UKRI trusted and connected Data and Analytics Research Environments, Phase 1
Lead Research Organisation:
Health Data Research UK
Department Name: UNLISTED
Abstract
The UK Trusted and Connected Data and Analytics Research Environments, Phase 1 project involves an extensive scoping phase ("Design and Dialogue") which will involve extensive community engagement activities across the UKRI research communities for gathering detailed socio-technical requirements for the specification of hardware, software and services; and for co-designing technical, federation and accreditation standards and governance frameworks which meet the needs of data controllers, users, and the public.
Technical Summary
The UK Trusted and Connected Data and Analytics Research Environments, Phase 1 project involves an extensive scoping phase (""Design and Dialogue"") to define the socio-technical requirements for a novel national federated digital infrastructure to establish the next generation of Trusted Research Environments (TREs) (i.e. secure, cloud-enabled environments for advanced analytics) - where researchers can safely:
• store (as and when required), but mainly process, link and analyse potentially identifiable/sensitive data (generally, unconsented ‘FAIRified’ data from different modalities/sources) at UK scale; and
• have programming access to bring advanced analytical algorithms (e.g. AI/ML algorithms) to the data; but also, export software/algorithms and analyses results developed and produced within this environment.
• store (as and when required), but mainly process, link and analyse potentially identifiable/sensitive data (generally, unconsented ‘FAIRified’ data from different modalities/sources) at UK scale; and
• have programming access to bring advanced analytical algorithms (e.g. AI/ML algorithms) to the data; but also, export software/algorithms and analyses results developed and produced within this environment.
Organisations
- Health Data Research UK (Lead Research Organisation)
- NHS National Services Scotland (NSS) (Collaboration)
- University of Warwick (Collaboration)
- BT Group (Collaboration)
- UNIVERSITY OF EDINBURGH (Collaboration)
- Rovira i Virgili University (Collaboration)
- University of Sheffield (Collaboration)
- DURHAM UNIVERSITY (Collaboration)
- Cardiff University (Collaboration)
- UNIVERSITY OF BIRMINGHAM (Collaboration)
- Rosalind Franklin Institute (Collaboration)
- UNIVERSITY OF ESSEX (Collaboration)
- UNIVERSITY OF SOUTHAMPTON (Collaboration)
- Francis Crick Institute (Collaboration)
- University of Manchester (Collaboration)
- Kaleidoscope (Collaboration)
- UNIVERSITY OF NOTTINGHAM (Collaboration)
- National Institute for Health Research (Collaboration)
- Public Health Scotland (Collaboration)
- UNIVERSITY OF CAMBRIDGE (Collaboration)
- Diabetes UK (Collaboration)
- UNIVERSITY HOSPITALS BIRMINGHAM NHS FOUNDATION TRUST (Collaboration)
- UNIVERSITY OF OXFORD (Collaboration)
- Cancer Research UK (Collaboration)
- Alan Turing Institute (Collaboration)
- AIMES Grid Services Ltd (Collaboration)
- University of the West of England (Collaboration)
- Eastern Academic Health Science Network (Collaboration)
- Institute of Cancer Research UK (Collaboration)
- BITFOUNT LTD (Collaboration)
- HEALTH DATA RESEARCH UK (Collaboration)
- Nottingham University Hospitals NHS Trust (Collaboration)
- Genomics England (Collaboration)
- Privitar (Collaboration)
- SWANSEA UNIVERSITY (Collaboration)
- UNIVERSITY OF DUNDEE (Collaboration)
People |
ORCID iD |
| Andrew Morris (Principal Investigator) |
Publications
Fry A
(2021)
UK Data Research Infrastructure Landscape
in Data Research Infrastructure Landscape review of the UK data research infrastructure
| Description | A New National Purpose: Leading the Biotech Revolution |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| URL | https://www.institute.global/insights/politics-and-governance/a-new-national-purpose-leading-the-bio... |
| Description | Creating a national platform for powerful molecular studies of multiple conditions: the HDRUK multiomics consortium |
| Amount | £1,088,605 (GBP) |
| Organisation | Health Data Research UK |
| Sector | Private |
| Country | United Kingdom |
| Start | 07/2020 |
| End | 08/2022 |
| Description | AI Risk Evaluation Group (DARE UK Community Working Group) |
| Organisation | Swansea University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | n/a |
| Collaborator Contribution | Completing the activities set out in their proposal. |
| Impact | Public/Patient Workshop: WHAT are the risks associated with AI model release: This workshop will focus on gathering patient perspectives on the risks of using their data for AI research. Researcher Workshop: WHAT are the most effective mitigation techniques: This workshop will bring together AI and clinical experts to discuss current AI methods, privacy-preserving techniques, and potential privacy risks in implementing AI models and produce a set of recommendations of best practices for mitigating privacy risks in AI and effective privacy-preserving techniques. Data Provider Workshop: WHAT is the risk appetite of data providers: The third workshop will engage data providers to understand their risk appetite and any barriers or restrictions they have regarding AI training on their data. Developing guidelines and recommendations for Trusted Research Environments on assessing AI risk and implementing privacy-preserving methods: The final workshop aims to consolidate insights from the previous sessions by bringing together all participants from the previous three workshops to co-develop comprehensive guidelines for AI risk assessment and recommendations for privacy-preserving methods within Trusted Research Environments (TREs). |
| Start Year | 2023 |
| Description | AI Risk Evaluation Group (DARE UK Community Working Group) |
| Organisation | University of Cambridge |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | n/a |
| Collaborator Contribution | Completing the activities set out in their proposal. |
