Administrative Data Research Centre - Scotland
Lead Research Organisation:
University of Edinburgh
Abstract
Administrative data (that is, information collected primarily for administrative purposes) has long contributed to central government and other statistics. However in the last 15-20 years, technological advancement has seen something of a revolution with the formation of very large administrative databases held by central and local government, and by specialist agencies across the UK. The existence of such databases raises the possibility that administrative data could become, in an annoymised form, a core resource for social science academic research. Many northern European countries (notably Denmark, Finland, Norway and Sweden) are further ahead in this regard, as they have placed much greater emphasis on developing national 'register data' from the 1980s onwards, to replace national censuses and major surveys. For example, Statistics Denmark now bases most of its national statistics on 'register data' which can be linked both longitudinally and between registers of different types (e.g. health, education, income). Datasets with very similar potential now exist in the UK. They represent a rich potential research resource for the UK social science research community. However, on the whole, the academic social science community in the UK has had difficulty gaining access to these potential powerful datasets for a variety of reasons. In 2011 the Administrative Data Taskforce was formed with the 'aim of improving access to and linkage between government administrative data for research and policy purposes'. One of its recommendations was the formation of Administrative Data Research Centres (ADRC) in each of the countries of the UK.
A Scottish ADRC will aim to make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of policy. It will particularly focus on building trust between data providers, researchers and the public and will adopt the highest international standards of governance, professional practise and public engagement.
The ADRC will have a core service that will:
- provide state-of-the-art facilities for research access to de-identified administrative data by
accredited researchers
- provide data management and statistical analysis support functions for external researchers
accessing the data
- engage in training, capacity building, and public engagement
and a set of developmental work packages that will:
- conduct original research using linked administrative data and important analytical and methodological
approaches that support the creation of research useful datasets
- Explore important aspects of the legal environment and public acceptability of the new linkages that
the ADRC's will naturally be engaged with
it will do this through
- A support unit providing researchers with a single, initial point of contact for the Scottish ADRC
- A central team of data scientists - researching administrative datasets and supporting researchers
through the support unit
- A wide circle of collaborating academics - covering the spectrum of administrative data holding sectors
driving forward the data scientists (central team) and bespoke research projects
- A wider circle of academics/ researchers supported, trained and engaged by the ADRC
A Scottish ADRC will aim to make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of policy. It will particularly focus on building trust between data providers, researchers and the public and will adopt the highest international standards of governance, professional practise and public engagement.
The ADRC will have a core service that will:
- provide state-of-the-art facilities for research access to de-identified administrative data by
accredited researchers
- provide data management and statistical analysis support functions for external researchers
accessing the data
- engage in training, capacity building, and public engagement
and a set of developmental work packages that will:
- conduct original research using linked administrative data and important analytical and methodological
approaches that support the creation of research useful datasets
- Explore important aspects of the legal environment and public acceptability of the new linkages that
the ADRC's will naturally be engaged with
it will do this through
- A support unit providing researchers with a single, initial point of contact for the Scottish ADRC
- A central team of data scientists - researching administrative datasets and supporting researchers
through the support unit
- A wide circle of collaborating academics - covering the spectrum of administrative data holding sectors
driving forward the data scientists (central team) and bespoke research projects
- A wider circle of academics/ researchers supported, trained and engaged by the ADRC
Planned Impact
Who will benefit from the work of the centre?
The work and research carried out and facilitated by the centre will have an impact on charities, universities, government departments and independent public bodies. The aim will be to facilitate research that increases the effectiveness of public services and policy; ultimately enhancing quality of life, health and creative output.
How will they benefit from the work of the centre?
(1) Departments supplying administrative data to the centre
First, the Centre will help to ease the resource burden on the data/statistics teams within the specified departments by filtering out inappropriate or incomplete requests for data from the academic community using specifications developed in conjunction with the government data/statistics teams.
Second, the Centre will allow commissioners of research within the departments to commission work from the academic community using new and innovative administrative datasets to answer key policy questions. Evaluations of government programmes by academic institutions will therefore be strengthened by increases in awareness of and availability of existing and new administrative datasets leading to a more robust evidence base for the government departments.
Third, a more robust evidence base build upon better and more innovative research will be to the benefit of policy makers who are tasked with developing and refining programmes and interventions to maximise gains within budgetary constraints.
(2) Policy makers in Scottish Government
In addition to the government departments identified as data custodians, directorates that do not hold data will benefit from the evidence base that will be available through the work of the centre. For instance the Directorate for Local Government and Communities has a range of responsibilities with objectives that overlap with those of UK departments such as the DWP and the Scottish directorate for Employability, Skills & Lifelong Learning and thus require evaluating using indicators sourced from UK and Scottish level administrative data. The Centre will enable academic researchers undertaking these and other similar evaluations to request data form other government departments more easily and more quickly and thus facilitate more timely evaluation.
Particular directorates will benefit directly from the research of the centre for example information made possible by analysis of robust linked administrative data will provide a means by which local authorities and health care providers can better evaluate policies. The work of the informal care WP, for example, will provide insights that highlight if there are groups or geographical areas where informal carers have unmet needs. The work of the informal care package will also highlight the degree to which routinely collected data can provide a means of monitoring trends in informal care provision and inform policy developments at national and local levels.
(3) Policy makers and third sector organisations
The Centre will similarly benefit local authorities and third sectors organisations who may wish to commission academic institutions to undertake more innovative research using administrative data with the resultant information being used to develop and refine programmes of intervention.
(4) The Public
We intend within our public engagement programme to work with the public to jointly derive statistics, which though generated through standard objective research methods, are driven by the particular questions important to a community. The aim will be to allow communities to come to understand important aspects of society as it effects their lives but also importantly to empower them, through the provision of an 'evidence base', to impact the policy making process.
The work and research carried out and facilitated by the centre will have an impact on charities, universities, government departments and independent public bodies. The aim will be to facilitate research that increases the effectiveness of public services and policy; ultimately enhancing quality of life, health and creative output.
How will they benefit from the work of the centre?
(1) Departments supplying administrative data to the centre
First, the Centre will help to ease the resource burden on the data/statistics teams within the specified departments by filtering out inappropriate or incomplete requests for data from the academic community using specifications developed in conjunction with the government data/statistics teams.
Second, the Centre will allow commissioners of research within the departments to commission work from the academic community using new and innovative administrative datasets to answer key policy questions. Evaluations of government programmes by academic institutions will therefore be strengthened by increases in awareness of and availability of existing and new administrative datasets leading to a more robust evidence base for the government departments.
Third, a more robust evidence base build upon better and more innovative research will be to the benefit of policy makers who are tasked with developing and refining programmes and interventions to maximise gains within budgetary constraints.
(2) Policy makers in Scottish Government
In addition to the government departments identified as data custodians, directorates that do not hold data will benefit from the evidence base that will be available through the work of the centre. For instance the Directorate for Local Government and Communities has a range of responsibilities with objectives that overlap with those of UK departments such as the DWP and the Scottish directorate for Employability, Skills & Lifelong Learning and thus require evaluating using indicators sourced from UK and Scottish level administrative data. The Centre will enable academic researchers undertaking these and other similar evaluations to request data form other government departments more easily and more quickly and thus facilitate more timely evaluation.
Particular directorates will benefit directly from the research of the centre for example information made possible by analysis of robust linked administrative data will provide a means by which local authorities and health care providers can better evaluate policies. The work of the informal care WP, for example, will provide insights that highlight if there are groups or geographical areas where informal carers have unmet needs. The work of the informal care package will also highlight the degree to which routinely collected data can provide a means of monitoring trends in informal care provision and inform policy developments at national and local levels.
(3) Policy makers and third sector organisations
The Centre will similarly benefit local authorities and third sectors organisations who may wish to commission academic institutions to undertake more innovative research using administrative data with the resultant information being used to develop and refine programmes of intervention.
(4) The Public
We intend within our public engagement programme to work with the public to jointly derive statistics, which though generated through standard objective research methods, are driven by the particular questions important to a community. The aim will be to allow communities to come to understand important aspects of society as it effects their lives but also importantly to empower them, through the provision of an 'evidence base', to impact the policy making process.
Organisations
- University of Edinburgh (Lead Research Organisation)
- Swansea University (Collaboration)
- UNIVERSITY OF ABERDEEN (Collaboration)
- St. Andrews University (Collaboration)
- Information Services Division (ISD) (Collaboration)
- Police Scotland (Collaboration)
- UNIVERSITY OF EDINBURGH (Collaboration)
- National Records of Scotland (Collaboration)
- National Library of Scotland (Collaboration)
- Heriot-Watt University (Collaboration)
- Scottish Fire and Rescue Service (Collaboration)
- Cash for Kids (Collaboration)
- Generation Scotland (Collaboration)
- National Crime Agency (Collaboration)
- City of Edinburgh Council (Collaboration)
- What Works Scotland (Collaboration)
- Australian National University (ANU) (Collaboration)
- University of St Andrews (Collaboration)
- University of Stirling (Collaboration)
- University of Dundee (Collaboration)
- Amazon.com (Collaboration)
- Farr Institute of Health Informatics Research (Collaboration)
- National Health Service Scotland (Collaboration)
- UNIVERSITY OF GLASGOW (Collaboration)
- Registers of Scotland (Collaboration)
- ISD Scotland (Project Partner)
Publications
Aitken M
(2018)
Who benefits and how? Public expectations of public benefits from data-intensive health research
in Big Data & Society
Aitken M
(2016)
Public responses to the sharing and linkage of health data for research purposes: a systematic review and thematic synthesis of qualitative studies
in Public responses to the sharing and linkage of health data for research purposes: a systematic review and thematic synthesis of qualitative studies
Aitken M
(2016)
Moving from trust to trustworthiness: Experiences of public engagement in the Scottish Health Informatics Programme.
in Science & public policy
Aitken M
(2019)
Consensus Statement on Public Involvement and Engagement with Data Intensive Health Research.
in International journal of population data science
Akgün Ö
(2019)
Linking Scottish vital event records using family groups
in Historical Methods: A Journal of Quantitative and Interdisciplinary History
Akgün, Ö
(2017)
An identifier scheme for the Digitising Scotland project
| Description | The discovery and developments emanating from the centre illustrate the diversity of research needs that emerge from the reuse of administrative data for research purposes. This has been recognised in the award of a follow-up grant to continue and enhance the research undertaken. In 2017 we highlighted four examples of the research findings that are emerging from the centre: From the legal workpackage, a 2016 article in the Journal of Law and Society offers a novel means for data custodians to identify key considerations by introducing a decision-making template that supports public authorities' assessment of preparedness for data reuse through identification of challenges faced, related to sector-specific practices. This work has led the team being called upon by Scottish Government to help decision makers work within a complex environment of increasing pressure to make government data more open and accessible whilst also protecting citizens privacy. The Public Engagement workpackage is uncovering the complexity of the public(s) attitude to the reuse of data for research purposes. For example, arguing that it is necessary to move beyond simple descriptions of whether publics trust researchers, or in whom members of the public place their trust, and to explore more fully the bases of public trust/mistrust in science, what trust implies and equally what it means for research and/or researchers to be trustworthy. Work is also revealing that some of the received wisdom held by expert bodies, that the public is likely to always be resistant to certain types of particular reuse of data, may in fact be incorrect. If a system of good governance is in place and the reuse of data is associated with particular public benefit objectives, then topics that can seem controversial may actually be supported. Two recent international publications have used ADRC-S research (along with that of other organisations) to explore the public's involvement with and benefit from data intensive health research. From the workpackage developing methods for producing synthetic data, there have been a set of published papers are demonstrating the possibility and utility of producing synthetic research for research. Importantly the workpackage has also developed a software package within the R statistical programming environment https://cran.r-project.org/web/packages/synthpop/index.html. This work has now been taken up by various government agencies and the NHS needing to release data for a number of different purposes for example for training or to enable software development. From the workpackage developing new forms of historical linked administrative data, work on a new 1936 birth cohort has revealed that geographical movement and in particular movement to a major city or 'escalator region' has a positive effect on socio-economic position in adulthood. This is partially explained by a greater likelihood to move amongst those who were born into advantaged socio-economic position and those who achieve higher levels of qualifications but there still appears to be significant independent effect of movement. This leads to an interesting question about whether encouraging young people to consider the possibility of moving, might encourage greater social mobility. This work is starting to illustrate the great benefit that can emerge from the reuse of historical administrative data linked over a person's lifecourse. Over the past two years there have been new discoveries and developments and we highlight some below: • If administrative data cannot be used outside the National safe haven, this severely restricts its use especially for teaching or training. We have continued to explore the creation of synthetic data and how such datasets can be used in teaching and training using the synthpop software package (developed by the ADRC-S). In a breakthrough in 2017 we have gained permission, based on this research, to provide synthetic education and census data for training outside the Scottish safe haven. It was used for the first time in an ADRC-S training course - introducing a new generation to the power of administrative based research. • A major problem for the ADRC-S has been the geographically limited points of access to data. In 2017 we have developed and opened ADRC-S Regional Safe Settings across Scotland. This provides researchers with the flexibility and opportunity to remotely access their ADRC-S project data through the National Safe Haven from different universities across Scotland. Most researchers in Scotland should now be no more than a short trip from a data access points. This has been further augmented by the development of SafePods, which will be rolled out in Universities across the UK and transform safe access to administrative data. • The ADRC-S public panel has been invited to comment on a number of important developments in the Scottish data. For example they were invited to comment on the census 2021 census development and the administrative data census being carried out by National Records for Scotland. Work was undertaken to explore the public's view of commercial access to data through the ADRN - suggesting surprisingly high support. • Through public engagement events and speaking to the public panel, the best means of communicating complex data and linkage processes to patients has been developed. For example the public panel was asked for input on the 'Blue Lights' project (which involves, Police, Fire and Ambulance services) and the panel were supportive of the project, even though the data would be detailed and might seem invasive. • Work into end of life care, which analysed linked NHS and Census data, demonstrated that people in the most deprived areas of Scotland are more likely to die alone at home - i.e. significantly less likely to die in a care home or hospice than their neighbours in less deprived areas. Elderly people in poorer areas are anyway more likely to live alone and, as they reach the end of their lives, they seem not to have access to the resources that others have (e.g. finance, family of friends) to enable them to make the changes they may want to. • Another exciting project being led by the ADRC-S is the linkage of millions of civil registration datasets to create large scale longitudinal and family studies. This involves probabilistically matching data fields (e.g. is this name the same as this one, so is this the same person or not). This process very quickly runs into a computing problems, despite modern computing capacities. Metric space indexing is a novel efficient way of doing record linkage without the need for extensive parameter tuning and is being developed by the team. This method suddenly opens up massive possibilities for very large comparison datasets. • The same work package has also identified that 'Sibling group linkage' as practised by genealogists is a promising approach to automated population reconstruction. This was an interesting finding coming out of a series of meetings between 'traditional' genealogists and computer scientists. Approaches that have been more influenced by innovative computer science were, interestingly, not actually working very effectively, while algorithms based on this existing method seem highly effective. • In order to understand whether the two techniques discussed above are scalable (i.e. can be used over the many millions of cases in the Digitising Scotland project), realistic and massive test data is necessary. We have established that it is feasible to produce statistically valid synthetic individual-level populations at country-scale. This shows potential for use in rigorous evaluation of population linkage techniques. • The Aberdeen Children of the 1950s is a study of more than 12,000 people that has been running for over 50 years. The study includes data on the participants' birth, families, neighbourhoods, education, and health. We held a wide variety of outreach events, including a reunion, a new online social space, focus groups, interviews, and surveys. After a year of engagement, we have (a) presented the study's history and results; (b) gathered participants' views on data linkage and governance; and (c) used their stories of the important influences on health and wellbeing across their lives to shape future research. • One of the major problems for the UK administrative data access system has been the need to seek new data sharing agreements for every new research project. This leads to long delays in data delivery. Work by the ADRC-S has established in fact that there are not fundamental legal barriers to the holding and 're-use' of administrative research datasets and indeed the public may see the 'use once and then destroy' approach as inherently wasteful, and not actually confidence-building as is often argued. These findings have influenced the shape and direction of the new ESRC investment in administrative data linkage, which is predicated on developing datasets for reuse. • From work on the ADRC-S 'data ownership project' it has been found that there is a limited legal sense of ownership affecting behaviour among data sharing stakeholders. There is some intellectual property relating to datasets, but this is not used in the general dialogue about data. Likewise, there is very little use of 'ownership' in the sense of a financial commodity. In contrast, there is informal use of 'ownership' in terms of control in data sharing in three respects: participant protection; researcher recognition/reward; data quality. The perception of these three layers of control differs across different types of stakeholder (seen across the data-sharing communities studied). The report distinguishes between: the 'net producer of data for research', the 'net user of data for research' of data, the 'net