LNiK - the Northern Ireland Administrative Data Research Centre

Lead Research Organisation: Queen's University of Belfast
Department Name: Centre for Public Health

Abstract

There is great potential for understanding more about our society by making better use of data that already exists and by linking different datasets together. This could be undertaken more widely in the UK as in other parts of Europe such as Scandinavia. Using existing data is not only efficient and cheaper than collecting new data, but it can also provide a powerful means of better understanding how society works and what action is needed to tackle a wide range of social issues, thereby guiding the development, implementation and evaluation of policy. This can be achieved in a way that ensures that the public have the maximum confidence that their data are being used appropriately and that the safeguards of these data meet the highest international standards.

To this end, four Administrative Data Research Centres- ARDC for coordinating and undertaking record linkage are being setup in each of the four countries of the UK. In Northern Ireland the two universities and NISRA, the local governmental statistics agency, will come together to promote and facilitate record linkage here. This will have two aspects; an independent body (trusted third party) for linking different datasets and a separate secure environment (the NI-ADRC) for undertaking analyses of the data. The process of record linkage ensures that (i) the trusted third party never see the administrative information about individuals and (ii) that the ADRC never have sight of personal information such as names or addresses. All of these processes will be overseen by a UK Governing Board who report to Parliament, probably via the UK Statistics Authority. The public will be represented at all levels. An Administrative Data Service will coordinate ADRCs activities and provide a single source of information for enquiries and information.

The NI-ADRC will be led by an academic Director; NISRA will provide the secure environment and oversee its operation with full auditing of all data access and processing. They will also operate the trusted third party linkage. The NI-ADRC will employ two experienced academics to provide assistance and technical support to users of these data who will have undergone accreditation training and access the anonymous data only in a secure environment; all statistical and written outputs will be further scrutinised before release.

A major task for the NI- ADRCT will be to increase the public awareness of and confidence in the safe linking of administrative records and will therefore appoint a senior Public Engagement and Communications Officer. The NI- ADRC will also raise the potential for and benefits of record linkage amongst the academic fraternity, data custodians and Government Agencies. The formation of NI-ADRC should bring about a closer working relationship between the generators and custodians of administrative data in governmental and other agencies, the potential users of these data, and the policy makers who should benefit from the analyses of these linked data; this interrelationship will be underpinned by a series of seminars and meetings and other opportunities for interaction and exchange.

Early in the first year the ADRC will start to cement relationships with the various data custodians and governmental agencies and (i) catalogue what data is currently available for linkage (ii) negotiate, with the ADS, the production of the metadata and the informal advice and support that will be essential for understanding the processes behind the data and of the database structures, and (iii) over a longer period increase the range and number of datasets available for linkage within NI and the wider UK context, and to encourage the passage of enabling legislation. Building relationships and joint strategies with the other ADRCs and the ADS, and with UK groups with interests in similar datasets and/or methodological approaches will be a major priority from the outset.

Planned Impact

Academic and policy researchers throughout the UK will benefit from the greater access to novel high quality data. Given the currently available data, researchers with an interest in social policy, health, education and economics will be amongst the first to benefit with finance, computing and law following as new data and linkage possibilities become available. Those involved with the public sector, especially given the regional structure of government, will find these data linkages invaluable for informing social policy and the ADRC will drive a closer collaboration between world of academia and those involved with policy. One goal of this proposal is to broaden the current base of this activity. A group that could make ready use of the current data to great effect, in terms of driving policy change, is the third sector. Many voluntary organisations, charities, NGOs and community organisations are likely to find much relevant information even in the currently available data. These are groups that will be encouraged, most notably by the appointment of a Public Engagement & Communications Officer, and through a range of public seminars, to think about how the current data could be used to assist them when addressing issues where policy interventions are being sought. Organisations within communities may well find the linkage of data to, for example, the Northern Ireland Neighbourhood Information Service (NINIS) data, a useful source of evidence when addressing issue of social and health inequality.
All of the above mentioned groups are expected to benefit from the ready availability of linked data, and through contact with those who know how the data can be used to address issues that these interest groups see as fundamental to their reason for existence. On a wider front the enactment of legislation benefits from an open and informed debate, and many of these mentioned groups and organisations are well positioned to add to the debate. As more data becomes available, and linked, it is likely that many more individuals and groups will see the advantages to which the data can be put in addressing issues relating to the environment, commerce, health and well-being to name but a few. Information, as the saying goes is power, and the ability for different groups to access evidence, based on data, is likely to, at a minimum, raise the level of debate. In some sense all of the above mentioned groups are likely from time to time to wish to address issues relating to the economic and social impact of particular social policies or interventions. How will welfare reform affect local communities, and what will be the likely impact on social, cultural and business interests? Energy, for example, is a vital commodity, and changes in its pricing structure can have major consequences in terms of social welfare. To address these and other goals, policy briefings, the lobbying of policy makers, and engagement with those interested in driving policy will be undertaken. Many of these potential changes can be modelled, provided the data is available. Information before the enactment of social policy is invaluable to those involved with the policy process and to indeed to those affected by such changes. It is the current groups that are outside these debates that have the most to gain. The data can inform the debate and better choices may be possible as a consequence where Public Policy and Legislation can be informed by 'facts' generated on the basis of data. Of course, ideological choices have still to be made by those in power, but these choices can be made with the best available evidence of their consequences. Further, innovation and technical change essential to maintaining a competitive edge can be better managed, through effective human resource planning and in common with all change it requires that we are in a position to know and analyse what is currently in place and what steps are required to ensure that future needs can be met.

Publications

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Bosqui T (2019) First-generation migrants' use of psychotropic medication in Northern Ireland: a record linkage study. in International journal of mental health systems

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Close C (2018) Migrant mental health and representation in routine administrative registers in International Journal of Migration, Health and Social Care

 
Description There are many findings related to the individual studies (check web-site), but the main finding is that administrative data can be linked safely and can lead to new findings of policy interest.
Exploitation Route Policy makers: that administrative data can be used by academic and other researchers to provide answers to questions that are of concern to policy makers. For academic users: that using administrative data can open up a world of possibilities in terms of research and also the potential for income generation.
Sectors Communities and Social Services/Policy,Education,Healthcare,Government, Democracy and Justice

URL https://www.adrn.ac.uk/
 
Description Dementia Innovation Lab - Department of Finance NI - Recommendation Report
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Participation in a advisory committee
 
Description Knowledge Exchange seminar Series (KESS) Using administrative data to inform policy
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Implementation circular/rapid advice/letter to e.g. Ministry of Health
Impact There have been 3 opportunities for further impact. 1) An attendees at the session has requested the PowerPoint presentation so that he can promote the results of the survey to his superiors - the Governors of the Honest Broker Service (HBS). The HBS aims to enable non-identifiable data to be safely shared to maximize the uses and health service benefits which can be gained from it, including planning, commissioning of services and public health monitoring. The results of the survey may encourage the governors of the HBS to make more data available to researchers. 2) As a result of this seminar the presentation has also been passed on to a member of the Department of Health who is exploring the potential to set up a registry for rare diseases in Northern Ireland. The results would help him argue for such a registry as they show that the public supports the use of their data where there is clear public benefit. 3) An interested group 'Focus the Identity' has requested to meet with the ADRN team to discuss the use of administrative data for research. This group has particular sensitivities around the protection of privacy with the potential for some interesting discussions.
URL https://kess.org.uk/31-january-2018-using-administrative-data-inform-policy/
 
Description Administrative Data Research Centres 2018
Amount £2,378,521 (GBP)
Funding ID ES/S00744X/1 
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 09/2018 
End 03/2021
 
Description Child, Health and Wellbeing TRG Small Project Funding
Amount £3,000 (GBP)
Organisation Northern Ireland HSC R&D 
Sector Public
Country United Kingdom
Start 12/2015 
End 12/2016
 
Description ESRC SDAI Enhancing the population-wide Northern Ireland Registry of Self-Harm and Suicide Ideation through data linkage
Amount £200,000 (GBP)
Funding ID ES/R011400/1 
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 12/2018 
End 05/2019
 
Description Economic and Social Research Council Secodary Data Analysis Iniative
Amount £200,000 (GBP)
Funding ID ES/N012003/1 
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 03/2017 
End 09/2018
 
Description Enhancing the population-wide Northern Ireland Registry of Self-Harm and Suicide Ideation through data linkage
Amount £157,410 (GBP)
Funding ID ES/R011400/1 
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 12/2018 
End 05/2020
 
Description Epidemiology and Population Health Summer Institute (EPIC) scholarship
Amount $250 (USD)
Organisation Columbia University 
Department Columbia Population Research Centre
Sector Academic/University
Country United States
Start 04/2016 
End 04/2016
 
Description Finnish Work Environment Fund
Amount € 140,000 (EUR)
Funding ID 117321 
Organisation Finnish Work Environment Fund 
Sector Public
Country Finland
Start 04/2018 
End 11/2019
 
Description H2020-SC1-2016-2017
Amount € 7,300,000 (EUR)
Funding ID 733001 
Organisation European Commission 
Department Horizon 2020
Sector Public
Country European Union (EU)
Start 01/2017 
End 12/2021
 
Description HSC Research grant - {DOR}
Amount £750,000 (GBP)
Organisation Public Health Agency (PHA) 
Department HSC Research and Development
Sector Public
Country United Kingdom
Start 10/2013 
End 09/2018
 
Description Health and Social Care Research and Dwevelopment
Amount £46,026 (GBP)
Organisation Health and Care Research Wales 
Sector Public
Country United Kingdom
Start 06/2015 
End 12/2016
 
Description MQ Data Science Programme 2016
Amount £49,662 (GBP)
Funding ID MQDS16\27 
Organisation MQ Transforming Mental Health 
Sector Charity/Non Profit
Country United Kingdom
Start 11/2017 
End 10/2018
 
Description MRC Skills Development Fellowship
Amount £300,000 (GBP)
Funding ID MR/P014631/1 
Organisation Medical Research Council (MRC) 
Sector Academic/University
Country United Kingdom
Start 11/2017 
End 10/2020
 
Description MRC Training Fellowship
Amount £243,007 (GBP)
Funding ID MR/P014631/1 
Organisation Medical Research Council (MRC) 
Sector Academic/University
Country United Kingdom
Start 10/2017 
End 09/2020
 
Description NIHR
Amount £599,005 (GBP)
Organisation National Institute for Health Research 
Sector Public
Country United Kingdom
Start 04/2016 
End 09/2017
 
Description Northern Ireland Chest Heart and Stroke Call for Applications for Scientific Research Grants 2012
Amount £185,406 (GBP)
Organisation Northern Ireland Chest Heart and Stroke Association (NICHS) 
Sector Charity/Non Profit
Country United Kingdom
Start 12/2013 
End 02/2018
 
Description Opportunity Led research
Amount £46,025 (GBP)
Funding ID com/5162/15 
Organisation hscni 
Sector Charity/Non Profit
Country United Kingdom
Start 08/2015 
End 11/2016
 
Description SDAI
Amount £200,000 (GBP)
Funding ID ES/N012003/1 
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 09/2016 
End 03/2018
 
Description Scientific project grants
Amount € 4,506 (EUR)
Funding ID Decision - P-2017-B-F 
Organisation European Society of Contraception and Reproductive Health 
Start 02/2018 
End 09/2018
 
