MICA: The Scottish eHealth Informatics Research Centre

Lead Research Organisation: University of Dundee
Department Name: Medicine Office

Abstract

The United Kingdom has some of the best health service data in the world. This is particularly true in Scotland, where a simple and far-sighted decision in the 1970's means that every person registered with a general practitioner (GP) in Scotland (population 5 million) is allocated a unique identifying number from a centrally maintained register called the Community Health Index (CHI). It is the key to linking health data to improve communication and the quality of care that the NHS delivers to patients. It is also vital for health research that aims to improve our understanding of how to run health services efficiently; how to treat patients more effectively; how the intimate links between our genetic make-up and the environment interact to cause disease, and how to test the safety and benefit of new medicines more effectively. We have a track record of doing this; for example, using routine information, researchers in Scotland showed that the introduction of the smoking ban in public places resulted in a reduction in emergency admissions for asthma in children aged 5-15 by 18% per annum; and have shown the long term safety, often using information collected over decades, of drugs for the treatment of many common diseases such as diabetes and heart disease.
The aim of the Scottish eHealth Research Centre is to build upon these existing strengths, by bringing together a group of researchers across Scotland and the UK in a joined-up strategy. This includes experts in science, public health, clinical trials, the law, safety of medicines, the law, social science, geography and the environment. Our aim is to make better use of the wealth of good quality, routinely collected health data and other datasets, to answer some of the pressing questions facing 21st Century medicine. The number one priority if we are to do this is to maintain confidentiality and privacy by implementing the highest standards of security and governance to maintain public trust.
Our Centre will therefore not only perform cutting edge research and train the next generation of researches and computer scientists that we will require to analyse these large datasets, but will also consult widely with the public to develop an acceptable approach to the use of electronic patient records. Our Centre aims to demonstrate enormous benefit for clinical, genetic, public health and health services research whilst deploying the highest standards of respect for confidentiality of information.
Better use of routinely collected data, will result in substantial improvements in the health of the nation. The Centre will not only produce new knowledge but also increase the health and wealth of society.

Technical Summary

The Scottish eHealth Informatics Research Centre will establish a vibrant, pre-eminent, interdisciplinary Centre as part of a UK-wide network. The Centre will exploit Scotland's exceptional data resources and long tradition of excellence in eHealth informatics research, rapidly translating our academic strengths into benefits for patients locally and globally. The Centre aims to be a world leader in the training of a wide range of professionals and pioneer the linkage of health datasets to non-health and genetic datasets. Over five years the Centre will deliver reach and significant impact in five broad domains:
Scientific Excellence
We will perform innovative programmes of research which involve linkage between electronic health records or linkage of electronic health records to other datasets including research data, geo-spatial and socio-economic records. We will focus on (i) Health, Illness and Society through Time, and, (ii) Studies of Interventions, including clinical trials, pharmaco-epidemiology, quasi-experimental studies and related health economic evaluations. We will also develop and apply new methods for data manipulation, linkage or analysis in key areas of statistics, computer science and informatics.
Training and career development
We will offer training for PhD students, post-doctoral fellows and visiting workers where skills can be learnt on the job; and provide career opportunities for enabling roles such as data managers, informaticians and data analysts;
Networking activities
The Centre will create a network providing scientific leadership, support, and training opportunities to the wider research community on the design, linkage, conduct and analysis of e-health related research.
The Law. Governance and Public Engagement The Centre will execute innovative legal and governance research, and engage patients and the public to promote public and professional understanding of the health and societal benefits of e-health research

Planned Impact

The track record of the applicants suggests that the Scottish eHealth Research Centre will have considerable and broad impact across a broad range of user communities. The Centre brings together an inter-disciplinary team of expertise and large population based databases that will create a world-class framework for future inter-disciplinary research using electronic health records and other research datasets. The Centre will result in unprecedented opportunities for clinical, translational, and public health research, and is underpinned by excellence in the fields of standards, ethics, European law, privacy, technology development, analytics and semantic inter-operability. As well as the scientific research outputs, key Centre deliverables will include:
(i) A common data platform that provides access to patient medical information, using large (often nationwide) comprehensive and in-depth patient health data for research
(ii) A detailed inventory and description of the different data sources and associated metadata, and patient populations on the MRC Centre website
(iii) Develop solutions in the areas of data privacy and ethics, standards and semantic interoperability as well as legal issues and information technology and analysis.

Who will benefit from this research and how ?
The Centre will impact on industry, charities, universities, government departments and independent public bodies, with the result of improving the economic competitiveness of the United Kingdom, increasing the effectiveness of public services and policy, and ultimately enhancing quality of life, health and creative output. This thesis is echoed in recent major policy announcements, including the Prime Ministerial launch of the Office of Life Sciences Strategy for UK Life Sciences (December 2011) which used the applicants' work as a case study. Specific examples include:
Industry: The clinical trials work stream will address common challenges in clinical trials that can be alleviated using EHRs include: (i) trial feasibility; (ii) identifying potentially eligible recruits; (iii) avoiding re-entry of existing electronic data; (v) clinical event follow-up; (vi) assessing cost-effectiveness and external validity; (viii) cost containment. Likewise the pharmacoepidemiology workstream will provide a mechanism for real world monitoring of safety and effectiveness. Industry has expressed intense interest in our work, and we anticipate the development of new partnerships, and increased grant acquisition and possible exploitation of intellectual property (see letters of support from GSK, Pfizer, ABPI).
Informatics developments will also have impact, building on our proven track record of developing creative partnerships; e.g. the £2.3M Technology Strategy Board cancer informatics programme between NHS Scotland, Universities of Edinburgh and Dundee and Aridhia Informatics (see letters of support from IBM and Aridhia).
Government: Our work on public engagement, NEA and proportionate governance will have considerable impact on policy makers. We anticipate this will shape the development of the Scottish Government Data Linkage Centre, announced September 2011 (see letter of support from Mr John Swinney, Cabinet Secretary for Cabinet Secretary for Finance, Employment and Sustainable Growth). We also predict the NEA work will have influence on emergent policy, such as minimum pricing for alcohol, as our work did on the ban on smoking in public places (New Engl J Med 2010)
NHS: Our work linking informatics to monitor disease progression and chronic disease epidemiology will have impact on patient care. This has been illustrated for diabetes; our aim is to extend it to other chronic diseases such as rheumatoid arthritis, cancer and CVD. This has direct relevance to the quality of integrated health care (see letter of support from Mr Derek Feeley, Chief Executive NHS Scotland).

Organisations

Publications

10 25 50

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Aitken M (2019) Consensus Statement on Public Involvement and Engagement with Data Intensive Health Research in International Journal of Population Data Science

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Aitken M (2018) Public Preferences regarding Data Linkage for Health Research: A Discrete Choice Experiment in International Journal of Population Data Science

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Alvarez-Madrazo S (2016) Data Resource Profile: The Scottish National Prescribing Information System (PIS). in International journal of epidemiology

 
Description (Frank, Doi) SCPHRP a) Review of English DoH Report on, and b) Response to Scottish Government Request for Technical Input on: the Evaluation of the Nurse Family Partnership Pilot and Roll-Out.
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Gave evidence to a government review
Impact In late 2013, this request was received and responded to positively by SCPHRP for the first time. JF was subsequently an expert reviewer of the large- and completely NEGATIVE -- RCT of FNP in England, for the Department of Health there, many months prior to it publication in the Lancet in late 2015. JF and LD met with SG policy officials responsible for deciding what to do about the imminent Scotland-wide roll-out of this costly programme; they are still in contact with those officials, to provide further confidential advice as requested.
URL http://news.scotland.gov.uk/News/Edinburgh-a-world-leader-on-family-nurse-partnership-1710.aspx
 
Description (Frank,Doi) Invited Membership, Maternity & Neonatal Evidence and Data Sub Group of Scottish Government MCH Review
Geographic Reach National 
Policy Influence Type Participation in a advisory committee
URL http://blogs.scotland.gov.uk/child-maternal/2016/01/21/maternity-and-neonatal-review-group-and-sub-g...
 
Description (John Frank) 2011 - 14: Member, Operations and Steering Group, Scottish Government Data Linkage Initiative (2011-12) and then of the Data Linkage Framework Programme and Executive Boards (2012-13)
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Participation in a advisory committee
Impact This is the pan-Scottish-Government analogue of the SHIP programme described above, and has created public funding, and regulatory and legal frameworks to help make Scotland a world-leader in using routine administrative data to understand how health services run, and improve them.
URL http://www.gov.scot/Topics/Statistics/datalinkageframework/DLFboard
 
Description (John Frank) Chair, Scottish Government Steering Committee, Teenage Pregnancy and Young Parenting
Geographic Reach National 
Policy Influence Type Implementation circular/rapid advice/letter to e.g. Ministry of Health
URL http://news.scotland.gov.uk/News/Pregnancy-and-Parenthood-in-Young-People-1b08.aspx
 
Description (John Frank) Member, Royal Society of Edinburgh Expert Committee on Minimum Unit Pricing of Alcohol and Scottish Government Obesity Control Policy
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Gave evidence to a government review
Impact In response to the long-awaited enactment of the Scottish Government's (SG) Minimum Unit Price (MUP) on Alcohol legislation in spring of 2018, and a late-2017 SG policy document on tackling obesity, the Royal Society of Edinburgh formed a short-life expert committee to provide commentary and scientific advice to the SG on both issues. The former advice - on MUP -- was extensively covered in the Scottish press and media in February 2018.
URL https://www.rse.org.uk/advice-papers/revision-implementation-minimum-unit-pricing/
 
Description (John Frank) SCPHRP Continuing Professional Education Course for Policy Analysts and Research Trainees
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Influenced training of practitioners or researchers
Impact In 2013, SCPHRP launched a novel, no-fee continuing professional education programme for mature public health professionals working in Scotland's 14 NHS Health Boards' public health departments. With the full involvement of their respective Directors of Public Health (DPHs), three mid-career professionals with an existing Masters degree were mentored -- in each case by a SCPHRP Fellow and the Director -- to improve the scientific quality of an applied research project approved by their DPH. Over the subsequent three years, all three trainees reported, on their final evaluation of the experience -- corroborated by their respective DPHs, that the experience had been entirely positive, with one trainee presenting her results at the Scottish FPH Conference, and another publishing her project in a peer-reviewed journal, with SCPHRP staff as co-authors (see Publications: Goodfellow A. et al. 2017). Due to a lack of external funding to SCPHRP after mid-2018, to continue this programme, it is being discontinued, but the DPHs of Scotland are aware of its success and are interested in seeking support for its continuation.
 
Description (John Frank): member, Scientific Advisory Board, DECIPHER
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Participation in a advisory committee
URL http://decipher.uk.net/
 
Description 2009 - 16 John Frank: Chair, Steering Committee, MRC Unit for Lifelong Health and Ageing (UK)
Geographic Reach National 
Policy Influence Type Participation in a advisory committee
URL http://www.nshd.mrc.ac.uk/
 
Description 2009 - John Frank: Member (now Chair), Scientific Advisory Board, UKCRC Centre of Excellence in Public Health, Belfast, NI
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Participation in a advisory committee
URL http://www.qub.ac.uk/research-centres/CentreofExcellenceforPublicHealthNorthernIreland/
 
Description A Health and Biomedical Informatics Research Strategy for Scotland
Geographic Reach National 
Policy Influence Type Participation in a advisory committee
Impact The unprecedented investment by the MRC and its funding partners, coupled with strong Government support for both health and cross-sectoral data linkage, creates a unique opportunity for a step change in health and biomedical informatics research capability in Scotland. For this potential to be realised, there are a number of challenges that must be overcome. Strong working relationships need to be built between the new and existing infrastructure and centres of expertise. Governance must be made more streamlined and efficient. Data custodians and industry partners must be effectively engaged. Public confidence and trust need to be maintained and promoted, throughout. There is already action in hand in several of these areas, notably the work to establish the Farr Institute Scotland and to create a national primary care dataset. The view of the Group is that further progress in the short term will depend critically on effective action to create a functioning network of safe havens, and to streamline governance procedures. Looking further ahead, it will be vital to continue to maintain public trust and progress industry engagement, and to continue to build upon our existing research capacity. In this way the potential of the new capability will be realised for the benefit of Scotland, its economic development and, most importantly, for the optimal care of patients and health improvement of the Scottish public.
URL http://www.gov.scot/Publications/2015/04/6687
 
Description Academy of Medical Science
Geographic Reach National 
Policy Influence Type Citation in other policy documents
URL http://www.acmedsci.ac.uk/publications/?cat=Workshop%2C+symposium+and+lecture+reports
 
Description Academy of Medical Science
Geographic Reach National 
Policy Influence Type Citation in other policy documents
URL http://www.acmedsci.ac.uk/publications/?cat=Workshop%2C+symposium+and+lecture+reports
 
Description Appointed as Chair, Scientific Advisory Committee for Non-Experimental Evaluation of Family Nurse Partnership in Scotland (commissioned by the Scottish Government, researcher team from Wales)
Geographic Reach National 
Policy Influence Type Participation in a advisory committee
 
Description Cabinet Office consultation about good governance frameworks in data linkage
Geographic Reach National 
Policy Influence Type Participation in advisory committee
Impact Publication of CABINET OFFICE INITIAL DISCUSSION DOCUMENT ON DATA SHARING POLICY
URL http://datasharing.org.uk/current-proposals/
 
Description Chair of Scottish Digital Health and Care Strategy Strategic Overisight Group
Geographic Reach National 
Policy Influence Type Participation in a advisory committee
URL http://www.ehealth.nhs.scot/strategies/the-person-centred-ehealth-strategy-and-delivery-plan-stage-o...
 
Description Chair of Scottish Government Pharmacy Scoping Taskforce
Geographic Reach National 
Policy Influence Type Participation in a advisory committee
 
Description Chair, International Scientific Advisory Committee, OPTIMISE Project (CIHR Grant awarded to Prof Laura Rosella et al. to improve the use of routinely collected population-based data for health system and policy action), CANADA
Geographic Reach North America 
Policy Influence Type Participation in a advisory committee
URL http://www.dlsph.utoronto.ca/faculty-profile/rosella-laura-c/
 
Description Development and Delivery of Short CPD Course: Critical Appraisal for Public Health
Geographic Reach Multiple continents/international 
Policy Influence Type Influenced training of practitioners or researchers
Impact This six-session Course in Critical Appraisal for Public Health was developed by Prof Frank and Sally Haw, then based at SCPHRP, in 2010, Since then parts of it have been taught, with updated content, to more than a dozen audiences of public health professionals and post-graduate trainees, in Scotland (four times), England, Canada (four times), Australia (twice), Greece, South Africa, and Tanzania.-- always with very positive learner evaluations. It led to the writing of a book "Prevention: A Critical Toolkit" by Prof Frank and colleagues, published by Oxford University Press in 2016 (see Publications.)
URL https://global.oup.com/academic/product/disease-prevention-9780198725862
 
Description Expert Panel Membership - Council of Canadian Academies
Geographic Reach North America 
Policy Influence Type Citation in other policy documents
Impact Laurie completed his work on the Expert Panel for the Council of Canadian Academies in 2015 in producing its report on Accessing Health and Health-Related Data in Canada (31 March 2015) in which the SHIP/Farr approach was recognised as international best practice:
URL http://www.scienceadvice.ca/uploads/eng/assessments%20and%20publications%20and%20news%20releases/Hea...
 
Description Guangdong Province FAO
Geographic Reach Multiple continents/international 
Policy Influence Type Implementation circular/rapid advice/letter to e.g. Ministry of Health
 
Description Guangdong Province FAO return visit
Geographic Reach Multiple continents/international 
Policy Influence Type Implementation circular/rapid advice/letter to e.g. Ministry of Health
 
Description Guangdong Province Party Secretary visit
Geographic Reach Multiple continents/international 
Policy Influence Type Implementation circular/rapid advice/letter to e.g. Ministry of Health
 
Description Invited to talk at the Information Governance Workshop co-ordinated by the Innovative Healthcare Delivery Programme (IHDP)
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Participation in a national consultation
URL http://www.farrinstitute.org/news/innovative-healthcare-delivery-programme-hosts-information-governa...
 
