CO-CONNECT: COVID - Curated and Open aNalysis aNd rEsearCh plaTform
Lead Research Organisation:
University of Nottingham
Department Name: School of Computer Science
Abstract
CO-CONNECT is a collaborative project and it has four CO-PIs: Jefferson (Dundee), Sheikh (Edinburgh), Hopkins (PHE) and Quinlan (Nottingham).
The current COVID-19 pandemic has caused hundreds of thousands of deaths, severely strained health systems and damaged economies across the world. At this time there is limited evidence that people who have recovered from COVID-19 and have antibodies are protected from a second infection and if so, how long that lasts. Understanding who is immune is vital to protect vulnerable individuals, to safely scale back population-based interventions and for managing disease transmission.
The data which can help us to answer these key questions have been collected across the UK by a range of research groups and within clinical primary and secondary care settings. As this is a new disease, the standards for antibody data capture are in their infancy so some of the details need to answer the key questions are not being captured systematically. The fragmented landscape of data means that it can be challenging for public health groups and researchers to find and access the high-quality data they need at pace.
We will:
- Standardise antibody data collection across the UK
- Configure an infrastructure which enables trustworthy, fast, de-identified, secure analysis of data sets from across multiple sources
- Answer key questions about immunity to COVID-19 and the implications for patient outcomes.
The current COVID-19 pandemic has caused hundreds of thousands of deaths, severely strained health systems and damaged economies across the world. At this time there is limited evidence that people who have recovered from COVID-19 and have antibodies are protected from a second infection and if so, how long that lasts. Understanding who is immune is vital to protect vulnerable individuals, to safely scale back population-based interventions and for managing disease transmission.
The data which can help us to answer these key questions have been collected across the UK by a range of research groups and within clinical primary and secondary care settings. As this is a new disease, the standards for antibody data capture are in their infancy so some of the details need to answer the key questions are not being captured systematically. The fragmented landscape of data means that it can be challenging for public health groups and researchers to find and access the high-quality data they need at pace.
We will:
- Standardise antibody data collection across the UK
- Configure an infrastructure which enables trustworthy, fast, de-identified, secure analysis of data sets from across multiple sources
- Answer key questions about immunity to COVID-19 and the implications for patient outcomes.
Technical Summary
CO-CONNECT is a collaborative project and it has four CO-PIs: Jefferson (Dundee), Sheikh (Edinburgh), Hopkins (PHE) and Quinlan (Nottingham).
The UK has rich, globally important COVID-19 datasets, including large serology cohort studies funded by UKRI, Wellcome, DHSC/NHS, NIHR and the devolved administrations. However, this breadth of data creates a risk of fragmentation, inconsistent structure and access processes, severely limiting utility, timeliness and impact.
Our vision is to transform UK COVID-19 diagnostic datasets to be Findable, Accessible, Interoperable and Reusable (FAIR) and couple this with expert data engineering, enabled by Health Data Research (HDR) UK, to catalyse responsible and trustworthy use of the data for research and innovation.
We propose to support PIs and data custodians to link COVID-19 cohort, serology and other health and non-health datasets. This longitudinal linkage is vital to derive new scientific insights and deliver informed decisions about how best to control the spread of SARS-CoV-2. At present there are >30 independent studies with no streamlined approach to linkage to other health and non-health related datasets, lack of data standardisation, and no strategic approach to synthesise analyses across studies.
SAGE (9th June) requested HDR to work with partners to develop the UK-wide serology and testing data research asset that is linkable to other data sources.
This proposal has been prepared in response to this request. We have bought together 41 leaders from 29 different organisations and 44 data sources to address a major data engineering challenge by building upon existing UKRI investments, including the HDR BREATHE Hub, to create a 'one-stop' service for trustworthy, multi-stakeholder utilisation of curated COVID-19 data for public, private and third sector benefit.
The UK has rich, globally important COVID-19 datasets, including large serology cohort studies funded by UKRI, Wellcome, DHSC/NHS, NIHR and the devolved administrations. However, this breadth of data creates a risk of fragmentation, inconsistent structure and access processes, severely limiting utility, timeliness and impact.
