Administrative Data Research Centres 2018

Lead Research Organisation: Queen's University of Belfast
Department Name: Centre for Public Health

Abstract

There is great potential for understanding more about our society through better use of data that already exists and by linking different datasets together. Using existing data is not only efficient and cheaper than collecting new data, but it can also provide a powerful means to consider what action is needed to tackle a wide range of social issues, guiding the development, implementation and evaluation of government policies. This can be achieved in a way that ensures that the public have the maximum confidence that their data are being used appropriately and that the safeguards of these data meet the highest international standards.

The Administrative Data Research Centre (ARDC) in Northern Ireland (NI) comprises the two universities and NISRA, the local governmental statistics agency. Over the last five years, in collaboration with government bodies and the voluntary and community sectors, the widened access to administrative datasets in Northern Ireland, has enabled us to undertake a range of research projects that have informed government and public services. We have also greatly increased the number of researchers both in academia and government able to manage and analyse these large and complex datasets required to undertake this type of research.

While our primary objective for the ADRC over the next 30 months will be to maintain the confidence of the different publics in the use of administrative data for research, our renewed focus will be to build on our work in fostering commitment from Government in NI and throughout the UK to an increased access to and use of administrative data. This will help us maximise the potential of administrative data as a rich resource for evidence-based policy making and evaluation. Our emphasis in this short period will be the rapid delivery of targeted, high impact research-related activities essential to data custodians. To do so, we will extend the use of administrative data that is available and accessible. Importantly, we will continue to strengthen the impact of our research portfolio through more focused knowledge exchange activities. In collaboration with our NISRA partners, we will engage with data custodians ensuring that we take into account their priorities in the policy process cycle and that our research activities in this period are focussed on the timely delivery towards NI Government objectives.

We will also undertake a modest portfolio of world-class research projects at both NI and UK level that quickly demonstrates to respective data owners the utility and potential policy impact of using administrative data for research. Within NI, the ADRC and NISRA, will help develop Strategic Impact Programmes (SIP), prioritising the needs of the different Government departments and informing the NI Program for Government (PfG). Each of the SIPs will be accompanied by focused knowledge exchange packages co-designed and delivered by the data custodians.

A major objective for the ADRC will be to demonstrate to Whitehall Departments the potential utility of their administrative data. We will therefore continue to develop large multipurpose research datasets under the 'Growing Old' Themed Partnership and undertake a series of research programmes addressing the Areas of Research Interest (ARI) that set out the most important research questions facing the collaborating UK Government Departments. We will also contribute to the development and delivery of the wider pan-UK research agenda arising from the Strategic Hub.

Planned Impact

ESRC has identified in the Service Design Framework for Administrative Data Research over the 2018,-2021 period, that data owners and government organisations are the primary intended beneficiaries of the Centre. This is so that the benefits of widened access to administrative data are demonstrated in relation to the proximal priorities of data owners in order to foster productive data sharing relationships over the long term. Other beneficiaries will include the different publics and civil society at large and although secondary in nature we need to maintain our transparency about the activity and outputs to ensure that the ADRP continues to benefit from the social licence it operates under.

The ADRC concurs with the SDF with a focus on both local (NI-level) and UK-level (mainly Whitehall) data owners. However, the need to deliver impactful research within a relatively short timeframe necessitates building Programme for Government (PfG)-related Strategic Impact Programmes (SIPs) around data that are readily available so initial impact is likely to be greatest for these data owners. The ADRC will also be undertaking a body of research that will use ONS, DWP and HMRC data with the aim of contributing to the Areas of Research Interest of these organisations.

The ADRP requirements will require an intensification of our previous endeavours in NI over the last 5 years, which have already changed the attitudes and willingness of individual departments within Government to make their administrative data available for research. NI has had notable success in increasing access to such data and Departments here increasingly perceive the ADRC as a valuable potential resource for addressing their research and policy needs.

The ADRC, in collaboration with our National Statistical Agency (NISRA) and building on their extensive Government links, will help key policy and decision-makers within NI Government Departments formulate and prioritise a research agenda (SIP) that will inform the PfG. It is anticipated that much of this work will have been completed by the end of 2018. This process will be a partnership with data owners engaged and participating across the entire research journey from design to delivery. The aim is to validate Departmental buy-in by producing research outputs that quickly demonstrate the utility of using linked administrative data to generate new knowledge in PfG-related areas. This will be aided by increased opportunity for data owner and researcher interaction through the Administrative Data Forum, Data Workshops and User Group.