funders of research', and the 'net stewards of research and research data'. These reflect the different relationships held between individuals (and institutions) about data. • We have completed a prototype text mining component for analysing historical newspapers and tested it on sample data from newspapers from Aberdeen, Dundee and Edinburgh. We have demonstrated that you can characterise areas based only on words used in articles about these places in a fully automatic process. • We have developed image processing workflows to extract buildings from the OS 1:25,000 1937-61 map series of maps held in scanned form by the National Library of Scotland. The workflow has been applied to maps across Scotland giving a mid C20th Scottish buildings layer. This means we can now automatically calculate small area estimates of measures as building density for most of Scotland and then other measures of environment insults such as air pollution for the 1930s. • Analysis of National Crime Agency (NCA) data on drug consignment identified in the postal system, linked to Scottish Index of Multiple Deprivation (SIMD), showed that places to which drugs consignments bought on the 'dark web' had been addressed were on average more deprived urban areas. • We have analysed trends in placement stability for looked-after children. Results show distinct patterns of placements for children of different ages, and we have constructed a typology of placement types based on sequences identified. • Work on a newly created 1936 birth cohort study has shown that childhood advantage, in terms of cognitive ability, predicts greater odds of being economically active at age 55 in both men and women. The contributions of early-life socioeconomic status and education differed between males and females. Early-life circumstances did not predict subsequent change in the odds of being economically active over the subsequent 20 years of life. • Using the 1936 birth cohort, we found that at age 55, childhood advantage - including higher cognitive ability - directly predicted lower functional limitation odds. At age 65, adult socioeconomic circumstances partially mediated the associations between childhood advantage and functional limitation odds. At age 75, only socioeconomic circumstances - both from childhood and from adulthood - predicted functional limitation odds. These results demonstrate that early-life and adult circumstances are associated with functional ability in later life, and that these associations partly result from complex mediation. • Using the 1936 birth cohort we found that the spatially-mobile had higher social class in adulthood than non-movers, although this was dependent on the destination of the move. Movers to Edinburgh were more likely to be in a high adult social class even when adjusted for individual characteristics. Social class outcomes of movers to Glasgow were associated with individual characteristics rather than place. • We used administrative data on benefits and annual earnings from employment over a five-year period, from DWP's National Benefits Database and HMRC's P14/P60 data, which were linked to poverty survey data from Family Resources Survey 2010/2011 and its follow-up Poverty and Social Exclusion UK (PSE-UK) 2012. We have shown that longitudinal measures capturing benefit and earning histories have a close fit with recall questions on labour market histories. Furthermore, they are stronger predictors of poverty risks than measures based on current benefits or earnings. The findings suggest that longitudinal administrative measures would have potentially wide-ranging applications in policy as well as poverty research. |
| Exploitation Route | The primary focus of our research award is enabling research whose findings will be of use by policy makers in government, agencies, and in the civic, voluntary and charity sectors. The ADRC-S is heavily engaged with all these sectors to increase awareness and understanding of the potential of research using administrative data. The ADRC-S has already expanded the in-Scotland cohort of trained and expert researchers in this field, through direct funding from the award and via support activities. This cohort is the basis of an ever-widening foundation to continue developing innovative methodologies and apply them in new research. Papers presented at the ADRN's first open Annual Research Conference, organised by ADRC-Scotland for June 2017, demonstrated the wide interest from individuals from outside the ADRN, both outside Scotland and outside the UK, to understand the research emerging from the ADRC-S. Practitioners in these sectors are increasingly aware of the developing innovative methodologies and newly available datasets emerging via the ADRN and are wanting to apply them in new research; individuals and organisations have been keen to inform us of the topics to which they would like this enhanced capability to be addressed; and publications, engagement events and initiation of our planned follow-through funded developments will assure dissemination of research project results. The ADRC-S is also actively organising high level policy engagement events or 'frontier meetings', bringing together researchers with those working on policy in the government and third sector organisations. These meetings have fed into cross UK collaboration and, in particular, progress in Scottish access to Whitehall data. We now have major initiatives with Scottish Government exploring issues of poverty and employability and the emergency services. It is still quite early days for much of the research supported by the ADRC-S, nevertheless here are some key findings and how they might be taken forward or put to use by others that are emerging from research in 2017/18: • The distant 'unequal gaze' of a data centre can produce the necessary security for the remote use of sensitive data. Regional safe setting and 'safepods' can therefore be used to produce functional anonymity in data and therefore access to personal and sensitive data. This dramatically increase access to administrative data in a safe and private manner. • A public panel can usefully the inform decision making process on data sharing. Decision making panels are often uncertain about whether they are reflecting a 'public licence' to share data, even if there is a clear legal gateway. Public panels can help clarify this situation and therefore help with decision making that reflects public attitudes. • Synthetic data can be used successfully within training programmes held away from the 'data centre'. Our work has shown that it is both possible to gain data releases and successfully use synthetic data for teaching and training. This means that data that previously was restricted in access to very small groups can be far more widely used. We now supply an easy-to-use software package to enable this, that is free for all to use. • Funders can lead in generating data hubs - facilities and software innovation - to facilitate data sharing and open access, while recognising the different producer-user and funder-steward perspectives. Thus, data generators and data holders 'own' the data on the basis that the creation of the data set, and particularly the ordering of its metadata, is highly resource intensive, and must be recognised. The effort of data creation and data analysis merits recognition for those who expend the effort. Avenues for recognition of data creation are emerging (e.g. in journals, research audits and CV) but these are also inconsistent. Funders can push for such effective recognition. • Open access, whilst an appropriate requirement for stewardship in public spending, can be at odds with the researcher's need for time to analyse and publish data. Some funders and data sharing agreements allow for a period whereby researchers have an exclusive right of "first publication" from their research. Such a practice is supported by this research, in that many researchers identify themselves as 'owning' the data, in that they have an expectation of a right to first publication of results that flow from their analysis and to work on the data. Accordingly, this should become standard practice in funding agreements and to encourage longer-term data sharing. The "open access" agenda requires careful rethinking to accommodate the range of stakeholder expectations and attitudes; alternative versions of data sharing may well be as legitimate as the current blanket OA agenda. • We have recently signed an agreement with Findmypast to gain access to Aberdeen newspapers from the last century. This has enabled us to text mine information relevant to the 'Aberdeen Children of the 1950s' study. Our findings demonstrate that we can now characterise areas from newspapers alone. We show that, for areas that have no traditional sources of quantitative measurement data, we can now create rich information. This has significant implications for other historic studies worldwide. • The development of image processing workflows to extract building information from the OS 1:25,000 1937-61 series of maps held in scanned form by the National Library of Scotland demonstrates the possibly of automatically generating very large scale GIS datasets that then can be used for lifecourse studies. This technique could be applied to any historic digitised map series globally. • Our work producing detail sequences of placement types for looked-after children has demonstrated how this flexible analytical tool can used to produce deeper insights into complex temporal patterns. The findings from this study will be used by the Scottish Government to understand how they might plan services for children for whom the state becomes responsible for looking after, in order that the children's best interests are served. |
| Sectors | Communities and Social Services/Policy,Digital/Communication/Information Technologies (including Software),Education,Environment,Healthcare,Government, Democracy and Justice |
| URL | https://adrn.ac.uk/about/network/scotland/ |
| Description | The ADRC-S completed its five year grant at the end of October 2018 and is in receipt of a further award to continue and expand its research. ADRC-S work has influenced the structure and objective of the new ESRC investment, with its emphasis being on research for the public good that aligns with policy objectives and is based on analysis of research-ready datasets. Goals set in the award to complete a new secure and safe infrastructure in Scotland based at the Edinburgh Bioquarter for linked data research have been completed, with enhancements to widen the service's accessibility beyond Edinburgh to regional safe settings now open also at St Andrews, Dundee, Aberdeen, Glasgow, Southampton and University College London. This will reduce the burden on researcher time and costs, and incentivise the development of new projects having increased flexibility of access to project data. ADRC-S also leads on the development of The SafePod Network (SPN), which is an ESRC data investment to provide remote access to confidential and sensitive data from institutions and organisations across the UK through the provision of micro safe settings (known as SafePods™). SafePods replicate existing traditional safe settings but with the major benefit for researchers of providing local access to project data without the need to travel long distances. For Data Centres, SafePods provide a low cost standardised platform to extend remote access to their data. As all SafePods and policies are standardised, a single accreditation of a SafePod by a Data Centre is all that is needed to accredit the full network of SafePods. A SafePod security features include door control access, CCTV camera and a secure area for the storage of IT equipment. The SafePod Network (SPN) will also be supported by a dedicated website to provide information and make SafePod bookings, a User Support Service and an Advisory Board to help steer the long term objectives of the network. The initial roll out of SafePods across the UK is expected in the summer/autumn of 2019. The impact and interest in the ADRC-S methodology and findings was demonstrated in the success of its 2017 research conference. The conference's impact was broad with, for example, the European Commission's participation with the EC's Joint Research Centre's 'Competence Centre on Micro Evaluation'. This should further stimulate Scottish-government focused effort in developing regional capability in using predictive analytics tools to improve policy outcomes in Scotland with research contributions from ADRC-S - this is an effort which has been building since ADRC-S jointly with UBDC began work with Scottish and New Zealand Government input in November 2015. The ADRC-S's dedicated and shared space funded at Edinburgh Bioquarter is used in intense collaboration with the FARR@Scotland, with the NHS National Service Scotland's research coordination team, and with the University's Usher Institute. The shared space has evolved into a fruitful venue of choice for 'pathfinder' and 'frontier' workshops. These have organised e.g. with other RCUK Councils for cross-disciplinary events with ADRC-S contributions - for example, with NERC on its call for 'Improving Health with Environment Data' and others (the "Innovative Healthcare Delivery Programme's Information Governance Summit" held at Edinburgh Bioquarter). The former led to three projects in Scotland being supported, all of them interacting with and being supported by parts of the ADRC-S. The legal work package team's public contributions include the exploration of issues in the governance and use of administrative data in the UK, with publication e.g. in the Journal of Law and Society. Solutions developed to help overcome the legal, ethical and practical barriers to accessing administrative data for research purposes have included development of a decision-making tool to assist data controllers while considering whether / on what basis to share administrative data; and a means to help them develop a public interest mandate for culture change within their institution as part of the wider UK public sector. For example, a workshop on this topic was held 26.4.2016 at Edinburgh Bioquarter for Scottish public authorities tasked with implementing Public Records legislation. The 2017 annual report from the Keeper of the Records of Scotland references the our workshop, with substantial recognition of the ways in which the contributions arising from our research helped the local authorities communities understand cultures of caution and confidence around data access and sharing. The Scottish Government has used the team's outputs to engage with public authorities over data sharing initiatives. The team is leading the ADRN's development of a principles-based assessment tool to help ADRN stakeholders potentially to build a defensible case for a data retention policy, working with the ADRC-S public engagement (PE) team - and this is being used by public authorities across the UK. The ADRC-S PE team has established and supports a very active ADRC-Scotland Public Panel; through which ADRC-S's transparent research practices and dialogue with publics are now spreading, helping rigorously to underpin ADRC-S research through training workshops and 1:1 advice and support to assist researchers in their public engagement activities and dialogues with non-specialist audiences. Linkage with health datasets is a significant component of administrative data research, and the PE team has supported Scotland's Public Benefit & Privacy Panel process via a Working Group that developed guidance to all health data stakeholders (controllers, processors and users) for them to better understand public engagement implications; new guidance, to be issued shortly, will help accelerate access to Scottish health data. One of the outcome of the workshops held throughout 2017 was the publication in 2018 of a multi-partner consensus statement on public involvement and engagement with data intensive health research. The PE team joined with Aberdeen researchers to mount a historic re-engagement event 20.2.2016 with the Aberdeen Birth Cohort of the 1950s that has re-ignited wide awareness and interest in the potential of administrative data research. This engagement is ongoing, for example there was a public event held in Aberdeen in June 2018 to celebrate Scottish Health Research Cohorts as well as workshops with participants in the 1950s cohort study. The information generated by this research endeavour has been widely to inform work on further work on the development of large scale, non-consented, historical cohort studies for medical research. Our findings help our researchers to present to public audiences; we have been asked to input to the "Understanding Patient Data" initiative run by Wellcome Trust; and we were consulted on a recent Health Care Alliance Scottish Government video about the use of health data in research and care. This work is being used as an exemplar for engagement with members of historical studies by the Public Benefit and Privacy Panel for Health and Social Care (part of Information Services Division of NHS Scotland), and by the Farr Institute of Health Informatics. The Medical Director for NHS Grampian has since involved study participants in shaping the new Clinical Strategy for NHS Grampian. Furthermore, the Dementias Platform UK project is now collecting further participant views on data governance and study participation. This has excellent potential for policy impact by creating guidance for data custodians on expectations about data sharing and governance. ADRC-S has worked with the ESRC's Phase III Big Data Investment 'Think.Data' to support development of the 'third sector' e.g. with the Scottish Civil Society Data Partnership, illustrated by our hosting a workshop on using own databases as research resources, and by our joining with the Scottish Council for Voluntary Organisations to host the "Cross-sector Roundtable on Health: how can data help the third sector plan and deliver the right services, and demonstrate impact". This work has led to further use of third sector data for research. For example, Citizens Advice Scotland is now allowing research access to its data in order to enable a better understanding of its clients. ADRC-S has made use of its access to the significant Scottish historical datasets - the Scottish Mental Survey 1947 and the Aberdeen Birth Cohort of the 1950s - in order to investigate social mobility, health, and wellbeing across the life course. As an initial step, this project linked administrative records from the Scottish Mental Survey 1947 to records from the Scottish Longitudinal Study, which includes census and healthcare data, a linkage that helped create a data resource for further research. This research is producing important findings on the impact of early life conditions on later life outcomes and therefore current polices impacting children and young people. Other ADRC-S work packages have been developing innovative methodologies - this work has led to new and innovative data products to emerge: (1) Successive publications around the development of software to create synthetic datasets has aroused interest in Scottish government and health dataset controllers for its potential application in numerous settings. The package is being used quite widely by academics, the public sector and private companies in the UK and across Europe. The 'synthpop' package, freely available in R to produce synthetic data, is being used by the Northern Ireland Statistical and Research Agency, the NHS in Scotland and Cambridge Environmental Research Consultants, to produce non-disclosive research data. It is the software package of choice in a number of the training programmes provided by academics (external to the ADRC-S) Across Europe and the researchers who developed the package are in demand as speakers and trainers. (2) The ADRC-S project deriving information automatically from digitised historical maps is working closely with National Library of Scotland to produce informative data from their crowd-sourced georeferenced maps series. This work has led to a NERC-MRC funded project looking at the long-term impact of air pollution on dementia risk, collaborating with the NERC Centre for Environment and Hydrology in extending their historical climate modelling approaches. (3) ADRC-S research into how to link millions of civil registration datasets to create large scale longitudinal and family studies is starting to make an impact with preliminary results have been reported in the paper "Using Metric Space Indexing for Complete and Efficient Record Linkage" (Akgun et al.) accepted for the high-profile conference Pacific-Asia Conference on Knowledge Discovery and Data Mining (PAKDD), Melbourne, June 2018 and other work reported in a paper "Linking Scottish Vital Event Records Using Family Groups" (Akgun et al.) under review (second revision) for Journal of Historical Methods. Discussions are ongoing with the University of Umea (holders of one of the most significant historical longitudinal study in the world) around their use of our techniques and our use of their data to test whether our methods could be used in Sweden. ADRC-S has secured access to new data from partners in the crime and justice sector including from the National Crime Agency. This opens up new channels of research that were previously not possible. Collaborations with the government agencies such as ScotXed in the education sector, and with National Records Scotland on developing linkages that can access Scottish census data, are bearing fruit. ADRC-S contributed to the consultation on the Looked-After Children data management strategy and the data strand in the Child Protection Improvement Programme, as well as in the current development of new linkage between child protection data and the data held by the Scottish Children's Reporters Administration to advance understanding of what promotes secure placements for children who are looked-after away from home. The work on end of life care has generated a great deal of interest in the past year, with the Research Fellow involved making presentations and talks to a wide range of publics (ranging from Scottish Government analysts to the general public at the Edinburgh Festival Fringe), and has generated interest in the media (newspapers, magazines, online content and podcasts). New research partnerships have been developed e.g. with the Cash for Kids charity, Education Scotland and with What Works Scotland. ADRC-S has brokered 3-way discussions at the Bioquarter between the Scottish Government, The Department for Work and Pensions (DWP), and ADRC-S researchers to help understand how datasets held by DWP might be researched to assist Scottish Government policy development, and how Scottish jurisdictional research might be an exemplar for wider UK application by DWP. These meetings have been followed up with training sessions on the use of DWP data. These discussions are impact processes of long gestation. Inevitably publications and research findings from the research projects accessing these new datasets and emergent from these new partnerships are still unavailable, the activity of engagement with all these stakeholders has greatly increased their awareness of and built confidence in the capability and expertise of the growing cohort of researchers active in and with the ADRC-S internally and externally. |
| First Year Of Impact | 2017 |
| Sector | Communities and Social Services/Policy,Digital/Communication/Information Technologies (including Software),Environment,Healthcare,Government, Democracy and Justice,Culture, Heritage, Museums and Collections |
| Impact Types | Societal,Policy & public services |
| Description | Advisory group for Scottish Civil Society Data Partnership |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | Alan Turing Institute. Ethics for Data Science Workshop |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | Child Poverty Bill |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| Impact | Submitted a response to the consultation on the proposed Child Poverty Bill with recommendations about data fields required from children's services to improve quality and utility of national returns. |
