STRiDE: Strengthening responses to dementia in developing countries (GCRF)

Lead Research Organisation: London School of Economics & Pol Sci
Department Name: LSE Health and Social Care

Abstract

Dementia is not a "developed world" condition: there are already more people with dementia in LAMICs than in high-income economies, yet LAMICs are typically less equipped to respond to the high and increasing prevalence. By 2050, there will be 90 million people with dementia in LAMICs (Prince et al 2015).
People with dementia, particularly at more severe stages, require intensive care and support, which is very costly. These costs are mostly borne by unpaid family carers, primarily women, who often have to leave paid work, risking personal impoverishment and societal productivity losses. LAMICs face rapid growth in numbers of people with dementia without well-developed or well-funded health and care systems. Family care availability is decreasing as a result of demographic, societal and economic changes.
We will build research capability using economics, epidemiology and policy analyses to help LAMICs respond to the needs of the growing numbers of people with dementia in an ethical and sustainable way. The co-applicants, from the UK and South Africa, have strong track-records in dementia research in high-income countries (HICs) and LAMICs, research on health and long-term (social) care in LAMICs. We will partner Alzheimer's Disease International (ADI), a federation of 85 national Alzheimer/dementia associations.
We will work with local researchers and NGOs in 7 LAMICs: Brazil, India, Indonesia, Kenya, Jamaica, Mexico, South Africa. To build capability we will offer formal training in research methods, application of those methods to generate new evidence and tools, and training and practice in use of evidence to inform policy. We will apply the best methodological approaches and publish our results in peer-reviewed journals, but more importantly we will ensure that our research generates practical tools for use directly by stakeholders to develop services and improve practice, or to influence policy.
We will use systematic reviewing and meta-analysis to review evidence on what works in LAMICs and what can be delivered in particular contexts, but also make that research available online and in DVDs as evidence summaries written in plain (dementia-friendly) language and translated to relevant local languages.
We will use Theory of Change (ToC) to co-develop with local partners (researchers/NGOs) and stakeholders (including people with dementia and carers) the research and training agenda for the project to ensure that our activities achieve maximum impact. ToC will also help us develop indicators to evaluate the project's impact.
Our research programme will involve development and evaluation of an intervention to increase dementia awareness and reduce stigma, a qualitative study of costs and other impacts of providing family care to people with dementia in different contexts, generation of quantitative evidence on impacts and costs of dementia on individuals and families, and instruments to collect these data.
We will use the evidence generated to develop, for each country, credible estimates of the costs and impacts of dementia, and use simulation modelling to project future dementia care needs, the health and social services required to meet those needs, their costs, and the impacts of implementing evidence-informed dementia care pathways and better coverage. Models for each country will be simple to update and adapt.
We will assess the policy implications of our projections, consider the barriers presented by current organisation and financing systems and the availability of trained workers, and outline reform opportunities to improve dementia, considering the wider health and social care systems.
Finally, we will work with ADI and other policy partners to produce local recommendations to support the implementation of National Dementia Plans. We will organise stakeholder workshops in each country to present project outcomes, and high level stakeholder meetings in each of the regions, in collaboration with WHO.

Planned Impact

Dementia is a relatively new, but fast-growing challenge for LAMICs. We will work with local researchers and NGOs in generating the research evidence and policy tools needed to support "evidence-based policy-making". This is why our overarching objective is "contributing to improve dementia care, treatment and support systems so that people living with dementia are able to live well, and so that their family and other carers do not shoulder excessive costs or risk impoverishment or experience their own health problems".
The team of academic applicants, based in the UK and South-Africa, and ADI and other international partners, will work with local researchers and NGOs in Brazil, India, Indonesia, Jamaica, Kenya, Mexico and South Africa. Through ADI, we have contacted local Alzheimer's or dementia associations in all of these countries, and all have expressed very strong interest in participating in the project. Each of them has also identified academic researchers working in the area of dementia. For example, Alzheimer's & Dementia Organisation Kenya (http://www.alzkenya.org/) responded: "We have been thinking of carrying out our own research in Kenya so we can understand the numbers affected by the disease and this angle of the project on how to 'respond to the challenge of meeting the needs of the growing numbers of people living with dementia in a sustainable way' is crucial to us as it helps us understand how to meet the needs of the people affected by the disease and the caregivers too."
Members of the team worked closely with local researchers and NGOs in Indonesia, Mexico and South Africa during the elaboration of the most recent World Alzheimer Report published by ADI (https://www.alz.co.uk/research/world-report-2016). That collaboration has had a very important influence in the gestation of this project, as it highlighted both the lack of information about the current situation of people with dementia and carers in most LAMICs, and the importance of having that knowledge in order to develop policies. The report also highlighted the lack of available evidence about what works in the care, treatment and support of people with dementia in LAMICs.
First, we will use Theory of Change (ToC) to co-develop the research and training priorities for the project overall and, working with local stakeholders, also in each country. The ToC process makes explicit the project's outcomes and identifies a hypothesized causal pathway for the programme to achieve its impact. This is used to identify indicators for all the outcomes, which will be used to monitor progress for each outcome in the short, medium and long-term, and finally to evaluate the project and each of the workpackages.
Following the priorities identified, we will offer formal training in research methods, application of those methods to generate new evidence and tools, and training and practice in use of evidence to inform policy. On completion, all the tools and models developed as part of this project will be made publicly available, building on the co-applicants' experience of, for example, the Dementia Evidence Toolkit developed in the UK as part of the ESRC/NIHR-funded MODEM project (http://toolkit.modem-dementia.org.uk/).
All project research and policy tools will be designed so that they are easy to update and adapt, and they can continue to be useful well after the end of the project, both by the local researchers and NGOs involved in this project, but also by other researchers, NGOs and policy-makers, both in the 7 study countries and more widely.
We will end the project by working with ADI and other policy partners to produce local recommendations to support the implementation of National Dementia Plans. To ensure that the outputs of the project have maximum impact, we will organise stakeholder workshops in each country to present project outcomes, as well as high level stakeholder meetings in each of the regions, in collaboration with WHO, ADI and IDB.
 
