SOCIAL AND ECONOMIC PREDICTORS FOR THE COURSE AND PROGNOSIS OF THE SEVERE MENTAL DISORDERS- THE SEP-MD DATA LINKAGE STUDY
Lead Research Organisation:
King's College London
Department Name: Health Service and Population Research
Abstract
Despite more than thirty years of studies into the severe mental illnesses (SMI), including schizophrenia; central challenging questions remain around which factors most strongly predict course and outcomes of these conditions. People with SMI experience an 11 to 17 year reduction in life expectancy, an increased possibility of in-patient psychiatric admissions, and lower levels of employment, compared to the general population. Ethnic minority groups with SMI may experience even greater inequalities- with higher rates of compulsory admissions and social exclusion, compared to White British service users with SMI. Previous international work has suggested that the course of SMI may show strong variation with the environment, yet there has only been limited research conducted on whether social/ environmental factors potentially modify the course of SMI, with conclusions from studies affected by people being lost to follow up, sample sizes being too small, and with too few people of an ethnic minority background taking part, in order to enable robust conclusions. Traditional studies which follow people with SMI over time are time-intensive, expensive to run and logistically challenging to conduct, as tracing people over time is difficult. This project will address these important issues by linking UK Census data with the electronic clinical records from one of the largest secondary mental healthcare providers in Europe. This is an innovative data linkage as UK census is conducted every ten years and collects detailed information around important social indicators (for example, relating to household poverty, social isolation, migration status, employment and long-term worklessness) which are not usually available in good detail in health records. The clinical records will come from a major UK Mental Health Trust- South London & Maudsley Trust, which provides near-monopoly secondary mental healthcare to an ethnically-diverse, geographically defined urban area in London, with a catchment of approximately 1.2 million people.
Through the linkage we will create a cohort of 19,800 people with severe mental illnesses followed over a minimum of eight years and we will be able to assess the association of social factors such as household poverty, social isolation, ethnicity and migration status, alongside clinical factors such as diagnosis, prescriptions and severity of illness with our main outcomes- mortality, in-patient admissions (compulsory and voluntary) and long-term worklessness. We will aim to assess the characteristics of where people live (for example the effect of living in socially fragmented neighbourhoods or more deprived areas) alongside person-level level characteristics (e.g. being socially isolated, living in poverty, tobacco use, prescriptions, diagnosis and illness severity) and how these are associated with mortality risks in people with SMI. The linkage will also enable us to assess the association of social and clinical factors with in-patient psychiatric admissions (including compulsory detentions under the UK Mental Health Act). Finally the linkage will allow us to assess clinical and social factors predicting long-term worklessness, defined as being unemployed for more than a year and/ or never holding employment, in a sample of people with SMI. Our analyses will assess the interplay of all of these associations with ethnicity and migration status. Through our study we will also consider whether people with severe mental illnesses who are multiply disadvantaged- i.e.disadvantaged across a range of indicators, experience extreme health inequalities. We have developed the research questions with our non-Academic partners, Black Thrive and the Synergi Collaborative Centre, and will intend for the findings to directly inform public policy, service development and current research and discourses regarding the inequalities experienced by people living with severe mental illnesses.
Through the linkage we will create a cohort of 19,800 people with severe mental illnesses followed over a minimum of eight years and we will be able to assess the association of social factors such as household poverty, social isolation, ethnicity and migration status, alongside clinical factors such as diagnosis, prescriptions and severity of illness with our main outcomes- mortality, in-patient admissions (compulsory and voluntary) and long-term worklessness. We will aim to assess the characteristics of where people live (for example the effect of living in socially fragmented neighbourhoods or more deprived areas) alongside person-level level characteristics (e.g. being socially isolated, living in poverty, tobacco use, prescriptions, diagnosis and illness severity) and how these are associated with mortality risks in people with SMI. The linkage will also enable us to assess the association of social and clinical factors with in-patient psychiatric admissions (including compulsory detentions under the UK Mental Health Act). Finally the linkage will allow us to assess clinical and social factors predicting long-term worklessness, defined as being unemployed for more than a year and/ or never holding employment, in a sample of people with SMI. Our analyses will assess the interplay of all of these associations with ethnicity and migration status. Through our study we will also consider whether people with severe mental illnesses who are multiply disadvantaged- i.e.disadvantaged across a range of indicators, experience extreme health inequalities. We have developed the research questions with our non-Academic partners, Black Thrive and the Synergi Collaborative Centre, and will intend for the findings to directly inform public policy, service development and current research and discourses regarding the inequalities experienced by people living with severe mental illnesses.
