The automated coding of expressed emotion to enhance clinical and epidemiological mental health research in adolescence
Lead Research Organisation:
King's College London
Department Name: Child and Adolescent Psychiatry
Abstract
As little as five minutes listening to a parent talk can reveal a significant amount of information about their child's future psychopathology. Analyses of the words and tone used in parents' speech, provides a detailed picture about the parents, the child, and interactions within the family. An interview technique called the five-minute speech sample (FMSS) has operationalised this process. There is good evidence the FMSS can provide an index of a child's home environment and help profile their risk of developing, and recovering from, adolescent-onset mental health disorders. FMSS are easy to collect - all you need is 5 minutes and a dictaphone/smartphone - yet they are rarely used in research or clinical settings, because the coding of speech is laborious, bias-prone, and requires highly trained raters. If these issues could be overcome, FMSS presents tremendous opportunity to be used across research, mental health and social care settings to rapidly assess key modifiable drivers of mental health problems among adolescents.
This project will bring together an interdisciplinary team of developmental psychopathologists, creative writers, plus computer, clinical and social scientists to automate the coding of the FMSS. Using recent developments in computational linguistics and affective computing, we will create a pipeline which combines automatic translation, speech valance and natural language analysis. We will use a unique collection of researcher-rated FMSS audio recordings of mothers from the UK E-Risk Longitudinal Twin Study, which were obtained on 2031 children at 10 years of age. The children in this cohort have been followed to age 18 years, undergoing multiple waves of comprehensive assessments. Building on an existing feasibility study, we will develop and train an automated approach to FMSS coding - exploiting both the size and socio-economic representativeness of the sample. We will then examine whether the automated ratings generated from age-10 maternal speech samples show the same ability to predict mental health problems at 12 and 18 years as well as costly human ratings.
We will conduct creative workshops with key stakeholders (young people, parents, healthcare/social-work practitioners, research policymakers, governance leads, and educators) throughout the project to determine the main ethical, social and practical challenges to using and sharing parental speech data and developing and implementing the automated models in practice to inform future work.
Crucially, all this work will help us understand how to share this methodology, and as a final output we will develop open-source materials and a clear blueprint of what is required to build a secure digital platform that enables other research groups to rapidly code expression emotion from FMSS in an accurate and cost-effective manner.
This project will bring together an interdisciplinary team of developmental psychopathologists, creative writers, plus computer, clinical and social scientists to automate the coding of the FMSS. Using recent developments in computational linguistics and affective computing, we will create a pipeline which combines automatic translation, speech valance and natural language analysis. We will use a unique collection of researcher-rated FMSS audio recordings of mothers from the UK E-Risk Longitudinal Twin Study, which were obtained on 2031 children at 10 years of age. The children in this cohort have been followed to age 18 years, undergoing multiple waves of comprehensive assessments. Building on an existing feasibility study, we will develop and train an automated approach to FMSS coding - exploiting both the size and socio-economic representativeness of the sample. We will then examine whether the automated ratings generated from age-10 maternal speech samples show the same ability to predict mental health problems at 12 and 18 years as well as costly human ratings.
We will conduct creative workshops with key stakeholders (young people, parents, healthcare/social-work practitioners, research policymakers, governance leads, and educators) throughout the project to determine the main ethical, social and practical challenges to using and sharing parental speech data and developing and implementing the automated models in practice to inform future work.
Crucially, all this work will help us understand how to share this methodology, and as a final output we will develop open-source materials and a clear blueprint of what is required to build a secure digital platform that enables other research groups to rapidly code expression emotion from FMSS in an accurate and cost-effective manner.