Description The project is benefiting from the partnership arrangements across countries. Partners are making significant efforts to mention the project, and engage stakeholders with it, as part of their wider activities around dementia, for example in community outreach events, in meetings with policy-makers and through radio and TV interviews, and newspaper interviews and features. Particular efforts were made during World Alzheimer Month in September, during both 2018 and 2019. The STRiDE project was also presented at a Parliamentary Committee meeting in Brazil in June 2019. In addition, STRiDE featured in ADI's World Alzheimer Report 2020, with two case studies focusing on stigma research in both Kenya and Brazil. Partners are giving presentations on STRiDE, including an LSE Global Health Initiative (February 2018), a webinar for Dementia Alliance International (June 2018), presentations at the ADI conference in Chicago (July 2018), Alzheimer Association International Conference Satellite events in Bangalore (December 2018) and Sao Paulo (April 2019), presentations at the TAG stigma conference in Singapore (October 2019) as well as a number of activities linked to World Alzheimer's month through the NGO partners in each country. Country teams organised national launch events to publicise the project and engage stakeholders early, in addition to engagement through ToC workshops and national advisory groups, and have continued to use opportunities to publicise the project at events and meetings. Presentations have also been given, by invitation, at meetings of the OECD (May 2019), the World Health Organization (July 2019), the Inter-American Development Bank (November 2019) and the World Dementia Council (Tokyo, October 2019). As part of the full STRiDE meeting in Cape Town in March 2019, the South African team organized a national stakeholder event which included representatives from the Ministries of Health, Social Development and the South African Human Rights Commission, as well as people living with dementia and care providers. Early steps are being taken to support impact from the STRiDE project. Opportunities to engage with the development of national dementia plans are being taken, for example in Kenya and India; a project team member (Wendy Weidner) took part in a World Health Organisation regional meeting in the EMRO region in Beirut (Lebanon) to discuss supporting the development of national dementia plans, as well as a similar meeting in Brazzaville, Congo, focused on the Africa region; and colleagues are joining national groups to support their activities such as membership of the dementia care guidelines working group for Indonesia, and the Ministry of Health working group for dementia in Kenya. Country teams are using opportunities to engage with policy discussions that could be relevant for STRiDE, such as on policies for older people in Indonesia. A number of activities are underway to support wider engagement outside of STRiDE countries, as well as enhance the impact of STRiDE's activities. For example, we have been developing links with the Global Brain Health Initiative and have opened up STRiDE training opportunities to GBHI Fellows where appropriate. The Asian development Bank have a programme to Strengthening Capacity for Developing Member Countries in Elderly Care which is very relevant to the work of the STRiDE project. We are in discussions about the possibility of collaborating in a survey and joining forces in capacity building, and have drafted a Memorandum of Understanding to support the development of this collaboration. Adelina Comas-Herrera UK co-lead) is a member of the advisory group of the Global Health Research Group on Dementia Prevention and Enhanced Care (DePEC), an NHIR funded research initiative led by Newcastle University which involves researchers in Malaysia, Tanzania and Kerala. Funding has been sought to support STRiDE activities in other countries such as Hong Kong, Romania, Switzerland and we are working with contacts to support STRiDE-based activities in other countries. Further details will be set out in our annual report.
First Year Of Impact 2019
Sector Communities and Social Services/Policy,Healthcare
Impact Types Societal,Policy & public services

 
Description Adelina Comas-Herrera has been appointed by the Catalan minister of labour, social affairs and families as a member of a consultative expert body to evaluation social services needs in Catalonia (Spain)
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Participation in a advisory committee
URL https://treballiaferssocials.gencat.cat/ca/ambits_tematics/serveis_socials/el_sistema_catala_de_serv...
 
Description Decision of Kenyan Ministry of Health to work alongside STRiDE to develop their National Dementia Plan
Geographic Reach National 
Policy Influence Type Participation in a advisory committee
 
Description Invitation to give a presentation to the "Workshop on the Development of a National Strategic Plan for Long-Term Care" in Indonesia, by the Indonesian National Development Planning Agency, Bappenas
Geographic Reach Asia 
Policy Influence Type Participation in a national consultation
 
Description Invited to a workshop to review progress on the National Dementia Plan in Qatar and to advice on developing a dementia research agenda, as part of a group of experts convened by WHO (Adelina Comas-Herrera)
Geographic Reach Asia 
Policy Influence Type Participation in a national consultation
URL https://www.thepeninsulaqatar.com/article/27/02/2020/WHO-official-lauds-Qatar%E2%80%99s-efforts-in-d...
 
Description Meeting with Ministry of Social Affairs - Elderly Rehabilitation directorate (Jakarta, Indonesia), to discuss collaborative work (capacity building for social workers)
Geographic Reach National 
Policy Influence Type Influenced training of practitioners or researchers
 
Description Member of the Guideline Development Group for the World Health Organisation's Risk reduction guidelines for cognitive decline and dementia
Geographic Reach Multiple continents/international 
Policy Influence Type Membership of a guideline committee
Impact While it is difficult to quantify this impact, WHO guidelines have a very wide reach, and they are often adopted, almost directly, by the public health departments in many countries in the world. They are also used directly by WHO for public health campaigns, which are expected to affect at least some individual's behaviour.
URL https://www.who.int/mental_health/neurology/dementia/guidelines_risk_reduction/en/
 
Description Membership of the Working group for elderly, Ministry of Health, Indonesia (Professor Yuda Turana, STRiDE Indonesia)
Geographic Reach National 
Policy Influence Type Participation in a advisory committee
 
Description Membership of the dementia care guidelines working group for Indonesia (Tara Puspitarini Sani, STRiDE Indonesia team)
Geographic Reach National 
Policy Influence Type Membership of a guideline committee
 
Description Ministry of Health Technical group (Kenya)
Geographic Reach National 
Policy Influence Type Influenced training of practitioners or researchers
Impact Membership of the Ministry of Health Technical group with the aim of working with community health workers to create awareness on dementia (reported by Elizabeth Mutunga, Alzheimer's and Dementia Organisation, Kenya)
 
Description Participation in World Health Organization meeting to arrive at a more hamonized methodology and converging dementia burden estimates:
Geographic Reach Multiple continents/international 
Policy Influence Type Participation in a advisory committee
 
Description Participation in the Working Group for long-term care workshop organised by the Ministry of planning (BAPPENAS), Jakarta by Imelda Theresia of the STRiDE Indonesia team
Geographic Reach National 
Policy Influence Type Participation in a national consultation
 
Description Attitudes to dementia survey for World Alzheimer Report 2019
Amount £0 (GBP)
Organisation Alzheimer's Disease International 
Sector Charity/Non Profit
Country United Kingdom
Start 01/2019 
End 09/2019
 
Description Tools to inform Chinese Communities' Action in Response to Dementia
Amount HK$4,295,300 (HKD)
Organisation Research Grants Council Hong Kong 
Sector Public
Country China
Start 03/2019 
End 02/2022
 
Title STRiDE Research Tool 1: Theory of Change 
Description A core part of STRIDE was conducting Theory of Change (ToC) stakeholder workshops to (1) develop a strategic direction for STRiDE and dementia care, treatment and support across STRiDE countries (2) develop a monitoring and evaluation framework for STRiDE across STRiDE countries, and 3) develop a strategic direction for STRiDE and dementia care, treatment and support within STRiDE countries. This guidance outlines an approach to co-developing a ToC with stakeholders to provide strategic direction for policy and programmes for dementia based on the experience of STRiDE. 
Type Of Material Improvements to research infrastructure 
Year Produced 2019 
Provided To Others? Yes  
Impact The guide has been used by at least three other research studies that we know of (1 UK; others international) 
URL https://ca8e40a9-2601-4c83-bb3b-65bc64870c73.filesusr.com/ugd/442c21_c7d6a2cd217549328ba1d7969a74ee1...
 