Our vision is to transform UK COVID-19 diagnostic datasets to be Findable, Accessible, Interoperable and Reusable (FAIR) and couple this with expert data engineering, enabled by Health Data Research (HDR) UK, to catalyse responsible and trustworthy use of the data for research and innovation.
We propose to support PIs and data custodians to link COVID-19 cohort, serology and other health and non-health datasets. This longitudinal linkage is vital to derive new scientific insights and deliver informed decisions about how best to control the spread of SARS-CoV-2. At present there are >30 independent studies with no streamlined approach to linkage to other health and non-health related datasets, lack of data standardisation, and no strategic approach to synthesise analyses across studies.
SAGE (9th June) requested HDR to work with partners to develop the UK-wide serology and testing data research asset that is linkable to other data sources.
This proposal has been prepared in response to this request. We have bought together 41 leaders from 29 different organisations and 44 data sources to address a major data engineering challenge by building upon existing UKRI investments, including the HDR BREATHE Hub, to create a 'one-stop' service for trustworthy, multi-stakeholder utilisation of curated COVID-19 data for public, private and third sector benefit.
Organisations
- University of Nottingham (Lead Research Organisation)
- National Inst. Health & Care Research (Co-funder)
- ROYAL SURREY COUNTY HOSPITAL NHS FOUNDATION TRUST (Collaboration)
- United Kingdom Research and Innovation (Collaboration)
- Barcelona Supercomputing Center (Collaboration)
- University of Bristol (Collaboration)
- Genomics England (Collaboration)
- National Institute for Health Research (Collaboration)
- Health Data Research UK (Collaboration)
- Generation Scotland (Collaboration)
Publications
Jefferson E
(2022)
A Hybrid Architecture (CO-CONNECT) to Facilitate Rapid Discovery and Access to Data Across the United Kingdom in Response to the COVID-19 Pandemic: Development Study.
in Journal of medical Internet research
Jefferson E
(2022)
The COVID - Curated and Open aNalysis aNd rEsearCh plaTform (CO-CONNECT).
in International Journal of Population Data Science
Jefferson E
(2022)
Developing a new Governance Approval Process to support federated discovery and meta-analysis of data across the UK through the CO-CONNECT project.
in International Journal of Population Data Science
Soiland-Reyes S
(2024)
Five Safes RO-Crate: FAIR Digital Objects for Trusted Research Environments
Urwin E
(2024)
A SARS-CoV-2 minimum data standard to support national serology reporting.
in Annals of clinical biochemistry
| Title | CO-CONNECT explainer video |
| Description | Video to help explain the project to both data governance and Patient/Public teams. |
| Type Of Art | Film/Video/Animation |
| Year Produced | 2022 |
| Impact | Helped to progress data governance queries. |
| URL | https://www.youtube.com/watch?v=dqZtWi6VGGo |
| Description | Data on millions of individuals reside in the UKs national TREs and yet to find out what is available within them is challenging. It is possible to look at meta data that will tell you what fields and columns are present, but to understand if the volume of data you need for research, requires a lengthy process of applying to the TREs, for their staff to run a query, the output to be checked for anything disclosive and the answer given back to the researcher. That process could take months and the answer may be that there is nothing available. Therefore, we currently have a expensive, slow process that often leads to no research. This holds back both academic and commercial research. Given the pressing demand that COVID-19 presented, the time was now to change this process and to bring automation, such that the answers were almost instantaneous. But unlike other attempts, we sought to do this based on open standards, team science and a collaborative endeavour across industry, academia, the publics and public health bodies to support multiple projects rather than simply a single project. For all the datasets in CO-CONNECT we: (1) Made them discoverable on the HDR UK Gateway, ensuring they are visible to all. (2) Curated all data to a common international standard (3) Installed software to facilitate live querying of data This approach is now being adopted across international consortia. |
| Exploitation Route | We have transformed the impression that confidential healthcare data can never be open, we are transforming the culture within national TREs such that they can see how data can be open to question and discovery without compromising on security, confidentiality and the trust of the public. This landmark change in how data can be discovered will have legacy well into the future and well beyond covid-19, it has transformed the state of the possible in under two years. Others may now try different technical approaches, but we have change the conversation from whether such a system could deliver transparency to how such systems could be used. Therefore, leaving a legacy for further innovation. |
