Hypermobility and autonomic hyperactivity: Relevance for the expression of psychiatric symptoms
Lead Research Organisation:
University of Sussex
Department Name: Brighton and Sussex Medical School
Abstract
Our body state influences the way we feel and react to things around us. Pain or hunger can influence our mood, but so too can our state of arousal. Strong emotions such as anxiety and panic are made more intense by the feeling of our heart racing. The way in which people differ physically can affect how much their body reacts and this can influence how likely they are to experience anxiety symptoms. Some of these differences run in families, such as having flexible 'hypermobile' joints (double-jointed) or a tendency to faint at the sight of blood. More people who are double-jointed or who faint experience problems with anxiety or panic than you would expect by chance. Knowing how and why this is the case is important as it may improve ways of treating anxiety and other symptoms, and help doctors pick the right medicines to avoid side effects.
My project will study people attending mental health clinics, to see using questionnaires, how many people may have hypermobile joints, a related condition called PoTS (in which a person's heart race when he/she stands up), or a tendency to faint. I will also see if having these conditions is associated with particular types of mental health symptoms (e.g. anxiety). I will then test a sample of these people to look in more detail at the patterns of bodily response, how aware the people are of these responses, and how this might in some cases lead to anxiety. Lastly, I will use brain scans to show exactly how the brain is responsible for anxiety and other abnormal feelings in people with hypermobile joints. I have already shown that a region involved in fear (called the amygdala) is different in size between people with and without flexible joints. I want to continue working on this and look in the hypermobile patients at the way in which this brain region responds during mildly threatening situations. This will help us understand more why some people develop anxiety disorders. By measuring how the amygdala works together with parts of the brain controlling feelings and arousal, I hope to discover more about which medications or treatments may work best for particular people. Together this important body of work will provide me with a good scientific training in brain-body medicine brain scanning and psychiatry research. This research will be undertaken at the Clinical Imaging Sciences Unit at the University of Sussex within a team of neuroscientists who specialize in brain imaging and the relationship between nerves and the body. Patients will be recruited from Sussex Partnership NHS Foundation Trust.
My project will study people attending mental health clinics, to see using questionnaires, how many people may have hypermobile joints, a related condition called PoTS (in which a person's heart race when he/she stands up), or a tendency to faint. I will also see if having these conditions is associated with particular types of mental health symptoms (e.g. anxiety). I will then test a sample of these people to look in more detail at the patterns of bodily response, how aware the people are of these responses, and how this might in some cases lead to anxiety. Lastly, I will use brain scans to show exactly how the brain is responsible for anxiety and other abnormal feelings in people with hypermobile joints. I have already shown that a region involved in fear (called the amygdala) is different in size between people with and without flexible joints. I want to continue working on this and look in the hypermobile patients at the way in which this brain region responds during mildly threatening situations. This will help us understand more why some people develop anxiety disorders. By measuring how the amygdala works together with parts of the brain controlling feelings and arousal, I hope to discover more about which medications or treatments may work best for particular people. Together this important body of work will provide me with a good scientific training in brain-body medicine brain scanning and psychiatry research. This research will be undertaken at the Clinical Imaging Sciences Unit at the University of Sussex within a team of neuroscientists who specialize in brain imaging and the relationship between nerves and the body. Patients will be recruited from Sussex Partnership NHS Foundation Trust.
Technical Summary
This proposal aims to test how common constitutional differences in bodily physiology (namely joint hypermobility, postural tachycardia syndrome (PoTs) and vasovagal syncope (VVS) are linked to the clinical expression of psychiatric symptoms, notably anxiety.
Key aims:
1. To determine the representation of joint hypermobility and autonomic symptoms (PoTs, VVS) amongst psychiatric clinical groups by survey.
2. To further characterize subjects in terms of autonomic function, symptom expression and responses to medication and thus determine if the profile of psychiatric symptoms differ by autonomic profile - e.g. cardiovascular reactivity (heart rate variability, response to orthostatic challenge) and interoceptive sensitivity.
3. To determine if such constitutional/autonomic differences are related to concepts of self representation e.g. differential susceptibility to rubber hand illusion (Tsakiris et al, 2011), response to false bio-feedback (Gray et al, 2009) and performance in anxiety induction experiments (Kalisch et al, 2005)
4. Use findings of above to characterize patterns of vulnerability and resilience to psychiatric symptoms and differential responses to medication to inform better treatments and selection of medication.
In order to acheive these objectives three linked studies will be undertaken:
A) Study 1 (Year 1): survey of 400 psychiatric patients to establish relevance of joint hypermobility and autonomic symptoms (PoTs, VVS) to clinical psychopathology and identify / recruit participants for the mechanistic psychophysiology and imaging studies.
B) Study 2 (Years 1-2): A psychophysiological and behavioural charecterization of hypermobility, PoTs and VVS. Autonomic study of individuals identified above (estimated to be approx 100).
C) Study 3 (Years 2-3): A neuroimaging study of the relationship between hypermobility and clinical anxiety with specific focus on amygdala, autonomic reactivity and interoceptive awareness in 80 individuals.
Key aims:
1. To determine the representation of joint hypermobility and autonomic symptoms (PoTs, VVS) amongst psychiatric clinical groups by survey.
2. To further characterize subjects in terms of autonomic function, symptom expression and responses to medication and thus determine if the profile of psychiatric symptoms differ by autonomic profile - e.g. cardiovascular reactivity (heart rate variability, response to orthostatic challenge) and interoceptive sensitivity.
3. To determine if such constitutional/autonomic differences are related to concepts of self representation e.g. differential susceptibility to rubber hand illusion (Tsakiris et al, 2011), response to false bio-feedback (Gray et al, 2009) and performance in anxiety induction experiments (Kalisch et al, 2005)
4. Use findings of above to characterize patterns of vulnerability and resilience to psychiatric symptoms and differential responses to medication to inform better treatments and selection of medication.
In order to acheive these objectives three linked studies will be undertaken:
A) Study 1 (Year 1): survey of 400 psychiatric patients to establish relevance of joint hypermobility and autonomic symptoms (PoTs, VVS) to clinical psychopathology and identify / recruit participants for the mechanistic psychophysiology and imaging studies.
B) Study 2 (Years 1-2): A psychophysiological and behavioural charecterization of hypermobility, PoTs and VVS. Autonomic study of individuals identified above (estimated to be approx 100).
C) Study 3 (Years 2-3): A neuroimaging study of the relationship between hypermobility and clinical anxiety with specific focus on amygdala, autonomic reactivity and interoceptive awareness in 80 individuals.