Description Social and ophthalmic factors influencing prescribing patterns for childhood myopia
Amount £161,652 (GBP)
Funding ID ES/R010226/1 
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 12/2018 
End 05/2020
 
Description Tender for Competition no. 6 :Methods and data sources for determining long-term effects of drug exposure during pregnancy, with application to antiepileptic medicines
Amount € 229,150 (EUR)
Organisation European Medicines Agency 
Sector Public
Country United Kingdom
Start 01/2017 
End 06/2018
 
Description The Academy of Finland Centres of Excellence (PI Professor Teppo Kroger)
Amount € 7,000,000 (EUR)
Funding ID 312310 
Organisation Academy of Finland 
Sector Public
Country Finland
Start 01/2018 
End 12/2025
 
Title Questionnaire 
Description Questionnaire used in survey is freely available online. 
Type Of Material Improvements to research infrastructure 
Year Produced 2016 
Provided To Others? Yes  
Impact None known at this time 
URL http://www.ark.ac.uk/nilt/2015/quest15.html
 
Title Data Sharing 
Description Database of Public Attitudes to Data Sharing in Northern Ireland. SPSS 
Type Of Material Database/Collection of data 
Year Produced 2016 
Provided To Others? Yes  
Impact This dataset is available for free download from the ARK website as listed. Lay friendly tables and charts are also available. Thus the data is easily accessible to anyone interested. It is also available from the UK Data Archive. 
URL http://www.ark.ac.uk/nilt/datasets/
 
Title Dataset of administrative records with missing attribute values 
Description This is an artificially created dataset in which some of the records will have a number of similar records and some records may have missing values. This is a dataset that can be used to evaluate algorithms for privacy preserving record linkage in the presence of missing values. 
Type Of Material Database/Collection of data 
Provided To Others? No  
Impact This dataset will be made available to other researchers hence will be an important resources for evaluating other algorithms for solving the similar problems. 
 
Title Linked administrative data for the Caregivers, Mental Health and Emplyment Outcomes Study 
Description The dataset, which is currently being created by NISRA staff involves linkage of NI Census Data, NI properties data, NI Vital Statistics Data and NI Multiple Deprivation Measures 
Type Of Material Database/Collection of data 
Year Produced 2018 
Provided To Others? No  
Impact This new dataset will enable the examination of employment outcomes among caregivers with mental health disorders- paving the way for a series of peer review publications within the next 18 months. 
 
Description ADRC-NI PSNI Collaborative Research initative 
Organisation Police Service Northern Ireland (PSNI)
Country United Kingdom 
Sector Public 
PI Contribution A series of development meetings to agree the legal gateways and mechanisms for data acquisition, linkage and access for PSNI and ADRC-NI data sets. Resulting in the establishment of a project with multi dimensional impact, attracting external funding of £150k.
Collaborator Contribution PSNI - Data set, ADRC-NI administrative data, research expertise and attainment of project funding.
Impact New ADRC-NI research project.
Start Year 2017
 
Description An Evaluation of Personalised Supports to Individuals with Disabilities and Mental Health Difficulties 
Organisation Trinity College Dublin
Department School of Social Work and Social policy
Country Ireland 
Sector Academic/University 
PI Contribution The team evaluated the effectiveness and impact of the Genio Project, designed to support individuals in moving from congregated living arrangements to more individualised settings. My role within the team was to conduct and economic evaluation of the intervention.
Collaborator Contribution My partners were responsible for design of the study interview material and conducting interviews with participants with learning disabilities, their key workers and family members
Impact Study launch and publication of a study report
Start Year 2010
 
Description Collaboration on a European Medicines Agency funded study on Utilisation of antiepileptic medicines in girls and women of childbearing potential - a study in three European countries 
Organisation Queen Mary University of London
Country United Kingdom 
Sector Academic/University 
PI Contribution I was involved in the initial grant application to tender for this project. I was also involved in developing the study protocol.
Collaborator Contribution My partners are analysing linked data provided by 3 EU member states, one of which is England (hence NI data could not be included)..
Impact Study is on-going.
Start Year 2017
 
Description Collaboration with Professor Stephen Stansfield on the OCCUMEN study (world leading expert in the field of work and mental health) 
Organisation Queen Mary University of London
Country United Kingdom 
Sector Academic/University 
PI Contribution I was primarily responsible for the development of the study protocol, drafting the application and ethics documents and drawing a team of expertise together.
Collaborator Contribution Professor Stansfield has agreed to collaborate on the OCCUMEN study as a consultant, advising on statistical analysis, interpretation of findings and drafting of peer review papers. In addition he will host member of the UU research team on two occasions to facilitate discussion of analyses and dissemination among his academic networks.
Impact ADRN application, application to ESRC SDAI scheme, ethics application
Start Year 2017
 
Description Colllaboration with a European-wide data linkage study assessing mortality. morbidity and educational outcomes of children with congenital anomalies 
Organisation Queen Mary University of London
Country United Kingdom 
Sector Academic/University 
PI Contribution I contributed to the grant application which was successful in obtaining H2020 funding to conduct this ambitious linkage project. Now that the project has started, I am responsible for standardising variables relating to mortality, morbidity and educational outcomes recorded in administrative databases across Europe and for creating a common data model for analysis.
Collaborator Contribution This is a multicentre study with over 20 partners across Europe. Other partners are responsible for co-ordination and management of the project, linking the data, providing aggregate tables for data analysis, conducting data analysis, PPI and dissemination.
Impact The study is a 5-year study, so there are no outputs at this stage.
Start Year 2017
 
Description Data workshop series with Northern Ireland Council for Voluntary Action (NICVA) 
Organisation Northern Ireland Council for Voluntary Action
Country United Kingdom 
Sector Learned Society 
PI Contribution I have developed in partnership with the Detail Data project at NICVA a series of workshops looking at data research possibilities for the third sector. Detail Data works specifically with open data, and the ADRC-NI with administrative data, so we have a wealth of expertise to share with the voluntary sector on how they can maximize their understanding and use of data to accomplish their objectives. From the ADRC-NI perspective, the workshops also aim to foster potential research partnerships between academic researchers and third sector organizations, to work towards making ADRC-NI research as relevant as possible to grassroots work where local practitioners are the experts. Our researchers present their relevant work at each workshop, and discuss with participants what their research needs are and how partnering with the ADRC-NI could enhance their research capabilities and the impact of ADRC-NI research. We also provide general coordination and promotion. The workshop series has three initial workshops planned and will be organized thematically; the themes are carers and caring, mental health, and gendered data (still in development).
Collaborator Contribution NICVA provide experience and expertise working with Open Data through their Open Data Portal, as well as their Data Stories. They are also the umbrella organization for the third sector in Northern Ireland, and provide targeted advertisement and outreach to the most relevant and potentially interested organizations by theme. They also provide the venue and catering for each workshop.
Impact The outputs so far are one workshop, with two more planned. Important contacts have been made between ADRC-NI researchers and third sector and statutory representatives, and follow-up meetings held. NICVA has also contributed to a blog post on the ADRN website about involving third sector organizations in academic research using data.
Start Year 2016
 
Description Delegation of mental health charities and stakeholders campaing for mental health funding for NI 
Organisation Action Mental Health
PI Contribution I joined the collaboration and contributed to the discussion with ministers about the budget for mental health in NI.
Collaborator Contribution They planned the meeting and put out the press release.
Impact Press stories and contacts from organisations in the area of mental health.
Start Year 2018
 
Description Delegation of mental health charities and stakeholders campaing for mental health funding for NI 
Organisation British Psychological Society (BPS)
Country United Kingdom 
Sector Learned Society 
PI Contribution I joined the collaboration and contributed to the discussion with ministers about the budget for mental health in NI.
Collaborator Contribution They planned the meeting and put out the press release.
Impact Press stories and contacts from organisations in the area of mental health.
Start Year 2018
 
Description Delegation of mental health charities and stakeholders campaing for mental health funding for NI 
Organisation Mental Health Foundation
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution I joined the collaboration and contributed to the discussion with ministers about the budget for mental health in NI.
Collaborator Contribution They planned the meeting and put out the press release.
Impact Press stories and contacts from organisations in the area of mental health.
Start Year 2018
 
Description Delegation of mental health charities and stakeholders campaing for mental health funding for NI 
Organisation Royal College of Psychiatrists
Department Royal College of Psychiatrists in Northern Ireland
PI Contribution I joined the collaboration and contributed to the discussion with ministers about the budget for mental health in NI.
Collaborator Contribution They planned the meeting and put out the press release.
Impact Press stories and contacts from organisations in the area of mental health.
Start Year 2018
 
Description Dr Anne Kouvonen at the Dept Social Research and Sociology; Helsinki University; Finland. 
Organisation University of Helsinki
Department Department of Social Research
Country Finland 
Sector Academic/University 
PI Contribution Collaboration on research project and joint supervision of research student.
Collaborator Contribution Collaboration on research project and joint supervision of research student.
Impact Two papers in preparation. Two seminars in respective organisations.
Start Year 2015
 
Description Effective Family Support Models During Transition of Adults with Intellectual Disabilities into Older Age 
Organisation Ulster University
Country United Kingdom 
Sector Academic/University 
PI Contribution I have designed the economic aspect of the project including design of interview schedules. I have also contributed to database development. I will be conducting economic analysis and writing a full economic report once the final dataset becomes available.
Collaborator Contribution My partners were responsible for the overall concept of the study, design of the overall study and initial drafting of study materials including the interview schedule. They have conducted a series of study interviews and will be working alongside me in facilitating analysis.
Impact The development of an adapted version of the Client Service Receipt Inventory suitable for individuals with Learning Disabilities in Northern Ireland. This collaboration is multi-disciplinary, drawing on expertise from specialist Learning Disability Nursing, Health Economics, Mental Health and Statistical Modelling.
Start Year 2013
 
Description Future Search Data Group 
Organisation Public Health Agency (PHA)
Country United Kingdom 
Sector Public 
PI Contribution I attended a suicide strategy event as a result of this award, which resulted in the formation of a suicide data group. I am the academic representative on this group.
Collaborator Contribution The collaborators are coming together to chart and improve the data collected following suicide and data available on services for those who are suicidal.
Impact Future search suicide strategy meeting report.
Start Year 2016
 
Description Learning Diasbility and Causes of Death in Northern Ireland 
Organisation Ulster University
Country United Kingdom 
Sector Academic/University 
PI Contribution I am a co-investigator on this project, which is currently being developed for an application through the ADRC-NI. I have advised in terms of administrative data available, variable lists and methodology in relation to data analysis.
Collaborator Contribution The partners have developed the proposal in terms of previous literature, identifying key research questions and liaising with research collaborators across Europe with a view to a potential European wide comparative study.
Impact Draft application for submission to ADRC-NI currently being developed
Start Year 2015
 
Description Maximising patient compliance and tolerability to statin medication at the primary care level to prevent CVD 
Organisation Ulster University
Department Biomedical Sciences Research Centre
Country United Kingdom 
Sector Academic/University 
PI Contribution Funding application was developed for Heart Research UK. I was involved in development of the proposal and in particular identification of appropriate administrative datasets and variables.
Collaborator Contribution Partners at the Biomedical Sciences Institute at Ulster University were primarily responsible for proposal development, assembling and co-ordinating the overall team with the range of necessary expertise.
Impact Our funding application to Heart Research UK was unsuccessful, but the project is still active and we will be seeking funding for the project in the next round of NI Chest, Heart and Stroke funding.
Start Year 2017
 