All of these activities will be underpinned by a series of targeted knowledge exchange activities led by the ADRC Policy Champion bringing researchers, policymakers and significant stakeholders together to enhance the potential for impact of the research. These will include project-specific events for relevant data owners and more general dissemination events targeted at senior cross-Departmental groups to showcase the benefits of administrative data research to a wider audience. We also plan to hold a series of topic specific symposia related to completed, ongoing and scheduled research work packages both in NI and England. The ADRC will also utilise existing institutional structures designed to maximise engagement with the machinery of Government. These include Knowledge Exchange Seminar Series (KESS), an innovation that brings academic findings directly to Assembly members; hosting and providing briefings to specific Assembly Committees and disseminating and promoting research to key policy makers through an All-Party Parliamentary Group.

ADRC will also strive for continued public participation in all aspects of the research processes and we will continue to engage with the publics, such as the Commissioners offices, and voluntary and community organisations, who have an enormous potential to influence decision makers within government.

Publications

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Bosqui T (2019) First-generation migrants' use of psychotropic medication in Northern Ireland: a record linkage study. in International journal of mental health systems

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Bosqui T (2019) First-generation migrants' use of psychotropic medication in Northern Ireland: a record linkage study. in International journal of mental health systems

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Garcia Jalon G (2018) A population-based data-linkage study of prescribed pain medications dispensed to persons with cerebral palsy in International Journal of Population Data Science

 
Description The principle outcome has been the increased recognition amongst data custodians and policy maker of the utility of using linked administrative data to produce new knowledge which can be used to inform policy. This has been part of an ongoing development and maturation in thinking, but more recently there has been a sea-change in that some government departments are proactively coming to us for help in answering their policy-related answers.
Exploitation Route This will vary according to the specific sub-study within the Strategic Research Projects. In most cases the findings are just being produced and shared with the respective stakeholders of the Project Steering Committees, so it is a little too early to say what the definitive outcome will be at this stage.
Sectors Communities and Social Services/Policy,Healthcare,Government, Democracy and Justice

 
Description Each of the five Strategic Impact Programmes will have one or two sub-project and each of these will have a Project Steering Committee, which in addition to the research team comprises, amongst others, a representatives of senior policy (and/or) data owner, appropriate voluntary sector and often representatives of the 'target' study group. This ensures a co-production model of research, a check and sounding board for findings and increases the potential for incorporation of findings into policy/strategy.
First Year Of Impact 2018
Sector Communities and Social Services/Policy,Healthcare,Government, Democracy and Justice
Impact Types Policy & public services

 
Description Informing Northern Ireland Looked After Children Strategy
Geographic Reach National 
Policy Influence Type Citation in other policy documents
URL https://www.adruk.org/fileadmin/uploads/adruk/Documents/Data_Insights-_Children_s_mental_health_and_...
 
Description Use of administrative data for Housing policy development
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Participation in a advisory committee
 
Description Workshop on administrative data for policy development for homelessness in Northern Ireland
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Participation in a advisory committee
 
Description maximising the value of administrative data: a meeting at the Institute for Government
Geographic Reach National 
Policy Influence Type Participation in a advisory committee
 
Description A pilot ADRC-NI project linking Social Security Benefits to understand the health and social needs of disability benefit claimants. ESRC Secondary Data Analysis Initiative
Amount £200,000 (GBP)
Funding ID ES/N012003/1 
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 03/2017 
End 09/2018
 
Description ESRC SDAI Enhancing the population-wide Northern Ireland Registry of Self-Harm and Suicide Ideation through data linkage
Amount £200,000 (GBP)
Funding ID ES/R011400/1 
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 12/2018 
End 05/2019
 
Description MQ Data Science Programme 2016
Amount £49,662 (GBP)
Funding ID MQDS16\27 
Organisation MQ Transforming Mental Health 
Sector Charity/Non Profit
Country United Kingdom
Start 11/2017 
End 10/2018
 
Description MRC Skills Development Fellowship
Amount £300,000 (GBP)
Funding ID MR/P014631/1 
Organisation Medical Research Council (MRC) 
Sector Public
Country United Kingdom
Start 11/2017 
End 10/2020
 
Description NILS/UKLS Small Research Grant to carry out research using the Office for National Statistics Longitudinal Study and Scottish Longitudinal Study.
Amount £5,000 (GBP)
Organisation Northern Ireland Longitudinal Study (NILS) 
Sector Public
Country United Kingdom
Start 09/2019 
End 09/2020
 