| Sectors | Healthcare |
| Description | As well as on boarding many datasets, the CO-CONNECT project has built a lasting infrastructure legacy which will be taken forward by new projects (some already funded including HDR QQR2 core funds and Alleviate Data Hub). The lasting legacy includes: • A new secure architecture which has been approved by organisations hosting both unconsented and consented datasets - which can be enhanced and re-used o New processes for on-boarding new datasets o Open-source software to map datasets into OMOP o OpenAPIs to enhance and expand the functionality o WhiteRabbit accepted as software for profiling and producing meta-data on sensitive datasets o Acceptance of automated disclosure control o Federated analytics capability utilising the same architecture • The cohort discovery tool live within the HDR Gateway o Reduced time and effort for both researchers and data custodians to carry out feasibility queries across multiple datasets. o Data custodians are supported to promote their dataset and researchers can find out about data sets they otherwise would not have known about • Materials which can be used to on-board new datasets covering all diseases not just COVID o A range of explainer videos for data custodians and the general public to understand the solution, benefits and how we protect patient confidentiality. o Comprehensive documentation for use in data governance applications and for technical teams implementing the solution • Changed the conversation from WHY should we do cohort discovery/federated analytics to HOW should we. |
| First Year Of Impact | 2022 |
| Sector | Healthcare |
| Impact Types | Economic Policy & public services |
| Description | New Information Governance Framework for Federated Aggregate Level Queries on Unconsented Data |
| Geographic Reach | National |
| Policy Influence Type | Contribution to new or Improved professional practice |
| Impact | A new framework for researchers to discovery data relevant to their research across the UK. |
| Description | Alleviate: Hub for Pain |
| Amount | £2,032,575 (GBP) |
| Funding ID | MR/W014335/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 06/2021 |
| End | 06/2024 |
| Description | BY-COVID |
| Amount | € 12,000,000 (EUR) |
| Funding ID | 101046203 |
| Organisation | European Commission H2020 |
| Sector | Public |
| Country | Belgium |
| Start | 06/2022 |
| End | 09/2024 |
| Description | Guidelines and Resources for AI Model Access from TrusTEd Research environments (GRAIMatter) |
| Amount | £315,488 (GBP) |
| Funding ID | MC_PC_21033 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2022 |
| End | 08/2022 |
| Description | MICA - DEfining MechanIsms Shared across mulTI-organ FIbrosis to prevent the development of long-term multi-morbidity DEMISTIFI-Multi Morbidity |
| Amount | £2,856,188 (GBP) |
| Funding ID | MR/W014491/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 11/2021 |
| End | 10/2025 |
| Description | MIREDA (Mother and Infant Research Electronic Data Analysis) Partnership |
| Amount | £1,236,698 (GBP) |
| Funding ID | MR/X02055X/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 06/2023 |
| End | 06/2026 |
| Description | SATRE - Standardised Architecture for Trusted Research Environments |
| Amount | £614,112 (GBP) |
| Organisation | United Kingdom Research and Innovation |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2023 |
| End | 10/2023 |
| Description | Semi-Automated Checking of Research Outputs (SACRO) |
| Amount | £637,821 (GBP) |
| Organisation | United Kingdom Research and Innovation |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2023 |
| End | 10/2023 |
| Description | TRE-FX: Delivering a federated network of TREs to enable safe analytics |
| Amount | £562,457 (GBP) |
| Organisation | United Kingdom Research and Innovation |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2023 |
| End | 10/2023 |
| Description | Trusted Research Environment and Enclave for Hosting Open Original Science Exploration (TREEHOOSE) |
| Amount | £202,664 (GBP) |
| Funding ID | MC_PC_21032 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2022 |
| End | 08/2022 |
| Title | CARROT Mapper Database |
| Description | As part of the CARROT tool, there is a database of mapping rules to convert data to OMOP. This is held centrally and open to others to utilise for no charge. This enables faster data mapping over time. |
| Type Of Material | Database/Collection of data |
| Year Produced | 2022 |
| Provided To Others? | Yes |
| Impact | Multiple datasets being mapped to OMOP |
| Description | ELIXIR Workflow Execution Service |
| Organisation | Barcelona Supercomputing Center |
| Country | Spain |
| Sector | Public |