Planned Impact
The recognition of constitutional and physiological vulnerabilities to psychological symptoms may mitigate the development of mental illness, inform new approaches to intervention and promote well-being, with associated benefits to health, the economy and quality of life. It has the capacity to promote better awareness and understanding of anxiety in research and clinical settings and in the public domain and encourage better access to care. The results of this cross-disciplinary project have the potential for far reaching impact in advancing understanding and treatment in the fields of psychiatry, neuroscience and psychological medicine and will have direct clinical relevance to service users. It will expand our knowledge of the interaction between brain and body in one of the most common and debilitating mental illnesses (anxiety) and encourage further research in the area. It will also increase understanding of one of the most common but poorly understood rheumatological conditions, joint hypermobility.
The potential beneficiaries of this research include patients, their carers, physicians and psychiatrists and ultimately the general public. It will also be particularly relevant to physicians treating medically unexplained symptoms. In the short term (during and within one to two years of the completion of the fellowship) this will help enhanced understanding of how certain bodily states interact in mental illness and the identification of previously unrecognized individual differences that predispose to psychiatric symptoms such as anxiety. This will lead to enhanced, individualized treatment plans including selection of medication and behavioural and psychological therapies. Previous work within our research department has fuelled a proposal to develop a department of psychological medicine in partnership with both the mental and physical health trust, which should have direct impact on both service users and clinicians across a range of disciplines. This work speaks directly to that.
The MRC states that 'the brain is the most complex and least understood organ in the human body,' and has identified mental health as one of its key research themes in its 2010 strategic aims. This project will not only accelerate research into anxiety disorders, but also provide the possibility of effective, individualized treatment, one of the Department of Health key aims in its paper 'No health without mental health.' This paper estimates the annual cost of anxiety disorder at £8.9 billion. In 'Pathways to impact' I set out how I propose to maximize the impact of this project during the lifetime of the grant.
The potential beneficiaries of this research include patients, their carers, physicians and psychiatrists and ultimately the general public. It will also be particularly relevant to physicians treating medically unexplained symptoms. In the short term (during and within one to two years of the completion of the fellowship) this will help enhanced understanding of how certain bodily states interact in mental illness and the identification of previously unrecognized individual differences that predispose to psychiatric symptoms such as anxiety. This will lead to enhanced, individualized treatment plans including selection of medication and behavioural and psychological therapies. Previous work within our research department has fuelled a proposal to develop a department of psychological medicine in partnership with both the mental and physical health trust, which should have direct impact on both service users and clinicians across a range of disciplines. This work speaks directly to that.
The MRC states that 'the brain is the most complex and least understood organ in the human body,' and has identified mental health as one of its key research themes in its 2010 strategic aims. This project will not only accelerate research into anxiety disorders, but also provide the possibility of effective, individualized treatment, one of the Department of Health key aims in its paper 'No health without mental health.' This paper estimates the annual cost of anxiety disorder at £8.9 billion. In 'Pathways to impact' I set out how I propose to maximize the impact of this project during the lifetime of the grant.
Organisations
- University of Sussex (Fellow, Lead Research Organisation)
- Universidade de São Paulo (Collaboration)
- University of Sussex (Collaboration)
- Brighton and Sussex University Hospitals NHS Trust (Collaboration)
- University College London (Collaboration)
- Cardiff University (Collaboration)
- Johns Hopkins University (Collaboration)
- KING'S COLLEGE LONDON (Collaboration)
Publications
Eccles J
(2017)
20 Dissociative experiences in patients with fibromyalgia are mediated by symptoms of autonomic dysfunction
in Journal of Neurology, Neurosurgery & Psychiatry
Basavakumar D
(2019)
Accuracy, completeness and accessibility of online information on fibromyalgia.
in Rheumatology international
Eccles JA
(2021)
Beyond bones: The relevance of variants of connective tissue (hypermobility) to fibromyalgia, ME/CFS and controversies surrounding diagnostic classification: an observational study.
in Clinical medicine (London, England)
Eccles JA
(2012)
Brain structure and joint hypermobility: relevance to the expression of psychiatric symptoms.
in The British journal of psychiatry : the journal of mental science
Critchley HD
(2023)
Cardiac interoception in patients accessing secondary mental health services: A transdiagnostic study.
in Autonomic neuroscience : basic & clinical
Eccles J
(2013)
CENTRAL EXPRESSION OF ABNORMAL AND UNEXPLAINED SKIN SENSATIONS
in Journal of Neurology, Neurosurgery & Psychiatry
Sharp HEC
(2021)
Connecting brain and body: Transdiagnostic relevance of connective tissue variants to neuropsychiatric symptom expression.
in World journal of psychiatry
Eccles J
(2013)
Imaging abnormal skin sensations: a novel functional MRI study
in The Lancet
Critchley HD
(2013)
Interaction between cognition, emotion, and the autonomic nervous system.
in Handbook of clinical neurology
Eccles J
(2016)
Joint hypermobility and autonomic hyperactivity: an autonomic and functional neuroimaging study
in The Lancet
Eccles J
(2014)
JOINT HYPERMOBILITY AND AUTONOMIC HYPERACTIVITY: RELEVANCE TO NEURODEVELOPMENTAL DISORDERS
in Journal of Neurology, Neurosurgery & Psychiatry
Csecs J
(2022)
Joint Hypermobility Links Neurodivergence to Dysautonomia and Pain
in Frontiers in Psychiatry
Mallorquí-Bagué N
(2014)
Neuroimaging and psychophysiological investigation of the link between anxiety, enhanced affective reactivity and interoception in people with joint hypermobility.
in Frontiers in psychology
Eccles JA
(2015)
Neurovisceral phenotypes in the expression of psychiatric symptoms.
in Frontiers in neuroscience
McDonald A
(2020)
Online psychotherapy: trailblazing digital healthcare.
in BJPsych bulletin
Eccles J
(2012)
Pre-treatment waking cortisol response and vulnerability to interferon a induced depression.
in European neuropsychopharmacology : the journal of the European College of Neuropsychopharmacology
Whale R
(2015)
Psychomotor retardation and vulnerability to interferon alpha induced major depressive disorder: Prospective study of a chronic hepatitis C cohort.
in Journal of psychosomatic research
Eccles JA
(2015)
Sensations of skin infestation linked to abnormal frontolimbic brain reactivity and differences in self-representation.
in Neuropsychologia
Rae CL
(2018)
Subjective embodiment during the rubber hand illusion predicts severity of premonitory sensations and tics in Tourette Syndrome.
in Consciousness and cognition
Eccles JA
(2021)
The challenges of chronic pain and fatigue.
in Clinical medicine (London, England)
Garfinkel SN
(2015)
The Heart, the Brain, and the Regulation of Emotion.