Description John Frank (2011 - 2013): Member, Scottish Health Informatics Programme, Scientific Management Group
Geographic Reach National 
Policy Influence Type Participation in a advisory committee
Impact This five-year programme of applied record-linkage research has established Scotland as a world-leader in using routine administrative data to understand how health services run, and improve them. Most importantly, SHIP was the forerunner of the now-well-established Farr Institute in Scotland, the lead node in a multi-million pound UK-wide network of record linkage centres for health and related research, in which SCPHRP is a key player ( http://www.farrinstitute.org/centre/Scotland/3_About.html )
URL http://www.scot-ship.ac.uk/publications.html
 
Description John Frank/Ruth Jepson (2008-): Members, Scottish Government Monitoring, Evaluation, and Research Group on Alcohol Strategy (MESAS) -- John Frank still an active member in 2017
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Participation in a advisory committee
Impact This expert advisory group ensures that robust science is applied to the evaluations all new alcohol control policies in Scotland and will ensure the Minimum Unit Pricing law, when implemented, is well evaluated, informing policy worldwide.
URL http://www.healthscotland.com/scotlands-health/evaluation/planning/MESAS.aspx
 
Description John Frank: Chair, International Advisory Board, NIHR Schools of Public Health Research (UK)
Geographic Reach Multiple continents/international 
Policy Influence Type Participation in a advisory committee
URL http://sphr.nihr.ac.uk/
 
Description John Frank: National Information and Intelligence Strategy for Scotland
Geographic Reach National 
Policy Influence Type Participation in a national consultation
Impact As a result of our involvement in this consultation at the Scottish Government level, and two influential critical papers we published in the Milbank Quarterly (Frank and Haw, 2011; 2013 -- see Publications), substantial revisions were made to the annual series of Scottish Government reports on Long-term Monitoring of Health Inequalities, in line with our criticisms/recommendations. Indeed, of only three current references on the Scottish Government website (see URL link below), two are our SCPHRP publications.
URL http://www.gov.scot./Topics/Statistics/Browse/Health/TrendHealthOutcome
 
Description John Frank: Technical Advisor, Annual Report of the Chief Public Officer of Canada -- annually since 2008 -- including provision of CPD training in epidemiology to Report's writing staff.
Geographic Reach North America 
Policy Influence Type Participation in a advisory committee
Impact Now beginning his tenth year of advising the writing team at the Public Health Agency of Canada, on the Annual Report of the Chief Public Health Officer, Frank is the most senior epidemiologist on the advisory committee, and the only one to regularly provide Continuing Professional Education to the writing team, in Ottawa, to improve the scientific quality of the Report. In his judgement, the Report is significantly better, in epidemiological terms, than it was at the beginning of this process.
URL https://www.canada.ca/en/public-health/corporate/publications/chief-public-health-officer-reports-st...
 
Description Lead, "Evidence-Based Prioritization of Public Health Problems in Scotland" Project (for Scottish Government/NHS)
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Gave evidence to a government review
Impact In November 2017, Prof Frank was asked to chair a half-dozen-member Stakeholder/Expert Advisory Group to create, based on scientific evidence, a set of criteria for use in a broadly participatory process to set public health priorities for Scotland, as one step in an ongoing Public Health Review headed by Dr Marion Bain, for the Scottish Government (SG) and NHS. Those criteria were created within six weeks, submitted to the Review, and are now (early 2018) being used in a series of Scotland-wide participatory stakeholder workshops to actually set public health priorities to guide a forthcoming major reorganisation of public health services in Scotland. Prof Frank is also a member of a small Task Force to synthesise all the results of that Scotland-wide stakeholder consultation to prioritise its public health problems, using the methodology his Advisory Group produced in late 2017, which is to meet for the first time on March 15, 2018, and then report to the SG's PH Review.
URL http://www.gov.scot/Topics/Health/Healthy-Living/Public-Health-Reform
 
Description Member of International Independent Expert Advisory Panel to advise the Scottish Government on the Scottish Digital Health and Care Strategy
Geographic Reach National 
Policy Influence Type Participation in a advisory committee
 
Description Member, International Advisory Board, School of Population and Global Health, McGill University, Montreal, CANADA
Geographic Reach North America 
Policy Influence Type Participation in a advisory committee
URL https://www.mcgill.ca/spgh/
 
Description Member, Scientific Advisory Group, Better Start Bradford Innovation Hub
Geographic Reach National 
Policy Influence Type Participation in a advisory committee
URL https://borninbradford.nhs.uk/research/grants/better-start-bradford-innovation-hub/
 
Description Nuffield Council on Bioethics report on The Collection, Linking and Use of Data in Biomedical Research and Health Care: Ethical Issues (February 2015)
Geographic Reach National 
Policy Influence Type Citation in other policy documents
Impact the recent Nuffield Council on Bioethics report on The Collection, Linking and Use of Data in Biomedical Research and Health Care: Ethical Issues (February 2015) identifies the endorses the Farr Institute and identifies the SHIP governance framework as a best practice case study, concluding that: "The SHIP initiative demonstrates a number of elements of good practice according to our analysis and principles. It pays regard to context rather than simply the 'type' of data in use; it acknowledges the importance of responsible behaviour on the part of professionals over and above the duty to respect the consent of patients, even where data with a low risk of re-identification are used; it aims to resolve the 'double articulation' of public and private interests that we described in chapter 3, partly through a commitment to public engagement; and it takes seriously the need for trust and concerns about the involvement of commercial interests (which we consider further, in another context, in the next section)." [para 6.53]
 
Description Participation in Academy of Medical Sciences roundtable on real world evidence
Geographic Reach National 
Policy Influence Type Participation in a advisory committee
 
Description Participation in MCRI international review of research strategy
Geographic Reach Australia 
Policy Influence Type Participation in a advisory committee
 
Description Produced an international road-map for decision makers on how to harness data science and AI to improve healthcare delivery
Geographic Reach Multiple continents/international 
Policy Influence Type Participation in a advisory committee
URL http://www.wish.org.qa/wp-content/uploads/2018/11/IMPJ6078-WISH-2018-Data-Science-181015.pdf
 
Description Prof C Black - Chair of PBPP Working Group on Public Engagement
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Participation in a advisory committee
 
Description Prof C Black - North Node Permissions Advisory Committee Member
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Participation in a advisory committee
 
Description Prof C Black - Professional Member of the Public Benefits and Privacy Panel for Health and Social Care (PBPP)
Geographic Reach Local/Municipal/Regional 
Policy Influence Type Participation in a advisory committee
URL http://www.informationgovernance.scot.nhs.uk/
 
Description Research Project Supervision for 12 MPH students since 2013
Geographic Reach Multiple continents/international 
Policy Influence Type Influenced training of practitioners or researchers
Impact Each year since 2013, three or four graduating MPH students from the University of Edinburgh's on-campus MPH programme have selected SCPHRP as the venue for conducting their three-month MPH research project, under the active supervision of SCPHRP Fellows and staff. While they are based with us, they also become familiar with how SCPHRP works with its policy and practice stakeholders to move its research into action. This contributes to the research and knowledge transfer skills of these graduates - many of them from abroad -- who are joining the international public health professional workforce. All our student evaluations of their project time with us have been very positive.
 
Description Safe Haven Charter for Scotland
Geographic Reach National 
Policy Influence Type Membership of a guideline committee
Impact The information held in electronic patient health records offers enormous opportunities for research that can lead to more effective, safer health services and treatments, and better understanding and new insights into the causes and development of diseases. Whilst the public are generally very supportive of the aims of health informatics research (research using electronic health records), there is significant public concern about how the data in their health records might be used, who has access to these data, and that as a result of this research their privacy and confidentiality may be compromised. In order to address these concerns and support health informatics research, a robust governance framework has been developed to ensure that health informatics research in Scotland is ethical, in the public interest, scientifically sound, and patient identity and privacy are appropriately protected. 'Safe Havens' are a crucial element of this framework in order to protect identity and privacy and facilitate health informatics research. This charter sets out the agreed principles and standards for the routine operation of Safe Havens in Scotland where data from electronic National Health Service (NHS) patient records can be processed, linked with other data and analysed to support research when it is not practicable to obtain individual patient consent while protecting patient identity and privacy. It also describes, at a high level, how Safe Havens will work together across Scotland on collaborative research projects as part of a federated network.
URL http://www.gov.scot/charterforsafehavens
 
Description Scottish Government - Medicines Use and Digital Capabilities
Geographic Reach National 
Policy Influence Type Implementation circular/rapid advice/letter to e.g. Ministry of Health
URL https://www.gov.scot/Topics/Health/NHS-Workforce/Pharmacists/datascopingtaskforcereport
 
Description Scottish Government Data Management Board
Geographic Reach National 
Policy Influence Type Membership of a guidance committee
Impact The Board have published a Data Vision for Scotland and associated Strategic Action Plan.
URL http://www.scotland.gov.uk/Topics/Economy/digital/digitalservices/datamanagement/dmbvfs/dmbvfspdf
 
Description Scottish Government Short Life Working Group on research training
Geographic Reach National 
Policy Influence Type Influenced training of practitioners or researchers
 
Description (John Frank) CIHR Foundation Scheme
Amount $1,292,148 (CAD)
Funding ID PI: Arjit Nandi 
Organisation Canadian Institutes of Health Research 
Sector Public
Country Canada
Start 07/2016 
End 06/2022
 
Description (John Frank) CIHR Stage 2 Foundation Scheme
Amount $1,155,257 (CAD)
Funding ID PI : Laura Rosella 
Organisation Canadian Institutes of Health Research 
Sector Public
Country Canada
Start 07/2016 
End 06/2020
 
Description A validation of the health and social costs of asthma using questionnaire data
Amount £60,000 (GBP)
Organisation Asthma UK 
Sector Charity/Non Profit
Country United Kingdom
Start 10/2014 
End 09/2017
 
Description Assessing the national and global impact of tobacco control policies on child health.
Amount € 200,000 (EUR)
Organisation Long Fonds 
Sector Charity/Non Profit
Country Netherlands
Start 01/2015 
End 12/2017
 
Description Asthma UK Research Centre for Applied Research
Amount £2,000,000 (GBP)
Funding ID AUK-AC-2012-01 
Organisation Asthma UK 
Sector Charity/Non Profit
Country United Kingdom
Start 05/2014 
End 04/2019
 
Description At-Risk Registers integrated into primary care to stop asthma crises in the UK (ARRISSA-UK)
Amount £1,700,000 (GBP)
Organisation National Institute for Health Research 
Department Health Technology Assessment Programme (HTA)
Sector Public
Country United Kingdom
Start 01/2015 
End 12/2018
 
Description Baily Thomas Foundation
Amount £109,310 (GBP)
Organisation Baily Thomas Charitable Fund 
Sector Charity/Non Profit
Country United Kingdom
Start  
 
Description British Council Iran SEED funding
Amount £5,000 (GBP)
Organisation British Council 
Sector Charity/Non Profit
Country United Kingdom
Start 04/2017 
End 03/2018
 
Description Burden of asthma co-morbidity in the UK: secondary analyses of national databases from England, Northern Ireland, Scotland and Wales.
Amount £105,000 (GBP)
Organisation Asthma UK 
Sector Charity/Non Profit
Country United Kingdom
Start 03/2015 
End 02/2018
 
Description CIHR (Co-Inv: Tony Robertson; John Frank) Population Health Impact Assessment Tools
Amount $498,956 (CAD)
Funding ID PI: Doug Manuel 
Organisation Canadian Institutes of Health Research 
Sector Public
Country Canada
Start 07/2015 
End 06/2019
 
Description CIHR (IPPH - John Frank: Co-Inv) Global Health Competition
Amount $1,980,000 (CAD)
Funding ID PI: Jody Heymann 
Organisation Canadian Institutes of Health Research 
Sector Public
Country Canada
Start 09/2013 
End 08/2016
 
Description CIHR- Filling for the void: public engagement around a new model for access to research resources
Amount $530,000 (CAD)
Organisation Canadian Institutes of Health Research 
Sector Public
Country Canada
Start  
 
Description CSO-Risk Factors for AKI (C Black CoA)
Amount £35,528 (GBP)
Organisation Chief Scientist Office 
Sector Public
Country United Kingdom
Start 08/2015 
End 07/2016
 
Description Cancer Medicines Outcomes Programme
Amount £970,000 (GBP)
Organisation NHS Greater Glasgow and Clyde (NHSGGC) 
Sector Charity/Non Profit
Country United Kingdom
Start 10/2016 
End 03/2019
 
Description Catalyst Grant
Amount £34,979 (GBP)
Organisation Chief Scientist Office 
Sector Public
Country United Kingdom
Start 09/2018 
End 08/2019
 
Description Chest, Heart & Stroke Scotland (C Black CoA)
Amount £77,155 (GBP)
Organisation Chest Heart & Stroke Scotland 
Sector Charity/Non Profit
Country United Kingdom
Start 05/2016 
End 04/2018
 
Description Citizen Jury- Use of Guthrie Cards for Research Purposes
Amount £40,000 (GBP)
Organisation Wellcome Trust 
Sector Charity/Non Profit
Country United Kingdom
Start  
 
Description Creating and utilising a Wales Asthma Observatory to support health policy, health service planning and clinical research.
Amount £150,000 (GBP)
Organisation Asthma UK 
Sector Charity/Non Profit
Country United Kingdom
Start 10/2014 
End 09/2017
 
Description DETECT CANCER EARLY PROGRAMME
Amount £80,000 (GBP)
Organisation NHS Grampian 
Sector Public
Country United Kingdom
Start 04/2017 
End 03/2019
 
Description DEVELOPMENT TRUST
Amount £5,000 (GBP)
Organisation University of Aberdeen 
Sector Academic/University
Country United Kingdom
Start 01/2017 
End 12/2018
 
Description DOES PLACE OF RESIDENCE, DISTANCE AND TRAVELLING TIMES FROM HEALTH SERVICES WITHIN NORTH-EAST SCOTLAND INFLUENCE THE DIAGNOSTIC PATHWAY AND OUTCOMES FROM EIGHT COMMON CANCERS: ANALYSIS OF A LINKED DATASET
Amount £137,669 (GBP)
Organisation Cancer Research UK 
Sector Charity/Non Profit
Country United Kingdom
Start 11/2016 
End 10/2018
 
Description DOUBLE ENTRY CANNOT FIND OUT HOW TO DELETE
Amount £140,000 (GBP)
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 01/2016 
End 07/2017
 
Description DataSHIELD for Accessing Sensitive HEalth Data (DASHED)
Amount £19,600 (GBP)
Funding ID ES/L007444/1 
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 10/2016 
End 09/2019
 
Description Dementia Global Challenge
Amount £9,980 (GBP)
Organisation Government of Scotland 
Department Scottish Funding Council
Sector Public
Country United Kingdom
Start 05/2017 
End 04/2018
 
Description Developing a UK taxonomy and framework for facilitating health policy deliberations on maximising secondary uses of healthcare data: a mixed methods study
Amount £93,000 (GBP)
Organisation Chief Scientist Office 
Sector Public
Country United Kingdom
Start 08/2013 
End 07/2014
 
Description Development of a Trusted Research Environment Across Europe
Amount € 9,000 (EUR)
Organisation European Institute of Innovation and Technology (EIT) 
Sector Public
Country Hungary
Start 01/2016 
End 01/2017
 
Description Development of a healthcare system to provide hospital prescribing analytics.
Amount £730,000 (GBP)
Organisation Innovate UK 
Sector Public
Country United Kingdom
Start 01/2015 
End 06/2017
 
Description EMA - Diclofenac pharmacovigilance Study
Amount € 198,854 (EUR)
Organisation European Medicines Agency 
Sector Public
Country United Kingdom
Start 07/2017 
End 12/2018
 
Description EMA - Hydroxyzine pharmacovigilance study
Amount € 199,384 (EUR)
Organisation European Medicines Agency 
Sector Public
Country United Kingdom
Start 04/2018 
End 12/2019
 