Planned Impact
1.Academic beneficiaries-Researchers, postgraduate students: Researchers interested in data linkage and advanced analytic methodologies will benefit from knowledge gains, as will those involved in research on the course/ prognosis of the severe mental illnesses (SMI). Methodological advances will inform capacity building as we plan to embed related teaching in summer schools/ MSc modules, for researchers and postgraduate students.
2. People living with SMI and their carers, clinicians/ other healthcare providers: We have discussed the study with service users from the Mental Health Trust. They have indicated that having access to the findings through lay summaries will benefit them in understanding their mental illness. They agreed that understanding the role of broader social resources in determining rates of detention under the Mental Health Act would be useful for them to understand their situation better, particularly when advocating for their own healthcare needs. We also anticipate that the findings will inform and improve the therapies which are currently provided. For example the current UK NICE guidelines for the management of schizophrenia and bipolar disorders highlight the need to promote recovery through supported employment, occupation and educational activities, however this recommendation is partly based on very low quality evidence(1,2). The findings will have the potential to inform current NICE guidelines and inform the development of social interventions for the severe mental illnesses.
3. Policy makers: At present, a major review of the UK Mental Health Act, legislation which governs whether individuals with mental disorder should be involuntarily detained, is being undertaken. A reason for the review is because of the consistent finding that Black and Asian people are much more likely to be detained under the Mental Health Act than White British people(3). Our collaborators Black Thrive and the Synergi Collaboration Centre have indicated a paucity of evidence relating to the interplay of multiple disadvantage and ethnicity with these types of outcomes. Our study will inform this gap in knowledge.
4. Healthcare commissioning: Our partners, Black Thrive, are hosted by Health Watch Lambeth. Healthwatch Lambeth are directly involved in the commissioning of health services. The findings will inform local priority setting and commissioning.
5. Public health: The outcomes of mortality, admissions and longterm worklessness in people with SMI are of relevance to public health in the UK and internationally, e.g. been highlighted in reports by the World Health Organization(6) and NHS England(7). The findings will inform public health strategy locally and nationally.
5. Communities: We have planned capacity building/ community engagement workshops with Black Thrive, so that their membership may become conversant with the scientific findings. We anticipate that the workshops may empower lay members to utilise locally relevant data to inform their work, which includes priority setting.
6. Charities: Our impact and engagement partners, the Synergi Collaborative Centre, and our partners Black Thrive have an urgent need for this data to inform their work addressing multiple disadvantage, ethnicity and severe mental illness (Synergi) and mental health inequalities experienced by Black communities in Lambeth (Black Thrive). The findings will therefore have direct relevance to these two groups and others working in this area.
References
(1)https://www.nice.org.uk/guidance/cg178/chapter/1-recommendations#promoting-recovery-and-possible-future-care-2
(2)https://www.nice.org.uk/guidance/cg185/chapter/1-Recommendations#ftn.footnote_10
(3)http://synergicollaborativecentre.co.uk/wp-content/uploads/2017/11/Synergi_Report_Web.pdf
(5)https://lankellychase.org.uk/black-and-ethnic-minorities/
(6)http://www.who.int/mental_health/management/info_sheet.pdf
(7)https://www.england.nhs.uk/2014/01/mental-il
2. People living with SMI and their carers, clinicians/ other healthcare providers: We have discussed the study with service users from the Mental Health Trust. They have indicated that having access to the findings through lay summaries will benefit them in understanding their mental illness. They agreed that understanding the role of broader social resources in determining rates of detention under the Mental Health Act would be useful for them to understand their situation better, particularly when advocating for their own healthcare needs. We also anticipate that the findings will inform and improve the therapies which are currently provided. For example the current UK NICE guidelines for the management of schizophrenia and bipolar disorders highlight the need to promote recovery through supported employment, occupation and educational activities, however this recommendation is partly based on very low quality evidence(1,2). The findings will have the potential to inform current NICE guidelines and inform the development of social interventions for the severe mental illnesses.