Technical Summary
Our goal is to develop, validate and scale an automatic tool to measure caregiver expressed emotion (EE) for the adolescent age range. Caregiver EE acts a transdiagnostic risk factor for both adolescent-onset psychopathology and as potential mediator of both pharmacological and psycho-social treatment. EE can be accurately captured using five minutes of audio of a mother speaking about their offspring. The ease of collecting these five minute speech samples (FMSS) is countered by the time and skills needed to apply EE coding frameworks - significantly limiting their application in both adolescent development and clinical research. This project will integrate developmental science and computational linguistic approaches to develop an Artificial Intelligence (AI) system to automatically identify constructs linked to expressed emotions values from FMSS. This project's technical objectives are to use the audio data and corresponding FMSS coding from 2021 adolescents within the in E-Risk cohort to (i) test deep learning classification models for EE scores and compare with summary ratings produced by highly trained humans (ii) test the feasibility of these deep learning sequence labelling models models to annotate positive and negative comments, negativity and warmth (iii) examine the AI model performance across socio-economic strata and geographical locations (iv) explore whether the human ratings of EE and AI outputs are predictive of adolescent mental health outcomes. We will co-develop guidance with young people, caregivers, researchers and university governance, on the main ethical-social-technical challenges in using and sharing parental speech data and how they may be surmounted. We will then use the ethical-social-technical learning we have acquired, to develop a detailed product brief on what is required to provide an accessible, secure digital platform that enables external researchers to automatically code expression emotion from FMSS audio data.
Organisations
- King's College London (Lead Research Organisation)
- Friedrich-Alexander University Erlangen-Nuremberg (Collaboration)
- University Of New South Wales (Collaboration)
- Radboud University Nijmegen (Collaboration)
- University of Lisbon (Collaboration)
- Massachusetts Institute of Technology (Collaboration)
- Arizona State University (Collaboration)
- KING'S COLLEGE LONDON (Collaboration)
- Harvard University (Collaboration)
- University of Bremen (Collaboration)
Publications
Astle DE
(2023)
We need timely access to mental health data: implications of the Goldacre review.
in The lancet. Psychiatry
Fisher HL
(2024)
Editorial: "What say you?" The promise and potential pitfalls of using automated and passive monitoring approaches to assess parenting behaviours from verbal and written communication.
in Journal of child psychology and psychiatry, and allied disciplines
Mirheidari B
(2024)
Automatic detection of expressed emotion from Five-Minute Speech Samples: Challenges and opportunities.
in PloS one
Mirheidari, B
(2024)
Automatic detection of expressed emotion from Five-Minute Speech Samples: Challenges and opportunities
in PLOS One
| Description | Setting up and delivering a CAMHS Digital Lab to serve patients, clinicians, NHS managers and researchers |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Impact | The CAMHS Digital Lab's strategic work is leading the digital development of NHS CAMHS. Our Lab drives the Trust and University Digital CAMHS strategy, placing digital development at the heart of child and adolescent healthcare. This strategic work has led to the development of the Pears Maudsley Centre, which will open next year, for which the CAMHS Digital Lab team has helped to secure over £25 million in external grant and philanthropic funding dedicated to improving CYP mental health outcomes. Each individual project we create is designed to deliver on a core objective. For example, by streamlining the collection of routine outcome measures, myHealthE has saved thousands of hours of administrator and clinician time, giving clinicians to spend more time with young people planning their individualised treatment, all while providing clinicians and families greater insight into their mental health. MyHealthE has also increased routine outcome measure completion from 9% to 69%. Building up the digital infrastructure of CAMHS will only be as effective as our digital empowerment of clinicians to use healthcare technologies. We provide regular trainings to clinical and academic staff on not only the products developed by the lab (e.g., myHealthE, Clinical Dashboard), but also on broader topics of digital literacy, including inclusive design principles in technology, technical governance, and evidence appraisal. We also host internal workshops to solidify these digital skillsets within the team. Members of our team have