Description Electronic medicines management systems in NHS Scotland
Amount £10,000 (GBP)
Organisation Edinburgh & Lothians Health Foundation 
Sector Charity/Non Profit
Country United Kingdom
Start 10/2014 
End 09/2015
 
Description Envisioning the next generation of integrated health and care information technology infrastructure: an interdisciplinary investigation of stakeholder perspectives, technological fesibility, and implications for policy.
Amount £170,000 (GBP)
Funding ID PDF/12 
Organisation Chief Scientist Office 
Sector Public
Country United Kingdom
Start 11/2015 
End 11/2018
 
Description FAMILIAL HYPERCHOLESTEROLAEMIA
Amount £840,509 (GBP)
Organisation National Institute for Health Research 
Sector Public
Country United Kingdom
Start 04/2017 
End 03/2020
 
Description Fast-tracking Health Innovation for NHS Scotland (MRC Confidence in Concept 2017) / R170262-104
Amount £37,063 (GBP)
Organisation Medical Research Council (MRC) 
Sector Academic/University
Country United Kingdom
Start 03/2017 
End 02/2019
 
Description Global Challenges Research Fund Networking Grant
Amount £24,956 (GBP)
Organisation Academy of Medical Sciences (AMS) 
Sector Charity/Non Profit
Country United Kingdom
Start 03/2018 
End 02/2019
 
Description Implementing supported asthma self-management in routine, clinical care: designing, refining, piloting and evaluating a whole systems implementation within an MRC Phase IV programme of research.
Amount £100,000 (GBP)
Organisation National Institute for Health Research 
Sector Public
Country United Kingdom
Start 11/2015 
End 10/2016
 
Description Improving Health with Environmental Data Call
Amount £63,000 (GBP)
Organisation Natural Environment Research Council 
Sector Public
Country United Kingdom
Start 12/2016 
End 01/2018
 
Description Improving Health with Environmental Data Call
Amount £60,000 (GBP)
Organisation Natural Environment Research Council 
Sector Public
Country United Kingdom
Start 12/2016 
End 01/2018
 
Description Improving Health with Environmental Data Call
Amount £61,532 (GBP)
Organisation Natural Environment Research Council 
Sector Public
Country United Kingdom
Start 12/2016 
End 01/2018
 
Description Improving prescribing safety in general practices in the East Midlands with the PINCER intervention.
Amount £500,000 (GBP)
Organisation The Health Foundation 
Sector Charity/Non Profit
Country Denmark
Start 08/2015 
End 02/2018
 
Description MODELLING LIFE-COURSE DETERMINANTS OF COGNITIVE RESILIENCE USING ROUTINELY COLLECTED AND COHORT DATA.
Amount £79,922 (GBP)
Organisation Roland Sutton Academic Trust 
Sector Charity/Non Profit
Country United Kingdom
Start 12/2016 
End 11/2018
 
Description MRC-led Consortium (Co-Inv: John Frank and Ruth Jepson): E-Health Informatics Research Centre
Amount £5,800,000 (GBP)
Funding ID PI: Andrew Morris 
Organisation Medical Research Council (MRC) 
Sector Academic/University
Country United Kingdom
Start 03/2013 
End 06/2018
 
Description MRC/ESRC (John Frank Co-Inv): Life-Long Health and Well-Being Extended Working Lives Partnership Awards
Amount £588,016 (GBP)
Funding ID MR/L006367/1 
Organisation Medical Research Council (MRC) 
Sector Academic/University
Country United Kingdom
Start 09/2013 
End 08/2016
 
Description NHS GRAMPIAN PUBLIC HEALTH
Amount £36,000 (GBP)
Organisation NHS Grampian 
Sector Public
Country United Kingdom
Start 11/2017 
End 10/2018
 
Description NHS Grampian Endowment Fund - Renal Bone Disease (C Black CoA)
Amount £8,244 (GBP)
Funding ID 14/30 
Organisation NHS Grampian 
Sector Public
Country United Kingdom
Start 08/2014 
End 07/2015
 
Description NHS Grampian Public Health Partnership Funding (C Black CoA)
Amount £46,000 (GBP)
Organisation NHS Grampian 
Sector Public
Country United Kingdom
Start 01/2016 
End 12/2016
 
Description NHS Grampian R&D Endowment - Polypharmacy (C Black CoA)
Amount £7,240 (GBP)
Organisation NHS Grampian 
Sector Public
Country United Kingdom
Start 08/2015 
End 07/2016
 
Description NHS Grampian R&D Pump Priming
Amount £23,502 (GBP)
Organisation NHS Grampian 
Sector Public
Country United Kingdom
Start 03/2018 
End 02/2019
 
Description NHS Grampian Renal & Rheum Endowments/UoA Development Trust (C Black CoA)
Amount £56,000 (GBP)
Organisation NHS Grampian 
Sector Public
Country United Kingdom
Start 10/2014 
End 03/2018
 
Description NIH (NIA) -- Co-Inv: John Frank -- Scottish Longitudinal Study of Ageing (Pilot)
Amount $123,986 (USD)
Funding ID PI: David Bell (Univ. of Sterling) 
Organisation National Institute on Aging 
Sector Public
Country United States
Start 06/2013 
End 06/2015
 
Description Novel informatics-based strategies to support teh efficient design, execution and analysis of clinical trials for the prevention and management of long-term conditions
Amount £60,000 (GBP)
Organisation University of Edinburgh 
Sector Academic/University
Country United Kingdom
Start 01/2013 
End 12/2017
 
Description Precision Medicine
Amount £5,000,000 (GBP)
Organisation MRC Doctoral Training Program 
Sector Public
Country United Kingdom
Start 09/2016 
 
Description Precision Medicine Ecosystem for Scotland
Amount £4,000,000 (GBP)
Organisation Chief Scientist Office 
Sector Public
Country United Kingdom
Start 04/2016 
End 04/2019
 
Description Proximity to Discovery
Amount £30,000 (GBP)
Organisation Medical Research Council (MRC) 
Sector Academic/University
Country United Kingdom
Start 03/2015 
End 03/2018
 
Description Roland Sutton Academic Trust
Amount £40,599 (GBP)
Organisation Roland Sutton Academic Trust 
Sector Charity/Non Profit
Country United Kingdom
Start 01/2018 
End 12/2018
 
Description Rutherford Fund Fellowship at HDR UK: Risk Prediction in Pharmacoepidemiology
Amount £300,466 (GBP)
Organisation Medical Research Council (MRC) 
Sector Academic/University
Country United Kingdom
Start 02/2018 
End 02/2021
 
Description SPOR Innovative Clinical Trial Multi-Year Grant
Amount $1,065,001 (CAD)
Organisation Canadian Institutes of Health Research 
Sector Public
Country Canada
Start 07/2017 
End 06/2021
 
Description SULSA Pooling Network
Amount £4,850 (GBP)
Organisation Scottish Universities Life Sciences Alliance 
Sector Academic/University
Country United Kingdom
Start 10/2017 
End 09/2018
 
Description Scottish Health and Ethnicity Study (SHELS) examining inequalities in all-mortality, all-hospitalisation, infectious and parasitic diseases, injury and poisoning and bowel screening (SHELS 4)
Amount £224,000 (GBP)
Funding ID CZH/4/878 
Organisation Chief Scientist Office 
Sector Public
Country United Kingdom
Start 07/2013 
End 06/2016
 
Description Scottish Healthcare Associated Infection Prevention Institute (SHAIPI
Amount £4,200,000 (GBP)
Organisation Chief Scientist Office 
Sector Public
Country United Kingdom
Start 06/2015 
End 05/2020
 
Description Scottish School of Primary Care/Scottish Government
Amount £120,000 (GBP)
Organisation Government of Scotland 
Sector Public
Country United Kingdom
Start 07/2017 
End 06/2018
 
Description Seasonal INfluenza Vaccination Effectiveness - use of a large national primary care and laboratory-linked dataset to evaluate live attenuated and trivalent inactivated influenza vaccination.
Amount £105,000 (GBP)
Organisation Asthma UK 
Sector Charity/Non Profit
Country United Kingdom
Start 02/2015 
End 01/2017
 
Description Stoke Association Fellowship - Dr Melanie Turner, Farr aligned Research Fellow, University of Aberdeen
Amount £131,081 (GBP)
Organisation Stroke Association 
Sector Charity/Non Profit
Country United Kingdom
Start 11/2016 
End 10/2019
 
Description Sustainable health interventions to tackle the emerging threat of antimicrobial resistance (Newton Funds Institutional Links)
Amount £99,909 (GBP)
Organisation British Council 
Sector Charity/Non Profit
Country United Kingdom
Start 04/2017 
End 03/2018
 
Description The Avon Longitudinal Study for Parents and Children: An international resource for population genomic and lifecourse epidemiology
Amount £7,900,000 (GBP)
Funding ID 102215/Z/13/Z 
Organisation Wellcome Trust 
Sector Charity/Non Profit
Country United Kingdom
Start 04/2014 
End 03/2019
 
Description Travel Award - Dr Marjorie Johnston, Farr aligned Clinical Academic Fellow, University of Aberdeen
Amount £1,500 (GBP)
Organisation Chief Scientist Office 
Sector Public
Country United Kingdom
Start 04/2017 
End 04/2017
 
Description Travel Award - Dr Marjorie Johnston, Farr aligned Clinical Academic Fellow, University of Aberdeen
Amount £500 (GBP)
Organisation University of Aberdeen 
Sector Academic/University
Country United Kingdom
Start 11/2016 
End 04/2017
 
Description Travel Award - Dr Marjorie Johnston, Farr aligned Clinical Academic Fellow, University of Aberdeen
Amount £200 (GBP)
Organisation Economic and Social Research Council 
Sector Public
Country United Kingdom
Start 11/2016 
End 11/2016
 
Description Understanding the nature and frequency of avoidable harm in primary care.
Amount £350,000 (GBP)
Funding ID PRP 11-01-01 
Organisation National Institute for Health Research 
Department NIHR CLAHRC West
Sector Public
Country United Kingdom
Start 04/2015 
End 09/2019
 
Description Wellcome Trust/University of Edinburgh ISSF3 Citizen's Jury on use of Guthrie Cards for Research Purposes
Amount £40,000 (GBP)
Organisation Wellcome Trust 
Sector Charity/Non Profit
Country United Kingdom
Start 05/2017 
End 03/2018
 
Description World Universities Network Research Development Fund - Workshop on sharing sensitive data
Amount £25,028 (GBP)
Organisation Worldwide Universities Network 
Sector Academic/University
Country Global
Start 08/2016 
End 08/2017
 
Title GLOMMS-II 
Description Novel linked database linking laboratory, SMR01, GRO deaths and SRR data for approx. 70,000 people 
Type Of Material Database/Collection of data 
Provided To Others? No  
Impact Subsequent grant applications and 2 Wellcome fellowship applications successful. 
 
Title NHS National Services Scotland (NSS) national safe haven 
Description Hosted by the EPCC provides a secure environment to provide access to researchers for data analysis to anonymised linked data from NSS national data sets. 
Type Of Material Data handling & control 
Year Produced 2016 
Provided To Others? Yes  
Impact Increased the number of data linkage projects which eDRIS can set up and will allow for more automated systems to be developed. Allowed improved governance and security for provisioning and access to national data sets. 
URL http://www.farrinstitute.org/news/creating-a-safe-haven-for-health-data
 
Title Scottish Clinical Imaging Dataset 
Description We are in the process of obtaining a historical copy and ongoing feed of the Scottish National PACS Clinical System comprising of a range of 'modalities' (computed tomography, magnetic resonance imaging, ultrasound, nuclear medicine and plain film radiography) from all 14 Scottish hospitals. To date this includes 23 million different examinations from a population of 6 million and over 850TB of data collected since 2006. So far a prototype software suite has been developed to automate the loading, anonymisation and provision of images within the Safe Haven environment. This is being tested within a regional Safe Haven with the aim to set up the system on the National Safe Haven. The software has been developed as an extension to the Research Data Management Platform (RDMP): a state of the art, scalable, software suit for the management of linked data for research. 
Type Of Material Database/Collection of data 
Provided To Others? No  
Impact This will be the largest datset of clinical images for research purposes held in the UK. 
 
Title The Scottish National Prescribing Information System (PIS) 
Description PIS provides summary information on reimbursed medicines from 1993, and individual prescribing and dispensing data since 2009 with the incorporation of the Community Health Index (CHI) number, 
Type Of Material Database/Collection of data 
Year Produced 2016 
Provided To Others? Yes  
Impact The data in PIS is used to enhance decisions about Scottish healthcare to improve the health of the people of Scotland. Several studies using PIS have already been published, for example: Use of antimicrobials and the risk of acquiring a healthcare associated infection Use of direct oral anticoagulants in patients with atrial fibrillation Factors influencing the prescribing of antidepressants The burden of irritable bowel syndrome Enhancing prescribing efficiency in Europe 
URL http://www.isdscotland.org/Products-and-Services/eDRIS/
 
Description (A.J. Williams) Connecting Big Data in Environment and Human Health 
Organisation University of Exeter
Department Medical School
Country United Kingdom 
Sector Academic/University 
PI Contribution Collaborating on Big Data Set Project
Collaborator Contribution Leading Connecting Big Data in Environment and Human Health
Impact None as yet
Start Year 2013
 
Description (A.J. Williams) Science and Policy Network (SPiNe) 
Organisation Census & Administrative Data Longitudinal Studies Hub (CALLS-Hub)
Country United Kingdom 
Sector Academic/University 
PI Contribution JF (for whom AJW was substituting) is a member of the SPiNe who were formed to help direct how the three UK longitudinal studies can help inform and influence policy.
Collaborator Contribution CALLS Hub coordinate this group to help them find directions for their work. Other members of the collaboration included those involved with government and the third sector who suggest what topics they want researched.
Impact None as yet
Start Year 2014
 
Description (Andrew Williams, Tony Robertson) Bringing the third sector and academic research together event 
Organisation Evaluation Support Scotland
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution SCPHRP provided itself as a case study for good practice in linking researchers and the third sector together. Andrew Williams attended the event on SCPHRP's behalf and presented a video from a similar Adult Life / Working Age Working Group event. Andrew also ran a stall for SCPHRP including reports, magazines and a sign-up sheet for the mailing list.
Collaborator Contribution The forum allowed SCPHRP to network with third sector groups and other researchers and to promote SCPHRP's work.
Impact None as yet
Start Year 2016
 
Description (Andrew Williams, Tony Robertson) Bringing the third sector and academic research together event 
Organisation Scottish Third Sector Research Forum (TSRF)
Country United Kingdom 
Sector Public 
PI Contribution SCPHRP provided itself as a case study for good practice in linking researchers and the third sector together. Andrew Williams attended the event on SCPHRP's behalf and presented a video from a similar Adult Life / Working Age Working Group event. Andrew also ran a stall for SCPHRP including reports, magazines and a sign-up sheet for the mailing list.
Collaborator Contribution The forum allowed SCPHRP to network with third sector groups and other researchers and to promote SCPHRP's work.
Impact None as yet
Start Year 2016
 
Description (Frank, Treanor, Archibald) Scottish Longitudinal Study on Ageing 
Organisation University of Stirling
Department Economics Division
Country United Kingdom 
Sector Academic/University 
PI Contribution SCPHRP Director John Frank is a co-investigator on an invited and funded NIH (National Institute of Ageing) grant in 2012 to pilot the first-ever Scottish Longitudinal Study of Ageing, led by Prof David Bell of the University of Stirling. Provided scientific input on cohort study design and analysis.
Collaborator Contribution The mutli-disciplinary team includes psychologists, economics and one epidemiologist (Frank),
Impact The initial analyses of this successful pilot study were presented at a national conference in Edinburgh in December 2017.
Start Year 2013
 