3. Policy makers: At present, a major review of the UK Mental Health Act, legislation which governs whether individuals with mental disorder should be involuntarily detained, is being undertaken. A reason for the review is because of the consistent finding that Black and Asian people are much more likely to be detained under the Mental Health Act than White British people(3). Our collaborators Black Thrive and the Synergi Collaboration Centre have indicated a paucity of evidence relating to the interplay of multiple disadvantage and ethnicity with these types of outcomes. Our study will inform this gap in knowledge.
4. Healthcare commissioning: Our partners, Black Thrive, are hosted by Health Watch Lambeth. Healthwatch Lambeth are directly involved in the commissioning of health services. The findings will inform local priority setting and commissioning.
5. Public health: The outcomes of mortality, admissions and longterm worklessness in people with SMI are of relevance to public health in the UK and internationally, e.g. been highlighted in reports by the World Health Organization(6) and NHS England(7). The findings will inform public health strategy locally and nationally.
5. Communities: We have planned capacity building/ community engagement workshops with Black Thrive, so that their membership may become conversant with the scientific findings. We anticipate that the workshops may empower lay members to utilise locally relevant data to inform their work, which includes priority setting.
6. Charities: Our impact and engagement partners, the Synergi Collaborative Centre, and our partners Black Thrive have an urgent need for this data to inform their work addressing multiple disadvantage, ethnicity and severe mental illness (Synergi) and mental health inequalities experienced by Black communities in Lambeth (Black Thrive). The findings will therefore have direct relevance to these two groups and others working in this area.
References
(1)https://www.nice.org.uk/guidance/cg178/chapter/1-recommendations#promoting-recovery-and-possible-future-care-2
(2)https://www.nice.org.uk/guidance/cg185/chapter/1-Recommendations#ftn.footnote_10
(3)http://synergicollaborativecentre.co.uk/wp-content/uploads/2017/11/Synergi_Report_Web.pdf
(5)https://lankellychase.org.uk/black-and-ethnic-minorities/
(6)http://www.who.int/mental_health/management/info_sheet.pdf
(7)https://www.england.nhs.uk/2014/01/mental-il
Organisations
- King's College London (Lead Research Organisation)
- OFFICE FOR NATIONAL STATISTICS (Collaboration)
- Black Thrive (Collaboration)
- Centre for Mental Health (Collaboration)
- NHS Lambeth CCG (Collaboration)
- South London and Maudsley (SLAM) NHS Foundation Trust (Collaboration)
- UNIVERSITY OF SOUTHAMPTON (Collaboration)
Publications
Chilman N.
(2024)
Understanding social and clinical associations with unemployment for people with schizophrenia and bipolar disorders: Large-scale health records study.
in Social Psychiatry and Psychiatric Epidemiology
Mujic F
(2021)
Time of referral to older adult liaison psychiatry service and other factors affecting length of stay in the general hospital.
in International journal of geriatric psychiatry
Ford T
(2021)
The challenges and opportunities of mental health data sharing in the UK.
in The Lancet. Digital health
Bhavsar V
(2021)
The association of migration and ethnicity with use of the Improving Access to Psychological Treatment (IAPT) programme: a general population cohort study.
in Social psychiatry and psychiatric epidemiology
Bhavsar V
(2020)
The association between neighbourhood characteristics and physical victimisation in men and women with mental disorders.
in BJPsych open
Gronholm P
(2021)
Prevention and management of physical health conditions in adults with severe mental disorders: WHO recommendations
in International Journal of Mental Health Systems
Ahmad G
(2022)
Prevalence of common mental disorders and treatment receipt for people from ethnic minority backgrounds in England: repeated cross-sectional surveys of the general population in 2007 and 2014.
in The British journal of psychiatry : the journal of mental science
Schofield P
(2023)
Lack of fit with the neighbourhood social environment as a risk factor for psychosis - a national cohort study.
in Psychological medicine
Mirza L
(2021)
Investigating the association between physical health comorbidities and disability in individuals with severe mental illness.
in European psychiatry : the journal of the Association of European Psychiatrists
Das-Munshi J
(2021)
Inequalities in glycemic management in people living with type 2 diabetes mellitus and severe mental illnesses: cohort study from the UK over 10 years.