| Description | Children Data Strategy |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Impact | Meeting with SG policy staff in the Looked after Children team, Child Protection team and Statistics team to advise on the Looked after Children Data Strategy. |
| Description | Ethics and Opportunities of Big Data (Royal Statistical Society/St George's House) |
| Geographic Reach | National |
| Policy Influence Type | Citation in other policy documents |
| URL | http://www.rss.org.uk/Images/PDF/influencing-change/2016/rss-report-opps-and-ethics-of-big-data-feb-... |
| Description | Exploring the Social Contract for Medical Innovation |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | Ipsos Mori Data Dialogues (non-participant) |
| Geographic Reach | National |
| Policy Influence Type | Citation in other policy documents |
| Impact | The methods and focus of these influential studies was directly influenced by prior work Pagliari & Cunnningham-Burley undertook with Ipsos Mori on public attitudes to administrative data sharing in Scotland. |
| Description | Multiple Deprivation Advisory Group |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | National Data Guardian Review on Data Security and consent. (Nuffield Council for Bioethics) |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | Predictive analytics for government |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Description | Public Benefit and Privacy Panel |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Impact | From 1st May2015, arrangements for scrutiny of applications to use NHSScotland originated data have changed. Community Health Index Advisory Group (CHIAG), NHS National Services Scotland Privacy Advisory Committee (PAC), and National Caldicott Guardians application processes have been merged. A single application and scrutiny process is now operated across Scotland by the newly formed Public Benefit and Privacy Panel for Health and Social Care. |
| URL | http://www.informationgovernance.scot.nhs.uk/blog/tag/pbpp/ |
| Description | Public engagement. Aberdeen Children of the 1950s cohort study |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Description | UK Cabinet Office consultations on the sharing of public sector data for research, policy and fraud prevention |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Impact | Participation in this series of deliberative consultations with Involve of the cabinet office, which helped to shape the UK Government's (England) strategy for data reuse. |
| Description | UK Parliament. Science and Technology Select Committee. Report on the Big Data Dilemma |
| Geographic Reach | National |
| Policy Influence Type | Citation in other policy documents |
| URL | http://www.publications.parliament.uk/pa/cm201516/cmselect/cmsctech/468/468.pdf |
| Description | A Network for Studying Psychological Resilience in Low and Middle-Income Countries (NESP) |
| Amount | £600,000 (GBP) |
| Funding ID | MC_PC_MR/R01910X/1 |
| Organisation | Medical Research Council of South Africa (MRC) |
| Sector | Public |
| Country | South Africa |
| Start | 01/2018 |
| End | 12/2018 |
| Description | A new integrated decision-making tool for urban health and policy evaluation: 'QCumber-envHealth' |
| Amount | £224,000 (GBP) |
| Funding ID | NE/N007352/1 |
| Organisation | Natural Environment Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 11/2015 |
| End | 10/2017 |
| Description | Applying for further funding for ADRC-Scotland under the new Administrative Data Research Partnership |
| Amount | £3,400,000 (GBP) |
| Funding ID | ES/S007407/1 |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 11/2018 |
| End | 03/2021 |
| Description | ESRC Large Grants Competition |
| Amount | £2,500,000 (GBP) |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2017 |
| End | 09/2020 |
| Description | ESRC PhD studentship linking and modelling housing, poverty and the labour market |
| Amount | £70,000 (GBP) |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2014 |
| End | 10/2018 |
| Description | ESRC PhD studentship modelling survey - Non-response using linked administrative data in HAGIS and the UKHLS |
| Amount | £70,000 (GBP) |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2016 |
| End | 09/2019 |
| Description | ESRC PhD studentship relationship between diagnoses and social care provision in a national cohort: implications for social and health care integration |
| Amount | £70,000 (GBP) |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2016 |
| End | 09/2019 |
| Description | Enabling Research Data: Aberdeen Birth Cohorts |
| Amount | £35,000 (GBP) |
| Organisation | Farr Institute of Health Informatics Research |
| Department | Farr Institute Scotland |
| Sector | Learned Society |
| Country | United Kingdom |
| Start | 11/2016 |
| End | 10/2017 |
| Description | Flexi-shuttle: demand responsive transport optimisation |
| Amount | £50,000 (GBP) |
| Organisation | Innovate UK |
| Sector | Public |
| Country | United Kingdom |
| Start | 11/2016 |
| End | 01/2017 |
| Description | Gordon and Ena Baxter Foundation grant |
| Amount | £5,000 (GBP) |
| Organisation | Gordon & Ena Baxter Foundation |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 02/2016 |
| End | 01/2018 |
| Description | Identifying and Understanding Inequalities in Child Welfare Intervention Rates: comparative studies in four UK countries |
| Amount | £557,705 (GBP) |
| Organisation | Nuffield Foundation |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2014 |
| End | 03/2017 |
| Description | Influence of ownership on data sharing practices |
| Amount | £60,000 (GBP) |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 08/2016 |
| End | 04/2017 |
| Description | MRC Mental Health Data Pathfinder Award |
| Amount | £2,200,000 (GBP) |
| Funding ID | MRC-MC_PC-17209 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2018 |
| End | 03/2020 |
| Description | MSCA-ITN-2015-ETN - LONGPOP - Methodologies and Data mining techniques for the analysis of Big Data based on Longitudinal Population and Epidemiological Registers |
| Amount | € 3,860,731 (EUR) |
| Funding ID | MSCA-ITN-2015-ETN |
| Organisation | Marie Sklodowska-Curie Actions |
| Department | Initial Training Networks (ITN) |
| Sector | Charity/Non Profit |
| Country | Global |
| Start | 02/2016 |
| End | 02/2020 |
| Description | Modelling historical air pollution and dementia/cognitive decline: towards a life course approach |
| Amount | £60,000 (GBP) |
| Funding ID | NE/P010849/1 |
| Organisation | Natural Environment Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2017 |
| End | 03/2018 |
| Description | NHS R&D Pump Priming |
| Amount | £30,000 (GBP) |
| Organisation | National Health Service |
| Sector | Hospitals |
| Country | United Kingdom |
| Start | 04/2018 |
| End | 05/2019 |
| Description | NHS R&D Pump priming for engagement with the Aberdeen Children of the 1950s |
| Amount | £25,000 (GBP) |
| Organisation | NHS Scotland |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2018 |
| End | 03/2019 |
| Description | NHS-Digital Academy - Building skills for the NHS CIOs and CCIO profession |
| Amount | £6,000,000 (GBP) |
| Organisation | NHS England |
| Sector | Public |
| Country | United Kingdom |
| Start | 07/2017 |
| End | 04/2021 |
| Description | Obesity strategic network: whole systems approach |
| Amount | £93,000 (GBP) |
| Funding ID | ES/N00941X/1 |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 11/2015 |
| End | 11/2016 |
| Description | Permanently Progressing?: Outcomes for children in Scotland accommodated before age 5' |
| Amount | £399,942 (GBP) |
| Organisation | CoramBAAF |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2014 |
| End | 11/2017 |
| Description | Roland Sutton Post Doctoral Fellowship |
| Amount | £35,000 (GBP) |
| Organisation | Roland Sutton Academic Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 12/2016 |
| End | 11/2017 |
| Description | Scottish Government/ESRC PhD studentship [Henderson: health and social care] |
| Amount | £7,000 (GBP) |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 08/2015 |
| End | 08/2018 |
| Description | Secondary Data Analysis Initiatives |
| Amount | £200,000 (GBP) |
| Funding ID | ES/R005729/1 |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 11/2018 |
| End | 03/2020 |
| Description | Storing and using the Guthrie Card collection for research purposes: a role for citizens in shaping policy |
| Amount | £40,000 (GBP) |
| Funding ID | 40000 |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 01/2017 |
| End | 12/2017 |
| Description | Storing and using the Guthrie Card collection for research purposes: a role for citizens in shaping policy |
| Amount | £40,000 (GBP) |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 01/2017 |
| End | 12/2017 |
| Description | Telling tales of engagement |
| Amount | £10,000 (GBP) |
| Organisation | Engineering and Physical Sciences Research Council (EPSRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2018 |
| End | 10/2019 |
| Description | Ultra-low emission taxis feasibility study |
| Amount | £45,000 (GBP) |
| Organisation | The Data Lab - Innovation Centre |
| Sector | Private |
| Country | United Kingdom |
| Start | 01/2016 |
| End | 06/2016 |
| Description | University of Edinburgh's College of Humanities and Social Sciences for a 'Knowledge Exchange and Impact Grant' |
| Amount | £2,450 (GBP) |
| Organisation | University of Edinburgh |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 05/2015 |
| End | 06/2016 |
| Description | Wellcome Trust - Developing a Centre for Biomedicine, Self and Society |
| Amount | £1,190,489 (GBP) |
| Funding ID | 209519/Z/17/Z |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2017 |
| End | 09/2022 |
| Title | Image Processing |
| Description | Pipeline scripts for OpenCV for use in image processing of historic maps |
| Type Of Material | Improvements to research infrastructure |
| Provided To Others? | No |
| Impact | None. |
| Title | "Derived % change in built up between 1937- 61 and modern day dataset" |
| Description | (Raster GRID) |
| Type Of Material | Database/Collection of data |
| Year Produced | 2017 |
| Provided To Others? | No |
| Impact | none |
| Title | 1936 birth cohort linked to Scottish Longitudinal Study |
| Description | 1936 birth cohort linked to Scottish Longitudinal Study |
| Type Of Material | Database/Collection of data |
| Provided To Others? | No |
| Impact | Huang, Z., Dibben, C., Kirby, G., Deary, I., Popham, F. & Connelly, F. (2015) The creation of an administrative data based 1936 Birth Cohort Study The Farr Institute International Conference 2015, University of St Andrews, UK, 26 - 28 August 2015 |
| URL | http://calls.ac.uk/output-entry/the-creation-of-an-administrative-data-based-1936-birth-cohort-study... |
| Title | 1937-61 Scotland-wide building footprints |
| Description | (Polygon Shapefile) |
| Type Of Material | Data analysis technique |
| Year Produced | 2017 |
| Provided To Others? | No |
| Impact | None |
| Title | ACONF - Map of Aberdeen data linkage possibilities with Special Collections |
| Description | Database of special collections at Aberdeen library |
| Type Of Material | Database/Collection of data |
| Provided To Others? | No |
| Impact | In collaboration with the head of special collections at Aberdeen University library we have mapped available resources to be linked to the Aberdeen Children of the 50s database. |
| Title | Aberdeen Birth Cohorts |
| Description | The University of Aberdeen has followed all of the children born in Aberdeen in 1921, 1936, and 1950-1956 as they grow and age. Collectively these groups are known as the ABERDEEN BIRTH COHORTS, and are a jewel in the crown of Scottish health research and have helped to advance the understanding of aging well. |
| Type Of Material | Database/Collection of data |
| Year Produced | 2014 |
| Provided To Others? | Yes |
| Impact | New study website created and 5 new studies supported to use data. |
| URL | https://www.abdn.ac.uk/birth-cohorts/ |
| Title | Attribute to distinguish between public and non-public buildings on R13 dataset |
| Description | Dataset flag |
| Type Of Material | Database/Collection of data |
| Year Produced | 2017 |
| Provided To Others? | No |
| Impact | None |
| Title | Bike Counter Dataset |
| Description | SQLite database plus CSV tables published under open licence |
| Type Of Material | Database/Collection of data |
| Provided To Others? | No |
| Impact | None. |
| URL | http://data.edinburghopendata.info/dataset/bike-counter-data-set-cluster |
| Title | Database of UK universities Research Office Contacts |
| Description | Contact information for UK universities Research Offices |
| Type Of Material | Database/Collection of data |
| Year Produced | 2017 |
| Provided To Others? | No |
| Impact | none |
| Title | Derived % built up in 1937-61 dataset |
| Description | (Raster GRID) |
| Type Of Material | Database/Collection of data |
| Year Produced | 2017 |
| Provided To Others? | No |
| Impact | none |
| Title | General Household training dataset |
| Description | General Household training dataset for researchers to use |
| Type Of Material | Database/Collection of data |
| Year Produced | 2015 |
| Provided To Others? | Yes |
| Impact | Necessary for training exercises for workshops |
| Title | Innovate UK |
| Description | Innovate UK is a new integrated decision-making tool for urban health and policy evaluation. |
| Type Of Material | Data analysis technique |
| Provided To Others? | No |
| Impact | None as yet. The SME CERC leading the proposal will benefit directly through development of a market lead in a sophisticated spatiotemporal mapping and modelling platform to assess environmental exposure and health-risks, and the associated commercial income stream. |
| URL | http://gtr.rcuk.ac.uk/projects?ref=NE%2FN007352%2F1 |
| Title | Longitudinal training dataset |
| Description | Longitudinal training dataset for researchers to use and train with. |
| Type Of Material | Database/Collection of data |
| Year Produced | 2015 |
| Provided To Others? | Yes |
| Impact | Necessary for training exercises for workshops |
| Title | New derived databases of features |
| Description | Database of extracted geographical features extracted from historic maps |
| Type Of Material | Database/Collection of data |
| Provided To Others? | No |
| Impact | None |
| Title | Prototype urbaness spatial dataset |
| Description | prototype 'urbaness' spatial dataset |
| Type Of Material | Database/Collection of data |
| Provided To Others? | No |
| Impact | None |
| Title | Teaching synthetic data set for the ADRC-S course 'An introduction to using linked administrative data for social and health research' |
| Description | An extract from the SLS has been synthesised. The data are from population and school censuses and can be used to analyse risk factors of young people not in education or training (NEETS). |
| Type Of Material | Database/Collection of data |
| Year Produced | 2017 |
| Provided To Others? | Yes |
| Impact | Exposure of course participants to real data problems |
| Title | Updates to machine learning dataset |
| Description | Machine learning dataset |
| Type Of Material | Computer model/algorithm |
| Provided To Others? | No |
| Impact | None |
| Title | linkage of cash for kids grant making individual level data to administrative data sets |
| Description | linkage of cash for kids grant making individual level data to administrative data sets |
| Type Of Material | Database/Collection of data |
| Provided To Others? | No |
| Impact | None as yet |
| Title | machine learning training dataset (maps) |
| Description | machine learning training dataset (maps) |
| Type Of Material | Database/Collection of data |
| Provided To Others? | No |
| Impact | None |
| URL | https://gitlab.edina.ac.uk |
| Description | ADRC Scotland - Dibben |
| Organisation | Australian National University (ANU) |
| Country | Australia |
| Sector | Academic/University |
| PI Contribution | Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S). The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement. ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets. |
| Collaborator Contribution | A wide variety of contributions will be made by individual collaborators. These include: eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues. National Records of Scotland - Are the third party for the linkage of administrative datasets. Australian National University - Will provide expert advice for the linkage of administrative datasets. Broadly, UK universities will deliver specific research aims as follows: University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers. University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study. University of St Andrews - Dealing with uncertainty in automated linkage. University of Glasgow - Research into incomes, benefits and the labour market. University of Stirling - Research into the implications of caring for health and wellbeing. |
| Impact | The ADRC project will run from 2013 until 2018. The ADRC has currently: i. Produced 7 publications. ii. Created 1 software package. iii. Been Involved in 8 engagement activities. |
| Start Year | 2013 |
| Description | ADRC Scotland - Dibben |
| Organisation | Heriot-Watt University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S). The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement. ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets. |
| Collaborator Contribution | A wide variety of contributions will be made by individual collaborators. These include: eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues. National Records of Scotland - Are the third party for the linkage of administrative datasets. Australian National University - Will provide expert advice for the linkage of administrative datasets. Broadly, UK universities will deliver specific research aims as follows: University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers. University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study. University of St Andrews - Dealing with uncertainty in automated linkage. University of Glasgow - Research into incomes, benefits and the labour market. University of Stirling - Research into the implications of caring for health and wellbeing. |
| Impact | The ADRC project will run from 2013 until 2018. The ADRC has currently: i. Produced 7 publications. ii. Created 1 software package. iii. Been Involved in 8 engagement activities. |
| Start Year | 2013 |
| Description | ADRC Scotland - Dibben |
| Organisation | Information Services Division (ISD) |
| Department | Electronic Data Research and Innovation Service (eDRIS) |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S). The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement. ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets. |
| Collaborator Contribution | A wide variety of contributions will be made by individual collaborators. These include: eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues. National Records of Scotland - Are the third party for the linkage of administrative datasets. Australian National University - Will provide expert advice for the linkage of administrative datasets. Broadly, UK universities will deliver specific research aims as follows: University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers. University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study. University of St Andrews - Dealing with uncertainty in automated linkage. University of Glasgow - Research into incomes, benefits and the labour market. University of Stirling - Research into the implications of caring for health and wellbeing. |
| Impact | The ADRC project will run from 2013 until 2018. The ADRC has currently: i. Produced 7 publications. ii. Created 1 software package. iii. Been Involved in 8 engagement activities. |
| Start Year | 2013 |
| Description | ADRC Scotland - Dibben |
| Organisation | National Records of Scotland |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S). The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement. ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets. |
| Collaborator Contribution | A wide variety of contributions will be made by individual collaborators. These include: eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues. National Records of Scotland - Are the third party for the linkage of administrative datasets. Australian National University - Will provide expert advice for the linkage of administrative datasets. Broadly, UK universities will deliver specific research aims as follows: University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers. University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study. University of St Andrews - Dealing with uncertainty in automated linkage. University of Glasgow - Research into incomes, benefits and the labour market. University of Stirling - Research into the implications of caring for health and wellbeing. |
| Impact | The ADRC project will run from 2013 until 2018. The ADRC has currently: i. Produced 7 publications. ii. Created 1 software package. iii. Been Involved in 8 engagement activities. |
| Start Year | 2013 |
| Description | ADRC Scotland - Dibben |
| Organisation | University of Aberdeen |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S). The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement. ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets. |
| Collaborator Contribution | A wide variety of contributions will be made by individual collaborators. These include: eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues. National Records of Scotland - Are the third party for the linkage of administrative datasets. Australian National University - Will provide expert advice for the linkage of administrative datasets. Broadly, UK universities will deliver specific research aims as follows: University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers. University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study. University of St Andrews - Dealing with uncertainty in automated linkage. University of Glasgow - Research into incomes, benefits and the labour market. University of Stirling - Research into the implications of caring for health and wellbeing. |
| Impact | The ADRC project will run from 2013 until 2018. The ADRC has currently: i. Produced 7 publications. ii. Created 1 software package. iii. Been Involved in 8 engagement activities. |
| Start Year | 2013 |
| Description | ADRC Scotland - Dibben |
| Organisation | University of Aberdeen |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S). The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement. ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets. |
| Collaborator Contribution | A wide variety of contributions will be made by individual collaborators. These include: eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues. National Records of Scotland - Are the third party for the linkage of administrative datasets. Australian National University - Will provide expert advice for the linkage of administrative datasets. Broadly, UK universities will deliver specific research aims as follows: University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers. University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study. University of St Andrews - Dealing with uncertainty in automated linkage. University of Glasgow - Research into incomes, benefits and the labour market. University of Stirling - Research into the implications of caring for health and wellbeing. |
| Impact | The ADRC project will run from 2013 until 2018. The ADRC has currently: i. Produced 7 publications. ii. Created 1 software package. iii. Been Involved in 8 engagement activities. |
| Start Year | 2013 |
| Description | ADRC Scotland - Dibben |
| Organisation | University of Dundee |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S). The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement. ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets. |
