A Shared Space and a Space for Sharing: A Transdisciplinary Exploration of Online Trust and Empathy

Lead Research Organisation: University of Sheffield
Department Name: Information School

Abstract

What do people choose to share online when they find themselves in difficult and precarious circumstances? What can we learn from this about how trust and empathy are established and maintained in online relationships? And what can all of this tell us about sharing, trust and empathy in the offline world? These questions lie at the heart of this innovative research project looking at the online relationships and behaviour of people affected by natural disasters; life-threatening or terminal disease; organ donation; emotional distress and suicidal thoughts; drug use and addiction. Why are we looking at these particular situations? This is because people in these circumstances are extremely vulnerable, and some of them may be seeking information support or help that could make the difference between life and death. That means it may be necessary to establish trust and empathy very quickly to make that difference. In these extreme contexts, people may end up over-sharing, or equally may be disadvantaged by not sharing enough. At the same time, others online need to know when they are responding to genuine distress. Understanding the way that trust and empathy works in these circumstances may help to transform the way in which resources and aid are distributed, locally and globally, and enhance individual and community resilience. But such changes may have both good and bad consequences, so working through the ethics of all this, at personal, global, institutional and governmental levels, will also be at the core of our project.
The project brings together researchers from a wide range of backgrounds: sociology, international relations, computer sciences, health informatics, philosophy, media studies and bioethics. By working together we hope to produce new 'transdisciplinary' understandings of the issues of sharing, empathy and trust online - in other words, insights that would not be possible using only a single disciplinary lens. All of this will be challenging, but we have begun to exchange ideas and are confident that we will generate findings and perspectives that are genuinely novel. Several themes clearly cut across our disciplinary boundaries and this has helped us to structure our approach to the individual case studies. Our overall approach has been shaped by the notion of 'Facet Methodology'. This suggests that, like light being refracted differently through the various faces of a gemstone, we can understand more about a social problem by viewing it from a number of different angles and perspectives.
As part of the research, we will be accessing online data from a wide range of sources and interacting with a variety of organisations, including UK charities, international NGOs and health providers. The charity, The Samaritans, will be directly involved as a project partner. The outputs from the research will not be aimed solely at academic audiences and we will be working hard to make them accessible and valuable to this wider set of stakeholders as well as to the general public.

Planned Impact

Who will benefit from this research?
Beneficiaries of this research will include policy-makers in national and international government and non-government agencies. Within the UK, the governmental beneficiaries include DSTL, the Home Office, the Foreign and Commonwealth Office, the Cabinet Office, and the Environment Agency, the Department of Health and the NHS and NHS Blood and Transplant. Within the public and third sector, the Citizens Advice Bureau, MacMillan Cancer Support and Marie Curie Cancer Care, as well as similar organisations providing support to people in extreme circumstances. The organisation, Samaritans, is a project partner and has a particular interest in the role that trust and empathy play in their email service and in peer communication within social media. At an international level, organisations such as the Overseas Development Institute (ODI), the United Nations Office for Disaster Risk Reduction, International Committee of the Red Cross (ICRC), the World Health Organisation (WHO), Organwatch, Oxfam and other relevant UN and NGOs agencies to the European Monitoring Centre for Drugs and Drug Addiction (EMCDDA) will be beneficiaries of the research. Given the popularity of, and interest in, the Web as a means of communication, and social media in particular, the results from the project will be of interest to the wider public, and to specific groups, e.g., people who have experienced extreme and life-threatening situations or conditions. In addition, within the commercial private sector, social media platform providers (such as, Twitter, Facebook, and YouTube, etc.) and mobile communications providers, e.g., Vodafone, will be interested in how their products/services are used for sharing, within the case study contexts, and more generally.
How will they benefit from this research?
The research will develop a better understanding of how people in extreme circumstances can be supported in online environments and the role of trust and empathy in this. This will be of value to government and non-government agencies that provide support to people experiencing natural disasters, drug addiction, life-threatening or terminal conditions and people contemplating suicide. It will enable them to develop and increase the effectiveness of their services and contribute to the nation's health, well-being and enhance quality of life, particularly among these vulnerable groups. In addition, and as part of WP6, a partner-specific output will be delivered to Samaritans; this will help inform the development of their current and future services and interventions online. The project also has the potential to impact on the working practices of a wide range of professionals engaged in the reduction of harm and amelioration of harms, or potential harms suffered by people caught up in variety of dangerous, risky or life-threatening situations.
During the project life-cycle (short/medium term), we will offer to talk or debate at public events, e.g., the Cafe Scientifique network, the Salon network and, at an international level, through liaison with the British Council. We will approach local public venues to offer a small exhibition. In the medium/long term, the project will offer input into global academic links, e.g., the U21 Global Issues Programme, a multi-disciplinary programme offered by the Universitas 21 network, will offer input into global citizenship and global issues dimension of the school curriculum, e.g., via the Global Learning Programme. The Samaritans organisation has also indicated its willingness, through its access to decision-makers, to support the project in ensuring impact on public policy and other service providers.
 
Title Photographic exhibition relating to the 'A Shared Space and a Space for Sharing" project. 
Description During 2016, we worked with professional photographer, Anton Want, to develop a photographic exhibition based on the findings from the 'A Shared Space and a Space for Sharing' project. The exhibition comprised 12 (2 portraits per Work Package) A0-sized images, which were portraits of people, which had text superimposed containing messages from the Work Packages. In addition there were A0 posters summarising the project as a whole, and the individual Work Packages. The exhibition was displayed for 2 weeks during the ESRC Festival of Social Science in November 2016 in the Winter Gardens in the centre of Sheffield. The Winter Gardens has a very high footfall, hundreds of people passing through each day. The exhibition attracted the attention of the local media, and the Sheffield Star newspaper published a photo of Peter Bath and Anton Want against the backdrop of the exhibition in the Winter Gardens. Following this exhibition the exhibition was displayed further in Lincoln, Sheffield and London in 2017. 
Type Of Art Artistic/Creative Exhibition 
Year Produced 2016 
Impact We are currently evaluating the impact of the exhibition on the views of the public, based on feedback forms and the comments book at the exhibition. 
URL http://www.space4sharingstudy.org/?p=945
 
Title Play entitled: A Space for Sharing 
Description During 2016, we worked with the DeadEarnest Theatre Company, who developed a play based on the findings from Work Package 3 of the 'Space for Sharing' project. The play featured five women diagnosed with breast cancer and how they used an online health forum to share information, experiences and emotions during their illness. The play was followed by a discussion of the issues with members of the public. The play has since been performed as part of the Dying Matters Awareness Week (Sheffield, May 2017), at the end of project conference (London, May 2017) and at the Cavendish Cancer Care AGM (November 2017). 
Type Of Art Performance (Music, Dance, Drama, etc) 
Year Produced 2016 
Impact We collected feedback forms from the public and a currently evaluating these for how they informed the views of the public. 
 
Description The project examined how people in extreme circumstances share information, experiences and emotions in different online environments and the role of trust and empathy in the process of sharing. We defined being in extremis as situations in which a person experiences a heightened sense of something critically important being at stake (this might be their life, but could also be their health, well-being or something more nuanced, such as their previously anticipated lifespan. The level of extremis can fluctuate over time and even one's experience of being in extremis may vary, even though the underlying situation might not change. Using online environments to share information, experiences and emotions, (sometimes leading to the sharing of physical goods in the offline world), can provide support to people who are in extreme circumstances, and this can offer advantages over offline provisions in terms of timeliness and extending social networks. Being able to share in online spaces can enable individuals to gain access relatively easily to different forms of knowledge and expertise: this offers the potential for different perspectives to be voiced and heard, both by people who are in extreme circumstances and those who are trying to help others in these situations. However, as well as the benefits associated with sharing information, emotions and experiences online, there are also some corresponding risks, and trust plays an important role in sharing. Being in extreme circumstances, and needing information and support from other people, gives people a reason to share themselves; however, trust gives people the confidence to do so. The structures and norms of specific online spaces can help to promote this trust, although the needs for privacy, safety and security need to be balanced with the desires and expectations of individuals to express themselves freely, without undue intervention or monitoring. Further key findings are presented in the overall project report under the Work Packages. From a methodological point of view, a key challenge for transdisciplinary research is the extent to which knowledge generated by multiple research areas and disciplinary approaches can be effectively integrated for the exchange of information and synthesis of findings. The transdisciplinary process that we developed throughout the project was designed to encourage openness among the researchers, stimulate conscious reflection, and allow for disagreement and different perspectives, in order for information and knowledge to be exchanged. Early in the project we held collaborative discussions during project meetings and all of the researcher teams contributed to the exchanges to examine the different disciplinary perspectives of the essential concepts within the project. These extensive discussions enabled a more nuanced and shared understanding of the central concepts to emerge. In addition to the academic outputs from each Work Package, we have now submitted a paper for publication from the Transdisciplinary work, co-authored by all the investigators and researchers involved in the specific work packages.
Exploitation Route At an academic level, the individual WP leads are continuing to develop their programmes of research through grant applications and research publications. At a non-academic level, we envisage that the research outcomes will be taken forward at an individual work package level, as well as for the project overall. For the overall project, we anticipate that one of the EMoTICON programme sponsors, Dstl will be interested in the overall project findings, and we look forward to sharing our results with them through the EMoTICON network programme of activities. For the individual WPs, Brownlie (WP6) continues to collaborate with Samaritans UK and is looking to make recommendations relating to social media guidelines for discussion of deaths by suicide. In WP5, Boothroyd is exploring possibilities for further collaboration with colleagues at European Centre for the Monitoring of Drugs and Drug Addiction, in Lisbon. In WP3, Bath is continuing to collaborate with and share findings with Breast Cancer Care and the Motor Neurone Disease Association. The play that was developed in conjunction with DeadEarnest Theatre Company, based on the findings of WP3, will be performed further to audiences of practitioners, charitable organisations and the general public.
Sectors Communities and Social Services/Policy,Digital/Communication/Information Technologies (including Software),Healthcare,Other