Description NILS/UKLS small grant scheme
Amount £5,000 (GBP)
Funding ID NILS/UKLS small grant scheme to carry out comparative analysis using NILS and SLS data 
Organisation Northern Ireland Longitudinal Study (NILS) 
Sector Public
Country United Kingdom
Start 10/2019 
End 09/2020
 
Description The Northern Ireland Longitudinal Study (NILS) to 2020
Amount £700,000 (GBP)
Funding ID ES/R008221/1 
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 04/2018 
End 03/2020
 
Title SOSCARE 
Description This is the UK's first longitudinal database of children known to social services in the UK. It contains data from Social Services records (SOSCARE records) from 1985-2015 linked to primary care registration data, mortality records, prescription medication data and hospital data. This data set was created in collaboration with the Administrative Data Research Centre - Northern Ireland. 
Type Of Material Database/Collection of data 
Year Produced 2019 
Provided To Others? No  
Impact This is the first time these Social Services data have been used for research purposes. As such, data quality varies year on year. One outcome so far has been recommendations from our partners in the Department of Health to their employees to ensure accurate recording of Health and Care number going forward to improve data quality for future users. The data itself has been used to produce documents which will be used to inform policy on Looked After Children in Northern Ireland. 
 
Description Department of Health - SOSCARE 
Organisation Health and Social Care in Northern Ireland (HSCNI)
Country United Kingdom 
Sector Public 
PI Contribution Development of a Project Steering Group to share findings from the project and to answered research questions which are of interest to the Department which can be answered by the data.
Collaborator Contribution Membership of a Project Steering Group to provide expert advice on the data used within the project, on the interpretation of findings and of the policy relevance or impact of the research. Also, providing research questions which are of interest to the Department which can be answered by the data.
Impact SOSCARE Steering Group Meeting (1) SOSCARE Steering Group Meeting (2) SOSCARE Steering Group Meeting (3) SOSCARE Steering Group Meeting (4) SOSCARE Steering Group Meeting (5) Data Insights Publication cited in the new Northern Ireland Strategy for Looked After Children 2020
Start Year 2019
 
Description Public Health Agency Self-Harm Steering Group 
Organisation Public Health Agency (PHA)
Country United Kingdom 
Sector Public 
PI Contribution This collaboration see's the research team invited to sit on the Public Health Agency Northern Ireland's Self-Harm Steering Group to feed back information on project progress and findings but also to gather information on key areas of policy interest in order to ensure the project research questions are policy relevant.
Collaborator Contribution The Public Health Agency Northern Ireland staff and Self-Harm Steering Group members provide time and expertise to answer researcher questions not only on the data but on he interpretation of findings.
Impact Self-Harm Steering Group Meeting Feb 2019. Self-Harm Steering Group Meeting May 2019. Self-Harm Steering Group Meeting Sept 2019. Self-Harm Steering Group Meeting Feb 2020.
Start Year 2019
 
Description Seeing the Whole Picture: A Holistic Analysis of the Profile of Pupils with Special Educational Needs (SEN) in Northern Ireland. 
Organisation Ulster University
Country United Kingdom 
Sector Academic/University 
PI Contribution I was jointly responsible for developing the research proposal intended for submission through the ADRN. I am a co-investigator on the project primarily responsible for the development of the project methodology.
Collaborator Contribution Partners in this project from the School of Education have developed the project in terms of theory, previous literature, identifying the pertinent research questions to be addressed and potential policy impact.
Impact This project has now been approved by the Administrative Data Research Network and we are currently still waiting on Department of Education Solicitors to give the go ahead for linkage of DE data with Census data. We have secured an ESRC grant from the SDAI stream and are currently working within the funding period. Given delays in access to DE data, we have proceeded with a NILS study ad also accessed area level education data from DE through FOI requests.
Start Year 2015
 
Description The Economic Burden Associated with Mental Ill Health Among Informal Caregivers in Northern Ireland 
Organisation Ulster University
Country United Kingdom 
Sector Academic/University 
PI Contribution This partnership has developed an proposal for an ADRN project examining the economic burden of mental ill health among informal carers in Northern Ireland. I was responsible for developing the proposal in terms of data required and methodology, drafting the ADRN application documents and grant application documents. The team have applied unsuccessfully for funding through both the HSE awards on Ageing and the ESRC Nine Doctoral Fellowship. The prospect of progression with this study is positive, as the project has been recently shortlisted for a fully funded within UU- interviews are due to take place in March and if successful a candidate will begin study in Sept 2020.
Collaborator Contribution The study partners have contributed to the study design, literature review, ethics application documentation, funding application and PhD proposal development.
Impact This project is multidisciplinary, drawing on expertise from psychology, nursing and health economics. Outputs thus far include an ADRN application- this application was approved in April 2016. In addition, an ethics application was submitted to an d approved by Ulster University Research Ethics Committee and ORECNI. Both were approved, the later in April 2016. A PhD proposal based on this study was submitted for an open PhD competition within the university and project has been shortlisted. At least three candidates have applied with interviews to take place in March 2020.
Start Year 2015
 