completed training to bolster their digital skillsets in areas such as Digital Project Management. We support the education and training of the next generation of clinical researchers and academics. For example, our Academic Lead Dr. Alice Wickersham has supervised five BSc, two MSc, three MBBS, and one PhD students on projects encompassing digital methods such as big data and machine learning. We support the largest Integrated Academic Training Pathway for Child and Adolescent Psychiatry in UK, and in the last two years have supported five trainee psychiatrists gain highly competitive external UKRI/NIHR PhD funding to research in digital clinical informatics. Members of our team teach digital methodologies and informatics via the Mental Health Studies MSc and the Specialty Psychiatry training programme. Increasing digital competency within the NHS and its academic partners will reduce the reliance on external consultants, saving money while supporting individual career development. |
| URL | https://www.camhsdlab.co.uk/ |
| Description | Advancing Impact Award, Protocol development to validate speech collection for psychological assessments: a pilot study |
| Amount | £4,900 (GBP) |
| Organisation | Engineering and Physical Sciences Research Council (EPSRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 11/2022 |
| End | 12/2022 |
| Description | Brain Health in Gen2020, |
| Amount | £14,000,000 (GBP) |
| Organisation | Heart of Racing LLC |
| Sector | Private |
| Country | United States |
| Start | 09/2023 |
| End | 09/2029 |
| Title | Automated method of coding expressed emotion from caregiver speech |
| Description | We have developed a supervised machine learning model that can code expressed emotion (warmth and negative emtions) from 5 minutes of caregivers speech when captured using series of short interviewer driven prompts |
| Type Of Material | Physiological assessment or outcome measure |
| Year Produced | 2025 |
| Provided To Others? | No |
| Impact | Currently impacting other research cohort studies (e.g. GEN2020) - as now they are adjusting their research protocols to ensure that they can capture five minute speech and test whether the machine learning tool we have developed can be deployed with sufficent accuracy to auto-code speech data from caregivers. |
| URL | https://doi.org/10.1371/journal.pone.0300518 |
| Title | Digitised maternal speech samples & transcripts |
| Description | Five minutes of mothers talking about each of their twins were collected by the E-Risk researchers when the children were aged 10. This MRC-funded project has produced digitised recordings of these cassette tapes to enable this team and many other researchers to utilise these speech samples for answering an array of novel questions. A proportion of the recordings have also been transcribed which will aid the current team and future researchers to answer speech and language-based questions using this new dataset. |
| Type Of Material | Database/Collection of data |
| Year Produced | 2024 |
| Provided To Others? | Yes |
| Impact | None yet but it will make possible a wide range of new research. |
| Description | Collaboration with Speech Reporting Standards Group |
| Organisation | Arizona State University |
| Country | United States |
| Sector | Academic/University |
| PI Contribution | Dr Cummins founded, and both Dr Cummins and Dr Dineley contribute to an international group of academic and industry researchers working towards standardisation of speech feature collection and processing for adoption in health research. The group is drafting a position paper highlighting considerations and challenges in the area. |
| Collaborator Contribution | All input various translational challenges related to the use of speech in health care |
| Impact | Outputs planned within next reporting period |
| Start Year | 2023 |
| Description | Collaboration with Speech Reporting Standards Group |
| Organisation | Friedrich-Alexander University Erlangen-Nuremberg |
| Country | Germany |
| Sector | Academic/University |
| PI Contribution | Dr Cummins founded, and both Dr Cummins and Dr Dineley contribute to an international group of academic and industry researchers working towards standardisation of speech feature collection and processing for adoption in health research. The group is drafting a position paper highlighting considerations and challenges in the area. |
| Collaborator Contribution | All input various translational challenges related to the use of speech in health care |
| Impact | Outputs planned within next reporting period |
| Start Year | 2023 |
| Description | Collaboration with Speech Reporting Standards Group |
| Organisation | Harvard University |
| Department | Harvard Medical School |
| Country | United States |
| Sector | Academic/University |