| Impact | Public/Patient Workshop: WHAT are the risks associated with AI model release: This workshop will focus on gathering patient perspectives on the risks of using their data for AI research. Researcher Workshop: WHAT are the most effective mitigation techniques: This workshop will bring together AI and clinical experts to discuss current AI methods, privacy-preserving techniques, and potential privacy risks in implementing AI models and produce a set of recommendations of best practices for mitigating privacy risks in AI and effective privacy-preserving techniques. Data Provider Workshop: WHAT is the risk appetite of data providers: The third workshop will engage data providers to understand their risk appetite and any barriers or restrictions they have regarding AI training on their data. Developing guidelines and recommendations for Trusted Research Environments on assessing AI risk and implementing privacy-preserving methods: The final workshop aims to consolidate insights from the previous sessions by bringing together all participants from the previous three workshops to co-develop comprehensive guidelines for AI risk assessment and recommendations for privacy-preserving methods within Trusted Research Environments (TREs). |
| Start Year | 2023 |
| Description | AI Risk Evaluation Group (DARE UK Community Working Group) |
| Organisation | University of Oxford |
| Department | Oxford University Innovation |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | n/a |
| Collaborator Contribution | Completing the activities set out in their proposal. |
| Impact | Public/Patient Workshop: WHAT are the risks associated with AI model release: This workshop will focus on gathering patient perspectives on the risks of using their data for AI research. Researcher Workshop: WHAT are the most effective mitigation techniques: This workshop will bring together AI and clinical experts to discuss current AI methods, privacy-preserving techniques, and potential privacy risks in implementing AI models and produce a set of recommendations of best practices for mitigating privacy risks in AI and effective privacy-preserving techniques. Data Provider Workshop: WHAT is the risk appetite of data providers: The third workshop will engage data providers to understand their risk appetite and any barriers or restrictions they have regarding AI training on their data. Developing guidelines and recommendations for Trusted Research Environments on assessing AI risk and implementing privacy-preserving methods: The final workshop aims to consolidate insights from the previous sessions by bringing together all participants from the previous three workshops to co-develop comprehensive guidelines for AI risk assessment and recommendations for privacy-preserving methods within Trusted Research Environments (TREs). |
| Start Year | 2023 |
| Description | Creating a federated cloud-based TRE to facilitate consortium-based research and interoperability between existing institutions/TREs |
| Organisation | BT Group |
| Department | BT Research |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | Outputs: - https://zenodo.org/record/7119720#.ZAsOXBXP2Uk |
| Start Year | 2022 |
| Description | Creating a federated cloud-based TRE to facilitate consortium-based research and interoperability between existing institutions/TREs |
| Organisation | Francis Crick Institute |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | Outputs: - https://zenodo.org/record/7119720#.ZAsOXBXP2Uk |
| Start Year | 2022 |
| Description | Creating a federated cloud-based TRE to facilitate consortium-based research and interoperability between existing institutions/TREs |
| Organisation | Institute of Cancer Research UK |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | Outputs: - https://zenodo.org/record/7119720#.ZAsOXBXP2Uk |
| Start Year | 2022 |
| Description | Creating a federated cloud-based TRE to facilitate consortium-based research and interoperability between existing institutions/TREs |
| Organisation | Rosalind Franklin Institute |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | Outputs: - https://zenodo.org/record/7119720#.ZAsOXBXP2Uk |
| Start Year | 2022 |
| Description | Creating the blueprint for a federated network of next generation, cross-council Trusted Research Environments. |
| Organisation | Nottingham University Hospitals NHS Trust |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | Outputs: - https://zenodo.org/record/7085513#.ZAsQmBXP2Uk |
| Start Year | 2022 |
| Description | Creating the blueprint for a federated network of next generation, cross-council Trusted Research Environments. |
| Organisation | University Hospitals Birmingham NHS Foundation Trust |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | Outputs: - https://zenodo.org/record/7085513#.ZAsQmBXP2Uk |
| Start Year | 2022 |
| Description | Creating the blueprint for a federated network of next generation, cross-council Trusted Research Environments. |
| Organisation | University of Birmingham |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | Outputs: - https://zenodo.org/record/7085513#.ZAsQmBXP2Uk |
| Start Year | 2022 |
| Description | Creating the blueprint for a federated network of next generation, cross-council Trusted Research Environments. |
| Organisation | University of Nottingham |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | Outputs: - https://zenodo.org/record/7085513#.ZAsQmBXP2Uk |
| Start Year | 2022 |
| Description | DARE UK Driver Project- SARA: Semi-Automated Risk Assessment of Data Provenance and Clinical Free-text in trusted research environments, |
| Organisation | University of Edinburgh |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work |
| Impact | https://zenodo.org/records/10055362 https://zenodo.org/records/10084410 https://zenodo.org/records/10229070 https://tre-provenance.github.io/ |
| Start Year | 2023 |
| Description | DARE UK Driver Project- TELEPORT: Connecting researchers to big data at light speed, |
| Organisation | Swansea University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | https://zenodo.org/records/10055358 https://zenodo.org/records/10084452 |