Description (John Frank) Co-investigator on two large grants from the Canadian Institutes of Health Research 
Organisation University of Ottawa
Country Canada 
Sector Academic/University 
PI Contribution Because of his long experience with routinely collected data, and its record linkage, in Canada and Scotland, John Frank was asked to be a Co-Investigator on these two separate CIHR grants, led by two talented young Canadian researchers, Prof Laura Rosella, and Prof Doug Manuel
Collaborator Contribution As Chair of the Scientific Advisory Committee for Laura's grant project, and major EU-international collaborator for Doug's, John Frank is extending the influence of his work for MRC/CSO and the Farr Institute to one of the world's leading centres (Ontario) for record-linkage-based health research.
Impact These multi-year grant-funded projects are only in their first six months of operations, but one paper has been submitted to a journal for publication, and another is in preparation.
Start Year 2015
 
Description (John Frank) Co-investigator on two large grants from the Canadian Institutes of Health Research 
Organisation University of Toronto
Country Canada 
Sector Academic/University 
PI Contribution Because of his long experience with routinely collected data, and its record linkage, in Canada and Scotland, John Frank was asked to be a Co-Investigator on these two separate CIHR grants, led by two talented young Canadian researchers, Prof Laura Rosella, and Prof Doug Manuel
Collaborator Contribution As Chair of the Scientific Advisory Committee for Laura's grant project, and major EU-international collaborator for Doug's, John Frank is extending the influence of his work for MRC/CSO and the Farr Institute to one of the world's leading centres (Ontario) for record-linkage-based health research.
Impact These multi-year grant-funded projects are only in their first six months of operations, but one paper has been submitted to a journal for publication, and another is in preparation.
Start Year 2015
 
Description (John Frank): Co-investigator, CIHR-funded MACHEquity Global Network -- re-funded by a CIHR grant for 2017-22 
Organisation Cayetano Heredia University
Department Faculty of Public Health
Country Peru 
Sector Academic/University 
PI Contribution The Maternal and Child Health Equity (MACHEquity) research program examines how social policies focused on reducing poverty, income and gender inequality impact the health of children and women under the age of 50. We know that poverty and social disadvantage greatly affect health and health equity, but our understanding of how policies can improve population health is limited. By analyzing the effects of national and subnational policies, MACHEquity is creating novel research on the use of policy to improve health and reduce persistent health inequalities. MACHEquity is a multinational research project coordinated by McGill University and funded by the Canadian Institutes of Health Research, with additional funding from the Bill & Melinda Gates Foundation and the Clinton Foundation. It has collaborating centres in the United States, the United Kingdom, India, Peru and South Africa. MACHEquity has developed comprehensive databases of national policies worldwide and is merging them with rich sources of household survey data to understand how broad policies can affect the health of individuals. We then apply a variety of statistical analyses to estimate the impact of these national policies on population health and health inequalities, prioritizing the outcomes highlighted by the Millennium Development Goals and the upcoming Sustainable Development Goals.
Collaborator Contribution Each of six major public health research centres, in five continents, has a role in this network, through the co-investigators appointed at that Centre. The Centres in Peru India, South Africa, Canada, the USA have doctoral and post-doctoral trainees funded by the CIHR grant, from 2011 through to late 2016, John Frank's role is as a senior epidemiological and global health advisor to several trainees located at several of these Centres. As of March 2016, he has been asked by the MACHEquity Network to act as PI on a Wellcome Trust Collaboration grant, the preliminary bid for which was approved by WT in February 2016 to go forward to full grant application, due in late March. If this bid is won, it will provide nearly £2 million from late 2016 to late 2021, and occupy 0.15 of JF's time, as lead for the project.
Impact A full list of the many journal papers and reports produced by the Network is found on their website (see above).
Start Year 2017
 
Description (John Frank): Co-investigator, CIHR-funded MACHEquity Global Network -- re-funded by a CIHR grant for 2017-22 
Organisation Indian Institute of Management, Bangalore
Country India 
Sector Academic/University 
PI Contribution The Maternal and Child Health Equity (MACHEquity) research program examines how social policies focused on reducing poverty, income and gender inequality impact the health of children and women under the age of 50. We know that poverty and social disadvantage greatly affect health and health equity, but our understanding of how policies can improve population health is limited. By analyzing the effects of national and subnational policies, MACHEquity is creating novel research on the use of policy to improve health and reduce persistent health inequalities. MACHEquity is a multinational research project coordinated by McGill University and funded by the Canadian Institutes of Health Research, with additional funding from the Bill & Melinda Gates Foundation and the Clinton Foundation. It has collaborating centres in the United States, the United Kingdom, India, Peru and South Africa. MACHEquity has developed comprehensive databases of national policies worldwide and is merging them with rich sources of household survey data to understand how broad policies can affect the health of individuals. We then apply a variety of statistical analyses to estimate the impact of these national policies on population health and health inequalities, prioritizing the outcomes highlighted by the Millennium Development Goals and the upcoming Sustainable Development Goals.
Collaborator Contribution Each of six major public health research centres, in five continents, has a role in this network, through the co-investigators appointed at that Centre. The Centres in Peru India, South Africa, Canada, the USA have doctoral and post-doctoral trainees funded by the CIHR grant, from 2011 through to late 2016, John Frank's role is as a senior epidemiological and global health advisor to several trainees located at several of these Centres. As of March 2016, he has been asked by the MACHEquity Network to act as PI on a Wellcome Trust Collaboration grant, the preliminary bid for which was approved by WT in February 2016 to go forward to full grant application, due in late March. If this bid is won, it will provide nearly £2 million from late 2016 to late 2021, and occupy 0.15 of JF's time, as lead for the project.
Impact A full list of the many journal papers and reports produced by the Network is found on their website (see above).
Start Year 2017
 
Description (John Frank): Co-investigator, CIHR-funded MACHEquity Global Network -- re-funded by a CIHR grant for 2017-22 
Organisation McGill University
Country Canada 
Sector Academic/University 
PI Contribution The Maternal and Child Health Equity (MACHEquity) research program examines how social policies focused on reducing poverty, income and gender inequality impact the health of children and women under the age of 50. We know that poverty and social disadvantage greatly affect health and health equity, but our understanding of how policies can improve population health is limited. By analyzing the effects of national and subnational policies, MACHEquity is creating novel research on the use of policy to improve health and reduce persistent health inequalities. MACHEquity is a multinational research project coordinated by McGill University and funded by the Canadian Institutes of Health Research, with additional funding from the Bill & Melinda Gates Foundation and the Clinton Foundation. It has collaborating centres in the United States, the United Kingdom, India, Peru and South Africa. MACHEquity has developed comprehensive databases of national policies worldwide and is merging them with rich sources of household survey data to understand how broad policies can affect the health of individuals. We then apply a variety of statistical analyses to estimate the impact of these national policies on population health and health inequalities, prioritizing the outcomes highlighted by the Millennium Development Goals and the upcoming Sustainable Development Goals.
Collaborator Contribution Each of six major public health research centres, in five continents, has a role in this network, through the co-investigators appointed at that Centre. The Centres in Peru India, South Africa, Canada, the USA have doctoral and post-doctoral trainees funded by the CIHR grant, from 2011 through to late 2016, John Frank's role is as a senior epidemiological and global health advisor to several trainees located at several of these Centres. As of March 2016, he has been asked by the MACHEquity Network to act as PI on a Wellcome Trust Collaboration grant, the preliminary bid for which was approved by WT in February 2016 to go forward to full grant application, due in late March. If this bid is won, it will provide nearly £2 million from late 2016 to late 2021, and occupy 0.15 of JF's time, as lead for the project.
Impact A full list of the many journal papers and reports produced by the Network is found on their website (see above).
Start Year 2017
 
Description (John Frank): Co-investigator, CIHR-funded MACHEquity Global Network -- re-funded by a CIHR grant for 2017-22 
Organisation University of California, Los Angeles (UCLA)
Department School of Public Health
Country United States 
Sector Academic/University 
PI Contribution The Maternal and Child Health Equity (MACHEquity) research program examines how social policies focused on reducing poverty, income and gender inequality impact the health of children and women under the age of 50. We know that poverty and social disadvantage greatly affect health and health equity, but our understanding of how policies can improve population health is limited. By analyzing the effects of national and subnational policies, MACHEquity is creating novel research on the use of policy to improve health and reduce persistent health inequalities. MACHEquity is a multinational research project coordinated by McGill University and funded by the Canadian Institutes of Health Research, with additional funding from the Bill & Melinda Gates Foundation and the Clinton Foundation. It has collaborating centres in the United States, the United Kingdom, India, Peru and South Africa. MACHEquity has developed comprehensive databases of national policies worldwide and is merging them with rich sources of household survey data to understand how broad policies can affect the health of individuals. We then apply a variety of statistical analyses to estimate the impact of these national policies on population health and health inequalities, prioritizing the outcomes highlighted by the Millennium Development Goals and the upcoming Sustainable Development Goals.
Collaborator Contribution Each of six major public health research centres, in five continents, has a role in this network, through the co-investigators appointed at that Centre. The Centres in Peru India, South Africa, Canada, the USA have doctoral and post-doctoral trainees funded by the CIHR grant, from 2011 through to late 2016, John Frank's role is as a senior epidemiological and global health advisor to several trainees located at several of these Centres. As of March 2016, he has been asked by the MACHEquity Network to act as PI on a Wellcome Trust Collaboration grant, the preliminary bid for which was approved by WT in February 2016 to go forward to full grant application, due in late March. If this bid is won, it will provide nearly £2 million from late 2016 to late 2021, and occupy 0.15 of JF's time, as lead for the project.
Impact A full list of the many journal papers and reports produced by the Network is found on their website (see above).
Start Year 2017
 
Description (Ruth Jepson and Larry Doi) Evaluability assessment project 
Organisation Medical Research Council (MRC)
Department MRC Social & Public Health Sciences Unit
Country United Kingdom 
Sector Public 
PI Contribution SCPHRP (Jepson and Doi) contributed towards undertaking novel evaluability assessments of policy and large scale projects
Collaborator Contribution Our partner organisations contributed towards undertaking evaluability assessments of policy and large scale projects
Impact We undertook an evaluability assessment of free school meals for the Scottish Government, which has been published (see URL) and is a process evaluation is now being commissioned (http://www.healthscotland.com/documents/24297.aspx). This was followed by three more project-specific evaluability assessments, for clients within the Scottish Government and/or NHS - all of which have been published on their websites, and some of which have led to SCPHRP being "ready" to compete for tendered evaluations (one of which -- for the Evaluation of a New Health Visitor Pathway -- is still pending, as of March 2017.)
Start Year 2014
 
Description (Ruth Jepson and Larry Doi) Evaluability assessment project 
Organisation NHS Health Scotland
Country United Kingdom 
Sector Public 
PI Contribution SCPHRP (Jepson and Doi) contributed towards undertaking novel evaluability assessments of policy and large scale projects
Collaborator Contribution Our partner organisations contributed towards undertaking evaluability assessments of policy and large scale projects
Impact We undertook an evaluability assessment of free school meals for the Scottish Government, which has been published (see URL) and is a process evaluation is now being commissioned (http://www.healthscotland.com/documents/24297.aspx). This was followed by three more project-specific evaluability assessments, for clients within the Scottish Government and/or NHS - all of which have been published on their websites, and some of which have led to SCPHRP being "ready" to compete for tendered evaluations (one of which -- for the Evaluation of a New Health Visitor Pathway -- is still pending, as of March 2017.)
Start Year 2014
 
Description A roadmap for improved public health in Kenya - medicines informatics supporting communicable and noncommunicable medicines stewardship 
Organisation University of Nairobi
Department College of Health Sciences
Country Kenya 
Sector Hospitals 
PI Contribution Provision of medicines informatics and stewardship expertise and advice
Collaborator Contribution Developing program within Nairobi as a platform for national developments
Impact Pilot PPS undertaken by Kenyan Newton team based at the School of Pharmacy and the School of medicine of the University of Nairobi in collaboration with CDC, Ministry of Health Kenya , Kenyatta National Hospital and Washington State University has been supported as part of the grant capacity building program.
Start Year 2017
 
Description A.J. Williams and John Frank: Energy Saving Trust 
Organisation Energy Saving Trust
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Collaboration around a project evaluate the health outcomes of household energy efficiency measures, for which funding is being sought from the CSO seed grants fund (application in preparation, Feb. 2016)
Collaborator Contribution The EST has been and will remain a co-investigator on the grant providing essential information about household energy efficiency and the related data sets.
Impact Funding application to CSO
Start Year 2015
 
Description A.J. Williams: NHS Lothian (school attendance) 
Organisation NHS Lothian
Country United Kingdom 
Sector Public 
PI Contribution A research project brought about from the recognition that non-attendance of schools is an upstream determinant of many poor health behaviours in later life. Subsequently, there is interest in how to intervene to reduce school non-attendance.
Collaborator Contribution Partnership working on hosting and facilitating meetings as well as a key conduit through which to research key stakeholders and research users.
Impact There has been a meeting of a variety of stakeholders to agree research priorities which resulted in a report.
Start Year 2015
 
Description Al Blair, PhD Visiting Student from University de Montreal, Montreal, CANADA 
Organisation University of Montreal
Country Canada 
Sector Academic/University 
PI Contribution In September-November 2017, advanced epidemiology student Alexandra (Al) Blair worked at SCPHRP, with studentship funding entirely from Canada. She completed a novel mediation/moderation analysis of the effects of local community resources/services/facilities on the causal pathway between family poverty and Adverse Childhood Experiences, using the Growing Up in Scotland cohort database.
Collaborator Contribution The Universite de Montreal and Al's PhD Supervisors there supported her application to a peer-reviewed source of travel funding in Canada to fund this exchange visit.
Impact One paper under review at a peer-reviewed journal.
Start Year 2017
 
Description Cancer Medicines Outcome Programme 
Organisation NHS Greater Glasgow and Clyde (NHSGGC)
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution Expertise in Pharmacy, Medicines and Health `informatics - pharmacoepidemiology
Collaborator Contribution Clinicians in cancer care
Impact Not yet
Start Year 2016
 
Description Chair, International Scientific Advisory Committee, OPTIMISE Project (funded by a grant from the CAnadian Institutes for Health Research) to improve the use of routinely collected data for decision-making in Ontario. 
Organisation Canadian Institutes of Health Research
Department Institute of Population and Public Health
Country Canada 
Sector Public 
PI Contribution As the most senior population health expert on this competitively funded grant project (2015-2018), I act not only as a Co-Investigator, but also as Chair of the International Scientific Advisory Committee. This appointment is in recognition of my 25 years+ of experience in leading novel programmes of applied public health research to inform policy and practice.
Collaborator Contribution The Canadian grant-funded team comes from a number of research institutions based in Ontario, all of whom provide support in kind for this project, since no portion of any co-investigator's compensation is paid for by CIHR operating grants in Canada.
Impact One publication: Rosella L et al 2016 -- see publications list.
Start Year 2016
 
Description Collaboration with Minas Gerias University - Brazil - record linkage in pharmacoepidemiology 
Organisation Federal University of Minas Gerais
Country Brazil 
Sector Academic/University 
PI Contribution SHARING OF EXPERTISE IN PHARMACOEPIDEMIOLOGY APPROACHES AND DATASETS FOR RECORD LINKAGE
Collaborator Contribution Expertise in rheumatology epidemiology and patient reported outcomes
Impact DEVELOPING
Start Year 2015
 
Description Comparison of Middle-Aged Scottish and Swedish Women's Cardiovascular Risk Profiles 
Organisation Linkoping University
Department University Medical School Linkoping
Country Sweden 
Sector Academic/University 
PI Contribution In 2015, a mature PhD student from the University of Linkoping, Sweden, Carina Wennerholm, came to work at SCPHRP for two months, and carried out a detailed analysis of the Scottish Health Surveys data related to the above research question. John Frank and Catherine Bromley on our team provided expert scientific oversight, including access to the SHeS datasets and experienced interpretation of that data
Collaborator Contribution The Swedish team provided the main analyst (Wennerholm) and a senior epidemiological mentor (Faresjo) who is also Wennerholm's PhD Supervisor.
Impact In late 2016, Wennerholm et al -- including our team members Frank and Bromley -- completed a joint scientific paper based on this project, now published: Wennerholm C, Bromley C, Johansson AK, Nilsson S, Frank J, Faresjö T. Two tales of cardiovascular risks - middle-aged women living in Sweden and Scotland - a cross-sectional comparative study. BMJ Open 2017; 7:e016527. doi:10.1136/bmjopen-2017-016527.
Start Year 2014
 