| Collaborator Contribution | A wide variety of contributions will be made by individual collaborators. These include: eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues. National Records of Scotland - Are the third party for the linkage of administrative datasets. Australian National University - Will provide expert advice for the linkage of administrative datasets. Broadly, UK universities will deliver specific research aims as follows: University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers. University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study. University of St Andrews - Dealing with uncertainty in automated linkage. University of Glasgow - Research into incomes, benefits and the labour market. University of Stirling - Research into the implications of caring for health and wellbeing. |
| Impact | The ADRC project will run from 2013 until 2018. The ADRC has currently: i. Produced 7 publications. ii. Created 1 software package. iii. Been Involved in 8 engagement activities. |
| Start Year | 2013 |
| Description | ADRC Scotland - Dibben |
| Organisation | University of Edinburgh |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S). The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement. ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets. |
| Collaborator Contribution | A wide variety of contributions will be made by individual collaborators. These include: eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues. National Records of Scotland - Are the third party for the linkage of administrative datasets. Australian National University - Will provide expert advice for the linkage of administrative datasets. Broadly, UK universities will deliver specific research aims as follows: University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers. University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study. University of St Andrews - Dealing with uncertainty in automated linkage. University of Glasgow - Research into incomes, benefits and the labour market. University of Stirling - Research into the implications of caring for health and wellbeing. |
| Impact | The ADRC project will run from 2013 until 2018. The ADRC has currently: i. Produced 7 publications. ii. Created 1 software package. iii. Been Involved in 8 engagement activities. |
| Start Year | 2013 |
| Description | ADRC Scotland - Dibben |
| Organisation | University of Glasgow |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S). The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement. ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets. |
| Collaborator Contribution | A wide variety of contributions will be made by individual collaborators. These include: eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues. National Records of Scotland - Are the third party for the linkage of administrative datasets. Australian National University - Will provide expert advice for the linkage of administrative datasets. Broadly, UK universities will deliver specific research aims as follows: University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers. University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study. University of St Andrews - Dealing with uncertainty in automated linkage. University of Glasgow - Research into incomes, benefits and the labour market. University of Stirling - Research into the implications of caring for health and wellbeing. |
| Impact | The ADRC project will run from 2013 until 2018. The ADRC has currently: i. Produced 7 publications. ii. Created 1 software package. iii. Been Involved in 8 engagement activities. |
| Start Year | 2013 |
| Description | ADRC Scotland - Dibben |
| Organisation | University of St Andrews |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S). The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement. ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets. |
| Collaborator Contribution | A wide variety of contributions will be made by individual collaborators. These include: eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues. National Records of Scotland - Are the third party for the linkage of administrative datasets. Australian National University - Will provide expert advice for the linkage of administrative datasets. Broadly, UK universities will deliver specific research aims as follows: University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers. University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study. University of St Andrews - Dealing with uncertainty in automated linkage. University of Glasgow - Research into incomes, benefits and the labour market. University of Stirling - Research into the implications of caring for health and wellbeing. |
| Impact | The ADRC project will run from 2013 until 2018. The ADRC has currently: i. Produced 7 publications. ii. Created 1 software package. iii. Been Involved in 8 engagement activities. |
| Start Year | 2013 |
| Description | ADRC Scotland - Dibben |
| Organisation | University of Stirling |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S). The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement. ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets. |
| Collaborator Contribution | A wide variety of contributions will be made by individual collaborators. These include: eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues. National Records of Scotland - Are the third party for the linkage of administrative datasets. Australian National University - Will provide expert advice for the linkage of administrative datasets. Broadly, UK universities will deliver specific research aims as follows: University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers. University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study. University of St Andrews - Dealing with uncertainty in automated linkage. University of Glasgow - Research into incomes, benefits and the labour market. University of Stirling - Research into the implications of caring for health and wellbeing. |
| Impact | The ADRC project will run from 2013 until 2018. The ADRC has currently: i. Produced 7 publications. ii. Created 1 software package. iii. Been Involved in 8 engagement activities. |
| Start Year | 2013 |
| Description | ADRC Scotland - Dibben |
| Organisation | University of Stirling |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Brought together the main collaborators and their work proposals to form the Administrative Data Research Centre - Scotland (ADRC-S). The ADRC-S will make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of national policy. A core service will provide researchers with state of the art facilities for access to administrative data, provide data management and statistical analysis support functions for external researchers accessing the data and engage in training, capacity building and public engagement. ADRC-S will also produce a set of developmental work packages that will conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets. |
| Collaborator Contribution | A wide variety of contributions will be made by individual collaborators. These include: eDRIS - Will provide assistance to researchers applying for administrative data and the development of metadata catalogues. National Records of Scotland - Are the third party for the linkage of administrative datasets. Australian National University - Will provide expert advice for the linkage of administrative datasets. Broadly, UK universities will deliver specific research aims as follows: University of Edinburgh - Public engagement, information governance, geocoding and georeferencing tools, coding and classifying print text, creating synthetic versions of linked administrative data, linking the Scottish Mental Surveys to a range of administrative data, researching the effects of parental mental illness on their children and the creation of specific statistical training courses for researchers. University of Aberdeen - Deep investigation of the historical administrative data in the Aberdeen Children of the Nineteen Fifties study. University of St Andrews - Dealing with uncertainty in automated linkage. University of Glasgow - Research into incomes, benefits and the labour market. University of Stirling - Research into the implications of caring for health and wellbeing. |
| Impact | The ADRC project will run from 2013 until 2018. The ADRC has currently: i. Produced 7 publications. ii. Created 1 software package. iii. Been Involved in 8 engagement activities. |
| Start Year | 2013 |
| Description | ADRC Scotland - Gibb (Cash for Kids) |
| Organisation | Cash for Kids |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | a proposed feasibility study to investigate the impact of cash grants or income supplements in terms of their effects on recipient households - do frailty oriented subsidies affect educational outcomes for their children? |
| Collaborator Contribution | a proposed feasibility study to investigate the impact of cash grants or income supplements in terms of their effects on recipient households - do frailty oriented subsidies affect educational outcomes for their children? |
| Impact | None |
| Start Year | 2015 |
| Description | ADRC Scotland - Gibb (What Works Scotland) |
| Organisation | What Works Scotland |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | on going interest by community planning partnerships already working with WWS to disucss scope for data linkage possibilities for their corss-sectoroal profiling and planning work. |
| Collaborator Contribution | on going interest by community planning partnerships already working with WWS to disucss scope for data linkage possibilities for their corss-sectoroal profiling and planning work. |
| Impact | None |
| Start Year | 2015 |
| Description | ADRC Scotland - McVie |
| Organisation | National Crime Agency |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | A proposal for research is currently in development. This will involve in-kind contributions of data from the NCA and involvement of their staff in terms of research input and writing. |
| Collaborator Contribution | A proposal for research is currently in development. This will involve in-kind contributions of data from the NCA and involvement of their staff in terms of research input and writing. |
| Impact | None. |
| Start Year | 2015 |
| Description | ADRC-S Regional Safe Settings (University of Aberdeen) |
| Organisation | University of Dundee |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Costs for SafeDesk |
| Collaborator Contribution | Room and staffing |
| Impact | n/a |
| Start Year | 2017 |
| Description | ADRC-S Regional Safe Settings (University of Dundee) |
| Organisation | University of Aberdeen |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Costs for SafeDesk |
| Collaborator Contribution | Room and staffing |
| Impact | n/a |
| Start Year | 2017 |
| Description | ADRC-S Regional Safe Settings (University of Glasgow) |
| Organisation | University of Glasgow |
| Department | Robertson Centre for Biostatistics Glasgow |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Costs for SafeDesk |
| Collaborator Contribution | Room and staffing |
| Impact | n/a |
| Start Year | 2017 |
| Description | ADRC-S Regional Safe Settings (University of St Andrews) |
| Organisation | St. Andrews University |
| Country | United States |
| Sector | Academic/University |
| PI Contribution | n/a |
| Collaborator Contribution | Staffing |
| Impact | n/a |
| Start Year | 2017 |
| Description | AMS Oversight Group |
| Organisation | Amazon.com |
| Country | United States |
| Sector | Private |
| PI Contribution | Part of new workstream: How does society use evidence to judge the risks and benefits of medicines |
| Collaborator Contribution | Part of new workstream: How does society use evidence to judge the risks and benefits of medicines |
| Impact | Producing a technical report |
| Start Year | 2015 |
| Description | Blue Lights Project |
| Organisation | NHS Health Scotland |
| Department | Scottish Ambulance Service |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Access support and access to data |
| Collaborator Contribution | Access support and access to data |
| Impact | Access support and access to data |
| Start Year | 2017 |
| Description | Blue Lights Project |
| Organisation | Police Scotland |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Access support and access to data |
| Collaborator Contribution | Access support and access to data |
| Impact | Access support and access to data |
| Start Year | 2017 |
| Description | Blue Lights Project |
| Organisation | Scottish Fire and Rescue Service |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Access support and access to data |
| Collaborator Contribution | Access support and access to data |
| Impact | Access support and access to data |
| Start Year | 2017 |
| Description | Collaborative MSc project on curating, cleaning, analysing and visualising off-road bike counter data from City of Edinburgh Council\ |
| Organisation | City of Edinburgh Council |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Student supervision, relationship management, project management |
| Collaborator Contribution | Transfer of 9 years of sensor data; Contextual information about data, feedback on project. |
| Impact | See website for more information. |
| Start Year | 2016 |
| Description | Collaborative MSc project on parsing Scottish Post Office Directories |
| Organisation | National Library of Scotland |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Student supervision |
| Collaborator Contribution | Student supervision, project management |
| Impact | Unpublished MSc dissertation |
| Start Year | 2016 |
| Description | Commissioned work for Swansea |
| Organisation | Swansea University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Oversight and admin |
| Collaborator Contribution | Problem space |
| Impact | Example data sets for defined geographic area in Wales |
| Start Year | 2017 |
| Description | Early collaboration with Swansea (Alex Langlands) |
| Organisation | Swansea University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Exchange of methodologies and agreement to allow access to our codebase |
| Collaborator Contribution | Exchange of methodologies and agreement to allow access to our codebase |
| Impact | None reported. |
| Start Year | 2016 |
| Description | Generation Scotland - cohort partnership |
| Organisation | Generation Scotland |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Led recruitment from ACONF and supprted brain imaging |
| Collaborator Contribution | Project PI and biological data storage |
| Impact | Not reported. |
| Start Year | 2016 |
| Description | Meeting between UBDC and Registers of Scotland |
| Organisation | Registers of Scotland |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Professional input into meeting |
| Collaborator Contribution | Professional input into meeting |
| Impact | None as yet |
| Start Year | 2016 |
| Description | MoU with National Library |
| Organisation | National Library of Scotland |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Ongoing engagement was considered as part of draft MoU text |
| Collaborator Contribution | Not reported. |
| Impact | Full access to large collection of historic data |
| Start Year | 2016 |
| Description | NCA Project |
| Organisation | Police Scotland |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Access support and access to data |
| Collaborator Contribution | Access support and access to data |
| Impact | Access support and access to data |
| Start Year | 2016 |
| Description | PBPP - Public Engagement Guideline Development Group |
| Organisation | Farr Institute of Health Informatics Research |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Input to the development of new guidelines for the Public Benefit and Privacy Panel in Scotland |
| Collaborator Contribution | Input to the development of new guidelines for the Public Benefit and Privacy Panel in Scotland |
| Impact | Report and recommendations submitted to commissioning group (Farr Scotland Director and PBPP Chair) in Jan 2017. Draft report has driven change in procedures at PBPP |
| Start Year | 2016 |
| Title | SafeDesk |
| Description | SafeDesk |
| IP Reference | |
| Protection | Trade Mark |
| Year Protection Granted | 2017 |
| Licensed | No |
| Impact | SafeDesk and policies developed to enable researchers to remotely access the National Safe Haven. SafeDesk placed into the universities of Dundee, Glasgow and Aberdeen. |
| Title | SafePod |
| Description | Trademark has been updated to include new logo |
| IP Reference | |
| Protection | Trade Mark |
| Year Protection Granted | 2019 |
| Licensed | No |
| Impact | none as yet |
| Title | SafePod remote safe setting |
| Description | SafePods are micro safe rooms that provide remote access to data. |
| IP Reference | |
| Protection | Trade Mark |
| Year Protection Granted | 2015 |
| Licensed | No |
| Impact | Potential to develop the UKs first remote safe settings programme for researchers to use local institution to access sensitive data. |
| Title | Aberdeen Birth Cohorts - convert metadata db to new DaDaBIK |
| Description | onvert metadata db to new DaDaBIK |
| Type Of Technology | Software |
| Year Produced | 2015 |
| Impact | None |
| Title | Aberdeen Birth Cohorts website |
| Description | Website to engage study participants from Aberdeen child of the 1950s project. |
| Type Of Technology | Webtool/Application |
| Year Produced | 2015 |
| Impact | None |
| URL | http://www.abdn.ac.uk/birth-cohorts/1950s/ |
| Title | Automatic Record Classification Software |
| Description | A tool for automatic classification of text strings such as occupations and causes of death, using machine learning and other algorithms. |
| Type Of Technology | Software |
| Year Produced | 2015 |
| Impact | Not yet known. |
| URL | http://digitisingscotland.cs.st-andrews.ac.uk/record_classification/ |
| Title | Establishment of SILC shared services; accommodation, TTP Indexing, eDRIS and new Safe Haven computing |
| Description | Establishment of SILC shared services; accommodation, TTP Indexing, eDRIS and new Safe Haven computing |
| Type Of Technology | New/Improved Technique/Technology |
| Year Produced | 2015 |
| Impact | Will lead to improvement of access and sharing of admin data for research |
| Title | Historic-Map-Processing software |
| Description | Historic-Map-Processing software |
| Type Of Technology | New/Improved Technique/Technology |
| Year Produced | 2016 |
| Impact | will allow others to extract features from historic map corpi |
| URL | http://gitlab.edina.ac.uk |
| Title | Historical map feature extraction suite |
| Description | To extract features from historical maps in order to generate new spatial datasets of thematic interest for contextual environmental exposure proxies |
| Type Of Technology | Software |
| Year Produced | 2015 |
| Impact | A suite of python scripts for image processing, image classification, machine learning and computer vision techniques for historic map corpus |
| URL | https://gitlab.edina.ac.uk |
| Title | SafeDesk |
| Description | Concept to allow a room to be converted to a safe setting using a SafeDesk. Currently in place at the universities of Dundee, Glasgow and Aberdeen |
| Type Of Technology | Physical Model/Kit |
| Year Produced | 2017 |
| Impact | Provides researchers with the opportunity to access their ADRC-S data through the National Safe Haven without the need to travel long distances. |
| URL | https://www.adrn.ac.uk/about/network/scotland/safe-settings/ |
| Title | Synthpop: Generating synthetic versions of sensitive microdata for statistical disclosure control |
| Description | --- A tool for producing synthetic versions of microdata containing confidential information so that they are safe to be released to users for exploratory analysis. The key objective of generating synthetic data is to replace sensitive original values with synthetic ones causing minimal distortion of the statistical information contained in the data set. Variables, which can be categorical or continuous, are synthesised one-by-one using sequential modelling. Replacements are generated by drawing from conditional distributions fitted to the original data using parametric or classification and regression trees models. Data are synthesised via the function syn() which can be largely automated, if default settings are used, or with methods defined by the user. Optional parameters can be used to influence the disclosure risk and the analytical quality of the synthesised data. |
| Type Of Technology | Software |
| Year Produced | 2014 |
| Open Source License? | Yes |
| Impact | The synthpop package for R facilitates greatly generating non-disclosive entirely synthetic versions of sensitive restricted access microdata (e.g. the UK Longitudinal Studies) that can then be made more freely available for explanatory research and training. This can increase usage and impact of the unique and valuable resources. |
| URL | http://cran.r-project.org/package=synthpop |
| Description | "'Documenting the workflow when analysing administrative data: Possible approaches to sharing data analysis programmes with insights from computer science' ESRC Administrative Data Research Network Research Conference QUB, Belfast." |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Audience given new insight into methods used for computer science |
| Year(s) Of Engagement Activity | 2015 |
| Description | "'Encouraging Users to Adopt Good Practices in Administrative Data Analysis: The Workflow and Metadata' ESRC Administrative Data Research Network Research Conference QUB, Belfast" |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Audience appreciated importance of adopting good practice when using administrative data |
| Year(s) Of Engagement Activity | 2015 |
| Description | "'Working with Occupation Based Socio-economic Measures in Administrative Data' ESRC Administrative Data Research Network Research Conference QUB, Belfast." |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Audience educated in different occupational measures |
| Year(s) Of Engagement Activity | 2015 |
| Description | "Administrative Social Science Data: L'autre obsession' Social Surveys and Social Statistics Research Group All-hands meeting University of Stirling" |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Audience introduced to context of administrative data |
| Year(s) Of Engagement Activity | 2015 |
| Description | "Challenging Child Protection: New Directions in Safeguarding Children Connecting Research" |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Talk on the above topic. Slides and podcast available from link below. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.socialwork.ed.ac.uk/research/grants_and_projects/current_projects/revisiting_child_protec... |
| Description | "Delivering Proportionate Governance in a Culture of Caution: Lessons learned and next steps" at 2015 Data Safety in Scottish Health and Social Care Partnerships Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Raised awareness of the research undertaken within the legal work package to ADRC-S and more generally about the work of ADRC-S within the administrative data landscape. |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.mackayhannah.com/conferences/speakers/health-and-social-care |
| Description | "From a Culture of Caution to a Culture of Confidence" at Changing a Record Landscape: Public Records Scotland Act 2011 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited speaker to conference of information governance and records management professionals. Made further contacts within this community which led to our workshop with National Records Scotland. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.scottisharchives.org.uk/prsaconference2016 |
| Description | "Inequalities in Ageing: An Example of the Social to Biological Transition? Taking a Life Course Approach Using Social and Biological Data" |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Post-SSLS conference workshop, discussing the use of life course approaches (such as SMS1947 cohort) |