| Start Year | 2023 |
| Description | Establishing a common federated infrastructure for secure API-driven multi-party federation on clinico-genomic cohorts |
| Organisation | Cancer Research UK |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | Outputs: - https://zenodo.org/record/7085536#.ZAsMqxXP2Uk |
| Start Year | 2022 |
| Description | Establishing a common federated infrastructure for secure API-driven multi-party federation on clinico-genomic cohorts |
| Organisation | Eastern Academic Health Science Network |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | Outputs: - https://zenodo.org/record/7085536#.ZAsMqxXP2Uk |
| Start Year | 2022 |
| Description | Establishing a common federated infrastructure for secure API-driven multi-party federation on clinico-genomic cohorts |
| Organisation | Genomics England |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | Outputs: - https://zenodo.org/record/7085536#.ZAsMqxXP2Uk |
| Start Year | 2022 |
| Description | Establishing a common federated infrastructure for secure API-driven multi-party federation on clinico-genomic cohorts |
| Organisation | National Institute for Health Research |
| Department | NIHR Cambridge Biomedical Research Centre |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | Outputs: - https://zenodo.org/record/7085536#.ZAsMqxXP2Uk |
| Start Year | 2022 |
| Description | Establishing a common federated infrastructure for secure API-driven multi-party federation on clinico-genomic cohorts |
| Organisation | University of Cambridge |
| Department | Cambridge University Health Partners |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | Outputs: - https://zenodo.org/record/7085536#.ZAsMqxXP2Uk |
| Start Year | 2022 |
| Description | Establishing a common federated infrastructure for secure API-driven multi-party federation on clinico-genomic cohorts |
| Organisation | University of Cambridge |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | Outputs: - https://zenodo.org/record/7085536#.ZAsMqxXP2Uk |
| Start Year | 2022 |
| Description | FAIR TREATMENT: Federated analytics and AI Research across TREs for AdolescenT MENTal health |
| Organisation | AIMES Grid Services Ltd |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | Outputs: - https://zenodo.org/record/7085495#.ZAsGUhXP2Ul |
| Start Year | 2022 |
| Description | FAIR TREATMENT: Federated analytics and AI Research across TREs for AdolescenT MENTal health |
| Organisation | Bitfount Ltd |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | Outputs: - https://zenodo.org/record/7085495#.ZAsGUhXP2Ul |
| Start Year | 2022 |
| Description | FAIR TREATMENT: Federated analytics and AI Research across TREs for AdolescenT MENTal health |
| Organisation | Kaleidoscope |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | Outputs: - https://zenodo.org/record/7085495#.ZAsGUhXP2Ul |
| Start Year | 2022 |
| Description | FAIR TREATMENT: Federated analytics and AI Research across TREs for AdolescenT MENTal health |
| Organisation | University of Birmingham |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | Outputs: - https://zenodo.org/record/7085495#.ZAsGUhXP2Ul |
| Start Year | 2022 |
| Description | FAIR TREATMENT: Federated analytics and AI Research across TREs for AdolescenT MENTal health |
| Organisation | University of Cambridge |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | Outputs: - https://zenodo.org/record/7085495#.ZAsGUhXP2Ul |
| Start Year | 2022 |
| Description | FAIR TREATMENT: Federated analytics and AI Research across TREs for AdolescenT MENTal health |
| Organisation | University of Essex |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | Outputs: - https://zenodo.org/record/7085495#.ZAsGUhXP2Ul |
| Start Year | 2022 |
| Description | Guidelines and Resources for AI Model Access from TrusTEd Research environments (GRAIMatter) |
| Organisation | Durham University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | Outputs: - https://zenodo.org/record/7089514#.ZAsVQxXP2Uk - https://zenodo.org/record/7089491#.ZAsVRRXP2Uk |
| Start Year | 2022 |
| Description | Guidelines and Resources for AI Model Access from TrusTEd Research environments (GRAIMatter) |
| Organisation | NHS National Services Scotland (NSS) |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | Outputs: - https://zenodo.org/record/7089514#.ZAsVQxXP2Uk - https://zenodo.org/record/7089491#.ZAsVRRXP2Uk |
| Start Year | 2022 |
| Description | Guidelines and Resources for AI Model Access from TrusTEd Research environments (GRAIMatter) |
| Organisation | Rovira i Virgili University |
| Country | Spain |
| Sector | Academic/University |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | Outputs: - https://zenodo.org/record/7089514#.ZAsVQxXP2Uk - https://zenodo.org/record/7089491#.ZAsVRRXP2Uk |
| Start Year | 2022 |
| Description | Guidelines and Resources for AI Model Access from TrusTEd Research environments (GRAIMatter) |
| Organisation | University of Dundee |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | Outputs: - https://zenodo.org/record/7089514#.ZAsVQxXP2Uk - https://zenodo.org/record/7089491#.ZAsVRRXP2Uk |
| Start Year | 2022 |
| Description | Guidelines and Resources for AI Model Access from TrusTEd Research environments (GRAIMatter) |
| Organisation | University of the West of England |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | Outputs: - https://zenodo.org/record/7089514#.ZAsVQxXP2Uk - https://zenodo.org/record/7089491#.ZAsVRRXP2Uk |
| Start Year | 2022 |
| Description | Privacy Risk Assessment Methodology |
| Organisation | Privitar |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | Outputs: - https://zenodo.org/record/7107154#.ZAsSPBXP2Uk - https://zenodo.org/record/7413791#.ZAsSMhXP2Uk - https://zenodo.org/record/7107466#.ZAsSOxXP2Uk - https://zenodo.org/record/7107487#.ZAsSOBXP2Uk |
| Start Year | 2022 |
| Description | Privacy Risk Assessment Methodology |