Title STRiDE Theory of Change Workshops: Guidance and Resources 
Description A guidance tool on using Theory of Change workshops for strategic planning of national dementia policies 
Type Of Material Improvements to research infrastructure 
Year Produced 2019 
Provided To Others? Yes  
Impact This tool was used to develop Theory of Change maps to understand the strategic direction of both the STRiDE project and national dementia strategies in Brazil, India, Indonesia, Jamaica, Kenya, Mexico and Brazil, involving representatives from stakeholder groups in all countries (stakeholders ranged from ministry officials to people living with dementia and carers). A workshop guidance tool has been shared through the STRiDE project website and it is being used to develop Theory of Change maps in related projects in Hong Kong and Romania. The tool has also been used to develop Theory of Change map for the development of a national long-term care plan in Mexico, and to train Global Brain Health Institute Atlantic Fellows in Theory of Change, at a workshop at Trinity College Dublin. 
URL https://www.stride-dementia.org/publications
 
Description Collaboration between the STRiDE project and the Asian Development Bank 
Organisation Asian Development Bank
Country Philippines 
Sector Private 
PI Contribution The Asian development Bank have a programme to Strengthening Capacity for Developing Member Countries in Elderly Care which is very relevant to the work of the STRiDE project. We are in discussions about the possibility of collaborating in a survey and joining forces in capacity building. We have drafted a Memorandum of Understanding to support the development of this collaboration.
Collaborator Contribution As both the ADB and the STRiDE programmes are taking place in Indonesia, in April 2018 we collaborated in two events, the STRiDE Theory of Change workshop in Jakarta, and the ADB's workshop towards the development of a Long-Term Care system in Indonesia. Members of the ADB team came to the ToC workshop and Adelina Comas-Herrera spoke at the ADB workshop. Also a member of the STRiDE Indonesian team was invited to take part in the ADB workshop.
Impact We have drafted a Memorandum of Understanding which we are close to finalising.
Start Year 2018
 
Description Collaboration with the Global Brain Health Institute 
Organisation Global Brain Health Institute
Country United States 
Sector Learned Society 
PI Contribution As part of the collaboration there are quarterly calls between the GBHI team and STRiDE (Martin Knapp and Adelina Comas-Herrera) to identify areas of overlapping interests and potential for specific collaborations between the GBHI fellows (and staff) and the STRiDE project. The GBHI fellows learnt how to facilitate a Theory of Change workshop and also had the opportunity to meet stakeholders in their countries of origin. Adelina Comas-Herrera acted as peer reviewer for research proposals for pilot projects submitted as part of a scheme between the GBHI, the Alzheimer's Society (England) and the Alzheimer's Association (US). Adelina Comas-Herrera was invited to speak as keynote speaker to the 2018 annual conference of the GBHI and conducted a workshop specifically about STRiDE during the conference.
Collaborator Contribution The Global Brain Health Institute (GBHI) provided 4 fellows to support 2 Theory of Change workshops of the STRiDE project, in Brazil and Mexico. The 3 Mexican fellows had a formal role helping to facilitate the workshop, reporting, contributing to gathering up all the information and summing up, the Brazilian fellow took part in the Brazilian ToC event as a participant.
Impact Not yet
Start Year 2017
 
Description International NGO partner - ADI 
Organisation Alzheimer's Disease International
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution ADI are an international NGO partner for the STRiDE project leading management of the national NGO partners in the study and on developing recommendations from STRiDE's research.
Collaborator Contribution ADI are an international NGO partner for the STRiDE project leading management of the national NGO partners in the study and on developing recommendations from STRiDE's research.
Impact Ongoing
Start Year 2017
 
Description International partner: DAI 
Organisation Dementia Alliance International
Country United States 
Sector Charity/Non Profit 
PI Contribution DAI are an international partner for the STRiDE project supporting the active participation/involvement of people living with dementia
Collaborator Contribution DAI are an international partner for the STRiDE project supporting the active participation/involvement of people living with dementia
Impact Ongoing
Start Year 2017
 
Description International research partner: BSMS 
Organisation University of Sussex
Department Brighton and Sussex Medical School
Country United Kingdom 
Sector Academic/University 
PI Contribution BSMS are international research partners within the STRiDE project, leading on workpackages to collect new qualitative data for the study across the 7 STRiDE countries. They are also part of the management of the project
Collaborator Contribution BSMS are international research partners within the STRiDE project, leading on workpackages to collect new qualitative data for the study across the 7 STRiDE countries. They are also part of the management of the project
Impact Ongoing
Start Year 2017
 
Description NGO partner in India 
Organisation Alzheimer's and Related Disorders Society of India
Country India 
Sector Charity/Non Profit 
PI Contribution ARDSI is the NGO partner in the STRiDE project and will be support the country research team with research activities within India for the study, and carrying out additional activities to support impact and advocacy from the project
Collaborator Contribution ARDSI is the NGO partner in the STRiDE project and will be support the country research team with research activities within India for the study, and carrying out additional activities to support impact and advocacy from the project
Impact Ongoing
Start Year 2017
 
Description NGO partner in Indonesia 
Organisation Alzheimer Indonesia
Country Indonesia 
Sector Charity/Non Profit 
PI Contribution AI is the NGO partner in the STRiDE project and will be support the country research team with research activities within Indonesia for the study, and carrying out additional activities to support impact and advocacy from the project
Collaborator Contribution AI is the NGO partner in the STRiDE project and will be support the country research team with research activities within Indonesia for the study, and carrying out additional activities to support impact and advocacy from the project
Impact Ongoing
Start Year 2017
 