Description Northern Ireland Baby Hearts Study 
Organisation Northern Ireland Chest Heart and Stroke Association (NICHS)
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution The Northern Ireland (NI) Baby Hearts study investigated risk factors for congenital heart defects (CHD) and the health behaviours of a representative sample of NI pregnant women. Phase I was a case-control study using hyrbrid data collection methods, including self-administered iPad questionnaire or postal questionnaire, information held in maternity records and linkage to prescription records. Phase II was a retrospective population-based linkage cohort study using data from 2005-2014. Paediatric cardiology data from the NI HeartSuite database were linked to maternity data, the NI Multiple Deprivation Measure and the Central Postcode Directory to investigate socioeconomic and geographic distributions of CHD, trends over time, and the clinical spectrum and survival.
Collaborator Contribution The Chest Heart and Stroke Association funded us to do this study.
Impact Preliminary results were presented at the 2017 seminar on "Congenital Heart Disease: Results of the NI Baby Hearts Study and New Developments in Treatment", Mossley Mill Newtownabbey, Friday 28 April 2017 Results were also presented at the ADRN conference in Belfast, June 2018
Start Year 2013
 
Description OCCUMEN study: Mental Health across Occupation Types and the Influence of Family Demands 
Organisation Public Health Agency (PHA)
Department Health and Social Wellbeing Improvement
Country United Kingdom 
Sector Public 
PI Contribution Developed an ADRN application, liaising with NISRA and data holders to negotiate data linkage. Developed a funding proposal for an ESRC SDAI grant, submitted in January 18 for consideration at the July panel.
Collaborator Contribution The Public Health Agency Health and Wellbeing Improvement Team, AWARE NI and the NASUWT have been centrally involved in development of the protocol for this study, including refinement of research questions. They have also been instrumental in development of an impact strategy that will ensure that the project will influence both occupational mental health strategies in the workplace and overall policy development in relation to workplace mental health and support of working families.
Impact - ADRN application (approved in Feb 18), ESRC SDAI funding application, Ethics application (approved by ORECNI in Feb 2018)
Start Year 2017
 
Description Samaritans Ireland data analysis 
Organisation The Samaritans
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution I am the PI on a data analytics grant from Samaritans Ireland.
Collaborator Contribution together we are analysing and interpreting crisis line caller data.
Impact This is a multidisciplinary collaboration with Computer Sciences. The projectc led to a report and two publications which are currently under review.
Start Year 2016
 
Description Seeing the Whole Picture: A Holistic Analysis of the Profile of Pupils with Special Educational Needs (SEN) in Northern Ireland. 
Organisation Ulster University
Country United Kingdom 
Sector Academic/University 
PI Contribution I was jointly responsible for developing the research proposal intended for submission through the ADRN. I am a co-investigator on the project primarily responsible for the development of the project methodology.
Collaborator Contribution Partners in this project from the School of Education have developed the project in terms of theory, previous literature, identifying the pertinent research questions to be addressed and potential policy impact.
Impact This project has now been approved by the Administrative Data Research Network and we are currently waiting on Department of Education Solicitors to give the go ahead for release of DE data. In addition a funding application for the ESRC Secondary Data Analysis Initiative funding stream, which will be submitted in the next few months
Start Year 2015
 
Description Social media for health promotion campaigns and behaviour change interventions {RH} 
Organisation Adoreboard
Country United Kingdom 
Sector Private 
PI Contribution Dr Ruth Hunter and Prof Frank Kee have led a bid to the MRC PHIND scheme to investigate the feasibility of Twitter sentiment to help us design better mass communication interventions for public health. Prof Kee (PI) brings expertise in complex public health interventions and mixed methods evaluations. Dr Hunter provides expertise on examining the mediating effects of social networks on behaviour change.
Collaborator Contribution Our partners provide expertise in cognition and emotion, communication, qualitative research, sentiment analysis, web data extraction, integration and mining, social media analysis, data analytics, machine learning and autonomous systems.
Impact Awaiting the outcome of a grant application to the MRC PHIND scheme.
Start Year 2013
 
Description Social media for health promotion campaigns and behaviour change interventions {RH} 
Organisation Cancer Focus Northern Ireland
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Dr Ruth Hunter and Prof Frank Kee have led a bid to the MRC PHIND scheme to investigate the feasibility of Twitter sentiment to help us design better mass communication interventions for public health. Prof Kee (PI) brings expertise in complex public health interventions and mixed methods evaluations. Dr Hunter provides expertise on examining the mediating effects of social networks on behaviour change.
Collaborator Contribution Our partners provide expertise in cognition and emotion, communication, qualitative research, sentiment analysis, web data extraction, integration and mining, social media analysis, data analytics, machine learning and autonomous systems.
Impact Awaiting the outcome of a grant application to the MRC PHIND scheme.
Start Year 2013
 
Description Social media for health promotion campaigns and behaviour change interventions {RH} 
Organisation Public Health England
Country United Kingdom 
Sector Public 
PI Contribution Dr Ruth Hunter and Prof Frank Kee have led a bid to the MRC PHIND scheme to investigate the feasibility of Twitter sentiment to help us design better mass communication interventions for public health. Prof Kee (PI) brings expertise in complex public health interventions and mixed methods evaluations. Dr Hunter provides expertise on examining the mediating effects of social networks on behaviour change.
Collaborator Contribution Our partners provide expertise in cognition and emotion, communication, qualitative research, sentiment analysis, web data extraction, integration and mining, social media analysis, data analytics, machine learning and autonomous systems.
Impact Awaiting the outcome of a grant application to the MRC PHIND scheme.
Start Year 2013
 
Description Social media for health promotion campaigns and behaviour change interventions {RH} 
Organisation Queen's University Belfast
Department School of Electronics, Electrical Engineering and Computer Science
Country United Kingdom 
Sector Academic/University 
PI Contribution Dr Ruth Hunter and Prof Frank Kee have led a bid to the MRC PHIND scheme to investigate the feasibility of Twitter sentiment to help us design better mass communication interventions for public health. Prof Kee (PI) brings expertise in complex public health interventions and mixed methods evaluations. Dr Hunter provides expertise on examining the mediating effects of social networks on behaviour change.
Collaborator Contribution Our partners provide expertise in cognition and emotion, communication, qualitative research, sentiment analysis, web data extraction, integration and mining, social media analysis, data analytics, machine learning and autonomous systems.
Impact Awaiting the outcome of a grant application to the MRC PHIND scheme.
Start Year 2013
 
Description Social media for health promotion campaigns and behaviour change interventions {RH} 
Organisation Queen's University Belfast
Country United Kingdom 
Sector Academic/University 
PI Contribution Dr Ruth Hunter and Prof Frank Kee have led a bid to the MRC PHIND scheme to investigate the feasibility of Twitter sentiment to help us design better mass communication interventions for public health. Prof Kee (PI) brings expertise in complex public health interventions and mixed methods evaluations. Dr Hunter provides expertise on examining the mediating effects of social networks on behaviour change.
Collaborator Contribution Our partners provide expertise in cognition and emotion, communication, qualitative research, sentiment analysis, web data extraction, integration and mining, social media analysis, data analytics, machine learning and autonomous systems.
Impact Awaiting the outcome of a grant application to the MRC PHIND scheme.
Start Year 2013
 
Description The Economic Burden Associated with Mental Ill Health Among Informal Caregivers in Northern Ireland 
Organisation Ulster University
Country United Kingdom 
Sector Academic/University 
PI Contribution This partnership has developed an proposal for an ADRN project examining the economic burden of mental ill health among informal carers in Northern Ireland. A funding bid has also been submitted to the HSE and Atlantic Philanthropies based on this project. I was responsible for developing the proposal in terms of data required and methodology, drafting the ADRN application documents and grant application documents.
Collaborator Contribution The study partners have contributed to the study design, literature review and ethics application documentation
Impact This project is multidisciplinary, drawing on expertise from psychology, nursing and health economics. Outputs thus far include an ADRN application- this application was approved in April 2016. In addition, an ethics application was submitted to an d approved by Ulster University Research Ethics Committee and ORECNI. Both were approved, the later in April 2016
Start Year 2015
 
Description 'Launch' of ADRN - {DOR} 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Series of presentations followed by panel discussion

Difficult to say: perhaps absence of negative feedback is a positive outcome
Year(s) Of Engagement Activity 2014
 
Description 3rd Policy Forum for Northern Ireland Keynote Seminar: Tackling poverty and assessing the impact of welfare reform in Northern Ireland 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact I used this meeting to advance the potential of the ADRN to answer policy-related questions related to poverty, social security benefits uptake and Welfare Reform.
Year(s) Of Engagement Activity 2016
 
Description A talk to staff at the Institiute of Conflict Research on the work of ADRC-NI and the Migrant Health Project (CC) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact The talk lead to the sharing of ideas about possible future research in migrant health and the sharing of contact details of migrant organisations who might be interested in research.

After the sharing of contact details of migrant organisations, contact was made with these organisations and they expressed interest in being involved in further research, which is to be followed up once ethical approval has bee received for qualitative research with migrants on health and well being and their experiences and knowledge of registration with a GP and completing the census.
Year(s) Of Engagement Activity 2015
 
Description ADRC-NI Migrant Project Case Study (YouTube clip) (Anne Kouvonen) 
Form Of Engagement Activity A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact A good number of views. This clip was also included in the report for the ADRN Steering Committee.

No notable impacts to be recorded yet
Year(s) Of Engagement Activity 2015
 
Description ADRC-NI Researcher Conference - presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Presentation on the application and interpretation of the Data Protection Act; specifically research exemption for the use of deidentifed health and social care data, both survey and administrative. Based on the provision of the principles of the ADRN for access to administrative data.
Privacy, ethical, governance and tactical considerations for researchers.
Year(s) Of Engagement Activity 2016
 
Description ADRC-NI away day presentation (CC) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Approximately 30 researchers working in ADRC-NI related projects attended the away day and were presentation on a proposed research project on migrant mental health. This lead to a member of the audience highlighting that the porposed project was similar to other research. This was followed up and it turned out that there similarities in both projects but also major differences. Plans were made with these researchers to look at oppurtunities to work together in the future.
Year(s) Of Engagement Activity 2016
 
Description ADRC-NI engagement activity with senior members of the School of Management and Economics 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact This was an outreach meeting to senior members within the School of Management and Economics at QUB: these were senior researchers who had previously demonstrated interest in using Social Security Benefits data; the aim was to stimulate interest in the widening access to Benefits Data locally.
Year(s) Of Engagement Activity 2015
 
Description ADRC-NI event for Festival of Social Science 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? Yes
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact The presentations led to a useful in-depth discussion with attendees on creating research partnerships, and how the service of the ADRC-NI might be of use to them in future. It has also led to several follow-up meetings with individual participants, looking at taking things further and developing more targeted seminars and training on using administrative data, research partnerships and the ADRC-NI.

There has been an increased awareness of the ADRC-NI and administrative data, evidence by more people getting in touch with the Public Engagement and Communications Officer to discuss research partnerships, and a health response to a further public event scheduled in December. There was also learning for ADRC-NI, on refining our communication messages and methods and learning from the public what their specific needs and asks were for getting involved, such as a pro-forma for agreement between two parties for research, a list of what types of administrative data are available in Northern Ireland, and examples of previous uses of administrative data for social research.
Year(s) Of Engagement Activity 2014
 
Description ADRC-NI researchers away day 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact This was the first meeting of all researchers and other associated with the ADRC-NI and through a series of presentations and updates we hoped to galvanise activity and progress
Year(s) Of Engagement Activity 2016
 
Description ADRC-NI showcase event, 1st December 2014, Stormont (DW) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Talk sparked discussion afterwards.