URL http://www.space4sharingstudy.org/
 
Description Summary of how WP0 findings have been used: the transdisciplinary reflections from the project were presented to other academics and various key stakeholders at the end-of-project conference (Wellcome Trust, May 2017). A project photographic exhibition was commissioned and displayed to the public for 2 weeks in the Winter Gardens, Sheffield, as part of the 2016 ESRC Festival of Social Sciences. The exhibition was then displayed to the public in Lincoln, Nottingham and London (two venues). The findings from the analyses of the individual Work Packages have been of interest to external organisations, e.g., Samaritans UK (WP6), Breast Cancer Care (WP3), Motor Neurone Disease Association (WP3), European Centre for the Monitoring of Drugs and Drug Addiction (WP5) and Good Things Foundation (WP3). Summary of how WP3 findings have been used: regular updates of progress and findings have been communicated with Breast Cancer Care and the Motor Neurone Disease Association through email and visits to the organisations and at the MND Association annual conference. Further work to support both organisations in how they can use the findings is ongoing. The findings from WP3 were developed into a play 'A Space for Sharing' which was performed at the 2016 Festival of the Mind in Sheffield to an audience of 60-70 members of the public. Since then it has been performed at the Dying Matters Awareness Week, at the end of project conference at the Wellcome Trust, and at the Cavendish Cancer Care Annual General Meeting (2017). Most recently, the play was performed at a workshop for >30 healthcare and professionals in South Yorkshire as part of the ESRC Festival of the Mind (November 2018). Further performances are planned, including a proposed performance of the play with Breast Cancer Care in 2019. In March 2019, an article entitled "Online Health Forums for people living with breast cancer and other health conditions" was published by Peter Bath and Sarah Hargreaves in 'The House' magazone. The House magazine is "Parliament's own" weekly publication, placed in the pigeon-hole of every member of Parliament and Peer in Westminster. Totally apolitical and answerable to a cross-Party editorial board, The House carries exclusive high profile interviews, unique articles from Parliamentarians and policy information. The findings from WP3 have also been developed into a series of information sheets that have been distributed to individuals and organisations providing support to people with specific health conditions, e.g., breast cancer. The information sheets are four pages long and provide advice and information for people who are considering using online health forums and for health care professionals who are sign-posting patients to these resources. A further version of the patient information sheet has been prepared in collaboration with Breast Cancer Care and further version for health care professionals is under developemnt. Summary of how WP4 findings have been used: Moorlock's 2015 paper was the inspiration for a BBC Radio Four documentary called 'The Organ Beauty Pageant', broadcast on 2nd May 2017. Moorlock provided advice to the show's producer on the ethical issues associated with using social media to find donors, who acknowledged that the published paper was the impetus for the documentary. Moorlock & Draper (2018) was picked up by a number of news outlets in the UK and North America, resulting in an Altmetric score of 98 (placing it in the top 5% of all research outputs scored by Altmetric) (https://wiley.altmetric.com/details/34358826 ). The ELPAT (Ethical, Legal and Psychosocial Aspects of Organ Transplantation of the European Society of Transplantation) Living Donation Working Group is undertaking work exploring solicitation of living donation. Moorlock is leading on this, and will be discussing at the next meeting of the Working Group (in 2019). Summary of how WP5 findings have been used: Boothroyd met twice with Paul Griffiths (Scientific Director) and Andre Noor (Head of Section) at the European Centre for the Monitoring of Drugs and Drug Addiction (EMCDDA) in Lisbon to discuss project and findings. Some of the research data from this WP was shared with staff at EMCDDA and informed their own research interests and projects. The WP led to Dave Boothroyd's personal invited participation in a multi-agancy (police, probation services, drug policy/ lobby organisations conferences, such as ESRC-funded seminar series on 'New Drugs' held at Univ of Kent, and keynote address at Theorizing the Drug War' conference at Univ of Essex Centre for Law and Human Rights. Summary of how WP6 findings have been used: the key output has been the publication of a full research report for Samaritans' internal use (Brownlie and Shaw, 2016), an abbreviated online version of which was published by the organisation (Brownlie and Shaw, 2017). On request, the full confidential document was also shared with Dstl in July 2017. In addition, a research briefing has been published virtually and in hard copy by the Centre for Research and Relationships (CRFR) (Brownlie, 2017). The report which contained an endorsement of the research from the Chief Executive of Samaritans was also circulated by CRFR to 500 individuals and organisations in the UK and internationally, many of them leading organisations involved in the provision of online support. Using Twitter data collected as part of the collaboration between WP1 and WP6, Brownlie is currently working with several postdoctoral students on an article exploring the relevance for social media of media guidelines for reporting of death by suicide. This work will be shared with Samaritans on completion.
First Year Of Impact 2015
Sector Digital/Communication/Information Technologies (including Software),Healthcare,Government, Democracy and Justice
Impact Types Cultural,Societal,Policy & public services

 
Description A Space for Sharing project Advisory Panel Meeting 1
Geographic Reach National 
Policy Influence Type Participation in a advisory committee
 
Description A Space for Sharing project Advisory Panel Meeting 2
Geographic Reach National 
Policy Influence Type Participation in a advisory committee
 
Description Advisory Panel meeting - February 2017
Geographic Reach National 
Policy Influence Type Participation in a advisory committee
URL http://www.space4sharingstudy.org/?p=1030
 
Description Influence on Dstl: Sharing of confidential report on Samaritans research with Ministry of Defence research staff
Geographic Reach National 
Policy Influence Type Influenced training of practitioners or researchers
 
Description Influence on Masters Digital Sociology programme, Edinburgh University. Sharing of research briefing on provision of online support with Masters Programme students
Geographic Reach National 
Policy Influence Type Influenced training of practitioners or researchers
 
Description Publication of article on "Online Health Forums for people living with breast cancer and other health conditions" in "The House" magazine (March 2019)
Geographic Reach Europe 
Policy Influence Type Implementation circular/rapid advice/letter to e.g. Ministry of Health
URL https://www.politicshome.com/thehouse
 
Description Research briefing circulated to organisations involved in provision of online support
Geographic Reach Europe 
Policy Influence Type Influenced training of practitioners or researchers
Impact The research briefing was shared digitally and in hard copy to 500 organisations and individuals concerned with provision of emotional support online. The Chief executive of Samaritans UK responded to the report: 'Trust and empathy are fundamental to Samaritans service, and this study has reinforced how complex developing trust and empathy can be when providing emotional support through online services. The research provides a really useful insight into the differing perspectives of volunteers and callers around what empathy means and how it is experienced during online support and enables us to better understand how to provide effective online support to people in emotional distress' (Ruth Sutherland, Samaritans CE). Further follow up of research briefing planned for 2019.
 
Description Views of the public on how people in extreme circumstances share in information online.
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Influenced training of practitioners or researchers
Impact We are evaluating feedback forms and the comments book that were located with the 'Space for Sharing' exhibition and used for the 'Space for Sharing' play to gauge the response of the public to the exhibition and to understand how the exhibition has shaped people's views and attitudes. We are also aware that researchers and practitioners attended the play and discussed issues with the research team afterwards.
 
Description Digital Societies Network
Amount £1,500 (GBP)
Organisation University of Sheffield 
Sector Academic/University
Country United Kingdom
Start 11/2015 
End 11/2015
 
Description EMOTICON Project Network Small Grant
Amount £3,000 (GBP)
Organisation EMOTICON 
Sector Charity/Non Profit
Country United Kingdom
Start 04/2016 
End 05/2016
 
Description Economic and Social Research Council (ESRC)
Amount £113,347 (GBP)
Funding ID ES/M00354X/1 
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 01/2016 
End 03/2016
 
Description Festival of Social Sciences
Amount £1,420 (GBP)
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 08/2016 
End 11/2016
 
Description Festival of Social Sciences
Amount £500 (GBP)
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 11/2015 
End 11/2015
 
Description Festival of the Mind 2016
Amount £4,998 (GBP)
Organisation University of Sheffield 
Sector Academic/University
Country United Kingdom
Start 03/2016 
End 11/2016
 
Description Knowledge Exchange and Impact Opportunities (KEIO) Scheme
Amount £12,377 (GBP)
Funding ID FRT 250118-01CA 
Organisation University of Leeds 
Department Impact Accelerator Award
Sector Academic/University
Country United Kingdom
Start 02/2018 
End 01/2019
 
Description Loyola University, Chicago bursary to attend Digital Ethics conference
Amount $500 (USD)
Organisation Loyola University 
Sector Academic/University
Country United States
Start 11/2015 
End 11/2015
 
Description University of Edinburgh development fund to attend Cornell University social media lab
Amount £1,500 (GBP)
Organisation University of Edinburgh 
Sector Academic/University
Country United Kingdom
Start 06/2016 
End 08/2016
 
Title Interviews with online health forum users, moderators and personal bloggers 
Description This database is currently being developed and will contain interviews undertaken with people using online health forums, people who moderate these forums and people who have written a personal blog about their illness. We intend to make this database publicly available. 
Type Of Material Database/Collection of data 
Provided To Others? No  
Impact Not applicable. 
 
