Towards high quality end of life care for all: Addressing inequalities in access to hospice care

Lead Research Organisation: University of Leeds
Department Name: School of Medicine

Abstract

Molly's application is relevant to only a predefined project. She highlights the importance of scoping in phase one of the project, including a literative review, interviews with staff and patients with relevant experience of the end of life and hospice services, as well as an analysis of any pre-existing data relating to demographic information of service users including age, gender and socioeconomic status in order to determine the current processes as well as to explore and identify the limitations and needs of the current service and how it may be expanded upon and improved. Findings from this phase of the research would inform the next phase of developing a new intervention service to attempt to address the needs of the service users and staff. Finally, the third stage of the project would allow for collection of before and after data in order to test the effectiveness of the intervention in addressing inequalities in end of life care, allowing adequate time for proper analysis of findings and writing up for dissemination of results. Throughout the project, effort would be made to publish findings at different stages of development and to attend any relevant conferences or courses which may assist in this.

Publications

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Studentship Projects

Project Reference Relationship Related To Start End Student Name
ES/P000746/1 01/10/2017 30/09/2027
1948641 Studentship ES/P000746/1 20/09/2017 31/03/2022 Molly Megson
 
Description A systematic review has produced an overview of methodological adaptation that have been made in previous health-related research with homeless participants. These findings have helped to form a guide on conducting future research which might better meet the needs of the homeless participant population, and therefore promote further research with this group.
Exploitation Route To provide information on how researchers can meet the needs of homeless participants in order to promote consideration of ethical issues when working with this group, and support future research.
Sectors Healthcare

 
Description Collaboration between local homeless organisations and palliative and other medical services. development of working relationships and knowledge exchange. Co-writing of bids for third sector funding for specialist services based on findings of the research.
First Year Of Impact 2019
Sector Communities and Social Services/Policy,Healthcare
Impact Types Cultural,Societal,Economic,Policy & public services

 
Description Homeless Palliative Action Group 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Professional Practitioners
Results and Impact Established and continued to engage with an action group consisting of local practitioners in the palliative and homeless sectors. Working together to discuss future development needs and how to meet them.
Year(s) Of Engagement Activity 2018,2019,2020
 
Description Presentation at the Irish Street medicine Symposium 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact I attended the Irish Street medicine Symposium in Cork, Ireland. I presented my findings from a systematic review that informed practitioners, researchers, and students on good practice in conducting health-related research with participants experiencing homelessness. I also took part in a question and answer session afterward alongside other speakers.

I engaged in several conversations throughout the conference and discussed these methods. Several people told me they felt better equipped to work with this patient group as a result of my presentation, and I received follow up emails requesting further information.
Year(s) Of Engagement Activity 2019