Description University of Helsinki, Finland 
Organisation University of Helsinki
Country Finland 
Sector Academic/University 
PI Contribution Developing a joint project as part of my MRC Fellowship exploring long term mental health outcomes in children known to social services in both Finland and Northern Ireland. I (NI research team) have completed data access applications, ethics applications, and arranged travel to Finland to carryout the analyses. Both teams will develop and write any subsequent papers together.
Collaborator Contribution The Finnish research team have organised the receipt of the Finnish data and aided in the application process. They have arranged a work space for me in the University of Helsinki. Both teams will develop and write any subsequent papers together.
Impact None as yet - in progress
Start Year 2018
 
Description A pilot ADRC-NI project linking social security benefits and Census data to understand the health and social needs of disability benefits claimants: 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact report to the Department for Communities (and then to others) related to the use (and underutilisation) of disability-related benefits
Year(s) Of Engagement Activity 2019,2020
 
Description ADR Conference Cardiff 2019 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Formal Presentation of research in progress, entitled "Outdoor Air Pollution and Mortality in Northern Ireland"
Year(s) Of Engagement Activity 2019
 
Description ADR/ONS Data for Children - Shaping the Research Workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Participant in the joint ADRUK and ONS workshop on ways to improve the Data for Children data set by additional linkage to explore a range of themes within children's health and social outcomes.
Year(s) Of Engagement Activity 2019
 
Description Admin Data Methods Research Programme 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Improving methodological approaches in relationship to the use of administrative data.
Year(s) Of Engagement Activity 2019
 
Description Admin Data Talk to visiting US Medical Students (July 2018) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Undergraduate students
Results and Impact Talk on making better use of administrative data in mental health research given to visiting US medical students on the 20th July 2018 at Queen's University in Belfast. This talk presented information on my ongoing research using health and administrative data to explore mental health. This talk raised awareness of the growing burden of mental ill health across the world and in particular i Northern Ireland and sparked debate around the collection of medical data for research purposes and the differences in the systems in Northern Ireland and the USA.
Year(s) Of Engagement Activity 2018
 
Description Admin Data talk at the Department for Ecomony's ASU staff away day 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Over 40 staff form the Department for Economy (DfE) in Northern ireland attended their annual Away Day where I gave a talk on Administrtiave Data for Research Purposes and how to avail of that in Northern Ireland via the Honest Broker Service, the Northern Ireland Longitudinal Study and the Administrative Data Reserch Centre-Northern Ireland (ADRC-NI). This sparked discussion about the potential for joint ADRC-NI/DfE projects.
Year(s) Of Engagement Activity 2017
 
Description Administrative Data Research Centres and Welsh government engagement 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Discuss regarding experiences on engaging academics, government departments and the use of public engagement initiatives to engage and inform 'public's.
Year(s) Of Engagement Activity 2018
 
Description Air-Pollution and Health Steering Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Air-Pollution and Health Steering Group brought together different stakeholders including people from Department of Health, Department of Agriculture, Environment and Rural Affairs, Belfast City Council and Queen's University Belfast. The intended purpose of the Air-Pollution and Health Steering Group was to communicate an overview of the research programme and gather information on key areas of policy interest in order to ensure the project questions are policy relevant. Members of our research team provide time and expertise to answer relevant research questions on the data and the intended methodology. Further discussions and engagement in future meetings were agreed.
Year(s) Of Engagement Activity 2019
 
Description Air-Pollution and Health Steering Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Air-Pollution and Health Steering Group brought together different stakeholders including people from Department of Health, Department of Agriculture, Environment and Rural Affairs, Belfast City Council and Queen's University Belfast. The intended purpose of the Air-Pollution and Health Steering Group was to communicate an overview of the research programme and gather information on key areas of policy interest in order to ensure the project questions are policy relevant. Members of our research team provide time and expertise to answer relevant research questions on the data and the intended methodology. Further discussions and engagement in future meetings were agreed.
Year(s) Of Engagement Activity 2019
 