Title Matrix 
Description Assessing a set of Pre concepts and emerging themes from the research and comparing understanding of each of the disciplines in relation to the research data. 
Type Of Material Data analysis technique 
Provided To Others? No  
Impact None to date 
 
Title Social Media Datasets for Analysis User Response to Extreme Circumstances 
Description During this project we have collected various social media datasets to analyse online user response to extreme circumstances. By the end of the project we are planning to share these datasets. Among others, this will include the dataset of Tweets/news articles collected during the Ukraine conflict in 2014-2015. 
Type Of Material Database/Collection of data 
Year Produced 2016 
Provided To Others? Yes  
Impact We have shared this dataset with our collaborators from University of Maryland and Facebook as well as collaborators within the project. We are planning to make these datasets available for general public by the end of the project. 
 
Description Collaboration with Erasmus MC for Wellcome Themed Seed Funding application 
Organisation Erasmus University Medical Center
Country Netherlands 
Sector Academic/University 
PI Contribution Moorlock and Draper led the development of a grant application with researchers at Erasmus MC (Massey and Slaats). The proposed project will involve qualitative interviews with people who have responded to social media-based campaigns for directed kidney donations, with the aim of using these findings to inform a much larger follow-on project. We brought our expertise on organ donation ethics and the ethical issues arising from the use of social media to promote donation, and used this to inform study design and to write the application to Wellcome.
Collaborator Contribution Massey and Slaats contributed the initial idea for the proposed project, and an initial research protocol. Under the proposed work, they will undertake qualitative interviews with kidney donors in the Netherlands.
Impact We submitted a grant application under the Wellcome Trust's Themed Seed scheme. The result of this is pending.
Start Year 2015
 
Description Collaboration with Facebook and University of Maryland 
Organisation Facebook
Country United States 
Sector Private 
PI Contribution This collaboration yielded a working paper which is currently under review. In this paper, we are interested in understanding the interrelationships between mainstream and social media in forming public opinion during mass crises, specifi- cally in regards to how events are framed in the mainstream news and on social networks and to how the language used in those frames may allow to infer political slant and partisanship. we study the the dynamics of lingual choices for event framing and political agenda setting in mainstream and social media by analyzing a dataset of more than 40M tweets and more than 4M news articles from the mass protests in Ukraine during 2013-2014 - known as "Euromaidan" - and the postEuromaidan conflict between Russian, pro-Russian and Ukrainian forces in eastern Ukraine and Crimea. We focus on the most memorable terms - such as memes, symbolic labels, and personalities - which shaped the public discourse during the Ukraine crises and show that lingual choices in mainstream and social media can point to partisan behavior. We further exploit the state-of-the-art natural language Word2Vec representation to analyze at scale the linguistic markers which point to a particular political leaning in online media and show that political slant in news articles and Twitter posts can be inferred with high accuracy. These results contribute to the debate on the role of social media in fostering grassroots frames and partisan discourse during political crises and helps to uncover the extent to which the two media spheres - social and mainstream - compete or cooperate with each other as parts of a networked system of politicized frames and partisan language shaping the overall conversation
Collaborator Contribution We collaborated with Dr. Pryymak from Facebook London who contributed in collecting Twitter and news datasets and also in designing algorithms for identifying significant events in the data through natural language processing. We also collaborated with Ms. Lokot from the University of Maryland who - as an expert in media analysis during political crisis - provided crucial insights which assisted the design of machine learning models. She also significantly contributed in preparing the manuscript.
Impact This collaboration yielded a paper on analysis of social media and online news articles during the Ukraine crisis in 2014-2015.
Start Year 2015
 
Description Collaboration with Facebook and University of Maryland 
Organisation University of Maryland
Country United States 
Sector Academic/University 
PI Contribution This collaboration yielded a working paper which is currently under review. In this paper, we are interested in understanding the interrelationships between mainstream and social media in forming public opinion during mass crises, specifi- cally in regards to how events are framed in the mainstream news and on social networks and to how the language used in those frames may allow to infer political slant and partisanship. we study the the dynamics of lingual choices for event framing and political agenda setting in mainstream and social media by analyzing a dataset of more than 40M tweets and more than 4M news articles from the mass protests in Ukraine during 2013-2014 - known as "Euromaidan" - and the postEuromaidan conflict between Russian, pro-Russian and Ukrainian forces in eastern Ukraine and Crimea. We focus on the most memorable terms - such as memes, symbolic labels, and personalities - which shaped the public discourse during the Ukraine crises and show that lingual choices in mainstream and social media can point to partisan behavior. We further exploit the state-of-the-art natural language Word2Vec representation to analyze at scale the linguistic markers which point to a particular political leaning in online media and show that political slant in news articles and Twitter posts can be inferred with high accuracy. These results contribute to the debate on the role of social media in fostering grassroots frames and partisan discourse during political crises and helps to uncover the extent to which the two media spheres - social and mainstream - compete or cooperate with each other as parts of a networked system of politicized frames and partisan language shaping the overall conversation
Collaborator Contribution We collaborated with Dr. Pryymak from Facebook London who contributed in collecting Twitter and news datasets and also in designing algorithms for identifying significant events in the data through natural language processing. We also collaborated with Ms. Lokot from the University of Maryland who - as an expert in media analysis during political crisis - provided crucial insights which assisted the design of machine learning models. She also significantly contributed in preparing the manuscript.
Impact This collaboration yielded a paper on analysis of social media and online news articles during the Ukraine crisis in 2014-2015.
Start Year 2015
 
Description Collaboration with Good Things Foundation 
Organisation Good Things Foundation
Country United Kingdom 
Sector Academic/University 
PI Contribution Tom French (from Good Things Foundation) is on the Advisory Panel for the "A Shared Space and a Space for Sharing" project. In addition to the Advisory Panel meeting there have been a series of meetings between members of the project team (Peter Bath, Julie Ellis, Sarah Hargreaves and Melanie Lovatt) and Good Things Foundation to discuss ongoing collaboration between the project and their organisation.
Collaborator Contribution The following people from Good Things Foundation have been involved in the collaboration: Alice Mathers, James Richardson, Tom French and Anna Osbourne. Tinder Foundation helped to organise and deliver the stake-holder workshop organised as part of the ESRC Festival of Social Sciences (2015). James Richardson worked with the Sheffield team to develop the blog about the workshop for the Tinder Foundation web-site. Tinder Foundation led the submission of the Grant Application to EU Horizon 2020 programme for a new project called eHealth2020 (submitted February 2016). We are keeping in regular contact with Good Things Foundation in order to develop further knowledge exchange opportunities and to maximise the impact.
Impact 1. Stakeholder workshop (10/11/2015) organised jointly by "A Shared Space and a Space for Sharing" project and Good Thigns Foundation, as part of the ESRC Festival of Social Sciences (2015). 2. Grant Application to EU Horizon 2020 programme for a new project called eHealth2020 (submitted February 2016). 3. Tinder Foundation are developing a project that is evaluating a digital skills training programme for people with early-stage dementia and carers - Peter Bath discussed this project with members of good Things Foundation.
Start Year 2015
 
Description Collaboration with Pennsylvania State University 
Organisation Penn State University
Country United States 
Sector Academic/University 
PI Contribution We have contributed to this collaboration by working on a paper about studying behaviour of online users across different social networks. The paper is summarised below.
Collaborator Contribution Our collaborators contributing in this paper by both conducting experiments but also by jointly preparing the manuscript.
Impact This collaboration produced a working paper which is currently under review. As social networks have proliferated, users have started creating profiles on multiple social networks. In such a setting, we investigate whether the profiles of a user on different social networks are redundant expressions of the same persona, or whether users adapt their profiles on/to each platform. Using the personal webpages of 116,998 users on About.me, we identify and extract 275,430 profile images and 229,365 profile selfdescriptions on several major social networks including Facebook, Twitter, LinkedIn, and Instagram. By analyzing these dataset, first, we establish that different social networks have different norms, both in terms of the expected kind of profile images used, as well as in terms of the language found in self-descriptions in pro- files. Second, we show that users do indeed try to "fit in" to individual platforms, and therefore adapt to the norms of a platform: A random forest classifier trained on the specific norms of a given social network can robustly identify a user's profile image (i.e., 0.657-0.829 in AUC) or self-description (i.e., 0.608-0.847 in AUC) on one platform from other profiles of the user on other platforms. However, despite this fitting in, the different profiles of a user appear to still be recognisable as expressions of the same persona. We demonstrate this by showing that a random forest classifier can separate a user's profile on a platform from those of up to k = 10 other users on the same platform (i.e., AUC ˜ 0.7), by training on the original user's profiles on other social networks.
Start Year 2015
 