in JAMA psychiatry
Csecs J
(2021)
Variant connective tissue (joint hypermobility) and dysautonomia are associated with multimorbidity at the intersection between physical and psychological health
in American Journal of Medical Genetics Part C: Seminars in Medical Genetics
Description | Action for ME PhD Studentships |
Amount | £45,000 (GBP) |
Organisation | Action for M.E. |
Sector | Charity/Non Profit |
Country | United Kingdom |
Start | 05/2018 |
End | 06/2021 |
Description | Arthritis Research UK programme grant |
Amount | £250,000 (GBP) |
Funding ID | 21194 |
Organisation | Versus Arthritis |
Sector | Charity/Non Profit |
Country | United Kingdom |
Start | 03/2016 |
End | 04/2019 |
Description | CISC Pilot funding |
Amount | £4,080 (GBP) |
Organisation | University of Sussex |
Department | Brighton and Sussex Medical School |
Sector | Academic/University |
Country | United Kingdom |
Start | 05/2011 |
End | 06/2013 |
Description | EM-BODY: Interoceptive mechanisms of emotion in mental health treatment |
Amount | £4,200,000 (GBP) |
Organisation | Wellcome Trust |
Sector | Charity/Non Profit |
Country | United Kingdom |
Start | 08/2023 |
End | 09/2030 |
Description | MQ Fellows Award |
Amount | £225,000 (GBP) |
Organisation | MQ Mental Health Research |
Sector | Charity/Non Profit |
Country | United Kingdom |
Start | 04/2018 |
End | 05/2021 |
Description | Medical Research Council Clinical Research Training Fellowship |
Amount | £177,000 (GBP) |
Funding ID | MR/K002643/1 |
Organisation | Medical Research Council (MRC) |
Sector | Public |
Country | United Kingdom |
Start | 08/2012 |
End | 09/2015 |
Description | Sackler Centre for Consciousness Science |
Amount | £3,400 (GBP) |
Organisation | Dr Mortimer and Theresa Sackler Foundation |
Sector | Charity/Non Profit |
Country | United Kingdom |
Start | 05/2013 |
End | 06/2014 |
Description | Starter Grants for Clinical Lecturers |
Amount | £30,000 (GBP) |
Organisation | Academy of Medical Sciences (AMS) |
Sector | Charity/Non Profit |
Country | United Kingdom |
Start | 02/2017 |
End | 08/2018 |
Description | Supporting Mechanisms of Chronic Pain and Fatigue |
Amount | £18,000 (GBP) |
Organisation | Fibroduck Foundation |
Sector | Charity/Non Profit |
Country | United Kingdom |
Start | 03/2019 |
End | 09/2020 |
Description | Travel Bursary |
Amount | £400 (GBP) |
Organisation | Royal College of Psychiatrists |
Sector | Charity/Non Profit |
Country | United Kingdom |
Start | 04/2013 |
End | 06/2013 |
Description | Young Investigator Colloquim |
Amount | $1,000 (USD) |
Organisation | American Psychosomatic Society |
Sector | Charity/Non Profit |
Country | United States |
Start | 03/2013 |
End | 03/2014 |
Description | Autonomic Unit |
Organisation | University College London |
Department | Autonomic Neuroscience Centre |
Country | United Kingdom |
Sector | Academic/University |
PI Contribution | We have given training on psychiatric aspects of joint hypermobility |
Collaborator Contribution | Training in autonomic function tests. Provision of tool to measure symptoms of autonomic dysfunction. Access to autonomic data in a cohort of healthy volunteers to compare with our data collected in a psychiatric group |
Impact | 2 abstracts submitted to conferences. One paper in draft. |
Start Year | 2013 |
Description | Collaboration for Brain Fog Proposal |
Organisation | Cardiff University |
Department | Brain Research Imaging Centre (CUBRIC) |
Country | United Kingdom |
Sector | Academic/University |
PI Contribution | Collaboration to submit grant proposal to Dysautonomia International to investigate neural mechanisms of Brain Fog |
Collaborator Contribution | Expertise in Imaging and POTS |
Impact | Application for grant funding (Dysautonomia International) now in Final Stage ($100,000 USD). Outcome should be known April 2018 |
Start Year | 2017 |
Description | Collaboration for Brain Fog Proposal |
Organisation | Johns Hopkins University |
Department | School of Medicine Johns Hopkins |
Country | United States |
Sector | Academic/University |
PI Contribution | Collaboration to submit grant proposal to Dysautonomia International to investigate neural mechanisms of Brain Fog |
Collaborator Contribution | Expertise in Imaging and POTS |
Impact | Application for grant funding (Dysautonomia International) now in Final Stage ($100,000 USD). Outcome should be known April 2018 |
Start Year | 2017 |
Description | Collaboration for Brain Fog Proposal |
Organisation | University of Sussex |
Department | Brighton and Sussex Medical School |
Country | United Kingdom |
Sector | Academic/University |
PI Contribution | Collaboration to submit grant proposal to Dysautonomia International to investigate neural mechanisms of Brain Fog |
Collaborator Contribution | Expertise in Imaging and POTS |
Impact | Application for grant funding (Dysautonomia International) now in Final Stage ($100,000 USD). Outcome should be known April 2018 |
Start Year | 2017 |
Description | Collaboration for Guarantor of Brain Fellowship award and possible NIHR RRPB Award |
Organisation | University of Sussex |
Department | Brighton and Sussex Medical School |
Country | United Kingdom |
Sector | Academic/University |
PI Contribution | I am sponsporing a post-doctoral fellow apply to do neuroimaging work that that will characterise the contribution of variant connective tissue to neurodiversity in those who experience pain and fatigue |
Collaborator Contribution | Preparation of Grant Proposal |
Impact | Multi-disciplinary: Neuroscience, imaging, rheumatology, psychophysiology, autonomics, neurology |
Start Year | 2019 |
Description | IoPPN for ALSPAC data |
Organisation | Universidade de São Paulo |
Department | Institute of Psychiatry |
Country | Brazil |
Sector | Academic/University |
PI Contribution | Access to data |
Collaborator Contribution | expertise |
Impact | no outcomes yet |
Start Year | 2015 |
Description | Long COVID - collaboration with Covid Symptom Survey Biobank |
Organisation | King's College London |
Country | United Kingdom |
Sector | Academic/University |
PI Contribution | Included hypermobility as a inidicator in a COVID biobank |
Collaborator Contribution | Preparation of paper to high impact journal |
Impact | Draft of paper for consideration in high impact journal |
Start Year | 2022 |
Description | MRC/AHRC/ESRC Developing Mind Grant Proposal |
Organisation | University of Sussex |
Department | Brighton and Sussex Medical School |
Country | United Kingdom |
Sector | Academic/University |
PI Contribution | I am leading on formulating and developing a bid for a significant grant, based on previous work |
Collaborator Contribution | Peadiatrics and Child and Adolescent Psychiatry Child Development Art science collaborations related to digital environment |
Impact | Preparation of submission of grant application (£4M) |
Start Year | 2020 |
Description | NAAT 2012 Reported_Colloboration discussion |
Organisation | University College London |
Department | Institute of Neurology |
Country | United Kingdom |
Sector | Academic/University |
PI Contribution | Application for succesful grant |
Collaborator Contribution | Application for successful grant |
Impact | Co-applications for funding,Successful co-applications for funding |
Start Year | 2012 |
Description | Rheumatology |
Organisation | Brighton and Sussex University Hospitals NHS Trust |
Country | United Kingdom |
Sector | Public |
PI Contribution | We have bought skills and protocol and equipment |
Collaborator Contribution | they have provided research nurses and equipment and access to patients |
Impact | no outputs yet outcome has facilitated testing and recruitment |
Start Year | 2014 |
Title | Novel non-drug treatment for reducing anxiety in hypermobility |
Description | Funded by MQ/Versus Arthritis. This novel non drug treatment uses interoceptive training and cognitive behavioural approaches to reduce anxiety in hypermobility. It has been successfully piloted and is currently part of a full RCT |
Type | Therapeutic Intervention - Psychological/Behavioural |
Current Stage Of Development | Early clinical assessment |