| PI Contribution | Dr Cummins founded, and both Dr Cummins and Dr Dineley contribute to an international group of academic and industry researchers working towards standardisation of speech feature collection and processing for adoption in health research. The group is drafting a position paper highlighting considerations and challenges in the area. |
| Collaborator Contribution | All input various translational challenges related to the use of speech in health care |
| Impact | Outputs planned within next reporting period |
| Start Year | 2023 |
| Description | Collaboration with Speech Reporting Standards Group |
| Organisation | Massachusetts Institute of Technology |
| Department | McGovern Institute For Brain Research |
| Country | United States |
| Sector | Academic/University |
| PI Contribution | Dr Cummins founded, and both Dr Cummins and Dr Dineley contribute to an international group of academic and industry researchers working towards standardisation of speech feature collection and processing for adoption in health research. The group is drafting a position paper highlighting considerations and challenges in the area. |
| Collaborator Contribution | All input various translational challenges related to the use of speech in health care |
| Impact | Outputs planned within next reporting period |
| Start Year | 2023 |
| Description | Collaboration with Speech Reporting Standards Group |
| Organisation | Radboud University Nijmegen |
| Country | Netherlands |
| Sector | Academic/University |
| PI Contribution | Dr Cummins founded, and both Dr Cummins and Dr Dineley contribute to an international group of academic and industry researchers working towards standardisation of speech feature collection and processing for adoption in health research. The group is drafting a position paper highlighting considerations and challenges in the area. |
| Collaborator Contribution | All input various translational challenges related to the use of speech in health care |
| Impact | Outputs planned within next reporting period |
| Start Year | 2023 |
| Description | Collaboration with Speech Reporting Standards Group |
| Organisation | University of Bremen |
| Country | Germany |
| Sector | Academic/University |
| PI Contribution | Dr Cummins founded, and both Dr Cummins and Dr Dineley contribute to an international group of academic and industry researchers working towards standardisation of speech feature collection and processing for adoption in health research. The group is drafting a position paper highlighting considerations and challenges in the area. |
| Collaborator Contribution | All input various translational challenges related to the use of speech in health care |
| Impact | Outputs planned within next reporting period |
| Start Year | 2023 |
| Description | Collaboration with Speech Reporting Standards Group |
| Organisation | University of Lisbon |
| Department | Instituto Superior Tecnico |
| Country | Portugal |
| Sector | Academic/University |
| PI Contribution | Dr Cummins founded, and both Dr Cummins and Dr Dineley contribute to an international group of academic and industry researchers working towards standardisation of speech feature collection and processing for adoption in health research. The group is drafting a position paper highlighting considerations and challenges in the area. |
| Collaborator Contribution | All input various translational challenges related to the use of speech in health care |
| Impact | Outputs planned within next reporting period |
| Start Year | 2023 |
| Description | Collaboration with Speech Reporting Standards Group |
| Organisation | University of New South Wales |
| Country | Australia |
| Sector | Academic/University |
| PI Contribution | Dr Cummins founded, and both Dr Cummins and Dr Dineley contribute to an international group of academic and industry researchers working towards standardisation of speech feature collection and processing for adoption in health research. The group is drafting a position paper highlighting considerations and challenges in the area. |
| Collaborator Contribution | All input various translational challenges related to the use of speech in health care |
| Impact | Outputs planned within next reporting period |
| Start Year | 2023 |
| Description | Speech group in Biostatistics & Health Informatics - Judith Dineley |
| Organisation | King's College London |
| Department | Department of Biostatistics and Health Informatics |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Helen Fisher supported Jude to develop and submit an NIHR Development and Skills Enhancement Award application. |
| Collaborator Contribution | Jude provided the ideas for the proposal and wrote the application. |
| Impact | Helen Fisher was a Research Support Participant on Judith Dineley's application for an NIHR Development and Skills Enhancement Award, which was submitted in November 2023. This is currently under review. |