Description Collaboration with Social Media Lab, Cornell University 
Organisation Cornell University
Department Department of Communication
Country United States 
Sector Academic/University 
PI Contribution Visiting scholarship by J. Brownlie to the lab. Presentation to research team at Cornell and discussion of overlap in research interests.
Collaborator Contribution Employment of J. Brownlie as a visiting academic from June to August 2016
Impact Research Talk to Cornell Team July 2016
Start Year 2016
 
Description Meeting with a representative of The Angelus Foundation 
Organisation Angelus Foundation
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Meeting was to discuss issues around online information about drugs and drug use and to learn of more about the Foundation's perspective on popular knowledge of legal drugs from their perspective and experience of engagement with, especially, young people.
Collaborator Contribution They provided us with a perspective which was relevant our understanding of audiences for cautionary online communications around drug use.
Impact None
Start Year 2015
 
Description Meeting with representative of AddAction (Lincoln) 
Organisation Addaction
Department Young Addaction
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution This meeting took place as a result of the invitation of AddAction to the Participatory Medias Research Showcase Day at Lincoln University 15/07/16. It allowed us to learn about/ engage with the concerns of AddAction as a key player in the region with regard to its mission to assist individuals addicted to drugs, and for us to explain what we were researching around addictive drug use in so far as it features in the online drug cultures we are studying.
Collaborator Contribution Provided us with insight into the offline work the agency does.
Impact None
Start Year 2015
 
Description Performance of play to local hospice 
Organisation St Lukes Hospice
PI Contribution The research team worked with Dead Earnest theatre company and with St. Luke's Hospice to extend the play and to arrange the performances of the play at Clifford House.
Collaborator Contribution The collaboration involved performing the 'Space for Sharing' play on two separate occasions to staff at Clifford Hospice, part of St. Luke's Hospice in Sheffield. St. Luke's Hospice requested that the play be extended to include consideration of how people on the online health forum react and respond when one of the other users dies. St. Luke's contributed £1,000 to support the additional writing of the play and the performances.
Impact This collaboration is multi-disciplinary in that involved the researchers from Sheffield and the Deputy Chief Executive of St. Luke's Hospice, as well as nurses and clinicians from St. Luke's.
Start Year 2017
 
Description Research collaboration - Breast Cancer Care 
Organisation Breast Cancer Care
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution The research team in Sheffield have worked with Breast Cancer Care throughout the project. Bath and Ellis (Work Package 3) have visited the Breast Cancer Care to discuss collaborating on the project. We provide regular updates on progress with the project. We have held follow-up meetings in Sheffield. We will continue to work with Breast Cancer Care to undertake Knowledge Exchange Activities and to develop impact from our work throughout the study.
Collaborator Contribution The Breast Cancer Care supported the research by agreeing to our analysing the material posted on their online discussion forum. The Breast Cancer Care also posted a message on their discussion forum to help us recruit forum members to participate in semi-structured interviews. Moderators of the Breast Cancer Care discussion forum also agreed to take part in interviews to help the project team gain a better understanding of how people use the forums. Someone from Breast Cancer Care attended the public engagement event in Sheffield as part of the ESRC Festival of Social Science (November 2015).
Impact Poster / abstract at 17th International Symposium for Health Information Management Research (ISHIMR 2015).
Start Year 2014
 
Description Research collaboration - Motor Neurone Disease Association 
Organisation Motor Neurone Disease Association (MND)
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution The research team in Sheffield have worked with Motor Neurone Disease (MND) Association throughout the project. Bath and Ellis (Work Package 3) have visited the MND Association to discuss collaborating on the project. We provide regular updates on progress with the project. We have held follow-up meetings in Sheffield. We will continue to work with MND Association to undertake Knowledge Exchange Activities and to develop impact from our work throughout the study.
Collaborator Contribution The Motor Neurone Disease Association supported the research by agreeing to our analysing the material posted on their online discussion forum. The Motor Neurone Disease Association also posted a message on their discussion forum to help us recruit forum members to participate in semi-structured interviews. A member of MND Association attended the public engagement event in Sheffield as part of the ESRC Festival of Social Science (November 2015).
Impact Poster presentation and abstract at the annual Motor Neurone Disease Association conference in Orlando, USA (November 2015).
Start Year 2015
 
Description Samaritans UK 
Organisation The Samaritans
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution The Edinburgh research team have liaised with Samaritans throughout the research, carrying out interviews, observations and online analysis. They will continue to work with the organisation in relation to impact and knowledge exchange over the course of the project.
Collaborator Contribution Samaritans have been consulted about the research focus and design, participate with the research team from Edinburgh through the course of the project, and assist with dissemination. Samaritans will contribute through providing perspectives from service users and from our experiencing of supporting people, as well as knowledge of research related to extreme distress and suicide prevention. Samaritans will enable access to data, data extraction and cleaning, and assist in the recruitment of service users and volunteers to the research. The value in staff time (including overheads) is estimated as follows:
Impact Confidential emergent findings relating to Samaritans organisation shared with Samaritans in 2016. Research team feedback on Samaritans Digital Futures Report 2015
Start Year 2014
 
Description Social Innovation Group of the Personal Data and Trust Network: Digilatism and Crowd Justice Workshop 
Organisation DEMOS
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Exploration of the issue of online trust and social media
Collaborator Contribution Exploration of the issues of vigilantism in digital space, regulation of digital space, role of social media in politics today, the role of social media in perpetuating the culture of fear of 'others', the role of social media in facilitating collective action, the role of social media in changing/undermining existing social structures, the relationship between personal experience and public knowledge
Impact This project is at an early stage with only one workshop held so far. The next one is to be held in April with the aim of developing specific project ideas to take forwards towards potential funding bids. It is a multidisciplinary project involving Philosophy, Sociology, Computer Science, Literature, and Communication Science
Start Year 2015
 
Description Social Innovation Group of the Personal Data and Trust Network: Digilatism and Crowd Justice Workshop 
Organisation Loughborough University
Department School of the Arts, English and Drama
Country United Kingdom 
Sector Academic/University 
PI Contribution Exploration of the issue of online trust and social media
Collaborator Contribution Exploration of the issues of vigilantism in digital space, regulation of digital space, role of social media in politics today, the role of social media in perpetuating the culture of fear of 'others', the role of social media in facilitating collective action, the role of social media in changing/undermining existing social structures, the relationship between personal experience and public knowledge
Impact This project is at an early stage with only one workshop held so far. The next one is to be held in April with the aim of developing specific project ideas to take forwards towards potential funding bids. It is a multidisciplinary project involving Philosophy, Sociology, Computer Science, Literature, and Communication Science
Start Year 2015
 
Description Social Innovation Group of the Personal Data and Trust Network: Digilatism and Crowd Justice Workshop 
Organisation University of Warwick
Department Department of Philosophy
Country United Kingdom 
Sector Academic/University 
PI Contribution Exploration of the issue of online trust and social media
Collaborator Contribution Exploration of the issues of vigilantism in digital space, regulation of digital space, role of social media in politics today, the role of social media in perpetuating the culture of fear of 'others', the role of social media in facilitating collective action, the role of social media in changing/undermining existing social structures, the relationship between personal experience and public knowledge
Impact This project is at an early stage with only one workshop held so far. The next one is to be held in April with the aim of developing specific project ideas to take forwards towards potential funding bids. It is a multidisciplinary project involving Philosophy, Sociology, Computer Science, Literature, and Communication Science
Start Year 2015
 
Description Space for Sharing Advisory Panel Meeting 1 
Organisation Breast Cancer Care
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Sharing initial findings and innovative research methods with partners.
Collaborator Contribution Feedback and input from service users.
Impact Stakeholder workshop (with Tinder foundation) at the University of Sheffield as part of the Festival of Social Sciences 2015.
Start Year 2014
 
Description Space for Sharing Advisory Panel Meeting 1 
Organisation Goldsmiths, University of London
Country United Kingdom 
Sector Academic/University 
PI Contribution Sharing initial findings and innovative research methods with partners.
Collaborator Contribution Feedback and input from service users.
Impact Stakeholder workshop (with Tinder foundation) at the University of Sheffield as part of the Festival of Social Sciences 2015.
Start Year 2014
 
Description Space for Sharing Advisory Panel Meeting 1 
Organisation NHS England
Country United Kingdom 
Sector Public 
PI Contribution Sharing initial findings and innovative research methods with partners.
Collaborator Contribution Feedback and input from service users.
Impact Stakeholder workshop (with Tinder foundation) at the University of Sheffield as part of the Festival of Social Sciences 2015.
Start Year 2014
 