in BMJ open diabetes research & care
Hildersley R
(2023)
How is city living associated with psychosis? Findings from a novel data linkage of 612,988 people from an urban and ethnically diverse area
in International Journal of Population Data Science
Das-Munshi J
(2021)
How do ethnicity and deprivation impact on life expectancy at birth in people with serious mental illness? Observational study in the UK.
in Psychological medicine
Das-Munshi J
(2020)
Gaps and challenges: WHO treatment recommendations for tobacco cessation and management of substance use disorders in people with severe mental illness.
in BMC psychiatry
Ahmad G
(2022)
Explaining ethnic variations in adolescent mental health: a secondary analysis of the Millennium Cohort Study.
in Social psychiatry and psychiatric epidemiology
Das-Munshi J
(2021)
Does the Health Loss Proportion help us to understand disability in mental health?
in The lancet. Psychiatry
Co M
(2021)
Differences in survival and mortality in minority ethnic groups with dementia: A systematic review and meta-analysis.
in International journal of geriatric psychiatry
Das-Munshi J
(2020)
Cross-national trends in depression: moving beyond single inequalities and considering contexts.
in The lancet. Psychiatry
Zhang S
(2020)
Complex mental health needs in older people living with frailty.
in British journal of hospital medicine (London, England : 2005)
Title | Podcast series |
Description | Podacst series (4 episodes) setting out SEPMD project and data linkage |
Type Of Art | Artefact (including digital) |
Year Produced | 2024 |
Impact | not yet launched |
Title | Short film of SEPMD project |
Description | Short film on the study produced, co-produced with service user representatives, featuring community partners and including the project team. |
Type Of Art | Film/Video/Animation |
Year Produced | 2023 |
Impact | Films has not yet been promoted, but already has 120 views and 5 'likes' I have been approached about the study- to collaborate on other linkage projects |
URL | https://www.youtube.com/watch?v=SwBvEKc_QVs |
Description | Work on this project has been severely delayed due to the impact of COVID-19. However, despite this we have conducted some preliminary work. In particular we have: 1. Created a linked dataset with controls- access to this dataset however is not yet possible due to COVID-19 restrictions. 2. We have learnt about challenges relating to data access in the UK and have contributed insights at a workshop hosted with other UK academics and NHS-digital, which was hosted by MQ. We have also provided input into a short commentary to help inform wider discussions about UK data access (currently under review). 3. Insights from early stages of this work has informed teaching to postgraduate students (MSc and PhD-level) on data linkage and mental health in the UK ***update 10/3/2022 The grant has been suspended for the past year due to the impact of COVID19, and related to this outputs and generation of new knowledge severely impacted. However we hope to resume shortly, pending the grant being resumed as our access to the linked data has recently been reinstated. The experiences of this project fed into a recent commentary on the challenges of mental health data access/ sharing- (see publications). ***update 27/2/2024 1. People with severe mental disorders are less potentially likely to take part in UK census. THis is a concern as census is used to plan local services. This work has been shared at international meetings, in a publication and through a podcast series, and has helped to inform the field/ 2. People living in urban areas are more likely to experience severe mental health conditions, and some elements such as social isolation may play a role. Has been shared at international meetings and informed a PhD student's project (capacity building). We plan to publish this. 3. People with severe mental health conditions more likely to have adverse outcomes (unemployment, poorer self rated health, disability) and social isolation may play a role. Similar observed for mortality. Still to be published (in prep) - however has been presented at international meetings. This has informed two other grant applications that the PI is involved in (NIHR PEGASUS £3M and Maudsley Charity ~£250K) to develop social interventions for people with psychosis to improve outcomes. 4. Challenges of working with linked data- this has informed the wider team at university- we have established a secure room for data access, a system of mentoring ECRs working with linked data and has also informed a recent successful UKRI grant application to PI (£8.75M) |
Exploitation Route | Please note severe and disappointing delays due to impact of COVID19 and lack of agreement to extend (from ESRC). However lots of positive outcomes despite this! As detailed above, and I suspect more to come. |
Sectors | Healthcare |
URL | https://www.kcl.ac.uk/research/the-sep-md-data-linkage-study |