| Start Year | 2023 |
| Description | "AI and You", with William Temple Foundation, interactive session |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Schools |
| Results and Impact | Workshops at a diverse festival - involving a series of readings of near science fiction work inspired by our FMSS project. Mainly attended by 12-17 years old at the Greenbelt Festival |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://www.greenbelt.org.uk/artists/stephen-oram/ |
| Description | A talk or presentation - Invited talk by Dr Nicholas Cummins at a workshop |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Challenges and Opportunities for Speech-based Mental Health Analysis 2023 mWell Workshop, attended by academic and tech industry researchers. Results were presented from MR/X002721/1 as part of a discussion of the challenges faced in the clinical translation of speech-based health monitoring |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://mwell.tbm.tudelft.nl/#keynotes |
| Description | AI and ethics workshop for school children |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Schools |
| Results and Impact | Small group workship of 5 x 13-14 year-old students and a teacher. a 90-minute online session, using the 2 FMSS stories, as part of an AI and ethics workshop "AI Ethics / KI-Ethik", itself part of the workshop programme at the MEEET-Lab (https://www.meeetlab.uzh.ch/en/MEEET-Lab_en.html) @ DSI (Digital Society Initiative) and UB (University Library) of the University of Zurich. The organisers hope to use this first workshop as a starting point and get more people involved over time. They will soon be listing their workshops with University of Zurich's further learning platform. Feedback he got from the organisers: - "thank you so much for your engagement and great input yesterday! Your session was so interesting, well prepared, and it was amazing to see how you got the girls involved in the discussions about really important topics! Your work is worth a lot and I really like the approach. This way of thinking, reflecting and talking about very theoretical topics is a great opportunity to get more and other people involved in discussions that matter to all of us! I learned a lot myself yesterday: Thank you so much and hoping to seeing you again soon!" - "Thank you so much , I think the students really dug into the stories and thought about the topics! We are discussing how we set up the next one and how to get more students or even a group of teachers involved." |
| Year(s) Of Engagement Activity | 2025 |
| URL | https://www.meeetlab.uzh.ch/en/Workshops---THE-MEEET-Lab/AI-and-Ethics.html |
| Description | AI ethics workshop session - S Oram (2025) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Stephen Oram provided a 45-minute online session based on his FMSS work using E-Risk data on 27/01/2025, part of another AI ethics workshop organised by Zurich University for their education outreach programme. 25 participants. |
| Year(s) Of Engagement Activity | 2025 |
| Description | Applied Science Fiction podcast - S Oram (2024) |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Science Fiction Author Stephen Oram shares his insights on the Futures Podcast 22nd June 2024 about collaborating with scientists in the FMSS / E-Risk Study project to transform research into speculative storytelling, using near-future fiction to explore the ethical implications of emerging technology, and leveraging narrative to foster public engagement with science. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://futurespodcast.net/episodes/84-stephen-oram |
| Description | Book Launch with short stories inspired from the FMSS research work |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | launch of Stephen Oram's short stories volume Extracting Humanity (Orchid's Lantern Press) at Burley Fisher Books (https://burleyfisherbooks.com/), which includes the 2 FMSS short stories. The launch involved a reading of "A Mother's Nightmare", and an interview / discussion moderated by Luke Mason (https://burleyfisherbooks.com/products/launch-extracting-humanity-stephen-oram-in-conversation-with-luke-robert-mason-and-dr-christine-aicardi) |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://www.youtube.com/watch?v=DYaNIEX8Eak |
| Description | Generation 2020 - Multidiscplinary Science meeting to present ideas on tracking risks and neurodevelopmental outcomes from the pandemic - 24 April 2024 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talks and workshops of 50+ of mental health researchers, neuroscientists, early career researchers, fund raisers, health and social care professional all discussing methods of tracking neurodevelopmental risks and outcomes related to pandemic and how the technologies we had worked on, funded by the awards related to remote monitoring and automated speech analysis could be utilised in supporting neurodevelopmental research |