Description Space for Sharing Advisory Panel Meeting 1 
Organisation Tinder Foundation
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Sharing initial findings and innovative research methods with partners.
Collaborator Contribution Feedback and input from service users.
Impact Stakeholder workshop (with Tinder foundation) at the University of Sheffield as part of the Festival of Social Sciences 2015.
Start Year 2014
 
Description Space for Sharing Advisory Panel Meeting 1 
Organisation University of Leicester
Country United Kingdom 
Sector Academic/University 
PI Contribution Sharing initial findings and innovative research methods with partners.
Collaborator Contribution Feedback and input from service users.
Impact Stakeholder workshop (with Tinder foundation) at the University of Sheffield as part of the Festival of Social Sciences 2015.
Start Year 2014
 
Description Space for Sharing Advisory Panel Meeting 1 
Organisation University of Surrey
Country United Kingdom 
Sector Academic/University 
PI Contribution Sharing initial findings and innovative research methods with partners.
Collaborator Contribution Feedback and input from service users.
Impact Stakeholder workshop (with Tinder foundation) at the University of Sheffield as part of the Festival of Social Sciences 2015.
Start Year 2014
 
Description Space for Sharing Advisory Panel Meeting 2 
Organisation Breast Cancer Care
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Sharing findings and results and highlighting transdiciplinary research
Collaborator Contribution Feedback and suggestions from services user perspective.
Impact Discussions with Tinder foundation re: Studentship in the area of Transdiciplinary Research
Start Year 2014
 
Description Space for Sharing Advisory Panel Meeting 2 
Organisation Cardiff University
Country United Kingdom 
Sector Academic/University 
PI Contribution Sharing findings and results and highlighting transdiciplinary research
Collaborator Contribution Feedback and suggestions from services user perspective.
Impact Discussions with Tinder foundation re: Studentship in the area of Transdiciplinary Research
Start Year 2014
 
Description Space for Sharing Advisory Panel Meeting 2 
Organisation Tinder Foundation
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Sharing findings and results and highlighting transdiciplinary research
Collaborator Contribution Feedback and suggestions from services user perspective.
Impact Discussions with Tinder foundation re: Studentship in the area of Transdiciplinary Research
Start Year 2014
 
Description Space for Sharing Advisory Panel Meeting 2 
Organisation University of Surrey
Country United Kingdom 
Sector Academic/University 
PI Contribution Sharing findings and results and highlighting transdiciplinary research
Collaborator Contribution Feedback and suggestions from services user perspective.
Impact Discussions with Tinder foundation re: Studentship in the area of Transdiciplinary Research
Start Year 2014
 
Description 'No harm in asking' conference talk, ELPAT Congress, Rome 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Moorlock presented paper on the resource issues associated with the use of social media to identify donors.
Year(s) Of Engagement Activity 2016
 
Description 3. Mladen Pupavac and Vanessa Pupavac (2016) 'Andropov's ghost: language and society under global governance.' Ballots and Bullets. 17 November. 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Mladen Pupavac and Vanessa Pupavac (2016) 'Andropov's ghost: language and society under global governance.' Ballots and Bullets. 17 November. http://nottspolitics.org/2016/11/17/andropovs-ghost-language-and-society-under-global-governance/
Year(s) Of Engagement Activity 2016
URL http://nottspolitics.org/2016/11/17/andropovs-ghost-language-and-society-under-global-governance/
 
Description A Shared Space and a Space for Sharing project photographic exhibition 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact During 2016, we worked with professional photographer, Anton Want, to develop a photographic exhibition based on the findings from the 'A Shared Space and a Space for Sharing' project. The exhibition comprised 12 (2 portraits per Work Package) A0-sized images, which were portraits of people, which had text superimposed containing messages from the Work Packages. In addition there were A0 posters summarising the project as a whole, and the individual Work Packages. The exhibition was displayed for 2 weeks during the ESRC Festival of Social Science in November 2016 in the Winter Gardens in the centre of Sheffield. The Winter Gardens has a very high footfall, hundreds of people passing through each day. The exhibition attracted the attention of the local media, and the Sheffield Star newspaper published a photo of Peter Bath and Anton Want against the backdrop of the exhibition in the Winter Gardens.
Year(s) Of Engagement Activity 2016
URL http://www.space4sharingstudy.org/?p=945
 
Description Al Jazeera TV panel on cost to privacy of our networked lives 
Form Of Engagement Activity A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact I was in a 25 minute panel interview on Al Jazeera's Inside Story. This programme was broadcast all over the world, on cable TV networks.
Year(s) Of Engagement Activity 2017
URL http://www.aljazeera.com/programmes/insidestory/2017/03/cost-privacy-connected-lives-170302213914101...
 
Description BBC interview 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Interview for BBC online programme called 'Digital Disruptors' about the privacy implications of an app that shares phone contact information to build up a global phone directory.
Year(s) Of Engagement Activity 2016
 
Description Balloon debate at Festival of Education Wellington College on 23 June 2016 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Schools
Results and Impact Talk related to Michael Faraday as part of University in One Day at Festival of Education, Wellington College
Year(s) Of Engagement Activity 2016
URL http://festivalofeducation.com/
 
Description Blog for Space for Sharing website 11.3.2016: 'Going through it': computational social science collaboration and social media research on emotional distress 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Media (as a channel to the public)
Results and Impact This was a blog on the nature of interdisciplinary working between social scientists and computing scientists
Year(s) Of Engagement Activity 2016
URL http://www.space4sharingstudy.org/?p=940
 
Description Blog on Space for Sharing website: So it's a bit of a tightrope walking at the moment": moderation and online illness forums 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Blog on interviews with Forum moderators
Year(s) Of Engagement Activity 2015
URL http://www.space4sharingstudy.org/?p=904
 
Description Blog: 2014 Balkan Floods & Tvitomanija - One Year On 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Blog on the coordination using social media following the 2014 Balkan Floods
Year(s) Of Engagement Activity 2015
URL http://www.space4sharingstudy.org/?p=891
 
Description Blog: Studying online drug culture: some reflections on method 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Industry/Business
Results and Impact Blog on the he methods adopted for the Illicit Drug Use research area.
Year(s) Of Engagement Activity 2015
URL http://www.space4sharingstudy.org/?p=885
 
Description Blog: Tinder Foundation: A Shared Space and a Space for Sharing: Online Health Forums; Digital Exclusion 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact Blog following a joint workshop held with the Space for Sharing Project and the Tinder Foundation.
Year(s) Of Engagement Activity 2015
URL http://www.tinderfoundation.org/our-thinking/blog/shared-space-and-space-sharing-online-health-forum...
 
Description Boundaries, Bodies and Borders: The Global Exchange of Human Body Parts 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Postgraduate students
Results and Impact Moorlock was an invited speaker at the Boundaries, Bodies and Borders: The Global Exchange of Human Body Parts workshop at the University of Leeds, where he spoke about ethical issues associated with the use of social media and organ donation.
Year(s) Of Engagement Activity 2017
URL http://www.sociology.leeds.ac.uk/events/2017/boundaries-bodies-borders-the-global-exchange-of-human-...
 
Description Building Trust and Sharing Health Information Online (Sheffield, UK) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? Yes
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact This event was aimed at members of the public. The purpose was to present initial findings from the project and generate discussion about the findings and ethical considerations of researching online health forums. The presentation about the project and initial findings lead to questions and general discussion, and attendees reported learning more about the ethical and methodological issues involved in the research. There was email exchange between participants and continued discussion and information sharing following the event.

Feedback from participants include:

Understood more about the complexity of this area. Also the methodological approaches/ethics concerns.
I have more knowledge of the space for sharing project and the barriers and challenges of using web forums.
Year(s) Of Engagement Activity 2015
 
Description Cafe scientifique talk 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact The event involved our giving a talk at a Cafe Scientifique event in the Showroom cinema, Sheffield.
Year(s) Of Engagement Activity 2018
 
Description Collaborative Stake-Holder Workshop: Sharing Health Information Online (Sheffield, UK) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? Yes
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact This stake-holder workshop was organised in collaboration with the Tinder Foundation, a charity which supports digitally and socially excluded people to improve their lives through digital technologies. The aim of the workshop was for the stakeholders to develop an understanding of social science research, to discuss the 'A Shared Space and A Space for Sharing' project, to discuss some of the barriers to people using online spaces for sharing information, experiences and emotions and to explore ways of overcoming challenges to people using online resources. The workshop also sparked discussion for future research ideas and proposals. Following the workshop, the research team (Peter Bath, Melanie Lovatt and Julie Ellis) worked with Tinder Foundation (James Richardson) to write a blog about the workshop (http://www.tinderfoundation.org/our-thinking/blog/shared-space-and-space-sharing-online-health-forums-digital-exclusion) - this was published on the Tinder Foundation web-site.

Via the feedback forms, attendees reported many positive effects from the workshop. These included comments that the workshop had generated new knowledge and ideas for improvements - for instance about barriers to engaging with forums - for them to take back to their workplaces, which would ultimately benefit their service users / members. Other comments included the benefits of sharing knowledge with other stakeholders and learning more about online health forums.