Description NGO partner in Jamaica 
Organisation Alzheimers Jamaica
Country Jamaica 
Sector Charity/Non Profit 
PI Contribution AJ is the NGO partner in the STRiDE project and will be support the country research team with research activities within Jamaica for the study, and carrying out additional activities to support impact and advocacy from the project
Collaborator Contribution AJ is the NGO partner in the STRiDE project and will be support the country research team with research activities within Jamaica for the study, and carrying out additional activities to support impact and advocacy from the project
Impact Ongoing
Start Year 2017
 
Description NGO partner in Kenya 
Organisation Alzheimer's & Dementia Organisation Kenya
Country Kenya 
Sector Charity/Non Profit 
PI Contribution ADOK is the NGO partner in the STRiDE project and will be support the country research team with research activities within Kenya for the study, and carrying out additional activities to support impact and advocacy from the project
Collaborator Contribution ADOK is the NGO partner in the STRiDE project and will be support the country research team with research activities within Kenya for the study, and carrying out additional activities to support impact and advocacy from the project
Impact Ongoing
Start Year 2017
 
Description NGO partner in South Africa 
Organisation Alzheimer's South Africa NPC
Country South Africa 
Sector Charity/Non Profit 
PI Contribution ASA is the NGO partner in the STRiDE project and will be support the country research team with research activities within South Africa for the study, and carrying out additional activities to support impact and advocacy from the project
Collaborator Contribution ASA is the NGO partner in the STRiDE project and will be support the country research team with research activities within South Africa for the study, and carrying out additional activities to support impact and advocacy from the project
Impact Ongoing
Start Year 2017
 
Description NGO partnership in Brazil 
Organisation Federation of Brazilian Alzheimer's Associations
Country Brazil 
Sector Charity/Non Profit 
PI Contribution FEBRAZ is the NGO partner in the STRiDE project and will be support the country research team with research activities within Brazil for the study, and carrying out additional activities to support impact and advocacy from the project
Collaborator Contribution FEBRAZ is the NGO partner in the STRiDE project and will be support the country research team with research activities within Brazil for the study, and carrying out additional activities to support impact and advocacy from the project
Impact Ongoing
Start Year 2017
 
Description Research partner in India 
Organisation National Institute of Mental Health and Neurosciences
Country India 
Sector Hospitals 
PI Contribution NIMHANS is a research partner in the STRiDE project and will be carrying out research activities within India for the study
Collaborator Contribution NIMHANS is a research partner in the STRiDE project and will be carrying out research activities within India for the study
Impact Ongoing
Start Year 2017
 
Description Research partner in Indonesia 
Organisation Atma Jaya Catholic University of Indonesia
Country Indonesia 
Sector Academic/University 
PI Contribution The University is a research partner in the STRiDE project and will be carrying out research activities within Indonesia for the study
Collaborator Contribution The University is a research partner in the STRiDE project and will be carrying out research activities within Indonesia for the study
Impact Ongoing
Start Year 2017
 
Description Research partner in Jamaica 
Organisation University of the West Indies
Country Barbados 
Sector Academic/University 
PI Contribution The University is a research partner in the STRiDE project and will be carrying out research activities within Jamaica for the study
Collaborator Contribution The University is a research partner in the STRiDE project and will be carrying out research activities within Jamaica for the study
Impact Ongoing
Start Year 2017
 
Description Research partner in Kenya 
Organisation African Mental Health Foundation
Country Kenya 
Sector Charity/Non Profit 
PI Contribution AMHF is a research partner in the STRiDE project and will be carrying out research activities within Kenya for the study
Collaborator Contribution AMHF is a research partner in the STRiDE project and will be carrying out research activities within Kenya for the study
Impact Ongoing
Start Year 2017
 
Description Research partner in Mexico 
Organisation National Institute of Genetics
Country Japan 
Sector Academic/University 
PI Contribution NIG is a research partner in the STRiDE project and will be carrying out research activities within Mexico for the study
Collaborator Contribution NIG is a research partner in the STRiDE project and will be carrying out research activities within Mexico for the study
Impact Ongoing
Start Year 2017
 
Description Research partner in South Africa 
Organisation University of Cape Town
Country South Africa 
Sector Academic/University 
PI Contribution The University is a research partner in the STRiDE project and will be carrying out research activities within South Africa for the study. They are also part of the management team for STRiDE
Collaborator Contribution The University is a research partner in the STRiDE project and will be carrying out research activities within South Africa for the study. They are also part of the management team for STRiDE
Impact Ongoing
Start Year 2017
 
Description Research partnership in Brazil 
Organisation University of Sao Paulo
Country Brazil 
Sector Academic/University 
PI Contribution The University of Sao Paulo is a research partner in the STRiDE project and will be carrying out research activities within Brazil for the study.
Collaborator Contribution The University of Sao Paulo is a research partner in the STRiDE project and will be carrying out research activities within Brazil for the study.
Impact Ongoing
Start Year 2017
 
Description Invited presentation on STRiDE project, strengthening responses to dementia in developing countries for GCRF umbrella group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Invited presentation on STRiDE project, strengthening responses to dementia in developing countries for GCRF umbrella group
Year(s) Of Engagement Activity 2017
 
Description A Comas-Herrera was invited to speak at the Regional Policy Dialogue: Pillars of Long-term Care organized by the Inter-American Development Bank in Washington DC (US) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact The Regional Policy Dialogue is an Inter-American Development Bank initiative that seeks to facilitate dialogue between Ministers and Deputy Ministers to exchange experiences and ideas on policy opportunities that contribute to the development agendas of Latin American and Caribbean countries.

This event featured the participation of worldwide experts and IDB specialists to learn about and debate four key issues in the design and implementation of a long-term care system: Who to provide long-term care services for? What services to provide? How to ensure the quality of long-term care? How to finance the system? In addition, the event offered the opportunity to discuss the role of technology n long-term care, among other topics.

Adelina Comas-Herrera was invited to present on the implications of dementia for long-term care systems, introduced the STRiDE project's approach and, with Mariana Lopez-Ortega (from STRiDE Mexico) and Ricardo Pérez-Cuevas (a Senior Health Specialist from the IDB who is in the STRiDE Jamaica National Advisory Group held a panel session discussing experiences of carrying out STRiDE in Mexico and Jamaica and the value of this approach (this is available on video). Adelina's presentation also included material from the MODEM project.