| Year(s) Of Engagement Activity | 2024 |
| Description | Inspiring Research talk for BSc Psychology students (Helen Fisher) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Undergraduate students |
| Results and Impact | Helen Fisher provided an Inspiring Research talk for ~200 BSc Psychology students entitled "What we have learned about mental health from studying the lives of twins over three decades" in November 2024 |
| Year(s) Of Engagement Activity | 2024 |
| Description | Inspiring Women podcast - Helen Fisher (2025) |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Professor Helen Fisher speaks with Maria-Christina Vourda (PhD in Psychological Medicine) about her work with longitudinal research studies into young people's mental health, and her motivations to go into mental health research as part of the "Inspiring Women - Professors at the IoPPN" podcast series. |
| Year(s) Of Engagement Activity | 2025 |
| URL | https://open.spotify.com/episode/3Kka9EkKWOMXAgosNMwVAH |
| Description | Interactive session at Greenbelt Festival - S Oram (2024) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Stephen Oram provided an interactive session entitled "AI and You" with William Temple Foundation for 12-17 year-olds based on each FMSS work using E-Risk Study data on Friday 23 August 2024, Greenbelt Festival, 22-25 August 2024, Boughton House. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://www.greenbelt.org.uk/ |
| Description | Invited talk by Dr Nicholas Cummins at a workshop |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | The Potential and Challenges of Using Smartphones Voice Recordings to Monitor Health 2023 Workshop on Automatic Speech Recognition and Understanding, Taipei, December 2023, attended by academic and tech industry researchers. Results were presented from MR/X002721/1 as part of a discussion of the challenges faced in the clinical translation of speech-based health monitoring |
| Year(s) Of Engagement Activity | 2023 |
| URL | http://www.asru2023.org/motion.asp?siteid=1007526&menuid=49644&prodid=189805 |
| Description | Meeting with early career data scientists and clinical academics on setting up a clinical data science lab for young people |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Workshop and Q&A. Delivered a presentation followed by interview and Q&A with audience. Well captured by an early career research attendee in their a blog piece - https://www.mqmentalhealth.org/a-golden-age-for-data-science-the-mq-datamind-meeting-2023/ |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://www.youtube.com/watch?v=IfKhrL0L5S0 |
| Description | Participation in MQ hosted open meeting to support Early Career Researcher interested in data science applications with mental health |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Best captured by a early career researcher who attended the workshop "But of course - data science is more than just crunching numbers and writing (or looking for code). Even on the workshop day, we were introduced to some fantastic examples of how NHS clinical care and research could be transformed by embedding processes, people, and expertise into existing processes (Johnny Downs and Pauline Whelan)" |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://www.mqmentalhealth.org/reflections-on-the-mq-datamind-workshop-and-conference-by-an-early-ca... |
| Description | Patient and Public Engagement Workshop |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | 3 x 2-hours stakeholder workshop with parents of autistic children (n=3) from Autistica and autistic parents (n=3) and Young People's Advisory group (n=4) all focused on the use of automated approaches to recording and coding expressed emotion in research and clinical settings. Multiple areas discussed - privacy/confidentiality, the reliability of the reportee(s) the reliabiloty of data, how it may be interpretated (how will clinicians/social workers interpet the levels of confidence ), how well will it work across ethnic, culturally and neuro-diverse populations what type of actions/behaviours from clinicians would we hope to influence |
| Year(s) Of Engagement Activity | 2023,2024 |
| Description | Presentation & participation in AHRC workshop (Helen Fisher) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Other audiences |
| Results and Impact | Helen Fisher presented on "Can/should we use AI to predict which children are at risk of mental health problems to inform prevention efforts?" and participated in discussions at the AHRC Workshop - Creative Approaches to Young People's Mental Health which took place at the Science Gallery London in September 2024. |
| Year(s) Of Engagement Activity | 2024 |