Awaiting impacts.
Year(s) Of Engagement Activity 2014
 
Description ADRN Conference - Education Policy Presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Presentation entitled "Educational Attainment in Northern Ireland", delivered to ~55 representatives of government departments and universities on the subject of educational policies in Northern Ireland and variations and similarities with the rest of the United Kingdom. This was designed to illustrate the value of the Administrative Data Research Network for comparing the efficacy of different policy approaches from across the UK. Questions were around the data available from the Department of Education in Northern Ireland. Slides have been made available via the Administrative Data Service.
Year(s) Of Engagement Activity 2016
 
Description ADRN Conference- Education Discussion Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Researchers with an interest in education and education policy from various Administrative Data Research Centres (Northern Ireland, Wales and Scotland) discussed projects underway within the various centres. Data availability and areas for future cross-centre collaboration were identified. In particular, there was emphasis on educational outcomes as a measurable consequence of policy initiatives which are rolled out differently in different UK countries, such as welfare reform.
Year(s) Of Engagement Activity 2016
 
Description ADRN Podcast interview about Me-D-Links project 
Form Of Engagement Activity A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Media (as a channel to the public)
Results and Impact A podcast was made to discuss the potential benefit arising from the use of administrative data to explore the short and long term impact of medications used during pregnancy, specifically Metformin.
Year(s) Of Engagement Activity 2017
URL https://adrn.ac.uk/research-impact/podcasts/diabetes-and-pregnancy/
 
Description ARK Seminar. Public attitudes to data sharing in Northern Ireland 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact ARK seminar are designed to attract a mixed audience for a lay friendly presentation. In this case the audience was very mixed. Professor Helen Dolk and myself presented the study findings and Professor Roy McClelland responded from his position as Chair of the Health and Social Care Privacy Committee. The question and answer session was very wide ranging and in general provided positive feedback regarding the value of this data.
Year(s) Of Engagement Activity 2016
URL https://www.youtube.com/watch?v=dqnWQKrfKCw&feature=player_embedded
 
Description Address to Social Mobility Roundtable 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Industry/Business
Results and Impact The Northern Ireland Equality Commissioner, in cooperation with Alexander Mann Solutions, hosted a "Social Mobility Roundtable" to explore how businesses can achieve greater class diversity in the workforce. I was invited to present ongoing work on social mobility using linked data from Northern Ireland. Over 30 industry leaders were in attendance representing both private and public sector employers. Questions and discussion ranged from the broad, e.g. how to avoid furthering inequalities through educational initiatives or apprenticeship schemes, to local issues such as the long-term effect of replacing the 11+ transfer test.
Year(s) Of Engagement Activity 2018
 
Description Admin Data talk at the Department for Ecomony's ASU staff away day 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Over 40 staff form the Department for Economy (DfE) in Northern ireland attended their annual Away Day where I gave a talk on Administrtiave Data for Research Purposes and how to avail of that in Northern Ireland via the Honest Broker Service, the Northern Ireland Longitudinal Study and the Administrative Data Reserch Centre-Northern Ireland (ADRC-NI). This sparked discussion about the potential for joint ADRC-NI/DfE projects.
Year(s) Of Engagement Activity 2017
 
Description Administrative data and Record linkage: some examples of mental health research 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Presentation and discussion with all public health trainees in Northern Ireland of the potential of administrative data for understanding the distributions, antecedents and outcomes of poor mental health
Year(s) Of Engagement Activity 2016
 
Description BBC interest in paper in Lancet http://www.bbc.co.uk/news/health-33986250 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Media (as a channel to the public)
Results and Impact Much discussion in other National papers.

Many interviews by research team
Year(s) Of Engagement Activity 2015
URL http://www.bbc.co.uk/news/health-33986250
 
Description BILS - Linkage and Consent 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact British Isle Longitudinal Studies Annual Conference - Presentation on data linkage for surveys and administrative data via ADRN.
Year(s) Of Engagement Activity 2016
 
Description CMIST Seminar; Manchester University 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Postgraduate students
Results and Impact Seminar entitled 'What can Administrative data and Record linkage tell us about mental health?' at the CMIST Seminar; Manchester University
Year(s) Of Engagement Activity 2017
 
Description CPH Away Day Admin Data and Mental Health Talk (Jan 2019) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Talk at the Centre for Public Health (CPH) Away Day on 11th January 2019 about ongoing research making better use of administrative data in Northern Ireland to understand population mental health.
Year(s) Of Engagement Activity 2019
 
Description Children's Strategy Co-Design Event 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? Yes
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Following presentations and discussion with senior civil servants, I participated in a focus group to discuss the strategic outcome of "Enjoyment, Childhood and Youth" for all children. There was extensive discussion of the type of data necessary to establish outcomes from the current Children's Strategy and to monitor progress towards newly specified outcomes following commencement of a new strategy.

Focus groups discussed what measures could be sought to monitor the progress of the Children's Strategy. Based on reviews of best evidence across the UK, I suggested that schools might collate indicators of parental engagement in children's education (e.g. via attendance of parents' evenings, Parent-Teacher Meetings, etc.) Children's own attendance of school was also noted as a key early indicator.

I outlined the progress to date of the ADRC-NI in availing of secondary departmental data sources, safe individual-level linkage and the plans to extend this to the study of education and early years. This led to the conclusion that there could be more thorough monitoring of the new Children's Strategy via the new data linkage infrastructure than of the current strategy. In particular the degree to which all social groups benefit equally from education policy interventions (or to which previously marginalised groups benefit) can be better monitored using rich linked data.

Focus group notes were collated and presented to representatives of the Office for First Minister and Deputy First Minister.
Year(s) Of Engagement Activity 2015
URL http://www.ci-ni.org.uk/DatabaseDocs/nav_9124869__co-design_on_the_childrens_strategy.pdf
 
Description Collaboration meeting with the Migrant Centre, Northern Ireland 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Third sector organisations
Results and Impact Meeting with the Migrant Centre to present an update on ADRC research and to discuss collaborating on small scale studies to inform this, drawing on beneficiaries of the Migrant Centre and beyond. The director of the Migrant Centre also presented an update on research they have conducted. The outcome of the meeting was a) for the ADRC team to assist with Migrant Centre research and for b) the Migrant Centre to support our research through the recruitment of participants and by disseminating findings to the wider migrant communities.
Year(s) Of Engagement Activity 2017
 
Description Commissioner for Older People - Presentation and discussion with policy team 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Informal presentation and discussion outlining the services of ADRC-NI, the data currently available and the route to application,

Follow up emails, discussions and queries regarding feasibility.
Year(s) Of Engagement Activity 2015
 
Description Conference Presentation Are two datasets better than one? Experience from European studies, 7th Annual C-TRIC TMED7 Conference - Big Data and Data Analytics in Precision Medicine, 26th & 27th October 2015, Derry/Londonderry, N Ireland. (ML) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Presentation at 7th Annual C-TRIC TMED7 Conference - Big Data and Data Analytics in Precision Medicine, 26th & 27th October 2015, City Hotel, Derry/Londonderry, N Ireland.
Year(s) Of Engagement Activity 2015
URL http://www.c-tric.com/tmed7
 
Description Conference presentation on An Exploratory Analysis of Socio-demographic Characteristics of Lone Mothers, 2nd Annual ADRN Research Conference, Belfast 28-29 May 2015 (KC) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Presentation of proposal which sparked questions and discussion afterwards
Year(s) Of Engagement Activity 2015
 
Description DWP & ESRC discussion on Work, Health and Disability research 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Discussions about potential of academia helping DWP shape and contribute to their research agenda
Year(s) Of Engagement Activity 2017
 
Description Data Workshop - ADRC-NI - Education Data 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Postgraduate students
Results and Impact ADRC-NI Data Workshop - Education Data
Year(s) Of Engagement Activity 2017
 
Description Data Workshop - VCSE - NICVA - Carers 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Third sector organisations
Results and Impact Data Workshop. Theme of 'carers'. Use of ADRC-NI
Year(s) Of Engagement Activity 2017
 
Description Data protection and data linkage - Data Commissioners Office 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Discussion to develop and understand the application and interpretation of the Data Protection Act; specifically research exemption for the use of deidentifed health and social care data, both survey and administrative. Based on the provision of the principles of the ADRN for access to administrative data.
Year(s) Of Engagement Activity 2016
 
Description Data workshop for VCSE sector on carers and caring research 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Third sector organisations
Results and Impact In partnership with the NI Council for Voluntary Action (NICVA) I am organizing a series of workshops on data research for the third sector, looking both at administrative data through the ADRC-NI and Open Data through NICVA's own Detail Data project. Each workshop will have a theme of research; the first was on 20 February and looked at carers and caring. Participants heard about current research being undertaken through ADRC-NI with our researchers, and how the available data could help them answer questions they encountered in their grassroots work and policy work supporting carers. We also discussed research partnerships and how they could get involved with the ADRC-NI. There was a high level of interest and engagement around the research, particularly around access to data now potentially available through ADRC-NI that third sector groups have wanted access to for some time. There have been several follow-up meetings between ADRC-NI researchers, project manager and participants. We will also move ahead with the next two planned workshops in the series, looking at mental health for the second and the third topic to be determined.
Year(s) Of Engagement Activity 2017
URL http://www.nicva.org/event/data-workshop-on-carers
 
Description Data workshop for VCSE sector: mental health 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Third sector organisations
Results and Impact In partnership with the NI Council for Voluntary Action (NICVA) I have been organizing a series of workshops on data research for the third sector, looking both at administrative data through the ADRC-NI and Open Data through NICVA's own Detail Data project. Each workshop will have a theme of research; the first was on 20 February and looked at carers and caring, the second, the one referenced here, was in May and was on the topic of mental health. Participants heard about current research being undertaken through ADRC-NI with our researchers, and how the available data could help them answer questions they encountered in their grassroots work and policy work supporting carers. We also discussed research partnerships and how they could get involved with the ADRC-NI. There was a high level of interest and engagement around the research, particularly around access to data now potentially available through ADRC-NI that third sector groups have wanted access to for some time. There have been several follow-up meetings between ADRC-NI researchers, project manager and participants.
Year(s) Of Engagement Activity 2017
 
Description Data workshop for VCSE sector: reproductive rights/health 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Third sector organisations
Results and Impact In partnership with the NI Council for Voluntary Action (NICVA) I organized a series of workshops on data research for the third sector, looking both at administrative data through the ADRC-NI and Open Data through NICVA's own Detail Data project. Each workshop had a theme of research; the first was on 20 February and looked at carers and caring, the second, in May 2017, examined mental health; this was the third in the series. Participants heard about current research being undertaken through ADRC-NI with our researchers, and how the available data could help them answer questions they encountered in their grassroots work and policy work around women's reproductive health. The workshop emulated a woman's reproductive journey, with presentations on research about contraception, abortion, medications in pregnancy, breastfeeding, and factors influencing a woman's return to employment after childbirth. We also discussed research partnerships and how they could get involved with the ADRC-NI. There was a high level of interest and engagement around the research, particularly around access to data now potentially available through ADRC-NI that third sector groups have wanted access to for some time. There have been several follow-up meetings between ADRC-NI researchers, project manager and participants.
Year(s) Of Engagement Activity 2017
URL http://www.nicva.org/event/data-workshop-on-reproductive-rights
 
Description Dementia innovation lab NI - Department of Finance NI 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Patients, carers and/or patient groups
Results and Impact Looking into the challenging subject of dementia, through an Innovation Lab comprising of service users,their families, health care professionals, voluntary sector representatives, service providers, university academics and administrators.

