Being-neurodivergent-in-the-world: an embodied and sensory ethnography

Lead Research Organisation: University of Sussex
Department Name: Sch of Global Studies

Abstract

This study aims to investigate the embodied nature of what becoming neurodivergent (ND)
means for newly diagnosed adults in the UK. It is estimated that 4% of this population are
ADHD, 1-2% autistic, 10% dyslexic, and 5% dyspraxic (ACAS, 2020). In secondary school, I
was diagnosed as dyslexic but it was not until 2018, a sum of eight years and several
clinicians later, that I was finally diagnosed as autistic and ADHD. Becoming ND in adulthood
is a life-changing process that is little understood, academically or in health practice, and
has been declared "an emerging area of priority" in the UK (Stagg & Belcher, 2019; POST,
2020, p.4).
In psychology and neuroscience, 'the state of being ND' (neurodivergence) is framed
clinically and these diagnoses are pathologised as monotropic 'disorders' of the mind (Baron-
Cohen, 2017, 2002, Pegado et al., 2020; Ortega, 2013, 2009; Oller, 2019; Soukup, 2018; Fraga
González & Jurgen, 2018). In non-academic literature, neurodivergence is framed
autobiographically and these confessional narratives are inadequately theorised (Adams &
Laing, 2020; James, 2017; Suskind, 2014; Simone & Willey, 2010; Donvan & Zucker, 2017).
These two bodies of literature fail to capture becoming ND as a mindbody experience, which
embodied and sensory anthropology will allow me to do.

People

ORCID iD

Beth Sutton (Student)

Publications

10 25 50

Studentship Projects

Project Reference Relationship Related To Start End Student Name
ES/P00072X/1 01/10/2017 30/09/2027
2578247 Studentship ES/P00072X/1 01/10/2021 30/09/2025 Beth Sutton