| PI Contribution | The ELIXIR WfExS develpoed by the Barcelona Supercomputing Centeris used by the TRE-FX project to execute workflows in TREs. |
| Collaborator Contribution | They contributed the WfExS and made revisions |
| Impact | The EU Project EOSC-ENTRUST - https://eosc-entrust.eu/, starting 2024. The WfExS Partners in Barcelona and the TRE-FX project partners will work together on federated analytics development using workflows and the Five Safes RO-Crate |
| Start Year | 2023 |
| Description | Federated search across TREs |
| Organisation | Health Data Research UK |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | We are supporting the roll out of the federated tool across the National Core Studies Data and Connectivity piece |
| Collaborator Contribution | Project management and technical insight. |
| Impact | None to date. Impact expected in 2021. |
| Start Year | 2020 |
| Description | Health Data Research UK, National Core Studies Programme |
| Organisation | Health Data Research UK |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | We are supporting the NCS programme with the roll out of the cohort discovery tooling that has been generated in CO-CONNECT. |
| Collaborator Contribution | Supporting the work with the NCS partners. |
| Impact | The development of the HDR UK Cohort Discovery tool: https://www.healthdatagateway.org/about/cohort-discovery |
| Start Year | 2021 |
| Description | Making phenotypic data discoverable |
| Organisation | Generation Scotland |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Insight and technology |
| Collaborator Contribution | Phenotypic data for discovery |
| Impact | The launch of the search tool, ATLAS. |
| Start Year | 2018 |
| Description | Making phenotypic data discoverable |
| Organisation | Genomics England |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Insight and technology |
| Collaborator Contribution | Phenotypic data for discovery |
| Impact | The launch of the search tool, ATLAS. |
| Start Year | 2018 |
| Description | Making phenotypic data discoverable |
| Organisation | National Institute for Health Research |
| Department | NIHR Nottingham Biomedical Research Centre |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Insight and technology |
| Collaborator Contribution | Phenotypic data for discovery |
| Impact | The launch of the search tool, ATLAS. |
| Start Year | 2018 |
| Description | Making phenotypic data discoverable |
| Organisation | National Institute for Health Research |
| Department | National Institute for Health Research (NIHR) BioResource |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Insight and technology |
| Collaborator Contribution | Phenotypic data for discovery |
| Impact | The launch of the search tool, ATLAS. |
| Start Year | 2018 |
| Description | Making phenotypic data discoverable |
| Organisation | University of Bristol |
| Department | Avon Longitudinal Study of Parents and Children (ALSPAC) |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Insight and technology |
| Collaborator Contribution | Phenotypic data for discovery |
| Impact | The launch of the search tool, ATLAS. |
| Start Year | 2018 |
| Description | National Core Studies, COVID Collections |
| Organisation | United Kingdom Research and Innovation |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Working with the funded UKRI studies to get them registered in the Directory |
| Collaborator Contribution | A covid registry of samples from funded studies. |
| Impact | https://directory.biobankinguk.org/Search/Collections?ontologyTerm=COVID-19 |
| Start Year | 2020 |
| Description | Royal Surrey NHS Foundation Trust |
| Organisation | Royal Surrey County Hospital NHS Foundation Trust |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Collaborated on building the National COVID-19 Chest Imaging Database (NCCID). This collaboration was highly successful and we then went on to collaborate on the National COVID-19 Chest Imaging Database (NCCID) Validation project |
| Collaborator Contribution | Expertise in image data handling and infrastructures |
| Impact | New funding for NCCID Validation project. A UK wide COVID imaging dataset for research and innovation. Talked about to the G7. |
| Start Year | 2020 |
| Title | CO-CONNECT/co-connect-tools: 0.3.1 |
| Description | No description provided. |
| Type Of Technology | Software |
| Year Produced | 2021 |
| Impact | The primary functionality is used for performing ETL on health datasets, converting them to the OHDSI Common Data Model (CDM), via a command line interface. |
| URL | https://zenodo.org/record/5529834 |
| Title | HDR Cohort Discovery / TRE-FX / RQuest integration |
| Description | It allows compatibility between the work of TRE-FX, the HDR Programme (Cohort Discovery) and BC Platforms software |
| Type Of Technology | Software |
| Year Produced | 2023 |
| Open Source License? | Yes |
| Impact | Now being assessed for use in the NHS England SDE Programme |
| URL | https://github.com/Health-Informatics-UoN/rquest-tools |