Feedback from workshop participants include:

Broadened knowledge and understanding slightly, will research more as a result.
Extended current knowledge held. Reinforced effectiveness of strategies deployed by organisation. Provided a wider perspective on the issue discussed.
Lots of new ideas.
I think forums have a place in social prescribing to assist people.
I now understand the benefits of online health problems but also their issues.
I've picked up ideas for improvement.
I've le
Year(s) Of Engagement Activity 2015
URL http://www.tinderfoundation.org/our-thinking/blog/shared-space-and-space-sharing-online-health-forum...
 
Description Contribution to MOOC on Liver Transplantation 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Draper and Moorlock contributed a video session to a University of Birmingham MOOC on Liver Transplantation, in which we addressed issues arising from the use of social media to solicit organ donors. Over 3000 students registered for this MOOC, from all over the world. Students provided comments on the issues discussed in our video, and it was apparent that many students had changed their views, or at least had their existing views challenged, by the issues we discussed.
Year(s) Of Engagement Activity 2016
 
Description Contribution to Parliament Select Committee Enquiry on "Algorithmic Decision Making in Online Sharing Platforms in extremis" 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact The House of Commons instituted a Select Committee inquiry into Algorithms in Decision Making. Our input focused on users in extremis situations and how algorithmic processes can affect them.
Year(s) Of Engagement Activity 2017
URL https://www.parliament.uk/business/committees/committees-a-z/commons-select/science-and-technology-c...
 
Description Dialogue with Scientific Director (Paul Griffiths) and Head of Sector (Andre Noor) at European Center for Monitoring Drugs and Drug Addiction, Lisbon. 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Meeting with senior scientific staff at ECMDDA to discuss potential role of qualitative research with online drugs culture. The meeting took place in the context of EMCDDA hosting the 2015 Contemporary Drug Problems Conference.
Year(s) Of Engagement Activity 2015
 
Description Diisplay and stand at the 'NHS at 70' exhibition in Cathedral Square, Sheffield. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact This was a display (poster and stand) entitled "Online Health forums: peer-to-peer support for people living with health conditions" at the NHS at 70 exhibition in the centre of Sheffield on 5th July 2018.
Year(s) Of Engagement Activity 2018
URL https://www.facebook.com/events/508829059531878/
 
Description ELPAT Living Organ Donation Working Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Moorlock attended the Ethical, Legal and Psychosocial Aspects of Transplantation Living Donation Working Group meeting in Nice, February 2008. The use of social media to recruit living donors has been identified as a priority for this working group, and more work is underway to explore the issue of whether living donation should be actively promoted by transplant organisations.
Year(s) Of Engagement Activity 2018
 
Description ELPAT Working Group Meeting, Valencia 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Moorlock is member of the European Society of Transplantation's 'Ethical, Legal and Psychosocial Aspects of Transplantation (ELPAT)' living organ donation working group, which meets annually to prepare papers and position statements. In this meeting we discussed awareness-raising of altruistic donation, and the promotion of pre-emptive kidney transplantation, position papers for which are forthcoming. We also determined future topics for the working group to focus on, which included social media and living donation.
Year(s) Of Engagement Activity 2017
 
Description East Midlands Salon Derby 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact Debate on Are we living in the age of emotions
Year(s) Of Engagement Activity 2015
URL http://www.eastmidlandssalon.org.uk/are-we-living-age-of-emotion/
 
Description East Midlands Salon pub talk 2 March 2017 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact Discussion over migration
Year(s) Of Engagement Activity 2017
URL http://www.eastmidlandssalon.org.uk/dual-crisis-migration/
 
Description Ethical, Legal and Psycho-social Aspects of Transplantation (ELPAT) Working Group Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Moorlock participated in the ELPAT Working Group on Organ Trafficking and Paid Donation. ELPAT is the ethics strand of the European Society for Transplantation, and comprises of medical staff, ethicists, lawyers, psychologists, social scientists and policy makers. The purpose of this specific meeting was to discuss current state of play regarding organ trafficking/paid donation, and to determine future areas of focus for this Working Group. The use of social media as a factor in both trafficking and paid donation was discussed, and will be a consideration in future work undertaken by this group.
Year(s) Of Engagement Activity 2015
 
Description ICSA Workshop Series on Open Source Intelligence 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact The International Centre for Security Analysis (ICSA), located in the King's Policy Institute at
King's College London, is holding a workshop series exploring the role, value and practical
application of online Open Source Intelligence (OSINT). It will address these issues in relation
to national and international security policy by bringing together OSINT researchers from
various academic departments at King's College London (including Digital Humanities and
Informatics), representatives from UK law enforcement agencies (National Crime Agency,
Metropolitan Police), government departments and affiliated organisations as well as other
interested parties.
Year(s) Of Engagement Activity 2016
 
Description International Studies Association (ISA) Conference, Ljubljana, June 2016 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact I presented a paper on borderlands and migrations in the Western Balkans
Year(s) Of Engagement Activity 2016
 
Description International Symposium on 'Cybernetic Subjects: The Mediation of Trust and Empathy 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact 6 invited guest speakers to a 2-day symposium. It was filmed and made available on line, essentially for the benefit of other researchers and researach networks in related fields. The event was filmed, the film put online. Available at http://cemr.uk/events/cybernetic-subjectivities-mediation-trust-empathy .
Year(s) Of Engagement Activity 2016
URL http://cemr.uk/events/cybernetic-subjectivities-mediation-trust-empathy
 
Description Lecture about research for University/public event 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Undergraduate students
Results and Impact This was a talk entitled "A problem shared...? Online sharing among people with a life-threatening illness" given at the 24 Hour Inspire event - a series of lectures delivered continuously over 24 hours to raise money for charities in memory of Dr. Tim Richardson and Dr. Victoria Henshaw at the University of Sheffield. The event is open to staff and students at the University and members of the public.
Year(s) Of Engagement Activity 2015
URL https://inspirationforlifeblog.wordpress.com/2015/05/04/reflections-on-the-2015-24-hour-inspire/
 
Description Meeting with organisational partner senior management team and heads of services/organisational leads 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact There have been two 'research in to practice' meetings with Samaritans senior management team and with Samaritans heads of services in 2016
Year(s) Of Engagement Activity 2006,2016
 
Description Mladen Pupavac and Vanessa Pupavac (2016) 'A call to arms, a very undiplomatic call.' Ballots and Bullets. 14 October. 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Mladen Pupavac and Vanessa Pupavac (2016) 'A call to arms, a very undiplomatic call.' Ballots and Bullets. 14 October.
http://nottspolitics.org/2016/10/14/a-very-undiplomatic-call/
Year(s) Of Engagement Activity 2016
URL http://nottspolitics.org/2016/10/14/a-very-undiplomatic-call/
 
Description Mladen Pupavac and Vanessa Pupavac (2016) 'Russia in the Balkans: Pan-Slavism revived?' Ballots and Bullets. 2 November. 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Mladen Pupavac and Vanessa Pupavac (2016) 'Russia in the Balkans: Pan-Slavism revived?' Ballots and Bullets. 2 November.
http://nottspolitics.org/2016/11/02/russia-in-the-balkans-pan-slavism-revived/
Year(s) Of Engagement Activity 2016
URL http://nottspolitics.org/2016/11/02/russia-in-the-balkans-pan-slavism-revived/
 
Description Mladen Pupavac and Vanessa Pupavac (2017) 'Milos Crnjanski's Migrations and the New Borderlands of Europe.' Ballots and Bullets. 23 January 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Mladen Pupavac and Vanessa Pupavac (2017) 'Milos Crnjanski's Migrations and the New Borderlands of Europe.' Ballots and Bullets. 23 January
http://nottspolitics.org/2017/01/23/milos-crnjanskis-migrations-and-the-new-borderlands-of-europe/
Year(s) Of Engagement Activity 2017
URL http://nottspolitics.org/2017/01/23/milos-crnjanskis-migrations-and-the-new-borderlands-of-europe/
 
Description NIHR Biomedical Research event 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Moorlock gave a talk on the ethics of organ donation/transplantation at a University of Birmingham NIHR Biomedical Research day. This was attended by research and clinical staff, so the audience included doctors, nurses and researchers. Social media and organ donation were discussed in detail, which prompted much further discussion from attendees. Participants stated in their feedback that the session had made them aware of the complexity of these issues, and had encouraged them to think about things that they may not otherwise had considered.
Year(s) Of Engagement Activity 2015
 
Description Paper presented at an LSE organised conference, 21-22 September 2015, Milocer, Montenegro 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Workshop attended by around 30 participants from the UK and the Western Balkans countries (Serbia, Kosovo, Montenegro, Bosnia and Herzegovina, Macedonia, and Albania). The workshop focused on the theme of barriers to inclusive growth in the Western Balkans.
Year(s) Of Engagement Activity 2015
URL http://www.lse.ac.uk/lsee
 
Description Participation in Wilton Park conference organised by the Foreign Office 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact I was invited to discuss our work in the Wilton Park conference (WP1519 - Diplomacy in the Information Age), organised by the Foreign Office. Leading practitioners in the area as well as Foreign Office representatives were at the conference, where I discussed implications of our work including bias detection and cross domain trust transfer.
Year(s) Of Engagement Activity 2017
 
Description Participation in panel at ESRC-funded New Drugs Seminar Series (University of Kent) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact The event was one of series of seminars funded by ESRC on 'New Drugs' Speakers and participants were from both academic and professional services organisations - e.g. including Prison Officers Association, Police, addiction and abuse services. It was, amongst other things a opportunity to exchange views about the state impact of 'new drugs'/NPS and recent drug control legislation (Psychoactive Substances Act 2016), and how this was likely to dealt with by police and how these drugs were impacting prison officers and prison populations.