| Description | Presentation of near future scenarios fiction and reading of book chapters inspired by FMSS research work |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Enabled access to the Digital Twin (DT) Hub Board, Advisory Group and Community Council at an event hosted by Connected Places Catapult. The evening was themed around the launch of the National Cyber-Physical Infrastructure (NCPI) ecosystem - to build cross-sector collaboration for digital twin, robotics and metaverse innovations. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://digitaltwinhub.co.uk/articles/articles/building-momentum-for-a-digital-future-collaborating-... |
| Description | Public event to showcase the youth engagement which took place as part of the AMHDM funding programme. |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | A youth engagement which took place as part of the AMHDM funding programme. Our group had a stall with the near future science fiction short stories displayed on it, We set up a feedback QR code where people could respond to the stories and answer our engagement questions |
| Year(s) Of Engagement Activity | 2025 |
| URL | https://www.eventbrite.co.uk/e/putting-our-heads-together-mental-health-research-with-for-young-peop... |
| Description | SGDP seminar on E-Risk Study (Helen Fisher) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Postgraduate students |
| Results and Impact | Helen Fisher gave an invited talk entitled "E-Risk Longitudinal Twin Study at 30 - what we're learning and future opportunities" at the SGDP Centre departmental seminar, IoPPN, King's College London in December 2024 |
| Year(s) Of Engagement Activity | 2024 |
| Description | Seminar provided to MSc students at KCL |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Postgraduate students |
| Results and Impact | Using our work inspired by the FMSS project, members of the team contributed to a seminar and workshop on "Digital psychiatry - sociology of expectations" for MSc module at King's College Lonoon( 7SSHM623) Social and ethical implications of AI, big data and algorithms. 20+ MSc students attended, and actively contributed to how societal interactions with AI are already shaping the hope/fears for digital applications with psychiatric practice. |
| Year(s) Of Engagement Activity | 2023 |
| Description | Session for MEEET lab University of Zurich - S Oram (2024) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Schools |
| Results and Impact | Stephen Oram on September 25th 2024 ran a 90-minute online session, using the 2 FMSS stories based on E-Risk Study data as part of an AI and ethics workshop "AI Ethics / KI-Ethik", itself part of the workshop programme at the MEEET-Lab (https://www.meeetlab.uzh.ch/en/MEEET-Lab_en.html) @ DSI (Digital Society Initiative) and UB (University Library) of the University of Zurich. It was aimed at a small group of five 13-14 year-old students and a teacher. The organisers hope to use this first workshop as a starting point and get more people involved over time. They will soon be listing their workshops with University of Zurich's further learning platform. Feedback he got from the organisers: - "thank you so much for your engagement and great input yesterday! Your session was so interesting, well prepared, and it was amazing to see how you got the girls involved in the discussions about really important topics! Your work is worth a lot and I really like the approach. This way of thinking, reflecting and talking about very theoretical topics is a great opportunity to get more and other people involved in discussions that matter to all of us! I learned a lot myself yesterday: Thank you so much and hoping to seeing you again soon!" - "Thank you so much Stephen, I think the students really dug into the stories and thought about the topics! We are discussing how we set up the next one and how to get more students or even a group of teachers involved." |
| Year(s) Of Engagement Activity | 2024 |
| Description | Stakeholder workshop at the Science Gallery London with a group of Young Carers from Carers' Hub Lambeth, |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Stakeholder workshop at the Science Gallery London with a group of Young Carers from Carers' Hub Lambeth, 8 YPs participated, age 13-19, all in middle or high school. Young carers reviewed the purpose and process of the research work, which prompted many important questions and discussions such as How would being predicted mental health issues help me? How is the project useful to society? Are there other ways of doing it? If it works and is deployed, would the outcomes for any one child / young person be attached to their public profile? What if this information were made public? For clinicians, having easy access to all this data is a no-brainer. But what does it mean for many/more people to have access to this information? Would they be able to link it to a public profile? Could it become a liability to have data about you and your mental health existing on record, in the society we live in? |