Following this presentation, Adelina Comas-Herrera has been in discussions about the possibilities to carrying out STRiDE in other countries in the American continent, including Argentina, Peru and Cuba.
Year(s) Of Engagement Activity 2019
URL https://vimeo.com/380828669
 
Description A. Comas-Herrera participated as as an expert to the technical meeting "Capacity building for Community-based Long-Term Care" organized jointly by the Asia-Pacific Economic Cooperation (APEC), the National Institute of Geriatric Medicine of Mexico (INGER), the Pan-American Health Organization/ World health Organization (PAHO/WHO) and the International Association of Gerontology and Geriatrics (IAGG) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Technical meeting on "Capacity building for Community-based Long-Term Care" organized jointly by the Asia-Pacific Economic Cooperation (APEC), the National Institute of
Geriatric Medicine of Mexico (INGER), the Pan-American Health Organization/ World health Organization (PAHO/WHO) and the International Association of Gerontology and Geriatrics (IAGG).
The workshop was a 3-day event with the objective of analyzing the experiences of design and implementation of community-based long-term care (LTC) in economies from the Asia-Pacific and the Americas regions. In addition, the National Institute of Geriatric Medicine of Mexico proposed the fundamentals for the development of a system of LTC potentially applicable to other international contexts.
The team working on the development of a system of LTC built on the use of Theory of Change for strategic planning developed as part of the STRiDE project.
Adelina Comas-Herrera presented on evidence requirements for LTC policy planning and on LTC financing.
Year(s) Of Engagement Activity 2019
URL http://www.geriatria.salud.gob.mx/contenidos/institucional/desarrollo-capacidades-apec-inger.html
 
Description A. Comas-Herrera was invited as a panellist at the National Academies of Science led The Global Roadmap for Healthy Longevity workshop held in Singapore 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact The Global Roadmap for Healthy Longevity (led by the US National Academies of Science) is an international, independent, and multidisciplinary initiative that will develop a comprehensive report assessing the challenges presented by population aging. Through evidence-based recommendations, the report will demonstrate how these challenges can be translated into opportunities for societies globally. The report will be informed by workstreams in three domains:

Social, Behavioral, and Environmental Enablers
Health Care Systems and Public Health
Science and Technology

A. Comas-Herrera was a panellist in one of the sessions of the Health Care Systems and Public Health workshop held in Singapore, she was asked to speak about Long-Term Care financing and the role of unpaid care, she built on her work in the MODEM and STRiDE projects.
Following her presentation she was asked by JOHN EU-LI WONG, who is drafting the report, to submit further information and papers.
Year(s) Of Engagement Activity 2020
URL https://nam.edu/wp-content/uploads/2020/01/NAM-Health-Care-Public-Health-Roadmap-Workshop-Agenda_FIN...
 
Description AAIC Satellite Symposium in Bengaluru, India (Wendy Weidner) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Supporters
Results and Impact Wendy Weidner (ADI-STRiDE) was invited to speak, reviewing the global situation on dementia and the need for national plans. The presentation included the STRiDE project.
Year(s) Of Engagement Activity 2018
 
Description AAIC Satellite Symposium in Sao Paulo, Brazil (Wendy Weidner) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Wendy Weidner (ADI-STRiDE) was invited to speak, reviewing the global situation on dementia and the need for national plans. The presentation included the STRiDE project.
Year(s) Of Engagement Activity 2019
 
Description Alzheimer's Society Annual Conference, UK, keynote speaker (Wendy Weidner) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Wendy Weidner (ADI-STRiDE) was keynote speaker at the Alzheimer's Society Annual Conference (UK), reviewing the global situation on dementia and the need for national plans. The presentation included the STRiDE project.
Year(s) Of Engagement Activity 2018
URL https://www.alzheimers.org.uk/sites/default/files/2018-05/ASAC18%20FINAL%20PROGRAMME_1.pdf
 
Description Challenges of evaluating effectiveness in dementia research. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Challenges of evaluating effectiveness in dementia research: discussed outcomes and costs. Audience of researchers and policy people, Kuopio, Finland
Year(s) Of Engagement Activity 2019
 
Description Contribution as an external expert to the World Health Organisation "Workshop to support the implementation of the WHO global action plan on the public health response to dementia 2017-2025", Jakarta 6 and 7 November 2017 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact This was a workshop organised by the World Health Organisation to "support the implementation of the WHO global action plan on the public health response to dementia 2017-2025". During this workshop I acted as an external expert, facilitating discussions of ways forward in dementia policy development with groups of policy-makers and NGO representatives from various countries. The discussion with the representative of the ministry of health of India was particularly encouraging as, by considering the option of adding dementia to existing National Plans on NCDs and mental health rather than having to develop a whole new dementia plan, he could see a potential avenue to contribute to the development of national policy in dementia that he had not considered before. India is one of the countries in the STRiDE project and we plan to continue that dialogue as part of the project's work.
Year(s) Of Engagement Activity 2017
 
Description Contribution to a BBC World Service documentary on dementia 
Form Of Engagement Activity A broadcast e.g. TV/radio/film/podcast (other than news/press)
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact BBC World Service documentary on the costs of dementia care and how different countries are addressing it. I was involved in planning the documentary through a preparatory interview with the producer and was the main interviewee, acting as a "guide" to how care for people for dementia is financed and delivered in different parts of the world. This programme was one in a three part documentary on dementia: stigma, tackling the costs and "living and dying with dementia".
Year(s) Of Engagement Activity 2018,2019
URL https://www.bbc.co.uk/sounds/play/p06yq1h3
 
Description Creating dementia awareness on World Alzheimer's Day, Television mention of the STRiDE project 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Feature on dementia on the Kenya Television Network to raise awareness about dementia on World Alzheimer's Day (19th September 2018), reported by Alzheimer's and Dementia Organisation Kenya (reported by Elizabeth Mutunga, who was featured)
Year(s) Of Engagement Activity 2018
URL https://www.youtube.com/watch?v=EA59YgTY5DY&feature=youtu.be
 
Description Dementia Awareness event at University of Nairobi 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact Event to raise awareness about dementia at the University of Nairoby, organised by STRiDE's NGO partners in Kenya: Alzheimer and Dementia Organisation Kenya (reported by Elizabeth Mutunga)
Year(s) Of Engagement Activity 2018
 
Description Dementia Friendly Communities Conference in Taiwan, via video link (Wendy Weidner) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Wendy Weidner (ADI-STRiDE) was invited to speak about Dementia Friendly Communities and inclusion - particularly in research. The presentation included the STRiDE project.
Year(s) Of Engagement Activity 2019
 
Description Dementia awareness event at the PCEA Church, Kenya 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact Event to raise awareness about dementia at the PCEA church, Kenya, organised by Alzheimer and Dementia's Organisation Kenya (reported by Elizabeth Mutunga)
Year(s) Of Engagement Activity 2018
 