Year Development Stage Completed | 2021 |
Development Status | Under active development/distribution |
Clinical Trial? | Yes |
Impact | Sucessful piloting, now under RCT. Has significant potential impact for precision medicine, given high prevalence of hypermobility and anxiety. Has been made COVID secure and is able to be delivered remotely |
URL | https://www.isrctn.com/ISRCTN17018615 |
Description | AMS Youtube Video Anxiety and Hypermobility |
Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | The AMS interviewed me on my work and this was published on Youtube. It has received over 800 views internationally and has sparked several email conversations |
Year(s) Of Engagement Activity | 2017 |
URL | https://www.youtube.com/watch?v=Mjo7rdAv5ps |
Description | Approved Mental Health Practioner training |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Professional Practitioners |
Results and Impact | Delivering Approved Mental Health Practice training |
Year(s) Of Engagement Activity | 2023 |
Description | Attending Versus Arthritis Fatigue Workshop |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | I attended the Versus Arthritis/Kennedy Trust Workshop on developing priorities for researching fatigue |
Year(s) Of Engagement Activity | 2019 |
Description | Attending talk at Basingstoke PATOSS |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | Talk at Basingstoke PATOSS about hypermobility and impact on education |
Year(s) Of Engagement Activity | 2022 |
Description | BBC Radio Sussex Interview |
Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | I took part in an interview on BBC Radio Sussex about the impact of ME/CFS and Fibromyalgia and discussed our future study. I received over 50 emails expressing interest in taking part as a consequence |
Year(s) Of Engagement Activity | 2017 |
Description | BSMS 10 |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Type Of Presentation | Keynote/Invited Speaker |
Geographic Reach | Regional |
Primary Audience | Other academic audiences (collaborators, peers etc.) |
Results and Impact | I gave a talk to 100 academics to celebrate 10 years of research at BSMS Prompted collaboration from other disciplines. Invited to give talk an an international conference |
Year(s) Of Engagement Activity | 2013 |
Description | Being chosen as an Academy of Medical Sciences Starter Grant Case Study |
Form Of Engagement Activity | A magazine, newsletter or online publication |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | I was showcased by the AMS in history of the starter grant award as one of five award holders |
Year(s) Of Engagement Activity | 2019 |
URL | https://acmedsci.ac.uk/file-download/6726055 |
Description | Bendy Bodies Podcast |
Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Patients, carers and/or patient groups |
Results and Impact | Bendybodies Podcast. I recorded a follow up podcast related to recent publication on hypermobility and neurodivergence. This was the most listened to podcast in the series, and has result in siginifcant interest in the work and invitations to speak at conferences |
Year(s) Of Engagement Activity | 2022 |
URL | https://podcasts.apple.com/nz/podcast/47-exploring-the-link-between-joint-hypermobility/id1500589216... |
Description | Brain Fog talk at POTS UK Long COVID conference |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | I gave a talk at POTS UK Long Covid Conference for practitioners on Brain Fog. This was very popular and sparked lots of questions. It led to a significant collaboration with Kings College London (Covid Symptom Survey BioBank) |
Year(s) Of Engagement Activity | 2022 |
URL | https://www.youtube.com/watch?v=J8GmtNwZJCY |
Description | Brain and body seminar |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Patients, carers and/or patient groups |
Results and Impact | I gave a talk on my research to approx 100 patients/carers and clinicians - sparked debate and prompted questions |
Year(s) Of Engagement Activity | 2017 |
Description | Chairing a Lived Experience Advisory Panel |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Patients, carers and/or patient groups |
Results and Impact | Led a PPI group to explore ideas related to co-produced grant submissions |
Year(s) Of Engagement Activity | 2019 |
Description | Challenging stereotypes: Novel perspectives on autism |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | I participated in an online symposium on novel perspectives on autism, featuring research on hypermobility and neurodiversity. It has been viewed over a 1000 times |
Year(s) Of Engagement Activity | 2020 |
URL | https://www.bsms.ac.uk/research/neuroscience/challenging-stereotypes-novel-perspectives-on-autism.as... |
Description | Creating a video to explain a paper |
Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | holding |
Year(s) Of Engagement Activity | 2022 |
URL | https://www.youtube.com/watch?v=xs9PCFOYtEo&t=2s |
Description | Creation of a research Twitter Feed @BendyBrain |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Patients, carers and/or patient groups |
Results and Impact | I have established a twitter feed relating to my research. This has prompted lots of followers and allowed me to engage with patients, public and their carers It has received acclaim from fellow researchers https://twitter.com/DrEReinhold/status/1193862605271654400 and has allowed participants in studies to express how they have been helped by participating in research https://twitter.com/BendyBrain/status/1186687104635592709 |
Year(s) Of Engagement Activity | 2018,2019,2020 |
URL | https://twitter.com/BendyBrain |
Description | EDS ECHO Summit meeting |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | Presenting at talk at EDS ECHO Summit meeting |
Year(s) Of Engagement Activity | 2023 |
URL | https://www.ehlers-danlos.com/echo |
Description | EDS UK conference |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Participants in your research and patient groups |
Results and Impact | Talk sparked questions and discussion afterwards including email correspondence Research participants recruited, email correspondence |
Year(s) Of Engagement Activity | 2014 |
Description | EDS article |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Type Of Presentation | Keynote/Invited Speaker |
Geographic Reach | International |
Primary Audience | Participants in your research and patient groups |
Results and Impact | This article was published in the EDS newsletter and online Prompted contact from many interested patients |
Year(s) Of Engagement Activity | 2013 |
Description | HMSA article |
Form Of Engagement Activity | A magazine, newsletter or online publication |
Part Of Official Scheme? | No |
Type Of Presentation | Keynote/Invited Speaker |
Geographic Reach | National |
Primary Audience | Participants in your research and patient groups |
Results and Impact | I wrote an article for the HMSA newsletter. This prompted contact from interested academic collaborators and also from patients |
Year(s) Of Engagement Activity | 2013 |
Description | Hypermobility Syndromes Association Talk |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Type Of Presentation | Keynote/Invited Speaker |
Geographic Reach | National |
Primary Audience | Participants in your research and patient groups |
Results and Impact | I gave an invited presentation to the Hypermobility Syndrome Association annual member resedential. There were around 200 members (patients and interested professionals in attendance). Increased awareness of psychiatric manifestions of joint hypermobility. Asked to prepare an article for patient newsletter. Patients have contacted me to see if they can be involved in further research. |
Year(s) Of Engagement Activity | 2012 |
Description | Hypermobility and autonomic dysfunction: insights from bench to bedside, presented British Neuropsychiatric Association, London, March |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | presentation on relationship between anxiety and hypermobility and novel treatment targets. This talk was one of the most highly rated of the conference |