Description Drug Harm Reduction in Iran and Scotland 
Organisation Kerman University of Medical Sciences
PI Contribution PI on collaborative project exploring drug harm reduction in Iran and Scotland. Funded by British Council Iran to encourage early career research partnerships between the two countries. I lead the project and have carried out the interviews and policy analysis of the Scottish side.
Collaborator Contribution My partners have carried our interviews in Iran, and reviewed the Iranian literature.
Impact British Council Iran award in addition to two funded meetings - one in Iran and one in Cambridge, UK.
Start Year 2016
 
Description Drug Harm Reduction in Iran and Scotland 
Organisation University of Oxford
Country United Kingdom 
Sector Academic/University 
PI Contribution PI on collaborative project exploring drug harm reduction in Iran and Scotland. Funded by British Council Iran to encourage early career research partnerships between the two countries. I lead the project and have carried out the interviews and policy analysis of the Scottish side.
Collaborator Contribution My partners have carried our interviews in Iran, and reviewed the Iranian literature.
Impact British Council Iran award in addition to two funded meetings - one in Iran and one in Cambridge, UK.
Start Year 2016
 
Description Enhancing appropriate antimicrobial use via mhealth and other techniques in South Africa 
Organisation University of Nairobi
Department School of Pharmacy
PI Contribution Expertise in medicines informatics and infection stewardship Sharing the ongoing work within the Newton Grant in Kenya with the SA team to identify synergy
Collaborator Contribution Platform to explore use of technologies to support AMR stewardship - South Africa. Kenya - advise on shaping a future app development that could be usable across the African continent. Offering a place to pilot the development through cross national discussions
Impact Sep 2017 - we have held at Strathclyde a joint workshop to discuss how the health device being piloted in SA could also be used in Kenya for piloting. Issues in regard to data governance and internet availability are being examined. Nov 2017 - follow up workshop to exchange progress with evolving mHealth technology in SA and Kenya in relation to antimicrobial stewardship Programme to work towards a common content for PPS , aligned to WHO where appropriate but potentially delivered through differing health technologies allowing aggregate data to be collated to present a African picture of AMR
Start Year 2017
 
Description Enhancing appropriate antimicrobial use via mhealth and other techniques in South Africa 
Organisation University of Wales
Department School of Health Care Sciences
Country United Kingdom 
Sector Academic/University 
PI Contribution Expertise in medicines informatics and infection stewardship Sharing the ongoing work within the Newton Grant in Kenya with the SA team to identify synergy
Collaborator Contribution Platform to explore use of technologies to support AMR stewardship - South Africa. Kenya - advise on shaping a future app development that could be usable across the African continent. Offering a place to pilot the development through cross national discussions
Impact Sep 2017 - we have held at Strathclyde a joint workshop to discuss how the health device being piloted in SA could also be used in Kenya for piloting. Issues in regard to data governance and internet availability are being examined. Nov 2017 - follow up workshop to exchange progress with evolving mHealth technology in SA and Kenya in relation to antimicrobial stewardship Programme to work towards a common content for PPS , aligned to WHO where appropriate but potentially delivered through differing health technologies allowing aggregate data to be collated to present a African picture of AMR
Start Year 2017
 
Description Exploring the intersection of poverty, mental health and attainment 
Organisation University of Strathclyde
Country United Kingdom 
Sector Academic/University 
PI Contribution We are working towards a Scottish universities insight institute award to develop a series of seminars around the intersection of poverty, mental health and attainment. I am drafting sections of the proposal and working towards organising the seminar around poverty and mental health - what we know so far.
Collaborator Contribution Strathclyde are heading up the proposal and overseeing the various seminars and themed strands.
Impact Proposal in development
Start Year 2018
 
Description Ifakara Health Institute, Tanzania 
Organisation Ifakara Health Institute
Country Tanzania, United Republic of 
Sector Charity/Non Profit 
PI Contribution In spring of 2017, Prof Frank travelled to Tanzania - a country he knows well, having worked there before -- to spend a week with Dr Eveline Geubbels and her two dozen young Tanzanian researchers in public health and health systems research at IHI. The purpose of the visit was two-fold: 1) to co-write a major grant application for three years of collaborative work on Novel Approaches to Monitoring Health Inequalities in Tanzania (NAMHIT--now submitted to GCRF/MRC, as of January 2018); to teach two half-day seminars to the young researchers at IHI: one on "How to Sell Your Research to Health System and Public Health Stakeholders" and "Pitfalls and Tips in the Interpretation of Routlnely Collected Indicators of Population Health Status." These were very well received; Prof Frank will return to continue these collaborative activities in April/May 2018.
Collaborator Contribution IHI is one of the foremost independent health research institutes in Anglophone Africa; it has committed to hosting the three-year NAMHIT research project described above, pending GCRF/MRC grant funding in 2019.
Impact £500,000 joint grant proposal and one paper about that project, submitted and under review at a peer-reviewed journal.
Start Year 2017
 
Description Innovative Healthcare Delivery Programme 
Organisation Farr Institute of Health Informatics Research
Department Innovative Healthcare Delivery Programme
Country United Kingdom 
Sector Learned Society 
PI Contribution The Farr Institute provides resources infrastructure to the IHDP and knowledge and research expertise. Prof Andrew Morris is on the Steering committee.
Collaborator Contribution The aims and objectives of IHDP align with The Farr Institute. The programme brings leadership and focus to realise the vision of harnessing the power of informatics to link NHS Scotland's rich data assets and deliver value rapidly to patients, healthcare professionals, and the wider NHS. All high performing healthcare systems internationally are supported by systematic data collection, collation, analysis, and sharing. NHS Scotland aspires to be recognised as one of those high performing systems and the IHDP has been established to provide the strategic framework to achieve this aim.
Impact Project funded by the Scottish Funding Council and lead by the Data Lab Innovation centre.
Start Year 2015
 
Description John Frank: Member, Born in Bradford Innovation Hub International Advisory Committee 
Organisation Bradford Institute for Health Research (BIHR)
Department Born in Bradford
Country United Kingdom 
Sector Public 
PI Contribution This new initiative has major UK funding to design a novel approach to evaluating policies and programmes to help Bradford, and especially a very deprived part of it, improve its health, child development, social and economic outcomes over the next decade and more. A well established birth cohort study is already in place, but the methods to allow multiple intervention studies to be deployed within it simultaneously are not yet fully developed. John Frank is the senior social epidemiologist on the Advisory Committee, appointed in 2016.
Collaborator Contribution The Born in Bradford Innovation Hub hold multiple research and innovation-development grants to use research to improve Bradford's outcomes, as described above.
Impact Prof Frank has been invited to give the keynote lecture of the International Network for Research on Inequalities in Child Health (INRICH) to be hosted at Bib in Bradford, in June 2018.
Start Year 2016
 
Description Kidney Disease @ Farr 
Organisation Farr Institute of Health Informatics Research
Country United Kingdom 
Sector Academic/University 
PI Contribution Prof Corri Black established Kidney Disease@Farr to bring a multidisciplinary group of researchers from the 4 UK Farr Centres together with the UK and Scottish Renal Registries, Patient View and the UK Renal Data Collaboration to generate opportunities to share ideas and learning, and foster collaborations (http://www.farrinstitute.org/103_Research-Groups.html). So far there has been sharing of experience [8+ abstracts submitted to Farr International Conference], mapping of key datasets, and a Frontiers meeting (Sept 2015) to scope the future research priorities and develop a collaborative application for programme funding. The ambition is to utilise the Farr Infrastructure to improve kidney patient care and outcomes through collaborative health informatics research.
Collaborator Contribution Kidney Disease@Farr to bring a multidisciplinary group of researchers from the 4 UK Farr Centres together with the UK and Scottish Renal Registries, Patient View and the UK Renal Data Collaboration
Impact So far there has been an invited Editorial published in the Journal of the American Society of Nephrology; sharing of experience [8+ abstracts submitted to Farr International Conference]; mapping of key datasets; and a Frontiers meeting (Sept 2015) to scope the future research priorities and develop a collaborative application for programme funding.
Start Year 2015
 
Description Kidney Disease @ Farr 
Organisation Farr Institute of Health Informatics Research
Country United Kingdom 
Sector Academic/University 
PI Contribution Prof Corri Black established Kidney Disease@Farr to bring a multidisciplinary group of researchers from the 4 UK Farr Centres together with the UK and Scottish Renal Registries, Patient View and the UK Renal Data Collaboration to generate opportunities to share ideas and learning, and foster collaborations (http://www.farrinstitute.org/103_Research-Groups.html). So far there has been sharing of experience [8+ abstracts submitted to Farr International Conference], mapping of key datasets, and a Frontiers meeting (Sept 2015) to scope the future research priorities and develop a collaborative application for programme funding. The ambition is to utilise the Farr Infrastructure to improve kidney patient care and outcomes through collaborative health informatics research.
Collaborator Contribution Kidney Disease@Farr to bring a multidisciplinary group of researchers from the 4 UK Farr Centres together with the UK and Scottish Renal Registries, Patient View and the UK Renal Data Collaboration
Impact So far there has been an invited Editorial published in the Journal of the American Society of Nephrology; sharing of experience [8+ abstracts submitted to Farr International Conference]; mapping of key datasets; and a Frontiers meeting (Sept 2015) to scope the future research priorities and develop a collaborative application for programme funding.
Start Year 2015
 
Description Kidney Disease @ Farr 
Organisation Farr Institute of Health Informatics Research
Country United Kingdom 
Sector Academic/University 
PI Contribution Prof Corri Black established Kidney Disease@Farr to bring a multidisciplinary group of researchers from the 4 UK Farr Centres together with the UK and Scottish Renal Registries, Patient View and the UK Renal Data Collaboration to generate opportunities to share ideas and learning, and foster collaborations (http://www.farrinstitute.org/103_Research-Groups.html). So far there has been sharing of experience [8+ abstracts submitted to Farr International Conference], mapping of key datasets, and a Frontiers meeting (Sept 2015) to scope the future research priorities and develop a collaborative application for programme funding. The ambition is to utilise the Farr Infrastructure to improve kidney patient care and outcomes through collaborative health informatics research.
Collaborator Contribution Kidney Disease@Farr to bring a multidisciplinary group of researchers from the 4 UK Farr Centres together with the UK and Scottish Renal Registries, Patient View and the UK Renal Data Collaboration
Impact So far there has been an invited Editorial published in the Journal of the American Society of Nephrology; sharing of experience [8+ abstracts submitted to Farr International Conference]; mapping of key datasets; and a Frontiers meeting (Sept 2015) to scope the future research priorities and develop a collaborative application for programme funding.
Start Year 2015
 
Description Kidney Disease @ Farr 
Organisation Farr Institute of Health Informatics Research
Country United Kingdom 
Sector Academic/University 
PI Contribution Prof Corri Black established Kidney Disease@Farr to bring a multidisciplinary group of researchers from the 4 UK Farr Centres together with the UK and Scottish Renal Registries, Patient View and the UK Renal Data Collaboration to generate opportunities to share ideas and learning, and foster collaborations (http://www.farrinstitute.org/103_Research-Groups.html). So far there has been sharing of experience [8+ abstracts submitted to Farr International Conference], mapping of key datasets, and a Frontiers meeting (Sept 2015) to scope the future research priorities and develop a collaborative application for programme funding. The ambition is to utilise the Farr Infrastructure to improve kidney patient care and outcomes through collaborative health informatics research.
Collaborator Contribution Kidney Disease@Farr to bring a multidisciplinary group of researchers from the 4 UK Farr Centres together with the UK and Scottish Renal Registries, Patient View and the UK Renal Data Collaboration
Impact So far there has been an invited Editorial published in the Journal of the American Society of Nephrology; sharing of experience [8+ abstracts submitted to Farr International Conference]; mapping of key datasets; and a Frontiers meeting (Sept 2015) to scope the future research priorities and develop a collaborative application for programme funding.
Start Year 2015
 
Description Kidney Disease @ Farr 
Organisation UK Renal Data Collaboration
Country United Kingdom 
Sector Public 
PI Contribution Prof Corri Black established Kidney Disease@Farr to bring a multidisciplinary group of researchers from the 4 UK Farr Centres together with the UK and Scottish Renal Registries, Patient View and the UK Renal Data Collaboration to generate opportunities to share ideas and learning, and foster collaborations (http://www.farrinstitute.org/103_Research-Groups.html). So far there has been sharing of experience [8+ abstracts submitted to Farr International Conference], mapping of key datasets, and a Frontiers meeting (Sept 2015) to scope the future research priorities and develop a collaborative application for programme funding. The ambition is to utilise the Farr Infrastructure to improve kidney patient care and outcomes through collaborative health informatics research.
Collaborator Contribution Kidney Disease@Farr to bring a multidisciplinary group of researchers from the 4 UK Farr Centres together with the UK and Scottish Renal Registries, Patient View and the UK Renal Data Collaboration
Impact So far there has been an invited Editorial published in the Journal of the American Society of Nephrology; sharing of experience [8+ abstracts submitted to Farr International Conference]; mapping of key datasets; and a Frontiers meeting (Sept 2015) to scope the future research priorities and develop a collaborative application for programme funding.
Start Year 2015
 
Description Kidney Disease @ Farr 
Organisation UK and Scottish Renal Registries
Country United Kingdom 
Sector Private 
PI Contribution Prof Corri Black established Kidney Disease@Farr to bring a multidisciplinary group of researchers from the 4 UK Farr Centres together with the UK and Scottish Renal Registries, Patient View and the UK Renal Data Collaboration to generate opportunities to share ideas and learning, and foster collaborations (http://www.farrinstitute.org/103_Research-Groups.html). So far there has been sharing of experience [8+ abstracts submitted to Farr International Conference], mapping of key datasets, and a Frontiers meeting (Sept 2015) to scope the future research priorities and develop a collaborative application for programme funding. The ambition is to utilise the Farr Infrastructure to improve kidney patient care and outcomes through collaborative health informatics research.
Collaborator Contribution Kidney Disease@Farr to bring a multidisciplinary group of researchers from the 4 UK Farr Centres together with the UK and Scottish Renal Registries, Patient View and the UK Renal Data Collaboration
Impact So far there has been an invited Editorial published in the Journal of the American Society of Nephrology; sharing of experience [8+ abstracts submitted to Farr International Conference]; mapping of key datasets; and a Frontiers meeting (Sept 2015) to scope the future research priorities and develop a collaborative application for programme funding.
Start Year 2015
 
Description MQ Transforming mental health through research 
Organisation MQ Transforming Mental Health
Country United Kingdom 
Sector Charity/Non Profit 
PI Contribution The Farr Institute have hosted and participated in one day conferences hosted in Edinburgh and Swansea to facilitate the use of linked administrative data in mental health research
Collaborator Contribution Joint Meeting organisers
Impact Meetings in Edinburgh http://www.farrinstitute.org/events-courses/event/mental-health-research-in-the-digital-age and Swansea.
Start Year 2016
 
Description PE Activity 
Organisation Administrative Data Research Centre for Scotland
Country United Kingdom 
Sector Academic/University 
PI Contribution The Public Engagement team within Farr Institute, Scotland and ADRC-S continuily work together as a team on the majority of PE activity.
Collaborator Contribution The Public Engagement team within Farr Institute, Scotland and ADRC-S continuily work together as a team on the majority of PE activity.
Impact Joint drop-in clinic and public engagement events.
Start Year 2015
 
Description Population Health Impact Assessment Tools: Using Population Health Data to Improve Chronic Disease Prediction. 
Organisation Ottawa Hospital Research Institute
Country Canada 
Sector Academic/University 
PI Contribution This CAD500,000 grant, headed by Prof Doug Manuel of the Ontario Health Research Institute in Ottawwa, CANADA, utilizes cutting-edge epi-stat methods to create tools for predicting the future societal burden (both overall and inequalities) in major chronic disease categories such as cardiovascular and diabetes. Two SCPHRP team members are formal co-investigators on this grant: Frank and Robertson. Our role is both methodological advising, and providing access to/analytic help with Scottish national databases to address the project's research questions analagously in Scotland, Canada and the USA.
Collaborator Contribution Our partners are the lead analysts, and have long experience with the Canadian population health databases for this project.
Impact One paper has been submitted for publication to a peer-reviewed journal, others are in progress.
Start Year 2015
 