| Organisation | University of Southampton |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | Outputs: - https://zenodo.org/record/7107154#.ZAsSPBXP2Uk - https://zenodo.org/record/7413791#.ZAsSMhXP2Uk - https://zenodo.org/record/7107466#.ZAsSOxXP2Uk - https://zenodo.org/record/7107487#.ZAsSOBXP2Uk |
| Start Year | 2022 |
| Description | Privacy Risk Assessment Methodology |
| Organisation | University of Warwick |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | Outputs: - https://zenodo.org/record/7107154#.ZAsSPBXP2Uk - https://zenodo.org/record/7413791#.ZAsSMhXP2Uk - https://zenodo.org/record/7107466#.ZAsSOxXP2Uk - https://zenodo.org/record/7107487#.ZAsSOBXP2Uk |
| Start Year | 2022 |
| Description | Public Engagement in Data Research Initiative (PEDRI) |
| Organisation | Health Data Research UK |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Funding will help PEDRI to facilitate partnerships and collaboration, offer solutions to challenges, and prevent duplication of efforts with PIE work. |
| Impact | Development and adoption of PEDRI standards Community Engagement and knowledge sharing Planning for national public awareness campaigns Establishing a Central Resource Hub and Improving Transparency and Functionality of the PEDRI Website and Alliance PIE Web Pages. |
| Start Year | 2023 |
| Description | SACRO: Semi-Automated Checking of Research Outputs (DARE UK Driver Project) |
| Organisation | University of the West of England |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | https://zenodo.org/records/10055365 https://zenodo.org/records/10084201 https://zenodo.org/records/10277675 https://zenodo.org/records/10282526 https://dareuk.org.uk/driver-project-sacro/ |
| Start Year | 2023 |
| Description | SATRE: Standardised Architecture for Trusted Research Environments |
| Organisation | University of Dundee |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | n/a |
| Collaborator Contribution | DARE UK funded this work under their Driver Projects portfolio. TREs are designed to enable access to sensitive data only for authorised projects and researchers, whilst minimising risk of data release or exposure. Influential reports from DARE UK and Health Data Research UK, together with the UK Government Goldacre review and 'Data Saves Lives' policy paper, have all highlighted the need for change in how sensitive data are handled. SATRE will compare openly available UK TREs hosting health, manufacturing, commercial, science and humanities data and bring them into alignment with a standardised TRE reference architecture (or structural template). The development teams at the University of Dundee's Health Informatics Centre and the Alan Turing Institute, fully supported by their infrastructure partners, will lead the reference alignment in collaboration with a consortium of higher education, charity and industry organisations. The reference architecture and its implementation will be informed and strengthened by a programme of community building and engagement with DARE UK and partner working groups, other stakeholders and inclusive public representation. SATRE outputs will include an informed TRE reference technical specification and a collection of educational media and detailed reports - all supporting DARE UK's aim of a coordinated national data research infrastructure. |
| Impact | The SATRE project provides a Standard Architecture for Trusted Research Environments (TREs). It incorporates knowledge and best practices from multiple institutions and sectors across the UK. This includes all aspects of TRE provision such as information governance procedures, computing technology, data management and other capabilities. It aims to standardise the capabilities of TREs, making it easier for users, operators, and developers to work with sensitive data, and making the operation of TREs more transparent to data owners and the general public. This specification should be useful if you are: a TRE Operator wanting to evaluate or improve their TRE with the suggested capabilities a Developer or Builder of new TREs looking for guidance in their thinking and decision making We encourage all TREs in the UK to evaluate themselves against the SATRE specification, and to |
| Start Year | 2023 |
| Description | STEADFAST: Education outcomes in young people with diabetes: innovative involvement and governance to support public trust. |
| Organisation | Cardiff University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | Outputs: - https://zenodo.org/record/7085483#.ZAsS5xXP2Uk |
| Start Year | 2022 |
| Description | STEADFAST: Education outcomes in young people with diabetes: innovative involvement and governance to support public trust. |
| Organisation | Diabetes UK |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | Outputs: - https://zenodo.org/record/7085483#.ZAsS5xXP2Uk |
| Start Year | 2022 |
| Description | Statistical Disclosure Control - Reducing Barriers to Outputs from TREs (SDC-REBOOT) (DARE UK Community Interest Group) |
| Organisation | University of the West of England |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | n/a |
| Collaborator Contribution | Delivered the work set out in their proposal. |
| Impact | Initially, SDC-REBOOT's work will be divided into four parallel projects supported by the creation of open-source repository governance structures. These threads will: Align the conceptual framework and taxonomy of outputs. Create user adoption roadmaps and resources. Enable TREs to deploy and evaluate automated OSDC tools. Address risk assessment of machine learning models. |
| Start Year | 2023 |
| Description | TRE-FX: Delivering a federated network of trusted research environments to enable safe data analytics |
| Organisation | University of Manchester |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | The TRE-FX project was funded under Phase 1b of the DARE UK programme. |