Description | 1. See the other section- despite severe delays due to the COVID pandemic, early stages of this work have informed wider discussions relating to UK data access which the PI for the study has contributed to. Other non-academic impacts: 2. Establishment of a secure room with joint KCL/ ONS governance arrangements established to support accredited researchers to access linked data for approved studies via the ONS TRE 3. Capacity building- MSc students, PhD students and RAs/ postdocs 4. Starting to inform discussions on ethnic inequalities and mental health (local level and national level) 5. Informing other discussions about data linkage (other datasets/ cohorts etc.) 2024- updated We have managed to publish one paper highlighting methods (two other papers in prep/ or presented at meetings) Findings have been: 1. Shared with the public in short films, podcasts, blogs and on social media 2. Have been used to inform other discussions about utility of linked data to improve mental health- see other sections- has led to other grants 3. Have been used to develop methods to tackle lower levels of linkage in people with mental disorders across data (published in paper and presented at conference) |
First Year Of Impact | 2023 |
Sector | Healthcare |
Impact Types | Policy & public services |
Description | Citation/ involvement in national policy report by NHS Race and Health Observatory |
Geographic Reach | National |
Policy Influence Type | Contribution to a national consultation/review |
URL | https://www.nhsrho.org/wp-content/uploads/2022/02/RHO-Rapid-Review-Final-Report_Summary_v.4.pdf |
Description | ADR UK Research Fellowships 2023 |
Amount | £189,755 (GBP) |
Organisation | Economic and Social Research Council |
Sector | Public |
Country | United Kingdom |
Start | 08/2024 |
End | 02/2026 |
Description | Changing the trajectories of mental health dif?culties in Norfolk and Suffolk: a research-priority-setting project with patients, the public, clinicians, policymakers, and stakeholders. |
Amount | £120,804 (GBP) |
Organisation | National Institute for Health Research |
Sector | Public |
Country | United Kingdom |
Start |
Description | ESRC LISS-DTP |
Amount | £75,000 (GBP) |
Organisation | Economic and Social Research Council |
Sector | Public |
Country | United Kingdom |
Start | 09/2024 |
End | 09/2027 |
Description | LISS DTP CASE ESRC +3 PhD studentship (as supervisor) Urbanicity and psychosis- are cities bad for mental health? Novel insights from UK data linkage and participant perspectives; mixed methods study |
Amount | £70,000 (GBP) |
Organisation | Economic and Social Research Council |
Sector | Public |
Country | United Kingdom |
Start | 09/2021 |
End | 09/2024 |
Description | Lambeth Health Determinants Research and Evaluation Network (Lambeth HEART) |
Amount | £4,997,181 (GBP) |
Organisation | National Institute for Health Research |
Sector | Public |
Country | United Kingdom |
Start | 01/2023 |
End | 01/2028 |
Description | MR/X010791/1 (E-Risk Longitudinal Twin Study age-30 follow-up) |
Amount | £2,848,245 (GBP) |
Funding ID | MR/X010791/1 |
Organisation | Medical Research Council (MRC) |
Sector | Public |
Country | United Kingdom |
Start | 03/2023 |
End | 03/2027 |
Description | Prevention of Risks and Onset of Mental Health problems through Interdisciplinary Stakeholder Engagement-PROMISE Population Health Improvement Cluster |
Amount | £8,737,331 (GBP) |
Funding ID | MR/Y030788/1 |
Organisation | United Kingdom Research and Innovation |
Sector | Public |
Country | United Kingdom |
Start | 03/2024 |
End | 03/2028 |
Title | Established secure room at university for researchers to access sensitive linked data (ONS SRS data) |
Description | Secure accredited room established for SEPMD project team, now also used by other university researchers wishing to access secure linked data. University provided funding in kind to establish this. |
Type Of Material | Improvements to research infrastructure |
Year Produced | 2022 |
Provided To Others? | Yes |
Impact | Other ECRs are able to access sensitive linked data. Secure area established. Researchers can work closely in secure area to share knowledge. |
Title | Data linkage of UK census data to electronic mental health records from South London & Maudsley Trust (CRIS) |
Description | This is the first ever/ de novo linkage of its kind in the UK. I have led the development of the ethical applications, study design and informed data linkage methods (being led by the ONS). The project has been supported by the UK ADRN. We hope to have access to our first linked datasets later this year (links to ESRC SDAI grant awarded recently) |
Type Of Material | Data handling & control |
Year Produced | 2019 |
Provided To Others? | No |
Impact | TBC |
Description | Collaboration with ONS |
Organisation | Office for National Statistics |
Country | United Kingdom |
Sector | Private |