Year(s) Of Engagement Activity | 2019 |
Description | IADMS Conference Ohio (International Association for Dance Medicine and Science) |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | Talk at IADMS Conference Ohio (International Association for Dance Medicine and Science) |
Year(s) Of Engagement Activity | 2023 |
URL | https://iadms.org/meetings-events/# |
Description | Inside Health, Radio 4 - segment on hypermobility and neurodiversity |
Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Radio 4 Inside Health interview - this received tremendous feedback from general public and multiple requests for further enngagement/involvment/interviews. This was to discuss findings from a paper 'Joint hypermoiblity links neurodivergence to dysautonomia and pain' |
Year(s) Of Engagement Activity | 2022 |
URL | https://www.bbc.co.uk/sounds/play/m00199ym |
Description | Interview for BBC Radio 4 All in The Mind |
Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | I gave an interview for BBC4 Radio All in the Mind. This generated further media enquiries and 100s of emails for people around the world who felt that it had engaged them or made sense of their conditions |
Year(s) Of Engagement Activity | 2020 |
URL | https://www.bbc.co.uk/programmes/m000q8z7 |
Description | Interview for BBC World Service Health Check |
Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | I gave an interview to the BBC World Service on hypermobility and anxiety. This prompted lots of requests for further informaiton, participation in studies and collaborations |
Year(s) Of Engagement Activity | 2020 |
Description | Interview with Cabinet Office to Promote Science Week |
Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | I gave an interview as requested by the Cabinet Office to highlight the importance of science |
Year(s) Of Engagement Activity | 2020 |
URL | https://twitter.com/LisaQuadt/status/1237522629319258112 |
Description | IoN talk |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Type Of Presentation | Keynote/Invited Speaker |
Geographic Reach | Local |
Primary Audience | Other academic audiences (collaborators, peers etc.) |
Results and Impact | I gave a talk to about 25 academic peers/clinicans who are based in my collaborator's group. Strengthened collaboration |
Year(s) Of Engagement Activity | 2013 |
Description | It can't just be me podcast |
Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | It can't just be me podcast with Anna Richardson about ADHD - wide reaching with many queries for further talks/collaborations |
Year(s) Of Engagement Activity | 2023 |
URL | https://itcantjustbeme.co.uk/person/jessica-eccles |
Description | Joint Hypermobility: Relevance of Nuerodevelopmental conditions: presented EDS Congres, Paris, March |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | I gave a talk on the relationship between hypermobility and neurodevelopmental conditions to an international audience |
Year(s) Of Engagement Activity | 2018 |
Description | Joint hypermobility and its relevance to common mental illness in adolescents: a population-based longitudinal study European Association of Psychosomatic Medicine, Verona, June |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | i gave a talk on the relationship between hypermobility in adolescence and subsequent mental illness |
Year(s) Of Engagement Activity | 2018 |
Description | London and SE Hypermobility Club |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Type Of Presentation | Keynote/Invited Speaker |
Geographic Reach | Regional |
Primary Audience | Health professionals |
Results and Impact | 100 professionals who work in fields related to hypermobility attended my talk, which sparked questions and discussions after. Met with potential collaborators. Asked to write an article for the Ehlers Danlos support group |
Year(s) Of Engagement Activity | 2012 |
Description | MQ Webinar on Neurodiversity for Deutsche Bank |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Supporters |
Results and Impact | MQ Webinar to Deutsche Bank about neurodiversity |
Year(s) Of Engagement Activity | 2022 |
Description | Medical School Teaching - Chronic Pain Syndromes in Rheumatology |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Undergraduate students |
Results and Impact | I teach 4th year undergrate medical students on chronic pain conditions - this is often their only formal exposure to the conditions of joint hypermobility and fibromyalgia whilst undergraduates. This workshop happens each rotation (approx 20 students per rotation, 6 rotations). It is co-delivered with an occupational therapist. It sparks considerable debate and interest |
Year(s) Of Engagement Activity | 2017,2018 |
Description | Medical School Teaching on Chronic Pain |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Undergraduate students |
Results and Impact | I give an interactive workshop for medical undergraduates on chronic pain, |
Year(s) Of Engagement Activity | 2020 |
Description | Pain and Fatigue Public Awareness Event |
Form Of Engagement Activity | Participation in an open day or visit at my research institution |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Public/other audiences |
Results and Impact | This was an afternoon public engagement day organised by Jessica Eccles at BSMS. This guided patient and public involvement activities for future grant applications |
Year(s) Of Engagement Activity | 2023 |
Description | Panel to discuss possiblity of Integrated Liaision Psychiatric Services across Physical Health Settings |
Form Of Engagement Activity | A formal working group, expert panel or dialogue |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Policymakers/politicians |
Results and Impact | I was asked to present the case for integrated mental and physical health care to the CCG after previosuly discussing with the STP |
Year(s) Of Engagement Activity | 2019 |
Description | Participating in an event to celebrate Women in Science at Clarence House hosted by Versus Arthritis |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | I attended an event celebrating women in science at Clarence House. My work was profiled by Versus Arthritis and I was able to network |
Year(s) Of Engagement Activity | 2020 |
Description | Poster on autonomic dysfunction and dissociative experiences at APS Conference 2017 |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | I presented a poster on the relationship between autonomic dysfunction and dissociation to American Psychosomatic Medicine Society to approx 350 audience members. This sparked debate and questions |
Year(s) Of Engagement Activity | 2017 |
Description | Poster on heart rate and psychopathology at APS Conference 2017 |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | I presented work on the relationship between autonomic function and subsequent psychopathology in adolescence to a conference of approx 350 attendees. This sparked discussion and depbate |
Year(s) Of Engagement Activity | 2017 |
Description | Poster on structural brain correlates of hypermobility to European Psychiatric Association |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | I presented a poster on strucutral brain correlates of hypermobility at EPA 2017 to a total audience of approx 500. This sparked questions and debate |
Year(s) Of Engagement Activity | 2017 |
Description | Presentation at APS |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | Presentation at American Psychosomatic Medicine Society |
Year(s) Of Engagement Activity | 2022 |
URL | https://psychosomatic.org/2022-annual-meeting/ |
Description | Presentation at British Society of Rheumatology Annual Meeting |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | I gave a talk that was very well received about autonomic dysfunction in hypermobility |
Year(s) Of Engagement Activity | 2019 |
Description | Presentation at Controversies in Fibromyalgia Conference 2020 |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | I gave a presentation at the Controversies in Fibromyalgia Conference |