| Title | HDR UK Cohort Discovery |
| Description | The system allows researchers to find cohorts of patients via an online platform. |
| Type Of Technology | Webtool/Application |
| Year Produced | 2021 |
| Impact | It is now embedded within the HDR Innovation Gateway. |
| URL | https://www.healthdatagateway.org/about/cohort-discovery |
| Title | Link lite |
| Description | An open source version of the BC Platforms link software |
| Type Of Technology | Software |
| Year Produced | 2020 |
| Open Source License? | Yes |
| Impact | A POC for the HDR Innovation Gateway |
| Title | OMOP Mapping tool |
| Description | The platform allows rules to be generated to convert data from source to OMOP. |
| Type Of Technology | Webtool/Application |
| Year Produced | 2021 |
| Open Source License? | Yes |
| Impact | It has helped mapped several datasets in the UK and is now being utilised across EU projects in BBMRI-ERIC |
| URL | https://github.com/CO-CONNECT/mapping-pipeline |
| Title | Workflow for RQuest integration |
| Description | It is the workflow to process an HDR Cohort Discovery tool query |
| Type Of Technology | Software |
| Year Produced | 2023 |
| Open Source License? | Yes |
| Impact | Forms part of the work with NHS SDE Programme and HDR Programme |
| URL | https://workflowhub.eu/workflows/471 |
| Description | BC Platforms Event in Singapore |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | International meeting to hear about our work and to create further collaborations |
| Year(s) Of Engagement Activity | 2023 |
| Description | CO-CONNECT End of Project Conference (organiser and speaker) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | An event to commemorate the end of the CO-CONNECT project. |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://co-connect.ac.uk/co-connect-draws-to-a-close/ |
| Description | CO-CONNECT Explainer Video |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | This video aims to support the Data Governance Teams, to describe the intentions of CO-CONNECT and to support the approvals process. |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://www.youtube.com/watch?v=68E3-GEwl-U |
| Description | CO-CONNECT Explainer Videos (x3) |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Three explainer videos to describe the CO-CONNECT project, an overview of the work, one on finding data, and a final video on accessing and analysing data. |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://co-connect.ac.uk/overview/ |
| Description | CO-CONNECT Website |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Our CO-CONNECT Website is a central communication tool to let our audiences aware of our project and activities. It has sparked interested from organisations not on the original grant to come forward and enquiry about onboarding their data into CO-CONNECT to make it discoverable to other groups of public health officials and the research community. |
| Year(s) Of Engagement Activity | 2020 |
| URL | https://co-connect.ac.uk/ |
| Description | CO-CONNECT: Linking COVID-19 immunity data |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | . |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://www.hdruk.ac.uk/news/co-connect-linking-covid-19-immunity-data/ |
| Description | Cambridge Spark Lecture Series |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Presentation: Overcoming the Challenges of Providing Access to Population Scale, Routinely Collected Health and Imaging Data for AI Development whilst Protecting Patient Confidentiality. |
| Year(s) Of Engagement Activity | 2022 |
| Description | Data Partner Tracker Dashboard |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Tracking the onboarding process of our Data Partners onto CO-CONNECT in this clear and transparent manor has increased engagement and communication across our partners, public engagement group, advisory steering group and funders. |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://ccdashboard-drs.azurewebsites.net/ |
| Description | Data Saves Lives: The Fight Against Covid-19 |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | . |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://www.youtube.com/watch?v=CKuuY1LNv-0 |
| Description | Data Standardisation (OMOP) |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | CO-CONNECT Data Pipeline Part 2 Data Standardisation OMOP |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://www.youtube.com/watch?v=zP1UF_3U5Ic |
| Description | Discovery Day Lecture: Data saves lives: the fight against COVID-19 |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | A lecture for the general public about our research. |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://www.youtube.com/watch?v=CKuuY1LNv-0 |
| Description | Federated Learning Workshop: Share the Code |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | International workshop to develop common understandings for the deployment of federated learning tools. |