Workshop to discuss and create next steps from the recommendations created by participation in the Lab; representing the collective view of the many people involved. These were centred on; the need for a whole systems approach to dementia; looking at dementia from a social rather than a medical perspective; and on measures to enable people to manage the challenges of living with dementia, rather than simply mitigating the effects of it.
Year(s) Of Engagement Activity 2017
 
Description Discusison about data to inform policy development for an ageing population 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Workshop about data and research to support policy development for an ageing population
Year(s) Of Engagement Activity 2016
 
Description Discussion group with professionals about migrant well-being and migrant's experience of registration with the GP and completing the census (CC) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact The talk sparked further questions and areas for consideration for the subsequent part of this research a linkage study with health and social care data and census data on the mental health of migrants.

Further requests for information and sharing of ideas and contacts for another piece of research with migrants on their experience of completing the census and experience of registering with the GP.
Year(s) Of Engagement Activity 2015
 
Description Discussion group with the public Health Agency BME regional steering group about migrant well-being and migrant's experience of registration with the GP and completing the census (CC) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact This discussion group stimulated thinking for the subsequent research using linkage data from health and social care and census data on the mental well-being of migrants

This lead to the sharing of information of other research that could be considered for the subsequent phase of migrant health project as well as sharing of contacts.
Year(s) Of Engagement Activity 2015
 
Description Discussions with Brendan Bonner and Fiona Teague from the Public Health Agency on OCCUMEN study 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact I have had a number of discussions and meetings with the PHA Health and Wellbeing Improvement Team in the development of our OCCUMEN Study proposal. This has led to the development of a funding application, ADRN application and development of a concrete impact strategy that will maximise the potential of our study influencing occupational mental health.
Year(s) Of Engagement Activity 2017
 
Description Duncairn Partnership invited Talk on Mental Health research in NI Aug 2018 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact Invited talk on our research related to Mental Health in NI given at the Duncairn Community Partnership in North Belfast, 30th Aug 2018.
The Duncairn partnership organised this event to bring together residents and service providers to look at this element of living in a segregated area.
Year(s) Of Engagement Activity 2018
 
Description ESRC Festival of Science - {DOR} 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact Two presentations followed by discussion for 1-1.5 hours

mush discussion with a journalist from The Detail.
Year(s) Of Engagement Activity 2014
 
Description ESRC Festival of Social Science event 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact In this ESRC Festival of Social Science event we presented the study findings and tested different variations of some of the questions. This was an attempt to see if responses would have been different if the question had been asked in a different way. Small audience but good discussion.
Year(s) Of Engagement Activity 2016
 
Description Engagement meeting with EastSide Learning Partnership 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Third sector organisations
Results and Impact Engagement meeting with education non-profit in East Belfast alongside ADRC-NI PhD student. Discussed her research, the history and purpose of the ADRC-NI, and the potential possibilities for formal research partnerships between the group and ADRC-NI. Follow-ups planned; increase knowledge and awareness of ADRC-NI.
Year(s) Of Engagement Activity 2017
 
Description Engagement meeting with Women's Resource and Development Agency (WRDA) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Third sector organisations
Results and Impact Alongside ADRC-NI researcher met with representative of WRDA to discuss the ADRC-NI and possible research partnership on maternal employment project through ADRC-NI, as well as participation in local Women's Budget Group and policy Conference. Follow-ups to occur.
Year(s) Of Engagement Activity 2017
 
Description Engagement, data acquisition and project development with the Police Service of Northern Ireland. 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Series of workshop meetings to establish available and legally accessible data from the PSNI and the potential for linkage to available administrative data sets in NI.Development of projects whose outputs could influence policy and practices of the Community Policing Department, address Program for Government output priorities. Significant output being the funding (£150k) of a Queens' University Belfast and PSNI research project, via ADRC-NI.
Year(s) Of Engagement Activity 2017
 
Description Engaging Focus-The Identity Trust 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Provided information about our processes/protocols/protections/interests in and while using administrative data for research purposes. Reassured this advocacy group (for transgender people and their rights) that any research that would involve transgender issues/questions would be only conducted with input from their group (the only group in NI to advocate specifically on this issue). The group's representatives provided detailed information about the advocacy work that they do and their particular interests and concerns in administrative data research. We (PECO and Dr. Given) provided information that was intended to build understanding and confidence in the ADRC-NI's projects. We also were educated to the concerns of this group, especially as they relate to definitions and data collection). Important connections were realised during the discussion, including that their group is involved in another UU study that an ADRC-NI researcher (in his role at the Bamford centre) oversees.
Year(s) Of Engagement Activity 2018
 
Description Engaging MIDAS project managers 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Reached out and organized a meeting with the lead researcher/project coordinator, Michaela Black, of the EU2020 MIDAS project (Meaningful Integration of Data, Analytics and Services). Her management team were included in the meeting. The purpose was to share our centre's mission and see where our work overlaps (healthcare data to better inform policy, cost-effectiveness of better data sharing) as well as distinct interests. We identified public attitudes toward data sharing as a key opportunity to create synergy between our projects/share on-going research and made plans for future workshop.
Year(s) Of Engagement Activity 2018
 
Description Engaging the Public: A Workshop for Researchers 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact ADRC-NI designed and delivered this workshop for researchers to help them jumpstart their public engagement strategy and follow through on activities. Nearly 60 attendees from not only Queen's University Belfast and Ulster University (researchers), but also researchers from England, Wales, Scotland, Canada, and Italy were in attendance along with members of the public, members from city councils, and members from the Health and Social Care NI. Invited speakers from the Executive Office NI, the Department for Economy, and Inspire Wellbeing spoke of engagement with their offices/work and on pathways to policy influence and impact. Evaluations indicate 76% of respondents rated the workshop as successful or highly successful. 90% of attendees reported gaining new knowledge and new tools/resources for engagement. Attendees were provided with a toolkit that included the network public engagement strategy and a booklet with practical tips/tools/resources.
Year(s) Of Engagement Activity 2018
 
Description Engaging the experts - blog for ADRN website 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Blog post for ADRN website on our work on engaging third sector organizations as research partners through the ADRC-NI. Importance of partnerships to enhance research impact and application; public engagement as a central tenet and founding principle of the ADRN and VCSE engagement as a key way to enact this.
Year(s) Of Engagement Activity 2016
URL https://adrn.ac.uk/understand-data/blog/engaging-the-experts/
 
Description European Psychiatric Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Postgraduate students
Results and Impact Presentation on the use of record linkage to demonstrate how the mental health and mortality outcomes of caregivers could be assessed.
Year(s) Of Engagement Activity 2017
 
Description Festival of Social Science event - Public attitudes to data sharing 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact On the basis of research into public attitudes to data sharing, we organised an event for the Festival of Social Science aiming to re-run the survey in real time using audience feedback technology, and compare these to the NILT survey results. This would also function as a means of disseminating the survey results. While the event was poorly attended, we are confident that the event model is applicable particularly to teaching environments, and will be adapting it for this purpose in future.
Year(s) Of Engagement Activity 2016
 
Description HSC Privacy Advisory Commitee - presentation 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Discussion to develop and understand the privacy considerations on the application and interpretation of the Data Protection Act; specifically research exemption for the use of deidentifed health and social care data, both survey and administrative. Based on the provision of the principles of the ADRN for access to administrative data.
Year(s) Of Engagement Activity 2016
 
Description INTERNATIONAL CONFERENCE FOR ADMINISTRATIVE DATA RESEARCH 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact A presentation entitled '• Parental mental health and risk of poor mental health and death by suicide in offspring' : this showed off some of the excellent data relating to early years that we have in NI and the utility we put these to.
Year(s) Of Engagement Activity 2018
 
Description IPNDL Conference; Banff Canada 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Is uptake of disability-related social security benefits modified by demographic, social and area-level factors? this was the first study in the UK to use Social Security data.
Year(s) Of Engagement Activity 2018
 
Description IPNDL Conference; Banff Canada 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presentation entitled 'Parental mental health and risk of poor mental health and death by suicide in offspring: a population-wide data linkage study'
Year(s) Of Engagement Activity 2018
 
Description Imagine Belfast - Better Knowledge Better Society 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact We hosted an event 'Better Knowledge, Better Society' as part of the imagine Belfast festival which took the form of a Civic Conversation on 16 March in York Street. The format was a round table discussion and we had participants from Academia, Government, and the CVSE sector. 18 people attended in person and we also streamed the event online to 56 remote participants. Feedback from the event was positive and the use of Periscope to stream the event proved extremely useful in reaching a wider audience.
Year(s) Of Engagement Activity 2016
URL https://imaginebelfast.com/events/better-knowledge-better-society/
 
Description Interview with newspaper - {DOR} 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Media (as a channel to the public)
Results and Impact half-page spread in local newspaper

increased discussion about the Ageing Study (NICOLA)
Year(s) Of Engagement Activity 2014
 
Description Interviews for the local, national and international press. 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Since obtaining the research awards for suicidal behaviour, death by suicide and trauma I have conducted numerous interviews for tv, radio, print media and online media. The focus of the questions usually relate to the impact of trauma and the Troubles on suicide rates in NI, and the appropriate responses. The interviews have led to countless contacts and have influenced public opinion on mental health and suicide prevention here.
Year(s) Of Engagement Activity 2013,2014,2015,2016,2017
 
Description Invited presentation (Lisburn City Council) - {AK} 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact "The Social Determinants of Health". Anne Kouvonen gave an invited presentation at "Women's Health Conference - Check Today For Tomorrow", Lagan Valley Island, Lisburn City Council. About 100 people attended, including city councillors, Diane Dodds MEP, Lord Lieutenant of Co Antrim, the Mayor of Lisburn, and representatives of a large number of health-related organisations.

Raising awareness about social determinants of health. After the talk I discussed with the representative of Lisburn City Council, a trustee of a mental health charity, and a local MEP, and they expressed interest for my work and further collaboration.
Year(s) Of Engagement Activity 2014
URL http://www.lisburncity.gov.uk/Your-City-Council/Mayor-s-Blog/Mayor-Tolerton-s-Blogs/June-2014/2nd-Ju...
 
Description Invited presentation in Copenhagen (AK) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact Dr Anne Kouvonen: "Physical activity and mental health in older, midlife and younger women". Invited presentation at the National Research Centre for the Work Environment, Copenhagen, Denmark. 13/11/14. There was a lively discussion afterwards with Danish colleagues.