| Collaborator Contribution | TRE-FX is assembling leading technology providers from ELIXIR-UK and Health Data Research UK (HDR UK) with three TRE providers and two leading analysis platforms. The project will show through a real demonstration how we can use secure research objects to move between TREs while still supporting the Five Safes principles that govern and protect sensitive data - all overseen by public representatives. Research objects are a standardised way of describing and packaging the digital information needed (but not the data itself) to pose a research question and report the answer. The impact will be a step change for how researchers can safely run analyses across data stored in many locations, and for how data providers from any sector can safely implement this using technology and standards we already have today. |
| Impact | https://zenodo.org/records/10055354 https://zenodo.org/records/10084398 |
| Start Year | 2023 |
| Description | Trusted Research Environment and Enclave for Hosting Open Original Science Exploration (TREEHOOSE) |
| Organisation | University of Dundee |
| Department | Health Informatics Centre |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | Outputs: - https://zenodo.org/record/7085505#.ZAsTsxXP2Uk - https://zenodo.org/record/7044483#.ZAsTwBXP2Uk - https://zenodo.org/record/6908253#.ZAsTwxXP2Uk |
| Start Year | 2022 |
| Description | Trusted Research Environments (TRE): removing technical and governance barriers to support innovation and interdisciplinary research |
| Organisation | Public Health Scotland |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | Outputs: - https://zenodo.org/record/7085518#.ZAsRhxXP2Uk |
| Start Year | 2022 |
| Description | Trusted Research Environments (TRE): removing technical and governance barriers to support innovation and interdisciplinary research |
| Organisation | University of Edinburgh |
| Department | Usher Institute |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | Outputs: - https://zenodo.org/record/7085518#.ZAsRhxXP2Uk |
| Start Year | 2022 |
| Description | Trusted Research Environments (TRE): removing technical and governance barriers to support innovation and interdisciplinary research |
| Organisation | University of Edinburgh |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Delivered the funded project in all aspects, contributing both directly and indirectly to the further development of the overall programme of work. |
| Impact | Outputs: - https://zenodo.org/record/7085518#.ZAsRhxXP2Uk |
| Start Year | 2022 |
| Description | UK TRE Community - Community Management and Engagement (DARE UK Community Interest Group) |
| Organisation | Alan Turing Institute |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Expertise Organisation of workshops and events |
| Impact | Outreach and Engagement Identifying stakeholders and interested parties involved in designing, planning, building, and maintaining TREs. Reviewing the wider TRE landscape periodically to build a community representing the entire UK and all those potentially affected by the policies and frameworks guiding TRE development. Establishing connections, communication methods, and resource-sharing pathways with other community groups in the UK and beyond, preventing duplication of work and disseminating knowledge effectively. Sending representatives to external events and expanding the presence beyond the community. Supporting Collaboration Facilitating consensus-building and collaboration among community members by maintaining open communication spaces, such as a Slack Channel and JISC Mailing List. Hosting quarterly half-day events for knowledge sharing, problem-solving, and networking. This includes at least one annual in-person event. Identifying and running additional events for the community on an as-needed basis. |
| Start Year | 2023 |
| Description | UK TRE Community - Community Management and Engagement (DARE UK Community Interest Group) |
| Organisation | University of Dundee |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Expertise Organisation of workshops and events |
| Impact | Outreach and Engagement Identifying stakeholders and interested parties involved in designing, planning, building, and maintaining TREs. Reviewing the wider TRE landscape periodically to build a community representing the entire UK and all those potentially affected by the policies and frameworks guiding TRE development. Establishing connections, communication methods, and resource-sharing pathways with other community groups in the UK and beyond, preventing duplication of work and disseminating knowledge effectively. Sending representatives to external events and expanding the presence beyond the community. Supporting Collaboration Facilitating consensus-building and collaboration among community members by maintaining open communication spaces, such as a Slack Channel and JISC Mailing List. Hosting quarterly half-day events for knowledge sharing, problem-solving, and networking. This includes at least one annual in-person event. Identifying and running additional events for the community on an as-needed basis. |
| Start Year | 2023 |
| Description | UK TRE Community - Community Management and Engagement (DARE UK Community Interest Group) |
| Organisation | University of Sheffield |
| Department | Sheffield Biorepository |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Led and delivered the Programme of work under which this collaboration was funded. |
| Collaborator Contribution | Expertise Organisation of workshops and events |
| Impact | Outreach and Engagement Identifying stakeholders and interested parties involved in designing, planning, building, and maintaining TREs. Reviewing the wider TRE landscape periodically to build a community representing the entire UK and all those potentially affected by the policies and frameworks guiding TRE development. Establishing connections, communication methods, and resource-sharing pathways with other community groups in the UK and beyond, preventing duplication of work and disseminating knowledge effectively. Sending representatives to external events and expanding the presence beyond the community. Supporting Collaboration Facilitating consensus-building and collaboration among community members by maintaining open communication spaces, such as a Slack Channel and JISC Mailing List. Hosting quarterly half-day events for knowledge sharing, problem-solving, and networking. This includes at least one annual in-person event. Identifying and running additional events for the community on an as-needed basis. |