| Year(s) Of Engagement Activity | 2017 |
| Description | "Myths and Realities of Public Sector Information Governance - Moving Beyond a Culture of Caution to a Culture of Confidence" at Capita's Public Sector Records and Information Management Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited speaker to conference of information governance and records management professionals. Further opportunity to pilot our decision making matrix and develop future opportunities for engagement with Scottish public authorities. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.capitaconferences.co.uk/pdfgen.html?filename=PublicRecordsManagementScotland.pdf&code=SMM... |
| Description | "Reducing Risk and Minimising Harm to Individuals in Cross-Border Care: The Crucial Role of Good Governance in Preventing the Misuse of Patient Data" at the European Association of Health Law 2015 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Raised awareness of the research undertaken by the legal work package to ADRC-S and specifically about the research undertaken on the notion of harms arising out of the use of administrative data (in particular the use of health administrative data). |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.eahl2015prague.eu/detailed-programme.htm |
| Description | "Reducing risk and minimising harm: the crucial role of good governance in preventing the abuse of health and biomedical data" at CPDP 2016 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Accepted paper to international data protection conference; international exposure to ADRN/ADRC-S and requests for further information on our work on harm. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.cpdpconferences.org |
| Description | "What is Public Benefit" events across Scotland June 2017 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Workshops held across 3 areas of Scotland (Perth, Glasgow and Aberdeen) to explore what the public think about public benefit and the use of data for public benefit |
| Year(s) Of Engagement Activity | 2017 |
| Description | 'Administrative data is a bit like Tinder: Other people seem to be using it, are you missing out?' |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Increased awareness of administrative data research possibilities |
| Year(s) Of Engagement Activity | 2015 |
| Description | 'Big Data can improve your life'. Episode 49 of 'Reasons to be Cheerful' podcast |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | A 30-minute interview with Ed Miliband in front of an audience of 600 at the Edinburgh Fringe Festival, later published online and as a podcast. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://play.acast.com/s/reasonstobecheerful/49.bigdatacanimproveyourhealth |
| Description | 'Big data: what's the big deal?' Article in British Geriatrics Society Newsletter 2019 |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Article by Anna Schneider relating to a workshop at the BGS Spring meeting discussing the use of big data in geriatric research. Included a description of the 'Care at the end of life project' |
| Year(s) Of Engagement Activity | 2019 |
| Description | 'Exploring Ear'oles Education |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | 'Exploring Ear'oles Education: An investigation of the school-level educational outcomes of 'working class' pupils in contemporary Scotland.', Social Stratification Research Conference, Cambridge. Audience developed knowledge of techniques to be used when analysing administrative data |
| Year(s) Of Engagement Activity | 2016 |
| Description | 'Exploring inequalities at end of life care' |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation by Anna Schneider exploring the use of linked administrative date to understand inequalities in end of life care. Part of the CPC Brown Bag series made to Scottish Government and other researchers. |
| Year(s) Of Engagement Activity | 2019 |
| Description | 'Scotland's most deprived 'more likely to die alone at home' " |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | An online article in the Guardian, by Anna Schneider, on deprivation and end-of-life care. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://www.theguardian.com/inequality/2018/sep/13/scotlands-most-deprived-more-likely-die-alone-at-... |
| Description | 'The factors associated with entry to formal care for the elderly in Scotland: a longitudinal analysis' |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | Presentation of research findings at an Interdisciplinary Student Satellite session at an international conference held in Coburg, Germany |
| Year(s) Of Engagement Activity | 2018 |
| Description | 'Working with administrative data' |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Postgraduate students |
| Results and Impact | Talk to students at Napier University by Anna Schneider on the 'care at end of life' project as a exemplar of the use of administrative data in research. |
| Year(s) Of Engagement Activity | 2018 |
| Description | A Public Interest Mandate to Support the Use, Sharing and Linkage of Administrative Data |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Paper accepted as part of a Wellcome Trust/Liminal Spaces Symposium at the International Association of Bioethics Conference. As a result all speakers will coauthor a paper. As a result of this talk Ms Sharon Burton, Head of Policy for Standards and Ethics at the GMC has asked to work with us on deploying our decision-making tool for data custodians to help resolve issues in organisations working with the HSCIC. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://iab2016.com/conference-programme/ |
| Description | A note on using the F-measure for record linkage and classification algorithms |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Seminar in the School of Computing, The University of St Andrews |
| Year(s) Of Engagement Activity | 2017 |
| Description | ADRC Scotland Retreat 2015 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Opportunities for collaboration between ADRC and CSDP projects and networking of ADRC-S staff. |
| Year(s) Of Engagement Activity | 2015 |
| Description | ADRC conference retreat |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | The conference retreat helped members of the ADRC and collaborators to understand the areas of work ADRC Scotland are undertaking, to plan goals for the life of the project and to network. Staff had a better understanding of the work of the project and an opportunity to network amongst one another. |
| Year(s) Of Engagement Activity | 2014 |
| Description | ADRC conference retreat |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | The conference retreat helped members of the ADRC and collaborators to understand the areas of work ADRC Scotland are undertaking, to plan goals for the life of the project and to network. Staff had a better understanding of the work of the project and an opportunity to network amongst one another. |
| Year(s) Of Engagement Activity | 2014 |
| Description | ADRC-S Public Panel meeting on Criminal Convictions data |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Talking with public panel members about the potential for using criminal convictions research for public benefit allowed ADRC-S to take the panel's view back to government to help with negotiating access to this data |
| Year(s) Of Engagement Activity | 2016 |
| Description | ADRC-S Public Panel meeting on data retention |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Talking with public panel members about the different data models that could be adopted allowed ADRC-S to take the panel's view back to help the task team discussion on this issue |
| Year(s) Of Engagement Activity | 2016 |
| Description | ADRC-S Public Panel on synthetic data |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Talking with public panel about the use of synthetics data and the benefits, this has been used to feed into other work on synthetic data |
| Year(s) Of Engagement Activity | 2016 |
| Description | ADRC-S Public Panel to discuss crime and justice data linkage. |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | Public panel agreed that crime and justice data should be used for linkage projects that would be of significant public benefit. This helped in our endeavours to get access to crime and justice related data. |
| Year(s) Of Engagement Activity | 2016 |
| Description | ADRC-S blog on 'Its a criminal waste: how using administrative data about crime could better inform public policy' |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | ADRC-S blog on 'Its a criminal waste: how using administrative data about crime could better inform public policy |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://adrn.ac.uk/news-training/blog-adrn/it-s-a-criminal-waste/ |
| Description | ADRN Public Panel Development |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Anne McKenzie via ADRC-Scotland is now an International Advisor to the ADRNs Public Engagement activities |
| Year(s) Of Engagement Activity | 2015 |
| Description | ADS researcher training |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other academic audiences (collaborators, peers etc.) |
| Results and Impact | The Administrative Data Service (ADS) provided researcher training to ADRC staff. Completion of the training is a requirement for access to ADRN data. ADRC staff had a better understanding of the responsibilities for handling sensitive data. Delegates are authorised to access and use ADRN data. |
| Year(s) Of Engagement Activity | 2014 |
| Description | ADS researcher training |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | The Administrative Data Service (ADS) provided researcher training to ADRC staff. Completion of the training is a requirement for access to ADRN data. ADRC staff had a better understanding of the responsibilities for handling sensitive data. Delegates are authorised to access and use ADRN data. |
| Year(s) Of Engagement Activity | 2014 |
| Description | ADSW Adoption and Fostering Sub-Group |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADSW Adoption and Fostering Sub-Group |
| Year(s) Of Engagement Activity | 2018 |
| Description | AFA Legal Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | AFA Legal Conference |
| Year(s) Of Engagement Activity | 2018 |
| Description | AQMeN hosted an event on data linkage using education data. |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | The workshop resulted in significant interest in developing further projects in the area of education and how it is linked with a variety of other topics, such as crime. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.aqmen.ac.uk/EducationData |
| Description | Aberdeen Children of the 1950s |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | talk at Cults 50+ group high level overview of data linkage and research |
| Year(s) Of Engagement Activity | 2016 |
| Description | Aberdeen Children of the 1950s |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | talk at UCAN Cancer charity high level overview of data linkage and research |
| Year(s) Of Engagement Activity | 2016 |
| Description | Aberdeen Children of the 1950s |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | high level overview of data linkage and research |
| Year(s) Of Engagement Activity | 2016 |
| Description | Aberdeen Children of the 1950s |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | high level overview of data linkage and research |
| Year(s) Of Engagement Activity | 2016 |
| Description | Aberdeen Children of the 1950s |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | stall at Mayfest at the University of Aberdeen outreach to general public |
| Year(s) Of Engagement Activity | 2016 |
| Description | Aberdeen Cohort of the 1950s Alumni newsletter |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Outreach to participants in the study, capturing participant emails |
| Year(s) Of Engagement Activity | 2015 |
| Description | Aberdeen Cohort of the 1950s Participant Reunion |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | outreach to participants in the study, opportunity for participants to provide feedback on the study |
| Year(s) Of Engagement Activity | 2016 |
| Description | Aberdeen Cohort of the 1950s Study movie |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | publicized the Aberdeen birth cohorts |
| Year(s) Of Engagement Activity | 2015 |
| Description | Aberdeen Cohort of the 1950s Study website |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | publicized the Aberdeen birth cohorts |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.abdn.ac.uk/birth-cohorts/ |
| Description | Aberdeen Cohort online participant survey |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | opportunity for participants to provide feedback on the study |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.abdn.ac.uk/birth-cohorts/feedback/ |
| Description | Aberden Cohort of the 1950s Facebook community |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | outreach to participants in the study, capturing participant emails |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://www.facebook.com/aberdeenbirthcohorts |
| Description | Administrative Data Quality and Measurement: A case study cross-validating UK Birth Records, International Sociology Association Research Committee 33 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Audience developed knowledge of techniques to be used when analysing administrative data |
| Year(s) Of Engagement Activity | 2016 |
| Description | Advanced Record LInkage Methods: Scalability, classification and privacy |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | HIghlighted topic of record linkage and its challenges |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.idir.st-andrews.ac.uk/blog/2015/07/13/peter/ |
| Description | Ageing research network and Lothian Applied Ageing Research Network |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | A meeting with invited attendees from Scottish government and third sector to provide information on the 'Care in the last days of life' work. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Alumni newsletter |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Piece in University of Aberdeen alumni newsletter about the Aberdeen Children of the 1950s study; outreach to participants in the study, capturing participant emails |
| Year(s) Of Engagement Activity | 2015 |
| Description | An Introduction to Survival Analysis Training using the Scottish Longitudinal Study dataset |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | This was a one-day workshop on survival analysis for time to event data suitable for those with experience of statistical analyses but new to this type of analysis. The course was of particular interest to those considering using the Scottish Longitudinal Study (SLS) or any of the UK longitudinal studies to analyse time to event data. The course was intended for postgraduate students, academics and social or health researchers interested in learning how to do survival analysis in a statistical package. The workshop was run by members of the SLS Team at UCL on 7th Nov 2019. |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://www.eventbrite.co.uk/e/an-introduction-to-survival-analysis-training-using-the-scottish-long... |
| Description | An exploratory study into how the clinical condition of diabetes is discussed on Twitter |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Led to further work examining social media data for clinical and social research |
| Year(s) Of Engagement Activity | 2014 |
| Description | An introduction to using the UK Census Longitudinal Studies (UKcenLS) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Members of the SLS Team ran a course at UCL on 6th November 2019 - 'An introduction to using the UK Census Longitudinal Studies (UKcenLS).' This introductory training workshop session was designed to introduce people unfamiliar with the UK Census Longitudinal Studies (UKcenLS) and the unique social science that can be undertaken with microdata that tracks individuals over time, to the kinds of analyses that can be carried out using UKcenLS. The session provided a general introduction to the UKcenLS datasets: England and Wales ONS LS, Scotland LS (SLS) and Northern Ireland LS (NILS). The introduction was followed by an opportunity for delegates to have a hands-on session to: • explore which variables are held by each LS in the data dictionary and use test data; • have help completing an application to use LS data (main example from the SLS); • meet Support Unit staff from CeLSIUS & the SLS-DSU to discuss the development of new research projects. |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://www.eventbrite.co.uk/e/an-introduction-to-using-the-uk-census-longitudinal-studies-ukcenls-r... |
| Description | Analysis methods and utility measures (Synthetic data workshop, Cambridge) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussion on the state of the art of synthetic data and challenges faced. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.newton.ac.uk/seminar/20161031140014202 |
| Description | Apples and Oranges? Searching for (In)consistencies of the Public Interest across Data Protection, Freedom of Information, Copyright and Whistleblowing Law |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Provided novel insight on the deployment of the public interest concept across several legal domains and related this to the use and importance of the concept in data protection. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Applying Systematic Review Methodologies to the Analysis of Data Available on Social Media Sites: An Exploratory Study into How the Topic of Gestational Diabetes Is Discussed on Twitter |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Methodological contribution of reuse of online social data |
| Year(s) Of Engagement Activity | 2014 |
| Description | Audience developed knowledge of techniques to be used when analysing administrative data |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | An international audience was exposed to the work being done on the governance work package of ADRC Scotland, and revealed common themes/experiences in administrative data linkage. Key contacts were made with international data linkage centres, including in particular Statistics New Zealand and the US Census Bureau. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Balancing societal benefits and risks in the Big Data ecosystem |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Prompting policymakers, medics and healthcare professionals to think about the importance of developing an evidence base to partner with the innovations agenda. |
| Year(s) Of Engagement Activity | 2014 |
| Description | Beltane Breakfast - Policy Making Event |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | We participated in an open policy making event with policy makers at the Beltane Public Engagement Event |
| Year(s) Of Engagement Activity | 2015 |
| Description | Big Data Integration: Challenges and opportunities |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Informed wider group about challenges and opportunities for big data integration |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.trustedautonomy.net/index.php/data-decision-analytics-2015-workshop |
| Description | Big Data workshop |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Big Data workshop |
| Year(s) Of Engagement Activity | 2017 |
| Description | Big questions / big ideas conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | An international consortium to hold data and to collaborate on methodology was formed. Future work on coding occupations and a sister project in the Netherlands. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Birth Cohorts |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Postgraduate students |
| Results and Impact | course describing data linkage and research to medical students |
| Year(s) Of Engagement Activity | 2016 |
| Description | BitBlaster: A fast complete similarity search algorithm - Graham Kirby |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Research talk at meeting of St Andrew Institute for Data-Intensive Research |
| Year(s) Of Engagement Activity | 2018 |
| URL | http://www.idir.st-andrews.ac.uk/wp-content/uploads/2018/09/BitBlaster.pdf |
| Description | Blockchain for Clinical Trials - What are the Ethical Issues? |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Symposium on Blockchain for Science. Imperial College London |
| Year(s) Of Engagement Activity | 2017 |
| Description | Blog - The proof is in the data-pudding |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Research fellow, David Henderson, co-wrote a blog about social care data in Scotland - its quality, his experience of accessing it and improvements for the future. |
| Year(s) Of Engagement Activity | 2020 |
| URL | https://www.statisticsauthority.gov.uk/the-proof-is-in-the-data-pudding/ |
| Description | Blogpost - Researcher Experience: Dr David Henderson |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Contributed a blog to Early Career Researchers Using Scottish Administrative Data, to help ECRs navigate this landscape and the challenges of data linkage processes. |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://ecrusad.co.uk/2020/01/22/researcher-experience-dr-david-henderson/ |
| Description | Bringing patients and their records together: rights, benefits and the digital society |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Key note speech at the Holyrood e-health conference. Contributing to the policy dialogue and clinical debate around the sociatel benefits of sharing electronic records with patients and citizens. |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://ehealth.holyrood.com/agend |
| Description | CCACE 8th Annual Research Day |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Knowledge dissemination ADRC-S exposure |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.ppls.ed.ac.uk/psychology/events/view/ccace-8th-annual-research-day |
| Description | CLOSER conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | publicized the Aberdeen birth cohorts, planning collaborations with other birth cohort studies, planning to get the Aberdeen Children of the 1950s cohort linked to CLOSER |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.closer.ac.uk/event/conference2015/ |
| Description | CLOSER conference |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Presented poster on Aberdeen birth cohorts at Cohort & Longitudinal Studies Enhancement Resources (CLOSER) conference on the The importance of early years, childhood and adolescence: Evidence from longitudinal studies Publicized the Aberdeen birth cohorts, planning collaborations with other birth cohort studies, planning to get the Aberdeen Children of the 1950s cohort linked to CLOSER. |
| Year(s) Of Engagement Activity | 2015 |
| Description | COVID-19 Data Taskforce Delivery Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Weekly meeting from mid April-July 2020, held throughout immediate COVID-19 response to advise on rapid data infrastructure development and research. |
| Year(s) Of Engagement Activity | 2020 |
| URL | https://researchdata.scot/our-response-covid-19 |
| Description | Can we use linked administrative data to identify social disadvantage? |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Blogpost by Serena Pattaro, Research Fellow, on "can we use linked administrative data to identify social disadvantage?" |
| Year(s) Of Engagement Activity | 2020 |
| URL | https://www.scadr.ac.uk/news-and-events/blog-can-we-use-linked-administrative-data-identify-social-d... |
| Description | Care Group meeting for COVID-19 project on care homes with government colleagues, clinicians and academics |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Stakeholder Meeting on 13 August 2020, attended by Professor Chris Dibben and Dr David Henderson. |
| Year(s) Of Engagement Activity | 2020 |