Description All Party Group on Childcare and Early Years 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact I participated in a meeting of the All Party Group on Childcare and Early Years. The invitation to attend came from our working relationships cultivated through the Childcare for All Coalition and the Childcare Policy Conference.
Year(s) Of Engagement Activity 2020
 
Description British Isles Longitudinal Study Meeting 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Academic presentation - longitudinal studies linkages and methodologies. The NICOLA study linkage to Health and Social Care data in Northern Ireland.
Year(s) Of Engagement Activity 2019
 
Description British Isles Workshop: Mortality after self-harm / suicide ideation: enhancing the population-wide Northern Ireland Registry of Self-Harm through data linkage 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Invited to talk about our research exploring the NI self-harm register at the British Isles Workshop on Suicide & Self-Harm research: Lancet Psychiatry Suicide Research Symposium
Year(s) Of Engagement Activity 2019
 
Description CPH Away Day Admin Data and Mental Health Talk (Jan 2019) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Talk at the Centre for Public Health (CPH) Away Day on 11th January 2019 about ongoing research making better use of administrative data in Northern Ireland to understand population mental health.
Year(s) Of Engagement Activity 2019
 
Description Childcare Policy Conference 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact We partnered with the coalition group Childcare for All to deliver a childcare policy conference in March 2019. Dr Corina Miller was the key note speaker with her research on factors affecting maternal employment. There were other talks and panel discussions around childcare and gender equality, policy responses, and other issues around caring. The conference was attended by third sector organisations working around women's issues and childcare, policymakers and practitioners, children's groups, and elected representatives. It was also co-sponsored by the Equality Commission, who has requested further data-focused briefings from ADRC NI on other related topics.
Year(s) Of Engagement Activity 2019
URL https://www.employersforchildcare.org/campaign/childcare-for-all/
 
Description Commissioner for older People Northern Ireland - Administrative data acquisition and research development 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact Dialogue to identify priorities for data acquisition and generation of research projects to address policy questions of interest to the Commissioners office.
Year(s) Of Engagement Activity 2019
 
Description Common Mental Disorder across Standard Occupational Classifications in Northern Ireland: a population-based data linkage study 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact I presented at the 4th International Conference on Administrative Data Research 9 - 11 December 2019. I presented preliminary findings from an ADR study on mental health across occupation types in NI and the role of family demands during one of the paralell sessions. There were about 20 attendees at this particular session, however the abstract for the presentation was published in the conference programme and disseminated to the few hundred attendees.
Year(s) Of Engagement Activity 2019
URL https://ijpds.org/article/view/1240
 
Description Data Driven Society: What Administrative Data can do for you? Using linked, anonymised, individual & household level data 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Invited to present at the Data Driven Society event in Belfast City Hall (organised by the NILS) on previous work using linked, anonymised, individual & household level data to examine population mental health & mortality in NI.
Year(s) Of Engagement Activity 2020
URL https://www.nils-rsu.co.uk/data-driven-society-symposium-report/
 
Description Dementia Action Research User Group - Presentation of research using linked data. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Patients, carers and/or patient groups
Results and Impact Dementia Action Research User Group - Presentation of research using linked data.
Year(s) Of Engagement Activity 2018
 
Description DoH Seminar Series: Why Administrative Data? 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact An invited talk at the Department of Health exploring how using linked administrative data can help inform research and policy in Northern Ireland.
Year(s) Of Engagement Activity 2019
 
Description Duncairn Partnership invited Talk on Mental Health research in NI Aug 2018 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact Invited talk on our research related to Mental Health in NI given at the Duncairn Community Partnership in North Belfast, 30th Aug 2018.
The Duncairn partnership organised this event to bring together residents and service providers to look at this element of living in a segregated area.
Year(s) Of Engagement Activity 2018
 
Description Engagement meeting to discuss use of LGA data and policy relevant research. 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Third sector organisations
Results and Impact Engagement meeting to discuss use of LGA data and policy relevant research.
Year(s) Of Engagement Activity 2018
 
Description Firearm Access, Mental Health and Suicide Risk: a population based record linkage study (Sept 2018) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Poster presentation at the MQ Data Science Meeting on September 19th, 2018. The 1-day event included speeches from leading experts in the field, parallel sessions with an opportunity to drill down on specific topics, and a poster session. It was attended mainly by academics but also mental health professional and patient/public groups. The event offered a unique opportunity to connect, share findings and methods, and discuss the latest developments in this fast-moving field.
Year(s) Of Engagement Activity 2018
 
