Working with community groups to understand and reduce COVID-19 vaccine hesitancy among ethnic minority individuals in the UK

Lead Research Organisation: University of Aberdeen
Department Name: Sch of Medicine, Medical Sci & Nutrition

Abstract

The UK Government's COVID-19 vaccine delivery plan of 11th Jan 2021 emphasised the need for high uptake of the vaccine but acknowledged hesitancy among some ethnic minority groups. Recent work has confirmed the unwillingness and/or uncertainty among some ethnic minority groups to take the COVID-19 vaccine. Our own work has revealed that many people in ethnic minority groups believe the vaccines to be unsafe (linked to the speed of development and deep mistrust of medical research and pharmaceutical companies), are unsure that vaccine trials have involved people like them (and therefore whether effectiveness and safety data apply to them), all against a backdrop of social inequalities. Deliberate misinformation campaigns, some of which target ethnic minority communities, play into existing anxieties.

The impact of this was starkly demonstrated by the OpenSAFELY Collaborative- data from 23.4 million adults in England show much lower rates of vaccination among Black, Mixed, South Asian and Other ethnic groups than for White groups. By 13th January, 42.5% of over-80s who were not in care homes and were White had been vaccinated, compared to 33.8% of over-80s of Indian/British Indian heritage, 23.0% of those of Bangladeshi/British Bangladeshi heritage, and 15.9% of those of African heritage.

The UK's national COVID-19 vaccine implementation strategy is clearly less effective for non-White ethnic groups. Uncertainty about receiving a vaccine presents significant challenges to achieving the societal coverage that government public health advisors have recommended.

Our proposed work will a) bring together 8-10 ethnic minority community organisations, all of which want to improve vaccine uptake in their communities; b) in collaboration with these groups do rapid systematic reviews on uptake of vaccines among ethnic minority groups and of strategies to improve uptake; c) prepare a co-produced, evidence-informed report containing recommendations regarding vaccine roll-out to ethnic minority groups, together with a co-developed agenda for further research to understand vaccine hesitancy.

Ethnic minority community organisations are at the heart of our proposal. They have the networks, experience, and credibility to engage their communities in health programmes and research. Harnessing this experience to corroborate and refine insights from different sources of evidence and tailor any resulting recommendations to the communities they represent is critical to improving COVID-19 vaccine uptake.

Publications

10 25 50
 
Description Our literature search identified data from 26 studies providing qualitative data from 2,170 participants from ethnic minority groups and survey data from 35,831 participants. Studies were conducted in the UK, USA, and Australia. These data were then the centre of 12 hours of structured discussion with our whole collaboration. We agreed that there were three main factors affecting COVID-19 vaccine uptake by ethnic minorities in the UK, and three corresponding strategies that could be used to improve uptake. These are:

Factors
1. Lack of trust in organisations and individuals advising on, or promoting, vaccine uptake.
2. Lack of culturally and linguistically appropriate information.
3. Inconvenient locations/timings of vaccine appointments.

Strategies
1. Using trusted messengers to provide information.
2. Tailoring the message both culturally and linguistically, and ensuring that issues of concern to ethnic minorities are covered.
3. Providing flexible venues/times for vaccination.

All our work, including all the data in our detailed Evidence to Decision Frameworks, is available at https://www.collaborationforchange.co.uk.

This project is unique in that it was from the very start a collaboration between nine ethnic minority community organisations, academics and small businesses working with ethnic minorities. Academics provided rigour but the lived experience, insight and perspectives came from our ethnic minority community partners. Community organisations new in other words full partners, not participants: they helped direct the research and their lived experiences are at the heart of our findings.

We aimed for clear, actionable messages underpinned by research and academic rigour. Our final report is concise (14 pages), engaging and accessible but is backed up by 100 pages of research data (available at the link above). This allows our summary statements to be tracked back to data if required, enabling us, and others, to have confidence in the factors and strategies we list.

We can, for example, say with absolute confidence that lack of trust in the NHS is reducing COVID-19 vaccine uptake by ethnic minorities (Black individuals in particular) and that working with community organisations to identify messengers trusted by ethnic minorities will improve uptake. That confidence comes from our combination of community collaboration and academic rigour.
Exploitation Route The key users of our findings are ethnic minority community organisations, the NHS, councils and others promoting COVID-19 vaccine uptake. Our partners are already using the findings in their community work. We have had discussions with NHS England and NHS Grampian, especially about engaging Black communities. Haringey Council in London has used our work to both confirm and modify its approach to vaccine roll-out. Discussions with other organisations responsible for vaccine roll-our are ongoing.
Sectors Communities and Social Services/Policy,Healthcare

URL https://www.collaborationforchange.co.uk
 
Description The finding are about trial methodology (choice of how time is distributed between primary and secondary outcomes) and data from the project has been used in teaching to doctors in their foundation years who are interested in developing research careers. Data have also been presented to key stakeholders, including funders, within the lifetime of the project itself.
First Year Of Impact 2020
Sector Healthcare
Impact Types Policy & public services

 
Description Cited by Public Health Scotland in Factors affecting uptake of the COVID-19 vaccine, June 2022
Geographic Reach National 
Policy Influence Type Citation in other policy documents
URL https://www.publichealthscotland.scot/publications/factors-affecting-uptake-of-the-covid-19-vaccine-...
 
Description Inequalities in screening
Amount £57,017 (GBP)
Organisation NHS Grampian 
Sector Public
Country United Kingdom
Start 01/2023 
End 12/2023
 
Title Collaboration for Change: Promoting Vaccine Uptake - Rapid Reviews and Evidence to Decision Framework, 2016-2021 
Description Our collaboration did two rapid systematic reviews of research evidence on factors influencing respiratory vaccine (including COVID-19) uptake in ethnic minority adults and strategies to improve uptake. In summary, these reviews and our approx 12 hours of discussion identified six factors influencing respiratory vaccine (including COVID-19) uptake in ethnic minority adults and three strategies to improve uptake. This data collection includes our extracted data for the two rapid reviews and the nine Evidence to Decision framework, the latter of which summarises our discussion in a structured way. The frameworks also present our recommendations. 
Type Of Material Database/Collection of data 
Year Produced 2021 
Provided To Others? Yes  
Impact Impact of research dataset unclear. 
URL https://reshare.ukdataservice.ac.uk/855248/
 
Description Article in The Conversation 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Article on the project results in The Conversation
Year(s) Of Engagement Activity 2021
URL https://theconversation.com/three-ways-to-improve-the-uptake-of-covid-vaccines-by-ethnic-minority-gr...
 
Description Interview for national news 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Interview about the project results with BBC Radio Scotland.
Year(s) Of Engagement Activity 2021
 
Description Radio interview 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact Interview about the project results with Tayside Radio.
Year(s) Of Engagement Activity 2021
 
Description TV interview 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Interview about the project results with That's TV Scotland.
Year(s) Of Engagement Activity 2021