| Description | Care Inspectorate Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Explore opportunities to link social care workforce data. Agreement to explore collaboration to access and analyse the workforce data to support the work of the regulator. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Celebration of Scottish Health Research Cohorts |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Event organised to celebrate the Aberdeen Children of the 1950s cohort. Speaker was Professor Corrie Black (Co-I on grant). |
| Year(s) Of Engagement Activity | 2018 |
| Description | Chair of ADRN information governance group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Agreeing security standards across ADRN network. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Challenges in generating and communicating synthetic data (Synthetic data workshop, Cambridge) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Discussion on the state of the art of synthetic data and challenges faced. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Challenging Inequities in Palliative Care |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | An event that identified key areas of inequality in end of life care in Scotland. Shared details of the end of life care research project with other attendees. Learned more about the perspective of practitioners and policy makers on palliative care and a number of contacts. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Child Poverty |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Schools |
| Results and Impact | Professor Morag Treanor presented to headteachers on her research on child poverty and the value of better understanding and learning from data. |
| Year(s) Of Engagement Activity | 2020 |
| URL | https://www.taycollab.org.uk/2020/01/28/tric-headteacher-event-tuesday-3-march-2020-registrations-we... |
| Description | Child rights and child poverty |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Blogpost on Universal Children's Day and the 30th anniversary of the adoption of the United Nations Convention on the Rights of the Child (UNCRC) by our SIP lead, Morag Treanor. |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://povertyinequality.scot/child-rights-and-child-poverty/ |
| Description | Childhood cognitive ability and later-life wellbeing: Linkage with the Scottish Mental Survey 1947 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Poster presentation of potential projects under Work Package 9 for ADRC Scotland. Audience was given information about a novel cohort, and about how data linkage can benefit ageing research. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Childhood cognitive function and later-life economic activity |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation at ADRN 2017, demonstrating initial results from SMS1947-SLS project (WP 9) |
| Year(s) Of Engagement Activity | 2017 |
| Description | Citizens Jury on the use of Guthrie Cards in Research |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Citizens jury held about the potential to use newborn blood spots in research (and the potential to link this to administrative data) |
| Year(s) Of Engagement Activity | 2017 |
| Description | Codefest: Introduction to Version Control |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Change in attitudes to version control and software management |
| Year(s) Of Engagement Activity | 2015 |
| Description | Cognitive Epidemiology: Using Administrative Data |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | Poster presentation of potential projects under Work Package 9. The poster also aimed to raise awareness of data linkage process and ethics. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Collaboration with Urban Big Data Centre (1) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Identified areas in which the sister ESRC funded data centres would work together and initiate the planning for the UBDC to use ADRC facilities for their research using data linkage. UBDC and ADRC-S staff were formally introduced and gained a clear understanding of their respective responsibilities and areas of activity. |
| Year(s) Of Engagement Activity | 2014 |
| Description | Collaboration with Urban Big Data Centre (2) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | The meeting resulted in the parameters for future contract of service between UBDC and ADRC-S. |
| Year(s) Of Engagement Activity | 2014 |
| Description | Collaboration with Urban Big Data Centre (2) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | The meeting resulted in the parameters for future contract of service between UBDC and ADRC-S. None. |
| Year(s) Of Engagement Activity | 2014 |
| Description | Connelly, R., Gayle, V. and Dibben, C. (accepted) Scottish Linked-Administrative Data: New Opportunities for Longitudinal Research, Society for Research in Lifecourse and Longitudinal Studies Life Courses in Cross-National Comparison: Similarities and Differences Dublin Castle, Dublin, Ireland, 18 - 21 October 2015 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Audience had awareness of new opportunities for longitudinal research |
| Year(s) Of Engagement Activity | 2015 |
| Description | Consent and the GDPR: What does it mean? |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Health Informatics Society of Ireland |
| Year(s) Of Engagement Activity | 2017 |
| Description | Could Bitcoin Help Science? |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | One of several interviewees quoted in a Nature article on the potential of Blockchain for science. Pagliari was interviewed following a talk at the Imperial Blockchain for Science symposium, in which she analysed the ethical and governance implications of these innovations. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.nature.com/articles/d41586-017-08589-4 |
| Description | Course: Statistical Modelling for Administrative & Social Survey Data @ 9 Edinburgh Bioquarter |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Audience developed knowledge of techniques to be used when analysing administrative data |
| Year(s) Of Engagement Activity | 2015 |
| Description | Creation of a Public Engagement community of practice within Usher Institute |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | A new community of practice within the Usher Institute is being established and ADRC-S PE WP team are part of this core group developing and leading this work |
| Year(s) Of Engagement Activity | 2017 |
| Description | Cross national research data: access, legality, ethics and opportunities |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussion about the difficulties of informed consent in the use of big data and pointed to alternative practices of a focus on public benefit assessment and engagement of discussion panels formed by members of the public to ensure ethical use of data. Also provided an information exchange about the resource networks and practices around big data in UK and Germany and an extension of the professional network of ADRC-S. |
| Year(s) Of Engagement Activity | 2016 |
| Description | DWP Methods Advisory Group Meeting (Feb 2020) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Our SIP lead for world of work sits on the DWP methods advisory group, offering his expertise on data analysis, linkage and innovation. |
| Year(s) Of Engagement Activity | 2020 |
| Description | Data Debater: Health Science in Aberdeen, past, present and future |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | May Festival Public Discussion, hosted by University of Aberdeen. ADRC-S researchers made a presentation on health data in Aberdeen, followed by debate and discussion. |
| Year(s) Of Engagement Activity | 2018 |
| Description | Data Ethics and Health |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Postgraduate students |
| Results and Impact | Lecture given to Business and Medical Students. Imperial College, |
| Year(s) Of Engagement Activity | 2017 |
| Description | Data Insights: Deprivation and informal care at the end of life |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | A Data Insights blog and short-format briefing on research findings on deprivation and care at the end of life. |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://www.scadr.ac.uk/sites/default/files/Data%20insights%20-%20Deprivation%20and%20informal%20car... |
| Description | Data Insights: Factors influencing the receipt of social care |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Short accessible Data Insights format on research on Factors influencing the receipt of social care - posted online and also shared in person to policy and third sector contacts relevant to the research. |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://www.scadr.ac.uk/sites/default/files/Data%20insights%20-%20Factors%20influencing%20the%20rece... |
| Description | Data Insights: Violence and Vulnerability |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Data insights document on violence and vulnerability about our research project in this area - available online and sent to key contacts directly. |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://www.scadr.ac.uk/sites/default/files/Data%20Insights%20-%20violence%20and%20vulnerabilities_0... |
| Description | Data Linkage Scotland Showcase |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | The first joint 3-partner event by all the main organisations offering research and data linkage services to the academic, policy and wider communities in Scotland. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.eventbrite.co.uk/e/data-linkage-scotland-showcase-2016-tickets-25993153221 |
| Description | Data Linkage Scotland Showcase |
| Form Of Engagement Activity | Participation in an open day or visit at my research institution |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | The first joint 3-partner event by all the main organisations offering research and data linkage services to the academic, policy and wider communities in Scotland. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.eventbrite.co.uk/e/data-linkage-scotland-showcase-2016-tickets-25993153221 |
| Description | Data Linkage Scotland Showcase 2016 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Audience introduced to context of administrative data |
| Year(s) Of Engagement Activity | 2016 |
| Description | Data Linkage and Anonymisation: Synthetic data workshop, the Isaac Newton Institute for Mathematical Sciences (Cambridge, 31/10-4/11/2016) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | An overview of the state of the art and future directions for synthetic data - work on a position paper. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.newton.ac.uk/seminar/20161031142014402 |
| Description | Data release from NLS |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Third sector organisations |
| Results and Impact | Agreement to access 7TB of large-scale historic mapping data for analytical work under WP5 of ADRC-S. Agreement in principle of a quid pro quo basis to access full corpus of NLS maps. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Data, Analysis and Research Group in Scottish Government |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Every Tuesday in August - Advisory Group held. |
| Year(s) Of Engagement Activity | 2020 |
| Description | Dataset description meeting with schema.org |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Industry/Business |
| Results and Impact | Use case requirements fed into schema.org data description vocabulary being used by major search engines (Google, Bing, Yahoo!, Yandex, etc) |
| Year(s) Of Engagement Activity | 2016 |
| Description | David Henry visit |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | This visit led to various future collaborations between Canada and Scotland and a workshop a the Farr/ ADRC international conference in St Andrews in the summer of 2015 |
| Year(s) Of Engagement Activity | 2014 |
| Description | Developing a Trusted Research Environment for London: Frontiers meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Advice to London universities and the NHS on how to create a data safe haven |
| Year(s) Of Engagement Activity | 2016 |
| Description | Developing a cross-national research agenda on crime and convictions: When will we catch up with our Scandinavian neighbours? |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Blogpost by Susan McVie and Ben Matthews - "Developing a cross-national research agenda on crime and convictions: When will we catch up with our Scandinavian neighbours?" |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://www.scadr.ac.uk/news-and-events/blog-developing-cross-national-research-agenda-crime-and-con... |
| Description | Developing collaboration with Cash for Kids |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Developing feasibility study using cash for kids data with educatonal outcomes to test intervention effects - ongoing |
| Year(s) Of Engagement Activity | 2015 |
| Description | Developing the use of administrative data on Scotland's civil society |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Engagement with third sector and ESRC civil society data centre. Stimulating interdisciplinary dialogue and engagement with third sector. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Development of ADRC Scotland Public Engagement Panel |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Awareness among the general public of the operations and aims of ADRC-S. Creation of structure for feedback into ADRC-s public opinion. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Discussions with Centre for Inflammation Research regarding information for cancer research |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Better diagnostic techniques for lung cancer |
| Year(s) Of Engagement Activity | 2015 |
| Description | Discussions with Open Historical Street Map project |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Study participants or study members |
| Results and Impact | lead to better mutual understanding of each others objectives and potential synergies - OHSM keen on reuse of software being developed and application to their aspirations |
| Year(s) Of Engagement Activity | 2015 |
| Description | Dissussion on Health and Employment Retention in Scotland |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Meeting between various ADRC-S Researchers at University of Glasgow and Scottish Government representatives from Employability, Skills and labour Market Analysis teams. Objective was to discuss avenues to progress joint research on project 'Health and Employment retention in Scotland'. |
| Year(s) Of Engagement Activity | 2018 |
| Description | Dr Beata Nowok presented at the '44th Annual Meeting of the Social Science History Association'; Chicago, IL, 21-24 November 2019. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Dr Beata Nowok presented on 'Translating' records of Scotland's past to tell meaningful stories: The production of Scottish longitudinal historical micro-dataset at the 44th Annual Meeting of the Social Science History Association'; Chicago, IL, 21-24 November 2019. The conference involves over a thousand scholars from around the world, although graduate students and faculty from the leading American universities predominant. |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://www.cossa.org/event/2019-social-science-history-association-annual-meeting/ |
| Description | Dr Beata Nowok presented at the 'British Society for Population Studies 2019 Conference'; Cardiff, UK, 9-11 September 2019. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Dr Beata Nowok presented on 'Temporal and seasonal patterns of infant mortality in Scotland, 1901-1970' at the British Society for Population Studies 2019 Conference; Cardiff, UK, 9-11 September 2019. The BSPS annual meeting is a premier conference of demographers and social and health scientists from the United States and abroad. Here senior, mid- and early-career demographers are afforded the opportunity to present their research in oral and poster sessions, hear of others' findings, and network with their peers |
| Year(s) Of Engagement Activity | 2019 |
| URL | http://www.populationassociation.org/sidebar/annual-meeting/ |
| Description | Dr Eilidh Garrett presentated to European Society for Historical Demography Biennial conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Dr Eilidh Garrett presented 'Tracing the epidemiological transition in the deaths occurring on the Isle of Skye, Scotland 1861-1970' to the European Society for Historical Demography Biennial conference June 2019. |
| Year(s) Of Engagement Activity | 2019 |
| Description | Dr Eilidh Garrett presented to British Populations Studies Society annual conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Dr Eilidh Garrett presented 'Tracing the epidemiological transition in the deaths occurring on the Isle of Skye, Scotland 1861-1970' to the British Populations Studies Society annual conference, Sep 2019. |
| Year(s) Of Engagement Activity | 2019 |
| Description | ESRC Festival of Social Science Event 'Scientists Have Your Data!' |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Discussion and quiz about public benefit and use of data, with interaction with the audience and questions about data and the benefits of administrative data use in research |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.ed.ac.uk/arts-humanities-soc-sci/research-ke/our-research/esrc-festival-of-social-scienc... |
| Description | Early-life circumstances and later life health and wellbeing in the Scottish Mental Health Survey 1947 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | Early-life circumstances and later-life health and wellbeing in the Scottish Mental Survey 1947. Centre for Population Change Seminar, Edinburgh. |
| Year(s) Of Engagement Activity | 2018 |
| Description | Edinburgh Fringe Festival talk "Who do you want to wipe your bum?" |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Edinburgh Fringe Festival talk delivered by Anna Schneider with audience debate on preparing for end of life care (one hour long) |
| Year(s) Of Engagement Activity | 2018 |
| Description | Edinburgh International Festival - BBC Science Stand |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Cunningham-Burley took part in a stall at the Edinburgh International Festival ran by BBC Scotland about research |
| Year(s) Of Engagement Activity | 2017 |
| Description | Edinburgh International Science Festival Event |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Science Festival dialogic interactive event |
| Year(s) Of Engagement Activity | 2017 |
| Description | Edinburgh Science Festival Event |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | publicised the ADRC-S, interacted with a broad cross section of the public |
| Year(s) Of Engagement Activity | 2015 |
| Description | Education and the life course: exploring patterns of subject specific performance in school attainment in Scotland |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Presentation at International Conference. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Email exchanges with ONS Chief Data Scientist |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | awareness raising of ADRC-S with ONS data science |
| Year(s) Of Engagement Activity | 2015 |
| Description | Empathy-based system design for improved patient outcomes in digital integrated care |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Building a European Network for information-driven Health and Social Care |
| Year(s) Of Engagement Activity | 2015 |
| Description | Engagement with Justice Analytical Services |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Meeting with Phillipa Haxton (Scottish Government) to discuss progress of linkage between Scottish Offenders Index and Scottish Longitudinal Study application to Police Scotland |
| Year(s) Of Engagement Activity | 2017 |
| Description | Engagement with National Crime Agency and Police Scotland |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Meeting with Stuart Weatherley (National Crime Agency) and Ian Spence (Police Scotland) to discuss linkage between NCA and PS data |
| Year(s) Of Engagement Activity | 2017 |
| Description | Engagement with Police Scotland and Scottish Fire and Rescue Service |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | This is ongoing activity which is working towards encouraging Police Scotland and SFRS to share their data with ADRC-Scotland for a range of projects to be developed (particularly one on demand amongst blue light services). |
| Year(s) Of Engagement Activity | 2016 |
| Description | Engagement with Swansea University, Archaeology |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Potential reuse of our geocoding outputs |
| Year(s) Of Engagement Activity | 2016 |
| Description | Engagement with the Scottish Government's Building Safer Communities Programme Board |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | This is an ongoing activity that has involved multiple meetings, rather than one activity. Involvement in overseeing and providing strategic input to the development of safer communities planning in Scotland, including promoting opportunities to use linked data to build an evidence base. Work is progressing and it is expected to be developing some projects in this area in 2017. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Engaging People for Innovation and Impact |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Empowering Innovation Conference. Involving patients in design of new digital technologies. Building european networks and impacting on developers in industry. |
| Year(s) Of Engagement Activity | 2014 |
| URL | http://sundhedsinnovationsjaelland.dk/content/conference-empowering-innovation |
| Description | Ethical Analytics: Opportunity or Oxymoron? |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | High Performance Computing & Big Data 2018 |
| Year(s) Of Engagement Activity | 2018 |
| Description | Ethics and Opportunities of Big Data |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Two day workshop with senior researchers focusing on central and local government data. Examining the opportunities, risk and ethics of government data. Opportunities and Ethics of Big Data report produced by RSS. Proposals taken forward by the Science and Technology Select Committee. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Evaluating Data Linkage: Creating longitudinal synthetic data to provide a gold-standard linked dataset (Isaac Newton Institute, Cambridge) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Communicating the concepts and challenges in generating realistic synthetic population-level data. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://digitisingscotland.cs.st-andrews.ac.uk/presentations.html |
| Description | Evidence in Policy Scottish Government Event in Edinburgh |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Greg Blackadder SLS/NRS Project Manager and members of the SLS Team presented on the SLS dataset to Scottish Government employees at the Evidence in Policy event in Edinburgh on 11th November 2019. The event helped to showcase the value of the SLS data to produce quick turnaround Research Briefs for Scottish Government and to inform Scottish Government teams of the possibilities of using the SLS dataset. |
| Year(s) Of Engagement Activity | 2019 |
| Description | Evidence in Policy Scottish Government Event in Glasgow |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Greg Blackadder SLS/NRS Project Manager and members of the SLS Team presented on the SLS dataset to Scottish Government staff in Glasgow on 13th November 2019. There was some interest with one person following up with an enquiry. |
| Year(s) Of Engagement Activity | 2019 |
| Description | Explorathon |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | publicized the Aberdeen birth cohorts, interacted with a broad cross section of the public |
| Year(s) Of Engagement Activity | 2015 |
| URL | http://www.explorathon.co.uk/ |