PI Contribution | We have worked with the ONS data linkage team successfully leading to a linked dataset between Census from England and Wales and mental health records from South London. Unfortunately access to the linked dataset has been suspended due to COVID-19 restrictions however we have started to develop a methodology paper describing the processes involved in establishing this dataset. |
Collaborator Contribution | ONS team set up the linkage between mental health data to ONS census data in a secure linked area and have provided controls. The team have also advised on a manuscript/ methods document (in prep) detailing the linkage. Work has been suspended however due to impact of COVID-19 pandemic. |
Impact | 1. Presentations to detail the linkage 2. Methods document available to all researchers working with linked data 3. Published output in collaboration with ONS, ONS coauthors: Cybulski L, Chilman N, Jewell A, Dewey M, Hildersley R, Morgan C, Huck R, Hotopf M, Stewart R, Pritchard M, Wuerth M, Das-Munshi J. Improving our understanding of the social determinants of mental health: a data linkage study of mental health records and the 2011 UK census. BMJ Open. 2024 Jan 29;14(1):e073582. doi: 10.1136/bmjopen-2023-073582. PMID: 38286672; PMCID: PMC10826590. 4. Secure room established at KCL to support SEPMD researchers/ other ONS accredited researchers to access secure linked data in the ONS SRS- (supported through in kind funding from university and BRC (NIHR). 5. Ethical approvals through HRA to continue to use linked data for additional secondary data analysis for other projects 6. Presentation of work resulting from ONS linked data- eg. see https://ijpds.org/article/view/2264 |
Start Year | 2019 |
Description | Collaboration with SLAM PCREF |
Organisation | South London and Maudsley (SLAM) NHS Foundation Trust |
Country | United Kingdom |
Sector | Academic/University |
PI Contribution | We are working with the SLAM PCREF team, advising/ supporting their current aims to improve the quality of data on ethnicity, mental health and reporting in the Trust |
Collaborator Contribution | A service user carer advisor who is also in a position of leadership with SLAM PCREF has joined our service user advisory group for the study |
Impact | The service user advisory group is working closely with the team to inform upon research resulting from the data linkage. Current outcomes 1. Advised on plans for study- which supported our renewal of ethics 2. Advised on PhD study - this project is being written up for thesis and publication 3. Advised on research outputs- also in prep, being revised/ written up |
Start Year | 2023 |
Description | Collaboration with the Centre for Mental Health |
Organisation | Centre for Mental Health |
Country | United Kingdom |
Sector | Hospitals |
PI Contribution | The CMH is collaborating with us and supporting a +3 CASE PHD studentship on cities and mental health using linked data. The CMH will provide internship opportunities for the student and assist with policy and impact of the study. The project will cement collaborations with this charity and we will may be able to provide data/ intelligence to the charity relating to health outcomes and social determinants of severe mental illnesses which will help the charity with their work in this area |
Collaborator Contribution | as above |
Impact | successful PhD studentship (to start later this year) |
Start Year | 2020 |
Description | collaboration towards data linkage |
Organisation | University of Southampton |
Department | Administrative Data Research Centre for England |
Country | United Kingdom |
Sector | Academic/University |
PI Contribution | The ADRN has assisted me in negotiations brokering a data linkage with one of the datasets of my fellowship with census data |
Collaborator Contribution | They have assisted in liaising with ONS to broker the linkage |
Impact | ongoing |
Start Year | 2016 |
Description | collaboration with Black Thrive- represents local Black communities in Lambeth |
Organisation | Black Thrive |
Country | United Kingdom |
Sector | Charity/Non Profit |
PI Contribution | Presentations to Black Thrive membership which has informed their evaluation of health for Black people in Lambeth |
Collaborator Contribution | 1. A presentation of research findings was made to Black Thrive membership- this has informed their guideline development for policy/ public health in Lambeth; 2. Black Thrive have supported our application for a further grant application to the ESRC, if we are successful this will further inform their work to address health inequalities for Black communities in Lambeth and will allow us to conduct capacity building workshops with their members- providing data to inform their evaluations, priority-setting and public health interventions in Lambeth |
Impact | 1. Presentation (engagement work), 2. Support for further funding, 3. Informed local public health (informed one of the outcomes for evaluation) |
Start Year | 2016 |
Description | collaboration with Lambeth commisioners and Primary care leads |