| Start Year | 2023 |
| Description | A day in the life of a Public Involvement and Engagement Intern with DARE UK |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Zahra Atta, who joined DARE UK as Public Involvement and Engagement Intern this summer, describes a day in the life as part of the team |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://dareuk.org.uk/a-day-in-the-life-of-a-public-involvement-and-engagement-intern-with-dare-uk/ |
| Description | A series of six stakeholder workshops each focussed on a key theme |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Funding and incentives Capacity and capability Demonstrating Trustworthiness Data access and accreditation Core Federation Services Data and discovery |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://dareuk.org.uk/your-views-on-core-federation-services-for-a-more-joined-up-national-data-rese... |
| Description | ADR UK Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | DARE had a stand and gave a poster presentation on the draft DARE UK Federated Architecture Blueprint. |
| Year(s) Of Engagement Activity | 2023 |
| Description | BIA TechBio Conference |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Emily Jefferson (CTO, HDR UK and Interim Director of DARE UK) was an invited expert panel speaker at the BIA TechBio Conference. Talk and panel theme: The state of TechBio in the UK. The aim and purpose was to cover a broad set of crucial themes relating to strengths, opportunities and challenges to the sector. |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://www.bioindustry.org/policy/strategic-technologies/techbio.html |
| Description | Breaking barriers, building community: Exploring DARE UK community groups- online webinar |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | The DARE UK (Data and Analytics Research Environments UK) programme team held an online public webinar on Thursday, 20 July 2023, providing attendees with a comprehensive understanding of the community groups initiative, including its goals, structure, and the opportunities to contribute to the thriving UK sensitive data research community. |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://dareuk.org.uk/breaking-barriers-building-community-exploring-dare-uk-community-groups-20-jul... |
| Description | Call for views on draft recommendations for a coordinated national data research infrastructure |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Call for views on draft recommendations for a coordinated national data research infrastructure- feedback on whether we have accurately captured views about current challenges and opportunities. |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://dareuk.org.uk/call-for-views-draft-recommendations-coordinated-national-data-research-infras... |
| Description | DARE UK Driver Projects Final Showcase Day |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | On 16 October 2023, DARE UK held an in-person showcase event in Edinburgh, welcoming the five DARE UK Driver Projects teams, programme partners and members of the public. At the all-day event, the project teams made insightful presentations on the outputs of their work, followed by a Q&A session. UKRI representatives and members of the DARE UK programme team were also present to discuss the integration of the Driver Projects' outputs and their implications for future phases of the DARE UK programme. |
| Year(s) Of Engagement Activity | 2023 |
| Description | DARE UK Driver Projects- Midway showcase day |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Midway through their funding period, the DARE UK Phase 1 Driver Projects teams presented their progress and future plans to key stakeholders and members of the public on the mid-project showcase day. This article provides further details on the projects' aims and progress until midpoint and outlook for the future, including presentations from the showcase day. |
| Year(s) Of Engagement Activity | 2023 |
| Description | DARE UK Launch event |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Third sector organisations |
| Results and Impact | This event marked the launch of the DARE UK project and involved presentations from a number of key note speakers. |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://dareuk.org.uk/dare-uk-launch/ |
| Description | DARE UK Public Advisory Group Meetings |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | A regular catch up with members of the public for them to provide input and guidance on the DARE UK programme's plans and activities. |
| Year(s) Of Engagement Activity | 2023 |
| Description | DARE UK Public Focus Group- Federated Architecture Blueprint Public Friendly materials |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | A workshop where members of the public provided their input on how best to develop public friendly materials, namely a brochure, booklet and animation, for the DARE UK Federated Architecture Blueprint. |
| Year(s) Of Engagement Activity | 2023 |
| Description | DARE UK Scientific and Technical Advisory Group meetings |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | An approximately quarterly meeting with STAG members where advice is offered from members on scientific and technical issues relating to the DARE UK programme. |
| Year(s) Of Engagement Activity | 2023 |
| Description | DARE UK Senior Leader's Roundtable |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | An opportunity for inter-disciplinary thought leaders in the research space to come together and discuss their research priorities and identify areas of alignment. |
| Year(s) Of Engagement Activity | 2024 |