Description Research visit from Prof Gavin Stuart, University of British Columbia 
Organisation University of British Columbia
Country Canada 
Sector Academic/University 
PI Contribution Enhance and strengthen the exchange and sharing of information between the Parties. Facilitate the sharing of experience related to sustainability and strategic policy and enable realization of the value of public data for public benefit
Collaborator Contribution We have hosted Prof Stuart at Farr Scotland and are liaising with NHS Research Scotland to identify suitable collaborations within Scotland.
Impact Research visit has just commenced so no outputs yet.
Start Year 2017
 
Description Research visit from Prof Martin Dawes from the University of British Columbia 
Organisation University of British Columbia
Country Canada 
Sector Academic/University 
PI Contribution Farr Scotland hosted a visit by Prof Dawes to as part of a memorandum of understanding between the Government of British Columbia and the Scottish Government to facilitate the sharing of experience related to sustainability and strategic policy and enable realization of the value of public data for public benefit.
Collaborator Contribution Sharing of information to assist in the collaboration between the two governments in data science and precision medicine.
Impact The initiation of collaboration in data science and precision medicine.
Start Year 2017
 
Description SAMH Going to be Advisory Group 
Organisation Scottish Association for Mental Health
PI Contribution I sit on the advisory group of the SAMH Going to Be campaign around mental health in Schools. I discuss findings from SAMH's evaluation and help them explore next steps.
Collaborator Contribution Other members of the group bring their own experience. SAMH are running a campaign around promoting better mental health in schools.
Impact Fed into discussion around SAMH's report of their survey of teacher mental health: https://www.samh.org.uk/about-us/news-and-blogs/samh-survey-highlights-the-dearth-of-mental-health-training-for-teachers
Start Year 2017
 
Description #datasaveslives 
Form Of Engagement Activity Engagement focused website, blog or social media channel
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact #datasaveslives is a public engagement campaign initiated by the Farr Institute Centre HeRC and now promoted across the Farr Institute UK. in 2015 the campaign was mostly promoted through Twitter with participants encouraged to tweet pictures of themselves holding a placard with #datasaveslives or linking the hashtag to news stories and publications promoting the use of data in research. Going forward the campaign will be used to collect case studies and testimonials in both written and video format to promote the use of health data and data linkage for public health research. https://vimeo.com/147327770
Year(s) Of Engagement Activity 2015
URL http://www.herc.ac.uk/get-involved/data-saves-lives/
 
Description 'Gearing an entire country for Health Data Science', Royal Society Science Meeting 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Improved understanding of the benefits of building a national infrastructure and services for health data research in the UK
Year(s) Of Engagement Activity 2018
 
Description 'Go-DARTS History - Establishing the Go-DARTS cohort' at the Go-DARTS 20th Annual Symposium 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Improved understanding of the benefits of building a national infrastructure and services for health data research in the UK
Year(s) Of Engagement Activity 2018
 
Description 'Working together to identify and address the issues' at event called 'Grand Challenges in Artificial Intelligence in Clinical Radiology & Clinical Oncology' at the Wellcome Collection 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Industry/Business
Results and Impact Improved understanding of the benefits of building a national infrastructure and services for health data research in the UK
Year(s) Of Engagement Activity 2018
 
Description (A.J. Williams) Examples of research projects using linked data 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Around 20 staff from ISD Scotland attended the seminar to learn about how linked data can be used in public health research



This was a chance to reach out and offer an opportunity to those who administer the data to become involved win research.
Year(s) Of Engagement Activity 2014
 
Description (Frank, Williams) SCPHRP and the Scottish eHealth Informatics Research Centre/Farr Institute 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Postgraduate students
Results and Impact Circulated within the SCPHRP magazine to explain the new collaboration with the Farr Institute @ Scotland.


A chance to try to explain natural experimental approaches in a graphic format.
Year(s) Of Engagement Activity 2013
URL http://issuu.com/reneemarieingram/docs/autumn_and_winter_mag
 
Description (John Frank) Co-Chair, 70th Birthday Celebrations of 1946 British Birth Cohort 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Study participants or study members
Results and Impact As Chair since 2009 of the Steering Committee of the MRC/UCL Lifelong Health and Ageing Unit, housing the 1946 British Birth Cohort, John Frank acted as Co-Chair (with Study Director Prof Di Kuh) and Speaker for these two events - in London on March 1, 2016, and in Manchester on March 3 -- to inform more than 750 study participants about progress/recent findings of the study thus far, and its plans for the future. Extensive BBC and other media coverage occurred. This will help build support for this and other long-term cohort studies essential to understand chronic disease causation and prevention, as well as healthy and unhealthy ageing.
Year(s) Of Engagement Activity 2016
URL http://www.nshd.mrc.ac.uk/70thbirthday/
 
Description (John Frank) Presentation to Scottish Government, Office of the Chief Researcher re SCPHRP's Early Development Instrument Scottish Pilot 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact This -- only the second presentation to any Scottish Government group -- occurred in August 2015, some two years after the completion of the CSO-funded successful Scottish pilot study of the Early Development Instrument (an inexpensive way to collect, standardize and anonymously report local communities' P1 students' development status). It was standing room only for nearly 50 Scottish Government policy analytic and professional civil services employees. The reception was warm and the discussion lively. SCPHRP is still waiting for some government action on this dossier.
Year(s) Of Engagement Activity 2015
 
Description (Williams) Expert panel on a natural experiment project into the abolition of prescription fees 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Convened a panel of three experts who advice the government in order that they could inform the design of a project to evaluate a national policy.


Established new relationships which could turn into collaborations. This meeting also brought to my attention a new source of data which could be used within a natural experiment.
Year(s) Of Engagement Activity 2014
 
Description (Williams) Linking and using Health and Social Care data - charting a way forward 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact A mixed crowd of 30 clinicians, social workers, government and health analysts, and academics from across Scotland came together to learn about and discuss the burgeoning linkage available between health and social care data and chart a way forward.

The proceedings were published as a report and it is intended that they will be published within a journal.
Year(s) Of Engagement Activity 2014
URL http://www.scphrp.ac.uk/linking-and-using-health-social-data-in-scotland-charting-a-way-forward/
 
Description (Williams) Royal Statistical Society 2015 conference poster 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Engagement with a number of renowned statisticains around an import project with potential policy impact.

None
Year(s) Of Engagement Activity 2015
URL http://www.rss.org.uk/RSS/Events/RSS_Conference/2015_Conference/RSS/Events/Conference/2015_conferenc...
 
Description (Williams) The challenges of using natural experimental approaches to evaluate policy: a Scottish example 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation paper presentation
Geographic Reach National
Primary Audience Postgraduate students
Results and Impact Oral presentation to members of the other UKCRC Public Health Centres of Excellence

Potential link with other researchers particularly those in England and Wales
Year(s) Of Engagement Activity 2014
 
Description 11. Frank: CSO Workshop 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Type Of Presentation Workshop Facilitator
Geographic Reach Regional
Primary Audience Health professionals
Results and Impact . Invited Group Facilitator, Chief Scientist Office (Scotland) Workshop on "A Health and Bioinformatics Research Strategy for Scotland," Edinburgh, Nov. 2013

Co-led this workshop, hosted by the Scottish health research funding agency, to elicit stakeholder responses to a draft CSO Research Strategy
Year(s) Of Engagement Activity 2013
 
Description 12. Frank: SG CPD 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? Yes
Type Of Presentation Keynote/Invited Speaker
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Invited Presentation: Scottish Government Public Health Division CPD, Edinburgh, November 2013: "Raising the Bar for Monitoring Child Development in Scotland: the East Lothian EDI Project."

. This seminar presented the results of a first Scottish/UK pilot of a globally validated measure of child development at school entry, a measure called for but no currently used in Scotland
Year(s) Of Engagement Activity 2013
 
Description 4. Frank: Scottish Directors of Education Presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation Keynote/Invited Speaker
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact First presentation to the 32 Scottish Local Authorities Directors of Education of the Results of the East Lothian Pilot of the Early Development Instrument

This interaction has allowed SCPHRP to move forward the measurement of child development at school entry, by acquainting this critical stakeholder group with the pilot study's very positive results; next steps now await Scottish Government action.
Year(s) Of Engagement Activity 2013
 
Description 9. Frank: TPHD Workshop 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation Keynote/Invited Speaker
Geographic Reach International
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact Invited Workshop Speaker, Toronto Dept. of Public Health, Toronto, Canada, October 2013: "Monitoring Health Inequalities by Social Class: Lessons from Scotland."

Developed relationship with Canada's leading public health professional data analysts examining trends in health inequalities by SES
Year(s) Of Engagement Activity 2013
 
Description ACONF Public Engagement (Prof C Black) 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Study participants or study members
Results and Impact A large scale public engagement event was held on Sat 20th Feb 2016 with participants of the Aberdeen Children of the 1950's cohort
https://www.youtube.com/watch?v=OvA5kB9YwTI ]. Over 300 cohort participants came together to hear about some of the Aberdeen Children of the 1950s study results and impacts, and the next phase of the study which will look at resilience and successful aging. Participants met with researchers from the Farr Institute and Administrative Data Research Centre-Scotland interested in recording the important events in their lives and in discussing the participant's ideas for future studies.
Year(s) Of Engagement Activity 2016
URL http://www.abdn.ac.uk/news/8708/
 
Description ADRN workshop on ACEs 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact c.100 professionals, including academics, policy-makers and third sector organisations attended a workshop exploring research from around the UK on adverse childhood experiences. I spoke about recent work which myself and colleagues have conducted in Scotland.
Year(s) Of Engagement Activity 2017
 
Description AJW & RJ: How do we encourage more active travel in Edinburgh & the Lothians 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Policymakers/politicians
Results and Impact The workshop led to much discussion between the participants and a report which has been widely circulated.

None
Year(s) Of Engagement Activity 2015
URL http://www.scphrp.ac.uk/scphrps-active-travel-magazine-2015-2/
 
Description AJW: UKCRC conference presentation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact Provided information on methods to actively engage research users in the prioritisation of research topics.

None
Year(s) Of Engagement Activity 2015
URL http://ukcrc15.efconference.co.uk/
 
Description AXA Launch, Jan 2017 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact This was a publicly advertised event, hosted at the University of Edinburgh on 23 Jan 2017, to mark Professor Colhoun's Chair in Medical Informatics and Life Course Epidemiology (started April 2016) and to showcase the University's strengths in linking e-health records, genomic and other high dimensional datasets for research. The programme included an opening address by Professor Sir John Saville, as well as a number of presentations and discussion sessions covering various aspects of medical informatics, social and policy opportunities, and legal and ethical considerations. The event was widely publicized, both internally and externally via Eventbrite; a press release was issued by the University; AXA (the funding body) led twitter and facebook engagement efforts; and a media interview was also given by Prof Colhoun (e.g. Times). Professor Colhoun's research team also gave a number of presentations which showcased the research being undertaken (e.g. genetics of diabetic nephropathy, biomarkers for predicting diabetic complications including cardiovascular disease, renal disease progression in type 1 diabetes, informing complications screening policy) as well as the research resources being used (e.g. SCI-Diabetes, SDRNT1BIO).
Year(s) Of Engagement Activity 2017
 
Description Annual Scottish Faculty of Public Health Conference 2015 Translating epidemiology into health care planning benefits: development of a service planning toolkit using local epidemiological evidence 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Poster
Year(s) Of Engagement Activity 2015
 
Description Attitudes to data linkage in the UK and Sweden 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact This was a Seminar given at the Higher Series of the Centre for Research Ethics & Bioethics (CRB) at the University of Uppsala, Sweden
Year(s) Of Engagement Activity 2017
 
Description Big Data in Health (KTN event, Cambridge) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? Yes
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Talk led to networking opportunities and stimulated new collaborative ideas.


Support and programme development for the Digital Health Assembly -Open Innovation conference to be held in Feb 2015 partly supported by the Farr Institute.
Year(s) Of Engagement Activity 2014
URL http://researchfunding.sunderland.ac.uk/joint-ict-ktn-health-and-medicines-ktn-event/#.VGNRS_msWSp
 
Description Big solutions in big data 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact This was a session at the Edinburgh International Science festival exploring Big Data from a number of disciplinary perspectives and encouraging audience debate around the social and ethical issues of big data especially when derived from individuals as in the electronic medical record. The presentations and discussion were very engaged and engaging suggesting considerable interest amongst the festival going public about the generation, curation and use of data for research and other purposes.
Year(s) Of Engagement Activity 2015
 
Description Cafe Science Dundee 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact Talk explaining research at University of Dundee on how identifying the molecular pathology of a disease like diabetes allows doctors to tailor treatment to individuals. Talk sparked questions and debate from audience, leaving them better informed.
Year(s) Of Engagement Activity 2016
 
Description Celebrating Your Contribution to Scottish Cohort Studies, The Mound, Edinburgh 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Improved understanding of the benefits of building a national infrastructure and services for health data research in the UK
Year(s) Of Engagement Activity 2018
 
Description Continuing Professional Development for national Public HEalth Agency of Canada staff 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Over one week in late 2018, Prof Frank delivered six half-day CPD sessions to 35 post-MPH professional staff of the Public Health Agency of Canada, in Ottawa. These sessions were very highly evaluated by learners. As a result, he has been asked to deliver eight shorter and simpler sessions to a few hundred PHAC staff across Canada, via webcast, in mid-2019.
Year(s) Of Engagement Activity 2018
 
Description Contribution to discussion session on 'Wider informatics - Farr2/HDR UK' at Biomedical Research Directors' Forum Meeting 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Improved understanding of the benefits of building a national infrastructure and services for health data research in the UK
Year(s) Of Engagement Activity 2018
 
Description Data Linkage Scotland Showcase 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact The Farr Institute joined with Administrative Data Research Network and The Urban Big Data Centre to show case ongoing research and explain the role of each organisation. Event attracted professionals and organisations who were not currently using administrative data in research and will lead to greater use of linked administrative data in research. Enquiries received by all organisations.
Year(s) Of Engagement Activity 2016
URL http://www.farrinstitute.org/news/data-linkage-scotland-showcase-2016
 
Description Data linkage and public benefit 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact This was an event to discuss the work of the FARR Institute (Scotland) with an engaged audience of informed general public - the Edinburgh Skeptics society. The event was specifically focussed on exploring what is understood by 'the public interest or public good' although debate also focussed on the trustworthiness of data security in the context of data linkage for research purposes. The event included presentations from researchers and a flipped question and answer session - with the researchers asking questions of the audience - as well as the more traditional format of audience asking questions of the researchers and of each other.
Year(s) Of Engagement Activity 2016
 
Description Edinburgh Fringe Festival 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Research Fellow Dr Mahiri Aitken performed in a stand up show as part of the 'Cabaret of Dangerous ideas' at the Edinburgh Fringe Festival. Title of show was "Hands Off My Clubcard Just take my DNA!" Explores ideas around: Would you rather researchers were looking at your Clubcard data or your DNA? Is this information personal and private, or a public asset to be used in the "public interest"?
Year(s) Of Engagement Activity 2016
URL http://www.ed.ac.uk/usher/news-events/events-2016/mhairi-aitken-at-cabaret-of-dangerous-ideas
 
Description Edinburgh Skeptics 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact A pilot event looking at views and understanding of the concept of "public benefit" held by interested members of the public.
Year(s) Of Engagement Activity 2015
 
Description Exploring the Social Contract for Medical Innovation 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact This was a presentation on the benefits and challenges of public engagement in relation to research particularly regarding the use of data deriving from individuals as they engage with the health care system or with clinical research. This was part of a full day of presentations and discussions organised by and for the Academy of Medical Sciences and the British Academy to explore the idea of a social contract. A report was published on the event, including synopses of the talks and discussions.
Year(s) Of Engagement Activity 2015
 
Description Farr Frontiers Meeting - Asthma 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact A key stakeholder gathering of asthma patients, clinicians, policy makers, asthma charities plus industry and university researchers has charted a roadmap to create a Scottish Asthma Observatory that provides real-time monitoring of the impact this life threatening condition is having on individual patients and the population at large.
Year(s) Of Engagement Activity 2015
URL http://www.farrinstitute.org/centre/Scotland/news/164/2015-11-03/roadmap-for-scottish-asthma-observa...
 