| Year(s) Of Engagement Activity | 2023 |
| Description | Stall at Putting Our Heads Together - S Oram & Z Firth (2025) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | Stephen Oram and Zoe Firth ran an interactive stall with the FMSS stories on it (based on E-Risk Study data), and a QR code where people could respond to the stories and answer our engagement questions at the Putting Our Heads Together: Mental Health Research with & For Young People event at the Science Gallery London on 21st February 2025. |
| Year(s) Of Engagement Activity | 2025 |
| URL | https://www.eventbrite.co.uk/e/putting-our-heads-together-mental-health-research-with-for-young-peop... |
| Description | Talk & poster presentation AMHDM Networking & Knowledge Sharing event - J Downs & Z Firth (2024) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | The FMSS team attended the AMHDM Networking and Knowledge Sharing Conference, November 2024; Birmingham, UK. Johnny gave an oral presentation and Zoë presented a poster on the automating expressed emotion project using E-Risk Study data. This multidisciplinary event was attended by researchers, funders, charities, patients etc. |
| Year(s) Of Engagement Activity | 2024 |
| Description | Talk at 82nd World Science Fiction Convention - S Oram (2024) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Stephen Oram gave an invited presentation "Applied Science Fiction: the Who, What, Why and How" discussing his FMSS work using E-Risk data on Sunday 11 August 2024, 19.00-20.00, Glasgow 2024 A Worldcon for Our Futures, 82nd World Science Fiction Convention. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://glasgow2024.org/ |
| Description | Talk at CLOSER event - A Wickersham & Z Firth (2024) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Zoë and Alice gave a talk about the epidemiological EE and mental health work and PPI aspects of our project on automating expressed emotion using E-Risk Study data at the CLOSER: Bridging Research and Policy: Unleashing the potential of longitudinal research for societal impact, September 18 2024; London, UK |
| Year(s) Of Engagement Activity | 2024 |
| Description | Talk at Hawkesbury Upton Literature Festival - S Oram (2024) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Public/other audiences |
| Results and Impact | Stephen Oram mentioned the example of his work on FMSS using E-Risk data at the Hawkesbury Upton Literature Festival 27 April 2024. 30 minute talk on Sense of Place and Applied Science Fiction. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://hulitfest.com/ |
| Description | Talk at Mental Health in Emerging Adulthood National Conference - Z Firth (2024) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Zoë gave a talk about the PPI aspects of our project on automating expressed emotion using E-Risk Study data at the Mental Health in Emerging Adulthood National Conference, September 23 2024; Oxford, UK |
| Year(s) Of Engagement Activity | 2024 |
| Description | Talk at Speaking Across Lines event - Z Firth (2024) |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Zoë gave a talk about the interdisciplinary aspects of our project on automating expressed emotion using E-Risk Study data at the Speaking Across Lines: An ECR Symposium on Diverse Ways of Collaborative Working in Interdisciplinary Adolescent Mental Health Research, October 28 2024; London, UK |
| Year(s) Of Engagement Activity | 2024 |
| Description | Wellcome Photography Prize 2025 panel (Helen Fisher) |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Helen Fisher was an invited panel member for the Wellcome Photography Prize 2025 which celebrates compelling imagery that captures stories of health, science and human experience. The 25 images that Helen helped to select will be exhibited at the Francis Crick Institute in July 2025 and shared across the globe through social media and the Wellcome's website. |
| Year(s) Of Engagement Activity | 2025 |
| URL | https://wellcome.org/our-work/wellcome-photography-prize |
| Description | Workshop based at Goethe-Institut Indonesien on Digital Discources 2023 as part of an annual cultural exchange conferernce |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Stephen Oram - the writer embedded with the FMSS team ran a workshop with 50+ international delegates, ranging from creative writing and scientific disciplines, on how speculative fiction, as demonstrated by work with us on the potential application of the FMSS work, can enable the general public better means to understand and consider the ethical issues around how science and technology might be used to shape their future. |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://guide.conversation2023.org.uk/people/M0337 |