Possible future research collaboration
Year(s) Of Engagement Activity 2014
 
Description KESS presentation "Public Attitudes Toward Data Sharing" 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Professors Robinson and Dolk along with Dr. Given presented their findings from the Northern Ireland Life and Times Survey (module on data sharing) at the Knowledge Exchange Seminar Series (KESS) held at Stormont. This event brings together academics who share research results--with MLAs, civil servants, voluntary sector groups, and the general public--to influence public policy development. Event was fully booked. Q&A sparked further engagement with both government stakeholders (Ryan Wilson, Dept of Health) and Neil Marsden (Honest Broker Service) and community groups (Focus-The Identity Trust). Follow up meeting planned by PECO with Focus-The Identity Trust.
Year(s) Of Engagement Activity 2018
 
Description Keynote speech at The International Population Data Linkage Conference Swansea Aug 2016 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Keynote speech about the ADRN to an international audience
Year(s) Of Engagement Activity 2016
 
Description Knowable Magazine interview 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Media (as a channel to the public)
Results and Impact Interview about my project on the children of the North Karelia project for a prestigious Knowable Magazine. The same special report also included interview with Professor Pekka Puska, the father of the North Karelia project. "Knowable Magazine, the digital publication from Annual Reviews, seeks to make that knowledge accessible to all. Knowable Magazine explores the real-world significance of scholarly work through a journalistic lens. "
Year(s) Of Engagement Activity 2018
URL https://www.knowablemagazine.org/article/health-disease/2018/finlands-bold-push-change-heart-health-...
 
Description Knowledge Exchange Seminar: Northern Ireland Assembly - {AK} 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Study presentation at the Knowledge Exchange Stormont Seminar- inclusive engagement and exchange of our study findings. 9 January 2014. (Drs Anne Kouvonen and Justyna Bell)

Requests for further information. Downloads of the policy briefing produced for the purpose of the knowledge exchange.
Year(s) Of Engagement Activity 2014
 
Description Liaising with Northern Ireland Council for Ethnic Minorities (NICEM) [TB] 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact On-going liaising with NICEM to inform activities of the current context, to share research expertise, to participate in NICEM events and longer term to disseminate findings through NICEM to a wide range of stakeholders. NICEM provides guidance and support to ethnic minorities and migrants across Northern Ireland and includes 29 member community based organisations such as the African and Caribbean Support Organisation Northern Ireland and the Belfast Islamic Centre.

Informing response to the Racial Equality Strategy for Northern Ireland consultation.

Informing literature review and local context in project proposal.

Dissemination to be updated at a later date.
Year(s) Of Engagement Activity 2014
 
Description Liaison with Dr Patrick Roach, Deputy Secretary General of NASUWT 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact Discussion with Patrick Roach to collaborate on the OCCUMEN study with a view to engaging the largest teaching union in the UK and its members.
Year(s) Of Engagement Activity 2017
 
Description Linking survey data to administrative data without consent. (ADRN Annual Research Conference 2016) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Postgraduate students
Results and Impact Seminar presentation
Year(s) Of Engagement Activity 2016
 
Description Masterclass on Opportunities for Researdh Using Data Linkage in Northern Ireland, Institute of Nursing and Health Research, Ulster University, 22nd May 2014 (KC) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Postgraduate students
Results and Impact Ten postgraduate students and academic members of staff attended a three hour Masterclass with the aim of encouraging use of linked datasets for research purposes.
Year(s) Of Engagement Activity 2014
 
Description Masterclass on Opportunities for research using data linkage services in Northern Ireland; Institute of Nursing and Health Research, Ulster University, 22nd May 2014 (ML) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Postgraduate students
Results and Impact 10 postgraduate students and academic members of staff attended a 3 hour Masterclass with the aim of encouraging the use of linked data-sets for research purposes.
Year(s) Of Engagement Activity 2014
 
Description Meeting with ADRC-S 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Participants in your research and patient groups
Results and Impact Afterwards there was a greater understanding of the obstacles and hurdles surrounding the ADRN, along with a sharing of some potential work-arounds.

Increased ADRN cohesion and understanding.
Year(s) Of Engagement Activity 2015
 
Description Meeting with CESG London 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Active discussion about the aims and intentions of researchers and purposes of research as well as the potential for data disclosure

This discussion was extremely useful in helping path the way for advancing policy development around the ADRN
Year(s) Of Engagement Activity 2015
 
Description Meeting with Chair of Privacy Advisory Committee 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Meeting with the Chair of the Privacy Advisory Committee for two reasons:
(I) to update him on the ADRC
(ii) to seek his considered opinion on linking survey responses without respondent permission.

On the first he invited us to present to the full PAC meeting
On the second, he provided reassurance regarding this and some advise on progressing this issue.
Year(s) Of Engagement Activity 2015
 
Description Meeting with CoInvestigators at Ulster University 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Participants in your research and patient groups
Results and Impact Sharing of information about structures and processes. Sharing of information about research plans and ambitions.

This meeting was critical in pinpointing that data availability and timing was critical.

The action points arising from this meeting were instrumental in galvanising the increased availability of data within the ADF and the ADRC-NI
Year(s) Of Engagement Activity 2015
 
Description Meeting with Department of Education NI 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Participants in your research and patient groups
Results and Impact Meeting was designed to gain a greater understanding of availability of department of education data through the ADRC-NI. The main outcome was to inform projects that are currently developing in this area of research and advance them through the ADRN process.

Following this meeting, I was more informed to deliver a subsequent workshop to the UU School of Education on the potential of the ADRN in facilitating education research projects.
Year(s) Of Engagement Activity 2015
 
Description Meeting with Dr Power; Head of Research and Information Services (RaISe) at the Northern Ireland Assembly Stormont 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Dr Power heads up a team of researchers who service the Assembly Committees and answer questions for legislators. This is an important group to influence and engagement with the politicians helps put some pressure on the data custodians fro increasing access to data.
Year(s) Of Engagement Activity 2016
 
Description Meeting with Junior Ministers of the Northern Ireland Assmebly 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact The main purpose was ostensibly to inform the Northern Ireland Assembly of the existence and the potential of NICOLA; however the primary target was the senior civil servants who were also in attendance. The goal was to attract additional infrastructural funding for NICOLA.
Year(s) Of Engagement Activity 2015
 
Description Meeting with MLA Steve Aiken on Data Sharing/Privacy Protections 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Before the formal presentation "Public Attitudes Toward Data Sharing" at KESS (Stormont event), Professors Dolk and Robinson, Dr. Given, and Public Engagement Officer Karnell had a meeting with MLA Steve Aiken (UUP MLA for South Antrim) to educate him about the ADRC-NI work as well as discuss issues of privacy, data security, and research in the public interest. Debated/discussed the importance of data sharing and government providing access to data sets for academic research. MLA Aiken then tweeted about the meeting to his constituents/followers, thus promoting public awareness of ADRC-NI's work in NI.
Year(s) Of Engagement Activity 2018
 
Description Meeting with Mark Durkan MLA to discuss the OCCUMEN study and enlist his support 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Following email exchanges and phone calls, I met with Mark Durkan MLA (former Chair of the All Party Group on Mental Health in NI). We discussed the proposed OCCUMEN study and talked about strategies for impact and policy influence. Mr Durkan provided a letter of support and committed to future engagement and promotion of our study within his Networks at Stormont and among other stakeholders.
Year(s) Of Engagement Activity 2017
 
Description Meeting with Stephen Grey Northern Ireland Council for Voluntary Action 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Discussed potential of ADRC-NI as a research or policy-evaluation tool.

Mr Grey joined our Steering Committee
Year(s) Of Engagement Activity 2015
 
Description MyData Conference 2017: academic workshop 'Our Data Futures' presentation on Public Engagement 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact My colleague Frances Burns (ADRC-NI Project Manager) and I travelled to Tallinn, Estonia and Helsinki, Finland to participate in the MyData 2017 Conference. We delivered a workshop about the ADRC-NI's attempt to answer the question, 'how do you develop and promote public accountability and empowerment in the use of data while keeping sensitive data safe?'. Our answer was a discussion of the engagement and outreach work we have done with the voluntary, community and social enterprise (VCSE) sector promoting research partnerships and the data workshop series. The presentation was very well received and sparked quite a bit of debate and engagement with participants afterwards. Many Nordic countries have been using data for decades for research and public services purposes, but have never done the engagement work with their populations around the use of their data. With the GDPR coming into force, they are interested in our models of engaging with the public and how it might help them fulfill their obligations under new legislation.
Year(s) Of Engagement Activity 2017
 
Description MyData Conference 2017: presentation on consent and data linkage for research 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact My colleague Frances Burns (ADRC-NI Project Manager) and I travelled to Tallinn, Estonia and Helsinki, Finland for the MyData 2017 Conference. Besides also giving an academic workshop on public engagement (listed separately) we presented on ADRC-NI initiatives around consent in data linkage, including the Northern Ireland Life and Times Research into Public Attitudes to data sharing and its specific findings on consent, as well as the NICOLA Participants Panel initiative we started in conjunction with the NI Cohort for the Longitudinal Study of Ageing (NICOLA) which examined participants' views on linkage without consent. Our presentation was again very well received with a high level of engagement, as it presented an aspect of data for research which had not been widely considered by policymakers and corporation practitioners present. We have developed several new working relationships on the back of this work which we are pursuing for future collaborations.
Year(s) Of Engagement Activity 2017
 
Description MyData conference - consent workshop 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Industry/Business
Results and Impact Mydata international conference - Entrepreneurs, activists, academics, corporations and public agencies from international base on the development, empowerment and human centric approach to use of data in academic, public and commercial settings,
Year(s) Of Engagement Activity 2017
URL http://mydata2017.org/session/consent-workshop/
 
Description Mydata conference - Our data futures 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Datafication, referring to the conversion of life into digital data, generates new societal opportunities alongside power asymmetries. Initiatives, such as MyData, Open mHealth, MIDATA.coop, Hub of All Things, and Open Humans take datafication as a starting point, but try to steer data flows and data practices in a societally more sustainable direction. These initiatives address asymmetries in terms of data usage and distribution, or inadequacies of existing ethical and regulatory frameworks; they push for the rearticulation of concepts such as participation, sharing, governance, or public good.This academic workshop invites scholars, participating in and studying such data-driven initiatives, to discuss how the capacities of data technology might be harnessed to promote social justice, new forms of agency, political participation, and collective action.
Year(s) Of Engagement Activity 2017
URL https://mydata2017.org/session/our-data-futures/
 
Description Northern Ireland Department of Infrastructure meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Presentation to the Department of Infrastructure on the potential use of cohort and administrative data for policy impact.
Year(s) Of Engagement Activity 2017
 
Description Northern Ireland Longitudinal Study Showcase event March 2018 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Talk on the range of projects developed and completed using the Northern Ireland Longitudinal Study (NILS) highlighting the type on research questions that can be answered from this data resource. Event held in Riddel Hall, QUB on 29th March 2018.
Year(s) Of Engagement Activity 2018
 
Description PHA conference: Recognising Diversity in Public Health, Belfast, NI - {AK} 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact The presentation entitled 'Mental health and well-being of Polish migrants in Northern Ireland' initiated a debate about migrant mental health. (Drs Anne Kouvonen and Justyna Bell)

Not aware of any impact
Year(s) Of Engagement Activity 2014
 
Description Podcast on Administrative Data and Mental Health for ADRN Data Points 
Form Of Engagement Activity A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Podcast interview with Chris Garrington on Administrative Data and Mental Health for ADRN Data Points, talking about the benefits of using administrative data to analyse and understand mental ill-health in the population.
Year(s) Of Engagement Activity 2017
 
Description Poster for the Centre of Excellence Away Day 2017 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact I displayed a research poster, which was highly praised. I answered a number of question on my research within Northern Ireland from other attendees who seemed particularly interested.
Year(s) Of Engagement Activity 2017
 
Description Preseantation at Public Health Agency Research Day 10/06/2015: 'What record linkage can tell us about the Health of the Public' 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact The talk was followed by much discussion of the potential for greater use of administrative data and of record linkage.