Year(s) Of Engagement Activity | 2020 |
Description | Presentation at EDS ECHO Summit for Medical Practitioners |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | I gave a talk on hypermobility and neurodiversity to the EDS ECHO SUMMIT in 2020. This prompted requests for further information and collaborations |
Year(s) Of Engagement Activity | 2020 |
Description | Presentation to Le Pub Scientifique |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | Presentation to Le Pub Scientifique |
Year(s) Of Engagement Activity | 2023 |
URL | https://www.lepubscientifique.com |
Description | Presenting Royal College of Psychiatrists Foundation Webinar National Autism Training Programme |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | Presenting Royal College of Psychiatrists Foundation Webinar National Autism Training Programme |
Year(s) Of Engagement Activity | 2023 |
URL | https://www.hee.nhs.uk/our-work/autism/current-projects/national-autism-training-programme-psychiatr... |
Description | Presenting at Brighton and Hove Annual GP CPD event on Immunopsychiatry and Psychorheumatology |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Professional Practitioners |
Results and Impact | It led to the development of a CCG working group to look at the possiblitiy of funding integrated mental health services for physical health patients |
Year(s) Of Engagement Activity | 2019 |
Description | Presenting at Faculty of Eating Disorders Conference |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | Presenting at Faculty of Eating Disorders Conference Royal College of Psychiatry |
Year(s) Of Engagement Activity | 2023 |
Description | Presenting at International Society for Autism Research conference 2023 |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | Presenting at International Society for Autism Research conference 2023 |
Year(s) Of Engagement Activity | 2023 |
URL | https://www.autism-insar.org/page/2023AnnMtg |
Description | Presenting at NIHR Research Design Service Afternoon on Neurodiversity Awareness |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | Presenting at NIHR Research Design Service Afternoon on Neurodiversity Awareness |
Year(s) Of Engagement Activity | 2023 |
URL | https://www.nihr.ac.uk/explore-nihr/support/research-design-service.htm |
Description | Presenting at Neurodiversity and Mental Health summit, University College Dublin |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | Presenting at Neurodiversity and Mental Health summit, University College Dublin |
Year(s) Of Engagement Activity | 2023 |
URL | https://www.ucd.ie/chas/about/committees/neurodiversity/neurodiversityandmentalhealth/ |
Description | Presenting at RCPsych International Congress |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | Presenting at RCPsych International Congress. THis led to requests for further talks and collaborations |
Year(s) Of Engagement Activity | 2023 |
URL | https://www.rcpsych.ac.uk/events/congress2023 |
Description | Prize talk at BNPA |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | Gave prize talk to BNPA on work related to grant, helped facilitate networking and questions |
Year(s) Of Engagement Activity | 2014,2016 |
Description | Psychosomatic Medicine Teaching |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Undergraduate students |
Results and Impact | I organise and deliver the psychosomatic medicine afternoon to medical undergraduates - an opportunity to showcase the type of brain body research we are undertaking at BSMS. Each session has approx 40 students (120 over course of year). I introduce them to the concept of hypermobility and demonstrate how to assess for it. It frequently receives good feedback |
Year(s) Of Engagement Activity | 2017,2018 |
Description | Psychosomatic Special Interest Group |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | Yes |
Type Of Presentation | Keynote/Invited Speaker |
Geographic Reach | Local |
Primary Audience | Undergraduate students |
Results and Impact | I regularly give a talk to approx 70 medical students as part of their psychosomatic medicine special interest session. This prompts much debate and questions This will help with recruitment of a medical student to assist in taking part of the project further next year |
Year(s) Of Engagement Activity | 2013,2014,2015,2016 |
Description | Recording for the Middletown Podcast for Autism |
Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Podcast discussion with Middletown for Autism podcast. |
Year(s) Of Engagement Activity | 2024 |
URL | https://podcasts.apple.com/gb/podcast/the-middletown-centre-for-autism-podcast/id1554057325 |
Description | Releasing a video explaining about my research studies |
Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Patients, carers and/or patient groups |
Results and Impact | I made a video for an informal funder to explain work ongoing. This let to requests to participate and increased followers on twitter |
Year(s) Of Engagement Activity | 2019 |
URL | https://www.youtube.com/watch?v=-h85lQUPRFw |
Description | Sam Thompson: Is it ADHD |
Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Appearing as an expert on C4 documentary Sam Thompson: Is this ADHD. |
Year(s) Of Engagement Activity | 2023 |
URL | https://www.channel4.com/programmes/sam-thompson-is-this-adhd |
Description | Talk - BNPA meeting |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | Talk presented at BNPA meeting |
Year(s) Of Engagement Activity | 2021 |
Description | Talk at ARC KSS Childhood Neurodevelopmental, Neurodisability, Mental Health and Special Needs Research Community of Practice |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | A talk presented at ARC KSS Childhood Neurodevelopmental, Neurodisability, Mental Health and Special Needs Research Community of Practice. Resulted in continued questions and debates and requests for further information about this and future research. |
Year(s) Of Engagement Activity | 2021 |
Description | Talk at American Psychosomatic Conference |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | Delivering a talk at The American Psychosomatic Conference |
Year(s) Of Engagement Activity | 2023 |
URL | https://psychosomatic.org/2023-annual-meeting/ |
Description | Talk at Autism CoP |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | Talk on hypermobility to the RCPsych Autism Community of Practice event, this was well received and led to requests for further talks and engagement in national curriculum for psychiatrists |
Year(s) Of Engagement Activity | 2023 |
Description | Talk at Autism Community Research Network (Sussex) |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Postgraduate students |
Results and Impact | Delivering a talk to the Autism Community Research Network. This was described by the organiser as mind blowing |
Year(s) Of Engagement Activity | 2024 |
Description | Talk at BACME Virtual Conference (British Association for Clinicians in ME/CFS) |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | Talk at BACME Virtual Conference on mechanisms of pain and fatigue. This was well recieved and led to a significant collabroation resulting in large grant application for possible treatment for fibromyalgia and ME/CFS |
Year(s) Of Engagement Activity | 2022 |
URL | https://bacme.info/event/bacme-2022-conference/ |
Description | Talk at Brighton and Sussex Medical School Time for Autism Conference |
Form Of Engagement Activity | Participation in an open day or visit at my research institution |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Public/other audiences |
Results and Impact | Talk at Brighton and Sussex Medical School Time for Autism Conference |
Year(s) Of Engagement Activity | 2024 |
URL | https://www.bsms.ac.uk/research/neuroscience/cds/time-for-autism/time-for-autism.aspx |
Description | Talk at CAMHS Academic Afternoon at South West London and St George's Mental Health NHS Trust |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | Talk at CAMHS Academic Afternoon at South West London and St George's Mental Health NHS Trust |