| Description | DARE UK Sprint Exemplar Projects findings published |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | Notification that DARE UK published a series of reports detailing the findings of a programme of Sprint Exemplar Projects funded as part of Phase 1 of the programme. |
| Year(s) Of Engagement Activity | 2022 |
| URL | https://dareuk.org.uk/dare-uk-sprint-exemplar-projects-findings-published/ |
| Description | DARE UK newsletter |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | A regular newsletter sent out by the DARE UK COMMS team to provide updates on Programme related activities. |
| Year(s) Of Engagement Activity | 2023 |
| Description | DARE UK newsletter |
| Form Of Engagement Activity | A magazine, newsletter or online publication |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | Monthly newsletter sent to the DARE UK mailing list. |
| Year(s) Of Engagement Activity | 2021,2022 |
| Description | DARE UK presentation at the HDR UK Data and Connectivity National Core Study Final Event |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation about the work of DARE UK. |
| Year(s) Of Engagement Activity | 2023 |
| Description | DARE UK presentation to National Heritage Science Forum Member Meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Postgraduate students |
| Results and Impact | A presentation oN the work of DARE UK. |
| Year(s) Of Engagement Activity | 2023 |
| Description | DARE UK presentation to NHS England SDE Network Tech & Data WG |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | A presentation delivered by DARE UK Technical lead to share DARE UK's plans. |
| Year(s) Of Engagement Activity | 2023 |
| Description | DARE UK scientific use-case workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | A one day workshop aimed at defining research potential and challenges through data and infrastructure connectivity, advancing DARE UK's vision for a trusted national sensitive data research infrastructure. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://dareuk.org.uk/call-for-participants-dare-uk-scientific-use-case-workshop/ |
| Description | DARE UK- Lunchtime public webinar |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | This lunchtime webinar was an opportunity to find out about: Why data research is so important and how it impacts lives, from health and education to work and the environment How sensitive data is currently made available for research, and the security and governance processes in place A case study showcasing the power of linked data for better understanding outcomes for looked after children in Northern Ireland How DARE UK is working to improve the current system by enabling fast, efficient, ethical and secure access to data, to maximise the public benefit of data research for all |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://dareuk.org.uk/dare-uk-lunchtime-public-webinar-tuesday-7-december-12-1pm/ |
| Description | HPC-AI Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Emily Jefferson (CTO, HDR UK and Interim Director of DARE UK) was an invited speaker at the 5th Annual HPC-AI Advisory Council UK Conference. Presentation: TREs at Scale. |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://www.hpcwire.com/off-the-wire/5th-annual-hpc-ai-advisory-council-uk-conference-set-for-octobe... |
| Description | Hartree Centre Seminar |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | DARE UK presentation |
| Year(s) Of Engagement Activity | 2023 |
| Description | How is sensitive data made accessible for research? |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | This webinar, which was free and open to all, was a chance to hear and ask questions about: How researchers become accredited to access sensitive data via TREs The application and approval processes in place for accessing sensitive data held in TREs How accredited researchers access sensitive data in a safe and secure way via TREs to carry out analysis What limitations there are with current processes, and where improvements could be made to maximise the public benefit of sensitive data research |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://dareuk.org.uk/how-is-sensitive-data-made-accessible-for-research-webinar-tuesday-5-july-2022... |
| Description | Invited speaker: HDR Technology Ecosystem and the Gateway: UKRI Data Infrastructure Club Show and Tell |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Emily Jefferson was an invited speaker, leading a presentation on the HDR UK Technology Ecosystem and the Gateway at the UKRI Data Infrastructure Club Show and Tell: 31st Jan 2023. |
| Year(s) Of Engagement Activity | 2023 |
| Description | Invited speaker: HDR Technology Ecosystem. UK DRI Informatics Scoping Event - London. 8th and 9th March 2023 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Emily Jefferson, CTO of HDR UK was an invited speaker to lead a presentation on the HDR Technology Ecosystem at the UK DRI Informatics Scoping Event - London. 8th and 9th March 2023 |
| Year(s) Of Engagement Activity | 2023 |
| Description | Invited speaker: Technology Ecosystem - Launch. Technology Ecosystem Conference/Workshop. Birmingham. 6th Feb 2023 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Technology Ecosystem Conference (6th February 2023) brought together different technology groups from across the community to strengthen relationships and generate ideas to deliver trustworthy infrastructure and services across the health data research ecosystem |
| Year(s) Of Engagement Activity | 2023 |
| Description | Invited speaker: The power of DRI: A health data perspective. UKRI Digital Research Infrastructure (DRI) Congress. |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Emily Jefferson was an invited speaker to present on: The power of DRI: A health data perspective at the UKRI Digital Research Infrastructure (DRI) Congress. 6th and 7th March 2023. |
| Year(s) Of Engagement Activity | 2023 |
| Description | Keynote speaker: Towards Federated Analytics for Population Data. International Data Science Conference - Tokyo, Japan, 22/05/23 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Emily Jefferson was invited as a keynote speaker to present 'Towards Federated Analytics for Population Data. International Data Science Conference - Tokyo, Japan' on 22/05/23 |