Further contacts and requests to talk to specific groups at the PHA
Year(s) Of Engagement Activity 2015
 
Description Presentaiton to the Privacy Advisory Committee 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact This presentation was two-fold:
1. To inform the Committee about the governance, policies and procedures for the ADRN (these were strongly endorsed)
2. To seek their opinions regarding linking survey responses to administrative data without the consent of respondents. Reassuringly the legal representative on the Committee concurred with the ICO advice. They also provided some very useful advice on public engagement.
Year(s) Of Engagement Activity 2016
 
Description Presentation (Belfast) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Postgraduate students
Results and Impact All postgraduate students within the school of Medicine, Dentistry and Biomedical Sciences, and voluntary undergraduate students attended as part of a postgraduate research forum. I presented on the research I have conducted during my PhD, which sparked questions from multiple students afterwards.
Year(s) Of Engagement Activity 2016
 
Description Presentation World Psychiatric Association Madrid - {DOR} 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact presentation followed by lively discussion

not aware of any yet
Year(s) Of Engagement Activity 2014
 
Description Presentation at ADRC NI Research Away Day 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact A presentation entitled "Large Scale Information/Data Extraction, Integration and Analytics" was made to the delegates attending the ADRC NI research day. A range of research activities on data science conducted by the Computer Science team of the ADRC NI were presented. Some of these activities involve developing underlying techniques for supporting other research activities conducted within ADRC NI.
Year(s) Of Engagement Activity 2016
 
Description Presentation at ADRC-NI Away Day 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact The presentation provided an overview of an ADRC-NI project with the broad aims of (i) assessing the accuracy of address information in the health card registration system in Northern Ireland with regard to the operational and statistical use of these data, and (ii) investigating the extent of and factors associated with non-registration for a health card among migrants and other minority ethnic groups. Useful feedback regarding the analytical approach to be undertaken was obtained from attendees.
Year(s) Of Engagement Activity 2016
 
Description Presentation at ADRN Research Meeting May 28-29th: 2. Analysis of merged Social Security Benefits and HMRC data 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Participants in your research and patient groups
Results and Impact Became acquainted with a like minded groups of researchers from across the UK

Raised awareness of the potential for accessing more 'discrete' governmental datasets.
Year(s) Of Engagement Activity 2015
 
Description Presentation at ADRN research conference, 28th May 2015 (DW) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact Talk sparked questions and discussion afterwards.

Enquiry from another researcher about access to the datasets described in the talk.
Year(s) Of Engagement Activity 2015
 
Description Presentation at ARDN Research Meeting May 28-29th: On fish and bicycles. Academia and Government research: Recent ADRC-NI experiences and a personal reflection 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Participants in your research and patient groups
Results and Impact This particular talk stimulated much discussion both during and after the session. It was followed by an opportunity to participate in a wider related study.

Too early to say yet...
Year(s) Of Engagement Activity 2015
 
Description Presentation at Impact Conference Greenwich 8-9th Sept: Research in ADRC-NI: Rumsfeld revisited 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Participants in your research and patient groups
Results and Impact Sparked questions and discussion.

The workshop and wider discussions helped move the agenda on outcomes monitoring and impact forwards.
Year(s) Of Engagement Activity 2015
 
Description Presentation at Queen's University Belfast - {AK} 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Postgraduate students
Results and Impact "Physical activity and mental well-being in women". Presentation at the Physical Activity Seminar Series at the UKCRC Centre of Excellence for Public Health, Queen's University Belfast. 13/06/14. About 25 people attended, mainly PG students and academics. Lively discussion about the study results.

Discussions about research collaboration.
Year(s) Of Engagement Activity 2014
 
Description Presentation at RSS event 8/10/2015: ADRC-NI Research and successes and challenges 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact The talk stimulated further discussion of the difficulties surrounding data access and of the difficulties of governmental departments.

Wider recognition that some of the administrative data held in governmental departments is in dire condition, but that there is potential for the academic community to offer solutions.
Year(s) Of Engagement Activity 2015
 
Description Presentation at SLLS Society for Longitudinal and Life Course Studies annual conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Postgraduate students
Results and Impact presentation ' Volunteering and mortality risk: A partner-controlled quasi-experimental design' at SLLS Society for Longitudinal and Life Course Studies conference
Year(s) Of Engagement Activity 2016
 
Description Presentation at Society for Longitudinal and Lifecourse Studies conference, Dublin, 28th October 2015 (DW) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Talk followed by several questions that highlighted useful areas for future research.

None observed yet.
Year(s) Of Engagement Activity 2015
 
Description Presentation at Society for Social Medicine meeting 2-4th Dublin: Caregiving is associated with a lower risk of suicide: a longitudinal study of almost 200,000 caregivers 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Participants in your research and patient groups
Results and Impact Stimulated discussion and questions during and after the session.

Asked to become external assessor for the UCD MPH programme
Year(s) Of Engagement Activity 2015
 
Description Presentation at UKCRC Centre of Excellence in Public Health NI Away Day, Newcastle(NI), 25th November 2016 (DW) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact Talk showcasing the Administrative Data Research Centre - Northern Ireland to an audience of potential users.
Three MSc students expressed an interest in the possible use of the ADRC-NI during their studies.
Year(s) Of Engagement Activity 2016
 
Description Presentation at UKCRC Public Health Research Centres of Excellence conference, Edinburgh, 19th November 2015 (DW) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Talk followed by discussions with colleagues that highlighted useful areas for future research.
Year(s) Of Engagement Activity 2015
 
Description Presentation at a mental health data workshop 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Third sector organisations
Results and Impact Presented on my research at the first in a series of data research workshops in partnership with DetailData. The aim of was for VCSE sector groups to learn more about both open and administrative data and how it can be used in their work, and for researchers to make connections with VCSE groups doing work at grassroots level on similar topics to their research.
Year(s) Of Engagement Activity 2017
 
Description Presentation at the Administrative Data Research Network Conference, Edinburgh 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact I presented on my published paper, as part of a special Calls-Hub associated session. The session was recorded and publish on youtube.
Year(s) Of Engagement Activity 2017
URL https://www.youtube.com/watch?v=csTnA9ummuU
 
Description Presentation at the British Society for Population Studies annual conference (BF) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact The presentation was based on research using the Northern Ireland Longitudinal Study, specifically investigating the accuracy of record-level address information (represented by an anonymised property reference number) in the health-card register. This analysis is similar to that in a proposed ADRC-NI project I am involved with, which is currently being developed. I obtained useful feedback from audience members that can be applied when conducting the analysis for the ADRC-NI project in due course.
Year(s) Of Engagement Activity 2015
 
Description Presentation at the British Society for Population Studies conference, Winchester, 14th September 2016 (DW). 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Presented on ADRC-NI project: "Factors influencing representation in Higher Education". Discussions with audience members after the talk highlighted interest in the work and lines for future research.
Year(s) Of Engagement Activity 2016
 
Description Presentation at the Society for Longitudinal and Lifecourse Studies Conference, Bamberg, 8th October 2016 (DW). 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Presented on ADRC-NI project: "Factors influencing representation in Higher Education". Some useful suggestions for future lines of work from audience members.
Year(s) Of Engagement Activity 2016
 
Description Presentation at the annual ADRN research conference (BF) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact The presentation was based on a proposed ADRC-NI research project, broadly aiming to assess the quality of address information in key administrative data sources in Northern Ireland. By communicating the research plans to others, I was able to receive beneficial feedback on methodology and strengths/limitations associated with the data sources of interest.

I became aware of similar research planned within the ADRC-E. Consequently, there is scope for collaborative work being undertaken, which will benefit the proposed research and provide scope for maximising impact.
Year(s) Of Engagement Activity 2015
 
Description Presentation at the most recent Population Sciences and mental Health Services Recognised Research Group meeting 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other audiences
Results and Impact I am a member of the Population Sciences and mental Health Services Recognised Research Group at Ulster University, which meets on a monthly/bi-monthly basis to discuss collaborative research in population and mental health research. The group has members from across the University from a range of disciplines and a key interest of many of the members is in the use of administrative data. at he most recent meeting in Januray 2017, I (along with colleagues from ADRC_NI) gave a talk providing a progress update on ongoing projects within ADRC-NI. The presentation prompted a lengthy discussion about future collaborative research ideas within ADRC-NI.
Year(s) Of Engagement Activity 2017
URL https://www.ulster.ac.uk/research/institutes/psychology/research/population-health-sciences-and-ment...
 
Description Presentation of the use of administrative record data in research in Finland at ADRC/CoE seminar series (AK) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact Talk sparked lively discussion about register-based research in Finland and in the UK (cross-country comparisons)

Possibility of new research collaborations
Year(s) Of Engagement Activity 2015
URL https://twitter.com/adrc_ni/status/590105751407984641
 
Description Presentation on the importance of Administrative Data in research for the Department of Health March 2018 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Invited talk at the Department of Health, Stormont Estate 14th March 2018, Belfast on the importance of Administrative Data in research. Approx 50 Department staff attended with an interest in using existing administrative data sources to answer questions which could inform the development of policy in Northern Ireland. The staff requested a future talk in the coming months expanding upon the detail of the data available.
Year(s) Of Engagement Activity 2018
 
Description Presentation on the migrant mental health project (linkage study) to staff at NICEM (Ciara Close) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact Strengthened our existing collaboration with NICEM

Possibility to conduct focus groups among professionals working with migrants
Year(s) Of Engagement Activity 2015
 
Description Presentation to 'Dementia Lab' 16th June: 'The utility of administrative and other data' 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Stimulated much questions and discussion

Team members were asked to assist in the report writing
Year(s) Of Engagement Activity 2015
 
Description Presentation to 'QUANT' the Improving Childrens Lives - Special interest group on Quantitative Methods. 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Participants in your research and patient groups
Results and Impact Increased requests for more meetings for more information and to discuss potential for research collaborations

1. Active dialogue about two potential research strands
2. Decision that better and faster information on data (and esp data relating to educational attainment) is required. this resulted in faster response from data custodians.
Year(s) Of Engagement Activity 2015
 
Description Presentation to ADRN Board, 21st July: A view from ADRC-NI 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Participants in your research and patient groups
Results and Impact Some discussion stimulated

Offer to present at the Approvals Panel
Year(s) Of Engagement Activity 2015
 
Description Presentation to Administrative Data Forum 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact The audience was senior civil servants in the Governmental Departments that we want to engage with; ie we want to them about the potential and utility of the ADRN; to get them to start thinking about making their data available for research; and to start thinking of how the ADRC might be able to answer some of their policy-related questions

Some departments requested a one-to-one meeting to discuss the potential for sharing their data.
Year(s) Of Engagement Activity 2014
 
Description Presentation to Centre for Excellence in Public Health International Scientific Advisory Committee 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact Presentation to an audience of international leading academics on the potential and uses of administrative data in Northern Ireland
Year(s) Of Engagement Activity 2016
 
Description Presentation to DoH & Public Health England meeting on environmental health 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Presentation of a study examining the effects of exposure to aircraft noise on mental. Three aims: (I) to report on the study, (ii) to demonstrate the utility of administrative data to answer policy relevant questions and (iii) to grandstand the ADRC-NI
Year(s) Of Engagement Activity 2017
 
Description Presentation to MQ: Mental Health Data Science Meeting Swansea University 9th March 2016 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact MQ is a new charity with a primary focus on mental health and one of their strands relates to 'bid data' and the use administrative data; Northern Ireland has not been represented at this meeting to date. My aim was to make connections/collaborations and to showcase some of the work we have been undertaking in NI.
Year(s) Of Engagement Activity 2016
 
Description Presentation to Medical Leaders Forum to increase access to data 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Presentation to the Medical directors Forum in order to facilitate wider policy-related research based on the data held within the Honest Broker Service
Year(s) Of Engagement Activity 2017
 
Description Presentation to QA (Quality Assurance) Breast Screening Programme 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact This presentation (28th Oct 2018) was ostensibly about 'Mental health and uptake of breast screening', however, I widened the talk to include most of our findings in order to demonstrate to this influential audience the utility of record linkage. It was well received, and attracted many questions and potential for further study.
Year(s) Of Engagement Activity 2018
 
Description Presentation to Researchers about Administrative data: 'Connected Data 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Participants in your research and patient groups
Results and Impact Stimulated much discussion about the research potential of increased access to administrative data

Increased requests for information about data availability and to join different research groups in the University.
Year(s) Of Engagement Activity 2015
 
Description Presentation to SHELs team 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Participants in your research and patient groups
Results and Impact A decision was made to prioritise our research within the SHELs framework.