13.00-14.00: Roundtable: New drugs and the 'bigger picture' (Chaired by Dr. Kate O'Brien)

A collection of eminent drug researchers consider the impact that new drugs have had on the work that they do, for example in reconstituting the way that we think about legislating for the control of drugs, designing interventions to help people who use drugs, and understanding the way that drugs are bought and sold.

I spoke on a panel including the following: Professor Susanne McGregor (London School of Hygiene and Tropical Medicine), Professor Dave Boothroyd (University of Lincoln), Professor Shane Blackman (Canterbury Christchurch University), Dr. Axel Klein (Global Drug Policy Observatory, Swansea University), and Professor Alex Stevens (University of Kent).
Year(s) Of Engagement Activity 2016
URL https://newdrugseminars.wordpress.com/seminars/final-event/tuesday-6th-september-new-drugs-mini-conf...
 
Description Participatory Media Research Showcase Day (Lincoln University) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact The Lincoln work package of the S4S project was the focus of a set of research projects (funded and unfunded) and activities being undertaken with the School of Film and Media, each of which has an investment in 'participatory media' - both as a concept and as a practical project currently at particular stage of development. It was open to the public, all members of the University of Lincoln and to invited potential stakeholder guests. It comprised a poster exhibition and a series of presentations. The event was filmed and the filmed material will appear at a later date on the research webpages of the School and (likely) as part of the later S4S project exhibition. The event was organised by Professor Dave Boothroyd and was financially supported, and 'in kind', by technical staff and film students from within the School.
Year(s) Of Engagement Activity 2015
URL https://collegeofarts.blogs.lincoln.ac.uk/2015/07/07/participatory-media-research-showcase-2015/
 
Description Performance of 'Space for Sharing' play and audience discussion at the 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact The 'Space for Sharing' play was performed at the National CAnceR Experience conference, entitled "Approaches to capturing patient experience of cancer care" on 1st June 2018. The event was attended by healthcare professionals, academic researchers, the general public and some patients.
Year(s) Of Engagement Activity 2018
URL http://clahrc-yh.nihr.ac.uk/our-themes/translating-knowledge-into-action/2-news-and-events/cancer-ex...
 
Description Performance of Space for Sharing play 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Third sector organisations
Results and Impact The 'Space for Sharing' play, based on the findings of WP3 of the 'A Shared Space and A Space for Sharing' play was performed at the Annual General Meeting of Cavendish Cancer Care (https://cavcare.org.uk/) and was followed by a discussion with the audience on the issues raised by the pay and on the value of online health forums.
Year(s) Of Engagement Activity 2017
URL https://cavcare.org.uk/
 
Description Performance of Space for Sharing play 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact I worked with the Dead Earnest Theatre Company to develop and perform a play, called "A Space for Sharing" which was performed to members of the public during the 'Festival of the Mind' in Sheffield city centre. The play told the story of five women who had been diagnosed with breast cancer and who had used an online discussion forum to share their feelings and experiences. The play was based on findings from the "A Shared Space and a Space for Sharing" project" (Work Package 3).
Year(s) Of Engagement Activity 2016
 
Description Performance of Space for Sharing play 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact The 'Space for Sharing' play, based on the findings of WP3 of the 'A Shared Space and A Space for Sharing' play was performed as part of the Dying Matters Awareness Week in Sheffield city centre and was followed by a discussion with the audience on the issues raised by the pay and on the value of online health forums.
Year(s) Of Engagement Activity 2017
URL https://www.dyingmatters.org/AwarenessWeek
 
Description Plenary debate, ELPAT Congress, Rome 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Moorlock was an invited panel member for a plenary debate on the use of social media to find living organ donors. Moorlock presented proposals for making better use of social media, which resulted in lively discussion. Votes taken before and after debate suggested that the views of audience members had changed as a consequence.
Year(s) Of Engagement Activity 2016
 
Description Poster presentation at 27th International Symposium on ALS/MND (Motor Neurone Disease) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Hundreds of delegates were at the conference; these included academics, health care professionals; representatives from organizations that support people with Motor Neurone Disease (MND); patients with MND and their carers. During the poster session a number of delegates viewed the poster and asked questions with Peter Bath.
Year(s) Of Engagement Activity 2016
 
Description Poster presentation at the Motor Neurone Disease Association annual meeting 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact This was a poster presentation entitled "Shared Experiences of Informal Caring: Support with Empathy on a Motor Neurone Disease Online Health Forum" at the 29th International MND Association conference. This conference is attended by healthcare professionals and patients with MND, as well as organizations involved in the care of people with MND.
Year(s) Of Engagement Activity 2018
 
Description Poster presentation to BTS meeting Mar 2017 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Poster presentation to British Transplant Society annual meeting.
Talk about our individual work package and also the wider project
(we were actively seeking feedback on stake-holder 'key message' information also - see other impact)
Year(s) Of Engagement Activity 2017
 
Description Poster presented at 26th International Symposium on ALS/MND 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Poster presented at the 26th International Symposium on Amyotrophic Lateral Sclerosis and Motor Neurone Disease 2015. This poster reports preliminary findings the study that examines how people with MND share information, experiences and emotions via the online forum organised by the Motor Neurone Disease Association. Over 800 delegates attended the conference.
Year(s) Of Engagement Activity 2015
URL http://f1000research.com/posters/5-239
 
Description Presentation to stakeholders, Space for Sharring Final Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Third sector organisations
Results and Impact Panel presentation entitled 'Constituting Safe Spaces. Sharing Emotional Distress Online' at project final event at Wellcome Trust in London - full event evaulation reported by PI.
Year(s) Of Engagement Activity 2017
 
Description Public Exhibition: Shared Space Space for Sharing Project photographic exhibition (Lincoln) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact The exhibition was at Lincoln's premier entertainment venue - The Drill Hall. It was staged in the foyer/cafe area during a week when the venue was full-booked every evening (capacity 500.)
Year(s) Of Engagement Activity 2017
URL https://lismalumni.blogs.lincoln.ac.uk/archives/19694
 
Description Public Lecture for Wild Hearts in Action 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact Raising funds for Women's Charity Wild Hearts in Action, by giving an Tech Talk for lay persons on empathy in online social media.
Year(s) Of Engagement Activity 2015
 
Description Public Talk at University of Lincoln EU-funded Research Lights Day event: Title: Illicit Drug use: Online popular wisdom and the erosion of expert authority 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Schools
Results and Impact The talk was part of the Research Lights event (second year of running) held at the University of Lincoln campus (and funded overall by an EU-grant. Primary invited audiences were regional schools and colleges, and the public. I did the talk to (aged 16+) audiences twice in the day and hosted the project photographic exhibition on campus for the full week.
Year(s) Of Engagement Activity 2017
URL http://lightsexpo.org/event-h1-illicit-drugs/
 
Description Radio interview on BBC Radio Sheffield about the work we undertook for the 'Space for Sharing' play in Sheffield. 
Form Of Engagement Activity A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact Peter Bath was invited to speak on the Paulette Edwards radio programme on BBC Radio Sheffield. He was asked about people's use of online health forums, based on the work undertaken on the Breast Cancer Care online health forum as part of the 'Space for Sharing' programme. The broadcast was in advance of the performance of the play at the Cancer Carers conference in Sheffield on Friday 1st June. We believe that the broadcast promoted the performance of the play and resulted in members of the public attending the performance of the play.
Year(s) Of Engagement Activity 2018
URL https://www.bbc.co.uk/programmes/p066k811
 
Description Research Talk presented at Conference on Social Media, Activism, and Organisations (#SMAO15) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Postgraduate students
Results and Impact Social media, Activism, and Organizations 2015 (#SMAO15) brought together a large, international audience from a variety of disciplines. Founding chair, Dhiraj Murthy, was thrilled to receive such a strong set of submissions, which made for an exciting day of talks. Papers at #SMAO15 not only advanced our understandings of contemporary uses of social media use in social movements, but also the many ways in which we can critically reflect on their potential and limitations. Importantly, organizational communication perspectives were central to #SMAO15 and the contributions made give scholars in this interdisciplinary area much to think about. Questions around social media in formal and informal movement organizations were explored from a variety of methodological perspectives, including social network analysis, ethnography, surveys, participant observation and big data analytics. Papers covered regional case studies in Europe, North America, Africa, the Middle East, and Asia. In addition, #SMAO15 brought together practitioners, artists, and scholars. This unique constituency of attendees yielded new perspectives and approaches to studying social media, activism, and organizations.
Year(s) Of Engagement Activity 2015
 