Year(s) Of Engagement Activity | 2023 |
URL | https://swlstg.nhs.uk/ |
Description | Talk at Chaucer Club, MRC CBU, University of Cambridge |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Professional Practitioners |
Results and Impact | Talk at Chaucer Club, MRC CBU, University of Cambridge |
Year(s) Of Engagement Activity | 2023 |
URL | https://talks.cam.ac.uk/talk/index/205732 |
Description | Talk at Child and Adolescent Psychiatry Conference |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | delivering a talk at Child and Adolescent Psychiatry Conference |
Year(s) Of Engagement Activity | 2023 |
Description | Talk at Community Child Health Conference |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | Talk at National Community Child Health Conference |
Year(s) Of Engagement Activity | 2023 |
URL | https://www.symposia.org.uk/courses/cch-spring-27-28-april-2023/#:~:text=Community%20Child%20Health%... |
Description | Talk at Community Child Health Conference |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | Talk to the Community Child Health Conference |
Year(s) Of Engagement Activity | 2023 |
URL | https://www.symposia.org.uk/courses/cch-spring-27-28-april-2023/ |
Description | Talk at EDS Conference |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | Invited Talk at EDS Scientific Symposium 2022 - This prompted debate and collaborations |
Year(s) Of Engagement Activity | 2022 |
URL | https://www.ehlers-danlos.com/2022-international-symposium/ |
Description | Talk at EDS International Conference 2020 |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Patients, carers and/or patient groups |
Results and Impact | I gave a talk to an international conference that had 700 attendees. This prompted requests for further information and collaborations and has been viewed over 5000 times on youtube |
Year(s) Of Engagement Activity | 2020 |
URL | https://www.youtube.com/watch?v=XYJsXaqixBY&t=8s |
Description | Talk at Interoception Day |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | Talk at Interoception Day which resulted in requests for further information about research. |
Year(s) Of Engagement Activity | 2021 |
Description | Talk at Johns Hopkins University |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | Talk at Johns Hopkins University resulting in requests for further information about the research and interest in future research. |
Year(s) Of Engagement Activity | 2022 |
Description | Talk at Maximising the impact of your research on social media platforms including tactics to increase Twitter reach |
Form Of Engagement Activity | Participation in an open day or visit at my research institution |
Part Of Official Scheme? | No |
Geographic Reach | Local |
Primary Audience | Postgraduate students |
Results and Impact | Talk at Maximising the impact of your research on social media platforms including tactics to increase Twitter reach |
Year(s) Of Engagement Activity | 2023 |
Description | Talk at Minding the Gap virtual seminar |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | Talk related to neurodiversity and hypermobility in artistic atheletes. This led to request to present at international conference later in 2023 |
Year(s) Of Engagement Activity | 2022 |
Description | Talk at NIHR Day at BSMS |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | I gave a talk on my career to the NIHR day at BSMS - approx 100 in the audience. Raised the profile of mental health research, particularly brain-body interactions and sparked questions and debate |
Year(s) Of Engagement Activity | 2017 |
Description | Talk at Post-COVID Assessment and Support Service (PCASS) (Long COVID clinicians) |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | Talk at Post-COVID Assessment and Support Service (PCASS) |
Year(s) Of Engagement Activity | 2023 |
URL | https://www.sussexcommunity.nhs.uk/services/post-covid-assessment-and-support-service-pcass/124540 |
Description | Talk at PsychSoc |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | A talk presented at PsychSoc resulting in requests for further information about subject, research and future research. |
Year(s) Of Engagement Activity | 2022 |
Description | Talk at RCPsych Autism Community of Practice |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | Talk at RCPsych Autism Community of Practice |
Year(s) Of Engagement Activity | 2023 |
Description | Talk at RCPsych International Congress 2022 |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | Presentation at RCPsych International Congress on hypermpobility. This prompted much debate and discussion and helped forge new collaborations and opportunities to present elsewhere |
Year(s) Of Engagement Activity | 2022 |
Description | Talk at Royal College of Psychiatry Autism Community of Practice |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | Talk at Royal College of Psychiatry Autism Community of Practice |
Year(s) Of Engagement Activity | 2024 |
Description | Talk at Sheffield Unviersity Department of Neurology |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | Local |
Primary Audience | Professional Practitioners |
Results and Impact | Talk at Sheffield Unviersity department of Neurology on hypermobility, pain and fatigue |
Year(s) Of Engagement Activity | 2022 |
Description | Talk at The Zebra Club |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Public/other audiences |
Results and Impact | Delivery of a talk to The Zebra Club about neurodiversity. This received excellent feedback |
Year(s) Of Engagement Activity | 2023 |
Description | Talk at Welsh National Autism Community of Practice |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Professional Practitioners |
Results and Impact | Talk at Wales National Autism Community of Practice |
Year(s) Of Engagement Activity | 2023 |
Description | Talk at the Central School of Ballet |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Patients, carers and/or patient groups |
Results and Impact | Delivering a talk to the Central School of Ballet. |
Year(s) Of Engagement Activity | 2024 |
Description | Talk for ADHD Aware charity |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Public/other audiences |
Results and Impact | Delivering a talk for ADHD aware. |
Year(s) Of Engagement Activity | 2024 |
URL | https://adhdaware.org.uk/ |
Description | Talk for Central Approved Mental Health Practitioners Team Day |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | Local |
Primary Audience | Professional Practitioners |
Results and Impact | Talk and training for AMHPs |
Year(s) Of Engagement Activity | 2023 |
Description | Talk for Circus Doc |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | Delivering a talk for Cricus Professionals |
Year(s) Of Engagement Activity | 2024 |
URL | https://www.thecircusdoc.com/workshops-and-events/#upcoming |
Description | Talk for Hypermobility Syndromes Association ask the experts |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Public/other audiences |
Results and Impact | Delivering a talk for Hypermobility Syndromes Association Ask the Experts session. |
Year(s) Of Engagement Activity | 2024 |
URL | https://www.hypermobility.org/ |
Description | Talk for North West Psychiatrists |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Professional Practitioners |
Results and Impact | Delivering a talk for psychiatrists in the North West region |
Year(s) Of Engagement Activity | 2024 |
Description | Talk for Sheffield Foundation NHS Trust (Peadiatric Rheumatology) |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Professional Practitioners |
Results and Impact | Talking to Sheffield Foundation NHS Trust (Paediatric Rheumatology) |
Year(s) Of Engagement Activity | 2023 |
URL | https://www.sheffieldchildrens.nhs.uk/services/rheumatology/#:~:text=Our%20Rheumatology%20Service%20... |
Description | Talk for youth mental health and neurodisability community of practice event |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Patients, carers and/or patient groups |