Description Formal presentation: ADR Conference Cardiff December 2019 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Formal presentation entitled: Poor mental health and uptake of disability benefits
Year(s) Of Engagement Activity 2019
 
Description Formal working group with HSC and other public body to use linked administrative data for research purposes. 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Working group to discuss use of linked data for a co produced project.
Year(s) Of Engagement Activity 2018
 
Description Health inequalities and the migrant population in Northern Ireland: Exploring the evidence 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact I wrote a blog outlining the process and research behind the second event in our policy symposium series, which focused on migrants and health inequalities. It was published as a blog on the ADR UK webiste.
Year(s) Of Engagement Activity 2019
URL https://www.adruk.org/news-publications/news-blogs/health-inequalities-and-the-migrant-population-in...
 
Description Increasing access to administrative data related to homelessness 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Convincing data holders of the utility (and safety) of linked administrative data so that they too would share their data...in this case related to homelessness
Year(s) Of Engagement Activity 2019
 
Description Invited Presentation: Mortality after self-harm /suicide ideation: enhancing the population wide Northern Ireland Registry of Self-Harm through data linkage. 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Invited talk at the 26th British Isles Research Workshop on Suicide and Self Harm. Oct 2019. Oxford
Year(s) Of Engagement Activity 2019
 
Description Invited Talk Uni Helsinki: Examining Population Mental Health using Administrative Data: the Northern Ireland story 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Postgraduate students
Results and Impact Seminar talk whilst a visiting researcher at University of Helsinki on Examining Population Mental Health using Administrative Data: the Northern Ireland story
Year(s) Of Engagement Activity 2019
 
Description Invited to Northern Ireland Registry of Self harm Steering Group (Feb 2019) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Invited to Northern Ireland Registry of Self harm Steering Group (Feb 2019) as collaborators in research exploring self-harm and suicide ideation in Northern Ireland. I provide project updates at each meeting.
Year(s) Of Engagement Activity 2019
 
Description Invited to Northern Ireland Registry of Self harm Steering Group (Feb 2020) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Invited to Northern Ireland Registry of Self harm Steering Group (Feb 2020) as collaborators in research exploring self-harm and suicide ideation in Northern Ireland. I provide project updates at each meeting.
Year(s) Of Engagement Activity 2020
 
Description Invited to Northern Ireland Registry of Self harm Steering Group (May 2019) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Invited to Northern Ireland Registry of Self harm Steering Group (May 2019) as collaborators in research exploring self-harm and suicide ideation in Northern Ireland. I provide project updates at each meeting.
Year(s) Of Engagement Activity 2019
 
Description MQ Firearms Project Steering Group Meeting 1 (Feb 2018) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact 6th February 2018: First meeting of the Firearm, Mental Health and Suicide steering Group - consisting of representation form the Data custodians at the Police Service for Northern Ireland (PSNI), the Business Services Organisation (BSO), the Administrative Data Research Center-Northern Ireland (ADRC-NI) and researchers from Queen's University Belfast.
Year(s) Of Engagement Activity 2018
 
Description MQ Firearms Project Steering Group Meeting 2 (May 2018) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact 25th May 2018: Second meeting of the Firearm, Mental Health and Suicide steering Group - consisting of representation form the Data custodians at the Police Service for Northern Ireland (PSNI), the Business Services Organisation (BSO), the Administrative Data Research Center-Northern Ireland (ADRC-NI) and researchers from Queen's University Belfast.
Year(s) Of Engagement Activity 2018
 
Description MQ Firearms Project Steering Group Meeting 3 (Oct 2018) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact 9th October 2018: Third meeting of the Firearm, Mental Health and Suicide steering Group - consisting of representation form the Data custodians at the Police Service for Northern Ireland (PSNI), the Business Services Organisation (BSO), the Administrative Data Research Center-Northern Ireland (ADRC-NI) and researchers from Queen's University Belfast.
Year(s) Of Engagement Activity 2018
 
Description MQ Firearms Project Steering Group Meeting 4 (Nov 2018) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact 29th November 2018: Fourth meeting of the Firearm, Mental Health and Suicide steering Group - consisting of representation form the Data custodians at the Police Service for Northern Ireland (PSNI), the Business Services Organisation (BSO), the Administrative Data Research Center-Northern Ireland (ADRC-NI) and researchers from Queen's University Belfast.
Year(s) Of Engagement Activity 2018
 