Description Seminar paper University of London SSEES 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Postgraduate students
Results and Impact Paper on Balkan floods 2014 and social media
Year(s) Of Engagement Activity 2015
 
Description Seminar paper University of Nottingham CSSGJ 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Postgraduate students
Results and Impact discussion of research on Balkan floods 2014 and social media
Year(s) Of Engagement Activity 2016
 
Description Seminar paper University of Westminster 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Postgraduate students
Results and Impact Faustian work: Cultural Politics of Mathematics and Disaster Management

Workshop themes of posthumanism and resilience governance
Year(s) Of Engagement Activity 2016
 
Description Seminar paper presented at the University of Nottingham 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Postgraduate students
Results and Impact Discussion of research on Balkans floods in May 2014 and social media
Year(s) Of Engagement Activity 2016
 
Description Showing of film recording of the 'Space for Sharing' play. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other audiences
Results and Impact The activity involved showing a film of the performance of the 'Space for Sharing' play at the 24 Hour Inspire event at the University of Sheffield.
Year(s) Of Engagement Activity 2018
URL https://inspirationforlife.co.uk/24hr-inspire-2018/
 
Description Sky TV comment about effect of fake news in online sharing 
Form Of Engagement Activity A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Media (as a channel to the public)
Results and Impact Asked to comment about Fake News in online sharing, in response to Apple CEO Tim Cook's comments about this issue.
Year(s) Of Engagement Activity 2017
URL http://news.sky.com/video/fake-news-is-killing-peoples-minds-10764896
 
Description Talk at University of Bradford on 27 January 2017 on 'Global Governance and the Marginalization of Area Studies' 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Postgraduate students
Results and Impact Part of ESRC Seminar Series: From Data to Knowledge, Seminar 3 on Conflict Knowledge and Knowledge Conflicts
Year(s) Of Engagement Activity 2017
URL http://www.birmingham.ac.uk/schools/government-society/departments/international-development/events/...
 
Description Talk at University of Nottingham 16 November 2016 to Midlands3Cities Doctoral Training Partnership (M3C DTP) and the White Rose College of the Arts & Humanities 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Postgraduate students
Results and Impact Discussing the raised prospects for the need for language and area studies post-Brexit
Year(s) Of Engagement Activity 2017
URL http://www.midlands3cities.ac.uk/midlands-3-cities/index.aspx
 
Description Talk at the University of Nottingham, Centre for the Study of Social and Global Justice 21 November 2016 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Postgraduate students
Results and Impact Discussion on Migrating Borderlands and European Governance
Year(s) Of Engagement Activity 2016
URL https://www.nottingham.ac.uk/cssgj/centre-activities/seminarseries/index.aspx
 
Description Talk at the University of Sheffield on 17 March 2017 on Humantarianism's Crisis of meaning and therapeutic governance 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Postgraduate students
Results and Impact Workshop on Development and Therapeutic Governance
Year(s) Of Engagement Activity 2017
 
Description Talk entitled "Online Health Forums - a place for sharing and empathy" for 2018 "Off the Shelf" festival in Sheffield 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact 10 people attended our talk at Waterstones cafe, Orchard Square, Sheffield for our talk "Online Health Forums - a place for sharing and empathy" about the work we undertook in Sheffield for the Space for Sharing project. The talk was followed by an audience discussion.
Year(s) Of Engagement Activity 2018
URL http://www.offtheshelf.org.uk/event/online-health-forums-place-sharing-empathy/
 
Description Talk entitled: Spaces for Sharing - online health forums for people with a life-threatening illness 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact This presentation was part of the Ignite Academy series of events. The presentation discussed our research on how people with life-threatening and terminal illnesses use online spaces to share their experiences and emotions. The study explores how trust and empathy enable people to share with each other online. The study provides insights into how online friendships form and how these can lead to supportive and long-lasting friendships in the real world.
Year(s) Of Engagement Activity 2017
URL https://www.sheffield.ac.uk/rs/ecr/events/igniteacademy2017
 
Description Together we are stronger - How people with serious illnesses share information, emotions and experiences in online health forums 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact This talk focussed on the experiences of people living with Breast Cancer and Motor Neurone Disease. The journey with the two conditions differ: people with breast cancer hope to be treated successfully and to move on in their lives; in contrast, Motor Neurone disease is currently incurable and, because of this, the diagnosis is particularly devastating. However, the story is not about despair, but about the hope and inspiration that people in these situations found on the Internet, and particularly in online support groups.
Year(s) Of Engagement Activity 2017
URL https://www.sheffield.ac.uk/rep/public-engagement/festivals-opportunities/pint-of-science
 
Description University of Birmingham Masterclass on Ethics of Transplantation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Schools
Results and Impact Moorlock ran a 2-hour University of Birmingham Masterclass on the ethics of transplantation, which was attended by 120 16-18 year olds from schools and colleges in England. The session included a substantial section on the use of social media to attract living donors, which prompted a lot of discussion. Feedback obtained from the students suggested that the session had made around half of the attendees more likely to study this area at University.
Year(s) Of Engagement Activity 2015
 
Description University of Birmingham Masterclass on the Ethics of Transplantation, Birmingham 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Schools
Results and Impact Moorlock ran a masterclass on the ethics of organ transplantation, attended by secondary school students in the region. Many aspects of organ donation were discussed, including the role of social media in promoting donation. Many students suggested in their feedback forms that they would be interested in studying bioethics as a consequence of this session.
Year(s) Of Engagement Activity 2016
 
Description University of Manchester Global Health Society Organ Donation Lecture 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Undergraduate students
Results and Impact Moorlock gave a lecture on the organ shortage, and measures taken to resolve it, including discussion of the use of social media to recruit living donors. This was followed by lively debate.
Year(s) Of Engagement Activity 2017
 
Description University of Warwick Ideas Cafe 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact Moorlock presented research at the University of Warwick Ideas Cafe on Cybersecurity. This event was attended by members of the public, and is an opportunity to discuss ongoing research, generate ideas for future research, and to gain input and feedback from the public.
Year(s) Of Engagement Activity 2017
 
Description Vanessa Pupavac (2016) 'Keeping the Enlightenment Spirit Aloft - Faraday's Democratising Science.' Ballots and Bullets. 22 September. 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Vanessa Pupavac (2016) 'Keeping the Enlightenment Spirit Aloft - Faraday's Democratising Science.' Ballots and Bullets. 22 September.
Interdisciplinary work
Year(s) Of Engagement Activity 2016
URL http://nottspolitics.org/2016/09/22/keeping-the-enlightenment-spirit-aloft-faradays-democratising-sc...
 
Description Vanessa Pupavac (2017) 'Lotte in Weimar - Thomas Mann's Hope for a Humanist Culture against Barbarism.' Ballots and Bullets. 17 January http://nottspolitics.org/2017/01/17/lotte-in-weimar-thomas-manns-hope-for-a-humanist-culture-against-barbarism/ 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Vanessa Pupavac (2017) 'Lotte in Weimar - Thomas Mann's Hope for a Humanist Culture against Barbarism.' Ballots and Bullets. 17 January
http://nottspolitics.org/2017/01/17/lotte-in-weimar-thomas-manns-hope-for-a-humanist-culture-against-barbarism/
Year(s) Of Engagement Activity 2017
URL http://nottspolitics.org/2017/01/17/lotte-in-weimar-thomas-manns-hope-for-a-humanist-culture-against...
 
Description Workshop and performance of 'Space for Sharing' play 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact The activity was a workshop organised and funded through the ESRC Festival of Social Sciences at the Northern General Hospital, Sheffield. 30-40 healthcare practitioners and allied health professional, including hospital chaplains, particularly those involved in Cancer Care, attended the workshop. It involved an introduction about the "A Shared Space and a Space for Sharing", a performance of the 'Space for Sharing' play, followed by an audience discussion with the actresses and researchers. Then we posed a series of questions to the audience about the use of online health forums, and this led to an interactive panel discussion. The panel included a member from Breast Cancer Care. We collected feedback from the audience which is currently being analysed. In addition, we distributed copies of the information sheets that we have developed in collaboration with Breast Cancer Care: these include one for patients and carers of people with cancer and the other for healthcare professionals. The information sheets provide advice about using online health forums.
Year(s) Of Engagement Activity 2018
 
Description Workshop on documentary analysis, Social Science Summer School, Edinburgh University 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Postgraduate students
Results and Impact A workshop focused on documentary analysis which was attended by postgraduate students from across Scotland. This paper looked at twitter through the lens of documentary analysis. Feedback on session was very positive and encouraged debate on relationship between big data and documentary analysis.
Year(s) Of Engagement Activity 2015
 
Description Workshop with Cornell University social media lab researchers 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Postgraduate students
Results and Impact Workship with Cornell University social media lab researchers on online trust and empathy
Year(s) Of Engagement Activity 2016
 
Description press release 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Media (as a channel to the public)
Results and Impact worked with KCL press release team to make sure it is technically accurate.

featured on KCL news page.
Year(s) Of Engagement Activity 2014
URL http://www.kcl.ac.uk/newsevents/news/newsrecords/2014/April/Social-media-bootstrapping-key-for-growt...