAIN) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact We meet regularly with the "What Works In Dementia Education and Training" team based at Leeds Beckett University http://www.leedsbeckett.ac.uk/pages/what-works/ to share research design and methodology areas of our respective studies.
Year(s) Of Engagement Activity 2015,2016,2017
 
Description What do persons with dementia tell us about their outdoor housing environment in sit-down interviews compared with walking interviews 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact This is a paper given to the 30th International Conference of Alzheimer's Disease International in Perth, Australia
Year(s) Of Engagement Activity 2016
 
Description What does neighbourhood mean for people living with dementia in Greater Manchester? 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other audiences
Results and Impact Presentation to AgeUK funded support group
Year(s) Of Engagement Activity 2017
 
Description What does neighbourhood mean for people living with dementia in Greater Manchester? 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact Presentation at Alzheimer's Research UK funded 'dementia awareness' event open to the public
Year(s) Of Engagement Activity 2017
 
Description What does neighbourhood mean for people living with dementia in the UK? 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Involvement in international biannual meeting of European Foundations' Interventions in Dementia group, Sofia (Bulgaria)
Year(s) Of Engagement Activity 2018
 
Description What does neighbourhood mean for people living with dementia? 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Third sector organisations
Results and Impact Invited to present as part of Greater Manchester Ambition for Ageing seminar series organised by Greater Manchester Centre for Voluntary Organisation
Year(s) Of Engagement Activity 2017
 
Description Workshop 2: 'Imagine if...' 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other audiences
Results and Impact 'Imagine if.... Chorlton & Whalley Range were Dementia Friendly'. Workshop #2 with local Dementia Action Alliance to develop actions to enable a programme of 'dementia friendly initiaitves' based on core findings from the research
Year(s) Of Engagement Activity 2019
 
Description Workshop I: 'Imagine If....' 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other audiences
Results and Impact 'Imagine if.... Chorlton & Whalley Range were Dementia Friendly'. Workshop #1 with local Dementia Action Alliance to develop actions to enable a programme of 'dementia friendly initiaitves' based on core findings from the research
Year(s) Of Engagement Activity 2019
 
Description Workshops (Australia) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Invited series of dementia workshops to the Wicking Dementia Research and Education Centre, University of Tasmania, Australia on the ESRC/NIHR Neighbourhoods and Dementia study, involvement of people with dementia in research and dementia friendly community work and evaluation.
Year(s) Of Engagement Activity 2016
 
Description You tube shorts 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Salford INSPIRE have recently started doing a short series of YouTube videos. A journalist from a local paper has recently been in touch to follow up with Joy.
Year(s) Of Engagement Activity 2018
URL https://www.youtube.com/watch?v=9w0TlRUa8Xk&feature=youtu.be
 
Description keynote presentation (Canada) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Invited keynote for the 48th Marion Woodward lecture (2016), School of Nursing, University of British Columbia, Canada: focus on Neighbourhood practices and the study
Year(s) Of Engagement Activity 2016
URL http://ikblc.ubc.ca/john-keady-dementia-new-paths-to-understanding/
 
Description meeting with the Chief Executive of the Alzheimers Society to discuss the neighbourhoods study 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Third sector organisations
Results and Impact Discussion on how the neighbourhoods could start to support the dementia friendly communities agenda of the Alzheimer's Society, and where we can work together in the future
Year(s) Of Engagement Activity 2018
 
Description news article in Manchester Evening News 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact Article about living with dementia in Greater Manchester instigated by press interest in Exhibition: 'Everyday Places: Why neighbourhoods matter for people living with dementia. Article includes explicit mention of research study and quotations from Sarah Campbell, researcher on Programme.
Year(s) Of Engagement Activity 2017
 
Description presentation to GM MHF What Does Neighbourhood Mean to People Living with Dementia? 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Presentation to Greater Manchester NHS Mental Health Foundation staff/practitioners
Year(s) Of Engagement Activity 2017
 
Description presentation to support group about Neighbourhoods: Our People, Our Places I 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Patients, carers and/or patient groups
Results and Impact Presentation to Greater Manchester-based support group for people living with dementia
Year(s) Of Engagement Activity 2017
 
Description presentation to support group about Neighbourhoods: Our People, Our Places II 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Patients, carers and/or patient groups
Results and Impact Presentation to people living with dementia and their supporters who attend a 'dementia cafe'
Year(s) Of Engagement Activity 2017