Description Federazione Alzheimer Italia's Beyond Stigma conference, Milan, Italy (Wendy Weidner) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Wendy Weidner (ADI-STRiDE) was invited to speak about the global situation on dementia, with a particular focus on stigma. The presentation included the STRiDE project, particularly work package 3 on stigma.
Year(s) Of Engagement Activity 2019
 
Description Future costs and outcomes (for dementia); and projections of how to change them. OECD event, Paris 2019 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Future costs and outcomes; and projections of how to change them. This meeting was to share research methods and findings with a group from a range of OECD countries
Year(s) Of Engagement Activity 2019
 
Description Getting the mental health of older people into national policy agenda. Hong Kong JoyAge Symposium; and follow-on 4-day course on mental health economics at The University of Hong Kong 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presentation and course to teach new skills, share new evidence, extend impact range
Year(s) Of Engagement Activity 2019
 
Description Global challenges, World Dementia Council event, Tokyo, 2019 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Presentation of MODEM, STRiDE and other work to raise awareness of economic issues and policy challenges
Year(s) Of Engagement Activity 2019
 
Description Hong Kong seminar: Introduction to Theory of Change for the Development and Evaluation of Complex Interventions for Mental Health and Aged Care (Erica Breuer) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Presentation on STRiDE and the Theory of Change in Hong Kong at an invited seminar on 18 June 2019 to provide the foundation for ToC development and dementia related work in Honk Kong.
Year(s) Of Engagement Activity 2019
 
Description International Forum on Women's Brain and Mental Health, Zurich, Switzerland (Wendy Weidner) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Wendy Weidner (ADI-STRiDE) was invited to speak about the impact of dementia on women - particularly impact of care giving. The presentation included the STRiDE project.
Year(s) Of Engagement Activity 2019
 
Description International Society for Pharmacoeconomics and Outcomes Research (ISPOR) and International Alliance of Patient Organisation (IAPO) conference, Copenhagen, Denmark (Wendy Weidner) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Wendy Weidner (ADI-STRiDE) was invited to speak about including the patient voice in research and policy. The presentation included the STRiDE project.
Year(s) Of Engagement Activity 2019
 
Description International Symposium on Dementia Prevention and Care 2019, Pingtung, Taiwan (Wendy Weidner) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Wendy Weidner (ADI-STRiDE) was invited to speak about the global situation on dementia, with a particular focus on stigma. The presentation included the STRiDE project, particularly work package 3 on stigma.
Year(s) Of Engagement Activity 2019
 
Description Invitation to take part in a workshop within the mhGAP forum 2018 organised by the World Health Organisation 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Adelina Comas-Herrera was invited to attend the mhGAP 2018 forum by the World Health Organisation, specifically to take part in a workshop to develop the WHO's work on dementia care pathways. She was asked to share work done as part of the MODEM project Dementia Care Pathway in England and also discussed plans to map the dementia care pathways in 7 developing countries, as part of the STRiDE project.
Year(s) Of Engagement Activity 2018
URL https://www.who.int/mental_health/mhgap/forum_2018/en/
 
Description Invited plenary presentation to the World Psychiatric Association meeting, Melbourne, Australia, on investing in mental health reform 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Plenary talk to highlight the economic arguments for investing in mental health reform.
Year(s) Of Engagement Activity 2018
 
Description Invited presentation at Alzheimer's Disease International conference, Jakarta, Indonesia, on using economic evidence to improve dementia care 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Patients, carers and/or patient groups
Results and Impact Presentation of how we have been building economic evidence to support improved policy and practice for people with dementia and their carers in the UK, feeding into a wider international debate.
Year(s) Of Engagement Activity 2017
 
Description Invited presentation at Trinity College, Dublin, on economic case for better policy, treatment and care for dementia. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Postgraduate students
Results and Impact Seminar for Fellows (from across the world) on the Global Brain Health Institute Programme, presenting on our dementia research.
Also an informal mentoring session with a number of those Fellows, plus some one-to-one meetings
Year(s) Of Engagement Activity 2018
 
Description Invited presentation conference organised by Colombia University, New York, on healthier longer lives, New York City, focusing on dementia economic evidence 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact International conference on mental and physical health. Session chair and presentation on dementia-related activities
Year(s) Of Engagement Activity 2018
 
Description Invited presentation to a Universities UK event on research collaboration with the third sector. 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact I was asked to talk about how researchers view links to third sector funding bodies as well as others. Illustrations came from three studies, including STRiDE
Year(s) Of Engagement Activity 2018
 
Description Invited presentation to the LSE Global Health Initiative on STRiDE project 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Postgraduate students
Results and Impact Description of the approach and main findings (to date) from MODEM, and then an introduction to STRiDE.
Year(s) Of Engagement Activity 2018
 
Description Invited presentation, Research School of Population Health, Australian National University, Canberra, on mental health and dementia: how economic evidence can make a difference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact University seminar with non-academic as well as academic audience; presentation of LSE economics research on mental health and dementia.
Year(s) Of Engagement Activity 2018
 
Description Invited speaker at the 2018 Global Brain Health Institute Conference, focusing on the STRiDE project, in Buenos Aires, Argentina 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Keynote presentation on costs of dementia in Latin America, introducing key issues to consider about how to estimate the costs of dementia and how to interpret and use the results to inform policy change. The presentation covered an overview of the STRiDE project. At the end of the conference was also asked to give a more detailed presentation about the STRiDE project to GBHI fellows, this was attended by over 30 people (GBHI fellows and staff) and there was a very good discussion.
Year(s) Of Engagement Activity 2018
URL https://www.unaj.edu.ar/wp-content/uploads/2018/04/Programa-y-detalles-3RD-ANNUAL-GLOBAL-BRAIN-HEALT...
 