| Year(s) Of Engagement Activity | 2023 |
| Description | HDR UK Applied Analytics Seminar Series (speaker) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Presentation on CO-CONNECT for the HDR UK Applied Analytics Seminar Series. |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://www.youtube.com/watch?v=XAOoDnf6sDY&list=PLBI5k9SgYrIvelTjAF-00FtVw_7JwISpg&index=15 |
| Description | HDR UK Community Meeting - Scotland (speaker) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | Invited speaker to HDR UK Community Meeting (Scotland) - one of a series of meetings intended to build partnerships and collaborations across the health data research community. Presentation: The Technology Ecosystem, Phenomics and Prognostic Atlas. |
| Year(s) Of Engagement Activity | 2022 |
| Description | HDR UK Infrastructure and Science Retreat (invited speaker) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | HDR UK strategic planning working group. |
| Year(s) Of Engagement Activity | 2022 |
| Description | HDR UK Science and Infrastructure Delivery Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | . |
| Year(s) Of Engagement Activity | 2021 |
| Description | HDR UK Technology Ecosystem Conference/Workshop (organiser and speaker) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | The purpose of the meeting was to kick off the Technology Ecosystem work as part of HDR UK 23-28 strategy, bringing together various overlapping initiatives to share knowledge and plan for how we will work together going forward. |
| Year(s) Of Engagement Activity | 2023 |
| Description | HIC jointly leading new £4 million data project to accelerate COVID-19 research |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | . |
| Year(s) Of Engagement Activity | 2020 |
| URL | https://www.dundee.ac.uk/stories/ps4-million-data-project-accelerate-covid-19-research |
| Description | Input into HDR UK Data Standards Paper |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Input into HDR UK Data Standards Paper |
| Year(s) Of Engagement Activity | 2020 |
| Description | Input into HDR UK Trusted Research Environments Green Paper |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Input into HDR UK Trusted Research Environments Green Paper. |
| Year(s) Of Engagement Activity | 2020 |
| URL | https://ukhealthdata.org/wp-content/uploads/2020/07/200723-Alliance-Board_Paper-E_TRE-Green-Paper.pd... |
| Description | Introduction to CO-CONNECT & HDR Innovation Gateway |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | The video describes the Data Pipeline. This video is Part One and gives an introduction to CO-CONNECT and the HDR Innovation Gateway. |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://www.youtube.com/watch?v=3pCAfO3Sy-o&t=23s |
| Description | Invited Member of MRC Population Health Sciences Group (PHSG) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Oversee population health sciences investment across MRC Boards and panels. Advise MRC Strategy Board, boards and panels on development and implementation of strategies and policies. Advise on strategic funding initiatives and partnership activities. Carry out gap analyses and horizon scanning. |
| Year(s) Of Engagement Activity | 2020 |
| Description | Invited Speaker HDR UK Data Federation Initiatives, |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | UK Health Data Research Alliance Symposium |
| Year(s) Of Engagement Activity | 2020 |
| Description | Invited Speaker: EAVE II Steering Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited Speaker: CO-CONNECT - COVID-Curated and Open aNalysis aNd rEsearCh platform |
| Year(s) Of Engagement Activity | 2021 |
| Description | Invited Speaker: Exciting developments of HIC's Next Generation Safe Haven and new COVID research initiatives |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Public Health Scotland Research Talks |
| Year(s) Of Engagement Activity | 2020 |
| Description | Invited speaker: Data and Intelligence Network |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Invited Speaker - CO-CONNECT - COVID-Curated and Open aNalysis aNd rEsearCh platform |
| Year(s) Of Engagement Activity | 2021 |
| Description | Invited speaker: HDR Technology Ecosystem and the Gateway: UKRI Data Infrastructure Club Show and Tell |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Emily Jefferson was an invited speaker, leading a presentation on the HDR UK Technology Ecosystem and the Gateway at the UKRI Data Infrastructure Club Show and Tell: 31st Jan 2023. |
| Year(s) Of Engagement Activity | 2023 |
| Description | Invited speaker: HDR Technology Ecosystem. UK DRI Informatics Scoping Event - London. 8th and 9th March 2023 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Emily Jefferson, CTO of HDR UK was an invited speaker to lead a presentation on the HDR Technology Ecosystem at the UK DRI Informatics Scoping Event - London. 8th and 9th March 2023 |