| Year(s) Of Engagement Activity | 2023 |
| Description | Keynote speaker: Towards Federated Analytics for Population Data. Precision Medicine & Real-World Data Conference - Singapore, 23/05/23 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Other audiences |
| Results and Impact | Key note speaker, presented on experiences enabling a new UK infrastructure for finding and accessing population-wide data for research and public health analysis |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://info.bcplatforms.com/precision-medicine-and-rwd-conference-singapore-2023 |
| Description | Linking Sensitive Data: Insights from the DARE UK Driver Projects Webinar |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | An enlightening 1.5-hour online public webinar to unveil the groundbreaking outputs from the five Driver Projects. Around 130 people attended this workshop where they had the opportunity to ask questions and discuss the outputs, following presentations from each project. |
| Year(s) Of Engagement Activity | 2024 |
| URL | https://dareuk.org.uk/linking-sensitive-data-insights-from-the-dare-uk-driver-projects-webinar-wedne... |
| Description | Meet the Sprints |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Public/other audiences |
| Results and Impact | A webinar held to introduce the 9 sprint projects which had received funding as part of the DARE UK programme. |
| Year(s) Of Engagement Activity | 2022 |
| Description | Mid Sprint Exemplar Event |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | An opportunity for the projects funded in the DARE UK funding call to share their progress mid-way through their project. |
| Year(s) Of Engagement Activity | 2022 |
| Description | Persona and User Journey Development workshop |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | The DARE UK delivery team hosted a Persona and User Journey Development workshop, bringing together stakeholders from various organisations to establish key personas for a future pan-UKRI council digital research infrastructure for sensitive data research. |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://dareuk.org.uk/dare-uk-convenes-persona-and-user-journey-development-workshop-with-key-data-r... |
| Description | Public dialogue |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | In January and February 2021, DARE UK and Kohlrabi Consulting delivered a series of deliberative workshops with 44 members of the public from a diversity of backgrounds and identities from across England, Northern Ireland, Scotland and Wales |
| Year(s) Of Engagement Activity | 2021 |
| Description | Reseachers workshop- Led by Carnall Farrar on behalf of DARE UK |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | A workshop targeted at researchers to further understand the challenges and opportunities that researchers face. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Research Data Alliance TRE BoF |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Rob Baxter gave a presentation and lead a discussion. He shared the initial draft architecture blueprint for DARE UK's proposed federated network of TREs. |
| Year(s) Of Engagement Activity | 2023 |
| Description | Research Software Engineers (RSE) Conference |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Emily Jefferson (CTO, HDR UK and Interim Director of DARE UK) was an invited speaker to the Seventh Annual Research Software Engineering Conference. Presentation: Can convening a Technology Ecosystem help TREs to work together? |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://rsecon23.society-rse.org/ |
| Description | Scientific Technical Advisory Group |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Bi monthly meetings with DARE UK Scientific and Technical Advisory Group |
| Year(s) Of Engagement Activity | 2021,2022 |
| Description | Sprint Call - Launch webinar |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Third sector organisations |
| Results and Impact | This event marked the launch of the DARE UK Phase 1 funding call- an opportunity for consortiums to apply for funding in three areas: use cases, technology demonstrators and best practise. |
| Year(s) Of Engagement Activity | 2021 |
| URL | https://www.ukri.org/opportunity/inform-design-of-cross-council-trusted-research-environments/ |
| Description | Sprint Call- Mid Launch webinar |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | An opportunity for those who were interested in applying for the DARE UK Phase 1 funding call to find out more details and ask questions. |
| Year(s) Of Engagement Activity | 2021 |
| Description | Sprint Exemplar Day |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Third sector organisations |
| Results and Impact | An opportunity for projects who received funding in Phase 1 to present their projects to a focussed audience and answer questions. |
| Year(s) Of Engagement Activity | 2022 |
| Description | Technologists workshop- led by Carnall Farrar on behalf of DARE UK |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | A workshop primarily for technologists to discuss the challenges and opportunities faced within the world of data research. |
| Year(s) Of Engagement Activity | 2021 |
| Description | UK TRE Community Conference- DARE UK presentation |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | A presentation of DARE UK's Federated Architecture Blueprint and their plans for the research community. |
| Year(s) Of Engagement Activity | 2023 |
| Description | UK TRE Community Meeting |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Emily Jefferson (CTO, HDR UK and Interim Director of DARE UK) was the keynote speaker at the UK TRE Community Meeting that was part of the RSE Conference. Presentation: Call to action! |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://www.eventbrite.com/e/uk-tre-community-september-meeting-tickets-676066472017 |