Description Invited to deliver a lecture at Dementia Masterclass organised by the Centre for Economic and Social Research on Dementia at NUI Galway, supported by the Global Brain Health Institute at Trinity College Dublin and the University of California at San Francisco. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Postgraduate students
Results and Impact Dementia Masterclass organised by the Centre for Economic and Social Research on Dementia at NUI Galway, supported by the Global Brain Health Institute at Trinity College Dublin and the University of California at San Francisco.The objectives of the Masterclass are: to build research capacity in dementia among early and mid-career researchers; to deepen understanding of key dementia concepts; and to equip researchers with skills and expertise in conducting cutting-edge and high quality research in dementia. The Masterclass will also provide early-career researchers an opportunity to discuss practical and methodological issues in social and economic research in dementia with leading world experts in dementia. This Masterclass has generated at least five follow up discussions about potential collaborations, particularly with the Global Brain Health Institute.
Year(s) Of Engagement Activity 2017
URL http://cesrd.ie/wp-content/uploads/2017/11/Dementia-Masterclass-Programme-Final.pdf
 
Description Joys and challenges of a rapidly ageing population: how can we respond? 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Conference on ageing in cities around the world.
Seoul
Year(s) Of Engagement Activity 2019
 
Description Keynote presentation at the Alzheimer Disease International Asia-Pacific conference in Jakarta, Indonesia, November 2017 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Third sector organisations
Results and Impact I was invited to deliver a keynote at the Alzheimer Disease International Asia-Pacific conference in Jakarta, Indonesia. My presentation was entitled: "The costs of dementia: preparing for the future". This followed up with many conversations about potential research collaborations.
Year(s) Of Engagement Activity 2017
URL https://www.alzi.or.id/conference
 
Description Launch event of the STRiDE project in Indonesia 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact STRiDE project launch at Atma Jaya University, Jakarta (Indonesia), involving stakeholders including policymakers, other academics, other NGOs. (19th April 2018)
Year(s) Of Engagement Activity 2018
 
Description Member of the advisory group of the NIHR-funded Global Health Research Group on Dementia Prevention and Enhanced Care (DePEC) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Membership (Adelina Comas-Herrera) of the advisory group of the Global Health Research Group on Dementia Prevention and Enhanced Care (DePEC), an NHIR funded research initiative led by Newcastle University which involves researchers in Malaysia, Tanzania and Kerala. There will be 6-monthly meetings during until the end of the project (2020). There is potential for collaboration and learning across STRiDE and DePEC, and this was discussed during the first advisory group meeting.
Year(s) Of Engagement Activity 2018
URL https://research.ncl.ac.uk/global_health_depec/aboutourproject/
 
Description Nicolas Farina and Adelina Comas-Herrera: Advisory Group Panel Membership - Care Networks in Later Life 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Nicolas Farina joined an Advisory Group as a panel member for the project Care Networks in Later Life: A comparative study of Indonesia (CI: Dr Elisabeth Schroder-Butterfill, University of Southampton) (January 2020-Present) where he and Adelina Comas-Herrera are advising on study methodology, ensuring there is a level of overlap between studies.
Year(s) Of Engagement Activity 2019,2020
 
Description Participation at WHO Regional Meeting, Beirut discussing national dementia plans in the EMRO region 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Wendy Weidner (ADI/STRiDE) took part in a World Health Organisation regional meeting in the EMRO region in Beirut (Lebanon) to discuss supporting the development of national dementia plans
Year(s) Of Engagement Activity 2018
 
Description Participation in WHO Global Burden of Dementia roundtable, Geneva, Switzerland (Wendy Weidner) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Wendy Weidner (ADI-STRiDE) was invited to take part in roundtable discussion on incidence and prevalence/global burden of dementia and cost of care. The STRiDE project and research being conducted was part of this conversation.
Year(s) Of Engagement Activity 2019
 
Description Presentation about the STRiDE project at an international "train the trainer" event on Dementia Care Skills in Jakarta 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Third sector organisations
Results and Impact Presentation about the STRiDE project at an international "train the trainer" event on Dementia Care Skills in Jakarta, organised by Alzheimer Disease International, 28th April 2018, to an audience from 12 countries of the Asia-Pacific region, the audience were mostly members of Alzheimer Associations from mostly low and middle income countries in the Asia-Pacific region, ranging from Iran to Myammar, and there were a number of family carers and professional practitioners from Indonesia.
Year(s) Of Engagement Activity 2018
 
Description Presentation and discussion of the STRiDE project to ADI's medical and scientific advisory panel 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Third sector organisations
Results and Impact Wendy Weidner (ADI/STRiDE) presented on the STRiDE partner at the Alzheimer Disease International Medical and Scientific Advisory panel. She discussed the STRiDE project and anticipated outcomes
Year(s) Of Engagement Activity 2018
 
Description Presentation at Global 'Together Against Stigma Conference' 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact As part of a symposium on global dementia and anti-stigma initiatives, Dr. Evans-Lacko presented a presentation on the Current knowledge, attitudes and behaviour in relation to dementia worldwide
Year(s) Of Engagement Activity 2019
URL https://againststigma2019.com/
 
Description Presentation at global 'Together Against Stigma' conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Dr. Christine Musyimi, a Stride postdoctoral researcher in Kenya and with support from the work package leader Dr. Sara Evans-Lacko, presented a talk on: Community-perceptions towards people living with dementia in Kenya
Year(s) Of Engagement Activity 2019
URL https://againststigma2019.com/schedule/
 
Description Presentation at the Global Brain Health Institute, University of San Francisco California 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Postgraduate students
Results and Impact Professor Yuda Turana, senior researcher of the STRiDE project in Indonesia was invited to give a presentation about Dementia in Indonesia at the Global Brain Health Institute, University of San Francisco California
Year(s) Of Engagement Activity 2018
 
Description Presentation at the global 'Together Against Stigma' conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Dr. Deborah Oliveira, a Stride postdoctoral researcher in Brazil and with support from the work package leader Dr. Sara Evans-Lacko, presented a talk on: How can stigma influence access to care and the quality of life of people living with dementia in Brazil? Preliminary findings of a qualitative study
Year(s) Of Engagement Activity 2019
URL https://againststigma2019.com/
 
Description Presentation to GBHI fellows at the Alzheimer's Society - Klara Lorenz 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presentation on 16 July to the Global Brain Health Institute Fellows at the Alzheimer's Society in London on 16 July 2019.
Year(s) Of Engagement Activity 2019
 
Description Press release about launch of STRiDE project in Indonesia 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Media (as a channel to the public)
Results and Impact Press release to announce the launch of the STRiDE dementia project in Indonesia, published in four national newspapers
https://www.republika.co.id/berita/pendidikan/dunia-kampus/18/04/19/p7fy4h284-penanganan-demensia-perlu-lintas-sektor

http://hariansuara.com/news/kesehatan/10584/indonesia-luncurkan-program-penelitian-alzheimer-skala-global

http://www.kalderanews.com/2018/04/yayasan-alzi-dan-unika-atma-jaya-jakarta-luncurkan-proyek-stride.html
Year(s) Of Engagement Activity 2018
URL https://www.republika.co.id/berita/pendidikan/dunia-kampus/18/04/19/p7fy4h284-penanganan-demensia-pe...
 