Results and Impact | Talk at YP mental health and neurodisability community of Practice Event. This led to further collaborations |
Year(s) Of Engagement Activity | 2022 |
Description | Talk presented at BSR live |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | Talk presented at BSR live |
Year(s) Of Engagement Activity | 2021 |
Description | Talk presented at Sussex & Kent ME/CFS Society conference |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Professional Practitioners |
Results and Impact | talk presented at Sussex & Kent ME/CFS Society conference. Results included requests for further information about this and future research. |
Year(s) Of Engagement Activity | 2021 |
Description | Talk presented at The Adult ASD and ADHD Clinics at King's University London |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Patients, carers and/or patient groups |
Results and Impact | Talk presented to The Adult ASD and ADHD Clinics at King's University London. This resulted in an expanded public knowledge of research outcomes, requests for further information about this and future research. |
Year(s) Of Engagement Activity | 2021 |
Description | Talk presented to Hypermobility Masterclass |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Patients, carers and/or patient groups |
Results and Impact | Talk presented to Hypermobility Masterclass, resulting in requests for further information about this and future research and a greater understanding for patient groups. |
Year(s) Of Engagement Activity | 2021 |
Description | Talk to Brighton and Sussex Health Research Partnership Conference 2023 |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Professional Practitioners |
Results and Impact | Talk to Brighton and Sussex Health Research Partnership Conference 2023 |
Year(s) Of Engagement Activity | 2023 |
URL | https://www.bsms.ac.uk/research/support-and-governance/health-research-partnership.aspx |
Description | Talk to IoPPN |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Professional Practitioners |
Results and Impact | Gave a talk to IoPPN about work - led to a collaboration |
Year(s) Of Engagement Activity | 2015 |
Description | Talk to Kent Hypermobility Masterclass |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Professional Practitioners |
Results and Impact | I gave a talk at the hypermobility masterclass to about 80 interested practitioners and members of patient organisations. This sparked debate and discuss and forged new networks |
Year(s) Of Engagement Activity | 2016 |
Description | Talk to London EDS Group |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Patients, carers and/or patient groups |
Results and Impact | I presented at a London EDS group event on Neurodiversity and hypermobility. Approx 100 patients in attendance |
Year(s) Of Engagement Activity | 2021 |
Description | Talk to London and SE Hypermobility Club |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Professional Practitioners |
Results and Impact | I delivered a talk on neuroimaging of hypermobility to clinicians and students involved in the management of hypermobility in London and South East. It sparked questions and debate and helped forge new links |
Year(s) Of Engagement Activity | 2016 |
Description | Talk to North East Fatigue Group |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Professional Practitioners |
Results and Impact | 40 people attended my talk about relevance of joint hypermobility to psychiatric symptoms, which sparked questions and discussion afterwards and help forge potential new collaborations |
Year(s) Of Engagement Activity | 2016 |
Description | Talk to ReMEMBER (patient organisation) about our research |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Patients, carers and/or patient groups |
Results and Impact | Myself and Prof Davies spoke about our upcoming research and past research to a patient organisation. This sparked questions and discussion and helped with recruitment |
Year(s) Of Engagement Activity | 2017 |
Description | Talk to SWAN (Scottish Women's Autism Network) Scotland |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Patients, carers and/or patient groups |
Results and Impact | Talk to SWAN (Scottish Women's Autism Network) Scotland |
Year(s) Of Engagement Activity | 2023 |
URL | https://swanscotland.org/ |
Description | Talks for EULAR talk (European Congress of Rheumatology) |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Professional Practitioners |
Results and Impact | Talks for EULAR talk (European Congress of Rheumatology) |
Year(s) Of Engagement Activity | 2023 |
URL | https://www.medscape.com/viewcollection/36967 |
Description | Teaching 4th Year Medical Students on Chronic Pain |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Undergraduate students |
Results and Impact | I deliver innovative clinical teaching on chronic pain to 4th year BSMS medical students which is informed by my research |
Year(s) Of Engagement Activity | 2015,2016,2017,2018,2019,2020 |
Description | Teaching on Masters in Psychiatry Course |
Form Of Engagement Activity | A talk or presentation |
Part Of Official Scheme? | No |
Geographic Reach | Regional |
Primary Audience | Professional Practitioners |
Results and Impact | I gave various lectures about aspects of psychiatry, research and neuroimaging |
Year(s) Of Engagement Activity | 2012,2013,2014,2015,2016,2017,2018,2019,2020 |
Description | Video released of a presentation explaining my work at BNPA |
Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Patients, carers and/or patient groups |
Results and Impact | BNPA released a video of a talk that I made. This was invlauable in quietening a twitter storm that ensued about comments related to anxiety and autnomic dysfunction https://twitter.com/Laconic_doc/status/1188493482589151232 and led to many hundreds of new followers |
Year(s) Of Engagement Activity | 2019 |
URL | https://vimeo.com/346710898 |
Description | Webinar for EDS UK on hypermobility and neurodiversity |
Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Public/other audiences |
Results and Impact | This webinar attracted 1500 live views and many more accessed the recording |
Year(s) Of Engagement Activity | 2022 |
URL | https://www.youtube.com/watch?v=2EolOcT8TUk |
Description | Well Woman's Podcast |
Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Patients, carers and/or patient groups |
Results and Impact | Talking to the Well Woman's Podcast |
Year(s) Of Engagement Activity | 2023 |
URL | https://www.adhdwomenswellbeing.co.uk/adhd-podcast |
Description | Workshop to Physiotherapists at BSUH |
Form Of Engagement Activity | Participation in an activity, workshop or similar |
Part Of Official Scheme? | No |
Geographic Reach | Local |
Primary Audience | Professional Practitioners |
Results and Impact | I gave a workshop to local physiotherapists about the relationship between joint hypermobility and anxiety. This sparked discussion and debate and raised the profile of the condition amongst clinicians on the front line |
Year(s) Of Engagement Activity | 2016 |
Description | YouTube Videos |
Form Of Engagement Activity | Engagement focused website, blog or social media channel |
Part Of Official Scheme? | No |
Geographic Reach | International |
Primary Audience | Public/other audiences |
Results and Impact | My YouTube videos have now been viewed nearly 60K times and prompted collaborations and many requests for further information |
Year(s) Of Engagement Activity | 2016,2018,2020,2021 |
URL | https://www.youtube.com/results?search_query=jessica+eccles |
Description | interview for press relating to hypermobility (Top Sante magazine) |
Form Of Engagement Activity | A magazine, newsletter or online publication |
Part Of Official Scheme? | No |
Geographic Reach | National |
Primary Audience | Public/other audiences |
Results and Impact | I gave an interview about hypermobility to Top Sante magazine - this resulted in lots of requests for further information |
Year(s) Of Engagement Activity | 2020 |