| Description | Explorathon |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | publicised the ADRC-S, interacted with a broad cross section of the public |
| Year(s) Of Engagement Activity | 2015 |
| Description | Explorathon |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Publicized the Aberdeen birth cohorts, interacted with a broad cross section of the public. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Explorathon at the National Museum of Scotland |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | Links with public engagement practitioners and some public members with an interest in ADRC-S research |
| Year(s) Of Engagement Activity | 2015 |
| Description | Exploring Ear'oles Education: An investigation of the school-level educational outcomes of 'working class' pupils in contemporary Scotland |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Audience developed knowledge of techniques to be used when analysing administrative data |
| Year(s) Of Engagement Activity | 2016 |
| Description | Exploring application of predictive analytics to improve policy outcomes in Scotland workshop |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Knowledge dissemination ADRC-S exposure. Further government projects coming to the ADRC-S. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Exploring patterns of subject specific performance in school attainment in Scotland |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Presentation at seminar at Edinburgh Napier University. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Exploring the drivers of social and spatial mobility, and the impact on health in later life: Data linkage of the Scottish Mental Survey 1947 with the Scottish Longitudinal Study and other administrative data sources |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Dr Lynne Forrest presented at the Centre for Population Change brown Bag Seminar on 31st May 2018- hour-long, in-depth presentation of research to researchers, Scottish Govt and post-grads etc |
| Year(s) Of Engagement Activity | 2018 |
| Description | FARR presentation at NHS-HE forum |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Better partnership working with NHS and academia |
| Year(s) Of Engagement Activity | 2015 |
| Description | Facebook community |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | created Facebook community for Aberdeen birth cohorts study group |
| Year(s) Of Engagement Activity | 2015 |
| Description | Facilitating access to administrative records with synthetic data (Dealing with Data 2017 Conference, University of Edinburgh) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Communicating the concept and advantages of synthetic data as a disclosure control method facilitating access to sensitive data. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.ed.ac.uk/information-services/research-support/research-data-service/dealing-with-data-2... |
| Description | Fake Drugs, Data Grabs & Bot Sharks: Innovation, Ethics & Global Health Governance |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | Interview with Frank Pasquale & Nic Terry for The Week in Health Law (Harvard). This popular podcast series is broadcast internationally and focuses on emerging issues at the intersection between health, technology and the law. The interview covered several eHealth and health data science in which ethical issues are raised, both in terms of privacy risks and positive opportunities for transparency and accountability. |
| Year(s) Of Engagement Activity | 2017 |
| URL | http://blogs.harvard.edu/billofhealth/.../claudia-pagliari-on-the-week-in-health-law-podcast/ |
| Description | Festival of Social Science event on learning to use crime and justice data using R |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Schools |
| Results and Impact | Impact was an increased awareness by and use of administrative and survey data on crime and justice by school children doing Advanced higher Modern Studies. Follow up events will be happening in 2017. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Findr: Data Fair and Collaborator Speed-Dating Event |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation on WP5 work in extracting intelligence from historic maps |
| Year(s) Of Engagement Activity | 2017 |
| Description | First meeting of the Aberdeen Children of the 1950s participants panel |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Study participants or study members |
| Results and Impact | outreach to participants in the study, opportunity for participants to provide feedback on the study, revised large public engagement event per participants' suggestions. |
| Year(s) Of Engagement Activity | 2006,2015 |
| Description | Fortnightly Public Engagement Drop In Sessions |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Upskilling of researchers from FARR and ADRC-S in expertise involved in research applications. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Frontier Event on Poverty (with focus on child poverty) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | A seminar that brought together different stakeholders whom would be involved in the development of a dataset that would enable policy relevant data to be linked and analysed to enable informed government decision making. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Frontier event on employablity |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | A seminar that brought together different stakeholders whom would be involved in the development of a dataset that would enable policy relevant data to be linked and analysed to enable informed government decision making. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Frontiers of Research on Urban Informatics |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Demonstrated the breadth of Big Data and the importance of linked administrative data |
| Year(s) Of Engagement Activity | 2015 |
| Description | Generating Synthetic Data with 'Synthpop' Package for R, 20th June 2018, at ADRN Conference Belfast |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | A pre-conference workshop delivered by Dr Beata Nowok, SLS Team Member to attendees at the ADRN Conference 2018. |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://adr2018.wordpress.com/programme/ |
| Description | Generating synthetic data in R |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Introduction to practical issues of generating and analysing synthetic data using freely available synthpop package for R. Use of the synthpop software for producing synthetic data by the workshop participants; request for further workshops |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.eventbrite.com/e/generating-synthetic-data-in-r-one-day-workshop-registration-2216905825... |
| Description | Generating synthetic data with the synthpop package for R |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation by Gillian Raab, RF in ADRC-S, on the practical issues of generating and analysing synthetic data using the synthpop package in R. 2018 Privacy in Statistical Databases held in Valencia |
| Year(s) Of Engagement Activity | 2018 |
| URL | https://unescoprivacychair.urv.cat/psd2018/index.php?m=program |
| Description | Generating synthetic microdata to widen access to sensitive data sets (Nowok, B, Raab, G & Dibben, C; Scottish Government Assistant Statisticians Meeting) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | To showcase the methodology "Generating synthetic microdata to widen access to sensitive data sets". Presentation at the Scottish Government Assistant Statisticians Meeting - Quantitative methods; Edinburgh, Victoria Quay, 26 June 2014. - |
| Year(s) Of Engagement Activity | 2014 |
| URL | http://calls.ac.uk/output-entry/generating-synthetic-microdata-to-widen-access-to-sensitive-data-set... |
| Description | Generating synthetic microdata to widen access to sensitive data sets (Product Forge Synthetic Health Data Workshop) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Exchange of knowledge and experience with dealing with synthetic data. |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://ti.to/productforge/synthetic-health-data-workshop/en |
| Description | Generating synthetic microdata to widen access to sensitive data sets (School of Economics, University of Edinburgh) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Other audiences |
| Results and Impact | Raised awareness and interest in methods and software (R package synthpop) for producing synthetic data, which are developed in the ADRC-S. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Gentle re-introduction to Statistical Concepts & Tests for Administrative Data Research |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Audience developed knowledge of techniques to be used when analysing administrative data |
| Year(s) Of Engagement Activity | 2015 |
| Description | Gentle re-introduction to Statistical Concepts & Tests for Administrative Data Research |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Audience developed knowledge of techniques to be used when analysing administrative data |
| Year(s) Of Engagement Activity | 2016 |
| Description | Global Health in the Digital Age - the power of data and communications for managing infectious, communicable and complex diseases |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Understanding how ICT can help patients in low income countries. Awareness raising in infectious disease community. |
| Year(s) Of Engagement Activity | 2014 |
| Description | Global Health in the Digital Age - the power of data and communications for managing infectious, communicable and complex diseases (video) |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Understanding how ICT can help patients in low income countries. Awareness raising in infectious disease community. |
| Year(s) Of Engagement Activity | 2014 |
| URL | https://www.youtube.com/watch?v=Aw7zGKMaLkg |
| Description | Gummizugverschluss and other things leading to a PhD in Public Health |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Undergraduate students |
| Results and Impact | Presentation about conducting administrative data research as a research method in public health to an undergraduate/postgraduate audience at Hochschule Coburg, Coburg, Germany. The students were all studying in the faculty for health and social care at Hochschule Coburg. |
| Year(s) Of Engagement Activity | 2018 |
| Description | HDR UK Scotland Associate Directors Meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Advisory group directors meeting, held 8 June and 3 September 2020. |
| Year(s) Of Engagement Activity | 2020 |
| Description | Health and Behaviours meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Knowledge dissemination ADRC-S exposure |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://www.york.ac.uk/media/healthsciences/documents/research/public-health/env&healthbehaviours4No... |
| Description | Health, Medicine and the Crowd: A Helicopter View |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation and seminar with crowd sourcing and citizen science network. Strengthening interdisciplinary dialogue, collaboration and theory. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Healthcare corruption taken to task by technology |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | One of several press articles drawing attention to a study by Pagliari and colleagues for USAID, analysing the uses of digital technologies and data for 'good governance' in developing country health systems. The research article was published in the Journal of Global Health. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://news.utradeph.com/719/642622/Healthcare-corruption-taken-to-task-by-technology |
| Description | Heriot-Watt Computer Science 50th Anniversary Celebrations Open Day |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Increased awareness of ADRN and ADRC-Scotland |
| Year(s) Of Engagement Activity | 2016 |
| Description | Housing Data Linkage Meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Explore opportunities to link health and housing data, leading to future projects. Agreement to organise a workshop later in the year to take forward collaboration, with the support of the SFHA. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Housing work stream |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | scoping the possibilities for houisng data linkage |
| Year(s) Of Engagement Activity | 2015 |
| Description | Housing work stream meta data disucssions |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | identifying data sources that can be linked and those that are dififcult t o access |
| Year(s) Of Engagement Activity | 2015 |
| Description | How can social statistics help us fight Covid-19? |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Online panel disussion held on 21/9/2020 - Discussion regarding the role of social statistics in informing the Covid-19 response and recovery. Professor Nick Bailey took part as a panelist. |
| Year(s) Of Engagement Activity | 2020 |
| Description | ISPCAN Conference (The Hague) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | ISPCAN Conference (The Hague) |
| Year(s) Of Engagement Activity | 2018 |
| Description | Impacts of Patient Access to Health Records |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | European industry and policy engagement around benefits of granting access to their records. Dissemination of our research and informing european industry |
| Year(s) Of Engagement Activity | 2015 |
| Description | In the light of experience - InterRAI and the final 1,000 days of life |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Blogpost by Iain Atherton our seminars around last 1000 days of life |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://www.scadr.ac.uk/news-and-events/blog-light-experience-interrai-and-final-1000-days-life |
| Description | Incomes - Meeting with DWP on benefits data |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Furthered discussions for access to DWP data for ADRN project |
| Year(s) Of Engagement Activity | 2012,2015 |
| Description | Inequality and Social Inclusion |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | ADR-UK Researcher Network Symposium: Inequality & Social Inclusion - 23 September 2020 Talk given by Serena Pattaro : Investigating socioeconomic, household and environmental risk factors for Covid-19 in Scotland. Online engagement event, UK Wide. Mainly research audience. |
| Year(s) Of Engagement Activity | 2020 |
| URL | https://www.adruk.org/news-publications/news-blogs/inequality-social-inclusion/ |
| Description | Informal Care - Meeting with Care Inspectorate |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Information ascertained as to data collected by Care Inspectorate and potential to utilise that information |
| Year(s) Of Engagement Activity | 2014 |
| Description | Informal Care - Meeting with Marie Curie nurse |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Information was ascertained on anticipatory drugs used in end of life care, potentially useful in the care in the last days of life study. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Informal Care - Meeting with Scottish Government health and social care integration team |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Information ascertained as to plans for a single health and social care dataset being developed on behalf of the Scottish Government's integration team. Future collaboration set in motion that will involved ADRC-S drawing on data, and raising its profile to researchers. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Informal Care - Meetings held with Scottish Government analysts |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Policymakers/politicians |
| Results and Impact | The end result was a proposal to use census and other linked data to understand household structure and place of death |
| Year(s) Of Engagement Activity | 2014 |
| Description | Informal Care - Meetings with Lothian health and social care data team |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Awareness raised as to data collected by local authority on their social care provision. We ascertained the willingness of the data holders to share data if possible, and a plan developed to enable access. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Informal care - Meeting with data users and data providers |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Information ascertained as to the barriers facing those who collect data and those who use, or wish to use, that data in research. A paper providing an overview of the day was published (see outputs section) |
| Year(s) Of Engagement Activity | 2014 |
| URL | http://bjsw.oxfordjournals.org/content/early/2015/06/01/bjsw.bcv047.full.pdf+html |
| Description | Informal meetings with SG statistics team about possible linkiing of CLAS/SCRA data. |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Informal meetings with SG statistics team about possible linkiing of CLAS/SCRA data. |
| Year(s) Of Engagement Activity | 2018 |
| Description | Information Governance Working Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Chris Dibben was invited to be part of the IG working group for Scottish Government, bringing his expertise to advise on information governance processes and standards. |
| Year(s) Of Engagement Activity | 2019 |
| Description | Initial results from clustering (bundling) birth records |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Digitising Scotland workshop |
| Year(s) Of Engagement Activity | 2017 |
| Description | Innovating eHealth: Issues for Globalisation and Culture |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Examining the use and potential of ehealth for low income countries. Interdisciplinary audience to inform other research and policy dialogues. European networking. |
| Year(s) Of Engagement Activity | 2014 |
| Description | Input to new Scottish video on data use in health and research |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Input expertise on how to communicate data use in research to general public into new Scottish video on the use of health data and research |
| Year(s) Of Engagement Activity | 2017 |
| URL | https://www.alliance-scotland.org.uk/blog/news/watch-and-share-our-new-explainer-film-on-healthcare-... |
| Description | Integrating Health and Social Care: Ethical and Societal Challenges |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Examining risks and outcomes of multiple data environments and data convergance |
| Year(s) Of Engagement Activity | 2015 |
| Description | International Consensus statement workshop on the use of Health Data |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | International consensus statement held with international experts to create a consensus statement on public engagement in data linkage in health research |
| Year(s) Of Engagement Activity | 2017 |
| Description | Introduction to using administrative linked data - week long course (December 2019) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | A week long workshop held to provide in-depth training on what admin data linkage is, the processes, safety measures etc. |
| Year(s) Of Engagement Activity | 2019 |
| Description | Investigating educational and developmental outcomes using linked administrative data.' Official Opening of Farr Institute Scotland and ADRC-S |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Audience introduced to context of administrative data |
| Year(s) Of Engagement Activity | 2016 |
| Description | Investigating parental socioeconomic position, in utero growth and risk of child development disorders using linked administrative data |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Investigating parental socioeconomic position, in utero growth and risk of child development disorders using linked administrative data.' Administrative Data Research Network Annual Conference, London. Audience developed knowledge of techniques to be used when analysing administrative data |
| Year(s) Of Engagement Activity | 2016 |
| Description | Is the Paper Just a Palimpsest? An appeal for reproducible social stratification research |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Is the Paper Just a Palimpsest? An appeal for reproducible social stratification research, Social Stratification Research Seminar, Cambridge. Audience developed knowledge of techniques to be used when analysing administrative data |
| Year(s) Of Engagement Activity | 2016 |
| Description | Joint ADRC-S / SCCJR Engagement Event |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | A proposal is being developed for a joint research project between ADRC-S and the National Crime Agency. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Knowledge Exchange meeting, University of Edinburgh |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Better partnership working with NHS and academia |
| Year(s) Of Engagement Activity | 2015 |
| Description | Liason with European Pleadies project |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | lead to exchange of software and advice on technical aspects of the work |
| Year(s) Of Engagement Activity | 2014,2015 |
| Description | Life-course predictors of limiting long-term illness in later life |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Study participants or study members |
| Results and Impact | Life-course predictors of limiting long-term illness in later life: Linking the Scottish Mental Survey 1947 to administrative data. Society for Longitudinal and Lifecourse Studies Annual Meeting, Milan. |
| Year(s) Of Engagement Activity | 2018 |
| Description | Linking and using health and social care data in Scotland: charting a way forward |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | A group of academics, policy makers and data custodians came together to discuss their work and the challenges that they are experiencing with regards to moving forward the use of administrative data in health / social care research. A raised awareness of the challenges of utilising health / social care data for research. Networks developed for future meetings on the subject. |
| Year(s) Of Engagement Activity | 2014 |
| URL | http://adrn.ac.uk/media/119073/HSC-meeting-report-final-280714.pdf |
| Description | Linking and using health and social care data in Scotland: charting a way forward |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | A group of academics, policy makers and data custodians came together to discuss their work and the challenges that they are experiencing with regards to moving forward the use of administrative data in health / social care research. A raised awareness of the challenges of utilising health / social care data for research. Networks developed for future meetings on the subject. |
| Year(s) Of Engagement Activity | 2014 |
| Description | MRC-HSCIC joint technical meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Shaping HSCIC ways of holding and provisioning data to researchers |
| Year(s) Of Engagement Activity | 2015 |
| Description | Masterclass: Methods to Identify Causal Effects - Sascha Becker |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Audience developed knowledge of techniques to be used when analysing administrative data |
| Year(s) Of Engagement Activity | 2015 |
| Description | Measures of utility for synthetic data (Data linkage and anonymisation seminar, Cambridge) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Discussion on the state of the art of measuring synthetic data utility. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://www.newton.ac.uk/seminar/20161103153016302 |
| Description | Meeting and followup discussions with Landmark Information Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Access to evaluation data and potential discounted access for academic researchers nationally. Subsequent approach to Jisc Collections by LIG and to ESRC. opportunity to license data for all UK HFE sector at discounted rate. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Meeting with Andy Williams at HSCIC |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Shaping HSCIC ways of holding and provisioning data to researchers |