| Year(s) Of Engagement Activity | 2023 |
| Description | Invited speaker: Technology Ecosystem - Launch. Technology Ecosystem Conference/Workshop. Birmingham. 6th Feb 2023 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Technology Ecosystem Conference (6th February 2023) brought together different technology groups from across the community to strengthen relationships and generate ideas to deliver trustworthy infrastructure and services across the health data research ecosystem |
| Year(s) Of Engagement Activity | 2023 |
| Description | Invited speaker: The power of DRI: A health data perspective. UKRI Digital Research Infrastructure (DRI) Congress. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Emily Jefferson was an invited speaker to present on: The power of DRI: A health data perspective at the UKRI Digital Research Infrastructure (DRI) Congress. 6th and 7th March 2023. |
| Year(s) Of Engagement Activity | 2023 |
| Description | Japan Association for Medical Informatics Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Emily Jefferson (CTO, HDR UK and Interim Director of DARE UK) was a keynote speaker at the 43rd Joint Conference on Medical Informatics. Presentation: The UK's progress towards enabling secure, researcher access to sensitive health data at a UK population scale. |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://confit-atlas-jp.translate.goog/guide/event/jcmi2023/session/3A11-13/detail?_x_tr_sl=ja&_x_tr... |
| Description | Keynote speaker: Towards Federated Analytics for Population Data. International Data Science Conference - Tokyo, Japan, 22/05/23 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Emily Jefferson was invited as a keynote speaker to present 'Towards Federated Analytics for Population Data. International Data Science Conference - Tokyo, Japan' on 22/05/23 |
| Year(s) Of Engagement Activity | 2023 |
| Description | Keynote speaker: Towards Federated Analytics for Population Data. Precision Medicine & Real-World Data Conference - Singapore, 23/05/23 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Key note speaker, presented on experiences enabling a new UK infrastructure for finding and accessing population-wide data for research and public health analysis |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://info.bcplatforms.com/precision-medicine-and-rwd-conference-singapore-2023 |
| Description | Mapping Rules |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | CO-CONNECT Data Pipeline Part 4 - Mapping Rules Generation using CO-CONNECT Mapping Tool |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://www.youtube.com/watch?v=rSkVqll_ah4 |
| Description | Overcoming the Challenges of Providing Access to Population Scale, Routinely Collected Health and Imaging Data for AI Development whilst Protecting Patient Confidentiality |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Industry/Business |
| Results and Impact | Presentation to the AI summit in London covering the work of PICTURES, CO-CONNECT and GRAIMATTER |
| Year(s) Of Engagement Activity | 2022 |
| Description | Panel contributor: Scotsman Life Sciences Conference; Realising the Covid-19 Legacy |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Panel contributor: Data for the development and evaluation of healthcare innovation |
| Year(s) Of Engagement Activity | 2021 |
| Description | Pre-Processing and Metadata |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | CO-CONNECT Data Pipeline Part 3 Meta data and Pre Processing |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://www.youtube.com/watch?v=9kVrP_jhC_o&t=393s |
| Description | Research Software Engineers (RSE) Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Emily Jefferson (CTO, HDR UK and Interim Director of DARE UK) was an invited speaker to the Seventh Annual Research Software Engineering Conference. Presentation: Can convening a Technology Ecosystem help TREs to work together? |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://rsecon23.society-rse.org/ |
| Description | Scottish Covid Data & Intelligence Network Delivery Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | .Presentation on the CO-CONNECT Project |
| Year(s) Of Engagement Activity | 2021 |
| Description | The AI Summit London (panel) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Industry/Business |
| Results and Impact | Expert panel speaker: The Landscape of AI Adoption in Medical Imaging - Challenges & Opportunities. |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://london.theaisummit.com/ |
| Description | UK TRE Community Meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Emily Jefferson (CTO, HDR UK and Interim Director of DARE UK) was the keynote speaker at the UK TRE Community Meeting that was part of the RSE Conference. Presentation: Call to action! |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://www.eventbrite.com/e/uk-tre-community-september-meeting-tickets-676066472017 |