Further meetings to discuss progressing the research proposal.
Year(s) Of Engagement Activity 2015
 
Description Presentation to School of Psychology 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Schools
Results and Impact Sparked questions and discussion afterwards in terms of data availability for specific projects that attendees had in mind for development.

Generated interest in developing ADRN proposals. Following this talk a number of proposal have been developed for submission to the ADRC-NI
Year(s) Of Engagement Activity 2015
 
Description Presentation to the British Isles Longitudinal Studies meeting: Is caregiving bad for your health? 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Participants in your research and patient groups
Results and Impact Challenged thinking about the balance between the hazards and salutogenic effects of caregiving.

Much discussion about the potential of record linkage and use of administrative data to answer research questions.
Year(s) Of Engagement Activity 2014
 
Description Presentation to the Honest Broker Service 9th May 2018 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact This presentation was about the workings and governance of the ADRN and the ADRC-NI. This was especially important in enabling access to health and social services data for research purposes within the ADRC-NI.
Year(s) Of Engagement Activity 2017
 
Description Presentations (2) at the ADRN research conference, London, 3rd June 2016 (DW). 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Presentations on two ADRC-NI projects (Higher Education and Ophthalmic health). Several questions from the audience highlighting interest in the subjects and especially the speed of access to data in ADRC-NI.
Year(s) Of Engagement Activity 2016
 
Description Presntation to HSC (Health & Social Care) Information and Management Master Classes as part of the AGILE Course 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact My presentation was entitled 'The ADRC, NILS and data linkage' and covered all aspects of record linkage in NI and the potential for exploration and policy evaluation. It was scheduled to last about one hour but overran by about 30mins with questions and discussion.
Year(s) Of Engagement Activity 2018
 
Description Public Engagement Working Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Participated in a working group for public engagement professionals at various faculties/offices at Queen's University to discuss best practices, potential collaborations, news in our field.
Year(s) Of Engagement Activity 2018
 
Description Q-step seminar series: Introduction and discussion 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Participants in your research and patient groups
Results and Impact Audience od social scientists were more aware of the potential of using routine data to answer some important research questions.

I had an offer to come and give a seminar at the School of Sociology & Social Policy
Year(s) Of Engagement Activity 2015
 
Description REPORT 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact We produced a report entitled: A pilot ADRC-NI project linking social security benefits and Census data to understand the health and social needs of disability benefits claimants: A Report to the Department for Communities (DfC). This was a collaborative project from Queen's University Belfast, Ulster University and the Department for Communities

This was a very detailed study arising from a linkage of DLA records and Census records. We are awaiting a response from Government.
Year(s) Of Engagement Activity 2018,2019
 
Description Research Talk - School of Psychology, Ulster University 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other audiences
Results and Impact Research talk for the School of Psychology at Ulster University. Outlined three of the studies currently being undertaken and/or prepared by the ADRC-NI research group at UU. The purpose of the talk was to raise awareness with current Lecturing and Research staff (incl PhD students) at the school of Psychology of the possibilities offered by ADRC-NI and to discuss how we as a team can support staff to prepare research proposals in the ADRC-NI framework.
Year(s) Of Engagement Activity 2017
 
Description Save the children - availability and potential use of administrative data to report on deprivation and educational outcomes 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Third sector organisations
Results and Impact Project scope and development workshop; linkaged between key ADRC-NI research leads in the area of Education and third sector organisaion,
Year(s) Of Engagement Activity 2018
 
Description Seminar on 'big data' to the University Connected Health initiative - {DOR} 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact Seminar related to 'big data' in general and more specifically about the Administrative Data Research Centre. Lots of discussion and questions followed.

Raising knowledge and awareness
Year(s) Of Engagement Activity 2013
 
Description Seminar on the Northern Ireland Baby Hearts Study 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact The purpose of the seminar was to report the preliminary results found in the Northern Ireland Baby Hearts Study. The study was conducted in two phases - the first phase was a case-control study and the second phase was a data linkage study using administrative data. The seminar was open to the mothers who had participated in the study, health professionals and academia. Around 160 people attended the seminar on 28th April 2017. A second meeting was arranged in October 2017 specifically for parents and the study findings were presented in more lay terms with plenty of time for discussion. Parents reported that they were happy with the meeting as they were able to present their views. The parents also suggested further research questions for future studies (around 30 parents attended).
Year(s) Of Engagement Activity 2017
 
Description Seminar/ launch of research on public attitudes to data sharing in Northern Ireland 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Third sector organisations
Results and Impact 60 people attended a seminar launch event for the Northern Ireland Life and Times Survey research into public attitudes to data sharing in Northern Ireland, a partnership with the ADRC-NI. Speakers included Professor Helen Dolk (ADRC-NI and Ulster University), Professor Gillian Robinson (ADRC-NI and Ulster Unviersity), and Roy McClelland, Chair of the Health and Social Care Privacy Advisory Committee. The presentations on the research and its implication for policy, particularly around the use of data for research, sparked questions and discussion from an audience that included third sector organisations, graduate students, and local government (councils) representatives. Several subsequent presentations and events have been suggested on the back of this research event.
Year(s) Of Engagement Activity 2016
URL http://www.ark.ac.uk/Seminars/
 
Description Socio-demographic and household characteristics of unmarried mothers as risk factors for low birthweight and infant death in Northern Ireland 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact International Conference for Administrative Data Research 2018: poster presentation on Socio-demographic and household characteristics of unmarried mothers as risk factors for low birthweight and infant death in Northern Ireland
Year(s) Of Engagement Activity 2018
URL https://creativecommons.org/licenses/by-nc-nd/4.0/deed.en
 
Description Stormont Knowledge Exchange Seminar Series (KESS) - Area of residence and admissions to care homes for older people: data linkage study of factors associated with entry to care 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Talk sparked question and discussion afterwards

Increased desire amongst researchers to actively engage with this means of accessing senior politicians and policy makers.
Year(s) Of Engagement Activity 2015
 
Description TV event for promotion of NICOLA - {DOR} 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Media (as a channel to the public)
Results and Impact Question and answer session about the NICOLA study for the main TV station in Northern Ireland

Increased knowledge of and discussion about NICOLA amongst population
Year(s) Of Engagement Activity 2014
 
Description The Communication - article - {DOR} 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Media (as a channel to the public)
Results and Impact Detailed discussion with interviewer

none noted
Year(s) Of Engagement Activity 2013
 
Description Update to ADRN Board on ADRC-NI progress and activities 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Update to ADRN Board on ADRC-NI progress and activities: demonstrating what is possible ...
Year(s) Of Engagement Activity 2016
 
Description Video Twitter Invite to Event 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact A video invitation was produced for the KESS (Stormont seminar event). This invitation was packaged and branded ADRC-NI and tweeted out. Before the invitation was sent, PECO noted that the KESS seminar registration was half full. Following the tweet/retweeting, the KESS was fully booked for the January 31, 2018 event. This particular video tweet saw a dramatic increase in reach/notice/clicking (more than 4500 impressions and over 500 clicks) compared to regular text/photograph tweeting (averaging up to a few hundred impressions and a few clicks). This indicates successful engagement/increase in public awareness.
Year(s) Of Engagement Activity 2018
 
Description Visit to Data Commissioner for Scotland and Northern Ireland 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact The purpose of this meeting was to get clarity about the potential for linking survey data without the respondents permission. If feasible this could have marked implications for the ADRN
Year(s) Of Engagement Activity 2015
 
Description Visit to Department of Social Research Sociology; Helsinki University, Finland 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Postgraduate students
Results and Impact The Department of Social Research Sociology; Helsinki University, Finland is one of the leading social sciences institutions in the world and this was an opportunity to tell them about the newly formed ADRN. It was also an opportunity to cement collaborations between our two centres.
Year(s) Of Engagement Activity 2015
 
Description Workfocus - policy focus - Northern Ireland Commissioner for Older People and ADRC-NI 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Policymakers/politicians
Results and Impact Northern Ireland Older Peoples Commissioner - policy team and ADRC-NI - focused workshop.
Year(s) Of Engagement Activity 2016
 
Description Workshop for UU School of Education 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Schools
Results and Impact I was invited to deliver a workshop outlining the work of the ADRC-NI and specifically the potential of the ADRC-NI in facilitating Education based research projects. Attendees included UU staff genuinely interested in developing Education Research proposals using administrative data. I gave a presentation which was followed by in-depth discussion and questions.

Attendees to follow up on this talk with details of specific projects they would like to take forward through the ADRC-NI.
Year(s) Of Engagement Activity 2015
 
Description Workshop organised by the Administrative Data Research Centre-NI, the Northern Ireland Council for Voluntary Action (NICVA) and 'The Detail' with Community and Voluntary Sector Carers groups 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact This workshop was the first in a series of workshops organised by ADRC-NI, NICVA and 'The Detail' designed to raise awareness of the Administrative Data Research Network and its research potential. The workshop, which took place in February 2017 invited community and voluntary sector carers groups from across Northern Ireland and border counties. As part of the workshop event, our ADRC-NI public engagement and communication officer (PECO) gave an overview of the ADRC-NI and the Centre's key emphasis on public engagement. I gave a 40 minute presentation summarising current ADRC work on carers and outlined key data sets that might be of interest. My presentation was following by an in-dept discussion about potential future collaboration with ADRC-NI and the sector.
Year(s) Of Engagement Activity 2017
URL http://www.nicva.org/event/data-workshop-on-carers
 
Description Workshop with a group of Dutch Healthcare management students and professionals 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact The purpose of the event was to present an overview of the work of the ADRC-NI and wider ADRN and talk about the implications of ADRN work in the context of influencing healthcare policy and practice in NI. 25 healthcare management students (also healthcare professionals) visited NI to learn about the structure of healthcare and healthcare management and practices. The ADRC-NI team from UU gave a series of presentations on ongoing ADRC work in the area of mental health in particular, which led to in-depth discussion in relation to healthcare in NI and how it compares with other countries.
Year(s) Of Engagement Activity 2018