| Year(s) Of Engagement Activity | 2016 |
| Description | Meeting with Cardiff Historic map interest group |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | presentation outline of deriving data from historic map resources |
| Year(s) Of Engagement Activity | 2017 |
| Description | Meeting with Cash for Kids |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Third sector organisations |
| Results and Impact | Meeting with Debbie Fraser and Nicola Norrie (CfK) to discuss linkage of CfK data |
| Year(s) Of Engagement Activity | 2017 |
| Description | Meeting with DWP regarding research on sanctions (26/5) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Meeting with analytical staff to discuss mutual interests in research on the impacts of sanctions, and explore possible collaboration |
| Year(s) Of Engagement Activity | 2017 |
| Description | Meeting with Informatics machine learning student |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Postgraduate students |
| Results and Impact | Meeting with Informatics machine learning student |
| Year(s) Of Engagement Activity | 2016 |
| Description | Meeting with Methods Analytics to discuss NHS data access |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Stronger relationships with industry |
| Year(s) Of Engagement Activity | 2015 |
| Description | Meeting with National Audit Office about benefit sanctions work |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Discussions about data quality from their experience working on DWP data. Better understanding for research team of possibilities |
| Year(s) Of Engagement Activity | 2016 |
| Description | Meeting with National Library of Scotland Head of Map Curation |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | mediated access to full large scale NLS map corpus as primary research data for the technical work being undertaken |
| Year(s) Of Engagement Activity | 2015 |
| Description | Meeting with Prof Van Delden Medical Ethics professor looking to develop Public Engagement in the Netherlands |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Prof. Van Delden was looking for expertise and advice on how to progress public engagement in research in the Netherlands and sought our expertise in the area of public engagement in data linkagev |
| Year(s) Of Engagement Activity | 2017 |
| Description | Meeting with Scot Govt about Social Care Survey data and possibilities for linkage to health and other data |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Discussions about details of linkage established by Scottish Government. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Meeting with Scot Govt employment and health team on evaluation of single gatefway |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Meeting at invitation of SG to provide expert advice on evaluation of health intervention to support employment retention. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Meeting with ScotXed (Scottish Government) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Meeting with Albert King and Celia MacInyre to discuss progress of Looked After Children analysis and negotiate extract of linked data for second part of of project. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Meeting with Scottish Children's Reporter Administration |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Meeting with Donald Lamb and Gillian Henderson (SCRA) to discuss linkage of SCRA data |
| Year(s) Of Engagement Activity | 2017 |
| Description | Meeting with Scottish Government Policy leads to ascertain questions that might be addressed using the Care in the last Days of Life Study |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Meeting on 13/11/2019 between Iain Atherton and those with responsibility for informal and social care. Focus was on analysis that the dataset would make possible and how it might feed into their work |
| Year(s) Of Engagement Activity | 2018 |
| Description | Meeting with Scottish Government analysts and policy leads with responsibility for health and social care |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Meeting held on 30/10/2018 between Iain Atherton and policy makers. Focus was on potential analysis and future linkages that would benefit informed policy making. |
| Year(s) Of Engagement Activity | 2018 |
| Description | Meeting with Scottish Government and others working in palliative care |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | A seminar that brought together people who have input into palliative care. Initial findings from the 'Care in the last days of life' study were presented and discussion generated as to future directions. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Meeting with Scottish Government data analysts (1) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Clearer understanding of ongoing work in informal care using administrative data. Links made between Scottish Government analysts and ADRC members. |
| Year(s) Of Engagement Activity | 2014 |
| Description | Meeting with Scottish Government data analysts (1) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Clearer understanding of ongoing work in informal care using administrative data. Links made between Scottish Government analysts and ADRC members. |
| Year(s) Of Engagement Activity | 2014 |
| Description | Meeting with Scottish Government data analysts (2) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | This was the second working group meeting on using administrative data for informal care research. The meeting gave greater policy focus to the exemplar study. Development of greater networks and relevance to national policy. |
| Year(s) Of Engagement Activity | 2014 |
| Description | Meeting with Scottish Government data analysts (2) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | This was the second working group meeting on using administrative data for informal care research. The meeting gave greater policy focus to the exemplar study. Development of greater networks and relevance to national policy. |
| Year(s) Of Engagement Activity | 2014 |
| Description | Meeting with Scottish Government officials, University of Glasgow, 25.05.2017 |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | The meeting was organised to discuss analytical needs and possible synergies with Scottish Government in relation to forthcoming schemes of 'Single Health and Work Gateway' and 'Fair Start Scotland' |
| Year(s) Of Engagement Activity | 2017 |
| Description | Meeting with Scottish Government to discuss potential new data linkage opportunities |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Proposals for data linkage involving the SCJS are now being considered by Scottish Government. further meetings are to take place. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Meeting with Scottish Sensory Centre to discuss data linkage |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Meeting with Scottish Sensory Centre to discuss data linkage |
| Year(s) Of Engagement Activity | 2015 |
| Description | Meeting with Stewart Butler, DWP Labour Market Intervention (Oct 2019) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Meeting with Stewart Butler, lead analyst, DWP Labour Market Intervention and Skills, Labour Market, Families and Disadvantage Directorate at University of Glasgow. This involved presentations and discussion on current research activities for SCADR and DWP research plans. |
| Year(s) Of Engagement Activity | 2019 |
| Description | Meeting with Wellcome Trust understanding patient data to offer expertise and guidance on explaining data linkage and TTP to public audiences |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | The Understanding patient data (UPD) team at the Wellcome Trust are developing videos for the public and wanted to know how we explain data linkage and TTP to public panels and audiences |
| Year(s) Of Engagement Activity | 2017 |
| Description | Meeting with West Lothian Council about data sharing |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | Awareness of ADRC-S and in principle agreement to work with us |
| Year(s) Of Engagement Activity | 2015 |
| Description | Meeting with all LA Data Providers ( LASW meeting) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Meeting with all LA Data Providers ( LASW meeting) |
| Year(s) Of Engagement Activity | 2018 |
| Description | Meeting with digital services manager at City of Edinburgh Council to explore and manage collaborative projects - weekly |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Ongoing activity to identify opportunities for releasing and analysing Council data, especially as open data, and for collecting new quantitative and qualitative data that contributes to Council policy objectives. Has led to new datasets being published on Council open data portal and to further engagements with different Council departments. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Meeting with the Bean Review team |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Potentially impacting on review of national statistical system |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/481452/Bean_review__Interi... |
| Description | Meeting with the National Crime Agency to develop research proposal. |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | A proposal has been drafted and is due to be discussed with NCA before submission to the PBPP. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Meeting with the Office of the Scottish Charity Regulator (OSCR) (10.8.2017) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Discussion with the regulator about making more use of their administrative data, and data sharing. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Meetings to discuss CLAS assessment for FARR and ADRC Scotland |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Ensuring Scottish National Safe Haven can hold official sensitive data |
| Year(s) Of Engagement Activity | 2015 |
| Description | Mental Health Data Science group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Future grant applications |
| Year(s) Of Engagement Activity | 2015 |
| Description | Met with Chief Statistician, Scottish Government on health and social care work |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Discussed ongoing research and ways of making policymakers aware. Also discussed methods of access to held administrative data. |
| Year(s) Of Engagement Activity | 2019 |
| Description | Met with Office of Statistics Regulation, UK Statistics Authority |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Met UK Stats Authority to inform their work and upcoming report on the state of social care data collection in Scotland. SCADR has used social care data for research purposes and has feedback on quality, coverage and future improvements. Both David Henderson's PhD thesis and academic paper on the Social Care Survey will be cited in the report due to publish in March 2020. |
| Year(s) Of Engagement Activity | 2020 |
| Description | Met with author of report for GMB union |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | Invited to participate in research for the report as expert contributor on future challenges of social care provision in Scotland. |
| Year(s) Of Engagement Activity | 2020 |
| Description | Ministerial Pharma Forum |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Bettter partnership working between industry, NHS and academia and achieving better safety in medicines |
| Year(s) Of Engagement Activity | 2016 |
| Description | Myths and Realities of Public Sector Information Governance - Moving Beyond a Culture of Caution to a Culture of Confidence |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Provided a 'legal myth-busting' talk and unpicked some common misconceptions around data protection law within the research setting. |
| Year(s) Of Engagement Activity | 2016 |
| Description | NHS Benefits Realisation Taskforce meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Leading to changes in NHS practice |
| Year(s) Of Engagement Activity | 2015 |
| Description | NHS Digital Academy; Realising the Vision |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Health Informatics Society of Ireland |
| Year(s) Of Engagement Activity | 2017 |
| Description | NHS Research Scotland Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Wider awareness in NHS of use of routine data for research purposes |
| Year(s) Of Engagement Activity | 2015 |
| Description | National Clinical Imaging dataset meeting |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Development of a new research resource covering Scottish Population to 2010 |
| Year(s) Of Engagement Activity | 2015 |
| Description | National Research Council of Spain and Statistical Institute of Andalusia visit / presentation |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | This has led to further collaboration between the Institute and the ADRC. There are ongoing discussions about sharing technologies, in particular synthpop and eDATAshield with the institute. And helped with the Institute being a partner on a recently awarded horizon 2020 ITN award. Supported collaboration on the recent horizon 2020 ITN award. |
| Year(s) Of Engagement Activity | 2015 |
| Description | ONS Secure Researcher Training |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | SLS Team Member Lynne Forrest and colleagues from the ADRC-S ran Secure Researcher Training courses on 12/12/18, 25/1/19, 1/2/19, 15/2/19 and 22/9/19 - these were a series of 1-day training courses to accreditate researchers (required to access ONS, SLS, health data) |
| Year(s) Of Engagement Activity | 2018,2019 |
| URL | http://adrc-scotland-sure-training.weebly.com/ |
| Description | Online participant survey |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Outreach to participants in the study, opportunity for participants to provide feedback on the study |
| Year(s) Of Engagement Activity | 2015 |
| Description | Open Knowledge Edinburgh Meet-up (3) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Ongoing activity to build a cross-sector community around the use of open data and open knowledge approaches. Events are hosted by partners: National Library of Scotland, Codebase, City of Edinburgh Central Library |
| Year(s) Of Engagement Activity | 2016 |
| Description | Over the counter genetic tests raise human rights concerns |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | Article in The Ferret magazine based on an analysis by Pagliari & Hall on misleading advertising and lack of transparency in direct to consumer genetic tests. The research was presented at the European Human Genetics Association conference in 2016 (marketing paper) and in the European Journal of Human Genetics in 2017 (analysis of compliance with the Human Genetics Commission's ethical guidelines). Dr Pagliari was interviewed for the report. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Paper presented to ADRN Conference, Belfast |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Ideas regarding analysis of dataset being developed for "Care in the last days of life" study developed. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Parental socioeconomic influences on filial educational attainment - An investigation of Scottish young people and patterns of school level educational performance |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Presentation at International Conference. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Participant Newsletter |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | outreach to participants in the study, opportunity for participants to provide feedback on the study |
| Year(s) Of Engagement Activity | 2015 |
| Description | Participant Reunion |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Outreach to participants in the study, opportunity for participants to provide feedback on the study |
| Year(s) Of Engagement Activity | 2016 |
| Description | Participant newsletter |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Study participants or study members |
| Results and Impact | Outreach to participants in the study, opportunity for participants to provide feedback on the study |
| Year(s) Of Engagement Activity | 2015 |
| Description | Participant panel |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Study participants or study members |
| Results and Impact | outreach to participants in the study, opportunity for participants to provide feedback on the study, revised large public engagement event per participants' suggestions |
| Year(s) Of Engagement Activity | 2015 |
| Description | Participant workshops with members of the Aberdeen Children of 1950s cohort. |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Study participants or study members |
| Results and Impact | A series of three participant workshops (organised and managed by ADRC-S researchers) involving 27 members of the Aberdeen Children of the 1950s cohorts. The topics were: 1) Healthy Ageing; 2) Recruitment and Consent; and 3) Maximising participation. |
| Year(s) Of Engagement Activity | 2018 |
| Description | Participated in Third Sector Research Forum meeting (5.10.2017) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Third sector organisations |
| Results and Impact | Participation in the Scottish Third Sector Research Forum meeting talking about using administrative data and collaborating with academics |
| Year(s) Of Engagement Activity | 2017 |
| Description | Participation in Life in Data KE1.5: Mapping Data Literacy WOrkshop (27.4.2017) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Discussion about definitions and measurements of data literacy for practitioners working with data as part of the RSE Life in Data Research Network |
| Year(s) Of Engagement Activity | 2017 |
| Description | Patient Level Costing Data Meeting |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Develop understanding of PLICS methodology, and how the data might be incorporated into existing projects. Agreement to support an application to access PLICs data, and to feedback into its further development |
| Year(s) Of Engagement Activity | 2015 |
| Description | Patients, Prescribing and Personalised Pharmacy: Innovations and Opportunities |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation focused on understanding latest mobile innovations in engaging patients and citizens in research. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Peter Christen (Australian National University): Recent Advances in Record Linkage |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Audience developed knowledge of techniques to be used when analysing administrative data |
| Year(s) Of Engagement Activity | 2015 |
| Description | Place of Death in Scotland - Trends and factors: A Census-based data linkage study |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Poster outlining key aspects addressed by research project, which was supplemented by most recent statistics that came out only a week prior. Audience members from palliative care sector confirmed the need for more research on the questions addressed by research project. |
| Year(s) Of Engagement Activity | 2016 |
| Description | Podcast on genalogical linkage |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Communicating the concepts and challenges in linking genealogical data. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://compucast.io/?podcast=all-in-the-family |
| Description | Policy Meeting - Strategic meeting about children's strategic impact programme and formation of new advisory group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | 26/8/2020 Chris Dibben met Michael Chalmers, Director of Children and Families, Scottish Government. Strategic meeting about children's strategic impact and programme and formation of new advisory group. |
| Year(s) Of Engagement Activity | 2020 |
| Description | Population and Migration Statistics 2015 conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Knowledge dissemination ADRC-S exposure |
| Year(s) Of Engagement Activity | 2015 |
| URL | https://www.eventbrite.co.uk/e/pams-2015-conference-tickets-18882734768 |
| Description | Poverty and Health Inequalities Summit |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Our SIP lead, Morag Treanor, spoke about the lived experience of poverty on health and linked administrative data research to better understand patterns of this. |
| Year(s) Of Engagement Activity | 2019 |
| URL | https://www.scotphn.net/resources/poverty-and-health-inequalities-summit-4th-november/poverty-and-he... |
| Description | Practical experience of making synthetic data sets from administrative data (ADRN Research Conference) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Raised awareness and interest in methods and software (R package synthpop) for producing synthetic data, which are developed in the ADRC-S. |
| Year(s) Of Engagement Activity | 2016 |
| URL | https://adrn.ac.uk/news-training/news-events/newsitem/?newsid=4466 |
| Description | Practical experience of providing useful bespoke synthetic data (Privacy in Statistical Databases Conference 2016) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Raised awareness and interest in methods and software (R package synthpop) for producing synthetic data, which are developed in the ADRC-S. |
| Year(s) Of Engagement Activity | 2016 |
| URL | http://unescoprivacychair.urv.cat/psd2016/index.php?m=program |
| Description | Predictive Analytics - Meeting organised by Scottish Government, The Data Lab, Edinburgh, 29.06.2016 |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | The expert meeting was organised by Scottish Government in order to explore the potential for innovative use of data to support people at risk of falling into long-term unemployment due to ill health or disability |
| Year(s) Of Engagement Activity | 2016 |
| Description | Predictive Analytics Event |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Led to broad consideration of the use of administrative data to support lifetime costing and predictive analysis. A project is now looking at using the ADRC-S for a longitudinal analysis of supporting who are sick re-engage with the labour market. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Predictive analytics for Government |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Professional Practitioners |
| Results and Impact | Raising awareness among government staff for predictive analytics for administrative data and ethical issues associated with this. |
| Year(s) Of Engagement Activity | 2015 |
| Description | Presentation 'A description of the population in need of palliative care' at Holyrood Policy conference 07.02.2018 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presented some findings from our research project and joined in wider discussion. |
| Year(s) Of Engagement Activity | 2018 |
| Description | Presentation about ADRC and Synthetic Data to Data Science Students from Edinburgh Napier University (22.11.2017) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Postgraduate students |
| Results and Impact | Presentation about working with administrative data an synthetic data to ca. 20 data science students. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Presentation about visualising administrative data for charities (17.10.2017) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Postgraduate students |
| Results and Impact | Presentation about data visualisation for charities working with administrative data |
| Year(s) Of Engagement Activity | 2017 |
| Description | Presentation about working with Census data (1.12.2017) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Postgraduate students |
| Results and Impact | Presentation about working with administrative data an synthetic data to ca. 20 academics. |
| Year(s) Of Engagement Activity | 2017 |
| Description | Presentation at ADRC-S retreat |
| Form Of Engagement Activity | A talk or |