Description MQ Firearms Project Steering Group Meeting 5 (May 2019) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Meeting of Project Steering Group with PSNI, Honest Broker Service and Researchers discussing future direction of Project through the BSO Honest Broker Service supported by the ADRC-NI
Year(s) Of Engagement Activity 2019
 
Description MQ Mental Health Science Meeting Feb 2018 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact MQ Mental Health Science Meeting Feb 2018
Year(s) Of Engagement Activity 2018
 
Description MQ Mental Health Science Meeting Feb 2019 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact MQ mental health science meeting Feb 2019 - opportunity to discuss research with potential collaborators across the UK and to engage with patients for whom the research may directly impact.
Year(s) Of Engagement Activity 2019
 
Description Meeting Commissioner For Younger People for Northern Ireland (Jan 2019) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Meeting with Northern Ireland's Commissioner for Younger People (NICCYP), Koulla Yiasouma, on 22nd January 2019 to discuss the potential impact of the research into the long-term outcomes of children known to social services. Great interest was garnered in the research and a working relationship developed to allow for the bidirectional sharing of information and expertise.
Year(s) Of Engagement Activity 2018
 
Description Meeting about homelessness in Northern Ireland: accessing the prevalence, understanding the causes and measuring the outcomes 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Supporters
Results and Impact Agenda setting for the Chief Medical Officer's programme on homelessness
Year(s) Of Engagement Activity 2019
 
Description Meeting with the Chair of the NI Cross Party Group on Mental Health 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Met with Mark Durkan MLA, who was the Chair of the All Party Group on Mental Health. The meeting was designed as an initial enagegement with this group to make them aware of our study on Occupation and Mental health with a view to organising follow-up meetings/briefings troughout the durtaion of the study.
Year(s) Of Engagement Activity 2018
 
Description Meeting with the Mental Health Foundation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Describing (again) the potential utility of administrative data for describing the prevalence, antecedents and outcomes for people with poor mental health in the population
Year(s) Of Engagement Activity 2019
 
Description Migrants and health inequalities: a policy symposium 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Third sector organisations
Results and Impact Delivered in partnership with Stronger Together, a network for racial equality in Northern Ireland, our most recent policy forum, held in October 2019, brought together academic researchers, policymakers, service providers and community organisations to share best practice and evidence in the fields of health and racial inequality. There were presenters, panellists and participants from Kings College London, Cairde, Equality Commission Northern Ireland, Belfast City Council, Health and Social Care NI, the Public Health Agency, the Northern Ireland Council for Racial Equality, and the British Red Cross.
Year(s) Of Engagement Activity 2019
URL https://www.adruk.org/news-publications/news-blogs/health-inequalities-and-the-migrant-population-in...
 
Description Migrants health policy symposium NI 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact ADRC Ni Policy symposium - Migrant health.
Year(s) Of Engagement Activity 2018
 
Description Northern Ireland Longitudinal Study (NILS) 10 year Anniversary Event 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact NILS 10 year Anniversary Event to showcase the work completed using the Northern Ireland Longitudinal Study to date and how this has impacted research and policy.
Year(s) Of Engagement Activity 2016
URL http://www.qub.ac.uk/research-centres/NILSResearchSupportUnit/News/
 
Description Northern Ireland Longitudinal Study Showcase event March 2018 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Talk on the range of projects developed and completed using the Northern Ireland Longitudinal Study (NILS) highlighting the type on research questions that can be answered from this data resource. Event held in Riddel Hall, QUB on 29th March 2018.
Year(s) Of Engagement Activity 2018
 
Description Policy event - University Engagement Northern Ireland and North America 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Postgraduate students
Results and Impact Expert workshop with post graduate students from North American Institutes to discuss the governmental and public impact on use of administrative data and the work of the ADRC.
Year(s) Of Engagement Activity 2018
 
Description Presentation on the importance of Administrative Data in research for the Department of Health March 2018 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Invited talk at the Department of Health, Stormont Estate 14th March 2018, Belfast on the importance of Administrative Data in research. Approx 50 Department staff attended with an interest in using existing administrative data sources to answer questions which could inform the development of policy in Northern Ireland. The staff requested a future talk in the coming months expanding upon the detail of the data available.
Year(s) Of Engagement Activity 2018
 
Description SOSCARE Steering Group Meeting 1 (Apr 2018) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact 13th April 2018: First meeting of the SOSCARE steering Group - consisting of representation form the Data custodians, the Department of Health and PPI.
Year(s) Of Engagement Activity 2018
 