Description Farr Frontiers Meeting - Cancer 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact On 7 July 2015 the Scottish Funding Council (SFC) launched the Innovation Challenge Fund AY/2015/16. In partnership with the Chief Scientist Office, the SFC will focus the first year of funding on innovations in health which can improve outcomes for cancer patients in Scotland. It is anticipated that up to a total of £1million in project support will be awarded.
Year(s) Of Engagement Activity 2015
URL http://www.farrinstitute.org/centre/Scotland/news/130/2015-07-28/transforming-cancer-care-in-scotlan...
 
Description Farr Frontiers Meeting - Imaging 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Around 20 academics and clinicians from across Scotland came together in Edinburgh on 17 March for our first 'Frontiers Meeting'. These are aimed at identifying research opportunities arising from the new Scottish Farr infrastructure and to help us enable several new datasets for research purposes.
This first gathering at our offices at the BioQuarter was co-hosted with the Nationwide Imaging Research Network, SINAPSE. It focused on medical imaging data and explored opportunities for ground-breaking research in clinical specialties. By looking at both academic programmes and industrial partnerships, the group identified a potential source of funding and will now work together on a collaborative grant submission.
Year(s) Of Engagement Activity 2015
 
Description Farr Frontiers Meeting - Pharmacoepi 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact On 30 July, 40 participants from across academia, the NHS and the Scottish Government came to the Edinburgh Bioquarter building for the latest in our series of 'Frontiers Meetings'. This explored opportunities for NHS-academic collaborations to improve patient outcomes by making better use of our national primary care prescribing dataset.

Participants were updated on:

* current clinical exemplar studies, funded through the Farr Institute

* development of the national prescribing information system dataset

* current and potential further application of the dataset within NHS Boards and for research

* potential role of the dataset in supporting health technology assessments for new medicines

* how to innovate in engaging the patient in understanding the effects and side effects of medicines use.

Marion Bennie, Professor of Pharmacy, University of Strathclyde said:

"We made real progress on potential collaborations to maximise how we can use this rich resource, including how to use the prescribing dataset for real-world measurement of safety and relative cost/clinical effectiveness of medicines to support clinical practice locally and grow the international clinical evidence base. The next steps will be a focus on taking forward the priority programmes generated with key stakeholders and approach potential funders. "
Year(s) Of Engagement Activity 2015
 
Description Farr Frontiers Meeting - Pregnancy 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact This event highlighted the need for Scottish Government to open the consulation into the use of Guthrie Card data. The Farr Institute, Scotland have contacted SG to discuss.
Year(s) Of Engagement Activity 2015
 
Description Farr Institute @Scotland Public Panel 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Participants in your research and patient groups
Results and Impact Two workshops have been held with the Public Panel for Farr Institute @ Scotland.
The first of these workshops served to introduction to the HeRCs and the Farr Institute and lead to preliminary discussions/reflections on governance issues and the role of public engagement in relation to the Farr Institute. The second meeting focussed on exploring the role that the public panel will play in Farr@Scotland.

The 2nd workshop resulted in the production of a statement on the role and value of the panel. This is now on the Farr website.
Year(s) Of Engagement Activity 2014
URL http://www.farrinstitute.org/centre/Scotland/23_Activities.html
 
Description Farr Institute Inaugural lecture 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Talks provided ideas, lessons learnt and inspiration for Farr Researchers to incorporate into their own research.

n/a
Year(s) Of Engagement Activity 2014
URL http://www.farrinstitute.org/200_Farr-Institute-And-UK-HIRN-Meeting-Reports.html
 
Description Farr Institute International Conference 2015 Does the past predict the future? Implications of prior renal function on future renal outcomes 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Oral presentation
Year(s) Of Engagement Activity 2015
 
Description Farr Institute International Conference 2015 Hip fracture risk in chronic kidney disease 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Oral presentation
Year(s) Of Engagement Activity 2015
 
Description Farr Institute International Conference 2015 presentation (AJW) and poster (JF, AJW et al.) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Sharing the results of the research project, and creating a joint poster with colleagues in Australia and Canada, about international comparative models for record-linkage centres' structure/funding/operations and governance.

None
Year(s) Of Engagement Activity 2015
URL http://farrinstandrews.org/
 
Description Farr Institute Scientific Research Forum 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Workshops led to researchers from across the UK sharing ideas for collaborative research in a number of topic areas.
Pharmacoepidemiology and Pharmacovigilance
Cardiometabolic Disease
Children & Early Life
e-Health Trials Methodology
Infection and Vaccinations
Public Engagement
Computer Science and Big Data


New research proposals have been written for cross-centre UK research projects.
Year(s) Of Engagement Activity 2014
URL http://www.farrinstitute.org/200_Farr-Institute-And-UK-HIRN-Meeting-Reports.html
 
Description Farr Scotland Newsletter 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact The Farr Scotland Newsletter contains research activity; seminars/events/conferences; press stories this get circulated every 2 months to a mixed audience of around 1000 from all our partner institutions; NHS Scotland; Scottish Government and other key stakeholders
Year(s) Of Engagement Activity 2013,2014,2015,2016
URL http://www.farrinstitute.org/news/16/2014-01-31/farr-institute-scotland-newsletter.html
 
Description Frank: Health Inequalities Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation Keynote/Invited Speaker
Geographic Reach National
Primary Audience Postgraduate students
Results and Impact Invited Panellist, University of Edinburgh and Durham University Conference: "Where Next for Health Inequalities Research?", Edinburgh, December 2012: "Personal Reflections on Studying and Acting on Health Inequalities in Three Countries."

Many contacts made in Scottish and UK policy-analytic science disciplines
Year(s) Of Engagement Activity 2013
 
Description Frank: Policy Knowledge Conference 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Type Of Presentation Keynote/Invited Speaker
Geographic Reach Regional
Primary Audience Policymakers/politicians
Results and Impact Chair and Initial Presenter, Policy Knowledge Conference, Edinburgh, May 2013:"Reducing Health Inequalities: Creating a Healthier and Fairer Scotland."

Many contacts made with Scottish policy-maker community
Year(s) Of Engagement Activity 2013
 
Description Frank: SFPH Conference 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? Yes
Type Of Presentation Keynote/Invited Speaker
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact Invited Keynote Address: Annual Conference of the Scottish Faculty of Public Health, Dunblane, Scotland, November 2013: "Ten Best Investments for Health Equity: How is Scotland Doing?"

Set long-term agenda for assessing Scotland's progress towards having a benchmarked portfolio of public investments for health equity
Year(s) Of Engagement Activity 2013
URL http://www.fph.org.uk/
 
Description Frank: SPHR AGM 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? Yes
Type Of Presentation Keynote/Invited Speaker
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Invited Plenary Address: AGM of NIHR Schools of Public Health Research, London, October 2013: "Knowledge Transfer to Public Health Policy: A Cautionary Tale from Scotland."

Deepened relationships with UK-wide applied public health researchers and professionals
Year(s) Of Engagement Activity 2013
URL http://sphr.nihr.ac.uk/2013/09/sphr-men-in-sheds-research-findings-published-on-age-uk-website/
 
Description Hosted the European Drug Utilisation Research Group Conference 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact We hosted in Glasgow a conference focused on ( n=265 international delegates ) pharmacoepidemiology and digital health - to promote opportunities across key academic disciplines as part of the International Society of Pharmacoepidemiology Conference programme. The Kenyan and Strathclyde team were present and gave a number of oral presentations. poster session involvement and one a poster prize . this was preceded by a joint South Africa ( SA- MRC funded ) / Kenya / Strathclyde 1 day workshop to share progress with antimicrobial resistance programmes in the African continent and potential for collaboration
Year(s) Of Engagement Activity 2017
URL http://eurodurg2017.net/
 
Description Intensive Care Society Conference, London 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact This was a presentation as part of a session on Big Data in Critical Care where I talked about the social and ethical issues regarding the use of (personal) health records and other linked data for research purposes and the benefits and challenges of public engagement and involvement.
Year(s) Of Engagement Activity 2015
 
Description Interview with Scotland on Sunday 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Media (as a channel to the public)
Results and Impact Interview with Scotland on Sun day for piece focussing on recently published research on which I was first author, focussing on schools and mental health.
Year(s) Of Engagement Activity 2017
URL https://www.scotsman.com/news/politics/mental-health-gap-divides-rich-and-poor-children-1-4599267
 
Description Invited Presentation at Tanzania's flagship health research institute 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact In January 2019, Prof Frank was invited to speak at the Ifakara Health Institute (IHI) in Dar es Salaam, Tanzania, on a project under development collaboratively with that institute: "Novel Approaches to Monitoring Health Inequalities in Tanzania." The project is the subject of a current international grant application worth £280,000, involving both IHI and the University of Edinburgh, and its content has been published (see publication by Frank J et al, in JoGH 2018.)
Year(s) Of Engagement Activity 2019
 
Description Invited Presentation. CLOSER Knowledge Exchange Workshop on Disclosure Control. Flexible disclosure control for microdata using DataSHIELD. London, January 2017 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact As a recipient of funding from CLOSER for a project (led by Andy Boyd) focussing on the sharing/co-analysis of sensitive data I was invited to contribute to this workshop which was pitched at a mathematically more technical audience with greater theoretical and practical experience in working in data integration and the sharing of sensitive information than at most of the venues where I present. As well as describing DataSHIELD and its role as tool to support the sharing/co-analysis of sensitive data, I was also able to provide the workshop with practical issues and challenges arising from my work with the 1958 Birth Cohort under 58READIE (now 58FORWARDS) grant and ALSPAC.

This was particularly useful for me because it enabled me to get more technical feedback than I usually receive. This was useful not only for DataSHIELD development, but also for strategy relating to infrastructural development under the 58FORWARDS grant
Year(s) Of Engagement Activity 2016
URL http://www.closer.ac.uk/event/methods-disclosure-control/
 
Description Invited presentation at UCL Workshop 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Presentation of article 'Delivering Proportionate Governance in the era of eHealth' (Medical Law International)at UCL Workshop entitled "Modernising Information Governance for research". The general aim was to open up for the discussion all the issues which are swirling around Data access and consent with a view making progress on developing some solutions for both institutions. The workshop was attended by an invited audience of researchers and information managers from within UCL and UCLH. The Expert Advisory Group on Data Access agreed to speak on "Governance of Data Access" . researchers from the Farr Institute in London provided their perspective and there was an update on negotiation on the new EU requirements.
Year(s) Of Engagement Activity 2016
 
Description Invited presentation to University of St-Andrews, School of Geography & Geosciences lunchtime seminar series 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Other audiences
Results and Impact Invited presentation to the School of Geography & Geosciences, University of St-Andrews to disseminate findings from my PhD study that investigated the impact of area regeneration on health and well-being. Around 25 individuals attended.
Year(s) Of Engagement Activity 2015
 
Description John Frank, Invited Plenary Speaker, Conference of the Australian Early Development Census, Adelaide, February 2015 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact This national Australian conference meets annually to provide guidance to the interpretation of, and decision-making arising from, the triennial testing of all Australian P1 students with the Early Development Instrument (EDI). The presenter was invited to provide the keynote address because of his research experience in Canada and Scotland with the EDI, and the challenges of getting it into routine use.

As a result of this interaction, the Scottish SCPHRP team, led by the presenter, has active collaborative links with Aussie researchers and practitioners in the public health/child development fields
Year(s) Of Engagement Activity 2015
 
Description John Frank, Visiting Lectureship, Dalhousie University Dept. of Pediatrics, Halifax, NS, Canada 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Two lectures were given in one week of October, 2015 -- one for academics/trainees in pediatrics and public health, and one for the general public, which was webcast widely in Atlantic Canada. The content was aimed at stimulating public debate on "Best Policy Investments for Health Equity over the Life-Course." Two five-minute radio interviews were also broadcast on "Information Morning" on CBC Radio in Halifax. Ongoing collaboration with Nova Scotia health and university authorities is anticipated.

Too soon to tell!
Year(s) Of Engagement Activity 2015
 
Description John Frank, Visiting Professorship, Telethon Kids Institute, University of Western Australia, Perth: March 2015 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact During this busy three-week Visiting Professorship, a major MPH-level course was taught to over 20 graduate trainees and public health professionals; three academic lectures were delivered; several consultative meetings were held to obtain JF's expert advice on the structural model in place for administrative record linkage in Western Australia.

Ongoing collaborations have occurred, both with UWA and other Australian centres of excellence in population health research (Adelaide and Melbourne).
Year(s) Of Engagement Activity 2015
 
Description John Frank: Continuing Professional Education Half-Day for Policy Staff, Scottish Government Public Health Division 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact At the request of the Directors of Health Protection and Improvement, Public Health Division of the Scottish Government, John Frank presented a half-day in-depth interactive seminar on "Pitfalls and Tips in Interpreting Measures of Population Health Status." It was well received, with several senior staff indicating that they had never been taught some of the core content, which will be useful to them in their work.
Year(s) Of Engagement Activity 2016
 
Description John Frank: How Can Investments for Health Equity Address the Obesity Pandemic in Scotland; Holyrood Conference, Edinburgh 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact This seminar, chaired by John Frank, was attended by about 40 public health profesionals and programme managers from across Scotland; it is providing SCPHRP with new avenues for collaborative work with this community.


None as yet
Year(s) Of Engagement Activity 2014
 
Description John Frank: Invited Guest Presentations, Public Health Ontario and Health Quality Ontario, Toronto, Canada, Jan. 27/29, 2016 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact As a result of recently publishing an extensive analysis of "Best Investments for Health Equity" (Frank et al., Soc Sci Med, July 2015 -- see "Publications"), John Frank was invited to address the major two public health and health system agencies in Ontario, Canada, with responsibilities for monitoring and advising the government on health inequalities in that province. Further collaborations are expected, especially since JF is also a co-investigator on two major CIHR grants (see "Awards" section) started up in 2015, to develop more capacity in Ontario/Canada to do this kind of research and public health surveillance.
Year(s) Of Engagement Activity 2016
URL http://www.publichealthontario.ca/en/LearningAndDevelopment/Events/Pages/Seven_Best_Investments_for_...
 
Description John Frank: Invited Keynote, Canadian Chronic Disease Prevention Centres' Annual Conference, Toronto, April 2015: Seven Best Investments for Health Equity Over the Life-Course: How are Canada, the UK and Scotland Doing?" 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact As a result of this interaction, ongoing collaborations are developing with this international and Canadian network of Prevention Research Centres.

As an example, SCPHRP, of which the presenter is Director, is one of less than 15 Prevention Research Centres internationally being asked to provide input about its strategies, successes and failures as part of a major grant-funded Delphi process run by the PROPEL Centre at the University of Waterloo, ON, Canada
Year(s) Of Engagement Activity 2015
 
Description John Frank: Invited Keynote, SW England Regional PH Research Conference, Weston-super-Mare, February, 2015: "Best Early-Life Investments for Health Equity: Scotland and rUK Compared. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact This UK Regional Public Health Research Conference is supported by SCPHRP's "sister" CRC-funded Centre of Excellence in Public Health, DECIPHer, based at Bristol, Swansea and Cardiff. Ongoing involvement with that Centre's extensive outreach and research activities in that region is facilitated by the SCPHRP Director's direct engagement with over 150 regional public health staff/professionals at this conference.