Organisation | NHS Lambeth CCG |
Country | United Kingdom |
Sector | Public |
PI Contribution | We have collaborated on a grant application which will develop some of the themes of the fellowship and potentially inform local commissioning priorities and raise mental health awareness |
Collaborator Contribution | I am the lead applicant on a small grant application to a charity, the partners are collaborators on the grant |
Impact | No outputs yet- if we are awarded the grant this will result in £50000 towards cost of project |
Start Year | 2016 |
Description | APMS steering group member |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | I am a steering group member for the Adult Psychiatric Morbidity Surveys (APMS). I advise on planned future APMS data collection waves- next one is planned for 2022. Steering group members include DHSC representatives, Natcen representatives (who lead/ oversee data collection), NHS-E/ I and PHE representatives and clinical academics. |
Year(s) Of Engagement Activity | 2020,2021,2022 |
URL | https://digital.nhs.uk/data-and-information/areas-of-interest/public-health/national-study-of-health... |
Description | Blog post for SEPMD study |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Public/other audiences |
Results and Impact | Blog post highlighting preliminary findings from SEPMD study |
Year(s) Of Engagement Activity | 2022,2023 |
URL | https://www.kcl.ac.uk/linking-data-to-understand-severe-mental-illness-what-have-we-learned-so-far |
Description | Blog post for SEPMD study |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Public/other audiences |
Results and Impact | Blog post on data linkage for SEPMD study |
Year(s) Of Engagement Activity | 2022,2023 |
URL | https://www.kcl.ac.uk/the-story-of-the-sep-md-study |
Description | Mental health speaker/ panellist at EPA 2022 |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | Panelist on Mental Health 'Question Time' at EPA 2022, with in-room audience of 300 people and online/ live tweeting by Mental Elf |
Year(s) Of Engagement Activity | 2022 |
URL | https://www.youtube.com/watch?v=McL8VZAZ-O8 |
Description | NHS-E/I Working group on data and mental health equalities |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | I am a working group member for an NHS-E/ I national panel to tackle issues linked to data (recording in patient records) of information related to protected characteristics (ethnicity, gender, disability etc). This working group was set up in response to the Patient and Carer Race Equality Framework (PCREF) a national initiative which was set up to tackle inequalities identified during the Mental Health Act (MHA) review in 2018. Decisions resulting from the group will lead to improvements in routine data collection of protected characteristics, captured during contacts with mental health services, nationally. |
Year(s) Of Engagement Activity | 2021 |
Description | Poster presentation at Birmingham ADR-UK 2023 Conference |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Other audiences |
Results and Impact | Poster presentations on SEPMD paper at annual ADR UK conference |
Year(s) Of Engagement Activity | 2023 |
URL | https://2023conference.adruk.org/ |
Description | Poster presentations by ECRs on team at annual SIRS conference, Canada |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Other audiences |
Results and Impact | Two team members presented their work at the annual SIRS conference- poster presentations ('late breaking') |
Year(s) Of Engagement Activity | 2023 |
Description | Presentation at ADRUK 2023 conference |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Other audiences |
Results and Impact | Short presentation at ADR-UK conference on association of urbanicity with psychosis. |
Year(s) Of Engagement Activity | 2023 |
URL | https://virtual.oxfordabstracts.com/#/event/4218/submission/111 |
Description | Project website for COVEIMM study |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Public/other audiences |
Results and Impact | Study website which will be landing page for other outputs |
Year(s) Of Engagement Activity | 2022,2023 |
URL | https://www.kcl.ac.uk/research/covid-19-ethnic-inequalities-in-mental-health-and-multimorbidities-co... |
Description | Web site for SEPMD study |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Public/other audiences |
Results and Impact | web site for SEPMD study linked to other project outputs |
Year(s) Of Engagement Activity | 2022,2023 |
URL | https://www.kcl.ac.uk/research/the-sep-md-data-linkage-study |
Description | service user and carer advisory group |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | Local |
Primary Audience | Patients, carers and/or patient groups |
Results and Impact | We have established a panel of service users and carers who meet monthly to input into and discuss relevant findings/ work from our funded studies |
Year(s) Of Engagement Activity | 2022,2023 |