Description SOSCARE Steering Group Meeting 2 (Dec 2018) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact 13th December 2018: Second meeting of the SOSCARE steering Group - consisting of representation form the Data custodians, the Department of Health and PPI.
Year(s) Of Engagement Activity 2018
 
Description SOSCARE Steering Group Meeting 3 (May 2019) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Steering Group Meeting with project partners in DoH regarding project exploring SOSCARE data to examine mental health of children known to social services.
Year(s) Of Engagement Activity 2019
 
Description SOSCARE Steering Group Meeting 4 (Jan 2020) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Steering Group Meeting with project partners in DoH regarding project exploring SOSCARE data to examine mental health of children known to social services.Request for output to be made available immediately to inform policy. Group published "Data Insights" which were cited in the new 2020 Looked After Children Strategy in Northern Ireland (in press)
Year(s) Of Engagement Activity 2020
URL https://www.adruk.org/fileadmin/uploads/adruk/Documents/Data_Insights-_Children_s_mental_health_and_...
 
Description Social Determinants of Self-reported Multi-morbidity among Adults in Northern Ireland: a census-based administrative data study 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact I presented at the annual Administrative Data Research Conference in Belfast to an audience of about 40 attendees during one of the paralell sessions. the abstract for the talk however was published inthe conference programme, which was available to a few hundred delegates.
Year(s) Of Engagement Activity 2018
URL https://ijpds.org/article/view/562/486
 
Description Steering Committee: Ageing and Dementia 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact I sit on and participate in each of the Steering Committees for all our research programmes. The steering committee for SIP 4, ageing and dementia, has met once thus far in September 2019. It comprises representatives from Department of Health, Irish Institute of Public Health, Commissioner for Older People NI, Health and Social Care Board, and the Alzheimer's Society. It has helped identify key questions to ask of the data and identify where to disseminate evidence to after findings are available.
Year(s) Of Engagement Activity 2019
 
Description Steering Committee: Air Pollution and Health 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact I sit on and participate in each steering committee for each of our research projects. The inaugural meeting of the air pollution and health research programme advisory committee took place in October 2019 and brought representatives from the Department of Health, Department for Infrastructure, Department for the Environment, Belfast City Council. Future meetings will bring in representatives from the British Health Foundation.
Year(s) Of Engagement Activity 2019
 
Description Steering Committee: SOSCARE children known to social services 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact I sit on and participate in the Steering Committees for each of our research programmes. The Steering Committee for the SOSCARE-focused outcomes for looked after children research comprises representatives from the Department of Health and Barnardo's NI. It has met twice and has helped make decisions on future research, data quality, and helped to interpret some of the results.
Year(s) Of Engagement Activity 2019,2020
 
Description TRIUMPH Mental Health : agenda-setting workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Invited speaker at the MRC funded Triumph Mental Health agenda setting workshop exploring research priorities for young people's mental health
Year(s) Of Engagement Activity 2020
 
Description What works for who? Impact in the devolved regions of ADR UK 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Alongside my counterparts from Wales and Scotland, I gave a presentation for a workshop on engagement and impact in the devolved regions of ADR UK, using case studies from our work to examine how to put together impact plans in a variety of different contexts.
Year(s) Of Engagement Activity 2019
URL https://www.adruk.org/news-publications/news-blogs/pathways-to-impact-adr-uk-partners-share-their-in...
 
Description Why Administrative Data? What is administrative data, why is it so important and what can it do for us? 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Presentation to the Department of Health Deliver Together Seminar Series. Nov 2019. Belfast. Sparked conversation around increasing the link between University researchers and Policy Makers in the Department for Health.
Year(s) Of Engagement Activity 2019
 
Description Workshop on data linkage methodology by Curtin University representatives 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact This was about he introduction of new capacity within the BSO (SeRP) for accessing administrative data in NI and throughout the UK. The specifics of this meeting were related to the potential for record linkage.
Year(s) Of Engagement Activity 2019
 
Description Workshop on use of administrative data with te statistical experts of the Local Councils 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact This was an outreach activity to try and get the statisticians associated with the local councils to consider the potential utility of administrative data for answering some of their pressing policy problems.
Year(s) Of Engagement Activity 2019
 
Description presentation at SSM conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Postgraduate students
Results and Impact Formal conference presentation: What happens after self-harm? An exploration of self-harm and suicide using the Northern Ireland Registry of Self-Harm
Year(s) Of Engagement Activity 2019