Description STRiDE participation at a WHO regional meeting in Brazzaville, Congo on development of national dementia plans in the Africa region 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Wendy Weidner, Alzheimer Disease International STRiDE liaison, took part in a World Health Organisation regional meeting in Brazzaville, Congo, taking part in discussions around developing national dementia plans in the Africa region
Year(s) Of Engagement Activity 2018
 
Description Seminar at Atma Jaya Catholic University School of Medicine in Jakarta, Indonesia, 8th November 2017 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact I was invited to give a seminar on "The costs of dementia: preparing for the future" to 40 staff and students at the School of Medicine at Atma Jaya Catholic University, in Jakarta, Indonesia. The seminar involved a discussion with the participants.
Year(s) Of Engagement Activity 2017
 
Description Seminar: International Perspectives on Dementia Policymaking 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact AM TO ADD
Year(s) Of Engagement Activity 2020
 
Description Social care responses to ageing populations 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Talk to open event for citizens of Seoul
Year(s) Of Engagement Activity 2019
 
Description Stride: strengthening responses to dementia in developing countries. ENMESH conference Lisbon 2019. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Summary of STRiDE study and how we are seeking to reach into policy communities in LMICs
Year(s) Of Engagement Activity 2019
 
Description Theory of Change Workshop (International) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Study participants or study members
Results and Impact Theory of Change workshop for STRiDE overall programme attended by study team, WHO and Dementia Alliance International. Provided the basis for national ToC workshops within STRiDE and the basis for core components of the study, such as STRiDE's training programme.
Year(s) Of Engagement Activity 2018
 
Description Theory of Change Workshop for STRiDE project 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Study participants or study members
Results and Impact A Theory of Change workshop was hosted at LSE on 9 and 10 March 2018 for the STRiDE project. This led to the development of a ToC map which will feed into the monitoring and evaluation process for the project. Participants were country researchers and Alzheimer's Associations in seven countries - Brazil, India, Indonesia, Jamaica, Kenya, Mexico and South Africa - who are all partners in the study, and the international team from LSE, Brighton and Sussex Medical Science, Alzheimer's Disease International. An individual living with dementia and her carer participated as representatives of Dementia Alliance International. Our ESRC liaison officer participated and a colleague from the World Health Organization. This involved discussion and questions on the project's potential impact, its activities and mechanisms to achieve impact. It also acted as a training event for the 7 countries who will carry out the same workshop nationally.
Year(s) Of Engagement Activity 2018
 
Description Theory of Change workshop: Brazil 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact National Theory of Change workshop for STRiDE involving key stakeholders at the national level
Year(s) Of Engagement Activity 2018
 
Description Theory of Change workshop: India 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact National Theory of Change workshop for STRiDE involving key stakeholders at the national level
Year(s) Of Engagement Activity 2018
 
Description Theory of Change workshop: Indonesia 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact National Theory of Change workshop for STRiDE involving key stakeholders at the national level
Year(s) Of Engagement Activity 2018
 
Description Theory of Change workshop: Jamaica 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact National Theory of Change workshop for STRiDE involving key stakeholders at the national level
Year(s) Of Engagement Activity 2018
 
Description Theory of Change workshop: Kenya 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact National Theory of Change workshop for STRiDE involving key stakeholders at the national level
Year(s) Of Engagement Activity 2018
 
Description Theory of Change workshop: Mexico 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact National Theory of Change workshop for STRiDE involving key stakeholders at the national level
Year(s) Of Engagement Activity 2018
 
Description Theory of Change workshop: South Africa 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact National Theory of Change workshop for STRiDE involving key stakeholders at the national level
Year(s) Of Engagement Activity 2018
 
Description Training workshop for STRiDE Engagement and Impact Leads (NGO partners) on knowledge exchange and impact planning 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Study participants or study members
Results and Impact The STRiDE NGO partners lead on workpackage 10 within the project which focuses on knowledge exchange, impact and engagement (KEIE) activities. The partners came together in London in January 2020 for a week to work on their KEIE plans focusing on setting impact goals, identifying stakeholders, planning activities and exploring impact indicators.
Year(s) Of Engagement Activity 2019,2020
 
Description Using economic evidence to improve dementia care 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Invited presentation on using economic evidence to improve dementia care at the 20th Alzheimer's Disease International Asia Pacific Regional Conference in Jakarta in 4 November 2017. Opportunity to share MODEM findings and introduce the STRiDE study. This led to discussion and questions afterwards, and contact from individuals to discuss these projects.
Year(s) Of Engagement Activity 2017
 
Description WISH Oxford Series 2019 Dementia Workshop: Taking Stock and Seeking a way Forward, Oxford, UK (Wendy Weidner) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact Wendy Weidner (ADI-STRiDE) was invited to speak about the global situation on dementia and innovation in research. The presentation included the STRiDE project.
Year(s) Of Engagement Activity 2019
 
Description Webinar about the STRiDE project for members of Dementia Alliance International 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Patients, carers and/or patient groups
Results and Impact Adelina Comas-Herrera was invited to do a webinar for members of Dementia Alliance International (DAI), an international non-profit organisation of people living with dementia. The webinar consisted of a formal presentation followed by a discussion with members of DAI from all over the world, focusing in particular on the challenges of ensuring people living with dementia in low and middle income countries can take part in research and advocy. DAI members with experience in taking part in research and advocacy offered to support people living with dementia taking part in STRiDE activities.
Year(s) Of Engagement Activity 2018
URL https://www.dementiaallianceinternational.org/tag/adelina-comas-herrera/
 
Description Webinar on presentation skills for early career researchers in the STRiDE project, plus some other early career researchers from outside STRiDE. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Postgraduate students
Results and Impact Webinar on presentation skills for early career researchers in the STRiDE project, plus some other early career researchers from outside STRiDE.
Year(s) Of Engagement Activity 2019
 
Description Wendy Weidner - Membership of the advisory committee of Cognitive Stimulation Therapy (CST): International project research project 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Wendy Weidner has been invited to be a member of the advisory committee of the CST-International project, led by University College London. As part of the group she has been able to provide advice to strengthen the project and consider links with the STRiDE project, as both projects are considering responses to dementia in developing countries. The CST-International project focuses on providing evidence-based, group non-pharmacological intervention which can significantly improve cognition and quality of life for people living dementia. It is low cost, does not require specialist equipment and can be provided by community workers. This project focuses on an upper middle (Brazil), a lower middle (India), and a low income (Tanzania) country.
Year(s) Of Engagement Activity 2019