During subsequent meetings of the DECIPHer Scientific Advisory Board, co-chaired by Prof Frank, further collaborative opportunities have opened up for SCPHRP.
Year(s) Of Engagement Activity 2015
 
Description John Frank: Invited Lectureship/Grand Rounds, Dalhousie University Dept. of Pediatrics, Halifax, Nova Scotia, Canada, October 2015: "Seven Best Investments for Health Equity Over the Life-Course: Scotland and rUK Compared." 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact This invited lectureship at Dalhousie University, Halifax, Nova Scotia, Canada, included two public lectures, meetings with key stakeholders at the provincial and university level, as well as two lengthy CBC radio interviews about how certain policies can reduce health inequalities.
Year(s) Of Engagement Activity 2015
 
Description John Frank: Measuring Early Child Development to Improve it: Scottish Experience with the EDI 81. Invited Seminar, Scottish Government Continuing Professional Education (Public Health Division), Edinburgh, November 2013 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact This long-sought-after meeting strengthened relations with the branch of government in Scotland most likely to facilitate the routine use of the EDI in future, to monitor Early Child Development at school entry, and improve it through local action.


Further conversations underway re collaboration with SCPHRP
Year(s) Of Engagement Activity 2013
 
Description John Frank: Moving Public Health Research to Policy: A Cautionary Tale from Scotland (Royal College of Physicians of Edinburgh Symposium) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact This interaction led directly to an invitation to Frank, by the Scottish CMO, to present our East Lothian EDI pilot results to the SG's Early Years Collaborative in July 2014 (see below)


Further conversations underway re collaboration with SCPHRP
Year(s) Of Engagement Activity 2014
 
Description John Frank: Pros and Cons of Routinely Collected Outcomes for Monitoring Health Inequalities by SES (Robert Wood Johnston Symposium, University of Michigan, April 2014) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact John Frank has been an Affiliate International Faculty member in this Robert Wood Johnson Foundation Health and Society Scholars Program since 2001


Further conversations underway re collaboration with SCPHRP
Year(s) Of Engagement Activity 2014
URL https://www.youtube.com/watch?v=KKimVS0VaS4&feature=youtu.be
 
Description John Frank: Reducing Health Inequalities in the Early Years: What are the Next Steps for Scotland? (Scottish Parliamentary Committee on Health and Sport Inquiry into "Health Inequalities in the Early Years) 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Invited verbal and written testimony to the Committee, in May 2014, further strenghened SCPHRP as a knowledge-resource in moving forward implementation of school-entry measurement of early child development, in Scotland.


Filmed for BBC; further conversations underway re collaboration with SCPHRP
Year(s) Of Engagement Activity 2014
URL http://www.bbc.co.uk/democracylive/scotland-27394249
 
Description John Frank: Seven Best Investments for Health Equity: How are the UK and Scotland Doing (& How Could Record Linkage Help) : International Record Linkage Network Conference, Vancouver, May 2014 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact SCPHRP is an ongoing member of this international network, fulfilling part of our obligations as a founding centre within the Farr@Scotland grant.


Further conversations underway re collaboration with SCPHRP
Year(s) Of Engagement Activity 2014
URL https://www.youtube.com/watch?v=RxHGl33BhyE
 
Description John Frank: Seven Key Investments for Achieving Health Equity: Scotland and the UK Compared (Liverpool and Lancaster School of Public Health Research Launch, Lancaster, UK 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact This interaction is part of John Frank's ongoing role as Chair of the Advisory Board for all eight SPHRs across England


Further conversations underway re collaboration with SCPHRP
Year(s) Of Engagement Activity 2014
 
Description John Frank: Seven Key Investments for Health Equity over the Life-Course: Scotland and the UK Compared (CRC Centres of Excellence in Public Health Annual Conference, Leeds, UK) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact This interaction further solidified SCPHRP's relationships with this UK-wide network of five other Centres with similar mandates/funding, within which we are the only Scottish unit; we will host the Conference in 2015.


Further collaboration is being actively explored by SCPHRP, which is forming an Early Career Researchers' Planning Group for the 2015 Conference
Year(s) Of Engagement Activity 2014
URL http://www.ukcrc.org/research-coordination/joint-funding-initiatives/public-health-research/
 
Description John Frank: The Best Investments for Global Health Equity: How is the World Doing? (40th Anniversary of Universite de Montreal SPH, Montreal, CANADA) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact This interaction, with Canada's leading francophone School of Public Health, has increased SCPHRP's dialogue with a part of Canada where the public health system is closest to that of Scotland's (and quite different from the rest of Canada's).


Further conversations underway re collaboration with SCPHRP
Year(s) Of Engagement Activity 2014
 
Description John Frank: The Best Investments for Health Equity: How are Scotland and England Doing?(Lothian NHW Health Board Public Health Invited Seminar) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact This interaction further solidified SCPHRP relations with our closest professional/practice setting in public health.


Further conversations underway re collaboration with SCPHRP
Year(s) Of Engagement Activity 2014
 
Description John Frank: The Best Societal Investments for Health Equity - How is Scotland Doing? (Future of Scotland Conference, Edinburgh) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Made many new contacts in Scottish policy-analytic/public health fields

Further conversations underway re collaboration with SCPHRP
Year(s) Of Engagement Activity 2013,2014
URL http://www.govknow.com/event-detail.html?id=557&info=agenda
 
Description John Frank: The Best Societal Investments for Health Equity: How is the World Doing? (University of the Western Cape SPH seminar, Cape Town, SOUTH AFRICA 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact This interaction cemented ties between SCPHRP and this major centre for Sub-Saharan African public health professional and research training


Further conversations underway re collaboration with SCPHRP
Year(s) Of Engagement Activity 2014
 
Description May Fest 2016 University of Aberdeen 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact Hosted a Farr stand on Saturday 28th May to discuss the use of health data for research, and local and national Farr Institute activities with the general public. Farr information leaflets were made available as was access to the Farr website to highlight the 100 Ways of Using Data to Make Lives Better and for the public to browse. We spoke with over 100 members of the public from all age groups.
Year(s) Of Engagement Activity 2016
URL https://www.abdn.ac.uk/mayfestival/
 
Description May Festival 2016, University of Aberdeen 
Form Of Engagement Activity Participation in an open day or visit at my research institution
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact Dr Steve Turner and PhD Students, Anthony Chapman and Catherine Fitton, attended May Festival on Saturday 28th May and used this as an opportunity to do a web/tablet based survey with members of the general public on their opinions about their health data being used for research. 62 members of the general public completed the survey throughout the day, and using health data for research was discussed with many more.
Year(s) Of Engagement Activity 2016
URL https://www.abdn.ac.uk/mayfestival/
 
Description Mhairi Aitken, 26th April 2017, " Discrete choice experiment on commercial use of health data" 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presentation given at the Informatics for Health Conference, Manchester UK
Year(s) Of Engagement Activity 2017
 
Description Morris: Invited Speaker: Medical Schools Council: Big Data and cross border working: Oxfordshire, December 2015 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Invited speaker to inform audience.
Year(s) Of Engagement Activity 2015
 
Description Morris: Invited Speaker: NHS HE Scotland Forum, Scotland: Health Informatics in Scotland: October 2015 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Invited speaker to inform audience.
Year(s) Of Engagement Activity 2015
 
Description Morris: Invited Speaker: Science and the Parliment 2015 - Research & Higher Education. Our Dynamic Earth, Edinburgh, November 2015 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Invited speaker to inform audience.
Year(s) Of Engagement Activity 2015
 
Description Morris: Keynote: Holyrood's eHealth Conference, Glasgow, 25-26 February 2016: Informatics and Research -increased access to information and tole of research 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Opportunities for health practitioners from across Scotland to network and share ideas and best practice regarding ehealth in healthcare. Some feedback from the event included: This was an excellent event and it was a real privilege to be able to attend and learn so much about the current position regarding ehealth and digital transformation.
Year(s) Of Engagement Activity 2015
URL http://ehealth.holyrood.com/overview-ehealth-2015-25-26-february
 
Description Nordic Country Medicine Registry consortium and meeting 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Engagement with the Scandic Countries to present the Scottish Prescribing capability and explore collaboration opportunities ( Nov 2018) . Proposed and identified a collaboration with Sweden and Denmark to progress
Year(s) Of Engagement Activity 2012,2018
 
Description Official Opening of The Farr Insitute, Scotland and ADRC-S 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Since the MRC and ESRC and eight other funders made their investment into big data research in Scotland, we have made considerable progress in creating an outstanding data science infrastructure using existing and new data assets available in Scotland. This will be an opportunity to showcase some of the cross-cutting health, biomedical and social science research that is being performed by the consortium of ten Universities in collaboration with NHS Scotland and other public sector bodies.
Year(s) Of Engagement Activity 2015
URL http://www.farrinstitute.org/news/200/2016-02-29/opening-ceremony-in-scotland-big-data-initiative-se...
 
Description Open Data and the importance of Confidentiality, Control and Public Benefits 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other audiences
Results and Impact This was the closing Keynote speech at the University of Edinburgh's Dealing with Data conference
Year(s) Of Engagement Activity 2017
URL https://media.ed.ac.uk/media/0_7172qesr
 
Description Opening Plenary 'Options and opportunities for diabetes and the 4th industrial revolution', 10th World Congress on Prevention of diabetes and its complications, Edinburgh 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Postgraduate students
Results and Impact Improved understanding of the benefits of building a national infrastructure and services for health data research in the UK
Year(s) Of Engagement Activity 2018
 
Description PPI-Edinburgh Fringe 2014 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? Yes
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact Talk provoked lively debate amongst audience members who were happy to share their views. A review noted: "I Know What You Ate Last Summer made an intellectual topic accessible in an engaging and thought-provoking discussion".

Generated interest in the PPI activities of Farr Institute at Scotland,. Mhairi Aitken has been asked to speak at the Edinburgh International Science Festival April 2015.
Year(s) Of Engagement Activity 2014
URL https://www.youtube.com/watch?v=wY2_vnt-hJ0
 
Description Patient Perspective - The Patient and Public Voice - using big data for public benefit 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact This was a keynote lecture as part of The International Society for Pharmacoepidemiology EuroDurg Conference 2017
Year(s) Of Engagement Activity 2017
URL http://eurodurg2017.net/scientific-programme/
 
Description Public Debate (Edinburgh) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Public/other audiences
Results and Impact Public Debate entitled 'Who owns my genome?' discussed ethics and governance issues, public health benefits, awareness raising of issues for general public
Year(s) Of Engagement Activity 2016
 
Description Public Engagement: Manned a table for the Farr Institute in Scotland at "Science Saturday at the Museum), to inform the public about record linkage 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact As part of an ongoing programme of public and patient engagement of the Farr Institute (Scotland), this half-day of special events, held on Oct. 15, 2016 at the National Museum of Scotland, featured an information table manned by four or five Farr faculty and students; dozens of persons dropped by the table and chatted with us about the ethical use of administrative data for research and record linkage - they were all supportive.
Year(s) Of Engagement Activity 2016
 
Description Public benefits: a central justification and problematic dimension of health informatics 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact Presentation at Informatics for Health Conference, Manchester UK
Year(s) Of Engagement Activity 2017
 
Description Public engagement with data science: Reflections on past experiences and future approaches. CRISP Being digital: Digital technologies and citizen-centred approaches to participation, surveillance and privacy 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other audiences
Results and Impact This was a workshop initiated by CRISP Being to discuss digital technologies and citizen-centred approaches to participation, surveillance and privacy
Year(s) Of Engagement Activity 2017
URL https://www.stir.ac.uk/management/news/events/2017/crispbeingdigitalworkshop/
 
Description Q-step seminar 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Undergraduate students
Results and Impact Gave a seminar to students and staff involved in the Q-step programme in social and political sciences around our research into childhood mental health in schools using linked data.
Year(s) Of Engagement Activity 2017
 
Description Royal Society of Medicine conference Women and chronic kidney disease: exploring gender differences in prevalence and outcomes 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Oral presentation - stimulate discussion
Year(s) Of Engagement Activity 2015
 
Description SCPHRP YouTube Channel 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact We have a You Tube channel where we publish videos of talks and also talking head with various public health professionals. We have 35 videos on our website


Opens dialogue, offers insight into industries/work/research, quick and easy to access. 3678 views
Year(s) Of Engagement Activity 2013
URL https://www.youtube.com/user/SCPHRP1
 
Description Scottish Government workshop on ACEs 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/politicians
Results and Impact Spoke to an invited group of c.30 policy-makers at the Scottish Government about recent research myself and colleagues conducted around adverse childhood experiences followed by a discussion around how this fitted with SG priorities.
Year(s) Of Engagement Activity 2017
 
Description Scottish Renal Association 2015 Women and Chronic Kidney Disease: Exploring gender differences in prevalence and outcomes 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Oral presentation
Year(s) Of Engagement Activity 2015
 
Description Scottish Renal Association conference 2015 Hip fracture in chronic kidney disease: incidence and mortality 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Oral presentation
Year(s) Of Engagement Activity 2015
 
Description Strengthening Public Trust and Public Engagement in Records Management 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Professional Practitioners
Results and Impact This was a presentation within a full day's conference on Records Management bringing together practitioners from across Scotland, particularly from local authorities. This presentation focussed particularly on the benefits and challenges of engaging the public in issues around use of (personal) data. The ensuing discussion suggested considerable interest in this issue and how records management might embrace public involvement.
Year(s) Of Engagement Activity 2015
 
Description Universitas 21 ECR workshop on big data 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other audiences
Results and Impact I was involved in a two day workshop into Big data hosted by U21. I spoke about my research and I was involved in several discussion groups around how we can collaboratively use big data.
Year(s) Of Engagement Activity 2017
 
Description University of Adelaide. Talk on development of DataSHIELD 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Postgraduate students
Results and Impact Disseminated understanding and knowledge of DataSHIELD within Australia and related this to importance of liberal but secure data sharing from major biomedical studies such as ALSPAC and 1958BC. There was a particular focus on potential for vertical DataSHIELD for record linkage and including plans for implementation on SAIL, as developed under CIPHER, Farr Scotland and ALSPAC
Year(s) Of Engagement Activity 2016
URL http://www.datashield.ac.uk
 
Description University of Minas Gerais - International Panel on Pharmaceutical Policies 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/politicians
Results and Impact Topics in medicine and health policy around the world - 8 countries asked to present their programmes followed by debate on how to influence and shape changing policy in Brazil Health system in regard to Medicines access and distribution infrastructure. A report generated by University of Minas Gerais (CCATES) for ongoing dialogue with Ministry of Health
Year(s) Of Engagement Activity 2018
 
Description Williams: Evaluating the impact on hospital admissions of the abolition of prescription fees in Scotland: a natural experiment 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Type Of Presentation paper presentation
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact Oral presentation at the Faculty of Public Health Scotland conference

Engagement with practitioners around how the results of the research can have real world impact.
Year(s) Of Engagement Activity 2014
URL http://www.fphscotconf.co.uk/
 
Description World Universities Network Workshop: Data Analysis with Privacy Protection for Epidemiological Research (DAPPER). Bristol, August 2016 - a Satellite workshop of International Population Data Linkage Conference, Swansea, Wales. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact I led the workshop and gave two lectures. The workshop focused on the importance and challenges associated with largescale sharing and co-analysis of biomedical/health/social data - particularly data that might be classified as sensitive. This pushed forward international discussion of a number of strategies for taking forward new approaches (including governance) and tools for managing, sharing and co-analysing sensitive data in the biomedical, health and social sciences

The workshop has catalysed a follow-up workshop in the coming year.
Year(s) Of Engagement Activity 2016
URL http://www.wun.ac.uk/wun/research/view/dapper-data-analysis-with-privacy-protection-for-epidemiologi...
 
Description https://www.ed.ac.uk/centre-genomic-medicine/news-events/news-2017/debate-genome-screening-pandoras-box 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Postgraduate students
Results and Impact This was presented as part of a University of Edinburgh Medical Debate: The motion of the debate was "This house believes that the UK should have whole genome screening". Professor Graeme Laurie, and Professor Sarah Cunningham-Burley, both Farr Scotland argued against the motion.
Year(s) Of Engagement Activity 2017
URL https://www.ed.ac.uk/centre-genomic-medicine/news-events/news-2017/debate-genome-screening-pandoras-...